Hear from Jenn Perry, 57, breast cancer and Li-Fraumeni Syndrome, Chicopee

Phaedra Ferrini, 24, metastatic paraganglioma, Boston, with Kimberly Perez , MD, Co-Director of Dana-Farber Cancer Institute Gastrointestinal Clinical Trials Program, Senior Physician, Dana-Farber, and Assistant Professor of Medicine at Harvard Medical School

Lia Paulina Cruz Rivera, 7, infantile myofibromatosis, Woonsocket, RI, with Julibeth (mom)

and Nicole Olivera of Applebee's