HD CAREGIVERS, WE NEED YOUR HELP!

To prepare for a clinical trial of a drug that may reduce the disruptive aggressive

behavior that some persons or patients with HD suffer from, we would like to

interview about 25 caregivers who are parents, spouses, or adult children of

patients who have aggressive outbursts. We are specifically interested in trying to

build a list of words that can be used to describe these physically aggressive, acting

out, or other threatening behaviors.

The research is sponsored by Azevan Pharmaceuticals, Inc. The interviews will be

conducted by Erin Koppel, who works at the Huntington's Disease Society of

America Center of Excellence at Georgetown University. We will provide a special

cell phone number that guarantees the privacy of the connection. The calls will be

voice recorded and transcribed so that they can be reviewed more easily. The

information that you provide will be stored in password-protected files at

Georgetown University. You must be fluent in English and at least 18 years old to

participate.

Participants that complete the full interview, which involves answering questions

about aggressive outbursts and related behaviors, will be compensated $50 for their

time and insight.

Thank you very much for considering this request. If you are interested in helping

us, please call or email Erin Koppel at:

202-893-1115

ek875@georgetown.edu