Despite Lupus: How to Live Well with a Chronic Illness

Resources and Links

  • Despite Lupus: Sara's book chronicling her experience with lupus
  • The Despite Lupus blog
  • Pillfold: fashionable medication pouches and totes designed by Sara

Health Policy Partnership: Into the Unknown: Navigating Treatment Decisions during Pregnancy


StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.

Learn more about StuffThatWorks.

We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.

  • Find your condition community.

Music for The Patient Is In courtesy of Blue Dot Sessions.