Remember Me: Recent Episodes
Remember Me Podcast
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast. Visit our website www.remembermeftd.com Support this podcast: https://anchor.fm/rememberme/support
Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is #2 of the TWO bonus episodes we produced for Season 8!
In this episode we tackle the different types of research with Dr. Irwin and Dr. Massimo, the Co-Directors of the Penn FTD Center.
Some of the questions we ask:
-What are the different types of research? Pharmacological vs. not?
-How does brain donation support research?
-How do we make research more accessible?
Research and clinical trials are such an important aspect of our advocacy and we are thrilled to bring you these 2 episodes stacked full of useful info!
Check out the companion blog post for this episode which can be read here full of more resources and info. Special thank you to The AFTD for their collaboration and support of these blogs!
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We want to send big love to the entire Penn FTD Center Team.
To sign up for our e-mail visit our website remembermeftd.com.
Remember Me is proud to work with LearnFTD, by Alector in working to raise awareness of FTD.. For additional information and resources, visit LearnFTD.com Thank you for supporting our work and for supporting the FTD community.
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is one of TWO bonus episodes we produced for Season 8!
In this episode we tackle Clinical Trials with our friend Dahlia Kamel, MS - Clinical Trials Lead at the Penn FTD Center.
Some of the questions we ask:
-What is a clinical trial?
-What do the different phases mean?
-What are the considerations for families? Benefit vs. Burden
Research and clinical trials are such an important aspect of our advocacy and we are thrilled to bring you these 2 episodes stacked full of useful info!
Check out the companion blog post for this episode which can be read here full of more resources and info. Special thank you to The AFTD for their collaboration and support of these blogs!
--
We want to send big love to the entire Penn FTD Center Team.
To sign up for our e-mail visit our website remembermeftd.com.
Remember Me is proud to work with LearnFTD, by Alector in working to raise awareness of FTD.. For additional information and resources, visit LearnFTD.com Thank you for supporting our work and for supporting the FTD community.
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
In conclusion...it's our season finale... and we're wrapping up this series with our own little bow. Make sure to listen til the very end.
And stay in touch, follow us on IG, and keep up to date on all things RM. You never know when you may get an encore cough bonus cough episode or two...
Thank you all for your support and love. Sincerely, R+M
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We want to thank the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.
For more support, resources, events, and all things RM, check out our website www.remembermeftd.com
Special thank you to The Association for Frontotemporal Degeneration for their collaboration and support of our blogs this season! You can read up on all the important information + resources we curated together here.
Remember Me is proud to work with LearnFTD, by Alector in working to raise awareness of FTD.. For additional information and resources, visit LearnFTD.com
Thank you for supporting our work and for supporting the FTD community.
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
This week we talk all about Guardianship, Power of Attorney, Long Term Care... and other "scary" and confusing terms that can come up when planning care for your loved one. All with the help of Kate, a social worker at the Penn FTD Center.
But before that, we dive into our friend Keri's personal experience getting Guardianship for her father, Mark. We recorded this interview last fall, and in February, Mark passed away after a very long journey with FTD.
We want to take a minute to acknowledge Keri for the amazing job she did caring for her dad...all while being a wife, raising her little kids and being a fierce FTD advocate. You're a superhero, Keri.
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We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.
Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com.
The companion blog to this episode can be read here. Special thank you to The AFTD for their collaboration and support of these blogs!
Remember Me is proud to work with LearnFTD, by Alector in working to raise awareness of FTD.. For additional information and resources, visit LearnFTD.com
Thank you for supporting our work and for supporting the FTD community.
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
Are there stages of FTD? What can you "expect"? This week we walk through disease trajectory with Dr. Lauren Massimo (also featured on Episode 2 - Understanding Apathy).
Dr. Massimo breaks down what we know, and how she likes to guide families through these discussions.
And this week's personal stories come from our friends Lauren and Michelle from the Sister Project. Hear their stories told on Season 1 episodes "June" and "June Pt. 2.
This episode is dedicated to June. xx
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We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.
Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com.
The companion blog to this episode can be read here. Special thank you to The AFTD for their collaboration and support of these blogs!
Remember Me is proud to work with LearnFTD, by Alector in working to raise awareness of FTD.. For additional information and resources, visit LearnFTD.com
Thank you for supporting our work and for supporting the FTD community.
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
This episode revolves around the symptoms of hyperorality -- with a focus on the very common symptom of alcohol use (and abuse).
Have a listen as the story meets the science with the lovely Dr. Sara Manning.
We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.
Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com.
The companion blog to this episode can be read here. Special thank you to The AFTD for their collaboration and support of these blogs!
Remember Me is proud to work with LearnFTD, by Alector in working to raise awareness of FTD.. For additional information and resources, visit LearnFTD.com
Thank you for supporting our work and for supporting the FTD community.
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
This week we dive into loss of empathy with Dr. Emma Rhodes. We discuss how this behavior so often reveals itself with birth and death announcements and the episode is filled with personal stories from Rachael, Maria and their friends Lauren and Michelle from the Sister Project (Season 1 - June Pt. 1 & Pt. 2).
We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.
Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com.
The companion blog to this episode can be read here. Special thank you to The AFTD for their collaboration and support of these blogs!
Remember Me is proud to work with LearnFTD, by Alector in working to raise awareness of FTD.. For additional information and resources, visit LearnFTD.com
Thank you for supporting our work and for supporting the FTD community.
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
WE'RE BACK! With a very important interview with the brilliant Corey McMillan, Co-Director of the Penn FTD Center.
This week we tackle ALS and FTD - the science behind the connection of the diseases, and the work that is being done to understand more.
We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.
Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com.
The companion blog to this episode can be read here. Special thank you to The AFTD for their collaboration and support of these blogs!
Remember Me is proud to work with LearnFTD, by Alector in working to raise awareness of FTD.. For additional information and resources, visit LearnFTD.com
Thank you for supporting our work and for supporting the FTD community.
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
In our last episode before our mid-season break, we talk to the incredible Dr. Katya Rascovsky about some of the most heartbreaking behaviors in FTD: disinhibition, impulse control and hypersexuality. Katya is absolutely brilliant, kind, and we learned so much from her.
We'll see you back here on March 5th, when we'll start to dive into the second half of Season 8. Take time to digest the first 6 episodes of our season with care. Read the blogs for more info.
We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.
Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com.
The companion blog to this episode can be read here. Special thank you to The AFTD for their collaboration and support of these blogs!
And a special thank you to Alector for their boundless work in the neurodegenerative space. Powered by innovation, exquisite science and a determination to make a difference, Alector is working on the discovery and development of potential therapeutic treatments in the hopes of improving the lives of patients, caregivers and families living with neurodegenerative diseases. Remember Me Podcast is appreciative of all your support of our work.
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
This week we dive into more of Maria's experience with her mom as we discuss Primary Progressive Aphasia (PPA) with Naomi Nevler, MD from the Penn FTD Center. We had the chance to spend time with Naomi on our visit to Penn last fall, and her passion for science and her understanding and compassion for our community, we feel, is all felt through the episode. We hope this helps you gain deeper insight into PPA... and we hope you appreciate some raw and unfiltered thoughts on the subject from your favorite duo.
We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.
Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com.
The companion blog to this episode can be read here. Special thank you to The AFTD for their collaboration and support of these blogs!
And a special thank you to Alector for their boundless work in the neurodegenerative space. Powered by innovation, exquisite science and a determination to make a difference, Alector is working on the discovery and development of potential therapeutic treatments in the hopes of improving the lives of patients, caregivers and families living with neurodegenerative diseases. Remember Me Podcast is appreciative of all your support of our work.
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
This week we tackle ritualistic behaviors with Gillian Bradley MA, BSN, RN from the Penn FTD Center. Gillian works with caregivers and families to understand ritualistic and compulsive behaviors and come up with strategies for managing them. Ritualistic behaviors can include things like constant pacing, repeating the same phrases, eating the same foods, walking the same routes, and more... and Gillian helps us to understand a little bit more about the patterns of behavior and how it relates to what is happening in the brain as well as shares some learnings from families in clinic.
We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.
Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com.
The companion blog to this episode can be read here. Special thank you to The AFTD for their collaboration and support of these blogs!
And a special thank you to Alector for their boundless work in the neurodegenerative space. Powered by innovation, exquisite science and a determination to make a difference, Alector is working on the discovery and development of potential therapeutic treatments in the hopes of improving the lives of patients, caregivers and families living with neurodegenerative diseases. Remember Me Podcast is appreciative of all your support of our work.
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
In this episode, we dive into the challenging behaviors of Agression, Agitation... and also Paranoia. Past guest and friend of the podcast, Evan, recalls his experience caring for his mother, and trying to protect her reputation with her best friend.
Then we pair the science -- Dr. Jeff Maneval, Neurologist at the Penn FTD Center AND Assistant Professor at UPenn, helps us better understand the "why" behind the challenging behaviors of Aggression, Agitation and Paranioa in FTD... and provides MANY ideas for support. Most importantly, with so much compassion for families effected. We were truly touched by his approach. You will not want to miss the blog associated with this episode here.
We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.
Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com.
The companion blog to this episode can be read here. Special thank you to The AFTD for their collaboration and support of these blogs!
And a special thank you to Alector for their boundless work in the neurodegenerative space. Powered by innovation, exquisite science and a determination to make a difference, Alector is working on the discovery and development of potential therapeutic treatments in the hopes of improving the lives of patients, caregivers and families living with neurodegenerative diseases. Remember Me Podcast is appreciative of all your support of our work.
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
In this episode, we tackle one of the most common FTD symptoms, apathy. We do this first with Maria's Mother's best friend Melina, who shares the apathy she witnessed at the beginning of Lia's disease that left her feeling so confused.
Then we pair the science -- Lauren Massimo, co-director of the Penn FTD Center, and someone who has been studying apathy for nearly 20 years, dives into the different aspects of apathy, some suggestions for coping with it, and just a deeper understanding of this aspect of FTD.
We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.
Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com.
The companion blog to this episode can be read here. Special thank you to The AFTD for their collaboration and support of these blogs!
And a special thank you to Alector for their boundless work in the neurodegenerative space. Powered by innovation, exquisite science and a determination to make a difference, Alector is working on the discovery and development of potential therapeutic treatments in the hopes of improving the lives of patients, caregivers and families living with neurodegenerative diseases. Remember Me Podcast is appreciative of all your support of our work.
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
We are so thrilled to be back behind the mic for SEASON 8! (I know!! Crazy, right??). We launch this innovative season, where we match the stories to the science, with our new pal – Dr. David Irwin. Dr. Irwin gives us a broad overview of what FTD is and what is generally seen after a diagnosis. Dr. Irwin does a fantastic job explaining what is happening in the brain, where it’s happening and why it’s happening. What more could we ask for?
We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.
Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com.
The companion blog to this episode can be read here. Special thank you to The AFTD for their collaboration and support of these blogs!
And a special thank you to Alector for their boundless work in the neurodegenerative space. Powered by innovation, exquisite science and a determination to make a difference, Alector is working on the discovery and development of potential therapeutic treatments in the hopes of improving the lives of patients, caregivers and families living with neurodegenerative diseases. Remember Me Podcast is appreciative of all your support of our work.
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
The tale has finally been told. Tune in to hear all the ins and outs of Remember Me's first tour...
and we hope this light bonus episode helps get you through the holiday week. Take care, friends. xx, R+M
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Special thank you to our sponsor, Make Time Wellness! Remember Me listeners get 20% off all products with promo code REMEMBER ME.
Shop here: https://maketimewellness.com/
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For more Remember Me content in between seasons, join us over at instagram @remembermepodcast, join us in Re-Members Only, or checkout our website www.remembermeftd.com
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
To honor Frank on the 3rd anniversary of his passing, we are re-releasing our very first episode... and with a little intro / checkin from your favorite duo.
Stay tuned for a BRAND NEW bonus episode next week... and for all things RM, visit our website remembermeftd.com or our instagram @remembermepodcast... and if you're in need of extra podcasts, we have 40+ bonus exclusive episodes available on Re-Members Only. Re-Members Only helps fuel our business and gives you more of the content you love: remembermeftfd.com/joinro
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
SURPRISE! We miss you all + we're here to fill you in on our upcoming adventure. We hope you enjoy this BONUS episode!
LEARN MORE ABOUT THE TOUR FOR FTD WORLD AWARENESS WEEK: www.remembermeftd.com/tourof3cities
Connect with us on IG: @remembermepodcast
Learn more about Re-Members Only here.
Sign up for our Newsletter here.
Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
We close out season 7 with an update on FTD research from world renown neurologist Dr. Bradley Boeve.
Dr. Boeve shares the importance advocacy and awareness in pushing research forward, and what he is hopeful is on the horizon for our community.
If you've enjoyed this season, please connect with us on instagram @remembermepodcast, on our website.
If you miss us in between seasons, consider supporting our podcast by joining Re-Members Only. There are currently over 30 bonus episodes, events and more.
Thank you to our sponsor of this episode and Season 7, LearnFTD. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit LearnFTD.com for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
"Always, always, accept the good."
Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
Rachael asks herself the question, "Do I want to know my genetic status?"
Make sure you listen til the end for a very special clip... and tune in next week for our season finale with Dr. Brad Boeve.
Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining Re-Members Only!
Thank you to our sponsor of this episode and Season 7, LearnFTD. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit LearnFTD.com for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
"Always, always, accept the good."
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
A physician shares his family's journey with FTD clinical trials.
There are so many things to think about when getting involved in research and/or enrolling in a clinical trial, and this listener wanted to share his insight and learnings in case it could help other families navigate this journey.
We are so thankful for his insight and his hope... and salute him for caring for so many members of his family with so much grace and positivity.
Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining Re-Members Only!
Thank you to our sponsor of this episode and Season 7, LearnFTD. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit LearnFTD.com for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
"Always, always, accept the good."
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
Our friend Lauren from across the pond joins us to share her mother Lesley's journey with FTD.
Lauren takes us through the search for answers as to her mother's change in behavior - and the parts of her mothers life that made it hard to decipher what the culprit was.
She also dives into her journey with genetic testing and the things she thinks about as she awaits her mother's results.
Above all, Lauren beautifully illustrates her mother's profound love for her kids and grandkids -- and its clear to see THAT was the most important thing to Lesley.
Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining Re-Members Only!
Thank you to our sponsor of this episode and Season 7, LearnFTD. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit LearnFTD.com for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
"Always, always, accept the good."
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
Linde returns this week to dive into her journey with genetic testing following her mother Allison's passing.
This may be one of the most raw conversations we've ever had on Remember Me. Thank you, Linde for being so vulnerable and honest. This episode is inspiring on so many levels -- and stay tuned for a very special letter at the end.
Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining Re-Members Only!
Thank you to our sponsor of this episode and Season 7, LearnFTD. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit LearnFTD.com for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
"Always, always, accept the good."
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
And we're back with our 100th episode (!) of Remember Me with fierce FTD advocate and friend of the podcast, Linde.
Linde bravely shares her mother Allison's journey with FTD. Linde covers it all -- the 7 year struggle to get a diagnosis and the 'treacherous' search for resources and support. But above all, Linde shares her love for her mom, and her determination to care for her in the best way she could.
Stay tuned for next week's episode where Linde dives into more of her journey with genetic testing in "Allison, Pt. 2".
Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining Re-Members Only!
Thank you to our sponsor of this episode and Season 7, LearnFTD. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit LearnFTD.com for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
"Always, always, accept the good."
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
Laynie Dratch of Penn Medicine comes onto the podcast to answer all of our burning questions about working with a genetic counselor.
We loved chatting with her so much that we may need to follow up with a part 2! Let us know what other questions you have for Laynie on our episode art on instagram @remembermepodcast.
A list of resources mentioned in this episode are all linked here on our blog.
Laynie Dratch, ScM, CGC is a genetic counselor in adult neurology at the University of Pennsylvania in Philadelphia, PA, specializing in Frontotemporal Degeneration (FTD) spectrum disorders. She helps families with adult-onset conditions such as FTD, Amyotrophic Lateral Sclerosis (ALS), Alzheimer’s Disease (AD), and others, navigate genetic testing options and cope with their diagnoses through research and clinical encounters. Her research interests include the lived experiences of individuals with or at risk of developing FTD, issues in predictive genetic testing, and genetic counseling access and service delivery. She is a co-founder of the annual Penn Familial FTD/ALS Conference, as well as the co-founder and chair of the ALS/FTD Working Group within the National Society of Genetic Counselors. Laynie graduated summa cum laude from Colgate University with a BA in neuroscience and a minor in psychology. She completed her master’s in genetic counseling at the Johns Hopkins University and the National Institutes of Health.
Thank you to our sponsor of this episode and Season 7, LearnFTD. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit LearnFTD.com for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
"Always, always, accept the good."
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
Remember Sarah? The listener who inspired this season's theme? Today is her episode!
This is a super-sized episode, because not only do we talk all about Sarah's mother Julie's journey with FTD, and the stories of Julie's life... but of course, Sarah also came to share her experience of investigating her genetic status. And as the incredible advocate she is - Sarah shares all the steps she took before getting tested in hopes that it will help educate others on the process.
Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining Re-Members Only!
Thank you to our sponsor of this episode and Season 7, LearnFTD. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit LearnFTD.com for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
"Always, always, accept the good."
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
This week our guest Peggy openly shares the experience of living with the knowledge of testing positive for the Frontotemporal Degeneration (FTD) GRN mutation.
Peggy always knew of a long family history of dementia, spanning back 3 generations... and shares her experience witnessing her father's journey with FTD.
We get into Peggy's experience with research, her feelings around understanding her genetic status, and how she's bonded with her brothers over this shared experience.
PS - Wait til the end for a very special tribute to Peggy's father, Gerry!
Thank you for listening.Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining Re-Members Only!
Thank you to our sponsor of this episode and Season 7, LearnFTD. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit LearnFTD.com for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
"Always, always, accept the good."
--- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support
Rachael shares her mother Mary's journey with FTD - Primary Progressive Aphasia - and also reveals her own personal journey of undergoing genetic testing and the brave steps she's taking to advance research.
You do not want to miss this episode!
Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining Re-Members Only!
Thank you to our sponsor of this episode and Season 7, LearnFTD. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit LearnFTD.com for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
"Always, always, accept the good."
--- Support this podcast: https://anchor.fm/rememberme/support
Wanda chronicles her mother Sarah's dementia journey in the 1980s - receiving the (mis)diagnosis of Alzheimer's at the age of 52.
Sarah went on to become somewhat of a poster child for early-onset Alzheimer's, being profiled in LIFE Magazine, only for her family to realize many years later that it was in fact Frontotemporal Dementia - and it was affecting many members of their large family. Listen to our very first story of the season told by this fierce and incredible FTD advocate, Wanda.
Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joining Re-Members Only!
Thank you to our sponsor of this episode and Season 7, LearnFTD. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit LearnFTD.com for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
"Always, always, accept the good."
--- Support this podcast: https://anchor.fm/rememberme/support
We're back for another season, and our main focus this season is GENETICS.
In today's episode we dive into:
- The latest news in the FTD world: Bruce Wills' diagnosis.
- A recap of how Remember Me began, mostly for new listeners!
- A window into what to expect this season.
Thank you for listening - we can't wait to share this season with you!
Stay in touch with us on instagram @remembermepodcast, on our website, or by joining Re-Members Only!
Thank you to our sponsor of this episode and Season 7, LearnFTD. LearnFTD is working to raise awareness of gene mutations in FTD and the importance of genetic testing. Visit LearnFTD.com for information and resources on FTD, genetics, and a video providing an overview of genetic testing and counseling. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia - FTD - with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
"Always, always, accept the good."
--- Support this podcast: https://anchor.fm/rememberme/support
In our Season 6 finale, Maria bookends the season with a retelling of her mom's story -- over 2 years later.
We chat all about how as time passes... our perspective, our grief, and our focus changes.
Thank you for your support this season. It has been one for the books! We love you all + can't wait for what's ahead!
Stay tuned by following us on instagram @remembermepodcast or joining Re-Members Only.
Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com
Learn more about our trip to the International FTD Conference ISFTD on our website www.remembermeftd.com/france
"Always, always, accept the good."
--- Support this podcast: https://anchor.fm/rememberme/support
This week's we share an interview we did at the International Society for Frontotemporal Dementias (ISFTD) Conference in Lille, France with Penny Dacks, AFTD's Senior Director of Scientific Initiatives. We focus on providing information about the many forms of research and how to get involved.
Penny Dacks holds a Ph.D. in neuroscience from the University of Arizona. As AFTD’s Senior Director of Scientific Initiatives, Dr. Dacks leads strategy for AFTD’s research programs and serves as President of the FTD Disorders Registry.
A few things mentioned this episode:
- The FTD Disorders Registry
- The Association for Frontotemporal Dementia
Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com
"Always, always, accept the good."
--- Support this podcast: https://anchor.fm/rememberme/support
You finally get to hear all about our trip to the International Society for Frontotemporal Dementias (ISFTD) Conference in Lille, France. This episode focuses on our experience - and our perspective attending the conference as advocates and former caregivers.
A few things mentioned this episode:
- Our Abstract that we presented on the Psychosocial Effects of FTD on Families can be read and viewed here.
- Here is the conference day-by-day program of events, if you are curious to follow along in some of the speakers we mentioned including Dr. Marsel Mesulam.
- Our new Caregiver Input Survey
Connect with us on instagram @remembermepodcast and let us know what you thought of today's episode.
Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com
"Always, always, accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Stephanie shares her experience with her mother's journey with FTD and the role reversal that comes with caring for a parent diagnosed with FTD.
Steph's incredible strength and vulnerability in sharing this very recent diagnosis + journey we KNOW will be inspiring to all who listen.
Thank you, Stephanie for sharing Connie with us.
Connect with us on instagram @remembermepodcast and let us know what you thought of today's episode.
We just want to note a trigger warning that there is mention of attempted suicide in this episode. 988 Suicide & Crisis Lifeline provides 24/7, free and confidential support for people in distress, prevention and crisis resources for you or your loved ones, and best practices for professionals in the United States. When people call, text, or chat 988, they will be connected to trained counselors that are part of the existing Lifeline network.
Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com
Learn more about our trip to the International FTD Conference ISFTD on our website www.remembermeftd.com/france
"Always, always, accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Let's welcome Katie Brandt back to Remember Me to speak on a very important topic - Advanced Care Planning.
Sounds scary, huh? Rest assured that Katie breaks it down in a digestable, reassuring way. You'll want to take notes on this one, you guys! Katie, Thank you for making the dark a little brighter and advocating for the importance of this process. We absolutely adore you!
Today Katie Referenced:
- The Conversation: A Revolutionary Plan for End-of-Life Care by Angelo E. Volandes M.D.
- The National Academy of Elder Law Attorneys
- Interested in learning more about the Caregiver Study Katie mentioned? E-mail her at: Katherine.Brandt@mgh.harvard.edu
Connect with us on instagram @remembermepodcast and let us know what you think of today's episode. If you want to learn more about Katie, please visit her website here.
Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com
"Always, always, accept the good."
Support this podcast: https://anchor.fm/rememberme/support
We're wheels up and on our way! Listen to learn more about our plans for the International Society for Frontotemporal Dementias (ISFTD) Conference in Lille, France!
Connect with us on instagram @remembermepodcast and let us know what you want to learn about our time at ISFTD!
Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com
Learn more about our trip to the International FTD Conference ISFTD on our website www.remembermeftd.com/france
"Always, always, accept the good."
Support this podcast: https://anchor.fm/rememberme/support
This week's story comes to us all the way from the U.K. Kit shares her journey with her mother Gloria's Behavioral Variant FTD.
Kit's way of articulating this journey had us feeling moved and inspired... and her reading at the end may be our favorite one yet.
Connect with us on instagram @remembermepodcast and let us know what you thought of today's episode.
Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com
Learn more about our trip to the International FTD Conference ISFTD on our website www.remembermeftd.com/france
"Always, always, accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Today we are joined by Mike, who shares his family history of FTD. Mike was a young boy in grammar school when his father started to change. He shares how he saw it impact his whole family... and all the while not knowing it was even FTD.
Mike then opens up about another family member sadly recently diagnosed with this disease. And we think Mike's openness about the FTD experience - how he copes - what his fears are - to just to be something really powerful. Thank you Mike, for sharing your story with us.
Connect with us on instagram @remembermepodcast and let us know what you thought of today's episode.
Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com
Learn more about our trip to the International FTD Conference ISFTD on our website www.remembermeftd.com/france
"Always, always, accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Today we are joined by Dr. Erica Srinivasan to talk all about our "favorite" topic... grief.
Anticipatory grief, ambiguous loss, coping strategies, and more... and of course we focus in on the unique grief experience that is the FTD Journey.
Dr. Erica G. Srinivasan is an Associate Professor of Psychology at the University of Wisconsin—La Crosse, where she also serves as the Director for the Center for Grief and Death Education, and is Co-Chair for the Gerontology Emphasis. Additionally, she is the lead instructor in the University of Wisconsin—Madison’s Grief Support Specialist Certificate Program. She conducts research on grief and dementia, aid-in-dying and loss and coping with COVID-19. She has a passion for normalizing conversations about death and grief, which serves as a foundation for all of her professional work.
Connect with us on instagram @remembermepodcast and let us know what you thought of today's episode.
Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com
Learn more about our trip to the International FTD Conference ISFTD on our website www.remembermeftd.com/france
"Always, always, accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Maria's friend Evan joins the girls this week to share the story of his mother Diomi's journey with Primary Progressive Aphasia.
This is our first ever Mother/Son story on Remember Me... and Evan is the perfect storyteller.
Throughout this episode you will feel like you're in the room with Evan and his family as he so beautifully captures the experience and the boundless love his mother showed for him -- even throughout her disease.
Oh, and Maria thoroughly enjoys having a story that centers around a Greek family... no surprise!
Let us know what you think of this episode by leaving a comment on the episode art on instagram @remembermepodcast.
Thank you to the sponsor of this episode and Season 6, LearnFTD. LearnFTD is working to raise awareness of FTD gene mutations that can cause FTD and the importance of genetic testing. Visit LearnFTD.com for information and more resources on FTD, such as a discussion guide for talking with a doctor about the disease and a tips sheet for caregivers. You can also follow LearnFTD on Facebook and Instagram @LearnFTD.
For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com
Learn more about our trip to the International FTD Conference ISFTD on our website www.remembermeftd.com/france
"Always, always, accept the good."
Support this podcast: https://anchor.fm/rememberme/support
It's World FTD Awareness week and we are honored to present an interview with talented model and incredible advocate, Nicole Petrie.
We are in awe of this young and fierce advocate who's daily videos of her mother Cheryl captured the hearts of 1 Million TikTok followers - helping to shed a light on FTD and the caregiving experience. Nicole's advocacy continued this summer as she was a featured model in Sports Illustrated, sharing her cause of FTD awareness in honor of her mom.
In today's episode we get to learn more about Nicole's journey with her mother Cheryl's behavioral variant FTD diagnosis, and most importantly learn more about who Cheryl really is -- an incredible "super mom" to her 3 daughters.
You can learn more about Nicole on Instagram and TikTok @nicolepetrie
Connect with us on instagram @remembermepodcast and let us know what you thought of today's episode.
For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com
Learn more about our trip to the International FTD Conference ISFTD on our website www.remembermeftd.com/france
"Always, always, accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Rachael tells the story of her father Frank's journey with Behavioral Variant FTD from a fresh new perspective... 2 years after our first episode of Remember Me.
Connect with us on instagram @remembermepodcast and let us know what you thought of today's episode.
For more FTD resources, our blog, Re-Members Only and more, visit our website www.remembermeftd.com
Learn more about our trip to the International FTD Conference ISFTD on our website www.remembermeftd.com/france
This podcast is dedicated to Frank, who taught us all to always, always, accept the good.
Support this podcast: https://anchor.fm/rememberme/support
It's our last episode of our dementia research mini-series! And as a follow up to our recap of Day 4, we interviewed Dr. Adam Boxer to learn more about fluid biomarkers - AKA - we ask him all about what the bloodwork and lumbar puncture is used for.
Stay tuned for a very special ending of our 8-part series. Thank you for coming on the journey with us and please let us know what you think of this series by reaching out to us on our website! www.remembermeftd.com
Adam L. Boxer, MD, PhD, is Endowed Professor in Memory and Aging in the Department of Neurology at the University of California, San Francisco (UCSF). He directs UCSF’s Neurosciences Clinical Research Unit and the Alzheimer’s Disease and Frontotemporal Degeneration (FTD) Clinical Trials Program at the UCSF Memory and Aging Center. Dr. Boxer’s research is focused on developing new treatments and biomarkers for neurodegenerative diseases, particularly those involving tau and TDP-43.
Dr. Boxer received his medical and doctorate degrees as part of the NIH-funded Medical Scientist Training Program at New York University Medical Center. He completed an internship in Internal Medicine at California Pacific Medical Center, a residency in Neurology at Stanford University Medical Center, followed by a fellowship in behavioral neurology at UCSF.
We loved Dr. Boxer! Enjoy the science side of our experience, you guys!
--
Special thank you to the ALLFTD Study for their support in the creation of this series. You can support Remember Me by visiting our website www.remembermeftd.com where you can shop our merch, join re-members only or donate. You can follow us on instagram @remembermepodcast.
Today's sponsor is The Bluefield Project: The Bluefield Project to Cure FTD, is on a mission to support research to improve our understanding of a genetic form of Frontotemporal dementia, and to help find a cure for this devastating disease. So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
IT'S OUR LAST DAY OF RESEARCH! WE DID IT!
As you know at this point in the mini-series -- we participated in the ALLFTD Study -- Rachael as the participant, and Maria as the study partner... and today's episode recaps our Day 4: The Lumbar Puncture.
A long day, but we had a lot of laughs, bonding moments... and some disco music. Everything is an adventure with us, so be sure to listen! Want to learn more about ALLFTD? Visit allftd.org Be sure to connect with us on instagram @remembermepodcast to let us know what you think of today's episode!
------ Special Thanks To Our Sponsor: The Bluefield Project
The Bluefield Project to Cure FTD is on a mission to support research to improve our understanding of a genetic form of Frontotemporal Dementia, and to help find a cure for this devastating disease. There are now four investigational therapies in clinical trials for progranulin-FTD. So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org
---- To learn more about Remember Me, visit remembermeftd.com
dementiaresearch
Support this podcast: https://anchor.fm/rememberme/support
As a follow up to our recap of Day 3, we interviewed world-renownedDr. Brad Boeve to learn more about what we know about Frontotemporal Dementia, and what we're learning through the ALLFTD Study.
Dr. Brad Boeve is a professor of neurology in the Mayo Clinic College of Medicine and Science and is a consultant in the Department of Neurology and Center for Sleep Medicine at the Mayo Clinic in Rochester, Minnesota. Dr. Boeve is a co-director of the Clinical Core of Mayo’s Alzheimer’s Disease Research Center. Dr. Boeve is recognized with the distinction of the Little Family Foundation Professorship in Lewy Body Dementia. And he is one of the three ALLFTD Principal Investigators.
We loved Dr. Boeve! Enjoy the science side of our experience, you guys!
Special thank you to the ALLFTD Study for their support in the creation of this series. You can support Remember Me by visiting our website www.remembermeftd.com where you can shop our merch, join re-members only or donate. You can follow us on instagram @remembermepodcast.
Today's sponsor is The Bluefield Project: The Bluefield Project to Cure FTD, is on a mission to support research to improve our understanding of a genetic form of Frontotemporal dementia, and to help find a cure for this devastating disease. So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
It's DAY 3! And there were a few surprises! As you know at this point in the mini-series -- we participated in the ALLFTD Study -- Rachael as the participant, and Maria as the study partner... and today's episode recaps our Day 3: The Visit with the Pysician to review the Neuropsych testing and the MRI. A long day, but we had a lot of laughs. Everything is an adventure with us, so be sure to listen! Want to learn more about ALLFTD? Visit allftd.org Be sure to connect with us on instagram @remembermepodcast to let us know what you think of today's episode!
Special Thanks To Our Sponsor: The Bluefield Project The Bluefield Project to Cure FTD is on a mission to support research to improve our understanding of a genetic form of Frontotemporal Dementia, and to help find a cure for this devastating disease. To achieve our mission, we have supported over 40 researchers at Universities across the world, to understand the science behind FTD caused by mutations in progranulin. We, along with NIH and others, help fund studies of families affected by FTD. These studies are called Natural History Studies and follow participants over time, to better understand how FTD may develop, and to identify clues that may help us treat it. Based in part on our research findings, a number of companies are developing therapeutics that target progranulin FTD. There are now four investigational therapies in clinical trials for progranulin-FTD. So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org
To learn more about Remember Me, visit remembermeftd.com
Support this podcast: https://anchor.fm/rememberme/support
As a follow up to our recap of Day 2, we interviewed Dr. Howie Rosen to learn more about MRIs and how they're used in the ALLFTD Study and in diagnosing FTD.
Dr. Howie Rosen, is a behavioral neurologist and holds the Dorothy Kirsten French Foundation Endowed Professorship for Parkinsonian and Other Neurodegenerative Disorders. He is an investigator on multiple federal and state-funded research grants and serves as director of the California State Alzheimer’s Disease Center at UCSF, associate director of UCSF’s federally funded Alzheimer’s Disease Research Center, director of UCSF’s Behavioral Neurology Training Program, and director of Curriculum for the Global Brain Health Institute. And, he is one of the three ALLFTD Principal Investigators.
We loved Dr. Rosen! Enjoy the science side of our experience, you guys!
Special thank you to the ALLFTD Study for their support in the creation of this series. You can support Remember Me by visiting our website www.remembermeftd.com where you can shop our merch, join re-members only or donate. You can follow us on instagram @remembermepodcast.
Today's sponsor is The Bluefield Project: The Bluefield Project to Cure FTD, is on a mission to support research to improve our understanding of a genetic form of Frontotemporal dementia, and to help find a cure for this devastating disease. So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
It's MRI Day! Our FTD Research mini-series continues!
As you know at this point in the mini-series -- we participated in the ALLFTD Study -- Rachael as the participant, and Maria as the study partner... and today's episode recaps our Day 2: The MRI. A long day, but we had a lot of laughs. Everything is an adventure with us, so be sure to listen!
Want to learn more about ALLFTD? Visit allftd.org
Be sure to connect with us on instagram @remembermepodcast to let us know what you think of today's episode!
Special Thanks To Our Sponsor: The Bluefield Project
The Bluefield Project to Cure FTD is on a mission to support research to improve our understanding of a genetic form of Frontotemporal Dementia, and to help find a cure for this devastating disease.
To achieve our mission, we have supported over 40 researchers at Universities across the world, to understand the science behind FTD caused by mutations in progranulin.
We, along with NIH and others, help fund studies of families affected by FTD. These studies are called Natural History Studies and follow participants over time, to better understand how FTD may develop, and to identify clues that may help us treat it.
Based in part on our research findings, a number of companies are developing therapeutics that target progranulin FTD. There are now four investigational therapies in clinical trials for progranulin-FTD.
So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org
To learn more about Remember Me, visit remembermeftd.com
Support this podcast: https://anchor.fm/rememberme/support
As a follow up to our recap of Day 1, we interviewed Steve Smith to learn more about Neuropsych testing. Steve explains what it’s like to administer these tests, what they’re looking for during testing and how this intensive battery aids in distinguishing an FTD diagnosis.
Steve Smith is a Senior Program Coordinator at the Mayo Clinic with 12 years of experience in research and neuropsychological testing. Steve oversees research coordination, psychometric testing, and daily operations of the Alzheimer’s Disease Research Center.
Enjoy the science side of our experience, you guys!
Special thank you to the ALLFTD Study for their support in the creation of this series. You can support Remember Me by visiting our website www.remembermeftd.com where you can shop our merch, join re-members only or donate. You can follow us on instagram @remembermepodcast.
Today's sponsor is The Bluefield Project: The Bluefield Project to Cure FTD, is on a mission to support research to improve our understanding of a genetic form of frontotemporal dementia, and to help find a cure for this devastating disease. So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
It's finally here! Our FTD Research Mini Series.
We participated in the ALLFTD Study -- Rachael as the participant, and Maria as the study partner... and today's episode recaps our Day 1. It was filled with Consent Forms, Blood Work and Neuropsych Testing... and also a recap of our little adventures.
Want to learn more about ALLFTD? Visit allftd.org
Be sure to connect with us on instagram @remembermepodcast to let us know what you think of today's episode!
Special Thanks To Our Sponsor: The Bluefield Project
The Bluefield Project to Cure FTD is on a mission to support research to improve our understanding of a genetic form of Frontotemporal Dementia, and to help find a cure for this devastating disease.
To achieve our mission, we have supported over 40 researchers at Universities across the world, to understand the science behind FTD caused by mutations in progranulin.
We, along with NIH and others, help fund studies of families affected by FTD. These studies are called Natural History Studies and follow participants over time, to better understand how FTD may develop, and to identify clues that may help us treat it.
Based in part on our research findings, a number of companies are developing therapeutics that target progranulin FTD. There are now four investigational therapies in clinical trials for progranulin-FTD.
So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org
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To learn more about Remember Me, visit remembermeftd.com
Support this podcast: https://anchor.fm/rememberme/support
Today's the day we tell you some big news!
And afterward, ALLFTD Study Program Directors Leah Forsberg, Ph.D. and Hilary Heuer, Ph.D. dive into some basics on FTD research - what does it look like? Who can participate? You'll learn all about the difference between observational studies and clinical trials... and get a window into some exciting work on the horizon.
Listen + let us know what you think on instagram! We will miss you all during our "break" -- thank you for your support this season. xx-R+M
Want more Remember Me? Join Re-Members Only.
TODAY'S SPONSORS:
THE ALGERNON PROJECT: Their mission is to eradicate the misdiagnosis of individuals affected by FTD by utilizing a machine learning algorithm to streamline the patient diagnosis journey. Learn more about this special project on LinkedIn and Instagram @thealgernonproject.
FOR THEIR THOUGHTS FOUNDATION: For Their Thoughts Foundation is hosting an inaugural Care For Their Thoughts Benefit event in Carlsbad, CA on Saturday April 30th. At the event, guests will have the opportunity to walk through interactive exhibits that help us understand the dementia experience, walk in a caregivers shoes and learn about brain health. All event proceeds will bring direct financial relief and resources to families caring for their loved ones with dementia through our Care For the Caregivers Grant Program. You can buy tickets for their event on Saturday, April 30th at www.fortheirthoughts.org/careftt or on instagram @fortheirthoughts.
Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Today's episode is brought to you by The Algernon Project.
The Algernon Project founders Ben and Keri Allen walk us through the long and hard fought journey of receiving a Frontotemporal Dementia (FTD) diagnosis for Keri's father, Mark. They explain how this heartbreaking experience of constant misdiagnosis motivated them to explore an algorithm to assist radiologists in spotting subtle brain atrophy.
As our season is coming to an end, we feel it's a beautiful thing to share how a young couple has taken their trauma experience and channeled their talents into healing and helping others. Take a listen and follow them on social media to follow along on their journey to raise awareness for FTD and eradicate misdiagnosis of FTD @algernonproject.
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Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
TODAY'S SPONSOR:
THE ALGERNON PROJECT: Their mission is to eradicate the misdiagnosis of individuals affected by FTD by utilizing a machine learning algorithm to streamline the patient diagnosis journey. Learn more about this special project on LinkedIn and Instagram @thealgernonproject.
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Today's story is told from the sibling perspective of the FTD journey and it's full of confusion, sorrow - but also sweet sisterly love.
Today, we hear from Brianna, founder of Waverles, as she lovingly tells the story of her older sister, Daria.
Daria's progression was severe and swift, leaving a family in shock of what had just happened - and the complexity of the global pandemic on top of it all.
Daria - wife, mother, daughter - and incredible social worker of 17 years - touched so many lives in her short time on this earth.
<3
When you listen to this episode, let us know what you think on instagram.
Join Re-Members Only.
TODAY'S SPONSORS:
THE ALGERNON PROJECT: Their mission is to eradicate the misdiagnosis of individuals affected by FTD by utilizing a machine learning algorithm to streamline the patient diagnosis journey. Learn more about this special project on LinkedIn and Instagram @thealgernonproject.
FOR THEIR THOUGHTS FOUNDATION: For Their Thoughts Foundation is hosting an inaugural Care For Their Thoughts Benefit event in Carlsbad, CA on Saturday April 30th. At the event, guests will have the opportunity to walk through interactive exhibits that help us understand the dementia experience, walk in a caregivers shoes and learn about brain health. All event proceeds will bring direct financial relief and resources to families caring for their loved ones with dementia through our Care For the Caregivers Grant Program. You can buy tickets for their event on Saturday, April 30th at www.fortheirthoughts.org/careftt or on instagram @fortheirthoughts.
Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
This weeks episode, featuring Betsy Hall - founder and CEO of For Their Thoughts, tells the story of Mary. Described by Betsy being the “mom who knew what you needed before you did,” Mary prided herself on being the Mom with a capital M. This family’s journey has a pretty big twist and Betsy so eloquently describes it.
You don’t want to miss this one. Additionally, For Their Thoughts is holding their first annual Care Benefit - tickets and more information can be found here : www.fortheirthoughts.org/careftt
When you listen to this episode, let us know what you think on instagram.
Join Re-Members Only.
TODAY'S SPONSORS:
THE ALGERNON PROJECT: Their mission is to eradicate the misdiagnosis of individuals affected by FTD by utilizing a machine learning algorithm to streamline the patient diagnosis journey. Learn more about this special project on LinkedIn and Instagram @thealgernonproject.
NANA'S BOOKS: Bring back connection, one page at a time. NANA’S BOOKS pair nostalgic fine art and verse to engage and delight people living with dementia and their care partners. Check out nanasbookseries.com
FOR THEIR THOUGHTS FOUNDATION: For Their Thoughts Foundation is hosting an inaugural Care For Their Thoughts Benefit event in Carlsbad, CA on Saturday April 30th. At the event, guests will have the opportunity to walk through interactive exhibits that help us understand the dementia experience, walk in a caregivers shoes and learn about brain health. All event proceeds will bring direct financial relief and resources to families caring for their loved ones with dementia through our Care For the Caregivers Grant Program. You can buy tickets for their event on Saturday, April 30th at www.fortheirthoughts.org/careftt or on instagram @fortheirthoughts.
Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
The episode we've been waiting for. Today we dive into this season's (very popular) theme: Trauma.
We do this the help of incredible expert, psychologist, and friend of the podcast, Dr. Mekel Harris, Ph.D. Dr. Mekel helps answer:
What is trauma? How does our body respond to trauma? And most importantly, how do we cope?
We found this to be fascinating and insightful, and we can't wait to hear what you think too. Let us know on instagram @remembermepodcast
By the end of the episode we know you will love Dr. Mekel as much as we do, so go ahead and check out her resources on instagram and her website mekelharrisphd.com.
Thanks for listening.
Join Re-Members Only for access to our Film Viewing Event with Katie on March 30th at 8PM EST. Make sure you don't miss our Merch Drop 3/20 - Sign up for our newsletter at www.remembermeftd.com/ When you listen to this episode, let us know what you think on instagram.
TODAY'S SPONSORS:
NANA'S BOOKS: Bring back connection, one page at a time. NANA’S BOOKS pair nostalgic fine art and verse to engage and delight people living with dementia and their care partners. Check out nanasbookseries.com
FOR THEIR THOUGHTS FOUNDATION: For Their Thoughts Foundation is hosting an inaugural Care For Their Thoughts Benefit event in Carlsbad, CA on Saturday April 30th. At the event, guests will have the opportunity to walk through interactive exhibits that help us understand the dementia experience, walk in a caregivers shoes and learn about brain health. All event proceeds will bring direct financial relief and resources to families caring for their loved ones with dementia through our Care For the Caregivers Grant Program. You can buy tickets for their event on Saturday, April 30th at www.fortheirthoughts.org/careftt or on instagram @fortheirthoughts.
Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Our 1st ever in-person interview!
Stacy tells our listeners about her sweet dad Rusty in todays episode. We get a sneak peek in to the life of a leading movie and television marketing exec that loved his girls fiercely. Lewy body Dementia slowly stole his loving personality and ability to live independently.
We are so happy to have met Stacy and connect deeply with her love of her sweet Dad. Stacy’s grief is still fresh, but that doesn’t take away from lively spirit and fun outlook on life.
For more information on Richard Citron, linked here is the obituary that was featured in Variety.
Join Re-Members Only for access to our Film Viewing Event with Katie on March 30th at 8PM EST. Make sure you don't miss our Merch Drop 3/20 - Sign up for our newsletter at www.remembermeftd.com/ When you listen to this episode, let us know what you think on instagram.
TODAY'S SPONSORS:
NANA'S BOOKS: Bring back connection, one page at a time. NANA’S BOOKS pair nostalgic fine art and verse to engage and delight people living with dementia and their care partners. Check out nanasbookseries.com
Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Your favorite ladies are back for side chat after Maria made the trip cross country to spend the weekend in La-La-Land. This episode is a candid recap of all the things the Remember Me ladies did, including a trip up the golden coast to the magical town of Santa Barbara. Laughs, tears, and so so much work. The big dreams are starting to take shape, you guys!
Eeeee!!! Tune in and listen to this seasons second sidechat. It’s a good one!
Housekeeping:
- Join Re-Members Only for access to our Film Viewing Event with Katie on March 30th at 8PM EST.
- Make sure you don't miss our Merch Drop 3/20 - Sign up for our newsletter at www.remembermeftd.com/
- When you listen to this episode, let us know what you think on instagram.
TODAY'S SPONSORS:
NANA'S BOOKS: Bring back connection, one page at a time. NANA’S BOOKS pair nostalgic fine art and verse to engage and delight people living with dementia and their care partners. Check out nanasbookseries.com
Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Today's episode features actor and Filmmaker Katie Prentiss.
We connected through learning about Front Porches, a film Katie created based loosely on her experience with her mother's Frontotemporal Dementia (FTD) journey.
Today's episode may feel like you're listening in to a conversation between old friends (aren't the best kind of podcasts like that, though?)... as we instantly connected with Katie and loved the way she described the heartbreak of her experience with her mother Maggie... the stress of caregiving, the pressures of holding pain and joy in the same moments -- but also how she found ways to light she let shine in.
Thank you Katie, for sharing your story with us! We can't wait to watch Front Porches with you.
Join Re-Members Only for access to our Film Viewing Event with Katie on March 30th at 8PM EST.
When you listen to this episode, let us know what you think on instagram.
Learn more about remember me at www.remembermeftd.com/
TODAY'S SPONSORS:
Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Today's episode features an expert physician on Frontotemporal Dementia (FTD): Dr. Brad Dickerson.
In this episode we cover: The science of FTD, how it is different from Alzheimer's, updates on research, and more.
Brad Dickerson, MD is Professor of Neurology at Harvard Medical School and Tom Rickles Chair in Progressive Aphasia Research, Leader of the Neuroimaging Core of the MGH Alzheimer’s Disease Research Center, and Director of the Frontotemporal Disorders Unit at the Massachusetts General Hospital, an integrated multidisciplinary unit dedicated to the highest level of care of patients with these conditions. Dr. Dickerson is also a behavioral neurologist in the MGH Memory Disorders Unit. Dr. Dickerson is an active clinical consultant in many aspects of cognitive and behavioral neurology of neurodegenerative and related disorders, including frontotemporal dementia, primary progressive aphasia, Alzheimer's, mild cognitive impairment, posterior cortical atrophy, and related conditions, and the use of neuroimaging and other diagnostic markers in neurodegenerative diseases.
Dr. Dickerson runs a multidisciplinary team of 30 clinicians and scientists using advanced brain imaging and behavioral methods to study how memory, language, emotion, and social behaviors change in normal aging and in patients with neurodegenerative disease, with extensive funding from the National Institutes of Health. His team also studies new approaches to caregiving. He has published more than 195 articles in peer-reviewed scientific journals and has edited two books on dementia. He is active in mentoring trainees and in teaching, is Chair of the Medical and Scientific Advisory Council of the Massachusetts Alzheimer's Association and is Chair-Elect of the national Medical Advisory Council of the Association for FTD. He has won a number of awards, including the American Academy of Neurology’s Norman Geschwind Award in Behavioral Neurology.
Thank you to Dr. Dickerson for sharing your expertise with our community!
Let us know what you think of this episode on instagram @remembermepodcast
Learn more about Remember Me at www.remembermeftd.com/
Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Today's episode features Rachael and Maria's insta-friend Libby.
Libby shares her mother's very sudden and swift journey with FTD -- with her diagnosis only coming just months before her passing. Libby so captivatingly walking us through the story step by step -- and shares how difficult it was to be in her 20s suddenly in charge of making important decisions for her mother who could no longer effectively communicate.
Anne S., or "Mama Stivers" as she was fondly known, was a loving mom and infectiously kind woman who worked for the local High School. Listen to hear at the end to hear all about her beautiful spirit. We captured some mom tips from Mama Stivers that we will be carrying on with our kids.
When you listen, let us know what you think on instagram.
Learn more about remember me at www.remembermeftd.com/
TODAY'S SPONSORS:
Target ALS is a non-profit organization that is breaking down barriers and revolutionizing ALS research. Please consider making a donation to help continue to bring scientists together like never before to work toward potentially life saving treatments. Visit targetals.org to learn more.
Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Today's episode features Maria's friend Bernie from her days in support group. Bernie shares the story of his incredible wife Karen.
Bernie's love for Karen made this a perfect Valentine's week episode... and Bernie has a lot to share about his learnings from being a long-time caregiver.
Listen to learn about the amazing Karen - devoted mother, innovative nurse, and loving wife of 44 years. When you listen, let us know what you think on instagram.
Learn more about remember me at www.remembermeftd.com/
TODAY'S SPONSORS:
Target ALS is a non-profit organization that is breaking down barriers and revolutionizing ALS research. Please consider making a donation to help continue to bring scientists together like never before to work toward potentially life saving treatments. Visit targetals.org to learn more.
Vnyl Confessions is an online vinyl record shop with a mission to heal the world of it's pain "one record at a time" - enjoy the power of music and get yourself a new record (or book, merch, and more) at vnylconfessions.com and use code REMEMBERME for 20% off your order.
Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Kim, devoted wife and mother tells her husband, Jeff’s short and tragic journey with FTD + ALS. Kim openly depicts her trauma in such a relatable and honest way and vulnerably describes the way she fought for answers.
Kim’s strength and perseverance shines through her story as does her love for her late husband. Although Kim’s story is surrounded by outside loss, we applaud her for looking for the light for accepting the good. Always, always accept the good.
Thank you for honoring Jeff in this way, Kim and thank you for letting us be part of the journey.
TODAY'S SPONSORS: TARGET ALS: Target ALS is a non-profit organization that is breaking down barriers and revolutionizing ALS research. Please consider making a donation to help continue to bring scientists together like never before to work toward potentially life saving treatments. Visit targetals.org to learn more. VNYL CONFESSIONS: Shop for exceptionally curated NEW rap, jazz, pop vinyl records, books, apparel and more at vnylconfessions.com and use code REMEMBERME for 20% off at checkout. Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Today's episode features Dr. Sami Barmada, an Associate Professor of Neurology at The University of Michigan whose research is focused on solutions to treat FTD and ALS.
In this episode we cover: the connection between FTD and ALS, the current status of research, ways to support research and more.
This interview was facilitated by Target ALS.
Learn more about remember me at www.remembermeftd.com/
TODAY'S SPONSORS:
Target ALS is a non-profit organization that is breaking down barriers and revolutionizing ALS research. Please consider making a donation to help continue to bring scientists together like never before to work toward potentially life saving treatments. Visit targetals.org to learn more.
Neuroreserve brain-health supplement RELEVATE Click here to learn more and purchase and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com
Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Stephanie shares the story of her mom Elaine's long journey with FTD.
Stephanie walks us through being a young woman (and an only child) in her 20s desperately looking for answers for her mother's behavior.
Stephanie is an award-winning Social Worker and Psychotherapist and owner of Compassion in Caregiving in Toronto, Ontario. In this episode Stephanie brings her unique experience as a therapist to our topic of trauma this season as she shares her long journey with her mom's FTD diagnosis. Thank you for joining us, Stephanie. We love you!
After you listen, let us know what you think by commenting on the episode art on instagram @remembermepodcast
Today's Sponsors:
Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBERME for 20% off at checkout Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
Learn more about remember me at www.remembermeftd.com/
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
This story, told by Shay, beautifully outlines the devastation FTD (or Pick's disease, as she refers to it) causes. Shay was in elementary school when her sweet mom, Mrs. Hast began to exhibit symptoms. The journey is full of tenderness and pain and Shay so eloquently describes the dance between the two.
The story unfolds but the rawness continues. Shay takes us through darkness and hurt but also shares such a beautiful relationship she had with her mother. Mrs. Hast won our hearts and so has her sweet daughter, Shay.
We are excited to share our first story of our new season - as we feel deeply connected to all its parts. Thanks for your openness, Shay.
After you listen, let us know what you think by commenting on the episode art on instagram @remembermepodcast
**Please be advised that some of this content may be triggering to some as it discusses the following: Self-harm, Abuse, Suicidal ideation
If you are struggling - help is available. Speak with someone today at the National Suicide Prevention Lifeline | Available 24 hours | 800-273-8255
Today's Sponsors:
- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com
- Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBERME for 20% off at checkout
- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
Learn more about remember me at www.remembermeftd.com/
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Welcome Back, Happy New Year + OMG, YOU GUYS, it's SEASON 4!!
Listen now to learn a big theme of the season... in this episode we set the scene for what's in store. xx, R+M
After you listen, let us know what you think by commenting on the episode art on instagram @remembermepodcast
--- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
Today's Sponsor:
--- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com
--- Learn more about remember me at www.remembermeftd.com/ ---
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
In our Season 3 finale, we finally hear the story of the couple behind the Remember Me cover art.
Maria's father Gary shares his perspective of Lia's journey with FTD-ALS... and their beautiful life and love story.
Gary shares his experience as a full-time caregiver, how he maximized his time with Lia with his "best summa eva"... and how he is now coping with life after losing Lia.
This is one for the books. Rachael takes the drivers seat as Maria cries on mute... you're going to want a few boxes of tissues for this one - and make sure you listen to the very end...
xxR+M
We'll be back Jan 11th! Not sure what you're going to do without Remember Me for two months? Sign up for Re-Members Only! You get 2 exclusive podcasts a month, access to our community zoom events, grief content, dementia tips and more. Learn More Here: www.remembermeftd.com/joinro
We are currently booking interviews for Season 4, so please submit your applications before we fill up! www.remembermeftd.com/tellyourstory
Today's Sponsors:
--- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
--- Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout
--- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com
--- Learn more about remember me at www.remembermeftd.com/ ---
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Our much anticipated interview with singer-songwriter, and wonderful human being, Parker McKay.
Parker won over the hearts of many this fall as a contestant on NBC's The Voice, where she was chosen to be a member of Kelly Clarkson's team. Parker revealed on the show that weeks before leaving for taping, her mother Tracey had died from complications of Frontotemporal Dementia (FTD) at age 57.
We feel so fortunate that Parker wanted to join us to tell more of her story - and share more about who her mother Tracey was before FTD.
Parker is just as she appears on TV - kind, charming, genuine… and her love for her mother Tracey beautifully shines through in this episode. We can't wait to have our new BFF Parker back in the future as we know she is going to continue to be an amazing advocate for this disease. We love you, Parker! -xxR+M
Let us know what you think by commenting on the episode art on instagram. @remembermepodcast
We are currently booking interviews for Season 4, so please submit your applications before we fill up! www.remembermeftd.com/tellyourstory
Today's Sponsors:
--- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
--- Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout
--- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com
--- Learn more about remember me at www.remembermeftd.com/ ---
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
This week, we chat with Shari about her mother's relatively new diagnosis of Primary Progressive Aphasia and Vascular Dementia.
Shari is SO open about her feelings during this journey - the frustration, the guilt, and the grief...and ugh, we love it when people are just so vulnerable and honest... because we know it helps all of you (and it helps us too!). One of the biggest things we took away from this interview was Shari's amazing ability to just let her mom be. Dementia can make people have odd behaviors and it's very easy to want to correct them or get embarrassed - but Shari just seems to meet Linda where she's at and accept her and go with the flow. It's beautiful and inspiring!
At the end of the episode we learn all about fiercely independent, talented artist, Linda. Thank you to Shari for sharing her with us. We hope you enjoy the episode and please let us know what you think by commenting on the episode art on instagram. @remembermepodcast xxR + M
We are currently booking interviews for Season 4, so please submit your applications before we fill up! www.remembermeftd.com/tellyourstory
Today's Sponsors:
--- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
--- Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout
--- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com
--- Learn more about remember me at www.remembermeftd.com/ ---
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
This week, we proudly present an interview with Lauren Miller Rogen, Filmmaker, Alzheimers Advocate, co-founder of HFC, and now friend of Remember Me.
Lauren openly shares her mother Adele's journey with early onset Alzheimers disease... and she shares the journey with such honesty, vulnerability and love. She talks about what it was like to try and start her life in Los Angeles while her conflicted heart wanted to be back in Florida with her mom - a feeling many of us know all too well. And of course, we talk all about her incredible mom - who she was before the disease - an amazing teacher and mother.
This conversation was so relatable - the feelings, the heartache, it is all the same to what we felt with our own parents... and Lauren did an amazing job of showing us her accept the good outlook - creating a beautiful community and incredible resources through HFC. Below, you'll find a link to our blog post with some great resources from HFC that we think you should check out ASAP: 5 HFC Resources You Should Check Out Now
Thank you to Lauren (and to Seth) for the amazing work they are doing for this community. For giving this community a voice. We are so thankful.
xx R + M
Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast
Today's Sponsors:
--- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/joinro
--- Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout
--- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com
--- Learn more about remember me at www.remembermeftd.com/ ---
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Stephanie shares her husband Paul's current journey with Frontotemporal Degeneration (FTD). Stephanie is so beautifully honest about some of the lesser spoken about parts of the journey and shares what it's like to have her once incredibly supportive and loving partner change so drastically. We loved learning about who Paul truly is - an accomplished and celebrated mechanical engineer, a loving, supportive safe haven for his wife, and a doting father to his incredibly smart girls. Thank you to Stephanie for sharing her story with all of us.
Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast
Notes
--- Join Re-Members Only at www.remembermeftd.com/joinro
Today's Sponsors:
--- Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout
--- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com
--- Learn more about remember me at www.remembermeftd.com/ ---
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Caroline shares her journey with her mother, Margaret, a beloved family physician, who was diagnosed with Frontotemporal Degeneration (FTD) at age 59. Caroline opens up about what this journey has been like, grieving her mother and best friend while she is still living, and also managing the 800 mile distance between them.
We spend a good deal of this episode talking about transitioning a loved one into residential care. We know this is a topic that comes up a lot in our community so definitely be sure to listen if that has been a part of your journey.
Caroline also came on to promote the FTD Hot Shot Challenge, a viral campaign to raise awareness for FTD, so make sure to check that out HERE.
Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast
Notes
--- Join Re-Members Only at www.remembermeftd.com/joinro
Today's Sponsors:
--- The Association for Frontotemporal Degeneration: Check out what is happening for FTD World Awareness week at www.theaftd.org
--- Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout
--- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com
--- Learn more about remember me at www.remembermeftd.com/ ---
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
It's World FTD Awareness Week so we decided to do something special!
This episode contains excerpts of stories of Frontotemporal Dementia (FTD) previously told on Remember Me. We collaged this episode together to share a snapshot of some of the first signs of FTD, the journey of receiving the diagnosis, and the heartbreaking realization that this disease has no treatment or cure. The featured stories are told from the perspectives of children, spouses, and siblings from all over the United States and beyond.
It is short and sweet, and we invite you to share it with friends, neighbors, coworkers, doctors and more... help us #endFTD and raise awareness. If you know someone affected by this disease, let them know they are not alone, we are here.
This episode is dedicated to our parents, Lia and Frank. We miss you + we'll never stop fighting for you.
xx Rachael + Maria
Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast
SHOW NOTES:
--- Join Re-Members Only at www.remembermeftd.com/joinro
--- Learn more about remember me at www.remembermeftd.com/
Today's Sponsor:
The Association for Frontotemporal Degeneration: Check out what is happening for FTD World Awareness week at www.theaftd.org
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Shelley shares her journey with her mother, Mary, who was diagnosed with Primary Progressive Aphasia in her 50s, and died suddenly 6 years later.
This is a heartbreaking story but Shelley is a wonderful storyteller - funny, witty and no doubt someone who accepts the good. One of our favorite parts was getting into all the feelings of being mom's while going through this journey with our parents.
Shelley's mom Mary was really special. We hope you carry some piece of her with you after hearing this episode.
Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast
Notes
--- Join Re-Members Only at www.remembermeftd.com/joinro
Today's Sponsors:
--- The Association for Frontotemporal Degeneration: Check out what is happening for FTD World Awareness week at www.theaftd.org
--- Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout
--- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!) www.neuroreserve.com
--- Learn more about remember me at www.remembermeftd.com/ ---
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Back to our normal format this week with our very first story told from a mother's perspective. Dawn shares her journey with her daughter, Kara, 32, who was misdiagnosed with postpartum depression and psychosis before finally receiving the FTD diagnosis.
Listen to this heartbreaking tale told by an extraordinary, strong and loving mother, our new friend, Dawn.
Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast
Notes
--- Join Re-Members Only at www.remembermeftd.com/joinro
--- Today's Sponsor: Shop for vinyl records at Vnyl Confessions - go to vnylconfessions.com and use code REMEMBER ME for 20% off at checkout
--- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!)
--- Support: You can support our podcast by buying us a coffee, shopping our merch store, leaving us an apple podcast review and spreading the word!
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
In the last episode of our Grief to Goodness Series, we talk to Patti LaFleur, care-partner to her mother Linda, who is living with dementia.
Patti tells us all about her mindset of channeling positivity and love into her role as her mother's caregiver, or "care-partner" as she calls it. She explains how her experience and training as a Kindergarten teacher helped her in this role. In this episode, Patti inspired us to be more empathetic, and see the world more through our loved ones with dementias eyes. We think she's incredible and we hope you feel the same!
You can follow along on Patti and Linda's journey more here:
Instagram: @misspatticake TikTok: @carepartnerpatti
Let us know what you think of this series by commenting on the episode art on instagram.
Get In Touch: Follow us on instagram @remembermepodcast, or contact us on our website www.remembermeftd.com
You can support our podcast by leaving us an apple podcast review and sharing our podcast on social!
Want more Remember Me? Join our brand new Re-Members Only Space: www.remembermeftd.com/joinro
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
In the second episode of our Grief to Goodness Series, we talk to siblings and creators of RememBar Brain Food, Matthew and Rachel.
Matthew and Rachel tell us all about their incredible dad John, and his journey with early Alzheimers disease. They share all about how they came to explore the importance of diet and its connection to brain health and how it inspired the creation of RememBar. These two are doing so much to help the Alzheimers and Dementia community, and we hope it inspires you as much as it inspired us!
If you'd like to try RememBar, Matthew has given us a code for a discount - use REMEMBERME at checkout. Enjoy!
https://remembarbrainfood.com/
Let us know what you think of this series by commenting on the episode art on instagram.
Get In Touch: Follow us on instagram @remembermepodcast, or contact us on our website www.remembermeftd.com
You can support our podcast by leaving us an apple podcast review and sharing our podcast on social!
Want more Remember Me? Join our brand new Re-Members Only Space: www.remembermeftd.com/joinro
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
In the first episode of our Grief to Goodness Series, we talk to Ed Park, the creator of NeuroReserve.
Ed opens up about his father Raymond's journey with Lewy Body Dementia and Parkinsons and shares how that experience inspired him to quit his job in pharmaceuticals and create a product to improve long-term brain health.
Let us know what you think of this series by commenting on the episode art on instagram.
Episode Sponsor: NeuroReserve Click here to learn more and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!)
Get In Touch: Follow us on instagram @remembermepodcast, or contact us on our website www.remembermeftd.com
You can support our podcast by leaving us an apple podcast review and sharing our podcast on social!
Want more Remember Me? Join our brand new Re-Members Only Space: www.remembermeftd.com/joinro
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Maria and Rachael check-in and open up about how they're feeling 9 & 10 months after losing Lia and Frank.
They also share the latest RM news + info on the upcoming mini series "Grief to Goodness."
Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast.
Notes:
Join Re-Members Only at* www.remembermeftd.com/joinro**
Neuroreserve: Click* here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!)**
Support: You can support our podcast by buying us a coffee, shopping our merch store, leaving us an apple podcast review and spreading the word! Learn more at* www.remembermeftd.com**
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
This week we speak with Sam about her father Mike's journey with FTD, and the amazing father he was before the disease.
Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast
Notes
--- Join Re-Members Only at www.remembermeftd.com/joinro
--- Neuroreserve: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!)
--- Support: You can support our podcast by buying us a coffee, shopping our merch store, leaving us an apple podcast review and spreading the word!
---
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Remember Me Turns 1! Can you believe it? Thank YOU for all of your love and support as we build RM. In this special episode, we checked-in from some of your favorite guests from Season 1 and 2. And at the end Rachael and I share our letters to our parents.
This podcast is dedicated to Amalia "Lia" Kent, on what would be her 57th Birthday. We love you, Lia.
Episode Sponsor: NeuroReserve Click here to learn more and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!)
Get In Touch: Follow us on instagram @remembermepodcast, or contact us on our website www.remembermeftd.com
You can support our podcast by leaving us an apple podcast review and sharing our podcast on social!
Want more Remember Me? Join our brand new Re-Members Only Space: www.remembermeftd.com/joinro
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
This week we speak with an anonymous listener who shares their journey of undergoing genetic testing for Frontotemporal Dementia (FTD).
Tip: We recommend listening to Expert Chat: Genetics & FTD with Diane Lucente, MS, LCGC, Manager of Genetic Counseling at world renown Massachusetts General Hospital Frontotemporal Disorders Unit.
Let us know what you think of the episode by commenting on the episode art on instagram.
This Week's Sponsor: Click here to learn more about NeuroReserve and purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!)
Get In Touch: Follow us on instagram @remembermepodcast, and visit our website www.remembermeftd.com for our blog, newsletter sign-up and more content!
Support: You can support our podcast by buying us a coffee, shopping our merch store, leaving us an apple podcast review and spreading the word!
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
For our second episode of Season 3, we hear from Jackie. Jackie shares her perspective of her mother Tammy's Frontotemporal Dementia diagnosis. Tammy’s story of being misdiagnosed and then officially diagnosed during the COVID pandemic - is absolutely fascinating. As is the life and journey of the fabulous, fierce Tammy. Jackie is so vulnerable, open and honest - sharing the not so perfect mother/daughter relationship growing up - and how it has changed now. Listen and we know you will fall in love with Jackie, and the infamous Tammy. Let us know what you think of the episode by commenting on the episode art on instagram.
Get In Touch: Follow us on instagram @remembermepodcast, and visit our website www.remembermeftd.com for our blog, newsletter sign-up and more content! Support: You can support our podcast by buying us a coffee, shopping our merch store, leaving us an apple podcast review and spreading the word! Visit our sponsor NeuroReserve neuroreserve.com to purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!)
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
WE'RE BACK! And our Season 3 Premiere is a follow-up to our first-ever episode "Frank". This time we hear from Rachael's mother, Susie. She shares her perspective of Frank's journey with Frontotemporal Dementia (FTD), and opens up about the tough decisions she had to make.
The second half of the episode is (of course) filled with amazing stories of who Frank was before dementia.
This one is guaranteed to make you laugh and cry - and fall in love with Frank. Let us know what you think of the episode by commenting on the episode art on instagram.
Episode Sponsor: NeuroReserve Visit neuroreserve.com to purchase their brain-health supplement RELEVATE and be sure to use code REMEMBERME for 15% off your order (including monthly subscriptions!)
Get In Touch: Follow us on instagram @remembermepodcast, and visit our website www.remembermeftd.com for our blog, newsletter sign-up and more content!
Support: You can support our podcast by buying us a coffee, shopping our merch store, leaving us an apple podcast review and spreading the word!
Remember Me is a podcast created by two moms who became fast friends on Instagram while caregiving for their parents. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
In our Season 2 finale, we speak with our new friend Mitra. Mitra tells us all about the FTD journey she is currently on with her father Behrooz. Mitra's road to learning her father was ill actually started with her own health crisis, and thus began her search of what was wrong with Behrooz.
Mitra is a wonderful storyteller, and shares all about the fascinating life that Behrooz lived before his FTD diagnosis. It is one of the most touching father-daughter stories we've ever heard, and we are so thankful she shared it with us. You won't want to miss the very special ending...
We'll be back with Season 3 on July 12th. Thank you to all who were a part of making this season a huge success - we raised awareness, we helped others feel less alone AND we tried our very best to always, always accept the good. Thank you.
While You're Waiting for Season 3, You Can:
- Follow us on instagram @remembermepodcast for new daily content
- Sign-up for our bi-weekly newsletter "All the Good Things" on our website
- Catch up on old episodes on our site or on Apple Podcasts & Spotify
- Start journaling with us! Buy anything on Promptly's website with our code REMEMBERME15 for 15% off by using this link.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Support this podcast: https://anchor.fm/rememberme/support
Rachael and Maria sit down for the third and final "side chat" of the season. They discuss the big milestones of the last few months, their dreams and plans for the future of Remember Me AND what it's been like to push through and produce the podcast after losing Lia and Frankie.
We'll be on a break after next week until Monday, July 12th. In the meantime, catch up on old episodes and follow us on instagram!
Here are 4 ways to support our podcast without spending any money!
1) Leave us a review on Apple Podcasts.
2) Follow us on Instagram & share our page on your stories!
3) Visit our website and subscribe to our bi-weekly Newsletter "All the Good Things"
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
Visit our website www.remembermeftd.com
Use our Code REMEMBERME15 for 15% of everything on the Promptly Journals website by clicking here.
Support this podcast: https://anchor.fm/rememberme/support
Heather shares the story of her father, Ed, who she cares for at home alongside her mother.
In this episode we really tackle all the feelings around watching a parent live with this disease. Heather is wonderfully vulnerable and we loved having raw and honest conversation. We also loved learning about wonderful Ed -before FTD- all about his art, his teaching, and his love for his friends and family. Enjoy.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast and visit our website www.remembermeftd.com
Support this podcast: https://anchor.fm/rememberme/support
Abrar shares the story of his father, Shakeel. This is a episode filled with beautiful memories and an inspiring story of a family and community that worked together to support each other and love each other through tragedy. Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
Visit our website www.remembermeftd.com
Support this podcast: https://anchor.fm/rememberme/support
Laurie Klier, Certified Dementia Practitioner, specializing in senior advocacy and compassionate care initiatives, chats with us all about how to advocate for your loved one living in a long term care facility.
She also tells us how she got into her work and the inspiration behind her heart centered business Nana's Books.
More resources on this topic will be shared in this week's newsletter, so be sure to sign up at www.remembermeftd.com today.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
Visit our website www.remembermeftd.com
Support this podcast: https://anchor.fm/rememberme/support
Nancy's story is told by her daughter, Olivia. Nancy was an American who moved to Spain in her 20s and married and raised her family there - all while also becoming a blossoming entrepreneur. Olivia shares how she discovered her mother had FTD, and her experience caring for her mother while going back and forth from the US to Spain.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast. Visit our website www.remembermeftd.com
Support this podcast: https://anchor.fm/rememberme/support
Our long awaited episode is finally here! It's time to talk about Genetics.
We had the honor of speaking with Diane Lucente, MS, LCGC, Manager of Genetic Counseling at world renown Massachusetts General Hospital Frontotemporal Disorders Unit.
We cover the basics - and Diane gives us a real science lesson - so feel free to take out a pen and paper for some notes. Diane answers a few listener questions, explains to us the difference between clinical and research testing, and gives insight into what it like to meet with a genetic counselor.
Let us know what you think of the episode on instagram @remembermepodcast or send us a note at www.remembermeftd.com
Learn more about Massachusetts General Hospital's FTD Unit here: http://www.ftd-boston.org/
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." To support the podcast, you can buy us a coffee here.
Support this podcast: https://anchor.fm/rememberme/support
Sisters Joanne and Susan share their experience caring for their mother who had both FTD and ALS. They share beautiful insight on how they cope with their waves of grief and how they continue to keep Sylvia's memory alive.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
Visit our website www.remembermeftd.com
Support this podcast: https://anchor.fm/rememberme/support
This is the second half of our interview with Sheryl - Before you listen, we recommend you listen to Sheryl, Pt 1 (Season 2, Episode 8) if you haven't already.
Sheryl is our first ever guest who is living with FTD. She was diagnosed with FTD in 2013, and is one of few FTD patients who can communicate what they are experiencing with this devastating disease. This is part two of our fascinating conversation. Sheryl answers so many questions I think caregivers often wonder but don't have the opportunity to ask. She has such an incredible personality and sense of humor, we adore her and can't wait to have her back!
Have a question for a future episode with Sheryl? Comment on her episode post on our instagram page @remembermepodcast or send us an e-mail at remembermepodcast@gmail.com.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
Visit our website www.remembermeftd.com
Support this podcast: https://anchor.fm/rememberme/support
Lois' story, as told by her daughter Anne Marie.
Anne Marie does an incredible job describing her feelings around grief - and we dive into our questions about who our parents really were outside of being parents. We hope you enjoy this open and honest conversation...
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
Visit our website www.remembermeftd.com
Support this podcast: https://anchor.fm/rememberme/support
In this side chat, we are recording for the FIRST TIME in the SAME ROOM! We talk all about our adventures in Denver, CO.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
Visit our website www.remembermeftd.com
Support this podcast: https://anchor.fm/rememberme/support
Carol shares the story of her father Heitor.
Support this podcast: https://anchor.fm/rememberme/support
This may be the most important episode we've ever done. We hear from Sheryl, who is was diagnosed with FTD in 2013. Sheryl is one of few FTD patients who can communicate what they are experiencing with this devastating disease.
This is just one excerpt of our fascinating conversation - stay tuned for the rest. We loved Sheryl and can't wait to have her back!
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
Visit our website www.remembermeftd.com
Support this podcast: https://anchor.fm/rememberme/support
Rachael and Maria recap the With Love Collaboration episodes and dive into how they're doing a few months after their parents passing.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
Visit our website www.remembermeftd.com
Support this podcast: https://anchor.fm/rememberme/support
Maureen's story, told by her husband, Scott.
This month, we’ve partnered with The Association for Frontotemporal Degeneration (The AFTD) on their 10th annual fundraising and awareness campaign With Love. Centered around Valentine’s Day, this February based campaign is an opportunity to honor or remember someone that has been affected by FTD. This one-month fundraiser aims to raise critical FTD awareness and funds for AFTD’s mission while telling stories with love.
You can donate to Scott's With Love Campaign page in honor of his wife Maureen here: https://www.classy.org/fundraiser/3099524
You can learn more about Remember Me and our collaboration on our website www.remembermeftd.com
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
Support this podcast: https://anchor.fm/rememberme/support
Linda's story, told by her daughter, Kim.
This month, we’ve partnered with The Association for Frontotemporal Degeneration (The AFTD) on their 10th annual fundraising and awareness campaign With Love. Centered around Valentine’s Day, this February based campaign is an opportunity to honor or remember someone that has been affected by FTD. This one-month fundraiser aims to raise critical FTD awareness and funds for AFTD’s mission while telling stories with love.
You can donate to Kim's With Love Campaign page in honor of her mom Linda here: https://www.classy.org/fundraiser/3113402
You can learn more about Remember Me and our collaboration on our website: www.remembermeftd.com
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
Support this podcast: https://anchor.fm/rememberme/support
John's story, told by his son, John Jr.
This month, we’ve partnered with The Association for Frontotemporal Degeneration (The AFTD) on their 10th annual fundraising and awareness campaign With Love. Centered around Valentine’s Day, this February based campaign is an opportunity to honor or remember someone that has been affected by FTD. This one-month fundraiser aims to raise critical FTD awareness and funds for AFTD’s mission while telling stories with love.
You can donate to With Love at the link on our website www.remembermeftd.com
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
You can learn more about FTD at theaftd.org.
Support this podcast: https://anchor.fm/rememberme/support
Amalia's story, told by her sister, Sophia.
This month, we’ve partnered with The Association for Frontotemporal Degeneration (The AFTD) on their 10th annual fundraising and awareness campaign With Love. Centered around Valentine’s Day, this February based campaign is an opportunity to honor or remember someone that has been affected by FTD. This one-month fundraiser aims to raise critical FTD awareness and funds for AFTD’s mission while telling stories with love.
You can donate to With Love at the link on our website www.remembermeftd.com
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
You can learn more about FTD at theaftd.org.
Support this podcast: https://anchor.fm/rememberme/support
Rachael and Maria interview CEO Susan Dickinson to learn more about the Association for Frontotemporal Degeneration (The AFTD). We talk about research, resources for caregivers and more.
This episode is also an intro into our Remember Me x AFTD Collaboration on the Annual With Love campaign, launching in February
Learn more about The AFTD at theaftd.org
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast
Visit our website www.remembermeftd.com
Support this podcast: https://anchor.fm/rememberme/support
Rachael + Maria are back after an unexpected break... and ready to tackle the new phase of their journey with FTD.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
You can learn more about FTD at theaftd.org.
Support this podcast: https://anchor.fm/rememberme/support
As a follow up to Episode 9, hear Mark's story told from his son Caleb's perspective.
We're going on holiday break. Stay tuned for Season 2, starting January 18th. Be well, friends.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Visit our website where you can read our blog, connect and apply to be on the podcast: www.remembermeftd.com.
Follow us on Instagram @remembermepodcast.
Support this podcast: https://anchor.fm/rememberme/support
Maria gets the help of her best friends Nikki + Kelly to discuss this week's side chat topic: How to Support A Friend Dealing with FTD.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Visit our website www.remembermeftd.com.
Follow us on Instagram @remembermepodcast.
Support this podcast: https://anchor.fm/rememberme/support
Katie and Maria talk about transitioning a loved one with FTD into residential care. Katie provides tips and resources and answers listener submitted questions. Katie Brandt is a global advocate for FTD and the Director of Caregiver Support Services and Public Relations at the Massachusetts General Hospital's Frontotemporal Disorders Unit. You can learn more about the MGH FTD Unit at www.ftd-boston.org Learn more about Katie and her Love is Out There Campaign at www.loveisoutthereftd.org If you have suggestions for topics for future expert chats, connect with us on Instagram @remembermepodcast or our website www.remembermeftd.com
Support this podcast: https://anchor.fm/rememberme/support
Rachael and Maria talk about their experiences navigating the waves of grief.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Visit our website www.remembermeftd.com.
Follow us on Instagram @remembermepodcast.
Support this podcast: https://anchor.fm/rememberme/support
Robin's story, from her daughter Olivia's perspective.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Visit our website www.remembermeftd.com.
Follow us on Instagram @remembermepodcast.
Support this podcast: https://anchor.fm/rememberme/support
Jimmy's story, told by his daughter, Ashley.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
You can learn more about FTD at theaftd.org.
Support this podcast: https://anchor.fm/rememberme/support
Anne's story, told by her daughter, Corey.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
You can learn more about FTD at theaftd.org.
Support this podcast: https://anchor.fm/rememberme/support
Ashley Stevens, MSW, @thedementiaguru, talks to us about dementia caregiving and grief.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
Support this podcast: https://anchor.fm/rememberme/support
Lisa's story, told by her daughter Brittany. Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." Follow us on Instagram @remembermepodcast. Consider participating in the FTD Hot Shot Challenge to raise awareness for FTD! Go to theaftd.org/ftdhotshotchallenge or @ftdhotshotchallenge on Instagram for more info!
Support this podcast: https://anchor.fm/rememberme/support
We check-in on how we're doing and talk about our favorite moments from the first 8 interviews! Don't forget to participate in the FTD Hotshot Challenge! Follow along on Instagram at @ftdhotshotchallenge and learn more at www.theaftd.org/hotshot Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." Follow us on Instagram @remembermepodcast.
Support this podcast: https://anchor.fm/rememberme/support
Mark's story, told by his daughter Keri.
Don't forget to participate in the FTD Hotshot Challenge! Follow along on Instagram at @ftdhotshotchallenge and learn more at www.theaftd.org/hotshot
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
Support this podcast: https://anchor.fm/rememberme/support
Michelle from @thesisterproj shares her perspective on her journey with her mother June.
If you haven't already, take a listen to Episode 4: June, with her sister Lauren.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."
Follow us on Instagram @remembermepodcast.
Support this podcast: https://anchor.fm/rememberme/support
Pete's story, told by his daughter, Erin.
Remember me is a podcast created by two moms who became fast friends via Instagram. It features stories of Frontotemporal Dementia (FTD) - a disease that 60 minute's called "The Cruelest Disease You've Never Heard Of". The stories are told by the bystanders of the disease - the family members who witnessed everything. The stories shared are raw, real, and so full of love. We sincerely hope they bring a sense of solace and help us remember our loved ones for who they were before FTD.
Connect with us on instagram @remembermepodcast or artjunkstudios.com/remembermepodcast
You can learn more about FTD at theaftd.org
Support this podcast: https://anchor.fm/rememberme/support
Mark's story, told by his daughter, Melissa.
Remember me is a podcast created by two moms who became fast friends via Instagram. It features stories of Frontotemporal Dementia (FTD) - a disease that 60 minute's called "The Cruelest Disease You've Never Heard Of". The stories are told by the bystanders of the disease - the family members who witnessed everything. The stories shared are raw, real, and so full of love. We sincerely hope they bring a sense of solace and help us remember our loved ones for who they were before FTD.
Want to share your story? Connect with us on instagram @remembermepodcast or artjunkstudios.com/remembermepodcast
You can learn more about FTD at theaftd.org
Support this podcast: https://anchor.fm/rememberme/support
Learn a little more about your hosts, Rachael and Maria. Remember me is a podcast created by two moms who became fast friends via Instagram. It features stories of Frontotemporal Dementia (FTD) told by the bystanders of the disease - the family members who witnessed everything. The stories shared are raw, real, and so full of love. We sincerely hope they bring a sense of solace. Want to share your story? Connect with us on instagram @remembermepodcast or artjunkstudios.com/remembermepodcast You can learn more about FTD at theaftd.org
Support this podcast: https://anchor.fm/rememberme/support
June's story, told by her daughter, Lauren.
Learn more about Lauren and her sister Michelle on their blog: thesisterprojectblog.com
You can also follow Lauren on Instagram: @themidsis and @thesisterproj
Remember me is a podcast created by two moms who became fast friends via Instagram. It features stories of Frontotemporal Dementia (FTD) told by the bystanders of the disease - the family members who witnessed everything. The stories shared are raw, real, and so full of love. We sincerely hope they bring a sense of solace.
Want to share your story? Connect with us on instagram @remembermepodcast or artjunkstudios.com/remembermepodcast
You can learn more about FTD at theaftd.org
Support this podcast: https://anchor.fm/rememberme/support
Mike's story, told by his wife Katie.
Learn more about Katie and her Love is Out There Campaign at www.loveisoutthereftd.org
Remember me is a podcast created by two moms who became fast friends via Instagram. It features stories of Frontotemporal Dementia (FTD) told by the bystanders of the disease - the family members who witnessed everything. The stories shared are raw, real, and so full of love. We sincerely hope they bring a sense of solace. You can learn more about FTD at theaftd.org Follow us on instagram @remembermepodcast
Want to share your story? Go to artjunkstudios.com/remembermepodcast
Support this podcast: https://anchor.fm/rememberme/support
Amalia's Story, told by her daughter Maria.
Remember me is a podcast created by two moms who became fast friends on instagram. It features stories of Frontotemporal Dementia (FTD) told by the bystanders of the disease - the family members who witnessed everything. The stories shared are raw, real, and so full of love. We sincerely hope they bring a sense of solace.
You can learn more about FTD at theaftd.org
Follow us on instagram @remembermepodcast
Want to share your story? Visit us at artjunkstudios.com/remembermepodcast
Support this podcast: https://anchor.fm/rememberme/support
Frank's Story, told by his daughter Rachael.
Remember me is a podcast created by two moms who became fast friends. It features stories of Frontotemporal Dementia (FTD) told by the bystanders of the disease - the family members who witnessed everything. The stories shared are raw, real, and so full of love. We sincerely hope they bring a sense of solace.
You can learn more about FTD at theaftd.org
Follow us on instagram @remembermepodcast
Support this podcast: https://anchor.fm/rememberme/support