What is possible with regard to de-identification and anonymization? Will anonymization be sufficient only for today? Or, will it keep the data anonymized for decades to come; possibly beyond? What is necessary to minimize re-identification risks? What do you need to know about anonymization before agreeing to allow your health data to be used for research?
In this episode Rebecca speaks with world-renowned de-identification and anonymization expert, Dr. Khaled El Emam about anonymization, de-identification, re-identification risks, and related topics.
Dr. El Emam has done extensive research in this area and written multiple books on these topics. Rebecca contributed a chapter to Dr. El Emam’s book, “Risky Business: Sharing Health Data While Protecting Privacy.” Dr. El Emam also wrote “Anonymizing Health Data” and “Guide to the De-Identification of Personal Health Information,” in addition to many articles.