In this episode, we talk about how our work often involves educating researchers about the need to screen for PEM if their study involves exercise or increased activity.

Having a study 'approved by the ethics committee' doesn't mean anything if the committee does not understand the background of M.E/C.F.S in terms of many medics not believing in it as a disease, knowing how long it takes to get a M.E/C.F.S diagnosis (in the real world), or medics not knowing how to screen for the defining characteristic of the disease - Post-Exertional Malaise (PEM). 

There seems to be a big assumption that someone somewhere will have screened for PEM - this is not the case in most instances.

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Thanks for listening!