SMA It's Not Too Late: Recent Episodes
Erin Fulks
I have two children with SMA Type one. Both received Spinraza as infants but one can walk while the other requires 24 hour care for all her needs. This podcast is more than documenting my journey, but it's giving you a how to guide on how to help your SMA child reach their full movement potential. When my first child was diagnosed with SMA she didn't move at all. All I wanted was to see her move. While she requires lots of care, she can move. she can move so well that many professionals think my child is SMA type 2, despite how severely she was affected at birth. My second child with SMA, while very much has SMA challenges, is walking, eating, and holding her own when it comes to being a toddler. Since being diagnosed with child, everything I study and learn is how to help my children move better and with more efficiency. I am proactive in advocating for their care, while doctors have told me they take a reactive approach instead of a proactive approach when it comes to addressing the various challenges that arise with each SMA child. That't not good enough for me, and I don't think that's good enough for you. I want to take the wonder out of care and give you tools to actively care for your child's needs; needs that you know you have and needs that you don't know you have. Listen and Subscribe so you can learn how to give proactive care instead of reactive care for you SMA child. Key words:Spinal Muscular AtrophySMASMA PodcastSMA Type 1SMA Type 2SMA Type 3SMA Type 4Muscular Dystrophy
In this episode, I share with you the importance of spine health before and after gene therapy treatments. My ultimate goal is to provide you with tools to help unlock your child's full movement potential.
Learn More Here, www.whatdoesthefutureholdformychild.com
In this episode, I talk about the importance of making goals. No one likes looking back on their life with regrets. As a parent, we definitely don't want to look back on our child's life and think there is something more we could have done. Let's make some goals. www.whatdoesthefutureholdformychild.com
Scoliosis is a common challenge among SMA children. I am constantly working to combat that in my most severe SMA child. To learn more about the techniques I am using go to www.whatdoesthefutureholdformychild.com
In this episode, I just want to encourage parents who have children with Spinal Muscular Atrophy to keep trying. Everything will work out, and all you can do is try. It is enough.
Learn more about the techniques I use to help my children with SMA thrive.
https://www.whatdoesthefutureholdformychild.com/
E.5 In this episode, I explain how much SMA has been a blessing in my life.
Key Words:
Spinal Muscular Atrophy
SMA
E.4 Are you fearful of dreaming big for your SMA child, you don't have to be. In this episode. I explain why.
Key Words:
Spinal Muscular Atrophy
SMA
E.3 In this episode I talk about the transition I made from doing CPT and Coughassist to Movement Lesson. For a long time I did both because it was needed. But once I determined the CPT and Coughassist was not being effective I discontinued that.
Disclaimer: no one should ever discontinue this with out consulting their neurologist and other appropriate doctors. I am not a medical professional and every discussion about your child care is between you and your doctors.
E2. In this episode I share with you why I am grateful for Spinal Muscular Atrophy (SMA). It has been a pivotal moment of change for my in my life and I wouldn't change it for the world.
www.whatdoesthefutureholdformychild.com
E:1 In this episode I share with you three things I did to help my daughter with Spinal Muscular Atrophy (SMA) make it through the Rhino Virus and Pneumonia without being intubated.
Disclaimer: I don't guarantee the same results for your child, these are just three things you can do to reduce risk for intubation while your SMA child is ill.
www.whatdoesthefutureholdformychild.com
Erin Fulks
SMA Mom & Movement Lesson Practitioner