Season 02, Episode 09 Co-Hosts: Nadine Vogel & Norma Stanley Guest: Donna Davidson

Intro: [Music playing in background] Disabled Lives Matter... here we go!

Voiceover: Hello and welcome to this week's episode of the disabled lives matter podcast. Let's welcome co-hosts Nadine Vogel and Norma Stanley.

Nadine Vogel: Hello Hello everyone, welcome to another fabulous episode of disabled lives matter we are more than just a podcast we are a movement in part because of my fabulous co host Norma Stanley.

Norma: Hello everybody how you guys doing today.

Nadine Vogel: Good good very excited norma you and I. I know are both excited about who we're going to be interviewing today.

Nadine Vogel: So Donna Davidson has joined us, and she is President and CEO of Easter seals North Georgia, I believe, one of North Georgia one of Georgia's largest nonprofit organizations so um Donna welcome.

Donna davidson: Welcome Thank you so much for having me happy Monday.

Nadine Vogel: Happy Monday, Tuesday, Wednesday. yeah.

[Everyone laughing.]

Nadine Vogel: Whatever day it is um so tell us you know before we go into Easter seals and some of the work that's done there tell us a little bit about you, I understand you started your career as a speech language pathologist therapist for children.

Donna davidson: I did, I have always had a love for children and I started my career as a speech and language pathologist working with children, I started actually in the public schools.

Donna davidson: And then I was really interested in going into a management position, so I joined Easter seals in the State of Massachusetts in 1987.

Donna davidson: As their director of therapy services, and then I worked into their director of marketing services, and then I was offered the position in North Georgia to come and lead that organization.

Nadine Vogel: got it so you've been with them a while you're you're you're very intimately familiar with the inner workings so we'll have to get into that [laughter].

Donna davidson: Yes. I just celebrated my 30th anniversary with Easter seals North Georgia as the CEO.

Nadine Vogel: wow so I'm curious how many Easter seal chapters are in Georgia and then how many nationally.

Donna davidson: There are five separate Easter seals chapters in Georgia, and we all do, different things, because we really look at the needs within our communities and in the nationally, we have 72 chapters.

Nadine Vogel: Oh, my gosh Okay, and is it is it the same thing that each chapter looks at the Community it serves and says here's the things we should be doing.

Donna davidson: Absolutely, we look at what the needs are within our particular communities and that's where we focus our efforts Easter seals mission is pretty broad we work with.

Donna davidson: Everything from newborns all the way through seniors and everything in between, so we really try to find where our efforts will make the most difference.

Nadine Vogel: And do you i'm just curious, you know as as demographics change as medical technology changes have you found, since you've been with the organization so long have you found that the kinds of programming that you provide has also changed over the years.

Donna davidson: Yes, we have found that you know, with the advent of technology and thank goodness for that.

Donna davidson: Particularly during the pandemic we've been able to add Tele practice services to work with the children that are in our Program.

Donna davidson: We were able to do that when we had to close our early education program so we were able to do that via technology and we were also able to provide all of our therapy services via technology as well.

Donna davidson: What we are finding, however, is that the children that are in our service we're finding.

Donna davidson: You know, we may start with one service and find that there are more and more gaps, so that we have had to start to add more and more services as we go along.

Donna davidson: With the years going by we have more advanced evidence based practices to work with the children that we serve, but the need certainly has not dissipated at all.

Nadine Vogel: got it got it so maybe you could share with our audience what are, and this is probably a really little question for a very big answer, what are all of the programs and services that you guys provide today.

Donna davidson: Well, at Easter seals North Georgia our largest service is our early education and care program, and that is.

Donna davidson: for children from six weeks to five years of age, with or without disabilities 100% of the children enrolled are living at 100% below the poverty level.

Donna davidson: What makes this program a little bit different is that we provide really comprehensive services we make sure the children get their medical their dental care.

Donna davidson: Their disability services their social emotional services and their education services, and on the other hand.

Donna davidson: We work with parents to make sure that they become their child's first and most important teacher an advocate, and we also help them to obtain.

Donna davidson: A higher level of self sufficiency, so we offer everything from G-E-D, job training, parent training, etc.

Donna davidson: Our other large program is our early intervention program and through that program we provide services for children birth to three.

Donna davidson: with disabilities and we provide those services in the counties of Gwinnett, Newton, and Rockdale counties just in those three counties we're working with over 2000 children, young children. with disabilities.

Nadine Vogel: wow.

Donna davidson: We also have a unique program called champions for children and it's the one program that we do throughout the state of Georgia.

Donna davidson: That program is a little bit unique because it's for children up through the ages of 18 who have a really significant disability.

Donna davidson: But they are middle income or upper income but have the needs that would actually you know, perhaps.

Donna davidson: warrant institutional care and they were denied any assistance from the katie Beckett, or the deeming waiver.

Donna davidson: So through that program we're able to provide resources to families up to $3,000 per family to use on whatever it is, they need and for most families it's to either pay for therapy services that aren't covered by insurance.

Donna davidson: Or that they use those that those funds to provide anything with for medicines, adaptive equipment, etc.

Donna davidson: we're really excited because we also provide.

Donna davidson: Early childhood mental health and we've been doing that program for probably about 25 years, and when we started everybody looked at me cross eyed.

Donna davidson: What do you mean you're working with children that are three years old and and have social emotional challenges.

Donna davidson: Well it's real today it's really something that's being discussed on the national levels.

Donna davidson: And we've been doing that, with the children that are enrolled in our early childhood program and hoping as soon as we have an ability.

Donna davidson: To access medicaid billing and private insurance, that will be able to take those services into the county and then our last service is really a very, very unique program it's called a foster grandparent Program.

Donna davidson: And this program is for seniors who are living in poverty and want an opportunity to get back out into the Community.

Donna davidson: So they work in nonprofit nonprofit early childhood centers who have children that are at risk or who have a disability and they work, one on one with them in the classrooms they're paid a very small stipend.

Donna davidson: But it really is wonderful, because children get to have a grandma or grandpa in their.

Donna davidson: In their classroom and it really gives the seniors an opportunity to get back out into the Community, I think our oldest foster grandparent was 89 years old.

Donna davidson: Volunteering with us so we offer an array of services, but, as you can see they're all geared towards working with children and their families.

Nadine Vogel: yeah so so wow.

Nadine Vogel: that's a lot, and so, for me, and so norma, I don't know about you, but, for me, I think the first thing that just surprised me was the first program where you said i'm working with with folks.

Nadine Vogel: Six weeks to five years, but with and without disabilities, I had no idea I always thought Easter seals was you know disability only norma how about you. did you know that.

Norma: I didn't know that, that was a surprise. so why is that.

Donna davidson: Well, Easter seals went into the field of early education, because children with disabilities couldn't find a place to go into early education or childcare.

Donna davidson: A lot of child care centers were very, very scared you know they didn't have the skills to to work with children with disabilities.

Donna davidson: They couldn't provide you know lower ratios and so Easter seals actually in North Georgia we're actually in the state of Georgia, we were the very first inclusive childcare that opened.

Donna davidson: In 1992 we really believe in inclusion and And what better way to start than when children are first born and first diagnosed, so all of our classrooms and we have 19 locations.

Donna davidson: And we work with over 2000 children a day all day long and children with him without disabilities are enrolled in the same classrooms and it's wonderful for all of the children.

Nadine Vogel: wow.

Norma: I know when Sierra was young, you know, and she was born in 88 that was not available to us, and that is still such a major need finding childcare for parents who need to go back to work.

Norma: And so, that is something that is really important to parents, because you know you have to be comfortable with whom, you're leaving your baby with, when you have to go back to work, and that's such a big need should be bigger.

Norma: You know, they need more centers.

Donna davidson: It should be and it's so wonderful because we have a therapists that work in the program we're really excited right now, because we have quite a number of children who have been diagnosed with autism spectrum disorder.

Donna davidson: And we're working on a new model so that those children can also successfully be included within the classroom so we're working with.

Donna davidson: A-B-A and working on being able to place a registered behavior therapist in the classroom one on one with the children so that they have all their needs, met in one location, which is also fabulous for working parents.

Norma: Absolutely absolutely that's very exciting.

Nadine Vogel: yeah and you know same here you know Gretchen my older daughter was born in 91 and now she needed RN care so and she had RNs until she was 13 so we took it to a whole nother level right, we had the RNs in the classroom was with her, etc.

Nadine Vogel: So that was that was pretty wild, but I think that that's that's amazing that you do that, and the other end I love the whole foster grandparent thing I. think that it's.

Nadine Vogel: Really cool again something I wouldn't have.

Nadine Vogel: imagined you guys doing but I totally get the connectivity and back to special needs kids, so I think that's fabulous.

Nadine Vogel: So I want to touch on the early childhood mental health, we need to go to a break in just a minute, when we come back I would love to just talk a little bit more about that because.

Nadine Vogel: You know I will tell you when when my older daughter was younger because of all the therapies and all the things she was getting we brought her to see a child psychologist.

Nadine Vogel: I think she was about three or four probably about three when we started doing that and to your comment earlier Donna, you know people looked at me like I have four heads they're.

Nadine Vogel: Like no don't, why are you causing a problem that doesn't exist and it's like.

Nadine Vogel: no, no, no i'm trying to help her so She'lll know how to cope and and so forth, so when we come back from break I would love to touch on that because I think that.

Nadine Vogel: that's just something nobody's talking about, even though we are talking more about mental health, these days, certainly we're not talking about it, relative to these very young children.

Nadine Vogel: Who are born with or acquired disabilities so on so for our listeners don't go away, we will be back in just a minute speaking with Donna Davidson and talking about Easter seals North Georgia all right be right back.

Voiceover: And now it's time for a commercial break.

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Voiceover: And now back to our show.

Nadine Vogel: Hello Hello everyone, this is nadine vogel and we are back with my co host Norma Stanley, hey norma.

Norma: Hey.

Nadine Vogel: And we are interviewing the lovely Donna Davidson today from Easter seals North Georgia so before we left for break Donna, you were sharing that you have a program it's around early child mental health.

Nadine Vogel: We know today the mental health has been talked about quite a bit, but I think more so, either in the adult community.

Nadine Vogel: or in that tween teen you know and off to college I don't think I could be wrong, I don't think people are really thinking about this in terms of very young children, especially on children with disabilities.

Nadine Vogel: You know norma and I both are moms of adult daughters with disabilities and, and I think we both can attest, you know when our girls were young when mine was young, we took her for therapy.

Nadine Vogel: For to make sure that she knew how to cope and didn't you know have negative feelings about what she was going through, or at least learn how to deal with them so i'm curious what is, how does your program work and what's been the response.

Donna davidson: Well, first of all, you know to your point we didn't even check children for for difficulties with social emotional behavior.

Donna davidson: As I told you earlier, we administer the early intervention program for for three counties and while there was always.

Donna davidson: A service there to provide psychological counseling i'll tell you that's one thing that you know it very infrequently did it ever occur.

Donna davidson: And then we started to notice that particularly children living in high risk situations.

Donna davidson: were exposed to lots of different types of trauma and that also applies to children with disabilities or children with significant medical health.

Donna davidson: issues in and out of the hospital being separated for mom you know with with the earliest infants, we are often begins to show up is in their digestive system.

Donna davidson: A great psychologist friend of mine said when I asked him what I said, you know we've got we were getting all of these children.

Donna davidson: That have some some really difficulties with their you know their gastrointestinal system, and he said, you know what Donna and infants stomach.

Donna davidson: is like their second brain right so that's when it begins to show, so you start to begin to see these these kinds of difficulties.

Donna davidson: when children are really, really young like you know it two or three weeks we really work to involve the parents in the situation as well.

Donna davidson: So we have a number of different treatments, we have parent and child play therapy, we have.

Donna davidson: Child and parent psychotherapy we have a lot of those things, but it begins with a screening and diagnosis, so now every single child that comes into our any of our programs.

Donna davidson: Within the first 45 days we do a social emotional assessment, and then we do an observation on them.

Donna davidson: And that's really important because we begin to see and it's not just the child that may be acting out.

Donna davidson: You know, you also have that child we have children that have selective mutism that don't talk.

Donna davidson: or children that are overly quiet, so we work to try to through play therapy and other methodologies that I spoke about to work to identify what's going on with that child and what's going on at home with that parent.

Donna davidson: and working with them to help to meet the needs of that child, you know relationships during those early years are absolutely key.

Donna davidson: So anything that that you know they're through a separation or through trauma that interrupts that you know, will cause cause difficulty and, unfortunately, in this day and age we have a lot of very young children, both with and without disabilities who are.

Donna davidson: experiencing trauma that they should never be experiencing in their lives, and if you don't have strong social emotional skills, there really isn't much you can do outside of that because it just gets in the way of your learning.

Norma: yeah.

Norma: And how do you address the parent you're talking about the training of the parents, because some of the things that i'm seeing.

Norma: Even today, and you know this, my daughter is in her 30s now, but some of the things that i'm seeing today were things that I saw when she was a little girl.

Norma: And a lot of parents today as many organizations that are out here like yours, some of them are falling through the cracks they don't get the support they need to help their children if they even realize they need to get the support.

Donna davidson: Well, first of all, I will tell you one of the things that i've been sort of really advocating for for for since we started this program.

Donna davidson: And you know a lot of children, particularly children with disabilities need to access our state's medicaid system to get their services, and we were covering social emotional you know mental health challenges for children, but we only started at age four.

Donna davidson: So that was a huge problem, because we were noticing children much younger and you know norma doc's aren't necessarily even picking up disability sometimes.

Norma: That's right.

Donna davidson: You know, if it's a really. quick visit, and you know they're supposed to be doing at certain intervals M-CHAT to diagnose autism, but I was on a call the other day with with.

Donna davidson: representative of physicians group, and they were like What do you mean two and three year olds.

Donna davidson: You know that that are having such what does that look like so first of all, we have a lot of education to do.

Donna davidson: You know what is normal two year old behavior because we know, two year olds are going, you know go through their own things right.

Donna davidson: And then, what are the signs learn to know the signs, the child is having a difficult just a you know, a difficulty and then the other part of it is parents being willing to participate in that you know it's it's hard as a parent to say.

Donna davidson: You know what do you mean my child has some social emotional issues going on, you did did I do something it's hard it's hard to do that.

Donna davidson: And so it's working with the parents to talk about you know what.

Donna davidson: When when children are born, they don't come with with a book right every child is an individual, and so we have to learn about a child's development.

Donna davidson: And we have to learn how to respond to different behaviors when they occur and and i'll tell you during the pandemic with kids being home.

Donna davidson: Right now, in our early childhood program we have 250 children that we are working with that are dealing with some kind of social emotional challenge, so it really is becoming you know.

Donna davidson: increasingly more important that those services are provided.

Nadine Vogel: It isn't it also preventative right in nature, in that you know I know like for our daughter, you know she was having surgery, she was having all of these things.

Nadine Vogel: You know I wanted to make sure that she felt good about that or as she was getting a little older the bullying.

Nadine Vogel: right that that goes on, unfortunately, on kids for kids with disabilities, so I think part of it, too, is preventing what could come down the road by doing some of this early on, but would that.

Nadine Vogel: be appropriate.

Donna davidson: Absolutely, so when we when we look at children in our program and we kind of make this pyramid right.

Donna davidson: And at the very bottom level of the pyramid is the the preventative stage and the educational stage, so if I think that all parents should be able to go through.

Donna davidson: Some training and talking about how to address some issues, particularly parents with disabilities, think about.

Donna davidson: When if you have a child that was born with a disability, how overwhelming it is you know you you're worried about their medical health and their therapy needs, and then you start worrying about what's going to happen when they get older so parents needs support.

Donna davidson: As well as giving that support to their children, so I absolutely think that the ability to have that parent training available for them.

Donna davidson: is so very important because, as issues arise, or as signs start to arise they'll start to be able to notice them and get their child the the the assistance they need.

Nadine Vogel: mm hmm yeah no absolutely so i'm just for for everyone who is listening now you when you talk about disabilities, you talk about all disability types Is that correct.

Donna davidson: Correct yes.

Nadine Vogel: So, because I know you mentioned autism but it's also cerebral palsy and down syndrome and.

Nadine Vogel: It could be someone who's undiagnosed that has.

Donna davidson: We are, yes, we are not a disability specific organization and, if you look within our programs we we have children with.

Donna davidson: Almost every type of disability that you could think of so even in our early education program we have children with feeding tubes.

Donna davidson: You know, we have children with pros prostheses we have children in wheelchairs, we have children with cognitive disabilities, children with down syndrome, whatever the need is.

Donna davidson: We work to try to address that need and what's great about the early education program is that every single child in that Program.

Donna davidson: Regardless of their abilities has their own individual plan, because you know what No two children ever learn at the same pace, so we it so if you if you look at educating children with disabilities, with that lens.

Donna davidson: it's easy easy to include them.

Nadine Vogel: Right right absolutely so um so norma and I are intimately familiar with early intervention and what that means, but for our listeners maybe we have listeners that have you know newborns they haven't even heard the term, can you share with everyone what early intervention means.

Donna davidson: Yes, I can so first of all what's very wonderful is that there is a federal Program.

Donna davidson: that's called I-D-E-A part C that's for children from birth to three years of age, so within every state in the United States there is a system of care for children that are born with a disability.

Donna davidson: In Georgia, we have a program that's called children's first So if you have a child that's born in the hospital and they have.

Donna davidson: A disability.

Donna davidson: at birth, they are automatically with parent permission referred into that system, so, in our case oftentimes you know, once the child's health is you know, is at at a safe place.

Donna davidson: You know we're in that house with that family right away when they come home from the hospital.

Donna davidson: And what What that means is is that we're in there to help identify whatever services that your child may need to keep their development on track.

Donna davidson: So it could be physical therapy, it could be speech therapy, it could be, you know, maybe the child is developing, but, but when you need some service coordination to keep things on track.

Donna davidson: But we send the therapists right into the home within the natural environment and deliver all of those services, all of the evaluations are free of charge.

Donna davidson: And the services are looked at from a sliding scale perspective, so you know, we have, as I said in our program we have over 2000 children.

Donna davidson: That are getting those services and it's so critical because we're there to to partner with the family from very early on to start to address those disabilities in the hopes that.

Donna davidson: By the time that child is ready to enter kindergarten let's say we've provided the services so that they can participate in the least restrictive environment possible.

Nadine Vogel: Right. Now, obviously every state works really every state work Similarly, they all all have New Jersey, has the Department of developmental disabilities everybody has one of those.

Nadine Vogel: But my question to you is for Easter seals, is it the same in every state that no matter what that service is that the services you provide the evaluation Those are all free of charge, you come in the home, that is, that identical in all States.

Donna davidson: Yes, that is, that is part of the federal law law and and the service coordination is provided free of charge, as well.

Nadine Vogel: that's great.

Norma: How do you get your funding.

Donna davidson: Easter seals has federal funding state funding and then we do a lot of fundraising as well.

Nadine Vogel: okay

Norma: awesome.

Nadine Vogel: yeah no absolutely so um if we have a family that that is listening to this and says oh my gosh I need to get in touch.

Nadine Vogel: How do they do that I guess i'm going to ask three ways, and if you have the answer for all three so one would be for North Georgia.

Nadine Vogel: One would be.

Nadine Vogel: Georgia in general or really the third would be like nationally in any state how do they get in touch to just at least communicate with someone like yourself or someone on your team to find out what they can access.

Donna davidson: Well, first of all, if they go through Easterseals.com they'll take it to the national website and then within the national website, you can just put in, where you live.

Nadine Vogel: Oh, okay.

Donna davidson: And then it will automatically let's say you live in one of our counties that would automatically pop up with us, and then you can just every day I get.

Donna davidson: messages and they actually come to me directly, and I respond to them about you know programs and services that are available.

Donna davidson: oftentimes will get requests for services that we perhaps don't provide but I always try to provide them with another resource to get the services that they may you know they they need for their child or the or an adult with disabilities.

Nadine Vogel: got it got it, I mean this is this is so important and I made use of Easter seals. I was living in L-A at the time with my older daughter, and they provided respitality know it's like a respitality weekend kind of thing, and I was so.

Nadine Vogel: So i'm I love Easter seals.

Nadine Vogel: i'm big believer so, you know as we get ready to close out, I mean you know you mentioned about Covid earlier and that you know you were able to provide a lot of things through technology.

Nadine Vogel: As we are God willing, coming out of Covid hopefully not into something else, what would you say that the state of the state is right now for the services you're providing and looking you know moving forward the next 12 to 24 months.

Donna davidson: Well, I think, first of all, with everything that went on, with Covid I think the what's concerning to all of us in the disability field in the early education field is the lack of direct care providers during the pandemic, a lot of direct care providers left the field and so. In order. for us.

Donna davidson: To get back you know to full tilt we're going to really you know I mean we're recruiting every day to look at you know, having high quality.

Donna davidson: folks work with our our children that are in our program so that's, the first thing that that we're battling.

Donna davidson: The second thing that we know that as children are coming back into the program, we know that a lot of children didn't visit their pediatricians.

Donna davidson: During that that time, so our even our referrals to our early intervention program were down the last two years, so what we know is that there's probably a lot of children out there that.

Donna davidson: have been missed norma as you put it, that have slipped through the cracks because they weren't seeing their Doc so they you know they're behind it immunizations they're behind in well baby checks all of that.

Donna davidson: We also know, as I discussed earlier, the need for services directed to social emotional.

Donna davidson: Development is key, and some of its just because the kids didn't have any social social interactions during that time period.

Donna davidson: That you know they were doing a lot of screen time whether it was for school or just watching TV, so what we're finding as children are re entering the program is that they don't know how to play with one another.

Donna davidson: Well, some of our babies never saw another child they were born during the pandemic and they did not see another child during this two year period of time.

Donna davidson: We have kids because of the masks that are having problems with speech and language development because they couldn't see.

Donna davidson: The mouth So those are so Those are some of the the impacts that we're seeing based on that and then in our in our early education Program.

Donna davidson: Normally, for our three and four year olds that's a 10 month program when we have a smaller summer month Program.

Donna davidson: But this year we're going full year because of so much that was lost, and when you look at the first five years are the absolutely most critical in terms of a child's development so we've got to get these kids caught up.

Donna davidson: On services, I think Tele therapy is here to stay, you know we're so excited about it because it helps us with the first problem that I talked about in terms of finding enough direct care providers or therapists being able to do some of that.

Donna davidson: You know utiliz utilizing technology will help help quite a bit.

Nadine Vogel: It helps it just does it, you know there's so much do I think back to when my daughter had all had therapy and thinking about how you know what if she was young, now, and I think Tele therapy is great for some things, but this is so much that you know the therapist has to be hands on.

Donna davidson: Absolutely.

Nadine Vogel: Right. feeling the muscles and moving you know and touching the body and and and things that parents either are not equipped to are just not comfortable to do.

Donna davidson: Absolutely.

Donna davidson: And we found that as well yeah parents were really ready for us to.

Donna davidson: Come back into the home.

Donna davidson: But at least we were able to work with the parent during I mean, can you imagine two years without being able to access any of that therapy.

Nadine Vogel: No, no, I really can't I mean my daughter had 11 hours a week of OTPT speech for years, I cannot imagine going from 11 hours a week to zero.

Donna davidson: Yes.

Nadine Vogel: and where she would have.

Nadine Vogel: been as a result that probably is is definitely disheartening but with that we are out of time, oh my gosh I can't even believe it.

Nadine Vogel: But Donna, I just want to say thank you Thank you so much to you all the work you do and to Easter seals you guys are just so important to all of us as special needs parents, I could tell you.

Nadine Vogel: That.

Norma: Thank you so much.

Donna davidson: yeah Thank you.

Donna davidson: So much for having us.

Nadine Vogel: Absolutely and norma another great episode, thank you for being my special partner, and we will see you all on another episode of disabled lives matter bye bye everybody.

Norma: bye be blessed.

Closing comment: [Music playing in background.] Thank you for listening to this week's episode of disabled lives matter. We look forward to seeing you next Thursday. Have a great week!

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