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Navigating chronic illness is hard for anyone. There is an added layer of difficulty if you are a parent to a chronically ill child. In the first part of the episode I share some of the "don'ts" I learned along the way. I shared the resource "Taming Your Tongue" Here's the link: https://amzn.to/3Iu4KdC
The second half is more positive and I shared some of the "do"s. One of those suggestions was to start a file with all the medical information your child will need when they launch as an adult and are responsible for all of their medical stuff. One parent created a book on Ehlers-Danlos after her child requested she put together all her knowledge. That book is now the go-to authority on EDS. If you're interested in checking it out:
https://amzn.to/3x7Bsv9

Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com