Sleep Apnea Stories: Recent Episodes
Emma Cooksey
Sleep Apnea Stories is a podcast featuring guests who are coping with sleep apnea and the medical experts who treat them. The goal of the podcast is to shatter stereotypes around sleep apnea. We also want to build a community of people coping with Sleep Apnea to provide inspiration and hope to listeners. Do you have Sleep Apnea? Would you be willing to share your story with our community? If so, I'd love to hear from you! Email: sleepapneastories@gmail.com Photo credit: Kate Gardiner www.instagram.com/kategardiner CPAP Mask credit: ResMed Airfit f30i www.resmed.com
Emma co-hosted an event called "Rise, Shine and Share" in Houston, Texas to bring together a group of great sleep people in one place.
My co-hosts:
Mollie Eastman
https://www.sleepisaskill.com
Teresa Palmer
https://www.sleepbetter.nyc
Featured in this episode:
Nathan Blamick
https://www.4thquarterfocus.com/
Dr. Allison Kole:
https://www.askthesleepmd.com/
Dr. Valerie Cacho:
https://www.sleephoria.health/
Kristen Cascio:
https://www.instagram.com/meandmycpap
Dr. Carleara Weiss:
https://www.carlearaweiss.com/
Drew Copeland
https://www.instagram.com/slumberjackdrew
Dr. Funke Afolabi-Brown
https://www.therestfulsleepplace.com/
Dr. Sahil Chopra
https://www.empowersleep.com/
Matthew Allard
https://www.instagram.com/somnomed_northamerica/
https://www.instagram.com/sleepingaroundthepodcast/
This episode and our "Rise, Shine and Share" event were sponsored by Aeroflow Sleep - learn more here: https://www.aeroflowsleep.com
Connect with Emma:
Follow the podcast on Instagram:
https://www.instagram.com/sleepapneastories
Email Emma at sleepapneastories@gmail.com
https://www.sleepapneastories.com
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
Click here: https://a.co/d/1KUzY0O in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma answers listener questions.
In this episode:
Q) How can I stop air leaking from the mask? I can't wear it any tighter.
Q) How can I keep the mask from irritating my face? Any liners that work well?
Q) If there's no leaking, do I still need to change them every 3-6 months?
Q) Do you wash new CPAP supplies?
Q) How do people manage camping/adventures with their kids and using CPAP?
Q) 2 weeks using CPAP, when should I see a change? I honestly feel more exhausted than before.
Q) Suggestions for having a big tongue that could be causing sleep apnea?
This episode is sponsored by Aeroflow Sleep - learn more here: https://www.aeroflowsleep.com
Research on nasal pillows masks: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5014980/
Mask Liners:
https://www.padacheek.com
Emma's Amazon Storefront
https://www.amazon.com/shop/sleepapneastories
Emma's Favorite CPAP Battery (10% off)
https://www.exppropower.com/discount/emma
Vik Veer's video on tongue procedures:
https://youtu.be/DAvt3sc5NSI?feature=shared
Positional Therapy options:
https://www.amazon.com/shop/sleepapneastories/list/3S85ZEI4N1VB1?ref_=cm_sw_r_cp_ud_aipsflist_aipsfsleepapneastories_26ZX6K0ZQQN5ADRW99XG
Amazon page links: please note these links earn a small commission for the podcast at no additional cost to you. It's a great way to support the podcast!
Connect with Emma:
Follow the podcast on Instagram:
https://www.instagram.com/sleepapneastories
Email Emma at sleepapneastories@gmail.com
https://www.sleepapneastories.com
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
Click here: https://a.co/d/1KUzY0O in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Adam Goldberg M.D., a Cardiologist at Electrophysiology at Cardiovascular Associates of Charlottesville and at Sentara Martha Jefferson Hospital in Charlottesville, Virginia.
In this episode:
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Dr. Goldberg shares about his medical training and his exposure to patients with sleep apnea.
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Adam explains atrial fibrillation and the irregular rapid heartbeat that people experience with that condition.
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Studies showing that management of sleep apnea can improve AFib.
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Adam shares the exhaustion he felt being a young doctor and how he was unsure if that was owing to a sleep problem or just working long hours.
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Experiencing worsening reflux and Adam's decision to seek treatment after his wife complained about his snoring.
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Seeing a pulmonologist at the hospital and being tested for sleep apnea at a hotel specially equipped for sleep studies.
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Receiving a diagnosis of severe sleep apnea and being set up on CPAP.
Connect with Dr. Goldberg:
https://cvilleheart.com/staff/adam-goldberg
This episode is sponsored by Aeroflow Sleep - learn more here: https://www.aeroflowsleep.com
Connect with Emma:
Follow the podcast on Instagram:
https://www.instagram.com/sleepapneastories
Email Emma at sleepapneastories@gmail.com
https://www.sleepapneastories.com
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
Click here: https://a.co/d/1KUzY0O in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Eric Thuler, an adjunct Professor in sleep surgery at the University of Pennsylvania.
In this episode:
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Dr. Thuler explains how he trained in medicine and got into otolaryngology for his residency.
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Eric explains research into DISE and CT scans of OSA patients.
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Research with myofunctional therapists and how tongue positioning could change the airway.
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Joining the group at University of Pennsylvania to develop a way to measure upper airway collapsibility.
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Questioning whether AHI is the best measure for OSA when it is really the effort to breathe which depends upon collapsibility.
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Research into soft tissue volume and how that didn't show a relationship to increased collapsibility. However, they found that increased tongue volume did indicate a higher collapsibility of the airway.
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Using the Da Vinci system to do less invasive surgery.
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Looking at narrow and underdeveloped jaws and how that affects whether there is enough room for the tongue.
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Dr. Thuler explains that obstructive sleep apnea requires choosing the right treatment option for the right patient.
Dr. Eric Thuler:
https://www.researchgate.net/profile/Eric-Thuler
https://oto.med.upenn.edu/research-clinical-trials/clinical-research/sleep-surgery/
Connect with Emma:
Follow the podcast on Instagram:
https://www.instagram.com/sleepapneastories
Email Emma at sleepapneastories@gmail.com
https://www.sleepapneastories.com
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
Click here: https://a.co/d/1KUzY0O in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Ginny Oliaro, a young woman sharing her journey to diagnosis and treatment for severe obstructive sleep apnea.
In this episode:
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Ginny shares about the loud snoring and daytime sleepiness that prompted her to seek help from her doctor.
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Snoring running in the family and being treated as not a big health problem.
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Ginny explains struggling to keep her eyes open on her short, 15-minute drive.
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A sleep test showed Ginny was having 101 events per hour and receiving a diagnosis of severe obstructive sleep apnea.
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Starting CPAP and enjoying better sleep almost immediately.
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Switching to Aeroflow Sleep for future CPAP supplies.
Episode Sponsor
This episode is sponsored by Aeroflow Sleep - learn more here: https://www.aeroflowsleep.com
Aeroflow Sleep videos featuring Ginny:
https://youtu.be/nw5t1i83wak?feature=shared
https://youtu.be/OIFYh5cueCc?feature=shared
Connect with Emma:
Follow the podcast on Instagram:
https://www.instagram.com/sleepapneastories
Email Emma at sleepapneastories@gmail.com
https://www.sleepapneastories.com
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
Click here: https://a.co/d/1KUzY0O in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Clare Simon, a dentist offering mandibular advancement devices to patients in the UK.
In this episode:
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Clare shares how she discovered dental sleep medicine after around 10 years of general dentistry.
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Clare's husband's snoring and how he became her first patient.
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Why Clare decided to leave general dentistry to set up The London Dental Sleep Clinic.
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How patients access mandibular advancement devices in the UK via the NHS and paying privately.
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Clare explains how she uses home sleep tests for her patients.
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Increasing awareness around sleep health and sleep apnea.
Connect with Dr. Clare Simon
https://www.londondentalsleepclinic.com/
https://www.instagram.com/drclaresimon/
Connect with Emma:
Follow the podcast on Instagram:
https://www.instagram.com/sleepapneastories
Email Emma at sleepapneastories@gmail.com
https://www.sleepapneastories.com
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
Click here: https://a.co/d/1KUzY0O in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Suicide prevention resources:
https://988lifeline.org/
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Nathan Pounds who shares his journey as a parent advocating for his child to get a diagnosis with obstructive sleep apnea.
In this episode:
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Nathan explains how he and his wife have four children who are 9, 8, 4 and 1.
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Breathing issues showing up in their eldest child as a baby and having him diagnosed as having "failure to thrive".
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As their son becomes a toddler, he shows ADHD and sensory issues.
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Visiting the pediatrician and being refused a referral for a sleep study because their child did not snore despite frequent nighttime wakenings and ADHD-like symptoms.
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Nathan talks about advocating for his child to get a referral for a sleep study.
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Getting a diagnosis of obstructive sleep apnea and referral to an ENT.
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Proceeding with surgery to remove adenoids and tonsils.
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Referal to a pediatric pulmonologist who could only address one concern out of OSA and asthma because of insurance billing and coding.
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Having a negative experience with a pediatric pulmonologist who advised Nathan that removing tonsils and adenoids was the ONLY treatment option for pediatric OSA.
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Completing a follow-up sleep study 3 months after the surgery and discovering Nathan's child's OSA had worsened to severe.
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Starting on CPAP and seeing massive improvements in sleep quality and growth in their child.
Connect with Emma:
Follow the podcast on Instagram:
https://www.instagram.com/sleepapneastories
Email Emma at sleepapneastories@gmail.com
https://www.sleepapneastories.com
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
Click here: https://a.co/d/1KUzY0O in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma Cooksey is joined by Dr. Anne Marie Morse and Matthew Allard, the hosts of "Sleep Around The Podcast".In this episode:
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Dr. Morse explains how her mother's experience living with multiple sclerosis encouraged her to pursue a career in medicine and specifically neurology.
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Matthew shares his experience of supporting his wife and child through their journeys to diagnosis with obstructive sleep apnea.
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Matthew shares his background working in CPAP therapy and then transitioning to working with Somnomed building relationships between sleep physicians and dentists specializing in dental sleep medicine.
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Anne explains how doctors are often not exposed to oral appliances as a treatment option for patients with obstructive sleep apnea.
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Matthew on how he met Anne at SLEEP 2022 and was blown away by her presentation.
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Deciding to co-host "Sleeping Around The Podcast" together.
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Anne explains how she learned more about oral appliances and is getting opportunities to speak at dental sleep medicine conferences.
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Issues patients with obstructive sleep apnea are facing when trying to access oral appliance therapy. Emma shares her experience as a patient, Matthew explains what happens when the relationships between doctors and dentists work well and Anne explains medical insurance reimbursement issues patients and doctors face.
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Dr. Morse shares her take on CPAP compliance and the infuriating situation patient and social media personality Tre Burge found himself in when his CPAP was taken away.
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Anne mentions Amy Sawyer's work on CPAP adherence and programs like MonitAir to improve the patient experience with CPAP.
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Teaming up with Neurology Live on the podcast.
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Anne explains her recently launched Sleep Wake Advisor Institute - https://www.mycme.com/pages/sleep-wake-advisor-institute-free-cme
Connect with Dr. Anne Marie Morse:https://www.dammgoodsleep.com/https://www.instagram.com/dammgoodsleep/https://www.mycme.com/pages/sleep-wake-advisor-institute-free-cme
Connect with Matthew Allard:
https://somnomed.com/en/https://somnomed.com/en/find-a-dental-sleep-medicine-expert/
Sleeping Around The Podcast
Website: https://www.sleepingaroundthepodcast.com/
YouTube: https://www.youtube.com/@SleepingAroundThePodcast?sub_confirmation=1
IG: https://www.instagram.com/sleepingaroundthepodcast
LinkedIn: https://www.linkedin.com/in/sleeping-around-11a4bb293/
TikTok: https://www.tiktok.com/@sleepingaroundthepodcast
Audio Pod: https://podcasts.apple.com/us/podcast/sleeping-around-the-podcast/id1589079877
FB: https://www.facebook.com/sleepingaroundthepodcast
Connect with Emma:
Follow the podcast on Instagram:
https://www.instagram.com/sleepapneastories
Email Emma at sleepapneastories@gmail.com
https://www.sleepapneastories.comMentioned in the episode:
Tre Burge - Educator and Designer - https://www.instagram.com/hefallsasleepshop/
Rachel Nesmith - Artist and Musician - https://www.instagram.com/thenapcave/
Amy Sawyer is the researcher Dr. Morse referred to on CPAP adherence. https://pubmed.ncbi.nlm.nih.gov/21652236/
The American Sleep Apnea Association's program where CPAP machines and supplies can be donated. https://www.sleephealth.org/asaa/cpap-machine-donation/
Project Sleep's Helpline: https://project-sleep.com/helpline/
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
Click here: https://a.co/d/1KUzY0O in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Bijo Sebastian, a father of three who lives between India and France.
In this episode:
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Bijo explains how he fell asleep at the wheel with his wife and 3 kids in the car.
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A polysomnogram shows severe sleep apnea with an AHI in the 50s.
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Starting CPAP therapy and Bijo's kids naming the machine and reminding him to pack it every time he traveled.
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Bijo explains how his mental health was impacted by his poor sleep and affected his relationship with his wife.
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Leaving his marriage and moving back to India to get help with the help of a cousin.
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Bijo describes taking an additional sleep study showing no improvement in his sleep apnea and another diagnosis of restless legs syndrome.
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How working with different specialists helped Bijo to improve his mental health and his sleep.
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The septoplasty that enabled Bijo to breathe properly through his nose for the first time.
Episode Sponsor
This episode is sponsored by Aeroflow Sleep - learn more here: https://www.aeroflowsleep.com
Bijo's Links to Providers in India:
Link for iMagic Dental where Bijo discovered the CTBT scan :
https://youtube.com/@imagic8532?si=8uaYMl88DJqAUtzO
Dr Shankar the TMJ specialist
https://pulmedcmc.com/
The pulmonologist Bijo mentioned in Tamilnadu state of India
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram:
https://www.instagram.com/sleepapneastories
Email Emma at sleepapneastories@gmail.com
https://www.sleepapneastories.com
Project Sleep's Rising Voices Program:
https://project-sleep.com/rising-voices/
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here: https://a.co/d/1KUzY0O in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Mollie Eastman, sleep coach and host of the "Sleep is a Skill" podcast.
In this episode:
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Mollie shares her own rock-bottom moment with her sleep problems and how she set out to fix her own sleep habits.
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Tracking sleep using wearables and creating "Sleep is a Skill".
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The importance of the circadian rhythm and how light can disrupt this natural cycle.
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Top tips on improving sleep including morning sunlight, avoiding bright light in the evening, getting enough steps in, and avoiding eating too close to bedtime.
Episode Sponsor
This episode is sponsored by Aeroflow Sleep - learn more here: https://www.aeroflowsleep.com
Connect with Mollie Eastman:
https://www.sleepisaskill.com/
https://www.instagram.com/mollie.eastman/
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram:
https://www.instagram.com/sleepapneastories
Watch conversations on YouTube:
https://www.youtube.com/@sleepapneastories
Email Emma at sleepapneastories@gmail.com
https://www.sleepapneastories.com
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here: https://a.co/d/1KUzY0O in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma was recently featured on an episode of "Sleep Talking with Dr. Shelby". A fantastic podcast hosted by Dr. Shelby Harris. Enjoy!Check out more episodes of the podcast here: https://sleepopolis.com/podcast/--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Pam Sheets, a retired doctor who embarked upon a palate expansion called the 'EASE' procedure with Dr. Kasey Li. Pam was able to completely cure her sleep apnea following her procedure.
In this episode:
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Pam noticed that she was very tired a lot of the time and had nasal congestion.
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Stereotypes playing into Pam's thinking that she could not possibly have sleep apnea as a petite otherwise healthy woman.
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Orthodontic extractions and retractive braces and headgear Pam wore 24/7 for over a year as a teen.
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Pam describes reading James Nestor's book "Breath" and "Jaws" by Sandra Kahn on the link between jaw development and sleep-disordered breathing.
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Seeing an airway dentist and an orthodontist who specialized in airway issues.
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Pam describes having a sleep study showing she had sleep apnea and consulting doctors using telemedicine.
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Pam describes how her orthodontist recommended a surgical solution with an oral and maxillofacial surgeon.
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Starting CPAP treatment in the meantime while considering surgical options.
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Reasons Pam chose the EASE procedure with Dr. Kasey Li.
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Pam explains the EASE protocol in detail.
Dr. Kasey Li's website
Pam's surgeon discussed in this episode:
https://drkaseyli.org/ease/
Pam's orthodontist: Dr. Rebecca Bockow
https://www.inspiredortho.com
https://www.instagram.com/inspiredortho
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram:
https://www.instagram.com/sleepapneastories
Watch conversations on YouTube:
https://www.youtube.com/@sleepapneastories
Email Emma at sleepapneastories@gmail.com
https://www.sleepapneastories.com
To learn more about upcoming Project Sleep events, visit: https://project-sleep.com/
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here: https://a.co/d/1KUzY0O in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Steven Park, author of "Sleep, Interrupted" and host of the 'Breathe Better, Sleep Better, Live Better' podcast.
In this episode:
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Dr. Park's personal experience with sleep-disordered breathing and how that informed his work.
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How improving nasal patency through nasal surgery can improve CPAP use.
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Dr. Park explains why he recommends people to stop eating in the 3 hours before bedtime.
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Mouth-taping and how it can help people with sleep apnea.
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Upper Airway Resistance Syndrome and the patients who don't meet the criteria for sleep apnea but have significant symptoms.
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The problems with the current healthcare system especially for pregnant women.
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The low number of patients who are still using CPAP after a year.
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Dr. Park shares about the book he is currently working on.
Connect with Dr. Park:
https://doctorstevenpark.com/
https://www.youtube.com/@doctorstevenpark
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram:
https://www.instagram.com/sleepapneastories
Watch conversations on YouTube:
https://www.youtube.com/@sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
To learn more about upcoming Project Sleep events, visit: https://project-sleep.com/
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here: https://a.co/d/1KUzY0O in the US or search your Amazon store for the title in your country.
Survey for Patients Affected by the Philips CPAP Recall:
https://survey.ucalgary.ca/jfe/form/SV_5aQkIgvUSP0SHBk?Q_CHL=qr
ResMed Product Research Panel
ResMed is currently looking to recruit patients diagnosed with Obesity Hypoventilation, COPD, Neuromuscular Diseases and who are being treated with NIV (regardless of the brand). Click this link to participate:
https://resmed1.qualtrics.com/jfe/form/SV_3WSCJHxVKWu6sPc?Referer=Outreach1
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Tom Wilson, the leader of a Facebook support group for patients affected by the Philips CPAP recall.
In this episode:
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Tom explains his journey to diagnosis with obstructive sleep apnea and how he came to hear about the Philips CPAP recall.
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Tom shares how patients can register their recalled devices and the current status of a class action lawsuit being brought by some affected patients.
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The process to obtain reimbursement from Philips for patients who bought a new machine because of the recall.
Philips CPAP Recall Support Group
https://www.facebook.com/groups/496128858116281/
Patients can register their recalled devices here:
https://www.philipssrcupdate.expertinquiry.com/?ulang=en
Patients who are eligible for compensation should click here:
https://www.respironicscpap-elsettlement.com/
PLEASE NOTE: since this discussion, a consent decree has been issued, here is Philips' statement on it:
https://www.philips.com/a-w/about/news/src-recall-explained
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram:
https://www.instagram.com/sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here: https://a.co/d/1KUzY0O in the US or search your Amazon store for the title in your country.
Survey for Patients Affected by the Philips CPAP Recall:
https://survey.ucalgary.ca/jfe/form/SV_5aQkIgvUSP0SHBk?Q_CHL=qr
ResMed Product Research Panel
ResMed is currently looking to recruit patients diagnosed with Obesity Hypoventilation, COPD, Neuromuscular Diseases and who are being treated with NIV (regardless of the brand). Click this link to participate:
https://resmed1.qualtrics.com/jfe/form/SV_3WSCJHxVKWu6sPc?Referer=Outreach1
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Karen Davidson, an expert on measuring nasal function and how that can help sleep apnea patients.
In this episode:
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Why nasal resistance matters for patients with sleep apnea.
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Rhino manometry and how it works to determine nasal resistance.
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Dr. Davidson identifies some of the reasons that rhino manometry hasn't been widely offered to sleep apnea patients in the US.
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Karen shares about her new book, "Breathe Through Your Nose, Don’t Pay Through It: The Impact the Healthcare Industry has on Nasal Function and How We Breathe".
Find it on amazon here: https://a.co/d/aKJvksr
Connect with Dr. Davidson:
https://www.instagram.com/_thenoseknows
https://www.linkedin.com/in/dr-karen-parker-davidson-aprn-6682742b/
https://www.facthcg.com/
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram:
https://www.instagram.com/sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here: https://a.co/d/1KUzY0O in the US or search your Amazon store for the title in your country.
ResMed Product Research Panel
ResMed is currently looking to recruit patients diagnosed with Obesity Hypoventilation, COPD, Neuromuscular Diseases and who are being treated with NIV (regardless of the brand). Click this link to participate:
https://resmed1.qualtrics.com/jfe/form/SV_3WSCJHxVKWu6sPc?Referer=Outreach1
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma took a trip out of her podcast recording closet and interviewed some people in person at the NADSM Symposium in Clearwater, FL. In this episode:
-
Hear from oral appliance manufacturers Airway Management and Somnomed about their latest innovations.
-
The ‘Sleep Noodle’ and how it helps with positional OSA.
-
How to find a well-trained dentist in your area on the new patient-facing AADSM website.
https://dentalsleep.org/
https://somnomed.com/en/
https://tapintosleep.com/
https://sleepnoodle.com/
https://www.dentalsleepsolutions.com/
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Ben Cable, an ENT surgeon who treats kids with sleep-disordered breathing and sleep apnea.
In this episode:
-
Where parents should go if they suspect their child has sleep-disordered breathing.
-
When to pursue a sleep study and when it's not as necessary.
-
Dr. Cable speaks about rapid palate expansion in kids.
-
The need to have referral links with other providers because sleep apnea often requires a collaborative approach.
-
Mouth breathing, allergies, deviated septums, turbinates and "adenoid face".
Connect with Dr. Cable:
www.benjamincablemd.com
www.ENTTX.com
The article mentioned by Emma: https://pubmed.ncbi.nlm.nih.gov/35390750/
The article mentioned by Dr. Cable:
https://pubmed.ncbi.nlm.nih.gov/16585288/
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Rachel Nesmith, a patient advocate with narcolepsy type 1 (narcolepsy with cataplexy) and sleep apnea.
In this episode:
-
Rachel shares her journey to diagnosis with narcolepsy type 1.
-
The importance of advocating for yourself in healthcare settings.
-
Rachel describes finding sleep specialist Dr. Anne Marie Morse D.O. and being so grateful to find a provider who was so patient-centered in her approach.
-
Rachel talks about completing the Project Sleep "Rising Voices" speaker training program.
Connect with Rachel:
https://www.instagram.com/thenapcave
https://www.facebook.com/SleepyAmerican/
https://www.youtube.com/@SleepyAmerican
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Audrey Wells, the sleep specialist behind "Super Sleep MD".
In this episode:
-
Dr. Wells shares her background working as a sleep medicine physician and how she struggled with the system not allowing enough time to spend with each patient.
-
The courses, group coaching and Facebook group Audrey is now offering patients.
-
Dr. Wells describes the "Sleep Deep Summit" she is hosting on the "Dr Talks" platform.
Connect with Dr. Wells:
www.SuperSleepMD.com
https://www.supersleepmd.com/osa-contributors
https://summits.drtalks.com/sleep-apnea-summit/
https://www.facebook.com/groups/sleepapneawithawellsmd
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Kath Hope, founder and CEO at "Hope2Sleep", a wonderful charity in the UK.
In this episode:
-
Kath describes first trying to get used to her new CPAP mask.
-
Ordering comfort products like CPAP mask strap covers from suppliers in the US.
-
Working with the local sleep clinic to provide CPAP comfort products to local CPAP users and providing connection and support.
-
Research being conducted on 'Zeus' as a future sleep apnea treatment. Offering patients the 'nightshift' for positional therapy and eXciteOSA.
-
Emma and Kath share quite different experiences of adding mandibular advancement devices to their CPAPs.
Connect with Kath Hope:
www.hope2sleep.co.uk
Hope2Sleep Facebook Group: https://www.facebook.com/groups/hope2sleepcharity/
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Kath Hope, founder and CEO of the UK charity 'Hope2Sleep'.
Watch this conversation on YouTube now at https://youtu.be/XLcjlhywHnA
In this episode:
-
Kath shares her journey to diagnosis with obstructive sleep apnea.
-
Getting glandular fever and panic attacks/anxiety which led to helpful weekly counseling.
-
Kath describes how difficult her pregnancies were with undiagnosed sleep apnea.
-
Having a sleep study even though Kath didn't think she could have sleep apnea.
-
Being surprised at the diagnosis of severe sleep apnea.
-
Kath on the loss of her mother and in hindsight identifying sleep apnea symptoms her mother had before she died.
Tune in next week for Part 2 of our conversation!
Connect with Kath Hope:
www.hope2sleep.co.uk
Hope2Sleep Facebook Group: https://www.facebook.com/groups/hope2sleepcharity/
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Shane Pahlavan, an ENT surgeon in Dallas, Texas.
In this episode:
-
Dr. Pahlavan talks about his work as an ENT surgeon and how he started offering hypoglossal nerve surgery for sleep apnea patients.
-
Shane explains that the Inspire implant is not for every patient and shares some of the criteria.
-
Emma asks Dr. Pahlavan to explain the procedure in detail for patients listening who might be considering it.
Connect with Dr. Pahlavan:
Instagram: www.instagram.com/entandallergycentersoftexas
www.enttx.com
Inspire's website: www.inspiresleep.com
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma shares with listeners that she is taking a winter break before introducing new episodes in January 2024.
Emma's podcast suggestions:
"Sleep is a Skill"
https://www.sleepisaskill.com/podcasts
"Sleep Tech Talk"
https://www.sleeptechtalk.com/
"Sleep Talking with Dr. Shelby"
https://sleepopolis.com/podcast/
"Breathe Better, Sleep Better, Live Better"
https://doctorstevenpark.com/category/podcast-2
"I Spy with My Myo Eye"
https://www.ctorofacialmyology.com/podcast
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
NEW - Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey now!
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Meredith Broderick, a triple board-certified doctor specializing in neurology, sleep medicine and behavioral sleep medicine.
In this episode:
-
Dr. Broderick's childhood as a Korean/American adoptee and finding her sleep very different from her parents'.
-
Meredith shares about her training in Neurology and then completing a fellowship in sleep medicine at Stanford.
-
Experiencing the work of orthodontists, dentists, psychologists and surgeons as part of the fellowship.
-
Dr. Broderick explains having a sleep study using esophageal manometry to diagnose her upper airway resistance syndrome.
-
Meredith talks about having a tonsillectomy and starting CPAP.
-
The traditional model of care in sleep medicine and how Dr. Broderick has been able to reimagine the patient experience in her practice.
-
A little bit on kids and some of the options available to parents.
-
Dr. Broderick on developing her "Sound Sleep Skin" skincare products developed with CPAP users in mind.
The paper referred to during this discussion: https://pubmed.ncbi.nlm.nih.gov/35390750/
Connect with Dr. Broderick:
https://soundsleepguru.com/
https://www.instagram.com/sleepdoctormer
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
NEW - Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey now!
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Steve Carstensen, a dentist and dental sleep medicine educator/trailblazer.
In this episode:
- Steve talks about how he first discovered oral appliance therapy and got interested in the field of sleep-disordered breathing.
- The type of patients Steve has seen do really well with oral appliance therapy in his practice.
- Emma asks Steve whether there is a place for an interim, non-custom appliance such as over-the-counter 'boil and bite' devices or the myTAP from Airway Management.
- How to find a well-trained dentist to make a custom oral appliance.
- Steve talks about the work he is doing to identify kids with airway issues so they can receive treatment earlier to prevent health problems like sleep apnea later in life.
- Steve's Dental Sleep Practice magazine and how it can help dentists get involved with dental sleep medicine training.
Connect with Steve:
https://www.premiersleepassociates.com/
https://www.instagram.com/stevecarstensendds/
https://www.facebook.com/premiersleepassociates
https://dentalsleeppractice.com/
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
NEW - Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey now!
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here in the US or search your Amazon store for the title in your country.
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Bob File, a former MLB player recently diagnosed with obstructive sleep apnea.
In this episode:
-
Bob's career in major league baseball playing for the Toronto Blue Jays.
-
His childhood and history of allergies, asthma and disrupted sleep.
-
Bob's interest in fitness and performance and noticing he struggled to run long distances.
-
Working with Pulmonologists and hearing about sleep testing but rejecting the idea of spending the night in a sleep lab.
-
Bob's doctor noticing elevated red blood count levels and suggesting a sleep test to rule out sleep apnea.
-
The combination of teeth grinding, night sweats and daytime sleepiness prompted Bob to do a home sleep test.
-
Starting CPAP and really struggling the first few weeks. Bob on working with Jason Sazama of AXG Diagnostics to help refine his CPAP settings.
-
Bob on combining a mouthguard with CPAP and Emma on combining her oral appliance and CPAP together.
Connect with Bob:
https://www.linkedin.com/in/bobfile/
X(Twitter)
https://twitter.com/BobFile
Connect with Jason Sazama
Sleep tech and host of the "Lanky Lefty 27" YouTube channel
https://www.youtube.com/channel/UCg_Rj5qrxlCo4OX6MMq08gQ
https://axgsleepdiagnostics.com/
Emma's Sleep Apnea Stories podcast episode with Jason Sazama
https://podcasts.apple.com/us/podcast/52-jason-sazama-cpap-with-a-sleep-tech/id1523358819?i=1000553425660
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
NEW - Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey now!
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here in the US or search your Amazon store for the title in your country.
US and Canadian patients affected by the Philips CPAP recall. Please complete this survey:
https://survey.ucalgary.ca/jfe/form/SV_cM7jj2mP2RapabY
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Sahil Chopra, co-founder and CEO at Empower Sleep, a virtual care platform allowing people to get personalized sleep care in the comfort of their homes.
In this episode:
-
Emma's experience trying out the Empower Sleep platform.
-
Dr. Chopra's background from medical training in India to continuing his training in California and completing a fellowship at Harvard.
-
Sahil's discovery of sleep as a specialty and experiencing how broken the medical system was for patients.
-
Starting 'Empower Sleep' to change the patient experience.
-
Sleep Apnea as a chronic illness that needs remote patient management over the long term.
-
Dr. Chopra seeing patients with well-controlled sleep apnea but poor sleep quality.
-
How Dr. Chopra approaches complex cases to improve patients' sleep.
-
Looking at data from a Sleep Image ring over time to allow patients and their doctor to see what works and what doesn't with their sleep.
-
The importance of using FDA-approved medical-grade sleep diagnostic tools.
-
How patients pay for care under the Empower Sleep model.
-
Dr. Chopra's experience looking at more complicated cases and how they try different options and monitor the outcomes.
Connect with Dr. Chopra:
https://www.empowersleep.com/
https://www.instagram.com/empowersleep/
Information Dr. Chopra mentioned on nonvented mask / diamox in treatment for CSA:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3014237/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3998090/
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
NEW - Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey now!
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here in the US or search your Amazon store for the title in your country.
US and Canadian patients affected by the Philips CPAP recall. Please complete this survey:
https://survey.ucalgary.ca/jfe/form/SV_cM7jj2mP2RapabY
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by "Sleep Doctor Chris" from Instagram, AKA Dr. Chris Allen, a Pediatric Neurologist and Sleep Specialist.
In this episode:
-
Becoming a sleep influencer on social media to help raise awareness about sleep issues.
-
Chris shares his own journey with OSA and how it helps him to relate to the experiences his OSA patients have.
-
Attending a conference and leaving CPAP behind and realizing how much worse he felt without CPAP therapy.
-
Discovering the University of Chicago sleep clinic for pediatrics and then completing a fellowship at the University of Michigan.
-
Normalizing the need to attend regular CPAP checkups as sleep apnea changes over time and the pressures needed can change.
-
Dr. Allen on the range of options available to treat obstructive sleep apnea.
-
Misunderstandings between minimum usage requirements vs. using the CPAP every time you sleep.
-
The importance of representation as a black doctor with OSA.
Connect with Chris:
www.instagram.com/sleepdrchris
Connect with Chris's wife:
https://www.instagram.com/wiseweightmanagement
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
NEW - Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey now!
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here in the US or search your Amazon store for the title in your country. Librarians and bookstore owners, the workbook is also available to order on Ingram Sparks now and it comes out on that platform on 1st October 2023.
US and Canadian patients affected by the Philips CPAP recall. Please complete this survey:
https://survey.ucalgary.ca/jfe/form/SV_cM7jj2mP2RapabY
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Lindsay Scola who speaks about her journey to diagnosis with Narcolepsy and Upper Airway Resistance Syndrome.
In this episode:
-
Lindsay shares about her childhood and moving into politics after college.
-
Working on the Obama campaign and for President Obama in the White House.
-
Moving to LA to work in the entertainment industry.
-
How sleepiness symptoms showed up in Lindsay's life and how difficult it is to spot a sleep disorder when everyone is talking about being tired in work settings.
-
Getting a diagnosis with narcolepsy and how different symptoms felt to Lindsay compared with media portrayals of that sleep disorder.
-
Testing negative for sleep apnea in home sleep tests and during an in-lab polysomnogram.
-
Eventually receiving a diagnosis of UARS (upper airway resistance syndrome).
-
Finding a dental sleep medicine provider because she was married to her sleep doctor.
-
Lindsay's experience of dealing with the stimulants shortage.
Connect with Lindsay:
https://www.instagram.com/lindsay.scola
https://www.linkedin.com/in/lindsay-scola-a75b431/
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
NEW - Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey now!
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here in the US or search your Amazon store for the title in your country. Librarians and bookstore owners, the workbook is also available to order on Ingram Sparks now and it comes out on that platform on 1st October 2023.
Emma speaking at the virtual PCOS CON event: https://www.pcoscon.org/
Emma speaking at the Carolina Sleep Society: click here
US and Canadian patients affected by the Philips CPAP recall. Please complete this survey:
https://survey.ucalgary.ca/jfe/form/SV_cM7jj2mP2RapabY
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Olivier Lauzeral, General Manager at Somnics Health, the maker of iNAP Sleep therapy for OSA treatment.
In this episode:
-
Olivier describes his background and how he became interested in solutions for sleep apnea.
-
The iNAP device and how it works to treat OSA by using negative pressure to open the airway.
-
How to try the iNAP device through their website if your doctor does not offer it.
-
Cleaning of the iNAP and how often to replace parts.
-
The FDA approval of the device and a recent change allowing doctors to titrate the iNAP to patients of all severity levels of OSA.
Connect with Olivier:
https://www.inapsleep.online/
https://support.inapsleep.online/hc/en-us
https://www.facebook.com/inapsleep.online
https://www.linkedin.com/in/olivierlauzeral/
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
NEW - Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey now!
I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.
Click here in the US or search your Amazon store for the title in your country. Librarians and bookstore owners, the workbook is also available to order on Ingram Sparks now and it comes out on that platform on 1st October 2023.
US and Canadian patients affected by the Philips CPAP recall. Please complete this survey:
https://survey.ucalgary.ca/jfe/form/SV_cM7jj2mP2RapabY
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma interviews some attendees and exhibitors at the AAPMD's Collaboration Cures 2023 conference.
In this episode:
- Justin from ResMed gives an update on the resolution of the data issues affecting Airsense 11 users.
- Future podcast guest, Dr. Steve Carstensen, explains some work he's been doing with the American Dental Association to help dentists spot airway problems early in kids.
- Remastered Sleep on their new kids' version of their myo nozzle encouraging tongue exercises while drinking water.
- Dr. Pat McBride of the AAPMD explains the reasons for organizing the Collaboration Cures conference.
- SpotPal - Emma discovers a new device to encourage correct tongue placement for kids and adults.
- Dr. Victor Avis and Sydney Avis share an update on their Airway Revolution Foundation
- Emma chats about the Myo Munchee which encourages correct chewing for kids and adults.
- Emma's Myofunctional Therapist, Kaitlyn Shrum of Southern Speech and Myo shares an update on her own latest sleep study.
Find out more about the AAPMD here and their Foundation for Airway Health here.
Connect with Emma: Get on the email list here Follow the podcast on Instagram: @sleepapneastories Email Emma at sleepapneastories@gmail.com www.sleepapneastories.com
NEW! Support the Podcast! If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly. https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast". Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Michael Grandner, a clinical psychologist and sleep researcher from the University of Arizona.
Together they discuss:
-
Some of the real-world sleep issues Dr. Grandner is addressing in his current research.
-
How people with a sleep apnea diagnosis can spot signs that they might be dealing with chronic insomnia too.
-
Treatment options for insomnia, including medications and CBT-i, and what the data says about the efficacy of different treatment options.
-
The role of sleep coaching and the new "Sleep Reset" app Dr. Grandner was involved in developing. https://www.thesleepreset.com/
-
Michael explains the retreat he is involved with at Canyon Ranch and how home sleep apnea testing is part of that experience.
Connect with Dr. Grandner: https://www.michaelgrandner.com/
Book recommendations:
Quiet Your Mind and Get to Sleep: Solutions to Insomnia for Those with Depression, Anxiety, or Chronic Pain https://a.co/d/77CezDt
End the Insomnia Struggle: A Step-by-Step Guide to Help You Get to Sleep and Stay Asleep https://a.co/d/6nhlX6B
The Insomnia Workbook: A Comprehensive Guide to Getting the Sleep You Need https://a.co/d/2CUMPUv
Find a CBT-i Specialist:
https://behavioralsleep.org/ https://cbti.directory/ Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Sponsors: BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
NEW! Support the Podcast! If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly. https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Scott Saunders D.D.S., a dentist and obstructive sleep apnea patient.
In this episode:
-
Sleep issues that began in childhood and were exacerbated by the development of obstructive sleep apnea.
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Seeing a psychiatrist who ordered the sleep study that led to a diagnosis of severe obstructive sleep apnea.
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Cognitive behavior therapy and how it didn't work well for Scott.
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CPAP and how difficult Scott found it to sleep with that therapy.
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Getting an oral appliance and finding it failed to effectively treat Dr. Saunders' severe sleep apnea.
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Having a CBCT scan to show the airway and Dr. Bill Hang's evaluation and recommendation of MMA surgery.
-
The year Dr. Saunders spent to get his Inspire Implant approved by medical insurance.
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Scott explains his hypoglossal nerve stimulator surgery and turning on the Inspire Implant.
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Coping with anxiety using tapping solution recordings and binaural beats.
Connect with Dr. Saunders
Inspire videos https://www.healthymouthmedia.com/inspireLink to "Say Aah the Cavity in Health Care Reform" Sign up to watch Say Ahh
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Sponsors:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Kevin Coppelson, an oral and maxillo-facial surgeon at the Breathe Institute in Los Angeles, CA.
In this episode:
-
Dr. Coppelson explains how narrow nasal cavities can lead to mouth breathing, nasal obstruction, and sleep problems.
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Not having enough space for the tongue to rest at the roof of the mouth and why that causes problems breathing at night.
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Nasal resistance and how that leads to collapsing of the airway.
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Dr. Coppelson explains all the existing techniques for palate expansion including SARPE, DOME, and EASE.
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The M.I.N.D. (Minimally Invasive NasoMaxillary Distraction) technique Dr. Coppelson has developed and the benefits he sees for patients.
-
Dr. Zaghi's M.I.N.D. procedure and how it felt to perform surgery on a colleague and friend.
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CBCT scans and the paper Dr. Coppelson and Dr. Zaghi wrote, read it here: https://pubmed.ncbi.nlm.nih.gov/36841260/
-
Dr. Coppelson's definition of success as a cure for his patients rather than the lesser standard of the 'Sher' criteria commonly used to assess the success of surgical procedures treating sleep apnea.
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MMA surgery and how Dr. Coppelson is getting great results with strong 3D-printed titanium plates.
Connect with Dr. Coppelson:
https://www.drcoppelson.com/
https://www.instagram.com/drcoppelson/
https://www.facebook.com/drcoppelson
https://www.youtube.com/@kevincoppelsonmddds6718
https://youtu.be/jr3GMub3afc (Webinar)
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Sponsors:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Ana Luisa Vieira, a Respiratory and Sleep Medicine Physician practicing at Hospital de Braga in Portugal.
In this episode:
-
Dr. Vieira explains gender differences and unique aspects of obstructive sleep apnea in women.
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She covers prevalence, symptoms, diagnosis, health consequences, and treatment.
-
Sleep apnea medical care in Portugal.
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Central sleep apnea - the difference in classification from ICSD and ERJ TF from 2017, different types of CSA and respective treatments.
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Dr. Vieira explains central sleep apnea related to heart failure and explores findings regarding the safety of ASV.
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Treatment-emergent CSA and the importance of adequate classification, diagnosis, and interpretation.
Connect with Dr. Vieira
www.instagram.com/analuisapvieira https://www.facebook.com/AnaLuisaPVieira https://www.linkedin.com/in/analuisapvieira/
Some biblio references discussed in this episode:
ICSD https://learn.aasm.org/Listing/a1341000002XmRvAAK. ERJ TF/Statement 2017 by Prof Winfried RanderathRanderath W, Verbraecken J, Andreas S, Arzt M, Bloch KE, Brack T, Buyse B, De Backer W, Eckert DJ, Grote L, Hagmeyer L, Hedner J, Jennum P, La Rovere MT, Miltz C, McNicholas WT, Montserrat J, Naughton M, Pepin JL, Pevernagie D, Sanner B, Testelmans D, Tonia T, Vrijsen B, Wijkstra P, Levy P. Definition, discrimination, diagnosis and treatment of central breathing disturbances during sleep. Eur Respir J. 2017 Jan 18;49(1):1600959. doi: 10.1183/13993003.00959-2016. PMID: 27920092.
https://erj.ersjournals.com/cgi/pmidlookup?view=long&pmid=27920092About aSV. SERVE-HF Trial. Advent-HF Trial. FACE TrialTamisier R, Damy T, Bailly S, Davy JM, Verbraecken J, Lavergne F, Palot A, Goutorbe F, d'Ortho MP, Pépin JL; FACE study investigators. Adaptive servo ventilation for sleep apnoea in heart failure: the FACE study 3-month data. Thorax. 2022 Feb;77(2):178-185. doi: 10.1136/thoraxjnl-2021-217205. Epub 2021 Jul 6. PMID: 34230094; PMCID: PMC8762030.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8762030/About the term complex sleep apnea / TECSA . Javaheri S; Smith J; Chung E. The prevalence and natural history of complex sleep apnea. J Clin Sleep Med 2009;5(3):205-211https://doi.org/10.5664/jcsm.27486
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Sponsors:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Doug Toombs, a patient who has seen a significant improvement in his sleep apnea from using a Vivos DNA appliance.
In this episode:
-
Doug explains how he ignored sleep apnea symptoms in his 20's.
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The PAC (premature atrial contraction) symptoms that got his attention and a referral to a cardiologist.
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Diagnosis with severe obstructive sleep apnea and a rocky time starting CPAP therapy.
-
Doug beginning to research options outside of CPAP, including MMA surgery, MSE, and removable palate expanders.
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The feeling of being in the "Wild West" with experimental dentistry without enough data to draw solid conclusions.
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Doug's decision to start treatment with a DNA appliance from Vivos.
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Emma and Doug talk about all things "surgical success" rates, including the SHER criteria and cure rates.
-
Doug shares his sleep study results showing a significant drop in his AHI since starting palate expansion and describes how much better he is feeling.
Mentioned in this episode:
Vivos DNA, 220 patients - overall 49% AHI reduction, 25% "clinical cure" rate: https://www.sciencedirect.com/science/article/pii/S1389945722010747?ref=pdf_download&fr=RR-2&rr=7f16c4980d569c18
Vivos DNA, 87 patients - overall 46% AHI reduction, 28% "clinical cure" rate (subcategorization 43% for mild, 22% for moderate, 5% for severe): https://www.mdpi.com/1873-149X/30/2/17
MSE, 17 treated patients (+10 controls), 3 patient results discarded for failure to expand properly - overall 65% AHI reduction, ~29-36% "clinical cure" rate: https://link.springer.com/article/10.1186/s40510-021-00397-x/tables/4
EASE, 33 patients - overall 68% AHI reduction, no published "clinical cure" rate: https://www.sciencedirect.com/science/article/abs/pii/S1389945718303915?via%3Dihub
MMA, 518 patients - 38.5% "clinical cure" rate: https://pubmed.ncbi.nlm.nih.gov/26606321/
MMA, 627 patients - 43.2% "clinical cure" rate: https://pubmed.ncbi.nlm.nih.gov/20189852/
Wisconsin Study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2542952/
Vivos Therapeutics Support Group (DNA/mRNA) on Facebook can be found here: https://www.facebook.com/groups/276071844224
Dr. Vik Veer's video on surgical success: https://youtu.be/aJ_SelpUu6Q
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Sponsors:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Monique May, a doctor and vegan chef.
In this episode:
-
Dr. May describes her background in medicine and her lack of training in nutrition.
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The personal reasons Dr. May changed her own eating habits and decided to train as a vegan chef.
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The importance of sleep when it comes to metabolic health.
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Grehlin and Leptin and how fragmented sleep disrupts these important hormones.
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First steps Dr. May recommends for anyone listening who wants to improve their nutrition and health.
Connect with Dr. May:
https://www.physicianinthekitchen.net/
https://drmoniquemay.com/
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Emma's article for aeroflow sleep: https://shop.aeroflowsleep.com/blog/4-ways-to-become-your-own-sleep-apnea-advocate-by-a-patient-like-you
German listeners, go follow www.instagram.com/schlafapnoe_kaempfer and visit https://ich-schnarche.de/
Sponsors:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Anders Olmanson to talk about the REMplenish Myo Nozzle.
In this episode:
-
Anders talks about research his team did to understand the problems surrounding sleep apnea diagnosis and treatment.
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Research on myofunctional therapy/oropharyngeal exercises and how they were shown to decrease AHI significantly.
-
Brainstorming ideas around a gadget or device which could encourage people to more easily do myofunctional therapy exercises.
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How the "Myo Nozzle" idea came and the multiple iterations that happened to develop the final product.
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Anders describes receiving an NIH grant to carry out a clinical study to research the Myo Nozzle.
-
Recruiting participants for the study at Mayo Clinic Rochester, Minnesota.
Connect with Anders:
https://www.facebook.com/remasteredsleep
https://www.instagram.com/remasteredsleep
https://remasteredsleep.com/
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Sponsors:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Shereen Lim, author of the book "Breathe, Sleep, Thrive".
In this episode:
-
Dr. Lim explains how to encourage optimum jaw growth in babies and young children.
-
The important role lactation consultants can play in spotting tongue-ties and or breastfeeding issues.
-
Tongue placement and the importance of nasal breathing.
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Sucking habits and how these can often be a compensation for poor tongue function.
-
What to ask a dentist to check they are specifically trained in airway growth and development.
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Teeth grinding as a red flag for how a child is breathing.
-
Early intervention orthodontics.
-
Adult treatments, including the DOME procedure.
Connect with Dr. Lim:
https://linktr.ee/drshereenlim
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Sponsors:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Sharon Forstner, a patient advocate living with multiple sleep disorders who went undiagnosed for far too long.
In this episode:
-
Sharon describes how her symptoms began and how she knew nothing about sleep disorders.
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Working night shifts as a nurse and assuming that sleep problems were explained by that schedule.
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Coping with having 2 kids and a deployed husband and symptoms of multiple undiagnosed sleep disorders.
-
Sharon describes seeing a neurologist and sleep specialist who missed her symptoms and referred her for mental health treatment.
-
Finally getting a diagnosis and the mixture of feelings Sharon felt.
-
The unique issues of CPAP compliance for people with insomnia and narcolepsy with cataplexy.
-
The need to set boundaries with extended family who don't necessarily understand sleep disorders.
Connect with Sharon:
www.instagram.com/sharon_elesia
www.instagram.com/sleephealth_rn
Email: sharonforstner@gmail.com
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Sponsors:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Sarah Silverman Psy.D., a behavioral sleep medicine specialist.
In this episode:
-
Dr. Silverman explains how behavioral sleep medicine can help with insomnia but also other sleep disorders.
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The shortage of behavioral sleep medicine experts and how to find them.
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What CBT-i (Cognitive Behavior Therapy for Insomnia) involves.
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How Dr. Silverman works with CPAP patients to help them adjust to CPAP therapy.
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Dr. Silverman explains how to spot symptoms of chronic insomnia when you already have a diagnosis of OSA.
-
CBTi as the first-line treatment for insomnia vs sleeping pills.
-
Sleep hygiene and how those behaviors are not a treatment for an underlying sleep disorder.
Connect with Dr. Silverman:
https://www.drsarahsleep.com/
Follow Dr. Silverman on Instagram: https://www.instagram.com/drsarahsleep/
Links to resources mentioned by Dr. Sarah in this episode:
1) The Society of Behavioral Sleep Medicine for further behavioral sleep medicine education + resources as well as the directory to search for a behavioral sleep medicine specialist
2) UPenn Provider Directory - another directory to search for a behavioral sleep medicine specialist
3) The American Academy of Sleep Medicine for sleep education as well as the directory to search for an accredited sleep center (for a physical sleep evaluation + sleep study to rule out snoring, sleep apnea, restless legs, etc.)
4) American Sleep Apnea Association
5) MyApnea.Org Resources
6) Project Sleep
7) My free sleep masterclass to learn more + get started inside my new holistic sleep improvement course, The Holistic Sleep Academy™️
8) The waitlist for my new course dedicated to troubleshooting CPAP adjustment difficulty, Make CPAP Sexy™️
Connect with Emma:
Get on the email list here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Sponsors:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Dan Gartenberg, the Founder and CEO of the SleepSpace App.
In this episode:
-
Dr Gartenberg's Ph.D. in applied psychology.
-
The technology behind the Sleepspace app and using sound to improve sleep.
-
Using wearable tech, to collect heart rate data and estimate stages of sleep and the correct sounds.
-
Ideas Dan has for improving treatment for people with sleep apnea and research he hopes to complete.
Connect with Dr. Gartenberg
https://sleepspace.com/union
www.instagram.com/doctor.snooze
Listen to Dr. Gartenberg's Ted Talk here.
Emma referenced this episode with Chris Kelly
Connect with Emma:
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Sponsors:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is sharing the latest in her own journey with obstructive sleep apnea.
First, Emma is joined by her lovely friend, Lauren Freedman, a health coach and the host of the Uninvisible Podcast. If you'd like to connect with Lauren, visit www.uninvisiblecoaching.com and also check out her podcast here: https://uninvisiblepod.com/
In this episode:
-
Emma's update on her own journey with sleep apnea.
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Contracting covid in January and not making a full recovery.
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The frustrating search for a new board-certified sleep specialist.
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Going to a cardiologist and being fitted with a Holter monitor to figure out heart palpitation symptoms.
-
Working with a dentist to get fitted for a custom oral appliance to wear in combination with CPAP.
Emma mentioned these articles:
"Oronasal vs Nasal Masks" read here.
Article on Long Covid with patients reporting heart palpitations as a symptoms: read here.
Connect with Emma:
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Jasmine Elmore, a dentist specializing in healing patients by working on their nervous system using breathwork and the SOMA appliance. Together they discuss:
-
Dr. Elmore describes her own painful injuries and how physical therapy helped her in healing.
-
Jasmine's background in pediatric dentistry and training in breathwork and myofunctional therapy.
-
The role the nervous system plays in a patient's healing and ability to sleep.
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Dr. Elmore's take on the AGGA controversy, the FDA approval process and the need for patients to do their own research.
-
The patients with upper airway resistance syndrome or mild sleep apnea who work with Dr. Elmore and why she doesn't work with severe OSA patients.
-
Why Dr. Elmore decided to bring the SOMA appliance to her patients in the US after learning from the inventor, Dr. Joseph Da Cruz in Australia.
-
Working with physiotherapist and breathwork teacher, Campbell of www.instagram.com/breathbodytherapy
Connect with Dr. Elmore:
Instagram accounts - @rich_sleep and @sleepwithsoma
Connect with Emma:
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Sponsors:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Sleeplay - click here to order CPAPs and CPAP supplies and use code BEDTIME10 for 10% off.
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Whitney Mostafiz-Levinson, a Board-Certified Orthodontist, and together they discuss:
-
The NBC news coverage of the AGGA appliance court case https://www.cbsnews.com/news/agga-dental-device-lawsuits-teeth-damage/
-
Dr. Mostafiz-Levinson explains the group of fixed appliances being discussed including AGGA, Crozat and ALF.
-
FDA approval of dental appliances such as DNA by Vivos and why patients should do their own research on top of checking for FDA approval.
-
Changing attitudes to extractions in orthodontics and the trend toward early interceptive orthodontics.
Connect with Dr. Whitney here:
https://www.instagram.com/drwhitneyortho
https://www.drwhitneyortho.com/
Read her blog post here: https://www.drwhitneyortho.com/post/all-about-the-agga-and-more-adult-orthodontics-considerations-part-one
Connect with Emma:
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Sponsors:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Sleeplay - click here to order CPAPs and CPAP supplies and use code BEDTIME10 for 10% off.
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma was recently interviewed for the ‘Sleep Tech Talk’ podcast.
You can find the video version of this conversation at
https://www.youtube.com/@sleeptechtalk1797
Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Geoff Eade, a Sleep Coach with BetterNight - a company offering home sleep testing and patient support.
Together they discuss:
-
Geoff explains a bit about his background and how he got into sleep working as a sleep tech.
-
BetterNight home testing and how patients can receive support over telehealth without leaving home.
-
How better remote monitoring is improving outcomes for patients ensuring they meet compliance requirements for insurance.
-
Geoff shares about the untimely loss of his father to suspected untreated obstructive sleep apnea and his own journey as an OSA patient.
-
The CCSH qualification allowing sleep techs to move into sleep coaching and working more directly to help patients with their CPAP therapy.
Connect with Geoff:
https://www.betternightsolutions.com/
Connect with Emma:
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Vote for Emma!
*Endorse Emma's nomination for the Social Health Network awards here: https://www.wegohealth.com/Emma34/awards - click "endorse this patient leader".
Sponsors:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Sleeplay - click here to order CPAPs and CPAP supplies and use code BEDTIME10 for 10% off.
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Laing Rikkers, co-founder and Executive Chair at ProSomnus. Together they discuss:
-
Laing shares a bit about her background and experience with ProSomnus, an oral appliance manufacturer.
-
Obstructive Sleep Apnea signs and symptoms and how difficult it can be to persuade a loved one to seek help.
-
Laing talks about losing her sister who was only 46 at the time of her death.
-
Coping with grief during the pandemic and how writing became a helpful practice along with grief counseling.
-
Writing the book "Morning Leaves", a collection of poems written after Laing's sister passed away.
Connect with Laing:
ProSomnus Sleep Technologies - Get Better Sleep
Laing F. Rikkers (laingrikkers.com
Laing Rikkers | LinkedIn
Author Laing Rikkers | Facebook
Laing Rikkers - author of Morning Leaves (@morning_leaves_book)
ProSomnus® Sleep Technologies: Overview | LinkedIn
ProSomnus Marketing - YouTube
ProSomnus Sleep Technologies (@prosomnussleeptechnologies)
ProSomnus Sleep Technologies | Pleasanton CA | Facebook
Connect with Emma:
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Vote for Emma!
*Endorse Emma's nomination for the Social Health Network awards here: https://www.wegohealth.com/Emma34/awards - click "endorse this patient leader".
Sponsors:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Sleeplay - click here to order CPAPs and CPAP supplies and use code BEDTIME10 for 10% off.
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is reunited with her first podcast guest, Karen Wolk. Together they discuss:
-
Karen talks about her journey with her Inspire Implant.
-
She explains how the hypoglossal nerve stimulation therapy works to move her tongue out of her airway and demonstrates the remote control, turning it on and off.
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Karen describes working with Dr. Sarah Silverman on CBT-i techniques to help adjust to CPAP therapy before she found Inspire.
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Working with Pat McBride and the team at Inspire to adjust settings to Karen's changing needs.
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Karen shares a new diagnosis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and how it explains her fatigue symptoms still present after her sleepiness was resolved.
-
Emma encourages Karen to start her own podcast or youtube channel to use her voice to spread awarenesss.
Connect with Karen:linkedin.com/in/karenwolk
https://www.instagram.com/kwolk/
More about Inspire and their hypoglossal nerve stimulation therapy:
https://www.inspiresleep.com/
Listen to the first conversation Emma and Karen had in July 2020 here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
This episode is sponsored by:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Sleeplay - click here to order CPAPs and CPAP supplies and use code BEDTIME10 for 10% off.
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Pat McBride, Executive Director of the Foundation for Airway Health and a Board member at the American Academy of Physiological Medicine and Dentistry (AAPMD). Together they discuss:
-
Dr. McBride's background working with her late husband in his dental sleep medicine practice.
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The founding of the AAPMD and developing a new collaborative approach to the treatment of airway disorders.
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MMA surgery and the importance of choosing the right surgeon and doing preparations with a specialist orthodontist.
-
Working with Inspire patients helping them optimize their treatment outcomes.
The Foundation for Airway Health
https://www.airwayhealth.org/
The American Academy of Physiological Medicine and Dentistry
https://aapmd.org/
Two articles mentioned in this episode:
https://dentalsleeppractice.com/precision-medicine-paradigm-dental-sleep-medicine/
https://dentalsleeppractice.com/they-are-not-their-disease-clinician-and-providers-need-to-feel-that/
This episode is sponsored by:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Sleeplay - click here to order CPAPs and CPAP supplies and use code BEDTIME10 for 10% off.
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Trent and Theresa Tidball to discuss Trent's journey with OSA. Together they discuss:
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Trent's symptoms of daytime sleepiness as a teen and doing a sleep study but not following up.
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Undergoing a UPPP, tonsillectomy, septoplasty, and turbinate reduction at the same time with an ENT without ever having a sleep study.
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Getting a sleep test and diagnosis of obstructive sleep apnea.
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Titrating study showing the need for ASV rather than CPAP or BiPAP.
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MMA surgery to advance jaws hoping to improve Trent's airway.
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Mental health impacts setting in for Trent and Theresa after trying all these treatment options without a positive outcome.
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Theresa starting a blog to help process the emotions around coping with Trent's illness.
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Trent having a DISE procedure showing his tongue was the main reason for his obstructive apneas
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Trent undergoing Hypoglossal Nerve Stimulation surgery and starting to dream again.
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Speculating that UPPP surgery had affected the function of Trent's tongue.
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Deciding to do a revision MMA surgery with a new surgeon.
Connect with Trent and Theresa:
Instagram @sleepily_everafter
sleepilyeverafterblog.com
https://gofund.me/c899511d
This episode is sponsored by:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Sleeplay - click here to order CPAPs and CPAP supplies and use code BEDTIME10 for 10% off.
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Check out Gary Knight's Story Sharing on Project Sleep's Facebook Live, hosted by Emma - click here to watch!
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Dr. Jill Ombrello, a dentist from Dallas, Texas. Together they discuss:
-
Dr. Ombrello working with families to get to the root airway causes of problems she sees in many of the kids in her practice.
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Moms dealing with poor quality sleep and being told they are fine because their AHI is too low for a sleep apnea diagnosis.
-
Dr. Ombrello stepping in as "Quarterback of Care" where patients have been left to navigate their treatment options without any help.
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The need for healthcare professionals, including doctors and dentists, to work together and send referrals for the best sleep apnea solutions.
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Working with an elite athlete to improve her sleep with oral appliance therapy.
Follow Jill on Instagram at: www.instagram.com/jombrello and www.instagram.com/centraldentist
This episode is sponsored by:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Sleeplay - click here to order CPAPs and CPAP supplies and use code BEDTIME10 for 10% off.
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Maggie Carr, a small business owner from Vermont. Together they discuss:
-
Maggie describes having a tonsillectomy as a child to improve her airway.
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Having 8 teeth extracted for braces and Dr. Bill Hang's concept of "Extraction, Retraction, Regret Syndrome".
-
Getting a diagnosis of Sleep Apnea and finding a CPAP during a recall and shortage.
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Maggie's decision to start palate expansion using an MSE appliance and what is involved.
-
Maggie working with an executive functioning coach to help her manage daily tasks with significant brain fog.
Connect with Maggie on Instagram: https://www.instagram.com/diaryofawimpyairway/
This episode is sponsored by:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
NEW! Support the Podcast!
If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.
https://podcasters.spotify.com/pod/show/emma-cooksey Click "Support this Podcast".
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
--- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support
Emma is joined by Ken Hooks, a Sleep Tech and owner of True Sleep Diagnostics. Together they discuss:
-
Difficulties trying to integrate oral appliance therapy into the current medical system.
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Women with an AHI under 5 testing negative for Sleep Apnea but still trying to find answers and treatment options for their symptoms.
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RERAs - Respiratory effort-related sleep arousals and the diagnosis of Upper Airway Resistance Syndrome.
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Ken explains why nasal masks are far preferable to a full face mask.
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Airflow limitations and how these can disrupt sleep but go ignored during traditional sleep apnea testing.
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Ken describes how he offers at-home testing. He also explains that he offers second opinions on sleep studies already performed where no treatment options were given because the AHI was too low for a sleep apnea diagnosis.
Contact Ken via his website: www.truesleepdiagnostics.com
This episode is sponsored by:
BetterHelp https://www.betterhelp.com/emmafor 10% off your first month of online therapy
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
trigger warning - discussion of suicidal thoughts
Emma is joined by Jason Webb who comes from a small town in Queensland, Australia. Together they discuss:
-
Jason's debilitating sleep apnea symptoms and his difficulties in getting a diagnosis.
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Doctors' attitudes that sleep apnea is only for "older, overweight men".
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Jason's mental health deteriorating to the point of feeling suicidal.
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Finding a doctor who listened and ordered a sleep study and made a referral to an ENT surgeon.
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Diagnosis with obstructive sleep apnea and beginning CPAP therapy.
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Jason's experience with septoplasty and turbinate reduction.
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Access to sleep apnea treatment in small-town settings where there are no sleep specialists.
Follow Jason on Instagram: @thefaceofjase
This episode is sponsored by:
BetterHelp https://www.betterhelp.com/emmafor 10% off your first month of online therapy
For more info on the "NasoClenz" clinical trial, Emma spoke about in the intro, email tiffany@svi-inc.com and joy@svi-inc.com.
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Emma is joined by Dr. Keith Matheny M.D., an ENT surgeon specializing in Rhinology and Sleep. Together they discuss:
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How the current healthcare system is failing so many patients with obstructive sleep apnea.
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The importance of looking at the nose when treating sleep apnea.
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Insurance issues patients come across when trying to get nasal surgeries covered when they have OSA.
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How Dr. Matheny has partnered with a dentist within his practice to offer oral appliance therapy to his patients.
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The need for more collaboration among providers of different specialties when treating OSA.
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The NasoClenz study Dr. Matheny is conducting which so far has shown an improvement in comfort for his CPAP patients.
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Implementing Remote Patient Monitoring to track the progress of OSA patients.
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Surgeries available to OSA patients, including the Inspire implant, tonsilectomy, soft palate stiffening, turbinate reduction, septoplasty and nasal valve surgery.
For more on Dr. Matheny's work, follow these links:
www.usent.com
www.septumsolutions.com
www.sleepvigil.com
www.tufflinks.com
www.collincountyent.com
This episode is sponsored by:
BetterHelp https://www.betterhelp.com/emmafor 10% off your first month of online therapy
Discount codes for listeners:
Save 20% on the Kewaba "Cloud" pillow here: https://www.kewaba.com/sleepapneastories and use code "20SLEEPAPNEA" at checkout.
To try the "NasoClenz product discussed in the episode, click here: www.nasoclenz.com
Receive 10% off the Home and Travel Collection - Use Code: Naso4sleepapnea
PLUS Free Shipping off All Orders, Use Code: FREESHIPPING
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
If you are living with a diagnosed sleep disorder, please consider completing Project Sleep's "Rising Voices" patient advocate speaker training program. You can use your own story to raise much-needed awareness in your community. Apply here:
https://project-sleep.com/2023-rising-voices-applications/
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Emma is joined by Dr. Nora Ghodousi-Zaghi from "Breathe Kids Dental" at the Breathe Institute in Los Angeles, California. Together they discuss:
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The signs Dr. Nora looks for in children to spot pediatric sleep-disordered breathing, including mouth breathing, mentalis strain, tonsil hypertrophy, ankyloglossia, dental wear and a narrow high arched palate.
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Fairest.org - Functional Airway Evaluation Screening Tool - developed to enable clinicians to spot signs of sleep-disordered breathing but available to anyone at www.fairest.org
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How to find a specially trained airway-focused pediatric dentist.
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What to watch for in your sleeping child - sleeping position, noisy breathing or snoring, open or closed mouth.
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How to address nasal hygiene with a neti pot or Xlear spray and look at air quality in your home.
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Poor sleep in kids resulting in poor concentration and ADHD-like symptoms.
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Collaboration between different specialists at the Breathe Institute.
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Tongue-ties in kids and the impact on their sleep.
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Kids grinding their teeth and why that can sometimes be due to sleep-disordered breathing.
-
Palate expansion in kids and how early treatment can help jaws develop properly.
Connect with Dr. Nora:
www.instagram.com/dr.norazaghi
https://www.breathekidsdental.com
https://www.thebreatheinstitute.com/
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Emma is joined by Heather McAdoo who has found an excellent treatment plan for her sleep apnea using Empower Sleep and combining therapies.
Together they discuss:
-
Heather's experience of trying Vivos DNA appliances to help her sleep apnea and being disappointed with the results.
-
Her referral to Dr. Chopra at Empower Sleep by her dentist.
-
Heather describes having a one-hour one-on-one intake with her doctor over zoom and how different that was from the usual experience of traditional medicine.
-
Using a Sleep Image ring to track her sleep for 3 nights.
-
Starting CPAP therapy with continued tracking from Dr. Chopra and his team.
-
Adding an oral appliance, myofunctional therapy and craniosacral therapy for the best result.
This episode is sponsored by:
BetterHelp https://www.betterhelp.com/emmafor 10% off your first month of online therapy
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.
Emma is joined by Jody Martin, a marine corps veteran and business owner who shares his personal experience of using Lofta home sleep apnea testing. Together they discuss: The symptoms Jody was experiencing from undiagnosed sleep apnea such as loud snoring and daytime sleepiness. Jody explains the process he went through to get his BiPAP - from his GP to a respiratory therapist to a sleep study to a DME company. The problems Jody experienced with his BiPAP machine, including aerophagia filling his stomach with air and developing sores on his nose caused by an ill-fitting mask. Jody describes abandoning BiPAP therapy with no support to overcome challenges. Jody explains how his wife discovered Lofta through a facebook ad and considered it "too good to be true" but agreed to try it. Jody explains how easy the process was from start to finish. In particular, he shares how quick the turnaround time was and how much better his results were when he had the proper support from someone who really cared.This episode is sponsored by:BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapyFollow the podcast on Instagram: @sleepapneastoriesEmail Emma at sleepapneastories@gmail.comwww.sleepapneastories.comDisclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Drew Copeland, a Sleep Tech and Sleep Coach with Sleep Better NYC. Together they discuss:
-
Drew talks about his background in sleep medicine working as a sleep tech and running a sleep program.
-
Working with Sleep Better NYC as a sleep coach to help people navigate sleep testing, sleep apnea diagnosis and treatment.
-
Some of the problems patients come across when trying to navigate the system from PCP to Sleep Specialist to Sleep Testing to DME company.
-
Drew explains in detail the different levels of sleep test, 1-4.
-
Why home tests can rule sleep apnea in but cannot rule sleep apnea out.
Connect with Drew:
LinkedIn: https://www.linkedin.com/in/drewmcopeland/
Instagram: https://www.instagram.com/drewcopeland/
https://sleepbetter.nyc/about-us
Project Sleep's Rising Voices Speaker Series Facebook Live (hosted by Emma!): https://project-sleep.com/sleep-apnea-story-sharing-meet-kristen/
This episode is sponsored by:
BetterHelp https://www.betterhelp.com/emmafor 10% off your first month of online therapy
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma shares all about her recent failed palate expansion using "The Vivos Method".
In this episode, Emma discusses:
-
the timeline of her palate expansion and descriptions of the DNA and mmRNA appliances she used.
-
experiencing improvements in nasal breathing and facial pain and tension soon after beginning palate expansion.
-
switching from a DNA appliance to an mmRNA appliance part-way through treatment.
-
seeing airway expansion and seeing some positive sleep changes like getting some more deep sleep and dreaming more.
-
Graham Stoney's experience of 20 months of palate expansion using Vivos appliance resulting in no change to his sleep apnea or AHI.
-
the sleep tests showing Emma's sleep apnea not only hadn't been improved by the palate expansion but also that it was significantly worse.
-
her decision to abandon treatment in September 2022.
-
lessons learned through this process and tips Emma recommends to other people embarking upon palate expansion.
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Details of this Sunday's Facebook LIVE https://project-sleep.com/sleep-apnea-story-sharing-meet-kristen/
Graham Stoney's blog post about his Vivos palate expansion failing to improve his sleep apnea here. Also an interview with Graham at the beginning of his Vivos treatment here.
Facebook group Emma has found helpful: Vivos Therapeutics Support Group, particular thanks to Doug Toombs!
'Sleep Apnea Stories' podcast episode with successful Vivos patient, Chandra Hartman is here.
This episode is sponsored by:
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Dr. William Noah, a sleep specialist, and inventor of the V-Com. Together they discuss:
-
Dr. Noah shares about his background in sleep medicine and running a large sleep center.
-
Encouraging PAP adherence among patients and how introducing remote monitoring helped to identify patients struggling with their PAP therapy.
-
Dr. Noah explains IPAP (inspiratory positive airway pressure) and EPAP (expiratory positive airway pressure) and why they matter to the PAP patient experience.
-
Dr. Noah explains the differences between Ventilators, BiPAP, CPAP and APAP and the financial incentives for DME companies to put patients on BiPAP.
-
C-Flex and EPR settings and what happens to therapeutic pressure when these are adjusted.
-
DME switching people to full face masks as a "catch-all" and why that isn't ideal.
-
How different masks can affect the pressure a patient experiences.
-
Dr. Noah on inventing the V-Com to reduce IPAP and keep EPAP the same.
-
Treatment Emergent Central Sleep Apneas and how V-Com can help with that problem.
Learn more about the V-Com: https://sleepres.com/
This episode is sponsored by:
Airway Management https://tapintosleep.com/
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Vivos Therapeutics https://vivos.com/patients/
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Dr. Steve Lamberg, a dentist and author of the book "Treat the Cause...Treat the Airway". Together they discuss:
-
Dr. Lamberg's background as a general dentist and how he got into dental sleep medicine.
-
His interest in obstructive sleep apnea in pregnant patients and how dentists can help screen for it.
-
Developing the "Lamberg Questionnaire" to help dentists join the dots between snoring/sleep apnea and overall health and wellness.
-
Writing "Treat the Cause...Treat the Airway: The Role of Snoring & Sleep Apnea in Contemporary Preventative Medicine".
-
Starting the PAANNY group (Pediatric and Adult Airway Network of New York) to bring together specialists from all different fields to focus on treating airway disorders.
For more information about Dr. Lamberg's work, visit his website: www.drlamberg.com
Buy Dr. Lamberg's book "Treat the Cause...Treat the Airway": https://drlamberg.com/treat-the-cause-book-treat-the-airway-book
For more on the PAANNY group: https://www.paanny.org/about
"Sleep Related Breathing Disorders During Pregnancy: The Impact of Intervention on Maternal and Fetal Health Outcomes", article in Dental Sleep Practice magazine here.
This episode is sponsored by:
Airway Management https://tapintosleep.com/
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Vivos Therapeutics https://vivos.com/patients/
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Jeff and Kattia Krouse, parents to Nathan, a child with Down Syndrome and Sleep Apnea. Together they discuss:
-
Nathan's Down Syndrome coming as a surprise to Jeff and Kattia.
-
Going for a sleep study and receiving a diagnosis of obstructive sleep apnea and beginning CPAP therapy.
-
Difficulties finding a well-fitting CPAP mask for a non-verbal child.
-
A tonsillectomy that didn't resolve Nathan's sleep apnea.
-
Advice for other families with kids navigating sleep apnea diagnosis and treatment with Down Syndrome.
This episode is sponsored by:
Airway Management https://tapintosleep.com/
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Vivos Therapeutics https://vivos.com/patients/
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Thomas Hinton from Circadian Health Systems, together they discuss:
-
Thomas losing his father tragically young to a heart attack, the family now suspects came from undiagnosed sleep apnea.
-
His training as a Sleep Tech and working shifts supervising sleep studies.
-
Being in denial about his own sleep apnea symptoms.
-
Thomas going for a sleep study where he worked to get a diagnosis and take control of his health by treating his sleep apnea.
-
Transitioning into working as a Sleep Performance Coach and raising awareness about sleep apnea.
You can connect with Thomas on Instagram: @thsleepcoach
https://www.circadianhealth.org/
This episode is sponsored by:
Airway Management https://tapintosleep.com/
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Vivos Therapeutics https://vivos.com/patients/
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Craig Baker for a follow up interview.
Together they discuss:
-
Craig briefly recaps his long journey to diagnosis with sleep apnea.
-
The surgeries recommended for him by an ENT/Otolaryngology Surgeon - tonsillectomy and septoplasty.
-
Paying to have the procedures privately to avoid a long wait time.
-
Emma and Craig discuss their experiences of tonsillectomy as adults versus the experience of children with the same procedure.
-
Craig's follow up sleep study showing his AHI had dropped and he no longer needed to use a CPAP.
Follow Craig on Instagram: www.instagram.com/craigbakerpt
Listen to my first podcast interview with Craig here
The youtube video Emma discusses in the intro by Dr. Vik Veer about "surgical success": https://youtu.be/aJ_SelpUu6Q
This episode is sponsored by: Airway Management https://tapintosleep.com/
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Vivos Therapeutics https://vivos.com/patients/
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Olivia Arezzolo, an Australian Sleep Coach and author of the book "Bear, Lion or Wolf".
Together they discuss:
-
Olivia's experience with sleep coaching clients who have sleep apnea.
-
Her decision to move to Italy (not entirely sleep-related but so exciting!).
-
Olivia's struggles with depression, anxiety and anorexia during her teenage years.
-
How she got interested in sleep and trained to help people resolve their sleep issues.
-
"Bear, Lion, Wolf" - Olivia describes her book and how her advice differs depending upon a person's sleep chronotype.
Follow Olivia on Instagram: @oliviaarezzolo
Take her chronotype quiz here: https://oliviaarezzolo.com.au/
Get the book here: https://oliviaarezzolo.com.au/book
This episode is sponsored by:
Airway Management https://tapintosleep.com/
Bleep Sleep https://bleepsleep.com/ to try Bleep Sleep with 20% off, visit https://www.sleepapneastories.com/services
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Vivos Therapeutics https://vivos.com/patients/
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Sandy Smith, EnsoData's Director of National Accounts. Together they discuss:
-
The very personal and tragic loss Sandy experienced because of lack of awareness about sleep apnea and its symptoms.
-
Sandy explains how EnsoData are improving sleep testing by applying new artificial intelligence technology.
-
The huge number of people still going undiagnosed with obstructive sleep apnea.
-
Sandy and Emma both discuss spotting signs of sleep issues with their children and getting help.
Connect with Sandy on LinkedIn: https://www.linkedin.com/in/sandy-smith-85563728/
Learn more about EnsoData here: https://www.ensodata.com/
Read the article EnsoData shared on their blog about Emma and the podcast here: https://www.ensodata.com/blog/sleep-story/the-sleep-apnea-silver-lining/
This episode is sponsored by:
Airway Management https://tapintosleep.com/
Bleep Sleep https://bleepsleep.com/ to try Bleep Sleep with 20% off, visit https://www.sleepapneastories.com/services
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Dr. Madiha Ellaffi, a French Pulmonologist, Allergist and Pediatric, and Adult Sleep Specialist. Together they discuss:
-
Dr. Ellaffi's experiences as the mother of 4 children who developed sleep problems.
-
The book and app she developed, along with a dedicated team, about pediatric sleep apnea, to help children and parents that struggle with sleep issues to understand and get better answers and treatment.
-
Emma describes the wonderful app called "Woodchuck's Sleep" (you can find it free wherever you get apps). It brings together all the specialists involved in treating pediatric sleep apnea and introduces them to kids in a fun and engaging way.
-
In this app you can introduce your kids to the idea of seeing a sleep specialist, a dentist specializing in palate expansion, a pediatric ENT, a myofunctional therapist. There are even exercises and games your child can complete.
-
Dr. Ellaffi explained that the app is free to use and there is a special crowd-funding link (below) to enable people to support their work and make it available to families dealing with childhood sleep apnea across different languages and different countries.
Crowd-funding link to support the app being developed in different languages to reach more kids:
https://www.helloasso.com/associations/4a/collectes/un-sommeil-de-marmotte-1
Links to download the app: https://sommeildemarmotte.com/
Link to French Amazon to buy the book in French: click here
This episode is sponsored by:
Airway Management https://tapintosleep.com/
Bleep Sleep https://bleepsleep.com/ to try Bleep Sleep with 20% off, visit https://www.sleepapneastories.com/services
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Stacy Erickson Edwards joins Emma for an update. Stacy was last interviewed on the podcast in March 2021. Listen to her first interview here. Together they discuss:
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Stacy's continued daytime sleepiness and taking a medication at night to improve her wakefulness during the day.
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The search for answers about new symptoms which seemed hormonal.
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Gaining weight and developing other symptoms consistent with Cushing Syndrome (also called hypercortisolism).
-
The fight for answers with a string of doctors.
-
The MRI scan that gave Stacy some answers.
Connect with Stacy: http://www.cpapbabes.com/ Instagram: @cpapbabes
This episode is sponsored by:
Airway Management https://tapintosleep.com/
Bleep Sleep https://bleepsleep.com/ to try Bleep Sleep with 20% off, visit https://www.sleepapneastories.com/services
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Karen Moore, a woman living with sleep apnea and the founder of CPAP accessories company "Pad A Cheek". Together they discuss:
-
The brain fog and cognitive impairment Karen experienced and how it is often mistaken for menopause symptoms.
-
Karen shares about her diagnostic sleep study and titrating study and how they differed.
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Learning about CPAP through forums and reading CPAP data using a card reader and software.
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Working with her doctor's blessing to find the right pressure.
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Starting "Pad A Cheek" to share products to make CPAP more comfortable.
Karen's website www.padacheek.com
This episode is sponsored by:
Airway Management https://tapintosleep.com/
Bleep Sleep https://bleepsleep.com/ to try Bleep Sleep with 20% off, visit https://www.sleepapneastories.com/services
BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy
Check out Emma on these podcasts about menopause and sleep apnea:
Emma on "Perimenopause WTF?" podcast - listen here
Emma on "The Menopause Mindset podcast with Sally Garozzo" - listen here
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
In this shortie episode, Emma reminds listeners that they are not alone. She talks about some past interviews where guests discussed the mental health challenges they were dealing with along with sleep apnea. The episodes mentioned were:
Karen Wolk - cognitive impairment and depression listen here
David Madow - anxiety listen here
Kajsa Bradley - depression listen here
This episode is sponsored by:
BetterHelp https://www.betterhelp.com/emma
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma shares some lifestyle tips for living with sleep apnea.
Episodes Emma mentioned:
Episode 4 on weight loss: https://spotifyanchor-web.app.link/e/lPHwSFdVJsb
Episode 69 on bariatric surgery: https://spotifyanchor-web.app.link/e/ux1E4hbVJsb
Episode 36 on "health at every size": https://spotifyanchor-web.app.link/e/E2nP7ymVJsb
Vik Veer's throat exercises https://youtu.be/2nq8YjWIIUI
This episode is sponsored by: BetterHelp https://www.betterhelp.com/emma
Visit Emma's Amazon Idea List here: https://www.amazon.com/shop/sleepapneastories for affiliate links to products Emma recommends. Including CPAP accessories, CPAP cleaning products, and recommended books, including Patrick McKeown's book.
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma gives listeners advice on:
-
how to find the right CPAP mask.
-
resolving problems with leaks and face marks.
-
2016 study showing nasal pillows masks improve compliance: https://pubmed.ncbi.nlm.nih.gov/27648308/
-
two mask options you might not have heard about.
For the Amazon affiliate links mentioned on the podcast go here: https://www.sleepapneastories.com/services
Pad-a-cheek: https://www.padacheek.com/
Hypnosis download: https://www.hypnosisdownloads.com/sleep-problems/cpap-mask
Bleep Sleep link for 20% off https://www.sleepapneastories.com/services
Learn more about the 'myTAP PAP' mask: https://tapintosleep.com/products/mytap-pap/
BetterHelp https://www.betterhelp.com/emma
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
In this "shortie" episode, Emma answers listeners' questions about their CPAP problems. Listen for advice and help on what to do if:
-
you can't access CPAP data beyond what the myAir app provides.
-
your hose is causing problems and tugging on your mask.
-
you are looking for a backup battery supply recommendation.
Emma's Amazon Suggestions here: https://www.amazon.com/shop/sleepapneastories - please note these are affiliate links and the show will earn a small commission for purchases at no cost to you.
Sign up for email and get your FREE video download here: https://www.sleepapneastories.com/
Sign up for Emma's "Mastering Your CPAP" course here: https://sleepapneastoriesacademy.thinkific.com/courses/mastering-your-cpap
To download the OSCAR software discussed in this episode, go here: https://www.sleepfiles.com/OSCAR/
For guidance on how to use OSCAR: https://www.youtube.com/watch?v=5jCNeivvrjU
This episode is sponsored by Betterhelp: www.betterhelp.com/emma
Emma is joined by Dr. Louise O'Brien from the University of Michigan. Together they discuss:
-
How Dr. O'Brien got interested in researching sleep in pregnancy and how it brought her to the United States from the UK.
-
Pregnancy and obstructive sleep apnea, common signs and symptoms.
-
Various research projects showing the rates of OSA in pregnant women from specific groups e.g. high blood pressure.
-
The prevalence of habitual snoring among pregnant women and the current state of screening.
-
Ongoing research about babies born to women with obstructive sleep apnea.
Find out more about Dr. O'Brien and her research here: https://medicine.umich.edu/dept/neurology/louise-m-obrien-phd-ms
This episode is sponsored by
Inspire https://www.inspiresleep.com/
Airway Management https://tapintosleep.com/
BetterHelp https://www.betterhelp.com/emma
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Tairis Morales Medina who shares about a successful bariatric surgery that resolved her sleep apnea along with other health problems. Together they discuss:
-
The mini-stroke that alerted Tairis to her high blood pressure.
-
Considering bariatric surgery to resolve obesity and other health problems.
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Doing a sleep study as part of qualifying for bariatric surgery and getting a diagnosis of sleep apnea.
-
Adjusting to CPAP and how quickly Tairis found she did not need it after successful bariatric surgery.
-
The nuances of discussing weight and obstructive sleep apnea: not everyone with obesity has sleep apnea and plenty of thin people have sleep apnea. Discussing the attitudes of health professionals when dealing with patients with obesity and how it needs to change.
-
How Tairis feels now, 2 1/2 years from surgery and 126 lbs down.
Follow Tairis on her Instagram: @mommy_sleeve_journey
This episode is sponsored by
Inspire https://www.inspiresleep.com/
Airway Management https://tapintosleep.com/
BetterHelp https://www.betterhelp.com/emma
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Dr. Funke Afolabi-Brown, a board-certified pediatric pulmonologist and sleep medicine physician. Together they discuss:
-
Signs to watch for in kids that could indicate a sleep problem.
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Tonsillectomy and adenoidectomy in kids with obstructed airways.
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Dr. Afolabi-Brown's participation in an American Academy of Sleep Medicine task force to explore the safe use of CPAP and BiPAP in kids with Obstructive Sleep Apnea.
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Testing kids with suspected obstructive sleep apnea and the importance of selecting an accredited sleep clinic.
-
Differences between testing adults and children.
Find out more about Dr. Afolabi-Brown here: https://www.restfulsleepmd.com/
Instagram: https://www.instagram.com/restfulsleepmd/
This episode is sponsored by
Inspire https://www.inspiresleep.com/
Airway Management https://tapintosleep.com/
BetterHelp https://www.betterhelp.com/emma
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Dr. Sam Kashani M.D., a board-certified Sleep Medicine Specialist. Together they discuss:
-
residual daytime sleepiness in people with obstructive sleep apnea.
-
language used to describe symptoms to primary care physicians.
-
the STOPBANG questionnaire used to screen for sleep apnea.
-
how important CPAP education and support is for newly diagnosed patients.
-
AHI and symptom severity, uses for melatonin and CBTi for insomnia.
The 'STOPBANG' questionnaire a lot of doctors use to screen for obstructive sleep apnea we mentioned in the episode.
http://www.stopbang.ca/osa/screening.php
Follow Dr. Kashani on Instagram at www.instagram.com/samkashanimd
This episode is sponsored by
Inspire https://www.inspiresleep.com/
Airway Management https://tapintosleep.com/
BetterHelp https://www.betterhelp.com/emma
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Matt Horsnell and together they discuss:
-
Matt's journey to a diagnosis of narcolepsy with cataplexy and how obstructive sleep apnea did show up on his original sleep test but wasn't deemed severe enough to treat.
-
Coping with depression and anxiety along with sleep disorders.
-
Getting a diagnosis with severe obstructive sleep apnea and beginning treatment with CPAP.
-
Matt finding ways for his sleep disorders to work for him and engaging with social support in the sleep disorders community.
-
Becoming involved with sleep patient awareness and advocacy and coming up with the title "the World's Strongest Man with Narcolepsy and Cataplexy".
-
Matt shares about the Project Sleep event he will take part in next month in Nashville. Find details here: https://project-sleep.com/events/nashville-innovations-in-narcolepsy-awareness-advocacy/
Follow Matt on Instagram: www.instagram.com/mhorsnell
This episode is sponsored by
Inspire https://www.inspiresleep.com/
Airway Management https://tapintosleep.com/
BetterHelp https://www.betterhelp.com/emma
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Mayka Goodstone who just underwent Orthognathic Surgery to move her jaws forward resolving her obstructive sleep apnea. Together they discuss:
-
Mayka shares about her childhood growing up in Spain with asthma, allergies and mouth breathing.
-
Developing snoring during her 20s.
-
"Long Face Syndrome" and how Mayka and Emma both developed long faces as a result of mouth breathing as children causing their faces to develop long and narrow with compromised airways.
-
Mayka getting a diagnosis with obstructive sleep apnea and taking time during the pandemic to really research why she developed OSA and the orthognathic surgery that could resolve it.
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Meeting with a number of orthodontists and surgeons who specialized in Orthognathic Surgery.
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Mayka explains that the process of Invisalign braces followed by SARPE (surgically assisted rapid palate expansion) and finally Orthognathic Surgery (also called double jaw surgery and MMA surgery).
-
How much Mayka feels her nasal breathing, OSA and snoring improved after surgery.
See Mayka's remarkable transformation before and after pictures here and follow her on Instagram @maykagoodstone_jawsurgery
This episode is sponsored by
Inspire https://www.inspiresleep.com/
Airway Management https://tapintosleep.com/
BetterHelp https://www.betterhelp.com/emma
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
If you are confused and haven't heard of the link between mouth breathing and developing a long face and compromised airway in adulthood, start by listening to my podcast episodes with:
James Nestor, Patrick McKeown, Brittny Sciarra & Karese Laguerre.
Then if you're interested to hear more about double jaw surgery, there are three other episodes on it:
Patrick Zwally, Sydney Avis & Dr. Victor Avis and Candy Sparks.
This link allows you to scroll the episodes easily https://anchor.fm/emma-cooksey, or just find them however you found this one!
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Dr. Robert W Turner II, an Assistant Professor in the Department of Clinical Research and Leadership at The George Washington University School of Medicine & Health Science. He earned his Ph.D. in sociology at the Graduate Center, City University of New York. He also holds a position as a Research Scientist in the Center for Biobehavioral Health Disparities Research at Duke University. Together they discuss:
-
Dr. Turner discusses his research identifying the most effective ways to spread the word among black men about the serious health consequences of untreated sleep apnea.
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The shocking death of Reggie White from untreated sleep apnea and how that raised awareness in the black community.
-
Emma praises the excellent documentary Dr. Turner took part in called "Student Athlete" view the trailer here.
-
The future of football and the need for more awareness of sleep apnea among players and ex-players.
-
Dr. Turner discussed the Black Men's Brain Health Conference held this year and the plans for next year's event. More details here: https://www.mensbrainhealth.org/conference
Find out more about Dr. Turner and his work here: https://www.robertturnerphd.com/
Watch PSA video produced as part of Dr. Turner's research here.
Reggie White article here.
This episode is sponsored by
Inspire https://www.inspiresleep.com/
Airway Management https://tapintosleep.com/
BetterHelp https://www.betterhelp.com/emma
Get your free video download "Emma's 3 Tips for Better Sleep with Obstructive Sleep Apnea" here.
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Recently Emma attended the SLEEP 2022 Conference run by the Association of Professional Sleep Societies (APSS) which is a joint venture of the American Academy of Sleep Medicine (AASM) and the Sleep Research Society (SRS). Emma used the opportunity to interview as many people as she could. Interviews featured include:
-
Julie Flygare, Founder, and CEO of Project Sleep, talks about the inclusion of patient voices in conferences like SLEEP 2022.
-
Dr. Joshua Roland M.D., a board-certified sleep specialist, answers your questions about sleep apnea.
-
Dr. Chelsie Rohrscheib from Wesper discusses how monitoring your sleep with their patches can help improve your sleep quality.
-
Olivier Lauzeral at Somnics Health, talks about the iNAP device for treating obstructive sleep apnea.
-
Dr. Shelby Harris, sharing helpful sleep tips for travel.
-
David Baxter from SleepGlad explains his app to improve mask fit by scanning patient faces.
-
Nick Glattard, Co-founder and CTO at Ensodata speaks about how technology improvements in scoring sleep tests can ultimately help patients get more accurate test results.
-
Dr. Sam Kashani M.D., a board-certified sleep specialist, answers your questions.
-
Dr. Keith Thornton D.D.S., of Airway Management describes the TAP appliances he has developed to help people with snoring through to severe sleep apnea.
-
Mollie McGlocklin, fellow podcast host and founder of "Sleep Is A Skill", shares info on how she gets great sleep.
-
Drew Copeland and Teresa DeNike of Sleep Better NYC on their favorite highlights from the sleep conference.
-
Emma Cooksey - Drew turns the microphone on Emma to ask her a few questions!
This episode is sponsored by
Inspire https://www.inspiresleep.com/
Airway Management https://tapintosleep.com/
BetterHelp https://www.betterhelp.com/emma
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences with medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Kristen Cascio, together they discuss:
-
Kristen going undiagnosed with obstructive sleep apnea for years.
-
Thyroid issues and how those were a convenient excuse for fatigue and daytime sleepiness.
-
Getting diagnosed with obstructive sleep apnea using an at-home sleep study.
-
Feeling relief to have answers to sleep problems.
-
Adjusting to CPAP therapy with the help of her supportive husband.
-
Starting @meandmycpap on Instagram and sharing tips on traveling with CPAP.
Follow Kristen on Instagram @meandmycpap
This episode is sponsored by Inspire https://www.inspiresleep.com/
Airway Management https://tapintosleep.com/
BetterHelp https://www.betterhelp.com/emma
Get your FREE Video Download '3 Tips to Better Sleep with Obstructive Sleep Apnea' by following the link here: https://www.sleepapneastories.com/
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Dr. Allan Pack, a researcher at the University of Pennsylvania. Together they discuss:
-
How obstructive sleep apnea patients don't fall neatly into one category.
-
Use of the Epworth Sleepiness Scale and other questions to group participants based on their sleepiness and how likely they were to doze.
-
Looking at participants in different sleepiness groups and what happened to their sleepiness after 2 years of CPAP.
-
Some theories on why people might remain sleepy despite CPAP adherence.
-
Dr. Pack talks about the future of diagnostics in sleep using wearables and telehealth.
-
Developing biomarkers for obstructive sleep apnea.
Find out more about Dr. Pack and his research here
This episode is sponsored by
Inspire https://www.inspiresleep.com/
Airway Management https://tapintosleep.com/
BetterHelp https://www.betterhelp.com/emma
Follow the podcast on Instagram: @sleepapneastories
Email Emma at sleepapneastories@gmail.com
www.sleepapneastories.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma finishes up season 6 with an update on her own journey to improve her sleep apnea. She covers:
-
Her progress with using removable palate expansion appliances and switching from DNA appliances to an mmRNA appliance - seeing airway expansion on a CBCT scan.
-
Consulting with an ENT on nasal inflammation solutions.
-
Emma explains working with a sleep tech to improve her CPAP settings.
-
Simple things that can help some people with sleep apnea - sleep position, inspiratory muscle trainers, myofunctional therapy exercises and buteyko breathwork.
Throat Exercises - https://youtu.be/2nq8YjWIIUI - Dr Vik Veer on his great youtube channel explaining the exercises he has his patients do to strengthen their oropharyngeal muscles.
Buteyko Breathwork - https://buteykoclinic.com/ - they have a lot of free resources including youtube videos with breathwork exercises.
Emma's Article with pics of palate expansion - https://rtsleepworld.com/2022/04/29/seeing-red-my-palate-expansion-journey/
Graham Stoney's blog article on palate expansion techniques from a patient perspective - https://cfs-survivors.org/blog/2020/10/27/why-i-chose-dna-over-homeoblock-mse-dome-mma-and-agga/
Follow the podcast on Instagram @sleepapneastories
This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Bleep Sleep
Special offer for Sleep Apnea Stories podcast listeners:
Sleep Apnea Stories podcast listeners get 20% off Bleep Sleep DreamPorts when shopping with the unique links and codes here:
https://www.sleepapneastories.com/services
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Dr. Mike Pagano, a dentist specializing in oral appliance therapy and Mike Durkee, Executive Director of the Wounded Veterans' Relief Fund. Together they discuss:
-
Dr. Pagano and Mike Durkee both share details of their active duty military service.
-
Some of the systemic problems preventing oral appliance therapy from being used more widely in the military.
-
Dr. Pagano explains a dental sleep medicine program he started at Fort Riley, KS to treat soldiers with obstructive sleep apnea using oral appliances.
-
Mike describes his personal journey to diagnosis with sleep apnea and how he went straight to treatment with a CPAP. He is disappointed he didn't hear about oral appliance therapy at the time of diagnosis.
-
Coverage of oral appliance therapy by medical insurance in the United States.
-
The need for much more education among dentists, sleep specialists and the general public about the availability and accessibility of oral appliance therapy.
-
Future developments in oral appliance therapy tracking chips making it possible to track objective data on a patient's compliance and their treatment efficacy.
-
Mike explains the common life circumstances faced by veterans, including homelessness and unemployment, and how the WVRF helps with these.
Learn more about the Wounded Veterans' Relief Fund here: https://wvrf.org/
Learn more about Dr Pagano's dental practice specializing in oral appliance therapy for sleep apnea here: https://vatotalsleep.com/
Follow the podcast on Instagram @sleepapneastories
This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Bleep Sleep
Special offer for Sleep Apnea Stories podcast listeners:
Sleep Apnea Stories podcast listeners get 20% off Bleep Sleep DreamPorts when shopping with the unique links and codes here:
https://www.sleepapneastories.com/services
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Renata Nehme, a Myofunctional Therapist and founder of the Airway Circle. Together they discuss:
-
Beginning as a Dental Hygienist and then discovering Myofunctional Therapy training.
-
Renata's own story of mouth breathing as a child which she thinks affected her facial development.
-
How Myofunctional Therapy can help people with sleep apnea as a secondary therapy, not a first-line treatment.
-
Issues in parenting affecting kids' airway and facial development.
-
The different ways a tongue-tie can be released.
-
Renata talks about setting up the Airway Circle, a group to foster interdisciplinary collaboration among airway professionals.
Follow Renata on Instagram @myomoves
www.myo-moves.com
Follow Airway Circle on Instagram @airwaycircle
www.airwaycircle.com
Follow the podcast on Instagram @sleepapneastories
This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Bleep Sleep
Special offer for Sleep Apnea Stories podcast listeners:
Sleep Apnea Stories podcast listeners get 20% off Bleep Sleep DreamPorts when shopping with the unique links and codes here:
https://www.sleepapneastories.com/services
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Ryan Jensen, a professional football player with the Tampa Bay Buccaneers. Together they discuss:
-
Working as a professional athlete and not getting the good quality sleep needed for recovery from training sessions.
-
Ryan's journey to diagnosis with sleep apnea and his familiarity with CPAP because his parents both used one.
-
Using a full face mask and struggling with leaking.
-
Trying DreamPorts by Bleep Sleep and finding it a better solution than the full face mask.
-
Becoming a role model as a professional athlete speaking publicly about living with sleep apnea.
Follow Ryan on Instagram @redman7715
Follow the podcast on Instagram @sleepapneastories
This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ Band Bleep Sleep
Sleep Apnea Stories podcast listeners get 20% off Bleep Sleep DreamPorts when shopping with the unique links and codes here:
https://www.sleepapneastories.com/services
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by author and journalist, James Nestor. His book "Breath: The New Science of a Lost Art" was released in 2020 and became an international bestseller. In the book, James discusses how the human species has lost the ability to breathe properly - and how to get it back. Together Emma and James discuss:
-
Some of the issues with the current medical system and its approach to treating sleep apnea.
-
Getting to the root causes of sleep apnea.
-
Premolar extractions, braces, and headgear - how these orthodontic practices can impact growing faces and airways.
-
CPAP headgear pushing faces backward over time and why that's a problem.
-
How James has grown new bone in his face and improved his breathing using a palate expansion appliance.
Connect with James, order his books or find his social media handles at https://www.mrjamesnestor.com/
You can find an excellent Q&A about sleep apnea with Dr. Steven Y. Park on James Nestor's website here: https://www.mrjamesnestor.com/faq
A great article by Karin Badt on premolar extractions for orthodontic treatment:
https://karinbadt.medium.com/premolar-extractions-for-orthodontic-treatment-2190344bc7bf
Emma mentioned Project Sleep's Rising Voices speaker training program. We need YOUR STORY! The more people with sleep apnea we can find to share their stories, the more we can raise awareness and improve access to screening, diagnosis, and treatment. If you have sleep apnea and would like to work with Project Sleep to create a presentation you can give in your community and in the media, click here:
https://project-sleep.com/2022-rising-voices-application-now-open/
This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Bleep Sleep
Sleep Apnea Stories podcast listeners get 20% off Bleep Sleep DreamPorts when shopping with the unique links and codes here:
https://www.sleepapneastories.com/services
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Dr Sairam Parthasarathy MD, Professor of Medicine in the Division of Pulmonary, Allergy, Critical Care & Sleep Medicine and the Director of the UAHS Center of Sleep & Circadian Science. He's also the Medical Director for the Center for Sleep Disorders at the University of Arizona. Together they discuss:
-
Dr Parthasarathy's research into supporting sleep apnea patients with a peer buddy program run by the American Sleep Apnea Association.
-
A Sleep Research Society panel Dr Parthasarathy chaired on treatment alternatives to PAP therapy.
-
Some of the challenges with integrating treatments like oral appliance therapy into the established medical system.
-
How you can get involved if you'd like to train as a peer Mentor or get help with your CPAP as a Mentee.
For more information on becoming a Mentor or Mentee with the American Sleep Apnea Association, visit:
https://www.sleepapnea.org/peer-mentors/mentees/join-asaa/
Contact Dr Parthasarathy:
Email: spartha1@arizona.edu
Twitter handle: sai_sparthamd
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Betterhelp www.betterhelp.com/emma
Special offer for Sleep Apnea Stories podcast listeners:
20% Off Bleep Sleep DreamPorts
Sleep Apnea Stories podcast listeners get 20% off when shopping with these unique links and codes:
CODE FOR DREAMWAY CONNECTOR KIT IS: 20EMMADREAM
THE URL TO THE DIRECT AMAZON PAGE IS: https://www.amazon.com/gp/mpc/A3988V25QUJTE4
CODE FOR DREAMPORTS IS: 20EMMAPORTS
THE URL TO THE DIRECT AMAZON PAGE IS: https://www.amazon.com/gp/mpc/A3SSBN70B4BV8I
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Jared Scofield. Together they discuss:
-
Jared's experiences with testing for sleep apnea at home and in a sleep clinic.
-
Being prescribed CPAP and struggling to adjust to it.
-
Jared's experience trying oral appliance therapy.
-
Turbinate reduction, sinus surgery and septoplasty with an ENT.
-
Trying new treatment options: iNAP and eXciteOSA.
-
Jared's experience with positional therapy.
Connect with Jared by email: jared.scofield@yahoo.com
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Betterhelp www.betterhelp.com/emma
Special offer for Sleep Apnea Stories podcast listeners:
20% Off Bleep Sleep DreamPorts
Sleep Apnea Stories podcast listeners get 20% off when shopping with these unique links and codes:
CODE FOR DREAMWAY CONNECTOR KIT IS: 20EMMADREAM
THE URL TO THE DIRECT AMAZON PAGE IS: https://www.amazon.com/gp/mpc/A3988V25QUJTE4
CODE FOR DREAMPORTS IS: 20EMMAPORTS
THE URL TO THE DIRECT AMAZON PAGE IS: https://www.amazon.com/gp/mpc/A3SSBN70B4BV8I
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Dr. Xiaochuan Yan, a general surgeon working in China sharing his own story of being diagnosed and treated with sleep apnea. Together they discuss:
-
Symptoms Dr. Yan experienced for years prior to diagnosis with obstructive sleep apnea.
-
Lack of adequate training about sleep apnea in medical school.
-
Dr. Yan's life-changing diagnosis and treatment with a CPAP.
-
Healthcare provision and sleep apnea treatment in China.
-
The losing weight conundrum many people with sleep apnea struggle with. Too tired to eat well and exercise which would help their sleep apnea.
-
The need to raise awareness about sleep apnea and increase research funding.
Contact Dr Yan by email: Docxcyan@gmail.com
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Betterhelp www.betterhelp.com/emma
Links Emma mentioned:
This weekend is Project Sleep's "Sleep In" fundraiser click here to donate: https://projectsleep.salsalabs.org/sleepin2022/t/sleepapneastories/index.html or find out more about the 'Sleep In' here: www.project-sleep.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Jason Sazama, the man behind "The Lanky Lefty 27" YouTube Channel. Together they discuss:
-
Emma's discovery of Jason's YouTube channel and the video topics she found helpful.
-
Common CPAP problems and how Jason addresses them.
-
OSCAR software for analyzing CPAP data and what to look for.
-
Jason's own journey with Hashimoto's and diagnosis with obstructive sleep apnea.
-
The setup Jason uses at night, including his mask recommendations and cleaning routine.
-
Jason's background as a credentialed and experienced sleep tech. The services he provides through AXG Diagnostics are at-home sleep testing and analysis of OSCAR CPAP data over zoom.
Jason on YouTube: https://www.youtube.com/c/Freecpapadvice
Jason's pap therapy data analysis to help you figure out the correct settings for your CPAP:
http://axgsleepdiagnostics.com/product/pap-therapy-data-analysis/
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Betterhelp www.betterhelp.com/emma
Links Emma mentioned:
To join Emma's fundraising team for Project Sleep's "Sleep In" fundraiser click here: https://projectsleep.salsalabs.org/sleepin2022/t/sleepapneastories/index.html (this is also where to make a donation!).
Find out more about the 'Sleep In' here: www.project-sleep.com
20% Off Bleep Sleep DreamPorts
Sleep Apnea Stories podcast listeners get 20% off when shopping with these unique links and codes:
CODE FOR DREAMWAY CONNECTOR KIT IS: 20EMMADREAM
THE URL TO THE DIRECT AMAZON PAGE IS: https://www.amazon.com/gp/mpc/A3988V25QUJTE4
CODE FOR DREAMPORTS IS: 20EMMAPORTS
THE URL TO THE DIRECT AMAZON PAGE IS: https://www.amazon.com/gp/mpc/A3SSBN70B4BV8I
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Christina Sanghera, a holistic health coach who helps burned-out women with chronic illnesses. Together they discuss:
-
Christina's own health journey with a thyroid condition, Hashimoto's;
-
How Christina felt waking up at night before her obstructive sleep apnea diagnosis;
-
Misdiagnosis with panic attacks and anxiety and calling 911;
-
Stereotypes in sleep apnea diagnosis and how they keep young women from accurate diagnoses;
-
The importance of working with the nervous system and especially the vagus nerve to soothe fight or flight responses.
Follow Christina on Instagram: www.instagram.com/christinasanghera
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Betterhelp www.betterhelp.com/emma
Links Emma mentioned:
To join Emma's fundraising team for Project Sleep's "Sleep In" fundraiser click here: https://projectsleep.salsalabs.org/sleepin2022/t/sleepapneastories/index.html or find out more about the 'Sleep In' here: www.project-sleep.com
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Bob Stanton, a former over the road (OTR) truck driver with experience of all the issues facing truck drivers with sleep apnea. Together they discuss:
-
Bob's personal journey to diagnosis with sleep apnea and his treatment with CPAP;
-
Federal Motor Carrier Safety Administration (FMCSA) regulations relevant to obstructive sleep apnea;
-
Department of Transport medical examinations required to receive and maintain a Commercial Driver's License (CDL);
-
Challenges facing truck drivers using CPAP, including power supply issues and humidification issues;
-
Political challenges with passing legislation about truck drivers with sleep apnea;
-
Oral Appliance Therapy (OAT) and the compliance chips that could make it accessible to truck drivers;
Contact Bob at Dedicated Sleep Health & Wellness by emailing bstanton@dedicatedsleep.net
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Betterhelp www.betterhelp.com/emma
Links Emma mentioned:
To join Emma's fundraising team for Project Sleep's "Sleep In" fundraiser click here: https://projectsleep.salsalabs.org/sleepin2022/t/sleepapneastories/index.html or find out more about the 'Sleep In' here: www.project-sleep.com
Dr Sai Parthasarathy shared this information for individuals to get peer support for sleep apnea struggles: https://www.sleepapnea.org/peer-mentors/mentees/join-asaa/ This is a PCORI funded program partnering with the American Sleep Apnea Association. There is also a web-based mentor training website here: https://sleep.uahs.arizona.edu/patients
Dr Vik Veer's YouTube video about the new NICE guidelines for treating Sleep Apnea in the UK is here: https://www.youtube.com/watch?v=LNbPhogMTzM
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma wraps up season 5 with an update about what she's working on to raise awareness about sleep apnea in 2022. In this episode she shares:
-
Project Sleep recently appointed Emma to its Board of Directors. Emma shares how she hopes to help Project Sleep expand its programs to include sleep apnea;
-
Emma is looking for people interested in joining her fundraising team for Project Sleep's "Sleep In" in March. Sign up for email below if you're interested!
-
Plans for the podcast in 2022. Are you interested in telling your story on the podcast? If so, email sleepapneastories@gmail.com with the subject line "podcast guest".
To join the email list go here: https://www.sleepapneastories.com/emailsignup and scroll to the bottom of the page.
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
Learn more about Project Sleep here: https://project-sleep.com/
This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Dr Joshua Roland, a board-certified sleep medicine physician to talk about erectile dysfunction and sleep apnea. Together they discuss:
-
the shame and stigma surrounding erectile dysfunction;
-
the possible relationship between untreated sleep apnea and erectile dysfunction;
-
men being reluctant to see the doctor and what can be done about it;
-
reduced libido/sex drive and hormonal impacts of untreated sleep apnea;
-
sleep testing, including home testing, and sleep data from wearables;
-
Dr Roland's interest in idiopathic hypersomnia and the link between sleep disorders and Alzheimer's.
Follow Dr Roland on Instagram: www.instagram.com/sleepdoctorroland
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Candy Sparks. Together they discuss:
-
Candy shares her story as a mother of a child with a compromised airway;
-
Early warning signs that were missed by health professionals who aren't routinely trained to examine airways;
-
Orthodontic work for Savvy as a child;
-
Finding Dr William Hang https://facefocused.com/ and preparing Savvy for orthognathic surgery with Dr Larry Wolford https://drlarrywolford.com/
-
Jaw joint replacement surgery;
-
How closely mental health is linked to airway problems;
-
Savvy's diagnosis with Ehlers-Danlos Syndrome and POTS (Postural Orthostatic Tachycardia Syndrome);
-
Setting up the Children's Airway First Foundation and some of the goals Candy is working towards.
Candy's Children's Airway First Foundation: https://www.childrensairwayfirst.org/
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Dr Dar Radfar is a Dentist and joins Emma for a conversation about his personal journey with his own sleep apnea and his mission to help others improve their sleep. Together they discuss:
-
Dr Radfar's personal journey with sleep apnea and his wake up call to get tested and treated;
-
Becoming the first patient in his dental practice to try an oral appliance to treat sleep apnea;
-
Working to build relationships with sleep specialists in his community;
-
The importance of identifying a patient's co-existing health conditions and working with all the medical specialists they see;
-
Developing RADzzz, a supplement, to help people with sleep apnea get the rest they need without sedatives and sleep aid medications;
Find out more about the RAD Zzz supplements Dr Radfar discussed on the episode here: https://www.radhealthinc.com/products/rad-zzz
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Ernestine Key joins Emma on the podcast to share the story of her husband, Fredrick's journey with undiagnosed sleep apnea. He had a debilitating stroke and passed away in September 2018. Together they discuss:
-
What a wonderful husband and father Fred was and what memories Ernestine has of him;
-
The signs of undiagnosed sleep apnea such as snoring and gasping at night;
-
Difficulties in getting spouses to go to the doctor, especially men;
-
Fredrick's stroke and the impact on the family;
-
Testing for sleep apnea after the stroke and difficulties adjusting to CPAP therapy;
-
Ernestine becoming a board member of the American Sleep Apnea Association and setting up a fund in Fredrick's memory.
To donate to the ASAA in Fredrick's name click here: https://www.sleepapnea.org/memorials-and-tributes/
Follow the show on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined on the podcast by Rhonda Greig. Rhonda is the first person on the podcast to tell a story about central sleep apnea. Topics covered include:
-
Rhonda coping with symptoms of exhaustion but keeping up with her friends as a teenager;
-
Going to the hospital and the nurse calling a "code blue" because Rhonda's lips were blue from lack of oxygen;
-
Rhonda being on life support and doctors no knowing what was wrong;
-
Recovery and continuing with college classes;
-
Mental health impacts and Rhonda's decision to see a therapist and start anti-depressants;
-
The Philips CPAP recall and Rhonda learning that her ventilator was on the list of recalled machines.
If you'd like to connect with Rhonda, her email is johnda24.7@bell.net
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Chris Kelly, the first guest to come back for a second interview.
Together they discuss:
-
Chris gives his opinion on the best CPAP masks and why he prefers nasal masks to full face masks;
-
Proper mask fit and how Chris tried customizing masks;
-
Chris's favorite mask - Brevida by Fisher and Paykel but with the strap from the Eson Nasal CPAP Mask;
-
Mechanics of breathing and using an inspiratory muscle trainer for obstructive sleep apnea;
-
How Chris manufactures his oral appliances;
-
The tongue posture shield Chris designed which can help with tongue position and lip seal at night;
-
Positional Therapy and Chris's recommendation of the Nightshift device and pregnancy pillows;
-
The Philips CPAP recall.
For more about Chris and his company, Aer Healthcare, and the oral appliance, tongue shield, and inspiratory muscle trainer he mentioned visit: https://www.aerhealthcare.com.au/
This is the "Nightshift" device discussed on the episode: https://www.advancedbrainmonitoring.com/products/night-shift-sleep-positioner
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Larry Shaw, the inventor of the Knightsbridge Dual Band Chin Strap.
Together they discuss:
-
Larry's own personal journey with snoring and sleep apnea;
-
How his symptoms of increased daytime sleepiness mounted gradually over time;
-
Larry's reluctance to go to a doctor about his sleep apnea and his approach of trying to figure it out himself;
-
The impact of sleep problems on his relationships;
-
Trying chinstraps on the market to keep his mouth closed at night;
-
Coming up with a better design for the Knightsbridge Dual Band Chin Strap to keep the mouth closed without undue pressure being placed on the TMJ;
Larry's Knightsbridge Dual Band Chin Strap: https://dualbandchinstrap.com/
Follow the podcast (and enter the winter giveaway!) on Instagram: www.instagram.com/sleepapneastories
Emma mentioned Dr Steven Park's podcast on Sleep Apnea - watch or listen here.
She also mentioned Instagram live on the men's health with Dr Joshua Roland with "The Coach" app. Find it here.
This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Kajsa Bradley. Together they discuss:
-
Struggling with depression and anxiety as a teenager but not receiving mental health treatment;
-
Kajsa being away from home in Europe and reaching a mental breaking point;
-
Starting therapy - feeling shame and judgment about seeking help from a therapist;
-
Moving back to Oregon and trying several therapists before finding a great therapeutic match;
-
Kajsa having a sleep study and being diagnosed with severe obstructive sleep apnea;
-
Feelings of relief because diagnosis gave some treatment options but also having feelings of shame and embarrassment;
-
Adjusting to CPAP therapy well, to begin with, but then developing problems with wearing the mask all night;
-
Being labelled CPAP "non-compliant" and having surgery with an ENT and seeing a reduction in AHI;
-
Kajsa starting a blog to write about her experiences and help other people.
Kajsa's blog: https://www.mentalhealthnaps.com/
Follow Kajsa on Instagram: www.instagram.com/mental_health_naps_
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Teresa DeNike at Sleep Better NYC. As a sleep coach, Teresa explains:
-
what a sleep coach does and how they can help people struggling to get quality sleep;
-
how a sleep coach can help someone with sleep apnea navigate different options;
-
Teresa's background working for an oral appliance manufacturer;
-
mouthguards and other devices people buy randomly online and think they are treating their sleep apnea but they're NOT!
Connect with Teresa on Instagram: @sleepbetternyc
www.sleepbetter.nyc
Connect with Emma on Instagram: @sleepapneastories
www.sleepapneastories.com
If you missed Emma's presentation on the Project Sleep Facebook page, here's the link:
https://fb.watch/8BAphsvLDN/
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Trigger warning: there is some discussion of suicidal thoughts in this episode.
Patrick Zwally shares his health journey from debilitating chronic pain to life-saving double jaw surgery and jaw joint replacement. Together Patrick and Emma discuss:
-
Patrick's childhood including his mouth breathing and poor oral posture;
-
The traditional orthodontics Patrick had as a teen;
-
The beginning of TMJ problems, 2 shoulder surgeries and neck pain;
-
Patrick developing chronic pain and feeling suicidal;
-
Lots of people are having serious sleep problems but don't meet the official criteria for a sleep apnea diagnosis;
-
Patrick discovering the work of Professor John Mew and Dr Mike Mew;
-
Meeting with Dr Bill Hang and Dr Reza Movahed;
-
Double jaw surgery and jaw joint replacement and Patrick's amazing results;
-
Myofunctional Therapy to improve oral posture.
Sarah Hornsby talking about exercises she does with Kourtney Kardashian https://youtu.be/qgUPm4Y5azk
The book Patrick mentioned - Jaws: the story of a hidden epidemic
Follow the podcast on Instagram: @sleepapneastories
Emma's Facebook Live on the Project Sleep page October 10th at 8pm EST - click here
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Chris Kelly from AER Healthcare in Australia. He explains their approach to diagnosis and treatment of Sleep Apnea and how it disrupts the status quo where patients do a lot of the legwork. Together they discuss:
-
How Chris started as a dental prosthetist and how he started designing and manufacturing oral appliances for sleep apnea and snoring;
-
Common problems for patients navigating the current medical system involving referrals to sleep specialists from GPs;
-
How Chris developed AER Healthcare to give a pathway to people with Sleep Apnea to easily get screened and have a sleep study at home;
-
Chris explains the four types of sleep studies, how they differ and which can be relied upon to rule in/out Sleep Apnea;
-
Working with Sleep Specialists to interpret results of home sleep studies and make recommendations and provide prescriptions for the Dentist to explain all the treatment options;
-
Why they offer a one month CPAP trial.
Connect with Chris at https://linkedin.com/in/christopherkellyaerhealthcare/
AER Healthcare's website has a video explaining their model: https://www.aerhealthcare.com.au/
The surgical procedure Chris mentioned is called a 'Transpalatal Advancement Pharyngoplasty for Obstructive Sleep Apnea Syndrome'
Chris mentioned Jason from the Lanky Lefty YouTube channel. You can find it here: https://www.youtube.com/c/Freecpapadvice
Follow the podcast on Instagram: @sleepapneastories
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Dr David McIntosh, an adjunct Associate Professor of ENT Surgery in Queensland, Australia. He specializes in pediatric ENT surgery, nose & sinus disease and snoring & sleep apnea. Together they discuss:
-
Dr McIntosh explains the urgency of intervention with children showing signs of sleep disordered breathing;
-
Children with mouth breathing or snoring should be taken for evaluation to a pediatric ENT as quickly as possible;
-
Consequences of untreated sleep disordered breathing in kids include: behavioral problems, hearing problems, listening problems, memory problems and many other issues;
-
David explains why he fully supports proponents of nasal breathing but also explains that he thinks it's important to get to the root cause of the mouth breathing and take corrective action.
-
The difference between management and treatment and where ENTs can perform surgery to treat the underlying airway obstruction.
Follow Dr McIntosh on Instagram: @dr_david_mcintosh_ent
https://entspecialists.com.au/our-team/dr-david-mcintosh/
Buy a copy of Dr McIntosh's book here or simply search "Snored to Death" on Amazon.
Emma's note: the information in this book is critical to the well being of children all over the world. If you have means, please buy an extra copy and gift to a Pediatrician or GP you know.
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Dr Jenny Talbert, a Doctor of Chiropractic practicing in Portland, Oregon. Together they discuss:
-
The experience of diagnosis and beginning treatment with a CPAP;
-
Jenny's mom's diagnosis with Sleep Apnea after a scary episode of Afib;
-
The "Health at Every Size" philosophy Dr Talbert brings to her Chiropractic office;
-
Jenny's hope to continue advocacy for sleep apnea testing and diagnosis with fellow chiropractors as well as helping patients get the referrals they need.
Some resources discussed in the episode:
Dr Vik Veer’s YouTube video https://www.youtube.com/watch?v=rdR8SVCeSJg
BMI Episode of Maintenance Phase Podcast
http://maintenancephase.com/
Books:
Body Respect by Dr. Lindo Bacon
Fearing the Black Body: The Racial Origins of Fat Phobia by Dr. Sabrina Strings
Email: drjennytalbert@gmail.com
Follow Dr Talbert on Instagram: www.instagram.com/chirojenny
Follow the show on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Fabienne Deprez, a former professional badminton player who competed for the German national women's team. Together they discuss:
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Fabienne's feeling tired and unable to bounce back after training sessions;
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Her journey to diagnosis with sleep tests;
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5 months using a CPAP but finding it difficult;
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Being fitted for a mandibular advancement device and finding it more comfortable to wear than a CPAP;
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Pregnancy and tiredness;
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Fabienne's decision to talk about her diagnosis with Sleep Apnea to use her platform to raise awareness.
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
Follow Fabienne on Instagram: www.instagram.com/fabiennedeprez
Emma mentioned Jason from the Lanky Lefty YouTube channel. You can find it here: https://www.youtube.com/c/Freecpapadvice
Here is Jason's Amazon store with links to the Mask Bright CPAP cleaner and the hurricane CPAP equipment dryer: https://www.amazon.com/shop/thelankylefty27
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Dr Dayna Johnson. Dr. Dayna Johnson, PhD, MPH, MSW, MS is a sleep epidemiologist and Assistant Professor in the Department of Epidemiology at the Rollins School of Public Health, Emory University in Atlanta GA. Dr Johnson explains:
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some reasons why communities of color have higher rates of sleep apnea but lower screening for the condition.
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unconscious and conscious biases playing into doctor visits and who gets referred to a sleep center.
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the need to promote awareness of symptoms of sleep apnea, especially in black communities.
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access to sleep doctors and transportation.
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how air pollution disproportionately affects black people and how that contributes to sleep apnea.
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safety concerns in lower income neighborhoods and how those can affect whether people are able to follow sleep hygiene advice.
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covid-19 and the impact on the black community's access to healthcare.
Follow Dr Johnson on Twitter: https://twitter.com/DrDaynaAJohnson
Follow the show on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Graham Stoney, a former biomedical engineer from Sydney, Australia. Together they discuss:
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Graham's depression and exhaustion, which led to him leaving his job and a diagnosis with Chronic Fatigue Syndrome,
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Bringing training as a biomedical engineer to try to figure out the root cause of his sleep apnea,
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Trials of CPAP and a mandibular advancement device,
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Graham on going to multiple different specialists: sleep specialist, ENTs, surgeons, trying to get to the root cause of his sleep apnea,
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Exploring MMA surgery and palate expansion and beginning treatment with an mRNA appliance,
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Graham talks about Jordan Peterson and his diagnosis with obstructive sleep apnea.
Graham's blog is here: https://cfs-survivors.org/
Follow Graham on Instagram: www.instagram.com/grahamstoney
Follow the show on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma is joined by Brandon Wilds, one of the first patients to try out the eXciteOSA device for treating mild sleep apnea and snoring. Together they discuss:
-
Brandon coping with daytime sleepiness and seeing a sleep specialist;
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Sleep studies at home and at a medical facility;
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Being prescribed a CPAP and having a lot of problems with it;
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Learning about a new treatment called eXciteOSA and being one of the first patients to try it;
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The eXciteOSA device - what it is and how it works;
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Brandon on how much better he is feeling now.
Emma mentioned Project Sleep's program "Rising Voices of Narcolepsy". Sign up for updates from Project Sleep and learn more about the program here: https://project-sleep.com/rising-voices-of-narcolepsy/
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Please note: eXciteOSA are a sponsor of this season of the "Sleep Apnea Stories" podcast but Emma had complete control over the editorial content of this interview.
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
Emma was recently invited by Fariya Doctor, a Feldenkrais practitioner in Canada, to give an online talk about Women and Sleep Apnea. Since raising awareness about Sleep Apnea is part of Emma's mission with this podcast, she jumped at the chance! This bonus episode is an edited audio version of Emma's talk. In this episode Emma discusses:
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Her own journey with Sleep Apnea;
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Overview of symptoms to look for and how these can often present differently in men and women;
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Case Studies of women featured on the podcast and different reasons they went years without diagnosis;
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Different treatments for Sleep Apnea, including CPAP, Mandibular Advancement Devices and Inspire. Emma touches on other less well known treatments, like palate expansion, buteyko breathing, myofunctional therapy, didgeridoo playing and the new Excite OSA treatment.
Vote for the Podcast (takes 1 minute - voting ends 1st August 2021!!!) - The Sleep Apnea Stories podcast got nominated for awards at this years WEGO Health Awards! If you'd like to support Emma and the podcast to win an award, click the link below, scroll to underneath the categories and click "Endorse this patient leader".
https://www.wegohealth.com/Emma34/awards
Complete Short Survey (takes 2-5 minutes) - If you listen to the podcast, please compete this short survey to help shape future episodes.
https://www.surveymonkey.com/r/VD5JMPV
Follow the podcast on Instagram: @sleepapneastories
www.sleepapneastories.com
Follow Fariya Doctor on Instagram: @movement_detective
https://fariyadoctor.com/
For the final episode of this season, Emma gives an update on her own journey with Sleep Apnea. She explains her goals of getting to the root cause of her Sleep Apnea and introduces the people who are helping her:
- Emma discusses her Myofunctional Therapy experience working with Kaitlyn Shrum. They discuss Emma's classic signs of a compromised airway: high vaulted narrow palate, tongue-tie, history of thumb sucking and mouth breathing. How they worked together before and after Emma's tongue-tie release.
Kaitlyn Shrum - Myofunctional Therapist
Instagram: @southernspeechandmyo
www.southernspeechandmyo.com
- Emma discusses her functional breathing training with Jo Brierly, this included Buteyko breathing re-education. Jo shares the trauma she experienced as a result of a terrorist attack and how discovering breath work changed her life.
Jo Brierly - Functional Breathwork Coach
Instagram: @thebreathingclinic
www.thebreathingclinic.org
- Emma discusses her palate expansion, using vivos appliances, with her dentist, Dr Michelle DeFelice Hucke. Dr Hucke shares about her intake procedure for these devices and the expected outcome.
Dr Michelle DeFelice Hucke - Dentist
Instagram: @jaxbeachesfamilydentistry
https://jacksonvillebeachdentist.com/
- Emma introduces her husband to listeners of the podcast!
Jason Cooksey - Emma's husband on supporting a partner with sleep apnea.
Connect with Emma on Instagram @sleepapneastories or email sleepapneastories@gmail.com
The sponsor of this episode of the podcast is Mute Nasal Dilators www.mutesnoring.com
Vote for the show in this year's "WEGO Health" Awards: scroll to the bottom and click where it says "endorse this patient leader" https://www.wegohealth.com/Emma34/awards
Please complete this 5 minute listener survey: https://www.surveymonkey.com/r/5TWGMT5
In this Episode, Emma has a conversation with Chandra Hartman about her palate expansion. Together they discuss:
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Living with chronic respiratory issues of bronchitis and allergies as a child;
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Chandra living without health insurance but suspecting she had Sleep Apnea for years;
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Working with a Traditional Chinese Medicine doctor to treat respiratory issues;
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Chandra becoming interested in the work of Weston A. Price and Epigenetic Orthodontics;
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Connecting with a Dentist who offered Epigenetic Orthodontics, including Vivos appliances;
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Being diagnosed with severe Sleep Apnea at the age of 45 and using a CPAP;
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How Chandra's life has changed since her successful treatment.
Follow Chandra on Instagram: @chandra.hartman
Chandra's blog: https://elitrope.wordpress.com/category/epigenetic-orthodontics/
Follow the show on Instagram: @sleepapneastories
Email Emma: sleepapneastories@gmail.com
This episode is sponsored by Mute
Emma is joined by AJ Block. AJ is a musician and teacher who runs a program specifically designed for people with Sleep Apnea. Together they discuss:
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AJ's background as a musician and how he found the Didgeridoo;
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The "Didge for Sleep" project AJ has put together to help people with Sleep Apnea;
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The 2005 British Medical Journal Study (linked below) which concluded the Didgeridoo did help reduce AHI in a group of Sleep Apnea patients who were trained in playing the Didgeridoo;
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The need for a lot more research into the effectiveness of Didgeridoo training for Sleep Apnea and AJ's willingness to be involved in upcoming research projects.
Here are the links AJ discussed on the episode:
Didge Project YouTube channel click here
https://didgeforsleep.com/
https://www.didgeproject.com/sleep-apnea/didgeridoo-sleep-apnea-update-2019-a-sleep-apnea-patient-log/
Here is the link to the free class Emma took and discussed on the episode:
https://www.didgeproject.com/didgeridoo-fundamentals/
To follow the Didge Project on Instagram: @didgeproject
British Medical Journal Study: click here
This episode was sponsored by Mute Nasal Dilators https://mutesnoring.com/
To follow the show on Instagram: @sleepapneastories
If you want to be featured in an upcoming episode, please email me at sleepapneastories@gmail.com
To share your story with the non profit "Airway Revolution" follow this link: https://www.airwayrevolution.org/share-your-story
Emma is joined by Elizabeth Thiel, a 39 year old wife and mother living in Atlanta, Georgia. Together, they discuss:
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At home Sleep Studies - what to expect from this sort of test;
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Being prescribed a CPAP machine and working to find the right mask;
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Problems with delays getting CPAP masks with insurance compliance requirements in mind;
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Durable Medical Equipment companies vs ordering CPAP supplies online;
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Comfort CPAP Covers/Liners;
Follow Elizabeth on Instagram >>> @ladyzbird
Follow the show on Instagram >>> @sleepapneastories
For details of the Philips CPAP Recall click here scroll down and click where it says "affected" CPAP machines.
For details of Emma's "Mastering Your CPAP" online video course, click here.
To join the email list and get your FREE printable pdf "CPAP Lessons I Learned the Hard Way" click here.
This episode of Sleep Apnea Stories was sponsored by Mute Nasal Dilators.
Emma is joined by Dr Shelby Harris a Licensed Clinical Psychologist who specializes in Behavioral Sleep Medicine. She treats Insomnia patients using Cognitive Behavior Therapy specifically for Insomnia. In this episode we discuss:
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What is insomnia and how do you know if you have it?
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The distinctions between sleepiness and fatigue and how accurately describing symptoms can help in diagnosis;
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The possibility of having Sleep Apnea along with Insomnia and how these different conditions can be treated concurrently;
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The pro's and con's of wearable sleep trackers, such as apple watches, oura rings and fitbits;
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Cognitive Behavior Therapy for Insomnia vs traditional sleep aid medications;
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The importance of consistent sleep hygiene.
Follow Dr Harris on Instagram @sleepdocshelby
www.drshelbyharris.com
"The Women's Guide to Overcoming Insomnia" by Dr Shelby Harris - available on Amazon and Audible
Follow the podcast on Instagram @sleepapneastories
New or struggling CPAP users - check out Emma's new online video course "Mastering your CPAP" https://sleepapneastoriesacademy.thinkific.com/courses/mastering-your-cpap
This episode is sponsored by Mute https://mutesnoring.com/
Emma is joined by Vashanti Ganesh. Together they discuss:
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A family doctor being unwilling to prescribe a CPAP despite a diagnosis of Sleep Apnea;
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Suffering with incontinence as a symptom of Sleep Apnea;
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PCOS - Polycystic Ovary Syndrome, what it is and some of the symptoms to watch for;
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Sleep Apnea being common in women with PCOS;
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How Vashanti brought her PCOS symptoms under control with lifestyle changes;
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How much better Vashanti felt when she was prescribed a CPAP at last;
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Vashanti's work as a health coach supporting women with healthy living.
Vashanti's free sleep guide she mentioned is available here: https://vashantigita.dropfunnels.com/guide-2-2/sleep-guide/
Follow Vashanti on Instagram: www.instagram.com/vashantig
Follow Vashanti on Facebook:https://www.facebook.com/vashantigita
Follow the podcast on Instagram: @sleepapneastories
Email Emma: sleepapneastories@gmail.com
Struggling with your CPAP? Sign up for Emma's "Mastering your CPAP" online course here
Emma is joined by her guest Karen Wolk. They talk all about Karen’s journey with sleep apnea, from having panic attacks and a cognitive impairment affecting her memory, to being diagnosed with Sleep Apnea. Karen explores the different treatments she tried including medications, a nasal surgery, CPAP and BIPAP machines before finally finding relief with an ‘inspire’ implant. Karen discusses how the technology works and the tremendous impact it has had on the quality of her life. Finally, Emma and Karen discuss the silver linings to come from their sleep apnea diagnoses. Connect with Karen on Linked In or Instagram: http://linkedin.com/in/karenwolk Instagram: @kwolk
Emma is joined by Brittny Sciarra and Karese Laguerre to discuss their work as Myofunctional Therapists, also called Orofacial Myologists. Together they discussed:
-
What Myofunctional Therapy is and why it can be beneficial for many people with Obstructive Sleep Apnea;
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Myofunctional Therapy as part of a treatment plan for children with Sleep Disordered Breathing;
-
Karese shares her own experience with advocating for and getting treatment for her children with Sleep Disordered Breathing;
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What normal resting tongue posture looks like and why it is so important, especially in children as their palate develops;
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How to find airway-focused healthcare professionals who might not be easily found in your area.
Find Brittny here: https://www.ctorofacialmyology.com/
Follow Brittny on instagram: @ct_orofacial_myology
Find Karese here: https://www.themyospot.com/
Follow Karese on Instagram: @themyospot
Follow Emma and the podcast on Instagram: @sleepapneastories
Find Myofunctional Therapists here: AAPMD or AOMD
Sign up for email about the show here and get a free pdf with answers to common CPAP problems. When you're on the email list, you'll be the first to know when Emma's upcoming online course "Mastering your CPAP" goes live!
This Episode was sponsored by Mute Nasal Dilators
Emma is joined by Alida Abdullah and they discuss:
*Growing up snoring and sleeping during school;
*Difficulty with CPAP therapy as a mother juggling a newborn and a 3 year old;
*Being a college athlete and not fitting the Homer Simpson stereotype of the older, overweight men who suffer with Sleep Apnea;
*Treatment of African American women in the healthcare system, what needs to change;
*The link between Hypertension and Sleep Apnea.
Connect with Alida on Instagram: @aa2ff2020
Follow Emma on Instagram: @sleepapneastories
If you want to read further about the health disparities due to race in the US, there are some great resources put together by Dr Akilah Cadet https://www.changecadet.com/resources and also this article by Dr Cadet: https://www.healthline.com/health/black-health-matters-putting-the-care-back-in-healthcare#3
The podcast Emma mentioned in the intro: https://www.richroll.com/podcast/matthew-walker-600/
Emma is joined on the podcast by Julie Flygare, President and CEO of Project Sleep. Julie has suffered with Narcolepsy with Cataplexy and is an accomplished sleep disorders advocate. Emma and Julie discuss:
*Symptoms and early warning signs of Narcolepsy;
*Julie's journey through diagnosis and treatment;
*How sleep studies for Narcolepsy differ from those for Sleep Apnea;
*The need for more awareness around Sleep Disorders and more money for Sleep Disorders Research;
*How listeners can get involved in supporting Project Sleep.
You can find all the information about Project Sleep, including social media handles on the website: https://project-sleep.com/
Julie's book "Wide Awake and Dreaming: A Memoir of Narcolepsy" is available now. Find all the details of where to buy it here
You can follow Emma on Instagram @sleepapneastories
Sign up for email updates about the podcast and get a free printable pdf called "CPAP Lessons I Learned the Hard Way" here
Emma is joined by Randy Thornton, a former NFL player and professional wrestler. Randy discusses: How he struggled with intense headaches and mood swings before he was diagnosed with Sleep Apnea; Reluctance of many men to go to the doctor; Just how widespread Sleep Apnea is among athletes who focus on building muscles of the neck and shoulders; Spreading awareness in the African American community about the dangers of Sleep Apnea; *The new "Best Sleep" magazine and it's goal to raise awareness of Sleep Disorders like Sleep Apnea. Info about "Best Sleep" magazine: https://vimeo.com/509104771 Follow Randy on Instagram: @randythornton20 Follow Emma on Instagram: @sleepapneastories Sign up for email and get your free 2 page pdf printable "CPAP Lessons I learned the hard way" here
Emma is joined by Dr Madan Kandula, a Board Certified Otolaryngologist, specializing in sleep and sinus surgery. He leads Advent, an ENT group with 10 clinics across Wisconsin and Illinois. In this episode we cover:
*The current state of the healthcare system and how patients are not being served by it;
*Dr Kandula's vision for a more patient-centered approach and offering multiple treatment options for Sleep Apnea;
*Minimally invasive in-office procedures on sinuses and turbinates to help relieve nasal congestion and improve sleep at night;
*Madan's own journey with breaking his nose twice and how that shaped his interest in the ENT field.
Connect with Dr Kandula on Instagram: @adventknows
https://adventknows.com/ this website has a number of videos about the procedures Emma and Dr Kandula discussed in this episode.
Connect with Emma on Instagram: @sleepapneastories
Download your FREE 2 page printable pdf on "CPAP lessons I learned the hard way" here
If you have interest in the course Emma is developing to help you adjust to your CPAP, please email sleepapneastories@gmail.com and put "CPAP course" in the subject of the email.
Emma is joined by Dr Meghna Dassani, a Dentist in Houston, Texas. In this episode we discussed:
*Dr Dassani's new book "Airway is Life: Waking up to your family's sleep crisis" and her podcast Healthy Sleep Revolution
-
What are the red flags parents should look for in their kids to spot sleep disordered breathing?
-
Which specialists should be consulted and in what order?
*When is it appropriate to send a child for a sleep study? Are CPAPs an option for children with Sleep Apnea?
- Palate expansion in kids and the impact on their airway development. How early can you start?
Connect with Dr Dassani: www.MeghnaDassani.com
www.DassaniDentistry.com
IG: @healthysleeprevolution
FB: @drdassani
Email: info@meghnadassani.com
Connect with Emma on Instagram: @sleepapneastories
Email: sleepapneastories@gmail.com
*Get your FREE 2 page printable pdf on "CPAP Lessons I Learned the Hard Way" here*
Emma is joined by Craig Baker, a Personal Trainer from Sydney, Australia. Together they discuss:
*Craig discusses his Sleep Apnea symptoms, including anxiety and exhaustion;
*Deciding to cut back on decathlon training in his 20s;
*Using a phone app to record snoring and breathing sounds during sleep;
*Emma's experience with her Tonsilectomy and Craig's upcoming surgery;
*CPAP and Craig's experience with Nasal Pillows;
*Are people overweight and then develop Sleep Apnea or do they develop Sleep Apnea and get overweight as a result?
Connect with Craig: @craigbakerpt and https://www.craigbakerpt.com/
Get Emma's "CPAP Lessons I Learned the hard way" printable pdf here
Emma is joined by Dr Earl Bogrow, a Dentist who specializes in Mandibular Advancement Devices, also called Oral Appliances, to treat Sleep Apnea. During the episode Emma and Earl discuss:
*Some of the benefits to Mandibular Advancement devices vs CPAP;
*Dr Bogrow's own journey with Sleep Apnea;
*How to find a great Dentist to make you an oral appliance.
*TMJ issues and how they need to be taken into account when customizing a Mandibular Advancement Device;
*Breathing and airways - James Nestor's book "Breath";
*Dr Bogrow's didgeridoo playing and how circular breathing can tone the muscles of the throat.
Contact Dr Bogrow: https://michigansleepapneacenter.com/
Search for a Dentist accredited with the American Academy of Dental Sleep Medicine - click here
Donate to the Project Sleep fundraising "Sleep In" here
Emma is joined by Stacy Erickson Edwards, a Sleep Disorders Advocate and blogger at www.cpapbabes.com. Stacy discusses:
*her journey to getting diagnosed with Sleep Apnea;
*dealing with continued sleepiness even after CPAP treatment and exploring other potential sleep disorders;
*being diagnosed with Idiopathic Hypersomnia after an MSLT test;
*working with Project Sleep to raise awareness about sleep disorders.
*taking part in Project Sleep's "Sleep In" fundraiser 12th-14th March;
Connect with Stacy: http://www.cpapbabes.com/
Instagram: @cpapbabes
Connect with Emma: https://www.sleepapneastories.com/
Instagram: @sleepapneastories
Emma and Stacy are both taking part in Project Sleep's "Sleep In" Fundraiser, more details here.
You can sponsor Emma here
Emma mentioned Stacy's article on not feeling better on CPAP - read it here
Emma talks all about physical fitness and coping with Sleep Apnea. Emma's guest, Ryan King, is a personal trainer who has been working with Gary Knight (friend of the show, guest on episode 4). Emma and Ryan discuss:
-
How to gradually build up the amount of exercise you're doing even when you're tired;
-
Alternatives to working out at the gym;
*The importance of mindset and breathing;
*Unrealistic ideals of beauty.
Connect with Ryan on Instagram: @rkfitness_fevo
"Sleep In" Fundraiser run by Project Sleep, 12th-14th March 2021
*I'd LOVE to have you on my team to spread awareness of Sleep Apnea!!!***
Sign up to join the fundraiser (click "Join Our Team button) or donate: click here
Or to learn more about Project Sleep, visit their website: https://project-sleep.com/ or follow them on Instagram: @project_sleep
Connect with Emma: Instagram - @sleepapneastories
www.sleepapneastories.com
Emma is joined by Sydney Avis and her Dad, Dr Victor Avis. Sydney recently underwent an MMA surgery (Maxillary Mandibular Advancement) to expand her airway and improve her sleep and breathing. In this episode we discuss:
*various diagnoses Sydney received including Narcolepsy and Sleep Apnea and why Dr Avis didn't feel these told the whole story of Sydney's airway challenges
*treatments Sydney tried before opting for the MMA surgery, including a Mandibular Advancement Device and a CPAP.
*diagnostic tests Sydney underwent, including the DISE procedure and sleep studies
*MMA surgery and recovery from it
*the non-profit "O2 Breathe" the father/daughter duo began and the Documentary film "Airway" they have been working on for four years.
Airway Documentary: https://www.airwaydocumentary.com/
O2 Breathe: https://www.o2-breathe.org/
Connect with Sydney and Victor: @sydneyavis @dr.victoravis
Emma is joined by Lauren Freedman, host of "Uninvisible Pod". On her podcast, Lauren provides a platform for discussion of invisible illnesses following her own health struggles.
Some of the things we discussed in this episode:
Coping with multiple diagnoses - not only sleep apnea but depression, anxiety and Hashimoto's (an autoimmune disorder).
Lauren’s experience of trying to hold down a job while struggling to find answers in her health journey.
The healthcare system and Lauren's need to advocate for herself
Emma asks all about the concept of 'spoonies' and spoons theory to help explain the limited energy people coping with chronic health problems have. This is the original article Lauren references https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
I really encourage you to check it out Lauren's podcast if you haven’t already. https://uninvisiblepod.com/ This is also the place to download the "Hacking Healthcare" resource Lauren and Emma discuss.
Emma asked Lauren about her interview with Nitika Chopra, the found of the Chronicon support community. You can find it here https://chronicon.co/
Find Lauren's social media handles and connect with her: https://uninvisiblepod.com/about/
Sponsors of this episode:
MYOTAPE click here to buy the myotape discussed in this episode.
BetterHelp click here to sign up and get 10% off your first month of online counselling.
Avocado Mattresses click here
Or visit www.sleepapneastories.com/services
I really wanted to have Sam on the podcast because he’s young and so often younger sleep apnea sufferers don’t get a lot of attention. Some of the things we discussed were:
-
How Sam’s friends first noticed his snoring and pauses in breathing
-
Getting diagnosed with Sleep Apnea with an at home sleep study
-
The Canadian Healthcare system
-
What it feels like to be a young person with a chronic sleep disorder
-
Mouth breathing and nasal breathing, mouth-taping
Connect with Sam on Instagram: @sammycg88
Connect with Emma on Instagram: @sleepapneastories
Sponsors of this episode:
MYOTAPE click here to buy the myotape discussed in this episode.
BetterHelp click here to sign up and get 10% off your first month of online counselling.
Or visit www.sleepapneastories.com/services
'Sleep Disordered Breathing' has "breathing" right there in the name! Yet breathing is overlooked as a vital component in treating Sleep Apnea. Patrick McKeown is a breathing expert and founder of the Buteyko Clinic. He explains the different types of sleep apnea and how breathing correctly can help address them.
Some things we discussed:
- Buteyko breathing - slow, light and deep using diaphragm;
- How nasal breathing can help people with Sleep Apnea versus mouth breathing;
- Mouth taping to support nasal breathing - specifically Myotape;
- The four types of Sleep Apnea;
- Patrick’s newest book “The Breathing Cure”.
Sponsors of this episode:
MYOTAPE click here to buy the myotape discussed in this episode.
BetterHelp click here to sign up and get 10% off your first month of online counselling.
Or visit www.sleepapneastories.com/services
Emma shares an update on her own journey with Sleep Apnea. Since starting the podcast earlier this year, Emma has learned so much from her guests and her own reading and research. On this episode, Emma discusses:
- the books "Breath" by James Nestor and "Oxygen Advantage" by Patrick McKeown. Both these books discuss the benefits of nasal breathing;
- beginning Myofunctional therapy to improve tongue placement for proper nasal breathing;
- her discover of Myotape to gently keep her mouth closed at night.
- Emma recaps the first 9 episodes and looks ahead to new episode coming in January 2021!
Connect with Emma on instagram: @sleepapneastories
Email: sleepapneastories@gmail.com
www.sleepapneastories.com
Emma mentioned Myofunctional Therapy with Kaitlyn Shrum, you can contact her here: www.southernspeechandmyo.com
Emma is joined by Edgar Castro Tello who shares his personal journey with sleep apnea. Emma and Edgar discuss:
Having sleep apnea as the child of undocumented immigrants without access to healthcare; Experiencing extreme symptoms at high altitude in Colorado; Sleep Apnea in the gay community, especially among "bears"; Diagnosis and treatment of Sleep Apnea allowing mental health problems to be acknowledged and treated.
Connect with Edgar: @zageguy on Instagram
Emma is joined by Dr Jose Gonzalez. In the episode they discuss Jose's recent diagnosis with sleep apnea and how he is adjusting to life with his CPAP. Emma and Jose talk about:
- Loud snoring and how often it is ignored as normal when it can indicate Sleep Apnea;
- Being single and in a relationship with Sleep Apnea;
- Anxiety as a warning sign for Sleep Apnea;
- Self image issues which come up with CPAP treatment;
- The media's portrayal of Sleep Apnea.
Connect with Jose on Instagram: @dr.jose.gonzalez
Emma would love you to complete her listener survey. Click this link to complete the survey: https://www.surveymonkey.com/r/VD5JMPV
Sign up for email at www.sleepapneastories.com and receive a free pdf journal to help you get better sleep with Sleep Apnea.
Emma mentioned "Breath" by James Nestor - links to buy: https://www.mrjamesnestor.com/breath/
Emma is joined by Dr David Madow. David shares his personal journey with sleep apnea. For anyone who is new to using a CPAP, this episode is a must! David talks through all the adjustments he made to make using a CPAP more comfortable. In this episode we discussed: how it feels to suffer with anxiety caused by sleep apnea; David's own experience of using an oral appliance to treat sleep apnea and then changing to a CPAP; how David educated himself on all things CPAP to improve his comfort and maximize results. Connect with David: Email: rundrdave@gmail.com Instagram: davidmadow David's youtube videos about CPAP - https://www.youtube.com/playlist?list=PLO8l2YoJXkAPjnvnK88y1tn1cncmpDDaS OSCAR program to analyse your CPAP results - http://www.apneaboard.com/wiki/index.php/OSCAR_Installation Emma's latest article on Anxiety and Sleep Apnea - https://sleepapnea.sleep-disorders.net/living/undiagnosed-symptoms-anxiety/
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Emma is joined by Dr Natasha Hassam-Sarwar, a dentist specializing in optimizing sleep. Natasha is also a Sleep Coach so Emma took the opportunity to pick her brain on all things sleep apnea! Dr Hassam-Sarwar explains: the difference between Sleep Apnea and UARS (Upper Airway Resistance Syndrome); why so many sleep apnea sufferers grind and clench their teeth; mouth breathing versus nostril breathing and why nostril breathing is so much better! Connect with Natasha: Instagram: @drnatashasarwar Email: drnatashasarwar@gmail.com www.aerasleepco.com
Emma is joined by Eric Burton who suffers from Sleep Apnea himself and also works as a Sleep Supplies Specialist with Aeroflow in North Carolina. Eric shares about his own journey with sleep apnea. Eric describes his sleep study and how he adjusted to his CPAP. Eric has a lot to share about his work advising patients on the best mask or equipment for them. We also talked about how going on a trip and leaving your CPAP at home is NOT a great plan and never to be repeated! Connect with Eric: ericburton06@gmail.com
Emma is joined by Gary Knight. Gary experienced a lot of the common symptoms of sleep apnea before his diagnosis in 2016, in particular he noticed overwhelming daytime sleepiness. Gary discusses the treatment he received, where he lives in the UK, and his first experiences with his CPAP. Gary lost over 70lbs after he was diagnosed and we discuss his attitude and approach to exercise and the effect his weight loss had on his sleep apnea (*spoiler alert - it helped!!!). Having learned to manage his own sleep apnea, Gary has gone on to help others with his Facebook support group "Southern UK Sleep Apnoea and CPAP". For more on Gary's journey: https://www.hope2sleep.co.uk/sleep-apnoea-patient-stories-gary.html https://www.blf.org.uk/your-stories/how-a-cpap-machine-changed-my-life Connect with Gary: Instagram: @grassbasher Email: sleepapnoea@mail.com
Emma is joined by Dr Joi Freemont, a dentist who treats patients with sleep apnea in her practice but also suffers with sleep apnea herself. Joi describes the shock of her father's death from sleep apnea and how that experience opened her eyes to the condition. Whilst attending a professional training on oral appliances and taking a sleep study, Dr Freemont discovered that she also suffered with sleep apnea. Knowing that the CPAP would not be a good fit for her, Joi got an oral appliance and immediately felt better with increased energy. Dr Freemont is on a mission to help spread awareness of the need to be tested for sleep apnea but also the availability of alternative treatments if CPAP doesn't work for a particular patient. @freemontdental on instagram https://www.thehapevilledentist.com/
Meet your host, Emma Cooksey, and join her as she shares her personal journey with Sleep Apnea. Emma shares her lowest moment when she realized she needed to get help along with the tips and tricks she wishes someone told her about her Cpap when she was first diagnosed with Obstructive Sleep Apnea in 2008. Emma talks about living her best life with sleep apnea 12 years after diagnosis, including her 3 step morning ritual which helps her face the day no matter how the night's sleep went. Do you have a sleep apnea story to share?
Get in touch!
@sleepapneastories on instagram or email sleepapneastories@gmail.com
Emma and her guests are not medical professionals. Their discussions are about the personal journeys of people suffering with Sleep Apnea and are not giving medical advice. Be sure to consult with your own healthcare providers about your own unique circumstances.
Struggling with your CPAP? Sign up for Emma's "Mastering your CPAP" online course here
Sleep Apnea Stories is a new podcast with Emma Cooksey. Emma has lots to share about her own journey with sleep apnea but really wants to hear from YOU. If you suffer from sleep apnea but haven’t let it hold you back from living every day to the fullest, get in touch! Contact Emma on Instagram @sleepapneastories or email sleepapneastories@gmail.com.