Seizing Life: Recent Episodes
CURE Epilepsy
Seizing Life, a CURE Epilepsy podcast hosted by Kelly Cervantes, aims to inspire empathy & give hope as we search for a cure for epilepsy. Together, we can find a cure. We can seize life.
Dr. Kendra Cagniart shares her son’s journey with epilepsy, from a traumatic birth in which he arrived in status epilepticus through his current period of seizure freedom at the age of 9. This is an amazing and ultimately hopeful journey of a young boy living with epilepsy.
In honor of SUDEP Action Day on Wednesday, October 15th, we speak with Maria Teresa Ioannou of the Joanna Sophia Foundation who tragically lost her nine-year-old daughter Joanna Sophia to SUDEP in 2018.
Dr. Olivia Hoffman, post-doctoral researcher in Dr. Avtar Roopra’s lab at the University of Wisconsin-Madison, discusses one of the most exciting discoveries in epilepsy research in recent years, a repurposed drug that has shown remarkable promise in eliminating seizures and restoring cognition in mice.
This week on Seizing Life®, journalist, television executive, and mother Scarlette Whyte joins us to share her family’s experience with Panayiotopoulos Syndrome, a type of early childhood epilepsy with which two of her three children have been diagnosed.
Longtime CURE Epilepsy Champion and current board member Shalee Cunneen comes back to the podcast to share her family’s journey with epilepsy and fundraising efforts for a new CURE Epilepsy research initiative.
Dr. Dan Lowenstein discusses the current efforts to push Congress to adopt a National Plan for Epilepsy, explaining who is behind it, what it is, and what it could mean to the epilepsy community.
Mike Simmel shares his epilepsy journey, explains how his passion for basketball helped him navigate the impacts of epilepsy, and recounts how a personal experience with epilepsy stigma inspired him to help kids with epilepsy and other challenges.
Dr. Connie Tomaino, music therapist and co-founder of the Institute for Music and Neurologic Function, discusses how music therapy is used to treat neurologic conditions and explains what we know about the power of music to heal the brain.
This month on Seizing Life® Dr. Kelly Tyson shares her decade-long journey to an epilepsy diagnosis. Despite numerous visits to various medical experts through the years and majoring in neuroscience in college, Kelly was never referred to a neurologist, nor did she recognize the “episodes” she experienced as seizures. Kelly details how she managed these episodes through college, graduate school, and medical school, and reveals the surprising way that she came to realize she was having seizures.
This month Seizing Life® goes on location at the Joey’s Song Freezing Man Festival to speak with Kay Hanley and John Cowsill, two musicians with personal connections to epilepsy who participated in the multiday music festival to raise money for epilepsy research.
Patricia Dean, ARNP and the Epilepsy Network Specialist in the Comprehensive Epilepsy Center at Nicklaus Children’s Hospital in Miami, discusses managing the relationship with your child’s epilepsy care team.
Dr. Madeleine Oudin shares her daughter’s epilepsy journey following a devastating genetic diagnosis and the onset of infantile spasms, and explains how it has impacted her work as a researcher in pursuing a new potential therapy around the SCN8A gene.
Joey’s Song founder Mike Gomoll shares his son’s epilepsy story and discusses the creation, growth, and evolution of Joey’s Song into the multi-artist, multi-day, “Freezing Man Festival.”
The post Overcoming Seizures to Pursue a Neuroscience Degree and Help Others Living with Epilepsy appeared first on CURE Epilepsy.
The post Overcoming Seizures to Pursue a Neuroscience Degree and Help Others Living with Epilepsy appeared first on CURE Epilepsy.
The post Post-Traumatic Epilepsy: What We Know and Where the Research is Going appeared first on CURE Epilepsy.
Dr. Elisa Zanier of the Mario Negri Institute in Milan, Italy discusses the current state of research into Post-Traumatic Epilepsy (PTE).
The post Post-Traumatic Epilepsy: What We Know and Where the Research is Going appeared first on CURE Epilepsy.
After losing her son to a sudden and devastating form of epilepsy, Nora Wong founded the NORSE Institute to raise awareness and fund research.
The post The NORSE Institute: A Mother’s Loss Drives Awareness and Research into a Devastating Form of Epilepsy appeared first on CURE Epilepsy.
Jon Tuteur shares his journey with adult onset epilepsy. From his first seizure at age thirty, through his epilepsy diagnosis, treatment, and eventual brain surgery, Jon discuses the physical and emotional impacts of seizures, medications, diagnostic tests, and medical procedures
The post The Sudden and Life-Altering Impact of Adult-Onset Epilepsy appeared first on CURE Epilepsy.
Dr. Laura O’Dwyer discusses the fastest growing segment of people living with epilepsy, adults over 65 years old. Dr. O’Dwyer provides an overview of the causes of epilepsy in older adults, the subtle signs to look for, and the importance
The post Older Adults and Epilepsy: the Causes, the Signs, and the Treatments appeared first on CURE Epilepsy.
This month on Seizing Life® author Laura Beretsky shares her decades-long journey with epilepsy chronicled in her recent memoir Seizing Control.
The post One Woman’s Epilepsy Journey Through Childhood, Parenting, Discrimination, and Surgery appeared first on CURE Epilepsy.
A mother uses her nursing knowledge to advocate for her son’s epilepsy care and surgery.
The post A Nurse’s Knowledge & A Mother’s Love Leads to Son’s Life-Changing Brain Surgery appeared first on CURE Epilepsy.
Dr. Daniel Goldenholz of Beth Israel Deaconess Medical Center discusses the current and potential impacts of artificial intelligence on epilepsy care.
The post Artificial Intelligence and Epilepsy: The Promise & Pitfalls of AI in Diagnosis and Treatment appeared first on CURE Epilepsy.
This week on Seizing Life®, we revisit several compelling conversations from the past year in our Best of Seizing Life 2023 compilation episode.
The post Best of Seizing Life 2023 appeared first on CURE Epilepsy.
This week on Seizing Life® we speak with two rare epilepsy organizations, The KCNT1 Epilepsy Foundation and The Cute Syndrome Foundation, about community, awareness, and advancing research.
The post Rare Epilepsy Organizations: Fostering Community and Advancing Research appeared first on CURE Epilepsy.
This week on Seizing Life® Annette Adkins discusses the impacts of intractable epilepsy on her life, and how it led her to a regenerative brain cell clinical trial that has brought her a year of seizure freedom.
The post Regenerative Brain Cell Therapy: One Woman’s Journey to Seizure Freedom appeared first on CURE Epilepsy.
This week on Seizing Life® epilepsy researcher Dr. Chris Dulla provides information about infantile spasms, from detection and diagnosis to current research and future improvements in treatment.
The post Infantile Spasms: The Facts, The Research, and The Hope for the Future appeared first on CURE Epilepsy.
This week on Seizing Life® Dr. Elizabeth Gerard discusses concerns specific to women living with epilepsy. From puberty to menstruation, contraception, pregnancy, and menopause, we explore managing epilepsy through all stages of a woman’s life.
The post Epilepsy in Women: Challenges, Concerns, and Considerations appeared first on CURE Epilepsy.
This week on Seizing Life® Peter Burpee shares his experiences with absence and tonic clonic seizures and explains why he’s running for Team CURE Epilepsy in the upcoming NYC Marathon.
The post NYC Marathoner Achieves Seizure Control and Runs for Epilepsy Research appeared first on CURE Epilepsy.
This week on Seizing Life® Dr. Richard Goldstein, Associate Professor of Pediatrics at Harvard Medical School, discusses his research into both Sudden Unexpected Death in Pediatrics (SUDP) and the grieving process of bereaved parents.
The post Searching for Answers, Providing Support, and Understanding Grief After the Death of a Child appeared first on CURE Epilepsy.
This week on Seizing Life® Kate Kostolansky shares her daughter’s infantile spasms diagnosis and treatment journey, and explains how these experiences inspired a children’s book to help newly-diagnosed families.
The post Infantile Spasms Diagnosis and Treatment Journey Inspires Children’s Book appeared first on CURE Epilepsy.
This week on Seizing Life® Barbara D’Amora tells us about her son Nicholas, who lived with autism and epilepsy and became an active and inspirational advocate for the autistic community despite being nonverbal.
The post An Extraordinary Life of Autism, Epilepsy, and Advocacy appeared first on CURE Epilepsy.
This week on Seizing Life®, recent college graduate and CURE Epilepsy summer intern Kiley Flowers joins us to talk about Jeavons syndrome and share her personal journey with this rare form of generalized epilepsy.
The post A Young Woman’s Journey with Jeavons Syndrome appeared first on CURE Epilepsy.
This week on Seizing Life® Clare Phelps shares the difficult diagnosis and frustrating treatment journey of her young daughter Sophie, whose epilepsy has so far been treatment resistant.
The post Pursuing Effective Epilepsy Treatment and Running for Research appeared first on CURE Epilepsy.
This week on Seizing Life® Mariah Mayhugh recounts her epilepsy journey, from hiding her diagnosis to becoming a passionate advocate for epilepsy awareness.
The post From Hiding Diagnosis to Advocating for Awareness: A Young Woman’s Epilepsy Journey appeared first on CURE Epilepsy.
This week on Seizing Life®, we speak with Hailey Yoon about the emotional and psychological impacts that childhood epilepsy may have even years after seizures subside.
The post A Teen Uncovers the Emotional Impacts of Childhood Seizures appeared first on CURE Epilepsy.
This week on Seizing Life® Dr. Dave Clarke gives us a thorough overview of the specialists and services available at comprehensive epilepsy centers and offers advice about when and how to access these care options.
The post Comprehensive Epilepsy Centers: An Insider’s Guide appeared first on CURE Epilepsy.
This week on Seizing Life® we speak with epilepsy advocates and married couple Tiffany and Chris Kairos about the impact that epilepsy has had on their marriage and professional lives.
The post Love, Marriage, and Epilepsy appeared first on CURE Epilepsy.
This week on Seizing Life®, father and therapist Bud Hager discusses the daily responsibilities and the overarching emotional journey of parenting a child with a rare disease.
The post The Caregiver Journey: A Father’s Story appeared first on CURE Epilepsy.
This week on Seizing Life® Dr. Patrice Jackson-Ayotunde discusses her 20+ years of epilepsy drug research and her decade-long epilepsy fundraising efforts.
The post Epilepsy Researcher Compounds Lab Work with Fundraising appeared first on CURE Epilepsy.
This week on Seizing Life® Matt Perrone shares his epilepsy journey, discusses the impacts of epilepsy on his mental health, and explains how his daughter’s diagnosis spurred him to create EpiPalooza.
The post A Daughter’s Diagnosis Inspires Concerts for Epilepsy appeared first on CURE Epilepsy.
This week on Seizing Life® Reid Rainwater and his father Ryan share Reid’s epilepsy treatment journey and the impacts of epilepsy and stigma on his education and tennis career as one of the top young players in Oklahoma.
The post Teen Tennis Player Remains on Court Despite Seizures and Stigma appeared first on CURE Epilepsy.
This week on Seizing Life® Colleen Jendreas shares her son Owen’s epilepsy journey and discusses the two interventions that have significantly improved his quality of life.
The post From LGS to Surgery to Just Being a Kid: A Mother Shares Her Son’s Epilepsy Journey appeared first on CURE Epilepsy.
This week on Seizing Life® Advanced Practice Provider Lucretia Long shares her 30 years of experience in the epilepsy field and discusses the crucial role nurses and other non-physician providers play in epilepsy care.
The post The Crucial Role of Nurses in Epilepsy Care appeared first on CURE Epilepsy.
This week on Seizing Life Susan Axelrod, CURE Epilepsy founder, and Barbara Kelly, the founding Research Chair, discuss the past, present, and future of the organization and epilepsy research.
The post From Desperation to Hope: The Founding and Future of CURE Epilepsy appeared first on CURE Epilepsy.
This week on Seizing Life® Carmen Zannier shares her 35 year epilepsy journey, discusses her recent decision to go public with her diagnosis, and explains how her passion for mountain climbing has led her to raising funds for epilepsy research.
The post Sharing Epilepsy Diagnosis After Decades Leads to Climbing for Research appeared first on CURE Epilepsy.
This week on Seizing Life®, the Tsane family share daughter Christiane’s epilepsy diagnosis and treatment journey, and explain how they manage her seizures while nurturing her love of competitive running.
The post Epilepsy Can’t Stop Young Girl’s Competitive Spirit appeared first on CURE Epilepsy.
This week on Seizing Life® Ara Carbonneau shares her decades-long epilepsy journey from initial febrile seizures caused by meningitis at seven months old to her epilepsy diagnosis at the age of 36.
The post After Decades of Seizures, an Epilepsy Diagnosis Begins to Provide Answers appeared first on CURE Epilepsy.
This week on Seizing Life® we look at diagnostic and surgical tools that assist physicians in localizing and removing areas of the brain that produce seizures.
The post Recent Advances in Diagnostic and Surgical Tools for Epilepsy appeared first on CURE Epilepsy.
Epilepsy advocate Kate Neale Cooper and host Kelly Cervantes share their experiences parenting children with epilepsy and offer advice on advocating for your child’s epilepsy care.
The post Unleashing Your Inner Mama Bear appeared first on CURE Epilepsy.
This week on Seizing Life® kids ask pediatric neurologists about epilepsy. Dr. Kristen Park of Children’s Hospital of Colorado and Dr. Adam Numis of the UCSF Benioff Children’s Hospital answer questions from kids on a wide variety of topics related
The post Kids Ask Docs the Darndest Things About Epilepsy appeared first on CURE Epilepsy.
This week on Seizing Life® Neuropsychologist Eva Alden joins us to offer advice for those with epilepsy and their caregivers for coping with stress, anxiety, depression, and travel during the holidays.
The post Managing Epilepsy with the Stress of The Holidays appeared first on CURE Epilepsy.
In support of Infantile Spasms Awareness week , Monica Diaz-Greco shares her daughter’s epilepsy journey from initial onset and diagnosis of infantile spasms through a VNS implant and brain surgery.
The post A Mother Shares her Daughter’s Journey from Infantile Spasms to Brain Surgery appeared first on CURE Epilepsy.
This week on Seizing Life® we speak with neurologist Dr. Alice Lam about the potential impacts of seizures on cognition and memory. We discuss both the possible short-term and long-term effects of epilepsy on cognition and memory, and the differering
The post The Impact of Epilepsy and Seizures on Cognition and Memory appeared first on CURE Epilepsy.
This week on Seizing Life® former Marine Captain Jack Somers shares his long journey to an epilepsy diagnosis. After more than a decade of seizures and a diagnosis of “generalized seizure disorder,” Jack was finally told that he has epilepsy.
The post A Marine Explains the Value of Receiving An Accurate Epilepsy Diagnosis A Decade Late appeared first on CURE Epilepsy.
CURE Epilepsy Board Member Hannah Whitten shares her experiences growing up with a brother with epilepsy and the tragedy of losing him to SUDEP.
The post Remembering a Brother Lost to SUDEP and Finding Hope in Community appeared first on CURE Epilepsy.
Guest host David Axelrod interviews Seizing Life host Kelly Cervantes about turning her epilepsy experience into advocacy, hope, and scientific advances.
The post Celebrating 100 episodes: Community, Impact, and Hope appeared first on CURE Epilepsy.
This week we talk to Dr. Refugio Sepulveda about challenges faced by the Hispanic community in accessing quality epilepsy care and learn about a program aimed at addressing these issues.
The post Working to Overcome Disparities in Epilepsy Care in the Hispanic Community appeared first on CURE Epilepsy.
This week we look at medical cannabis as a treatment for epilepsy with Sarah O’Hanlon. Sarah shares her journey to find relief for her son’s seizures from Colorado to advocacy to a master’s in medical cannabis.
The post Medical Cannabis: A Life Changing Journey for Mother and Son appeared first on CURE Epilepsy.
This week on Seizing Life® we talk seizure alert dogs. Jessa Kenworthy of 4 Paws for Ability provides everything you always wanted to know about seizure alert dogs and how they serve those living with epilepsy.
The post Seizure Dogs: Predicting Seizures and Providing Comfort appeared first on CURE Epilepsy.
This week epilepsy advocate and mother Kate Neale Cooper explains how a new diagnostic tool enabled doctors to localize her daughter’s seizures after 16-years and ultimately perform successful epilepsy surgery.
The post Determination and New Technology Lead to Successful Epilepsy Surgery appeared first on CURE Epilepsy.
Filmmaker Miles Levin discusses growing-up with epilepsy and turning his experiences into the award-winning short film “Under the Lights”.
The post Growing Up with Epilepsy leads to Making Movies About It appeared first on CURE Epilepsy.
This week on Seizing Life, epilepsy researcher Dr. Nicholas Varvel explains the connection between inflammation and epilepsy, the promising research being done, and the potential treatment.
The post Inflammation’s Role in Epilepsy and How it Might be Prevented appeared first on CURE Epilepsy.
Child neurologist, Dr. Doug Nordli provides a guide for parents of children with epilepsy to help navigate diagnosis, physicians, and treatment decisions.
The post A Parent’s Guide to Your Child’s Epilepsy Diagnosis and Treatment appeared first on CURE Epilepsy.
This week on Seizing Life we present personal stories of three key areas of epilepsy research: Post-Traumatic Epilepsy, SUDEP, and Drug-Resistant epilepsy.
The post Epilepsy Stories and the Research Making a Difference appeared first on CURE Epilepsy.
Yssa DeWoody of Ring14 USA and the Rare Epilepsy Network provides a primer on rare epilepsies: what they are, how they are diagnosed and treated, and where to find resources and support.
The post Rare Epilepsy: Collaborating for Advocacy, Research, and Community appeared first on CURE Epilepsy.
We focus on mental health in children and teens with epilepsy. Pediatric neuropsychologist Madison Berl discussers potential issues and what to do.
The post Monitoring Mental Health in Kids with Epilepsy appeared first on CURE Epilepsy.
This week on Seizing Life® Jim Abrahams, creator of some of the biggest comedy films of all-time, shares his son’s troubling and remarkable epilepsy journey to seizure freedom through the ketogenic diet.
The post A Remarkable Journey to Seizure Freedom Through the Ketogenic Diet appeared first on CURE Epilepsy.
Mark DeFee shares his years-long journey with post-traumatic epilepsy from his diagnosis following multiple concussions, through his years of denial in college, to his acceptance and efforts to manage his seizures.
The post A Post-Traumatic Epilepsy Journey: Diagnosis Acceptance Leads to Career Helping Others appeared first on CURE Epilepsy.
This week on Seizing Life ®, Channing Seideman shares her epilepsy story from her first seizure to a diagnosis of juvenile myoclonic epilepsy and tells us how she found safe ways to continue skiing and horseback riding.
The post Finding Solutions and Pursuing Passions with Drug-Resistant Epilepsy appeared first on CURE Epilepsy.
This week on Seizing Life college student Kiara Mowat shares her epilepsy journey from her diagnosis in 2018 at age 14 to her first year in college. Hear this personal epilepsy story from an amazing young woman.
The post A Young Woman’s Epilepsy Journey of Acceptance, Empowerment, and Advocacy appeared first on CURE Epilepsy.
Today on Seizing Life®, Gardiner Lapham discusses the creation of PAME (Partners Against Mortality in Epilepsy) a group that aims to raise awareness of mortality in epilepsy in order to reduce epilepsy-related deaths.
The post Addressing and Reducing Epilepsy-Related Deaths appeared first on CURE Epilepsy.
Today on Seizing Life®, Dr. Elaine Kiriakopoulos explains the HOBSCOTCH program, a personalized program that helps people with epilepsy manage and improve memory and cognition to lead happier, more productive lives.
The post Learning to Manage Cognitive Challenges for People with Epilepsy appeared first on CURE Epilepsy.
This week in honor of International Epilepsy Day we speak with Julianna Shinnick about epilepsy care, stigma, and advocacy in the Mahenge region of Tanzania in East Africa.
The post Personal Epilepsy Experience Inspires International Epilepsy Advocacy appeared first on CURE Epilepsy.
This week on Seizing Life we take a deep dive into genetic testing and counseling; what it is, how it works, what it can provide for patients and families, and what it may promise for the future of epilepsy knowledge
The post Genetic Testing & Counseling for Epilepsy From Genome to Exome and More appeared first on CURE Epilepsy.
This week on Seizing Life, we revisit several compelling conversations from the past year in our Best of Seizing Life 2021 compilation episode.
The post The Best of Seizing Life 2021 appeared first on CURE Epilepsy.
This week on Seizing Life® we conclude our two-part episode about infantile spasms (IS) by focusing on the research being conducted to improve understanding, detection, and treatment options for IS.
The post Infantile Spasms – part 2: The Hope of Research appeared first on CURE Epilepsy.
This week on Seizing Life®, we focus on infantile spasms (IS), a rare and particularly severe epilepsy syndrome that typically begins within the first year of life. Our panel of experts addresses everything you need to know about IS, from
The post Infantile Spasms – Part 1: A Medical Emergency appeared first on CURE Epilepsy.
This week on Seizing Life we speak with Daniel, Paula and David Allbeck about their family’s journey with epilepsy from Daniel’s initial diagnosis over 15 years ago to the results of his recent brain surgery.
The post A Family’s Epilepsy Journey: From Diagnosis to Surgery appeared first on CURE Epilepsy.
This week on Seizing Life ® we focus on traumatic brain injury (TBI) and post-traumatic epilepsy (PTE) in veterans with Dr. Lauren Harte-Hargrove, Associate Director of Research at CURE Epilepsy, who shares insights on CURE Epilepsy’s Post-Traumatic Epilepsy initiative. We
The post Post-Traumatic Epilepsy and Our Veterans: Impact, Research, and Hope appeared first on CURE Epilepsy.
In observance of SUDEP Action Day on Wednesday, October 20, we speak with Dr. Elizabeth Donner about all aspects of SUDEP (Sudden Unexpected Death in Epilepsy). In this thorough and thoughtful discussion, Dr. Donner explains what SUDEP is, what we
The post SUDEP: What To Know and What To Do appeared first on CURE Epilepsy.
Today on Seizing Life®, we speak with Cindy and Elvin Angulo about their daughter Vera’s Sturge-Weber Syndrome diagnosis and its connection to epilepsy.
The post A Brave Little Girl’s Journey with Sturge-Weber Syndrome appeared first on CURE Epilepsy.
The numerous types of seizures and the widely varying impacts of epilepsy are two key factors contributing to the public’s misunderstanding of the condition. This week on Seizing Life® we speak with parents who have two children with epilepsy that
The post One Family, Two Different Epilepsy Diagnoses appeared first on CURE Epilepsy.
In a rebroadcast of an episode from June 2019, Dr. Charles Marcuccilli, Director of Pediatric Epilepsy at Rush University Medical Center in Chicago, explains why epilepsy is so misunderstood, discusses the stigma around it, and suggests what patients, caregivers and
The post Epilepsy… It’s Complicated (rebroadcast) appeared first on CURE Epilepsy.
CURE Epilepsy CEO Beth Dean explains how the organization funds research, why it remains “patient-focused” in its mission, and what areas of epilepsy research offer the most promise for finding cures.
The post Funding Epilepsy Research: How CURE Epilepsy Advances Science to Find a Cure appeared first on CURE Epilepsy.
With students preparing to head back to college campuses, we revisit several previous episodes in which students with epilepsy and their parents share experiences and offer advice about choosing and attending college.
The post Epilepsy and College: Students and Parents Share Advice and Recommendations appeared first on CURE Epilepsy.
Today on Seizing Life, we speak with epilepsy researcher, educator, and patient Dr. Steve White. Dr. White has been involved in the field of epilepsy research for over 40 years, is a former CURE Epilepsy grant-recipient and a current member
The post From Epilepsy Researcher to Epilepsy Patient: A New Perspective appeared first on CURE Epilepsy.
A mother’s awareness of infantile spasms and persistence contributes to a positive outcome for her daughter.
The post Infantile Spasms: Awareness, Observation, and Intervention appeared first on CURE Epilepsy.
Epilepsy patient, counselor, and author Jon Sadler discusses living with epilepsy for more than 50 years and how his experiences have shaped his perspective on epilepsy and informed his efforts to become a counselor and help fellow patients and caregivers.
The post Living and Thriving with Epilepsy appeared first on CURE Epilepsy.
After the loss of his fiancé to SUDEP, Geoff Applegate a single-parent was left coping with his own grief while also learning how to help his young son understand the loss of his mother.
The post After SUDEP: A Journey of Grief and Hope appeared first on CURE Epilepsy.
When Paul St. Pierre encountered a lack of understanding of epilepsy at his school, he and his mother, Colleen, took action to ensure that all schools in the state of New Jersey were educated on epilepsy and seizure safety.
The post Epilepsy Education and Seizure Safety in Schools appeared first on CURE Epilepsy.
For many people, their 20’s are an exciting time of personal and professional growth. It may be the first time you’re on your own, beginning a career and making new friends. Your world is a mix of social activities and
The post Finding Balance: Managing Epilepsy and Work appeared first on CURE Epilepsy.
Elissa Moore recounts her son Cormac’s journey to a diagnosis and details the challenges they encountered in pursuit of the right treatment for his epilepsy.
The post A Mother’s Determination: Advocating for Your Child’s Epilepsy Care appeared first on CURE Epilepsy.
Author and journalist Liane Kupferberg Carter speaks to us about her journey raising a son with a dual diagnosis of autism and epilepsy.
The post Raising A Child with Both Autism and Epilepsy appeared first on CURE Epilepsy.
College students Emma Cardwell and Nathan Bliss discuss their experiences growing up with a sibling who has epilepsy.
The post Growing Up Alongside a Sibling with Epilepsy appeared first on CURE Epilepsy.
Alek Stewart has lived with seizures since he was a teenager. But a sudden and dramatic increase in frequency caused Alek and his wife Brittany to make adjustments to their daily lives, and inspired them to create a community, build
The post Community, Fatherhood, and Seizures appeared first on CURE Epilepsy.
We talk to Angie Froehlich about parenting a teenage daughter living with epilepsy.
The post Helping Your Teen Navigate Epilepsy appeared first on CURE Epilepsy.
A newly diagnosed patient educates herself on epilepsy to advocate for the treatment and therapy that works best for her.
The post Epilepsy Advocacy and Education: Determining The Care You Need appeared first on CURE Epilepsy.
We revisit just a few of the amazing conversations from 2020. From growing up with epilepsy to an Army Captain’s battle with PTE, examining the epilepsy/mental health connection and finding hope in genetic research, Seizing Life spoke with a number
The post The Best of Seizing Life 2020 appeared first on CURE Epilepsy.
In the finale of our 4-part series exploring the drug development process, we get the patient perspective on participating in clinical trials.
The post Epilepsy Drug Development: Clinical Trials – A Patient’s Perspective appeared first on CURE Epilepsy.
In the third of our 4-part series exploring the drug development process, we share what patients should know about participating in clinical trials.
The post Epilepsy Drug Development: How Patients Can Make An Impact appeared first on CURE Epilepsy.
In the second of our 4-part series exploring the drug development process, we take a deep dive into the clinical trial phases.
The post Epilepsy Drug Development: Clinical Trials appeared first on CURE Epilepsy.
In the first of a 4-part series about new drug development and clinical trial participation, we explain the complex process starting with basic research through pre-clinical trials.
The post Epilepsy Drug Development: The Journey Begins appeared first on CURE Epilepsy.
Mike Coburn of Research!America shares insights on the near- and long-term impacts of the COVID-19 pandemic on epilepsy research and the research community at large.
The post The Impact of COVID-19 on Epilepsy Research appeared first on CURE Epilepsy.
Former U.S. Army Captain Patrick Horan and his wife Patty discuss how post traumatic epilepsy (PTE), severely impacted his recovery from a devastating war wound.
The post A Veteran’s Battle with Post Traumatic Epilepsy appeared first on CURE Epilepsy.
On this episode of Seizing Life, Libby Boyce and Jessica Brandes, two mothers who each lost a son to SUDEP, Sudden Unexpected Death in Epilepsy, discuss transforming tragedy and grief into action.
The post Speaking Up About SUDEP: Two Mothers’ Stories appeared first on CURE Epilepsy.
Kelly and Miguel Cervantes discuss coping with the impacts and challenges of parenting a child with special needs in a never-seen episode recorded in November 2018.
The post Mourning Your Idealized Life: Resilience, Love and Acceptance appeared first on CURE Epilepsy.
What you should know about brain surgery for epilepsy from both the patient and physician perspective.
The post Seizing Life Highlights: Epilepsy Surgery appeared first on CURE Epilepsy.
The post A Disability-Friendly Model for Independent Living appeared first on CURE Epilepsy.
Seizures explained simply. Explore how they happen, why they look different from person to person, and why different treatments options work for different people.
The post All About Seizures: How Understanding Informs Treatment appeared first on CURE Epilepsy.
After a military training accident, doctors worked tirelessly to fix this Marine’s hand. But the bigger consequence, the risk of post-traumatic epilepsy, went unnoticed.
The post The “Invisible” Consequences of Traumatic Brain Injury appeared first on CURE Epilepsy.
Sherri Brady tells us about the challenges of navigating the healthcare system as a black woman with a daughter who suffers from a rare neurological disorder.
The post Seeing the Whole Person: Disability, Race, and Healthcare appeared first on CURE Epilepsy.
PhD candidate and aspiring epilepsy researcher Christin Godale shares her journey from hiding her epilepsy to becoming an advocate and pursuing a career in neuroscience.
The post It’s Personal: Christin Godale’s Path to Epilepsy Research appeared first on CURE Epilepsy.
Talks between parents and children with epilepsy can be fraught with concerns and clashes over health, social life, and independence. This mother-daughter duo discusses how to communicate productively.
The post Growing Up and Gaining Independence with Epilepsy appeared first on CURE Epilepsy.
The connection between epilepsy and mental health issues is well-established, but is not often addressed during initial diagnosis or evaluated throughout the course of treatment. In this episode, learn how you can approach these conversations with your doctor.
The post Epilepsy and Mental Health: What You Should Know appeared first on CURE Epilepsy.
Seizure Tracker is a free app that empowers patients to take an active role in their epilepsy management while making a positive impact on the community at large.
The post Seizure Tracker™: Empowering the Community With Data appeared first on CURE Epilepsy.
For decades advocate and educator Pat Gibson has provided patients and families with information and resources to help navigate the unpredictable world of epilepsy care.
The post No One Does It Alone: Finding Support to Navigate the World of Epilepsy Care appeared first on CURE Epilepsy.
Hear how one mother is keeping her three children, one of whom has epilepsy, safe during the COVID-19 pandemic.
The post Parenting, Epilepsy and COVID19 appeared first on CURE Epilepsy.
Discover how NINDS funds epilepsy research and fosters collaboration towards cures from Program Director Dr. Vicky Whittemore.
The post NINDS and Its Role in Epilepsy Research appeared first on CURE Epilepsy.
Learn about how EEG testing provides essential data for patients, doctors, and researchers battling epilepsy.
The post EEG Testing: Its Critical Role in Epilepsy Diagnosis, Treatment, and Research appeared first on CURE Epilepsy.
CURE Taking Flight Grantee Dr. Gemma Carvill explains how genetic research discoveries in the lab can lead to precision care in the doctor’s office.
The post From Lab to Clinic: Genetic Research Is Changing Epilepsy Treatment appeared first on CURE Epilepsy.
A leading expert discusses how two newly approved rescue medicines can help epilepsy patients, families, and caregivers in dire moments.
The post New Emergency Meds to the Rescue appeared first on CURE Epilepsy.
Explore the impacts and complex challenges of addressing epilepsy in the developing world.
The post Acting Globally to Fight Epilepsy appeared first on CURE Epilepsy.
Mike Adamle was a fierce competitor in both college football and the NFL. Now, despite a formidable diagnosis, Mike fiercely tackles life with both epilepsy and CTE.
The post Mike Adamle Tackles Life with PTE and CTE appeared first on CURE Epilepsy.
All epilepsy patients and their caregivers should have a seizure action plan, and for those prone to seizure clusters rescue medications are a vital part of that plan. Now two new rescue meds provide greatly improved options.
The post What’s Your Plan? Seizure Clusters and Rescue Medications appeared first on CURE Epilepsy.
To celebrate the first year of the Seizing Life podcast, we take a look back at some of our favorite moments with unforgettable guests.
The post The Best of Seizing Life appeared first on CURE Epilepsy.
In honor of Infantile Spasms Awareness Week, we’re rebroadcasting an important episode on this severe pediatric epilepsy.
The post Infantile Spasms: Know the Signs and Take Action (Rebroadcast) appeared first on CURE Epilepsy.
Listen to one woman’s story about how developing epilepsy can suddenly change your “normal” in drastic ways.
The post Establishing Your New Normal with Epilepsy appeared first on CURE Epilepsy.
You don’t have to be a neuroscientist to understand epilepsy research. Learn how people without a science background can be empowered by research.
The post You Don’t Have to Be a Brain Surgeon to Understand Epilepsy Research appeared first on CURE Epilepsy.
In honor of SUDEP Action Day, we’re rebroadcasting an important episode of Seizing Life exploring Sudden Unexpected Death in Epilepsy (SUDEP), the risk factors, and ways patients, families, and caregivers can reduce the risk.
The post SUDEP: What You Need To Know (Rebroadcast) appeared first on CURE Epilepsy.
Author/journalist Kurt Eichenwald recounts the struggles and challenges he has faced due to uncontrolled seizures and the severe stigma and discrimination associated with epilepsy.
The post A Mind Unraveled (Rebroadcast) appeared first on CURE Epilepsy.
Kelly Cervantes sits in the guest seat to give fellow advocates tips on making a difference in the battle against epilepsy.
The post Shout from the Rooftops: Your Voice Can Help Find a CURE appeared first on CURE Epilepsy.
Learn how this college student battles epilepsy stigma by speaking up and advocating like a champion.
The post Advocate Like a Champion: Spreading Epilepsy Awareness and Standing Up for Research appeared first on CURE Epilepsy.
Find out how growing up around siblings with epilepsy shapes children’s lives.
The post Growing Pains: Living with a Sibling with Epilepsy appeared first on CURE Epilepsy.
Henry is a teen on a mission to battle epilepsy stigma and support organizations working toward a cure.
The post Fight Stigma: You’re Never Too Young To Be a Hero appeared first on CURE Epilepsy.
In this episode, learn about the family planning steps one mom took to safely manage her epilepsy while pregnant.
The post What to Expect When You’re Expecting…as a Woman with Epilepsy appeared first on CURE Epilepsy.
Learn about infantile spasms, a severe form of epilepsy, and what steps to take if you think your baby is having seizures.
The post Infantile Spasms: Know the Signs and Take Action appeared first on CURE Epilepsy.
Discover how Vagus Nerve Stimulator (VNS), a small device which acts like a pacemaker for the brain can reduce, lessen the intensity, or eliminate seizures for some individuals with epilepsy.
The post VNS: A Small Device Making a Big Difference appeared first on CURE Epilepsy.
What do you do if an insurance company decides to switch your seizure medication? Find out in this week’s episode.
The post My Condition Isn’t Generic: Why Changes to Insurance Coverage Matter appeared first on CURE Epilepsy.
Explore how the ketogenic diet can be used to control seizures in some individuals with epilepsy.
The post Food for Thought: The Keto Diet and Epilepsy appeared first on CURE Epilepsy.
Seizures resulting from traumatic brain injuries continue to impact American veterans with epilepsy long after other combat wounds have healed.
The post Post-Traumatic Epilepsy: A Lasting Impact on our Veterans appeared first on CURE Epilepsy.
Explore self-contained schools and discover why they are a great option for some students with severe disabilities.
The post How Self-Contained Schools Can Help Special Needs Children appeared first on CURE Epilepsy.
Despite 3.4 million Americans being impacted by epilepsy, the public still knows very little about this disorder. Discover the positive impact eliminating stigma can have on those with epilepsy.
The post Epilepsy… It’s Complicated appeared first on CURE Epilepsy.
Hear how a personal journey inspired a summer camp for kids with epilepsy.
The post Epilepsy Summer Camp: Where Kids Can Be Kids appeared first on CURE Epilepsy.
A college student with epilepsy offers advice on not only how to survive, but also thrive.
The post Epilepsy and College: How to Survive and Thrive appeared first on CURE Epilepsy.
Find out how one family impacted by epilepsy is affected daily by the national school nurse shortage.
The post School Nurse Shortages: The Challenges Students and Families Face appeared first on CURE Epilepsy.
Learn about Sudden Unexpected Death in Epilepsy (SUDEP) and what preventative steps to take.
The post SUDEP: What You Need to Know appeared first on CURE Epilepsy.
Brain Surgery as an epilepsy treatment? Learn about what you should consider before you decide.
The post Epilepsy Surgery: Is it right for you? appeared first on CURE Epilepsy.
Discover why CBD can be an effective treatment for some forms of epilepsy with Dr. Laura Lubbers, Chief Scientific Officer at CURE.
The post CBD and Epilepsy: A Promising Treatment appeared first on CURE Epilepsy.
Hundreds of genes are associated with epilepsy, but what causes the variations in those genes which lead to this condition? And how do you know if you or your child are a candidate for genetic testing? Learn the answers to
The post Epilepsy Genetics: Testing Can Make a Difference appeared first on CURE Epilepsy.
Discover how developing individualized education plans (IEPs) can help children with epilepsy and special needs thrive in the classroom.
The post Epilepsy and IEPs: Supermoms to the Rescue appeared first on CURE Epilepsy.
CURE Founder Susan Axelrod details how desperation lead her to reshape the epilepsy research and how the field has evolved since her organization began.
The post 20+ Years of Impact: From the Kitchen Table to Cutting-Edge Research appeared first on CURE Epilepsy.
Kurt Eichenwald tells his gripping story about living with intractable epilepsy, as well as what inspired him to write his book A Mind Unraveled.
The post A Mind Unraveled, a Memoir by Kurt Eichenwald appeared first on CURE Epilepsy.
In this episode, The Nora Project co-founder and executive director, Lauren Schrero discusses how to teach students to be compassionately curious about differences.
The post Inspiring Kindness and Sparking Friendships Through Empathy appeared first on CURE Epilepsy.
Kelly speaks with her husband, Miguel, about navigating the challenges that come with raising a child with epilepsy and how they keep their marriage going strong.
The post Married with Children…with Epilepsy appeared first on CURE Epilepsy.
CURE Board Member Kelly Cervantes brings you inspirational and helpful stories about epilepsy, how it impacts lives, and the search for a cure.
The post Welcome to Seizing Life appeared first on CURE Epilepsy.