Proud Strong and Rare Mama to three beautiful children, writer, advocate for a rare disease community on a mission to raise awareness, spread hope, and build a community together on chromosome condition called Koolen De Vries Syndrome (KVS). Becky shares her experience of being diagnosed with the rare condition, KVS, after her oldest son and now youngest daughter was diagnosed with the same condition. Becky has created a Facebook page called Mamas Heart and UK KDVS support group.

As a writer she has been published in Beacon for Rare Diseases, Koolen-de Vries Syndrome Foundation, Eurodis - European Rare Diseases Organisation, and most recently on RARE Revolution Magazine. To check out her publications here are the direct links, Beacon for Rare Diseases: Becky's Journey, KDVS Foundation: Momas Heart, RARE Revolution Magazine

Let's connect and stay in conversation <3. I'd love to hear your reactions and feedback on this and future episodes. To stay connected, visit me on Instagram (@Strongandrareparenting), and/or send me an email at info.strongeandrareparents.com

---

Support this podcast: https://anchor.fm/strongandrareparenting/support