Medical conditions that affect organ systems in more than one medical specialty area are particularly hard to deal with.  Diagnosis, management, all are difficult because no single doctor understands the interworkings of the problems.  This leaves much to the patient to coordinate the information from more than one specialist.

Julie Gortze of Mito New England is working with a team of doctors and Massachusetts General Hospital to assemble a team to help.  Joyce and Robin talk with Julie about this effort and about their forthcoming meeting, April 30 in South Attleboro, Massachusetts.

http://www.nergg.org/wp-content/uploads/2016/03/MNE-April-2016.pdf