ABCs of Disability Planning: Recent Episodes
Eric Jorgensen
Weekly interviews designed to introduce listeners to disability-related benefits, resources & services they may not be familiar with. Support this podcast: https://anchor.fm/abcs-disability-planning/support
The Autistic People of Color Fund - At the intersections of disability justice, neurodiversity, and racial justice.
The Fund practices redistributive justice and mutual aid by returning and sharing money directly to and with autistic people of color. They provide microgrants to Black, Brown, Native, Asian, and mixed-race people in the autistic community for survival, organizing, leisure, and pleasure.
They are committed to the principles of Disability Justice, including leadership by those most impacted, intersectionality, anti-capitalist politics, cross-movement solidarity, interdependence, collective access, and collective liberation. Their work is grounded in the commitment to ending extractive economies and building and sustaining generative economies.
Connect to learn more:
Website: https://autismandrace.com/
Email: communityfund@autismandrace.comX: #autisticpoc
For more information about Eric Jorgensen you can find him here:
Web: https://visiblenationaltrust.com/
Waypoints: https://waypoints.substack.com/
LinkedIn: https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/
As an Amazon Associate, I earn commissions from qualifying purchases.
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Get Relief from Hospital Bills
Most hospitals offer discounts or bill forgiveness based on income. On average, a family of 4 earning less than $100,000 a year will qualify. Dollar Forcan help you apply — for free.
Financial Assistance: Hospitals’ Best-Kept Secret
Hospital financial assistance is sometimes called “charity care.” By law, nonprofit hospitals must offer programs that forgive bills. Many for-profit hospitals also offer help. When patients are approved for charity care, their bills are reduced or eliminated.Connect to learn more:
Website: https://dollarfor.org/
For more information about Eric Jorgensen you can find him here:
Web: https://visiblenationaltrust.com/
Waypoints: https://waypoints.substack.com/
LinkedIn: https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/
As an Amazon Associate, I earn commissions from qualifying purchases.
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Job development, life skills, and fitness for ALL abilities!
Kibu offers fun, bite-sized classes in fitness, life skills, community engagement, and job development in an inclusive environment.
They offer over 300 pre-recorded video lessons on a variety of topics. Their lessons are designed to be accessible to everyone. They add 2 to 5 new videos every week!
Kibu has expanded to include tools for disability providers, including data management, note-taking, and attendance. Their full suite of admin tooling and analytics helps providers spend more time doing what they're best at and less time dealing with paperwork.
Connect to learn more:
Website: https://kibuhq.com/
Email: hello@kibuhq.com
Phone: 937-791-6219
IG: @kibuhq
LinkedIn: https://www.linkedin.com/company/kibuhq/
Facebook: @kibuhq
For more information about Eric Jorgensen you can find him here:
Web: https://visiblenationaltrust.com/
Waypoints: https://waypoints.substack.com/
LinkedIn: https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/
As an Amazon Associate, I earn commissions from qualifying purchases.
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Goodmaps - Mapping the Future with Indoor Navigation. Empowering everyone with the freedom and autonomy to discover the world around them.
Creating Smarter Spaces Through Digital Mapping
Step 1: Scan your venue
Step 2: A 3D Map of the Entire Space
Step 3: Edit Your Map
Step 4: Find Your WayGoodMaps is a global indoor mapping, positioning, and accessible navigation company that aims to make the world’s indoor spaces more inclusive, interactive, and joyful for everyone.
Their innovative, patented, indoor positioning technology and accessible app guide individuals – whether blind or low vision, deaf, mobility impaired, or directionally challenged – step by step from the front door to the indoor destination of their choice.
From rail stations to airports, museums to sports complexes, university campuses to shopping centers, GoodMaps is helping more people find their way with ease and independence.
For more information:
Facebook: https://www.facebook.com/GoodMapsForAll
Website: www.goodmaps.com
For more information about Eric Jorgensen you can find him here:
Web: https://visiblenationaltrust.com/
Waypoints: https://waypoints.substack.com/
LinkedIn: https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/
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The CEO Commission for Disability Employment is leading the way to an inclusive workforce.
It was founded by Voya Financial, the Society for Human Resource Management (SHRM), and the National Down Syndrome Society (NDSS), to advance disability-inclusive employment by inspiring and engaging business leaders to drive change through policy, practice, and culture.
The CEO Commission is designed to increase opportunities for people with disabilities to obtain and maintain employment. We aim to accomplish this by building a diverse coalition of private-sector organizations, including for-profit and non-profit businesses of different sizes.
Through effective collaboration and research, the CEO Commission will promote best practices across the entire business community to decrease barriers individuals with disabilities face in accessing employment.
Their Vision is a future in which federal, state, and local policies foster disability-inclusive employment; company practices ensure individuals with disabilities can thrive in inclusive settings, and workplace cultures welcome and value the contributions of each employee.
Companies mentioned:
Spectrum Designs
Project Search
Voya
National Down Syndrome Society (NDSS)
Society for Human Resource Management (SHRM)
Connect to learn more:
Website: https://ceocommission.org/
Company LinkedIn: https://www.linkedin.com/company/ceo-commission/
Rob Snow's LinkedIn: https://www.linkedin.com/in/rob-snow-5bbb57166/
Email Rob: rsnow@ceocommission.org
For more information about Eric Jorgensen you can find him here:
Web: https://visiblenationaltrust.com/
Waypoints: https://waypoints.substack.com/
LinkedIn: https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/
As an Amazon Associate, I earn commissions from qualifying purchases.
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What Is KAT?
Ketamine-Assisted Therapy (KAT) refers to the use of ketamine in conjunction with facilitated therapy. KAT is a proven treatment for many mental health disorders, including major depression, PTSD, generalized anxiety, and substance abuse.
Ketamine itself is a dissociative medicine that quiets sensory input and can give people a temporary change in their mental perspective. Its original use was as a surgical anesthetic, for which it received FDA approval in 1970. Since then it’s been used worldwide as an anesthetic, has an outstanding safety record, and is on the World Health Organization’s list of essential medicines.
Enthea was founded by a team of industry experts who share a vision of access to safe and affordable psychedelic healthcare. Together, they are focused on effecting change to offer people the treatment they deserve.Connect to learn more:
Website: https://www.enthea.com/
LinkedIn: https://www.linkedin.com/company/entheahealth/
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about Eric Jorgensen you can find him here:
Web: https://visiblenationaltrust.com/
Waypoints: https://waypoints.substack.com/
LinkedIn: https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/
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Dr. Geraldine Dawson is the William Cleland Distinguished Professor of Psychiatry and Behavioral Sciences at Duke University, where she is a Professor of Pediatrics Psychology & Neuroscience.
Dr. Dawson also is the Founding Director of the Duke Center for Autism and Brain Development, an NIH Autism Center of Excellence, which is an interdisciplinary research program and clinic, aimed to improve the lives of those diagnosed with autism through research, education, clinical services, and policy.
Dr. Dawson received a Ph.D. in Developmental and Child Clinical Psychology from the University of Washington and completed a clinical internship at the UCLA Neuropsychiatric Institute.
Dr. Dawson's work focuses on improving methods for early detection and intervention for autism, understanding brain function in autism, and validation of autism EEG biomarkers. She co-developed the Early Start Denver Model, an empirically validated early autism intervention that is used worldwide. She collaborates with colleagues in the departments of computer science and engineering, pediatrics, and biostatistics to develop novel digital health approaches to autism screening and outcome monitoring.
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about Eric Jorgensen you can find him here:
Web: https://visiblenationaltrust.com/
Waypoints: https://waypoints.substack.com/
LinkedIn: https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/
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You're not alone! When you’re here, you’re part of a globally connected community committed to eliminating the challenges of rare diseases. Global Genes is committed to providing information, resources, and connections to all communities affected by rare diseases.
Global Genes is a 501(c)(3) non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally.The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania, equips advocates with the knowledge, skills, and connections they need to advance therapy development for their communities. This year’s theme is Innovative Ideas from Next Generation Change-Makers.
Rare Drug Development Symposium (4/29/2024 - 5/1/2024) - https://globalgenes.org/event/rare-disease-drug-development/
Rarely Told Stories - https://globalgenes.org/resources/#/types/story
Rarecast (Podcast) - https://www.levinemediagroup.com/rarecast/
Disorder: Rare Disease Film Festival - https://www.rarediseasefilmfestival.com/
EveryLife Foundation for Rare Diseases - https://everylifefoundation.org/
"The Mighty" (movie) - https://www.imdb.com/title/tt0119670/
Connect to learn more:
Web: https://globalgenes.org/Phone: (+1) 949-248-RARE (7273)
FB: @GlobalGenes
X: @GlobalGenes
IG: @globalgenes
Episode Transcript: https://docs.google.com/document/d/1tsUg4k-B1GpEfFfk9JCdQtTE9MKTkYCD/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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New Disabled South, and their advocacy arm, New Disabled South Rising, are fighting for disability rights and justice in 14 states. Those states are Alabama, Arkansas, Florida, Georgia, Kentucky, Louisiana, Mississippi, North Carolina, Oklahoma, South Carolina, Tennessee, Texas, Virginia, and West Virginia.
The 10 Principles of Disability Justice
Source: Sins Invalid
Intersectionality: Many disabled people experience other forms of oppression in addition to ableism. The experience of disability is shaped by race, gender, class, and more.
Leadership of the most impacted: The most oppressed lead our movement because they know the most about how systems of oppression work.
Anti-capitalist politic: We don’t conform to capitalist systems that profit from us. Human worth does not rely on how much a person can produce.
Commitment to cross-movement organizing: We work with other movements to shift views on ableism and disability.
Recognizing wholeness: We have value beyond capitalist standards of work. Disabled people are whole people.
Sustainability: We work at a pace that promotes ongoing justice and liberation and values the teachings of our lives and bodies.
Commitment to cross-disability solidarity: We join together to accomplish more. Isolation harms us all.
Interdependence: We help each other achieve liberation for all living systems and the land. Government solutions control us more.
Collective access: We share the responsibility to create community with each other by making access a way of life for all.
Collective liberation: No one is left behind; we need each other to achieve freedom.
Connect to learn more:
Website: New Disabled South Rising
IG: @newdisabledsouthrising
X: @DisSouthRisingFB: @NewDisabledSouthEmail: info@newdisabledsouth.org
Episode Transcript: https://docs.google.com/document/d/13NvbTprASqRgMqZIL0nluo9kWO9iUA3O/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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Jill Escher is the President of the National Council on Severe Autism. She is an autism research philanthropist (Escher Fund for Autism), a real estate investor who provides low-income housing for adults with developmental disabilities, a former lawyer, and a mother of two children with nonverbal autism. As an advocate, she is past president of the board for the Autism Society San Francisco Bay Areaand, as a promoter of innovative research has served on the governing council of the Environmental Mutagenesis and Genomics Society.The National Council on Severe Autism is pursuing recognition, policy, and solutions for the surging population of individuals, families, and caregivers affected by severe forms of autism and related disorders.
Autism Confidential Podcast: https://www.autismconfidential.org/
"Chasing the Intact Mind" by Amy Lutz: https://amzn.to/48oZkup
"The Autism Surge: Lies, Conspiracies, and My Own Kids" by Jill Escher:https://www.thefp.com/p/the-autism-surge-lies-conspiracies
Episode Transcript: https://docs.google.com/document/d/1d9XyYakluHBMAUqFbNUCVH4gPgDql5Ij/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Connect to learn more:
Website: https://www.ncsautism.org/
FB: @NationalCouncilonSevereAutism
X: @NCSAutismOrg
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
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Hospice Navigation: The Compassionate Guide to End-of-Life Care
Death is scary. No one wants to talk about it, and most of us aren't ready when it comes. It feels like the medical profession has made it their mission to delay the end of life, no matter the cost of pain and suffering. You have the right to go out on your terms, by choosing not to see further aggressive treatments. Hospice is an underutilized resource paid for by insurance and available in all 50 states and DC.
When dealing with a serious illness, having access to the right resources and guidance can make all the difference. Hospice Navigation Services is here to offer just that – a compassionate hand to hold and a reliable compass to help navigate this challenging journey.
Who can benefit from a Hospice Navigation Services session? If you're:
- dealing with a serious illness
- a caregiver who needs information about hospice care for someone you love
- needing education about end-of-life care
- a patient or caregiver with questions about your current hospice care
- needing to discuss advance care planning
Here's what Hospice Navigation Services has to offer:
- private, personalized guidance
- expert Hospice Navigators
- easy online booking of your Hospice Navigation Session on The Heart of Hospice website
- a choice of a FREE 30-minute Navigation Session or a 60-minute Navigation Session
- a safe space for questions about end-of-life care
- comprehensive information about how to get the best out of your hospice care
"When Breath Becomes Air": https://amzn.to/48piKzb
Helen's interview on the Happy Healthy Caregiver Podcast (Ep. 99): https://happyhealthycaregiver.com/podcast/helen-bauer/
Connect to learn more:
Website: https://www.theheartofhospice.com/services
FB: @TheHeartofHospice
IG: @TheHeartofHospice
X: @TheHeartHospice
Episode Transcript: https://drive.google.com/file/d/1freQMIOXYV90KiI8u16JmgDqSmfU3eWN/view?usp=sharing
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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Once Upon A Gene is a Podcast for families living with rare diseases. There are personal stories and resources shared to help connect us with our community. Although I only linked Apple podcast below, Once Upon A Gene is available on any player of your choice and has a YouTube channel.
Effie Parks, originally from beautiful Montana, has become a guiding light in the rare disease community following her son Ford's diagnosis with CTNNB1 syndrome. Settling in Washington, she transformed her family's journey into a crusade for advocacy, support, and empowerment for families navigating similar challenges.
As the host of the "Once Upon a Gene" podcast, Effie has been recognized for several awards including WEGO Health and Podcast Magazine for her impactful storytelling and resource-sharing in the realm of rare genetic disorders.
Effie extends her advocacy through speaking engagements at medical and patient advocacy conferences, sharing her experiences and insights from her work to bridge the gap between all rare disease stakeholders.
Her skill in community engagement, developed through her advocacy, empowers her efforts in building a supportive network and raising awareness.
With a mission to leave the world better than she found it, Effie is dedicated to fostering a more informed and empathetic environment for those impacted by rare diseases.
Her work embodies resilience and compassion, inspiring and uniting the rare disease community. Effie’s journey is not just about sharing stories, it's about driving change and creating a lasting impact in the world of rare genetic conditions.
Two Disabled Dudes: https://twodisableddudes.com/
"Chasing My Cure: A Doctor's Race to Turn Hope Into Action; A Memoir" - Dr. David Fajgenbaum: https://amzn.to/3OpBzLg
"The Ataxian" documentary (Amazon Prime): https://amzn.to/4bg53oS
Connect to Learn More:
Website: https://effieparks.com/
Email: hello@onceuponagene.com
FB: @OnceUponAGene
IG: @onceuponagene.podcast
Apple Podcast: https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347
Episode Transcript: https://docs.google.com/document/d/1Q6gNJc9HGU7HRMdEA8I2R3G-fHJI8qdT/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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The Lucas Project provides recognition, respite, and resources to family caregivers of those with special needs.
16.3 million People in the U.S. are caregivers to a child with special needs.
That number is staggering and also a wake-up call. Most of us know of someone who is caring for a child with special needs and if you don’t personally know of someone, you can be assured that they are in your neighborhood; probably hiding behind closed doors isolated and exhausted.
Caregivers often project the perception that “everything is okay,” when in fact, it probably is not okay and they would so appreciate having someone reach out and lend a hand. It is our job as a society to surround these caregivers and support them through the difficult times, because a child is only as healthy as the caregiver, and society is only as healthy as the families within it. At The Lucas Project, we care for the caregivers.
Get Jess Ronne's books from Amazon: https://amzn.to/4b6jQCF
Lisa Whittle's books from Amazon: https://amzn.to/3S8EbhQ
Atomic Habits: https://amzn.to/48OhrdY
Connect to learn more:
Website: https://thelucasproject.org/
Email: info@thelucasproject.org
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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Embracing Another Normal integrates the deep expertise of Kris Burbank, thought leader and coach on parenting children with disabilities, and the wisdom and insights of Dr. Linda Hoopes, award-winning author and researcher on personal resilience. It articulates six fundamental challenges of raising children with disabilities, shares stories of how parents and families have navigated these challenges, and provides a framework for connecting successful strategies to the key building blocks of resilience.
Connect to learn more:
Link to "Embracing Another Normal" (Amazon): https://amzn.to/3Okf6PP
Kris Burbank's Substack "Another Normal": https://anothernormal.substack.com?utm_source=navbar&utm_medium=web&r=f674k
Linda Hoopes Substack "Prosilience": https://prosilience.substack.com?utm_source=navbar&utm_medium=web&r=f674k
Kris' Website: https://www.krisburbank.com/
Prosilience Website: https://prosilience.com/
"Welcome to Holland": https://www.emilyperlkingsley.com/welcome-to-holland
Transcript: https://docs.google.com/document/d/1e26ABhn-7y3MBAvt1bcOOH2c4_LEUEc8/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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NR2F1 Foundation's mission is to support those impacted by an NR2F1 mutation, aka Bosch-Boonstra-Schaaf optic atrophy syndrome through education, advocacy, and research.
BBSOAS, also known as Bosch-Boonstra-Schaaf Optic Atrophy Syndrome, is a rare neurological disorder caused by a disruption in the NR2F1 gene. BBSOAS is characterized by a wide array of clinical features, but the most common are vision impairment caused by optic atrophy, developmental delay, and intellectual disability. There are currently a few hundred known cases of BBSOAS worldwide with diagnoses rapidly increasing every month.
The phenotypic spectrum of Bosch-Boonstra-Schaaf optic atrophy syndrome (BBSOAS) is broad and variable, but the most well-established characteristics include developmental delay/intellectual disability and visual impairment (including optic nerve atrophy, optic nerve hypoplasia, and cortical visual impairment). Other common features include hypotonia, oromotor dysfunction, and mild and inconsistent dysmorphic facial features. Morphological changes in brain structures including thinning of the corpus callosum, and autism spectrum disorder are also considered common. Individuals are at an elevated risk of seizures, including infantile spasms.
Genotype-phenotype correlations have been proposed, with individuals with mutations in the DBD typically showing a more severe phenotype, and individuals with whole-gene deletions and truncating mutations tending to have moderate to mild symptoms. Individuals with point mutations outside of the DBD most often manifest the mildest phenotype.
BBSOAS is considered a static encephalopathy and has not been shown to be progressive/degenerative. There is no progression of the eye phenotype known, including no known progression of optic atrophy.
Connect to learn more:
Email: info@nr2f1.org
Website: https://nr2f1.org/
FB: @NR2F1 Foundation
IG: @nr2f1foundation
Transcript: https://docs.google.com/document/d/1tiJV3qJmtUPPokZvdbIdlBEF7pgbXEyi/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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JelikaLite - Precision Autism Through Light
ASD is a lifelong developmental disorder. The rates continue to rise, the cause remains unknown, and current solutions are inadequate. Autistic individuals frequently have difficulties with communication, social interactions, repetitive behavior, and focus, impacting their ability to integrate into society.
JelikaLite believes that all children can lead fulfilling and productive lives. That is why they are developing Cognilum, an innovative solution to enhance the child's communication skills while reducing a child's troublesome autism symptoms, enabling them to improve their lives.
Cognilum is a therapeutic wearable device that provides non-invasive brain stimulation with near-infrared light, sensors, and a machine-learning personalization platform.
Connect to learn more:
Website: https://jelikalite.com/
Sign up for early access: https://jelikalite-23877686.hubspotpagebuilder.com/jelikalite-early-access-campaign
Email: info@jelikalite.com
Floreo: https://floreovr.com/
GoMo Health: https://gomohealth.com/
Transcript: https://docs.google.com/document/d/1nZa0hJ0k-u9b78ppXScSst4sIdJ1gMyY/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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Financial Services for the World’s Largest Minority - Visible National Trust.
Visible National Trust is the first national, universally accessible disability financial planning and wealth management solution for special needs families.
For families, Visible National Trust is a leap forward in disability financial services, providing intergenerational stewardship of funds while safeguarding access to important benefits, and including the services of global and national financial institutions trusted by millions of people.
BlackRock provides ETF model portfolios to the Trust and Huntington National Bank is the Trust’s custodian and sub-accountant. Visible’s complete solution includes all trust services, investment, custody, accounting and tax services, payments, and continuous access to account information. Visible’s asset-based fees are lower than prevailing fees for alternative services and include many benefits not available elsewhere.
For financial advisors, Visible National Trust is a complete packaged solution for disability financial planning integral to implementing comprehensive wealth management and retirement plans for families that include a loved one with a disability. Visible seamlessly connects families and financial advisors.
FMDT Pooled Trust interview: https://spotifyanchor-web.app.link/e/sIlTDdkjBFb
Intro to Special Needs Trusts: https://spotifyanchor-web.app.link/e/7OYmDE3jBFb
Estate Planning, Beyond the Basics: https://spotifyanchor-web.app.link/e/zTvINqikBFb
Connect to learn more:
Website: https://visiblenationaltrust.com/Email: inquire@visiblenationaltrust.com
Phone: 800-760-4234
Transcript: https://docs.google.com/document/d/15hjvYTbbAfsHAJKWJJLni0gBTMf6GYLN/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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Supporting Independence and Improving Quality of Life - MapHabit.
Habit-building tools are important for everyone to keep routines on track.
MapHabit's unique, science-based system helps make each day safer, more productive, and less stressful for individuals and their caregivers. Their approach leverages the power of combining assistive technology with behavior learning.Their innovative system organizes habits, routines, and tasks into visual maps. They are interactive and engaging step-by-step how-to guides that help members complete a daily activity independently, or with help from a support partner or a caregiver.
These visual maps make it easier to get tasks done each day.
Waypoints Technology article: https://waypoints.substack.com/p/technology-what-can-it-do-for-youConnect to learn more:
Website: https://www.maphabit.com/
Phone: 1-855-515-4332
FB: @MapHabit
IG: @maphabitatl
Transcript: https://docs.google.com/document/d/1i48APJnbSRIXKSxfzknkdn0q39iByvo5/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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Discover your potential as a family through live-in child care. Apex Social Group specializes in live-in care for families with special needs. Their caregivers have backgrounds in healthcare, therapy, and education.
Apex Care Professionals are dedicated to child development and providing specialized support to families with special needs. With backgrounds in therapeutic, health, or educational fields, their candidates are dedicated to understanding and supporting the developmental goals of each child they care for.
They specialize in providing exceptional care to families with special needs, including autism, developmental delays, ADHD, cerebral palsy, and more. They source our extraordinary candidates from prestigious European and American universities, vocational training schools, hospitals, and globally recognized organizations.Learn more:
Website: https://apex-social.com/
Email: info@apex-social.com
FB: @ApexSocialGroup
Meet their candidates: https://apex-social.com/meet-our-candidates/
Transcript: https://docs.google.com/document/d/12JQx4fshjh71GErprASRFQzEyAZf8hJj/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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It takes a village to raise a child with special needs. Meerkat Village connects you with your child’s providers and supporters in one place.Parents of children with special needs bear the daily struggle of keeping all their child's caregivers on the same page.
It requires constant effort to ensure their child can make progress and thrive. Meerkat Village provides a forum for group collaboration and communication among the entire village of adults supporting the child. From therapists, teachers, and specialists to grandparents, neighbors, and friends, everyone is welcome in Meerkat Village.
They empower, connect, and create hope for parents and their children’s providers by providing a simple way to track progress and develop strategies.
"Superheroes on the Spectrum" (book)
"The Village Vision Podcast"
Connect to learn more:
Website: https://meerkatvillage.com/
FB: @MeerkatVillage
IG: @meerkatvillage
Link to Transcript: https://docs.google.com/document/d/1XuW2kOFR-mI-G6oTvUqiQxn_-dGadkWB/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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When something feels off, Buoy it! Buoy helps people figure out health issues and find the right care.
Their A.I. asks questions and helps narrow down what is going on based on your answers. No more guessing and filling in the blanks. It's like talking to your friend who happens to be a doctor. Editorial Standards
They were founded based on the idea that searching for health information online shouldn't be scary and misleading. To combat this, their technology and all of their content are:
- Reviewed and edited by experts - doctors, clinicians, nurses, and therapists
- Created to be clear and actionable, not vague and alarmist
- And backed by clinical research
Learn more:
Website: https://www.buoyhealth.com/
Email: contact@buoyhealth.com
FB: @BuoyHealth
X: @buoyhealth
IG: @buoyhealth
Episode Transcript: https://docs.google.com/document/d/15tQLcHmm2uLZl2BvIHtqZRyU7RicKTCt/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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Dr. Lawrence Fung is an Assistant Professor (University Medical Line) at the Major Laboratories and Clinical Translational Neurosciences Incubator in the Department of Psychiatry and Behavioral Sciences at Stanford University. He received his BS with honors from the University of California at Berkeley, MS in Engineering from Johns Hopkins University, PhD from Cornell University, and MD from George Washington University. Dr. Fung completed his general psychiatry residency, child & adolescent psychiatry fellowship, and postdoctoral research fellowship at Stanford University.
Dr. Fung is a researcher and clinician specializing in autism and the father of a neurodiverse teenager on the autism spectrum. He serves as the principal investigator of studies investigating the neurobiology of autism by state-of-the-art molecular neuroimaging and bioanalytical technologies.
He studies novel pharmacologic interventions, including pregnenolone. Dr. Fung is the director of the Stanford Neurodiversity Project, which strives to uncover the strengths of neurodiverse individuals and utilize their talents to increase innovation and productivity of society as a whole. Dr. Fung directs the Adult Neurodevelopment Clinic, which specializes in assessing and treating adults on the autism spectrum.
Neurodiversity at Work: https://med.stanford.edu/neurodiversity/NaW.html
Imitation Game (movie): https://www.imdb.com/title/tt2084970/Connect to learn more
Stanford Neurodiversity Project: https://med.stanford.edu/neurodiversity.html
Transcript: https://docs.google.com/document/d/11Zrtm4dCWxvXYTtWME-f8clJijOn5rns/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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Everyone has the ability to #BeImpactful - Philip C. Clark. Be Impactful, create a plan that enables your child with special needs to live a great life.
ENABLE Special Needs Planning, LLC, believes that everyone has the ability to be impactful in the lives of others. This ability is what gives each of us a sense of purpose in life.
"80% of families do not have a comprehensive plan for their family, or their child with special needs".Phillip Clark founded ENABLE Special Needs Planning thanks to the positive impact of his younger sister, Sarah, who has Down syndrome.
Episode Transcript: https://docs.google.com/document/d/1c1lbsmgL09pZZL42GuUwUS21JwJgGgiC/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Learn more:
Website: https://enablesnp.com/
Online Community (private FB Group): https://enablesnp.com/fb-group-landing-page/
Email: info@ENABLEsnp.com
FB: @EnableSpecialNeedsPlanning
X: @ENABLEsnp
IG: @enablesnp
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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The Connected Parent has a comprehensive database and easy-to-use filters to help you connect with the local & online businesses you need, reviewed by families like yours.They are a comprehensive, one-stop hub of resources local to you and reviews for those hard-to-find services your family needs. With their easy-to-use filters, narrowing your search to find therapists, recreational activities, advocates, and other resources in your area has never been easier.
The best part? They're building out a community of reviews that gives you on-demand access to insights & recommendations that feel like they came straight from a personal friend.
Episode Transcript: https://docs.google.com/document/d/1T8g6BhMypV7wmrjDrLHxLNLHC-557nrI/edit?usp=drive_link&ouid=117716030289987185197&rtpof=true&sd=true
Connect to learn more:
Website: https://www.theconnectedparent.net/
Email: support@theconnectedparent.net
Phone: 877-313-6349
IG: @theconnectedparentsite
FB: @TheConnectedParent
Accessible Adventures: https://accessibleadventures.net/index.html#/
"The Body Keeps the Score" - https://amzn.to/47ewwVo
"Together is Better", Simon Sinek - https://amzn.to/3QIFVgSDan Palloto's TED Talk about Charity - https://www.ted.com/talks/dan_pallotta_the_way_we_think_about_charity_is_dead_wrong?language=en
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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Improving Emotional Connections by Bridging Emotional Communication Across People and Screens
Valence analyzes tonal data to classify emotions. Vibes for Apple Watch is live. Vibes uses haptic feedback so you can literally feel the vibes of the room as a vibration on your wrist.Feel unique taps for each emotion with a disappearing visual label that only appears when your screen is pointed toward you. Recognizes (7) basic emotions - sad, angry, nervous, neutral, surprised, happy, and disgusted.
Valence recognizes the power of neurodiversity and seeks to empower people of all neurotypes to better interpret emotions without having to change their fundamental communication style.Download on the Apple App Store - https://apps.apple.com/us/app/vibes-for-watch/id1610209299
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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Providing Patients and Caregivers a Voice
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
- For patients and family caregivers —they provide study opportunities to voice their opinions on medical products and services while getting paid for their time. Sign up here.
- For patient advocacy groups —they partner with advocacy and support groups to increase donations.
- For market research firms —they handle patient recruitment and help find the respondents and patient panels needed for marketing research.
- For pharmaceutical and biotech companies —they provide the respondents and patient communities required to support business insight needs and all types of research studies.
Pam Cusick, Rare Patient Voice's Senior Vice President, is an experienced research professional with more than 30 years of expertise in study design, implementation, and analysis. Her background in public health communications and research, coupled with her passion for patient advocacy, dovetail with Rare Patient Voice’s mission and vision. She hopes to expand Rare Patient Voice’s panels to include all patients and caregivers who want to share their opinions and impact their disease category.
Pam earned a BA in Psychology from Sweet Briar College and an MA in Psychology from the New School for Social Research. Pam is past president of the Board of Directors and Scientific Advisory Council Lead for the Horses and Humans Research Foundation. As Senior Vice President, her focus is on the continued growth and success of RPV, with an eye on client services, business development, and oversight of outreach and panel management, marketing, and human resources.
Learn more:
Website: https://rarepatientvoice.com/
FB: @RarePatientVoice
Twitter: @rarepatientvoic
IG: rarepatientvoice
Email: ContactUs@RarePatientVoice.com
Link to Transcript: https://docs.google.com/document/d/1B8_llq6kLTdQp9c4AWMOaUKs6hnYfv20YFqNK7S_plg/edit?usp=sharing
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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Find the experts you need, with Our Place you are never alone!
As a member of Our Place, you can access the Our Places Map! Here you will find Medicaid providers, barbers, swim schools, and anything else you need. It's all based on your location so you'll find what you need in your community.
With the help of the Our Place team and members like you, Our Places will grow with more and more businesses that serve you and your loved ones.
Episode Transcript: https://docs.google.com/document/d/1ToEO2U8RiG68Vvy0EM87XvRvdcbdoyMl/edit?usp=drive_link&ouid=117716030289987185197&rtpof=true&sd=true
Connect to learn more: Website: https://www.joinourplace.com/
Email: sophie@joinourplace.comYouTube: https://www.youtube.com/@ourplace3743/videos
Aqua-Tots Swim School - https://www.aqua-tots.com/
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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Episode Transcript: https://docs.google.com/document/d/1BEe8i7gtN0tD4OZo6lzNcc5_omk3L_Ka/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Sue Ryan knows what it feels like to be standing at the edge of the abyss in our life – or to be down in the abyss – not knowing where to turn, what to do, or who to talk with.
She navigated the transition from being the adoring daughter of my hero, my Dad, to a journey with him as a caregiver through his diagnosis of a type of Dementia.
She's navigated the transition from being a consistent top performer in her company and achieving the highest recognition, to realizing it wasn’t where she wanted to be, having no idea where to turn, what to do, or who to talk with.
She navigated the journey of being single into her late forties in a career that had her traveling frequently and doing what she wanted when she wanted, to falling in love and marrying Jack – the love of her life – becoming part of his large family, embracing his desire to retire, move, and travel.
She navigated the transition from being the loving wife and partner with Jack, to our being told he was now an Alzheimer’s patient and I was now his caregiver – the path we’ve been journeying together for the past eleven years until his death in 2023.
She navigated the transition from living her life being who she thought others wanted her to be, to discovering who she's meant to be, recreating her life, and living with joy from the highest expression of who she is. She's become the master of transitions and is here to help you become the master of yours.
She doesn't want your transitions to be as difficult as hers were or take you as long to learn how to intentionally – and successfully – navigate them as it took her.
Learn more:
Caregiver's Journey Course: https://sueryan.solutions/the-caregivers-journey/
Sue's book, "Our Journey of Love: 5 Steps to Navigate Your Care Giving Journey": https://amzn.to/45dzNTq
Website: https://sueryan.solutions/
FB: https://www.facebook.com/suearmstrongryan/
Email: sue@sueryan.solutions
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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AutismDadvocate.org is an online support forum for dads with children with autism and about the commonalities we all face as fathers.
Frequently, fathers follow the American tradition of rugged individualism and rarely have an honest and earnest discussion on the challenges of fatherhood. What does it mean to be an engaged father? What are the tensions and polarities we all face as fathers? And why do we so often soldier forward alone?
Paul's first interview - https://spotifyanchor-web.app.link/e/qmPDbb69eDb
Holly Robinson Peete's interview with Paul - https://www.autismdadvocate.org/what-do-dads-need-to-hear-from-momsofasdkids
Rodney & Holly Robinson Peete's interview with Paul - https://www.autismdadvocate.org/journey-of-a-father-with-rodneypeeteContact Paul
Website: https://www.autismdadvocate.org/Podcast: https://podcasts.apple.com/us/podcast/the-autism-dadvocate-podcast/id1538437276Instagram: #autismdadvocate
Facebook: @AutismDadvocate
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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Navigating Life Transitions: Coaching vs. Therapy
Discover the Differences and Find Your Path to Personal Growth and Success
Barbara Kay Coaching (BKC) provides custom coaching to individuals, teams, leaders and groups. As a business psychology and achievement expert Barbara is a personal trainer for business success.
As a behavioral scientist and productivity coach, Barbara speaks nationally on a wide range of achievement topics including Growth, Productivity, Leadership, Teams, Client Relationships, Behavioral Finance, Change, Women, Branding & Communication.
Business Psychology and Productivity Coach, author of many articles and two books, Barbara serves clients through coaching, consulting, and speaking on Growth, Productivity, Teams, Client Relationships, Communication, Change, and Leadership. She has been serving clients since 1998, with dual degrees and credentials in Clinical Psychology and Coaching. Professionally licensed, she completes ongoing development education and is a member of the American Psychological Association. Barbara Kay Coaching supports client diversity goals as a Woman Business Enterprise and Certified Diversified Supplier.
Get her books:
"The Top Performer's Guide to Change: Overcoming Fear to Turn Change into Opportunity"
"The $14 Trillion Woman: Your Essential Guide to Engaging the Female Client"
Connect with Barbara:
Website: Barbara Kay Coaching
Email: mailto:barbara@barbarakaycoaching.com
International Coaching Federation (ICF): https://coachingfederation.org/
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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Andrew is an autistic self-advocate with over five years of professional experience helping autistic individuals be empowered in their lives by sharing his experiences in public speaking and freelancing work with organizations. Andrew was the keynote speaker for Autism Connection's 32 Annual Autism Conference in Springfield, Massachusetts. Andrew is also on various boards like in AANE (Speaker Bureau) and HAAPE (Autism Expert Board).
His motivation is to better the world out there one day at a time. His adaptive work career allowed him to gain perspectives in the autistic, parent, and professional worlds. Andrew believes that collaboration being key for solving issues with transitioning to adulthood and transportation. He focuses on transportation because it can affect various milestones and can impact both the social and work worlds for individuals. He knows how it feels about how limiting it can be to not have a reliable transportation option. Andrew helps individuals find their own path to finding what works for them. After all, each autistic individual has their own needs, and those needs should be embraced. That is why Andrew created the Autism and Driving Resource Database to help them find driving resources in their state.
Connect with Andrew
Website: https://andrewarboe.weebly.com/
Email: arboea@gmail.com
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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In this enlightening podcast episode, join us as we delve into the intricacies of LGBTQ+ financial and legal planning. Our guest, Mindy Neira, a seasoned financial planner with a focus on serving the LGBTQ+ community and individuals with disabilities, provides valuable insights into the challenges and considerations faced by this diverse group.
From navigating complex legislation to understanding the impact of legal changes on families, Mindy offers guidance on planning for a more inclusive and equitable future. Discover the role of allyship in financial planning, how to recognize an ally, and explore the new D.E.I. (Diversity, Equity, and Inclusion) certification that helps identify planners committed to fostering inclusive environments. Join the conversation and gain a deeper understanding of how planning intersects with identity, rights, and community support.
Mindy is Co-Chair of the National Association of Personal Financial Advisors (NAPFA) Diversity, Equity, and Inclusion Steering Committee. Her specialty focus area is with individuals and families who have planning needs related to disability or other medical conditions. She also partners with those who are Lesbian, Gay, Bisexual, Transgender, or Queer (LGBTQ).
Connect to learn more:
Website: https://moderawealth.com/people/mindy-neira/
Email: mindyn@moderawealth.com
LinkedIn: https://www.linkedin.com/in/mindyneira/
Find an Advisor tools:
NAPFA: https://www.napfa.org/find-an-advisor
FPA: https://www.plannersearch.org/
XYPN: https://connect.xyplanningnetwork.com/find-an-advisor
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABCs of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
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Sarah Semnyetzky is the author of "A Zebra's Guide to Disability Advocacy". Focusing specifically on the domains of academia, medical care, and interpersonal relationships and support networks, in the book Sarah focuses on helping disabled individuals and their loved ones navigate their own, diverse journeys.
She explores these topics using her personal and professional experience, and insight into the complexities of the disabled community. She analyzes how these complexities impact our needs as disabled individuals, using step-by-step guidance, detailed explanations, and personal anecdotes to illustrate her points. She also includes a specialized guide for those with ADHD, imparting impactful advice and skill-building techniques to help readers thrive in academia, the workplace, and beyond.
In this episode, I ask her to share what's happened since she published her book. What she's learned, and what, if anything, she would have done differently. My goal is to share the perspective of someone with invisible disabilities and help you see the world from at least one person's point of view.
Connect w/ Sarah:Website: https://scsemnyetzky.wixsite.com/my-site
Email: scsemnyetzky@gmail.com
Blog: https://sarahofember.wordpress.com/blog/
Phone: (772) 300-4882
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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Juli and Chris Henderson have lived through one of the toughest times any parent can face, the loss of their son. In this interview, we have a very candid discussion about what they wish they'd known. The catalyst for this discussion was Juli's blog post "How will I know?".
Dr. Chris Henderson is a Critical Care Intensivist at CHRISTUS Santa Rosa (CSR) Westover Hills Hospital in San Antonio, Texas, and serves as a Member of the South Texas Regional Advisory Council Pandemic Medical Operations Workgroup. He is Board Certified in Critical Care, Pulmonary Medicine, Internal Medicine, and Sleep Medicine. He presently serves as President of Medical Staff at CHRISTUS Santa Rosa Hospitals, President of CSR Family Health Center, and a member of the Board of Directors of the Family Health Center. Additionally, Chris is the Director of Inpatient Services for the program and Chairman of its Clinical Competency Committee and serves as an Adjunct Assistant Professor for the University of Texas Health Science Center at San Antonio (UTHSCSA) Department of Family and Community Medicine. He entered his present position after more than 26 years of service in the United States Air Force Medical Corps, retiring in July 2011 with the rank of Colonel.
Juli Henderson is a highly trained vocalist, respected voice teacher and owner of JH Voice Studio, physician’s wife, mother of five adult children, and newly minted grandmother. She grew up moving frequently as a military dependent but has called San Antonio, Texas home for 36 years. The In Our Arms Blog is her passion project, launching in February 2021 to share the story of Robert. As the mother of a child with disabilities who passed at the tender age of eighteen, Juli’s writings give hope to hundreds of readers, including a private Facebook group where members share resources and support. She is extending her impact by her involvement in resource projects such as her recent launch of the In Our Arms “Breathe” candle in collaboration with a purpose-driven brand, School Scents. When not writing or teaching, Juli volunteers in the community on nonprofit boards and speaks in churches and schools about her “Life unexpected".
Website: https://www.inourarms.blog/
Facebook: @InOurArmsBlog
Instagram: @inourarmsblog
Link to episode transcript - https://docs.google.com/document/d/1l3GH0VqpUhKbkbG-9FrgYt1nX5ma_0rR/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Link to Juli's first interview - https://podcasters.spotify.com/pod/show/abcs-disability-planning/episodes/In-Our-Arms-Blog---Juli-Henderson-e1eh8hb
Hospice interview with Carlos Graveran - https://spotifyanchor-web.app.link/e/Vd12e2DeWDb
Five Wishes interview - https://spotifyanchor-web.app.link/e/GwyGY7MeWDb
Introduction to Burial Insurance with Brenda Hager - https://spotifyanchor-web.app.link/e/JCE9jiSeWDb
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
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Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.
Dan & DMD book - https://amzn.to/3QvfAV8
Transcript to the episode: https://docs.google.com/document/d/1uWsfzSjthW_69wVRFUdRCiG_GSz2gqGw/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Connect to learn more:
Web: https://www.jettfoundation.org/
Email: info@jettfoundation.org
Facebook: https://www.facebook.com/jettfoundation/?ref=aymt_homepage_panel
IG: @jettfoundation
Parent Project Muscular Dystrophy - https://www.parentprojectmd.org/
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Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
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BeMe empowers Autistic individuals, their families, and care teams with the tools they need to thrive. BeMe combines medical, behavioral, and environmental factors in an insight-generating app designed specifically to support Autistic children. It was founded by and is comprised of a team very active in Autism care and advocacy. They are an organization including parents and caregivers, domain experts, and Autistic individuals. They know and have lived through many struggles and joys and come from a place of understanding. BeMe.ai is effortless to use, combining wearable technology and a smartphone app to simplify data entry. Their powerful AI, combined with their unique approach to organizing, transforming, and sharing data, allows you to gain new insights into your child’s health, behavior, and overall progress.Connect to learn more:
Website: https://www.beme.ai/
Email: info@beme.ai
Facebook: https://www.facebook.com/BeMe.aiInc
YouTube: https://www.youtube.com/@bemeai1689
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
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X (Twitter): @NeedsNavigator
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Empowered Together - Connecting families affected by disability to recommended businesses. They envision a world where tools and accommodations are in place for all people to meaningfully access and participate in their communities. While parenting her daughter with a developmental disability, Sarah Spear learned firsthand how isolating that journey can be and that other parents on similar journeys were feeling all alone. She recognized the value of sharing support and knowledge with one another and Empowered Together was born.
Connect to learn more:
Empowered Together (ET) Website: https://empoweredtogether.us/
ET App: https://app.empoweredtogether.us
ET Instagram: https://www.instagram.com/empoweredtogetherco/
ET Twitter: https://mobile.twitter.com/empowered2gethr
ET Facebook: https://www.facebook.com/empowered2gether
ET LinkedIn: https://www.linkedin.com/company/empoweredtogether
ET YouTube: https://www.youtube.com/@empoweredtogether
Sarah’s Twitter: https://twitter.com/SarahSpearIt
Sarah’s LinkedIn: https://www.linkedin.com/in/shine/
Transcript: https://docs.google.com/document/d/1yVKqodMwSw0M6rnL1sH-nMgvhPwqAmod/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
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Videos to teach daily living skills - PICKLE System
Pickle System's mission is to improve the lives of individuals with autism and developmental disabilities by providing a personal, accessible, and hands-off resource utilizing video models, image-based content, and evidence-based guidance.
Acquisition, maintenance, and generalization of daily living skills may increase independence, quality of life, employment outcomes, and post-school education opportunities for individuals with disabilities. Daily living skills are comprised of three domains - Personal, Domestic, and Community.
Connect to learn more:
Web: https://www.picklesystem.com/
Email: admin@picklesystem.com
FB: https://www.facebook.com/profile.php?id=100093284371069
Transcript: https://docs.google.com/document/d/1jjsypJoveqxoO_J5h7UNcUXaRhtiDK0R/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
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Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
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Meet. Support. Advance. Raising awareness of another Rare Disease - TBRS Community
Tatton Brown Rahman Syndrome (TBRS) is a rare genetic disease caused by pathogenic variants (previously called mutations) in the DNMT3A gene and for that reason, it is also called DNMT3A Overgrowth Syndrome.
Individuals with TBRS have overgrowth—typically, tall stature, increased weight, and large head circumference (also known as macrocephaly)—mild to severe intellectual disability, and subtle but distinctive facial characteristics.
There are a variety of other symptoms that are also associated with TBRS, such as low muscle tone, behavioral and mental health issues, orthopedic problems, cardiac defects, and autism, but not all individuals have every clinical finding reported, and the syndrome varies considerably in its severity.
As of 2021, roughly 250 people have been diagnosed with TBRS. It is not clear how common the syndrome is, but many more individuals are likely to be diagnosed as whole genome sequencing methods become more accessible. There is currently no cure for TBRS, and clinical care is focused on managing the particular clinical findings in each individual.
Episode Transcript: https://docs.google.com/document/d/11ZW665x8eYUYe7Pb1BtYr1r2laITkooz/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Connect to learn more
Website: https://tbrsyndrome.org/
Email: info@tbrsyndrome.org
Facebook: https://www.facebook.com/dnmt3aovergrowthsyndrome/
X (formerly Twitter): @TBRSCommunity
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Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Reach. Climb. Go. If you're a wheelchair users get your iBot Personal Mobility Device. One device, with 6 modes. Go beyond powered mobility in this revolutionary power wheelchair.
The world is not as accessible as it should be. The iBOT® PMD provides a unique multi-modal experience in personal mobility. Custom-fit to each user, with an iBOT® PMD the world opens up.
From Mobius Mobility's website: If the ATV had a quieter, smarter cousin, its name would be the iBOT® PMD. The iBOT® PMD engages four large drive wheels while automatically keeping the seat level. This allows users to traverse varied terrain, to go beyond typical backyard exploration. Hills and inclines are everywhere. Dirt, mud, gravel, snow – the world is covered with the stuff. Explore it all in an iBOT® PMD.
Connect to learn more:
Website: http://www.mobiusmobility.com
Phone: 1-833-346-4268
Email: info@mobiusmobility.com
Facebook: @IBOTbyMobiusMobility
IG: mobiusmobility
YouTube: Mobius Mobility
TikTok: mobiusmobility
Episode Transcript: https://docs.google.com/document/d/1kfPdk7asXmJ3Y46inULcOP6kboB6iuXa/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support
Hear Your Song empowers children and teens with serious illnesses and complex health needs to make their voices heard through collaborative songwriting.
In their kid-driven process, Hear Your Song volunteers help kids write their song lyrics, which are then set to music and recorded, based on the kid’s musical ideas.
Hear Your Song provides support and training for undergraduate leaders who facilitate songwriting sessions with kids through local community partnerships.
Hear Your Song shares the extraordinary songs that kids write to celebrate each songwriter’s passion, imagination, and creative vision.
Connect to learn more:
Website: https://www.hearyoursong.org/
Facebook: https://www.facebook.com/hearyoursonghys/
Twitter: @HearYourSongHYS
IG: @hearyoursonghys
Email: hys@hearyoursong.org
Episode Transcript: https://docs.google.com/document/d/1KOXiFgpzazblzswJHS1DA-w2aIGr8VMK/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Inclusion Films, started in 2007 by veteran filmmaker Joey Travolta, teaches filmmaking to individuals with developmental disabilities in six dedicated production studios throughout California.
Students have an opportunity to test their skills and experience independence when hired to work at Joey’s summer film camps.
In addition to their workshops, they travel the country offering short film camps for children and adults with developmental disabilities.
Over 75% of their graduates have been hired by companies around the country.
Carol of the Bells
Link to Transcript - https://docs.google.com/document/d/1JcP_DsHsF_en-2KVR7JlRSG7Nl0dQDQU/edit?usp=drive_link&ouid=117716030289987185197&rtpof=true&sd=true
Connect to learn more:
Website: https://www.inclusionfilms.com/
Email: info@inclusionfilms.com
Phone: (661) 324-7400
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Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support
Together for Choice's Mission is to unite to protect and advance the rights of individuals with intellectual and developmental disabilities (I/DD) to live, work and thrive in a community or setting of their choice.
Ashley Kim Weiss is a social entrepreneur and disability advocate who currently serves as the Executive Director for Together for Choice.
She is also the President & CEO of Elevare Community, which provides consulting services in housing development, residential placement, and life planning for adults with intellectual and developmental disabilities. Prior to Elevare, Ashley was the co-founder and Executive Director of Villa de Vida, a non-profit organization building an affordable housing community for adults with developmental disabilities in San Diego.
Ashley is a National Certified Guardian and licensed California Professional Fiduciary. She holds a bachelor’s degree in Finance and Management from the University of Illinois, Chicago, and a Master’s degree in Business Administration from the Claremont Graduate University’s Drucker School of Business.
Connect to learn more:
Website: https://www.togetherforchoice.org/
Email: info@togetherforchoice.org
FB: https://www.facebook.com/TogetherForChoice/
IG: @togetherforchoice
Twitter: @TogetherForChoice
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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More than 90 percent of the Aspiritech team members are on the autism spectrum. TAspiretech hires and trains team members and aims to pair them with a client and project that matches their strengths and passions. The team members of Aspiritech represent a diverse group of individuals who’ve created a strong community and a world-class business model supporting Fortune 500 companies and small businesses alike.
Mission: Aspiritech is a world-class QA testing company that empowers individuals on the autism spectrum to fulfill their potential through meaningful employment combined with social opportunity.
Vision: Working together for a world that embraces neurodiversity by valuing talents, supporting challenges, and welcoming differences.
Podcast Transcript - https://docs.google.com/document/d/1PgaSVgHf1mXbvnPY1zUTDg0zAjoFtWwe/edit?usp=drive_link&ouid=117716030289987185197&rtpof=true&sd=true
Teaching Autism Community Trades (T.A.C.T.)
T.A.C.T. Episode
Connect to learn more:
Website: https://aspiritech.org/
Facebook: https://www.facebook.com/aspiritech/
Twitter: @Aspiritech
Instagram: @aspiritech
Phone: 312-945-8378
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Developmental Disabilities and Sexuality. Elevatus helps you have these essential conversations. As national leaders in the field of sexuality and intellectual, developmental disabilities, and autism they offer evidence and trauma-informed curriculum, online training, in-services, and workshops to help professionals, educators, self-advocates, and parents skillfully and confidently navigate the topic of sexuality.
When it comes to talking about sexuality, people with disabilities are often excluded; almost as if they’re incapable of having sexual thoughts, feelings, and needs. In reality, they too are sexual beings who need the information and skills for making healthy decisions about sexuality. Though agencies who work with people with developmental disabilities know that sexuality issues need to be addressed, they often don’t feel comfortable or competent enough to do so. This training will give you the curriculum, tools, and skills you need to teach sex education classes and lead staff/parent training.
Katherine McLaughlin has 25 years of experience as an educator and trainer with a specialty in sexuality and developmental disability. She's also a member of the disability community and understands both personally and professionally the issues people with disabilities face. She named the company to represent her mission – to elevate us all – especially people with disabilities.
Episode Transcript: https://docs.google.com/document/d/1UzLzd9D5XTRGNe6kj2rbxqD6Zwpbaxjb/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Learn more:
Website: https://www.elevatustraining.com/
Facebook: https://www.facebook.com/elevatustraining
Phone: 603-399-5777 (9am-5pm EST, M-F)
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support
Raising Kellan Started in 2019. Most non-profits about children with a disability begin with a heart-rending story and the endless search on how to fix the disability.
The start of Raising Kellan wasn’t about that. You see, in June 2019, while visiting family in South Africa, Marsh Naidoo was asked to give a speech to health professionals at the Open Air School in Durban, and the feedback she received was unexpected. Sure, people were engaged. But, could she share her perspective as a physical therapist and mother of a child with cerebral palsy with other parents raising children with complex medical needs, as well?
Marsh was reluctant at the thought of sharing her experience, but she did.
She returned home and this burning thought became the blog and podcast that formed the bedrock of the non-profit organization, Raising Kellan. Since 2020, Raising Kellan has supported parents in the US, South Africa, and Europe on their journey, negotiating the uncharted territory of raising children with a disability.
Are you a parent bewildered by your child’s disability?
We are a community connected by a diagnosis, yet positively embracing our lives, and we want you to know, you’re not alone.
Raising Kellan was created by parents like you for parents like you.
Learn More:
Website: https://www.raisingkellan.org/
Podcast: https://www.raisingkellan.org/blog?tag=podcast
Marsh's book: "What I Wish I Knew Back Then: A Physical Therapist and Mother's Perspective of Raising her Child with Cerebral Palsy"
Facebook: https://www.facebook.com/raisingkellan.org
IG: @raising_kellan
Episode Transcript: https://docs.google.com/document/d/1oK6TKUM_iEL_lvK9ZyBs9yfwG5FTFPBK/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message
Parent to Parent's Vision: Parent to Parent USA will support a network of viable, sustainable, fully-functioning, and effective Parent to Parent programs in all 50 states through hands-on support, training and technical assistance, and high-quality tools and resources. Our network’s parent leadership and engaged membership will serve as strong advocates, provide robust mentoring opportunities, and develop the working partnerships with funders, service providers, and others needed to sustain and grow the program nationwide.
Parent to Parent of the United States (Parent to Parent USA) was created in 2003 with funding from the Robert Wood Johnson Foundation to ensure that families nationwide whose children have special needs have access to Parent to Parent support. Founders and affiliations: Nancy DiVenere, Parent to Parent of Vermont; Mary Slaughter, Raising Special Kids, AZ; Kathy Brill, Parent to Parent of PA; Connie Ginsberg, Family Connection of South Carolina.
Parent to Parent support – the matching of experienced, trained Support Parents with families seeking support has been proven effective in helping families cope with their day-to-day lives, connect with community resources and navigate the health care system. Parent to Parent USA has identified and connected all statewide Parent to Parent programs nationally, a first step toward forming an Alliance among all family support programs in the country that demonstrate the following:
- Parent to Parent support as a core organizational component
- Commitment to implement Parent to Parent USA – endorsed practices
Lily Brown has experienced firsthand the magic in the match of parent-to-parent support after her daughter was diagnosed with a rare genetic condition at age 3. As Co-Executive Director for Parent to Parent USA, she is dedicated to strengthening the Parent to Parent community so that no parent feels alone, ever. She leads the organization in the areas of development, program evaluation, volunteer engagement, and fiscal management. She draws on her entrepreneurial background to scale operations using a combination of talent and technology.
Learn More:
Website: https://www.p2pusa.org/
Facebook: https://www.facebook.com/p2pusa
IG: @p2pusa
Podcast Transcript - https://docs.google.com/document/d/1vBb-CidQZ0HHIQBjeZIjMKWVf0lkNEy2/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message
The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on job accommodations and disability employment issues. Serving customers across the United States and around the world for more than 35 years, JAN provides free one-on-one practical guidance and technical assistance on job accommodation solutions, Title I of the Americans with Disabilities Act (ADA) and related legislation, and self-employment and entrepreneurship options for people with disabilities. JAN provides individualized consultation to assist:
- Employers and their representatives seeking guidance on practical ways to engage in the interactive process, provide job accommodation solutions, and comply with Title I of the ADA;
- Individuals with medical conditions and disabilities seeking information about job accommodation solutions, employment rights under the ADA, self-employment and entrepreneurship opportunities; and
- Family members and rehabilitation, medical, educational, and other professionals in their effort to support successful employment outcomes for individuals with medical conditions and disabilities.
Tracie DeFreitas is the Director of Training, Services, and Outreach for the Job Accommodation Network (JAN), the leading national source of expert guidance on workplace accommodation and disability employment issues. Tracie has more than twenty-five years of experience in the disability employment field. She has served the JAN organization in various roles since joining the team in 1994, including as Principal Consultant, Lead ADA Consultant, Project Manager for the Campaign for Disability Employment (CDE), and Senior Sensory and Immunology Specialist and Team Lead. As Director of Training, Services, and Outreach, Tracie is responsible for directing the planning, design, and implementation of internal and external JAN training programs and outreach strategies. She also collaboratively manages the day-to-day operation of the JAN service to ensure that customer needs and organizational goals are met.
Learn More:
Website: https://askjan.org/
YouTube: https://www.youtube.com/janinformation
Facebook: https://www.facebook.com/JobAccommodationNetwork/
Twitter: @JANatJAN
Interview Transcript - https://docs.google.com/document/d/1P0XJyMaFeLdnHM82lxG-wW5n9U0aPHUh/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message
Leddy Glenn-Ludwig is a best-selling author, goal-setting consultant, and self-empowerment coach. In this interview, we talk through what you can do to help yourself if you have an invisible disability. We explore the differences between life coaching, consulting, and therapy. And Leddy explains how to find the right person to work with.
Throughout her life, others told her that she was not smart enough to achieve her goals and that she should settle for less. She came to believe them, but not anymore.
Leddy Glenn Coaching exists to support individuals with invisible disabilities to know their strengths and apply them to their professional life by exploring themselves on a deeper level and creating an action plan for the transformation.
Grammarly - https://app.grammarly.com/
Learn more
Website: https://leddyglenncoaching.com/
Email: leddy@leddyglenn.com
Phone: 816-787-0048
Facebook: https://www.facebook.com/LeddyGlennCoaching
"Transforming Your Life" (book): https://amzn.to/3MCwnSy
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Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message
After Over 11,000 Lawsuits, the Trend is Going Parabolic. There was a time when it was possible to get away with having a website that didn’t work for people with disabilities. But those days are long gone, and ADA regulations for web accessibility are being enforced in court.
Comply with ADA law and conform with WCAG 2.1 guidelines at every step of your web accessibility journey. Protect your website from accessibility-related lawsuits with the world's strongest automated solution for accessibility. Accessibility sets your website apart and showcases your commitment to inclusion - all while boosting SEO, search rankings, conversions, and your bottom line.
Lionel Wolberger has spent his career understanding the nuanced role that technology plays in global advancement. As UserWay’s COO, he connects their suite of AI-powered accessibility solutions with enterprises, governments, and agencies. Lionel is also a member of the W3C standards body where he advocates for the disability community.
Learn More:
Website: https://userway.org/
Facebook: https://www.facebook.com/UserWay
Twitter: @UserWayOrg
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message
In this bonus episode, Eric presents what parents and professionals should think about at various life stages, starting with receiving the diagnosis and ending when the child turns 21. Included are the question and answer sessions.
Here are the transition time stamps if you'd prefer to skip to the life stage you're currently in or approaching.
Introduction and Overview 3:09
Diagnosis 9:52
School Years 25:52
18 and older 44:30
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message
"You were in a wasteland. And not only were you in a wasteland, but the two of them were predatory. I mean it's pretty unbelievable."
Link to download the transcript - https://docs.google.com/document/d/1_DWFHwg1VYGdXogg_Erp5tZlc5VfDwWg/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Jennifer Fraser is the author of "The Bullied Brain: Heal Your Scars and Restore Your Health". She has a PhD in Comparative Literature and The Bullied Brain is her fourth book. She draws on medical, neuroscientific, and neurobiological research to examine what happens to brains that are bullied and abused. Jennifer's an award-winning educator and works as a coach, consultant, and international presenter.
Neither Jennifer nor I are mental health professionals. If you feel you need help please seek out a licensed professional in your area. We are creating these episodes to show you what is possible. There was a time when I felt broken. That I didn't fit in anywhere. I'm not going to lie and say everything is rainbows and unicorns, but my good days far outnumber my bad. It's taken a LOT of work, both on my own and with therapists. Everyone's journey is going to be different. The only constant is if you want something to change you need to take action.
Link to Jennifer's website: https://bulliedbrain.com/
Jennifer is available to consult or speak, you can reach her at JenniferFraserPhD@gmail.com.
Please consider following/subscribing. Here's a link to the website - https://shows.acast.com/bullied-brain-healing-and-overcoming-trauma
New episodes will be released every other week.
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about Eric Jorgensen and True North Disability Planning you can find us here:
Email: eric@specialneedsnavigator.us
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message
After 20 years of frustration, with very limited vacation options, Lorraine Woodward's family of four, three of whom have mobility issues due to muscular dystrophy, took it upon themselves to create their own accessible property. In 2014, Lorraine’s "A Place of No Worries" was realized. Their fully accessible property was not only a way to meet their own family vacation needs, but also a way to serve as an investment property that could be a resource for other families who needed the same accessibility features/needs.
Becoming rentABLE was founded in 2021, after years of struggling to find accessible short-term rental properties. To have an accessible property means that there are no barriers to entry for anyone; an elderly relative, a family member with a physical disability, or a friend who has been temporarily disabled. Each would have access to something that everyone should have access to a place where memories can be made and a chance to live their best life.
They understand there is no one-size-fits-all when it comes to accessibility. Disabilities come in all shapes and sizes. While wheelchair accessibility is talked about the most, they have expanded our efforts to include mobility, cognitive, hearing, vision, and aging accessibility. They offer 36 filters, so you can customize your own needs and find the best property for you and your family.
Link to the transcript - https://docs.google.com/document/d/1y6JS4y_M1Lihq7E9k35QWLuh8btb2Qs9/edit?usp=share_link&ouid=117716030289987185197&rtpof=true&sd=true
Connect to learn more:
Website: https://www.becomingrentable.com/
Facebook: https://www.facebook.com/becomingrentable
Twitter: @BRentable
IG: @becomingrentable
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message
This is the first episode of a joint venture between Jennifer Fraser and myself.
Jennifer Fraser is the author of The Bullied Brain: Heal Your Scars and Restore Your Health. She has a PhD in Comparative Literature and The Bullied Brain is her fourth book. She draws on medical, neuroscientific, and neurobiological research to examine what happens to brains that are bullied and abused. Jennifer's an award-winning educator and works as a coach, consultant, and international presenter.
The podcast is a dialogue that works in the first season like a coaching session. Eric shares his childhood experiences of being abused and Jennifer discusses the implications for my brain and for recovery. Our goal is to use Eric's childhood abuse as a case study as most people don't learn about their brains or about how abuse impacts their brains. The research is clear that the brain is innately wired to repair and recover when we know the harm was done and the evidence-based practices to heal. This is the focus of Jennifer's book, but it comes to life in the podcast as Eric bravely walks us through the abuse done to him and his many strategies for healing his neurological scars. For all those who have suffered bullying, abuse, and trauma, join us to look at it through the lens of brain science and learn ways to repair the harm done.
New episodes will be released every other week, starting on 7 June. Use the link below to subscribe or search for "Bullied Brain" in your podcast player. This is a new show, so it may take a little while to be approved in your player. If you don't see it, please keep checking.
https://shows.acast.com/bullied-brain-healing-and-overcoming-trauma
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message
This is the first episode of a joint venture between Jennifer Fraser and myself.
Jennifer Fraser is the author of The Bullied Brain: Heal Your Scars and Restore Your Health. She has a PhD in Comparative Literature and The Bullied Brain is her fourth book. She draws on medical, neuroscientific, and neurobiological research to examine what happens to brains that are bullied and abused. Jennifer's an award-winning educator and works as a coach, consultant, and international presenter.
The podcast is a dialogue that works in the first season like a coaching session. Eric shares his childhood experiences of being abused and Jennifer discusses the implications for my brain and for recovery. Our goal is to use Eric's childhood abuse as a case study as most people don't learn about their brains or about how abuse impacts their brains. The research is clear that the brain is innately wired to repair and recover when we know the harm was done and the evidence-based practices to heal. This is the focus of Jennifer's book, but it comes to life in the podcast as Eric bravely walks us through the abuse done to him and his many strategies for healing his neurological scars. For all those who have suffered bullying, abuse, and trauma, join us to look at it through the lens of brain science and learn ways to repair the harm done.
New episodes will be released every other week, starting on 7 June. Use the link below to subscribe or search for "Bullied Brain" in your podcast player. This is a new show, so it may take a little while to be approved in your player. If you don't see it, please keep checking.
https://shows.acast.com/bullied-brain-healing-and-overcoming-trauma
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Kim Martin is a trusts and estates attorney licensed in Georgia and Illinois whose practice focuses on estate planning for families with a special needs family member. Her areas of expertise also include guardianship, divorce settlement agreements in cases that involve a special needs child, and tax planning.
Kim’s publications include articles in Trusts and Estates Magazine and Family Lawyer Magazine. She has appeared on several podcasts, most notably Wealth Matters and ABC’s of Disability Planning. She recently recorded an informational video for True Link on the subject of Divorce and Special Needs Children. Hear more of Kim’s expertise in special needs law on her YouTube channel here.In this episode, we talk about her favorite Trust provisions - what they are and why she likes to include them.
Contact Kim:
Website: https://www.harrisonheld.com/professionals/kim-martin/
Email: kmartin@harrisonheld.com
Kim's interview about divorcing with a disabled child - https://spotifyanchor-web.app.link/e/tJlDi7g9izb
Title credit to Google's Bard
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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If I Need Helpunderstands the panic that can overtake a special needs loved one, caretakers, and the community when a loved one with special needs goes missing. Not being able to communicate with others due to a disability or disorder can be frightening and overwhelming. It doesn't have to be, and If I Need Help … can help.
If I Need Help reunites those who might become lost, disoriented, or need assistance in a critical moment with their families, loved ones, and caregivers using modern technologies in practical, accessible, and affordable ways.
Founders Bruce & Erin Wilson are the proud parents of a fun-loving and overly energetic young man, Jay, who has moderate to severe Autism. Jay has very limited language ability. Having been lost at school and camp in the past, Jay's parents keep a watchful eye on him and often position themselves between Jay and an exit because he can suddenly decide to bolt into danger fast.
IF I NEED HELP was created out of love and concern for Jay. The system they developed greatly increased his security measures. Because it worked for them, they wanted to share it with millions of other people in the same situation.
Connect to learn more:
Web: https://www.ifineedhelp.org/
Phone: (661) 524-6732
Email: info@ifineedhelp.org
FB: https://www.facebook.com/qrcodeid
Twitter: @QRCodeiD1
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Stefan served as a patrol sergeant in the Chicago (IL) suburbs for ~ 19 years. He started Blue Line Spectrum Safety to provide comprehensive training relating to the unique challenges of those affected by Autism and intellectual disabilities to promote a greater understanding between all.Stefan is an instructor for North East Multi-Regional Training (NEMRT), Tri-River Police Training Region, and is also an approved instructor regarding Autism and Intellectual/Developmental Disabilities for the Basic CIT Course with the Illinois Law Enforcement Training and Standards Board.
Stefan has written articles for the International Law Enforcement Educators & Trainers Association (ILEETA) Journal and Calibre Press regarding Law Enforcement interactions with individuals with Autism. Stefan is an adjunct faculty member at Waubonsee Community College and the Suburban Law Enforcement Academy at the College of DuPage.In support of the overall mission of public safety personnel, Blue Line Spectrum Safety LLC provides comprehensive training relating to the unique challenges of those affected by Autism and intellectual disabilities to promote a greater understanding between all.
Stefan's interview with Paul Carroll on the Autism Dadvocate podcast - https://www.autismdadvocate.org/dads-know-about-police-safety
Connect to learn more:
Website: https://www.bluelinespectrumsafety.com/LinkedIn: https://www.linkedin.com/in/stefan-bjes-a87a8841/
Email: bluelinespectrumsafety@gmail.com
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Social Optics is a web app that delivers direct instruction in a fun, anime environment. Their software collects data on a student's understanding of communication fundamentals, tracks progress, and provides feedback for students, teachers, administrators, and parents on individual dashboards.
Social Optics is part of a research study with the University of Montana MIND Lab. The mission of the MIND (Meaningful Intervention for NeuroDiversity) Lab at the University of Montana is to investigate the effectiveness of evidence-based practices for people that experience autism and neurodiversity across the lifespan and explore pedagogy related to adult learning.Connect to learn more:
Website: https://mysocialoptics.com/
email: info@mysocialoptics.com
IG: social_optics
FB: https://www.facebook.com/profile.php?id=100085927495039
Phone: 312 - 545 - 1146
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Barbara Valenzuela started her company, T&K Innovators, to help families in crisis. They offer training and consulting for adults, with a focus on how to prevent the crisis before it happens. She likes to ask "What brings the caregiver and the person they are supporting joy?". Although it's still in the beginning stages, her plans are to put together a curriculum and build a community. Her advice for caregivers and parents when there is a crisis requiring law enforcement involvement is to tell the operator about the individual's disability, stressing what the person needs.
Connect with Barbara to learn more:
Web: https://tkinnovators.com/
Email: info@tkinnovators.com
IG: @TKInnovators
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Marion Davis is a Marketing Strategist who develops Outreach Campaigns for Disabled Consumers. She's also a writer on Healthcare Accessibility Topics for the Millions of Homebound & Bedbound Patients in the US. She
In this episode, she shares the experiences she's had with US healthcare. Speaking for myself, I was horrified. No one should be subjected to this type of behavior. It's one thing to read statistics about how much abuse occurs in the United States, especially to women with disabilities. It's quite another to hear about it first-hand.
I hope this raises awareness and leads to more accountability within medical practices nationally.
Dr. Death Podcast - https://wondery.com/shows/dr-death/
Marion's business website: https://medicalofficemarketing.org/
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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John Loeppky is a disabled freelance writer, actor, and creative currently living in Regina, Saskatchewan. He is the former editor-in-chief of the University of Regina's student newspaper, the carillon. He has published work with Passage, Media Co-op, CBC, Accessibility.com, Ricochet, IndieGraf, and FiveThirtyEight. He can be reached at John@Jloeppky.com.Below is the article that caught my attention and led to this interview.
https://www.cbc.ca/news/canada/saskatoon/taking-a-sitting-stand-disability-representation-opinion-1.6744704
Connect to learn more:
Website: https://www.jloeppky.com/
Email: John@Jloeppky.com
Twitter: @Cymru_Et_Canada
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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These are some of the most important facts you should know about hospice care:
- Hospice is for people with advanced illnesses. Hospice provides symptom and pain management for patients with serious illnesses, no matter their age, culture, beliefs, or cause of illness.
- Hospice can happen anywhere. Hospice is a service that comes to the patient in the place they prefer to be for end-of-life care. Patients at home feel better surrounded by the faces and things they know and love.
- Hospice is a choice. Patients can leave, or “revoke their hospice status” at any time for any reason. Patients can also come back to hospice at any time, as long as they meet the eligibility requirements.
- Patients can keep taking some medicines while in hospice. Hospice patients have been prescribed medicines that manage the symptoms of their advanced illness and improve their quality of life.
- Hospice gives medicines as needed to help with symptoms. Hospice doctors try to give just enough medicine to manage symptoms and ease pain.
- Family or friends provide care with support from the hospice team. Family or friends are supported and trained by an expert team that makes regular, scheduled visits. For patients who live in assisted living communities and nursing homes, the hospice team works together with the facility staff.
- There is no limit to the time a patient can be in hospice. Hospice is for patients who have 6 months or less to live according to a doctor, and it can be extended when needed. In surveys, family members often say, “we wish we had known about hospice sooner.”
- Hospice provides home medical equipment and supplies related to the cause of the illness. This includes shower chairs, oxygen tanks, hospital beds, toileting supplies, and more.
- Hospice supports the family. After a patient passes, hospice addresses emotional and spiritual pain suffered by loved ones, often for more than a year.
- Most hospice patients do not have any out-of-pocket expenses. Medicare Part A covers up to 100% of the cost of hospice care related to a hospice-eligible patient’s illness, with no deductible or copayment. Private or employer-provided health coverage can vary. Check with your insurance provider for details about hospice eligibility, coverage, and out-of-pocket expenses. Medicaid provides hospice coverage, but it varies by state.
Connect to learn more about Frederick Health Hospice:
Website: https://www.frederickhealthhospice.org/
Facebook: https://www.facebook.com/Frederickhealthhospice/?ref=bookmarks
Phone (available 24 hours): 240-566-3030
Contact Page: https://www.frederickhealthhospice.org/About-Us/Contact-Us.aspx
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The Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have ongoing support from those dedicated to treatments and cures. Their expanding network of patients and caregivers, volunteers and advocates, researchers and clinicians are committed to helping one another along the path that leads to the best quality of care — and the highest quality of life—for every child.
Vision: "A world in which all children affected by neurologic disorders reach their full potential."
Mission: "To serve as a collaborative center of education, resources, and support for children and their families living with neurologic conditions, and facilitate connection with medical professionals who care for them."
Child Neurology Foundation is committed to helping children and their families living with a neurologic condition receive the best quality of care — and achieve their highest quality of life — by providing information, education, and one-on-one support when it’s needed most. They offer one-on-one family support as well as a database of child neurological disorder information and resources, both accessible from the homepage of their website.
Here's a link to their disorder directory - https://www.childneurologyfoundation.org/disorder-directory/
Connect to learn more:
Website: https://www.childneurologyfoundation.org/
Contact Family Support: https://www.childneurologyfoundation.org/family-support/
Facebook: https://www.facebook.com/CNFoundation
Twitter: @Child_Neurology
Insta: @childneurologyfoundation
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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STEERus believes everyone can learn – but only if they’re willing to put in the work. While some behaviors require extended life coaching or business coaching to see an improved outcome, you can begin making changes in your life with “micro-burst” coaching and navigation sessions. Their Coaching Capsules are designed to be consumed in about 15 minutes and they set you up with workbooks and exercises and recommended reading. Follow-ups with 1:1 private coaching sessions (even as little as 15 min can make a difference) or group coaching sessions can help you navigate your personal and professional development.
Employee training is the key to boosting productivity, reducing costs, lowering workplace toxicity, and increasing retention and employee engagement. Start by building critical communication and people skills using STEERus' FREE resource library.
Their content has been crafted and curated by some of the best coaches and instructors in the world. It’s all about boosting your emotional intelligence so that you learn to "read the room" and get along better with others.
Communication & Social Skills for Special Needs - Fundamentals of a good email, how to introduce yourself, how to text message a co-worker, navigate conflict, and more. 4-weeksBooks mentioned:
"Tuesdays with Morrie"
"A Reason, A Season, A Lifetime"
Connect to learn more:
Website: https://steerus.io/
Phone: 908-652-3649
Email: hello@steerus.io
FB: https://www.facebook.com/steerus
Twitter: @steerus_io
Insta: @steerus.io
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
--- Send in a voice message: https://podcasters.spotify.com/pod/show/abcs-disability-planning/message
The Option Group is dedicated to offering comprehensive care management services for older adults, adults with disabilities, and adults with chronic illnesses. From Life Care Management services to family caregiver support, their goal is to give your loved one and your family the best quality of life possible. The Option Group works with family caregivers, medical professionals, and professional family advisors to ensure successful patient outcomes.
The Option Group has eight core knowledge areas that guide their care for adults with disabilities:
1) Crisis Intervention
2) Healthcare Navigation
3) Facility Placement
4) Healthcare Budgeting
5) Family Education
6) Resources Coordination
7) Patient Advocacy
8) Legal Resources
Learn more:
Website: https://theoptiongroup.net/
Phone: 866-227-3798
Email: info@theoptiongroup.net
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Jacob teaches job seekers of all abilities how to identify opportunities OUTSIDE of their network by utilizing the LinkedIn algorithm, as well as content creation based on one’s subject matter expertise and targeting/adding value to decision makers behind any job in the world.
STRONG supporter of jobseekers with DISABILITIES AND UNDERREPRESENTED populations
Contact:
Email: jacob.a.levy@gmail.com
LinkedIn: https://www.linkedin.com/in/searchable4u/
Website: https://searchable.work/
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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There are unavoidable sensory triggers in healthcare settings. A dentist cannot work without putting tools in a patient’s mouth, and a doctor cannot forgo a necessary shot. However, there are many aspects of a healthcare visit that can be improved upon, better supporting a patient’s sensory needs. Sensory Health supports providers in both making the necessary environmental modifications as well as providing a foundational training program to support provider confidence.
Connect to learn more
Website: https://www.sensory.health/
Email: info@sensory.health
Phone: 469-305-7469
FB: https://www.facebook.com/sensory.health.fb
IG: @sensory.health
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Axis for Autism provides Arizona children, adolescents, and adults with the highest-quality autism evaluations. They’ve built Arizona’s most extensive diagnostic system with a deep bench of doctorate-level psychologists, allowing them to serve hundreds of patients monthly. Their highly trained clinical team uses multiple, scientifically validated diagnostic tools and extensive QA protocols to deliver gold-standard evaluations, including ADOS.
Axis for Autism’s deep bench of licensed doctorate-level psychologists has extensive backgrounds in child development and neurodevelopmental disorders. With each one specializing in a different stage of life — preschool children, adolescents, and adults — they can see hundreds of patients a month and support them throughout their entire lives.
What to expect
- Initial Free Screening: An introductory call with an Axis for Autism staff member will help determine whether your child or loved one is a candidate for evaluation. (Schedule an introductory call.)
- Background: You will be asked to complete paperwork, including a thorough history of your child, in advance of the evaluation.
- Assessment: On evaluation day, your child or loved one will spend 45-90 minutes with a highly trained specialist who will tailor the assessment to each individual’s needs. It will be recorded. For children, this assessment typically consists of semi-structured play-based activities, observations, and interviews. Most report it’s a fun experience. After the evaluation, you will schedule telehealth with a psychologist.
- Follow-Up & Diagnosis: After consideration of all testing data and other patient information, you will meet with the psychologist to discuss the results and whether an autism diagnosis is appropriate. A virtual visit cuts down the wait time to connect with your psychologist while also saving you another drive to the office.
- Report: You will receive a written report and recommendations including formal documentation of the diagnosis, along with guidance and local resources for interventions and therapies.
Learn more:
Website: https://www.axisforautism.com/
Email: info@axisforautism.com
Phone: 602-888-8882
FB: https://www.facebook.com/axisforautism
IG: @axisforautism
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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RoboKind is an education technology company that builds next-generation assistive robots and social-emotional curricula for autistic students. Over 400 districts work with RoboKind's CASE-endorsed program which includes facially-expressive robots and an SEL curriculum based on a multidisciplinary developmental behavioral approach, leveraging speech-language pathology, occupational therapy, applied behavioral analysis (ABA) principles, and developed with the assistance of subject-matter experts, professionals, and educators.
Each robot replicates most human facial expressions and speaks 20% slower than most people. The embedded chest screen displays core vocabulary and icons, an important evidence-based practice. Every robot also has a name, inspired by the values and commitments of the individuals Robokind's staff admires.
Learn more:
Website: https://www.robokind.com/
Facebook: @Robokind
Twitter: @Robokind
IG: @robokindrobots
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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From the Administration for Community Living (ACL):
Protection and Advocacy Systems (P&As) work at the state level to protect individuals with disabilities by empowering them and advocating on their behalf. There are 57 P&As in the U.S. and its territories. Each operates independently and may partner with agencies that provide other services.
Along with the other AoD grantees, P&As are dedicated to the ongoing fight for the personal and civil rights of individuals with disabilities. P&As provide legal support to traditionally unserved or underserved populations to help them navigate the legal system to achieve resolution and encourage systems change. P&As ensure that individuals with disabilities are able to exercise their rights to make choices, contribute to society, and live independently.
P&As have the legal authority to:
- Investigate suspected abuse or neglect and seek justice for victims and their families.
- Have access to records and facilities necessary to investigate abuse or neglect or to monitor the treatment and safety of residents.
- Pursue litigation and all other appropriate remedies under federal, state, and local law.
- Provide information and referrals regarding entitlements to services and other legal rights.
- Educate policymakers on needed reforms to disability-related laws and services.
Disability Rights Rhode Island - https://drri.org/
National Disability Rights Network - https://www.ndrn.org/
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Annette Hines brings personal experience with special needs to her work as the mother of two daughters, one of whom passed away from Mitochondrial disease in November 2013. This deep personal understanding of raising a child with disabilities fuels her passion for quality special needs planning.
Annette knows firsthand just how complex and overwhelming the legal systems and processes are for parents of children with special needs. Amidst the grief of losing her beloved Elizabeth, Annette realized that life was giving her a “second chance” to use her extensive legal expertise to help families who are going through the same challenges she faced.
You can get more of Annette's content using the links below:
Special Needs Companies - https://specialneedscompanies.com/
"Butterflies and Second Chances" - https://amzn.to/3Hf4cqo
Special Needs Academy - https://enroll.specialneedsfamilyservices.com/
Parenting Impossible Podcast - https://specialneedscompanies.com/podcasts/
Facebook - https://www.facebook.com/SpecialNeedsCompanies/
Twitter - @SpecialNeedsCo / @AnnetteHines15
Instagram: @parentingimpossible
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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In less than a minute you can make sure others will know what to do for your child's support and care when you can't be there!
Vest is your easy easy-to-use solution to organize, update, and instantly access your child's key information, when and where you need it. Vest also gives you a safe and effective way to make sure others will know what to do for your child's care when you can't be there.
Connect to learn more:
Website: https://vestlife.com/
Email: vestsuccess@vestlife.com
Facebook: @VestLife
IG: @vestlifehq
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Allana Robinson is a Parenting Coach and CEO of Uncommon Sense Parenting, as well as a Registered Early Childhood Educator, Mom of two, and military wife. Her mission is to make the mysterious inner workings of your child’s brain not such a mystery anymore. She wants you to feel like the expert on your own child, ready to take on the world. But she knows you don’t have time (or the desire) to go out and spend the time (not to mention the money!) on all the certifications, learning all the different methods, and reading all the books.
Here's a link to the episode where I first heard about what Allana is doing - Parenting Impossible
Free Parenting Class - https://www.allanarobinson.com/freeclass/
Connect to learn more:
Website: https://www.allanarobinson.com/
Facebook: @uncommonsenseparenting
IG: @parentingposse
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Brianna Paauwe became a wheelchair user after a car accident left her with a spinal cord injury. Since the accident, she found her love of helping others through volunteering and going back to school for Human Services, Social Work, and Criminal Justice. Brianna helped launch a fitness app for wheelchair users, Wheel With Me Fitness.
Links to resources mentioned:
Think and Grow Rich
Nolu - dating app
Connect to learn more:
Wheel With Me Fitness: https://wheelwithmefitness.com/
Wheel With Me Foundation: https://www.wheelwithmefoundation.org/
Connect with Brianna Paauwe on Social Media:
Facebook: https://www.facebook.com/bribabe16
Instagram: https://www.instagram.com/bribabe16/
Tiktok: https://www.tiktok.com/@brigrace90?la...
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Don't let your disability keep you from exercising, especially if it's something you enjoy! All of AMG Fitness' programs are free for participants. The workouts in each program are the same, they're adapted to meet an individual's needs - seated, seated and standing, or standing. Each program has ~ 20 workouts. As a nonprofit AMG Fitness relies on the generosity of donors like you. Please use this link if you would like to support their mission.
The mission for AMG Fitness is three-pronged:
Workout Plans: Create numerous workout routines that are easily customizable for varying types of abilities through three different programs.
Creating Community: Provide online and in-person resources to help empower AMG members to live healthier lives and gain an increase in movement.
Raise Awareness: Elevate the discourse around physically disabled people and the need and benefits of physical fitness in this community.
Fitness Programs:
Adapt - This is focused on those in classes 1-5 and provides sitting and limited movement exercises. This program is focused on getting your heart rate up and improving core strength to allow for greater mobility in your activities of daily living.
Move - This is focused on offering workouts for classes 5-7. The focus of this program will be an adaptable HIIT workout with different circuits to gain strength and increase heart rate. Weights are not required but preferred
Gain - This is focused on workouts for classes 7-10. The program will include weights and resemble a HIIT workout with more complex exercises that require the ability to move from floor to standing.
Connect to learn more:
Website: https://www.amgfitness.org/
Twitter: @AlyssaGialamas
IG: @alyssa.gialamas
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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There is an epidemic of abuse in society.Reports of abuse surface on an almost weekly basis across organizations and industries.Gymnasts abused by Larry Nassar, and in the Olympic programs of at least 6 other countries, female soccer players abused by multiple youths and NWSL coaches, high school rowers abused in Maryland, bobsledders, rugby players and rowers abused in Canada, football players abused by the team doctor at the University of Michigan, US snowboarders, NHL hockey players…And those are just the stories that have made the news.
Research indicates children are most vulnerable to sexual abuse between the ages of seven and thirteen. The median age for reported abuse is nine years old. However, more than 20% of children are sexually abused before age eight. And the numbers are even higher for women with intellectual and/or developmental disabilities. These statistics likely underreport the frequency of sexual abuse and do not consider covert emotional abuse (grooming) and overt emotional and physical abuse.
We can prevent much of this abuse, and the devastating consequences, by teaching children to recognize all forms of abuse, and empowering them to speak up.
Amy Saltzman started Spot A Spider to empower people of all ages to see and stop abuse in any setting (residential facilities/group homes, sports, schools, religious organizations, community activities, etc).
Learn more:
Website: https://spotaspider.com/?ref=TNDP
Email: info@spotaspider.com or dramy@spotaspider.com
Phone: 650-575-5780
Facebook: @spotaspider
Twitter: @SpotSpiders
IG: spotapsider
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Are you empowering AAC users, or censoring, and maybe even accidentally hurting, them? AAC users have little to no control over what words they have to communicate. They rely on whoever programs their device. This could lead to well-meaning individuals inadvertently censoring an AAC user. Worse, it leaves AAC users unable to say anything about the abuse they may be suffering.
Ms. Hali Strickler is an AAC Services Coordinator for TechOWL at the Institute for our Whole Lives. She provides AAC, assistive technology support, and services to individuals with complex communication needs. Hali received her Bachelor of Arts and Master of Arts in Speech, Language, and Hearing Science from Temple University. She is a licensed and certified speech-language pathologist with experience in the public school setting.
LOMAH Episode referenced - https://www.lomah.org/podcast-season-6/167
Connect to learn more:
Website: https://techowlpa.org/towl_staff/hali-strickler/
Email: hali.strickler@temple.edu
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Abuse Red Flags - do you know what you should be looking for? It's not always blatant. In this episode Marvie shares what parents and professionals can do to spot abuse.
Marvie Corbett serves as a Director of Psychotherapy and our Director of Educational Advocacy with Rebecca Resnik and Associates. Marvie is a Licensed Clinical Social Worker (LCSW-C) in the state of Maryland. She has been in the field for over 10 years. Marvie earned her Master's in Social Work at the University of Maryland, Baltimore in 2013. Marvie graduated from West Virginia University in 2008 with a Bachelor of Arts in Psychology.
Marvie specializes in helping individuals, couples, and families learn to understand their unique and hidden strengths, even those that sometimes present as barriers. Marvie works with clients to utilize these strengths to develop new skills and behaviors that help them to feel more empowered, increase self-worth, to improve intrinsic motivation, and feel healthy control over thoughts and feelings. Marvie has experience working in a variety of settings including psychiatric inpatient, residential, partial hospitalization, intensive outpatient, community-based centers, schools, and private practice.
Marvie has experience working with children, adolescents/young adults, and adults who have a wide range of concerns including anxiety, depression, self-esteem, impulse control, stress management, and family or other relational conflicts. Additionally, she has experience supporting and helping those with trauma, OCD, and attachment-related symptoms. Marvie is trained in a wide variety of treatment approaches including Cognitive Behavioral Therapy, Dialectical Behavioral Therapy, Psychodynamic Therapy, Family Therapy, Internal Family Systems, Systemic Therapy, and expressive therapies (e.g. art and sand tray therapy).
Connect to learn more:
Website: https://www.resnikpsychology.com/
Phone: 301-581-1120
Contact page: https://www.resnikpsychology.com/contact
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Eleni Paris is a licensed marriage and family therapist in the Tampa Bay area with a bachelor's degree in psychology and a master's degree in marriage and family therapy, both from Virginia Polytechnic Institute and State University. She has over 20 years of professional experience including clinical work, workshop and seminar presentations, discussion and support groups, writing contributions, collaborative work with various health professionals, and wellness coaching. Eleni is a clinical member of the American Association for Marriage and Family Therapy and has been published in the Journal of Marital and Family Therapy.
Eleni is married and has two daughters, one with developmental disabilities. As a stay-at-home mom during her girls' childhood, she was faced with an abundance of commitments, in terms of helping her special needs daughter, and providing the ongoing support needed for both of her daughters. Parenting a special needs child and navigating the unique challenges involved, in combination with her professional background, has enabled her to help others gain the essential skills and tools that are needed in stressful life situations to cope, heal, and grow.
Blogs:
"How living with a Special Needs sibling has affected my daughter's view on life"
"Marital therapy for parents of Special Needs Children"
Connect to learn more:
Website: https://www.eleniparislmft.com/
Phone: 813-609-0438
Email: therapy@eleniparislmft.com
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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The Vanderbilt Kennedy Center Treatment and Research Institute for Autism Spectrum Disorders (TRIAD) is dedicated to improving assessment and treatment services for children with autism spectrum disorders and their families while advancing knowledge and training.
Since its inception and evolution, TRIAD has provided services to thousands of children and families throughout Tennessee and beyond. TRIAD programs address community needs for cutting-edge information, high-quality support, and innovative interventions for children with autism spectrum disorders. TRIAD’s specialized outreach staff provides training and direct consultation in state-of-the-art behavioral and educational assessment and intervention strategies in schools throughout the region.
TRIAD-directed research programs and affiliated research partnerships examine the causes and treatment of ASDs. Currently, these directed research and partner programs include projects related to the development of siblings of children with autism, the identification of genetic and core behavioral features of autism, the nature, and treatment of sleep disturbance in children with autism, the diagnosis of autism itself, early intervention with children at risk for autism, and understanding the health and well-being of parents with children with autism. Research conducted through TRIAD serves not only the scientific community at large in its quest to identify the development and causes of ASD but also guides best practices for families and professionals working with children with ASD.
Connect to learn more:
Website: https://vkc.vumc.org/vkc/triad/home
For live workshops and online learning questions please email triad.doe@vumc.org
For all other inquiries call (615) 322-7565 or email autismresources@vumc.org
Facebook: https://www.facebook.com/VKCTRIAD/
Twitter: @VKCTRIAD
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Creating Change • Improving LivesThe Maryland Developmental Disabilities Council creates change to make it possible for people with developmental disabilities to live the lives they want with the support they need.
Their vision is that people with and without disabilities in Maryland live, learn, work, and play together.
The Maryland Developmental Disabilities Council (Council) has been creating change to improve the lives of people with developmental disabilities since 1971. They focus on children, family, and adult issues. The Council is an independent state agency. They are led by people with developmental disabilities and family members of people with developmental disabilities.
Every 5 years the Council develops a State Plan. The Council’s State Plan includes our most important goals and how the DD Council will accomplish them. Their work is guided by a federal law called the Developmental Disabilities Assistance and Bill of Rights Act– better known as the DD Act. There is a DD Council in every state and U.S. territory (56).
The Council’s funding comes from the federal government. They use their funding on the activities outlined in our State Plan. Their work is completed by staff, Council members, and grantees.
If you would like to access the Council's guide to Maryland ABLE accounts, Future and Estate Planning, or any of their other publications please use the link below.
https://www.md-council.org/publications/
Connect to learn more:
Web: https://www.md-council.org/
FB: https://www.facebook.com/MDDDCouncil/
Twitter: @MdDDCouncil
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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First Maryland Disability Trust specializes in cost-effective, special needs disability trustee services designed to enhance beneficiaries’ quality of life. They provide families, friends, and individuals with the tools to plan for current and future needs. All while protecting eligibility for public disability benefits.
Supporting and encouraging families to plan for the future, including:
- Special Needs Trusts
- Special Needs Planning
- Settlements
- Inheritance & Unplanned Funds
- Social Security Administration (SSA) Awards
Connect to learn more:
Web: https://www.firstmdtrust.org/
Phone: 410-296-4408
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For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Executive Function Coach helps individuals diagnosed with giftedness, 2e, dyslexia, dysgraphia, AD/HD, ODD, dyscalculia, anxiety, "high-functioning Autism", memory problems, and minor traumatic brain injury ("m TBI") improve their executive function skills. They customize their services to meet their client's individual needs.
Resources Mentioned:
Tower of Hanoi
Mindprint
Focus on Success Radio
Executive Function Magazine
Luminosity
Connect to learn more:
Web: https://executivefunctioncoachaz.com/
Facebook: https://www.facebook.com/focusonsuccess11/
IG: @executive_function_coach
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Send in a voice message: https://anchor.fm/abcs-disability-planning/message
Sunshine Foundation’s sole purpose is to answer the dreams of chronically ill, seriously ill, physically challenged, and abused children ages three to eighteen, whose families cannot fulfill their requests due to the financial strain that the child’s illness may cause.
Sunshine Foundation’s special dreams can be anything from a celebrity meet and greet, a family trip, a shopping spree, or adaptive medical or therapeutic equipment! Our dreamers have requested and received items such as above-ground swimming pools, outdoor play equipment, sensory rooms, and many other amazing dream items.
When asked the question, “If you could have one dream, what would it be?” the most common response from the children we serve is to visit the Central Florida theme parks. Our magical dreams may include visits to Legoland, Disney, SeaWorld, Universal, and more. Children get to meet their favorite characters, enjoy the rides, and take in all the amazing sights.
Sunshine Foundation has its own Dream Village in Davenport, FL, where families may stay while on a dream trip to Central Florida! The Dream Village features nine fairy tale-themed cottages plus accessible amenities, including a heated zero-entry swimming pool, a mini-golf course, and a playground!
Links mentioned:
"Josh's World" (book sales support Dreamers)
Warm Blanket Hugs
Connect to learn more:
Web - https://sunshinefoundation.org/
FB - https://www.facebook.com/sunfound
Twitter - @SunFound
IG - @thesunshinefoundation
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message
Sunshine Foundation’s sole purpose is to answer the dreams of chronically ill, seriously ill, physically challenged, and abused children ages three to eighteen, whose families cannot fulfill their requests due to the financial strain that the child’s illness may cause.
Sunshine Foundation’s special dreams can be anything from a celebrity meet and greet, a family trip, a shopping spree, or adaptive medical or therapeutic equipment! Our dreamers have requested and received items such as above-ground swimming pools, outdoor play equipment, sensory rooms, and many other amazing dream items.
When asked the question, “If you could have one dream, what would it be?” the most common response from the children we serve is to visit the Central Florida theme parks. Our magical dreams may include visits to Legoland, Disney, SeaWorld, Universal, and more. Children get to meet their favorite characters, enjoy the rides, and take in all the amazing sights.
Sunshine Foundation has its own Dream Village in Davenport, FL, where families may stay while on a dream trip to Central Florida! The Dream Village features nine fairy tale-themed cottages plus accessible amenities, including a heated zero-entry swimming pool, a mini-golf course, and a playground!
Links mentioned:
"Josh's World" (book sales support Dreamers)
Warm Blanket Hugs
Connect to learn more:
Web - https://sunshinefoundation.org/
FB - https://www.facebook.com/sunfound
Twitter - @SunFound
IG - @thesunshinefoundation
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message
Founded & launched in 2017 by Lisa Marie Clinton, avail® was developed from a desire to both raise public expectations and empower individuals to achieve their goals. Lisa questioned how to revolutionize how individuals were supported, and equip them with the tools to self-manage their day and have ownership. The advances in technology can now support such an approach.
In addition, they wanted to support organizations to be in line with best practice guidelines, and implement evidence-based programs which report and achieve data-driven outcomes.
This has been achieved, and today the solution is funded globally by many local authorities and governments as a leading solution and has proven to have a life-changing impact on users.
In 2021, Avail Support was acquired by CentralReach, a leader in Autism and IDD software and services. Lisa Marie now serves as Managing Director of Avail Support and continues her mission to bring innovation, opportunities, and independence to those who may need additional support.
Connect to learn more:
Website: https://availsupport.com/
Facebook: https://www.facebook.com/availsupport
Twitter: @availsupport
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message
NuroLux is a movement to restore hope for families impacted by Autism by providing them with the team, clinical and educational technology tools, and a plan to light the path ahead.
Their Logo & Alliance As reflected by the three hands protecting the heart in their logo, they believe a balanced Alliance between (1) the family, (2) the multi-disciplinary professional team, and (3) the community will significantly improve the lives of families impacted by Autism. This Alliance must be managed as your impacted child has new teachers, care teams, and experiences. NuroLux will provide families with the tools to form and maintain this important Alliance.
Their Vision To empower families impacted by Autism, the professionals supporting them, and their communities with better resources to navigate the fractured landscape of care through NuroLux’s actionable strategies, world-class coaching, and industry-leading solutions to meet each family’s unique needs. NuroLux’s community provides our members with holistic, realistic, and actionable tools to improve the quality of their lives.
About Dr. Jessica Taverniti
Dr. Jessica Taverniti’s unwavering optimism and energy, a partial product of her Rocky Mountains upbringing, coupled with her over 17 years of experience supporting families impacted by Autism, ignites NuroLux’s mission. Consistently challenging and improving the status quo in traditional Autism care models, Jessica believes better resources are needed to empower the entire family unit as they navigate their loved one’s Autism journey.
A Clinical Psychologist and Board Certified Behavior Analyst by trade, Jessica has worked in every corner of Autism care helping hundreds of families around the country. She’s served as a one-to-one behavioral therapist; an advocate; developed treatment clinics, special-education schools, and ADS-focused technologies around the world; supervised therapists and clinicians on every level, and is a sought-after teacher in Doctoral-level programs at several universities.
Jessica’s entrepreneurial soul and passion for sharing her vast experience and perspectives will ensure families and individuals impacted by Autism thrive in all aspects of their lives.
Connect to learn more:
Website: https://nurolux.com/
Facebook: https://www.facebook.com/NuroLux
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message
Around the world, children with Down syndrome are routinely abandoned and institutionalized for life. This widespread problem seems overwhelming, but there is hope. RODS Heroes wholeheartedly believe that when you become actively engaged in good work, whether that be adopting a child or helping create opportunities for others to adopt, you will witness miracles. People will help you, partnerships will be forged, and all of the necessary components of your plan will fall into place. But you have to be willing to take a leap of faith.
RODS Heroes is a nonprofit committed to finding a loving home for all orphaned children with Down syndrome. Through the efforts of our many RODS Heroes and the amazing families who are answering the call to adopt, miracles are transpiring right before our eyes.
Brady and Andrea Murray are the founders of RODS Heroes, and Brady serves as its President. Their journey with the Down syndrome community began in 2007 when their son was born with Down syndrome. The Murrays quickly realized that what they thought would be one of their family's greatest challenges would actually be one of their greatest blessings.
Reece's Rainbow - https://reecesrainbow.org/
Connect to learn more:
Website: https://rods.org/
Facebook: @rodsheroes
Instagram: @rodsheroes
Email: hero@rods.org
See the Miracle Podcast: https://anchor.fm/seethemiracle
Interview w/ Andrea Roberts and A Mother's Rest - https://spotifyanchor-web.app.link/e/Sx7rcvF9lub
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABCs of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message
The Special Abilities Network (SAN) is a team of financial planners who are members of the special needs community professionally and/or personally. They’ve made it their life’s work to empower families in the special needs community because they understand what it means to wake up in the middle of the night with fears of the future.
The founders of SAN prefer the term “special abilities” rather than “special needs.” This is because their own experience with their own children has been that, although they do need more help than typically developing individuals would, their children do have many special abilities. They have unique ways of connecting with others and shining a bright light on the world.
Brady Murray is the proud father of 7 children, 2 with Down syndrome: one born into his family, Nash, and the other adopted from China, Cooper. The Murray family loves all things special needs and strongly believes in second chances. This belief fuels their love for foster care, and the two youngest children in the family were adopted through foster care.
Connect to learn more:
Website: https://specialabilitiesnetwork.com/
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABCs of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message
What is FD/MAS?
The name of this condition, Fibrous Dysplasia/McCune-Albright syndrome (FD/MAS), can sometimes be confusing. Some people only have affected bones, in which case it might be called FD. When bones and other tissues are affected, it is called MAS. Since both FD and MAS are caused by the exact same gene mutation, and since many people with FD also have other tissues involved, the FD/MAS Alliance and doctors have decided to call it FD/MAS. It is a rare condition caused by a mutation in the gene GNAS. The mutated gene produces a protein, Gs alpha, that is dysfunctional. Gs alpha is a sort of “on/off” switch in cells, and the mutated protein is stuck in the “on” position. Depending on the cell or tissue affected, the “on” switch has a different effect.
Adrienne McBride serves as Executive Director and has 15+ years of working in the nonprofit sector in leadership roles. Her professional experience with the autistic adult community, non-traditional students pursuing higher education, and the chronically homeless have made her a tireless advocate for underserved populations. She is thrilled to work alongside the patients and caregivers of the FD/MAS community to find better answers and better options for all those who suffer from this rare disease. Adrienne received her undergraduate degree in French and Politics from Fairfield University, CT, and her master's degree in business from the University of Maryland.
Anne Corvelle is a parent of a daughter with MAS/PFD. Ann spent over 10 years working in non-profit organizations in Lancaster County, Pennsylvania, currently in fundraising. Besides spending time with her family and working, she is heavily involved in her children’s school and doing whatever work the FD/MAS Alliance asks of her. Ever since her daughter was diagnosed in 2016, she has been on a mission to bring attention to FD/MAS in the hopes of there one day being a treatment or cure for everyone affected by these diseases.
Connect to learn more:
Website: https://fdmasalliance.org/
Twitter: @FDysplasia
Facebook: @fibrousdysplasia
Donate: https://fdmasalliance.org/donate/ For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message
Nolu is a new kind of dating app specifically designed for people living with disabilities providing a fun, safe, and inclusive community for dating. It's a cultural movement, an equal opportunity for romance, love, and companionship.
Nolu is open to all and welcomes everyone looking for emotional inclusion! It was designed to cater primarily, but not exclusively, to the needs of people with disabilities, as opposed to traditional applications that leave very little room for inclusion and diversity. Their dating community is fully inclusive and encourages authenticity and transparency.
Nolu's mission is to help as many people as possible to have a real option for dating and access to an emotional and love life. It should be noted that many of the accessibility features must first be selected in the settings of the cell phone you are using. For example, by selecting a larger font size, these same settings will carry over into the application. Nolu includes many features that support people with hearing loss such as the Virtual Interview Module that allows users to record video profiles so that everyone can be read, seen, and heard.
Learn more:
Website: https://nolu.ca/
App (Android users) - https://play.google.com/store/apps/details?id=com.dating.adate4u
Facebook: @no.one.left.unloved
Instagram: @nolu.dating
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message
Susan Bernstein is a Certified Divorce Coach and Certified High Conflict Divorce Coach with a specialty in Post Divorce Recovery and Transition and Post Separation Abuse, she will help you go through the changes of divorce with ease. She helps clients achieve their goals and get to where they want to be.
Susan helps many clients who want to get out of toxic relationships get what they need and deserve related to their children and finances. Susan is a leader for Vesta Divorce and the National Association of Divorce Professionals (NADP). She teaches a mastermind class and coaches coaches! She is also a Certified Divorce Specialist.
Prior to becoming a Certified Divorce Coach Susan earned her doctorate in Education Leadership and was a school teacher and administrator. Her studies and focus have always been on what is best for the children. Susan's promise to you is that you will end each session with action steps to get you closer to achieving your goals and the life you want!
Susan is the coach that attorneys hire for their own divorce!
Welcome to Holland: https://www.emilyperlkingsley.com/welcome-to-holland
Our Family Wizard: https://www.ourfamilywizard.com/
Talking Parents App: https://talkingparents.com/home
Learn more:
Website: https://www.divorcecoachplus.com/
Instagram: @divorce_coach_plus
Email: susan@divorcecoachplus.com
Phone: 551-444-2609
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message
zPods - "Dream, Play, Sleep"
zPods is the first U.S.-based company to provide kids with a customizable, sensory-friendly sleeping pod. These regenerative spaces come jam-packed with intelligent lighting control, white noise generation, Bluetooth speakers, and more. zPods believes children can find better sleep with these tools, helping parents sleep better.
The American Academy of Family Physicians is saying that up to 50% of children will experience some sort of sleep challenge. If this statistic is true it's likely parents are going to have issues sleeping. Especially, if their children are having difficulty. Not to mention if the children can sleep better, their parents can find more alone time to laugh, relax, and not be as overwhelmed.
A zPods bed begins by being a naturally calming space. The enclosure has been proven to help people process overstimulation and calm. Controlling light levels and sound also calms and de-stresses. The airflow keeps the temperature cool and comfortable so that children can fall asleep and stay asleep. In a zPods bed, all senses can be optimized for calming, processing stimulation, and deep restorative sleep.
zPods beds are compatible with most other sleep aids on the market, from under-mattress and wearable sensors that gauge your sleep performance to weighted blankets to antibacterial cooling sheets or bed warmers and coolers. As science and technology continue to leap forward zPods will integrate the advances to continue to offer better solutions.
Learn more:
Website: https://www.zpods.tech/
Facebook: @zpods
Instagram: @zpodsforsleep
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message
"Traveling Different: Vacation Strategies for Parents of the Anxious, the Inflexible, and the Neurodiverse"
Dawn M. Barclay is an award-winning author who has spent a career working in different aspects of the travel industry. She started as an agent with her parents’ firms, Barclay Travel Ltd and Barclay International Group Short-Term Apartment Rentals, and then branched out into travel trade reporting with senior or contributing editor positions at Travel Agent Magazine, Travel Life, Travel Market Report, and most recently, Insider Travel Report. She is a mother of two and resides in New York’s scenic Hudson Valley. She also writes fiction as D.M. Barr and holds leadership roles in several writer organizations. Dawn’s other fiction books can be found at http://www.dmbarr.com.
Excerpt from Dawn's 8/22/2022 column in InsiderTravelReport.com
Thanks to a growing focus on inclusive travel, families with children with invisible disabilities such as autism spectrum disorder and mood/attention disorders are starting to travel more. That’s the findings of a new study by The International Board of Credentialing and Continuing Education Standards (IBCCES), which recently updated its study of 1,000 special needs families from four years ago.
The new study shows that 78 percent of special needs families surveyed are hesitant to travel. While that’s still a significant percentage, it represents a 9 percent improvement from 2018. Of those, 94 percent said they would take more vacations or visit more unfamiliar destinations if they had access to autism-trained and certified options. That’s a 1 percent increase over the last study.
Dawn has made many appearances on other podcasts, here's a link if you would like to listen.
Connect with Dawn:
Website: http://www.dawnbarclayink.com/
Facebook: @TravelingDifferent
Twitter: @TravelingDiff
Email: dawnbarclayauthor@gmail.com
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message
Stephen Beard is a Real Estate Agent, Accessibility Specialist, and host of the "Accessible Housing Matters" podcast. We talk about the challenges individuals face with disabilities when trying to find not only affordable but accessible housing. If you're interested in more episodes about housing, I have links to several of Stephen's shows we mentioned below.
How Tennessee integrates enabling technology
Making Universal Design sexy
Disaster Planning
Want to learn more:
Website: https://accessiblehousingmatters.com/
Email: Stephen@AccessibleHousingMatters.com
Facebook: @AccessibleHousingMatters
Twitter: @AccessHousMat
Instagram: @accessrealtor_sb As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Koolway Sports designs and manufactures outerwear for individuals with disabilities, enabling them to achieve their maximum level of independence in all aspects of their life!
Learn more: Website: https://koolwaysports.com/
Facebook: @Koolwaysports
Twitter: @Koolwaysports
Email: info@koolwaysports.com
Phone: 905-493-3188
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Debra Ruh is a Master when it comes to Disability and Inclusion. Her accomplishments are many and varied. They include:
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Working as a consultant for UN ILO Global Business and Disability Network (GBDN)
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Partner with ztudium and citiesABC
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Expert Partner with The Valuable 500
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Global Speaker for the US State Dept
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Expert technologist and communications inclusion expert
She's authored several books:
"Inclusion Branding" - https://amzn.to/3cuevLk
"Find Your Voice using Social Media: Follow your Passion and Change the World using Social Media" - https://amzn.to/3zuC8wm
"Tapping into Hidden Human Capital: How Leading Global Companies Improve their Bottom Line by Employing Persons with Disabilities" - https://amzn.to/3JjDr4R
And she is a Social Entrepreneurship and founder of (4) Social Enterprises and one Global nonprofit:
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Ruh Global
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AXSChat
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Billion Strong
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TecAccess
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Strategic Performance Solutions (SPS)
Learn more:
Website: https://www.ruhglobal.com/
The "Human Potential At Work" Podcast: https://www.ruhglobal.com/podcasthuman-potential-work/
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Autism Doesn’t Need To Mean Loneliness. Live The Social Life You Deserve.
Jeremy Hamburgh invites you to learn more about My Best Social Life - https://mybestsociallife.com/
Most social strategies just don’t work for people with autism. Dating sites. Social networks. Online forums. There are millions of options. And yet 91% of people on the spectrum will never find someone special.
Jeremy teaches his students cutting-edge social techniques that really work for people with autism. And he gives you world-class support so you know who to meet, where to meet them and how to win them over without feeling overwhelmed.
Website - https://mybestsociallife.com/
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
I apologize to my listeners. Somehow the wrong audio file was uploaded. This is the correct file.
As a community of special needs families and expert professionals, Eli’s Village is dedicated to walking beside you — through every stage of life. With proactive planning, detailed assessments, holistic care, and personalized treatment, they're your support team to live the life imagined.
Eli’s Village is not just a network of professionals and resources. The village is your full-time support and management partner.
They’re here for one purpose. And that is to be alongside you and help you navigate the intricacies of life management and life planning as a special needs family.
To them, you are family and they’re committed to being your village of support and your choice of a family office.
They offer personalized planning services helping you and your family, to live the life imagined.
As a full and comprehensive team of expert professionals, they work with you to alleviate the stresses of life by providing customized services and resources including:
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Private Special Needs Case Management
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Government Benefits Integration
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Respite Care Coordination
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Planning and Coordination of In-Home and Community-Based Supports
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Financial Planning & Wealth Solutions
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Legal Planning
– Will, Trust, Guardianship, IEP Advocacy, Etc.
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Tax Advisory and Filing
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Independent Trustee and Trust Planning
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Estate and Succession Planning
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Family Advisory
– Staffing/Services
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Individual Philanthropy
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Microboard Development and Implementation
Want to learn more?
Website: https://www.elisvillage.com/
Facebook: @elisvillage
Email: info@elisvillage.com
Phone: 804-302-0502
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Unicorn Children's Foundation is an international non-profit organization dedicated to children and young adults with developmental, communication, and learning disorders through education, awareness, and research so that they have every opportunity to lead productive and fulfilling lives. They are dedicated to cradle-to-career pathways for kids and young adults with developmental differences and helping their families navigate the complex journey.
Want to learn more?
Website: https://www.unicornchildrensfoundation.org/
Facebook: https://www.facebook.com/unicornchildrensfoundation
Twitter: @ucfoundation
Instagram: @ucfoundation
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
My PowerPak is a community-based digital platform that empowers you to give and receive extraordinary support when life throws a curveball. It provides a one-stop, holistic tool kit with more of the resources necessary to grow, engage and coordinate with your care community in one simple and secure place by bringing the caregivers (Guardians), care-receivers (Champions), and supporters together in a secure, centralized place where all of the community interaction and support happens.
Want to learn more?
Website: https://www.mypowerpak.com/
Facebook: @MyPowerPak
Twitter: @MyPowerPak
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
We all stress about work, relationships, health, and other daily life struggles, but we don't always have someone to talk to or someone who understands and is willing to listen. That's what led to the creation of Supportiv.
Supportiv is a live chat 24/7 where you get matched with others facing similar struggles in a small group, making it easier than ever to talk to people who can relate to exactly what you're going through.
It's completely anonymous, so you can feel comfortable opening up about what's really weighing you down. We all get upset, frustrated, lonely... You don't have to feel alone in the crowd.
Each small group has a trained moderator who ensures a safe, positive, troll-free, and judgment-free environment.
You’ll also receive helpful tips, how-to's, recommendations, and resources, all in real-time. Relevant articles, videos, podcasts, and mindfulness content will appear, without having to spend time hunting for them.
Want to learn more?
Website: https://www.supportiv.com/
Facebook: @Supportivapp
Twitter: https://twitter.com/SUPPORTIV
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Judie Holleman, APRM, PCNP-BC, CPNP-AC, CCRN, is a Nurse Practitioner for the Margaret Hackett Family Program. During this interview, we explore what the Margaret Hackett Family Program (MHFP) does and how families can advocate for themselves. I feel it's important to stress this program is available to ANYONE from ANYWHERE in the country.
Through a generous donation from the Margaret Hackett Family Center, the Margaret Hackett Family Program (MHFP) is available to help patients and families with CNS congenital anomalies navigate UChicago Medicine’s resources and establish collaborative communication between patients and their providers. The MHFP aims to provide well-rounded, compassionate patient care, resources in support of the community and education for patients and their families, and steps in advancing the research and recognition of CNS congenital anomalies.
Here's how you can connect with MHFP
Website: https://mhfcp.uchicago.edu/
Phone: 773-795-0622
Email: mhfcp@bsd.uchicago.edu
Link to my interview with Amanda Garzon, COO of the Hydrocephalus Association - https://anchor.fm/abcs-disability-planning/episodes/22-Hydrocephalus-Association-with-Amanda-Garzon-e19cpbd
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Robin Matusow served Florida's students for over 30 years. She collaborated extensively with government agencies at the local, state, and national levels. Her experience includes designing and administrating Career Technical Education programs that put people with disabilities to work, assisting both private and public systems with issues of compliance and increased profitability. She specializes in the design, development, and implementation of workforce disability programs, policies, and their real-world applications.
Now she's using a unique technology solution to train and empower youths and adults with disabilities for meaningful careers in the baking industry. Want to learn more and/or support her? Check out Piece of Cake Bakers.
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Phil Vetrano ("Coach Phil") started Planning & Vision to help families and students optimize their investment in College and give them a career planning competitive edge. He uses strategic and data-driven methods to identify each prospective student's best college fit. The place they can thrive academically and socially while keeping to the family budget. Planning & Vision delivers exceptional service to families & students aiming to be successful in the college and career journey.
Connect with Coach Phil:
Website: https://www.planningandvision.com/
Facebook: @PlanningAndVision
Email: phil@planningandvision.com
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
The company's Founders, Chris Olmanson and Marissa "Missy" Pittard, have personally and professionally witnessed the challenges families face when trying to find providers and services. Their Mission is simple, but not easy. "Create a world in which every parent can sleep well at night knowing they’re doing all they can to set their child up for a happy and healthy life."
Beaming Health wants to be the leading autism resource for parents. Their goal is to be a one-stop shop for autism resources that parents can trust. Their directory is filled with listings of local autism support services in your area found by their team. They've created a Beaming Score to help parents "grade" providers listed on the website. As Chris admits during our conversation, it's not perfect, but in my opinion, it's a strong start!
Learn more:
Website: https://beaminghealth.com/
Facebook: @beaminghealthautism
Twitter: @Beaming_Health
Email: info@beaminghealth.com
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
As an SLP and BCBA, Rose has focused exclusively on autistic learners for more than 20 years in both public school settings and private clinics. Seeing a need for tools to help families, she created The Action Builder Cards and Double Up Life Skills Game. In addition to working within the Ohio school system, she offers consultations to families and professionals. She hosts The Autism Outreach podcast, interviewing self-advocates and providing tips and strategies to professionals and families alike. In addition to all of this, she co-founded Supervision Academy to help aspiring BCBAs get the hours they need to certify.
To say she is an expert is putting it mildly. During our conversation, I took 3 pages of notes! She shared questions to ask your IEP team and mentioned the Wrights Law course - which is a fantastic tool for families who are trying to get a deeper understanding of Special Education. Use the links below to connect with Rose.
ABA Speech Website: https://abaspeech.org/
Autism Outreach Podcast: https://abaspeech.org/autism-outreach-podcast/
Supervision Academy (BCBA hours): https://www.supervisionacademy.com/
Email: Rose@ABAspeech.org
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Many of our children are served by nonprofits, but who is helping those who help us?
"There is a Leadership Crisis in the developmental disabilities field that is a result of increasing demand for high quality, responsive, services for adults with developmental disabilities occurring at the same time as the leaders of organizations and programs dedicated to the provision of those services are retiring in significant numbers."
The National Leadership Consortium on Developmental Disabilities trains and supports the next generation of leaders in the developmental disabilities field. They work in partnership with the major national developmental disability organizations to offer a variety of short-term, intensive leadership development experiences, a resource-rich website, an online community of practice, technical assistance, and research on best practices and innovations in disability leadership. Learn more about the programs and activities of the National Leadership Consortium on Developmental Disabilities.
Cory Gilden is the National Leadership Consortium on Developmental Disabilities Research and Evaluation Manager. Caitlin Bailey is the National Leadership Consortium on Developmental Disabilities Co-Director. Check out their White Papers "Future Financial Planning for People with Disabilities, What's Working and What's Not" and "Investigating the Impact of Covid-19 on Future Financial Planning for People with Disabilities".
Website: https://natleadership.org/index.html
Facebook: @NLCDD
Email: info@natleadership.org
Caitlin Bailey: cbailey@natleadership.org
Cory Gilden: cgilden@natleadership.org
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Kim Martin is a trusts and estates attorney based in Georgia whose practice focuses on estate planning for families with a special needs family member. Her areas of expertise also include guardianship, divorce settlement agreements in cases that involve a special needs child, and tax planning.
Our conversation focuses on the dangers of using conventional child support and life insurance provisions when planning for a child who may qualify for means-tested benefits. I hope none of you ever need this information. Unfortunately, divorce is pretty common, even more so when you have a disabled child. Make sure if you are getting a divorce you bring these points up with your divorce lawyer.
Contact Kim:
Website: https://www.harrisonheld.com/professionals/kim-martin/
Email: kmartin@harrisonheld.com
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Emily Bruce, BCBA, LBA, is the Founder and CEO of PeerKnect; an app designed to help build friendships and social connections for children and young adults with intellectual/developmental disabilities. It does this by helping parents connect for play dates and get-togethers (older children). It also provides an option for organizations to share their sensory-friendly events, bridging the gap between parents, caretakers, and therapists. In this interview, we focus on how parents, professionals, and businesses can use the app to connect with each other.
You can connect with Emily and PeerKnect in the following ways:
Website: https://www.peerknect.com/
On the app store (Android and Apple devices)
Facebook: @peerknect
TikTok: @peerknect
Twitter: @PeerKnect
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
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Officer Laurie Reyes and Jenn Lynn join me to talk about how to interact with Law Enforcement when your child has an intellectual and/or developmental disability. It's important to introduce your children to your local officers, and make sure they know your child's characteristics. Unfortunately, there may be departments that have not been trained. This doesn't mean they are out for your child. Law Enforcement has a very difficult job and is often responding to situations with very little information.
In 2005 Laurie Reyes created what is now called the MCPD Autism/IDD (Intellectual and Developmental Disabilities)/Alzheimer's, Dementia Outreach Unit. The unit began in response to the increase in calls for "critical at risk" persons but has since grown and provides a broad approach to wandering and general safety through, Education (officers, individuals, caregivers, community), Outreach, Empowerment, Follow-Up, and Response. She has presented/partnered and provided guidance both locally and nationally to name just a few, Department of Justice, National Institute of Health, Capitol Hill (Law Enforcement and Autism) Autism Speaks, National Center for Missing and Exploited Children, and Pathfinders for Autism.
Jenn Lynn, Executive Director of Upcounty Community Resources, Inc., is passionate about helping all families. She is the mother of a teenage son, Jake, with Autism Spectrum Disorder, ADHD, Anxiety Disorder, Mood Disorder NOS, and Executive Function Disorder. She's also the founder of Empowering Autism Caregivers®, offering to consult, present, and teach law enforcement about Autism, as well as parenting complex children. Read their blog at TheWorldAccordingtoJake.com ®.
Montgomery County (MD) Autism/IDD (Intellectual and Developmental Disabilities) and Alzheimer's Outreach Program As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Kim Albrecht is the host of the award-winning disability podcast LOMAH. Like many parents of children with disabilities, she and her husband, Tom, had questions about Miranda’s (their oldest daughter) future. Some of those questions include “where will she live”, “who will care for her”, and “where will she find her joy”? Over the years she has shared their journey openly through the LOMAH podcast, blog posts, social media (Instagram), and the occasional newsletter. As she says, you are all “invited to fumble through this journey together”.
Kim and her husband, Tom, started the LOMAH podcast (6) years ago. At the time they were, and I would argue still are, trailblazers. No one else was talking about disability planning. In my opinion, there is still no one talking about disability planning to the depth Kim does. Every year she picks a topic she wants to get deep on, and they all tie directly to what she is trying to do for her daughter, Miranda. Past topics have included education, financial planning, and challenging behaviors. You don't have to listen to the seasons in order. In fact, I encourage you to pick the season that resonates most with what you are experiencing now and start there. Be sure to look at the show notes, they are full of GREAT information.
Instagram: @journey2lomah
Website: https://www.lomah.org/
Information & Resources: https://www.lomah.org/informational-articles
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Maxwell Ivey is an inspirational and motivational personal coach who also runs a business buying and selling carnival equipment and amusement park rides. A native Texan, Max loves to sing and spend time with his unique and crazy dog, a “Greymation” named Penny (half Greyhound, half Dalmatian). Reading, singing, and blogging are among Max’s favorite things to do. He especially enjoys helping others find their bliss.
Links below to all of Max's content and social media:
Website: https://theblindblogger.net/
Twitter: @maxwellivey; @wyexcusenetwork
Facebook: @theblindblogger
Email: justask@theblindblogger.net
"Leading You Out of the Darkness Into the Light: A Blind Man's Inspirational Guide to Success" - https://amzn.to/3JTsLZE
"The Blind Blogger's First Speaking and Signing Adventures: How You Can Conquer Your Fears" - https://amzn.to/35CJZf2
"It's Not the Cookies, It's the Bag: An Easy-to-Follow Guide for Weight Loss Success" - https://amzn.to/3t8JyBa
"The Blind Blogger's NYC Adventure: How You Can Make YOUR Dreams Come True" - https://amzn.to/35hFw1t
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Give Kids The World Village is an 89-acre, nonprofit "storybook" resort in Central Florida. Children with critical illnesses and their families are treated to weeklong, cost-free vacations.
Website: https://www.gktw.org/
Facebook: @gktwvillage
Twitter: @GKTWVillage
Instagram: gktwvillage
With the help of many generous individuals, corporations, and partnering wish-granting organizations, Give Kids The World Village has welcomed more than 177,000 families from all 50 states and 76 countries.
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Andrew Myers is an occupational therapist who specializes in home modifications and universal design. As a clinician, Andrew saw too many patients come home from a hospital or rehab stay only to be forced out of their homes due to inaccessible or unsafe home environments. His mission is to empower people to thrive in their homes and communities by making their homes more accessible.
Website: https://www.uhomeconsulting.com/
Email: andrew@uhomeconsulting.com
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Energizing & Empowering Minds is all about helping parents "live beyond the diagnosis". Originally started in 1996 by Kristin's mother to serve families with bleeding disorders, it has grown to provide psycho-social programs uniquely designed to serve parents and families with any type of medical condition. The classes offered help parents understand their children aren't "china dolls" and remind them "they are the parent". It's important to set acceptable boundaries. Kristin offers a fantastic analogy to driving on the road.
Website: https://eeminds.org/
Email: info@eeminds.org
Facebook: @empactparenting
From their website:
"We partner with and/or are contracted by local treatment centers, hospitals, and parent support groups. Over the years, we’ve worked in partnership with Bleeding Disorder Treatment Centers and other affiliated organizations to bring in our specialized Empact Parenting programs.
Facilitators are typically trained social workers, counselors, nurses, and parents of children with medical diagnoses and conditions.
To conduct and support programs, we either train local teams OR provide members of our National Team. If you want to learn more about scheduling training or programs for your hospital or organization, please contact us at info@eeminds.org."
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
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This is an interview with a mom who lost her son, Robert when he was just 18. Robert had a mitochondrial disease. Juli shares with us what she did to get through everything - from the diagnosis to his untimely passing. Juli's husband, Chris, was Active Duty Air Force; so there were times everything fell onto Juli's shoulders. What you're going to hear is an incredible story about personal reserves, the power of community, and the impact even small gestures like saying "I value you" can have on someone.
Juli Henderson is a highly trained vocalist, respected voice teacher and owner of JH Voice Studio, physician’s wife, mother of five adult children, and newly minted grandmother. She grew up moving frequently as a military dependent but has called San Antonio, Texas home for 36 years. The In Our Arms Blog is her passion project, launching in February 2021 to share the story of Robert. As the mother of a child with disabilities who passed at the tender age of eighteen, Juli’s writings give hope to hundreds of readers, including a private Facebook group where members share resources and support. She is extending her impact by her involvement in resource projects such as her recent launch of the In Our Arms “Breathe” candle in collaboration with a purpose-driven brand, School Scents. When not writing or teaching, Juli volunteers in the community on nonprofit boards and speaks in churches and schools about her “Life unexpected".
Website: https://www.inourarms.blog/
Facebook: @InOurArmsBlog
Instagram: @inourarmsblog
Juli's interview on the Parenting With Impact Podcast (episode 41: "Raising Medically Fragile Kids") - https://youtu.be/Xh6LNa9Z9xM, you can also listen on the podcast app of your choice
Morgan's Wonderland - https://morganswonderland.com/
Any Baby Can - https://anybabycan.org/
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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I discovered WheelPad listening to the Accessible Housing Matters podcast. I had no idea there was anybody creating units like this, and I jumped at the chance to learn more. I'm excited to see where this company goes and I'm grateful to RJ for taking the time to speak with me!
WheelPad is a company centered around those who desire choices when faced with injury, disability, or chronic health complications. They believe you should have the choice to remain at home to heal and live. They are proud to offer tiny home-style accommodations with true universal accessibility, ready to adapt to your home and property, and to any lifestyle change.
Website: https://www.wheelpad.com/
Facebook: @wheelpad
Twitter: @WheelPadL3C
YouTube: https://www.youtube.com/channel/UCIv45H9IqdJOEhLmirHAojQ
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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This marks my 70th episode, hard to believe I've had 68 guests over the last year-plus. This wouldn't be possible without the support of you, the listeners. Thank you!
I'm changing the format a little. You shouldn't notice very much change. Mostly the intro/outro music and shifting to seasons. My sound engineer recommended, and I agreed, having seasons to allow us to make changes whenever necessary without disrupting the show's flow.
We'd love to hear what you think. What do you like, what would you like us to do differently, etc. A few examples could be: adding a co-host, having someone interview Eric, or doing a mini-series on a particular topic.
I'd also like to know who you want as a guest, especially if you would be willing to make an introduction.
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Website: https://vitalxchange.com/
Facebook: @vitalxchange
Twitter: @vitalxchange
In their words:
We have created a world where parents and providers caring for special needs children can partner to help children thrive. As parents, we had struggled to make informed and timely decisions for our children. Although the schools and clinics were well-intentioned, we felt that we had no voice at the table where important decisions regarding our children were being made. Guided by these personal experiences and our healthcare backgrounds, we designed a caring ecosystem by bringing together passionate special needs professionals and parents, united by technology.
Why do you need a VitalGuide? Raising a child with special needs can be overwhelming. Online information and strong opinions from support groups, friends, and family members can make things even more confusing and frustrating. You want to make the right decisions for your child, feel reassured as a parent, and help them reach their full potential.
Finally, there's a solution - Your personal VitalGuide. We know that every family is unique and needs different types of resources and support at different times. That is why Vitalxchange has created a platform that matches each parent with highly experienced parent mentors or professionals for various aspects of special needs parenting, based on their needs.
An important question - Why are VitalGuide services not free? The money you spend on our platform creates new income opportunities for our VitalGuides, many of whom are moms and caregivers themselves. Unlike free programs where there are huge waiting lists and unreliable support, our VitalGuides are committed to you and will ensure that your family gets the personalized support you deserve.
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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CoverRight assembled a passionate, diverse, and driven team to help make Medicare easy. They believe healthcare coverage is the most important choice for Americans and are on a mission to make Medicare more transparent and accessible for America’s 60 million Medicare recipients. Their technology and friendly advisors simplify a traditionally complex, opaque, and stressful decision, helping the 10,000 people retiring every single day in the U.S. find, select and enroll in the right health insurance plan.
CoverRight believes it's essential their customers get personalized suggestions.
Contact Web: https://coverright.com/
Phone: +1 (888) 969-7667 | TTY Users: 711
Facebook: @coverrightmedicare
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Natalie Hawkins is the founder of Notes by Natalie and a board-certified music therapist working in special education classrooms. She also works as a music therapy consultant and related service provider.
Natalie creates resources for special education professionals and caregivers for educational and home settings to enhance, engage, and assist in daily living or therapeutic goals. She facilitates music therapy sessions working on specific Individualized Education Program goals with students with varying diagnoses.
Website: https://www.notes-by-natalie.com/
Facebook: @empoweringfuturegenerations
Twitter: @notes_natalie
Instagram: @notes_by_natalie
Email: natalie@notes-by-natalie.com
Phone: 660-346-0571
Episode 17, Music Therapy w/ Darcy O'Daniel: https://anchor.fm/abcs-disability-planning/episodes/17-Music-Therapy-w-Darcy-ODaniel--BC-MT-e19cpc1
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Tracee Garner is a best-selling Author, Speaker, Writing Coach, and Course-Creator who also happens to have a disability and uses a wheelchair. In her recent book, "Disability: An Anecdotal Field Guide for the Rest of Us, Tracee offers you the tips she remembers, stories of adversity and success, to document her personal battles with self and others in a position to grant or deny life-saving tools, equipment, and the access to freedom we all hold dear but often take for granted.
Get your copy here - https://amzn.to/3rz9uF9
Website: https://traceegarner.com/
Twitter: @teegarner
Facebook: https://www.facebook.com/TraceeLydiaGarner
In this interview, we don't talk specifically about her book. Instead, we have a conversation about how parents can help their children be better advocates. We talk about how to help them (or you) get a job by focusing on the employer's bottom line first.
It's a candid discussion about what it can be like to live with a disability. Tracee does a great job of keeping it "real". Her personal experiences are hers, and should not be taken as how they will be for everyone. To me, it highlights just how different the world can be.
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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"You can't pour from an empty cup..." This is something you will hear the Founder of A Mother's Rest (AMR), Andrea Roberts, say frequently.
Their mission, "To improve the emotional & physical health of caregivers through proactive, affordable, restorative, respite opportunities.
Website: https://www.amothersrest.org/
Email: Innkeeper@amothersrest.org
Facebook: https://www.facebook.com/groups/244565012656127/ (private group, request membership)
Support (donations): https://www.amothersrest.org/faq
AMR is open to all parents of all children with just about all extra needs. They differentiate between "special needs" because that is most associated with children receiving special education. Families raising children with physical, cognitive, developmental, emotional, behavioral, past abuse, and trauma-induced conditions are all welcome. There are no stated religious or family lifestyle restrictions. AMR is meant to be a safe place for all caregivers. They expect to keep a culture of mutual caregiver support.
A Mother’s Rest will never have required activities. The first priority is rest, and that means sleeping. The format is completely freestyle. Sleep, get up, eat, come and go as you please. They will do their best to provide you with info about local activities, but the decision to do any of those things will be entirely up to you and the other guests at the time.
They do typically schedule ONE dinner out for the group, but the rest is up to you. Each retreat will have a private Facebook group set up exclusively for those registered guests to get to know each other ahead of time and to discuss the plans for the retreat.
They want you to build the weekend that will help you return to your family refreshed and energized. Don't want to get out of your pajamas? No problem. Want to shop in a store that doesn’t also sell groceries? You got it. No matter what it is, if you are thinking about it, share it with your private Facebook group so they know what to expect, and will encourage you to do it! The sooner you register for your retreat, the more time you will have to plan!
Great NonProfits Review
Already Toast (book)
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
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5 Simple Tricks for Becoming a Better Ally
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Set aside your assumptions. In order to learn, we must first accept that everyone views life through the lens of their own experiences. If we do not adequately understand the alternative techniques and skills that someone possesses, we cannot accurately gauge their capabilities.
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Ask before attempting to assist someone. Autonomy is as important to us as it is to you. The bottom line, make sure your help is actually helpful.
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Listen & reflect. Let us communicate our needs and desires in the way that we prefer. Do your best to reflect on our chosen language regarding our characteristics. If you feel uncertain, ask.
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Support our fight for equality. Whether it's little things like supporting a nonprofit, or large initiatives such as advancing legislation; your support matters. Many of us subscribe to the motto, “ nothing about us without us”, but that doesn’t mean we want to fight these battles alone.
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Remember our humanity. We are humans first, and everything else is secondary. Please don’t hyper-focus on our perceived differences to the degree that you overlook how much we have in common. Allow us to shine as the full and complete individuals that we are.
Contact Peaces of Me
Website: https://peacesofme.org/
Facebook: @PeacesOfMeFoundation
Daniel Hodges started Peaces of Me Foundation with his cousin, Kristy Rogers, to redefine what it means to have a disability, physical difference, and/or chronic illness. In this conversation, we explore what that means. I admit my discomfort in the beginning, I wasn't sure what words to use. As human beings, it can be difficult for us to acknowledge how uncomfortable someone who doesn't look or sound like us may make us feel. This is nothing to be ashamed of, but you need to explore the "why". I'm grateful to Daniel for letting me share my feelings of discomfort.
We talk through some heavy topics, including abortion. Neither of us makes a pro-life/pro-choice stand, rather we talk through the risks of terminating pregnancies because of a potential diagnosis. I learned about wrongful birth and wrongful life lawsuits. And I shared what I had read about those with Down Syndrome applying to be an endangered species (links to both below).
https://www.findlaw.com/injury/medical-malpractice/wrongful-birth-and-wrongful-life-lawsuits.html
https://www.dailysignal.com/2018/11/15/children-with-down-syndrome-are-applying-to-be-on-the-endangered-species-list/
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Envisioned as a residential community development that aspires to catalyze international models, First Place® offers supportive housing and a residential transition program for individuals with autism and for other neurodiverse populations, as well as sites for education, training, and creative inspiration.
Website: https://www.firstplaceaz.org/
Contact them form: https://www.firstplaceaz.org/transition-academy/registration/
Facebook: @FirstPlaceAZ
Twitter: @FirstPlaceAZ
First Place–Phoenix is the culmination of nearly two decades of dedicated research, travel, and ideation. One of their noteworthy major studies is Opening Doors: A Discussion of Residential Options for Adults Living with Autism and Related Disorders, which offers a detailed look at market demands and pressing concerns, residential models, goals, guidelines, and much more.
Denise and I discuss the (3) components of First Place:
Apartments - there are (55) units, with floor plans ranging from studios to four bedrooms. Each floor has its own design. They offer each resident a planning session and life skills training. It's designed to house up to 75 residents.
Transition Academy - a 2-year tuition-based program, operated by Southwest Autism and Research Center (SARRC). It's designed for adults on the Spectrum. It teaches 32 courses (Learn 4 Independence), and participants earn a certificate in life skills from Gateway Community College upon completion.
Global Leadership Institute - focused on pressing concerns for accessibility to more community, housing, and independent living options for individuals with autism and other neurodiverse disabilities. It serves as a multidisciplinary, hands-on training center for professionals, educators, support staff, and medical personnel, as well as a robust site for research and advancements in public policy.
Denise is the founder and president/CEO of First Place AZ (established in 2012), co-founder of the Southwest Autism Research & Resource Center (SARRC, established in 1997), and founder and CEO of DRA Collective, a marketing/communications firm (established in 1986) that serves clients in a variety of fields, including real estate, economic development, healthcare, education, and hospitality.
"In a Different Key" (movie): https://www.inadifferentkeythemovie.com/
"In a Different Key" (book): https://amzn.to/3GK56ct
Southwest Autism Research and Resource Center: https://www.autismcenter.org/
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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This conversation got its start a few months ago when Nazhah Khawaja and I first met. Her mother is an immigrant, originally from Pakistan. Nazhah shared the challenges her mother faced getting medical help. Anyone who knows me, or has been listening/watching for any length of time, knows I have a self-stated overinflated sense of justice. This set me off.
Right then and there I told Nazhah I wanted to talk about the challenges faced by families who may not understand the language and/or come from a culture where you don't challenge authority. It's hard enough for families who have lived in the US their entire lives to get services. How much harder must it be if you don't feel like you can ask for help or advocate for yourself or your child.
If you'd like to learn more about Nazhah or look into Early Autism Services, please use the links below.
Nazhah's book, "The Other Side of Life" - https://amzn.to/3I5h4ir
Early Autism Services
Website: https://earlyautismservices.com/
Email: info@earlyautismservices.com
Facebook: @AutismTherapyServices
I recognize there are many Americans who feel this way. They leave IEP meetings wishing they had said more, or they don't get the treatment they need because they don't want to be a "bother". Creating an environment in which everyone is treated as a human being, not a number or an inconvenience in your day will go a long way to helping everyone.
I believe immigrants from certain parts of the world face additional challenges. In some cases, there is overt hostility. I don't believe anyone comes to the US to get on our social safety nets like SSI and Medicaid. They come here looking for a better life. This is especially true for those whose children have intellectual/developmental disabilities. The US is ahead of many countries when it comes to treatment and opportunities.
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Zavikon serves any individual who is seeking career employment who has a visible or invisible disability. They have programs set up for Blind/visually impaired, Deaf/hard of hearing, and neurodivergent to name a few. They focus on the individual’s talents and skills and place employees in all types of careers including finance, technology, clerical, creative, and more.
Once an individual is placed, their professional career coaches work with the employee, their new co-workers, and the hiring manager to ensure everyone is set up for long-term success.
Website: https://www.zavikon.net/ Email: info@zavikon.net
Phone: 833-928-4566
Facebook: @shortbridgetoinclusion
Rebecca Beam and I talk about the chronic unemployment/underemployment of those with disabilities. Zavikon isn't focusing on a specific diagnosis. Instead, they are working on educating employers about how reasonable accommodations may be implemented to benefit everyone. Rebecca uses her own story as an example - being a single mom who needed "accommodations" to take time off for her children. Very often accommodations are low cost and easy to implement. As "headhunters", Zavikon will not charge a job-seeker to work with them. They are paid by the employers when they place a job-seeker in an open position. If someone would like additional training to be ready for work, Zavikon will charge Medicaid.
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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What leads a serial tech entrepreneur to start a Financial Services company designed to help seniors, people in recovery, and people with cognitive challenges? The same that drives so many of us - a personal experience and a desire to fix a broken system. Kai's grandmother lived with Alzheimer's, which led to a loss of independence.
Website: https://www.truelinkfinancial.com/
Phone (for those w/o a card yet): 1-844-904-6515
Email (for those w/o a card yet): cards@truelinkfinancial.com
Facebook: @truelinkfin
TrueLink offers a reloadable Visa with customizable spending rules. Individuals can set limits to how much may be spent and where someone can shop. As I shared in the interview, I didn't know they existed until recently. TrueLink was started in 2012, and I didn't get my son his card until 2021. Up until then I was buying reloadable Visa cards and using an Excel spreadsheet to track his spending.
TrueLink's website makes this much easier. I find the dashboard to be simple to use. Kai highlights his Customer Support Team as the company's "crown jewel". He credits their strength in listening and asking questions as the reason the company offers many of the services they've expanded into - like not allowing the card to be used at grocery stores.
The website has a robust FAQ, so Kai and I don't spend too much time in the weeds. I wanted to understand more about who he is, and what makes him tick. His vision for the world really resonates with me. One quote sticks out more than the rest. "Every animal is born with the skills they need to survive. Humans are born with the ability to ask for help."
Very frequently I'm told my son/daughter/sibling is incapable of managing their money. My own son has challenges with understanding this concept, it can be pretty abstract. TrueLink gives us, as caregivers, the ability to allow our loved ones to be "independent" with a safety net.
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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AbleLink Smart Living Technologies was founded in 1997 with one goal in mind, to allow people with cognitive delays and challenges to live independent and fulfilling lives. In addition to being a firm focused on research and development, they offer four core solutions - Wayfinder, Atlas, the Smartliving Desktop Suite, and Smartliving Mobile Suite.
Like many of you, Dan's been personally impacted. His oldest brother had intellectual and physical disabilities. He has one goal in mind, to allow people with cognitive barriers to use technology in everyday life. AbleLink is meant to help people with disabilities engage in their communities and live independent lives.
Website: https://www.ablelinktech.com/
Twitter: @AbleLinkTech
Phone: 719.592.0347
Email: info@ablelinktech.com
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
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The Autism Society of America was founded in 1965 by Bernard Rimland and Ivar Lovaas together with Ruth C. Sullivan and a small group of other parents of children with autism. Its original name was the National Society for Autistic Children; the name was changed to emphasize that children with autism grow up. The headquarters is in Rockville, Maryland. There are (75) chapters throughout the United States.
Melissa Rosenberg is the Executive Director of the Howard County Autism Society in Maryland. This interview is a bit different in that I am highlighting a local agency. Melissa and her small team of professionals are doing amazing work. My goal is to highlight what's possible for other chapters, like-minded organizations, and families.
Website: https://howard-autism.org/ Email: info@howard-autism.org
Phone: 410-290-3466
Facebook: @HowardCountyAutismSociety
Twitter: @HCASociety
Instagram: @hocoautism1
Like many nonprofits, it was started by parents to address a gap they saw. It's grown into a very robust support organization. They support local families through information & referral, Autism Hiring Program, Communication Boards for local school playgrounds, and much more. As Melissa and I talked I was reminded how it's often not a lack of resources, but rather a lack of awareness on the part of families, that gets in the way. Parents are overwhelmed. Many don't know what questions they should be asking or what type of help they may need. It reinforced my belief more needs to be done to raise awareness, which is exactly what my podcast & YouTube channel is meant to do. You can help fellow parents by sharing the content and information about the organizations featured. You never know who may benefit.
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Danielle Williams is a mom on a mission. She started S.T.I.G.M.A. (Student Timely IEP Growth Modifications Advocates) to assist parents in all aspects of working with their children with disabilities. They assist parents in navigating school systems to ensure children receive their proper mandated services to succeed academically, socially, and emotionally.
S.T.I.G.M.A. provides IEP analysis, preparation, and recommendations for IEP meetings in school, community resources, parent workshops, and 1:1 consultations. S.T.I.G.M.A. will push you and your children to their highest potential, give you and your children the power, and create endless possibilities.
"Guy Stuff: The Body Book for Boys", Micah Player - https://amzn.to/3cKFvmL
"Who Moved My Cheese" - https://amzn.to/3euBVy5
Website: https://www.stigmaconsultinggroup.com/
Phone: (917) 780-2530
Email: stigmaconsultinggroupllc@gmail.com
Having children with disabilities is tough. There is no instruction book, we do the best we can. Many of us wonder if we're doing the right thing and are hesitant to speak up to professionals like teachers. We sit quietly in our children's IEP meetings, maybe not even asking for clarification if we don't understand something.
Danielle shares what she does. She gives concrete and actionable examples. She tells us she takes the day off from work whenever one of her sons has an IEP meeting because she knows she needs the time to process everything. She talks about setting aside the same day of the week to work on things. Danielle recommends taking someone with you to every meeting. They don't have to be "advocates" or lawyers, just someone who is not as emotionally invested to take notes.
And she tells us about the simple one-page sheet she gives her son's teachers every year. it talks about who her sons are because they are so much more than IEP codes or their diagnosis. Simple steps most of us can adopt. She offers consulting services to parents around the country because she recognizes it can often be too much. Especially if you're a single parent.
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
disABLEDperson, Inc. is a 501 (c) 3 Public Charity whose mission is to reduce the unemployment rate of individuals and veterans with disabilities. They offer (3) national job boards, (2) national scholarships, and a school. there is so much to unpack from this episode, I don't think my notes can do it justice. If you are helping someone find a job, or you have disabilities and you're looking for work, you need to listen to this.
Here's how you can connect with disABLEDperson:
Web: https://www.disabledperson.com/
Email: info@disabledperson.com
Facebook: @disABLEDpersonInc
Twitter: @HIREdisABILITY
www.disABLEDperson.com is listed on OFCCP's Resources for Federal Contractors Section 503 and VEVRAA at http://www.dol.gov/ofccp/regs/compliance/resources_recruit_disability.htm, the only national job board listed. Their job boards are a nonprofit alternative to the online recruitment of individuals and veterans with disabilities.
Jobs posted to their boards will also be seen on SimplyHired, Glassdoor, JuJu.com, JobInventory, and CareerBliss as well as multiple state workforce agency boards, The National Resource Directory, Disability.gov, OFCCP's resource page, and much much more. disABLEDperson, Inc. is in formal partnership with the Council of State Administrators of Vocational Rehabilitation and the Employment Assistance and Resource Network (EARN).
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
LifeSherpa is a remote support platform designed to help employers and service organizations reach, teach, and engage more people, more efficiently and effectively, by centralizing and delivering training tools and videos, reminders, reinforcements, self-help resources, and private communications on an individual’s mobile device.
Its mission is to "help individuals and organizations realize their full potential. They support talent, skills, and independence to unlock the potential of their people, organizations, and global community."
The deepest and most impactful thing Doug said has very little to do with Life Sherpa, and everything to do with the power of community. Doug tells us if it wasn't for finding an organization to be part of, and surrounding himself with fellow parents, he may not be where he is today. It's a very moving testimonial to the importance of having a group you can trust and rely on.
Click below to learn more:
Website: https://lifesherpapp.com/
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Although this interview is all about Maryland's Assistive Technology Program, I want to make sure the listeners know every state has a similar program. And, if they're anything like Maryland's, these programs are probably being underused. If you'd like to do more of your own research, I encourage you to check out The Association of Assistive Technology Act Programs (ATAP). From their website, they are "a national, member-based non-profit organization, comprised of state Assistive Technology Act Programs funded under the Assistive Technology Act (AT Act). ATAP facilitates the coordination of state AT Programs nationally and provides technical assistance and support to its members. Established in 1997, the organization strives to enhance the effectiveness of AT Programs on the national, state, and local level. ATAP promotes the national network of AT Programs, represents the needs and interests of the programs, and serves as the national representative of state AT programs."
Nothing About Us Without Us (book) - https://amzn.to/3lzH4sm
Assistive Technology Act of 1998 - https://www.congress.gov/bill/105th-congress/senate-bill/2432
MDTAP Website: http://mdod.maryland.gov/mdtap/Pages/MDTAP-Home.aspx
MDTAP Blog: http://blog.mdtap.org/ MDTAP
YouTube channel: https://www.youtube.com/user/MDTAPVideo
MDTAP Facebook: https://www.facebook.com/MDODTAP/timeline/ MDTAP
Twitter: @MDTAP
Here are links to the equipment closets mentioned during the show
Lollipop Kids Foundation - https://www.lollipopkidsfoundation.org/
Equipment Connections for Children - https://www.equipforchildren.org/
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Website: https://ushagent.com/jimcrump Phone: 404-788-9621 (most calls last 8 - 10 minutes)
Schedule: https://calendly.com/jimcrump
This interview was more than I expected. I recorded a video trying to explain health insurance terms, but I realized how little I knew. So I reached out to Jim Crump. We have a conversation about what the terms meant. He reviews the Exchange health plan colors, coinsurance, deductible, copay, and max out of pocket.
I ask him about insurance policies for our kids, expecting him to tell me it usually doesn't make sense. His answer surprised me. I had no idea employer plans may often be more expensive to include a spouse and children. Not to mention they may not cover everything you need if your child has complex medical needs or disabilities.
There is a LOT to unpack in this episode. I will be coming back to it myself because even though I was taking notes I still feel like I might have missed something. When you have questions please reach out to Jim directly, his contact information is above. Below is a link to his resource, the book "Medicare for Dummies".
https://amzn.to/3noomWf
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Navigating Live as we Know It is a podcast that started to provide an educational and entertaining way to help the people around those with Special Needs better find the way to live their best, most self-determined life possible, and how to manage the challenges of the systems.
Click below to learn more:
Navigating Life As We Know It: http://envisionmediaservices.com/
Facebook: @NavigatingLifeasweknowit
Twitter: @NLAWKI
Its hosts, Steve & Kerry Johnson, use their personal experiences to get the most out of each guest. Their son, Liam, has Cerebral Palsy and is Autistic. They have been working within the disability space for over 30 years. Prior to starting the NLAWKI podcast, Steve was a Financial Advisor. He also co-founded the Oasis Community of West Michigan (https://www.oasiscommunity.info/).
Throughout the episode, Steve and Kerry mention resources they've found helpful along their journey. I've included links below.
Resources Mentioned:
Gilda's Club (now Cancer Support Community): https://www.cancersupportcommunity.org/
Illinois Center for Independent Futures: https://independentfutures.com/
Gracious Grounds (Grand Haven, MI): https://graciousgrounds.org/
Charting the Life Course: http://www.lifecoursetools.com/
Hidden Brain (Podcast): https://www.npr.org/series/423302056/hidden-brain
Snap Judgment (Podcast): https://snapjudgment.org/
Trello (project management software): https://trello.com/en-US
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Autism and Special Needs Life Coach: https://www.asnlifecoach.com/
ASD Life Coaches: https://www.asdlifecoaches.com/
Email: asdlifecoaches@gmail.com
Facebook: @AutismAndSpecialNeedsLifeCoach
Twitter: @asnlifecoach
Autism and Special Needs Life Coach, LLC is a group of coaches specially trained to teach real-life skills, social skills, communication skills, independent living, and college/career development to adults on the Autism Spectrum. Each new client will be paired with a coach who understands his or her unique individual needs. The majority of their sessions are conducted over Skype. These types of sessions are highly effective!
The main objective of ASD Life Coaches is to help the ASD population not only function in society but to thrive by building upon each individual's strengths, improving on his or her weaknesses, and helping each client set and achieve goals that will lead to overall contentment and success in life!
They work on:
Real-Life Skills
Social Skills
Communication Skills
Independent Living
College/Career Development
Non-Verbal Communication Skills
Breaking down large goals into smaller pieces
Reframing thought processes
Understanding the perspectives of others
Skype Sessions
Business Coaching
When asked what resource Jaclyn has found the most useful, she replied "anything Dr. Temple Grandin". Below are links to Temple Grandin's TED talk and books (affiliate links).
https://www.ted.com/talks/temple_grandin_the_world_needs_all_kinds_of_minds?utm_campaign=tedspread&utm_medium=referral&utm_source=tedcomshare
"Navigating Autism: 9 Mindsets For Helping Kids on the Spectrum" - https://amzn.to/3ENXqWi
"Animals Make Us Human: Creating the Best Life for Animals" - https://amzn.to/3lPmqE9
"The Autistic Brain: Helping Different Kinds of Minds Succeed" - https://amzn.to/3EJYavE
"Thinking in Pictures, Expanded Edition: My Life with Autism" - https://amzn.to/3udKvZa
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
According to the CDC, 61 million adults in the United States live with a disability. That's over 25% of the population!
Source: https://www.cdc.gov/ncbddd/disabilityandhealth/infographic-disability-impacts-all.html
Yet only about 2% of all company websites are considered "accessible". This is a HUGE disconnect, and (to me) seems like a LOT of missed opportunities. Having disabilities doesn't make you less likely to need goods or services. According to Statista, 55% of US consumers shop online before making a big purchase. This doesn't scratch the surface of how many others are looking for service providers.
Source: https://www.statista.com/topics/2443/us-ecommerce/
In 2018 the US DOJ released a statement "making it clear that it nonetheless still expects businesses to make their websites accessible" (https://www.jdsupra.com/legalnews/doj-confirms-websites-are-covered-by-56505/). So why don't more businesses make their website accessible? I think it's because it has not, yet, become law.
I would like to challenge companies and business owners to not wait. I'm asking you, my listeners, to join me in this plea. Let's use our combined purchasing power to encourage an accessible online experience for all of us.
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Able Transition Consulting - https://www.abletransitionconsulting.com/
Email: kenzie@abletransition.com
Facebook: @AbleTransitionConsulting
Instagram: @abletransition
Person-Centered Planning (PCP) feels like it's become a buzzword to me. It seems like every state has a requirement for individuals with Developmental Disabilities to put a PCP in place when receiving services. However, I've found it difficult to pin down what, specifically, a PCP is. The closest I've come is Administration for Community Living (https://acl.gov/programs/consumer-control/person-centered-planning).
So I reached out to Kenzie Clark, Founder of Able Transition Consulting, to see if she would be willing to talk me through what she considers to be a person-centered plan. I was not surprised when she shared she does much more than what States will typically do. In this interview, Kenzie talks us through what it means to build a plan for an individual with a disability.
As a former Special Education Teacher, Kenzie saw the need for transition services and sought out a master’s degree in Secondary Special Education and Transition through the University of Kansas. The transition process and preparing all families and individuals for high-quality lives is her passion. Kenzie's master’s degree provides her with expertise and knowledge regarding all things transition.
While Kenzie attended undergraduate at Appalachian State University, she studied special education and worked with the inclusive post-secondary education program, Scholars with Diverse Abilities (SDAP). This program sparked her interest in transition and the importance of preparing individuals and their families for adulthood.
After teaching in the public school system, Kenzie felt called to open the doors of Able Transition Consulting, LLC to collaborate with and serve families. Able Transition Consulting is happy to be supporting families to ensure successful post-school outcomes and peace of mind. Through building unique and comprehensive person-centered planning, she knows that clients will be able to access high-quality and happy adult lives!
Check out the Instagram & Podcast she mentioned, "The Lucky Few":
@theluckyfewpod
https://www.theluckyfewpodcast.com/
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
IntellectAbility - https://replacingrisk.com/
+(1) 727-437-3201
Facebook - @IntellectAbility
Twitter - @ReplacingRisk
Dr. Craig Escudé, MD is a Board-certified Fellow of the American Academy of Family Physicians and the American Academy of Developmental Medicine. He has over 20 years of clinical experience providing healthcare for people with Intellectual and Developmental disabilities and is the author of “Clinical Pearls in IDD Healthcare” (https://amzn.to/3CbeCDp) and “The Curriculum in IDD Healthcare” (https://replacingrisk.com/store/). Dr. Escude assumed the role of President of IntellectAbility in 2018.
We address the importance of educating healthcare providers. Specifically, what (and how) you can do as family members, loved ones, and supporters of those with Intellectual and/or Developmental Disabilities (IDD). Craig explains physicians are not trained to work with patients who have IDD. He shares his personal experiences and highlights what needs to change.
We touch on abuse and neglect. As parents we'll often have a feeling something is off - we shouldn't be quick to disregard it. Medication may be necessary, but shouldn't be the immediate go-to when something suddenly changes. What environmental factors could be affecting the individual? Craig gives us concrete examples of what to look for.
Helping your child live "independently" doesn't mean you have to stop advocating for them. Craig highlights the importance of having a "Health Passport". "Clinical Pearls in IDD Healthcare" has a version, or you can download this one from the Illinois Council on Developmental Disabilities (https://static1.squarespace.com/static/5cf7d27396d7760001307a44/t/5e9e1347fc832d0a6864a162/1587417930926/BetterCommunication.Health-Resume.pdf). Found on the American Academy of Developmental Medicine and Dentistry.
Resources mentioned during the interview:
American Academy of Developmental Medicine and Dentistry - https://www.aadmd.org/
Developmental Disabilities Nurses Association - https://ddna.org/
Friends for Life podcast (Medical Mondays) - https://friendsforliferc.com/podcast/
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
A Place to Be
Website: http://www.aplacetobeva.org/
Facebook: @aplacetobeva
Instagram: @aplacetobeva
Twitter: @aptbmt
Kim's email: kim@aplacetobeva.org
What if the way you are now isn't how life has to be? How many of us have become our identity - be it caregiver, parent, or something else. Not all our beliefs are necessarily self-limiting, but it's important to check in periodically to make sure they continue to serve us.
In this interview, Kim and I explore what an intentional community could be and how to create one. The greatest gift any of us can give another human being is to truly see them, not their disability or any other "traditional" identifying characteristic (race, religion, gender, etc). Perhaps the biggest obstacle to creating community is the "us vs them" mentality that seems so pervasive. We challenge you to do your part to put this to rest.
I feel it's easy for us, as parents to fall into the trap of believing life just can't get any better. Our children's diagnoses and support needs can be significant. Who else is going to care for them as we do? How can we possibly rely on someone else? It's true there will almost certainly be no one who will care for our children in the same way - we're their parents.
Let's flip the script. Do we need someone else to do "everything" we do? Or will our children still have rich and fulfilling lives when we're gone? The reality is most of us will die before our children. The best thing I feel we can do for them is to get things in place now, while we are still here and able to take action.
Click below if you would like to check out the resources Kim mentions:
"Feel the Fear and Do It Anyway" by Susan Jeffers - https://amzn.to/38DjtQL
"The Gift" by Dr. Edith Eva Eger - https://amzn.to/3yCrmAA
Kim has been working with youth and adults for over 20 years as a teacher, director, choreographer, life coach, expressive arts therapist, and mentor. She is a Professional Certified Life Coach (ICF), CPCC (CTI), a Certified Trauma Professional (IATP), and holds an M.S. in Psychology and a B.A. in Dance Movement Therapy.
Kim coaches individuals to expand their possibilities, reach their personal goals, and engage completely in their lives. She specializes in working on the psychosocial/emotional side of coping with medical challenges and disabilities (cancer, Lyme disease, cerebral palsy, etc.) and with teenagers and adults ages 13+ building self-esteem and confidence, healing from trauma and grief, or struggling with anxiety, depression, or self-harm.
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
3.14 Academy: https://www.314academy.org/
Email: info@314academy.org
Phone: 703-420-1861
Facebook: @3.14academy
Twitter: @314academy
Instagram: @314academy
Dr. Celeste Chamberlain served as a Tech Policy Advisor for the US Senate (HSGAC), is a Cybersecurity Professional, and the Founder/Executive Director of 3.14 Academy. 3.14 Academy is a nonprofit focused on providing support to the Autism community.
She is also a certified autism specialist and mother of two kids on the spectrum. Her Ph.D. in Emergency Management from Jacksonville State University gives her a unique insight for creating law enforcement training for officers engaging with people on the spectrum. As a university professor at the University of Maryland, Dr. Chamberlain has created hundreds of hours of curriculum for adult learners and uses that experience to create high-quality autism training for 3.14 Academy.
In this interview, we talk about the two areas 3.14 Academy focuses on - parent and law-enforcement education. Both of Celeste's sons are on the Spectrum, her youngest is nonverbal and more significantly impacted by his disabilities. Celeste is very open about her concerns, stating her sons are a "triple threat" - they are Black, male, and have a disability.
3.14 Academy offers training series set up like college courses. The 100 series introduces you to concepts and terms. By the time you get to the 400 series, you are ready for the much more in-depth overviews provided.
Although I think the courses are a steal at $30 each with unlimited access, Celeste's vision is to provide them at no cost. This will require much more community support. As a nonprofit, she relies on the generosity of her donors to fund her programs, making them even more accessible.
Here is a link to "Successful Nonprofits", the resource Celeste gave at the end of our interview.
https://successfulnonprofits.com/
Follow the link below to learn more about 3.14 Academy. Please consider supporting them.
https://www.314academy.org/
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Michael Beloff, CFP®, ChSNC®, CAP®, ChFC®, RICP®
Founding Partner, Wealth Advisor
Belvedere Wealth Partners - www.belvederewealthpartners.com
Phone: 203-418-4069 | Email: mbeloff@belvederewp.com
In this interview, Michael and I discuss the role of Social Security when you are planning for the future of a child with disabilities. We start with an overview of Supplemental Security Income (SSI). Michael explains how disability is defined and what tests must be passed to qualify, including a 3-year look back for assets. To make things harder, Social Security has different rules for “earned” and “unearned” income. If you want a calculator to help you figure out how much SSI you or your child may qualify for click on the link below.
https://truenorthdisabilityplanning.com/calculators/2022-ssi-calculator
Michael leaves us with these parting thoughts. First, it’s important that your child has less than $2,000 in their name by the time they turn 18. Look for hidden assets, like US Savings Bonds, which their grandparents or other family members may have gotten for them. And second, familiarize yourself with Social Security’s asset and income rules.
Additional Resources:
Council of Parent Attorneys and Advocates (COPAA) - https://www.copaa.org/
Social Security's Program Operations Manual System (POMS) - https://secure.ssa.gov/apps10/
Special Needs Alliance - https://www.specialneedsalliance.org/
Academy of Special Needs Planners - https://specialneedsanswers.com/
MICHAEL BELOFF is a Wealth Advisor with Belvedere Wealth Partners and offers securities and advisory services through LPL Financial, a registered investment advisor. Member FINRA/SIPC Belvedere Wealth Partners and LPL Financial do not offer legal advice or services. Please consult your tax and/or legal advisor regarding your specific situation. Content in this material is for general information only and is not intended to provide specific advice or recommendations for any individual.
You are under no obligation to use the services of any of the entities shown and may choose any qualified professional to provide any of the services described above. These entities and their services are not affiliated with LPL Financial and Belvedere Wealth Partners.
More information about Supplemental Security Income and Social Security Disability Income can be found at the Social Security website at www.SocialSecurity.gov
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
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Twitter: @NeedsNavigator
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Website: https://nestidd.com/home | Email: andrew.parker@nestidd.com
Twitter: @_Nestidd
I'm glad Andrew Parker agreed to this interview. I'm excited to share Nestidd's mission with you. They are a company focused on helping individuals with intellectual and/or developmental disabilities lease and maintain homes affordably.
They got their start by helping organizations that provide Residential services. Many of these organizations were not equipped to be property managers. The Direct Support Professionals (DSPs) were trained to help individuals with disabilities. Costs associated with owning and maintaining the homes were seldom a consideration of donors. This means owning houses can hurt their budget.
Nestidd buys the houses and leases them back to the agencies. This allows the agencies to focus on what they do well. Providing direct support to individuals with disabilities. It also means the homes will be well-maintained. Nestidd has dedicated teams around the country focused on repairs and maintenance. Nestidd will also serve as just the maintenance company for organizations that do not want to sell their properties.
The model of buying a home and leasing it back to the original owner will work with families. It could give families more security. They would be able to put the money from the sale of the house into a Special Needs Trust for their child. They would know how much housing is going to cost for their child.
The lease could be paid by an ABLE account. The Trust would not need to worry about repairs or maintenance. There would be no reason for concern about someone remembering to walk through the house at least once per year. Nestidd would have a vested interest in keeping the property in the best shape possible.
Nestidd benefits in two ways. First, they do not need to worry about vacancies. This can be a HUGE expense for landlords. Not just the lack of rent, but also the cost of getting a new tenant. Second, the house will remain with Nestidd when the individual with the disability moves or dies. This increases the number of units available for Nestidd to rent over time. This could provide opportunities for families who cannot leave a house for their children.
I encourage families who are thinking about leaving their home to their child(ren) to reach out to Andrew. Have a conversation. See if the Nestidd model makes sense for you. It's something I will be exploring with my clients. As Andrew says in the video, it's a "win-win".
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Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
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Twitter: @NeedsNavigator
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Website: https://www.specialconsiderations.com/home-page
Phone: (717) 846-4581 Direct | Email: BHager@SpecialConsiderations.com
Facebook: @SpecialConsiderations
Special Considerations is NOT an insurance company. They specialize in Funeral Expense Planning for individuals with Special Needs.
They offer burial insurance for anyone and everyone, regardless of disability. This is an important service for families. Many insurance companies will sell to someone with a disability. This means the family pays out of pocket.
You can have burial insurance and not hurt your SSI or Medicaid. The max is $15,000 in most states. It's not designed to grow cash value or replace lost income.
If you have specific questions about burial insurance or Special Considerations please reach out to Brenda, I interviewed her because I have found her to not be "salesy".
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Website: elizabethjlarson.com | Phone: (248) 722-7823
Email: elizabeth.larson@lpl.com | Twitter: @EJLarson4
FB: @elizabethlarsonj
YouTube: https://www.youtube.com/channel/UCvrM4rO-DKK_cSKcgtTOiZQ?view_as=subscriber
Elizabeth Larson is a Financial Consultant with a unique approach to helping families. She does "Values-Based Planning". This means she is interested in understanding what a goal means to someone. Not just what the goal is. Taking the extra time to understand the "why" helps both her and her clients have a much more meaningful engagement.
Elizabeth is no stranger to the disability community. She is the 4th child of 13 in her family. This includes four sisters with Down Syndrome. The special place Down Syndrome has in her heart is readily apparent. She is very active with GiGi's Playhouse - going so far as rappelling down a 26-story building to raise money!
Elizabeth doesn't try to be everything to everybody. In my opinion this one of her strengths. She is fantastic at helping individuals and couples really understand what matters. Elizabeth fosters conversations most of us avoid or take for granted. By focusing on this, and holding her clients accountable, she plays to her strengths.
Another strength she has is her network of professionals. Elizabeth recognizes she cannot be an "expert" in everything. However, she is familiar enough to know what is needed and which professional to connect with. This is an important skill for any professional, but especially for someone helping families plan their financial future.
Elizabeth is a member of the Academy of Special Needs Planners. This gives her access to some of the best special needs attorneys in the country. During our conversation, she recommends families use this resource to find an attorney or get their questions answered. Here is a link: https://specialneedsanswers.com/.
To paraphrase - "let the professionals do the heavy lifting so the families can do the living".
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Blog - https://ejorgensenwordpresscom.wordpress.com
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Twitter: @NeedsNavigator
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https://members.wolfandfriends.com/?autojoin=1
Instagram: @wolfandfriends.app
Carissa and Gena are moms who have children with disabilities. They understand things become more expensive when they are sold for use by someone with a disability. They created an environment where moms can share their "life hacks".
Wolf+ Friends is much more than a social media site like Facebook. It's a place where moms can educate themselves and talk to experts without the pressure of being "sold to". The goal, in a non-pandemic world, is to foster community through in-person meetups. Carissa reminds us you "get out what you give in".
Wolf+Friends is the award-winning community network designed to inspire, educate, and motivate special-needs parents + their children to live happier, healthier, and empowered lives.
MEET parents who are raising children with autism, ADHD, anxiety, developmental delays + differences, mental health issues, learning disabilities, behavioral challenges, Down syndrome, sensory processing disorders—in a private, judgment-free space.
CONNECT with their network of specialists. Includes developmental and behavioral pediatricians, occupational therapists, speech and language pathologists, behaviorists, psychiatrists, psychologists, art therapists, feeding therapists, social skills therapists + more.
ATTEND unlimited events, meetups, classes, courses + workshops hosted by their network of special needs providers, special guests, and parents in their community.
DISCOVER & shop expert-recommended products to support your child's unique developmental needs.
ACCESS a carefully curated selection of trusted resources, articles, podcasts, videos + more.
BE part of a support system like no other!
For more information about Special Needs Navigator you can find us here:
Schedule your free consult: https://meetings.hubspot.com/eric1021
Web: https://www.specialneedsnavigator.us/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://audioboom.com/channels/5039157
Facebook: @SpecNeedsNav
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Sellers-Im-Following/Add/Special-Needs-Navigator
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Mindful Money Management
Vera Kurlantzick, MS, CDMM®
Email: vera@marylandmoneymanagement.com
Phone: (301) 367-2859
Website: https://mindfulforyou.com/
When I first learned about Daily Money Managers I thought only rich people worked with them. This isn't true. I invited Vera Kurlantzick to explain what Daily Money Managers do. I believe they can help families w/ disabilities.
Daily Money Managers do much more than help people pay bills. Vera's examples include sorting mail and managing transitions. It can be when you get divorced or moves out on your own. Not all Financial Advisors help their clients budget. And not everyone can afford to work with a Financial Advisor.
Working with a Daily Money Manager to get your bill pay set up can be the first step to living independently. If there are concerns about continued payments or false charges, the Daily Money Manager can check in monthly. They can work with Guardians and/or Trustees.
In the video, we talk about a sibling being a Trustee and the Daily Money Manager helping the person with the disability manage their daily expenses. The Daily Money Manager would do this by helping them use their ABLE account.
Another example is hiring a Daily Money Manager to help you gather all the documents you need to file for SSI or SSDI. This can be a complicated, and frustrating, process. The Daily Money Manager can help you sort and organize your paperwork before you submit it. They can make sure you have copies of everything. Some may be able to help you complete the application.
I've come to think of Daily Money Managers as specialized personal assistants. We can all use help in our day-to-day lives. Daily Money Managers are NOT Financial Advisors. They have a very different role.
They can help you create and stick to a spending plan. Daily Money Managers are also NOT attorneys. They can help you organize your paperwork. They will not give you legal advice.
Thinking about hiring a Daily Money Manager? Do your homework. Do you know someone who has used one? Ask them what it was like. You need to be able to trust this person. Ask how they work. Do they do things FOR you or WITH you? This is an important distinction.
There is a certification available from the American Association of Daily Money Managers (AADMM). Even if not certified, you'll want a Daily Money Manager who is a member. Membership requires a background check, so you'll know at least they've been vetted. The AADMM website also has a tool to search for Daily Money Managers in your area. You can find it here: https://secure.aadmm.com/find-a-dmm/
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Twitter: @NeedsNavigator
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Website: https://www.riverfg.com/Our-Founder-and-Firm.1.htm
Email: leo@riverfg.com (preferred)
Phone: 781-398-1351
Facebook: @RiverFG
Leo Rotman is a Financial Advisor and Founder of River Financial Group, LLC. He's also a dad, he's walked the walk and understands firsthand the challenges we face as parents. His firm works exclusively with families and individuals who have disabilities.
Before you determine how to fund a Trust you need to know what you need to pay for. Step 1 of planning is understanding what your objectives are. What do you want for your child? This is a moving target. Your goals will change as your child ages. Especially if your child gains independence.
Leo shares a few ways you can fund a Special Needs Trust. You can put just about anything into a Special Needs Trust. He uses an analogy of putting gas into a car. Some assets, like cash, are very efficient and flexible, your "high octane gas". Others, like pre-tax retirement accounts, are much less efficient or "low octane".
Pre-tax retirement accounts, like 401(k)s and Traditional IRAs, have required minimum distributions. This means the money HAS to come out at some point. When you are alive, they have to start by the time you turn 72 (2020). When you die there are different rules. It's important to understand these rules and take them into account when you plan.
The money coming from these accounts will be taxed as income. All Trusts, not just Special Needs Trusts, pay taxes at the highest rate. In 2020 this was 37%. They reach this level at a much lower level than people do. In 2020 the threshold to reach the 37% tax bracket was $12,950 of income. Roth retirement accounts do not pay ANY income taxes. Brokerage accounts will pay capital gains tax on the gains.
Life insurance death benefits are typically tax-free. They are also "perfectly timed with the need". Leo explains this means the insurance provides the death benefit when it's needed most. Leo very briefly touches on the different types of life insurance. This will be its own episode.
Having life insurance can give you permission to spend your money (retirement accounts) on yourself. You know there will be money available when you die. I don't think I would've started my business if I didn't have the life insurance I have. It gives me the confidence I need to put the money I'm earning back into the business, rather than saving it for my son. I know my son will be provided for as long as I can pay the insurance premiums.
The point of this discussion is to stress the importance of planning. I think it was Benjamin Franklin who said "if you fail to plan, you are planning to fail." This is still true, over 300 years later.
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Website: https://www.fusionacademy.com/
Email: omarable@fusionacademy.com
Phone: 855-333-7075
Facebook: @fusionacademy
Twitter: @FusionAcademy
Olga Marable is the Director of Outreach for Maryland's Fusion Academy campuses. She explains who Fusion is and what makes them different. They use a "Love, Motivate, Teach" method. Their students stay engaged. No matter where you live, I encourage you to sign up for Olga's virtual lunch & learns - email her for more information.
Students have a 1 to 1 relationship with their teachers. After every class, there is an hour set aside for "Homework Cafe". I think it's a fantastic model. It beats the heck out of me doing work on the school bus ride home or in study hall (or not at all).
There are ~ 51 campuses around the country. Your child can also go to the global campus. It is a private pay school. Some children struggling in public schools may use Fusion as a nonpublic placement. You can use a 529 or ABLE account to pay. 529 account limits are $10k/year.
Olga shares who would not be successful with Fusion. It made sense to me. If a child is not at least to grade 6 academically; can't work independently, or has aggressive tendencies Fusion may not be a good fit.
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Find a Program: https://www.bestbuddies.org/international-programs/
Web: https://www.bestbuddies.org/
Facebook: @bestbuddies
Twitter: @bestbuddies
Best Buddies is the world's largest organization dedicated to ending the social, physical, and economic isolation of the 200 million people with intellectual and developmental disabilities (IDD).
Founded in 1989 by Anthony K. Shriver, Best Buddies is a vibrant organization that has grown from one original chapter to nearly 3,000 chapters worldwide, positively impacting the lives of over 1.3 million people with and without IDD. Best Buddies programs engage participants in each of the 50 states and in 56 countries and territories around the world
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Website: https://cumberlandtrust.com/
Email: info@cumberlandtrust.comPhone: 615-783-2540Twitter: @CumberlandTrust
Since recording this episode Jaclyn Berry has left Cumberland Trust. Please use the above contact information when you reach out to learn more.
"At Cumberland Trust, we work as a part of your family’s team of advisors. We collaborate with your accountant, estate planning attorney, and financial advisor to help guide the wealth transfer process and to maximize the benefits to both you and your loved ones. Since 2001, we have focused on people, their needs, and their values - not money management. Our role as a corporate trustee is truly independent and our approach centers on our clients.
You worked hard to build your legacy. At Cumberland Trust, we work to protect that legacy and to ensure your trust provides for your beneficiaries in the many years to come."
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SimplyHome works with you, your support staff, and agencies at the state and federal level. Its mission is to empower independence through innovation.
Web: https://www.simply-home.com/ | FB: @SimplyHome
Twitter: @simply_home | YouTube: https://www.youtube.com/user/SimplyHomeSystems
When you plan for your child's future think about SimplyHome. They are a tech company who helps people with disabilities live on their own for over 16 years. Their systems use sensors that adapt over time. This helps independent living skills and reduces fears about cooking safety, taking meds, and the risk of wandering or falls. You are only notified only when you're needed. This gives your child as much freedom as possible.
SimplyHome provides teams with tools, education, and support. This allows them to include the technology into their care model. It is often less expensive than you would think. Jason points out the first step is often something simple.
~ 17 states have technology services approved for waiver funding. 2021 will bring a few more states, but the majority still do not. You and your child's providers can help. Reach out to legislators and ask for it. As Jason quoted in the video "If you do not have a disability technology makes life easier. If you are living with a disability technology makes life possible.
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You may be wondering what the heck a professional organizer has to do with Special Needs. Maybe it's not what usually comes to mind when you think of resources. Yet they can be a HUGE help.
Contact Vernestine: Email - aos@absouluteorg.com
Phone: (202) 291-7025 | Website: https://www.absouluteorg.com/
If you're anything like I was you're probably wondering what the heck a professional organizer has to do with Special Needs families - this is probably not what comes to mind when you think of resources. Nothing could be further from the truth.
There have been times it was all I could do to get out of bed. I felt overwhelmed, especially after my wife died. In the first few months, I was on autopilot. Over time it got better. Eventually, I was able to empty the house we owned in Connecticut (I lived in Maryland when she died).
Having someone like Vernestine would have helped a lot. I wouldn't have felt so alone. I would have had "permission" to take my time and maybe not felt like such a failure. And I don't I would have been as stressed about doing everything "right".
Think of all the IEP and medical documents you have. Filing for SSI can be a nightmare. They want copies of everything. It helps to keep things in order. An Organizer could help you sort documents by date. This will make it easier for you when you file.
Vernestine explains an organizer is not a "cleaner". They can be your cheerleader or accountability partner. They won't "judge" you. They are there to help you set a baseline. They will give you tools you can use when they leave.
Professional Organizers can help us with our aging parents too. How many of you have parents who liked to collect things? Imagine if you have to help them downsize. Storage units can get expensive quickly.
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Website: https://www.griboffestateplanning.com/
Email: Amy@GriboffEstatePlanning.com | Phone: (301) 339-8725 (preferred)
Amy Griboff is an attorney whose practice focuses on Elder Law. She is licensed to practice law in both Maryland and DC. Prior to becoming an attorney, she was an elementary school teacher. Like so many of us, it was a personal tragedy that changed her career trajectory.
Her mom died when Amy was in her 20s, and Amy was her mother's personal representative. Amy had to settle her mother's estate. At the same time, her grandmother was not able to make her own decisions. Her grandmother had appointed Amy's mother to be her representative. With her mother's death, this fell on Amy too.
Amy shares stories with us, highlighting where planning has helped. She also points out where the lack of planning has hurt families. A few of you may have already been through this. Some may never have to experience it. But it's an important discussion.
Medicare will not pay very much if you need long-term care. Although long-term care includes care in a nursing home, it is not limited to this. Americans are choosing to age in their own homes. It can be very expensive, especially if you require 24-hour care.
There are going to be some who can afford to pay for this care privately. If you have a child with a disability this may not be an option. Every dollar you spend on your own care is going to be a dollar you cannot leave to your child (unless you have a life insurance policy). Other options include using long-term care insurance or Medicaid.
Medicaid's asset limit isn't just for individuals with disabilities. It applies to those who want to use it to pay for long-term care as well. Not every state's limit is $2,000. You will want to make sure you know what your state's limits are.
Amy points out that even if Medicaid is paying for long-term care, it will NOT pay for everything. A few examples are hearing aids, dental work, and customized wheelchairs. It will also not cover anything you would like to do for fun.
Although we didn't cover it in this discussion, there is an additional benefit to having long-term care insurance. Certain policies will allow you to keep more assets and qualify for Medicaid. Talk to a licensed insurance agent to learn more.
Amy mentions a Pooled Special Needs Trust. Here's a link to a video I did explaining them:
https://youtu.be/GbhRgvMGMUY
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For more information about True North Disability Planning you can find us here:
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Blog - https://ejorgensenwordpresscom.wordpress.com
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Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
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Support Group Call/Drop-In: 605-468-8131, access code 933883
Every other Monday at 6 pm (EST), 2/8/2021
Every other Wednesday at 9:30 am (EST), 2/10/2021
Website: https://nancys-house.org/ | Instagram: @nancyshousecare
Facebook: @Nancys.House.Respite
Elissa Lewin describes herself as a "serial caregiver". She helped her son overcome his learning disabilities and finish school. She cared for both her mother and father-in-law. And she battled cancer. She gets it.
Nancy’s House will give you the tools and strategies you need to stay strong and healthy while caring for your loved ones. Their programs, community-building, and advocacy break the isolation and exhaustion of caregiving.
Nancy’s House gives you the chance to step out of your stressful lives. You can connect with others walking the same path. See what it feels like to let go. They empower you to pay attention to your own needs and learn skills to stay calm and healthy.
Nancy’s House creates the opportunity for experiential, long-lasting learning. They don’t just give advice or tell you what to do. They work with you. They help you experience true connection, relaxation, and renewal.
Nancy's House offers several ways for you to help yourself. This includes conferences, retreats, workshops, speakers, and support groups. Fees are on a sliding scale and scholarships may be available. Nancy's House is a nonprofit. The ONLY way they are able to offer these programs is through the continued generosity of donors.
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Web: https://www.riveroakspsychology.com/
Phone: 248-717-1232 | Email: lauren@riveroakspsychology.com
Twitter: @riveroakspsych | Instagram: @riveroakspsychology
Facebook: @riveroakspsychology | YouTube: https://www.youtube.com/riveroakspsychology
Since recording this episode Lauren has rebranded as River Oaks Psychology. All her contact information has been updated in these show notes. Please disregard the contact information listed on the slide in the video.
In this interview, Lauren shares the value counseling has - whether for men (yes, I said it), parents, or individuals with disabilities. It's important for us to keep a healthy balance in our lives. This doesn't mean everything is always going to be okay. We have to roll with the punches. Lauren has overcome her own challenges. Born with muscular dystrophy, she got her first wheelchair when she was 5 years old.
I want to help men understand it's okay to talk with someone. It does not make us less than. These ideas of masculinity that are floating around are outdated and need to be revisited. If you have a belief it's shameful for men to go to therapy, Lauren wants you to ask where it's coming from.
When we shift to talking about parents we don't talk about couples therapy. Rather our focus is helping parents let their children explore their world. This may mean risking failure, and that's okay. Few of us were successful at everything we did the first time we tried. Start including your child in the IEP meetings as early as elementary school. When you give them a choice, honor what they select.
Individuals with disabilities may not feel heard. They could feel as though no one sees anything beyond their disability. It's not fair to them to live feeling like this. Working with a therapist may help. Maybe you are ignored the first time you speak up, but this doesn't mean you should stop.
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Liz Kahn is a Behavioral Specialist who, prior to going out on her own, worked for several state and private agencies across the country. She has worked with families whose children have a range of challenges. Diagnoses like Autism Spectrum Disorder, Down Syndrome, ADHD, Global Delays, Rhett's Syndrome, Communication Disorders, and other behavior-based challenges not otherwise specified.
In this video, we talk about the challenges faced by everyone, but most especially parents whose children have disabilities. Liz isn't "just" an expert who has worked with other people's kids. Her own son received an Autism diagnosis at 3. She and her family are on their own journey.
Liz explains the three most common causes of frustration come from being tired, hungry, or uncomfortable (or some combination of these). It becomes a pebble in your shoe. At first, it may not be severe enough to make you do something about it. But the irritation builds over time until you can't take it anymore.
The key, Liz explains, is interrupting it before it gets out of hand. Make time for addressing it; because it's almost certainly not going to just go away. She outlines her process as "interrupt - take a breath - ask a question. Sounds "simple", right? That's because it is, but it's anything but "easy".
We have to choose to react slightly differently to get real change. We also have to be ok with not being perfect. Give ourselves grace when we fall back into old habits. Liz gave us three questions to ask:
1) What can I do better?
2) What can I learn from this?
3) How can I use what I've learned next time?
We touch on how it's important to be realistic. It's okay to have friction in your household. There are going to be times when not everything is "perfect". It's okay to apologize to your kids. In fact, it's a great opportunity to model appropriate behavior. Own your mistake. Share what you've learned from it.
If any of this video resonates with you, and you're ready to make some changes, I encourage you to reach out to Liz. All of her processes are science-based, she can (and will) show it to you. There will be at least one future episode where Liz and I have a discussion about being a Special Needs Parent. She and I have also discussed hosting Facebook and/or YouTube lives to allow you to ask your questions.
The book I mentioned is "Autism Uncensored" by Whitney Ellenby. Link to purchase at Amazon - https://www.amazon.com/Autism-Uncensored-Pulling-Back-Curtain/dp/1633934136
It's not for everyone, Whitney explains how she felt as a parent in the early years. It's connected to this video because in my opinion, it shows how important it is for us, as parents, to focus on our healing as well.
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Full Circle Employment: https://fullcircledc.com/home | Twitter: @FCESDC
Facebook: @FullCircleDC
Amy Wallish is the CEO of Full Circle Employment and a Certified Benefits Counselor. In this video, she explains how one can become a Certified Benefits Counselor. It takes ~ (1) year to do all the work. There are (2) options for the education requirement. Either Virginia Commonwealth University (VCU) or Cornell University.
Amy provides a very high-level overview of the Ticket to Work and Work Incentives Planning & Assistance Programs (WIPA). If you're already at least a little familiar with both programs I'm not sure this video will add much. I wanted to give individuals and families a solid foundation. Future videos will be focused entirely on a given program.
Ticket to Work is best suited for individuals who are receiving either SSI or SSDI and want to find & keep work. The "tickets" are served by Employment Networks (ENs). There are over 450 ENs across the country. They do not all do the same thing. You will want to interview them to determine if they can fill your need. To find an EN go to https://choosework.ssa.gov/index.html and select "Find Help to Reach a Better Future". You can also register for Social Security's Work Incentive Seminar Events (WISE).
Like Ticket to Work, WIPA is funded by Social Security. You will receive free benefits counseling. Or more simply, you will get help understanding what happens to your SSI, SSDI, and/or Medicaid if you start working. In some states, Vocational Rehabilitation (VR) will offer Benefits Counseling. You can start as young as 14, Social Security is very interested in helping Transition Age Youth understand their options.
The biggest take-away Amy wanted you - the viewer - to have is this. Knowledge + Education = Financial Security
Knowledge - understand your benefits
Education - understand the rules and protections
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Website: https://www.autismdadvocate.org/
Podcast: https://podcasts.apple.com/us/podcast/the-autism-dadvocate-podcast/id1538437276
Instagram: #autismdadvocate
Facebook: @AutismDadvocate
In his own words, Paul Carroll is a nondescript man with only one unique attribute – he is a father to a remarkable son on the spectrum - Vaughn. Please check out the anecdotes on this website to see how he’s stumbled, improvised, and ultimately learned the most valuable lessons from his remarkable son - a young boy with gifts that go beyond the limitations of his falling on the spectrum of autism.
When he’s not actively being a Dad, Paul works for a Fortune 10 company in leadership and organizational development. He has also taught at several local universities in the Rhode Island area.
In this video, we introduce Paul. He shares with us his vision for what Autism Dadvocate will become. The website is not intended to be another resource for children. It's not a "mom's group for dads". It's a safe place for men to share their concerns, fears, failures, and successes. The intent is to give men the opportunity to be heard. They do not need to be anything other than themselves here.
I'm excited to help spread the word about his mission. I see an opportunity to create a community of support. Men from across the country have the ability to tell their stories. Follow the link below to share your experiences - bad and good. https://www.autismdadvocate.org/
Remember to celebrate the wins. It's easy to fall into the trap of believing life is hard. It is, I'm not arguing it's not. However, I feel we, as dads, often overlook many opportunities to feel happiness and joy. You will find what you are looking for, so why not make it something you want to see?!
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For more information about True North Disability Planning you can find us here:
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Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Website: https://www.autismspectrumalliance.com/
Phone: 800-828-5659
Email: contact@autismspectrumalliance.com
I invited Marc Rose to talk about ABA and Continuum precisely because he is NOT a BCBA. I understand, and respect, there are those who feel all ABA therapy is bad and families should not use it. However, I don't agree. In my opinion, ABA is a tool, just like speech or any other therapy. Marc makes a fantastic analogy to families without disabilities wanting their children to follow in their parent's footsteps, but respecting their children are different and allowing their children to follow their own path. Continuum isn't out to make children "conform" to the "norms of society".
As a parent, I can understand wanting to get help to change behaviors, but I also believe not all behaviors need to be changed. I feel there has to be some middle ground. There are individuals who need help learning how to use a toilet or are self-injurious. As Marc points out there are also times when families need help expanding someone's food choices. None of these, in my opinion, are trying to take away a person's individuality - rather they are trying to give an individual a better quality of life.
Now I do NOT think individuals need to have their stims stopped or changed. I have never tried to redirect my son or address his stims. I overlooked a tic initially because I thought it was a stim; I've since learned it's a manifestation of Tourette's (according to his Neurologist). Even so - it's not causing him to harm or interfering with his life so I've opted to do nothing about it. I think the same is true for what you can use ABA to address.
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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Web: https://boginlaw.com/ | Email: matthew.bogin@boginlaw.com
Phone: 301-656-1755 | Licensed in MD/DC/VA
Matthew Bogin is an estate planning attorney whose practice focuses on helping families with their Special Need Planning. Full disclosure - I worked with Matt to establish both my 1st & 3rd Party Special Needs Trusts. I also worked with him when I petitioned for the Guardianship of my son.
During this interview, we review what Guardianship is, and isn't. Matt shares that many families are surprised by:
(1) how much information the courts want to know about the individual's condition and,
(2) that the Guardians are required to submit reports to the Court explaining what they've done.
Matt explains being a Guardian of an adult is very similar to being the parent of a minor. Although you have the authority to make every decision for the individual, you don't have to. You are able to let the individual make some of their own decisions - you would retain the final say.
When someone is found incapacitated enough to require a Guardian they will not automatically lose their right to vote. It depends on the State, every State has different rules. The same is true for when you should file for Guardianship, in some States (like VA) you can file 6 months prior to the child's 18th birthday.
If you are seeking Guardianship do yourself a favor and think about who you would want to take over if you are no longer able to serve in this capacity. You may be able to identify the successor Guardian in Court documents when you are granted Guardianship. Or you may have to list the successor in your estate plan. Either way will ensure the State does not need to try to fill the void.
Guardianship does not have to be a "permanent" solution. If the individual gains the ability to live independently as time goes on you can surrender it. This is what I am working towards. I am doing my best to help my son gain the skills he needs to live independently and make his own decisions. My biggest concern is around medical decisions. These can be difficult to understand and make when you don't have a disability.
Matt has (3) Key Take-aways:
1) There is no right solution for everyone, it's an individual decision
2) It doesn't have to be forever
3) Things to consider are the influence of 3rd Parties and healthcare access & decisions.
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
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To all my listeners - thank you!
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
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Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
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Email: info@art-stream.org
Website: https://www.art-stream.org/
Facebook: @artstreaminc
YouTube: https://www.youtube.com/channel/UCMoxIB5jUXfbTQLagPe-ZTw
I was super excited to interview Heller An Shapiro and share the amazing work ArtStream is doing. Especially now that they have gone virtual and can literally work with anyone around the world! For those who are not familiar, here is ArtStream's Mission. "Through collaborative performance and lifelong learning opportunities, people with intellectual and developmental disabilities gain the skills and confidence to engage with the world.
Heller An wanted to ensure I let people know scholarships are available for all of ArtStream's programs. There is research proving the value of connection. The work ArtStream is doing really does change lives. The friendships created are authentic.
Here is an overview of the programs ArtStream is currently offering. Classes:
Eight Week Sessions, which last between 1 - 1.5 hours each. Alternatively, you may sign up for "Take Five", doing (5) sessions in a week.
Workshops:
These are single sessions, currently (1) hour long. Starting in January 2021 the duration will increase to 1.5 hours. It's a party setting. Starts with a focus on helping attendees be comfortable introducing themselves. Ends with a dance party.
Positively Speaking focuses on public speaking. Students who have participated have gone on to present at Capitol Hill and job interviews. Speaks to how much it helps self-confidence and speaking ability.
ArtStream has (6) Inclusive theater companies, each with 15 adult performers and a full professional production team. They are supported by peer volunteers and over (80) teaching artists. Over a six-month period, they will create a musical, assign roles and perform. I cannot stress how unbelievable this is - these are not performers who are acting out a screenplay. They are creating their own screenplay!
Additionally, ArtStream has (4) Cabaret companies, again with 15 adult performers. These performers are solo or small group acts. They choose what they will perform, from poetry readings to song covers.
I'm not sure this video does justice for the impact ArtStream can have on adults with disabilities or the broader communities. There is NO doubt in my mind that ArtStream is shattering preconceived notions of what people with disabilities can, and cannot due. I hope you will join me in supporting them.
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For more information about True North Disability Planning you can find us here:
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Blog - https://ejorgensenwordpresscom.wordpress.com
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Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
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Phone: (833) 467-3878 | Email: info@hopetrust.com
Web: https://www.hopetrust.com/
Hope Trust has reinvented Trust management and oversight. They offer a white-glove service. They answer "who is going to help my child when I am gone". They have made the letter of intent simple to do.
Their Hope Care Plan starts the same as most LOIs. However, it goes beyond what you will get in an LOI. There are over 6,000 questions in the Hope Care Plan. It's like the old "choose your own adventure" books. I really think it's amazing technology! Worth completing even if you don't have them serve as Trustee.
A Hope Care Plan is a custom guide about knowing and caring for your loved one. Hope Trust gets info about medical, legal, social, and financial needs. This is used to build the Hope Care Plan. It covers the beneficiary’s needs and your wishes. The Trustee will use these to provide for your child.
They use your Hope Care Plan to create a Special Needs Trust rough draft. Hope Trust recommends taking this draft to a Special Needs attorney in your state to confirm it meets local requirements. They may also serve as Trustees for Special Needs Trusts they do not write.
You can either have Hope Trust manage the Trust's money or use a Financial Advisor. If you have a good existing relationship, keep it. However, if you are not working with someone, or you're not happy, I think they offer a great solution.
Full disclosure - I am not taking your situation, or any fees, into consideration. I strongly recommend you do your own research and comparisons. Want a free tool to compare Trust companies? I've built one, you can get it here: https://www.specialneedsnavigator.us/free-tools/how-to-pick-a-trustee
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For more information about True North Disability Planning you can find us here:
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Facebook: @HydroAssoc | Twitter: @HydroAssoc
Website: https://www.hydroassoc.org/
YouTube: https://www.youtube.com/user/hydroassoc/featured
Hydrocephalus Association local Community groups: https://www.hydroassoc.org/cause-view/community-network/
WALK to End Hydrocephalus events: hydroassoc.org/walk
HydroAssist mobile app: https://www.hydroassoc.org/hydroassist-mobile-application/
Hydrocephalus Patient Powered Registry (HAPPIER): https://www.hydroassoc.org/happier/
If you'd like to watch the video interview to see the slides Amanda was using you can find it here.
Amanda Garzon, the Hydrocephalus Association's Director of Program Services and Communication, joins me to talk about what hydrocephalus is and how the Hydrocephalus Association is helping those who are affected. If you are anything like I was, you probably have never heard of hydrocephalus - despite the fact it affects over 1 million people in the US.
Additionally, Amanda helped the Hydrocephalus Association create an app - look for HydroAssist wherever you get your apps. This app will allow you to download and store your treatment history, giving you access wherever you may need it - even if you're on vacation in another country. It's secure and robust, with the ability to upload images from MRI and/or CAT scans.
This is a longer interview than normal because I felt it was important to share what hydrocephalus is. I will do my best to break it into chapters like I normally do, so you can scroll through to the sections you are most interested in - however, given my lack of knowledge coming into this discussion I can't promise my chapters will do Amanda's presentation justice.
The "wet/wacky/wobbly" Amanda mentioned:
1) Difficulty walking, feeling like feet are "stuck to the floor"
2) Urinary urgency - eventually leading to incontinence
3) Dementia like symptoms, often misdiagnosed as Alzheimer's or Parkinson's
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For more information about True North Disability Planning you can find us here:
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Twitter: @NeedsNavigator
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Council of Parents Advocates and Attorneys (COPAA) - https://www.copaa.org/
Partnership for Extraordinary Minds (XMinds) - https://xminds.org/
Suzanne Blattner & Associates - https://www.suzannekeithblattner.com/
Contact Monica at mmartinez@martinezadvocacy.com
Monica Martinez, a Special Education Advocate with Suzanne Blattner & Associates in Montgomery County, Maryland, shares what a Special Education Advocate does with you. We start by defining the differences between a Special Education Advocate and an Education Consultant - two roles I had been using interchangeably.
From here our conversation shifted into when families should consider hiring a special education advocate and how to pick one. Monica and I agree it's important to consider personality, because this is someone you could be spending a lot of time with, and if they are interfacing with the IEP team it's our professional opinion to work with someone who is collaborative (and can be tough when/if necessary) because it's very likely you'll be working with these team members for a while.
Remember, most staff want your child to be successful. Do your best to keep this in mind as you go through the process, and view those sitting across the table from you as fellow human beings deserving professional respect. We would tell them the same thing - the parents sitting across the table are not just another "number"; they have feelings and deserving of respect as well.
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For more information about True North Disability Planning you can find us here:
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Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
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Website - http://pittselitecontracting.com/
Email - scottie@pittselite.com | Facebook - @pittselite
Why does a company whose mission is helping families navigate the maze of disability services interview a contractor? Because many of us are looking to finish a basement, have an addition installed, or just renovate a bathroom/kitchen. And, speaking for myself, don't have a clue where to start or what questions to ask.
Scottie Pitts provides insight and tips for hiring contractors. He also explains the difference between a contractor and a handyman. Check your State, MHIC governs Maryland - each state will have a similar organization.
Please keep in mind higher quotes do not necessarily mean someone is trying to rip you off. Skilled craftsmen deserve to be compensated. They are no less skilled than physicians, attorneys, and other "white collar" professions. Requires more than just the ability to swing a hammer - they must have incredible attention to detail.
I would also like to note many states will offer tax credits to residents who make their homes more accessible. Be sure to check with your tax professional.
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Website: https://www.kmclawmd.com/
Email: kelly@kmclawmd.com
Phone: (443) 906-1477
Kelly McCrea is an estate planning attorney with KMC Law in Maryland. In this video, she explains what the components of an estate plan are and why it's important to get it done. This is a basic introduction, we don't spend too much time on any given topic - I will be circling back to do a deeper dive in later episodes.
Intestacy means property passes through probate without a Will - it's up to the courts to decide who gets what. I learned that in Maryland if you don't have a Will your assets will be split 50% between your spouse and minor children - not sure if/how many other states have similar rules, you'll want to check.
There are some things that don't have to go through probate - anything with a beneficiary form because the beneficiary form will take priority. This makes it very important to keep these updated, especially after a divorce or other significant changes.
Another thing I learned is Maryland is a "surrogate" state - meaning if your spouse or parents may speak for you if you are unable to speak for yourself, even if you don't have advanced directives. This link will take you to an HHS pdf file that does a deep dive into state surrogate laws.
The advanced directives help your loved ones make decisions about what treatments you do, or don't, want; and everyone over the age of 18 who is of sound mind and body should complete them - especially if you have kids doing a semester abroad or going off to college in another State.
We talked about (2) kinds of Powers of Attorney - the Springing and the Durable. Springing means it won't come into effect until the individual has been found incapacitated by (2) medical professionals. The Durable power of attorney means it will stay in effect even after the individual becomes incapacitated mentally.
Kelly explained Revocable living trusts and testamentary trusts. Revocable means it may be changed and does not offer any protection for public benefits. Testamentary means it will come into being after you die. You also have the option of creating special needs trusts while you're alive, as long as you fund them with a nominal amount (I've got $10 in each). We discussed trustees, highlighting the challenges of having more than one - someone has to have the final say. Trustees control the flow of assets, and trust protectors monitor the distribution - an important distinction.
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Twitter: @NeedsNavigator
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Since recording this episode Jeff has changed companies. He is now an Area Lending Manager with Citibank. You can connect with him by phone, email, or LinkedIn.
Phone: (301) 370-5874
Email: jeffrey.bochner@citi.com
LinkedIn: https://www.linkedin.com/in/jeffrey-bochner-3689416/
I apologize for the audio quality. I have replaced the microphone used during this interview. Jeff and I are working on getting a new interview scheduled and recorded. When I've uploaded the new episode I will remove this one.
Special Needs families who want to purchase a home for their disabled child, or leave their existing home to their child, may face challenges if there is a mortgage on the property. Lenders want "real" people they can hold accountable, so although the property can (and likely should) be held in a Trust, the loan will have to be assigned to an individual.
If a 3rd Party Special Needs Trust is used to pay a mortgage or any housing expenses, the beneficiary is at risk of having their Supplemental Security Income (SSI) reduced. A better option is to have the home placed in the Trust; take distributions from the Trust to an ABLE account; and use the ABLE account to pay the mortgage, interest, and insurance. This is another example of how working with a team of professionals can help parents - it can be overwhelming making sure all the boxes are checked and keeping up with all the rules.
Jeff explains how talking to a lender, rather than using an online tool, can be more advantageous - because the right lender will seek to understand what families are trying to accomplish and may be able to have their child's home classified as "owner-occupied" rather than as an investment property. This will provide more favorable lending conditions, like a lower required down payment (maybe even as low as 5%) and reduced interest rates.
Fee-Only Advisor groups
XY Planning Network Find an Advisor - https://www.xyplanningnetwork.com/
NAPFA Planning Find an Advisor - https://www.napfa.org/find-an-advisor
Garrett Planning Network Find an Advisor - https://directory.garrettplanningnetwork.com/search-member-profiles
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WEBSITE: www.noteableprogressions.com/ | Phone: 240-394-9399 ext. 101
Email: darcy@noteableprogressions.com
Facebook: @NoteableProgressions
Music therapy sessions are customized to meet the needs of each participant we serve. Goals vary greatly between individuals and can include social, emotional, physical, educational, and communication needs.
Individual music therapy sessions can be beneficial for:
Early childhood development
Autism
Cerebral palsy
Down syndrome
Mental Health
Traumatic Brain Injury (TBI)
Stroke recovery
Well-elders
Alzheimer’s/dementia
AMERICAN MUSIC THERAPY ASSOCIATION: https://www.musictherapy.org/
To find a music therapist near you, visit the Certification Board for Music Therapists: https://www.cbmt.org/
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StationMD uses secure, HIPAA-compliant technology and processes. They regularly update our processes to ensure that we meet all regulations. The doctors work in shifts, similar to being in a clinical setting. Their meetings are held in secure areas.
When should StationMD be used?
•Urgent medical issues such as fever, cough, moderate pains, minor behavioral issues
•Non-urgent issues such as medication refills, constipation, routine check-ins
When is it better to call 911?
•Issues such as trouble breathing, unconsciousness, severe distress
•Any issue that suggests immediate danger
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Web: https://guidingexceptionalparents.com/
Phone: **301-768-8503 | Email: info@guidingexceptionalparents.com
Facebook: @GuidingExceptionalParents | Twitter: @ParentGuiding**
I think all of us want to be exceptional parents, but life has thrown us a curveball that overwhelms our instincts and know-how. Sarah explains that's ok, we just need the right tools. She supports families in three unique ways:
Coaching Relationship Development Intervention (RDI): Sarah coaches parents of kids with social communication challenges and autism to teach their kids the skills that make relationships (and life!) work. Guiding: Sarah works with parents to brainstorm challenging situations and behavioral issues so they can put effective supports in place and teach their kids essential skills.
Navigating: Sarah's parents figure out what supports to put in place and help them navigate medical, educational, and community-based systems to access those supports.
Guiding Exceptional Parents also hosts a Book Club, Parent Workshops, and Online Classes.As an Amazon Associate, I earn commissions from qualifying purchases.
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Kids Enjoy Exercise Now (KEEN)
Web: https://www.keenusa.org/
Email: info@keenusa.org | Phone: 866-903-KEEN (5336)
Facebook: @KEENusa | Twitter: @KEENusa
Kate Hurson is the Executive Director of KEEN USA. In this episode, Kate explains KEEN's origin story, provides viewers with an overview of KEEN's programs and how to get involved.
KEEN is a volunteer-led, nonprofit — 501(c)(3) — organization headquartered in the Washington, DC area. KEEN USA’s Board of Directors oversees affiliate operations and charts national initiatives. Each affiliate also has a Board of Directors, comprised of parents, volunteers, and members of the community who direct all local activities in accordance with KEEN‘s mission of providing free programs for kids with disabilities, regardless of the nature or severity of that disability.
KEEN is modeled on an innovative program established in Oxford, England by Elliott Portnoy, who brought KEEN to the Washington, DC area in 1992. With his wife, Estee Portnoy, and help from a handful of parents and volunteers, KEEN started as a single program. 25 years later, because of its unique approach of individualized, one-to-one, non-competitive programming, KEEN has expanded into seven markets across the nation, serving over fifteen hundred young people with disabilities each year and touching the lives of tens of thousands of volunteers.
Currently KEEN operates programs in New York, DC, Chicago, St. Louis, Phoenix, Los Angeles, and San Francisco. To find an affiliate near you please click on the below link. If there is not a KEEN affiliate in your city/state, and you are interested in starting one, please reach out to Kate at info@keenusa.org.
https://www.keenusa.org/affiliates
KEEN is a 501(c)3 nonprofit - all of its programs are provided free of charge. They rely on the generosity of their communities, volunteers, and corporate sponsors to keep their doors open and offer their services. If you would like to provide support, financially or with your time, please contact your local affiliate.
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Website: https://lawforparents.com/
Email: admin@lawforparents.com
Phone: (301) 882-2001
COPAA Find an Attorney: https://www.copaa.org/page/search
Ashley Van Cleef is a Special Education Attorney in Maryland. Prior to going into private practice, she was a Special Education teacher, as well as an attorney for the school districts; it's no exaggeration when I say she has extensive experience on both sides of the table.
In this conversation, Ashley explains the role of a Special Education attorney and why it's important to take a collaborative, rather than confrontational, approach - at least in the beginning. Teachers and administrators are often doing the best they can with limited resources, they are required to deliver an "adequate" education - which may put them at odds with parents who want the "best possible".
Ashley says "lack of trust leads to a desire for control", and I've seen/lived this first-hand. I don't think it's just parents who feel this way, it can be difficult for teachers and/or administrators to trust parents - imagine working in an environment where you may not agree 100% with what you're being told to do but you need to defend it. Then you have people attacking you, perhaps challenging the idea you actually know what you are doing.
The (2) biggest mistakes Ashley has seen parents make over and over again are not giving the proper amount of notice prior to removing the student from public school to go to a private placement and burning bridges with teachers and administrators. In Maryland, it's a requirement to give (10) days' notice prior to removing your student, failure to do so can weaken your case when petitioning to have the State pay for private school tuition. Check with your state to determine what, if any, similar requirements exist.
If your child is going to be in a school district until age 21 it doesn't help you to make enemies within the administration through personal attacks or being difficult to work with. Think of people in your life who you couldn't stand being around - how much did you want to do for them? Neither Ashley nor I am saying to roll over and let the schools walk all over you; however, you don't have to start extreme. Keep calm and document everything, build the case through facts with evidence; make it as difficult as possible to refute. Judges rule based on this type of information, not emotion.
If you think you need help, schedule a consult. Waiting until things get unbearable is never the right answer - although all too often this is exactly what we do; whether it relates to our cars, our health, or our pets. If something feels off to you talk to a professional, the worst they can do is tell you there is nothing to be concerned about.
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For more information about True North Disability Planning you can find us here:
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Website: https://www.tpfinancial.com/
Email: brandon@tpfinancial.com | Phone: (301) 846-9336
For individuals and families with disabilities, tax planning can often get overlooked. It can be overwhelming, try to keep track of your medical expenses. There is a LOT of information on social media giving advice on what you should do. Unfortunately what works for you may not work for someone else. Circumstances differ, it's important to take your situation into account.
In this video, we explain the difference between standard deduction and itemizing. We talk through some situations when itemizing makes sense. There is an error on the slide. The medical deduction in 2020 is 10%, not 7.5%. This means you cannot deduct medical expenses until they have exceeded 10% of your income. For example, if you make $100,000/year you would have to wait until you've spent at least $10,001 on medical expenses.
We do not do a deep dive into examples of medical expenses. There are a LOT. A few we mention are mileage and hotel costs when traveling to a medical facility and costs associated with a service animal. Please note - a service animal is NOT the same thing as an emotional support or therapy animal. Tax treatment may not be the same. If you have an emotional support or therapy animal and you are wondering if any of the associated expenses are deductible I encourage you to talk to an accountant.
Brandon talks through tax credits and deductions. Tax deductions will lower your taxable income. Tax credits will reduce your income tax. Credits are more valuable. There are refundable and non-refundable credits. A refundable credit is a credit that is paid even if no taxes are due.
In some cases, it makes sense to claim your adult child as a dependent. Brandon stresses the key thing to determine is if you can. Do you meet the requirements? Typically this would mean you are providing at least 50% of the support. However, you will want to double-check because tax laws changed.
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Web: https://boginlaw.com/ | Email: matthew.bogin@boginlaw.com
Phone: 301-656-1755 | Licensed in MD/DC/VA
Eric Jorgensen talks with Attorney Matthew Bogin about a Special Needs Trust. Learn all about what it is, the difference between a 1st and 3rd Party, and who should have one.
Nothing in this video is meant to be legal advice, we are unable to speak to any individual's particular circumstances. We encourage you to seek your own legal counsel should you have additional questions. Matt practices law in MD, DC & VA; some of what he mentioned in this video may not be applicable in your State.
Final thoughts (Eric's) - picking an attorney shouldn't be solely based on cost. Make sure you are working with someone you trust, and who you feel is listening to you. In my opinion, it's their job to challenge you, ask you questions you haven't considered. But they should do so respectively. When looking for an attorney I (Eric) suggest looking for someone who has a LOT of experience with Special Needs and/or Elder Law. Below are two websites to help you find an attorney near you (nationally):
https://specialneedsanswers.com/USA-s...
https://www.specialneedsalliance.org/...
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Website - http://www.resnikpsychology.com/
Email - drresnik@resnikpsychology.com
Dr. Rebecca Resnik, the founder of Rebecca Resnik and Associates, is a former special education teacher. She applies this unique experience, as well as her personal experience as a mom when working with her clients. Rebecca Resnik and Associates has 14 clinicians on staff and offers psychological testing, psychotherapy & educational consulting in Maryland.
During our conversation, we discuss what psychological testing is - what does it mean to get a child tested. Rebecca provides an overview of autism testing, psychoeducational testing, neuropsychological testing, and IQ testing - what they are and what they are useful for. She makes it very clear a diagnosis is NOT a label; rather diagnoses are a critical step in ensuring your child receives the services and benefits they need and deserve.
Rebecca explains the differences between getting testing in a hospital, like Kennedy Krieger or Yale, as opposed to the psychological assessments done by school psychologists or private offices, like hers. Generally, school psychologists will not provide a "diagnosis". Instead, their tests result in an "eligibility code". These are important. However, if you are applying for State and/or Federal benefits you will want to get at least (1) private test completed.
Rebecca recommends talking to professionals, like education attorneys or special education advocates, when looking for a private testing facility. You want to ask someone who reviews a LOT of test reports because they will have a fair idea of the quality of the psychologist producing them.
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Web: https://fivewishes.org/ | Twitter: @5WishesOrg
Phone: (850) 681-2010
Facebook: @5WishesOrg
Five Wishes is a complete approach to discussing and documenting your care and comfort choices. It's about connecting families, communicating with healthcare providers, and showing your community what it means to care for one another.
In this discussion, Alexis shares what Five Wishes is. In general terms the wishes are:
1) Who is your healthcare agent
2) What type of medical treatment do you want
3) Comfort level - pain meds, how conscious do you want to be, etc
4) How do you want to be treated (faith, visitors, etc)
5) Legacy
This is a very general overview. The document guides conversations around each wish. It really helps individuals and families think things through before a crisis occurs. The whole point of completing Five Wishes is to "protect human dignity". Wishes 3 through 5 are the "living will heart and soul".
If you are over the age of 18 you need to complete your plan. If you are a legal guardian, complete a document for your ward. This is especially important (IMO) if you are also the parent. Because when you are gone it's going to be this document and a letter of intent that will be available. Those who come after you will have to rely on these documents to make the best choices for your child.
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Web: https://www.smilethebook.com/
Facebook: @SmileandSucceedforTeens | Instagram: smilesuccessbooks
Contact: https://www.smilethebook.com/contact
Kirt's books are used by Neiman Marcus, BancorpSouth, North Carolina Department of Health and Human Services, and many others. These books are crash courses - concise, quick, and easy to read to help you generate immediate results.
Kirt's books have won 11 awards, including the coveted Teachers' Choice Awards, and the prestigious Mom's Choice Gold Awards. Kirt spent nine months meeting with teens for his award-winning book on job skills and social skills for teens,
"Smile & Succeed for Teens: A Crash Course in Face-to-Face Communication". Get the book here https://www.amazon.com/dp/0985076216?tag=specialneed0b-20&linkCode=osi&th=1&psc=1
These skills work well for anyone, regardless of the disability. It's not simply "make more eye contact". It's amazing the impact saying "please" and "thank you" can have. I have witnessed this with my own son. We taught him to be polite when he was young, and it has paid dividends. He's not "social" by anyone's definition.
One of the places he "volunteered" while in school was willing to hire him because he was "pleasant to work with". Again, he was most certainly NOT making small talk or "hanging out"; and he struggles with making eye contact. His focus was doing what he was there to do. But he was polite and followed directions.
Temple Grandin stated "Smile and Succeed for Teens is a fantastic resource to help teens be successful at work".
This is for anyone with a youth transitioning from High School - most States are, or are becoming, "employment first" - which means individuals with disabilities need to show they are seeking employment (or are unemployable) to receive benefits.
More information about Kirt, and his books, can be found on his website. If you're a teacher or school administrator, he has released a course which can be found here.
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Website: https://www.buildwithtact.org/
Facebook: @tactkidsorg
Phone: 303-295-0163
This interview with Danny Combs is one I've been very excited about. T.A.C.T. is a one-of-a-kind program teaching individuals on the Spectrum of truly employable skills. The ages served range from 14 - 30, and although they are currently only located in Colorado the long-term vision is a network of affiliates around the country.
T.A.C.T.'s program is strength-based - they're not watering down the curriculum. The students are using real welding machines and sharp saws. Danny and I agree, individuals on the Spectrum are often well-suited for jobs in the trades - because electricity and hydraulics follow rules, once you understand the basics it makes sense and isn't going to change. T.A.C.T. is seeing a greater than 80% employment rate with their graduates - this is PHENOMENAL! And the average wage is $23/hour.
Danny and I talk about the concern parents have about losing social security or medical. Unions are still present in the trades, negotiating for salary and benefits. T.A.C.T. looks for partners willing to provide room for advancement - they are not satisfied with "just" getting someone a job. The interviews are held live as "working interviews" rather than sterile office Q & A.
There is a LOT to unpack in this video, I encourage you to watch it more than once. If you're interested in supporting Danny and his team please reach out directly. I believe we can use at least one T.A.C.T. affiliate in every state - as I said in the interview I think it could have a model similar to the Arc - with chapters around the country, all sharing the same mission.
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Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planningl-Needs-Navigator
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Bret Merson | The Bret Merson Team | Licensed in MD and PA
Office: (240) 309-6000 | Email: bretmerson@kw.com
For many of us buying a home can be incredibly stressful, especially if we're looking for a place for our child to live. If you're anything like me you would rather be doing almost anything else. Bret walks us through what the home buying process consists of and explains the importance of managing expectations and building a relationship.
Houses are often the biggest purchase we will make, so it's important we don't cut corners. Working with a realtor who takes the time to not only understand what you are looking for but also asks questions to ensure a clearer picture can help you think about "deal breakers" before you visit your first home (and may save you a few trips). For example, if you work from home or your child has a sound sensitivity, you may not want to live near railroad tracks or in an airport's flight path.
Two of the biggest mistakes buyers make are not getting pre-qualified and/or not getting a home inspection done. The pre-qualification will help you get an idea of how much home you can afford (and should therefore be looking at). Inspections can sometimes save you a LOT of time and money down the road; for example, uncovering your roof's shingles that need to be replaced or the existence of lead paint.
Take your time, make sure you are 100% sure the house you are buying is where you want to live. Don't let yourself be rushed by someone telling you there are other offers and you need to act fast; there will always be another house. In my personal/professional opinion it's better to be outbid than spend too much on a house you're not completely is right for you and/or your family.
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Website (Family Legal Advocacy Group) - https://flagfamilylaw.com/
Email - sarah@flagfamilylaw.com | Office - 410-884-0400
To find a collaboratively trained professional visit the IACP website:
https://www.collaborativepractice.com/
Nothing in this video is meant to be legal advice, Sarah Nesbitt & Family Legal Advocacy Group are unable to speak to any individual's particular circumstances. We encourage you to seek your own legal counsel should you have additional questions. Sarah practices law in MD, some of what she mentioned in this video may not be applicable in your State.
When looking for an attorney one should consider not only their experience and knowledge - which may be determined by visiting their website; but also by how the attorney makes you "feel". You should feel comfortable enough to be completely transparent with the attorney, and you should work with someone willing to challenge you when they feel it may be necessary.
There is a spectrum to divorce, from a very low-key kitchen table approach to the very litigious court battles. In the middle lies mediation and collaborative divorce. Although you may be able to complete most of the paperwork necessary to divorce, including a separation agreement; best practices are to have an attorney review the documents prior to signing to protect both parties.
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Website: https://accessiblecollege.com/ | Email: annie@accessiblecollege.com
Facebook: @AccessibleCollege | Twitter: @AcssCollege
Annie Tulkin explains why she started Accessible College, who she serves and when families & students should begin to engage with her. Contrary to what I (Eric) thought, you don't want to wait until your senior year of high school - there is a LOT of benefit to starting as early as your freshman year.
Planning to attend college when you have health conditions and/or physical disabilities requires a lot more than just thinking about what accommodations you should ask your college's disabilities services office for - you should also be thinking about the surrounding area and what is available. For example, if you have appointments with specialists every 6 months will you be able to continue these while you're in school? Will the local grocery stores have the foods you eat? Etc.
You can learn more about Annie on her website or any of her social media accounts.
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Email - rrubin@disabilitysupportsolutions.com
Phone - 301-523-5362
Rebecca Rubin, the founder of Disability Support Solutions, LLC, provides us with an overview of her services. Prior to starting Disability Support Solutions, Rebecca worked for service providers in Montgomery County, MD; serving the developmentally disabled population. Through her services, she realized how much unmet need parents had for answers and guidance - which led her to start her company.
Rebecca takes a collaborative approach with other professionals, like attorneys and financial advisors, to help her clients access the appropriate supports through Maryland's Department of Developmental Disabilities (DDA). This help comes in the form of working with families to complete applications, talking through what they're entitled to, applying for transitioning youth funding, and, in some cases, looking for services for a child with a mental health diagnosis.
Rebecca is very involved, she doesn't want to bounce her clients to another website or service if she can help it. She offers everyone a free 15 - 30 minute phone call to "triage" their situation and determine if it makes sense to work together. Rebecca's preference when working with her clients is to meet face-to-face, or given current Covid restrictions, using a virtual consultation. These meetings will be charged for, Rebecca is a "fee for services"; she doesn't work off a retainer.
Disability Support Solutions, LLC, is looking to expand its suite of services in the Fall of 2020 (dependent on the current health situation). The new services offered will be advocacy for adults receiving services. A Disability Support Solutions staff member will visit with individuals receiving services in their Day and Residential program at least once per month and report back to the individual's legal guardian and/or Trustee with an overview of how things are going and a checklist of what if anything needs to be addressed.
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Janet Price was College Living Experience's Assistant Vice President of Outreach and Admissions. She is also a published co-author of (2) books: "Take Control of Dyslexia and Other Reading Difficulties: The Ultimate Guide for Kids" and "Take Control of Asperger's Syndrome: The Official Strategy Guide for Teens w/ AS and NLD".
Since 1989, College Living Experience (CLE) has been providing transition support to young adults with Autism Spectrum Disorder, ADHD, and other varying exceptionalities. Their success as industry leaders stems from their commitment to remain focused on the potential of each individual they serve.
The CLE team is dedicated to providing the highest quality of individualized services across the areas of academics, career development, independent living, and social skills. It’s these wrap-around supports that help each student experience independence as they transition to college, pursue a career, and build a life away from home
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Web: https://www.autismgrownup.com/
Podcast: https://www.autismgrownup.com/agupodcast
Facebook: @autismgrownuptogether
Twitter: @hiautismgrownup
Meet Dr. Tara Regan, Founder and Executive Director of Autism Grown Up. Autism Grown Up provides the tools for everyone (autistic people, families, professionals, and more) to become better prepared for adulthood and navigate it together.
Dr. Tara Regan shares with viewers what led her to start Autism Grown Up. As the oldest of 4 children she has (2) younger brothers on the Spectrum - she saw first-hand the challenges they've encountered through the high school years and then into adulthood.
Autism Grown Up is meant to be a resource for families whose child is on the autism spectrum. There are many resources available, from free guides to individualized roadmaps (families pay for). Although based in North Carolina, Autism Grown Up's reach is national.
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support
Welcome to Special Need Navigator’s ABC’s of Disability Planning podcast. I’m your host Eric Jorgensen. I’m also the Founder of Special Needs Navigator. Like many of you, I’m a parent. In this episode, I am going to share what led me to start Special Needs Navigator and what you can expect from this podcast.
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Send in a voice message: https://anchor.fm/abcs-disability-planning/message Support this podcast: https://anchor.fm/abcs-disability-planning/support