Neuroversity: Recent Episodes
Jessica Kidwell
Neuroversity provides a space to educate ourselves and others about neurodiversity, to elevate the experiences of the neurodivergent, to be a source of support for members and allies of this community, and to help move the culture towards valuing and including diverse neurological conditions. This is a space where questions are welcomed and encouraged and honoring individual experiences is the number one rule.
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This week Jessica welcomes Meredith Rusu, the award-winning author of the Mighty Moods picture book series, which explores the ways children use larger-than-life creatures to express their big feelings. Meredith's latest book, "There's a Robot in My Socks," follows a young girl named Jamie as she navigates changes in her routine and the emotions that come with it. Meredith shares insights into the challenges and joys of writing children's books, the importance of connecting with young readers, and the role of educators in supporting children's emotional growth. Whether you're a parent, educator, or simply curious about the world of children's literature, this episode offers valuable perspectives and support for embracing the big feelings of all kids.
Come see Meredith at the Morristown Festival of Books!
10/19/24 110 South Street, Morristown NJ 07960
https://morristownbooks.org/
Find out more about Meredith Rusu
https://www.instagram.com/meredithrusuwrites/
https://meredithrusu.com/
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"There's a lot of open tabs in my brain. It's like a pinball going in every direction."
-Liz Schroeder
Join Jessica Kidwell on this heartfelt episode of Neuroversity as she chats with her good friend and neighbor, Liz Schroeder. Liz opens up about her journey from recognizing her daughter's ADHD to discovering her own diagnosis later in life.
Liz talks about the challenges of staying organized, dealing with hyperfocus, and the chaos that often comes with ADHD, as well as the life-changing impact of finding the right treatment. This honest conversation highlights the importance of support, understanding, and the courage to take care of yourself. Whether you're a parent, educator, or someone navigating your own neurodivergent path, this episode offers valuable insights and encouragement.
✍️ Episode References
ADHD Online
https://adhdonline.com/
How to ADHD by Jessica McCabe
https://www.howtoadhd.com/
Franklin's Finery on Etsy
https://www.etsy.com/shop/FranklinsFinery
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Join Jessica Kidwell on Neuroversity as she chats with Damian Malecki, an audio-visual artist from Sheffield, UK, known as Szopa. Damian talks about his late autism diagnosis after moving to the UK in 2017 and how it's shaped his life and music. He shares his journey from Poland, the impact of hyperfocus, his unique way of learning music, and balancing personal expression with audience appeal. Stick around to hear a track from his latest album, "The Prayer Book."
Follow Damian Malecki (Szopa) and his music:
- Bandcamp
- Instagram
- Spotify
Show notes created by https://headliner.app
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Season three has come to a close for Neuroversity.
What were some of the highlights from this season and what is coming up in season four?
Let's find out....
Do you have some ideas about what comes next?
Email me at
neuroversitypod@gmail.com
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After first learning about non verbal learning disorder (NVLD) during my episode on specific learning disorders (SLDs) I wanted to know more. I kept finding myself having a hard time distinguishing between autism and NVLD. So I knew I needed to bring on some experts.
The same names kept coming up over and over on NVLD resources: Dr. Jessica Broitman and Dr. John Davis and luckily they agreed to come on the show to help me understand NVLD much more deeply.
Guest Bios:
Jessica Broitman, Ph.D., (Co-editor) is the co-author of Nonverbal Learning Disabilities in Children: Bridging the Gap Between Science and Practice (2011). She is the President emeritus of the San Francisco Psychotherapy Research Group and Executive Director of its Clinic and Training Center. She frequently lectures on Weiss's Control Mastery Theory worldwide. Currently a psychoanalyst in private practice since 1980, she has worked with families who have learning-disabled children for more than 10 years. She is currently involved in several research projects concerning the treatment and understanding of NVLD and has a special interest in helping professionals and families understand and treat this disorder. She is available for consultations and can be reached at: drjess@comcast.net
John M. Davis, Ph.D., (Co-editor) is the co-author of Nonverbal Learning Disabilities in Children: Bridging the Gap Between Science and Practice (2011). He is currently a Professor at California State University, East Bay, and Chair of the Educational Psychology Department, where he teaches and supervises. He received his Ph.D. from the U.C. Berkeley School Psychology program and did clinical postdoctoral studies to become a licensed psychologist. He has a special interest in learning and developmental disorders having been the director of a school and clinic for students with learning disabilities for 13 years, which provided diagnostic and intervention services. His current clinical work is primarily with children and adults with learning disorders. His writing and research interests include articles and book chapters in the areas of mental health consultation, suicide/crisis intervention, and learning disorders. He is available for consultation and evaluations can be reached at: jack.davis@csueastbay.edu
Links for Resources:
More information about Dr. Broitman and Dr. Davis
The NVLD Project Website
Learning Disabilities Association of America
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Synesthesia is when your brain routes sensory information through multiple unrelated senses, causing you to experience more than one sense simultaneously. Some examples include tasting words or linking colors to numbers and letters. It’s not a medical condition, and not something to be cured, therefore it falls right under the neurodivergent umbrella. Today’s guest not only has synesthesia, she also just recently published a middle grade novel about it, which is fantastic and called The Color of Sound.
Emily Barth Isler is the author of AfterMath, an award-winning middle grade novel about grief, resilience, friendship, math, and mime. Comedian and activist Amy Schumer calls AfterMath "A gift to the culture," and author Judith Viorst pronounced it "pretty close to perfect." Emily's latest book, The Color of Sound, features a character who, like Emily, has synesthesia, and was published March 5, 2024. It has received starred reviews from both Publishers Weekly and School Library Journal . In 2026, her first picture book, Always Enough Love, will be published by Nancy Paulsen Books. She has a BA in Film Studies from Wesleyan University and lives in Los Angeles with her husband and their two children.
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This is the second of a two part series where I will introduce you to the most common types of specific learning disabilities or SLDs.
Part two is about Auditory Processing Disorder and Nonverbal Learning Disabilities
- Auditory processing disorder, APD for short, is when the brain has trouble interpreting sounds or language. It is a central nervous system process as opposed to a deficit within the ear’s ability to hear. APD impacts the brain’s ability to process sounds, which can cause confusion in words that are heard, mix similar words up, and make it especially difficult to distinguish sound in noisy environments.
- Non Verbal learning disorders, also known as NVLD or NLD, refers to a set of issues that are not solely associated with reading or writing and contribute to the difficulty for a child to learn. A child with NLD may have trouble understanding spatial concepts, but have good language skills. Non verbal learning disorders impair a person’s life skills and affects his or her social, academic, professional and emotional experiences. It is not currently a distinct diagnosis, so it is often misunderstood or missed altogether.
Part one was about Dysgraphia and Dyscalculia.
Listen to find out the signs for each and what types of supports and accomodations can help.
Resources for this episode:
General facts about learning disabilities
https://www.nichd.nih.gov/health/topics/factsheets/learningdisabilities
https://www.ldonline.org/getting-started/ld-basics/what-learning-disability
Link to Neuroversity Dyslexia Episode
https://www.neuroversitypod.com/episodes/episode/4ced2263/a-beginners-lesson-on-dyslexia-with-lorraine-hightower-certified-dyslexia-advocate-and-consultant
Auditory Processing Disorder resources:
https://www.asha.org/public/hearing/understanding-auditory-processing-disorders-in-children/
https://childmind.org/article/what-is-auditory-processing-disorder/
https://childmind.org/article/help-for-kids-with-auditory-processing-disorder/
Non verbal Learning Disorder Resources:
https://nvld.org/does-my-child-have-nvld/
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This is the first of a two part series where I will introduce you to the most common types of specific learning disabilities or SLDs.
Part one is about Dysgraphia and Dyscalculia.
- Dysgraphia is a learning disability that impacts writing abilities. And we’re not talking about just having poor handwriting, this goes well beyond that. Dysgraphia can also impair spelling, and getting thoughts onto paper.
- Dyscalculia is a learning disability that affects the part of your brain that processes number information and therefore impacts your ability to do math
Listen to find out the signs for each and what types of supports and accomodations can help.
Resources for this episode:
General facts about learning disabilities
https://www.nichd.nih.gov/health/topics/factsheets/learningdisabilities
https://www.ldonline.org/getting-started/ld-basics/what-learning-disability
Link to Neuroversity Dyslexia Episode
https://www.neuroversitypod.com/episodes/episode/4ced2263/a-beginners-lesson-on-dyslexia-with-lorraine-hightower-certified-dyslexia-advocate-and-consultant
Dysgraphia facts:
https://www.ldonline.org/ld-topics/writing-spelling/what-dysgraphia
https://childmind.org/article/understanding-dysgraphia/
https://www.occupationaltherapy.com/articles/dysgraphia-101-introduction-and-strategies-5327#:~:text=The%20five%20different%20types%20are,phonological%20dysgraphia%2C%20and%20lexical%20dysgraphia.
Dyscalculia Facts:
https://childmind.org/article/how-to-spot-dyscalculia/
https://my.clevelandclinic.org/health/diseases/23949-dyscalculia
https://www.additudemag.com/what-is-dyscalculia-overview-and-symptom-breakdown/
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"We don't need a handful of people doing inclusive education perfectly, we need millions of people doing it imperfectly." - Tim Villegas
According to the Oxford Dictionary, inclusion is the practice or policy of providing equal access to opportunities and resources for people who might otherwise be excluded or marginalized, such as those who have physical or intellectual disabilities and members of other minority groups. And specifically when it comes to education, inclusion is the act or practice of including students with disabilities with the general student population.
And yet, what does true inclusive education look like in a public school setting?
In this episode, Tim Villegas, the Director of Communications for the Maryland Coalition for Inclusive Education and founder of their podcast and blog, Think Inclusive, joins me to provide a beginning lesson on inclusion.You will learn
- The history of the IDEA
- How belief in inclusive education does not equate implementing inclusive education practices
- The difference between placement and belonging when talking about inclusive practices
- The importance of storytelling in moving the cultural acceptance of inclusion
Resources cited:
A summary of the evidence on inclusive education
The relationship between special education placement and high school outcomes
About Tim Villegas:
Tim Villegas is the Director of Communications for the Maryland Coalition for Inclusive Education and founder of their podcast and blog, Think Inclusive. He spent 16 years in public education, where he advocated for the full and authentic inclusion of learners with disabilities in general education, even those with more extensive support needs.
MCIE:
Website: https://www.mcie.org/
Email List: https://bit.ly/MCIE-Email-List
Facebook: https://www.facebook.com/ThinkInclusive/
Instagram: https://www.instagram.com/think_inclusive/
Twitter/X: https://twitter.com/think_inclusive
YouTube: https://www.youtube.com/c/ThinkinclusiveUs
LinkedIn: https://www.linkedin.com/company/inclusive-education/
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In this episode of Neuroversity, host Jessica Kidwell chats with Jessica McCabe, the brains behind the "How to ADHD" YouTube channel and author of "How to ADHD: An Insider's Guide to Working With Your Brain, Not Against It."
Jessica started her channel as a way to understand her own diagnosis and it quickly became apparent that the information she was learning was helpful to a whole lot of other people too -over 1.6 million other people!
In this episode we:
- Understand the unique challenges of ADHD in women and how to navigate them effectively.
- Gain practical tips for managing ADHD symptoms and improving overall well-being.
- Discover effective strategies for overcoming the challenges of time management with ADHD.
- Learn about the importance of self-diagnosis and how it can lead to better understanding and support.
- Explore the impact of dopamine and estrogen on ADHD symptoms and how to leverage this knowledge for better management.
About today's guest:
Jessica McCabe is the brain behind How to ADHD, a popular YouTube series that regularly releases easily accessible, research-based content providing a toolbox of strategies and deeply felt understanding and acceptance to ADHD brains, as well resources and education for the people who love them. The channel focuses on teaching people how to be themselves and work with their brains, rather than against them, and has garnered the support of over 1.6 million subscribers. Her new book, How to ADHD: An Insider's Guide to Working With Your Brain (Not Against It), came out in January 2024
Buy the book here!
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From glitter bottles to yoga cards: here are some tips to stimulate all EIGHT senses. Yes, I said eight.
Join me as I explore the world of sensory processing and share tips on creating a sensory-friendly classroom for preschool-aged children. Understanding the eight senses is crucial for enhancing the educational experience and well being for all children.
In this episode, you will be able to:
- Understand the benefits of sensory-friendly classrooms for preschoolers.
- Review the importance of the eight senses in early childhood development.
- Find engaging sensory activities for preschool-aged children.
Connect with me here:
- https://www.facebook.com/facebook.com/neuroversitypod
- www.neuroversitypod.com
- https://www.twitter.com/twitter.com/neuroversitypod
- https://www.youtube.com/youtube.com/
- https://www.youtube.com/youtube.com/
- https://www.linkedin.com/linkedin.com/company/neuroversity/
The resources mentioned in this episode are:
- Check out episodes 32, 33, and 34 in season one of Neuroversity from September 2022 to learn about sensory processing disorder and basic terminology related to sensory needs. https://www.neuroversitypod.com/episodes/episode/797698a5/sensory-processing-disorder-spd
- Statistics for US preschool enrollment: https://www.census.gov/library/stories/2023/08/preschool-enrollment.html#:~:text=The%20percentage%20of%203%2Dto,new%20U.S.%20Census%20Bureau%20report.
- Statistics for Norway preschool enrollment: https://www.statista.com/statistics/1312718/share-children-preschool-norway/#:~:text=In%20Norway%2C%20a%20high%20majority,reaching%2093.4%20percent%20in%202022.
- For a tutorial on making a glitter bottle: https://kidzcraftcorner.com/sensory-bottles/
- Discover 100 ideas for what to put in your sensory bin on https://happytoddlerplaytime.com/21-amazing-sensory-bins-for-toddlers-preschoolers/
- Listening Lotto Sounds on the Farm: https://www.amazon.com/Listening-Childrens-Auditory-Matching-Learning/dp/1933052392/ref=mp_s_a_1_9?crid=14B6M44T4DJ3I&keywords=listening+lotto&qid=1704320770&sprefix=listening+lotto%2Caps%2C80&sr=8-9
- Yoga Pretzels https://www.barefootbooks.com/yoga-pretzels-deck
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The digital world allows our children the opportunity to connect with people all over the place and all of a sudden they have a community. But how do we help our children find the line of privacy and how do we help ourselves find the line of privacy for our children? - Dr. Devorah Heitner
Do you want your neurodivergent child to feel empowered and stay safe while navigating the digital world? Join me as I welcome my guest, Devorah Heitner, who will be sharing valuable insights and strategies to empower neurodivergent children and ensure they have safer online experiences.
In this episode you can:
- Discover effective strategies for parenting in the digital age, ensuring our children's safety and well-being online.
- Understand the difference between monitoring and surveilling our children and which one builds more trust.
- Learn the importance of media literacy and how to help our children, and ourselves, to critically analyze digital content.
- Uncover practical tips for navigating the digital world with neurodivergent children.
- Understand the unique challenges and benefits of growing up in the digital era, equipping yourself with tools to support our children effectively.
Dr. Devorah Heitner is a leading authority in helping neurodivergent children navigate the digital landscape. With her books, Growing Up in Public: Coming of Age in a Digital World and Screenwise: Helping Kids Thrive and Survive in the Digital World, she has become a trusted resource for parents seeking practical advice. Her work has been featured in major publications like The New York Times, The Washington Post, The Wall Street Journal, and CNN Opinion, solidifying her credibility and expertise. With a deep understanding of neurodiversity and the challenges it presents in the digital realm, Dr. Heitner offers valuable insights and strategies for creating safer and more empowering online experiences for neurodivergent children. Parents can trust her guidance to help their children thrive in today's digital world.
Find more about Dr. Heitner here:
https://devorahheitner.com
https://www.washingtonpost.com/lifestyle/2019/06/10/my-mother-struggled-with-learning-disabilities-smartphone-would-have-helped-her-find-her-way/
https://www.washingtonpost.com/parenting/2023/09/15/teens-overshare-social-media/
Listen to her episode on We Should Talk About That:
https://www.westatpod.com/episodes/episode/7e49c6bc/we-should-talk-about-our-childrens-privacy-the-internet-and-growing-up-in-public-with-author-devorah-heitner-phd
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November 17th is a pretty important day in my household because it is my daughter Grace's birthday. And 17 years ago today it was Grace who started me on this journey of motherhood, and this journey of understanding neurodiversity more.
This episode originally aired in April 2022-Autism Acceptance Month, but in honor of Grace, I wanted to re-visit this conversation.
Because she is amazing.
Because I wish more people could get the chance to see her for the insightful, funny, beautiful, smart, and talented young lady she continues to become.
I’m overdue to get Grace BACK on the show for an update. A lot changes in 18 months, especially when you are a teenager. I’ll have to see if I can call in a few favors and maybe we’ll hear from her again in 2024.
But for now, I can't believe she's 17 today, on the 17th.
Her Golden Birthday.
Happy birthday Grace.
I love you to the moon and back.
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I don’t often see as much representation of Down Syndrome within the neurodivergent community, and since October is Down Syndrome Awareness month, I think that means now is the perfect time to expand our understanding.
So fellow curious minds, let’s get started.
In this episode we will learn:
- The three types of Down Syndrome
- The incidence of Down Syndrome
- Common expressions of Down Syndrome
- The medical conditions that have an increased risk of occurring in people with Down Syndrome
The episode concludes with a tribute to Daniel "Dan the Man" Wheat. An extraordinary man who left us way too soon. Thank you for being a friend Dan.❤️
Sources for more information and/or support:
The National Down Syndrome Society
Greta Harrison and the Born Fabulous Podcast
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On this episode, it's a return to the Word of the Week (WOW) Series.
In honor of ADHD Awareness Month, I'm focusing on Rejection Sensitive Dysphoria (RSD), which frequently co-occurs with ADHD.
- What is it?
- Why is it so frequently associated with ADHD?
- How does it impact individuals?
- How can you help?
Additional resources to find out more:
Dr. Megan Anna Neff Neurodivergent Insights
Dr. William Dodson, Psychiatrist and Adult ADHD Specialist
Cleveland Clinic information on RSD
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SEASON THREE PREMIERE!!
What if the key to unlocking the brilliance of an autistic child lies in focusing on their strengths rather than their challenges? This episode, Jessica is joined by Dr. Lynn Koegel, a leading figure in autism education, who has passionately championed a shift from the deficit model to a strengths-based approach in teaching autistic children. Her latest book, "Hidden Brilliance: Unlocking the Intelligence of Autism," co-authored with Claire LaZebnik, is a testament to this belief, bringing to light the potential within these unique children that often goes unrecognized.
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Summer school sessions are coming to an end, so why not re-visit a season one episode on “Back to School”?
As the dog days of summer wind down, it’s time for many of us to turn our attention on to three dreaded words, “back to school”, or maybe they’re you’re favorite three words! Who am I to judge?
One thing that is certain, it’s a transition, and transitions do not always go smoothly. Especially in my neurodivergent household. But regardless of the neurodivergence that is in your household, here are some helpful tips that could make back to school a little less rocky.
And be sure to let me know what works for you and/or your neurodivergent household. There are all sorts of minds and all sorts of ways to communicate. I'm sharing ours. Would love to hear what works for you!
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In this session of Neuroversity Summer School, host Jessica Kidwell reviews Holly Smale's 'Cassandra in Reverse'.
This book weaves the tale of Cassandra, a neurodivergent protagonist whose autism isn't her central focus, but a part of her multiple layers. From its take on autistic experiences to the author's own neurodiversity, this novel is a refreshing portrayal of the neurodivergent perspective.
This book is an essential read not just for the neurodivergent, but for anyone seeking a fresh, authentic perspective. You might have just discovered your next summer read!
About the Author:
Holly Smale has been writing stories since she was four years old: constructing her own books from cereal boxes and a lot of sticky-tape, then forcing family readers to give her glowing reviews by standing in front of the television.
Her path to publication included teen-modelling, factory-work, PR, teaching in Japan and a chaotic stint as the world's worst waitress, along with a BA in English Literature and an MA in Shakespeare from Bristol University. She uses neither of these qualifications on a daily basis, but still brings them up at parties.
Her debut children's novel, GEEK GIRL, became the No.1 Young Adult title in the UK and won the Waterstones YA Book Prize, selling 3.4 million books in 30 languages. It is currently in development with Netflix.
At the age of 39, Holly was diagnosed as both autistic and dyspraxic. She writes and speaks passionately about neurodiversity and a lot of random topics she's not really qualified to talk about yet does anyway.
https://www.hollysmale.com/
Buy the book here:
https://www.harpercollins.com/products/cassandra-in-reverse-holly-smale?variant=40900522541090
https://www.barnesandnoble.com/w/cassandra-in-reverse-holly-smale/1142412324
Non US Version:
https://www.amazon.com/Cassandra-Complex-Holly-Smale-ebook/dp/B0B3SXPRCV
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Do you ever find yourself stumbling over the distinction between person-first and identity-first language? I certainly do. That's why the first session of Neuroversity Summer School is about the nuances of these two linguistic approaches, particularly in the context of neurodiversity. I revisited an interview I had from Season 1 Episode 5 with political journalist and author, Eric Garcia, who shares his personal perspective on these matters, shedding light on the importance of individual preference in identifying oneself.
While some may argue that all this might sound too technical, let me assure you, it's a compelling conversation that challenges the way we think about autism and neurodiversity. I delve into the complexities of these two forms of language and their influences on how we perceive neurodivergence. The discussion is far from over, though. I encourage you to join in and share your thoughts on these language preferences. Remember, it's not about choosing sides, but understanding and respecting people's choices in how they want to be identified.
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BONUS CONTENT
It may be summer time for most of us, but the learning won't stop at Neuroversity!
Join me as we get "back to basics" at Neuroversity with a special set of "Summer School Sessions" to get us through July and August and help prevent the dreaded summer slide of learning.
Find out what types of episodes you can expect over the next two months AND how you can help guide the syllabus.
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Have you heard these myths about dyslexia?
- Myth #1: Dyslexia means you're not smart.
- Myth #2: Dyslexia is just a reading problem.
- Myth #3: Dyslexia is a childhood problem that you outgrow.
These myths can be damaging to individuals with dyslexia, causing low self-esteem and a lack of empowerment. The truth is, dyslexia affects reading, writing, and spelling, but it does not reflect intelligence. Furthermore, dyslexia is a lifelong condition that can also bring unique strengths and talents. Join memoirist Ellen Busch as she shares her personal journey with dyslexia and how she has turned it into her advantage.
In this episode, you will be able to:
- Learn the significant role supportive parents and communities play in the success and well-being of individuals with dyslexia.
- Uncover the unique thought processes of people with dyslexia and how they can leverage these strengths in various aspects of life.
- Understand the importance of lifelong personal development and investment for both individuals with dyslexia and society at large.
- Gain insights on overcoming challenges, boosting self-confidence, and investing in yourself.
Meet Ellen Busch, an inspiring memoirist whose lived experience with dyslexia has transformed her into a strong advocate for neurodiversity. In her memoir, Disempowered: How I Turned an Academic Death Sentence into My Life's Greatest Adventure, Ellen recounts the struggles she faced throughout her education and how she eventually earned not only a bachelor's degree in Health Science but also an MBA from Southern New Hampshire University. As a former EMT and adventurer with hobbies ranging from scuba diving to skiing, Ellen is determined to uplift other dyslexic individuals and help them embrace their unique strengths.
- Ellen Busch's memoir, (dis)Empowered How I Turned an Academic Death Sentence into My Life's Greatest Adventure https://www.amazon.com/dis-Empowered-Academic-Sentence-Adventure-ebook/dp/B0BZ5PG9NY/ref=sr_1_fkmr2_1?crid=5DNSK88VJGM0&keywords=ellen+busch+disempowered&qid=1680810170&sprefix=ellen+busch+disempowered%2Caps%2C343&sr=8-1-fkmr2
- The Dyslexic Advantage https://www.amazon.com/Dyslexic-Advantage-Revised-Updated-Unlocking/dp/0593472233/ref=sr_1_1?crid=32CTLKGCWM884&keywords=dyslexic+advantage+book&qid=1686273694&sprefix=dyslexic%2Caps%2C118&sr=8-1
- The anatomy coloring book mentioned in the episode: https://www.amazon.com/Anatomy-Coloring-Book-Wynn-Kapit/dp/0321832019/ref=sr_1_3?crid=3BVNUUGYPNDVC&keywords=anatomy+coloring+book&qid=1686273764&sprefix=anatomy%2Caps%2C107&sr=8-3
https://www.ellenbusch.com/
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Meet Dr. Casey Ehrlich, a mother and researcher delving into the little-known condition called Pathological Demand Avoidance (PDA). As she explains the complex nervous system response that triggers PDA, we're left wondering how many more people are suffering from this condition without proper recognition or support.
In this episode, you will be able to:
· Identify the distinct characteristics of PDA and ODD diagnoses.
· Grasp the importance of building secure, trust-filled environments for children with PDA.
· Understand the use of declarative language for improved PDA communication.
· Learn about Dr. Ehrlich's approaches for families raising PDA children.
About this week's guest:
Dr. Casey Ehrlich is a compassionate coach for parents raising children with Pathological Demand Avoidance (PDA). With a doctorate from the University of Wisconsin Madison, her background in social science and methodology brings a unique perspective to her work. Dr. Ehrlich has gained invaluable insights through her research on conflict, peace, and nonviolence in areas impacted by civil war in Colombia. As a co-founder of the PDA Parents Community and Podcast, she uses her expertise to help parents navigate the challenges of raising children with hypersensitive nervous systems, fight, flight, and freeze behaviors, and trauma. You can find more information about her programs at www.atpeaceparents.com
Resources mentioned in this episode:
PDA Society https://www.pdasociety.org.uk/
Tilt Parenting Podcast: https://tiltparenting.com/podcast-about-children-with-learning-disabilities/
Steve Silberman: https://www.stevesilberman.com/books/
Rachel Dorsey: https://dorseyslp.com/
Tiffany Hammond aka Fidgets and Fries https://www.instagram.com/fidgets.and.fries/
Dr. Mona Delahooke: https://monadelahooke.com/books/
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The public school system in the United States has historically been built to support the success of one type of student: a typically developing student with average intellectual ability. And, unfortunately, any student who falls outside of this type has a much harder time thriving in a system that is not built for them. Fairfax County Public Schools in Virginia, one of the largest school systems in the US, is trying to expand the success of more of their students by being one of the first systems in the country to create a neurodiversity specialist.
Join Jessica Kidwell as she talks with Kristen Haynor, Neurodiversity Specialist for Fairfax County Public Schools, about this new position and how she is trying to change the culture of this school system in hopes to create a system that truly celebrates all types of students.
Key Moments:
[00:00:18] Neurodiversity in Public Schools.
[00:08:36] Neurodivergent students and equity.
[00:17:32] Understanding neurodivergent behaviors.
[00:21:56] Supporting neurodiversity in education.
About Kristen Haynor:
Kristen Haynor is the Neurodiversity Specialist for Fairfax County Pubic Schools in the state of Virginia, which is one of the largest public school systems in the United States. Kristen, who is neurodivergent herself, is a graduate of the FCPS school system. After graduating from Madison High School, Kristen received a bachelors degree in Biology from the University of Mary Washington, her Master’s degree in Special Education from George Mason University, and is currently pursuing her PhD in International Education.
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In this episode of Neuroversity, host Jessica Kidwell interviews Emily Barth
Isler, a writer and sustainability beauty journalist who has obsessive compulsive disorder (OCD) and synesthesia. They discuss Emily's experience with OCD before and after diagnosis, how she structures her life to live in partnership with OCD, and her neurodivergent identity under the neurodiversity umbrella. It is the second of two episodes featuring Emily's insights.
Highlights:
[00:01:59] Understanding Neurodivergence.
[00:03:58] OCD and creativity.
[00:08:37] Writing about painful experiences.
[00:12:15] OCD and anxiety coexisting.
[00:18:38] Living with OCD.
[00:22:08] Neurodiversity in younger generations.
[00:25:06] OCD as a gift.
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In this episode of Neuroversity, Jessica Kidwell interviews Emily Barth Isler, a former child actress and writer for YA short stories and plays as well as a sustainable beauty journalist. Emily also has OCD and synesthesia. In this first of a two episode conversation, Emily and Jessica discuss Emily's award-winning debut novel Aftermath which explores themes of loss, mental health, gun control and neurodiversity. They also discuss the inclusion of neurodivergent characters in media, Emily's journey of writing the novel, and her experience talking to kids affected by the book.
Key moments:
00:10:03 Starting conversations on trauma.
00:16:29 Parents cannot protect kids from news.
00:21:04 The character Lucy as a neurodivergent archetype.
00:24:01 How diversity benefits all audiences.
More about Emily Barth Isler:
A writer, Middle Grade Fiction Author, and sustainability/beauty journalist, Emily is a former child actress who has performed all over the world in theatre, film, and TV. She spent several years in New York writing episodic television for the web with Emmy-award winning PhoebeTV, and a lifetime writing YA short stories and plays.
Emily holds a B.A. in Film Studies from Wesleyan University, where she took all the creative writing classes she could find, including one which was taught by none other than Lemony Snicket himself! Her debut novel, AfterMath, came out in September 2021, and her work as a Beauty Editor/Writer can be seen online in many publications. She lives in Los Angeles with her husband and two children.
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It’s April, which means Autism Awareness Month. And April 2nd is World Autism Awareness Day. So I thought it would be a great time to re-visit episode 22 from Season 1, where I talk ALL about the complicated feelings this month can bring. There is a lot of background and history surrounding this month-and this episode was my attempt to learn a little about at it all.
On this episode you will learn:
- The history of Autism Awareness Month and World Autism Awareness Day
- Reasons why Autism Speaks does not necessarily "speak" for the majority of autistic voices
- Ways you can better support the goals of autism awareness month
- Why acceptance is more important than awareness
Links to sources cited in this episode:
UN World Autism Awareness Day 2023
https://www.un.org/en/observances/autism-day
Moving from awareness to acceptance article by Emily Willingham
https://www.forbes.com/sites/emilywillingham/2017/04/01/no-foolin-forget-about-autism-awareness-and-lighting-up-blue/?sh=3a1308214aac
History on Autism Awareness Month and Autism Speaks
https://www.verywellhealth.com/should-you-celebrate-autism-awareness-month-4134347
Autism Speaks Board of Directors
https://www.autismspeaks.org/board-directors
Autistic Self Advocacy Network (ASAN) link to Autism Acceptance Month:
https://autismacceptance.com
The Autism Society:
https://autismsociety.org/who-we-are/
Thinking Person’s Guide to Autism:
https://thinkingautismguide.com/
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Welcome to Season 2!
Today we are talking about "burnout". Specifically autistic burnout, and how it differs from neurotypical understanding of burnout.
Joining me is Dr. Megan Anna Neff, a clinical psychologist working in Oregon. She specializes in working with neurodivergent adults and provides neurodivergent affirming assessments. And she has a special interest in autistic burnout.
About the Guest:
Dr. Megan Anna Neff is a clinical psychologist working in Oregon. She specializesin working with neurodivergent adults and provides neurodivergent affirming assessments. They are a late in life diagnosed Autistic-ADHDer who is passionate about educating the mental health field on non-stereotypical presentations of autism and ADHD. Neff has co-authored two books, and published in several peer-reviewed psychological journals. They have a passion for research and for translating research into visualization which she provides on her website, Instagram and monthly workbooks. You can also find their work at www.neurodivergentinsights.com or on instagram (@Neurodivergent_Insights).
Resources cited in the episode:
Raymaker et al research on Autistic Burnout:
“Having All of Your
Internal Resources Exhausted Beyond Measure and Being
Left with No Clean-Up Crew: Defining Autistic Burnout."
https://www.liebertpub.com/doi/full/10.1089/aut.2019.0079
Free PDFs available on Neurodivergent Insights site
WHAT IS QUEER
WHAT IS QUEER is a podcast that explores various topics and issues in our LGBTQIA+...
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What better way to celebrate our first year than to revisit with our favorite guests! And we open with my two favorite guests EVER: Grace and Charlie Kidwell. But, I'm not just revisiting with the two guests that live with me, we hear from many of our incredible season one guests! And we also heard from listeners about what should be covered on season two.
Come join us for a look back on the first season of Neuroversity!
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Neuroversity is celebrating ONE YEAR of elevating neurodivergent voices and experiences-and I think that is a call to celebrate! And what better way to celebrate than with a special birthday celebration.
So coming soon, on 11/25/22, we will do just that!
I will revisit some past guests, talk about episodes and topics I loved, as well as topics I hope to cover more in the next season.
And I want YOU to be a part of the festivities. You can either fill out the google form linked below, OR email me a voice note of your thoughts to neuroversitypod@gmail.com and you may just end up a part of the show!
I want to hear from YOU!!
https://forms.gle/tGrCHYPybMpqerWd8
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Whether you are finding this in October, for ADHD Awareness Month, or just coming across this episode now; consider this a great place to start in gaining an introduction to ADHD.
In this episode you will learn:
- What is ADHD
- The prevalence of ADHD in the US and among boys vs girls
- The three type of ADHD
- The most common behaviors found within each type
- How someone gets diagnosed
- Treatment options
**Neuroversity is not a place that provides diagnoses, just a space to provide information and support.
The resources cited in this episode are:
https://chadd.org/about-adhd/overview/
https://chadd.org/for-adults/overview/
https://www.cdc.gov/ncbddd/adhd/data.html
https://chadd.org/wp-content/uploads/2020/04/Finding-a-Professional-to-Diagnose-Treat-ADHD_QF.pdf
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What do you think of when you hear the word "masking"?
Since it's October, perhaps your thoughts go to Halloween and costumes?
Or perhaps, if you are into self-care, you may think of skin care?
Or in our post COVID world, maybe you think of face masks?
But none of those are the masking we are talking about in Neuroversity this week.
In psychology, masking refers to changing one’s behavior or natural personality to conform to social pressures or expectations. And for many marginalized communities, masking can be necessary for survival.
Guided by the work of Devon Price, PhD and their book “Unmasking Autism: Discovering the New Faces of Neurodiversity”, Jessica Kidwell takes a look at the types of masking done by neurodivergent individuals and the harmful impacts that it can have
Resources used in this episode:
Devon Price, PhD interview on NPR
https://www.npr.org/2022/04/14/1092869514/unmasking-autism-more-inclusive-world
Massachusetts General Hospital study:
"Why do those with autism avoid eye contact? Imaging studies reveal overactivation of subcortical brain structures in response to direct gaze." ScienceDaily
ScienceDaily, 15 June 2017.
https://www.sciencedaily.com/releases/2017/06/170615213252.htm
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Saira Nagda is a high school senior, looking towards her future and making a difference in her community.
She is a captain of her Varsity Cross Country and Track Team.
She is on the leadership board for her school's One Love Club, which educates students on what are healthy and unhealthy relationships.
She founded the non-profit organization, RePlay-It, which collects gently used and new sports equipment and distributes it to children globally to encourage more involvement of sport, especially for young girls.
And she has Tourette Syndrome. Diagnosed at age 7, Saira now serves as a Youth Ambassador for the Tourette Association of America, where she helps educate others on, and dispel the myths about Tourette Syndrome.
I'm so grateful to Saira for sitting down with me to have a conversation about Tourette Syndrome; what it is, what it isn't, and how it has helped form her into the activated and incredible young woman she is today.
Support the show:
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*Disclaimer: if your child has been diagnosed with SPD, or you suspect they have SPD, the best place to begin with any type of diagnostic or treatment plans is with an Occupational Therapist trained in sensory integration. I am not an OT, and the information in this podcast series should not be used in any way to diagnose you or your child.
In part three of our 3 part series on SPD, the focus today will be on developing a well rounded sensory diet and where the research on SPD is headed. You will learn:
- A review of the types of SPD
- A Sensory avoider
- A Sensory straggler
- A Sensory seeker
- A Sensory jumbler
- A Sensory slumper
- A Sensory fumbler
- A review of the eight senses
- Sight
- Sound
- Smell
- Taste
- Touch
- Vestibular
- Proprioceptive
- Interoceptive
- Definition of and examples of a sensory diet
- The future direction of SPD research
Support the show by subscribing to the website!
https://www.neuroversitypod.com/
Building a Sensory Diet:
https://www.theottoolbox.com/what-is-sensory-diet/
What's Next in SPD Research:
https://neurodevelopment.ucsf.edu/neurodevelopment
https://sensoryhealth.org/basic/our-research-priorities
https://sensoryhealth.org/basic/co-morbidity
In part two of our series on SPD, you will learn about:
- The three types of SPD
- The difference between under and overstimulation
- What is an "avoider" a "disregarder" and a "seeker"
- Dozens of sensory processing examples
- What to do if you suspect you or your child has SPD
- Resources to learn more about SPD
Support the show by subscribing to the website!
https://www.neuroversitypod.com/
Learn more about SPD:
https://sensoryhealth.org/
https://out-of-sync-child.com/
Learn about the sub-types of SPD:
https://sensoryhealth.org/basic/subtypes-of-spd
The Debate Over Sensory Processing Disorder:
https://childmind.org/article/the-debate-over-sensory-processing/
Today starts a special weekly series I will be doing on SPD - Sensory Processing Disorder.
- What is it?
- What are the symptoms?
- What do you DO for it?
- What exactly is a sensory diet?
- What does the future research on SPD look like
This is an absolutely huge topic and there is more and more research and discoveries happening with sensory processing every single day. That’s why I’m going to break it up into parts.
On today's episode, I introduce what is SPD as well as the EIGHT senses of our body. Yes, I said eight.
Additional episodes will look at:
- The three types of SPD
- How our senses can be impacted by each type
- Define a sensory diet
- Where the research is headed
Today's episode featured information from:
Carol Stock Kranowitz
https://out-of-sync-child.com/
The Interoceptive System
https://www.spdstar.org/sites/default/files/file-attachments/Interoception_Info_Sheet_7_17_0.pdf
Join the mailing list and support the show!
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As the dog days of summer wind down, it’s time for many of us to turn our attention on to three dreaded words, “back to school”, or maybe they’re you’re favorite three words! Who am I to judge?
One thing that is certain, it’s a transition, and transitions do not always go smoothly. Especially in my neurodivergent household. But regardless of the neurodivergence that is in your household, here are some helpful tips that could make back to school a little less rocky.
And be sure to let me know what works for you and/or your neurodivergent household. There are all sorts of minds and all sorts of ways to communicate. I'm sharing ours. Would love to hear what works for you!
Contact me at
neuroversitypod@gmail.com
Turnabout is fair play they say, so.....
Join me as I have a conversation with the most important male voice you will ever hear on this podcast, my son Charlie.
The day I recorded the Neuroversity episode with Grace, we came home from the studio and Charlie said,
"Mom, when will you interview me?"
And, in my mind, I thought to myself
"He's not neurodivergent, does his voice and experience need to be elevated?"
I mean, talk about a small umbrella!
Charlie shares with us his experience with anxiety and depression, why he thinks mental health needs to be talked about more, and how he believes that his brain is neurodivergent. He also introduces us to a brand new word, Danxiety.
After hearing from Charlie, I believe, neurodivergent umbrellas will open wider and see that the more we include, the better for us all.
About the Guest:
Charlie Kidwell is a 12 year old 7th grader from Alexandria, VA. He has tried every sport there is and proclaims himself mediocre at all of them, loves gaming with his friends, started his own glass recycling business, and wants to learn more about the brain because, "it is cool".
It’s time for another entry into the Word of the Week series-where I pick a word well known or often used among those in the neurodiversity community, and try to understand it more in the context of my world in hopes to build a bridge of understanding to a broader community.
This week we will learn:
- What is hyperlexia
- The three types of hyperlexia
- The prevalence of hyperlexia in the neurodivergent population
Resources used in this episode and to learn more about hyperlexia:
https://www.ssmhealth.com/treffert-center/conditions-treatments/hyperlexia
https://www.webmd.com/children/what-is-hyperlexia
https://www.youtube.com/watch?v=0thSo3U0U7A
https://neuroclastic.com/autistic-skill-sets/
Today we are talking about ADHD.
Specifically women and ADHD and why so many are not finding out they have ADHD until they are 30, 40, or 50 plus years old.
With the help of Instagram creator Trina Hayes, a late diagnosed member of "Lady ADHD", I learn more about what ADHD can look like in women. From time blindness to low self esteem, we take a look at why ADHD is more than hyper little boys.
More about Trina Hayes:Trina started My Lady ADHD as a love letter to all the women like her who waited until later in life to get an ADHD diagnosis. Her hope is to build a community of women who understand and feel empowered by their ADHD. As a digital creator, she makes incredibly informative and entertaining content on social media. She also offers coaching and mentorship services to newly diagnosed ADHD-ers who need another ADHD woman to lean on and who truly understands the intricacies of the symptoms and how life can be impacted and ultimately better managed. She is always quick to put out the disclaimer that she is “NOT A DOCTOR”, so I will re-emphasize that here. She is an ADHD woman looking to help and connect with other ADHD women. You can follow Trina on :
Instagram: @myladyADHD
Website: https://www.myladyadhd.com/
We are going back to basics, an introductory 101 level course, if you will, and taking an in-depth look at what it means to be neurodivergent. The definition as well as who gets to decide if someone is, in fact, neurodivergent. Because, much like many things, there is not one definitive answer on this. Depending on who you ask, neurodivergence can look many ways. Which has led me to the question:
- what exactly is a neurodivergent brain?
- who gets to gatekeep whether an individual “gets” to claim themselves as neurodivergent?
The work of Kassiane Asasumasu, a multiply neurodivergent neurodiversity activist, who coined the terms “Neurodivergent” and “neurodivergence” in 2000 and Dr. Nick Walker, an autistic writer and educator that is best known for her foundational work on the neurodiversity paradigm and the development of the term “neuroqueer” helped inform this episode. You can find more information about them here:
Kassiane Asasumasu quote:
https://sherlocksflataffect.tumblr.com/post/121295972384/psa-from-the-actual-coiner-of-neurodivergent
Research and work by Dr. Nick Walker:
https://neuroqueer.com/neurodiversity-terms-and-definitions/
https://neuroqueer.com/essays/
To learn more about Neuroversity, please visit our website:
https://www.neuroversitypod.com/
Today we are talking about neurodivergence in the black community and the intersection of race and disability. And when it comes to breaking down barriers related to autism in the black community, no one does it with more passion and clarity than Maria Davis-Pierre, a licensed mental health counselor, autism awareness advocate and founder of Autism in Black.
As the parent of two autistic children, and being autistic herself, Maria understands firsthand the isolation, shame and stigma that often accompanies an autism diagnosis. Armed with that knowledge, she uses her professional expertise to connect with and empower Black parents of autistic children. Through Autism in Black, she also provides essential training to organizations so they can more effectively serve the Black disability community. And today, she is doing that for me and for the listening audience.
Resources mentioned in this episode:
Autism in Black 2022 Conference
June 24-26 2022
https://www.autisminblack.org/conference22/?afmc=25
Autism in Black
https://www.autisminblack.org/
Supernova Momma
https://supernovamomma.com/
Asiatu, Intersectional Autistic Coach
https://www.asiatucoach.com/
Morenike Giwa Onaiwu
https://morenikego.com/
Joy F Johnson
https://joyfjohnson.com/
For more information on Neuroversity, please check out our website:
https://www.neuroversitypod.com/
Today's episode is about ADHD. Specifically though about ADHD in women, and with a later diagnosis.
We talk all about:
- diagnosis without context
- medical vs self diagnosis
- masking vs mirroring
- rejection sensitivity dysphoria
- prevalence of queerness in the neurodivergent
And so much more! It's a great primer on ADHD and I'm looking forward to learning more.
More about Lisa Hicks:
Lisa is the owner of Lisa Hicks Coaching and has her Honours Bachelor of Arts in Psychology from the University of Western Ontario and is a certified Spiritual Life Coach. She is a queer, quirky, neurodivergent, Mom of 2 and lives with her kids and husband of 10 years in Ontario.
She has a team of 3 incredible coaches on her team, each with unique specialties and plans to add many more.
Coaching Specializations:
- ADHD and Neurodivergence
- Sensory and Emotional Disregulation
- Negative and Intrustive Thoughts
- Parents struggling to navigate life with children
Lisa was diagnosed with ADHD when she was 18 years old but was never told what that meant. It wasn't until she was 34 and saw a relatable TikTok video that had her finally understanding why her brain worked the way it did.
Website: https://www.lisa-hicks.com/
Instagram: https://www.instagram.com/thatlisahicks/
In this episode, Jessica speaks with Mari Cerda, BCBA, who is the co-founder of The Lighthouse Learning Center and The Leap Institute. What follows is an important and nuanced conversation about:
- What IS ABA?
- What is the history of ABA within the autistic community and the field of Behavioral Analysis?
- How does the concept of "duality" negatively impact our culture, and more specifically the autistic community?
- How can we increase our own "cultural humility"?
- What does the term "neurobilingual" mean?
- Does the autistic community need to take a hard look at their own ableism within the community?
About Mari Cerda:
Mari Cerda, an indigenous-Mestiza woman, wife, mom of three, autist, and board certified behavior analyst. She is the co-founder of The LEAP Institute (https://www.leapaba.org/ ), a non profit whose mission is to increase equitable access for marginalized groups entering the field of ABA through quality supervision and support. She is also the founder of The Lighthouse Learning Center (https://www.lighthouselearning.org/ ), a center dedicated to providing a variety of support and services to children and families in the West Texas area.
**Autistic Community Content Creators Mentioned in the show:
PLEASE FOLLOW AND SUPPORT THEIR WORK
Tiffany Hammond**
Writer
IG: @Fidgets.and.Fries
Lauren Melissa Ellzey
Autistic Self Advocate
IG: @autienelle
Camille MorganPodcaster
Love, Sex, and Applied Behavioral Analysis
IG: @lovesexaba
Join me as I have a conversation with the most important autistic voice you will ever hear on this podcast, my daughter Grace.
This is not an inspirational story. This is not a sad story.
This is Grace's story.
How she remembers finding out she's autistic. How she sees herself as a neurodivergent teenager. How she feels about this podcast, and what she is looking forward to in her future.
One story.
One autistic experience.
And I've never been more proud to put it out into the world. Because one story can change everything. Just like she has forever changed me.
About the Guest:
Grace Kidwell is a 15 year old freshman from Alexandria, VA. She is a member of her school dance team, loves to read, wishes she could travel more, and adores her dog Derby.
Depends on who is doing the celebrating.
it’s April, which means Autism Awareness Month. And April 2nd is World Autism Awareness Day. You’ll see landmarks like the White House and the Empire State building lighting it up blue. And Neurodiversity trainings will be occurring all month long in businesses and schools promoting neurodivergent affirming practices. And one would think, “this is a good thing”, right? Well, it’s definitely a thing. A complicated thing. There is a lot of background and history surrounding this month-and this seems like a great time to learn a little about at it all.
On this episode you will learn:
- The history of Autism Awareness Month and World Autism Awareness Day
- Reasons why Autism Speaks does not necessarily "speak" for the majority of autistic voices
- Ways you can better support the goals of autism awareness month
- Why acceptance is more important than awareness
If you like what Neuroversity is doing, consider supporting the podcast by giving us a review on Apple or becoming a Patreon supporter. Details on both can be found on our website at
https://www.neuroversitypod.com/resources
Links to sources cited in this episode:
UN statement on World Autism Awareness Day 2022
https://www.un.org/en/observances/autism-day/message
Moving from awareness to acceptance article by Emily Willingham
https://www.forbes.com/sites/emilywillingham/2017/04/01/no-foolin-forget-about-autism-awareness-and-lighting-up-blue/?sh=3a1308214aac
History on Autism Awareness Month and Autism Speaks
https://www.verywellhealth.com/should-you-celebrate-autism-awareness-month-4134347
Autism Speaks Board of Directors
https://www.autismspeaks.org/board-directors
Autistic Self Advocacy Network (ASAN) link to Autism Acceptance Month:
https://autismacceptance.com
The Autism Society:
https://autismsociety.org/who-we-are/
Thinking Person’s Guide to Autism:
https://thinkingautismguide.com/
For the first time in almost 20 years, the CDC has updated their child development milestone guidelines. In cooperation with the American Academy of Pediatrics, a group of eight subject matter experts recommended changes to these guidelines. So why is the American Speech Language Hearing Association and most of their 211,000 association professionals concerned?
Well curious minds, listen to find out!
Resources used for this episode:
https://www.cdc.gov/ncbddd/actearly/milestones/index.html
https://www.theinformedslp.com/review/no-sl-ps-were-in-the-room-where-it-happened
https://www.cdc.gov/ncbddd/childdevelopment/screening.html
https://www.asha.org/students/planning-your-education-in-csd/
https://leader.pubs.asha.org/do/10.1044/2022-0225-cdc-developmental-milestone-concerns/full/
https://www.asha.org/practice/Frequently-Asked-Questions-CDC-and-AAP-Developmental-Milestones/#Q2
Support the show:
https://www.patreon.com/neuroversity
Podcast website:
https://www.neuroversitypod.com/
So many incredible insights during this conversation with Dr. Megan Anna Neff, PsyD.
About Dr. Neff:
Dr. Megan Anna Neff has a doctorate in clinical psychology and is currently a psychology
resident in private practice where she specializes in working with neurodivergent adults and
provides neurodivergent affirming assessments. They are a parent to two neurodivergent
children and in an inter-neuro partnership. She is a late in life diagnosed autistic-ADHDer who is passionate about educating the mental health field on non-stereotypical presentations of autism and ADHD.
Neff has co-authored two books, published in several peer-reviewed psychological journals and serves as a peer-reviewer for APA journals. She has a passion for research and for translating research into visualizations. You can also find their work on Instagram
(@Neurodivergent_Insights) where they turn peer-reviewed academic articles into visual pixels one post at a time.
Resources cited in this episode:
Dr. Neff's work on social anxiety and autism
https://neurodivergentinsights.com/misdiagnosis-monday/social-anxiety-or-autism
Assessments available on-line
https://embrace-autism.com/
Work by Devon Price
https://devonprice.medium.com/
Female Autistic Phenotype
https://link.springer.com/article/10.1007/s40489-020-00197-9
I’m doing a little something different this week. Monday is the last day in February, and whether it is a 28-day February or a 29-day February, the last day is recognized world wide as Rare Disease Day, the globally-coordinated movement on rare diseases, focused on working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. A disease is considered rare if it affects fewer than one in 2000 people. Collectively though, there are 7,000 rare diseases that impact over 300 million people globally.
https://www.rarediseaseday.org/
And share Neuroversity-we need you to help this little podcast that could!
https://www.neuroversitypod.com/episodes
So welcome to an encore presentation of "Introduction to PHTS."
You just never know where a slice of pizza will take you.
For me, and today's guest, it was the beginning of a beautiful friendship.
Join me as I introduce you to one of the best humans around, Carla McDonald. This is a conversation between two moms about parenting, advocating, learning, laughing, and more.
Carla's younger son is autistic and also has PTEN Hamartoma Tumor syndrome (PHTS), which is a rare genetic condition that causes an increased risk for certain cancers, benign growths, and neurodevelopmental disorders. As many as 20% of patients with PHTS are also autistic. By talking about this rare genetic condition, Carla hopes to spread awareness and knowledge so that children (and adults) can get the screenings needed to help improve their well being.
For more information about PHTS visit:
https://ptenfoundation.org/
Another episode in the Word of the Week series!
This week?
Alexithymia
Other than waking up my smart speaker every single time I said it in this episode, what is it? And how does it relate to neurodivergent individuals, if at all?
Resources cited this week:
Dr. Nick Walker
https://neuroqueer.com/neurodiversity-terms-and-definitions/
Examples given of Alexithymic traits
https://blogs.scientificamerican.com/mind-guest-blog/the-emotional-blindness-of-alexithymia/
Description and usage of GASF-8
https://www.spectrumnews.org/opinion/measuring-alexithymia-in-autistic-people/
This one is about your host. Yep, even after she said she wouldn't make this podcast about her.
It's the absolutely true story of Jessica's struggle with elephants and fear and how she saved herself from being stuck in a locked seatbelt.
(With an assist from @autismcafe, Tobe Nwigwe, and herself)
Eileen Lamb
https://theautismcafe.com
IG and Twitter:
@theautismcafe
Facebook:
https://www.facebook.com/theautismcafe
Tobe Nwigwe
https://www.tobenwigwe.com
"Unfollow Me"
https://www.youtube.com/watch?v=KcGd2Es8N7U
The next installment of the Word of the Week series is out!
WOW for this time is Dopamine
What is it? Where does it come from? Why do we need it? What the heck does it have to do with neurodiversity?
Find out all this and how Jessica does her research in this episode.
Resources Used:
https://www.sciencenewsforstudents.org/article/explainer-what-dopamine
https://kids.kiddle.co/Dopamine
Hat Tip to Billy Joy
"Me and Mrs. Jones"
https://www.youtube.com/watch?v=NYOQDnWFXYI
Support this podcast with a review on Apple podcasts or check out the website for other ways to show the love.
https://www.neuroversitypod.com/
You just never know where a slice of pizza will take you.
For me, and today's guest, it was the beginning of a beautiful friendship.
Join me as I introduce you to one of the best humans around, Carla McDonald. This is a conversation between two moms about parenting, advocating, learning, laughing, and more.
Carla's younger son is autistic and also has PTEN Hamartoma Tumor syndrome (PHTS), which is a rare genetic condition that causes an increased risk for certain cancers, benign growths, and neurodevelopmental disorders. As many as 20% of patients with PHTS are also autistic. By talking about this rare genetic condition, Carla hopes to spread awareness and knowledge so that children (and adults) can get the screenings needed to help improve their well being.
For more information about PHTS visit:
https://ptenfoundation.org/
For more information, or to support the show:
https://www.neuroversitypod.com/
Is he neurodivergent?
Does it matter?
Is it possible for a Disney character to represent SO much?
Uh, yes.
Join Jessica for an introductory lesson on Obsessive Compulsive Disorder and how the portrayal of Bruno in the latest Disney movie, Encanto, shines an important light on the representation of neurodiversity in pop culture.
Resources mentioned in this episode:
https://www.mic.com/identity/bruno-encanto-mental-illness
https://iocdf.org/
Get ready class, we're moving up to an intermediate level course on brain development and genetics this week at Neuroversity.
In my conversation with Dr. Kevin Pelphrey, the Harrison-Wood Jefferson Scholars Foundation Professor of Neurology at the University of Virginia Brain Institute, I begin to try and understand the history of the medical and research fields study of autism. Dr. Pelphrey's experience as both a scientist and a parent to five children, two of which are autistic, positions him in the field of brain science as a bit of a "unicorn". A doctor who believes and values the medical model of research and the scientific method as well as curious and open to the neurodiversity model of understanding neurodivergence.
This conversation is both very technical and highly personal as we look at the complex and intriguing reasons autism "shows up" in boys and girls. I promise, this episode will expand your thinking, leave you curious about what the future holds, and probably confuse you just a little. But isn't that kind of the entire point of Neuroversity?
To find out more about Dr. Pelphrey and to read his studies:
https://braininstitute.virginia.edu/kevin-pelphrey
https://www.scientificamerican.com/article/autism-it-s-different-in-girls/
https://newsroom.uvahealth.com/2021/04/20/autism-develops-differently-in-girls-than-boys-new-research-suggests/
https://www.spectrumnews.org/news/profiles/kevin-pelphrey-charting-the-course-of-the-social-brain/
To find out more about Neuroversity:
https://www.neuroversitypod.com/
In this episode of Neuroversity, Jessica talks with attorney, author, artist and advocate Haley Moss. Diagnosed as autistic when she was three years old, Haley is passionate about disability inclusion and neurodiversity. In our conversation today, we focus on her latest book, "Great Minds Think Differently: Neurodiversity for Lawyers and Other Professionals. We discuss the idea of universal design and accommodations and why they are absolutely not just for the disabled. We also try to breakdown the stereotype that neurodivergent professionals can only work in STEM.
About Haley Moss:
Haley Moss is a lawyer, neurodiversity expert, and the author of four books that guide
individuals through professional and personal challenges. She is a consultant to top corporations and nonprofits that seek her guidance in creating a diverse workplace, and a sought-after commentator on disability rights issues. The first openly autistic lawyer in Florida, Haley’s books include “Great Minds Think Differently: Neurodiversity for Lawyers and Other Professionals (ABA Book Publishing; June 2021) and “The Young Autistic Adult’s Independence Handbook”(Jessica Kingsley Publishers; November 2021). Her articles have appeared in outlets including the Washington Post, Teen Vogue, and Fast Company.
For more information on Haley visit:
https://haleymoss.com/
Time to introduce a new series that will be added to the rotation for Neuroversity in 2022. Word of the Week. This will be a regularly re-occuring episode where we focus on a new word or concept that impacts neurodiverse individuals, but can also be found in anyone.
First up, Misophonia, which literally means "hatred of sound"
What is it? What is it not? And how does it impact neurodiverse and neurotypical individuals?
While citing from the following resources, Jessica tries to make sense of the trouble with some sounds.
https://www.healthline.com/health/adhd/misophonia-and-adhd#The-link-between-ADHD-and-hypersensitivity
https://edgefoundation.org/small-sounds-strong-reaction-misophonia-and-adhd/
Wouldn't it be wonderful if there was a curriculum designed to meet children where they are, recognize their strengths, and adjust as necessary to meet the goals desired by the child and the family?
What if educators received adequate training on a non-medical model for helping neurodiverse students reach their full potential, not the imposed expectations of an education built for neurotypicals?
I feel very Lennon saying this, but, imagine?
Meet Dr. Katrina Martin, the founder of Bridges Learning System. After years of working within and on behalf of the education system for disabled youth, Katrina has a core belief that true education reform is urgently needed. She contends that now is the time to remove the antiquated paradigm of educating autistic and neurodivergent students through a medical model of disability. And in its place, she is building a social justice model of education, supporting strengths and teaching the benefits and values inherent in diverse ways of thinking.
Dr. Martin founded Bridges Learning System with the belief that by bringing together the autistic community and those who work on their behalf we can change the world, one student, one family, and one educator at a time.
Guess we don't have to imagine anymore!
https://bridgeslearningsystem.com/
For questions or to find out more, contact Dr. Martin directly:
https://meetings.engagebay.com/KatrinaMartin
With an admitted lack of knowledge on dyslexia, host Jessica Kidwell has a beginner's lesson on this disability with Lorraine Hightower, Certified Dyslexia Advocate and Consultant. In this episode we discuss:
- The definition of dyslexia and its prevalence
- The signs and indicators of dyslexia in preschool aged and older children
- Steps parents should take if they suspect their child has dyslexia
- Gold standards for treatment and remediation
- How the IDEA (Individuals with Disabilities Education Act) and State criteria can lead to inequity in treatment as well as an adversarial relationship with public schools
- How to best partner with your school team to advocate for your child
- The use and need for accomodations
- How dyslexia impacts adults and our society
About Lorraine Hightower:
Lorraine is a certified Dyslexia Advocate & Consultant who helps parents of children with dyslexia navigate the special education process. Working collaboratively with schools, she creates appropriate educational plans that allow children to learn and thrive. Lorraine also informs and influences education leaders, legislators, and community members on best practices for educating children with dyslexia. In 2016, she was awarded “Child Advocate of the Year'' by the Virginia Parent and Teacher Association. Lorraine holds a certificate in Special Education Advocacy from the William and Mary Law School and is a member of the Council of Parent Attorneys and Advocates (COPAA). Lorraine’s advocacy at the state level resulted in mandated teacher training on dyslexia as well as improved reading interventions in local school districts.
https://www.lorrainehightower.com/
Resources Mentioned:
International Dyslexia Association
https://dyslexiaida.org/
Sally Shaywitz, MD
Yale Center for Dyslexia
https://dyslexia.yale.edu/
National Center for Learning Disabilities
https://www.ncld.org/
Support the podcast:
https://www.patreon.com/neuroversity
You know that old Dean Martin song right?
"It's the Holiday Season, (the holiday season)
So whoop dee do, and dickery dock,
and don't forget to.....check and see if your neurodiverse friends and family are ok."
Well, that's how it SHOULD go.
This week's episode highlights the ways that holiday gatherings can be particularly stressful for neurodiverse individuals. And looks to several #actuallyautistic and #actuallyneurodiverse advocates for helpful tips that can help everyone have a universally enjoyable holiday season.
Referenced in this episode:
Suzan Issa, Emotional Regulation and Neurodiversity Specialist for individuals and families, talks about the 80/20 concept of meeting neurodiverse needs and makes the analogy of joint wear and tear in terms of neurodiverse sensory stimulation.
https://suzanissa.com
Lauren Melissa Elzey, aka @autienelle on IG and Twitter, is an Autistic Self-Advocate and Author, provides invaluable insight and education to the #actuallyautistic community as well as allistic allies. Her post about Thanksgiving tips was quoted in this episode and a link to the post can be found:
https://www.instagram.com/p/CWgOSJ4lHjG/
Yulika Forman, PhD, LMHC, aka @theexpertally, provides beautiful graphics that provide helpful tips for neurodiverse individuals and allies. This episode referenced her 4S's for holiday gatherings, which can be found:
https://www.instagram.com/p/CWlJLe9Ac2m/
She has also created a free downloadable 15 page compilation of holiday tips offered by neurodivergent adults (autistic, ADHD, and other conditions). They are organized by topic and can be found:
https://www.theexpertally.com/product-page/holiday-tips-for-neurodivergent-adults
Hasna Nada is the mother of 14 year old autistic child. She has been a passionate advocate for the past 10 years bringing attention to the need for adequate services, more inclusion and genuine acceptance in Qatar for autistic individuals. Hasna is the founder and owner of Child Development Center, the first multidisciplinary therapy center for children with autism in Qatar. The center provides early intervention, facilitates social skills groups, ongoing parents and community training, and provides professional development for field professionals.
As part of advocacy and raising awareness Hasna organized several autism conferences and symposiums bringing groundbreaking speakers in autism to Qatar.
In 2019, along with other parents, professionals and acclaimed autistic professor and autistic advocate Dr. Stephen Shore, Hasna founded Learn Autism. Learn Autism is a digital resource platform to inform parents, caregivers and professionals on how to best support autistic individuals in different settings and phases of life.
This project was born to empower caregivers in being proactive when supporting their child’s journey and overcoming different challenges. Hasna believes that parents play a crucial role in their child’s progress and that evidence based knowledge can facilitate making informed choices when supporting their child in achieving their potential and living a meaningful life.
Courtney Dios grew up with a learning difference in the 90s, and we talk about how she unlearned the messaging she had internalized that she was stupid and lazy, and has now come full circle teaching at the Shelton School, a world renowned school dedicated to designing and sharing the best educational practices for students with learning differences.
We talk about how she came to end up at Shelton as a 9th grade, what school was like before, and how her experience at Shelton built confidence and self advocacy skills that are still with her today.
And she continues to pay it forward by coming back to Shelton as a teacher and creating the wildly popular elective "Life Hacks", where students learn everything from how to communicate with different personality types to how to change a tire.
By the end of the conversation you'll wonder, like I do, can we ALL go to The Shelton School?
About Courtney Dios:
After graduating from The Shelton School in Dallas, TX, Courtney attended Auburn University, graduating with a major in graphic design and a minor in business. She is in her 5th year as a teacher at the school that gave her wings and her mission is to pay it forward to all her students as well.
The Shelton School:https://www.shelton.org/
To learn more about Neuroversity and ways to support the podcast:https://www.neuroversitypod.com/
"Autistic people have been misunderstood as long as autism has existed as a diagnosis and oftentimes, authors write about autism without autistic people’s input. So I wanted to refocus them as the center of their [own] narratives."
-Eric Garcia, about his book, We're Not Broken: Changing the Autism Conversation
In this episode, Eric and Jessica talk about his book, his experiences as an autistic college student and so much more. Some of the topics they discuss include:
- Person first vs Identity first language
- The history of the chronic underfunding of the ADA
- The tendency for autistic people to under utilize the accommodations they are due
- The good and bad portrayals of autism in Hollywood
And so much more!
ERIC GARCIA is the author of "We're Not Broken: Changing the Autism Conversation" and the senior Washington correspondent for The Independent. Previously, he was an assistant editor at the Washington Post's Outlook section and an associate editor at The Hill and a correspondent for National Journal, MarketWatch and Roll Call. He has also written for the Daily Beast, the New Republic, and Salon.com. Garcia is a graduate of the University of North Carolina at Chapel Hill. He lives in Washington, D.C.
Follow him on
Twitter: @EricMGarcia
Instagram: @ericmgarcia14
Buy the book:
https://www.hmhbooks.com/shop/books/were-not-broken/9781328587848
To learn more about Neuroversity and to support the podcast, visit
https://www.neuroversitypod.com/
Faithe Raphael built a career in the music industry beginning in 1981 with the David Geffen company and then working for rock band, Aerosmith, as the band’s director of tour marketing, publicity, and promotion. Her experience with "Rock Stars" uniquely qualified her to identify talent and genius. So, when her seven year old son began having vocal and physical tics, she set out to find the "Rock Stars" of Neuroscience.
This is an introduction to one of the lesser know neurodivergent conditions, Tourette Syndrome. How it presents, how it disrupts, how it is treated, and what the future could hold. As I realized at the end of our conversation, I need a little more Faithe in me. And after listening to this episode, you will too.
To find out more about Faithe:
https://www.mindfulnessbyfaithe.com/about
To find out more about her book:
https://www.therockstarsofneuroscience.com/
Resources Mentioned:
https://tourette.org/
https://iocdf.org/
This week on Neuroversity we are learning about Childhood Apraxia of Speech (CAS) with Laura Baskall Smith MA CCC_SLP, aka @SLPmommyofapraxia.
Despite being a practicing speech language pathologist, Laura's training wasn't enough for her to see the signs of apraxia in her own daughter. Once her daughter was diagnosed, Laura became an expert in CAS, and is recognized by Apraxia Kids for Advanced Training and Clinical Expertise in Childhood Apraxia of Speech.
In this episode you will learn:
- The difference between motor planning disorder and phonological disorder
- The types of therapy that work best for each
- Helpful tips to have a good speech language diet for any child
Guest:Laura Baskall Smith MA, CCC-SLP is a speech/language pathologist in Denver, Colorado specializing in the assessment and intervention of children with childhood apraxia of speech at her private practice A Mile High Speech Therapy. Prior to specializing in CAS, she worked for 14 years as a school based speech language pathologist. She is the mother to a child with apraxia and author of the book Overcoming Apraxia. Laura has written on CAS in numerous publications and is often asked to give lectures and workshops nationally and internationally. A self described fierce advocate, Laura spreads apraxia awareness and information on her social media handles under the name SLP Mommy of Apraxia.
Learn more about Laura here:
https://slpmommyofapraxia.com/
Buy her book:
https://slpmommyofapraxia.com/product/overcoming-apraxia/
Other resources mentioned:
https://www.childapraxiatreatment.org/
https://www.apraxia-kids.org/
Information about Neuroversity:
https://www.neuroversitypod.com/
Support our show:
https://www.patreon.com/neuroversity
In her collection of essays, "I Overcame My Autism And All I Got Was This Lousy Anxiety Disorder", Sarah Kurchak shares her experiences growing up autistic, undiagnosed until adulthood, loved by two parents who were doing their best, and her career as a professional pillow fighter. She also offers insightful perspective on the importance of expanding our culture's understanding of what it looks like to be autistic.
In this conversation, Jessica and Sarah talk about (among other things):
- If there really is a tension between non-autistic parents and #actuallyautistic adults?
- Self diagnosis and "official" diagnosis and why they are both valid and necessary
- How masking is deeply complicated and built from a space of self protection and how we would all benefit from doing it less
- Alcohol and drug use amongst the neurodivergent
- What it means to be "autistic enough"
Buy Sarah's book here:
https://bookshop.org/books/i-overcame-my-autism-and-all-i-got-was-this-lousy-anxiety-disorder-a-memoir/9781771622462
Learn more about Sarah and her work:
https://sarahkurchak.carrd.co/
https://twitter.com/fodderfigure
Support Neuroversity
https://www.patreon.com/neuroversity
Consider this the introductory class for Neuroversity. This episode is about defining terms and setting ground rules for what this podcast aims to do.
In this episode you will learn:
- What does the term neurodiversity mean
- What is the difference between neurodivergent and neurotypical
- Why am I starting this podcast
- Who is this podcast for
- What is the number one rule for Neuroversity
Join us as we feature interviews with neurodiverse individuals, allies, and researchers. I'm excited to see where this path will take us, and I hope you will come along.
It's time to enroll in Neuroversity
Welcome to Neuroversity! A weekly podcast about neurodiversity with a purpose to expand our understanding of what that term means, elevate the life experiences of the neurodivergent, and advocate for a more inclusive and informed culture.
Hosted by Jessica Kidwell, a neurotypical wife, mom, sister, friend, ally, and advocate hoping to facilitate the learning that needs to be done and elevate the voices and stories of the ND community.
Full episodes begin 10/15/21! To follow along, check out our website at
www.neuroversitypod.com
Support the show by