SPS UNSCRIPTED: Recent Episodes
L & M
Welcome to SPS UNSCRIPTED with your hosts L and M.
A podcast discussing life whilst facing the challenges of Stiff Person Syndrome, a rare neurological disease.
Join us in our informative, open informal podcast as we discuss a disease so deeply immersed in a medical model and it’s language, often resulting in dehumanisation and loss of self for those with SPS.
This podcast follows the journey of two friends, both one in a million, learning to heal, breathe and seek daily gratitude.
Join us around the kitchen table as we discuss all things life.
A gentle reminder:
We are not medical professionals, this is a reflective journey of our lives with SPS whilst remaining under the care of medical teams whose advice we seek and follow. We strongly recommend you consultant your health professional with regards to any questions or concerns.
Some sensitive content, may not appropriate for children.
All content photographs and graphics are the property of @copyright of SPS UNSCRIPTED.
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Do you have SPS or connect with our content? If so please get in touch, we would love to hear from you!
‘The one where Lindsay was developing a nasty strain of covid and M had to monopolise the airwaves’…
L&M discuss the reality and practicalities of holidays and day trips with SPS. Discussing personal experiences, trying to plan with the unpredictable nature and chronic fatigue of SPS and offering some tips as summer approaches.
A very raw and open discussion between your hosts L&M. Stiff Person Syndrome being a spectrum disease has many faces. It can be difficult to navigate when it impacts upon daily life where you are unable to plan due to the unpredictability of the disease. As always L&M touch upon the seriousness of the topic but never fail to find joy and share laughter throughout. Thank you to all our listeners. Don’t forget to check out ‘Chorus of Voices’
In this episode L&M discuss the waxing and waning of living with SPS, but more so your hosts are raw and open as they share the trying few weeks of health challenges and chronic fatigue which left both feeling rather shaken; physically, emotionally and psychologically. By diving a little more in-depth with a longer podcast (don’t forget you can stop and restart as you feel able) L&M touch upon how they have both coped and tried to revive and use multiple methods of self-care in an attempt to reestablish and regain some strength and focus. This is life with SPS, unscripted, an incredibly honest and soul baring episode.Please find us a n FB SPS UNSCRIPTED PODCAST / Instagram @spsunscriptedpodcast1Please see our recent social media posts asking you to join us as a collective voice representing SPS
This episode touches upon how it can feel when we are told “You don’t look sick”. It can be difficult to move forward, heal, and detach with love . We may often find ourselves stuck, ruminating and reliving the hurt. There is hope and strength within you to heal and learn to detach.
Join your hosts L&M as they discuss the importance of engaging in activities and hobbies to enable a fulfilling life particularly when facing health challenges. As always these friends combine laughter, honesty and hope.
Join your hosts L&M as they share their own daily self-care routines to help with symptom management, preventing boom and bust cycles of fatigue and the importance of their sleep routines.
Join M as she discusses chronic fatigue in her personal journey and a how embarking upon a self-care journey continues to help in fatigue management and prevent booming and busting
This episode is at the request of a listener who picked up upon M’s journey with vestibular issues.
Lindsay continues her personal monologues as she discusses her diagnostic journey and living with SPS in the early years.
The Power of a Happy Heart. Join your hosts L & M as they discuss and suggest self-care routines which have helped them on their healing journey whilst living with SPS. Today’s episode covers self-care and well being practices such as Forest Bathing, Journaling, Smile Therapy, EFT and most importantly daily gratitude practices.
Welcome to our first episode as we discuss how a post on a SPS support forum lead to a wonderful journey of empathy, encouragement and friendship as we navigate our lives with SPS.