• Viki’s presentation will cover the following organ systems re: cGVHD.

Skin, Fingernails:

• If you do not feel greasy from the lotions you apply, you are not using enough!
• Fun facts about the sun—we all need some!
• You did not go through a transplant to sit at home in the house—just do not burn. A sunburn is your enemy.

• Fingernail care: keep them filed and avoid gels nail polishes

• Steroids and bruising—what to look for

• Fish oil explained

Joints:

• Edema GVHD explained

• Cramps: this is what you need!
• Stretching and Acupuncture: try gentle yoga and gentle message Eyes:

• Eyes Need Lubrication

• Preservative free single use tears/eye drops

• Steroid eye drops: consult with your ophthalmologist

• Scleral Lenses discussed: grant available through your doctor

Bone Mass:

• Osteopenia and osteoporosis discussed

• Bone density scans

• Importance of weight bearing exercise

• IV preps explained

Mouth:

• Dry mouth and certain candy to try

• Biofeedback helpful too

• Does your toothpaste burn? Try children’s toothpaste. Here’s why!

Lips: Steroid ointment might be an option

• Steroids: oral antifungals

• Visit your dentist

• Trouble swallowing? Listen up

Lungs and Sinusitis

• Short of breath? Importance of catching lung cGVHD issues asap

• Importance of promoting lung function—go take a walk

• Medical Marijuana – Prescription please!

GI Issues

• Is it GVHD?

• Correct diagnosis is so important

• Wasting syndrome/protein loss

• Food Diary Tips

Female and Male Issues

• GYN exams, early menopause and vaginal dryness

• Males: impotence, decreased testosterone and lesions

Mood Changes and Fatigue

• Steroids and their role

• Adrenal glands explained

• Suicide

• Depression

• Get your thyroid checked

• Anti-Depressants can help

• It’s okay to feel depressed

• Resources and more resources: www.nbmtlink.org

• Talk about it!