Susan Hendrix My Story Living With Lupus: Recent Episodes
Susan Hendrix My Story Living
Susan Hendrix is a lupus survivor who has achieved a great deal while dealing with this chronic illness. She will take you through her lows and highs, but most importantly she will bring further awareness to this chronic illness and allow others to know you can still live your life to the fullest.
Susan Hendrix is educated in the field of Health and Science, at the age of 29 she became an entrepreneur and established her own Durable Medical Equipment Company along with a Medical Consulting Firm. Cover art photo by http://efeck.com ("SM")
In this two-part episode, I talk about the breakdown of health in underserved communities of color. What really causes the high rate of obesity, hypertension, and heart disease.
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Join me on March 1, 2024, to learn more about health equality and health equity. It's time to eliminate health disparities. And it's time for you to become your own best advocate.
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In this episode you will hear what neuropsychiatric is, the damage it causes and those who are at risk the most. You will also hear about what signs and symptoms to look for.
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In this episode I tell you why I’ve been MIA due to one of my underlying conditions Sjogrens Syndrome and Lymphoma
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In this episode you will hear about collagen is it really effective for those with autoimmune illnesses. You will also hear about Racial-Ethnic Diversity and how the U.S. should expect a rise in lupus cases. Lastly you will hear about how older patients with lupus lack follow-up care after a hospitalization.
References
Cleveland Clinic
MedPageToday
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If you are not in control of your health who is? This episode is all about the importance of taking control of your health and stop allowing others to make decisions for you.
Reference
CDC
World Health Organization
To be a gust on My Story Living with Lupus Podcast email: mystorylivingwithlupus@gmail.com in the subject area state guest and tell us about you.
Check us out on Amazon at: https://www.amazon.com/shop/iamlupus
You will find products that I use to assist me.
Check out our website at: https://mystorylivingwithlupus.com, For information on FREE online classes regarding Hypertension
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In this episode I will talk about vitamin and mineral deficiencies associated with lupus. Also I will discuss lupus in men which is rarely talked about.--- Send in a voice message: https://anchor.fm/susan-hendrix/message
In this episode you will hear the story of Tasha Brown Breast Cancer Activist, Stage 3 Breast Cancer survivor, Stage IV MBC. Wife, Mother and Grandmother . She advocates for African American Women to go and get checked for this silent killer. She gives me motivation to continue on brining awareness to chronic illnesses. You can contact Tasha via social media at: IG: tasha_47loveme, breastcancer_stage_lll_tasha
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In this episode it's about the remix with Dr. Patricia Dhar, you will also hear about what I've been up to and a look into the future of My Story Living with Lupus Podcast.
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In this episode you will hear about how Glitazone Drug May Cut Lupus Heart Risk. Glitazone (Actos) has been widely used by diabetics.
We all believe that Americans should have a right to healthcare, but do we really have it, we are a country that will preach to other countries about preserving human rights, but we don't talk the talk nor walk the walk in the country.
Resource
MedPage Today
Visit our store at T-Shirts by My Story - TeePublic Store | TeePublic
Visit calmpak and pick one up for you and a loved one at: calmpak - the stress buster
Visit the Charlie E & Minnie P Hendrix Foundation to see what we are doing: https://mystorylivingwithlupus.com
lupus #heartrisk #glitazone
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In this episode I talk about the 988 Crisis Lifeline and how much health disparities actually will cost the United States by 2040. You will also hear about how a small device helped me make through the worst lupus flare that I have ever had.
Resources
MedPage Today
Calmpak - www.calmpak.org
Visit my TeePublic Store - T-Shirts by My Story - TeePublic Store | TeePublic ***Help us to continue to educate, empower those in underserved communities.
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In this episode you will hear about the healing power of I Don't Know, basically why it's so hard for physicians to just come out and say that they don't know what is going on regarding your health.
Also new approve first systemic treatment for alopecia.
Go on over and visit my TeePublic store at: https://www.teepublic.com/stores/my-story?page=6&ref_id=26353
Also go on over to https://mystorylivihngwithlupus.com store and check it out also
Resource
MedPage Today
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In this episode you will hear what researchers say about racial bias in pulse oximetry and how it delays clinical outcomes for patients of color. You will also hear the TYK2 Inhibitor shows promise in Lupus.
Resource
MedPage Today
Please visit my TeePublic Store all you have to do is click the link below.
TeePublic Link: : https://www.teepublic.com/stores/my-story?ref_id=26353
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In this episode I talk about having open communication with your wife, girlfriend or partner about lupus and sex. You will also hear about Monkeypox case reported in the U.S. and lastly one in four Medicare patients being harmed during hospital stay.
Resource
MedPage Today
National Institute of Health
Check out my store at: https://www.teepublic.com/stores/my-story?ref_id=26353
Check out my website: https://mystorylivingwithlupus.com
Charlie E & Minnie P Hendrix Foundation for Chronic Illness: https://cemphfoundation.com
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In this episode you will find out about Scalar Light Healing from Researcher Tom Paladino, share your thoughts on this subject. Also, in this episode you will hear about "In Lupus Normal-Appearing Skin Is Not Normal and Shocking Mismanagement in Our Organ Donation System Is Causing Needless Death.
Resource
MedPage.com
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In this episode you will hear about Medical Gaslighting, NASH, Medical Errors and Know Who Is Operating on You.
Resource
MedPage Today
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In this episode you will hear about two studies the first is Why Women Outnumber Men in Lupus and Mixed Results for Oral Lupus Drug in Phase II
You will also hear about the current health challenges that I have been dealing with.
Resource
MedPage Today
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In this episode you will hear the latest about my medical treatment, and my decision about a medication the doctor wants me on. Also, you will hear about a doctor who was stating that stem cell treatments could cure COVID-19.
Resource
MedPageToday
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In this episode you will hear about the No Surprises Act (Surprise Billing). Self-Efficacy Impact on Pain and Fatigue in Black Women with Lupus. And a subject near and dear to my heart Stem Cell Therapy. Check out one of my Youtube channels below that I talk about my journey and research on Stem Cell Therapy for Lupus.
Resource
lupus.org
MedPage Today
Susan Hendrix- My Journey for Stem Cell Therapy (My Journey For Stem Cell Therapy (Mesenchymal Stem Cell) PT. 2 (92) My Journey For Stem Cell Therapy - YouTube (92) My Journey For Stem Cell Therapy PT. 1 - YouTube (92) My Journey For Stem Cell Therapy (Mesenchymal Stem Cell) PT. 2 - YouTube
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In this episode you will hear about if RA is an overlapping condition to Lupus. Also, you will hear if Kidney Disease Gene Risk Info Aids Prevention in Primary Care.
Resources
MedPage Today
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You will hear about the trail for a new treatment for lupus, this information was published on May 26, 2021. For the phase 1 trial, the team recruited 31 patients with at least one of several autoimmune conditions, including systemic and cutaneous lupus.
Resource
U.S. News (27, May 2021) Experimental Treatment Offers New Hope Against Lupus.
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In this you will hear what research state about PTSD in the development of lupus, also you will hear about my upcoming procedure. We also pay tribute to the first Africa American Doctor in Honor of Black History Month James Derham.
Resource
MedPage Today (18, February 2022) PTSD May Play a Role in the Development of Lupus.
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In this episode you will hear about the most common neuropsychiatric disorder people with lupus have. You will also hear the latest in lupus news. You will hear about African American women with lupus at higher risk for adverse perinatal outcomes. You will also learn a little-known Black History Fact.
Resources
Medline Plus (02, February 2022) SAD. Retrieved from: https://medlineplus.gov
Lescrooge (02, February 2022) The most common neuropsychiatric disorder people with lupus have. Retrieved from: www.lescrooge.org
Healio (02, February 2022) African American women with lupus at higher risk for adverse perinatal outcomes. Retrieved from: https://www.healio.com
#lupus #africanamericanwomenpregnacy #sad #mystorylivingwithlupuspodcast
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In this episode you will hear research from 1 year ago that states the number of individuals with lupus is 200,000 and larger numbers have not been unverified. You will also hear how lupus can affect the heart.
Resources
John Hopkins (2022) How Does Lupus Affect The Cardiovascular System
usnews.com (2022) More Than 200,000 Americans Have Lupus (Health News)
lupus #cardiovascularsystem #americanswithlupus #mystorylivingwithlupuspodcast
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In this episode you will hear why the use of Medical Marijuana has not been approved for the treatment of lupus, you will also hear about what CBD is, Cannabinoids. Find out why the use of Marijuana has been approved for epileptic seizures.
Reference
Yale Medicine - From "miracle drug" to medicine?
Lupus Foundation - Medical Marijuana (cannabis) and Lupus
#marijuana #cannbis #lupus #mystorylivingwithlupuspodcast
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In this episode you hear the latest on my journey and how I've been doing. Also, I give a brief connection of SLE and Lymphoma. You will also hear the latest in Lupus Research.
Resource
Lupus Foundation of America
American College of Rheumatology
lupus #lymphoma #lupusresearch #mystorylivingwithlupuspodcast
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In this episode you will hear about my recent diagnosis of non hodgkins lymphoma, I will tell you the signs, you will also learn how B/T Cells play a role in non hodgkins lymphoma. You will also hear the latest in Lupus News.
Resources
MayoClinic
Lupus Foundation of America
#lupus #nonhodgkins #lymphoma #mystorylivingwithlupuspodcast
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In this episode you will find what research states about elderly-onset of sle. Also you will hear about the Wide Differences in Thinking Skills and Abilities Linked to Cognitive Dysfunction in Lupus Patients. Did you know that individuals with sle are at a higher risk of cancer. You will also hear my health update and a tribute to my mother.
Resources
Lupus Foundation Of America (14, October 2021) Wide Differences in Thinking Skills and Abilities Linked To Cognitive Dysfunction in Lupus
National Library Of Medicine (31, October 2021) Elderly-onset systemic lupus erythematosus: prevalence, clinical course and treatment
John Hopkins Lupus Center (31, October 2021) Lupus and Cancer
Susan Hendrix (01, November 2021 Health Update
#lupus #elderlyonset #cognitivedysfunctioninlupus #lupusandcancer #mystorylivingwithlupuspodcast
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Melissa Coulier is a trailblazer in the field of photography, she is here to tell her story of living with lupus.
Lifestyle Brand M/M melandmelco.com
melissacoulier #lupus #mystorylivingwithlupuspodcast
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In this episode you will hear about the journey and triumphs of Patti Kaye Bevilacqua of living with MS.
#ms #pattibevilacqua #chronicillness #mystorylivingwithlupuspodcast
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In this episode you will here how medical errors can affect your care, and what is considered a medical error. Also is Hypothyroidism-Depression Link as Strong as We Think? Suicides Rising for Black Girls. Latest in Healthcare News.
medicalerror #suicidesrisingforblackgirls #mystorylivingwithlupuspodcast
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In this episode you will meet Christina Kantzavelosa California licensed psychotherapist and writer, but most importantly she also suffers from chronic illness. We are discussing healing, your mind, body and spirit and living a positive life, and how journaling can help you do just that.
Pick up your Begin Within - A Daily Healing Journal at: https://beginwithintoday.com and receive 10% off of your purchase using discount code: LUPUSWARRIOR. Get yours while supplies last.
To join the Empowerment Circle - go directly to: https://beginwithintoday.com
Facebook.com/beginwithintoday
Instagram.com/beginwithintoday
twitter.com/bwtjournal
linkedin.com/christinakantzavelos
#positivity #chronicillness #beginwithintoday #mystorylivingwithlupuspodcast
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In this episode you will hear the clinical challenges when it comes to diagnosing HS. Also, you will hear the latest in lupus news, along with the conclusion of Injecting Cocaine Into Your Spine for Science.
Resources
MEDPAGE TODAY (12, August 2021) Clinical Challenge: Diagnosing hidradenitis suppurativa
MEDPAGE TODAY (22, July 2021) Injecting cocaine into your spine for science
Lupus Foundation of America (24, August 2021) For African Americans with Lupus, 'Lact-Cer' May Help predict heart disease
#hiradenitissuppurativa #lactcert #mystorylivingwithlupuspodcast
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In this episode you will hear the amazing story of Author Heather Rendulic journey of living with Cavernous Angioma.
To purchase her book Head Strong Through Life, Love and Brain Surgery. Go to her website- heatherheadstrong.com
cavernousangioma #headstrong #mystorylivingwithlupus.com
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In this episode Author Darren Radke discuss his journey of living with both APS an autoimmune illness that is more common in women. It is rare fewer than 200,000 cases per year in the United States. He also discusses his symptoms of lupus.
To purchase this inspirational book go to: www.deceivedfromwithin.com. You wont be disappointed.
#antiphospholipidsyndrome #malelupus #mystorylivingwithlupuspodcast
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In this episode men will learn some coping techniques on how to cope with lupus. Also you will hear how HCQ is associated with lower risk of developing endometriosis in women with lupus. Part 2 of injecting cocaine into your spine for science yes, doctors actually did this. And lastly you will hear why I have to have a biopsy performed.
Resource
Lupus Research - How Men Can Cope with a Chronic Disease Like Lupus
Lupus Foundation of America - Hydroxychloroquine is associated with lower risk of developing endometriosis in women with lupus.
MEDPAGE TODAY - Injecting Cocaine Into Your Spine for Science
#menwithlupus #endometriosisinwomenwithlupus #mystorylivingwithlupuspodcast
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In this episode you will hear what states about living a healthy lifestyle may limit the risk of an individual having lupus. Also you will hear about the importance of seeking help from a qualified mental health professional. Lastly it's story time, that's right story time. You will hear part 1 of injecting cocaine into your spine for science.
Resource
MEDPAGE TODAY (24, July 2021) To prevent chronic illness, start with mental health.
MEDPAGE TODAY (22, July 2021) Injecting Cocaine Into Your Spine For Science
MEDPAGE TODAY (22, July 2021) Healthy Lifestyle Limits Lupus Risk — Diet, exercise, weight, smoking, and moderate alcohol use contributed to lower risk in women
lupus #mentalhealth #healthylifestyle #mystorylivingwithlupuspodcast
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In this episode you will hear about the newly published research that further demonstrates the effectiveness of the lupus diagnostic test known as the AVISE Lupus Test. Also you will hear about the Urban Institute study on the outcomes of black and white patients.
Resource
Lupus Foundation of America (14, July 2021) AVISE Lupus Test Improves Disease Diagnosis and Helps Guide Treatment Decisions
Los Angeles Times (14, July 2021) Same hospitals, same surgeries, but worse outcomes for Black Patients than White Ones.
lupus #newtesting #structuralracisiminhospitals #mystorylivingwithlupuspodcast
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In this episode you will hear how steroid tapering is safer for patients with SLE. Research shows that fibromyalgia is a result of autoimmune problems. You will hear what I have been diagnosed with now and lastly a nurse is suspended over her TikTok videos about patient, but she stated that the only thing that is hurt are feelings.
Go and leave a review, like and subscribe.
steroid #sle#fibromyalgia #tiktoknurse #gastroparesis #mystorylivingwithlupuspodcast
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In this episode you will hear why researchers believe it for individuals with lupus maintain a lower BP. Also in this episode you will hear about Tumid Lupus Erythematosus, Signs, Symptoms and Treatments and lastly What Is Whole Persons Health, Is it Physical, Mental, Environmental?
Resource
MedPage Today (19, June 2021) In Lupus, Keep BP Below 130/80
NIH (19, June 2021) Tumid Lupus Erythematosus
PubMed (19, June 2021) What is Whole Person Health. Retrieved from: https://pubmed.ncbi.nlm.nih.gov/
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In this episode you hear about a black doctor who won a $2.75 million verdict, and you will never guess what the judge in the case did. Also you will hear about association of California's prescription drug coupon ban with generic drug use. And lastly Houston Methodist sued over vax mandate.
Resource
MedpageToday (01, June 2021) Houston Methodist Sued Over Vax Mandate
JAMANetwork (15, June 2021) Association of California’s Prescription Drug Coupon Ban With Generic Drug Use
Orlando Sentinel (04, June 2021) Doctor plans to appeal after judge rejects jury’s verdict in AdventHealth discrimination suit
healthcarenews #houstonmethodist #prescriptiondrugs #mystorylivingwithlupuspodcast
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In this episode you will hear how hyperactive proteins trigger illnesses, also do you think that plant-derived compounds could help treat chronic pain? Also you will hear how doing some exercises can help with chronic pain management.
If you are listening on Applepodcast please subscribe, rate and leave a review.
Resource
Medical News Today (09, June 2021) Plant-derived compound may help treat chronic pain.
Science Daily (02, February 2021) When hyperactive proteins trigger illnesses
#hyperactiveproteins #plantderivedcompound #mystorylivingwithlupuspodcast
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Disclaimer Discretion Advised
In this episode you will hear what researcher state how inactivity in individuals with lupus causes depression. Also you will hear about Lung Hemorrhage in, Lupus, risk factors include older age, longer disease duration, infection and certain treatments.
Also, if you listen to me on Appledpodcast, please go and follow, rate and leave a comment, it helps me to make this podcast better.
Follow Me On: FB, IG, TWITTER(mystorylivingwithlupus)
Resource
MedPage Today ( 05/31/2021) Lung Hemorrhage In Lupus
MedPage Today ( 05/31/2021) For Lupus Mental Health, Physical Activity Matters
lupus # #lunghemorrhage #mystorylivingwithlupus
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In this episode you will hear what really connects lupus and diabetes is it caused by the medication that we take for lupus? Is the connection based on antibodies? Or is it both? You will find out!
Resources
MEDPAGE TODAY (23, May 2021) Op-Ed: Diabetes Is Not An Equal Opportunity Killer---Policy change and community intervention can help fight disparities. Retrieved from: https://www.medpagetoday.com/endocrinology/diabetes/92742
Dr. Gary (22, May 2021) What Connects Lupus and Diabetes? Retrieved from: https://www.drgaryslupustreatment.org/
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In this episode you will hear steps to help you manage your lifestyle while living with Lupus. Also Bettie Harvey tells her story about her journey of living with Lupus.
Resource
Lifestyle Management - The Lupus Initiative - Self Management
Bettie Harvey - Tells her story about her journey of living with lupus
lifestylemanagement #lupus #mystorylivingwithlupuspodcast
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You will hear the latest in Healthcare News which was retrieved from MedPage Today, from Kickbacks to Report: Worst Hospitals for Unnecessary Procedures — Lown Institute says report is the first to name hospitals with high rates of overuse. Neurosurgeon Settles Kickback, Unnecessary Spine Surgery Charges — Allegedly performed unnecessary procedures with spine devices, got kickbacks from Medtronic.
lupus #latestinhealthcarenews #mystorylivingwithlupuspodcast
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May represents Lupus Awareness Month. In this episode I give my own take on what I believe is a Warrior Mindset.
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Lupus and sickle cell are two diseases that turn the body against itself. You will hear about how sickle cell and lupus are to distinct chronic conditions sharing clinical manifestation. Coexistence of these two diseases is rare. Also you will hear the latest in healthcare news/
Resource
National Library Of Medicine ( 12, April 2021 ) [Coexistence of sickle cell disease and systemic lupus erythematosus]Retrieved from: https:pubmed.ncbi.nlm.nih.gov/32030937
Kanodia, K.V., Vanikar, A.V., Goplani, K.R. et al. Sickle cell nephropathy with diffuse proliferative lupus nephritis: a case report. Diagn Pathol 3, 9 (2008). https://doi.org/10.1186/1746-1596-3-9
#sicklecell #lupus #mystorylivingwithlupuspodcast
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Each one-unit increase on a disease activity score during the first year after enrollment into a systemic lupus erythematosus (SLE) cohort was associated with a significant increased risk for death and organ damage during subsequent follow-up, researchers reported. Also have you heard the mantra "I have lupus, but lupus doesn't have me?" You will hear my take on this
Go on over to https://mystorylivingwithlupus.com to see the latest products added. 100% of all the sales benefit the CEMPH Foundation for Chronic Illness Awareness.
Resource
MedPage Today (14, April 2021) In Lupus, Even Minor Changes in Disease Activity Matter — One-unit increase in disease activity score raised mortality risk by 22%, study showed. Retrieved from: https://www.medpagetoday.com/rheumatology/lupus/92088?xid=nl_mpt_DHE_2021-04-15&eun=g1263757d0r&utm
lupus #chronicillness #mystorylivingwithlupuspodcast
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In this episode you will hear what Hyperhidrosis is along with my experience of dealing with this condition. Also you will hear the latest in healthcare news.
Resource
MedPage Today (06, April 2021) 'Double Mutant' COVID; Waiting to Exhale on Fourth Wave; Teen Vax Trials — A daily roundup of news on COVID-19 and the rest of medicine. Retrieved from: https://medpagetoday.com
Mayo Clinic (06, April 2021) Hyperhidrosis - Symptoms and causes -Retrieved from: https://www/mayoclinic.org
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hyperhidrosis #lupus #mystorylivingwithlupuspodcast
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In this episode you will hear about a Doctor who became famous for dancing on social media who has "Allegedly" been accused of sexual assult. Also you will hear the amazing story of Lupie Lotus who is not only dealing with Lupus but MS also.
Resource
MedPage Today (02, March 2021) TikTok Doc Jason Campbell Accused of Sexual Assault — A TIME'S UP Healthcare founding member also named in lawsuit. Retrieved from: https://www.medpagetoday.com
lupielotus #lupus #mystorylivingwithlupuspodcast
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In this episode you will hear how lupus can affect the eyes. Also you will hear about my latest diagnosis regarding my eyes. Also it's all about the latest in healthcare news and how one Metro Detroit Doctor paid $2 million back for unnecessary procedures.
Resources
Lupus Foundation Of America (21, March 2021) How Lupus Affects The Eyes.
MEDPAGE TODAY (23, March 2021) Cardiologist Coughs Up $2M for Unnecessary Procedures
#eyes #lupus #mystorylivingwithlupuspodcast
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In this episode you will hear the latest research which states that lupus is close to being reclassified as a rare disease, and how this study potentially redefines SLE.
You will also hear the latest research on Prednisone and how this medication could be linked to poor emotional health in people with low lupus disease activity.
Resource
Lupus Foundation Of America (13, March 2021) Prednisone Linked to Poor Emotional Health in People with Low Lupus Disease Activity. Retrieved from: https://www.lupus.org
U.S. News (13, March 13, 2021) More Than 200,000 Americans Have Lupus. Retrieved from: https://www.usnews.com
Don't forget about the challenge and tag me on social media(#stimuluschallengeigaveback) take $5.00 and feed 1 homeless individual in your community.
lupus #mystorylivingwithlupuspodcast #prednisone
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Wonder if you were a medical doctor and you received the diagnosis that you had lupus? Dr. Manisha Rayavarapu is a Family Medicine Physician and author of the book "Butterflies, Boards, and Blessings-A Doctor's Journey to Thriving with Lupus". She was diagnosed with lupus in 2010 and started blogging in 2014 under the pen name "The Patient Doc" to raise awareness for lupus and bridge the gap between patients and doctors. The doctor is here to tell you a part of her story.
To contact Dr. Rayavarapu - Website- https://www.thepatientdoc.com
IG-www.instagram.com/manisharayavarapu
FB-www.facebook.com/manisharayavarapu
To purchase the book "Butterflies, Boards, and Blessings-A Doctor's Journey to Thriving with Lupus", Amazon, Barnes and Nobles, Google Play, Scribd.
lupus #mystorylivingwithlupuspodcast #manisharayavarapu
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In this episode you'll hear Dee Wynn tell her story, the ups and downs of living with lupus. We also touch on other subjects you might enjoy listening to.
lupus #mystorylivingwithlupuspodcast #deewynn
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In this episode you will learn exactly what is Monogenic Lupus and is it related to SLE. Also you will hear new research that finds that 6-gingerol counter certain autoimmune diseases in mice.
Resource
Frontiers in Immunology (24, February 2021) Monogenic Lupus: A Developing Paradigm of Disease. Retrieved from: https://www.frontiers.org
Science Daily (23, February 2021) New research finds ginger counters certain autoimmune diseases in mic. Retrieved frm: https://www.sciencedaily.com
Shop For A Cause at: htttps://mystorylivingwithlupus.com
monogenic #mystorylivingwithlupuspodcast #lupus
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In this episode you will hear as reported by KOLD News 13 Tucson AZ on February 10, 2021 the FDA announced the information for two new medications that recently underwent clinical trials (Lupkynis used to treat patients with active lupus [nephritis].
As what do you do for selfcare? I give some ideas on what you can do, also what do you have planned for that special Valentine?
You will also hear about the CEO and his partner who were busted for medicare fraud.
Resources
KOLD 13 FDA announces drug trial information for new lupus and chronic heart failure medications (10, February 2021) Retrieved from: https://www.kold.com/2021/02/10/fda-announces-dru-trial-information-new-lupus-medication
Medscape (08, February 2021) CEO sentenced after fraudulently enrolling patients in hospice. Retrieved from: https://www/medscape.com
Don't forget to Shop For A Cause at: https://mystorylivingwithlupus.com
100% of all sales go directly to CEMPH Foundation for Chronic Illness.
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In this episode I discuss your nails and how your nails can signal possible underlying health issues that you can simply over look, Also Racial Bias In Medicine is it subconscious barriers to CV-19-Equity? Or is It conscious you be the judge.
Resources
US News Today(14, January 2021) Racial Bias In Medicine Subconscious Barrier To CV-19-Equity. Retrieved from: https://www.usnewstoday.com
MedicalNewsToday(29, January 2021) What causes curved nails? Retrieved from: https://www.medicalnewstoday.com
*SHOP FOR A CAUSE February 06-28 100% of all proceeds go to the Charlie E & Minnie P Hendrix Foundation for Chronic Illness Awareness this is a 501 (c)3 NPO* Go to https://mystorylivingwithlupus.com to Shop For A Cause. If you would like to donate to the foundation directly (without purchasing any items) go to: https://cemphfoundation.com. All donations are tax deductible.
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In this episode Stephanie Jerry CEO of The Botanic Bomb tells her story of living with lupus and how she turned it around to live a positive life. Also you will here about Racial Disparities in the use of surgical procedures in the US.
Resources
JAMANETWORK (25, January 2021) Racial Disparities in the Use of Surgical Procedures in the US. Retrieved from: https://jamanetwork.com/journals/jamasurgery/fullarticle/2775061?guestAccessKey=77b9d765-66b8-490b-9395-e221ebd1ecf9&utm_content=weekly_highlights&utm_term=012421&utm_source=silverchair&utm_campaign
Centers for Americans Progress (25, January 2021) Health Disparities by Race and Ethnicity - Center for American Progress. Retrieved from: https://www.americaprogress.org
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To purchase products from The Botanic Bomb contact Stephanie Jerry via social media @veganlupie
stephaniejerry #lupus #disparities #mystorylivingwithlupuspodcast
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In this episode you will learn what autoimmune atrophic gastritis is, the causes, symptoms and treatment, also you will hear about a doctor who allegedly put his patients in harms way. And lastly you will hear the names and a little back story of physicians who received pardons from the White House.
Resource
MEDPAGE TODAY (23, January 2021) Healthcare Fraudsters Among Those Pardoned by Trump — Dozens of federal criminals receive clemency on president's last day. Retrieved from: https://www.medpagetoday.com
Medical News Today (23, January 2021) What to know about atrophic gastritis. Retrieved from: https://www.medicalnewstoday.com
autoimmune #gastritis #mystorylivingwithlupuspodcast
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In this episode you will here what PCOS is, Symptoms, and if it is linked to SLE and if it is considered an autoimmune disorder. Also you will hear information Study Offers New Data on COVID-19 and Lupus and Cautions Against Treatment Discontinuation.
Resource
Hindawi Journal (22, January 2021) Polycystic Ovary Syndrome May Be an Autoimmune Disorder. Retrieved from: hindawi.com/journals/
National Library of Medicine (22, January 2021) Polycystic Ovary Syndrome May Be an Autoimmune Disorder. Retrieved from: pubmed.ncbi.nlm.nih.gov
Lupus Foundation of America (22, January 2021) Study Offers New Data on COVID-19 and Lupus and Cautions Against Treatment Discontinuation. Retrieved from: https://www.lupus.org
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In episode 171 I discuss the benefits of physical activity on our mental health. You will hear about the benefits of living an active life, and what research states about this. You will also hear about Trends in Long-Term Lupus Outcomes are we really ahead or lacking with the outcomes? Does there exists a problem finding quality care?
Resource
MedPage Today (13, January 2021) For Lupus Mental Health, Physical Activity Matters— Sedentary patients had more than threefold risk of depression. Retrieved from: https://medpagetoday.com/rheumatology/lupus/90651
Rheumatology Network (13, January 2021) Trends in Long-Term Lupus Outcomes. Retrieved from: https: www.rheumatologynetwork.com
physicalactivity #mystorylivingwithlupuspodcast #mentalhealth
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In this episode you hear whether it is true that once stopping hydroxychloroquine lupus flares increase or not. You will also find out if stress really affects kidney function in African Americans. Also you will be given techniques that you can use to elevate stress.
Resources
MedpageToday (11, January 2021) Who flares when sle patients stop hydroxychloroquine? Retrieved from: https://medpagetoday.com
MedpageToday (11, January 2021) Goal striving stress tied to rapidly worsening kidney function in African Americans. Retrieved from: https://medpagetoday.com.
lupusflares #mystorylivingwithlupuspodcast #goalstrivingstress
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In this episode you will hear some of the concerns that some doctors have about patient's reading their clinical notes. Is there really a concern? Does it place more liability concerns for the doctor's? Does this cause more malpractice concerns? Do patient's really understand what they are reading? Can patients misinterpret what they are reading?
Also you will hear about family doctor's license suspended after refusal to wear mask, and what he stated to people at a political rally.
Resources
Medscape (05, January 2021) Doctor's worry about patients reading their clinical notes. Retrieved from: https://www.medscape.com
Medscape (05, January 2021 Family doctor's license suspended after refusal to wear mask. Retrieved from: https://www.medscape.com
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In this episode I explain what Health Literacy is and the importance of it. I provide tips and strategies not only for the healthcare consumer but steps that healthcare facilities can take to make it better for the patient and the public. Also you will find out why this episode is coming out on today.
Resource
Rasmussen College (04, January 2020) Health Literacy: What Is It and Why Is It Important. Retrieved from: rasmussen.edu
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In this episode you'll here the latest research Breakthrough cellular genomics technology has allowed researchers to reveal genetic mutations causing rogue behavior in the cells that cause autoimmune disease. You will also hear about a California Physician who is being indicted for selling Hydroxychloroquine as a COVI-19 cure and stated that was following the lead of Trump.
Resources
Science Daily ( 21, December 2020) Rogue cells at root of autoimmune disease. Retrieved from: https://www.sciencedaily.com/releases/2020/20/200213135800.htm
Medscape (21, December 2020) Physician Indicted on Charges of Selling Hydroxychloroquine as COVID-19 Cure. Retrieved from: https://www.medscape.com/viewarticle/942941?src=wnl_edit_tpal&uac=310597AT&implD=27479
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In this episode I talk about is there a coexistence of crohn's disease and systemic lupus. Also in this episode you will hear the issues that I have been having.
Resources
Crohn's and Colitis (19, December 2020) WHAT ARE SYMPTOMS OF CROHN’S DISEASE? Retrieved from: Crohn's Disease Symptoms And Types And How They May Affect You (crohnsandcolitis.com)
Oxford Journal of Crohn's and Colitis (19, December 2020) Inflammatory bowel disease and lupus: A systematic review of the literature. Retrieved from: Inflammatory bowel disease and lupus: A systematic review of the literature | Journal of Crohn's and Colitis | Oxford Academic (oup.com)
European Journal Of Gastroenterology and Hepatology (19, December 2020) Coexistence of Crohn’s disease and systemic lupus erythematosus: a case report and literature review. Retrieved from: https://journals.lww.com/eurojgh
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In this episode you will hear the latest discoveries that advanced lupus research. Also you will hear about the most common blood disorders in lupus patients.
Resources
HSS (15, December 2020) Four Discoveries from 2019 That Advanced Lupus Research By Dr. Mary K. Crow and Dr. Jane Salmon. Retrieved from: Four Discoveries from 2019 That Advanced Lupus Research (hss.edu)
LupusNews Today (14, December 2020) Anemia and Low Lymphocyte Numbers Are Most Common Blood Disorders in Lupus Patients, Study Finds. Retrieved from: Anemia and Low Lymphocyte Numbers Are Most Common Blood Disorders in Lupus Patients, Study Finds (https_lupusnewstoday.com)
LupusCorner (14, December 2020) Red blood cells transport oxygen to cells throughout the body. People with lupus may experience a reduction in red blood cells known as inflammation-related anemia, which can cause a range of symptoms.
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In this episode you will hear about what the Real-World Study Affirms about the IV Treatment use of Benlysta for Lupus. Also did you know that Age at start of menstruation and breastfeeding linked to lupus risk in black women?
Resources
Springer (12, December 2020) Original Research
- Open Access
- Published: 18 November 2020
Real-World Effectiveness of Belimumab in the Treatment of Systemic Lupus Erythematosus: Pooled Analysis of Multi-Country Data from the OBSErve Studies * Christopher E. Collins, * Josefina Cortes-Hernández, * Mercedes A. Garcia, * Johannes von Kempis, * Andreas Schwarting, * Zahi Touma, * Milena Kurtinecz & * Kerry Gairy
Rheumatology and Therapy volume 7, pages949–965(2020)
Lupus Foundation Of America (12, December 2020) Age at Start of Menstruation and Breastfeeding Duration Linked to Lupus Risk in Black Women. Retrieved from: https://www.lupus.org/news/age-at-start-of-menstruation-and-breastfeeding-duration-linked-to-lu
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In this episode you will hear about women who live in Africa in urban areas are at higher risk for chronic diseases than those women who live in rural areas. Also you will hear about how race is playing once again in kidney disease patients.
Resources
MedPage Today (02, December 2020) Leave Race Out of Kidney Function Estimates? — Removing race modifier would yield more CKD diagnoses among Black patients. Retrieved from: https://www.medpagetoday.com/nephrology/generalnephrology/89962?xid=nl_covidupdate_2020-
NewsMedicalLifeSciences (27, November 2020) Urban women have higher risk of chronic diseases than rural dwellers. Retrieved from: news-medical.net/amp
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In this episode I discuss Health Disparities in Lupus and Addressing Racial Disparities in SLE Treatment, you will hear what Health Equity is.
Resource
Rheumatology Advisor (21, November 2020) Addressing Racial Disparities in Systemic Lupus Erythematosus Treatment
Tori Rodriguez, MA, LPC. Retrieved from: https://www.rheumatologyadvisor.com/home/topics/systemic-lupus-erythematosus/addressing-racial-disparities-in-systemic-lupus-erythematosus-treatment/
PubMed (21, November 2020) Disparities in lupus care and outcomes. Retrieved from: https://pubmed.ncbi.nlm.nih.gov/19339919/
#lupusdisparities #mystorylivingwithlupuspodcast #health
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In this episode I have a conversation with one of the leading experts in Rheumatology Dr. Josephine Dhar were discussing Lupus, the Pandemic, Hydroxychloriquine and how to stay safe.
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Patients with autoimmune diseases often have an illness experience riddled with symptom ambiguities and shifting diagnoses. A new study found that one way patients and physicians can work through the difficulty and frustration of communicating about these conditions is to use both broad diagnostic terms, like 'autoimmune disease,' as well as narrow ones, such as 'lupus or MS.'
Also the daily Roundup in Medical News.
Resources
ScienceDaily ( 24 March 2020) But You Don't Look Sick? How Broad Categories Like Autoimmune Impact Patient Experience. Retrieved from: https://www.sciencedaily.com/releases/2020/03/200324131823.htm
MEDPAGE Today (11 November 2020) N.D. Nurses With COVID Can Keep Working; Vax in December? Docs' Revenue Drops 32% — A daily roundup of news on COVID-19 and the rest of medicine by Judy George, Senior Staff Writer, MedPage Today November 11, 2020. Retrieved from: https://www.medpagetoday.com/infectiousdisease/covid19/89605?xid=nl_covidupdate_2020-11- 11&eun=g1263757d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=DailyUpdate_111120&utm_term=NL_Gen_Int_Daily_News_Update
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In this episode you will hear what researchers states how in the last decade, scientists discovered that blocking a key regulator of the immune system helped unleash the body's natural defenses against several forms of cancer, and how flipping the script may have found new pathways to treatment for Lupus.
You will also hear about increased ED visits due to edible cannabis, and how Inflammation ties together poor diet, higher CVD risk.
MEDPAGE TODAY (04 November 2020) Inflammation Ties Together Poor Diet, Higher CVD Risk. Retrieved from https://www.medpagetoday.com/cardiology/prevention
Science Daily (11 December 2019) Flipping The Script On Novel Cancer Therapy Leads To Insights Into Lupus. Retrieved (November 3, 2020) from www.sciencedaily.com/releases/2019
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In this episode you will hear evidence of how Algorithms plays a key factor in patients care and how it is blocking kidney transplants for black patients. That is right, race plays a key factor when it comes to receiving medical care.
You will also learn about Christmas Giveaway from the Charlie E & Minnie P Hendrix Foundation for Chronic Illness. You'll hear about my recent visit to the Endocrinologist.
Resource
NIH (2014, March) Race, Ethnicity, & Kidney Disease. Retrieved from: www.niddk.nih.gov
Weird (27, October 2020) How an Algorithm Blocked Kidney Transplants to Black Patients. Retrieved from: wired.com
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In this episode I compare/contrast the Spanish Flu of 1918 and COVID-19 of 2020 Is History Repeating itself? We take a look back at history and hopefully you will be asking the same question I did. We also discuss briefly The contaminated diuretic Acetazolamide a petition to the FDA to take this diuretic off the market . Also find out about Save the date, Christmas Giveaway and much, much more.
Resources
MEDPAGE TODAY ( 15, October 2020) Researchers: Recall Contaminated Acetazolamide Shots — Pharmacy leaders petition FDA after their own tests revealed high levels of impurities. Retrieved from: https://www.medpagetoday.com/publichealthpolicy/productalert/89135?xid=nl_medpageexclusive_2020-10-16&eun=g1263757d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=MPTExclusives_101620&utm_term=NL_Gen_Int_Medpage_Exclusives_Active
History 01, October 2020) Spanish Flu 1918. Retrieved from: https://www.history.com/topics/world-war-i/1918-flu-pandemic
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#lupus #mystorylivingwithlupuspodcast #spanishflu
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In this episode you'll find out if DV causes Chronic Health issues and what research has shown. Also I discuss Breast Cancer Women/Men that's right men also have breast cancers, that's why it's important to have the TA Ta's check . If you or someone you know are in a Domestic Violence situation pick up the phone and dial 1-800-799-SAFE (7233) HELP IS OUT HERE DON'T STAY IN A DV SITUATION.
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In this episode of Life Lessons, Author Shelia Smith talks about male abuse, that right. Men can be abused, too but some men remain silent. The majority of the time when the subject of domestic violence is discussed, most people will assume that it always means women. Men can also become the victims of domestic violence. The CDC in 2010 showed that 40% of the victims of severe physical domestic violence are men.
So get ready to join the conversation about domestic violence as it is related to men with Author Shelia Smith.
lifelesson #sheliasmith #mystorylivingwithlupuspodcast
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In this episode I breakdown the original Affordable Care Act that's right we go back in history and bring it current. I discuss the Pandemic, Current Administration and how we all need to get out and vote.
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In this episode you will hear what Resistant Hypertension is and how it is connected to Lupus. Also I discuss Diet and Lupus, I know you have heard this a thousand times but just listen to how changing up what you consume how it can benefit your overall health.
Please go over to my YouTube Channel and subscribe and like.
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In this episode I give my thoughts of the events that have taken place regarding Breonna Taylor. I also breakdown the voting rights act of 1965, diversity, and systemic racism.
"YOUR VOTE COUNTS, GET YOUR BALLOT EARLY AND BE A SAVAGE AND TAP IN YOUR VOTE"!
#lupus #vote #votingrightsact1965 #mystorylivingwithlupuspodcast
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In the episode you will hear about what happened to me when I went to the ER. Also I will discuss drug induced lupus, What is it? Signs and Symptoms. I also discuss Sjogrens Syndrome and how important it is to have regular dental check-ups.
Resource
Medline Health (11, September 2020) When Chest Pain Reveals More: A Case of Hydrochlorothiazide-Induced Systemic Lupus Erythematosus.
The Conversation (11, September 2020) What is Sjögren’s syndrome? How do you pronounce it anyway? And is there a cure?. Retrieved from: https://theconversation.com/explainer-what-is-sjogrens-syndrome-the-condition-venus-williams-lives-with-111250
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In this episode of Life Lessons with Author Shelia Smith, she will be discussing Setting Standards in your life, and not just to settle for anything or anyone.
#mystorylivingwithlupuspodcast #lifelessons #authorsheilasmith
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Thank you for joining me on the Friday September 11, 2020 for another episode of MY STORY LIVING WITH LUPUS PODCAST. Today’s episode is about Lupus and Ehlers-Danlos Syndrome. You will find out what it is, treatment, causes, and is there another name for this? Also you will hear A daily roundup of news on COVID-19 and the rest of medicine. I will also be talking about The muscle-bone connection and what exercises are benficial .
Resources
MEDPAGE TODAY Trump's Bombshell Admission; Goodbye Airport Screening; No Trick-or-Treat?! — A daily roundup of news on COVID-19 and the rest of medicine (10, September 2020). Retrieved from: https://www.medpa
Healthline (10, September 2020)Ehlers-Danlos Syndrome: What Is It and How Is It Treated? https://www.healthline.com/health/ehlers-danlos-syndrome#:~:text=Ehlers- danlos%20syndrome%20%28EDS%29%20is%20an%20inherited%20condition%20that,cells%2C%20fibrous%20material%2C%20and%20a%20protein%20called%20collagen.
Harvard Medical School Health Beat (10, September 2020) The Best Exercises For Your Bones
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In this episode I discuss research findings on how age at diagnosis of lupus. male sex and smoking raises the cancer risk among individuals with lupus. I also discuss the effects of smoking on the body among individuals diagnosed with lupus. And lastly I will tell you about two conversations I had with two doctors regarding racial bias in the medical field.
Resources
MEDPAGE TODAY (27, August 2020) In Lupus, Older Age and Male Sex Raise Cancer Risk
— Role of most medications, though, not yet clear. Retrieved from: https://www.medpagetoday.com/rheumatology/lupus/88204
Lupus Foundation (27, August 2020) Smoking and lupus: It's never too late to quit. Retrieved from: https://www.lupus.org/resources/smoking-and-lupus-its-never-too-late-to-quit
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Class is in session, so grab your pen and paper I will be discussing What You Need To Know When Considering Participation In A Clinical Trial. What are they? What questions to ask? Will I get paid? Will I be chosen? Also if you are ever asked to be a part of a clinical trial what you should ask the researcher/doctor. Do you think that being to clean can effect your immune system? We will find out what the researchers state.
Resource
John Hopkins Health Review (21, August 2020) Clinical Trials 101. Retrieved from: John Hopkins Health Review v4 issue 2 pgs. 63-69
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clinicaltrials101 #whatyouneedtoknow #lupus #lupusawareness #mystorylivingwithlupuspodcast
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In today's Life Lesson Episode, Author Sheila Smith talks about dating in this day and time. She will discuss online dating and what to be careful of, she will also discuss other topics that is not suitable for young children. So Place the kids to be and join the conversation.
lupus #lupusdating #lupusawareness #lifelessons #mystorylivingwithlupus
L85yNxkaz3auIjSjDj6S
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In this episode you will learn what Cachexia is and how it is linked to lupus and other chronic illness such as Cancer. You will hear about the signs, symptoms and it there exists treatment. You'll find out the origin of the word Cachexia. Cachexia Common in Lupus
— More than half of patients in a large cohort developed involuntary weight loss. Did you know that Thunderstorms can cause individuals with Asthma be hospitalized?
Resource
Source Reference: Stojan G, et al "Cachexia in systemic lupus erythematosus: risk factors and relation to disease activity and damage" Arthritis Care Res 2020; DOI: 10.1002/acr.24395.
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lupus #cachexia #lupusawareness #goli #acv #goligummies #tastetheapplenotthevinegar
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You will hear about the connection of Peridontal Disease and Lupus. You will also hear what research states about lupus and oral complications. Did you know that your mouth is a hotbed? Did you know that we have 500 different types of bacteria? At least 11 of which can cause "peridontal disease". I will be giving the latest on if there will be another stimulus check in the horizon for the America people.
Sponsor's
Goli Gummy - Taste the Apple and not the Vinegar. Use Promo Code: suelynne1 (5% off) Promo Link: https://go,goli.com/suelynne1
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lupus #mystorylivingwithlupus #oralconnection #peridontaldisease #goligummy #vitalizehair
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In this episode you will hear about Anti-GBM (Good Pastures Disease) which is another auto-immune disease which effects men in their 20's and women in their 60's. You will hear the causes, signs, treatments and clinical trials.
Resource
References
[1] Greco A, Rizzo MI, De Virgilio A, et al. Goodpasture's syndrome: a clinical update. Autoimmunity Reviews. 2015;14(3):246–253.
[2] Foster MH. Basement membranes and autoimmune diseases. Matrix Biology. 2017;57–58:149–168.
[3] DeVrieze BW, Hurley JA. Goodpasture syndrome (Anti-glomerular basement membrane antibody disease). StatPearls [Internet]. StatPearls Publishing; 2019
[4] McAdoo SP, Pusey CD. Antiglomerular basement membrane disease. Seminars in Respiratory and Critical Care Medicine. 2018;39(4):494–503.
April 2020
Resource Medlineplus (27, July 2020) Anti-GBM (Goodpasture’s) Disease. Retrieved from: https://www.niddk.nih.gov/health-information/kidney-disease/glomerular-diseases/anti-gbm-goodpastures-disease
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These products I personally use
lupus #mystorylivingwithlupuspodcast #antigbm #goodpasturesdisease
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In this episode you will hear research regarding the risk of prostate cancer in men with lupus. Also you will hear newly published research regarding, Elevated CV Risks Noted in Lupus Patients.
Resource- MEDPAGE TODAY (23, July 2020) Elevated CV Risks Noted in Lupus Patients -Hypertension and smoking are among the key risk factors. Retrieved from: https://www.medpagetoday.org/rheumatology/lupus/87709?xid=nl_mpt_DHE_2020-07-24&eun=g1263757d0r&utm_term=NL_Daily_DHE_dual-gmail-definition&vpass=1
Resource - Prostate Cancer.NET (15, July 2020) Prostate Statistics. Retrieved from: https://www.cancer.net/cancer-types/prostate-cancer/statistics
Resource - Creakyjoints.org (15, July 2020) Lupus Is Linked to Higher Odds of 16 Types of Cancer--But Here's How Doctors Help Patients Manage Risk. Retrieved from: https://creakyjoints.org/new/lupus-cancer-risk/
Resource - National Institute of Health (15, July 2020) Prostate cancer in systemic lupus erythematosus. Retrieved from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3203250
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lupus #prostate #GOLIGUMMY #vitalizehair #mystorylivingwithlupuspodcast
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It's all about Life Lessons with Author Shelia Smith. Do you Value your Worth?
Author Shelia Smith will provide tools to guide you along your way.
You can purchase her latest book, Think Inside The Borders on Amazon, or visit her website at https://rightsideof50.com/
Thank you to everyone listening on Pandora
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lupus #mystorylivingwithlupuspodcast #lifelessons
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In this episode you will hear what researchers state about how children with lupus who are being treated by a pediatric rheumatologist have difficulties receiving care once they transfer over into adulthood. Also you will hear the latest on New Licensing Partnership and plans for Phase 2 study of potential therapy for lupus treatment.
The Charlie E & Minnie P Hendrix Foundation a 501(c)3 NPO is sponsoring a giveaway.
Welcome aboard all my listeners on Pandora!
Please Like, Share, and Give a review.
Resources
Lupus Foundation of America (13, July 2020)Children with Lupus who Transfer to Adult Care are Less Likely to Access Care. Retrieved from: https://www.lupus.org/new/chilfren-with-lupus-who-transfer-to-adult-care-are-less-likely-to-access-care
Lupus Foundation of America (01, July 2020) New Licensing partnership Spurs Plans for Phase 2 Study of Potential Therapy for Lupus Treatment. Retried from: https://www.lupus.org/news/new-licensing-partnership-spurs-plans-for-phase-2-study-of-potential-therapy-for-lupus.
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#lupus #children #mystorylivingwithlupuspodcast
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In this episode you'll find out why it is important to know your family medical history, you will also hear about some tools that will help with documenting your family health history, questions to start the conversation off with. It's time to take that important stance and become your own best advocate. Assist your PCP with getting to the bottom of your health issues.
Resource
Healthline (01, July 2020) Family Health History Why It's Important and What You Should Know. Retrieved from: https://www.healthline.com/health/family-health-history-day#outlook
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lupus #familyhealth #familyhealthhistory #goligummies
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In this episode you will hear about several Michigan Hospitals who have taken a drastic hit financially due to the Pandemic. Also in this episode you will hear about the Euro-Lupus Project, the winner of the GIVEAWAY.
Welcome to all the listeners on Pandora, also welcome to Goli Gummies
Resources
PubMed(06/30/20 The Euro-lupus project: epidemiology of systemic lupus erythematosus in Europe. Retrieved from: https://journals.sagepub.com/doi/abs/10.1177/0961203309106831
PubMed (06/30/20)The Majority of Swedish Systemic Lupus Erythematosus Patients Are Still Affected by Irreversible Organ Impairment: Factors Related to Damage Accrual in Two Regional Cohorts.
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#healthcare #lupus #systemic lupus erythematosus #epidemiology #mortality #morbidity #goligummies #mystorylivingwithlupuspodcast
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In this episode I will explore the health issues and concerns of the LGBTQ communities. I also talk about the administrations changes to health coverage and how the system overlooks and discriminates against this community.
Also is it possible for a Transsexual women to get lupus if taking HRT therapy. You will also learn Transgender Medical Terminology .
Lastly, you will hear about the Giveaway Rules for a Bed Bath & BEYOND Gift Card. Disclaimer- (Bed Bath & Beyond did not sponsor this giveaway. Purchase of the Gift Card was made by the Podcast Host Susan L. Hendrix).
Resources
Mayo Clinic ( 05, May 2020) Health concerns for transgender people. Retrieved from: https://www.mayoclinic.org/healthy-lifestyle/adult-health/in-depth/transgender-health/art-20154721
Int J Womens Dermatol. 2018 Dec; 4(4):212-215. Published online 2018 Oct 11.doi:10.1016/j.ijwd.2018.08.008 PMCID:PMC6322154 PMID: 30627619
Medical dermatologic conditions in transgender women
UPI (22 June 2020) LGBTQ groups sue Trump administration over transgender health rollbacks. Retrieved from: www.upi.com
Everyone deserves to be treated with Dignity and Respect regardless of your Race, Creed, Color, Socioeconomic Status, or Sexual Preference.
#lupus #healthcare #transgender #transsexual #mystorylivingwithlupuspodcast
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It's about psychological flexibility, being open to changing your thought process. You can thrive and remain positive while dealing with a chronic illness. You will hear tips to help you through the process. Psychological flexibility is a skill, and any skill can be learned.
chronicillness #lupus #thriving #positivity #psychologicalflexibility
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In this episode it is all about life lessons and making your life better with Life Coach Sheila Smith.
Also we will be honoring front line hero Gina Bryant .
This episode is sponsored by the Charlie E & Minnie P Hendrix Foundation for Chronic Illness Awareness. Contact the Foundation at (313) 303-9217, visit the website at: https://cemphfoundation.com this is a 501 (c)3 organization, all donations are tax deductible.
lupus #lifelessons #frontlinehero #cemphfoundation
If you would like to appear on My Story Living with Lupus Podcast contact: mystorylivingwithlupus@gmail.com
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In this episode you'll hear the latest in healthcare news, Stem Cell Crack down; More Opioid Lawsuits; Laundry Pods Still a Danger .
Detroit Children's Hospital Ousts Wayne State Pediatricians, 25 doctors "squeezed in the middle" of administrative dispute.
Resource
MEDPAGE TODAY (08, May 2020) Detroit Children's Hospita Ousts Wayne State Pediatricians
MEDPAGE TODAY (08, June 2020) Morning Break: Stem Cell Crackdown; More Opioid Lawsuits; Laundry Pods Still a Danger. Retrieved from: https://www.medpagetoday.com/publichealthpolicy/fdageneral/80255
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In this episode you'll hear the cause of inequality in healthcare, you'll also hear about health equity, health disparity, institutionalized racism and how it all affects the US Healthcare system. Lastly it is all about achieving health equity and understanding it is a collaborative effort and industry-wide imperative.
This episode is intended to get those in the healthcare field to change, and also to empower the healthcare consumer.
Resource
Health Catalyst (05, June 2020) Health Equity: Why it Matters and How to Achieve it. Retrieved from: https://www.healthcatalyst.com/health-equity-why-it-matters-how-to-achieve-it
NPR (05, June 2020) The Gap Between Rich and Poor Americans' Health Is Widening. Retrieved from: https://www.npr.org/sections/health-is-widening
#health #disparities #equity #inequities #lupus #lupusawareness #mystorylivingwithlupuspodcast
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In this episode I talk about racism and the death of George Floyd by a police officer. Please place the kids under the age of 18 out of the room, the events that took place left my heart and soul disturbed, so if you hear me get emotional in this episode just be patient with me.
Racism has to end.
georgefloyd #icantbreathe #blacklivematter #racismhastoend #yourkneeisonmyneck #mystorylivingwithlupuspodcast
I don't own the rights to the music*
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In this episode I break down my current diagnosis of Diastolic Dysfunction, which is the decrease in function of the ventricles of the heart. You will also hear about the 4 stages of DD.
I will also have a Q&A regarding my health, these questions were submitted via email and DM's.
Resources
Health Hearty (18, May 2020) Diastolic Dysfunction. Retrieved from: https://healthhearty.com/diastolic-dysfunction
#lupusawareness #hearthealth #diastolicdysfunction #heartfailure #heartsmart #lupus #chronicilliness
#mystorylivingwithlupuspodcast #podcasting #anchorfm #iHeartRadio
**(I don't own the rights to the music that is in this broadcast)
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In this episode you will hear from the Founder/Director of Abundant Harvest Aquaponics how this NPO is changing the lives of those living in the community of Colorado Springs, Co.
You will also hear about my second heart procedure which was done on May 12, 2020 and what the out-come was.
#aquaponics #health #chronicillness #lupus #lupuawareness #abundantharvestaquaponics
#foodforthebody #foodforthesoul
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In this episode you'll hear from Chronic Pain Advocate Edie Fuog telling her story of living in chronic pain.
You will also hear Facts On Chronic Pain, approximately 50 million Americans live with chronic pain today. Chronic pain costs society more than $100 billion each year. You will also hear 12 Things Only Someone with Chronic Pain Would Understand. I will also tell you about my upcoming May 12th heart procedure.
Resource
MTSU (03 May 2020) Facts on Chronic Pain. Retrieved from mtsu.edu/healthpro/ddocuments/chronic_painpdf.
12 Things Only Someone with Chronic Pain Would Understand (03 May 2020). Retrieved from: https://www.healthline.com/health/12-things-only-someone-living-with-chronic-pain-would-understand#4
chronicpain #awareness #lupus #stigma #discrimination #hearthealth
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In this episode I ask the question "If What Your Doing Today Will Get You Closer To where You Want To Be Tomorrow"? Now we have had the time to look at every part of our life while being on lock down. Some of us will make changes, and some wont. If you want to live a full life and enjoy the life your living well tune in and listen.
Will you come out the same way you went into lock down? or Will you come out with a better perspective of what you plan to do to achieving living your best life ever? The Choice is Your's.
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We all know May represents Lupus Awareness Month, but we live in awareness 365 days. So My Story Living with Lupus Podcast, is going to take one extra step. We are going to Break the Stigma of those living with chronic pain, and we are going to inform you how food can change your life.
So you know what I want you to do, yes you know the drill from the U.S. to South Africa, grab your cup of coffee, your cup of tea and to my listeners late at night grab your favorite glass of wine.
And join the conversation, right here on My Story Living with Lupus Podcast!
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In this episode, you will hear excerpts from JAMA NETWORK regarding the CV-19.
You will also hear my opinion regarding what needs to be done with the health care system.
Please check out the ASKWIN Podcast hosted by Author Win Kelly Charles, she interviewed me.
Resources
JAMA NETWORK (22, April 2020) COVID-19-Looking Beyond Tomorrow for Health Care and Society. Retrieved from: jamanetwork.com
Susan L. Hendrix (22, April 2020) The Fleecing of Americas Health Care System. ( This paper was written by me in college, and cannot be reproduced with out the express premission of Susan L. Hendrix, My Story Living with Lupus Podcast). All Rights Reserved.
Stay Safe, Stay Inside and if you have to go out PLEASE WEAR YOUR MASK AND GLOVES.
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In this episode you'll hear what causes hair loss with individuals with Lupus. You will also hear about the 9 reasons for hair loss.
Resources
Lupus Hair Loss (01, April 2020) Retrieved from: https://www.lupus,org/resources/hair-loss-and-lupus
VitalizeHair.com - VitalizeHair.com - Referral Link: https://thinedges.com/?ref=Y5QexsqQ6LzT
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In this episode you'll hear from Life Coach Sheila Smith on how to stay focused durIng COVID-19.
You will also hear about her new e-book that is soon to be released.
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In this episode we will pick back up on BSLE, you'll hear what the pathogenesis is and the biological mechanism that leads to a diseased state/ or origin and the development of the disease.
You will also hear about the treatments for BSLE. And lastly you will hear my call to you my listening audience for assistance for a worthy cause.
Resouces:
National Library of Medicine (07, April 2020) Treatment of Bullous Systemic Lupus Erythematosus. Retrieved from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4451988/
MDedge/Dermatology (07, April 2020) Bullous Eruption: A Manifestation of Lupus Erythematosus. Retrieved from: https://www.mdedge.com/dermatology/article/66886
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In this episode I will be discussing Mental Health during the COVID-19 Pandemic. What you can do to help yourself and others during this time. Helpful hints to use with children and teens.
If your or someone you know is in need to speak with someone about how you are mentally feeling, pick up the phone and dial 1-800-662-HELP (4357) the Substance Abuse and Mental Health Services are there to help.
Resources
Centers for Disease Control and Prevention Stress & Coping (02, April 2020). Retrieved from www.cdc.gov/coronavirus/2019-ncov/daily-life-coping/managing-stress-anxiety.html
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You'll hear the conclusion of HLE along with case study evidence. You will also be introduced to BLE what it is.
If you are a male and you have SLE and feel more comfortable speaking with another man, you can contact via Twitter Dion Langley (@dion_langley) he is fighting for you also.
If you would like to appear on a episode of My Story Living with Lupus Podcast you can contact us at: mystorylivingwithlupus@gmail.com
Follow us on: IG, FB, Twitter
Come on and join the conversation.
Resource
PubMed (23, March 2020) https://pubmed.ncbi.nlm.nih.gov/1285974
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Kelly Rogers is a wellness advocate for the past 20 years. She has provided nutritional guidance and has helped clients over the years with easy ways to supplement and adjust their diets to achieve the desired results, and she is here to tell you how to do it.
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I had a request from Twitter and ask that I would ask the Lupus Community regarding the use of Hydroxychloriquine a drug used for lupus patients, and now would like to be used for COVID-19. You'll hear from Michelle Hudson of Raw and Uncut Lupus Chronicles. She will give her true thoughts about what is going on.
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We've all heard and read what research has stated about females living with lupus, but my question is "What about the males who are living with this illness"? You will hear from Dion Langley talk about his symptoms, medications, and why he advocates for males who are living with lupus.
lupus #males #advocate #lupusawareness #beatlupus
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With everything that is going on in the world, it's time that we take a step back and say enough. It's time that we take care of our mental,physical and spiritual wellbeing. Join me for meditation.
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In this episode you hear exactly what HLE is. The signs, symptoms and who this illness affects, and the causes of HLE. This is the first part of a two part series about HLE. So go ahead Grab that cup of coffee, your cup of tea, and to those who are listening late at night grab your favorite glass of wine and join the conversation.
Resource
National Institute of Health Hypertrophic Lupus Erythematosus (29 February 2020). Retrieved from: https://www.ncbi.nlm.nih.gov/
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The World Health Organization (WHO) live update FOURM on the COVID-19 . As always become informed and knowledgeable. We here at My Story Living with Lupus Podcast will bring you updated information as we receive it.
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You'll hear about the origin of this virus, and the precautionary measures that should be taken. You will also hear the results of my thyroid ultrasound.
Stay safe, check on your neighbors and loved ones.
Resource
World Health Organization
CDC
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Yes this episode is about the eyes, and the use of HCQ better known as Hydroxychloroquine. You'll hear what reaserchers state about the damage that can be done when taking this medication an the importance of having your eyes checked routinely.
Resource - LupusNews Today
Resource-Picture of the eyes is the sole property of Susan L. Hendrix My Story Living with Lupus Podcast ("sm")
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Life Coach Shelia Smith discuss ways to put what's going on in the world into perspective.
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In this episode you'll hear about the side effects of when you mix alcohol and lupus medication, you'll also hear what some research states about Influence of Alcohol Consumption on the Risk of SLE Among Women in the Nurses' Health Study Cohorts.
Resource
Wiley Online Library Influence of Alcohol Consumption on the Risk of SLE Among Women in the Nurses' Health Study Cohorts (24 February 2020). Retrieved from: onlinelibrary.wiley.com/doi/full/10.1002/acr.22945
Al-anon https://al-anon.org/al-anon-meetings/
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In this episode you will here about a Nashville Tennessee hospital emergency room that is managed by an outside company that took 700 patient's to court for unpaid ER bills. Also you will hear the Weekly Round up in healthcare news, from fraud to Ghana Presidency? Another Sports Doc Abuse Scandal and much more.
Resources for stories: MedPage Today, and Kaiser Health News.
From the U.S. all the way to Saudi Arabia get ready to; Grab your cup of coffee, your cup of tea and to those listening late at night. You know I appreciate you grab your favorite glass of wine and join the conversation.
Please follow me on: FB, IG, Twitter, Periscope, YouTube- @mystorylivingwithlupus
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In this episode you'll hear about the connection between Hashioto's Disease and The Lupus Connection. Explanations of Lupus and Hashimoto's Co-existence. Polyautoimmunity, direction connection between lupus and thyrotoxicity, estrogen dominance as a trigger and genetic predisposition. So grab you cup of coffee, your cup of tea and to all my listeners late at night, now you know I appreciate you so grab your favorite glass of wine and join the conversation.
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In this episode I will discuss the What If's in Life, you know the What If I traveled to places I always dreamed of. What If I faced my fears?
What If I didn't waste my time on things that don't matter? It's all about the What If's in Life.
Follow me on Social Media: IG @iamlupus, Twitter- @story_lupus, YouTube-My Story Living with Lupus, Periscope- Susan Hendrix My Story Living with Lupus, Website: https://mystorylivingwithlupus.com
If you would like to appear on an episode to tell your story contact me at: mystorylivingwithlupus@gmail.com
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In this episode you' hear the difference between Non-Profit and Profit Hospitals and the differences in care for their patients.
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In this episode you'll hear what the endocrine system is, the origin of the word endocrine and the role that it plays with your body. You'll also hear about how lupus affects the endocrine system, along with some medications that is prescribed to control lupus. Yes the endocrine system is an infantry of glands that affects every cell and organ in the body.
Resources:
Endocrine News (28, January 2020) How Hormones Affect Lupus Treatment.
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In this episode of Life Lessons, Life Coach Shelia Smith talks about taping into your Gift in 2020.
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Do you believe that if you are physically and emotionally abused as a child a individual is at higher risk of lupus in adulthood? This is what researchers are stating, and you will hear what they state contributes to lupus in adulthood.
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In this episode you'll hear the demographics of individuals with lupus in Africa. You'll also hear about how lupus is difficult to diagnose for individuals in Sierra Leone and Gullah/Geechee of North Carolina. Resource retrieved from National Institute of Health
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In this episode you'll hear about what surprise medical billing is, how it works. You'll also hear about pharmaceutical drugs coming to the U.S. from Canada to lower drug costs.
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In this episode you'll hear what polyautoimmune is, and how it effects lupus patients. You'll also hear the latest in healthcare news. Yes it's your weekly roundup of news.
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This episode will describe how lupus affects the lungs, along with the treatments that are available.
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You'll hear about the Self-Dealing Surgeon Charged; Probation in VA Patient Death; Over Friendly Neurologist. You'll also hear the GIVEAWAY Rules and much more.
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Latest In Healthcare News and much more.
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In this episode you'll hear what researchers state about men and lupus. You'll hear about lupus symptoms in men VS women. And it's Bee's In The Trap? What it is and how you can get you some.
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In this episode Sheila will discuss Holiday Depression.
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In this episode you'll hear what researchers state how Hypertension Medication may help with memory loss and other cognitive issues. You will also hear the rules for the GIVEAWAY! So grab your cup of coffee, your cup of tea and if your listening late at night, you know I appreciate you so grab your favorite glass of wine and join the conversation. Information provided on this episode was retrieved from Science Daily
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In this episode you'll hear about what a Study shows regarding the exacerbating meds given to HF patients. You will also hear what it means to be thankful.
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In this episode you'll hear what researchers state about fatty acid having the ability to slow down the immune system. Also you'll hear the latest data which state that individuals with lupus are 3 times more likely to take opioids.
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In this episode you'll hear what expanding of Medicaid means to you. Do you believe that healthcare is a right or a privilege or neither.
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What have you done for others and yourself lately.
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You'll hear what Autoimmune Oophoritis is, the symptoms and the treatments.
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You'll hear why Treat to Target in Lupus is becoming a new paradigm.
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In this episode you'll hear about Lupus and Cancer, Is there a link? What does research state? You'll also hear the latest in health care news.
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Motivational Shelia Smith will be discussing self care.
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In this episode you'll hear the steps you need to put in place for your Autoimmune Repair Plan. You'll also hear breaking news if what's happening.
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In this episode you'll hear about the gynecological problems some women can experience when diagnosed with Sjogrens. I'll discuss the management /treatment aspect for this condition. You will also find out the winner of the GIVEAWAY. And you'll hear my response to a review . So you know what I want you to do that's right grab your cup of coffee, cup of tea, and if your listening late at night you know I appreciate you so grab your favorite glass of wine. DISCREATION IS ADVISED I dont own the rights to any music that you hear in this podcast***
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In this episode you will find out what CFIDS is. The symptoms, diagnosis and treatment. You will also hear the rules for the GIVEAWAY! SO GRAB YOUR CUP OF COFFEE, YOUR CUP OF TEA AND IF YOUR LISTENING LATE AT NIGHT YOU KNOW THAT I APPRECIATE YOU SO GRAB YOUR FAVORITE GLASS OF WINE, and come on join me for another episode of My Story Living with Lupus.
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In this episode you'll hear about Ascites, what it is, and how Lupus can cause it.
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In this episode you'll hear exactly what MCTD is, you'll find out if it is connected to Lupus. You will also hear if Sarcoidosis is an Autoimmune Disease with symptoms similar to lupus. The latest in Healthcare News and much more.
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You'll hear from Motivational Speaker, Creator of Rightsideof50 and Life Lessons on How to Be a Better You. This is Session 2 of Episode 2
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You'll hear the most common reasons why individuals with lupus are hospitalized and research shows why they are readmitted back into the hospital. You'll also hear about PAH, and what I've been going through dealing with this rare condition. djpglTThKnTpKPmaEaoH
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In this episode you'll hear some statistics on breast cancer, but most importantly you'll hear Motivational Speaker Tasha Brown tell her story of surviving breast cancer.
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In this episode you'll hear how low disease activity reduces healthcare cost, and why its important for physicians of lupus patients, to try to educate patients on how to get to this state. Also you will hear how Progentec has developed new technologies that could possibly diagnose patients early and also can tell when a patient will go into a flare. This is done by biomarkers.
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In this episode you will hear what the purpose of the Lupus Family Registry and Repository is, you will also hear about the weaknesses and strengths of the Lupus Family Registry and Repository. You will also hear about the National Lupus Registry and the purpose it serves.
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In this episode you will hear from Motivational Speaker and Creator of Rightsideof50
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What does the medical field consider to be the major challenges in lupus in 2019? Also you hear about cardiac issues in minority populations who have been diagnosed with lupus, who's at higher risk for cardiovascular disease?
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In this episode we will discuss some of the problems patients with lupus has when it comes to their teeth. You will also hear the winners of the poetry contest given by Author Henery X.
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In this episode you'll hear about human rights. Trump Administration views on providing soap for children in immigration custody. Is this a violation of the children's human rights? I give my opinion.
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In this episode you'll hear about a jury that awarded a woman $3M, also do you need help getting your Rx, and Detroit's own Author Henery X has a poetry contest. So you know what to do grab your cup of ☕ your cup of 🍵 and if your listening late at night you know I appreciate you so grab your favorite glass of 🍷 and join me for My Story Living with Lupus!
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In this episode you'll hear about Dead Kids, Hospital's Secret Tapes; Hush-Hush Alzheimer, Trina CEO Going to jail. Also Ebola Funds Wont Help Congo Until The Disease Spreads and finally Inpatient Opioids Influence At-Home Use. So you know what I want you to do grab your cup of ☕your cup of 🍵 and if your listening late at night you know I appreciate you, so grab your favorite glass of 🍷and come on and join m ed right hear on My Story Living with Lupus Podcast.
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In this episode you will hear about the affects of corticosteroids usage and the damages it causes on children with lupus. You will also hear about the Charli ed E & Minnie P Hendrix Foundation endeavours that will start in January,2020
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In this episode you'll hear exactly what the Rightsideof50 is all about.
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In this episode you'll hear a Motivational word, along with music to touch your spirit
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You will exactly what the Hatch-Waxman Act is and what it means to the patient and the impact on the pharmaceutical industry. You will hear about a natural herb that I have been taking for pain. And finally you will hear two interviews first Katherin Eban, and secondly lawsuit that has been filed against the generic pharmaceutical companies, which was aired on PBS NewsHour.
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In this episode you will hear if PTSD in Veterans really cause autoimmune diseases such as lupus. You will also hear about The Warrior Stands In Their Pain. So you know what to do, grab your cup of coffee, your cup of tea and if your listening late at night grab your favorite glass of wine and join me right here on My Story Living with Lupus".
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In this episode you will hear that half of Americans still don't or shall I say fail to realize what lupus is. Also you will hear about the Warrior/Champion Strength.
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In this episode I will provide to a message that will make you think and reflect on your life living with Lupus. You will also hear questions from a lister for Author Henery X (Long).
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In this episode you will hear about 60 doctors and Pharmacists who were busted. Also Antoinette Thames tells her story of Living with Lupus.
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In this episode you will hear recent research performed by NYU Medical School. You will also hear about Award Winning Short Film Standing Eight. You will hear my interview of Detroit's own Author Henery X (Long) he will be telling you about his current book "It Was Destined...Urban Legend ". So it back grab your cup of coffee, your cup of tea and if your listening late at night grab your favorite glass of wine.
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In this episode you will hear about $1.2B scam bust by the Feds, also you will learn about Nash, what it is, signs, symptoms and treatments.
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You'll hear Pastor Ken Simmons keep it real with Inspirational and Motivational word to keep you going.
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This is an Inspirational Word to get you through your day.
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In this episode you'll hear the statistics regarding those who are living with HIV/Aids in the U.S. and Globally especially in Sub-Saharan Africa. You will also hear about the proposed health care cuts to Medicare and Medicaid.
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In this episode you will be surprised of what these two illnesses have in common. You will also hear a case study journal publish in the NIH (National Institutes Of Health ).
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Coming up this Friday 2 part series.
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It's Inspirational and Motivational Tuesday with Pastor Raymond Collins of Houston, TX.
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In this episode you'll hear about what leukopenia is, the signs and symptoms and how it is diagnosed. You'll also hear about a research study regarding cytopenia amongst individuals diagnosed with lupus which was reported in Lupus News Today.
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This episode is intended to give you a word of inspiration that will motivate you throughout the week.
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In this episode I will talk about the Oak Park, Michigan Doctor and Son who were raided on Tuesday. And I will also explain what Step - Therapy really is. Follow me on Twitter, and IG My Story Living with Lupus. Also visit our website.
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We all go through situations in life, but how we react to those situations can truly determine the out come. You'll hear not only an Inspirational word but a motivational word of hope with Pastor Ken Simmons of Merriville, Indiana.
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In this episode you'll hear about the what exactly is hemolytic anemia, signs, symptoms and treatment for those of us with lupus. So you know what to do.
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In this episode I will talk about what PH is, the development of PH in patients with SLE, PH and SLE diagnosis and prevalence, treatment of PH in patients with SLE. You will also hear about the research that has been published on this topic. You can follow mystorylivingwithlupus on #IG and visit our website https://mystorylivingwithlupus.com contact me via email: mystorylivingwithlupus@gmail.com
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In this episode you'll hear about the differences in symptoms, pain, causes and treatment. You will learn about CRPS and what it is. Also listen closely because I'm doing a giveaway.
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In this episode you'll hear about What Is Cardiac Catheterization? What the procedure entails, risk and why one was performed on myself. #hearthealthmonth
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In this episode you'll hear about the signs, symptoms, causes and coping strategies for dealing with Lupus Brain Fog.
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In this episode you will hear about the different types of Bipolar Disorders, symptoms and treatments. You will also hear how lupus can cause Bipolar - Like Mood Symptoms
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You'll hear about two women who have become authors despite of living with lupus. You'll hear email responses and you'll hear about the Most Common Misconception about Lupus.
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In this episode you'll hear about why Gabapentin has become a controlled substance in Michigan. You will also hear about the similarities and differences of lyme disease and lupus.
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You will hear uplifting and Inspirational gospel music from various artists. ENJOY!
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You will hear music from Boney James, Jaheim, and Anita Baker. Enjoy
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You will hear research findings/ statistic on Opioid Use and Death in Chronic Pain Patients with Systemic Lupus Erythematosus . You will also hear an interview on Racial bias in treatment in pain patients.
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You will hear thought provoking spoken word from his book Positive Energy 24/7. writepath247.com You will hear the latest from Tuskegee Alum Granddaddy O.G. - "On Me" (sound cloud)
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In this episode you'll relax to the smooth sounds of jazz to relax your mind and spirit. Enjoy
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You will hear various gospel recording artists
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In this episode, you will here facts and Statistics regarding the Opioid Epidemic. This is Part 1 of a 2 part episode.
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Music from a variety of gospel singers.
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Call in from Author Henery Long, and my response.
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In this episode I discuss Alternative Treament for Pain Management that is less harmful to the body of lupus patients.
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Happy Holidays, from My Story Living With Lupus
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In this episode you'll hear about how lupus affects the kidneys and the stages of chronic kidney disease. Also you'll hear about a lupus warrior who is in need of a kidney donor.
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You will hear selections of Author Henery Long work, from Positive Energy 24/7
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Inspirational Gospel Music to uplift your soul.
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Interview with Executive Director Scott Bruun of the Chronic Disease Coalition HQ.
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Inspirational gospel songs.
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In this episode I provide the listner with their rights as a patient. In the second half of the podcast Michelle Hudson tells her story of Living with Lupus.
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Inspirational gospel music from various artists.
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What if talks about two different situations regarding medical care and treatments.
What If It Happened To You?
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I'll discuss how to live a new normal with a chronic illness.
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You will hear inspirational music from various artists.
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New Research on Lupus.
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You will hear the inspirational music of various artists.
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You will hear excerpts from Author Henery Long book Positive Energy 247. You will also hear the music of Tuskegee University Alum Granddaddy OG.
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Conversation with my doctor regarding communicating better with lupus patients.
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I pose the question "Do You Want To Make It? You will hear a variety of inspirational gospel music.
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In this episode, I will discuss the rate of suicide with patients with SLE, along with Neuropsychiatric Manifestations of SLE. National Suicide Prevention Lifeline: 1-800-273-8255
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You will hear songs from Pastor Marvin Sapp, Pastor Donnie Mc Clurkin, Rev. James Cleveland, The Queen of Soul Aretha Franklin, Tramaine Hawkins and MC Hammer
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I'll discuss if lupus patients suffer from depression. Also I will give the symptoms and signs of clinical depression.
elitecircle🔘
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Songs to give you encouragement featuring Marvin Sapp, Marvin Winans
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You'll hear an interview with The Lupus Foundation of America, Utah Chapter CEO & President Elia Perez
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I'll discuss the Pros and Cons of Healthcare as a Right or Privileged. Also you will hear a portion of a paper I written while working on my Master Degree (The Fleecing of American Healthcare System). This paper entails how some doctors order duplicate testing and services on patients which can ultimately raise healthcare expenditures. Also the paper details the need for healthcare for all.
ELITECIRCLE
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Tomaka Monique Lewis-Cooper tells her story of Living with lupus.
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I'm talking about Brett Kavanaugh and the importance of getting out to vote in November.
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In this episode you will hear statistics on the Native American Population Dealing With Lupus.
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The forgotten population, I'll be discussing the challenges in lupus that Native Americans face.
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In This episode you will hear about what ANA testing entails and why it is performed. You will also hear about the acronym SOAP and what it stands for.
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In this episode I will inform you on the 11 SLE criteria when dealing with lupus.
You will hear from Delebra Hudson on living her life with lupus.
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Episode 6 is dedicated to Wanda Allen who gained her Angel Wings. Also you will hear about how heart disease is a major complication of lupus. You will also hear about the day my heart stopped November 2014.
Please help bring Awareness to this Chronic Disease Called Lupus, we are in need of further funding for research for a cure.
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In this episode you will hear about how Abundant Harvest Aquaponics is providing organic produce to the community and schools. You will also learn how I changed my eating habits after being on Prednisone, and what chemicals are placed in foods, along with the use of antibiotics to make livestock grow bigger.
Remember dont Live to Eat instead Eat to Live, your body is a Temple.
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In this episode I will be discussing the cost of treating an individual with lupus. The impact that this chronic illness causes and one of my experiences of being admitted into the hospital.
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In this episode you will hear about my family's reaction to my lupus diagnosis.
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In this episode I will explain how I had to find the right doctor to help control the symptoms of lupus. You will also find out why I keep my illness from my family and when they were finally informed about my illness.
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