I'm Dying to Tell You: Recent Episodes
Lorri Carey
Hi, I’m Lorri. I’m dying from ALS, a fatal disease with no cure. I’ve been encouraged by so much to keep LIVING this life and stay focused on the positive. I created this podcast to find & share stories of inspiration in hopes of inspiring you. I'm offering an opportunity for you to continue the conversation after each episode. To join my Podcast Community Group on my Facebook page. There you can interact with guests, ask guestions, give suggestions about episode topics or simply encourage others. To connect more. I'm happy you're here!
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In this special roundtable episode, I welcome three fellow ALS podcasters for a conversation about the stories that stay with us, the people we’ll never forget, and why a microphone can become a lifeline.
So happy to chat with Alison Burell-Stanley and David Stanley, hosts of I Lost My Person, who share how losing spouses to ALS eventually led them to friendship, love, and a shared mission of helping others navigate grief. Together they talk about remembering the people we’ve lost, saying their names, laughing at the memories, and discovering that joy and grief can exist side by side.
Cory Mosley, host of ALS Matters, offers the perspective of someone living with familial ALS while navigating the realities of treatment, advocacy, and uncertainty. He shares what he’s learned about turning overwhelming medical information into conversations that people can actually understand—and why stories often teach us more than statistics.
Together, we discuss: living with grief while still finding joy, what listeners have taught us over the years, how podcasts create community when people feel isolated and more.
If this episode encouraged you, please subscribe, leave a review, and share it with someone who needs to hear these stories. Every share helps another family find hope. Hugs, Lorri
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What happens when the life you’re just beginning suddenly changes forever?
Hannah Broermann and Logan Chowning were newly married, building a home, and dreaming about the future when Hannah began experiencing symptoms that eventually led to a diagnosis of ALS at just 27 years old.
In this episode, Hannah and Logan share the shock of diagnosis, the uncertainty that followed and how they’ve learned to navigate marriage, caregiving and a future they never expected. They also open up about finding strength in community, embracing hope, and choosing to keep building a meaningful life together.
Whether you’re living with ALS, supporting someone you love, or facing an unexpected challenge of your own, I hope this conversation reminds you that even when life changes, hope and love can still grow.
In this episode:
• Young onset ALS
• ALS diagnosis at age 27
• Marriage and caregiving
• Finding strength through community
• Living with hope and purpose
If this episode encourages you, please follow I’m Dying To Tell You, leave a review, and share it with someone who could use a little hope today. If it's on your heart, follow Hannah and Logan on Facebook and attend or support their upcoming Hope for Hannah event. Hugs, Lorri
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Here, I’m joined by six members of Many Shades of ALS, a community team within I AM ALS, for a roundtable that breaks the stereotype of who gets ALS.
We talk honestly about “ghosting” after diagnosis and why people disappear even when they care, then get specific about what real support looks like. We also name the moments that sting most: when people speak to our caregivers instead of speaking to us, or when impatience turns a conversation into a dismissal.
Many Shades of ALS also pushes the bigger fight forward. We dig into awareness gaps for people of color, the need for natural history studies, and why diverse ALS clinical research is not optional if we want better treatments and, ultimately, a cure.
If this conversation changes the way you think about ALS, help us widen the circle: subscribe, share this with a friend, and leave a review so more listeners can find these stories. Thank you for listening. Hugs, Lorri
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Meet the inspiring duo behind the @unsteadyandready Instagram account, sharing life with ALS. Here, I sit down with Erin Taylor, diagnosed with ALS at 23, to hear what it’s like to build a life in your twenties while your body changes fast and your natural voice fades. Erin and her mom Lily show us how advocacy, humor, and everyday love can keep you feeling like a whole person even when ALS is always in the room. We chat about:
• Grieving lost dreams and rebuilding purpose through ALS advocacy
• Losing a natural voice and using eye gaze with an AI clone voice
• Choosing authenticity online to help others feel seen
• Managing dark moments by focusing on what we can control
• Finding joy in small outings and planning energy for big experiences
Erin shares her heart to educate people that ALS can affect anyone, even someone in their 20's. She said she didn't know that was possible when she was diagnosed. If you'd like to share Erin's message, please send this episode to a friend. Thank you. Hugs, Lorri
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For six years, Sam Cunningham felt the subtle but persistent signs that something in his body wasn’t right—leg heaviness, twitching, and strength loss that didn’t add up. As an athlete, he knew his body, but getting answers proved to be a long and frustrating journey. In this episode, Sam shares what it’s like to finally receive an ALS diagnosis at 35, the emotional weight of being both devastated and validated, and how persistence, detailed documentation, and the right clinician ultimately connected the dots. We also explore exercise and ALS, adapting to new limits, and how faith, mindset, and unexpected support are helping him navigate this next chapter. Thank you for listening in. Hugs, Lorri
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This episode is tender. In 2021, I interviewed a 28-year-old woman named Leah Stavenhagen. She had been diagnosed with ALS at 26. I remember thinking how young she was. How unfair it felt. But Leah didn’t shrink after her diagnosis. She built something incredible. What began as “In Her ALS Shoes” is now known as Her ALS Story — a sisterhood for women diagnosed with ALS under 35. A place to feel seen & less alone. She also set out to show that ALS was not an "older white man's disease," that it could hit anyone, any age. Leah recently passed away at a young 33. Here, I sit down with 3 young ladies who are all living with ALS & active in Her ALS Story. Angelina Fanous, Gwen Petersen and Karin Pacold share what Leah meant to them personally & the impact of the Her ALS Story community during their own battle with ALS. As someone diagnosed with ALS at 38, I know the value of this sisterhood that Leah created. It truly can be a lifeline. I’m honored to share this tribute episode for Leah as we reflect on her impact and continue our fight in her memory. Thank you for listening and sharing in memory of Leah.
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Grammy-nominated, platinum-selling singer-songwriter Eric Paslay joins me to talk about about the night he drew my song idea out of a hat.
Eric brought his unique songwriting experience, "Song In A Hat" to Hop On A Cure's "Harmony for Hope"" event and something magical happened there. My "Song In A Hat" idea was randomly drawn. This led to me joining musicians Eric Paslay, Kristian Bush, Chris Gelbuda, Cyndi Thomson and DJ Goodman on stage to witness my song idea turn into an actual song - in under just 10 minutes. My idea was "Come Into Our World." My intent was to have a song created that would invite others to understand ALS and join our fight for a cure. Here we learn more about this master of music, talk about that evening and how we can wrap up the song and release to the world.
Eric has made a significant impact on the music industry with his hit singles "Friday Night", "Song About a Girl", and "She Don't Love You". He has written and co-written many hits for other artists, including Lady A, Rascal Flatts, Keith Urban, Amy Grant, Dierks Bentley, Charles Kelley and more.
Eric co-wrote Jake Owen's "Barefoot Blue Jean Night", the Will Hoge/Eli Young Band song "Even If It Breaks Your Heart", and Love and Theft's "Angel Eyes" all of which were number 1 singles on the country charts.
He was diagnosed with Type 1 diabetes at 10 years old, and uses his platform to advocate for diabetes awareness, inspiring and supporting others living with the condition.
Listen in to our heartfelt and powerful conversation bursting with HOPE. Thank you for sharing with a friend.
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In this deeply moving episode, I sit down with Salym Liufau, a 33-year-old mother of four living with ALS, whose grace and honesty have touched thousands online. Salym opens up about adapting to a body that’s changing while holding tight to joy, purpose, and presence. We talk about motherhood in the face of uncertainty, the traditions she’s building for her children, the legacy she hopes to leave behind, and the truths she feels called to share while she still can. This conversation is tender, grounding, and a powerful reminder to live with intention, love boldly, and never postpone what matters most. Salym is also an active member of Her ALS Story, a non-profit organization specifically for women diagnosed with ALS before the age of 35. Thank you for listening and sharing with a friend. Hugs, Lorri
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In this second part of my chat with 33-year-old widow Melanie Lang, we talk about her & her husband Tyler’s biggest miracle, their daughter. Tyler only spent 6 weeks with his precious baby girl before he died of ALS at a young 33.
Melanie’s perspective & big heart shines through as she talks about using their platform “Don’t Waste A Day” to help other families in Tyler’s memory. Her family will be raising funds to send ALS families on vacations that they wouldn’t experience otherwise.
To learn more about Melanie’s first “Don’t Waste A Day” event, visit here: https://www.dontwasteaday.org/
Listen in & share with a friend. If it’s on your heart, leave a review to help others find this sweet message. Hugs, Lorri
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I catch up with 33-year-old widow Melanie Lang to share how she and her husband Tyler faced ALS with relentless honesty, deep faith, and a simple motto that became their North Star: Don’t Waste A Day!
If you’re navigating illness, grief, or the heavy unknown, this conversation offers a grounded way forward: focus on today, serve the people in front of you, and let purpose be practical. Listen, share with someone who needs strength, and leave a review to help others find this story.
Hugs, Lorri
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This Veterans Day episode brings together three service members living with ALS—Liz Fassler (Army), Ron Faretra (Air Force), and John Hudacek (Army)—to share how the discipline, teamwork, and purpose they learned in uniform now guide them through life with this disease. They talk candidly about the realities of ALS, the unique challenges and resources available to veterans, and the importance of building a strong support team. Through stories from the field and insights from daily life, they offer both practical guidance and a reminder that courage doesn’t end when service ends—it evolves. Thanks for listening and sharing with a friend. Hugs, Lorri
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In this Happy Hour Chat, I talk with Tina Cascio, Mira Hudson and Kelly McGinn, all young women who share their journey living with ALS after being diagnosed in their 20's and 30's. John Driskell Hopkins of Zac Brown Band who is also battling ALS joins the conversation too. We discuss finding community, maintaining independence, and embracing joy despite a terminal diagnosis. Tina has familial ALS with the SOD1 mutation and has been living with it for nearly five years. Kelly was diagnosed two years ago and is balancing motherhood and ALS. Mira had symptoms since age 14 but was misdiagnosed for years before her ALS diagnosis at 24. John (Hop) continues performing with Zac Brown Band and will play at the Sphere in Las Vegas in December. The ladies share their fun experience attending a retreat in Cape Cod with 40 other Her ALS Story members. I love how they each emphasize the importance of community over isolation when battling this terminal illness. Follow Her ALS Story and witness the incredible strength of this group. Join John Driskell Hopkins for Harmony for Hope on October 18th in Atlanta, a fundraising gala for ALS research featuring world-class singer-songwriters in an intimate format. Thanks for listening and sharing with a friend. Hugs, Lorri
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This episode follows the powerful and unexpectedly uplifting story of Jake Popyura, a musician and multi-instrumentalist in the indie rock band Supermilk, who was diagnosed with ALS at just 38. Rather than despair, Jake felt relief—finally understanding the cause behind years of unexplained symptoms. As his physical abilities shift, Jake and his bandmates have chosen adaptation over retreat, pouring their energy into their recent album Lazy Teenage Boasts. Balancing terminal illness, mental health challenges, and a relentless creative drive, Jake leans into dark humor and online community to navigate the journey. His story is a testament to resilience, reinvention, and finding meaning through music in the face of life's harshest realities. Thanks for listening. Hugs, Lorri
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The emotional aftermath of losing someone to ALS is a journey rarely discussed but vitally important to understand. Caroline, Jill, Jenny, and Deb—four remarkable women who lost husbands and a sister to ALS—share their paths through grief toward finding purpose and even joy again. Years after their losses, these women formed "Antiques Roadshow for ALS," a cycling team of women over 60 who donned pearls, vintage clothing, and tutus while raising over $28,000 for ALS TDI's research. Their stories reveal the complex reality of grief—how it never truly ends but evolves into something you learn to carry alongside new experiences and memories. These women candidly discuss experiencing depression, anxiety, and PTSD years after their losses, normalizing these ongoing struggles while demonstrating that healing doesn't mean forgetting. For those currently caregiving or recently bereaved, their stories offer a glimpse into a future where community, purpose, and even joy remain possible. Enjoy the listen and thanks for sharing with a friend. Hugs, Lorri
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In this heartfelt episode, we meet the individuals behind Always Lifting Spirits, Chair Force 1 Foundation, Operation Ramp It Up, Que4Care and the Cincinnati Reds — a community who turned their ALS grief into life-changing support for others. From accessible vans to wheelchair ramps to lift chairs and patient care, these local nonprofits are honoring those they've lost to ALS, by providing crucial support to ALS families. Although their capacities so far only allow them to meet the needs of local families, it's a beautiful example of what happens when we lead with love, faith and community. These four Ohio/Kentucky based foundations have also formed a powerful partnership with the Cincinnati Reds for Lou Gehrig Day on June 2nd. All MLB teams will be hosting their own Lou Gehrig Day on or around June 2nd as well. Thanks for listening to this story of legacy, love, and community in action. Hugs, Lorri
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Here, Elin Adcock shares her powerful journey through her husband’s ALS and frontotemporal dementia (FTD) diagnoses—and how she’s now leading the charge to support families facing the same fight. When Elin's husband, Larry was diagnosed with both ALS and FTD, her world changed forever. In this episode, Elin shares how she navigated the overwhelming challenges of caregiving through two devastating and progressive diseases—often without a clear roadmap or coordinated support. After her husband’s passing, Elin turned her grief into action, becoming a fierce advocate for families facing similar dual diagnoses. Her story is one of love, resilience, and the power of transforming personal loss into lasting impact. Whether you're a caregiver, healthcare professional, or someone seeking hope amid hardship, this conversation offers insight, inspiration, and a call for greater awareness. Thanks for listening and sharing with a friend. Hugs, Lorri!
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When faced with an ALS diagnosis, finding trustworthy information shouldn't add to your burden. This episode introduces a groundbreaking solution born from one son's love for his father.
Vikram Bhaskaran takes us through the painful journey that sparked innovation – watching his father battle ALS in India while struggling to access reliable information and expertise. The stark contrast between his Silicon Valley tech job, where brilliant minds created seamless user experiences, and the "dark ages" of health information access, drove him to action. The result? ROON.
Roon addresses the three dimensions of living with ALS – medical knowledge, practical daily concerns, and the emotional/existential questions that arise. Through short, digestible videos, users can find answers to questions they might never get to ask during brief clinical appointments.
This episode offers a masterclass in turning personal tragedy into purpose. Beyond highlighting a valuable resource for the ALS community, it demonstrates how technology, when designed with genuine empathy, can create what Vikram beautifully describes as "a doctor friend who has your back."
Download Roon to experience this sanctuary of knowledge, where the burden of searching for reliable information is lifted, and a community of experts and fellow patients are ready to help. Thanks for sharing with a friend. Hugs, Lorri
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What happens when you learn that your DNA carries the same mutation that led to a loved one’s battle with ALS? In this episode, I sit down with Mindy Uhrlaub, who discovered she is a carrier of the C9orf72 gene—the most common genetic cause of ALS and Frontotemporal Dementia. Mindy shares her emotional journey of genetic testing, the weight of living in the unknown and the unique challenges that come with being pre-symptomatic.
We dive into the mental and emotional impact of her hereditary disease, the stigma surrounding genetic conditions, and how humor, advocacy and community can help navigate these uncertainties. Mindy also talks about her work with End the Legacy, a patient led organization dedicated to the needs and interests of the Genetic ALS & FTD community.
This powerful conversation is a reminder that while genetics may shape our path, they don’t define who we are. Tune in for an honest, hopeful discussion about fear, resilience and finding purpose in the face of the unknown. Listen in and share with a friend. Hugs, Lorri
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Welcome to "I'm Dying to Tell You," where we shine a light on resilience and hope. In this special episode, we’re celebrating six years of I AM ALS, an organization created for patients, by patients.
Why is this so important? Because for far too long, those most impacted by ALS weren’t leading the charge in our collective mission for a cure. But I AM ALS changed the game. By putting patients at the forefront, they are not only better equipped to serve the ALS community, but we’re operating on the ALS clock—pushing for accelerated progress every single day.
Today, I’m thrilled to chat with four incredible volunteers, Tim Abeska, Randy Gregory Jr., Cristy Hardin & Deb Winters about how I AM ALS continues to be driven by patient voices, advocating, empowering, and fighting to make ALS a thing of the past. We'll dive into the work of the I AM ALS Community Teams, their ongoing efforts, and how YOU can get involved in this powerful movement.
So, listen in and be inspired to join these teams of patients, caregivers, and advocates who prove that the impossible is possible—every single day. Thank you for sharing this celebration. Hugs, Lorri
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Here I chat with Dr. Richard Bedlack, a neurologist known not only for his relentless ALS research but also for his unique style. This episode unfolds the fascinating story of how an encounter with legendary designer Manuel Cuevas led to the creation of a special jacket that embodies Dr. Bedlack's fight against ALS. We also celebrate the powerful alliances formed through advocacy, as highlighted by a heartfelt recognition from Zac Brown Band's John Driskell Hopkins. I loved hearing him talk about how fashion, music and medicine are all playing a part in the battle against ALS.
For 24 years, Dr. Bedlack of the Duke ALS Clinic has been at the forefront of ALS research, driven by a childhood fascination with the brain. His journey has been marked by pivotal moments that shaped his dedication to building a program offering hope and options for ALS patients. Here, Dr. Bedlack reflects on the significance of HOPE, not only as a treatment strategy but as a vital component of navigating life with ALS.
Dr. Bedlack also shares his learnings after studying the 62 known cases of ALS reversals. This episode is a testament to the relentless pursuit of a brighter tomorrow, where there is a world without ALS. Listen in and share with a friend. Hugs, Lorri
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Imagine facing a life-changing ALS diagnosis and tackling it with resilience and positivity. That’s what Johnny Rodriguez, a 35-year-old high school lacrosse coach, husband, and father, has done. Johnny’s story is one of inspiration, determination, and the power of community. From playing lacrosse in Hawaii to mentoring athletes at Mater Dei High School in Santa Ana, California, he pushes the boundaries of what’s possible with ALS.
Johnny’s support network and the lacrosse community have been vital in fueling his fight. As a coach, he not only develops athletes but also teaches life skills and resilience. With a holistic approach to managing ALS—including ice baths, meditation, and advocacy through Athletes vs ALS—Johnny exemplifies hope, unity, and perseverance. His journey reminds us of the strength in community and the relentless pursuit of life’s possibilities. Listen in and share with a friend. Hugs, Lorri
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What if two young siblings could inspire an entire community to rally against a devastating disease? Brady and Brooklyn Yozwiak from Hudson, Ohio, are doing just that with their initiative, Clayton Rakes. Their story begins with a deeply personal journey, motivated by their father Chris's battle with ALS. Sadly, Chris passed away in early 2024, but these incredible kids, aged just 11 and 8, have turned their grief into action by raising substantial funds for ALS research through their leaf-cleaning enterprise. Tune in to learn how their heartfelt mission is making waves, proving that age is no barrier to making a significant impact.
From neighborhood events featuring merchandise tables, food trucks, and entertainment, the Yozwiak siblings have mastered the art of community outreach, having raised nearly $330,000 so far. Join us as we hear Brady & Brooklyn talk about community support and how friends, family, and neighbors have rallied around their cause. Hear the powerful lessons they've learned about resilience, creativity, and leadership in the face of adversity. Their commitment to support ALS research is powerful, as they continue to build on their father's legacy and encourage others to join them in the fight against ALS. Thank you for sharing this precious chat with a friend and visiting their fundraising page directly supporting the ALS Therapy Development Institute. Hugs, Lorri
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"LUKi and the Lights" is not just an animated short film; it's a beacon for children trying to grasp the complexities of ALS. Inspired by the real-life journey of Anjo Snijders and Sascha Groen, this episode unravels how their personal ALS/MND experiences fueled the creation of a groundbreaking resource for families worldwide. Hear how the layers of creativity, medical accuracy, and emotional authenticity make this film a vital tool for understanding ALS/MND.
Meet my insightful guests — Toby Cochran, Adrian Ochoa, and Dr. Melinda Kavanaugh — who reveal the unexpected journey behind this project. Dr. Kavanaugh shares her unique path into the collaboration, while Toby and Adrian discuss how this team navigated challenges to create a story that resonates globally and transcends cultural and linguistic barriers. Their dedication ensures the film retains its heartfelt essence and medical integrity, proving invaluable for children and families.
Beyond the screen, "LUKi and the Lights" is making waves with its global reach and festival appearances, even vying for Oscar consideration. As a follow-up to this episode, we invite you to participate in a Special Virtual Screening, Tuesday, November 12th at 7pm EST, where you can connect with the creators and delve deeper into the mission of spreading ALS awareness. Join us in supporting this initiative by visiting Global Neuro YCare’s website to help bring LUKi's message to families worldwide. Thank you for sharing LUKi with your friends and family. If it's on your heart to review this episode to help share LUKi, thank you for doing so!
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To celebrate Episode 100 of this podcast, here I chat with 100-year-old Mildred Kirschenbaum. Mildred has become a social media star and is happily sharing some life lessons of her ten decades. She not only became an author at 100, Mildred entertains over 100,000 on TikTok and Instagram. Her videos have been featured on mainstream media outlets like the Today Show, CBS and Fox. Mildred and her daghter Gayle collaborated on a book, Mildred’s Mindset: Wisdom from a Woman Centenarian, a 76-page self-published book that melds anecdotes, photos, and life advice. In Mildred's book, readers embark on a journey through the extraordinary life lessons of a centenarian whose vitality and wisdom defy age. The New York-born Kirschenbaum became a viral sensation almost immediately by being herself and sharing what she has learned over the past 100 years. I was so grateful to ask her about the what she believes is most important in life and of course what she's "Dying To Tell" us. Mildred stands as a testament to the power of embracing life's joys, fostering connections, and approaching each day with unwavering zest. Enjoy and thank you for listening. Hugs, Lorri
Thank you for celebrating this special milestone by inviting your friends to listen in. If you love listening to this podcast, please leave a rating & review by scrolling down my show page, selecting a star rating, and tapping “Write a review” here.
I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
In this conversation, Aaron Lazar shares how he discovered a new life purpose after being diagnosed with a terminal illness, ALS. Aaron has been in the spotlight for over two decades in his successful career as a singer, actor and now speaker and advocate. Aaron took a couple years before going public with his ALS in order to discover how he would shape and control his future. As a result, Aaron is currently rebuilding his life to achieve his new impossible dream which is healing in face of unspeakable adversity. Here, Aaron talks about his perspective on the importance of a positive mindset and living in the present moment. His beautiful message will inspire anyone seeking a more successful, purposeful and resilient life. Aaron has found creative and entertaining ways to put his message out. The most recent being a star studded album titled "The Impossible Dream" which was created to raise awareness and help end ALS. 'The Impossible Dream" is available now and includes artists such including Tony and Emmy winning film star Neil Patrick Harris, multi platinum, singer, songwriter, and Tony nominee Josh Groban, Emmy, Grammy, Tony, and Pulitzer Prize winner Lin-Manuel Miranda, Tony and Emmy winner Kristen Chenoweth, Tony winner Kelli Ohara and Tony, Grammy and Emmy winner and Academy award nominee, Leslie Odom, Jr. and many more. I'm so incredibly grateful to Aaron for opening up about his personal journey with ALS. He inspires me in my own ALS journey. Thanks for listening, Hugs, Lorri
I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
Grateful to catch up with John Driskell Hopkins (Hop) again to see how he’s doing with his ALS diagnosis. About 2.5 years after being told he had ALS, John continues to perform with the Zac Brown Band. Despite seeing some progression of the disease, Hop is living a full and joyful life. He's busy creating new music, being a family man and promoting Hop On A Cure, the foundation he & his wife, Jennifer started to accelerate ALS research. Hop shares how ALS is affecting him & what it’s like living out this journey in the public eye. He updates us on his family, his music projects & how we all can join his efforts to find ALS cures. Hop gives a sneak peek of their upcoming Harmony for Hope Gala in Atlanta, Georgia on September 14, 2024 - which will be a one of a kind evening with performances by Hop, Zac Brown, Clay Cook, Coy Bowles, Danny De Los Reyes, Kristian Bush, Lily Costner and other special guests. Listen in to our conversation & share with a friend. Hugs, Lorri
I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
So grateful to have this conversation with Kerry Goode, former NFL (National Football League) player who was diagnosed with ALS in 2015. Kerry was a running back at the University of Alabama, Tampa Bay Buccaneers, Miami Dolphins and later a strength and conditioning coach also in the NFL. So he knew something was wrong when he couldn’t pick up a box. Here, Kerry shares what he's feeling about having been so physically strong, being able to bench press 400 pounds & squat 800 pounds to now not even being able to pick up a pencil. He lets us know how he's able to maintain a positive attitude and find great joy in life despite losing his ability to walk, talk and even breathe on his own. It’s no surprise that Kerry is now giving back through his own organization, The Goode Foundation whose mission is to support patients and families affected by ALS and fund ALS research. We talk about the motivation to share his journey with ALS and his faith in the book that he typed with his eyes after ALS took his ability to move his fingers, “Goode and Faithful Servant: The Kerry Goode Story.” Our entire conversation here was recorded with Kerry using his eyes to type his answers to my questions. It’s remarkable and so is Kerry. Thanks for listening in and sharing. Hugs, Lorri
https://www.goodefoundation.org/
I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
In this episode, I sit down with ALS advocate Bob Scannell, whose personal journey through his wife's battle with ALS has fueled his mission to raise awareness about the disease. After enduring a series of misdiagnoses before finally receiving an ALS diagnosis, Bob is now at the forefront of a campaign to educate both the healthcare industry and the public on the critical importance of early and accurate ALS diagnosis. Join us as Bob shares his powerful story and discusses the urgent need for improved ALS awareness and diagnostic practices. Thank you for listening in. Hugs, Lorri
Request an I AM ALS panel: https://www.iamals.org/action/request-a-panel/
Email Bob Scannell: alspromptdx@gmail.com
I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
In this compelling podcast episode, I delve into an inspiring conversation with Sam Telgkamp, a resilient 27-year-old battling ALS. Despite her inability to speak due to the progressive nature of the disease, we explore her journey and outlook on life with grace and gratitude at the forefront. Sam's unwavering positivity and resilience shine through as she discusses the challenges of living with a terminal illness, navigating her speech device solely with her eyes. Her perspective offers a poignant reminder of the power of perspective and the resilience of the human spirit in the face of adversity. Sam shares her heart & experiences through her blog which can be read here:
https://stayingloudly.wordpress.com/. Thank you for listening & sharing with a friend. Hugs, Lorri
I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
In this episode of ""I'm Dying To Tell You,"" I meet up with the resilient Sara Bennett, from Columbus, Ohio. At just 36 years old, Sara was confronted with a devastating diagnosis: ALS. In a candid and deeply moving conversation, Sara opens up about her extraordinary journey, bravely navigating the intricate balance of life as a mother to two young sons, aged 5 and 7, while grappling with the harsh reality of a terminal illness. With unwavering courage, Sara shares her poignant insights, offering listeners a profound glimpse into the resilience of the human spirit in the face of unimaginable challenges. Sara shares how she told her young boys about her diagnosis and how she is navigating parenthood in this new season. Sara also shares how she is working with a death doula to assist her with end-of-life. This episode is a reminder of the indomitable strength found within us all. Follow Sara: https://www.instagram.com/theanandapivot/
Thank you for listening in. Hugs, Lorri
I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
In the first episode of Season 5, I delve into the inspiring outreach of ALS Family of Faith with guests Dawn Delaloye and Tanya Hageman. Listen in as they illuminate the profound impact of their nonprofit organization, dedicated to providing free emotional and spiritual support to individuals and families living with ALS. From patients battling the disease to their devoted caregivers and even friends and family, ALS Family of Faith extends a compassionate hand to all affected by this devastating disease. In a time often overshadowed by darkness and isolation, Dawn and Tanya shed light on the transformative power of their partnership with the ALS community, offering a beacon of hope amidst the heavy burdens of this incurable illness. ALS Family of Faith was founded by Steve Cochlan, who was diagnosed with ALS in 2019. Steve recognized that there wasn't an organized effort offering spiritual support that he was seeking, so he started one himself. Listen in to this example of love and community and thank you for sharing with a friend. Hugs, Lorri
I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
When I was initially diagnosed with ALS, I was given the typical prognosis of 2-5 years to live. That was 20 years ago. Today, alongside my two sons, Paul and Christian, we reflect on this journey, answer listener questions, and explore the lessons learned along the way. I answer your questions about life with ALS, my thoughts on the future and advice to others finding themselves in the face of adversity. Then, I find out what questions my sons have for me after 20 years with ALS. Although their questions were tough to answer, I think it was good for all of us to discuss. I’m incredibly grateful for these bonus years since only 5% of ALS patients live longer than 20 years. Join us for an intimate and candid conversation as we commemorate this significant milestone and look towards the future with hope & gratitude. Help celebrate with me by sharing this episode with a friend and leaving a review wherever you listen. Thank you for your incredible support. Hugs, Lorri
I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
In this episode I chat with Juliet Taylor & Tim Abeska who each lost spouse to ALS. They met in a virtual support group for widow & widowers. Realizing they lived in the same area and had common interests, they met for coffee and their relationship grew from there. Today they encourage each other to love & honor their late spouse, enjoy life and be active ALS advocates to help end ALS. Here, Juliet & Tim share about their late spouses, Jeff Sarnacki & Mary Ann Abeska. We talk about how they are supporting each other’s grief journey and what advice they have for others who are experiencing loss. It's incredible that both Juliet & Tim have jumped back in to the ALS community as key advocates. Together, they are the co-chairs of the I AM ALS Community Outreach Team, which helps bring others into our fight for a cure. Juliet writes a beautiful column for ALS News Today. Listen in to this hopeful chat and share with a friend. Thanks for listening. Hugs, Lorri
I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
Here you’ll meet Tony and Karen Vick. Tony, a brave U.S. Veteran, has been living with ALS for the past 6 years. Karen, his dedicated wife, serves as his full-time caregiver, showcasing the strength of their bond. Despite facing the challenges of ALS, Tony and Karen lead a fulfilling life and share their journey on Karen's Instagram account, https://www.instagram.com/thekaregiver/. After realizing how many young caregivers are out there, they decided to share more on the day-to-day realities, triumphs, and tribulations of living with ALS. They hope to help other caregivers and individuals grappling with illnesses like ALS. Tune in to discover how they extend their reach and provide support through their engaging weekly LIVE sessions on Instagram @thekaregiver, where they update their journey, answer questions, and offer encouragement. Both Tony & Karen are returning guests on this podcast. We get an update on how Tony is doing and his thoughts on his positive perspective. Tony also shares advice for other veterans living with ALS. Listen in as I delve into the inspiring story of Tony and Karen Vick, demonstrating that even in the face of adversity, love, resilience, and community can thrive. Thank you for listening in and sharing with a friend. Hugs, Lorri
I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
In this episode, I talk about having gratitude even during hard times. I recorded this on Thanksgiving Day. Thanksgiving encourages us to pause and express gratitude for the positive aspects of our lives. For me, It always fosters a sense of gratitude, reflection, and appreciation for the blessings and relationships in my life. This morning I woke up being extra grateful for all I have, for the relationships that I am a part of and for the extra time that I have been given. Here, I hope to encourage you to seek out GRATITUDE every single day. I also pass along some things to consider being grateful for even when life gets tough. I share some ways to stir up gratitude as well. At the end of this episode, I talk about Giving Tuesday and how it provides a unique opportunity to express gratitude through acts of kindness and generosity. I am incredibly grateful for each of you. Thank you for being here and letting me share my thoughts with you. Hugs, Lorri
I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
Here I chat with Amanda Stevens, wife & caregiver to Eric Stevens – former NFL player & L.A. Firefighter, both introduced to us on The Ellen DeGeneres Show in 2019. Amanda and Eric were married only one month when Eric was diagnosed with ALS at a young 29 years old. We fell in love with this young couple as they appeared on the Ellen show three times and even were on to announce that they were expecting a baby. In the past 4 years since receiving Eric's ALS diagnosis, Amanda has dedicated her life to caring for her husband and their daughter. Amanda and Eric have also been inspired to help others through their non profit called AxeALS Foundation. Their mission is to raise awareness and funding for ALS treatments and clinical trials; to help ALS patients and their families live as full and normal lives as possible and to support ALS research. In this episode, Amanda shares her journey, motivation and updates on Eric and life with ALS. Tune in for this sweet encouragement in the face of huge adversity. Thank you for listening and sharing this episode with a friend. Hugs, Lorri
AxeALS: https://axeals.org/
I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
In this episode I talk to Lance Alexander, a teen Hollywood actor from my hometown in Ohio. You might know Lance from his role as Elvis, a recurring role on the award-winning Netflix show “Family Reunion.” Like many, during the Pandemic of 2020, he was isolated and fighting depression and decided to fight back. Lance had a public struggle of being overweight and bullied most of his childhood. I love that he is inspired to share his journey. Here Lance shares his motivation for creating his book and campaign, “From Junk to Hunk.” Lance shares how the key to eliminating “junk” is acknowledging that transformations can require both mental and physical adjustments and applies to all areas of life, not just your size. He shared that on this journey, he learned that mental transformations might be even more difficult than physical transformations. Lance also witnessed that permanent change requires mental resilience and self-belief. Especially for being just 18 years young, I am loving Lance's self awareness and heart to share his experience with others. Listen in and meet my new friend, Lance. Hugs, Lorri
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I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
Here my husband Paul & I talk to long-time radio personality Jim Scott from Cincinnati. He has been heard all over the country during his 55+ years on the air, mostly on 700 WLW Radio. He simply is one of the most giving & positive people I know. Although most of his life has been spent using his voice in his radio career, he is now battling a disease that is affecting his voice and more. Jim was diagnosed with ALS, in 2022. Even while living with a fatal disease with no cure, Jim continues to try to “spark joy” with those that need it most. We chat about his extraordinary radio career, community and love. Jim is known as “Good Old Jim Scott” since he has given so much back to others. Listen in & hear what this incredible 80 year old is “Dying To Tell You.” Thanks for listening and sharing with a friend. Hugs, Lorri
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I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
Here I chat with military veteran of both the U.S. Marine Corps and the U.S. Navy, Kate Peters. She served in the USMC 2007-2015, USN 2015-2020 and served in Operation Iraqi Freedom. Kate is a mother of two boys, three and five and was medically retired from the military after being diagnosed with ALS, a fatal disease that has no cure. She was diagnosed with ALS in 2020 a few weeks after her second son was born, after about 2 and 1/2 years of symptoms and a misdiagnosis. I talk to Kate about her military experience, the connection between ALS & the military and her upcoming BIG adventure of traveling the world for a year with her young family. Kate is considered a slow progresser with ALS, having symptoms for almost 6 years and still being fully independent and able to take care of her children. She's been able to witness some blessings after being given a terminal diagnosis and shares some beautiful life advice that will encourage us all. Thank you for listening in and sharing with a friend. Hugs, Lorri
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I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
Here I chat with a young woman living with ALS, who defies all odds by finishing fifty marathons and, in turn, inspires people to “go on, be brave.” I'm absolutely thrilled to catch up with Andrea Lytle Peet again and meet Meredith Atwood in this chat. Andrea and Meredith coauthor Andrea's new memoir titled, "Hope Fights Back." Andrea was thirty-three years old—newly married and a triathlete—when she received the death sentence of an ALS diagnosis (also known as Lou Gehrig's disease). After grappling with the fact that she will likely become paralyzed and die within two to five years, Andrea experienced an unexpected spark that changes her outlook in the most magnificent way. She set a goal to become the first person with ALS to complete 50 marathons in 50 states. In May 2022, she accomplished this goal with the 50th race in Prince of Wales Island, Alaska. Andrea shares her journey in a recently released documentary, "Go On Be Brave: The Drea Story." Now, she's publishing a book on 9/5/23 "Hope Fights Back." In this episode we catch up on it all, especially her inspiring memoir. Hope Fights Back chronicles what happens when we choose to live instead of waiting to die. It is a "love letter to life" and a beautiful love story between Andrea and her husband, Dave. Andrea’s message is awe-inspiring for everyone. Listen in and share this incredible story with a friend. Hugs, Lorri
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This episode is just me answering YOUR questions. I had a lot of requests for this format again, so I asked listeners to send in questions about anything and I answered them here. I'm so grateful for all the questions that came in, about life, perspective, my ALS longevity, family and advice. I love that my listeners feel comfortable asking me anything. This was a super special experience. I hope you enjoy and share with a friend.
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Here I continue my talk with Amy, Jim and Matt who are living with ALS about having the toughest conversations of their lives. When you’re living with a terminal illness that doesn’t have a cure and typically gives you just a few years to live, like ALS, the most difficult conversations come up quick. In this Part 2 episode, I continue chatting with Amy Stiens, Jim Plews-Ogan and Matt Klingenberg. I am grateful for their willingness to chat about how they were told they had a terminal illness with no cure, how they told their children and friends and even the toughest conversations yet. Amy, Jim & Matt share their advice on how to go about having "tough talks" like these as well. Thanks for listening in and sharing with a friend. Hugs, Lorri
When you’re living with a terminal illness that doesn’t have a cure and typically gives you just a few years to live, like ALS, the most difficult conversations come up quick. In this episode, I bring together 3 others who are living with ALS to talk about their experiences with these tough conversations. Here, I’m talking to Amy Stiens, Jim Plews-Ogan and Matt Klingenberg. I am grateful for their willingness to chat about how they were told they had a terminal illness with no cure, how they told their children and friends and even the toughest conversations yet. Amy, Jim & Matt share their advice on how to go about having "tough talks" like these as well. Thanks for listening in and sharing with a friend. Hugs, Lorri
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In this episode you'll hear my chat with Courtney Cirabisi, a 30 year old who lives in Bakersfield, California. She became reliant on a wheelchair for everyday mobility after she was child abused by her dad when she was 9 months old, resulting with a spinal cord injury. I've been following her journey as she shows us that life doesn’t stop after you have been abused and have lost the ability to walk. Courtney shares how she believes the mind is the most important thing a person can have. With that knowledge she is able to live a positive life after all she's been through. She explains how she feels that she is meant to be where she is today. I love her outlook and her strength and how she lives a full, rich life. She has such a beautiful awareness and is using it to inspire others. Courtney is on a mission to show others how strong your mind is when facing adversity. She is an author at Push Living (PUSHLIVING.COM) an organization highlighting wheelchair lifestyle. Thanks for listening in to our chat. Stay connected on Instagram: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en Hugs, Lorri
May is ALS Awareness month. So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I continue my chat with 3 others living with ALS. We answer the questions sent in by listeners of this podcast about what it's like being a young adult and living with a terminal illness. My guests, Ashley Rivera and Mira Hudson were diagnosed at 24 and James Smith was diagnosed at 36. They dig deep and open their hearts to answer your questions like, "Can you share about the moment you were diagnosed with ALS?" "How do you find the strength day in and out to persevere and overcome fears, pain, negative emotions, etc.? " "What's important now that wasn't before your diagnosis?" "What makes you feel inspired or like your best self now?" and "How are you dealing with the mental side of living with ALS." Those are a few examples of questions they answer and generate a full conversation around. Please consider sharing this episode to share their courageous spirits and to tell others about ALS. Thank you. Hugs, Lorri
In this special Q&A episode, 3 young adults answer questions you sent in about ALS and living with a terminal illness. May is ALS Awareness month. So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I chatted with 3 others living with ALS. We answer the questions sent in by listeners of this podcast about what it's like being a young adult and living with a terminal illness. My guests, Ashley Rivera and Mira Hudson were diagnosed at 24 and James Smith was diagnosed at 36. They dig deep and open their hearts to answer your questions like, "Can you share about the moment you were diagnosed with ALS?" "How do you find the strength day in and out to persevere and overcome fears, pain, negative emotions, etc.? " "What's important now that wasn't before your diagnosis?" "What makes you feel inspired or like your best self now?" and "How are you dealing with the mental side of living with ALS." Those are a few examples of questions they answer and generate a full conversation around. Please consider sharing this episode to share their courageous spirits and to tell others about ALS. Thank you. Hugs, Lorri
On this episode of I'm Dying To Tell You Podcast, I talk to Rob Schwartz son of Morrie Schwartz from the classic book Tuesdays with Morrie. We chat about the newly released book, “The Wisdom of Morrie.” The book was written by Morrie Schwartz, recently edited and released by Rob. The number one bestseller Tuesdays with Morrie was written from conversations with author Mitch Albom after Morrie was sick and knew he was in the process of dying from ALS. However, this newly released book, The Wisdom of Morrie was written by Morrie before he was diagnosed ALS. Rob rediscovered this manuscript that Morrie wrote about staying vibrant and connected for life. Morrie explores living and aging joyfully and creatively. Later life can be filled with many challenges, but it can also be one of the most beautiful and rewarding passages in anyone's lifetime. Morrie draws on his experiences as a social psychologist, teacher, father, friend, and sage to offer us a road map to navigate our futures. I hope you'll listen in and hear more from Morrie all these years later. Hugs, Lorri
Here I sit down with Zac Brown Band founding member, John Driskell Hopkins who is using his stage to help bring awareness to ALS, also known as Lou Gehrig’s Disease. John was diagnosed with ALS, a terminal illness with no cure in 2021. John, also known as Hop, decided to go public with his ALS hoping his reach could result in awareness, action and ultimately support for an ALS cure. He and his wife, Jennifer formed the Hop On A Cure organization which supports promising ALS research. In this episode, I chat with John about, his start in music, how he became a part of the award winning Zac Brown Band and how he noticed something wasn’t right with his health on tour. He shares intimate details about his thoughts right after diagnosis, telling his family, his daughters and more. I chat with Jennifer about their foundation, Hop on a Cure. John continues to perform and record with the Zac Brown Band as they are currently on tour. Thank you for listening and sharing with a friend. Hugs, Lorri
Here I talk to 34 year old TikToker, Brooke Eby who is using humor and social media to navigate life after being diagnosed with a fatal disease. Brooke was diagnosed with the terminal illness, ALS, at a young 33. With the support of her family, friends, and co-workers, Brooke's been able to laugh in the face of ALS by using humor on social media.. Brooke created a TikTok account @LimpBroozkit to help explain what she was going through without making it a heavy conversation. Not only is creating TikTok videos about ALS a case of "laughter is the best medicine" right now, but Brooke is also educating others and creating new ALS awareness. With millions of views, Brooke's ultimate goal is that her humor continues to boost others through any hard times. Brooke said that after getting a terminal diagnosis, she felt a mix of shock and sadness and was depressed during the first couple of months. Right now, Brooke's TikTok videos are helping her cope. She hopes her videos can help start conversations to drive awareness, support and ultimately cures for ALS. Check out Brooke's TikTok channel @LimpBroozkit . Thank you for listening in and sharing with a friend. Hugs, Lorri
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Here I talk to someone who has ALS for over 25 years. I reconnect with a former colleague from Kraft Nabisco, John Carthum. It was a few decades ago when I heard John left the company for medical reasons. I never knew what hand he was dealt that made him have to leave his career at such a young age until I was diagnosed with ALS in 2004. That’s when I learned that it was also ALS that John was diagnosed with in 1995.
Now he is outliving the typical 2 to 5 year death sentence that comes with ALS, also known as Lou Gehrig's Disease. It's incredible that John has been living with ALS for 27 years now. I am so grateful that John decided to take me up on my invitation to chat for this episode. I knew his precious insights would be a blessing to many. Listen in and hear John share what it has been like living with a terminal illness with no cure for such a long time, how he and his wife decided to have children after his diagnosis and what keeps him living life to the fullest while struggling every single day. Thanks for listening in and sharing with a friend. Hugs, Lorri
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Here I chat with award-winning director/producer, Jared Callahan. He shares the inspiration behind the film, SOMETIMES I SHAKE. The documentary film follows PLNU music professor and jazz conductor Dan Nelson as he navigates his life and profession around an ever-increasing shake caused by his Parkinson's disease. Then suddenly, Dan is devastated by the additional, and terminal, diagnosis of ALS. The film is an inspirational tale full of vigor, humor, and raw honesty, that follows Dan’s wild pilgrimage toward death, and along the way, discovering how to fully live. The film takes us through Dan's final days as he decides if he will marry the woman he loves, when to end his career in music, and how to invest the remaining months of his life. Dan has since passed away, but hopefully you will listen in and be moved to experience his spirit by viewing the film, SOMETIMES I SHAKE. Jared Callahan also founded and runs People People Media, an Emmy-nominated production company and has had projects premiere at the best film festivals in the world. Thanks for listening and sharing with a friend.
In this episode, it's just ME talking about LOVE :)
Here I mix it up a little and talk about what's on my heart. This releases on Valentines Day, so talking about LOVE ... specifically 4 Easy Ways To Spread More Love. I talk about the first few things that came to mind, Listen, Words, Time and Action. I thought to myself, these seem so simple but realized I always need reminders, so why not share? We all have the power to show others they are loved and not alone. There are no limits on love with those who are close or even strangers. Listen in, open your mind & heart and reach out to someone with these in mind. Thanks for listening and sharing with a friend. Hugs and Love, Lorri
Here I chat with Brian Wallach and his wife Sandra Abrevaya, co-founders of I AM ALS and Synapticure. At 37, Brian was diagnosed with ALS—on the same day he and he and Sandra brought their second daughter home from the hospital. In an instant, everything changed. They went from being a couple only a few years removed from both working at the White House to not knowing if Brian would live to see his 40th birthday. An otherwise healthy former college athlete, Brian expected to find a system built to help him and Sandra deal with this new reality. Instead, they found a broken and failed system in which doctors told patients to “get their affairs in order and get ready to die.” In this episode, we talk about what happened next which was to do what they do best, put hope into action. In 2019 they founded and built a patient-led revolution called I AM ALS, which is now a community of over 50,000. Next they completed a documentary film, No Ordinary Campaign. The film follows them in real time as they fight for their own future while seeking to build a brighter one for thousands of others. Recently they started, Synapticure, a telemedicine health care company for people living with ALS. We catch up on all that and talk about how they do all this while living with a terminal illness and raising two daughters 5 and 7. Today, there is no cure for ALS. There are no treatments available to save lives. As Brian puts it, you have two choices in a situation like this: curl up into a ball or act. Listen in and hear how Brian and Sandra chose to act. Thanks for sharing with a friend and leaving a review to help others join our fight to end ALS. Hugs, Lorri
Here I talk to Kylan Morris, 25, who recently lost her mother to ALS about how she's already following her mama's marching orders to help those battling ALS. "Please take my baton & run faster & farther." That was Sandy Morris's last twitter message to her fellow advocates fighting for ALS cures with her. Sandy Morris passed away on August 28, 2022 at age 56 from ALS. I chat with Kylan as she shares what it was like losing her mom at such a young age. Just a few months after losing her mama, Kylan was eager to share what she learned from her mom, her choice of dying with dignity, the final days together and the work that Kylan is doing to continue making a difference with those living with ALS. Kylan describes how her mama helped move mountains in the ALS community, vowing to leave the disease space better than she was forced into it so that future ALS families could benefit. Sandy was a fierce ALS advocate who was highly respected and admired for her many contributions. Even in her final days, Sandy started a new ALS Clinic Survey project with Pat Dolan and his Geospatial Hub team. Kylan talks about how she jumped in to take her mom's baton and complete this project. The ALS Clinic Survey is now available and provides a summary of the type and quality of care at each ALS clinic in the U.S. based on personal experiences of persons living with ALS. I loved hearing about how Kylan is honoring her mama, Sandy. As a mom, I was overwhelmed witnessing the positive impact that Sandy has had on her young daughter. It's really made me pause. This is a beautiful conversation. Excited for you to hear it and share with another mama. Hugs, Lorri
I knew I wanted to do an episode about HOPE, heading into the new year. On December 8th we lost our friend Scott Smith and quickly I knew his words were all I needed to share. This episode is an inspired replay. In memory of our dear friend Scott Smith, I added a new intro, a message from Jamie and then share my original chat with Scott and Jamie Smith. Originally released in 2021, as they were fighting Scott's ALS, Scott and Jamie shared their hearts to encourage others. Silver Linings, Courage Under Fire, Nothing to Lose and Riding On Hope are just a few of the topics Scott wrote about in his intimate blog, Flex On ALS. He documented his personal experience by sharing his fears, regrets and what he wanted us to realize before it's too late. Scott was a personal trainer, fitness advocate and young father of two daughters Iris, 3 and Hope, 1. Scott and Jamie shared openly about life with a terminal illness, a young family and all that came with that. Scott's writings on flexonals.com were intended to tell the truth about one man’s journey as he walks through the fire, but trust me they will inspire you as well. Thank you for listening and sharing with a friend as we remember Scott. Hugs, Lorri
So happy to talk to 17 year old Michael C. Platt, a teen baker, social entrepreneur, food-justice advocate and author. He inspires me with his giving spirit and passion to help others. Michael recently released his first cookbook to bring awareness to food and poverty. His book, Michaels Desserts, Sweets for a Cause aims to build skills in the kitchen, celebrate history, and inspire activism. We also chat about his baking company, Michael's Desserts, his one-for-one model, his non-profit P.L.L.A.T.E. and his inspiration behind it all. This young teen has such a beautiful life perspective at a young age. I hope you'll listen in and consider Michaels Desserts cookbook as a perfect holiday gift. Some desserts recipes include Michael’s signature Freedom Fighter Cupcakes themed around figures from the history of civil rights and activism, as well as chapters on pies, tarts, cakes, snacks, and breads. In the cookbook, you'll find each dessert features stunning photography, a list of ingredients, easy-to-do step-by-step instructions, and insightful tips from Michael that will make baking so much fun. Michael's cookbook is for all ages, whether baking with kids or wanting to support Michael’s incredible mission. I'm happy to introduce this "sweet" story to you. Hugs, Lorri
In this episode I chat with those who created Luka, the first robot to have ALS and hear the inspiration behind it all. I chat with the team that is bringing the first robot with ALS to the big screen. The film, Luka & the Lights, is inspired by the real-life of Sascha Groen and her husband Anjo Snijders who is battling ALS. Sascha created the robot character Luka and wrote and illustrated his story to help explain to their children what’s happening with their dad who was diagnosed with ALS. Also in our chat is Toby Cochran, Director and Adrian Ochoa, Producer who are leading a professional animation team to bring this film to life. This film is both heartbreaking and inspiring and will create ALS awareness and help children and adults understand what ALS is. Sascha and Anjo wrote the story explaining the ALS disease with the help of the robot lights. I love how the significance of the lights helps illustrate what ALS does. This one of a kind short animation film will be made available for free on various media. In this film we get to know the little robot Luka. We see how everyday tasks get harder and how they find out Luka is ill and what this means for Luka’s life and environment. The film does not use words, but music, which makes it internationally applicable. I know this film will help so many families affected by this terminal disease. Thank you for listening and sharing with a friend. Hugs, Lorri
In this episode, hear 21 year old Michael Cramer who was given just eight months to live share his journey on beating a rare and aggressive blood cancer. At age 19, Michael had been an athletic, healthy teenager. He was a surfer and sailor, rarely sick and had never been hospitalized. A routine blood test led to a life-changing cancer diagnosis. After Michael was diagnosed with Hepatosplenic T-cell Lymphoma (HSTCL) Michael and his mom Ashlee Cramer were terrified. They knew Michael might not survive and could only have just eight months to live. That was in July 2020. Now Michael is inspiring others who are going through health hardships. Although Michael has some major challenges as a result of his treatments, he and his Mom are reaching out and helping so many others. This beautiful momma/son team talk cancer, share how this tragedy changed their lives for the better, and gave them the courage to motivate and inspire others. From the beginning, Michael and his mom have embraced sharing their experience and the lessons they have learned on social media through Instagram and TikTok. Recently they tell their story in more depth, from both perspectives on their podcast , called Michael and Mom Talk Cancer. Michael still has a long recovery road ahead, but is now in full remission and is sharing his miraculous journey to let others know they are loved and not alone. Thank you for listening and sharing with a friend. Hugs, Lorri
Here I am on location in Boston to bring you a behind the scenes look and my weekend experience with the ALS Therapy Development Institute (ALS TDI) the world's foremost ALS drug discovery lab focused solely on ALS. I was so grateful to tour the lab and attend the ALS TDI Summit which was a day of updates on the progress of ALS Research. I wrapped up the weekend by attending their White Coat Affair gala which is a powerful evening that brings together and honors those living with ALS and remembers those whom we’ve lost.
I catch up with 5 inspirational guests as we chat about the love, passion and hope behind the lab doors of this ALS research lab.
My conversations start directly in the lab as I talk to three scientists, Valerie Tassinari, Associate Scientist III, Anna, Gill, Associate Scientist III, Program Manager and Kyle Denton, Ph.D., Director, Cell Biology to find out what it means to work every day to discover treatments for those living with ALS.
Then I talk to Kevin and Tessa Geraghty, who are living with ALS and also attending the ALS TDI weekend events and ask them what it means to visit the lab and meet others fighting the same terminal illness.
Finally I chat with Carol Hamilton, Vice President of Development about unique ways to support their ALS research. I loved witnessing the special bond between those who work in the lab and those who they are trying to save. From all of us living with ALS, thank you for listening and sharing with a friend. Hugs, Lorri
In this episode, I talk to Emma Terry who is a an ALS caregiver and a participant in the Miss America organization with her platform being ALS. I catch up with 20-year-old Emma, a student at the University of Alabama at Birmingham who is an ALS advocate, caregiver and granddaughter of ALS warrior, Stewart Simpson. Emma recently turned 20 and her grandfather "Grandy" was diagnosed with ALS right before she was born. Emma has a special relationship with her Grandy as all she's known is a lifetime of ALS with him. Even as a full-time college student, she continues to be a caregiver for her Grandy. He is 84 years old and his ALS has escalated to the point where he is confined to a hospital bed in his living room. Although her Grandy cannot speak, he still has the ability to write. So I'm so grateful that he was able to be a part of this chat as well. You'll hear what advice he has after living with a terminal illness for 20 years. Emma is also a participant in the Miss America organization and recently was Miss Alabama's Outstanding Teen. Emma's platform is "Stomping Out ALS One Step at a Time" through which she raises awareness and funds to support the ALS fight. She is also a member of I AM ALS Legistlative Affairs Community Affairs team. I love witnessing what life lessons Emma has learned through this incredibly difficult journey and the great love her and her Grandy have for each other. Listen in and enjoy. Hugs, Lorri
Hear my conversation with Lori Larson Heller as we talk about love, loss and moving forward instead of moving on. Lori is a writer, speaker, fierce ALS advocate, and a widow. She was in a season where life was going better than she could of planned. Lori had a husband who was her best friend and soul mate, the absolute love of her life. Then without warning, her plan changed. On September 6, 2018 … her husband Jim Heller was diagnosed with a terminal illness, ALS. She left her successful commercial real estate investment career and became a full-time caregiver that day. After losing her husband Jim to ALS, everything Lori was planning for her future vanished before her eyes, which is when she realized that we are not always in control. Eventually Lori realized she had to make a choice. Either stay stuck in a mindset of “why me”, or dig deep to see if she had the strength to shift her perspective for what the universe had in store. We chat about "the old Lori" and "the new Lori." She shares the superpower we all have: the ability to flip our script and view life through a different lens. Lori shares that life doesn’t happen to us, it happens for us. You'll hear how she's found acceptance of adversities, and discovered blessings in all the tough stuff. I love how faithful she is and encourages others that we’re all here for a reason, and we have to find our purpose. Be blessed, listen in and share with a friend. Hugs, Lorri
Here I chat with ALS advocate and boa flouncer Katrina Byrd about her experience as a caregiver and what led her to write, "The Language of Forgiveness." Katrina is a writer, playwright and ALS advocate, of Jackson, Mississippi. She's an inspiration to many as she is a perfect example of courage, love, acceptance and forgiveness. Katrina is legally blind and is no stranger to life obstacles of her own. Yet, she cared for her partner, Dora Robertson who died from ALS just 76 days after being diagnosed with the disease. Katrina also goes by "The Boa Flouncer" to help others going through a grief journey. Fully aware of the devastating impacts of the journey of ALS, Katrina is honored to use her alter ego, "The Flouncer" which Dora helped to develop, to recognize others who advocate, educate and create ALS awareness. She co-leads the Many Shades of ALS Community Team at I AM ALS which brings attention to and provides resources for the mental, physical and social health of people of color living with and impacted by ALS. This time, we are flouncing our boat at you, Katrina. Hugs, Lorri
This month is the 25th anniversary of the American classic book, "Tuesdays with Morrie." Here I'm resharing my precious conversation with the author Mitch Albom. We talk about love, faith, living and dying and the life lessons from his professor, Morrie Schwartz. In this episode Mitch Albom shares the backstory of how he met his former professor Morrie Schwartz and how their relationship developed. Mitch shared Morrie's life lessons in the best-selling memoir of all time, Tuesdays with Morrie. Today, the book has sold 17 million copies in more than 50 editions around the world. Mitch and I discuss some lessons that Morrie passed on during their weekly Tuesday visits. Mitch also talks about his new novel, The Stranger In The Lifeboat. Mitch Albom is a best-selling author, screenwriter, playwright, broadcaster and nationally syndicated columnist. He has written seven number one New York Times bestsellers and his books have collectively sold more than 40 million copies. Mitch has a generous heart as he has founded nine charities in his hometown of Detroit, and since 2010 he has operated the Have Faith Haiti Orphanage in Port-Au-Prince. He lives with his wife Janine in Michigan. Mitch is an inspiration to me for the beautiful books he writes and the love he pours out to others. Thanks for listening and sharing with a friend. Hugs, Lorri
Listen in to my conversation with David Richman who rode his bike 5,000 miles to explore the emotional journey of cancer. After losing his sister to brain cancer, David was led to do something incredible that can inspire us all. In this chat we talk about his intense and unique fundraiser in his sister's memory which was writing a book, Cycle of Lives. This book is the result of 15 people’s stories, 5,000 miles and a journey through the emotional chaos of cancer. David shares what motivated him to deeply explore emotional journeys with cancer and the various traumas in their lives that affected their experience. I love how he pulled it all together in his book where the stories are interwoven amongst the narrative of David’s solo 5,000-mile bike ride to go meet the book participants. He shares some of the interconnected stories of people overcoming trauma. David generously donates 100% of the net proceeds of the book to various cancer-related charities picked by the book participants or their survivors. Cancer and other diseases come with so much physical impact. I love seeing how David was able to create a safe space to talk about the tough emotions that come with it. Thanks for listening. Hugs, Lorri
Listen in to my conversation with former Kansas City police officer, Sarah Nauser as we chat about life and love while living with a terminal illness. For eight years, Sarah earned high praise as a young, vibrant, rising star within the Kansas City Police Department. She was living her dream until she was told she had ALS at the young age of 29. Sarah, also a former body builder continues to be strong and determined. In our conversation, we talked about life before ALS, her dream of being a police officer, her love for the Kansas City Royals, finding love after her diagnosis & even being a grandma at 33. Sarah shares how she’s able to live a joyful life despite being diagnosed with a terminal illness. Sarah has faced this devastating disease with a positive attitude and a resilience to focus on the good in her life. "Your life can change in an instant like mine, don’t wait. Be kind you never know the lives you may touch or the difference you can make," Sarah. I hope you'll tune in to our chat and share it with a friend. Thanks for listening. Hugs, Lorri
Here I chat with 13 year old Samirah Horton, aka DJ Annie Red who uses her music to spread an anti-bullying message. This award winning DJ is also a rapper, author, motivational speaker and anti-bullying activist from Brooklyn, New York. From the age of 6, Samirah was picked on by her peers for the things that made her different—her raspier voice, her unique sense of style, and her unwavering confidence in herself. The way she decided to fight back was to use her love of music and make sure other kids knew they weren’t alone. Now she’s combining her musical talents and her antibullying platform to reach kids across the country. As she DJ's to a variety of audiences, her favorites to play include hip-hop classics as well as her own antibullying anthem “No You Won’t Bully Me.” Samirah has been recognized nationally as, Time Kid of the Year Finalist, H&M Kids Role Model, the President's Award 2022 and more. DJ Annie Red is having a blast being the Kid Resident DJ at the Brooklyn Nets, playing basketball and creating more ways to get her positive message out in the world. I'm excited to share this amazing teen with you. Listen in and meet, DJ Annie Red! Hugs, Lorri
Here I catch up with David & Scott Lloyd, the brothers who created Racing for ALS. Growing up, David and Scott loved racing and always talked about racing cars together. As life happened, that desire got put to the side, yet they kept putting off their dreams of auto racing. That all changed in 2017, when David was diagnosed with ALS. They realized quickly that their dream of someday buying cars and going racing for fun needed to happen now. As they did that to simply have fun together, the generous people of the racing community quickly showed them that their racing could benefit more than just 2 brothers! So now David and Scott are living their dream, even though ALS looms large in the rear view. Racing for ALS has become a mission to raise funds and awareness for research and treatment of ALS. So far, they have raised over $550.000 for ALS research. This conversation is full of love, hope and the power of community. Listen in and hear more. Hugs, Lorri
In this episode, I chat with college student John Sexton, CEO and Founder of LifeDrive. What started as an idea to help his dad who has ALS, John now creates adaptive technology for people with disabilities in order to give them more independence. John is an upcoming senior at the University of Notre Dame and next drum major for the Notre Dame Band. All while being a full-time student and band member, John has been fighting for his father's independence. John's father, Shawn is battling ALS and John has been working for over 4 years to give him back freedom that ALS has taken away. John founded LifeDrive in 2021 after realizing he could invent ways to increase his dad's independence through wheelchair control as his strength was declining from ALS. John and his dad started brainstorming ways to help people living with ALS extend their freedom of mobility and improve their quality of life. As a result, they created EyeDrive, CareDrive, and VoiceDrive technologies. These solutions give all individuals who face mobility challenges alternative power wheelchair control options to regain their freedom. Now John leads the LifeDrive team hoping to change the lives of those who are going through what he and his family have gone through. Listen in and hear more about this father-son initiative. Thanks for being here. Hugs, Lorri
In honor of ALS Awareness Month, I asked the listeners, "What do you want to know about ALS & living with a terminal illness, but you're afraid to ask? " More questions than I could imagine came in, so I asked a few friends living with ALS to help answer these tough questions. So in this episode, I chat with Sunny Brous, Kate Nycz, Maceo Carter and Kevin Rowland as we go through each question submitted by listeners of this podcast. Between us, our ALS diagnosis ages vary from 27- 47 and years living with ALS spans from 2 to 18 years, so it was great to have a wide range of experience to learn from. I love the incredible support and curiosity for this unique episode. We had such an amazing "round table" discussion, I decided to have 2 episodes so we could address all the questions. In this part 2/2, we answer questions about mental strength, the grieving process, bucket list, sex/intimacy, thoughts on getting a trach, fears about what's to come, planning our own funeral and more. If you missed part 1, we answered questions about fears of dying, mental health, survivor's guilt, what brings joy, boundaries and faith. I hope you'll listen in and share with a friend to help us create more awareness of ALS. Hugs, Lorri
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In honor of ALS Awareness Month, I asked the listeners, "What do you want to know about ALS & living with a terminal illness, but you're afraid to ask? " More questions than I could imagine came in, so I asked a few friends living with ALS to help answer these tough questions. So in this episode, I chat with Sunny Brous, Kate Nycz, Maceo Carter and Kevin Rowland as we go through each question submitted by listeners of this podcast. Between us, our ALS diagnosis ages vary from 27- 47 and years living with ALS spans from 2 to 18 years, so it was great to have a wide range of experience to learn from. I love the incredible support and curiosity for this unique episode. We had such an amazing "round table" discussion, I decided to have 2 episodes so we could address all the questions. In this part 1/2, we answer questions about, fears of dying, mental health, survivor's guilt, what brings joy, boundaries, faith and more. Part 2 will release as the next episode where we answer questions about mental strength, the grieving process, bucket list, sex/intimacy, thoughts on getting a trach, fears about what's to come and planning our own funeral. I hope you'll listen in and share with a friend. Hugs, Lorri
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In this episode, I talk to Kim Nuxhall who created the Joe Nuxhall Miracle League so that everyone with any challenge can play the game of baseball. Kim is the Chairman of the Board of Directors for the Joe Nuxhall Miracle League. He joins the podcast to tell the powerful story and mission behind his father's legacy projects. Kim's dad, Joe Nuxhall, was the youngest player to ever pitch in the MLB at the ripe age of 15. After his professional baseball career, Joe joined Marty Brennaman in the radio broadcast booth for the Cincinnati Reds, forming a dynamic 31-year duo that has gone unmatched to this day. Joe brought energy, honesty, and an unapologetic joy to the radio that the entire Cincinnati community embraced. After his passing in 2007, Kim continued to follow their hearts and vision by creating the Joe Nuxhall Miracle League in 2012. The Miracle League aims to revolutionize and set the standard for creating recreational and athletic opportunities for people with disabilities. With two rubber baseball fields, a unique putt putt course, and more, the Joe Nuxhall Miracle League aims to provide "every individual with every challenge every chance to play the game of baseball." Kim is living out his dad's legacy and is one of the most compassionate people I know. Listen to our conversation and see how the Miracle League is so much more than baseball. Thanks for listening and sharing with a friend. Hugs, Lorri
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Here I chat with Alison Burell and David Stanley, who each lost the love of their life way too early. Alison's husband Cory Burell, passed away from ALS at the age of 35 after a valiant fight with familial ALS. David's wife Angela Stanley, died from ALS at a young 50 years old. Through the ALS community, Alison and David met after they each lost their person. Without even searching for love, their friendship grew and love found them. Now they are building a new life together and sharing their journey through their new podcast, "I Lost My Person." Through the podcast, they chat about widowhood, juggling family responsibilities, a long distance relationship and how they are chasing joy. Their primary theme in their episodes illustrate how it's possible to find love after loss and keep the person you've lost in your life as well. It's heartwarming to see how love is working through these two. I hope you'll listen in and share with a friend. Hugs, Lorri
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In this episode, I talk to Tracy Croxen and her daughter, Jocelyn who are surviving cancer and helping others navigate their journeys. In September 2017, Tracy was diagnosed with ovarian cancer. Almost exactly to the day two years later, in 2019, her 7-year-old daughter Jocelyn was diagnosed with a rare form of cancer called T-Cell Acute Lymphoblastic Leukemia. Tracy said, “I really think I went through my cancer journey to prepare me for hers.”
Now, they are sharing their journey through cancer and survivorship to bring awareness, support and hope to others. I love Jocelyn’s sweet outlook and the strength she’s gained from her mom. Now, 10 years old, Jocelyn is simply amazing and resilient. Listen in to this mother-daughter team and be encouraged to fight! Thanks for listening and sharing. Follow: https://bit.ly/ImDyingToTellYouInstagram
In this episode, I chat with three amazing women who are all involved with Hope Loves Company, a non-profit that provides support to children who have had or have a loved one battling ALS. Hope Loves Company is the result of raising three children who had to learn about ALS (or Lou Gehrig's Disease) as young children. Hope Loves Company's (HLC) founder, Jodi O'Donnell-Ames, lost her husband, Kevin, to ALS in 2001. Their daughter, Alina, was almost three when Kevin was diagnosed. Years after Jodi lost her husband to ALS, Jodi married Warren Benton Ames and became the mother of his two children, Nora and Adam who were then 11 and 8 years old. They had lost their biological mother to ALS. So after watching her daughter and her 2 step children experience life with ALS and the loss of a father and mother, Jodi realized the need to offer support to children of those living with ALS. That was the inspiration to start this one of a kind community. In this episode you'll hear about all that HLC offers to children like Camp HLC, Hugs of Hope care packages, two annual scholarships, a Young Ambassador program, virtual peer support groups, children's books and educational materials, teen retreats, the HLC Kids Count Conference, and more. You'll even hear from a young adult who has benefitted from HLC. I am in awe of these ladies and the love and support they pour into our children when they need it the most. Thanks for listening and sharing. Follow: https://bit.ly/ImDyingToTellYouInstagram
To wrap up Season 2, I asked my listeners for questions and here I answer each of them in this "Host Ask Me Anything" episode. This was created by YOU, the listener with questions from light to serious. So many listeners asked what they were curious about. I'm so grateful for all the questions that came in, some that really made me reflect and others that made me laugh. I love that my listeners feel comfortable asking me anything. Thanks for being on this journey with me and always letting me share. I hope you enjoy and invite a friend in for Season 3. Hugs, Lorri
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Here I talk to Maria Aleandra and Julian Rodriguez about how they're navigating all the different shifts of life including ALS. Maria Aleandra and Julian are a young married couple navigating life through entrepreneurship, ALS, parenthood, and all the ups and downs of life together. Julian, 37, has a terminal disease, ALS, so together they have faced difficult and intensely painful experiences. Through the darkest days, they have developed a closer bond than ever. They've made it a point to take risks and go out of their comfort zone that have resulted in freedom, adventure and expanded possibilities. One example of this is the podcast they host together, The Couple Shift. They mentioned, they never imagined they would do something like that together, but it's come to be one of their special bonds they have. Listen in and share with a couple you know. Hugs, Lorri
Listen in and hear how thousands of people have come together to better the lives of those living with ALS. In this episode, I celebrate I AM ALS turning 3. Here I chat with Mandi Bailey, Tony Rosello & Sandy Morris and hear how their involvement with the ALS patient-led group I AM ALS has showed them the power of a unified community. Each of them are driven by their heart to end ALS and celebrate the progress over the past 3 years. Listen in to their personal testimonies of why they continue to fight for a world without ALS. I AM ALS was created to not only cure ALS but to unlock critical breakthroughs that will help defeat Parkinson’s, Alzheimer’s, Frontotemporal Dementia, and beyond. You can join this fight here: https://iamals.org/. Thanks for listening, sharing with a friend and leaving a review to help others find I AM ALS! Hugs, Lorri
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Here I chat with Andrea Peet and her husband, Dave Peet. Andrea's been on a journey to become the first person with ALS to complete 50 marathons in 50 states. Andrea was diagnosed with ALS at 33 years old. Now at 40, she is super close to accomplishing her goal of completing 50 marathons in 50 states all while living with ALS, a fatal disease with no cure. Andrea and Dave created Team Drea to raise awareness and funds to help cure ALS. With only 3 races to go, the countdown begins with races left in California, New York and Alaska. The final race will be at Prince of Wales Island, Alaska as Andrea celebrates 8 years with ALS despite her 2-5 year death sentence. Andrea’s journey of traveling to all 50 states will be shown in a future documentary that's being created titled, "Go On Be Brave: The Drea Story." Andrea’s bravery and determination is incredibly uplifting. Listen in and share this beautiful story with a friend. Hugs, Lorri
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Here I reintroduce you to four 2021 guests and highlight how they are able to see love, hope, faith and joy in their darkest days. I randomly selected these past guests and together their stories show us how it really is possible to focus on the good stuff when life seems impossible. In this episode, you'll hear clips from Kanya Sesser, Leah Stavenhagen, Bernadette Okeke and Emma Benoit. Kanya was born without legs and was left on the side of the road in Thailand as a baby. However nothing holds her back and she is one of the strongest women I've met. Leah & Bernadette both are living with a terminal illness, ALS but yet are helping others despite their own challenges. Emma is a suicide survivor who tried to take her own life at 16. Emma shares how faith has got her through her darkest times. These samples of love, hope, faith and joy remind me of what to hold on tight to. Enjoy this special episode and please share with a friend. Hugs, Lorri
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Here I chat with Brad Aronson who shares incredible true stories about how one small deed can make a world of difference. Listen in to how his National Bestseller, HumanKind came to be. Brad Aronson is a husband, dad, entrepreneur, mentor and volunteer. After Brad's wife, Mia, was diagnosed with leukemia Brad spent most of his time either by her side or trying to shield their five-year-old son, Jack, from the worst of Mia’s illness. Brad and Mia were met by an outpouring of kindness from friends, family, and even complete strangers.
Inspired by all the demonstrations of “humankindness”, Brad not only began writing about the people who rescued his family from that dark time, he sought out global stories and wrote about them too. In this episode, Brad shares some of the best acts of kindness and how they changed lives in a big big way. This chat will lift you up and remind you of what really matters and of how easily you can change a life — including your own. Enjoy listening in and please share with a friend. Hugs, Lorri
Listen in to this fun episode as I chat with my joy go-to girl, Monica Scalf about JOYful Holiday gift giving. As joyful as the holidays are, there’s something about the onset of the gifting season that stirs up a little bit of uncertainty. Can I think of the best gift? Will I have the time to find it? Always overthinking and often I end up putting it off and having to do it all last minute. However, after this chat I am feeling energized and ready for this holiday gift giving season. Monica is the founder of the Work Well Group and Crazy Grateful and is always full of great ideas and gift giving was no exception. Here we chat about our personal experiences with giving & receiving gifts that bring us JOY. We share some favorites that you shared with us and some common themes that popped up as we identified what's really behind a special gift. I am reminded that the perfect gift for any occasion is created while focusing on experiences and people you love. Listen in and join us in the most JOYful season of giving! Hugs, Lorri
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In this Veteran's Day episode, I talk to Juan Reyes a military veteran battling ALS as he shares what's getting him through the toughest of times. Since his ALS diagnosis in 2015, he's been in the fight of his life. He's been fighting with grace and humor to improve treatment opportunities as well as advocating for others in the hopes of ending ALS. Juan served in the United States Air Force for 21 years and has learned the art of resiliency — along with his wife, Meg. Since veterans are twice as likely than the general population to develop ALS, Juan immediately realized the importance of speaking up and reaching out to others. He does this in many ways. Juan writes openly in his personal blog at https://alstexasdad.com/. He also is a key driver in the international movement, I AM ALS as he helps pull together those looking out specifically for veterans and people of color who have ALS. I love all that he's doing to include others and lift their spirits, despite his own challenges. He's pretty special. Listen in and see why they call him "The Juan and Only." Enjoy, Lorri
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Here I chat with Mitch Albom about love, faith, living and dying and the life lessons of Morrie Schwartz. In this episode Mitch Albom shares the backstory of how he met his former professor Morrie Schwartz and how their relationship developed. Mitch shared Morrie's life lessons in the best-selling memoir of all time,Tuesdays with Morrie. Today, the book has sold 17 million copies in more than 50 editions around the world. Mitch and I discuss some lessons that Morrie passed on during their weekly Tuesday visits. Mitch also gives a preview of his new novel, The Stranger In The Lifeboat. Mitch Albom is a best-selling author, screenwriter, playwright, broadcaster and nationally syndicated columnist. He has written seven number one New York Times bestsellers and his books have collectivey sold more than 40 million copies. Mitch has a generous heart as he has founded nine charities in his hometown of Detroit, and since 2010 he has operated the Have Faith Haiti Orphanage in Port-Au-Prince. He lives with his wife Janine in Michigan. Mitch is an inspiration to me for the beautiful books he writes and the love he pours out to others. Thanks for listening and sharing wiith a friend. Hugs, Lorri
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In this episode, I chat with Emma Benoit who survived a suicide attempt at 16. She's using her painful experience to help others find hope in the darkest of days. Emma became extremely passionate about suicide prevention after her suicide attempt in 2017, the summer before her senior year in high school. At the time, she was a popular varsity cheerleader with a supportive family and lots of friends, but on the inside, she was filled with depression and anxiety, and had never told a soul about it. Her attempt resulted in a spinal cord injury but helped her find faith and purpose; and propelled her on a mission to use her painful experience and miraculous recovery to help others. Emma has shared her story through her blog at liferejuvenated.org in an effort to help other teens who are struggling. In early 2018, Emma began working on a documentary film called My Ascension, which is now complete and chronicles her recovery journey and advocacy work, while addressing the youth suicide epidemic. I'm so proud of Emma for dedicating her life to inspire and save others. Her story of hope, faith and love is super powerful. If you would like to share this episode, leave a review on Apple podcasts and that will help others who are struggling find Emma's story. Thanks for being here. Hugs, Lorri
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In a cruel twist of fate and genetics, two twins both lost their young lives to ALS. Here, I talk to their mother Lori Hermstad of Iowa who is speaking up to help keep their legacy alive. Lori lost her 2 twin daughters to ALS at 17 and 26. The youngest, Alex was diagnosed at 11, put on vent at 12, and died at 17. Eight years to the day that Alex died, Jaci was diagnosed at 25 and lived one year. They had no idea Jaci would get ALS too. I talked to Lori the week the girls would have turned 28. Lori broke down - saying some days she wants to curl up in a ball and the next she wants to tear down walls. It’s been 16 months since Jaci passed in May 2020. Lori’s biggest fear remains that her daughters would be forgotten. So in this episode Lori has a chance to talk about her daughters and how they inspired us to live this life to the fullest. In this emotional chat you’ll hear how the Hermstad family battled ALS and helped to develop a new treatment for this rare form of ALS. Research is showing that there is a particular gene that appears to be common among some of the few child ALS sufferers – the FUS gene. If you would like to help Lori keep Alex & Jaci’s legacy alive, share this episode with a friend or leave a review on Apple podcasts. That will help others find this and hear their story. Thank you for listening. Hugs, Lorri
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In this episode, I catch up with Mike and Cheryl Smith who created Ales for ALS, a program that has raised over $3,500,000 for ALS research at the ALS Therapy Development Institute (ALS TDI). Mike and Cheryl own Loftus Ranches, a fourth-generation hop farm in Washington’s Yakima Valley. Cheryl has lost 9 relatives to ALS, including her grandfather and father. Along the way, they've learned that her family carries a gene that causes ALS and they have dedicated themselves to fighting the disease through their Ales for ALS program. Each year the Smiths work with hop supplier Yakima Chief Hops to donate a unique hop blend to participating brewers. Local brewers can brew whatever style of beer they want. Ales for ALS brewers are asked to donate $1 to ALS TDI for each pint of the resulting Ales for ALS brew sold. The funds raised go directly to ALS TDI's research lab, where their research team works to discover and develop potential treatments for amyotrophic lateral sclerosis (ALS). Ales for ALS goes full-circle, from the Smiths’ hop fields to craft beer lovers’ glasses across the country. Their commitment and generosity inspire me. Thanks for listening.
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In this episode, sweet inspiration comes from 10-year-old Varen Rogers who shares her perspective on life while her dad fights ALS. Varen accidentally made a name for herself with one sweet gesture, a tribute to her father, Justin Rogers who was diagnosed with ALS at 35. Varen wanted to give a shout out to her dad at the Cincinnati Reds first Lou Gehrig Day baseball game. She had used her money from her 10th birthday to buy a memo board and wrote: “My dad has ALS. He is my Hero. I love you dad.” The media captured Varen holding up this sign during the game and it spread all over social media. I, like many, fell in love with Varen’s beautiful smile and tender heart. I just had to have her on to let her know how she inspired me. She was more than happy to give us an inside look at ALS from a child’s point of view. So happy for this special chat. Varen invites you to share this with a friend in honor of her precious hero, her dad! Thank you for listening. Hugs, Lorri
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Here I catch up with 13 year old, Jahkil Jackson who is a young entrepreneur known for creating Project I Am and distributing almost 60,000 Blessing Bags to the homeless around the world. A teen philanthropist, author and anti-bullying activist has made his mark in the world by helping homeless people since he was eight. Project I Am distributes and delivering thousands and thousands of Blessing Bags to homeless individuals. Blessing Bags include essentials like socks, hygiene products, granola bars, and bottled water. Jahkil, his family, and friends all come together to fill the Blessing Bags and have been able to help people worldwide. Jahkil also advocates for young people to get involved in their communities and he shares the message that it's never too early for young people to start changing lives. Jahkil hopes to bring solutions to the homeless in Chicago. He's a world changer and also a student, a tap dancer, a basketball player, an actor, a model and an inspiration to me. I'd love for you to meet, Jahkil Jackson. Enjoy this! Hugs, Lorri
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In this special episode I share my chat with ALS Ice Bucket Challenge co-founder Pat Quinn who inspired millions before losing his battle to ALS. Pat Quinn was the last of three ALS warriors, Anthony Senerchia, Pete Frates and Pat Quinn to be the first to accelerate the ALS Ice Bucket Challenge while living with ALS. Pat from Yonkers , New York passed away at 37 in November 2020 after a heroic, seven year battle. He fought with positivity and courage and inspired me and all who knew him. Pat helped generate awareness and raise more than $220 million around the world for ALS research through the Ice Bucket Challenge. The campaign had over 20 million videos being created and shared around the world.
Pat changed the trajectory of the ALS fight forever. He inspired millions to get involved and care about people who are living with ALS. Even now, his words are inspiring others to face adversity with grace and grit. In this episode you’ll hear a partial interview that Pat and I were in the midst of preparing before he passed away. You'll wanna hear his powerful words on how to handle adversity and live our precious lives out. I also catch up with Fernando Vieira CEO of ALS Therapy Development Institute on how the Ice Bucket Challenge advanced ALS research. I'm so grateful to have this message to share with you. Thank you for listening, sharing and creating ALS awareness. Pat would be so grateful as well. Hugs, Lorri
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If it's in your heart to rate and review this episode, please do. It really helps new listeners find this special community. Thank you.
This episode is pure inspiration. Here I chat with Scott and Jamie Smith. As they fight Scott's ALS, they are sharing their hearts to encourage others. Silver Linings, Courage Under Fire, Nothing to Lose and Riding On Hope are just a few of the topics Scott Smith writes about in his intimate blog, Flex On ALS. He's documenting his personal experience by sharing his fears, regrets and what he wants us to realize before it's too late. In this episode, I catch up with Scott and his wife Jamie. Scott is a personal trainer, fitness advocate and young father from Kansas City battling ALS. Scott and Jamie are tackling his ALS diagnosis head on and reaching out to educate and encourage. Scott's writings are intended to tell the truth about one man’s journey as he walks through the fire, but trust me they will inspire you as well. Listen in to this mother & father of two daughters under 2 years old as they bring us into their world. Thank you for listening and sharing with a friend. Hugs, Lorri
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Former ESPN host, Emmy Award-winning journalist and New York Times best-selling author, Kate Fagan and I chat about her latest book: All the Colors Came Out. It is an unforgettable, beautifully written memoir about the love between a father and a daughter. Listen in as Kate Fagan shares her motivation for her beautiful love story about her father, Chris Fagan. She opens up about their special relationship that was built on the basketball court together and how that grew complicated over the years until they eventually grew apart.
Kate talks about when her father was diagnosed with ALS, she knew she had to make changes to help rebuild their special bond. Leaving a high-profile job at ESPN to be closer to her mother and father and take part in his care, Kate spent the last year of her father’s life determined to return to him the kind of joy they once shared on the court. I admire Kate's courage to write this book and to share the highs and lows of her relationship and life with ALS. Our chat reminds me to keep my focus on relationships, to forgive and to rebuild them before it's too late. I hope you'll check out her book, All The Colors Came Out. Thank you for listening and sharing with a friend. Hugs, Lorri
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If it's in your heart to rate and review this episode, please do. It really helps new listeners find this special community. Thank you.
Here I chat with Medal of Honor Recipient, Kyle Carpenter to hear what prepared him to cover a grenade to save his fellow Marine and what he's learned from his near- death experience. Kyle, shares his incredible journey and his unique perspective for life that everyone can benefit from. At a young 21, Kyle was serving in Afghanistan when the enemy initiated an attack with hand grenades, one of which landed inside his sandbagged position. Without hesitation, Lance Corporal Carpenter moved toward the grenade in an attempt to shield his fellow Marine from the deadly blast. When the grenade detonated, his body absorbed the brunt of the blast, severely wounding him, but saving the life of his fellow Marine. Kyle's courage and sacrifice will never be forgotten. Kyle is amazing and way more than his medal. He’s a sweet, caring, faithful person that inspires me. I came across Kyle on Instagram ( @chiksdigscars ) and read his book You Are Worth It. It's the kind of book that you highlight the nuggets of inspiration and send to a friend. Trust me his message will encourage you too! Thank you for listening and sharing with a friend. Hugs, Lorri
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If it's in your heart to rate and review this episode, please do. It really helps new listeners find this special community. Thank you.
Listen in as I talk to Leah Stavenhagen, 28, about her ALS journey and the "In Her ALS Shoes" movement she created. "I was an active 26-year-old so why did I feel like my feet couldn’t quite keep up? She couldn’t find my knee-jerk reflex and suggested that I visit a neurologist. Naively, I didn’t understand why I was being referred to a neurologist over a podiatrist. This quickly changed. I learned that I had ALS and a 2-5 year life expectancy."
That is from my guest, Leah. In this episode, hear Leah share what it was like learning she had ALS, how it changed her perspective on life and how she's empowering other young women. Leah is leading a movement called "In Her ALS Shoes" where women who were diagnosed with ALS under the age of 35 are teaming up to support each other and to raise awareness that ALS can affect anyone. Please consider supporting this movement by sharing this episode. If you were diagnosed under the age of 35, share your story https://iamals.org/action/in-her-als-shoes/ here. Detailing your ALS story will help other young women feel connected, relatable and less lonely. Thank you for listening and sharing with a friend. Hugs, Lorri
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If it's in your heart to rate and review this episode, please do. It really helps new listeners find this special community. Thank you.
In honor of ALS Awareness Month, I catch up with 4 people who are in the fight of their life as they battle ALS, a terminal illness that has no cure. My guests are Bernadine Okeke, Taya Jones, Bruce Rosenblum and Zamir Kociaj. I asked listeners, what they were most curious about when it comes to ALS. My gracious guests, open their hearts and answer those questions and more. A few examples, How do you find joy every day, knowing you have a terminal illness? After being diagnosed with ALS, is your faith more or less? Do you see the world differently now? It’s powerful to hear from those who realize their time on earth is more limited due to a fatal disease that doesn’t have a cure. All of us living with ALS, ask you to share this inspiring episode and help bring others into our world. Having others join our fight for a cure will help end this horrific disease and spare future generations to come. Thank you for listening and sharing. Hugs, Lorri
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If it's in your heart to rate and review this episode, please do. It really helps new listeners find this special community. Thank you.
In this solo episode, I share what's on my heart as it relates to giving yourself grace. Why is it so hard to make space for grace? Specifically giving ourselves grace. We graciously do it for others, but what about us? In this episode, I address: What is grace? Why is it so hard? What are some thoughts on it? In a world that says, "go get it." "Do better." "Be the best version of yourself.” We always seem to put a lot of pressure on ourselves to have it all together. So when we are faced with frustrations or a difficult season, sometimes we forget about giving ourselves grace - that kindness you deserve. Hoping you'll listen in and be reminded to always ignore your inner critic, let it go, and love yourself. Thank you for letting me share. Hugs, Lorri
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In this episode, I chat with 28-year old Kanya Sesser. Born with no legs in Thailand and found on the side of the road. Kanya lets us know how to live fully and without regrets. Kanya is now a professional skateboarder, surfer, actress, model, motivational speaker and activist. She may have had a rough start in life but now she is showing us that all things are truly possible. This young lady is strong, wise and won't let anything stop her. We had a great chat about how she is fueled with such energy and a positive attitude to live out her “No Legs, No Limits” motto. She has such a great outlook on life and shares it with her friends, family, boyfriend and many audiences. Kanya is determined to lead an ordinary life with an extraordinary zest for it. She has appeared in “Hawaii Five-0”, “Walking Dead” and “The Fear of The Walking Dead.” I'm so excited to share this conversation. Make sure to follow Kanya on her Instagram @kanyasesser. If you are touched by her story, please share this episode and spread the good vibes. If you like the podcast, I would love it if you reviewed the episode. Thank you so much for listening. Enjoy!
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Thank you.
Hear how 10 year old Kennedy Arney is living with ALS, a terminal illness, but yet adopts one of her best friend's mottos "ALS has no victory over Me!" This episode is proof that inspiration can come in all sizes. Listen in as I chat with 10 year old, Kennedy Arney of Michigan. She is one of the youngest people in the United States to be diagnosed ALS. We chat a little about ALS but more on faith, life and and of course ...besties & Harry Potter. It was a blessing to get to know Kennedy more. Her big heart & champion for kindness inspires me daily. I hope you'll chime in and then share with a friend. Thanks for listening.
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Welcome to Season 2 of I'm Dying To Tell You. This is a special anniversary episode celebrating the first year of the podcast, each listener and all my inspiring guests. I'll be checking in with a few guests from this past year, answering some listener questions and previewing season 2. I am living with ALS, a fatal disease with no cure. I am outliving my 2-5 year death sentence and am grateful to share inspiring stories here. This episode gives you a peek into this podcast, my guests and how you can be a part. Year one allowed me to gain inspiration from 38 guests and share them in 46 countries around the world. I'm super excited for Season 2. I hope you'll subscribe and join us!
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If it's in your heart to rate and review this episode, please do. It really helps new listeners find this special community. Thank you.
I imagine you've never heard a love story quite like this one. This is all about commitment, love and resilience. Here I chat with Augie Nieto, the successful fitness industry mogul behind Lifecycle and Life Fitness who was diagnosed with ALS in 2005 and his wife, Lynne. They open up about life with ALS, their unique love story and what they are dying to tell you. They share the raw truth about their relationship and where they are today. After living with ALS for 16 years they remain dedicated to finding treatments and cures for ALS through Augie’s Quest to Cure ALS. Augie is the Chairman of the Board for Augie’s Quest and the ALSTDI . Lynne is the “voice" of Augie’s Quest, and a board member of the ALSTDI. I am so grateful and excited to share their inspiring love story. Enjoy!
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If it's in your heart to rate and review this episode, please do. It really helps new listeners find this special community. Thank you.
Here I catch up with Juliana Fetherman, 24, who was inspired by her brother to help those with special needs make friends. So many of us have been feeling extremely isolated during this pandemic. My guest, Juliana knows that feeling alone on a daily basis is common for some. Her brother, Michael has both autism and ADHD, and struggles with the interpersonal skills necessary for forming friendships and even holding conversations. Juliana realized she wanted to create something to help him and others with special needs form friendships. She created a new app called Making Authentic Friendships, or MAF. Listen in and hear how a sister's love for her brother is helping spread kindness throughout the world. Thanks for listening! Hugs, Lorri
Want to share what YOU are Dying To Tell us? Nominate a guest?
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If it's in your heart to rate and review this episode, please do. It really helps new listeners find this special community. Thank you.
Listen in and hear a beautiful testimony of how ordinary people have united to end ALS and change the world. This episode is a celebration of hope, love and community. I celebrate I AM ALS turning 2, by talking with Cathy Collet, Jill Brattain and Nadia Sethi who have all lost someone to ALS. All are driven by their heart to end ALS through their involvement with the patient-led group I AM ALS . Cathy, Jill and Nadia share what gives them hope, why we should celebrate and what they are dying to tell you. I AM ALS was created to not only cure ALS but to unlock critical breakthroughs that will help defeat Parkinson’s, Alzheimer’s, Frontotemporal Dementia, and beyond.
Thanks for listening! Hugs, Lorri
Want to share what YOU are Dying To Tell us? Nominate a guest?
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If it's in your heart to rate and review this episode, please do. It really helps new listeners find this special community. Thank you.
Listen in as I chat with my joy go-to girl, Monica Scalf, founder of Crazy Grateful about what we are taking into the New Year and leaving in 2020 so that we can reclaim our MOJO in 2021. We're sharing our personal experiences and what 2020 taught us. Join our conversation by sharing what you are bringing into the new year to live joyfully. Let's share with each other how to get this year started off right.
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If it's in your heart to rate and review this episode, please do. It really helps new listeners find this special community. Thank you.
Here I chat with Brian Cuban, the younger brother of Dallas Mavericks owner and entrepreneur Mark Cuban. Brian is a Dallas based attorney, author and addiction recovery advocate. Brian shares his intimate life with addiction and eating disorders in hopes of inspiring others. He has been in long term recovery from alcohol, cocaine and bulimia since April of 2007. Brian’s most recent, best-selling book, The Addicted Lawyer, Tales of The Bar, Booze, Blow, & Redemption is a look back at how addiction and other mental health issues destroyed his career as a once successful lawyer. He opens up about his painful past in hopes of helping others. Brian's resilience is truly inspiring.
Podcast community, photos & show notes at:
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Connect: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en and https://twitter.com/LorrisPodcast
This is one of the sweetest stories to come out of the 2020 pandemic. In this heartwarming episode, I chat with Nina Ambrose, who like many was devastated when lockdown rules prevented her from seeing her dad Roger, 77, who moved into a care home in January. After being furloughed from her job, Nina took on a volunteer position at the care home so she could see her father during the pandemic lockdown. Nina's father has had Alzheimer's for 12 years and sheds light on living with this tough disease.
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Connect: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en and https://twitter.com/LorrisPodcast
In this Veteran's Day episode, I talk to two military veterans as they share what is getting them through their greatest battle yet - ALS. Military veterans in the US are twice as likely to develop ALS - a fatal disease with no cure. Chuck Schretzman and Tony Vick are two soldiers living with this horrific disease. Here I chat with Chuck, Tony and their wives about their love for our country, their love for each other and their love for life. Tune in to hear their life mottos and how they are living them out .
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Listen in on my chat with two young men 29 and 32, who already know an ALS diagnosis will be in their future. Hear their unique perspectives on life as they know a terminal illness is coming. Daniel Barvin and Tucker Olson both made the decision to do genetic testing and have tested positive to a familial ALS genetic mutation. These guys open their hearts and share how this new information affects their outlook on life, future relationships, children, legacy and more.
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Connect: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en and https://twitter.com/LorrisPodcast
I chat with Becky Curran Kekula who is finding ways to change how little people and all people with disabilities are perceived in the media, corporations and everywhere. Becky also happens to be a little person who is proud to identify as part of the disability community. Hear how Becky’s life working at the worlds leading entertainment industry to the Marketing Director & Co-founding board member of the Catalina Film festival & more, has led her on a quest to create more inclusion and equality for all. Her story will enlighten and motivate you.
Podcast community, photos & show notes at:
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Connect: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en and https://twitter.com/LorrisPodcast
You don't wanna miss my chat with this 36 year old who has experienced so much loss yet has gained such a valuable perspective on life and happiness. ALS has taken her ability to talk, walk, move and breath on her own. In her book, Pursuit Of Happiness: From Heels to Wheels, Mayuri Saxena shares her five pillars of truth that she discovered in her pursuit for true happiness. In this episode, you'll learn what those are and hear Mayuri share how she discovered them. Newly divorced and happily single, Mayuri had just relaunched her life in the Big Apple. She faced many of the challenges common to women in their early 30s: the shock of suddenly being independent again, the frustration of a stalled career, and then was diagnosed with ALS. Now, she is a beautiful example of breaking down barriers and rewriting your own destiny. Thanks for listening.
Podcast community, photos & show notes at:
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Connect: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en and https://twitter.com/LorrisPodcast
Janice Davis was like most of us and having a difficult time when this quarantine season began. After a friend came by and surprised her with flowers and a hug, she got the idea to pay that kindness forward and in a big way. Janice formed an altruistic Facebook group, the Sisterhood of the Traveling Wine which is over 76,000 members strong. Despite the name, it's not all about wine. The group is dedicated to spreadling love and showing kindness in a unique way. The Sisterhood of the Traveling Wine group is finding joy in blessing others in the community. Tune in and hear more.
Podcast community, photos & show notes at:
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Connect: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en and https://twitter.com/LorrisPodcast
I have an intimate chat with my sons, Paul and Chistian Carey - also known as Kids4Cure. Having learned 16 years ago that their Mom had ALS, a fatal disease with no cure, my sons open up and give advice to parents and other kids. They share thoughts on telling children about a serious diagnosis. They also give advice and encouragement to kids who have a loved who is struggling with an illness. Kds4Cure has raised over $1 Million dollars for ALS research & patient care and Paul & Christian have been active advocates in the ALS fight since they were 11 & 13. This episode focuses on sharing what they've learned. Thanks for listening in.
Podcast community, photos & show notes at:
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Connect: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en and https://twitter.com/LorrisPodcast
This episode was created by YOU, the listener. Listeners sent in questions and I answer as many as possible in 30 minutes. I'm so grateful for all the questions that came in, some light and fun - some deep and serious, some that really made me reflect and others that made me cry. I love that my listeners feel comfortable asking me anything. This was such a special experience. I hope you enjoy.
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Connect: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en and https://twitter.com/LorrisPodcast
An encouraging conversation with Beth Guckenberger as she shares her personal stories that have fueled her to live a life of reckless faith. She is a missionary, speaker, author, wife and mother. Beth and her husband, Todd, serve as Co-Executive Directors of Back2Back Ministries - an international orphan-care organization . Between biological, foster, and adopted children, they have raised eleven children. Beth is the author of nine books including adult and children’s titles. She travels and speaks all over the world about orphan-care and reckless faith. Her encouragement is absolutely precious.
Podcast community, photos & show notes at:
https://www.facebook.com/ImDyingToTellYouPodcast/.
Connect: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en and https://twitter.com/LorrisPodcast
Rob Kenney has become the “internet’s dad” with his “Dad, How Do I?” YouTube videos that have gone viral. Rob began a channel of DIY videos during quarantine that has captured millions of hearts in the process. Rob’s dad left the family when he was 14, so he missed out on learning how to do the things he now shows viewers. He started his videos thinking he could help 30-40 people learn every day tasks, listen in and hear why it ended up being so much more. Podcast community, photos & show notes at:
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Connect: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en and https://twitter.com/LorrisPodcast
Listen in as I chat with, Moors & McCumber two gifted singer- songwriters and multi-instrumentalists, a modern day version of Crosby, Stills & Nash. James Moors and Kort McCumber have been cultivating their wide-ranging musical influences in songs that delve into love and life. Hear their own inspiration for getting into music and how the duo came together. We talk about how their past music is now so relevant to the current state of our world. Join in on this backstage conversation.
Podcast community, photos & show notes at:
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Meet Kevin VanAmburg who tipped an essential worker at Tim Horton's $900 and is out to wreck others with Good! A video of his random act of kindness went viral and as soon as I saw it, I wanted to meet him. I'm so happy I did as he has one big ole' heart that is inspiring me and many others. Kevin is one heck of a nice guy from Michigan with an energizing message for all. Come join our podcast community and see photos & show notes at: https://www.facebook.com/ImDyingToTellYouPodcast/.
Stay updated on Instagram: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en
Thanks for listening. Hugs, Lorri
Dr. Shelly Hoover was diagnosed in 2013 with ALS, a terminal illness, yet has been living in joy and gratitude ever since. Shelly has an incredible message that everyone should hear. She recently wrote her first novel, Timeless Sisters, by only using her eyes. Although her body is paralyzed, her spirit is soaring as she thrives on encouraging others to live their best life. I even think you'll live your life a little differently after hearing Shelly.
If you liked this episode, please leave a review on your favorite podcast app. This will help others find it. Thanks for listening! Hugs, Lorri
Photos and show notes here: https://www.ImDyingToTellYouPodcast.com . Stay updated on Instagram: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en
Hear inspiration from six who range from 33-55 years old and are all living with ALS, a rare and fatal disease. This unique BONUS episode is a must-listen. ALS (Amyotrophic Lateral Sclerosis) also known as Lou Gehrig's disease or the "Ice Bucket Challenge" disease is fatal with no cure. In honor of May being ALS Awareness Month, I chat with six others who share what they want others to know about living with ALS and what inspires them during the fight of their lives. Please listen in and share to help create awareness. Hugs, Lorri Photos and shownotes here: https://www.facebook.com/ImDyingToTellYouPodcast/. Follow on Instagram: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en
Talking with Brian Wallach, co-founder of I AM ALS. This unique patient-led, patient-centric movement is working to find cures for ALS. Brian Wallach has been living with ALS since 2017 and started the non-profit I AM ALS to empower patients to lead the fight to end ALS. Hear how this father of 2 young daughters is leading this fast growing organization to not only cure ALS but to unlock critical breakthroughs that will help defeat Parkinson’s, Alzheimer’s, Frontotemporal Dementia, and beyond. Please share this to bring hope to all.
Episode show notes & photos here:@
https://www.facebook.com/ImDyingToTellYouPodcast/ and http://www.ImDyingToTellYouPodcast.com. Thanks for listening! Hugs, Lorri
Hear how one act of kindness led to a unique outreach for thousands of girls across the country. I chat with Sara Mosteller, Director of Cinderella's Closet Southwest Ohio. Learn why Cinderella's Closet provides a formal gown, shoes and jewelry all FREE of charge. Sara tells how just saying "YES" has allowed her to lead a growing Cinderella's Closet chapter for over 10 years. Episode shownotes & photos here:@
https://www.facebook.com/ImDyingToTellYouPodcast/ and http://www.ImDyingToTellYouPodcast.com. Thx for listening.
Hear how speaking up and embracing a community can provide healing for depression. Pastor Shawn Spradling of Center Pointe Christian Church shares his discovery with depression and how he was prompted to speak publicly about his struggles. If you think someone might be encouraged by this episode, please leave a review and mention Episode #4. This will help bring others to it. Thank you. Come join us in our podcast group on Facebook:
https://www.facebook.com/ImDyingToTellYouPodcast/or connect more at: http://www.ImDyingToTellYouPodcast.com
Learn 4 secrets on how to ditch stress and live with more joy even when things are hectic and less than perfect. I interview Monica Scalf, the founder of The Work Well Group and Crazy Grateful who shares simple shifts that don’t require a ton of time, energy and effort. Come join us in our podcast group on Facebook:
https://www.facebook.com/ImDyingToTellYouPodcast/ and share how you are finding joy. Thank you for listening. Connect more: http://www.ImDyingToTellYouPodcast.com
Witness how the power of a smile can change your outlook on life, while living with a fatal disease or any other struggle. I sit down with Smilin' Paul Rinderknecht who shares precious life advice while battling ALS. Grateful to have this raw inspiration to share as he passed unexpectedly just 3 weeks after. Paul's wife, Leslie has offered to join my Podcast Community Group where you can interact with her, ask about caring for someone with ALS, how to talk to young children about a parent's terminal illness or simply show support. I invite you to join this special group on Facebook:
https://www.facebook.com/ImDyingToTellYouPodcast/ Thank you for listening.
To connect more: Visit: http://www.ImDyingToTellYouPodcast.com
In this episode I'll be sharing my motivation for creating this podcast, what ALS is and how I went from being healthy and active to living with a fatal disease. I'm excited to find & share stories of inspiration with you. I'm offering an opportunity for you to continue the conversation after each episode. Please join me in my Podcast Community Group on Facebook: https://www.facebook.com/ImDyingToTellYouPodcast/
There you can interact with guests, ask questions, give suggestions about episode topics or simply encourage others. Thanks for joining me on this journey.
To connect more: Visit: http://www.ImDyingToTellYouPodcast.com
I’ve created this podcast to find & share stories of inspiration, from simply encouraging to truly extraordinary in hopes of inspiring you. This intro hosts a preview of the first four episodes featuring guests with their inspiring messages. Please join me in my Podcast Community Group on Facebook Page @ https://www.facebook.com/ImDyingToTellYouPodcast/
There you can interact with guests, ask questions, give suggestions about episode topics or simply encourage others. Thanks for being here.