On this episode I talked about Rare Disease Day that was held on February 28th 2021.
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
On this episode, I talk about what is new born screening and our efforts to implement it in the state of Alabama.
On this episode I talked about the importance of self care as a caregiver and my journey, as well as tips of what has worked for me.
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
On this episodes I talk about our experience with illnesses and how they affect people with underlying conditions.
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
This episode is a celebration for the approval of a new treatment for SMA. I will be talking about the different treatment options and our experience with them!
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
This is a brief introduction to our experience and the first time we heard about it, as well as our diagnosis process.
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app