enableme podcast: Recent Episodes

Stroke Foundation

Podcast by Stroke Foundation

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Childhood Stroke 06 Missing School by Stroke Foundation

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In this episode, David Flood shares his journey of understanding and managing fatigue after stroke. Dave made himself the subject of his Master of Counselling research, exploring his own experience with post-stroke fatigue and how he learned to manage it. He’s now a qualified counsellor who supports other young adult survivors of stroke. Read the transcript at https://enableme.org.au/community/podcasts/young-stroke-podcast-series/understanding-fatigue Find more about managing fatigue, and other Young Stroke stories, tips and resources at https://young.strokefoundation.org.au/life/fatigue

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Around 50% of survivors of childhood stroke live with disability, and while some can be seen, children are frequently left with invisible or hidden disabilities. That is, conditions that significantly affect their lives, but aren't always visible to the outside world. Invisible disabilities can include fatigue, cognitive, or thinking difficulties, emotional difficulties, and other neurological issues that can continue long after the stroke occurs. In this episode of the Childhood Stroke Podcast, we speak to a survivor of childhood stroke and a neuropsychologist to explore the invisible challenges children face after stroke and support systems available to help them navigate their journey.Guests:•Tala Olins-Miller, a survivor of childhood stroke, physiotherapist and member of Stroke Foundation's Lived Experience Advisory Group.•Professor Vicki Anderson, paediatric neuropsychologist with over 25 years' experience working to improve the lives of children with brain injury, including stroke.

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When a child has a stroke in later childhood or adolescence, they may have been involved in a sport that they loved before their stroke. The impact of stroke or social perceptions can create barriers for young people returning to sport or participating.In this episode of the Childhood Stroke Podcast series, we speak to a survivor of childhood stroke and two professionals about returning to sport after a stroke and how to overcome some of the barriers young people and their families may face. The episode also covers the Para classification process.Guests:Tommy Quick, a survivor of childhood stroke, sports fanatic, passionate advocate and member of Stroke Foundation's Lived Experience Advisory Group.Scott Nicholas, Pathways Lead at Paralympics Australia. Identifying and progressing para-athletes along the performance pathway.Nathan Zuzic, a physiotherapist at the Victorian Paediatric Rehabilitation Service (VPRS), coordinating the accessible sport and recreation program.

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Positive sports experiences at an early age have important health and social benefits. Families of survivors of childhood stroke often report being unable to find inclusive activities and sporting organisations in their communities.In this episode of the Childhood Stroke Podcast series, we speak to a parent and two professionals working to engage young children in sports after childhood stroke. Guests:Tony Peacock, a parent to a child who had a stroke and member of Stroke Foundation's Lived Experience Advisory Group.Louise Daniels, a Senior Physiotherapist who is passionate about supporting children with a disability to participate in sporting activities.Dr Olivia Lee, a paediatric rehabilitation consultant who supports families and children to become involved in sports after childhood stroke.

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Paul Burns is a young stroke survivor and host of Smashing it After Stroke.Paul is back for a second season, this time talking to health professionals and industry leaders. Paul and his guests dive into current thinking on stroke recovery within their respective fields, what’s out there for those with invisible injuries and as usual, he picks up some tips and tricks along the way.In this episode, Paul talks to to speech pathologist Emma Power. Emma is a clinician, researcher and Associate Professor at the University of Technology Sydney.Emma and Paul talk about:- What speech pathology is.- Different communication and swallowing impairments.- The value of communication partner training and where to get it.- Practical tips to support people with different communication needs.- Why communication accessibility and inclusivity helps everyone in the community.Download an aphasia-friendly list of resources mentioned in this podcast: https://enableme.org.au/media/q0gbvof2/radio-podcast-stroke-foundation-support-groups.pdfRead the transcript at https://enableme.org.au/community/podcasts/young-stroke-podcast-series/speech-pathology-inclusive-communication-smashing-it-after-strokeFind more Young Stroke stories, tips and resources at https://young.strokefoundation.org.au

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Paul Burns is a young stroke survivor and host of Smashing it After Stroke.Paul is back for a second season, this time talking to health professionals and industry leaders. Paul and his guests dive into current thinking on stroke recovery within their respective fields, what’s out there for those with invisible injuries and as usual, he picks up some tips and tricks along the way.In this episode, Paul explores stroke recovery from a different angle. How can technology and AI (artificial intelligence) be used to assist people living with disabilities? Paul is joined by Marius Mathisen from Norway and Matt Giovanello from the US.Marius and Matt are both CEOs of startups that are exploring innovative assistive technology. They share their own personal stories that inspired their ideas and talk about the current landscape and future of AI and assistive technology.Read the transcript at https://enableme.org.au/community/podcasts/young-stroke-podcast-series/technology-and-ai-smashing-it-after-strokeFind more Young Stroke stories, tips and resources at https://young.strokefoundation.org.au

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Survivors of childhood stroke can face serious barriers to education. Inclusive education means every child is welcomed by their school and supported to reach their full potential. In this episode of the Childhood Stroke Podcast series, we speak to a survivor of childhood stroke, a parent and a professional working to improve inclusion in schools. Guests: Hailey Mckirdy, a survivor of childhood stroke, lived experience consultant and disability support worker. Alison Scotti, mum to a survivor of childhood stroke and assistant school principal. Kate Heine, founder of Heads Together for ABI, which supports young people and families impacted by acquired brain injury.

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Letisha Living is a young survivor of stroke and creator of this 3-part podcast special “Finding purpose after stroke.” In each episode, Letisha explores a different topic that has supported the mental wellbeing of people impacted by stroke. The topics she discusses are volunteering, support groups and creativity.In this episode, Letisha talks to three survivors of stroke about finding purpose after stroke through creativity. She is joined by Shelagh, a poet; Yvonne, a painter; and Gretel, a writer and performer.Read the transcript at https://enableme.org.au/community/podcasts/young-stroke-podcast-series/creativity-finding-purpose-after-strokeFind more Young Stroke stories, tips and resources at https://young.strokefoundation.org.au Find out more about Letisha’s guests and their creative practices: - Shelagh Brennand https://www.astrokeofpoetry.com- Yvonne Denehey https://www.facebook.com/yvonne.denehey- Gretel Burgess, email gretelchloe0@gmail.comConnect with Letisha Facebook: https://www.facebook.com/FindingYourselfAfterStroke Instagram: https://www.instagram.com/findingyourselfafterstroke

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Letisha Living is a young survivor of stroke and creator of this 3-part podcast special “Finding purpose after stroke.” In each episode, Letisha explores a different topic that has supported the mental wellbeing of people impacted by stroke. The topics she discusses are volunteering, support groups and creativity.In this episode, Letisha talks to four survivors of stroke about their different experiences of joining or starting their own support groups. They also talk about the benefits of support groups and how this has positively impacted their mental wellbeing.Read the transcript at https://enableme.org.au/community/podcasts/young-stroke-podcast-series/support-groups-finding-purpose-after-strokeFind more Young Stroke stories, tips and resources at https://young.strokefoundation.org.auSupport groups mentioned in this podcast:- Working Age Group Stroke (WAGS) https://wags.com.au- Kings Park Warriors https://kingsparkabiwarriors.org.au- Maitland Aphasia Communications Group https://www.facebook.com/groups/548780362402961- Young Stroke Group (YSG) NSW https://www.facebook.com/groups/181491115232510Find more support groups on EnableMe https://enableme.org.au/community/support-groupsConnect with Letisha’s Stroke Survivors Empowerment Group https://www.facebook.com/groups/369091401132936

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Letisha Living is a young survivor of stroke and creator of this 3-part podcast special “Finding purpose after stroke.” In each episode, Letisha explores a different topic that has supported the mental wellbeing of people impacted by stroke. The topics she discusses are volunteering, support groups and creativity.In this episode, Letisha talks to two survivors of stroke and a parent of a young survivor about finding purpose through volunteering. They talk about how volunteering supported their stroke recovery journeys and how giving back has impacted them.Read the transcript at https://enableme.org.au/community/podcasts/young-stroke-podcast-series/volunteering-finding-purpose-after-strokeFind more Young Stroke stories, tips and resources at https://young.strokefoundation.org.auBrowse volunteering opportunities at https://strokefoundation.org.au/how-you-can-help/get-involved/volunteering-at-nsf/current-volunteering-opportunities Connect with LetishaFacebook: https://www.facebook.com/LetishaLiving Instagram: https://www.instagram.com/stroke_survivor_empowerment/

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Paul Burns is a young stroke survivor and host of Smashing it After Stroke.Paul is back for a second season, this time talking to health professionals and industry leaders. Paul and his guests dive into current thinking on stroke recovery within their respective fields, what’s out there for those with invisible injuries and as usual, he picks up some tips and tricks along the way.In this episode, Paul talks to speech pathologist Jessica Mutzelberg. A speech pathologist can help with communication, swallowing and voice changes after a stroke. Jessica talks about why speech therapy is not just about speech, and shares some apps that can help at home.Paul and Jessica then go on to talk about returning to work or study after a stroke, and the impact it can have when you can’t return to the work you were doing before.Read the transcript at https://enableme.org.au/community/podcasts/young-stroke-podcast-series/speech-therapy-smashing-it-after-strokeFind more Young Stroke stories, tips and resources at https://young.strokefoundation.org.au

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Paul Burns is a young stroke survivor and host of Smashing it After Stroke.Paul is back for a second season, this time talking to health professionals and industry leaders. Paul and his guests dive into current thinking on stroke recovery within their respective fields, what’s out there for those with invisible injuries and as usual, he picks up some tips and tricks along the way.n episode three, Paul talks to senior optometrist Melanie Imlach. Melanie has spent a large part of her career working with people who have neurological conditions that impact vision.Paul seeks to uncover the ins and outs and what people can expect from behavioural optometry, which looks at how a person processes visual information in their daily life. They talk about how vision therapy can help stroke survivors who have experienced vision changes after stroke, and cover topics from peripheral vision loss to pattern glare.Read the transcript at https://enableme.org.au/community/podcasts/young-stroke-podcast-series/behavioural-optometry-smashing-it-after-strokeFind more Young Stroke stories, tips and resources at https://young.strokefoundation.org.au

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Stroke can happen at any age. Around 600 children have a stroke in Australia each year. A child’s stroke is a crisis for families. In the first episode of the Childhood Stroke Podcast series, we speak to two people with lived experience of childhood stroke to share their stories, challenges, wisdom and tips for other families on the journey. Guests: Dee Banks, a mother, whose child had a stroke in utero. Mitchell Fenton, a young schoolteacher and survivor of childhood stroke.

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Paul Burns is a young stroke survivor and host of Smashing it After Stroke.Paul is back for a second season, this time talking to health professionals and industry leaders. Paul and his guests dive into current thinking on stroke recovery within their respective fields, what’s out there for those with invisible injuries and as usual, he picks up some tips and tricks along the way.In episode two, Paul chats to senior exercise physiologist Mark Simpson. Exercise physiology can help with strategies for self-managing chronic or complex conditions.Mark and Paul dive into managing fatigue after stroke, looking at pacing concepts and how to break out of the boom bust cycle.Read the transcript at https://enableme.org.au/community/podcasts/young-stroke-podcast-series/exercise-physiology-smashing-it-after-strokeFind more Young Stroke stories, tips and resources at https://young.strokefoundation.org.au

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Paul Burns is a young stroke survivor and host of Smashing it After Stroke.Paul is back for a second season, this time talking to health professionals and industry leaders. Paul and his guests dive into current thinking on stroke recovery within their respective fields, what’s out there for those with invisible injuries and as usual, he picks up some tips and tricks along the way. In episode one, Paul talks to senior neuro physiotherapist Jessica Georgy. Jessica has extensive experience in treating a wide variety of patients with neurological conditions, including people who have experienced a stroke.Neuro physiotherapists help improve movement for people with neurological conditions, but how it is different to exercise physiology or occupational therapy? How can a neuro physio help after stroke? How can you find one? Paul and Jessica explore these questions and more.Read the transcript at https://enableme.org.au/community/podcasts/young-stroke-podcast-series/neuro-physiotherapy-smashing-it-after-strokeFind more Young Stroke stories, tips and resources at https://young.strokefoundation.org.au

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This is the third episode of a series with Letisha and Shannon, both young survivors of stroke. In this episode they share how stroke impacted their confidence and what they did to rebuild it.Letisha is a mother to four boys, one who was born after her stroke. She is passionate about empowering working age survivors of stroke.And Shannon is a nurse, wife and a mother of two. Shannon previously looked after elderly patients who had survived stroke and was astounded when stroke happened to her and her family.

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This is the second episode of a series with Letisha and Shannon, both young survivors of stroke.In this episode they share the changes and challenges that came with parenting after stroke. They also discuss the impact of stroke on their children.Letisha is a mother to four boys, one who was born after her stroke. She is passionate about empowering working age survivors of stroke.And Shannon is a nurse, wife and a mother of two. Shannon previously looked after elderly patients who had survived stroke and was astounded when stroke happened to her and her family.

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Improving your stroke risk factors can reduce your chance of having another stroke. Some factors you can talk to your doctor about, like high blood pressure, type 2 diabetes, cholesterol and atrial fibrillation, or irregular heartbeat. Then there are things that are part of a healthy life, like quitting smoking, avoiding alcohol, and eating well and staying physically active.In this podcast, we talk about these risk factors, and we'll look at a new website to help stroke survivors to eat well and move more, i-Rebound.We speak to stroke lived-experience advocate Meredith Burke, researcher and physiotherapist Dina Pogrebnoy, and registered nurse Fi Camino from StrokeLine.

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This episode we are speaking with Rebecca Schmidt-Lachlan, a young survivor of stroke, about her experience of returning to work. Preparing for this episode we asked the young stroke community what questions they had and what they really wanted to know about getting back to work after a stroke.

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This episode we talk to Letisha and Shannon, both young survivors of stroke. We discuss how to navigate finances and financial stress after stroke. It's a topic that often isn't talked about and one that Letisha and Shannon hope becomes less taboo.Letisha is a mother to four boys, one who was born after her stroke. She is passionate about empowering working age survivors of stroke.And Shannon is a nurse, wife and a mother of two. Shannon previously looked after elderly patients who had survived stroke and was astounded when stroke happened to her and her family.

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i-REBOUND: Full Chat With Emma Gee by Stroke Foundation

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This podcast was created and is hosted by Sue Bowden (www.moonriverturkey.com.au), a young survivor of stroke. This podcast series is part of Stroke Foundation’s Young Stroke Project.

Sue was living a full life. She was happily married, pregnant with her first child and training to be a nurse. However, she could sense that something wasn’t quite right.

Sue is joined with David Cumming, life coach and counsellor at Mindmyself.net.

In this episode Sue talks about the passion behind her work in wanting to see more current and relatable information to assist Young Stroke Survivors and their support crews.

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This podcast was created and is hosted by Paul Burns, a young survivor of stroke. This podcast series is part of Stroke Foundation’s Young Stroke Project. Ash Gordon is a young survivor of stroke and traditional Chinese medicine practitioner. In this episode Paul and Ash discuss the early stages of Ash’s stroke and long recovery, getting back to study after his stroke, how the University accommodated him, mental health, goal setting…and more!

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This podcast was created and is hosted by Paul Burns, a young survivor of stroke. This podcast series is part of Stroke Foundation’s Young Stroke Project.

Beth has a strength and determination that has seen her to go on to smash it after the stroke she suffered when she was 19 years old. She’s organised a major fundraiser for the Stroke Foundation. She has also completed her studies in Nursing and has just begun her first role in the industry.

She talks about how she accomplished all this whilst dealing with post stroke symptoms such as fatigue and navigating the associated changes to her social life that an event like a stroke brings.

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This podcast was created and is hosted by Paul Burns, a young survivor of stroke. This podcast series is part of Stroke Foundation’s Young Stroke Project.

Gustavo Zaera is a Spanish born, multilingual, Norwegian technology entrepreneur who has dealt with many challenges including a brain tumour in 2013.

In this episode we chat about his approach to life, dealing with emotions and how his early childhood experiences forged the resilience that helped him deal not only with his diagnosis and treatment but go on to continue to succeed!

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This podcast was created and is hosted by Paul Burns, a young survivor of stroke. This podcast series is part of Stroke Foundation’s Young Stroke Project.

Nichola Browning is a registered nurse who has worked in both the UK and Australia. She’s worked in Critical Care, Neurosciences, Traumatic and Acquired Brain Injury, Rehabilitation, Paediatrics, Cardiothoracics and Youth Mental Health

She is also the Mum of a young stroke survivor, Beth, who suffered her injury at the age of 19.

In this episode, Paul chats to Nichola about the effect this had on her whole family, how she managed “burn out” and how she continues to move forward.

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Guests: Naomi and Matthew Morris Stroke occurs suddenly, changing the lives of not only the survivor of stroke but impacting everyone around them. This episode explores the impact of stroke on roles and relationships within the family unit.

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This podcast was created and is hosted by Paul Burns, a young survivor of stroke. This podcast series is part of Stroke Foundation’s Young Stroke Project.

Rob Goyen is an ambitious endurance Athlete who is always chasing the next achievement. Between running successful businesses in Asia or competing in adventure races, Rob loves pushing himself. We find out what drives him to succeed and what motivated him to compete in 250km Ultramarathon on the 10th anniversary of his Stroke.

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This podcast was created and is hosted by Paul Burns, a young survivor of stroke. This podcast series is part of Stroke Foundation’s Young Stroke Project.

In the first episode, Paul talks with Saran Chamberlain, who has worn many different hats in her life and has always said “never say no” to taking something on. Her Stroke may have changed her course but certainly hasn’t stopped her.

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This podcast was created and is hosted by Sue Bowden (www.moonriverturkey.com.au), a young survivor of stroke. This podcast series is part of Stroke Foundation’s Young Stroke Project.

Sue was living a full life. She was happily married, pregnant with her first child and training to be a nurse. However, she could sense that something wasn’t quite right.

Sue is joined with David Cumming, life coach and counsellor at Mindmyself.net.

In this episode, Sue talks about how she longed to be recognised as a young person who needed to be engaged in an age and culturally appropriate way during her rehabilitation and given more opportunity to express herself.

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This podcast was created and is hosted by Sue Bowden (www.moonriverturkey.com.au), a young survivor of stroke. This podcast series is part of Stroke Foundation’s Young Stroke Project.

Sue was living a full life. She was happily married, pregnant with her first child and training to be a nurse. However, she could sense that something wasn’t quite right.

Sue is joined with David Cumming, life coach and counsellor at Mindmyself.net.

In this episode Sue talks about recognising and understanding a new way of being after her stroke and what other significant events had happened at that time.

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Guests: Kristie Sauer and Clive Kempson This episode is an honest conversation about the evolution of friendships after a stroke – how friends respond, how friendships change, how to be a good friend and more.

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Professor Bruce Campbell talks about stroke with the abc by Stroke Foundation

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Guests: Emma Beesley and Rachel Parsons This episode is about dating as a survivor of stroke and someone with disability. It includes the highs and lows and everything in between.

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For the 5th anniversary of the EnableMe podcast series we’re revisiting one of our most popular topics: neuroplasticity, the ability of the brain to change and the basis of recovery after stroke.

To find out what’s new in neuroplasticity and how to use it in your own life, we talk to medical researcher Peter Levine, author of the book Stronger After Stroke, which has helped stroke survivors worldwide. Find out more at https://recoverfromstroke.blogspot.com/

We also speak to young stroke survivor Saran Chamberlain, founder of the YESS SA network and engagement coordinator for the Stroke Foundation’s Young Stroke Project, and to physiotherapist Katherine Yong from StrokeLine.

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ABC Radio National – Interview with Professor Stephen Davis and A/Prof Luke Burchill about the Golden Hour Stroke Project

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Kim and Emma Beesley - Interview - JOY 94.9 FM by Stroke Foundation

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Saran Chamberlain - Interview - JOY 94.9 FM by Stroke Foundation

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Guest: Kim Beesley This episode explores being a parent of a young stroke survivor. It can be a huge learning curve, knowing what to say and do, how to be there for your child and how to look after yourself at the same time.

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Guests: Bill Gasiamis and Katrina Cunningham This episode explores renewal and growth and finding the new normal after stroke. The stroke recovery journey isn’t easy, often with many twists and turns, highs and low. This episode is about navigating that journey, moving through grief and loss to a place of acceptance.

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Guests: Paul Fink and Nicole Christodoulou This episode explores recovery mindset. The word recovery means different things to different people. We know that for most, recovery after stroke is lifelong. It’s a journey, rather than a destination.

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Guests: Adrian O’Malley and Beth Browning This episode is about the experience of the early stages after stroke. Hear top tips on navigating those challenging early days and living a good life.

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Beth and Nichola Browning - Interview - JOY 94.9 FM by Stroke Foundation

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Charlotte Porter - Interview - JOY 94.9 FM

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Caleb Rixon - Interview - JOY 94.9 FM

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Jude Czerenkowski - Interview - JOY 94.9 FM

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Adrian O'Malley - Interview - JOY 94.9 FM

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Many people are unaware that children and babies can have strokes, and parents are often left with nowhere to turn. Fortunately that situation is changing, with support groups for parents and the new Our Family’s Stroke Journey resource from the Stroke Foundation. In this podcast, we talk about what it’s like to have a baby or child who’s had a stroke, what can cause the stroke and what can be done about it, and what help is available.

We speak to Dee Honeychurch and Kylie Facer, mothers of children who’ve had strokes and co-founders of the support group Little Stroke Warriors Australia; paediatric neurologist Associate Professor Mark Mackay from the Royal Children’s Hospital Melbourne and member of the Stroke Foundation’s Clinical Council; and Katherine David from the Stroke Foundation, who managed the development of the resource Our Family’s Stroke Journey.

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ABC Upper Hunter Childhood Stroke Research Funding - Kylie Facer by Stroke Foundation

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ABC Upper Hunter Interview by Stroke Foundation

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So much of the way we interact with the world and how the world interacts with us is based on vision, so when a stroke affects your sight it can have a very big impact on your life. In this special episode put together with Vision Australia, we talk about how a stroke can affect your eyes and your ability to see, and what your options are if you have vision problems after a stroke. We talk to stroke survivor and Australia’s first blind fashion designer Nikki Hind, orthoptist Nabill Jacob from Vision Australia, and Katherine Yong from StrokeLine.

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Yoga is very popular with stroke survivors as a form of exercise and as an activity to connect with the community. In this podcast, we speak physiotherapist and researcher Professor Susan Hillier, stroke survivor Sue Bowden, and Simone Russell and Jude Czerenkowski from StrokeLine, about the benefits people get from yoga, and how you can get into practising it if you’ve had a stroke.

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Stroke Foundation #22 Hidden disability by Stroke Foundation

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Stroke Foundation #20 NDIS part 2 by Stroke Foundation

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To mark World Continence Week 2019 and its theme of “Laugh without leaking”, we’re joining forces with the Continence Foundation of Australia to break down the stigma and talk about bladder and bowel problems after stroke. Busting to share their knowledge and experience are Sue Blinman, manager of the nurse advisor helpline at the Continence Foundation of Australia, stroke survivor Jenny Ferrier, and regular guest Simone Russell from StrokeLine.

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Stroke Foundation #20 NDIS part 1 by Stroke Foundation

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Young stroke survivor Shelagh Brennand shares her stroke story, prevention and the signs of a stroke on 4ZZZ.

4ZZZ is an independent community radio station operating in Brisbane, Australia.

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In this podcast, we talk about issues like knowing when it’s safe to fly, finding accessible destinations and transport, making sure you have assistance if you need it, and getting travel insurance.

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Stroke Foundation #18 - Driving by Stroke Foundation

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Stroke Foundation #17 - Emotional & personality changes by Stroke Foundation

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A lot of attention is given to rehabilitation in the weeks and months immediately following a stroke, but recovery doesn't stop there. Many stroke survivors continue to work on their recovery and see improvement for many years. In this podcast, we want to talk about how long-term recovery works, what you can expect in terms of highs and lows, and how to make the most of it.

Our guests are Professor Julie Bernhardt, Director of the Centre of Research Excellence in Stroke Rehabilitation and Brain Recovery; stroke survivor Nadia Moffatt, who had two strokes when she was a teenager and is now a member of the Stroke Foundation’s Consumer Council; and physiotherapist Carol Pham, from StrokeLine.

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Tim Kleinnig on 6PR by Stroke Foundation

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Stroke Foundation #15 - Touch and Sensation by Stroke Foundation

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Stroke doesn't discriminate, and we're hearing more and more about young people having strokes. When you're younger you can experience the same physical effects, but the impact on your life can be very different. The nice, smooth path that you've mapped out can drastically change course.

In this episode, we talk about what it's like to have a stroke in your 20s and 30s, and to have to set a new path towards goals like a career and relationships. And to deal with invisible stroke impacts while trying not to become invisible yourself.

Our guests are Ali Earley, a young stroke survivor, former nurse and now Stroke Foundation volunteer; Assoc. Prof. Maree Hackett from the George Institute, who has researched the psychological and social factors affecting young stroke survivors; and Lisa Mangwiro from StrokeLine.

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2017 National Stroke Week - 3AW Interview Meliame Fifita And Son Tevita by Stroke Foundation

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The Stroke Foundation recently released its updated Clinical Guidelines for Stroke Management, to help health professionals to deliver the most up-to-date, evidence-based stroke treatment. But what do these guidelines say and what do they mean to stroke survivors and their carers?

To find out, we talk to physiotherapist Assoc. Prof. Coralie English, a researcher from the University of Newcastle and the Hunter Medical Research Institute, and Co-chair of the Content Development Working Group for the Clinical Guidelines.

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A common thread in our podcasts is the importance of exercise and being physically active. Whether it's for reducing your risk of another stroke, building up strength in your limbs, or even improving your memory, exercise is constantly recommended. But do stroke survivors get the level of activity that they need?

In this special episode for Stroke Week 2017, we talk to neurological physiotherapist Natalie Fini, who has recently published a scientific paper on just this question. Natalie is a lecturer at the University of Melbourne and she's doing a PhD through La Trobe University and Albert Health. She's also deputy chair of the National Neurology Group at the Australian Physiotherapy Association. Her research was funded by the Heart Foundation.

We also speak to occupational therapist, Leah Pett from Stroke Line, about what you can do about incorporating more activity into your daily life.

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Memory forms a big part of our understanding of our experiences and our selves. It's also essential on a smaller scale for simply getting through everyday life. And when you've had a stroke it helps you with your ongoing recovery. But memory is also commonly affected by stroke, and for many people this has a big impact.

In this podcast we will talk about what you can do if you're facing memory problems after stroke. Our guests are: • Toni Withiel and David Lawson, Monash University neuropsychology doctoral students and stroke survivors. • Dr Rene Stolwyk, clinical neuropsychologist from Monash University. • Jan Corcoran, stroke survivor from Far North Queensland. • Alana Stewart, speech pathologist from StrokeLine.

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The majority of stroke survivors will have problems with their upper limbs at some point – that's the arm, shoulder and hand. These problems include weakness, trouble coordinating movements, changes in muscle tone, subluxation, contracture, swelling, and reduced or increased sensation. These make a big difference in your daily life.

In this podcast, we talk about these issues with arms and hands and shoulders, and what you can do for recovery.

Our guests are:

Dr Annie McCluskey, an occupational therapist, educator and researcher with over 30 years' experience in stroke and brain injury rehabilitation. Rebecca Schmidt-Lachlan, a young stroke survivor and member of the Stroke Foundation's Consumer Council. Tahnee Winks, a physiotherapist from the Stroke Foundation's Follow Up service.

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It's very common to experience depression or anxiety after a stroke, beyond the expected fear and early sadness. But as challenging as these conditions are, they can be treated, and recovery is common.

In this podcast, we talk about out why people experience depression and anxiety after stroke, what it feels like, and how to get help that works.

Our guests are:

• Associate Professor Maree Hackett from the George Institute for Global Health, who conducts research on depression in cardiovascular diseases such as stroke.

• Luke Webb, a young stroke survivor and stage, television and film actor.

• Simone Russell, occupational therapist from StrokeLine.

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To mark Nutrition and Hydration Week 2017, we’re taking a look at how to make sure you eat and drink well after a stroke.

Our guest is Alana Stewart from the Stroke Foundation. Alana is a speech pathologist with a Masters in Human Nutrition, who currently runs the StrokeConnect Follow-up service in Victoria.

Thanks also go to Jacqui Heward, Accredited Practising Dietitian and member of the Dietitians Association of Australia, who provided some of the content.

This podcast was brought to you by Nestlé Health Science.

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Pain is common after stroke. It can start while the body is healing, but it can also stick around long term. When it does, it makes daily life difficult, and can wear you down over time. But even if you can't make your pain go away, it's still possible to do something about it.

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Sex. We all think about it, but many of us find it difficult to discuss, which means it's a part of life that is often neglected in stroke rehabilitation. But while it is a big part of relationships, it's also not the only thing. There are many ways that stroke can challenge the dynamics between partners. In this episode, we're going to break the silence on these important aspects of a fulfilling post stroke life

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The internet is full of health information, and there are so many people offering treatments for stroke, that it can be hard to know what to trust. Especially when you're well and in need of help, you can be very vulnerable to misinformation. So how do you find information that's based on real evidence, and how do you know someone claiming to be a health professional is genuine?

We're going to try to find out how to find evidence-based information and how to sort the good from the bad.

Our guests for this episode are: • Professor Tammy Hoffmann, a clinical epidemiologist from Bond University who specialises in evidence-based practice. • Dan Englund, who had a stroke at 38-years-old but who has recovered enough to complete a 1000-km run. • Jude Czerenkowski, a social worker and national manager of Stroke Connect for the Stroke Foundation.

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Communication is a very important part of life. This means that losing the ability to speak can have very big impact. About one-third of stroke survivors have speech and language problems, such as aphasia.

In this podcast, we talk about what it's like living with a communication disorder and what can be done to help.

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Fatigue is one of the biggest disabilities that stroke survivors face. It’s more than just regular tiredness that can be relieved by a good night’s sleep. Fatigue can hold back your recovery and keep you from getting your life back to normal. It’s also an invisible disability, meaning it can be hard to get support. But there are things that can be done: we look at the latest research evidence and advice about dealing with post-stroke fatigue.

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People often associate stroke with muscle weakness. After all, that’s one of the F.A.S.T. signs. But after a stroke you can sometimes find your muscles are too tight, leading to stiffness in your legs, arms and fingers. This is what is known as spasticity, and it can cause spasms, it can affect your limb positions and it can be painful.

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For anyone who’s had a stroke, one of the biggest fears is whether it will happen again. We speak to general practitioner and author Dr Bill Williams, stroke survivor Nikki Mennel and occupational therapist Simone Russell about how not to let that anxiety hold you back. And with Australia’s Biggest Blood Pressure Check underway, we discuss what you can do to reduce your risk.

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The number one topic stroke survivors ask us about is neuroplasticity, and how to take advantage of the brain’s amazing potential to change itself. But there’s still a lot of confusion about what it actually entails, what to expect, or even who can help you with it. We speak to physiotherapy lecturer Michelle McDonnell, neuroscientist Lavinia Codd, stroke survivor Karen Bayly and occupational therapist Simone Russell about their experience of retraining the brain.