Being Patient: Recent Episodes
Being Patient
Being Patient's founder Deborah Kan resigned from her job as Executive Producer at the Wall Street Journal to redesign reporting on health, after her mother was diagnosed with Alzheimer’s disease. In the Being Patient Podcast, we examine the latest research on the prevention, treatment and care of the disease from the patient’s point of view. We give patients and carers the tools to map the landscape of the disease and go straight to the expert community to get the answers they want to know. We aim to elevate the patient’s voice in important conversations and help researchers understand their patient communities.
Make sure to go to http://beingpatient.com/ to receive our latest news and updates.
Being Patient speaks with Benjamin Bikman, professor of cell biology and physiology at Brigham Young University, about the complex processes of our metabolism, and how metabolic health plays a role in neurodegenerative diseases like Alzheimer’s and our brain health.
Former trial attorney Dale Rivard, 64, shares his story of living fully with a diagnosis of mild cognitive impairment.
Being Patient sits down with speech-language pathologist Vicky Fukuhara to discuss the symptoms of language impairment in dementia and how speech therapy may help people cope with their decline in communication abilities.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient speaks with President and CEO of Cassava Sciences Remi Barbier about the company's development of an investigational Alzheimer's drug called simufilam, and how scientists are diversifying their approach in finding an effective treatment for the disease.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient speaks with Dawn Kirby about the journey of caregiving for her daughter who was diagnosed with frontotemporal dementia at 29 years old. Dr. Brad Dickerson, director of the Frontotemporal Disorders Unit at Massachusetts General Hospital, joins us to discuss the diagnostic process and treatment of the brain disorder.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient speaks with Grant Warner, principal at HKS Architects, about ways to modify a home environment and installations available to create a safe living space for a loved one with dementia.
For more about Aging-in-Place certified contractors, visit the website of the National Association of Home Builders: https://www.nahb.org/education-and-ev...
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Nicole Rogus-Pulia, a speech-language pathologist and an assistant professor of medicine at the University of Wisconsin-Madison, discussed the symptoms of eating and swallowing difficulties in dementia, and caregiver strategies to help a loved one dine with dignity.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our LiveTalks, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Husband and wife celebrities Seth Rogen and Lauren Miller Rogen shared insights about how Alzheimer’s has touched their personal lives and their work in raising awareness about the disease through their nonprofit organization HFC.
For more information about HFC: https://wearehfc.org/
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our LiveTalks, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Dr. Zaldy Tan, director of the Cedars-Sinai Health System / Memory & Aging Program, spoke about the common symptoms of dementia in the early, middle and late stages of disease.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Dr. Dylan Wint of the Cleveland Clinic discussed the neuropsychiatric symptoms of dementia such as psychosis, aggression and depression, as well as the risks and benefits of different treatment options.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Linda Ercoli, health sciences clinical professor of psychiatry and biobehavioral sciences at UCLA, discussed ways to handle driving after a loved one's dementia diagnosis, from spotting the warning signs of dangerous driving to planning for alternative transportation.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Emmy Award-winning husband and wife Robert Ferrier and Daphne Glover, filmmakers of "SPENT: The Hidden Cost Of Dementia," discussed the economic and human impact of dementia. Robyn Wendt, who is featured in the documentary, was joined by her partner Mark Behnke. The former caregivers shared the financial and emotional toll they endured after their loved ones were diagnosed with dementia.
To watch "SPENT: The Hidden Cost Of Dementia," click here: https://vimeo.com/ondemand/spent/
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Kim Natovitz, associate at TriBridge Partners, discussed the costs of dementia care services and ways to navigate insurance plans for medical treatment and long-term care.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Dementia care expert Teepa Snow discussed ways to help a loved one with dementia stay engaged and strategies to effectively manage their symptoms of dementia.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Mary Jo Broussard Speier, an elder law and estate planning attorney, spoke with Being Patient about the legal documents that need to be set in order after a dementia diagnosis.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Dale Atkins, psychologist and author, spoke about ways for caregivers to build a support network, as well as strategies to practice self-care and self-compassion.
For more about Dale Atkins, visit her website: https://www.drdaleatkins.com/
To learn about her most recent book "The Kindness Advantage," click here: https://thekindnessadvantagebook.com/
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs.
https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Dr. Erin Foff, executive director at ACADIA Pharmaceuticals and Chris Schwilk, who lives with Lewy body dementia, about navigating the delusions and hallucinations of dementia.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Bree Baldwin, aging life care manager at Debra Levy Eldercare Associates, about how to make an informed decision when moving into a long-term care facility, as well as planning for financial and legal affairs after a dementia diagnosis.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs.
https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Jessica Langbaum, co-director of the Alzheimer’s Prevention Initiative at Banner Alzheimer’s Institute, about how genetics influence people’s risk for developing Alzheimer’s and the implications of genetic testing.
For more details about the Alzheimer's Prevention Registry, visit the website: https://www.endalznow.org/
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs.
https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Dr. Claudia Kawas, professor of neurology, neurobiology and behavior at University of California, Irvine, about the findings of her team's landmark study on aging and dementia among people aged 90 and older, and how some people are more resilient than others against dementia.
For more details about joining the 90+ study, contact (949) 768-3635 or visit the website: https://www.mind.uci.edu/research-stu...
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs.
https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Prof. Jack Price, professor of developmental neurobiology at King's College London, about the potential of using stem cell therapy to regenerate cells and treat neurodegenerative diseases.
Price is also the author of the book "The Future of Brain Repair" published this year: https://www.amazon.com/Future-Brain-R...
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Dr. Marwan Sabbagh, director of the Cleveland Clinic Lou Ruvo Center for Brain Health, about the challenges for patients in receiving an early and accurate diagnosis of Alzheimer's, as well as new diagnostics tools for clinicians that are paving the way forward for greater precision in a diagnosis.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Norbert Žilka, chief scientific officer at AXON Neuroscience, about how abnormal tau proteins are linked to neurodegeneration and new therapeutic approaches that target the pathological proteins.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Prof. Barbara Bendlin, associate professor of medicine at the University of Wisconsin-Madison, about how microorganisms in the gut may influence brain health and Alzheimer's.
For more information, visit the website of the Wisconsin Alzheimer's Disease Research Center: https://www.adrc.wisc.edu/
To learn more about aging and Alzheimer's, you can also visit the website of the National Institute on Aging: https://www.nia.nih.gov/
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Dr. Brian Skotko, Emma Campbell Endowed Chair on Down Syndrome and medical geneticist at Massachusetts General Hospital, about the link between Down syndrome and Alzheimer's, and the research now underway to target the beta-amyloid plaques of people with Down syndrome.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Dr. Raffaella Nativio about epigenetics, aging, and Alzheimer's.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Dr. Erin Zahradnik about palliative care and improving caregiver interactions, as well as resources available following a dementia diagnosis.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Chris Boyce, a former hockey player with a 28-year career, about the repeated brain injuries that led to severe cognitive decline, which Chris now manages through regular exercise.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with accomplished writer and flutist Eugenia Zukerman about her Alzheimer's diagnosis, and how her creative outlets have helped her to cope with and explain the disease.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatientalzheimers/ For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with neurologist Dr. Majid Fotuhi about his work with NeuroGrow's 12-step brain rehabilitation program and how cognitively impaired brains can be rehabilitated and rejuvenated.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatientalzheimers/ For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Dr. Eugenia Trushina, a researcher at the Mayo Clinic, about her work on the restoration of mitochondria in the brain and its potential to prevent and even reverse neurodegeneration from Alzheimer's.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient... For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Dr. Emily Troyer about her research into the neurological effects of COVID-19 and the potential for a "crashing wave" of neuropsychiatric conditions, based in part on the outcomes of previous pandemics.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatientalzheimers/ For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Dr. Richard Isaacson of Weill Cornell Medicine about his research into menopause as a key predictor of Alzheimer's in women.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatientalzheimers/ For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Kelly Bone about her journey with early onset Alzheimer's disease and fighting for her right to die.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
To catch our Perspectives Talks live, join our Facebook page: https://www.facebook.com/beingpatient... For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Don Kent about his journey with Lewy Body dementia, from the first signs to his struggle to find a diagnosis, and his life with the disease.
Our mission is to give people impacted by dementia a better resource and connection to experts at the forefront of research. Our founder Deborah Kan funded Being Patient solely with her own savings to understand if people would value such a resource. Our audience has grown so rapidly, we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. We employ a team of journalists to give you the best possible information on dementia and brain health without bias.
To catch our Perspectives Talks live, join our Facebook page: https://www.facebook.com/beingpatient... For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Dr. Stephanie Collier, a psychiatrist at McLean Hospital, about the early signs of dementia, how they can be mistaken for other cognitive conditions, and how to handle a diagnosis.
To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatientalzheimers/ For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Dr. Jason Karlawish, a professor of medicine at the University of Pennsylvania, about how caregivers should prepare for the potential hospitalization of a loved one with dementia and dealing with "ICU delirium."
To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatientalzheimers/ For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with neurologist Dr. Steven Sabat about how quarantine life can lead to increases in feelings of depression and anxiety for both caretakers and people with depression, and how to manage those feelings.
Being Patient spoke with Lori Nisson, Family and Community Services Director at Banner Alzheimer's Institute, about what steps caregivers should take to protect their loved ones and themselves from COVID-19.
To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient... For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Dr. Dylan Wint, Director of Clinical Operations at Cleveland Clinic Lou Ruvo Center for Brain Health in Las Vegas, about how to recognize symptoms of COVID-19 in people with dementia and Alzheimer's and what caretakers should do.
To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient... For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Jim Butler about his Alzheimer's diagnosis and his efforts to "disarm" his diagnosis by rewiring his internal dialogue.
To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient... For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with dementia caregiving expert Teepa Snow on what steps caregivers should be taking amid COVID-19 concerns.
To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient... For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Jay Reinstein about his Alzheimer's diagnosis, the steps he took following the diagnosis to make use of local community and government resources, and how others can do the same.
Being Patient spoke with Dr. Albert Garcia-Romeu about the link between psychedelics and brain health, and what it might mean for Alzheimer's research.
To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient... For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Dr. Malaz Boustani about whether older adults should be given cognitive screening for dementia as part of their regular medical care.
To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatientalzheimers/ For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with Arthena Caston about the higher rates of Alzheimer's disease among African Americans, her efforts to raise awareness in the community, and her own early onset diagnosis.
Being Patient spoke with Dr. James Ellison about the coronavirus, why people with dementia are at a higher risk for catching it, and how to prepare.
Too often we misinterpret behaviors and emotions of people with dementia as symptoms of the disease, overlooking their genuine experiences. Being Patient spoke with Dr. Steven Sabat about his research into managing behavioral and psychological symptoms of dementia, and reframing how we view those with the disease.
Being Patient spoke with dementia care expert Christy turner about how caregivers can best deal with sleep disturbances and Sundowning, common problems for those with dementia.
Find more from our Brain Talks series here: http://bit.ly/2WfbzW4
Being Patient spoke with Dr. Laura Lewis about her research into the effects of deep sleep on brain health and cleansing.
Find more Being Patient: Brain Talks here: https://bit.ly/39nhj65
Being Patient spoke with occupational therapist and dementia care educator Teepa Snow about ways to improve quality of life while living with dementia, both for caretakers and those with the disease.
Find more Being Patient: Perspectives here: https://bit.ly/2u6LGPx
Being Patient spoke with Dr. Peter Snyder about his research into retinal scanning technology that may be able to identify markers of Alzheimer's disease, potentially allowing detection as early as twenty years before symptoms begin to show.
Being Patient founder Deborah Kan spoke with the hosts of Who Cares, a podcast focused on the conversation around home care, sharing the journey that led her to founding Being Patient.
Being Patient spoke with Kailin Casaletto, a neuropsychologist and assistant professor at UCSF Memory and Aging Center, about her study on the effects of regular physical and mental activity on brain health, particularly among those with a predisposition to develop frontotemporal dementia.
Find more of our Being Patient: Brain Talks series at: https://bit.ly/300AD5S
Lonni Schicker had spent most of her life being active, and working as a nurse and a teacher. But that all changed when she was diagnosed with Lewy Body Dementia (LBD) and Parkinsonism, which is different from Parkinson's disease.
As part of the Being Patient: Perspectives Live Talk series, we spoke with Lonni about coping with the diagnoses.
Last week, Biogen announced that its Alzheimer's drug aducanumab was effective in combating Alzheimer's disease after all, and that it would be reviving a trial cancelled earlier this year. However, questions still remain about what's next for patients and doctors as the drug moves toward FDA approval.
Dr. Sharon Cohen, Medical Director and Principal Investigator at the Toronto Memory Program, shares her views on Biogen's revived trial and the potential behind aducanumab.
Biogen has announced new data behind the Alzheimer's drug aducanumab, suggesting it was working on early stage patients. Jeff Borghoff was a participant for three years before the company halted the stage three clinical trial. He talks to Being Patient Alzheimer's about why he felt the drug was working.
Steven Barbieri was active in martial arts for most of his life. But when he started experiencing lapses in memory in his early 50s, he knew something was off. Chronic traumatic encephalopathy, or CTE, is a type of dementia caused by repeated traumatic brain injuries, often from contact sports. As part of the Being Patient: Perspectives Live Talks series, Steven shares his experience with CTE — from when he first noticed something was wrong, to diagnosis and self-care.
Dr. Arthur Kleinman, a Harvard professor and psychiatrist, spent most of his life working as a physician. But his view on the profession changed when his wife was diagnosed with early-onset Alzheimer's at age 59, and he found himself transforming from a physician to a caregiver. As part of the Being Patient: Brain Talks series, we spoke to Dr. Kleinman about his experience of caregiving through the eyes of a physician, which he describes in his new book, "The Soul of Care: The Moral Education of a Husband and a Doctor."
When Geri Taylor was diagnosed with Alzheimer's, she and her husband, Jim Taylor, decided to develop a philosophy to live life "fully and passionately." As part of the Being Patient: Perspectives talks, Geri and Jim share how they've lived with an Alzheimer's diagnosis.
Being Patient talks to Dr. Dale Bredesen, author of The End of Alzheimer's, about his research on lifestyle changes that may help slow cognitive decline.
Being Patient speaks to Professor Peter van Wijngaarden, the deputy director of the Centre for Eye Research in Australia (CERA), who is developing a “revolutionary” Alzheimer’s eye test that is entering a trial phase. The test has been funded by philanthropists like Bill Gates and applies imaging technology that is similar to what is used in used in NASA satellites.
People don’t expect that they’ll have to deal with Alzheimer’s in their 50s, but that is the reality for many families with loved ones who received an early-onset Alzheimer’s diagnosis. We speak to Judy Johanson, a clinical research ambassador for Massachusetts Alzheimer’s Disease Research Center at Massachusetts General Hospital. She cared for her late husband Steve after he was diagnosed with early-onset Alzheimer’s at 59 years old. She provides advice for families caring for loved ones with early-onset Alzheimer’s.
Recently, the Alzheimer's Drug Discovery Foundation gave researchers a $3.5 million award for promising early detection Alzheimer's tests. We speak to Olivier Danos, who is working with researchers on developing a non-invasive test that could detect MCI and early Alzheimer's.
The Washington Post recently reported that Pfizer buried data that one of their drugs, Enbrel (etanercept), might prevent Alzheimer’s disease. While some researchers expressed outrage over this decision, others argued Pfizer's findings were barely worth talking about. We speak to Hank Greely, a Stanford law professor about whether pharma has a moral obligation to share research findings with the public, plus what you should know when sharing your genetic data with testing companies.
Journalist and "On Pluto: Inside the Mind of Alzheimer's" author Greg O'Brien discusses his early-onset Alzheimer's diagnosis and advice he'd offer others who have received a similar diagnosis.
Katie Brandt, MM, the Director of Caregiver Support Services and Public Relations for the Massachusetts General Hospital Frontotemporal Disorders Unit, discusses how her late husband was diagnosed with Frontotemporal Degeneration (FTD) at the age of 29. Two weeks later, her father was diagnosed with Alzheimer’s at the age of 59. She covers the differences between FTD and Alzheimer's, dealing with misdiagnoses, behavioral approaches to Alzheimer’s care, caregiver support and the impact of dementia on young families.
Scientists have found something troubling off the coasts of Florida and Massachusetts: The brains of beached dolphins are showing signs of beta-amyloid, the protein that accumulates in toxic levels in the brains of Alzheimer’s patients and is thought to trigger nerve death. Dr. Deborah Mash discusses what her team’s findings could mean for humans.
Jack York, founder of It’s Never 2 Late (iN2L), discusses how innovative technology can improve older adults' physical and mental well-being.
Leading researcher Dag Aarsland discusses Lewy body dementia (LBD)—the form of dementia Robin Williams was diagnosed with after his death. He covers why people with LBD are often misdiagnosed with Alzheimer's, and the latest research on LBD.
We speak to Chris Albertyn, a researcher who is using medical marijuana to treat dementia patients in one of the first major trials. Watch more discussions from our Being Patient: Brain Talks series here: http://bit.ly/2WfbzW4
Former Intel executive, Pam Montana, was diagnosed with younger-onset Alzheimer's at 61 years old. Today, she is an Alzheimer's advocate, who has traveled the globe telling her story in front of Congress and on platforms like PBS.
Phil Gutis is an Alzheimer's advocate and former New York Times reporter who learned he has early-onset Alzheimer's at age 54.
Rhoda Au is a leading neuropsychologist who is studying how someone’s voice or writing patterns could be used to determine whether or not they will develop Alzheimer’s.
Former NFL wife and author of “After the Cheering Stops,” Cyndy Feasel discusses CTE, sports’ injuries and what parents should know about the impact of head injuries on their children. Learn more about sports and dementia risk here: http://bit.ly/2vcuOUs
Mike Belleville was told he had Alzheimer's, but later found out he was wrongly diagnosed and living with Lewy body dementia. Could your Alzheimer's diagnosis be another form of dementia?
Jeff Borghoff and his wife Kimberly speak about participating in the Biogen drug trial testing aducanumab, a drug that targets beta-amyloid. The late-stage trial was recently canceled, news that sent participants, their families, researchers and stocks reeling.
Dementia care expert, Teepa Snow, discusses strategies caregivers can use to help their loved ones.
Leading neuroscientist and New York Times bestselling author, Lisa Genova, speaks to Being Patient about how she used storytelling to raise awareness about Alzheimer's, brain health research and how her book, Still Alice, became an Oscar-nominated film.
After being diagnosed with early-onset Alzheimer's at age 50, Peter Berry considered ending his life. Following the initial shock, he realized there are people going through similar experiences who he could help. Being Patient talks to Berry about how to deal with depression after an early-onset Alzheimer's diagnosis.
We all know how difficult caregiving for a loved one with dementia can be. Imagine finding out you have Alzheimer’s too. Being Patient speaks to Jeff Borghoff about receiving a diagnosis at 51 years old.
Darya Gaysina, Ph.D., from the University of Sussex shares what she learned about the link between depression and dementia from reviewing the data on over 71,000 people. She's a developmental psychologist and expert in how mental health disorders affect brain aging.
Being Patient talks to Dr. Marie Pasinski, faculty member at Harvard Medical School and neurologist at Massachusetts General's Institute for Brain Health, about why two out of three Americans with Alzheimer's are women and why it's especially important for women to address modifiable lifestyle risk factors for Alzheimer's.
We know that obesity is linked to increased dementia risk—but what about being 'skinny fat'? Being Patient talks to Dr. James Galvin, associate dean for clinical research at the Florida Atlantic University College of Medicine, about what he's discovered in a recent study of over 300 people.
Being Patient talks to Jason Prall, Founder of The Longevity Project, who traveled the globe to figure out what healthy centenarians have in common.
Being Patient talks to Dr. Daniel Gartenberg about what happens to your brain when you are deprived of sleep and how technology can help you get a better night’s rest.
We talk to Dr. Bruce Miller, head of the Global Brain Health Institute at UCSF and a world-renowned expert, on how dementia alters behavior and personality.
Being Patient talks to Dr. Gary Small, director of geriatric psychiatry at UCLA’s Longevity Center and of the geriatric psychiatry division at the Semel Institute for Neuroscience and Human Behavior at UCLA, about how curcumin can improve memory.
We talk to Dr. Bruce Lamb, Head of the Stark Neurosciences Research Institute at Indiana University, about how a traumatic brain injury can kick-start inflammation in the brain and, potentially, lead to dementia.
We talk to Professor Valter Longo from the University of Southern California about why he believes fasting could be the most potent way to activate rejuvenation processes in the body and lower risk of disease. He is the creator of the fasting mimicking diet (FMD) and the director of USC’s Longevity Institute.
We talk to Dr. Nir Lipsman, a neurosurgeon at the Sunnybrook Health Sciences Center, at the Alzheimer’s Association International Conference (AAIC 2018)about how ultrasound technology could be used to treat Alzheimer’s.
We talk to Rudy Tanzi, professor of neurology at Harvard University and Director of the Genetics and Aging Research Unit at Massachusetts General Hospital, about what he’s learned from over 35 years of research on the brain.
We talk to Daniela Kaufer, from the Helen Wills Neuroscience Institute and the University of California, Berkeley, about the effects of chronic stress on the brain.
We talk to Dr. Martha Clare Morris, creator of the MIND diet, about how diet may help prevent Alzheimer’s.
We talk to Dr. Nathaniel Chin, Director of Medical Services at the Wisconsin Alzheimer’s Disease Research Center, about what the current research says about your genetics and Alzheimer’s risk.
We talk to Jamie Tyrone, who has two copies of the Apoe4 gene, putting her at greatly elevated risk of Alzheimer's disease. She tells us about how genetic testing changed her life and what you need to consider before you get tested.
We talk to Dr. Bill Burke, M.D., Director of the Stead Family Memory Center at the Banner Alzheimer's Institute, on what you need to ask your doctor if you think you or a loved one has signs of cognitive decline.
Deborah Kan, founder of Being Patient (beingpatient.com), interviews Dr. Ed Blonz, biochemist and nutrition researcher at UCSF about the benefits of fat-based fuels, or ketones, for your brain.