Power Over Parkinson's: Recent Episodes
Power Over Parkinson's
Subscribe for a wonderful cross section of discussions ranging from people with Parkinson's Disease to those who work in the medical, fitness, and research space. Power Over Parkinson's (POP) is a foundation supporting the use of exercise and wellness to reduce the symptoms or slow the progression of Parkinson’s Disease. To learn more visit us at poweroverpd.org
Dr. Sule Tinaz, Associate Professor of Neurology at the Yale School of Medicine in the Movement Disorders Division and Clinical Neurosciences Imaging Center, joins us to talk, you guessed it, exercise! We can never hear too much information and advocacy on exercise. Why? Because it’s the only known intervention that is known to alleviate the symptoms and slow the progression of the disease. Dr. Tinaz’s research is focused on developing personalized therapies that people can use to cope with their symptoms. She believes we are not passive receivers of our experiences but active agents, as we can actively impact how this disease progresses, particularly through exercise.
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Allie Signorelli, Parkinson’s Advocate and person with young onset Parkinson’s (YOPD), shares her journey to diagnosis and how she’s positively impacting the Parkinson’s community at a national level. Allie is lending her voice through advocacy and harnessing her career experience, particularly in fundraising and event management, to serve our community and aid in research that’s related to both therapeutics as well as the cure that we are all hoping for! Allie is an inspiration to us all and our community is lucky to have her finding her “silver linings” as someone with YOPD.
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Listen as Kristine Meldrum, Author and Founder & President of Parkinson’s Place Iowa, shares her expertise on all things Parkinson’s and exercise. Having paved the way for coaching Parkinson’s patients through evidence-based exercise programs, Kristine is in a league of her own when it comes to understanding precisely how those with the disease should exercise. Having recently published, Parkinson’s: How to Reduce the Symptoms through Exercise, Kristine proclaims that people with PD “are athletes now” and need to view themselves as such. In her book, she lays out a thorough plan for people to follow as they create their own exercise regimen and, in this interview, she not only shares her candid insight but also the concrete research behind her specific recommendations.
Kristine Meldrum is the author of Parkinson’s: How to Reduce Symptoms Through Exercise. She is an exercise professional working with Parkinson’s and other neurological clients. She is the founder and president of Parkinson’s Place, Iowa, and writes and speaks nationally at Parkinson’s Conferences with a presentation titled Parkinson’s: How to Exercise to Reduce Symptoms. Kristine has spent fifteen years in the fitness industry and worked a decade in the medical fitness industry before starting a Neuro Wellness Program in 2020. Kristine engages one-on-one with clients and teaches neuro-classes at Grand Living in West Des Moines, Iowa. She also consults with organizations to help start neuro-wellness programs. Contact her for speaking engagements, consulting and book sales at kristinemeldrum@gmail.com. More information about the book can be found at parkinsonsbook.com.
The LYLAS Podcast
If you know what LYLAS stands for, then this podcast is for you! Two besties since...
Listen on: Apple Podcasts Spotify
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Dr. Erin Presant, board-certified neurologist and certified culinary medical specialist, shares tangible insight on what it means to use food as medicine and how people with Parkinson’s should be employing this concept. She also dispels common misconceptions associated with our diet culture and how “getting back to basics” should be the thread that runs through our culinary choices.
The LYLAS Podcast
If you know what LYLAS stands for, then this podcast is for you! Two besties since...
Listen on: Apple Podcasts Spotify
Support the show
Join us as we sit down with Dr. Catherine Crenshaw, Neuropsychologist and the Director of the Perioperative Cognitive Anesthesia Network (PeCAN) at the University of Florida, for another targeted discussion related to Parkinson’s Disease. Dr. Crenshaw conducts imperative work as it relates to cognitive changes for older adults who have elected surgery with anesthesia. Listen as Dr. Crenshaw clearly describes the gaps in care and ultimately a clear plan for including the brain as a vital organ pre and post surgery by utilizing cognitive assessments to ensure the best surgical outcomes and ultimately mitigate cognitive impairments following surgery.
The LYLAS Podcast
If you know what LYLAS stands for, then this podcast is for you! Two besties since...
Listen on: Apple Podcasts Spotify
Support the show
Feeling so lucky to have had the chance to share our Power Over Parkinson's mission on NBC12 About Town Today with Candice Smith!
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In this installment of our POP Profile Series we sit down with Dr. Alberto Espay, Professor, Director, and Endowed Chair of James and Joan Gardner Center for Parkinson’s Disease at the University of Cincinnati. Dr. Espay’s exuberance and passion for researching future therapies in Parkinson’s Disease is palpable and his novel approach in deconstructing barriers that accompany disease labels is profoundly impactful.
Gardner Center for PD: https://www.uchealth.com/en/neuroscience-institute/parkinsons-disease-and-movement-disorders-center
CCBP: https://ccbpstudy.com
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Listen as Dr. Woodford Beech, Speech-Language Pathologist at the VCU Parkinson’s and Movement Disorder Center, a Parkinson’s Center of Excellence, shares an overview of speech and swallowing changes in Parkinson’s Disease. Dr. Beech gives practical guidance and advice on managing these potential challenges with a clear understanding of the critical balance between mitigating every symptom and ensuring quality-of-life (i.e. - one’s life outside Parkinson’s).
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Listen as Leslie Davidson, author of Dancing in Small Spaces and person with Parkinson’s Disease, shares her inspiration behind her candid memoir on the life she built with her beloved husband, Lincoln. After receiving two devastating progressive diagnoses - she with Parkinson’s and he with Lewy Body Dementia - Leslie and Lincoln managed to not only utilize the strength in their relationship to process their respective diagnoses, but also harness the determination they needed as they managed the diseases through gratitude, humor, and, yes, a few tears. As you listen, you’ll be struck by Leslie’s calmness and acceptance, particularly around the passing of Lincoln, as well as how she now navigates Parkinson’s every day with grace, honesty, and acceptance.
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Listen as Dr. Christine Esper, Associate Professor within the Department of Neurology at Emory University, shares many advancements within the Parkinson’s Disease space. Dr. Esper elaborates on her work within the Emory Brain Health Center’s 3D Motion Capture Lab and how both gait and tremor in Parkinson’s are being analyzed. Dr. Esper also shares how she’s been on the forefront of examining how DBS tele-programming can be successfully done. Finally, Parkinson’s Disease (along with MS) were the first two diseases selected by the CDC as part of their National Neurological Conditions Surveillance System (NNCSS) and Dr. Esper is on the team helping to track the epidemiology of neurological conditions. The aim of the NNCSS is to derive actionable and timely information to increase understanding of neurological conditions and catalyze research into causes, diagnosis, and treatment.
Listen as Dr. Soania Mathur, a Parkinson's warrior and advocate, shares her journey to diagnosis, how she remains optimistic, and her motivation behind authoring two books: My GrandPa's Shaky Hands & Shaky Hands.
Listen as Dr. Richard Manfready, Instructor in Medicine in Digestive Diseases at Rush University Medical Center, shares the gut-brain connection in Parkinson’s Disease. Dr. Manfready elaborates on his research that has him working backwards in a remarkable way. He has taken the known factors about Parkinson’s – loss of dopamine producing cells due to misfolded proteins - and has notably taken a step back from there. By finding that inflammation can cause proteins to misfold, and working backward, he’s asked the question: what causes the inflammation? Listen as he comments on what he’s finding as a reason for this disease-inducing inflammation.
We recently sat down with Melanie Lomaglio, DPT, who runs the STARS Parkinson’s Center in St. Augustine, Florida. Learn why physical therapy is such an important component of managing the disease and how to find a physical therapist that will be a long-term, impactful member of your care team.
Dr. Ray Dorsey from the University of Rochester and co-author of the book, Ending Parkinson’s, sits down with us for our POP Profile Series. He shares his unequivocal stance that Parkinson’s is truly the pandemic of our time as the fastest growing neurological disorder. The Parkinson’s community is better because of Dr. Dorsey’s passion around ending the silence and motivating people with and without the disease to speak up and take action.
Hear from Joe on why he attends PAL events! Visit our site to learn how our local events brings the community together to showcase the benefits of being active.
Dr. Kathleen Poston from the Poston Lab at Stanford University’s Department of Neurology and Neurological Services, shares her time with us to share more about the research being conducted related to the non-motor symptoms of the disease, particularly around cognitive impairment. Listen as Dr. Poston elaborates on how using neuroimaging to examine various individual proteins as well as how analyzing cerebrospinal fluid to assess a multitude of proteins can lead to connections made about why cognitive impairment presents itself in some Parkinson’s patients.
We had the pleasure of sitting down with Brett Miller, Owner and Coach at 110 Fitness, to learn more about how he created a boutique Parkinson’s and Wellness Center in Rockland, MA. Listen as he shares the “why” behind the imperativeness of meaningful, research-based movement and his recommendations for those who are just beginning an exercise regimen.
Dr. Gordon Baltuch’s recent transition from University of Pennsylvania to Columbia University signifies his self-described “second act” in his career as a neurosurgeon. Having been on the forefront of Deep Brain Stimulation and now being one of the leading pioneers in the newly approved Focused Ultrasound procedure, Dr. Baltuch’s immense perspective on the surgical options for people with Parkinson’s is truly unparalleled.
Visit Dr. Gordon Baltuch's Columbia University Medical Center profile: https://www.neurosurgery.columbia.edu/profile/gordon-h-baltuch-md
Karl Robb, a person with Parkinson's, alongside his wife, Angela, an inspirational care partner, join us for our POP Profile Series. Listen as they share how they pivoted to become steadfast advocates for those battling the Parkinson's. Karl is thriving as a result of his mindful management of the disease as well as Angela's unwavering dedication in her role as care partner.
Growing experimental evidence shows microbial influence on neurological function in both health and disease. Studies also suggest microbial makeup is “altered” in people with neurological disease, particularly Parkinson’s Disease. Dr. Tim Sampson from Emory University School of Medicine casts a light on the intestinal microbiome as an important location in the genesis of Parkinson's Disease and how continued research down this path is critical in unlocking diagnosis and future treatments.
Often people with Parkinson’s do not recognize the quietness and clarity of their voice. Expert speech-language pathologist and Founder/CEO of Parkinson Voice Project, Samantha Elandary, joins us to provide advice to PwPs and care partners who are dealing with audibility and clarity difficulties.
Telemedicine is not just for times of global health crises. While telemedicine appointments certainly soared during the pandemic, it's important to think about it as a long-term vital option for people with movement disorders. Dr. Jill Farmer, Director, Parkinson’s Disease and Movement Disorders Program at Global Neurosciences Institute and Assistant Professor of Neurology at Drexel College of Medicine, details why she believes telemedicine to be an effective option for people with Parkinson's Disease.
Dr. Binit Shah, Division Head at University of Virginia, discusses the potential benefits of using focused ultrasound treatment for Parkinson's Disease.
World Parkinson's leader, Dr. Michael Okun, shares his expertise and incredible perspective on the disease, how to best manage it, and its outlook in this wonderfully informative interview.
Dr. Michael Okun is the Adelaide Lackner Professor and Chair of Neurology
Executive Director, Norman Fixel Institute for Neurological Diseases at University of Florida Health
PD Avengers President, Larry Gifford, describes the importance of a global effort to end Parkinson's
Power Over Parkinson's (POP for short) is a 501(c)(3) foundation supporting the use of exercise and wellness to reduce the symptoms or slow the progression of Parkinson’s Disease and other neurodegenerative disorders.
This isn't your grandparent's Parkinson's anymore. Hear the latest in advancements in Parkinson's Disease treatments from Mount Sinai Medical Director and Associate Professor of Neurology and Neurosurgery, Dr. Joohi Jimenez-Shahed.
Hear the benefits that home automation can provide to ease living with movement disorders such as Parkinson's Disease. We sit down with Henry Clifford, CEO of Livewire, a state-of-the-art technology integration company specializing in home automation, who shares how technology can help improve your way of life.
Listen and experience our recent benefit concert for PD and the versatile sounds of acoustic guitarist/instrumentalist Lou Vangieri aka The LCV Project. LCV Project has over a decade of experience playing out people's stresses, easing listeners into a state of existential acoustic bliss with instrumental folk renditions and original songs. We hope you can support us, enjoy the music, and help those dealing with the symptoms of Parkinson's Disease.
Our background with Parkinson's Disease are not all the same, such as the first sign of symptoms, the official diagnosis, or how we informed friends and family. Yet, we are now on this journey together, finding our new way of living and wanting to help others. Join us on this road as we share our stories and take questions from listeners on YouTube and Facebook. Whether you have Parkinson's or you're a care partner - you'll want to hear this!
To support those with Parkinson's, please visit the link below. Every dollar goes directly to providing in person and virtual programs and services: https://www.poweroverpd.org/donations
Listen to hear what the Director of the VCU Health Parkinson's Disease Program, Dr. Leslie Cloud, has planned for the Program. Her knowledge, passion and focus on what tomorrow's care will look like is inspiring!
Hear the important role therapeutical services play in managing the symptoms of Parkinson's Disease with James Vidrine, Regional Director at Fox Rehabilitation.
Power Over Parkinson's (POP for short) is a 501(c)(3) foundation supporting the use of exercise and wellness to reduce the symptoms or slow the progression of Parkinson’s Disease and other neurodegenerative disorders.
Physical activity and movement is powerful for people with Parkinson's, says Dr. Daniel Corcos, Professor of Physical Therapy and Human Movement Sciences at Northwestern University. Hear him enlightens us on the important of movement for slowing the symptoms of Parkinson's.
Power Over Parkinson's (POP for short) is a 501(c)(3) foundation supporting the use of exercise and wellness to reduce the symptoms or slow the progression of Parkinson’s Disease and other neurodegenerative disorders.
VCU Health's Dr. Brian Berman, Professor of Neurology, Chair of the Movement Disorders Division, and Director of VCU Parkinson’s and Movement Disorder Center, discusses his goals for becoming a community partner and leader at the Parkinson's and Movement Disorder Center.
Parkinson's fighter, Bill Coursey, visits Power Over Parkinson's to share his experience about how a Parkinson's diagnosis changed his life and the ways he has adapted to continue to live well.
CurePSP President, David Kemp, discusses how his organization aids those with PSP, the similarities to Parkinson's Disease, and updates on the latest in neurological disease research.
To learn how POP is supporting the Parkinson's community, visit us at poweroverpd.org.
Power Over Parkinson's Senior Advisor and Strength Coach, Jojo McDuffie, joins us to discuss Jojo's path to becoming a premier member of the Parkinson's community and the benefits of staying mentally and physically fit with Parkinson's Disease.
To learn how POP is supporting the Parkinson's community, visit us at poweroverpd.org.
Ken Konopky joins the POP Profiles series to share how a Parkinson's diagnosis changed his life.
Because of the inherent value of staying connected with others who are also battling the disease, Power Over Parkinson’s has interviewed and shared the stories of a number of PwPs (People with Parkinson's) through its POP Profile series.
We thank all of those fighters who have shared their story as part of this series.
Bob Scudder shares his journey with Parkinson's disease in our POP Profiles series.
Because of the inherent value of staying connected with others who are also battling the disease, Power Over Parkinson’s has interviewed and shared the stories of a number of People with Parkinson's (PwPs) through its POP Profile series.
We thank all of those fighters who have shared their story as part of this series.
To learn how POP is supporting the Parkinson's community, visit us at poweroverpd.org
POP is joined by Scientific Affairs and Research Manager, Caitlin Nichols, from AllStripes to profile their leading research work.
To learn how POP is supporting the Parkinson's community, visit us at poweroverpd.org.
Listen to Joe D'Orazio in our POP Profiles series share how he works hard everyday to live well with Parkinson's disease.
Because of the inherent value of staying connected with others who are also battling the disease, Power Over Parkinson’s has interviewed and shared the stories of a number of People with Parkinson's (PwPs) through its POP Profile series.
We thank all of those fighters who have shared their story as part of this series.
To learn how POP is supporting the Parkinson's community, visit us at poweroverpd.org