Welcome to 'My rare disease' podcast. This is a platform where I raise awareness of something that affects 1 in 15 people, rare disease. By chatting to patients, health professionals and advocates, we talk about all aspects of rare disease including relationships, mental health and much more. I cannot wait for you to hear some truly inspiring stories from some absolutely amazing people. From being diagnosed with a rare disease myself at 10 weeks old, it has given me the motivation to give others in the rare disease community an opportunity to share their thoughts and experiences.
Medics4RareDiseases
Amber J Tresca
MitoAction
Annie Watson
Sanford CoRDS
Lori Hartwell
Alyssa Gallegos
Effie Parks
Parkinson’s Foundation
Zekel Healthcare
Bouba Diemé (Heart Of A Giant)
Danny Hiles
RCGP eLearning Podcast
WSPOS
Dan Jeffries
Heart And Stroke Foundation of Canada
Dr. Daniel Cameron
Suno India
Artemis Joukwosky, Cray Novick, Gareth Burghes
Nimisha Aithal
Cambridge BioMarketing
Canadian Lyme Disease Foundation
The Crohn's & Colitis Dietitians
Carole Scrafton
medflashgo
American Society of Hematology
Kristine Sufcak, MD
David Sakaria
OffScrip Health
Kyle Hornberger
Kroll Care
mcgpediatricpodcast
CurtCo Media
Rio Bravo Family Medicine Residency Program
The Lancet Neurology
Kristopher R. Maday, MS, PA-C
None
Shivani Vyas
Kimberly Thomas-Tague
Medicine East Midlands
IDPodcasts
The Lancet Neurology
Ryan Flaherty, DO, Samantha DeMarsh, DO, and Elizabeth Grogan, MD
Alison Michelle Harrison
Immune Deficiency Foundation
None
Derren Raser
Magpie Concept
Gil Porat, M.D., FACP, CPT
Dr. Courtney Craig
Oluwatosin Ojebisi
The Cribsiders
TLC Sessions
Figure 1
Stanford Medcast
Michael Healey
Daniel Miller, Gabe Esses, and Jack Kabariti
BloodStream Media
The Carle Foundation Hospital
Centra Health
Jayaprakash Gosalakkal
Healthtech For Care
RDR
jason biron
South Central PA Sickle Cell Council, Dwayne Golden
Simon R. Downes, MD, PhD student
Kent Bressler
Maquawn
Horizon Therapeutics | PodcastOne
American Academy of Family Physicians
Dr. John Cush
Jeffrey Roberts
University of Saskatchewan, Office of the Vice-Dean Research, College of Me
Allergy & Asthma Network
by the FLCCC Alliance
David Bishop, LCSW, Certified Health Coach (CHC)
Howard Unger
Roo
Susan Hendrix My Story Living
Lauren Freedman
Dr. Sagar Bhattad, MD, DM
EFA, via EuroPod
Vincent Racaniello
The One-Liner Team
Journal of Allergy and Clinical Immunology: In Practice (JACI)
Mayo Clinic
American Partnership for Eosinophilic Disorders
St John's DermAcademy
In Sequence: a genomics podcast by Genuity Science
American Academy of Neurology
Rezilir Health
Being Patient
Krembil Brain Institute
Global Healthy Living Foundation
DoctorPodcasting.com
AAAAI Podcast: Conversations f
Molly
Baptist Health South Florida