Autism Family Toolkit: Recent Episodes
Brian Keene
Are you a parent of an autistic or neurodiverse child, who is feeling overwhelmed and would benefit from resources to help you better support and connect with your child? If this describes you, then please subscribe and follow the Autism Family Toolkit now, because this podcast was created specifically for you and your parenting journey! The Autism Family toolkit provides short, practical, parenting habits, hacks, and routines to maximize your family’s ability to thrive in everyday situations. The tools discussed on the show are things you can utilize right away, and build into your home routines. My name is Brian Keene, and I am a licensed pediatric occupational therapist, and the founder of Pure Hearts Therapy, a growing therapy practice that provides in-person and virtual therapies. Pure hearts therapy is based in phoenix, Arizona and provides services in the greater Phoenix metropolitan area. Make sure to subscribe so you don't miss any of our bi-weekly podcast episode releases. For more information please reach out to us at: info@pureheartstherapy.com or visit the website for more information: www.pureheartstherapy.com
In this episode, Brian sits down with Dr. Norrine Russell, a developmental psychologist, parent, and founder of one of the largest coaching practices for neurodivergent students in the country. Drawing from both her professional expertise and her lived experience raising children with ADHD, autism, and anxiety, Dr. Russell shares a powerful and practical approach to supporting kids in school and in life.
The conversation breaks down executive functioning in a way that actually makes sense for parents and caregivers, reframing it as everyday life skills like planning, time management, and follow-through. You'll also hear about "Connected Coaching," a model that supports students through executive functioning, social-emotional growth, and study skills.
From task initiation struggles to test preparation challenges, this episode is filled with real-life examples and strategies families can begin using right away. Dr. Russell also shares key insights on IEP and 504 advocacy, helping parents better navigate school systems and ensure their child gets the support they need.
This episode is a reminder that there is no one-size-fits-all approach—and that your child's strengths matter just as much as their challenges.
Topics Covered
- What executive functioning really means in everyday life
- Why task initiation and follow-through are common challenges
- How to support kids with planning and organization
- The biggest study skill most students are missing
- Why self-testing is critical for learning and retention
- How to advocate effectively in IEPs and 504 plans
- Understanding autism as multiple spectrums, not just one
- Why strengths-based support changes everything
Memorable Quote "You have permission to create your parenting style in a way that works for your child and your family."
About the Guest Dr. Norrine Russell is a developmental psychologist, parent, and founder of Russell Coaching for Students, one of the largest coaching practices for neurodivergent students in the U.S. She developed the "Connected Coaching" model, which integrates executive functioning, social-emotional development, and academic skills to support students in a holistic and personalized way.
Resources Mentioned
- Russell Coaching for Students (20% off 3 months with code: podcast26)
- Quizlet (study and self-testing tool)
About the Host Brian Keene is an occupational therapist and founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy practice based in Arizona. Through the Autism Family Resource Podcast, Brian provides practical tools, support, and real conversations to help families feel more confident navigating their child's journey.
Subscribe & Connect
If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation.
Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956
Explore more resources for families at: https://pureheartstherapy.com
In this episode, Brian sits down with Robert J. Bernstein, a speech clinician with over 35 years of experience working with autistic children and their families. Together, they explore how communication, learning, and connection can grow through everyday moments—not just structured therapy.
This conversation challenges some traditional approaches in both school systems and home environments. Rob shares why many children struggle in classrooms that prioritize compliance over understanding, and how small shifts—like allowing movement, following a child's lead, and staying curious—can make a meaningful difference.
They also dive into practical, real-life strategies for parents, including how to support communication without pressure, how to respond when a child seems distracted, and why persistence (without forcing) matters.
If you're a parent feeling unsure, overwhelmed, or wondering if you're doing enough—this episode offers reassurance and simple ways to connect more deeply with your child.
Topics Covered * Why everyday moments are powerful for building communication * How school environments can impact self-esteem and regulation * Supporting kids who need movement to learn * The difference between compliance and true understanding * How to respond to echolalia and automatic responses * Teaching "no" and "I don't know" as meaningful communication * Why persistence matters (and when to adjust your approach) * How parents can advocate effectively within school systems
Memorable Quote "Don't give up… find a way to make a difference for your child."
About the Guest Robert J. Bernstein is an educational and cognitive therapist and autism specialist with over 35 years of experience supporting autistic children and their families.
Resources Mentioned * Uniquely Normal by Robert J. Bernstein * SpedNet (Special Education Network event)
About the Host Brian Keene is an occupational therapist and the founder of Pure Hearts Therapy, a pediatric therapy company based in Arizona. He specializes in neurodiversity-affirming, play-based therapy that supports children and families in building regulation, connection, and meaningful daily life skills.
Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation.
Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956
Explore more resources for families at: https://pureheartstherapy.com
In this final episode of the series with Mandy Pinckley, we explore what advocacy truly looks like beyond awareness posts and hashtags. Mandy shares how lived experience can create meaningful change in schools, communities, organizations, and policy spaces when autistic voices are included in the conversation.
Together, Brian and Mandy discuss neurodiversity-affirming advocacy, navigating IEP meetings, building confidence in public speaking, collaborating with professionals, and why empowering autistic children starts with giving them autonomy and honoring their interests.
Mandy also shares her work helping improve autism representation and language within organizations like National Alliance on Mental Illness, along with conversations surrounding policy, digital safety, and reducing stigma around autism and neurodivergence.
This conversation is grounded, honest, and deeply encouraging for parents, caregivers, autistic individuals, and professionals who want to create safer and more supportive environments for neurodivergent children and adults.
Topics Covered * Turning autism awareness into meaningful advocacy * Why lived experience matters in policy conversations * Navigating IEP meetings with confidence * Supporting autistic autonomy and self-advocacy * Collaboration between parents, professionals, and autistic adults * Neurodiversity-affirming language and reducing stigma * Public speaking anxiety and building confidence over time * Digital safety concerns for neurodivergent youth online
Timestamps 00:00 Introduction 01:00 What advocacy and action really look like 04:20 Building neurodivergent support spaces through collaboration 10:50 Overcoming fear and speaking publicly 13:20 Advocacy tips for parents navigating IEPs 17:20 Collaboration between families and professionals 20:40 Digital safety and protecting children online 23:30 Encouraging autonomy and self-expression in autistic children
Memorable Quote "Your child's voice, you're their sword and their shield." — Mandy Pinckley
About the Guest Mandy Pinckley is an autistic advocate focused on neurodiversity-affirming support, policy conversations, community collaboration, and empowering autistic voices in leadership spaces. Through advocacy work, peer-led initiatives, and public speaking, Mandy works to reduce stigma and help create more inclusive environments for neurodivergent individuals and families.
Resources Mentioned * National Alliance on Mental Illness * Center for Autism and Related Disabilities * Discord * Roblox
About the Host Brian Keene is an occupational therapist and founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy company providing home-based OT, PT, ST, and parent support services.
Through the Autism Family Resource Podcast, Brian shares practical conversations and supportive resources to help families navigate autism, sensory needs, regulation, advocacy, and everyday life.
Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation.
Listen and subscribe to the Autism Family Resource Podcast: Autism Family Resource Podcast
Explore more resources for families at: Pure Hearts Therapy
In this episode of the Autism Family Resource Podcast, Brian Keene speaks with Joseph Shipman, an autistic adult, radio professional, musician, artist, and co-author of A Mother's Guide Through Autism.
Joseph shares his experience growing up autistic, including early diagnosis, sensory sensitivities, speech therapy, social learning, friendships, bullying, grief, music, and the transition into adulthood. He also reflects on the role his parents played as fierce advocates, especially his mother, Brigitte Shipman, and how their shared story became a book told from both parent and autistic adult perspectives.
This conversation offers parents a grounded and hopeful reminder: autistic children do not need to follow one narrow path to live meaningful lives. Joseph's story highlights the importance of advocacy, authentic support, creative expression, and believing in each child's capacity for growth, connection, independence, and fulfillment.
Topics Covered
• Joseph's early autism diagnosis and childhood experiences • Sensory sensitivities and social learning • How therapy and school support shaped Joseph's development • Friendship, small talk, and reading social cues • Mental health, grief, bullying, and resilience • Music and art as outlets for expression • Autistic adulthood, work, and independence • The story behind A Mother's Guide Through Autism
Memorable Quote
"There's always going to be some level of capable, independent, authentic, happy living."
About the Guest Joseph Shipman is an autistic adult, radio professional, musician, artist, and co-author of A Mother's Guide Through Autism. In the book, Joseph shares his perspective in Through the Eyes of the Guided, offering insight into growing up autistic and navigating adulthood with authenticity.
Resources Mentioned
A Mother's Guide Through Autism https://www.amazon.com/Mothers-Guide-Through-Autism-Guided/dp/1737563959
Mother's Guide Through Autism https://www.mothersguidethroughautism.com/
About the Host Brian Keene is the founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy practice in Arizona. Pure Hearts Therapy provides home-based occupational therapy, speech therapy, physical therapy, and virtual parent coaching to help children grow through connection, play, and real-life experiences.
Subscribe & Connect
If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation.
Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956
Explore more resources for families at: https://pureheartstherapy.com
Sex education can feel awkward, overwhelming, or even taboo for many parents, especially when they are raising neurodivergent children and already navigating so many daily demands.
In this episode, Brian talks with Cath Hakanson, founder of Sex Ed Rescue, about how parents can approach sex education in practical, shame-free, and neurodiversity-affirming ways. Cath explains why sex education is not one big "talk," but a series of everyday conversations about bodies, safety, relationships, consent, privacy, values, and trust.
Cath shares how parents can become more "askable," why honest answers help build safety, and how conversations about body boundaries and consent can support autistic and neurodivergent children as they grow. This conversation is warm, direct, and grounded in real life, helping parents understand that they are probably already teaching sex ed in small ways, even if they do not realize it yet.
Topics Covered
• Why sex education starts earlier than many parents think • How to become an "askable parent" • Why honest, age-appropriate answers build trust • Teaching consent, body boundaries, and privacy • Supporting autistic and neurodivergent children with explicit teaching • Why information is not permission • Helping children feel safe, informed, and respected
Memorable Quote
"Information isn't permission. It actually empowers kids."
About the Guest
Cath Hakanson is an autistic ADHDer, parent of neurodivergent children, and founder of Sex Ed Rescue. She helps parents approach sex education in practical, shame-free ways that support safety, trust, consent, and healthy relationships.
Resources Mentioned
Sex Ed Rescue: https://sexedrescue.com/
Sex Ed Shop: https://sexedshop.com/
Sex Ed Membership for Parents: https://sexedshop.com/products/sex-ed-membership
SECCA: https://www.secca.org.au/
Cath Hakanson on Facebook: https://www.facebook.com/cathhakanson
Cath Hakanson on Instagram: https://www.instagram.com/sexedrescue/
Cath Hakanson on LinkedIn: https://www.linkedin.com/in/cathhakanson/
About the Host
Brian Keene is an occupational therapist and founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy practice supporting children and families through home-based occupational therapy, speech therapy, physical therapy, and parent support in Arizona.
Subscribe & Connect
If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation.
Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956
Explore more resources for families at: https://pureheartstherapy.com
In this episode of the Autism Family Resource Podcast, Brian Keene talks with Dr. Jonathan Chism, father, educator, and founder of the Autism Dad Social Club. Dr. Chism shares how his own parenting journey led him to create a space where fathers of autistic children could connect, recharge, share resources, and build real community.
Together, Brian and Dr. Chism discuss why dads can sometimes feel isolated, why support matters for fathers as much as it does for children, and how community can help families feel less alone. Dr. Chism also explains how the Autism Dad Social Club creates social opportunities for dads, children, and families through meetups, family events, resource sharing, and virtual connection.
This conversation is a warm reminder that parenting does not have to happen in isolation. When fathers find community, they can support one another, share wisdom, and help create a wider circle of care for their children.
Topics Covered
- Why Dr. Chism started the Autism Dad Social Club
- The importance of community for fathers of autistic children
- How dads can support each other through shared experiences
- Creating social opportunities for autistic children and families
- Why respite and connection matter for parents
- How dads outside of Houston can begin finding or building community
Timestamps
00:00 Introduction 00:41 What is the Autism Dad Social Club? 02:12 Why Dr. Chism started the club 05:43 Challenges that led him to seek community 13:12 What dads can expect at a meetup 20:11 Advice for dads who do not have community yet 24:20 Why support for fathers matters
Memorable Quote
"Once you bond with other fathers, you feel a sense of pride. Like, man, I parent an autistic child, and we're out here doing it."
About the Guest
Dr. Jonathan Chism is a father, educator, and founder of the Autism Dad Social Club, a community created to support dads of autistic children through connection, social events, resource sharing, and family-centered gatherings. Based in the Houston area, the club helps fathers build brotherhood, reduce isolation, and create supportive spaces for their children and families.
Resources Mentioned
- Autism Dad Social Club
- Fatherhood Huddle
- Autism Society of Texas
- Autism Society
- Autism Speaks Walk
About the Host
Brian Keene is the host of the Autism Family Resource Podcast and founder of Pure Hearts Therapy. Pure Hearts Therapy provides home-based occupational therapy, speech therapy, physical therapy, and parent coaching services with a neurodiversity-affirming approach.
Subscribe & Connect
If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation.
Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956
Explore more resources for families at: https://pureheartstherapy.com
Have you ever wondered if the world will truly understand your child for who they are?
In this powerful and deeply reflective conversation, Brian sits down with father, educator, and Autism Dads Social Club founder Jonathan Chism to explore the intersection of race and disability. Together, they unpack what it means to raise an autistic child while navigating cultural expectations, systemic challenges, and the pressure of being seen and understood in public spaces.
Jonathan shares how his perspective as a Black father has shaped his parenting journey, including unlearning traditional expectations, embracing patience, and learning to truly meet his child where he is. This episode dives into advocacy, acceptance, and the importance of seeing your child as a whole human being, not just a diagnosis.
If you've ever felt the weight of judgment in public or questioned your approach as a parent, this conversation will remind you that connection, not correction, is where growth begins.
Topics Covered
• The intersection of race and disability in parenting • How cultural expectations can shape parenting approaches • Understanding processing time and routines in autism • Letting go of societal judgment in public settings • The importance of joining your child's world • Seeing your child as "different, not less"
Memorable Quote
"Your child is not a problem to fix. They are a person to know, connect with, and celebrate."
About the Guest Jonathan Chism is a father, educator, and historian specializing in African-American religious history. He is also the founder of the Autism Dads Social Club, a community focused on supporting fathers raising autistic children through connection, advocacy, and shared experience.
Resources Mentioned
• Uniquely Human by Barry Prizant • Autism Dads Social Club
About the Host Brian Keene is an occupational therapist and founder of Pure Hearts Therapy, a pediatric therapy practice based in Arizona that provides neurodiversity-affirming, play-based services for children and families. He is passionate about helping parents feel confident, supported, and empowered in their journey.
Subscribe & Connect
If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation.
Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956
Explore more resources for families at: https://pureheartstherapy.com
Parenting an autistic child can bring moments of joy, uncertainty, growth, and deep reflection. In this episode of the Autism Family Resource Podcast, Brian Keene sits down with Dr. Jonathan Chism, also known as Dr. Chiz, a father, professor, minister, and co-founder of the Autism Dad Social Club.
Dr. Chism shares the honest story of his family's journey raising his non-speaking autistic son. He opens up about the early shock and denial after diagnosis, the hope that therapy might "fix" autism, and the powerful shift that happened when he began listening to autistic voices and embracing a different perspective.
Instead of focusing on changing his son, Dr. Chism learned to focus on connection, acceptance, and supporting his son's communication and independence. In this conversation, he reflects on the lessons autism has taught him about empathy, patience, inclusion, and what it really means to show up as a father.
This episode is especially meaningful for parents who may feel overwhelmed early in their journey. It's a reminder that growth happens not only for children, but for parents too.
Topics Covered
• Processing an autism diagnosis as a parent • Moving from denial toward acceptance in the autism journey • Parenting a non-speaking autistic child • Listening to autistic voices and lived experiences • Supporting communication through AAC devices • Building strong father-child relationships • Encouraging independence and life skills • Finding community as an autism parent
Timestamps
00:00 Introduction to Dr. Jonathan Chism 01:21 Dr. Chism's background and family 03:08 Receiving an autism diagnosis at age two and a half 07:57 Moving from denial toward understanding autism 10:40 Learning from autistic voices and shifting perspective 24:26 Advice for parents feeling overwhelmed
Memorable Quote
"Be patient with yourself. Your child is a gift, and this journey will create a new normal." — Dr. Jonathan Chism
About the Guest
Dr. Jonathan Chism, also known as Dr. Chiz, is an associate professor of history at the University of Houston Downtown, an ordained minister, and the co-founder of the Autism Dad Social Club. As a father raising a non-speaking autistic son, he is passionate about supporting fathers, promoting autism acceptance, and helping families build meaningful connections with their children.
Resources Mentioned
• Autism Dad Social Club • Uniquely Human by Dr. Barry Prizant • AAC communication tools such as TouchChat
About the Host
Brian Keene is a pediatric occupational therapist and founder of Pure Hearts Therapy, a neurodiversity-affirming therapy practice providing in-home pediatric therapy services for families in Arizona.
Through the Autism Family Resource Podcast, Brian shares practical tools, expert conversations, and supportive insights to help parents navigate the journey of raising neurodivergent children.
Learn more at: https://pureheartstherapy.com
Subscribe & Connect
If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation.
Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956
Explore more resources for families at: https://pureheartstherapy.com
Have you ever wondered if something deeper might be affecting your child's regulation, behavior, or sleep?
In this episode of the Autism Family Resource Podcast, Brian sits down with Dr. Jeffrey Knight, chiropractor and founder of the Autism Wellness Center, to explore how factors like inflammation, gut health, environmental toxins, and cellular health may influence a child's nervous system and overall regulation.
Dr. Knight shares his four-phase approach to cellular healing, designed to help support detox pathways, improve mitochondrial function, and restore gut health. The conversation also highlights how addressing these internal systems may help children better engage in therapies, school, and daily life.
This episode is not about quick fixes. It's about gaining a deeper understanding of how the body works and how families can explore additional tools to support their child's development and regulation.
Topics Covered
• How inflammation may influence behavior and regulation • The connection between gut health and neurological function • Dr. Knight's four-phase cellular healing approach • The role toxins and environmental exposures may play in health • Supporting detox pathways safely and thoughtfully • Why mitochondrial health matters for energy and regulation • Real stories of changes families have experienced • Simple lifestyle adjustments families can start today
About the Guest
Dr. Jeffrey Knight is a chiropractor and founder of the Autism Wellness Center in Utah. His work focuses on a whole-body approach to health, supporting neurological function, detoxification pathways, cellular healing, and gut health.
Through his four-phase wellness program, Dr. Knight works with families across the country to help support children's overall health and regulation.
Learn more: https://healthempoweredfamilies.com
Resources Mentioned
Health Empowered Families https://healthempoweredfamilies.com
About the Host
Brian Keene is a pediatric occupational therapist and founder of Pure Hearts Therapy, a neurodiversity-affirming therapy practice providing in-home pediatric therapy services for families in Arizona.
Through the Autism Family Resource Podcast, Brian shares practical strategies, expert conversations, and supportive insights to help parents navigate autism and neurodiversity with confidence.
Learn more: https://pureheartstherapy.com
Subscribe & Connect
If this episode resonated with you, please consider sharing it with another parent who might benefit from the conversation.
You can find more resources and support at: https://pureheartstherapy.com
Follow Pure Hearts Therapy on social media for more tools, strategies, and conversations supporting neurodivergent families.
Many parents of neurodivergent children share a common feeling: isolation. Even when surrounded by people, it can feel like no one truly understands the unique challenges your family is navigating.
In this episode of the Autism Family Resource Podcast, Brian Keene sits down with autism advocate Mandy Pinckley to talk about the power of community and connection. Mandy shares her personal journey of discovering supportive spaces where she could be authentic about being autistic, and how finding the right community helped her build confidence and self-acceptance.
Together, they explore why so many parents feel alone, how community support can transform the experience of raising a neurodivergent child, and practical ways families can begin building their own support networks. From online communities to local support groups, Mandy highlights how even one meaningful connection can help families move from isolation to hope.
If you've ever wondered whether other families truly understand what you're going through, this conversation is a reminder that you are not alone—and your community may be closer than you think.
Topics Covered
• Why many parents of neurodivergent children feel isolated • Mandy Pinkley's journey embracing her autistic identity • The power of finding community with people who understand your experience • How support groups can reduce isolation and build confidence • Online communities vs. in-person support networks • How parents can help their children find supportive social environments • Why advocacy and authenticity matter in the autism community • How families can start building their own support networks
About the Guest
Mandy Pinckley is an autism advocate who speaks openly about identity, community, and the importance of creating spaces where neurodivergent individuals feel accepted and understood. Through advocacy and community engagement, Mandy works to promote inclusion, awareness, and authentic representation of autistic experiences.
About the Host
Brian Keene is a pediatric occupational therapist and founder of Pure Hearts Therapy, a neurodiversity-affirming therapy practice providing in-home pediatric therapy services for families in Arizona.
Through the Autism Family Resource Podcast, Brian shares practical insights, expert conversations, and supportive strategies to help parents navigate the journey of raising neurodivergent children.
Learn more at: https://pureheartstherapy.com
Subscribe & Connect
If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation.
You can find more resources and support at: https://pureheartstherapy.com
Follow Pure Hearts Therapy on social media for more conversations, guidance, and resources supporting neurodivergent families.
Recommended Resources Mentioned * CARD – Center for Autism & Related Disabilities * Family Inclusion Networks (e.g., "FIN") * Local autism organizations * Facebook and online support groups * Community events and family-friendly meetups
Many parents know the feeling. Your child comes home and says, "Nobody plays with me," or you watch them standing alone on the playground while other kids easily connect. Every parent wants their child to feel included and accepted, but sometimes it feels like the world doesn't quite know how to make room for differences.
In this episode of the Autism Family Resource Podcast, Brian Keene sits down again with autism advocate Mandy Pinckley to talk about what real inclusion looks like for autistic children. Together they explore how friendships form, how peers can become allies, and what parents and educators can do to create environments where neurodivergent kids feel genuinely welcomed.
Mandy shares personal insights from her advocacy work and her own experiences as an autistic adult. The conversation also explores practical ways parents can advocate for their children, teach healthy boundaries, and help kids build confidence and connection with others.
This episode is a reminder that inclusion isn't just about allowing someone to participate — it's about creating spaces where every child truly belongs.
Topics Covered
• What true inclusion means for autistic children • Why some neurodivergent kids struggle with friendships • How peer mentorship programs create inclusive environments • The importance of listening to a child's lived experience • Teaching healthy boundaries and self-advocacy skills • How parents can advocate effectively in school settings • Ways peers can become allies for neurodivergent classmates
Memorable Quote
"Inclusion isn't just letting someone sit at the table — it's wanting them there." — Mandy Pinckley
About the Guest
Mandy Pinckley is an autism advocate dedicated to promoting understanding, inclusion, and empowerment for neurodivergent individuals. Through advocacy, community engagement, and educational conversations, she helps families and schools create environments where autistic individuals feel accepted and supported.
Resources Mentioned
• Penguin Project (inclusive theatre program for children with disabilities) • CARD — Center for Autism and Related Disabilities
About the Host
Brian Keene is a pediatric occupational therapist and the founder of Pure Hearts Therapy, a neurodiversity-affirming therapy practice providing in-home pediatric therapy services for families in Arizona.
Through the Autism Family Resource Podcast, Brian shares practical tools, meaningful conversations, and expert perspectives to help parents support the development and wellbeing of their neurodivergent children.
Learn more at: https://pureheartstherapy.com
Subscribe & Connect
If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation.
You can explore more resources and support at: https://pureheartstherapy.com
Follow Pure Hearts Therapy on social media for more conversations, strategies, and encouragement for families navigating autism and neurodiversity.
What is it really like to grow up autistic? And what do autistic youth wish the adults in their lives understood better?
In this episode of the Autism Family Resource Podcast, Brian Keene sits down with autism advocate Mandy Pinckley to talk about her lived experience growing up autistic and the journey that led her into advocacy work today. Mandy shares what it was like navigating childhood, friendships, bullying, and the search for belonging while growing up undiagnosed.
Together they explore how early understanding, supportive relationships, and open communication can make a meaningful difference for autistic youth. Mandy also shares insights on digital safety, emotional experiences, identity development, and why it's so important for parents to meet their children where they are.
This conversation is the beginning of a multi-episode series with Mandy, where Brian and Mandy will explore topics like digital safety, inclusion, peer advocacy, and building supportive communities for neurodivergent youth.
If you've ever wondered how to better understand your child's perspective or create a stronger connection with them, this episode offers thoughtful insights and encouragement.
Topics Covered
• Mandy's experience growing up autistic and being diagnosed later • Why many autistic girls go undiagnosed longer than boys • The emotional experiences many autistic youth navigate • Bullying, isolation, and searching for belonging • The role of digital environments and online safety • How open communication helps protect and support kids • Supporting identity development and self-expression • Helping neurodivergent youth find community
Memorable Quote
"Meet them where they're at — not where you want them to be." — Mandy Pinkley
About the Guest
Mandy Pinckley is an autism advocate focused on promoting digital safety, inclusion, and support for neurodivergent youth. Through speaking, advocacy work, and community engagement, she helps families and educators better understand the experiences of autistic individuals and create safer, more supportive environments.
Resources Mentioned
• CARD — Center for Autism and Related Disabilities
About the Host
Brian Keene is a pediatric occupational therapist and founder of Pure Hearts Therapy, a neurodiversity-affirming therapy practice providing in-home pediatric therapy services for families in Arizona.
Through the Autism Family Resource Podcast, Brian shares expert conversations, practical strategies, and supportive insights to help parents navigate the journey of raising neurodivergent children.
Learn more at: https://pureheartstherapy.com
Subscribe & Connect
If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation.
Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956
Explore more resources for families at: https://pureheartstherapy.com
🔍 Episode Overview: In this episode of the Autism Family Resource Podcast, host Brian Keene sits down with licensed therapist and autism advocate Megan Ashley to explore how empathy and cultural context shape our understanding of autism. From decoding sensory experiences to the challenges of masking and gender disparities in diagnosis, this conversation is packed with insight and practical tools for parents. Learn how to redefine what “okay” really means for your autistic child—and why listening without bias is one of the most powerful things you can do.
🧠 In This Episode, You’ll Learn:
- What autism culture is—and why it matters
- How to spot sensory signs early
- What masking looks like in kids and adults
- Why girls are often underdiagnosed
- How to shift from fear to understanding as a parent
📌 Key Takeaways:
- Understanding autism requires empathy and cultural awareness
- Sensory experiences are crucial indicators of autism
- Masking is exhausting and often misunderstood
- Gender differences affect diagnosis rates
- Parents must tune into their child’s unique sensory needs
- Redefining 'okay' is critical to truly supporting autistic children
- Accommodations aren’t optional—they’re necessary
- Listening to your child’s needs builds stronger connections
🕒 Episode Chapters: 00:00 – Understanding Autism Through Empathy 03:02 – Cultural Context in Autism 05:46 – Sensory Experiences and Accommodations 09:00 – The Concept of Masking 12:04 – Gender Differences in Autism Diagnosis 15:09 – Recognizing Autism in Children 17:50 – Parenting Autistic Children 21:14 – Redefining 'Okay' for Autistic Kids 23:32 – Listening to Your Child's Needs
🎤 Guest: Megan Ashley, LCSW – Therapist, Author, Parent Advocate 🎙️ Host: Brian Keene, Pure Hearts Therapy
🛠️ Resources Mentioned:
- Website: perfectandconsulting.com
- Instagram: @imperfectconsulting
- Book: Blueprints of Behavior – available at Amazon, Target, Walmart, Barnes & Noble
📲 Stay Connected:
- 🌐 Website: pureheartstherapy.com
- 📷 Instagram: @purehearts_therapy
- 📘 Facebook: Pure Hearts Therapy
- 👥 Join the Community: Autism Family Resource Facebook Group
⭐ Subscribe & Review: Don’t miss an episode! Subscribe, rate, and leave a review to help more families find support.
🎧 Listen now: https://pod.link/1591840956 Available on Apple Podcasts, Spotify, Google Podcasts, Stitcher, and more.
When raising a child with autism, ADHD, or sensory challenges, many families focus primarily on child-centered therapy. While occupational therapy, speech therapy, and behavior therapy are incredibly important, family support is just as crucial for long-term success.
At Pure Hearts Therapy, we believe real change happens when parents are empowered too. In a recent episode of the Autism Family Resource Podcast, Brian Keene sat down with Lisa Chan, a parent coach, pediatric occupational therapist, and expert in child behavior, to discuss how parents can transform family dynamics and empower their child’s emotional growth.
Why Family Support Matters in Autism Therapy As Lisa explains, parents are the most important factor in a child's progress. Therapists may only see a child once or twice a week—but parents guide daily routines, manage emotions in real-time, and provide the secure foundation that every child needs.
Without strong family dynamics, even the best therapy services can't create lasting change. That's why autism family support and parent coaching for autism are becoming such essential resources today.
Emotional Regulation: The Foundation of Growth One of the key areas Lisa focuses on is emotional regulation strategies. Children are not born knowing how to manage big emotions. They learn it by experiencing it alongside a regulated adult.
Co-regulation—the process where parents model emotional calmness—helps children build their own ability to stay calm during challenges. It’s not about suppressing emotions or “just staying calm” on the surface. It’s about truly understanding and validating your child’s feelings while staying grounded yourself.
✅ Tip: Practice noticing your own emotional triggers. During your child’s meltdown, focus on staying steady, not perfect. Your child will learn from your energy more than your words.
Setting Boundaries Builds Security Many families worry that firm boundaries might upset their child more—but Lisa emphasizes the opposite: Firm, loving boundaries create emotional safety.
Children thrive when expectations are clear and consistent. When boundaries constantly shift, children feel uncertain, which can lead to more meltdowns, anxiety, and resistance.
✅ Tip: Stick to your “no” when necessary—with kindness and validation. For example, "I know you really want that candy, and it’s okay to feel upset. We’re not getting it today, but I’m here with you."
This approach supports secure attachment and builds resilience over time.
Social Skills Struggles: How Parents Can Help Another common concern for families today is helping children with autism develop social skills. If a child struggles with emotional regulation or reading social cues, they may feel isolated or left out at school or on the playground.
Instead of hoping they'll "figure it out," Lisa recommends active social skills coaching.
✅ Tip: Practice role-playing common social situations at home. Pretend to be another child and guide your child through ways to join games, start conversations, or handle conflict.
This kind of practice can build confidence and reduce social anxiety—key parts of social skills support for autism.
Final Words of Encouragement for Parents Lisa shares a powerful reminder:
"If you're noticing struggles—whether it's with your child or your own confidence as a parent—don't wait. Get support now. Early intervention helps both children and families thrive long-term."
Today's families are carrying more stress than ever. Between social media comparisons, isolation from extended family, and the daily demands of parenting, seeking help for yourself is a sign of strength, not weakness.
Ready for More Support? If you’re looking for:
● Family-centered autism support
● Parent coaching for emotional regulation
● Social skills development strategies
● Help navigating family dynamics with autism
Pure Hearts Therapy is here to walk alongside you. We offer playful, personalized, and respectful therapy services to help families grow stronger—together.
👉 Learn more about our services and how we can help you here!
🎧 Listen to the full episode of the Autism Family Resource Podcast featuring Lisa Chan here.
Special Offer: Lisa is offering a 40% discount on her Emotional Regulation Course and a 30% discount on parent coaching packages for Mother's Day (available throughout May)!
In this powerful episode, host Brian Keene welcomes Dr. Martine Laventure, a licensed social worker, mother, and passionate advocate for autism and inclusion. Together, they explore the complexities of navigating an autism diagnosis as a parent, the importance of building a village, and how cultural understanding shapes access to care. Dr. Martine shares her personal journey as a mother to an autistic child, how she uses her lens as a clinician and parent, and offers encouraging, real-world advice for families trying to find their footing. They also discuss disparities in autism care within Black and Brown communities, the importance of culturally competent services, and how to avoid therapy burnout.
Key Topics Discussed: - Building your support system and treatment team - Talking to your child and family about autism - Understanding and honoring cultural differences - Self-advocacy and caregiver empowerment - When therapy becomes too much – recognizing the signs of burnout - The need for culturally informed care and inclusive assessments - Encouragement for teens, young adults, and parents to seek support
Guest Info: Dr. Martine Laventure is a licensed social worker, school clinician, per diem therapist, and founder of LaVenture Consulting. She offers training and consulting on autism, cultural competence, and family empowerment. She’s also releasing a children’s book on autism! Connect with Dr. Martine Laventure: - Website: http://laventureconsultant.com - Instagram: @laventure.csllc
Resources Mentioned: - ACEs (Adverse Childhood Experiences) - Philadelphia Expanded ACEs Study - Autism education and caregiver advocacy
Love this episode? Share it with another parent or therapist who needs to hear it. Don’t forget to subscribe and leave us a review on your favorite podcast platform! Connect with Us: - Website: https://www.pureheartstherapy.com - Facebook: https://www.facebook.com/pureheartstherapy - Facebook Group: https://www.facebook.com/groups/autismfamilyresource - Instagram: https://www.instagram.com/purehearts_therapy
Autism Family Resource Podcast Episode 45 (Sensory integration series Part 2)
Welcome Back!
In this episode of the Autism Family Resource Podcast, we delve into the world of sensory needs and explore the often-misunderstood behaviors of mouthing and chewing in children. Join us as we welcome back occupational therapist Dipali Devani for the second episode of our Calming the Chaos Sensory series.
Dipali sheds light on the reasons behind these behaviors, how sensory needs influence these actions, and practical strategies to support your child.
Guest: Dipali Devani
Dipali Devani is a licensed occupational therapist specializing in sensory integration and a certified Ayurveda practitioner. She works with individuals of all ages to help them process sensory input, develop emotional regulation skills, and build independence in daily life. Her holistic approach blends modern therapy techniques with ancient wellness practices to promote overall well-being.
Key Takeaways:
- Mouthing & Chewing: Children may put non-food objects like clothing, toys, or even their own hands or arms in their mouths excessively. This can disrupt daily activities and may be accompanied by chewing or sucking on these objects.
- Sensory & Regulation: Mouthing and chewing often stem from a need for oral sensory stimulation and regulation, especially in children with autism or sensory processing disorder. These behaviors can be triggered by anxiety, boredom, or a lack of deep pressure input.
- Red Flags: Mouthing and chewing are typical in children under three. If these behaviors persist beyond age five, it's crucial to seek an evaluation from an occupational therapist (OT).
- Potential Impacts: Excessive mouthing and chewing can lead to difficulties with eating, social interaction, and overall health. This can include nutritional deficiencies, increased risk of infections, and social isolation.
- Strategies & Interventions: OTs can help identify triggers, develop sensory diets, and provide interventions such as chewable jewelry, weighted activities, and sensory breaks.
- Home Strategies: Parents can incorporate strategies like blowing bubbles, using an electric toothbrush, engaging in animal walks, and creating a safe corner with sensory toys.
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Autism Family Resource Podcast Episode 44
Episode Title: Embracing the Autism Voyage: Parenting, Life Planning, and Entrepreneurship with Michael Pereira
Welcome Back!
Parenting a neurodivergent child is a journey filled with unique challenges, unexpected turns, and moments of profound growth. In this episode, we embark on an insightful conversation with Michael Pereira, founder of The Autism Voyage, as he shares his personal parenting experiences, practical daily living strategies, and financial planning insights for families with special needs.
We'll also explore how entrepreneurship can offer parents greater flexibility, allowing them to create a lifestyle that supports both their family's well-being and their professional aspirations.
Guest: Michael Pereira
Michael Pereira is a father, autism advocate, and founder of The Autism Voyage, a blog and newsletter dedicated to supporting families on their autism journey. With expertise in financial and insurance planning, he provides guidance on life insurance, disability income insurance, and long-term financial security for families raising children with autism.
Key Takeaways:
- The Autism Voyage Blog and Newsletter: In both the The Autism Voyage blog and the newsletter, Michael offers practical guidance tailored for special needs families with topics in three key areas—Daily Living, Life Planning, and Entrepreneurship.
- Daily Living Strategies: Learn effective approaches for managing everyday challenges, from sensory-friendly haircuts to preparing for new experiences like swimming lessons.
- Financial & Life Planning: Understand why life insurance, disability income insurance, and long-term care planning are crucial for securing your child's future.
- Entrepreneurship & Flexibility: Discover ways Entrepreneurship can provide the freedom and flexibility to balance work and family life while being present for your child.
- Building a Supportive Community: Learn how The Autism Voyage is creating a network of support for families navigating similar challenges.
Resources:
- My Autism Voyage Website
- The Autism Voyage Blog
- Michael Pereira on LinkedIn
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Welcome Back!
Divorce is never easy, and when a child with special needs is involved, the process can feel even more overwhelming. In this episode, we explore key legal and emotional considerations to help families navigate divorce while prioritizing their child’s well-being.
Our guest expert, Anna Krolikowska, a seasoned family law attorney and mediator, shares practical advice on choosing the right divorce process, effective co-parenting strategies, and minimizing conflict to create the best possible outcome for your child.
Guest: Anna Krolikowska
Anna Krolikowska is a respected family law attorney and mediator with nearly 20 years of experience helping families through divorce. She specializes in working with families of children with special needs, offering compassionate legal guidance tailored to each family’s unique situation.
Key Takeaways:
- Choosing the Right Process: Understand the differences between litigation, mediation, and collaborative divorce to determine the best approach for your family.
- Co-Parenting with Intention: Learn how to communicate effectively, share decision-making, and create a detailed parenting plan that meets your child’s needs.
- Minimizing Conflict: Discover ways to reduce stress and protect your child from emotional strain during and after the divorce.
- Planning for the Future: Gain insights on legal tools like special needs trusts to ensure your child’s long-term financial security.
Resources:
- Anna K's Website
- Arizona State Bar Association
- American Academy of Matrimonial Lawyers
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Welcome Back!
Join us as we explore how sensory sensitivities impact neurodivergent children and share practical strategies for creating a calmer, more supportive environment.
Our guest, Dipali Devani, an occupational therapist and Ayurveda practitioner, shares expert insights on recognizing sensory triggers, creating calming spaces, and empowering children to regulate their responses. Whether your child struggles with certain textures, loud noises, or strong smells, this episode is packed with actionable tips to help you build a more harmonious home environment.
Guest: Dipali DevaniDipali Devani is a licensed occupational therapist specializing in sensory integration and a certified Ayurveda practitioner. She works with individuals of all ages to help them process sensory input, develop emotional regulation skills, and build independence in daily life. Her holistic approach blends modern therapy techniques with ancient wellness practices to promote overall well-being.
Key Takeaways:
- Recognizing Sensory Triggers – Learn how to identify the sights, sounds, and textures that may overwhelm your child.
- Creating a Calming Environment – Simple, practical changes can make home and community spaces feel safer and more comfortable.
- Supporting Self-Regulation – Explore strategies like desensitization, sensory tools, and calming techniques to help your child manage sensory input.
Seeking Professional Guidance – Occupational therapists can create personalized sensory plans to support your child’s unique needs.
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Welcome Back!
In this episode, we sit down with Gail Ewell, the founder and executive director of Hope Technology School (HTS), to explore how friendships and inclusive environments can profoundly impact neurodiverse learners. Gail shares practical strategies for fostering inclusion at school, in the community, and at home. She also offers guidance on advocating for accessible spaces and the critical role of communication in empowering children to thrive. Whether you're a parent, educator, or community member, this episode is filled with actionable insights to help create a more inclusive world for all.
Guest: Gail Ewell
Gail Ewell is a leader in inclusive education and the visionary behind Hope Technology School, an award-winning K-12 institution dedicated to integrating neurodiverse and neurotypical learners. With over 20 years of experience in teacher training, advocacy, and accessibility, she has transformed educational spaces to be more inclusive and empowering for all students. Gail frequently speaks at conferences and universities, sharing her expertise on building meaningful community connections.
Website: Hope Technology School
Social Media: Hope Technology School Instagram, Facebook, Gail’s Instagram
Key Takeaways:
- The Power of Friendship – "Having a strong circle of friends can significantly reduce the incidence and impact of bullying." Gail emphasizes how structured peer interactions, like buddy systems and mentorship programs, can help neurodiverse learners build confidence and social skills.
- Creating Inclusive Spaces – Whether at school, home, or in the community, inclusion starts with intentional design. Gail shares ways to foster welcoming environments that support all learners.
- Advocating for Change – Parents and caregivers play a vital role in shaping inclusive policies. Gail provides steps for educating others, building online support networks, and initiating school-based inclusion programs.
- Communication is Key – "Don't lose sight of communication, because no matter what kind it is, it’s so important." Gail encourages parents to explore different methods of communication, from AAC devices to assistive technology, ensuring every child has a voice.
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Welcome Back! In this episode, we sit down with J.D. Barker, a New York Times bestselling author known for his thrillers, to discuss his inspiring journey as a neurodiverse individual. Diagnosed with autism as an adult, J.D. reflects on his career transformation, shares strategies for navigating neurotypical expectations, and offers invaluable insights for parenting neurodiverse children. This heartfelt conversation is filled with practical advice, empowering takeaways, and hope for families navigating similar paths.
Guest: J.D. Barker is an acclaimed author of numerous bestselling books, including Heavy Are the Stones and The Writer (co-written with James Patterson). Diagnosed with autism in his 20s, he combines his unique perspective with his passion for storytelling to advocate for understanding and acceptance.
Website: https://jdbarker.com/
Social Media: Facebook, Instagram, Twitter
Key Takeaways:
- Leaning into Strengths: "Find the one thing your child loves and encourage it. That can open so many doors." J.D. credits his love for reading and writing as his gateway to success.
- The Role of Community: J.D. highlights the importance of a supportive network, from his wife’s life-changing encouragement to his daughter’s school team.
- Overcoming Challenges: Social interactions can be tough, but J.D. has developed strategies like slowing down, maintaining eye contact, and focusing on one response at a time.
- Parenting with Compassion: J.D. advises parents to embrace their child's unique strengths and to view neurodiversity as a collection of superpowers.
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Welcome back to the Autism Family Resource Podcast! In this episode, we spoke with Kari Baker—a local podcaster, author, and an inspiring mom who is navigating life alongside her 13-year-old son, who has both autism and ADHD. Kari shares her journey through powerful stories, lessons, and insights on finding kindness in the everyday moments of parenting and how she has grown through her experiences.
Guest:
Kari Baker’s path took a transformative turn with the birth of her son, Brady, and his autism diagnosis at age three. Driven by a new perspective on success and purpose, Kari shares her family’s journey and founded KIND Families, a resource supporting Kids with Invisible Neurological Differences. She is the author of Finding Kind: Discovering Hope and Purpose while Loving Kids with Invisible Neurological Differences.
Website: https://kariabaker.com/
Social Media: Facebook, Instagram, Twitter, LinkedIn
Key Takeaways:
- Grieving the loss of an imagined ideal life is natural, yet there’s a greater reality: your child is perfect just as they are.
- Your child’s challenges are also what make them wonderfully unique—these qualities are gifts to be appreciated.
- Building connections with others on a similar journey is essentia—community matters.
- Your child has a bright future, and early intervention will greatly benefit them, you, and your relationship in the long run.
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Welcome back to the Autism Family Resource Podcast!
Are you a parent of a child with autism struggling to find the right support and therapy for your child? You are not alone. Many parents find it challenging to navigate the world of autism care, especially with the numerous therapies and approaches available.
But what if there was a different approach to autism care that focused on the whole family and was more collaborative and supportive? What if there was a therapy that was more play-based and encouraged intrinsic motivation?
We have good news! There is. In this episode, we have another awesome guest on our show, Will Martin, from Soar Autism Center. Soar Autism Center is doing amazing work, taking a fresh approach to autism care that is centered on whole family support, early intervention, and collaborative care.
Guest:
Will Martin MEd, BCBA is a board-certified behavior analyst and Head of Care Model Design implementation at Soar Autism Center. Soar provides Early Start Denver Model-based therapy to children with autism in the Phoenix and Denver metro areas.
Website: https://soarautismcenter.com/
Social Media: Facebook, Instagram, YouTube
Key Takeaways:
- The Early Start Denver Model (ESDM) is a play-based intervention that encourages intrinsic motivation.
- The goal of ESDM therapy is to find something the child likes and incorporate therapy into that activity.
- DTT stands for Discrete Trial Training and is one of the original forms of ABA. It involves repeated practice of skills in an isolated or controlled context.
- When looking for an ABA provider for your child, it is important to ask questions about the type of therapy and the approach used.
- Red flags that may indicate your child would benefit from an autism assessment include: communication struggles, challenging behaviors, and difficulties engaging with your child in play.
- Any interventions or therapies should match the child's values and the family's values.
- Soar Autism Center typically serves children between two and five years old. Sometimes, they will serve children a little older than that if they are getting ready to transition to school.
- Soar Autism Center takes all major insurance, including Medicaid and most commercial insurance plans.
- Once an assessment is complete, the BCBA, speech-language pathologist, and occupational therapist will get together and make clinical recommendations.
Soar Autism Center Resources:
Website: https://soarautismcenter.com/
Social Media: Facebook, Instagram, YouTube
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Divorce is never easy, but when you have a child with autism or other special needs, the process can feel even more overwhelming. The Autism Family Resource Podcast is here to provide practical guidance and support during this challenging time. In this episode, we welcome Mary Ann Hughes, a compassionate and experienced special needs divorce coach and mother of two sons on the autism spectrum. Mary Ann shares her personal and professional insights to help families confidently navigate this difficult transition and prioritize their child's well-being.
Guest:
Mary Ann Hughes is a certified divorce coach and mediator specializing in families with special needs children.
Website: https://www.specialfamilytransitions.com/
Social Media: Facebook, Instagram, YouTube
Key Takeaways:
· Share the news of divorce with your child: Mary Ann emphasizes the importance of using a positive tone and creating a social story to help your child understand the changes that are happening.
o Mary Ann's YouTube video on creating a social story for divorce: https://youtu.be/wQtGlyZwCUI?si=5emzhpcbkK9yTUwO
· Take a meticulous and child-centric approach: Don't rush into major decisions. Carefully consider your child's long-term needs, including therapies, education, and financial resources.
· Focus on the future: Divorce is a difficult transition, but it's not the end. Maintain a positive outlook and focus on building a new life for yourself and your child.
· Protect your child's benefits: Understand the legal and financial implications of divorce on your child's eligibility for government benefits. Seek guidance from a knowledgeable family law attorney or financial expert.
· Consider mediation: Mediation can be a less adversarial way to reach agreements and co-parent effectively.
Special Family Transitions Resources:
https://www.specialfamilytransitions.com/
https://www.youtube.com/channel/UChI4BaUMGf50O2yPE_YnjFA
https://www.facebook.com/specialfamilytransitions
https://www.instagram.com/specialfamilytransitions/
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Guest:
Mitch Leppicello, LICSW, is a seasoned mental health professional with over 30 years of experience supporting autistic children and their families. Mitch is a Certified Autism Specialist with a Master’s Degree in Clinical Social Work from Fordham University in New York.
Website: https://eastmetrofamilycounseling.com/
Social Media: ASD Parenting Journey
About this Episode:
Raising a child with autism comes with unique joys and challenges. One of the biggest hurdles parents face is understanding and supporting their child's mental health. In this episode, we're joined by Mitch Leppicello, a social worker and certified autism specialist, who shares his CALM Compass program—a practical guide to help you connect, communicate, and empower your neurodivergent child.
Bullet Point Recap:
The CALM Compass: Discover the four directions of this innovative program: Connect, Articulate, Lift, and Move. Each direction offers practical strategies to address common mental health challenges in children with autism.
Connect: Learn how to strengthen your relationship with your child and use it as a foundation for support during emotional and behavioral challenges.
Articulate: Understand the importance of clear communication and how to effectively help your child express their feelings and needs.
Lift: Gain insights into how to inspire and motivate your child when feeling down, discouraged, or overwhelmed.
Move: Explore the power of movement and sensory activities in promoting emotional regulation and well-being.
Real-Life Examples: Mitch shares relatable examples and scenarios to illustrate how to apply the CALM Compass strategies in everyday situations.
Call to Action:
Ready to find your way through the mental health maze? Visit ASD Parenting Journey to learn more about Mitch Leppicello and his CALM Compass program. And don't forget to subscribe to The Autism Family Resource Podcast for more valuable resources and support on your parenting journey.
Mitch Leppicello Resources:
ASD Parenting Journey, East Metro Family Counseling
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In this episode of the Autism Family Resource Podcast, host Brian Keen welcomes back Lenora Edwards, head speaker and chief knowledge officer at Better Speech, to discuss the lingering effects of the lockdown on children's social and emotional regulation skills. Lenora shares her expertise in speech pathology and offers valuable strategies to help children, particularly those on the autism spectrum, improve their communication skills and navigate social situations effectively.
Guest:
Lenora Edwards is a distinguished Speech Language Pathologist at BetterSpeech.com—a nationwide online platform dedicated to providing top-notch speech therapy services. BetterSpeech.com offers free consultations to help determine how they can assist you or your loved one. They provide flexible appointment times, including evenings and weekends, to accommodate your schedule. With a range of pricing options to fit different needs and itemized bills for insurance reimbursement, BetterSpeech.com ensures accessible and affordable speech therapy for all.
Main Topics Discussed:
- The long-term impact of the lockdown on children's social and emotional skills.
- The role of Better Speech in providing accessible therapy.
- Strategies for helping children develop social and communication skills.
- The importance of exposure to social interactions for language development.
- Techniques for parents to support their children’s social skills at home.
- The significance of modeling and practicing social interactions.
Bullet Point Recap:
- Introduction: Brian Keen reintroduces Lenora Edwards and highlights the ongoing effects of the lockdown on children's social skills.
- Guest Introduction: Lenora Edwards discusses her background and the mission of Better Speech, an online platform offering speech therapy.
- Impact of Lockdown: Children missed out on vital social interactions and language exposure due to isolation during the lockdown.
- Language Development Delays: The lockdown led to significant delays in children's language development, making it harder for them to understand and interpret social cues.
- Real-life Examples: Lenora shares instances where children struggle with social interactions due to a lack of practice.
- Strategies for Parents: Techniques for helping children develop social skills, such as brainstorming solutions and modeling appropriate behaviors.
- Role of Therapy: The importance of professional support in addressing social and communication challenges.
- Encouraging Communication: Tips for parents to create opportunities for social interactions and practice at home.
- Final Thoughts: Trusting parental instincts and seeking professional help when needed.
BetterSpeech Resources:
Website: https://www.betterspeech.com/
Facebook: https://www.facebook.com/yourbetterspeech/
lnstagram: https://www.instagram.com/betterspeech/
Linked In: https://www.linkedin.com/company/better-speech/mycompany/
You Tube: https://www.youtube.com/c/BetterSpeechVideo
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In this episode of the Autism Family Resource Podcast, host Brian Keene engages in a heartfelt conversation with Lynn and Jonathan Greenberg, a mother-son duo, about their personal journey with dyslexia. Jonathan, a college student born with dyslexia, shares the challenges he faced and how he discovered a deep love for writing, reading, and drawing with the support of his mother. Together, they turned obstacles into opportunities, creating the children's book "Robby the Dyslexic Taxi." The book celebrates determination, creativity, and the power of collaboration.
Guests: Joining us today are Jonathan Greenberg, Author, and Illustrator, born with dyslexia, who found a creative outlet through art and storytelling, and Lynn Greenberg, Author, retired attorney, and devoted mother. Together, they collaborated on "Robby the Dyslexic Taxi And The Airport Adventure," addressing dyslexia and advocating for neurodiversity. Their story highlights resilience and creativity in navigating learning challenges.
Bullet Point Recap: • Personal journey with dyslexia, challenges faced, and the creation of "Robby the Dyslexic Taxi." • Jonathan's positive perspective on dyslexia as a superpower. • The importance of parental support and trusting instincts. • Description of the book's storyline and characters. • The role of the Creative Cab Company in fostering a supportive community. • Plans for a series exploring different learning differences.
Creative Cab Company: www.creativecabcompany.com
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In this taboo-busting episode, Brian Keene welcomes Cindi Seifert, a devoted mother and the founder of Preventa Wear to share her journey raising her daughter Kyla, a 25-year-old with autism and epilepsy. The taboo topic of diaper digging, a behavior many parents face in silence, takes center stage as Cindi opens up about the challenges she encountered and the innovative solution she crafted to empower families worldwide.
Guest:
Cindi Seifert, a compassionate mother and the visionary founder of Preventa Wear, LLC, unfolds her remarkable journey as a caregiver and entrepreneur. Her commitment to addressing the challenges of incontinence and providing specialized clothing solutions has transformed Preventa Wear into a global phenomenon.
Bullet Point Recap:
- Origins of Preventa Wear: Cindi shares the genesis of Preventa Wear, born out of the daily struggles with Kyla's diaper digging behavior and the need for a supportive solution.
- The Preventa Wear Collection: A diverse range of sensory-friendly, fashionable, and functional outfits, including adult-sized onesies, wheelchair pads, and stylish apparel for individuals with various neurological disorders.
- Breaking the Silence: Cindi's openness about the taboo topic of diaper digging aims to shatter societal silence and connect with families facing similar challenges.
- Global Impact: The Prevent Aware movement extends beyond autism, reaching families dealing with Alzheimer's, Down syndrome, and other neurological disorders worldwide.
- Empowering Families: Cindi's mission goes beyond providing clothing; it's about offering support, understanding, and a sense of community to families navigating the often isolating journey of caregiving.
- The Preventa Wear Website: Cindi directs listeners to the Preventa Wear website, where families can explore the range of products, find resources, and connect with a community that understands their unique experiences
Prevent Aware Resources:
https://preventawear.com/
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Synopsis: In this episode, Brian Keene welcomes Manisha Snoyer, a teacher, tech entrepreneur, and host of the "Teach Your Kids" podcast. They discuss alternatives to the traditional education system, focusing on homeschooling as a customizable and flexible solution for families, especially those with special needs.
Guest: Manisha Snoyer is a renowned educator, speaker, and innovator in the field of personalized learning and childhood education. With over a decade of experience, she has worked passionately to bridge the gap between traditional education systems and individualized learning methodologies. Manisha's expertise extends to the intersection of technology and education, as she leverages digital tools to enhance learning experiences.
Bullet Point Recap:
- Manisha Snoyer's 20 years of teaching experience and recognition of issues in the education system.
- Cottage Class as a tech platform supporting teachers in starting micro-schools and aiding homeschooling families.
- Diverse and modern landscape of homeschooling, addressing challenges faced by families with special needs.
- Examples of customized curriculum recommendations based on a child's preferences and needs.
- Cottage Class as a marketplace connecting families with tutors and providing training in child-centered communication.
- Overview of Arizona's innovative Education Savings Accounts (ESAs) and their impact on homeschooling.
- Steps for families interested in homeschooling, including visiting the "Teach Your Kids" website.
- Emphasis on affordability and support for all families interested in joining the homeschooling community.
- Encouragement for families to explore homeschooling and seek help from available communities and specialists.
Resources:
Teach Your Kids Homeschooling Community Resources:
https://teachyourkids.substack.com/
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Synopsis:
In this episode of the Autism Family Resource podcast, host Brian Keene interviews Justin Behnke, father of a nonspeaking child on the autism spectrum, who created the innovative safety product ScanMeHome.com. Justin shares his personal journey, the inspiration behind his product, and practical tips for enhancing child safety in the community.
Guest:
Meet Justin Behnke, father of a nonspeaking child on the autism spectrum and founder, director, and CEO of ScanMeHome.com, a QR code solution for child safety.
Main Topics Discussed:
- ScanMeHome.com: A Lifeline for Parents:
- ScanMeHome.com offers an extra layer of security and peace of mind.
- Iron-on QR code tags are discreet, washable, and highly effective.
- Designed for children with disabilities, like nonverbal kids, but applicable to many
other diagnoses, like dementia.
- Exclusive Listener Discount:
- Justin offers a 50% lifetime discount with the code "VIPMEMBER."
- His mission is to make child safety accessible to all families.
- Community Safety and Awareness:
- Justin emphasizes the importance of community involvement and education.
- Making people aware of your child’s safety technology, be it QR code or Apple Air Tag, can create a safer environment for everyone.
Recap:
- Justin, a father of a nonspeaking child on the autism spectrum, discusses ScanMeHome.com, a safety product for children.
- He shares his personal journey and the inspiration behind creating the product.
- ScanMeHome.com offers an added layer of security for children with disabilities.
- QR codes are highly effective in child safety and include vital information.
- Practical tips for parents include staying close to children in public and parking near entrances.
- Promote awareness and education in the community for child safety.
- A discount code "VIPMEMBER" offers a 50% discount on ScanMeHome.com memberships for listeners.
Resources:
https://scanmehome.com/
https://www.facebook.com/scanmehomenow
VIPMEMBER is your discount code. This gives people half off for life, including their sign-up and monthly.
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Communication Devises Part 3: AAC Device Best Practices
Synopsis:
On today’s episode of the Autism Family Resource Podcast, host Brian Keene continues his discussion with Lydia Mackay and Stacey Dover, Phenix area speech-language pathologists. Lydia and Stacey delve into the significance of communication, the joy of language development, and the transformative power of AAC in the lives of individuals with communication difficulties. This episode, part three of the three-part series, focuses on AAC devices.
Guests:
Lydia Mackay and Stacey Dover are speech-language pathologists based in the Phenix area. They specialize in working with individuals who use AAC in various settings, such as schools and homes. They have experience providing evaluations and training for augmentative communication devices and have worked extensively with non-speaking individuals and those with special needs. They are passionate about supporting communication development and empowering individuals to express themselves effectively.
Main Topics Discussed:
- Introduction to AAC and Its Impact
- Defining AAC and its role in communication
- Transforming lives through effective communication
- Building Language through Play and Interaction
- Understanding the joy of language development
- The importance of social interactions in language acquisition
- Creating a communication-rich environment
- Implementing AAC in Daily Routines
- Making AAC a seamless part of routines
- Strategies for incorporating AAC devices into daily activities
- Balancing fun and learning through modeling
- The Role of Modeling in AAC
- Exploring the concept of modeling
- How modeling enhances receptive language skills
- Letting the child lead and nurturing expressive language growth
- Creating Meaningful Connections with AAC
- Recognizing the importance of social connection
- Empowering families to navigate AAC challenges
- Personal stories that demonstrate the impact of AAC
Bullet Point Recap:
- Augmentative and Alternative Communication (AAC) empowers individuals with communication challenges.
- Language development is a joyful process influenced by social interactions.
- Incorporating AAC into routines enhances communication success.
- Modeling is a powerful strategy for nurturing receptive and expressive language.
- AAC strengthens meaningful connections and improves overall quality of life.
For AAC resources, FAQ, and flowcharts:
https://www.pureheartstherapy.com/resources/speechandcommunication
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Communication Devises Part 2: Obtaining an AAC Device Synopsis: On today’s episode of the Autism Family Resource Podcast, host Brian Keene continues his discussion with Lydia Mackay and Stacey Dover, Phenix area speech-language pathologists, about the process of obtaining Augmentative and Alternative Communication (AAC) devices in Arizona. This episode, part two of the three-part series, focuses on AAC devices.
Guests:
Lydia Mackay and Stacey Dover are speech-language pathologists based in the Phenix area. They specialize in working with individuals who use AAC in various settings, such as schools and homes. They have experience providing evaluations and training for augmentative communication devices and have worked extensively with non-speaking individuals and those with special needs. They are passionate about supporting communication development and empowering individuals to express themselves effectively.
Main Topics Discussed:
- How to initiate the process of obtaining an AAC device for a child in Arizona.
- The importance of working with a contracted AAC agency for specialized services.
- The role of a multidisciplinary team in the evaluation process, including speech therapists and occupational/physical therapists.
- Conducting a thorough evaluation to find the right AAC device that suits the child's needs and abilities.
- The significance of considering the family's input and the child's physical abilities during the evaluation.
- The possibility of using loaner devices during the evaluation phase.
Recap:
- In Arizona, families should initiate the process of obtaining an AAC device for their child to support their communication needs, as early intervention is crucial.
- To get an AAC device, families can work with their therapists or directly contact an AAC provider agency for assistance.
- The evaluation process involves a multidisciplinary team, including speech therapists and occupational/physical therapists, to find the best match for the child's communication requirements.
- The evaluation considers various factors, including the child's physical abilities, communication needs, and family input.
- Loaner devices may be available to use during the evaluation period.
- Part three of the series will focus on implementing the AAC device in daily life and discussing the pros and cons of different devices and features.
For AAC resources, FAQ, and flowcharts:
https://www.pureheartstherapy.com/resources/speechandcommunication
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In this episode of the Autism Family Resource Podcast, host Brian Keene sits down with Lydia Mackay and Stacey Dover, speech-language pathologists from the Phenix area, to delve into the world of Augmentative and Alternative Communication (AAC). They discuss the importance of communication, language acquisition, and the various communication options, such as AAC devices. This is the first part of a three-part series to provide valuable insights and guidance for parents of non-speaking or special needs children.
Guests:
Lydia Mackay and Stacey Dover are speech-language pathologists based in the Phenix area. They specialize in working with individuals who use AAC (Augmentative and Alternative Communication) in various settings, such as schools and homes. They have experience providing evaluations and training for augmentative communication devices and have worked extensively with non-speaking individuals and those with special needs. They are passionate about supporting communication development and empowering individuals to express themselves effectively.
Main Topics Discussed:
- Defining communication and debunking the misconception that it is solely verbal.
- Exploring language acquisition and how it develops through babbling and word formation.
- Emphasizing the role of context and interaction in language learning.
- Introducing AAC as a tool for augmenting and supplementing communication.
- Highlighting the importance of engagement, feedback, and positive social interaction in language development.
- Considering sign language as a visual form of communication and its potential benefits.
- Addressing the question of when it's time for a child to get an AAC device.
- Stressing the importance of self-advocacy and providing individuals with the means to express themselves.
Key Takeaways:
- Communication encompasses various modalities beyond verbal speech, including body language and literacy.
- Language acquisition begins with babbling and gradually shapes into meaningful words through positive reinforcement and social interaction.
- AAC serves as a tool to support and augment existing modes of communication.
- Engagement, context, and interaction are crucial in language learning and should be prioritized in the parent-child relationship.
- Sign language can be considered a form of communication, but the ability to hear oneself say words is important, which AAC devices can facilitate.
- The decision to introduce AAC should be based on individual needs and communication challenges.
- AAC devices empower individuals to self-advocate and express their needs effectively.
For AAC resources, FAQ, and flowcharts:
https://www.pureheartstherapy.com/resources/speechandcommunication
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Guest
Karen Thomas is a mom and the author of "Naturally Healing Autism: The Complete Step-by-Step Resource Handbook for Parents.” She is passionate about spreading the possibility of drug-free recovery and is set to help parents whose children are on the autism spectrum get natural recovery. This passion was born out of her personal experience. She went through a long research process to get help for her son, who now lives without autistic symptoms.
Topics Discussed
Karen shares how her experience as a Cranial Sacral Therapist helped her to ignore the traditional treatment advice for Autism she got and sought to find a lasting treatment for her son.
When my son was diagnosed with Autism, now 17 years ago, I was told to drug him and try behavioral therapies but I didn't want to do that because I wanted to find out what the causes were, not just mask symptoms, especially with dangerous drugs. My background is that I have been a Cranial Sacral Therapist for over 20 years, which means I work on the bones of the head to balance the brain, and I have extensive courses and research on the brain. So I knew when my son was diagnosed that the brain can and does heal, but I didn't know that much about autism, so I began, like most parents on the journey, seeking various therapists and practitioners and people.
Some challenging experiences
He had extreme oppositional defiance, extreme OCD, obsessive-compulsive disorder, trouble sleeping, would wake up screaming from stomach ache at 3 am, and constant headaches. I mean, everything was just pointing to these issues of health and behaviors. I knew that the behaviors had a lot to do with health, so I started to work with them, and today you wouldn't even imagine he could ever act in that aggressive way that he used to or have the irritability that he used to because today, he is so calm and easy going and kind and relaxed.
Karen shares how she overcame gut inflammatory problems by curating a proper diet plan for her son.
The gut controls the brain and controls the immune system. So if your child is always sick, it leads to a gut issue, which is why we need to start from the gut. We also need to start with detoxification support and pathway because even the dietary changes alone are going to start killing off the bad bacteria, and there is a work term that's called “die of” When these bad bacteria die off, they start to release more toxins, so you can see an increase in worsened behaviors of your child and this is happening. You have to support the detoxification pathway better with binders and mutational support.
The starting point of a detoxification process and Keren's experience with her son.
My food guide is the best resource to start looking at, and it explains why you want to remove these specific foods and the purpose behind them. When we have more education, we tend to take more responsibility, and knowledge helps us know why we want to continue pursuing it because it can be challenging… So for my son, I noticed that he started sleeping better and that was good because there were so many ups and downs that I didn't know then, that I do now, that I can lead parents now correctly through.
Karen talks about diet change and creating substitutes for autistic children.
I think if you switch to organic foods, that will help a lot even if in the beginning, you are getting an organic chicken nugget and it still has the gluten covering on it, things like that but at least, you are not getting the antibiotics and hormones and additional pesticides because our kids are already so toxic… So just start making some substitutions, it will be a process of trial and error to find the things that your child will eat and like.
Recap
● It is okay to refuse to accept the status quo when your child's health is concerned, no matter how long it will take, keep doing your research, and you will eventually get a break.
● Every child's level of recovery is different and the definition is to regain health.
● There are 4 stages of detoxification: Dietary changes, Heavy metal detox, clearing co-infections, and finding supplements. These stages have to be followed in the correct order for effective results.
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Connect with Karen
NaturallyRecoveringAutism.com
NaturallyRecoveringAutism.com/7foods
Facebook.com/NaturallyRecoveringAutism
Instagram.com/recoveringautism (@recoveringautism)
Guests
Debbie Kimberg is the definition of the word 'BRAVE'. She is a writer and doubles as an advocate. She is a mom of autistic children and has gathered a wide range of experience in taking care of and trying to find solutions for her kids.
Sammy Kimberg is her son and was diagnosed with being on the autism spectrum and having Bartonella disease after a series of tests and disappointing results that would have left other parents discouraged from finding solutions.
In this episode, both mother and son share their story of managing this medical condition.
Discussion:
Debbie's story about how she learned about her and her children's condition.
"Sammy was not severely autistic as a young toddler but as he continued to progress through school, he had several behaviors that qualified him to be autistic. when he was in middle School we stumbled on a Doctor who tested him for something called Bartonella, which is an infection just like Lyme. Sammy tested positive. I and my other children got tested and we were all positive."
Learning about Lyme's disease
"I was born and raised in St Louis, I had never met anyone with Lyme disease before. You think okay, well, we are going to get some antibiotics, everything is going to be so much better. He took his first antibiotics which was augmentin and it damaged his pretty sweet mild kind of personality. He started having fights and became verbally more aggressive. Lyme disease is caused by the bacteria called perrella. There are 300 strains as they call it, but it's variants like COVID.
Everybody talks about Lyme but the star in our story and what we are seeing a lot in the autistic community is the infection called Bartonella."
Sammy's experience dealing with Bartonella
"I had a lot of issues in school. I did bad consistently getting D's and C's and I was in special education class. Sometimes my teachers help me in the hallway and stuff. Some of the medications helped me a lot in school, but some of them made me a lot worse."
How Sammy went from being a picky eater to having a voracious appetite
"I think one of the big things to point out is that the picky eating went away. He was more food aversion. It's like you are pregnant and you look at stuff and he's like yeah that doesn't look good more than the textures themselves. 8 weeks into treatment and all of a sudden he would be doing everything and not only was he eating everything he was eating a ton."
Debbie's advise on how to navigate Bartonella and Lyme's disease
"If the mum or dad has things like issues with anxiety, depression , OCD , panic mood swings, bad temper or autoimmune disease, they should consider getting their kids screened because he could change their lives and trajectory. The sooner you do it the better but if you want to get screened there's a problem because the CDC has not acknowledged that these kinds of infections can cause the symptoms in children. One big reason that CDC had that opinion, is because the lab test doesn't work and if it doesn't work the research isn't going to work either. The way to find doctors that will be able to treat these diseases is through your Facebook line groups. Also, people can DM me. If you need help, I will help."
Sammy shares a bit of his plans and his support systems.
"I am planning to go to the University of Texas and double major in music and computer science. My biggest support is definitely my mum and doctor. My support at school were some teachers, they were always nice."
Recap
· It's okay to say no when something doesn't feel right. You know your child best, so continue to advocate for your family, and look elsewhere for answers if your questions concerning your family's health aren't being answered.
· Consider getting your child screened if as a parent, you have a history of mental related issues no matter how mild it was (is).
· Sammy's treatments didn't cure his autism but it cured the symptoms related to bartonella and Lyme disease.
If you have a child or family with this condition and you are finding it difficult to access a good doctor, visit www.projectline.org to get a doctor's directory.
Connect with Debbie
Debbie's website: www.debbiekimberg.com
Instagram and Tiktok: @hijacked brains
If you learned a thing or two about this episode, do well to share, follow for more, like, comment and subscribe.
Visit www.purehearttherapy.com for more
Guest:
Brittyn Coleman is a Registered Dietitian, Autism Nutrition Expert, and the Creator of the Autism Nutrition Library.
She works with parents of children with autism to expand accepted foods for picky eaters and improve gut health by looking deep to find the root causes of their symptoms and ultimately help them feel their best so that they can thrive.
Overview:
Recap:
Resources:
Website: autismdietitian.com
Instagram: instagram.com/autismdietitian
Podcast: autismdietitian.com/podcast
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Guest:
Rach Wilson is a relationship coach for couples of neurodiverse children.
Background/Importance
Rach Wilson is not only a coach for couples with neurodiverse children, but she herself has two neurodiverse children. She has a wide range of expertise and experience to help a variety of couples through the challenges they face raising neurodiverse children. Rach is devoted to helping couples work through hard times, rekindle what’s been lost, and thrive in their relationships to strengthen their bond and gain the skills to get through any conflicts that come their way.
Statistics
Raising a neurodiverse child is one the hardest jobs in the world, and it plays a significant role in a couple's relationships. At times it can cause a large amount of stress. Stress is the highest factor leading to divorce.
What is the main struggle you see among your clients?
Some of the consequences that arise from stress are sleep deprivation and unintentionally forgetting to prioritize the relationship. This leads to distance, less intimacy, conflict, and ultimately destruction because the children come first. When walking into conflicts people often become defensive and begin to project while forgetting to take accountability for their role in the problem. People will play the blame game instead of trying to understand their partner. When communication becomes defensive reactions, problems will escalate drawing them closer to destruction. Oftentimes defensive behavior is stemmed from past trauma, whether it be from childhood trauma or from a past relationship. Every person comes into a relationship with baggage that causes unconscious behaviors to arise during conflicts.
What are the first steps in resolving issues and stress in relationships?
When couples fall into a state of extreme stress they are unable to take on any new information or rationally deal with anything other than what they must do. The first step is to get out of “Death Valley”. Once you are past that state of extreme stress, then it’s a good time to reflect on what’s been going on and work through problems. The best way to work through issues is to learn and implement better teamwork and communication skills. In order to build a stronger relationship with your partner you need to know yourself as well as your partner. Race mentions the Peace Process. During the peace process, you build skills to better learn about the triggers and baggage you both bring to the table and how to work through upsets as your best self. When you gain emotional awareness you can respond to each other in more real and honest ways.
How does someone get out of “Death Valley” when they’re stuck?
To get out of “Death Valley” the first thing to do is identify the problems going on with your child(ren) that are causing stress and meltdowns, then find a solution. Take the time to act on the small things like checking in with how your partner is doing. Give each other permission to openly vent and talk about issues going on to release built-up tension. Rach uses the traffic light system as an example. The traffic light system is made of three colors: green, orange, and red. There are three levels to orange. Green means everything is good, and red means you’re at low capacity and need space to yourself handle burnout and the inability to communicate properly. The first stage of orange is when you're moving out of green, the second stage is where you try to identify what you need to help get better, and the last stage is red’s around the corner. Sometimes it’s a quick move from orange to red, and there’s little time to counter the back to green.
Talk Therapy vs Coaching
Therapy is a good outlet to talk through things going on, but it doesn’t teach you the skills to shift and change situations or learn skills to heal better emotionally. Rach has studied a lot of different areas of coaching that help give couples a “power tool set” for healing and transformation. Talking about issues can be an important first step in progress toward growth. Then when you learn your baggage and trigger you to understand each better you can learn the skills it takes to resolve problems as they arise. Over time upsets become builders to make couples stronger to thrive down the road.
What are some key takeaways for the listeners?
Firstly, we all come into relationships with baggage and past trauma. Secondly, during heated moments we often project on one another because we are in defense mode like when our neurodiverse child(ren) is having a meltdown. Lastly, reach out to any professionals you may need to learn and work on the skills you need to build better teamwork and communication.
How do they get a hold of you?
Website - Link down below
Action Plan: (some applicable things parents can implement at home)
The traffic light system was a good example of how to identify better what’s going on with yourself and your partner.
Recap:
- It’s impossible not to bring “baggage” to a relationship.
- Most of our ideas of how to be in a relationship come from what we have seen in prior relationships or caregivers
- Being in a healthy relationship requires skill building, and it can help to reach out to a professional like a relationship coach to understand how you show up and build communication skills to be more successful in your relationship.
Resources:
Website (Relationship Survival Guide is on the website)
https://divinerelating.com/
Facebook (Private message Rach telling her you heard her on the podcast if sending a friend request)
https://facebook.com/rachwilson
http://instagram.com/divinerelating
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Guest:
Crestina Yaiva is a stay-at-home mom of twins aged 9. She has a business of her own, making handmade jewelry using textiles. Her son Franco is on the autism spectrum as well as non-speaking, while Vincent is neurotypical.
Overview:
Crestina had noticed that her son Vincent is always so kind and loving to others, but when it came to his brother, he seemed to be a bit distant. Franco has always had a tendency to be somewhat isolated and play by himself. The boys would have decent interactions, but they seemed brief, and Vincent seemed to be a little more distant from his brother. Eventually, Crestina came across an article that really helped her bring her boys closer together. The article was centered around “not blaming the baby.” This entails taking accounting for your time or how you are feeling and making an effort not to blame the sibling with more needs for being tired or not having time. Crestina began to rephrase the way she communicated with Vincent, and she began to notice that Vincent began to bond more with his brother and have less resentment towards him. Crestina still continues to be intentional about how she communicates about her capacity and needs and takes a neutral stance instead of “blaming the baby”.
Recap:
-
“Don’t blame the baby”
- Avoid using one child as an excuse not to have attention or energy for the other child.
- Look for support groups like SARRC and Sibships for siblings of neurodiverse children.
Resources:
Sibshops
SARRC https://autismcenter.org/sibling-support
Autism United: https://azaunited.org/services/sibshops
Crestina's Business Page
Website https://cocochenzo.com/
Instagram https://www.instagram.com/coco_chenzo/
Episode 14: How to manage the emotions of the sibling of an autistic child
https://www.pureheartstherapy.com/autismfamilyresource/how-to-manage-the-emotions-of-the-siblings-of-an-autistic-child
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Guest:
Rebecca “Becca” Stoddard is a pediatric occupational therapist and owner of Breakthrough Therapy based in Phoenix, AZ. Becca is enthusiastic about working with children and their families to help them achieve their gross motor milestones. Becca has completed 2 courses on Dynamic Movement Intervention (DMI). She plans to complete a 3rd course at the beginning of the year. With experience in visor therapy settings, Becca uses both intensive DMI therapy and ongoing weekly DMI therapy at her practice. She also offers a free gross motor skills screening that can be done virtually, in person, and at home.
Interview:
What is Dynamic Movement Intervention (DMI)?
DMI is a specialized, hands-on technique focusing on head control, trunk control, and achieving gross motor milestones. Some of those milestones are rolling, sitting, balancing, crawling, standing, and walking. DMI exercises look different from the traditional therapy approach. Some exercises use gravity and a lot of sensory input to get automatic responses from the child to help them reach milestones. There is also a unique box set that is used as the child gets older and progresses. One of the main parts of DMI is an emphasis on neuroplasticity. That’s a fancy term for creating new connections in the brain. The key factor in achieving this is repetition to create those new pathways.
How do I know if my child would be a good fit for DMI therapy?
When a child exhibits gross motor delays, it can be things like the inability to hold their head up, not being able to roll, and the inability to maintain balance while sitting up. In a study, gross motor delays can occur in up to 68% of children with autism. Children with autism are more at risk of delayed gross motor skills.
What are some red flag diagnoses that might be indicated for gross motor delay?
There is a wide range of diagnoses that can include gross motor delay. Some of the main ones are cerebral palsy, spinal cord injuries, traumatic brain injury, gross motor delays, and development delays. Every child is different and can be a possible candidate that can benefit from DMI therapy.
What is an example of what DMI therapy may look like for a child?
One example could be putting a child in an inverted upside-down position to work on core strength. The brain will automatically want to be upright when in an inverted position. Putting a baby in that position will force the body to create the desired response to be upright. Another example would be an exercise focusing on walking and stepping up on a surface. The thigh would be supported as the child tries to step up onto a box. DMI support goes from proximal to distal. As the therapy progresses, the support will go from the hips to the thigh to the ankles.
What can a parent do at home to help their child strengthen and build gross motor skills?
Parents can take their children to the playground and practice going up steps without holding onto the railing. With a baby sitting on the lap, lean him/her backward, and give the baby a chance to try and sit up to build belly muscles that work out core strength. When laying down, aid the baby with holding him/herself up with his/her arms and exercises on the knees. A website Becca refers her clients to is pathways.org as a reference to what to expect maybe their child to be doing at certain ages.
Recap:
-
Work on core strength
-
Encourage play in various positions
-
Physical play with toddlers and slightly older children
Resources:
www.DMItherapy.com
Pathways.org | Tools to maximize child development
www.breakthrough-therapy.com
Instagram: @breakthrough_therapy_dmi
Article Reference
Research reference: Hedgecock, J. B., Dannemiller, L. A., Shui, A. M., Rapport, M. J., & Katz, T. (2018). Associations of Gross Motor Delay, Behavior, and Quality of Life in Young Children With Autism Spectrum Disorder. Physical therapy, 98(4), 251–259. https://doi.org/10.1093/ptj/pzy006
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Guest:
Judy Thomas is a language pathologist and owner of Growing Voices Speech and Language Therapy based in East Valley Phoenix, AZ. Judy Thomas has training in autism and gestalt language processing and opened her private practice to give children the 1 on 1 attention they deserve.
Interview:
There are two ways children develop language: analytical and gestalt. Children with autism often develop language using gestalt, and that requires using a different framework for evaluations and treatment to adequately meet their needs. Gestalt means whole. One key factor that is focused on with gestalt is echolalia. Echolalia is the repetition of another person’s spoken word.
Different Types of Echolalia
There are three types of echolalia. The first type is immediate echolalia. With immediate echolalia the child will simply follow another person’s speech. The second type is delayed echolalia. This type of echolalia tends to happen at a later time and can be produced with no communicative intent. This manner in a way a child communicates is called scripting. This means that the child is repeating words or phrases they’re heard from a parent or tv show. The last type is mitigated echolalia. This is where the child will make a change in wording or intonation made by the person that is speaking to him or her. These different types of echolalia are important to appropriately use gestalt language processing to treat a child.
Different Stages of Gestalt Language Processing
Children who develop a gestalt way of language development learn communication phrases in chunks. In stage 1, a child will start by simply mimicking phrases they hear. During this stage, they will repetitively use the phrases they have acquired and will even attempt to copy the tone of voice the original speaker has. In stage 2, a child will start to break down the chunks of phrases they’ve stored. A child will begin pairing those phrases together and even start to pair them with new words. Oftentimes they will also start to mix and match different echolalia with their phrases. When a child reaches stage 3, they will use two-word combinations with singular words. This can appear like a backslide in their language because the utterances of phrases can become shorter. During stages 4, 5, and 6, a child can self-generate sentences, learn grammar, and begin to answer questions. During all the stages, it’s important to validate your child’s communication and help them model new phrases to build their gestalt up. During all stages, try not to ask too many questions as it may overwhelm and frustrate your child.
Ways to Model New Gestalt Phrases
A child first needs to learn new phrases that can be broken down when he/she reaches stage 2. Some common mitigated phrases that can help a child do this begin with the words let’s, it’s, and I’m. Judy Thomas has noticed that many speech therapists try to use phrases that begin with “I want,” and this phrase can cause a child to get stuck in their development. The goal is for a child to create spontaneous utterances and not just memorize phrases. The best time to help a child model new phrases is during natural child child-led play.
Recap:
- Don’t ignore your child’s echolalia. This is an important part of how your child communicates by learning the meaning behind your child’s use of phrases will help move development along.
- Model back-and-forth phrases through natural play to make learning fun for your child. Remember not to ask too many questions that may frustrate your child and cause him/her to shut down.
- Walk through the steps of the gestalt learning process appropriately with the help of a speech therapist.
Resources:
https://www.growingvoicestherapy.com
https://www.facebook.com/growingvoicestherapy
https://www.instagram.com/growingvoices.speech/
https://www.meaningfulspeechregistry.com
https://www.meaningfulspeech.com/blog/twotypesoflanguagedevelopment
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Guest:
Lenora Edwards is a Speech Language Pathologist for BetterSpeech.com. Along with over 150 other licensed therapists with an average of 10 years of experience, BetterSpeech.com is a nationwide online platform. They offer a free consultation on how they might help you or your loved one with appointments that include evenings and weekends. With varying prices to suit your needs they even offer itemized bills to submit for reimbursement for those with qualifying insurances.
Interview:
In today’s episode we’re going to learn some of the red flags that your child might be exhibiting when it comes to speech and communication delays, and when to consult a speech therapist.
What are some red flags to look out for, and when is it appropriate to get a speech evaluation?
During the early developmental stages children first experience receptive language, such as when you tell your child you’re going to pick him/her up. During this time children are learning the tones in our voice, and begin to learn what things mean. Children begin to understand language before they gain the ability to express it. Some things to look out for are how your child responds to the information you are giving. When you call your child’s name does he/she respond? Does he/she look at your face? Does your child follow the directions you are giving? Does the response you’re getting show that your child understands what you are saying?
If you have any cause for concern in delays of speech and communication it is in your best interest to consult a speech therapist.
Would you say that if there is a lack of receptive communication that would be a good time to get a consultation?
Absolutely!! Some red flags to notice are lack of eye contact, not working to engage attention, or not following simple directions like come here. When you model what you’re asking your child can he/she model after you? Remember to keep talking to your child, and give your child the opportunity to communicate with you. Take your time, be patient, repeat what you want your child to do, and allow time for your child to process what you’re asking.
What are some of the signs of concern when it comes to expressive language?
For children in the younger stages babbling is a form of communication, as they grow older children then string together a series of consonants and vowels. If your child is only speaking in vowels or using a repetitive word that may be a red flag and need for a consultation. When you speak to your child make sure he/she can see your face to model after you, but if your child isn’t making eye contact or engaging with you when you are speaking that could be a sign of concern.
What are some strategies parents can do at home?
- Offer opportunities for your child to communicate with you
- Playing developmental games
Recap:
- When it comes to speech and communication development children learn to express themselves by learning from us.
- Keep talking to your child, and make sure what you're saying is digestible and not too much all at once.
- When in doubt, reach out
BetterSpeech Resources:
Website: https://www.betterspeech.com/
Facebook: https://www.facebook.com/yourbetterspeech/
TikTok: N/A
Instagram: https://www.instagram.com/betterspeech/
Linked In: https://www.linkedin.com/company/better-speech/mycompany/
YouTube: https://www.youtube.com/c/BetterSpeechVideo
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Guest:Janis Leinfuss, Amanda Newchok, and Erin O’Hara are the creators/authors of the Ready to Learn and Play framework. All are practicing pediatric occupational therapists each with over 20 years of experience.
Interview:Ready to Learn and Play (RtLP) is teaching the “why” behind sensory regulation. TheRtLP framework solidifies sensory regulation-learned concepts through the meaningful understanding of WHY child-specific sensory-based interventions are beneficial, and HOW to choose effective sensory strategies based on exhibited sensory clues.
Why was the program created and how was it developed?While doing group treatment sessions with students who had been receiving sensory based interventions for years, there was a realization that the students had no ownership of their treatment or have the ability to help create effective therapy plans. It took years of planning, creating, and gathering evidence to support the RtLP framework. As part of Janis’ doctoral research, a pilot study was conducted. A second follow up study was conducted with a larger sample size, as well as a third study that was done completely virtual due to the pandemic. This allowed the framework to be proven that it
can be conducted in person as well as virtual to suit individuals needs. While conducting the three studies there was a large improvement in occupational performance. A scope was done for pre and post testing analysis to show occupational performance improvements in day to day activities involving components that were motor based, social and emotional.
What are the 4 phases of the framework?
Phase I is Sensory Experience:For the first phase students are exposed to various sensory strategies and techniques that teach them the multiple ways we can get sensory input. The students get to learn about the different sensory systems and how it affects them. The students categorize different sensory activities by pairing flash cards and visual supports. This is a neuro-educational step that involves an organizational memory strategy that improves memory recall.
Phase II is Sensory Choices:In this phase the students learn about the combination of sensory strategies that can be used to best suit processing needs. The main focus of this phase is to teach the student
about sensory regulation, such as when you might need to stimulate or repress different sensory systems. Some sensory behaviors are referred to as scattered actions, so in this phase the students are taught that these behaviors are clues to identifying sensory needs. The students are coached on how to connect the scattered action and the sensory category. This phase is all about empowering ownership of self regulating by
allowing the students to customize and create sensory strategies that will work best for them as an individual.
A unique aspect of this framework is that you get to reshape the negative context of sensory dysfunction and behaviors, and turn it into a positive tool that helps individuals become better informed when making decisions about their sensory needs. Students get to learn more about themselves to better understand and assign the reasons behind their sensory behaviors. This turns a complex concept into a simple understanding.
Phase III is Generalization:This is the phase where students begin to practice the skills they’ve learned in various environments, and with various people. Throughout this phase students gain a better
understanding that not at all strategies, techniques and supports can be used for all contexts. The practice of generalizing the knowledge they’ve learned about regulation
supports from the previous phases helps the students to further maintain and recall sensory regulatory concepts long term.
The main focus of phase III is to reflect on what
they’ve learned so far about their options to support their regulation needs whether they are in the classroom, with their family or out in the community.
Phase IV is Application:The final phase of the RtLP framework is to apply everything they’ve learned ongoing in every aspect of their daily lives. Supports are individualized to each student’s needs. The goal of this phase is to create a sensory lifestyle to maximize participation and performance. Throughout this framework a student and their educator gain an understanding of personal sensory needs to create unique strategies that are impactful
to regulation. Sensory processing disorders can get in the way of fully engaging in one’s environment, so caregiver coaching is a very big element. While trying to achieve the right level of internal balance, this long standing phase may increase the students' readiness to learn and ability to more effectively access their educational programs in order to improve occupational performance.
Example of how someone may implement this plan:
In Phase I a child is learning about their sensory experiences and strategies to manage their needs.
In Phase II a child might be exhibiting sensory clues by squinting his or her eyes as well as tensing their muscles. With coaching the child and caregiver can connect the scattered action to the system of eyes and pressure. Reflecting on the categories of eyes and pressures, a strategy or support can be chosen. That could mean wearing sunglasses and squeezing a stress ball.
An example of Phase III would be looking at pressure-based options across environments. A big, bear hug might be acceptable with a trusted family member, but
not so much as a young adult in a work environment.
Phase IV is about maintaining a sensory lifestyle
How can the guest be contacted about starting the RtLP framework?
If your child is seeing an OT, talk to your child’s occupational therapist about seeking outmore information in regards to the Ready to Learn and Play framework. Parents can also contact us directly to compliment what they or their therapists are already doing. Ready to Lean and Play offers professional training as well as parent and school based training.
Recap:The ready to learn and play sensory regulation Framework was created by Janis Leinfuss, Amanda Newchok, and Erin O’Hara. It was created to empower caregivers and kids to better understand sensory processing needs and be able to develop strategies to help kids self-regulate in various contexts. The framework has 4 phases. Sensory experience, sensory choices, generalization, and application.
- Phase I: Sensory Experience involves exploring various sensory inputs and learning to
categorize those sensory experiences and learning sensory regulation strategies. - Phase II: Sensory choices involve using behaviors (scattered actions) as clues to
understand what sensory needs there may be and empower the child to use the learned
strategies to be able to self-regulate. - Phase III: Generalization involves applying sensory regulation strategies to various
contexts and environments. - Phase IV: Application involves providing ongoing supports to create a “sensory lifestyle”
Resources:
Ready to Learn and Play contact info:
Facebook @Ready to learn and play
Website: www.readytolearnandplay.com
Email: readytolearnandplayllc@gmail.com
Phone: 201-563-2773
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Guest: Michele Thorne
Interview
Parents and caregivers of children with autism often feel overwhelmed. They can feel uncertain on where or how to learn about ways of taking care of their own needs, as well as absorbing all the knowledge they can obtain to create strong, healthy, and empowered lifestyles for their families.
Michelle Thorne is a mother of two children. She is the Founder and Executive Director of Care 4 the Caregivers that is based out of Arizona. Michelle was living a planned life that was taken off course when her children were diagnosed with autism. She fell into a deep depression that led to the question of why there was no organization dedicated to the needs of supporting parents and caregivers in her new community. In her opinion, the disability community as a whole is sorely overlooked, so she set out to create an organization that provides support and access to resources available to the public.
What sort of resources does Care 4 the Caregivers offer?
- Educational webinars of various topics
- 21 day fitness programs that can be done at home
- Guided meditation
- Roadmaps that are step by step guides to navigate systems of care
- Parent Empowerment course: Stepping Stones Triple P
How does a family access the Stepping Stones Triple P program?
Through grants the program is taught all online through the Care 4 the Caregivers website. Families from other states may access the program as well. They are currently offering free life coaching for caregivers. Partnered with the Arizona Caregiver Coalition, there are also free health and wellness coaches for the caregiving community.
Are all the services free to parents?
Yes!!! The goal is to provide completely free services and resources to the community. There are also some free events for the caregiver to attend and enjoy.
Visual supports for families
On the Care 4 the Caregivers website you can go to the resource by topic section to find visual supports without having to jump through hoops. Through the work of an Arizonan illustrator you can find free visual support on techniques like getting dressed or hand washing.
Take away message from guest
The beginning years are difficult, but you’re not alone. There is a community of men and women that can be huge levers of support. Find your Tribe!!!
Recap
- Michelle faced struggles understanding the system, and how to raise her children with limited resources
- Michelle created Care 4 the Caregivers for those who are going through similar struggles
- Care 4 the Caregivers provides a variety of free resources
- Michelle encourages finding a support system that can become your tribe
Resources:
Care4thecaregivers.org
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Guest Speaker
Crestina Yaiva is a mother of twins. She and her husband have one child who has been diagnosed with autism, and struggles with communication. She shares her story, and how she learned to overcome obstacles of communicating with her non-speaking child.
What were Crestina’s first thoughts and feelings when she learned her son was autistic?
Around three years old Crestina noticed that Franco had some speech delays, and wouldn’t talk as much as his brother Vincent. When he was officially diagnosed around the age of four, Crestina felt somewhat relieved to have a place to start understanding her child better. However, she was also very overwhelmed by all the information and such that was being given to her. The first thing she did was join every Facebook group she could find from local to national. Her focus/goal was to learn how to better handle her son’s diagnosis.
After some research, what did Crestina do to solidify her next moves?
Once Franco completed testing, he was set up with a developmental pediatrician. Crestina was given a research book to help guide her on this new journey with her child. Crestina jumped into action setting Franco up with speech therapy, occupational therapy, and any other type of therapy that would aid in her son’s development. From there, she searched the internet for any reading material to further her knowledge. There were a couple books that proved to be very resourceful to her and her husband. Crestina found the book The Reason I Jump by Naoki Higashida to be her favorite. It truly helped her understand some of her son’s behavior, such as the random breakdowns and sensory overloads her son went through without her knowing the cause. She realized in her son’s mind time is not linear, and that changed her perspective for the better. As for her husband, the book Not My Boy by Kelly Simmons caused him to find a way to better cope with his son’s diagnosis and build a stronger relationship with him.
What are some learning points that helped Crestina to connect more with her child from a non-speaking perspective?
As a mother Crestina has the natural ability to anticipate her children’s wants and needs before they could even try to tell her. Crestina had to learn to take a step back, and create more opportunities for her son’s to find ways to express themselves without her doing it for them. This would help them to expand their communication skills.
What are some examples of how Crestina created opportunities for her children to learn to communicate on their own?
Crestina did her best to keep everything in sight, but out of reach. This included anything from toys to snacks. Her husband even built shelves to help as well. Through trial and error they began to find ways for their children to use different methods of body language and such to communicate their needs.
What is the advice Crestina would give to other parents with non-speaking children?
The biggest thing is to have patience. Children will not always communicate the way we may expect them too. Remaining open, receptive, and acknowledging of your child’s style of communication you can provide a sense of comfort and reassurance they will need.
Recap:
- Seek the guidance and aid of a developmental pediatrician.
- Understand your child’s perspective, and find ways to connect
- Anticipate behaviors and communication, but find ways to create learning opportunities for your child to communicate.
Resources:
Recommended articles related to non-verbal communication
https://www.thefca.co.uk/fostering-autistic-children/communicating-with-a-nonverbal-child/
https://www.friendshipcircle.org/blog/2013/04/16/23-ways-to-communicate-with-a-non-verbal-child/
https://www.appliedbehavioranalysisedu.org/6-strategies-for-encouraging-a-non-verbal-child-to-communicate/
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Guest Intro:
Dawn M. Barclay is an award-winning author with over 30 years of experience in her career of learning and sharing the different aspects of travel. After graduating from Tufts University with degrees in psychology and marketing, she began working as an agent at her parents’ firms, Barclay Travel Ltd and Barclay International Group Short-Term Apartment Rentals. From there she moved on to the business of travel trade reporting. She held the titles of senior or contributing author for Travel Agent Magazine, Travel Life, Travel market report, and most recently Insider Travel Report. Dawn is a mother of two residing in Hudson Valley, NY. She writes fiction under the alias of D.M. Barr while maintaining leadership roles in several writer organizations. Her new book Traveling Different is available now to preorder in hardcover form or as an audiobook.
Interview:
As far as travel is concerned, what is the biggest concern among families?
Families with special needs are often nervous about the sensory issues they will encounter, the meltdowns that may occur as a result, and how those around them might perceive the situation. In a study by the IBCCES (International Board of Credentialing and Continuing Education Standards), out of 1,000 parents with special needs children interviewed 87 percent of them choose not to travel. From that group 93 percent would travel if they knew where to go or what to do.
What inspired Dawn to write her book Traveling Different?
In the early 2000s Dawn looked for a book that could help guide her, but was unsuccessful. In 2008 she started interviewing for the book she has now written. She spoke with autism and ADHD professionals until she hit a wall. When she discovered the IBCCES group a program they created helped navigate her way to writing her book. Due to the covid pandemic she utilized her time to conduct research and a series of interviews for which the book is based on.
Recap:
1- Preparation: Children with sensory issues need a sense of predictability. Give your child a start to finish preview from the trip. This can be done in a few different ways.
- Think through from beginning to end
- Preview it for predictability
- Social stories, videos, experiences (house or friend)
2- Make the trip “child-centric'': Plan a trip around their needs and interests.
- Plan the trip around their needs
- Pace activities during the trip
- Cater to their special interests
3- You have resources: There are several hotels, airlines, and travel sites that have labeled themselves as autistic friendly or certified autism centers that have devoted their time in training individuals to handle those who have special needs.
- Her book lists phone numbers and URL’s for many places
- Museums, parks may have special travel related events and activities that’s Autism friendly.
- Her website is constantly being updated
Resources:
www.travelingdifferent.com
www.dawnbarclayink.com
Autistic Family Travel Resources in Arizona
- https://www.visitmesa.com/autism-travel/
- https://arcarizona.org/what-we-do/wings-for-autism/
- https://www.azcentral.com/story/entertainment/events/2020/04/09/autism-friendly-places-phoenix-pal-experiences-diamondbacks-suns-mercury-restaurants-museums/5006120002/
- https://www.belikebuddy.com/arizona
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Guest Introduction:
Catie Sondrol is an occupational therapist and co-owner of Milemarkes therapy who has served many families throughout the Mohave Valley county in Arizona for the past 18 years. They provide occupational therapy, speech therapy, physical therapy, music therapy, habilitation, and adult day programs and work service programs. She has completed mentorship training with the STARS Institute and Avanti Therapeutic Projects.
Interview from the dialogue:
How would you in your own words describe sensory difficulties for the client’s you have seen in your past?
Confusion, disorganization, or chaos of inputs to the body. When the brain is connecting the dots, the 8 senses afford a clear understanding of what’s happening both inside and outside of the body. But when the mangled messages become impairing or overwhelming it can lead to a variety of defensive behaviors.
Do only children on the spectrum experience sensory issues?
No, sensory doesn’t discriminate. Oftentimes there is a comorbidity. Sometimes there isn’t.
What may sensory processing difficulties look like?
Avoiding or shutting down, fleeing or escaping, or anger and fighting. When the body becomes overwhelmed by an input or is confused by how to process the input these external “behaviors” are what we often see. Routine and structure become input in the person’s life so that they can structure their environment to minimize the likelihood of experiencing the noxious sensory event.
What are the various sensory (senses) that individuals may have trouble with?
We all learn about our 5 senses in school. So of course those are senses we can have trouble with. But in OT school we learn about 3 other senses. Interoceptive, vestibular, and proprioceptive.
Is my child hyposensitive or hypersensitive?
We need to be careful with over all classifications or generalizations. Individuals are often a mixed back of this and it is specific to the sensory system. Example I might be hypersensitive to vestibular input meaning I don’t like to swing and feel like I am going to throw up, but I might be hyposensitive to touch which means I seek a lot of touch and deep pressure.
We are talking about implementation of a sensory diet. You like to call it a sensory lifestyle. Can you elaborate more on that?
A diet is a planned and scheduled activity program designed to meet a child’s individual sensory needs.
A diet is something you discontinue. A lifestyle is something you maintain over a lifespan. Our sensory systems evolve and change as we grow, mature, have different environmental demands, etc. so it is only natural that your sensory supports need to grow and change too.
Sensations are like “food” for our nervous system. Without a good supply and wide range of sensations the nervous system cannot develop to it’s maximum potential.
Look at your own sensory lifestyle: when you are stressed do you chew gum, smoke, go for a run, punch a punching bag…..
How do you implement a sensory lifestyle?
Remember it is individualized! Sensory experiences should be part of everyone’s day, every day. Play is an essential part of a child’s development and is enriched with lots of sensory experiences.
You need to consider the “why” or what the person is trying to get from the current sensory inputs in their day.
Need to consider the frequency….how often should they get input
Consider the duration….when they get it for how long do they need it
Consider the intensity….how much of it should they get…what is the impact…the bang for your buck!
*Remember if there is a sensory “behavior” you are trying to eliminate you can’t take away because it has a purpose (example chewing on a shirt)….you have to know the “why” and then find a socially appropriate replacement that will meet or exceed the threshold the body is receiving from it.
***It should leave a child feeling organized, good, and grounded.
Doesn’t always have to purchased equipment….get creative with play.---making a fort, ninja warrior
Sensory “smart” home: quiet spaces, reducing visual clutter
Pressure garments
Fidget toys
Weighted blankets or vests
Chewable “jewelry”
Colored lenses
Noise reducing headphones
Music
Bouncy or moving chairs
Swing
Dream pad
Lycra bed sheets
Recap:
-
Sensory processing is:
- How we take in, understand and organize the sensory input we receive in our world.
- Sensory processing difficulties happen when a person is not effectively processing the sensory input they are receiving.
- This can present as behaviors in an attempt to manage the input.
-
The 8 senses that can be impacted by sensory processing difficulties are:
-
Touch
- Smell
- Taste
- Vision
- hearing
- Vestibular inner ear where we are at and orientated
- Interoception internal environment sleepy hungry
- Proprioception pressure joints movements
-
When implementing a sensory lifestyle remember:
-
Your child may need a lot of input from one sense and little or less input from another sensation.
- Consider frequency, intensity, and duration of the sensory activity
- Continue to make adjustments as our sensory needs may change day to day and overtime.
Resources:
To learn more about Milemarker’s therapy in Arizona or to reach out to Catie directly for more resources visit:
https://www.milemarkers.us/
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As an occupational therapist, I'm often dealing with or having interactions with the siblings of the clients I work with during therapy especially if they are younger in age. I regularly see how excited siblings get when it's time for therapy and their desire to want to participate as well.
Unfortunately, the siblings of the children I work with aren’t always able to participate and this can lead to confusion, frustration, and feeling left out. And this isn’t just limited to just my therapy sessions. These misunderstandings can carry over into doctor appointments, school, and community settings. I’m going to address some commonly reported emotions that siblings of special needs children have and provide you strategies for you to address these feelings. 3 commonly, reported emotions expressed by siblings of special needs children are feeling left out, having to do too much, and inability to express their feelings.
Feeling isolated or left out:
Siblings of special needs children want to participate and be included in all the fun happenings for the family. Don’t we all? This desire to be included is multiplied when their sibling has “fun” therapists who bring fun activities for their sister and brother each week. It’s not just therapies at home. If your child has any specialty appointments outside of the home it can feel like they are missing out on a lot of fun from the outside looking in.
Action Plan:
-
Schedule 1 on 1 time with each child
- Find a time during the week with 1 on 1 time with your child providing undivided attention
- Allow your child to express themselves
- Allow your child to lead the conversation
- Make it about them and not the other sibling
- This time could be as short as 10 minutes the important thing is the intention and taking the time to create this space.
-
Communicate with your child
-
Communicate with your child about an perceived disparities
- Explain at an age appropriate level what therapies are for
- Begin to explain Autism and how their sibling may need some extra support as we all need various levels supports throughout different phases of our lives.
-
Find ways to make sure all your children feel loved
-
Explore family activities where everyone can be involved.
- Have each child be able to participate at a level that is appropriate for them.
Feeling like they are asked to do too much/burnout
Siblings often take on caretaker or protector roles of their siblings especially if they are older. Some of these role may be requested by you and others the sibling may feel like its their duty. Once common example is if both children go to school together. Your neurotypical child may see their sibling struggling at school physically, emotionally, or socially and they may feel like they got to protect them from other students or from getting hurt. At home, it’s common for parent’s to feel overwhelmed and ask their child for help. This is not wrong and expected in certain cultures. This can cause frustration and burnout though if these extra tasks become expected or if your neurotypical child has begun to take on a caretaking role for their sibling. This could easily feel unfair and unjust and lead to your child feeling like they can be a kid.
Action Plan:
-
Clarify responsibilities
- If you notice your child is doing more than what is required make sure to clarify what is a child’s responsibility and what is the parent’s responsibility.
-
Express appreciation
-
Make sure to provide verbal appreciation for the way your kids contribute around the house
-
Self-Check
-
Check-in to see if what you are asking of them is fair
- Every families values and customs are different
- Does all your children have the opportunity to explore, learn, and be a kid?
- Maybe consider ways of possibly expanding your support group if you are feeling overwhelmed.
Feeling like they can’t express their feelings along with confusion, guilt, or embarrassment.
As siblings continue to get older and begin to notice more differences in their siblings behaviors compared to their peers they may feel confused, embarrassed, and that they don’t have space to express themselves. When there isn’t communication and discussion related to the differences between your neurodiverse child and neurotypical child then your neurodiverse child’s behaviors or diagnosis could be perceived as a secret. With this in mind they may also feel like their needs are lesser and that they may not have the right to be “needy”. Also if there is a lack of communication they may not feel like they have the space to express themselves and their frustrations in a healthy manner.
Action Plan:
-
Communicate
-
Teach them about autism at an age appropriate level
- Stemming
- Social skills
- Revisit top from time to time.
- Allow space to express their honest feelings without judgment and encourage honest communication
- Consider a counselor and/or support groups
-
If any of your children are showing any distress or struggling consider consulting a mental health counselor. They can help your child express and understand their emotions that can feeling confusing and frustrating.
- Look for support groups: In Arizona, there is a support group for siblings of children with special needs called Sibshop and it is hosted by Arizona Autism United. These are 1 hour meetings where children ages 7-14 can connect, relate, and talk about their emotions. Currently these meetings are virtual but should return to in-person sessions eventually.
-
Recap: Siblings of special needs children may feel a variety of emotions due to the complex family landscape. Common emotions/feelings include: 1. Feeling left out, Asked to do too much, and inability to express themselves.
-
Feeling Isolated or left out
-
Schedule 1 on 1 time
- Child led
-
About them
- Communicate with child
-
Talk about Autism
-
Let them know why there are differences at home
- Find ways to make sure all your children feel loved
-
Family group activities
- Asked to do too much
-
Clarify what's their responsibility and what’s parents.
- Words of appreciation go a long way when your children are contributing and helping out.
- Check in with self to see if what you are asking is fair
-
Unable to express self, confusion, guilt embarrassment
-
Communicate, Communicate, Communicate
- Teach the siblings about Autism
- Provide spaces for open communication
- Consider counseling or support groups like sibshop
-
Resources:
Sibshops
https://azaunited.org/services/sibshops
Arizona Autism United hosts Sibshops which is held on the first Saturday of each month for neurotypical siblings of children with any type of special need. Siblings must be between the ages of 7 to 14 to participate. Registration is required and your first session is free! Right now sibshop free and is 1 hour and via zoom until they return back to in-person.
Washington Post Article: 8 things siblings of children with special needs struggle with
https://www.washingtonpost.com/news/parenting/wp/2016/12/20/8-things-siblings-of-children-with-special-needs-struggle-with/
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Guest: Christina Broderick
Christina’s Story: Christina Broderick is a mother of 2 special needs children with Autism. Her oldest son has a rare disorder called Phenylketonuria (PKU). Phenylketonuria is a rare disorder where individuals cannot break down the amino acid that make up proteins in our food. As a result, the amino acid Phenylalanine builds up in their blood or brain and can lead to brain damage if accommodations aren’t made.
Her son was the first PKU diagnosis in over 30 years in her town of Lake Havasu City, Arizona. As a result, resources were limited. In 2010, Christina as a 19-year-old mother struggled to find a formula that was safe to feed her son. The formula she eventually found was very expensive! Christina also didn’t have a PKU specialist in her town, so she had to travel frequently typically 3.5-hour drives to Phoenix, AZ to see a specialist and get resources suitable for her son to include testing kits. For awhile all her son could eat was Rice Cereal.
Christina was contacted by a representative of NORD (National Organization or Rare Disorders). NORD is a nonprofit 501(c)(3) provides assistance programs to help patients obtain lifesaving or life sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists. NORD helped Christina with resources a variety of resources to include food, gas reimbursement, medications, and funding. NORD also introduced her the company CAMBROOKE, which provides nutrition for those with serious medical disorders like PKU.
When Christina’s son turned 6. NORD also introduced Christina to a new medication from Biomarin that was initially introduced for diabetic persons. The manufactures believed that this drug would be effective for individuals with PKU and began a study which included Christina’s son. The medication Kuvan made by BIOMARIN ended up being effective for her son. NORD’s pay for all her son’s PKU medications. Christina reports that NORD will provide support for undiagnosed individuals as well.
Recap:
- If you have a child with a rare disorder like PKU, reach out to NORD.
- NORD provides education support programs, funding, and resources for individuals with rare disorders.
- Cambrooke provides low protein foods for individuals with PKU
- BIOMARIN provides medication for individuals with PKU.
- Regardless of your child’s diagnosis, you can become your child’s number 1 advocate by reaching out to see what resources may be available out there that will help your family through tough times.
Christina works at RISE Services, Inc.
Rise Services Inc. provides services that support children, adults, and families throughout Arizona, Utah, Oregon, Texas, and Idaho.
https://riseservicesincaz.org
NORD
https://rarediseases.org/for-patients-and-families/help-access-medications/patient-assistance-programs-2/
NORD Mission Statement:
NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
CAMBROOKE
https://www.cambrooke.com/
Ajinomoto Cambrooke (formerly Cambrooke Therapeutics an expansion of Cambrooke Foods) was founded in 2000 by Lynn and David Paolella, the parents of two children diagnosed with a rare disease called phenylketonuria (PKU). PKU is one of the few genetic diseases, which is managed almost entirely with nutritional intervention. The Paolellas’ goal in forming Cambrooke was simple - to develop improved nutritional therapeutic options for those with serious medical disorders.
BIOMARIN
https://www.biomarin.com/our-treatments/products/kuvan/
Kuvan® (sapropterin dihydrochloride) Tablets and Powder for Oral Solution is the first FDA-approved medication for phenylketonuria (PKU). Kuvan is a form of BH4, the cofactor of the PAH enzyme, which helps the enzyme break down Phe. Kuvan is to be used in conjunction with a Phe-restricted diet.
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Guest: Abigail Wool-Biringer.
Abigail is an occupational therapist and specialist in executive functioning skills as they relate to ASD, ADHD and more.
Background:
Even with structure and support your child still may be exhibiting behaviors that may be tied to executive functioning development.
What is executive Functioning?
Executive functioning skills are a set of cognitive skills that basically function as the boss of the rest of the brain. They help plan, organize and delegate. They inhibit impulsivity and emotional responses. They keep track of time and problem solve when things are not going well. They allow us to learn from past mistakes and adjust behavior for the future.
What might executive functioning difficulties look like?
They show up in so many ways. Difficulty starting a task that is boring, repetitive or too challenging - so like homework, chores, getting off of something super fun like electronics and into a bedtime routine. They also might show up in ways like difficulty engaging at school, being flexible with the unexpected changes in routine, staying regulated when upset or frustrated, and so many more ways.
If I’m a parent what would be some signs?
The signs are all behavioral. Your child is DOING something that is causing difficulties at home, school, or the community. You can look to executive functioning to see if that could be a potential cause.
If a parent suspects their child is having executive functioning difficulties what should they do?
The first change should be to change your mindset. Dr. Ross Greene calls this a lens change. When you view your child as struggling with the EF skills, you can soften your approach. You can understand that these are skill deficits and not something that they are willfully doing in order to make parents or school staff life hard. So the first step is recognition. The next step is to problem solve and figure out what is hard for them and how can you help support them while they build those skills.
What is a tool or activity/s that can promote executive functioning skills?
Allowing your child to TRY when it comes to things like impulse control, flexibility, time management, organization, planning and more. Give them opportunities to problem solve and figure out what works for them while at the same time not allowing them to get so frustrated and overwhelmed that they never want to do it again if they experience failure. These skills take 20+ years to develop!
Recap
-
Executive Functioning is:
- A group of cognitive skills that are not fully developed until after age 20 but include all of the “boss” functions of the brain like planning, organizing, managing time, finishing a task and putting off more preferred activities while maintaining emotional regulation
-
Signs of Executive Functioning difficulties could look like:
-
Difficulty with any daily task or routine
- Big emotional responses to what may seem to others to be less of a big deal
- Difficulty shifting perspective or plan when something is not going as expected
- Academic, Home, or Community struggles that show up in a pattern of “behaviors”
-
If you think your child may have executive functioning difficulties you can: (today’s tool)
-
Shift your perspective to understand that they are struggling with a skill set first and not being purposefully bad
- Seek help and resources to guide your child to strengthen the EF skills that they need help with
How can they reach you for more questions?
Kids Empowered 4 Life
https://kidsempowered4life.com/
Abigail currently has an online program about executive functioning skills. She also does one on one assessment and coaching/sessions, group coaching for teens online, parent coaching and is developing a series of workshops for parents.
She has created a FB support group
- Arizona + ADHD parent support.
She is a tireless advocate for problem solving WITH your child and moving away from rewards and punishments b/c those do not build skills.
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Episode 10 discussed the importance of establishing safety and consistency, through the use of schedules and routines. When responding to behaviors, we want to continue to have compassion and stay consistent with how we respond to our child’s meltdowns. I want to remind you that all behaviors are a form of communication. Kids learn new behaviors from what they see and what has been modeled.
Unfortunately, certain behaviors can be maladaptive and inappropriate so it’s on us to teach our children how to more effectively respond and communicate with others.
To address behaviors and meltdowns, you need to:
- determine the cause of the behavior
- remain calm
- teach new behavior responses
Determine Cause of Behavior
One of the best ways to determine the cause of a behavior, is to ask your child with genuine curiosity.
- Be aware of your tone and body language
- Use a tone is calm, slower, and safe. If your kids feel safe they are more likely to open up and communicate.
- If you are loud and frantic your child is going to respond more erratically.
By having control over our tone we are not only controlling the mood of the conversation and also modeling a positive behavioral response.
Even if your child has limited communication skills, it's still important to remain calm when communicating with our children.
You also want to take the opportunity to ask your children about their behaviors because it makes them feel heard and seen, it also gives them an opportunity to actually reflect on why they responded the way they did. Oftentimes your child may not know but that is ok. Your child is learning to reflect and learn about themselves.
If your child is unable to express what led to their actions then you get to use your investigation skills. Investigate your child’s regular triggers or any major changes. You know your child the best. This could include things such as:
- A major routine change
- Not getting something they wanted or expected
- An overwhelming sensory experience such as loud noises, getting scared, or falling.
- Or even things that are happening inside the body such as hunger, a headache, a stomach ache, or getting hurt.
- It is believed that Autisitic children are more prone to having enteroception difficulties, which is difficulties understanding what is going on inside of their bodies.
Often, If you do a little bit of investigating you are able to determine what led to the meltdown. Once you have determined the cause you can respond accordingly.
Remain Calm
Your initial response plan is to continue to remain as calm as possible especially if it isn't an emergency and make sure your child still feels safe and heard. You want to minimize your words if our child having a meltdown as your child is likely unreceptive to your words at the moment.
*Think about times when you are angry and how willing you are to listen to others who are telling you what you should do.
Once, your child is in a calm state and receptive to your words. You now have the opportunity to model or teach a more appropriate response.
Teach An Appropriate Behavioral Response
When teaching an alternate response the focus is to try to reduce shaming by finding a suitable redirection, explanation, and/or providing options or alternatives. It also helps to respond with intrigue, curiosity, and compassion.
Here are some examples:
- Your child is throwing a toy in the house (its possible that your child doesn’t know or understand why we don't throw balls in the house)
- Wow! You are really good at throwing. What do you think about throwing a ball outside so we dont hurt anyone inside? U know what, how about we play catch or basketball?
- Your child is hitting the dog
- Are you ok? It looks like you may be trying to pet the dog. The dog prefers soft, nice hands. Like this.
- Your child ran outside in the street overwhelmed by the fire alarm that went off.
- That fire alarm sure was loud huh? You know what I do when I hear loud alarming sounds. I grab my headphones and go into the backyard. The front yard has cars and cars are dangerous
- Your child is mad because they can’t get on tablet compassion
- I understand. I want to use the tablet as well. There are so many fun games there! Right now, it is time to eat lunch. How about this: we can do 30 minutes of the tablet after lunch or 30 minutes after the park. Which one do you want to do?
Providing options works well because you can set boundaries and parameters while at the same time giving your child a sense of autonomy and choice.
- In the last example you limited the tablet to 30 minutes but gave your child 2 options of when to play the table.
- Continue to experiment with options and see how they work for you.
Recap
The 3 strategies for reacting to meltdowns are
- Determine the cause of the behavior (remember behavior is communication)
- Ask your child
- Investigate the typical triggers
- Any major changes this week, yesterday, or prior to the behavior
- Remaining Calm
- Reduce the urge to yell or react suddenly
- Keep your tone calm and use minimal words
- Modeling appropriate behavior when your child is receptive.
- Guide them towards appropriately asking what they want or need
- Redirect to a behavior or communication that is more appropriate.
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Reflection Exercise Think about your current situation, whether you work, take care of the kids today, or take classes.
- What structures are currently in place that allow you to do what you need to do everyday.
- Social supports
- Policies, Procedures, rules, values
- Feedback from others
- Schedules, calendars
Now imagine if these things were just completely taken away and you had to just figure it out.
- Think about the emotions and feelings you would be having
- Lost
- Frustrated
- Angry
- Mad
- It's likely your body would go somewhat into fight or flight mode to just survive the day and other areas of your life may get neglected in the process.
- We all cope in our own ways but maybe you would be
- less cooperative
- grumpy
- Yell
- Avoidant
Background
Why do kids have meltdowns?
Kids often have meltdowns because they feel overwhelmed , powerless, or unseen.
- They don’t have the coping skills and structures in place to equip them to handle stressful situations when they happen. Even as adults, we are equipped with various tools and we still find ourselves losing our cool. So it's important to remain calm and have compassion.
- Think of meltdowns as a sign to evaluate your child’s environmental demands or an opportunity to teach them functional coping skills which we will discuss more in the next episode
We can reduce meltdowns by making sure our kids feel safe, empowered, and seen.
How do we do this?
We do this by being consistent and intentional with our parenting and using:
- Routines
- Visual schedules, calendars and checklist
- Visual timers or countdown.
Action Plan
The tools you will be using are routines, visual countdown, timers, checklist, schedules & calendars
Routines
- Routines help preserve mental energy so we don’t have to plan and strategize what we need to do next and how we are going to do it.
- Examples
- Morning routines
- Bedtime routines
- Meal times & meal time expectations
- At the table
- Chores
- Bedtime routine example
- Take a shower
- Brush your teeth
- Go to bed
- Read a bedtime story
- It's safe and predictable.
- The next thing for you to implement
Calendars/Schedules/Checklist
- Calendars help kids plan for events that deter from the typical routine.
- It's best to use a visual calendar for younger kids as it makes it easier to conceptualize what is expected.
- Birthday parties
- Grocery stores
- Dr appointments
- Family trips
- restaurants
- Collaborating and discussing things prior to the event it allows your child to mentally and emotionally prepare for the change.
- It may be beneficial to use social stories so your child has an idea of what to expect. Depending on your child’s needs it may be beneficial to discuss
- Socially demands (how busy it is)
- Sensory environment (noise, lighting, particular smells)
- Time of day
- Length of visit
- Calendars also provide an opportunity for your child to negotiate and have a say day or week.
- Remember: Make the calendar collaborative and give options when feasible
- Such as willingness to change
- Time of day
- Where they are going
- How long you may be there
- Date of event
- Example:
- Jonny, we are going to eat at the Diner on Friday. Mom, dad, and your cousins will be there and we will be seated inside. It may be noisy and the lighting should be dim.
- Make sure you bring your headphones in case it gets loud and we need to do our best to remain seated during dinner
Countdowns & Timers
- Countdowns and Timers help make transitions less abrupt and go smoother.
- Use your parenting instincts to determine a frequency that your child will best respond to.
- Remember kid time and adult time often feel a lot different.
- Here is an example.
- Before playing the tablet, Let them know they can play on the tablet for 30 minutes.
- Show them the timer and have them watch you set the timer.
- As the time is going give reminders at 15 minutes 5 minutes and 1 minutes.
- If they responded well, find a way to respond positively to the cooperation.
- It’s important to give more of our energy to the behaviors we want to see modeled, because our
- Thanks for following the rules, you did a great, you will get 30 minutes again after the park.
Let’s recap
- Routines
- Create routines to help preserve mental energy so we don’t have to plan and strategize what we need to do next and how we are going to do it.
- Schedules and Calendars
- Collaborate with your child to utilize a visual calendar to document upcoming activities out of the regular routines so your child has the opportunity to have a say and mentally and emotionally prepare for the event.
- Countdowns & Timer
- Use countdown and timers to make transitions less abrupt.
Episode 11 will discuss strategies on how to react to these behaviors when they do happen.
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The guest for the show is Rhonda Schnabl. Rhonda is a physical therapist who works in Lake Havasu City, AZ at Milemarkers Therapy. She has been a PT for 23 years and the human body continues to amaze her even after all this time of being a physical therapist. What is Physical Therapy?
- Physical therapists work with individuals across the lifespan who experience illness, injury or conditions that limit their ability to move or participate in their daily life. You can think of them as movement experts.
What skills do PT's address?
- Every practice is a little different depending on the clientele. In my practice, I typically see:
- Babies who have torticollis (or a preference to look to one side) and flat head syndrome.
- Kids who have a preference for toe walking
- Kids who have difficulties with coordination
- Kids who have a weak core (which affect so much)
- Kids who have limited endurance
- Kids who need bracing options to help them walk
- Kids who have trouble catching a ball (ball skills)
- Kids who are delayed in achieving gross motor milestones such as skipping, galloping and jumping.
- Kids who want to learn to ride a bike without training wheels
How is it different from OT?
- OT address skills that impact a persons major occupations (work, play, leisure, sleep, ADL's, IADL's, education).
- PT's address anything related to movement and getting around to include positioning.
- Both disciplines may find themselves doing similar activities (play) at times but addressing different overarching goals.
What things should parents be communicating with their PT?
- Pain
- Falls
- Medication Change
When should a parent seek out PT services?
- When your child seems to be "lazy"
- Your child isn't sitting by 9 months old.
- If you child is unable to keep up with their peer physically, a PT assessment is recommended. therapy.
- If your child is still toe walking after age?
Let’s recap
- Physical Therapist address:
- Aerobic conditioning (endurance)
- Play
- Core strength,
- Bilateral Coordination
- Sitting and standing balance
- Locomotion
- Object control
- Motor control/motor learning
- Posture
- Strength
- Stretching
- The skills they work on or how they work on these skills
- Ball skills
- Running, galloping, skipping, riding a bike
- Sit ups, push ups, planks, body weight activities
- Balance activities
- Assessment of bracing needs
- Stretching and strengthening programs
- How it's different from OT
- OT’s focus on Occupations (sleep, play, work, leisure, education, social participation, ADL’s & IADL’s) and implement therapeutic activities that address any of these target areas.
- PT’s focus on movement and positioning
- Things to communicate with your PT
- Falls
- Medication Changes
- Pain
Resources:
TNolaro24 Toe Walking Orthotic
www.nolaro24.com
PureHeartsTherapy Blog and Service descriptions
https://www.pureheartstherapy.com/services
Milemarkers service descriptions and Physical Development Parent Checklist
https://www.milemarkers.us/physical-therapy
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Occupational Therapists help people participate in meaningful everyday activities. We refer to these meaningful daily life activities as Occupations. Occupations are central to an individual's identity and provide meaning and value.
Occupational therapist have 8 major occupations or activities that guide the Framework of their practice:
Primary Occupations
- Sleep
- actual sleep duration and quality
- sleep hygiene
- rest
- Play
- appropriate play
- Provides enjoyment or entertainment
- leisure
- enjoyed activities done in free time
- ADL’s (self care)
- bathing
- toileting
- dressing
- feeding
- IADL’s
- chores
- meal preparation
- shopping
- Education
- Formal education
- Informal education
- social participation
- community saftey
- work
- employment
- self-employment
- volunteering
Evaluation and Activity Planning
OT’s help children on the spectrum gain autonomy and independence by evaluating a child's participation in these occupations and investigating what factors are limiting performance.
- Starts with an assessment
- Formal evaluation
- Questionnaires
- Interviews
- Medical review
- Therapist then work on the skills that are limiting your child's ability to complete the desired occupation.
- Typical Skills that OT's address are:
- Social/emotional Skills
- Negotiation skills
- Perspective taking
- Interoception (how my body feels when I'm mad or sad or happy)
- Conflict resolution
- Communication
- yes/no
- pointing
- self-expression
- Sensory processing skills
- Ability to navigate and understand the sensory world
- We all use senses to process the world but when there are sensory processing or modulation difficulties we may be taking in too much input, not enough input and it may be difficult to process and understand or even just overwhelming.
- Cognitive and executive functioning skills
- planning
- focus
- sequencing
- memory
- Physical motor skills, and coordination
- Oral-motor skills
- Hand-eye coordination
- Bilateral movements
- Environmental Adaptations
- School supports
- Home programs
- Community advocacy
- Habits, routines,
- small habit changes lead to foundational lifestyle changes.
- Social/emotional Skills
How to Maximize Therapy Outcomes
- Ask questions and be curious
- If the therapist doesn’t know, it gives them an opportunity to learn or find resources to help you answer any questions.
- Write the questions down somewhere
- What does this activity help with
- How can we work on...?
- Therapist love to learn
- Follow -thru with home programing
- Our time with your child is limited so we can maximize outcomes with home programs or applying strategies throughout the week.
- Try executing home program 1x a week
- Try to engage and be a participant during therapy sessions to include providing any relevant updates or ideas:
- Health changes
- New hobbies/habits
- Triggers
- Meltdowns
Let’s recap
- The major occupations that OT’s address for children on the spectrum include:
- Sleep
- Play
- Leisure activities
- Activities of Daily living (self-care)
- Instrumental Activities of daily living (chores)
- Education
- Social participation
- work
- OT’s help children on the spectrum gain autonomy with these occupations by evaluating and addressing:
- social/emotional Skills
- Sensory processing skills
- Cognitive and executive functioning skills
- Physical motor skills, and coordination
- Environmental demands and adaptations
- Habits and routines
- Maximize OT services by
- Asking questions
- Follow -thru with home programing
- Collaborating and updating therapist on changes or concerns
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The New Year is a great opportunity for you to reflect on your goals and priorities.
Being a parent is hard and juggling so many responsibilities can sometimes take us a little off track.
I believe at the end of the day you want to love your child the best you can and provide them the best opportunities to grow and thrive in this world.
I want to support your parenting journey by providing you 3 practical tips to allow you to better show up and support your child this new year with the introduction of the 3 "C's"
The 3 C's are
- Connection
- Consistency
- Compassion
Action Plan
- Connection
- Find more ways to connect with your child with common interest or simply engaging in your child's high interest activities.
- Especially important if your child has communication difficulties
-
This could look like
- Taking turns playing video games
- Watching a favorite movie or YouTube show together
- Engaging in sensory activities together
- Get on the playground together
- This not only helps connect but also gives you an opportunity to get a better perspective of your child’s day to day engagements and what they look like.
- Consistency
- Our children thrive when they have schedules and routines to rely on.
- Routines and Schedules can help prevent future meltdowns
- Routines help preserve our mental energy
- Create a morning and evening routine
- Morning example
- Wake up at 7am
- Shower
- Get dressed
- Eat breakfast
- Brush Teeth
- Leave for school at 8am
- Evening example
- Eat dinner
- Brush teeth
- Bath/Shower
- In bed at 8:30
- Read bed time story
- Schedules help us prepare mentally and physically for future events like
- New school year
- Novel trip to the grocery store
- Camping trip
- To prepare use
- Social scrips
- Role play scenarios
- Pictures Verbal explanations
- Compassion
- Have patience and compassion for your child
- We all learn and develop at our own pace
- Try not to compare your child to others
- Provide positive feedback
- Work as a team
- Use your child's strengths to maximize their potential
- Examples
- Competitive child
- Try timers
- Try making the activity a game
- Artistic Child
- Find opportunities for creativity
- Practice Self-Compassion
- We are all doing the best with the tools that we are given
- Most of how we learned how to parent comes from what was passed down to us from our caregivers (the good and bad)
- Seek out help when needed (It takes a village to raise a child)
- Support Groups
- Parenting courses
- Family members
- Youtube channels
- Podcasts
- Find more ways to connect with your child with common interest or simply engaging in your child's high interest activities.
Recap:
- Connection
- Explore your child’s interests and find creative ways to emerge yourself into those activities and engage with them.
- Consistency
- Create consistency by creating routines and schedules that are safe and predictable for your child to preserve mental space and reduce future meltdowns.
- Compassion
- Have compassion for your child by providing positive feedback and allowing them to grow and develop at their own pace and have compassion for yourself for all the work you do and don’t be afraid to ask for help or resources.
Resources:
Books & Parenting Courses
- Positive Parenting Solutions:
- Online parenting Course
- https://www.positiveparentingsolutions.com/
- Positive Parenting for Autism:
- ABA based parenting strategies book
- https://www.amazon.com/Positive-Parenting-Autism-Strategies-Challenges-ebook/dp/B07KMHNN2Q
- Teach Through Love:
- Youtube channel and courses by Lori Petro
- Communication, social emotional tools to connect with your child
Support group (Local Arizona)
Autism Society of Greater Phoenix
https://phxautism.org/
- Support group meetings
- Monthly Autism classes
- Advocacy training for services
- Social Activities
Facebook groups
- Autism Parents support Groups
- Autism Parents of Arizona
- Autism Dads of support Group
- Autism Dads of Arizona
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Would you like to hear how to improve your child’s behaviors, attention, learning, mental and physical health? Do you also find that your child has difficulties with sleeping regularly throughout the night to include waking up tired and irritable. In this episode we discuss sleep, how it impacts our children's development, and give you a valuable tool for you to use to increase your child's overall sleep quality.
Sleep is one of the most important things we do everyday and has the ability to impact every aspect of our lives. Sleep is especially important for the overall physical and mental development of our children.
Sleep affects
- Attention and alertness
- Learning and memory
- Mood
- Resiliency
- Ability to learn and acquire language
- Overall Growth and motor skills
If your child is not getting enough sleep I want you to know that you are not alone. Various reports estimate that up to 50% or kids don't get enough sleep.
On top of that, studies have shown a positive correlation indicating that children on the spectrum who have sensory modulation disorders may also have innate difficulties with sleep.
This is typically related
- Overresponsitivity
- High arousal
- Higher cortisol (stress) levels throughout the day
So how much sleep is enough sleep? This is going to vary but it's typically more than the recommended 8 hours we need as adults.
According to the CDC
- Ages 6-12
- Need 9 hours of sleep
- Middle school kids
- 6-10 hours of sleep
Generally the younger you are the more sleep you need.
We know sleep is important so what do we do now?
Action plan:
If your child is having regular sleep disturbances. The first thing I want you to do is have a medical evaluation to determine if your child has any sleep disorders or underlying conditions that are affecting his or her sleep quality.
Typically a physician may look for:
- Pain
- Anxiety
- Sleep apnea
Typical Prescriptions include:
- Melatonin or a sedative
- Medication may not always be necessary.
- Ultimately you and your doctor will work together to determine if there is a diagnosis and what route you want to take.
After you have ruled out any underlying conditions. The next step will be to address sleep hygiene:
What is sleep hygiene?
- Sleep hygiene is the activities we do during the day and before bed to promote healthy sleep patterns.
Sleep hygiene habits:
- Consistent sleep patterns
- Going to sleep and waking up at approximately the same time each day
- Including weekends
- Keeping Bed area or bedroom dedicated for sleep
- Keep a cool house temperature
- Try Essential oilst
- Lavender
- Peppermint
- Cedarwood
- Diffuser/humidifier
- White noise machine or aps while sleeping
- Meditation apps
- Moshi
- Calm
- Headspace
- Sleep apps
- SnoreClock
- Track sleep and noise
- Number of awakening
- Sleep efficiency
- SnoreClock
- Meditation apps
- Keep a consistent bedtime routine
- Shower
- Pajamas
- Brush teeth
- Bedtime story
- Lights off
- Nutrition (Eliminating stimulating food in the evening)
- Spicy foods
- Caffeine
- Sugary foods (candy, soda, juice, soft drinks.
- High fat foods
- Cured meats
- Alternatives
- Popcorn
- Nuts
- Dried tart cherries
- Complex carbs
- Reducing screen time in the evening
- Studies show screen time affect or circadian rhythm by making us more alert
- Blue light affects sleep
- Mobile device are les preferable
- They are often placed right in front of the face making it worse
- Can be taken to bedroom
- More light = less melatonin release
- Emits alerts
- Try placing parental controls on devices
keep a sleep journal
Try using a written journal or Sleep better app to track
- Bed times
- Awake times
- Noise
- Movements
- Light
-
Activity during the day
- Walk
- Park
- Types of food (spicy, strong foods)
- Stressors (meltdowns, routines changes, school difficulties)
- Routines before bed
- Weighted blanket
- Massage
- Stuffed animals
- Oils
- music
- Tools that help your child calm and soothe at night
Recap
- If there are major sleep disturbance, please have your child evaluated by a physician to rule out underlying sleep conditions such as
- Anxiety, sleep apnea, pain
- Promote healthy sleep hygiene routines
- Consistent bedtimes, bedtime routines, and bedroom environment
- To remind the mind and body it's time to sleep
- Avoiding sugary, high fat, or caffeinated food and drinks
- Reducing screen time in the evening
- Keeping a sleep journal
- Use a mobile app or written journal
- Bed times
- Physical activity
- Stressors
- Stimulants around bedtime
- Routine changes
- Tools that help you child sleep
- Use a mobile app or written journal
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Have you been wondering what gifts your child will love this holiday season that is also going to promote their development?
I have placed my top gift recommendations into 4 categories:
- Sensory tools and toys
- STEM projects
- tablet/cell phone applications
- Fun activities to do at home.
Recommendations
Sensory Tools and Toys
- Weighted Blanket (should be about 10% of child’s body weight)
- Provides deep pressure stimulation
- helps with sleep, calming, and self-regulation.
- https://www.diynetwork.com/how-to/make-and-decorate/crafts/how-to-make-a-weighted-blanket
- Water Beads
- https://www.amazon.com/Kinetic-Sand-Sandtastic-Playset-Tools/dp/B07M5TPM8Q/ref=sr_1_5?crid=2ZWOYFSRYRHUP&keywords=kinetic%2Bsand&qid=1637875314&qsid=146-1346417-0430338&s=toys-and-games&sprefix=kinet%2Ctoys-and-games%2C237&sr=1-5&sres=B084BNW2PW%2CB07M5TPM8Q%2CB07GTB3H8T%2CB08S75BPRY%2CB08S7LDZ84%2CB08FCR35QB%2CB084BTPVFQ%2CB07PGTLGK1%2CB08T6DVTZ6%2CB084BNRGCZ%2CB08LZN7LFR%2CB084PTWQ91%2CB0886RL2F7%2CB075Y9G5JV%2CB081VVNWKN%2CB08S71687H%2CB08LZJGHDV%2CB08S75JPFB%2CB01K16G83A%2CB07R9N35FR&srpt=ART_CRAFT_KIT&th=1
- Kinetic sandhttps://www.amazon.com/Kinetic-Sand-Sandtastic-Playset-Tools/dp/B07M5TPM8Q/ref=sr_1_10?keywords=kinetic+sand&qid=1638604650&sr=8-10
- Fidget/sensory toys
- https://autismcommunitystore.com/collections/sensory-toys
- Pop its
- Fidget spinners
STEM (science, technology, engineering, and math) projects
STEM toys make for a great gift idea because they promote so many functional life and developmental skills.
STEM TOYS (learning/creativity)
- Amazon
- Coding starter kit
- Woodworking kits
- Science projects
- https://stemgeek.com/diy-stem-activities-kids/
- Rubber band fan powered car
- Catapult
- Make slime or playdough
- Raft
- Paper paper airplanes.
Tablet/Cell phone applications
- AAC/language/communication apps
- Proloquo2go (iphone)
- For nonverbal children
- https://apps.apple.com/us/app/proloquo2go-symbol-based-aac/id308368164
- OTSIMO
- https://apps.apple.com/us/app/otsimo-special-education-aba/id1084723774
- https://play.google.com/store/apps/details?id=com.otsimo.app
- MITA (Mental Imagery Therapy for Autism)
- helps supports language development
- Available in various language
- Researched
- Proloquo2go (iphone)
- Routines & Schedules
- I create- social stories
- social learning tool that supports the safe and meaningful exchange of information
- https://apps.apple.com/us/app/i-create-social-skills/id513666306
- add images, record voice and organize a schedule
- Cause and effect learning
- I create- social stories
-
First then visual Schedule
- https://apps.apple.com/us/app/first-then-visual-schedule/id355527801
- https://play.google.com/store/apps/details?id=ru.ausoft.firstthen&hl=en_US
-
Sensory light box
-
Cause and effect sensory light box (android)
- https://play.google.com/store/apps/details?id=air.com.cognable.lightbox
https://apps.apple.com/us/app/sensory-light-box/id533976433
Experience/memory together your kids want to bond with you
- Cooking /baking
- Decorative/holiday Cookies
- Cake
- Play around with colors and dye
- House themes
- Lights
- Make shirts
- Holiday Decorating
- Get Outdoors
- Make snowman if its snowing
- Play catch
- Run around and play tag
- Go to the playground
Recap:
- Sensory based
- Water beads
- Weighted blanket
- Fidget toys
- STEM Activities
- Crafts
- Science projects
- Woodworking kits
- Slime
- Coding
- Cellphone/Tablet applications
- Proloque2go
- MITA
- I create
- First then schedule
- Sensory light box
- Experiences/Memories
- Cooking/baking
- Decorating
- Outdoors
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In this episode we discuss strategies to optimize your child’s ability to learn and thrive in your home.
Illustration/Visualization Exercise:
Take a minute to reflect back to a very important work or home project that you had to complete.
I want you to think about all the supports that helped you complete this project
Some examples could include:
- Getting adequate sleep
- Regularly exercising
- Having support from friends family or boss
- Having help
- Giving the ability to be creative
Next I want you to do the opposite. What things that made this project challenging
- Decreased sleep
- Lack of support
- Stress (bills)
- Relationship difficulties
- Health problems
This activity illustrates how many competing needs you have that significantly impact your motivation and ability to learn or complete a project.
Maslow's Hierarchy of needs.
The hierarchy of needs was developed by Abraham Maslow, a Russian-American psychologist, to explain human motivation.
The hierarchy of needs is visually presented with a pyramid of 5 different tiers of needs.
The lowest tier but most foundational tier is physiological needs then working up the pyramid is safety, love & belongingness, esteem, and self-actualization.
3 broader categories of needs:
- Basic needs which include physiological needs like water, shelter, food and safety.
- Psychological needs which include love, esteem, and belongingness
- Self-actualization which include our desire to thrive and be creative
Facilitate these needs to enhance your child’s learning environment at home.
Recap:
Children learn best when we feel like the task is meaningful and fun. This needs assessment allows us to consider how we can make changes to the environment while learning.
The first step is to consider your child’s basic needs to include sleep, food, safety and sensory needs being met prior to starting the activity.
The next step is to address psychological needs by analyzing social interactions and engagements. Consider if there is positive constructive feedback and that the activity is not too easy or hard.
Lastly, you can promote your child's self actualization needs by providing clear meaning for the activity, honing in on your child's interest, and allowing opportunities for creativity.
Resources/References/Links:
Maslow's Hierachy of Needs:
https://www.simplypsychology.org/maslow.html
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Do you find it difficult to build in activities at home to promote your child’s learning and development? Well there’s a task that you are likely already doing that can promoted cognitive development while bonding with your child. In this episode we reveal what what that activity is, why it is important, and how you can make it part of your regular home routine with your child.
Recap: Let's Get Cooking!
- Make it fun!
- Start with having them observe, ask questions, and help with tasks such as grabbing utensils or making the table.
- prepare simple meals that take less than 15 mins like sandwiches, microwaving food, smoothies, or making lemonade.
- Find creative ways to challenge your child's creativity and cognitive abilities.
Resources/References/Links:
Visual Recipes:
https://able2learn.com/categories/visual-recipes
Cookware set for children
https://rb.gy/vsumvm
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With managing work, kids, and a full household how do can you find time to take care of yourself?
Caregivers and parents, you have one of the toughest jobs on a planet. You are responsible for raising a tiny human to thrive in this unpredictable world. How do you prioritize self care, prevent caregiver burnout and find balance to support your family.
This episode discusses a simple exercise for you to pause and evaluate how you are prioritizing various areas of your life and to make changes to prioritize self care for yourself so your can be your best while taking care of your family
Recap: To set an realistic self-care routine
- Identify an area of your life that you want to put more focus and energy into
- Explore 1 thing you can begin doing regularly throughout the week to move towards that direction
- Check in weekly to see what worked and didn’t work and adjust as needed
- Add it to your calendar, set a reminder, or write it down somewhere where you can see it.
Remember, we can't pour from an empty cup.
Resources/References/Links:
Self Care Wheel:
https://www.acesdv.org/wp-content/uploads/2014/06/Self-Care-Wheel.pdf
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Welcome to the Autism Family Toolkit!
Why did I created this podcast?
My name is Brian Keene and I’m your host. I’m a licensed pediatric occupational therapist, and the founder of Pure Hearts Therapy, a growing therapy practice that provides in-person and virtual therapies based in Phoenix, Arizona.
As I worked with many of my families, I recognized that the day to day tasks that come with parenting, working and managing family routines, can be overwhelming. And found that it was often unrealistic to expect families to follow through with complex home programs. I discovered instead that small changes in everyday routines could make big impacts at home.
I created a podcast for you - the busy parents, caregivers, and family members who are looking for additional resources and tools that will support your child’s (children’s) development. I understand that you have limited time, this is why these podcast episodes are short, digestible and easy to implement.
I feel deeply fortunate that I get to serve others by doing work that aligns with my values.
I started this podcast because I wanted to do more for my community and the families I serve.
I’m passionate about health, wellness and living a life that is holistically fulfilling. I also believe that it’s important to support and advocate for others, particularly those who are underserved and marginalized.
With all that being said, I want to make it clear that my intention is not to fix your child as I don’t believe any child needs to be fixed. Instead, I want to provide your family with tools and resources to maximize your child’s potential as they navigate a world that isn’t particularly designed to meet their needs. These tools will come from my personal and professional experience, along with collaboration from parents and a variety of professionals. I plan to cover a wide range of topics from mental health, self care, and community safety.
I invite you to join me on my journey, as I continue to learn and grow as a therapist, and pass my knowledge along to you.
I’ll be delivering around 10 minutes of valuable content biweekly on Wednesdays. Along the way, I also want to hear from you. I want to hear what worked, what was difficult, and all the things related to parenting that keep you up at night. You are going to want to subscribe to hear more!
So reach out and let's build a community.
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Announcing a new resource for parents with kids on the Autism Spectrum. Subscribe now to the Autism Family Toolkit. SUBSCRIBE NOW! Apple Podcasts Spotify Google Podcast Stitcher https://www.pureheartstherapy.com/autismfamilytoolkit