A Tour of Holland: Recent Episodes
April Hammon
This podcast serves as a platform for parents of children with special needs in order to gain insight, educate, and build community.
In this episode Oksana shares her experience raising her 5 year old son Arthur, who has a diagnosis of autism and GDD (Global Developmental Delays) Connect with Oksana on IG @xeniathestranger
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode Allison shares her experience raising her 6 year old son Jackson who has a diagnosis of Diastrophic dysplasia, a rare form of dwarfism.
Connect with Allison on: Instagram @allie0126 and @jackharveyg Email: harv79@gmail.com
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode Gina Evans D’Angelo shares her experience raising her daughter Jackie who has a diagnosis of Achondroplasia, a form of dwarfism. Gina lives with her two children in Farmington, Connecticut.
Resources mentioned in this episode include:
- Parents of Little People support group
- Little People of America
Connect with Gina on Facebook. The book she wrote for is also available online:
Special Delivery From Pregnancy to Toddlerhood https://www.amazon.com/dp/B09JV97Z97/ref=cm_sw_r_cp_api_glt_i_PATN17BGJDMZJ2S8PM9Z
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode I have the pleasure of interviewing Jill Pratt, mother of Jiselle and co-founder of the Jisellle Lauren Foundation. Jill is a mother of 3 young children and her oldest, Jiselle, has a diagnosis of Rett's syndrome a rare neurological condition. Resources mentioned in this episode include: Katie Beckett program www.rettsyndrome.org www.jisellelaurenfoundation.org Rett University
Connect with Jill on IG: @pratt_partyof5
Follow the Jiselle Lauren Foundation on IG: @thejisellelaurenfoundation
Watch the interview here: https://youtu.be/gVwYeNKVTG4
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode Effie Parks shares her experience raising her son Ford who has CTNNB1, a rare neurological syndrome. Effie lives in Seattle, Washington with her husband and two children. She is the host of the award winning podcast: Once Upon A Gene. Resources mentioned in this episode include: Every Life Foundation Podcasts: The Two Disabled Dudes Global Genes Once Upon A Gene The Courageous Parents network The Disordered Channel Connect with Effie here: https://effieparks.com/
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode, Jeanine shares her experience raising her daughter Ami ("Aim-mee") who has a diagnosis of arthrogryposis as well as hearing impairment due to bacterial meningitis at the age of 6 months old. Ami has 3 siblings and lives in Calgary Canada.
Get in touch with Jeannine or follow her accounts at Facebook: Jeannine Lynn Arlene Blair Instagram: @jeanninelynnarleneblair TikTok: @jeannineblair2 Resources mentioned in this episode include: Children's Hospital of Calgary Duet Bike
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode, Sasha Albright, shares her experience raising her 3-1/2 year old daughter Kai'Lani or "KK" who was diagnosed with achondroplasia dwarfism at the age of 3 months old. Sasha is a single mother of 3 daughters, author, poet, and advocate for inclusion. Her writing was featured in the book Special Delivery: from Pregnancy to Toddlerhood by Angela Singletary as well as in Different Abilities, a collection of letters from those who love some one with special needs.
Sasha has several platforms on social media including her personal FB page, KK's FB page: A Pint Sized Princess in a Big World, and IG @sashalee1213.
Listeners may also email her at eviegraciemommie@gmail.com Resources mentioned in the podcast include: Facebook group : Smile Mail Little People of America
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode, Carlos Labrada shares his experience raising his children, two of whom have special needs. His youngest child Leo, has a diagnosis of Pelizaeus-Merzbacher Disease and his middle child, Carlitos, has a diagnosis of Fibrous Dysplasia. Carlos lives with his wife and three children in San Diego, CA and serves on the board of the PMD Foundation. Listeners can connect with Carlos via email: clabrada@pmdfoundation.com
Resources mentioned in this episode include:
HOPE Foundation - San Diego, CA https://www.sdcoe.net/student-services/early-education/Pages/hope-infant-family-support.aspx PMD Foundation - https://www.pmdfoundation.org/ Loving Leo Facebook page Lucille Packard Children's hospital Pelizaeus-Merzbacher Disease (PMD) Its Rare but Everywhere Facebook group I Run 4 Michael Facebook group FD Warriors Inc. Facebook group
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this informative episode, Gary Martinez Jr. shares his experience raising his daughter, Monica, who has a diagnosis of autism & sensory processing disorder. Gary is a resourceful and imaginative father who is also an author and creator of the Autism STAR program. Connect with Gary online: IG @gary_martinez_jr FB: Gary Martinez Jr. Tik Tok: @garymartinezjr Resources from this episode: Gary's book: Living Life Through Their Eyes: Our Journey on the Autism Spectrum https://www.amazon.com/Living-Through-Journey-Autism-Spectrum/dp/1798079585/ref=sr_1_fkmr0_1?dchild=1&keywords=living+life+through+their+eyes+gary+martinez+jr&qid=1632102138&sr=8-1-fkmr0 The Autism STAR program https://www.autismstar.net/ The Autism Book by Dr. Robert Sears The Autism Parenting Summit https://autismparentingsummit.com/ Understanding Your Child's Sensory Signals: A Practical Daily Use Handbook for Parents and Teachers by Angie Voss OTR
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode, Heather Griswold-Reed shares her journey as Timmy’s mother. Timmy is a 15 year old young man with a diagnosis of autism and intellectual disability. Connect with Heather on Facebook or on Instagram @slofamilylife
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode, Zen Jen and I have a conversation about topics including her passion project, FLY hones / DragonFLY landing to Freedom Sports to special needs parenting. Jenn is the mother of two adult children who both have a diagnosis of autism. Listeners can connect with Jenn on Instagram @yes_riverdance and she has her own podcast called UnFit Mom which can be found on all major podcast platforms
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode, Sam Hoffman, shares his experience raising his child Willy who has a diagnosis of autism- Sam is a special needs educator living in New York. To connect with Sam you can find him on Instagram @samahoff
Resources: Autism Clinic at Mount Sinai hospital
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode Sarah Sullivan shares about raising her two adopted sons Keagan and Xander who both have special needs. Sarah is one of the founders of a non-profit called Parents for Joy which created the first accessible playground in the county in which she lives with her family. Parents for Joy www.parentsforjoy.org Connect with Sarah on Facebook in either the Parents for Joy group or Special Needs Support group.
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode Dan shares his parenting journey with his son, Jack, who has a diagnosis of (Chromosome) 18p deletion. Resources mentioned in the episode: Chromosome 18 registry and research society https://www.chromosome18.org/ Major League Wiffleball https://www.mlwmerch.com/pages/about-mlw Kulture City https://www.kulturecity.org/ Marcus Autism Center https://www.marcus.org Children's Healthcare of Atlanta https://www.choa.org The 18:80 Challenge (fundraiser) https://chromosome18.salsalabs.org/18for80/index.html?fbclid=IwAR3YQ-vQOzIv_Dooq8r1ztInNijBTs5vgPpEBWygevZal-dc7ey1Z8ZYs6E
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode Sharon Thomas shares her parenting journey raising her son, Nicholas, who is on the Autism Spectrum. Listeners can connect with Sharon by emailing her starlytedst@gmail.com.
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode, Simone Marques shares her experience as Lolo's mother. Lolo is an 8 year old boy who has a diagnosis of Pelizaeus-Merzbacher disease, which is a rare leuko-dystropy. Listeners can connect with Simone on Facebook. Resources discussed in the episode: PMD Family Support Facebook page Project Surf Camp https://www.projectsurfcamp.com/
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode, Traceyann Hill shares her experience raising her son Avery in Brooklyn, NY. Avery has a diagnosis of Autism as well as Pervasive Development Disorder, not otherwise specified (PDD, n.o.s.) Listeners can connect with Traceyann on her You Tube channel: Traceyann and Avery‘s Journey
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode, Carolyn shares her experience raising her son William who has a diagnosis of Pelizaeus-Merzbacher Disease.
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode, Patti shares her experience as the mother of three boys with the diagnosis of Pelizaeus-Merzbacher Disease (PMD). Her family observed this genetic condition as far back as 8 generations and was involved in the initial research for this diagnosis. She is the founder of an incredible support network, PMD Family Support, and has been helping other families navigate their journey for over 30 years.
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Cornelia shares her experience raising her son Oliver who has a rare leukodystrophy, Pelizaeus-Merzbacher Disease
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode, Lexi Rohner, shares her experience raising triplets, two of whom have special needs. Connect with Lexi at www.grparaequestrian.org
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
In this episode, Kim Holmes, shares her experience raising her daughter Violet who has several diagnoses including alternating hemiplegia of childhood.
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Chelsea shares her experience with raising her two sons who have autism diagnoses.
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Melissa shares insights and her experiences in raising her daughter, Hadley, who was diagnosed with a mutation of the Syngap1 gene.
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Marianne shares about parenting her son, Valentin, who has a diagnosis of Pelizaeus-Merzbacher Disease (PMD), a rare leukodystrophy.
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Alicia shares her experience raising her son, Liam, who has a diagnosis of Pelizaeus-Merzbacher Disease (PMD) a rare leukodystrophy.
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app