NOTES ON NEUROMUSCULAR: Recent Episodes
Anna Mayhew
Anna Mayhew in discussion with Professor Volker Straub
Harold Macmillan Professor of Medicine & Director, The John Walton Muscular Dystrophy Research Centre. Deputy Dean, Translational and Clinical Research Institute, Faculty of Medical Sciences, Newcastle University and Newcastle Hospitals NHS Foundation Trust, International Centre for Life, Central Parkway, Newcastle upon Tyne, NE1 3BZ, UK
They discuss how LGMD presents, how it progresses, important aspects around care and the future and hope for treatments.
Anna Mayhew in conversation with Lindsey Pallant, Clinical Specialist Physiotherapist
Regional Paediatric Neuromuscular Team, Leeds Teaching Hospitals NHS Trust.
They talk about the reasons for and what is important in rehabilitation after a long bone fracture.
Anna Mayhew in conversation with Hayley Ramjattan who is a Clinical Specialist Neuromuscular Physiotherapist at Oxford University Hospitals NHS Foundation Trust.They discuss briefly how CMS presents, the role of specialist CMS clinics in the UK. The role of community teams and resources available for families and for therapists in assessing managing CMS.
For families: Myaware
For therapists: Opentact
Anna Mayhew chats to Annette Costello about living with LGMD 2B. Annette lives in Dublin and is part of a natural history study for this type of LGMD - Dysferlinopathy. She discusses the benefits of being part of such a study as well as what is important about managing her condition.
Anna Mayhew is a Consultant Physiotherapist at the John Walton Muscular Dystrophy Research Centre in Newcastle.
Anna Mayhew is in Conversation with Emily Reuben, co-founder and CEO of Duchenne UK and mum to her son Eli who has duchenne muscular dystrophy and Jarod Wong a paediatric endocrinologist with an interest in bone health from the University of Glasgow.
The app mentioned in the podcast can be found on app stores under Duchenne UK "in case of emergency app"
For more information go to: launch in case of emergency /
Gita Ramdharry in conversation with Anna Mayhew.
Gita is a Consultant Allied Health Professional in Neuromuscular Diseases at Queens Square, London. She is a physiotherapist. She is also an honorary Associate Professor at UCL Institute of Neurology.
In Part 2 Gita talks in more detail about the best assessments to use in this population as well as management ideas and techniques including occupational therapy, orthotics and fatigue management.
Gita Ramdharry in conversation with Anna Mayhew.
Gita is a Consultant Allied Health Professional in Neuromuscular Diseases at Queens Square, London. She is a physiotherapist. She is also an honorary Associate Professor at UCL Institute of Neurology.
In Part 1 Gita explains what are Inherited Neuropathies, how they present and what is the role of therapy in the management of this group of disorders.
Anna Mayhew - Consultant Research Physiotherapist from John Walton Muscular Dystrophy Research Centre in Newcastle task to Marina Di Marco, Principal Neuromuscular Physiotherapist from Glasgow about Jaw Tightness in Neuromuscular Disorders (Trismus) and how to manage it.
The associated leaflet for it can be downloaded from Scottish Muscle Network