MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.
Modern Aesthetics
Raising Rare
Power Over Parkinson's
David Smelser and Austin Kercheville
Shiv Chopra & Damian Marucci
Charles River
John Simboli
Multiple Sclerosis Discovery Forum
William Holdsworth
None
Dr. Courtney Craig
American Lung Association & HCPLive
None
Oxford University
Cynthia St. Hilaire, PhD & Milka Koupenova, PhD
RARECast
AIRS-LA The Audio Internet Reading Service of Los Angeles
CheckRare
Figure 1
Cindy Locke
Physio Network
Sandy Hilton & Cory Blickenstaff
Oxford University Press
Oxford University
Blooducation
Bruno Fernandes and Shawn Maloney
American Association for Clinical Chemistry
Erik Meira & JW Matheson
Blood Advances Talks
Kevin Foley
Urology Journal Club Podcast
EADV/JEADV
TLC Sessions
Adam J. Brown, MD
None
Dr. Alain Bouchard
None
radianmobility
Matt Pillar
Drug Discovery World (DDW)
Pediatric Infectious Diseases Society
Dr Maria Cabrera
Aging (Aging-US) Podcast
Jon Strum
Kyle Bryant, Sean Baumstark
Dr. Dan
Osteopathy Australia
AJR
daviscps
Sheryl Lowenhar
Academy of Neurologic Physical Therapy
Journal of Inherited Metabolic Disease
Auscast Network
The EBMT Trainee Committee
Ben Cormack
antibodybasedpharmaceuticalsresourcelibrary
Habib Olapade
Rob Beaven & Dave Elliott
Krembil Brain Institute
Johns Hopkins Medicine
The Dermatology Digest
BioAgilytix Labs
Rare Disease Report
The Bio Report
Pri-Med
Eurofins Viracor
British Society for Haematology
Foundation Fighting Blindness
Lonza
MS News Today
None
USMLE-Rx
Julia and Jule
Newson Health Menopause Society
Center for Genomic Interpretation
Springer Nature
Creative Educational Concepts
Cure Sanfilippo Foundation
None
Dr. Kara Fitzgerald
MedStar Health
Grey Genetics
Jeremy Moeller
Zachary Lowery
Effie Parks
DrugCardsDaily.com
Council for Nail Disorders
Dr. Matt Anderson
The Lancet Neurology
John Carlin
Neoteryx
Editors: Peter B. Kelsey, MD, Brenna C. Bounds, MD, G.S. Raju, MD, Dan F. Collier
Rishi Singh, MD
Michael J. Fox Foundation
The Well Lounge
The PhysioZest
ApoE4.Info, Inc.
Syed Saqib Ali