Linked Together: Recent Episodes
National Genetics Education and Family Support Center
Delving into honest and transparent discussions, Molly and the season’s co-hosts dig into the issues that affect family leaders, including mental health, family dynamics, and the family leadership journey, and examines them from multiple angles to better understand what it means to be family leaders in driving systems change. Expect deep dives into everything from why “I could never do what you do” connotates choice to the complicated social, cultural, and family dynamics of parenting a child with special healthcare needs to the joy and love found in the unexpected journey. For resources and more information go to https://nationalfamilycenter.org This work is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of the work of the National Genetics Education and Family Support Program. The contents are those of the participants and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS, or the U.S. Government.
In this episode, our host Molly Martzke and guests Bailey Perez and Vicki Hunting delve into the critical importance of family engagement in revolutionizing the genetic healthcare delivery system. We discuss how active family involvement can lead to more patient-centered, equitable, and effective healthcare practices. Tune in to hear expert insights and real-life examples of how supporting family engagement can drive significant and lasting system change in genetic healthcare.
In this episode, host Marianna Raia and guests Natasha Bonhomme and Molly Martzke explore the transformative impact of authentic partnerships in the genetic healthcare delivery system. By fostering genuine collaboration between families, healthcare providers, and communities, we can create more inclusive, effective, and patient-centered care. Join us to hear expert insights and success stories on how these partnerships are driving meaningful system change.
In this episode, host Vicki Hunting and guests Bailey Perez and Natasha Bonhomme explore the pivotal role of data and the importance of asking the right questions to drive system change. By leveraging accurate data and insightful inquiry, we can uncover root causes and design effective, sustainable solutions. Join us as we discuss how data-driven approaches are transforming systems and creating impactful change.
In this episode, host Bailey Perez and guests Molly Martzke and Marianna Raia highlight the crucial role of lived experiences and storytelling in driving system change. By sharing personal narratives, we can illuminate systemic issues and inspire actionable solutions. Join us as we delve into powerful stories that demonstrate how lived experiences can catalyze meaningful, lasting transformation.
In this episode, host Natasha Bonhomme and guests Vicki Hunting and Marianna Raia discuss the power of convening and bringing diverse groups together to drive system change. By fostering collaboration and dialogue among stakeholders, we can create innovative solutions and build more resilient, inclusive systems. Join us as we explore inspiring examples of how collective action leads to meaningful, lasting change.
Sharing stories is often one of the first things that families are asked to do. In today's episode we discuss how it makes you feel to share, very personal and sometimes very difficult stories. How when you are re-telling your story or hearing somebody's story, you're right back in that moment. How there's an emotional cost to that, but also there's power in that, too.
I'm so excited to have you along today for an important discussion. We will be discussing the value that mentors and leadership training played into what we are doing today. How this piece is crucial in the development of family leaders as they engage in systems change.
We are so excited to have you joining us today as we talk about what that perfect system looks like for us. What we wish would have happened, what worked for us, and where we see opportunities to make the family journey better.
We are glad that you can join us as we discuss why we do this work. Why we continue to support other families as we work toward system change. Why each of us shows up each day even though the work is hard and hearing other struggles brings up some of our own.
Join Molly Martzke along with this season's co-hosts Sarita Edwards, Linda Starnes, and Marisol Rose as they introduce themselves. Learn about them and what has brought them to this work, as they explain what it means to them be a family leader in systems change.
Join us as this season's co-hosts talk about where we find support. We will explore how you build community and make those connections that are vital in the successes of each of our journeys. Support comes in all forms and places, whether it's medical, parent-to-parent, families, friends. But today, we're really going to talk about the importance of parent to parent connections.
Join us as this season's co-hosts delve into expectations today. These expectations can be influenced from the perspective of the medical community, the educational community, and from society at large. We will explore how the expectations of your child with special healthcare needs has affected our personal expectations and the way we've viewed our child.