Re-Define with Gabriella Amaya: Recent Episodes
Gabriella Amaya
The Re-Define podcast holds space for conversations that need to be heard but more importantly that need to come from the disability community themselves. Our mission is to advocate for people with disabilities to tell their own stories and re-define what disability has meant in their own lives.
Welcome back! This month, Gabriella sits with the kind and brilliant, Casey Doherty. Casey is a disability studies scholar who lives with several energy limiting disabilities, including myalgic encephalomyelitis. Casey shares her insight and experience living in her early twenties to advocate for accessible education, employment and more.
In this podcast episode, Gabriella is joined by Tori Leak, all the way from the UK! Tori and Gabriella candidly discuss the tough realities of living with rare conditions, reflecting on childhood struggles and the valuable lessons learned at any stage in life. Tune in to explore the journey of understanding and acceptance in the realm of disability.
Hey everyone! In this months episode we have the pleasure of hosting Steven Greene. Steven generously opens up about his life journey with Parkinson's disease. Steven illustrates how his experience mirrors the ebb and flow of a tango, with some days where he leads and others where Parkinson's takes the lead. Join us as we delve into moments of laughter, moments of tears, and continue to dance on together.
Gabriella and Shaneeza delve deeper into destigmatizing mental health conversations, emphasizing community outreach, and nurturing personal growth through vulnerability
Jake April is a NYC journalist and advocate for people with disabilities, who lives with cerebral palsy. Gabriella and Jake discuss the importance of keeping it real with yourself, debunking disability stereotypes and widening your perspective. Jake uses his poetic writing to spark dialogue for others with CP to remember to take pause in their journeys, welcome messiness and celebrate themselves.
To learn more about Jake April:
Instagram: adapting2yourabilities
To access Jake's article: The Hand Dealt
To keep up with Jake: Twitter
Giuseppe Floccari is an avid advocate and activist for people with disabilities, who lives with a rare disability TAR Syndrome, otherwise known as thrombocytopenia absent radius syndrome. Born and raised in Brooklyn New York, Giuseppe is a child of Italian immigrants, with insight on the intersectionality of disability and culture, advocacy and the importance of pushing yourself outside your comfort zone as a disabled person. Giuseppe is passionate about advancing himself forward, and is actively involved on the the board for Disabled in Action, Advisory Committee for Transit Accessibility board for the MTA, ADAPT, among more. Giuseppe is on a mission to spread a message of tolerance and equality for people who are different.
His latest article published in the Helen Journal can be viewed here
More about Disabled In Action
More about ADAPT
Artist, writer and TEDx speaker Elizabeth Jameson shares her thoughts on the Re-Define Podcast. Tune in to hear what she has to say!
About Elizabeth: Elizabeth Jameson is an artist and writer who explores what it means to live in an imperfect body as part of the universal human experience. She writes personal essays and speaks across the country to share her experiences living with Multiple Sclerosis. Her work as been featured in the New York Times, Medical Journal, Washington Post and MIT's Leonardo Journal...among others.
To learn more about Elizabeth you can visit her instagram "_elizabethjameson_" visit her website at http://www.jamesonfineart.com/about or her youtube channel "MS Confidential"
Welcome back! Gabriella had the pleasure of speaking with the wonderful role model and disability advocate, Bri Scalesse. Gabriella and Bri talk about the messy journey of self-love, celebrating disabled bodies, and knowing what makes a true good inter-abled partner.
Analisse Guerra is a charming, funny and bright young girl who lives with a limb difference. She joins this episode to talk more with Gabriella about her lessons learned as a purple belt in jiu jitsu...to combating bullying and learning how to appreciate and become the best version of herself.
--- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
This month we welcome Jessica Huang to the Redefine podcast! Listen in to hear how just at the age of 19, a young woman such as herself can pioneer tangible change for accessibility in the classroom and model how to be a better ally to one another within the disability community.
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Vernel Black joins us to talk more about her experience battling stereotypes and navigating spaces living with Autism Spectrum Disorder.
Gabriella invites her sister Viviana Amaya to talk about what it was like growing up with a sister who lived with a disability. They share their insights and lessons on the importance of supportive family dynamics and making space to have uncomfortable conversations.
Gabriella invites her first guest to the Re-Define podcast. Her mother, Olivia Amaya talks from her perspective on being the caregiver, advocate and friend throughout Gabriella's life.
Gabriella shares her experience handling "the unexpected" health issues that can arise when living with complex medical needs. She highlights the importance of maintaining momentum when dealing with grief, loss and fear. Remembering that the unexpected doesn't have to be seen a setbacks but instead moments we can navigate through and rise from.
Gabriella shares her personal experiences to talk about how important it is to be at the frontline of your care and to not be afraid to ask your doctors the tough questions. Listen in on how to advocate for yourself as a patient!
Tune in to listen to Gabriella answer some of the questions people have asked her about how to embrace your scars. Gabriella shares her insight on her "how to" when learning to embrace both old and new scars.