SMA It's Not Too Late

I have two children with SMA Type one. Both received Spinraza as infants but one can walk while the other requires 24 hour care for all her needs. This podcast is more than documenting my journey, but it's giving you a how to guide on how to help your SMA child reach their full movement potential. When my first child was diagnosed with SMA she didn't move at all. All I wanted was to see her move. While she requires lots of care, she can move. she can move so well that many professionals think my child is SMA type 2, despite how severely she was affected at birth. My second child with SMA, while very much has SMA challenges, is walking, eating, and holding her own when it comes to being a toddler. Since being diagnosed with child, everything I study and learn is how to help my children move better and with more efficiency. I am proactive in advocating for their care, while doctors have told me they take a reactive approach instead of a proactive approach when it comes to addressing the various challenges that arise with each SMA child. That't not good enough for me, and I don't think that's good enough for you. I want to take the wonder out of care and give you tools to actively care for your child's needs; needs that you know you have and needs that you don't know you have. Listen and Subscribe so you can learn how to give proactive care instead of reactive care for you SMA child. Key words:Spinal Muscular AtrophySMASMA PodcastSMA Type 1SMA Type 2SMA Type 3SMA Type 4Muscular Dystrophy