Talking it out about...: Recent Episodes
Life With FND
This is a series of podcasts which will focus on different areas. The first few will be based around FND (Functional Neurological Disorder) and then it will be some open and honest conversations about other areas. We hope you find it useful!
To kick off season 4, I speak to Professor Jon Stone about his work in FND. This is a more in depth chat where we cover FNDs history, research, diagnosis and so much more.
In this episode I chat to Kerryn about her life with FND, we chat about colour blindness, comparisons, leaf sheep and Christmas worms. If you want to find out more about what Kerryn does then the link is below for you: www.fndwellbeing.com
In this episode I chat to Maz about recovery trains, nanna naps, throwing everything at it and the power of animals (shout out to Dexter and Luna!). Links to the different things Maz mentioned can be found below: Chloe Mason counsellor/Therapist- 07947630151/chloem88@live.co.uk/ Instagram: cmasonpsychotherapistImelda Mcquaid- 'Mindful By Nature'- www.mindfulbynature.co.uk- mindfulnessKerryn Withers Green- www.fndwellbeing.comBurscough Neuro Physiotherapy- www.burscoughneurophysio.co.uk
In this episode I chat to Jo about her experience of FND, we discuss toolboxes, hypnosis and doctors who were sent from god.
In this episode I catch up with Michael about his experiences since we last spoke, the set up of the new Disability Sport Network and the boom and bust of life with FND, including PIP tribunals, hospital visits and travel.
A short one where I just ask what happens next after you’ve been discharged from a service? How do you feel about it and what do you do now.
In this episode I chat to Kirsty about all manner of things including, singing therapy, lettuce, fish fingers and seasoned tomatoes, the hills being alive and baby elephants and highland cows. We even had a couple of requests so if anyone can make them happen please do reach out!
In this episode I chat to Ian, we discuss the adventures of FND, flying fast pointy things, anger, shouting at seagulls and accepting the ridiculous. Trigger warning ⚠️ there is chat about suicide in the latter half of the podcast.
In this episode I chat to a neurologist from Ohio about MS. We discuss diagnosis, the rabbit warrens of treatment, preventative pills and the power of asking an adult why.
In this episode I chat to Ellie who was diagnosed with FND at 16. We chat about medical trauma, shame and hyper mobility.
In this episode I speak to Army Veteran Matt about FND, family, complex PTSD, snack alarms and the power of keeping it simple.
In this episode I talk to Ryan ad Sarah about friendships formed over social media for those with FND, we discuss symptoms, emotions and have a bit of a giggle!
In this episode I chat to Sarah about functional tremors, surgery, the power of tea and seizures.
In this episode I chat to a neurologist from Ohio about FND, diagnosis, education, neurological deserts and the US health system.
In this episode I talk to Sarah from the Netherlands about life with FND and Parkinson’s. We chat about self hypnosis, reflection, trauma and the positives to be found in FND.
In this episode I chat to Michael about photography, hospital stays, medical passports and how he has found adjusting to life with FND.
In this episode I chat to Scott from All4inclusion. We chat about his two podcasts, medical passports, imposter syndrome, bulbous pemphigold and vasovagal syncope.
In this episode I chat to Matthew about his experience in a secure unit, mental health and the volunteering work he does for FND action.
In this episode I chat to Louisa about dating with FND. We discuss the practicalities of dating, dark pink flags, self esteem and our roles as sincerely sorry sisters.
In this episode we talk about being a parent to someone with FND, electric worms, cauldrons and what support is out there for parents.
In this episode I chat to Jordan and his mum about his life with FND. We discussed cancer, maths lessons, laughter and referrals.
In this episode I chat to Alex and Tom about emotions, education, FND superheroes and sex.
In this episode we chat to Lousia about all things FND related, from pensioner chic, walking sticks, guilt, shame and friendships.
In this episode I chat to Phillip. We cover things from dungeons and dragons, nerve pain, temperature control and everything in between.
In this episode I talk to Brooke, who has FND, and her mum Clare. We discuss how it felt for Clare to be a parent of a young person with FND and how they have reached a balance in their relationship which works with FND. We cover a range of topics from The Rosa Burden Centre, future plans and rugby games.
In this episode we chat about Suzy’s journey to diagnosis, including support groups, taking back the driving seat and lollipop-ing sausages.
In this episode we chat all things FND, from bear Cubs to distraction and grief. Alex is an OT in the West Midlands working with patients with FND so gives a few helpful hints and tips to help as well.
This time I chat briefly about climbing a mountain and the consequences. Also about how I found sharing what I had done and the impact it had on me.
In this episode, I chat to Claire all about her journey to an FND diagnosis. We discuss speech symptoms, how our families have been impacted and how we find using things like disabled parking.
Just a quick catch up regarding my recent challenge and what I hope to be able to do in the future not only with this podcast but also with awareness day challenges.
In this episode you hear me having a weird brain moment, I discuss things like baths, temperature, food reactions and FND awareness day.
I talk to the lovely Sarah, who turns out is my FND anniversary buddy! We chat diagnosis, treatment, social media and the joy of ramps, stair lifts and bathrooms!
It’s the 3 year anniversary of my life with FND. We chat through the first moments and. What we can remember and reflect on things we wish we has known at the time.
Happy new year guys! We started this season with a bang as I was joined by Tom, who has been battled FND for nearly two decades. Tom chatted about all things scientific, and I had to try and keep up. We discussed things from treatments, doctors and thinking.
I chat to myself 😂 about working with FND, the things I have done to help and things I could have done better.
In this episode I chat to the lovely Sarah about working with FND, ‘The Burden Zone’, value and worth.
In this episode of ‘Talking it out about’ I chat to Hamish who is a physio about all things FND and physio related.
5 things I have used to build self esteem. This is just five of the ways I have been working on building my self esteem, I am not a master at them all but I am making progress in every step.
In this episode you hear Ze in her current ‘potato’ state, we discuss the importance of routine and structure.
I am joined by the lovely Charlotte who is at the beginning of her journey with FND, we talk symptoms, managing symptoms and depression. We also have invented a new game of is it the internet or is it the FND?
We chat about ways to manage FND including but not limited to mindfulness and pets, use of words like trauma and triggers and anything other randomness we can get distracted into.
We have a general chat and catch up, you can hear the speech difficulties with FND symptoms that are appearing. We discuss what things have stuck with people in the diagnosis process as well.
In this episode I chat to Melanie about our time together in the unit. We were there at the same time and she helps me start to remember a bit about my time there. We reflect on what we learnt and our joint and separate experiences of our three week inpatient stay to make the 2 year anniversary since we both left.
In this episode we discuss safety behaviours, what they are, how they work and we do them. I am set a challenge to try and tackle mine.
In this episode you can hear the inner workings of two people with FND. I was joined by Hannah for a chat about her experiences with FND with her diagnosis 12 years ago.
In this episode I chat to a clinical psychologist all about FND, as a FND awareness day special
This episode we continue our conversation of dissociative disorder and treatments. You get to hear first hand the dissociation as well.
In this episode we discuss the effects of dissociative disorder with FND, how our ideas of FND have altered over the time as we have learnt as the journey has gone on.
In this episode we discuss everything from treatments, word searches, dissociative disorder and the Rosa Burden Centre. We would love to hear your input as well so please reach out to us on Facebook at Living with FND- Functional Neurological Disorder or by email livingwithfnd@hotmail.com
This is the beginning of my story with FND. It covers the first few months of the FND journey.