The Rare Advocates
Aicardi Goutieres Syndrome Advocacy Association (AGSAA)
Welcome to a patient worthy, rare disease podcast for all! We are the rare disease advocates, part of the Aicardi Goutieres Syndrome Advocacy Association (AGSAA). This non-profit works to improve the lives of individuals and families living with Aicardi-Goutieres Syndrome (AGS). We'll regularly invite families, scientists, therapists, experts, clinicians, etc for short conversations about topics relevant to the AGS community.
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