Island Treasures: Recent Episodes
Alison van Schie
This podcast provides a platform for caregivers to share their stories, offering encouragement and insights to those who may be on a similar journey. Guests bring wisdom and empowerment to remind caregivers they're not alone. Additionally, guests share valuable information, tips and resources to support caregivers in their vital role.
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Mark Wilson spent his career of more than 25 years heading the Leadership and Organization Effectiveness & HR functions at Fortune 500 companies, including PepsiCo, Taco Bell and YUM! Brands. And yet, when his mother was diagnosed with Alzheimer’s disease, he left his career behind to take care of her at home.
He didn’t know how he would care for her at the beginning of his caregiving journey, but he had the resolve and ambition to figure it out and learn as much about Alzheimer’s care and caregiving as he could. He was able to apply his corporate experience and leadership skills to create the best care team possible for his mom.
His mission was to have her home, have her be as happy as possible, and for her to live as long and healthy as possible. He fulfilled his mission.
Since his mom passed, he has been a guest on podcasts and through them he was encouraged to write his book, "Breakthrough Alzheimer's Care: A Guide to Finding Courage, Longevity, and Joy on the Journey". He was also asked to be on the Advisory Board for the UCI MIND Center. He leads Alzheimer’s Support Groups, advocates in Washington for Funds for Alzheimer’s Research, mentors High School Students who want to share education and fundraising in the community and he does his own fundraising for the Alzheimer’s Association.
It was because of a tragic medically negligent surgical mistake that shortened his mom’s long Alzheimer’s journey that inspired him to share his care leader learning on Alzheimer’s care and Patients’ Rights to give families hope and confidence that they can make a huge difference in the lives of their loved ones. He states that “Just because there is still no cure for dementia doesn’t mean you can’t make a big difference in their lives and your life as well.”
Mark’s website: The Bold Care Leader
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What does life look like when caregiving ends — not the tasks, but the identity, the vigilance, the emotional weight you carried for years? In this episode, Breeda Miller returns to Island Treasures Podcast to share an honest, comprehensive look at the chapter that followed caring for her mom.
Breeda talks about the personal programming that didn’t disappear right away, the instinct to stay on high alert long after the role was over, and the clarity that came only after the urgency and immediacy of caregiving fell away. She describes the gradual process of making sense of the many experiences she had lived through.
She also reflects on the meaning she created through storytelling — including her award‑winning one‑woman play, Mrs. Kelly’s Journey Home, and the family story books she now builds to preserve the context behind cherished photos - 'turning tubs of guilt into familiy stories'. These projects became a way to honour her mother, understand her own journey, and to help others preserve their own family stories.
Breeda shares the simple daily practices that support her now: moving her body, taking a restorative 20‑minute nap, and choosing one important thing to do each day. And even though caregiving for her mom has ended, she speaks candidly about the ongoing caregiving she does for her two adult sons, and the concern she carries as she plans for their future.
This conversation offers a grounded, compassionate look at what comes after one season of caregiving — the questions, the shifts, the meaning, and the permission to slow down and give yourself grace. It’s a companion for anyone navigating their own life after caregiving.
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In this Island Treasures Podcast adventure, we head out to explore another remarkable gem on Vancouver Island: the Malahat SkyWalk. Perched just off the Malahat Highway, this stunning architectural spiral rises above the treetops and offers sweeping, unforgettable views over the Salish Sea and along the rugged Pacific Coast.
I’m joined by my travel companion, Grace Block, as we share our experiences of wandering the elevated walkways, taking in the breathtaking, panoramic scenery, and talk about our impressions of this unique destination. Grace slid down the iconic spiral slide—yes, the one that sends you swirling down the center of the tower—so we dive into that experience too, along with the surprises and delights we discovered along the way.
Whether you’re planning a visit or simply love hearing about special places across Vancouver Island, this episode brings you along for a scenic, joy‑filled outing to one of the island’s most spectacular treasures.
Some of the details we share about the Malahat SkyWalk come from information provided on the Malahat Skywalk Website and from Trip Advisor - Malahat Skywalk.
Click here to watch the video version of the podcast - complete with extra footage at the end of the video that you won't want to miss!
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Caregiving often arrives without warning, and for many families, the weight of responsibility is compounded by not knowing where to turn. In this episode, we sit down with Lance A Slatton, whose plan to help his father recover from a fall turned into a nearly three‑year caregiving journey. His experience revealed just how many resources go undiscovered—and how isolating caregiving can feel when you don’t know what support exists.
Lance shares how that journey inspired him and his wife to build a business called Enriched Life Home Care Services dedicated to guiding caregivers toward the services, tools, and information that can make the road easier.
We also explore the importance of making decisions before circumstances make them for you, and how conversations about future care don’t have to be heavy or ominous—they can be empowering, practical, and rooted in love.
Lance A. Slatton is a Senior Case Manager at Enriched Life Home Care Services in Livonia, MI. He is also host of the award-winning podcast & YouTube channel All Home Care Matters & President of AlzAuthors. Through AlzAuthors Lance is helping expand access to a rich library of resources for families navigating dementia. This episode offers clarity, encouragement, and a reminder that no caregiver should have to walk this path alone and they can learn about the resources they may need during their caregiving journey.
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In this episode, we welcome back a familiar voice from Season 5, Episode 1 — Grace Block returns to share what life looks like after caregiving.
She opens up about the transition from being a full‑time caregiver for her mom, who lived with dementia, to stepping into her next chapter. Grace reflects on the privilege of being able to take early retirement so she could be fully present during her mom’s final months, and how working part‑time in a casual role helped her stay connected to her own identity along the way.
After her mom passed, Grace found herself holding something she hadn’t had in years: time. A gift, yes — but also overwhelming and tinged with guilt. She talks about how the busyness of planning her mom's celebration of life, managing executor duties, and hosting family delayed the arrival of grief… and how she’s now allowing it in.
Grace shares the beautiful ways she keeps her mom close, especially through what she calls her “heart memories” — the photos she regularly sends to family, and the ones they send back.
With caregiving behind her and full retirement ahead, Grace is learning to fill her days with things that bring her joy: volunteering, painting, cross‑country skiing, and spending time with her new pup.
This is a conversation about identity, healing, and rediscovering yourself when the role that once defined your days suddenly falls away. Grace’s story is a gentle reminder that life after caregiving has much to offer as long as we're open to the possibilities.
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A rare gathering of California Sea Lions turned a quiet Vancouver Island shoreline into a living, breathing wildlife spectacle. In this Island Treasures spotlight episode, come along as we get an unusually close look at these massive, captivating mammals as they rest and jostle for space on the beach during the lead‑up to the herring run.
With photos andvideo accompanying the audio version of the podcast on YouTube, this episode brings plenty of coastal atmosphere, offering a refreshing break and a glimpse of the Island’s wild charm—before we return to our ongoing conversations about life after caregiving in the next episode.
My husband's Pexel account
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After eleven years as the sole caregiver for her mom living with young‑onset dementia, Sharon Davis wasn’t prepared for the grief, anger, and loss that followed her mother’s passing. Holidays lost their sparkle, her faith felt fractured, and life paused as she stepped back from work and withdrew - unsure how to move forward in a life no longer defined by caregiving.
Healing felt distant — until an unexpected and unconventional opportunity appeared. It was surprising and exactly what she needed. That experience became the spark that nudged her forward, kick-started her healing, and helped her rediscover herself.
Today, she’s rebuilt her life with purpose. A new home. A new job. A new love. And a renewed mission. Sharon now advocates for caregivers, offers training and guidance, spots those who may quietly be carrying the weight she once knew, and connects them to the resources that can lighten their load. Her path even led her to work in finance as a consultant — empowering caregivers and others to navigate the practical side of life with confidence.
This podcast shares her story of reconstruction — the raw moments, the unexpected detours, and the powerful transformation that followed. It’s a space for caregivers, former caregivers, and anyone searching for their “new me.” A reminder that healing isn’t linear, that support matters and can show up in unexpected ways, and that life after caregiving can be reconstructed with intention, courage, and a renewed sense of possibility.
If you wish to contact Sharon her email is AlzforMom@gmail.com
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Carol Steinberg is an accomplished writer/editor and a former award-winning journalist who contributed regularly to The New York Times, Success magazine, and other publications.
In addition, Carol brings a deeply personal lens to the world of Alzheimer’s disease. After supporting her mother as the primary caregiver for her father, she witnessed firsthand how this illness reshapes the lives of everyone it touches. Following her father’s passing, she applied her journalism skills, experiences and observations into advocacy, spending 15 years in leadership roles at both local and national Alzheimer’s organizations.
Today, Carol continues her commitment to the Alzheimer’s community, writing the “Voices of Alzheimer’s” newsletter. She is also the author of a new children’s book that blends her family’s experience with age‑appropriate explanations of Alzheimer's disease to children, together with meaningful intergenerational activities that help children (and all of us) stay connected to loved ones living with Alzheimer’s Disease.
Carol's book, "Come Grandpa Meow, Let’s Fly: A Heartfelt Children’s Story About Alzheimer’s Disease Plus a Guide to Intergenerational Activities" is available on Amazon
If you'd like to share your story with Carol for the "Voices of Alzheimer's" newsletter, you can reach her through her LinkedIn profile.
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Caregiver Recovery: Redefining Normal and Moving Forward invites listeners into another honest conversation with Christina Keys about life after caregiving. Too often, caregivers are left 'soul tired' and unprepared for life after caregiving.
Christina is a caregiving advocate, national speaker, and founder of Keys for Caregiving. After a decade-long journey caring for her mother post-stroke, Christina now empowers family caregivers to prioritize self-care, navigate life after caregiving, and build stronger caregiver communities. She created the Caregiver Recovery program and is passionate about making sure caregivers are seen, supported, and celebrated.
In this episode, Christina shares what it means to rediscover freedom, redefine “normal,” and carry forward the love and blessings that remain with her post-caregiving. Through her story, we’re reminded that recovery is not only about healing ourselves, but also about walking alongside those who will come after us. If her journey touched you, visit her website, ChristinaKeys.com and watch for the release of her upcoming book.
- FB: Keys For Caregiving and Christina Keys
- YouTube
- TikTok
- Website
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In our first full episode since the relaunch, we sit down with former caregiver, Licia Thompson-Young, who shares what it means to grow forward with intention after caregiving. From stepping beyond her comfort zone to embracing the unknown in unfamiliar environments, she reveals how healing began when she allowed herself to feel — and how grief, once buried, found release in her HIIT (High-intensity interval training) workouts at the gym. This is a story of courage, change, and the quiet power of choice.
You’ll hear about her RISE™ framework (Renew, Ignite, Soar with Excellence) and her helpful resource “When Your Soul Whispers”. Licia is a Renewal Expert as a Leadership & Personal Growth Coach. Tune in for a conversation about her newfound strength, renewal, and the surprising places where healing begins.
Licia's website
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When caregiving ends, it can feel like standing at the edge of a cliff—grief, uncertainty, and a quiet question echoing: “What now?” In this heartfelt episode of Island Treasures, we explore the transition from active caregiving to life beyond the role. Whether your caregiving journey spanned years - or months, the ending often brings a profound shift in identity, routine, and emotional landscape.
In this episode we talk about the “treasuring” phase of caregiving, where former caregivers are invited to reflect, regroup, and rediscover purpose. This phase is a time to honor memories, process grief, and ask meaningful questions like “Who am I now?” and “What brings me joy?”
We also speak about the course, Finding Your Purpose After Caregiving, designed to help caregivers recalibrate and move forward with intention. Plus, we preview upcoming episodes featuring guests who’ve navigated this transition—some with clarity, others still finding their way—all offering hope, inspiration, and shared wisdom.
This episode marks a new season for the podcast, one that embraces renewal and celebrates the courage it takes to step into life after caregiving. Subscribe to the podcast and join us on the 23rd of each month when new episodes drop.
✨ Suggested episodes to revisit:
- “Moving Forward After Caregiving” with Licia Thompson
- “Caregiving Unveiled: True Purpose for an Encore Career” with Bill Cohen
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After six seasons, Island Treasures returns with a fresh focus. We’ve rebranded to explore life after caregiving—the stories, reflections, and quiet renewals.
This new season shines a light on what follows caregiving, because that matters. You’ll hear candid conversations with former caregivers, offering insight, hope, and the kind of connection that helps us move forward.
And in addition to these heartfelt episodes, we’ll occasionally celebrate the treasures of Vancouver Island itself—after all that’s where the podcast calls home.
I’m glad you’re here. Let’s discover what comes next, together.
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Island Treasures Podcast is taking a short break from publishing new episodes to reflect and seek future direction!
Over the past six seasons, we've explored the many facets of caregiving, sharing insightful conversations and meaningful stories. While our existing content will remain available for you to revisit anytime, we feel it may be time to venture into new territory.
We look back over the life of the podcast thus far as its focus has been on caregiving, with exceptional guests - many caregivers themselves - sharing their caregiving stories, wisdom and experiences as they help encourage the listeners in their caregiving journeys.
A huge thank you to all the guests who have helped shape the caregiving chapter of the Island Treasures Podcast, namely: Roy Johnson, Dennis Dulniak, Theresa Wilbanks, Brenda Blais-Nesbitt, Cori Sandler and Alice de Wolff, Anne Sands, Betsy Haddad, Pat Thibodeau, Toni Gitles, Sue Johnston, Lisa Kendall, Chris MacLellan, Erin Galyean, Chandra White-Cummings, Arlene Jacobs, Judy Cornish, Zander Keig, Beth Hearn Douglas, Jennifer Richey, Kathy Shoaf, Mike George, Brenda Leppington, Loretta Veney, Dave Iverson, Licia Thompson, Jodi Kay Benusa, Breeda Miller, Debbie Compton, Ben Graham, Dr. Delon Canterbury, Roxane Anderson, Tracy Crump, Lori Lemasters, Natalie Hankins, Denise Brown, Kathy Neuhausser, Sandra Strauss, Heidi Rome, Katrina Prescott, Valerie Weins, Grace Block, Bill Cohen, Teepa Snow, Dr. George Ackerman, Lori Rogers, Jenna Rumberger, Victoria Essner, Alexis Baker, Amy Friesen, Susanne White, Sarah Merriman, Rebekah Dowhy, Angela Fairhurst, Gina Awad and Rayna Neises
Stay tuned for more details on what may lie ahead. Thank you for being part of our journey—we can’t wait to share what’s next!
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A central theme of the full podcast episode with Rayna Neises, called "Rayna's Caregiving Wisdom: No Regrets and Cherished Memories" was how to have no regrets when caregiving.
After 26 years of caregiving during which Rayna completed her training to become a certified coach, Rayna shares what enabled her to be able to look back on her caregiving experience and say she has no regrets.
We review how to define regrets, what it means to embrace a growth mindset, and we hear what questions we can ask ourselves to enhance our own wellbeing through a caregiving season.
Rayna talks about her book called "No Regrets: Hope for your Caregiving Season" and how the first 10 chapters address caregiving and the remaining 6 chapters are devoted to self-care and not losing oneself in the role of caregiver.
We hear how she creatively incorporated physical activity into the home environment for her dad who benefited from being able to participate in sports and how playing ping pong together led to creating memories.
A huge part of having no regrets when caregiving is making cherished memories with your loved ones, all while maintaining personal joy and creativity.
For more from Rayna visit her website A Season of Caring.com; and for more details on the excerpts contained in this mini podcast episode, please check out the full episode "Rayna's Caregiving Wisdom: No Regrets and Cherished Memories".
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In this episode we are joined by Rayna Neises for an enlightening conversation about her extensive caregiving journey.
Rayna is a dedicated Caregiving Coach, author, and advocate for family caregivers. With a heart deeply rooted in faith, Rayna has transformed her caregiving experiences into a mission to support others navigating the challenging path of caregiving.
She was introduced to caregiving as a teenager, caring first for her mom who was diagnosed with Alzheimer's, and later for her dad, who, after a cancer diagnosis and a MRSA infection, also had Alzheimer's disease.
Rayna delves into the emotional and practical challenges she faced and details how she and her sister managed to honor their father's wish to live at home.
Rayna discusses the importance of self-care for caregivers, her approach to documenting and learning from caregiving experiences, and the inspirations behind writing her book, 'No Regrets: Hope for Your Caregiving Season.' Additionally, we touch on Rayna's coaching work and her podcast, 'A Season of Caring,' which is an insightful resource that offers practical advice and spiritual encouragement to those caring for aging loved ones.
The episode concludes with advice for caregivers to cherish and capture moments - emphasizing the importance of maintaining personal joy and creativity.
Rayna is married to a farmer and lives on a farm in Kansas. Her life is a beautiful blend of faith, family, and farming. She is a stepmother to four and a grandmother to 8. Her close relationship with her sister, with whom she shared her caregiving journey, adds a profound depth to her understanding of family dynamics in times of need.
You can learn more about Rayna and her resources at www.ASeasonofCaring.com or on her podcast A Season of Caring.
- X (Twitter)
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This mini episode highlights key points from “Creating Connections with a Dementia Companion” featuring Gina Awad. Gina, who studied Dementia as part of her Health and Social Care degree, is a valuable resource for those living with dementia and their caregivers. She noticed common themes like fear and system navigation during her early information sessions.
Recognizing the need for clear guidance after a dementia diagnosis, Gina emphasized the importance of discussing dementia and providing accessible information to reduce stigma, and she founded the Exeter Dementia Action Alliance. In addition to her information sessions, she created a forum for discussions through her radio show, “Living Better with Dementia” on Sonic FM. A show where her guests share resources, their passion, projects, information and stories.
To further provide information on dementia in a non-intimidating way, Gina authored "United: Caring for our Loved Ones Living with Dementia," a book illustrated by the late Tony Husband that offers an easy-to-read perspective on the realities of dementia.
Gina's insights in this mini episode can be invaluable whether you're involved in caregiving or recently diagnosed with dementia.
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Gina Awad's heartfelt journey into dementia caregiving began with her childhood visits to care homes, sparking a lifelong mission to support families navigating this challenging landscape. She studied Dementia as part of her Health and Social Care degree in 2011 to further explore the challenges and realities of dementia. As a dedicated advocate, she shares her path from those early impressions to becoming a dementia champion, highlighting the emotional and social challenges both caregivers and patients face. This episode shines a light on her impactful community sessions, her dementia training sessions, and her ongoing efforts to foster acceptance, open communication, and understanding within communities.
The conversation takes a personal turn as Gina recounts assisting a close friend in accepting her dementia diagnosis, underscoring the need for awareness and funding. She passionately addresses the often-overlooked social changes, such as the shifting dynamics in friendships, and the importance of educating workplaces about accessibility and support. By drawing parallels with past taboos like cancer, Gina is determined to break the stigma surrounding dementia, ensuring that no one feels isolated or misunderstood.
Listeners will also enjoy exploring Gina's creative endeavors, from hosting a radio show on Phonic FM to illustrated stories of caregivers in collaboration with the late Tony Husband in their book "United: Caring for our Loved Ones Living with Dementia". Her commitment to creating meaningful resources is evident in her upcoming book, "When Time Aligns: the Stories of Care from a Dementia Companion," which promises to weave personal experiences with broader insights into dementia care. Through these narratives, Gina not only shares her experiences but invites us all to understand and support the world of dementia caregiving with empathy and compassion.
In recognition of Gina's significant contributions to supporting people affected by dementia, Gina was awarded the British Empire Medal in 2018. In addition she is a Carer Representative for The Royal College of Psychiatrists for their Memory Services National Accreditation Programme.
Connect with Gina through LinkedIn of through the Exeter Dementia Action Alliance
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This mini episode visits a few of the key takeaways Betsy Haddad shared with the listeners in the full episode "Thinking Ahead about Alzheimer's and Care Needs with Betsy Haddad". Since her caregiving experience she has become an activist and wanted to share about:
- Why she became an activist?
- Hybrid Long Term Care Insurance
- Clinical Trials
- Blood Test to Detect Protein related to dementia.
As an activist, Betsy not only talks about dementia, but she is also proud to be part of the science.
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Betsy Haddad has returned to the podcast to share some exciting news on the fight against Alzheimer's Disease. Since the passing of her beloved dad, Edward, Betsy has had time to reflect on his suffering and that has channeled her grief into activism in the fight against the disease. Betsy is a member of Generation X and she grew up in the era of 80's music. She has two wonderful adult sons who are the light of her life. In her spare time, Betsy loves to sing - performing occasionally at local restaurants with her friend on keyboard. She also sings with the Orlando Episcopal Cathedral church choir.
In this episode you will hear about a blood test (still in its trial stages) that measures protein levels, believed to be a tool to detect Alzheimer's early on. Betsy, herself, has had the blood test so you'll want to hear her take on what this means for her.
Betsy shares about GUIDE (Guiding an Improved Dementia Experience), by CMS (Centers for Medicare & Medicaid Services) designed to support people living with dementia and their unpaid caregivers and how this test model provides a care navigator who is in charge of the person with the diagnosis' care, supports the caregiver and provides opportunities for respite care for the caregiver. Betsy also mentioned RIPPL through Alzheimer's Association.
We also hear from Betsy, who works as a consultant in the health insurance industry, about an important distinction between long-term care insurance and hybrid long-term care insurance.
Betsy doesn't just talk about her wish to improve the future for others; she puts her words into action by participating in research to advance the science and she's connecting folks to resources that she has discovered through and since her caregiving journey.
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Angela Fairhurst demonstrates the 3 Geri-Gadgets ® buckets that, as an entrepeneur she designed and created to enhance the lives of folks living with dementia. There's the Fidget-Gadget ® bucket, the Shapes bucket and the Flower bucket. Each bucket has its own unique contents to bring activity, joy and engagement to your loved one.
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Angela Fairhurst was the primary caregiver for her mom who after a misdiagnosis and several different medications was eventually diagnosed with Lewy Body Dementia. Angela's passion to find engaging activities for her mom led her to create Geri-Gadgets® and as the founder and CEO of Geri-Gadgets®, she is dedicated to enhancing the lives of those affected by dementia.
Angela has over 25 years of experience as a non-fiction television producer and journalist through Fairhurst Productions, Inc., and former Executive Director of the Chambers Group, a consumer product-marketing firm. From her impressive career, she brings a unique blend of creativity and practical expertise to her work.
Her journey in dementia care began with the personal connection with her mom, leading her to immerse herself in the study of dementia and forge connections within the care community. Angela's innovative approach combines her product development skills with a deep understanding of caregivers' needs, resulting in stimulating Geri-Gadgets® that make a real difference in dementia care.
In this episode Angela also speaks about her processing of grief and the useful resource she found in the Grief Recovery Handbook.
If you wish to take a look at Geri-gadgets, you can check out Angela's website. Angela will also be highlighting the products in the upcoming mini podcast episode that will be available in video format.
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Another 'Island Treasures Treasure Chest' bonus episode. In this episode we revisit "Skills Retained: Strengths-Based Approach to Dementia Care" Season 2, Episode 13 featuring Judy Cornish.
Judy Cornish is the founder of the DAWN Method - a strengths-based approach to dementia care. From the treasure chest we hear about two sets of thinking skills: the sensory and the rational thinking skills. We examine dementia through the lens of the disease or medical model and compare that to viewing dementia through the experiential or functional perspective. We also hear about mindfulness and mindlessness and how important it is to recognize the skills our loved one still has and how to supplement the ones they may be losing.
Learning about this strengths-based, person-centered approach to dementia care can help provide a more positive experience for both the caregiver and their loved one.
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Rebekah Dowhy, grew up being the caregiver for her mom. Through her caregiving life she learned the importance of support.
She describes the rare opportunity she had to experience the joy that came with taking a break. A break that to many would be taken for granted, as she was able to join her classmates for an outing. Rebekah's take on this outing was that it felt like a vacation.
Learning the power of taking a break from such a young age, Rebekah created a respite program for caregivers. It is called the Caregiving Support Network, and it meets the needs of caregivers to help them cope, feel seen, and to prevent them from becoming a statistic especially with her knowledge that caregiver stress can lead to caregiver burnout.
From her perspective she reminds non-caregivers of how they can help the caregivers in their lives and how much a simple gift for a caregiver can mean.
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This episode offers valuable insights to both caregivers and non-caregivers, featuring valuable tips from Rebekah Dowhy for those who aren't caregivers but want to lend a hand.
Rebekah's journey into caregiving began at birth, as her mother was diagnosed with Multiple Sclerosis the same year she was born. Growing up, Rebekah, along with her dad, took care of her mom. Through this experience, she learned the critical importance of support and the need for respite breaks. (You’ll hear how for Rebekah, even a two-hour break with peers felt like a much-needed vacation.) This inspired her, and after many years of caring for her mom, eventually seeing her home to heaven, Rebekah founded the Caregiving Support Network (CSN).
Respite is essential for caregivers, as without it, they risk facing overwhelming stress, depression, and burnout. Understanding this need, Rebekah established the nonprofit program to offer both respite and practical support for caregivers. The Caregiving Support Network (CSN) also extends support post-caregiving, such as with resume writing, recognizing that caregivers acquire numerous new skills and abilities through their experiences that can help when it’s time to return to the career they had pre-caregiving.
For more information from Rebekah, here's her website:
Caregiving Support Network
The activity books Rebekah spoke about are available through Ways 2 Wellness
Here's the video "Things Not to Say" that we spoke about.
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This mini episode contains a fictional short story that combines the titles from the full episodes of the Island Treasures podcast that aired throughout 2024. The story encompasses the various aspects of caregiving mentioned in the titles, highlighting the emotional journey, the obstacles, and the victories along the way.
As we wrap up 2024 I wish to publicly thank all the guests who have so willingly and selflessly shared their stories on this platform, and helped so many caregivers along the way. My heartfelt gratitude to Grace Block, Bill Cohen, Teepa Snow, George Ackerman, Lori Rogers, Jenna Rumberger, Victoria Essner, Debbie Compton, Alexis Baker, Amy Friesen, Susanne White, and Sarah Merriman.
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In the full episode entitled "Roadblocks and Signposts for Caregivers", Sarah Merriman talked about her poetry and reminiscence sessions for people living with dementia; and that she is a poet herself!
Sarah was willing to share two of her heart-felt poems in this mini episode. The first is called "Dad". It is a loving tribute to her father who was a single father. Sarah tells us about the backstory of the relationship She had with her father and with her Nana and why their bond and Sarah's devotion as her caregiver was so deep.
Her second poem is called "Hope" and it is a poem of understanding for caregivers; and Sarah offers compassionate hope and support through her written words. May I add, this compassionate hope is carried through how she supports caregivers in the work she does as a freeland dementia consultant.
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Sarah Merriman joins this episode straight from the United Kingdom. Sarah was the primary caregiver for her Nana for seven years. Her grandmother experienced cognitive deficits and despite Sarah's attempts to have her assessed, her grandma was resistant.
Sarah was a sandwich-generation caregiver, feeling torn by being pulled in so many different directions. Sarah now recognizes how that impacted not only her, but her family, her job and her grandmother. The toll it took on her led to a total break down after her grandmother passed away.
There were roadblocks along the way that contributed to the stress of the journey. The biggest was her grandmother’s resistance to being assessed - preventing her from receiving a diagnosis of dementia until three short months before her death. This roadblock prevented doors being opened to supports that they both so desperately needed. Supports that could have alleviated Sarah’s stress.
Sarah did not identify as a caregiver (or carer as they are called in the UK), and as such she was not able to access much needed information, support and resources. But Sarah learned from this and once she regained her strength and returned to work, she went on to obtain a master’s degree in Dementia Studies and now is a huge advocate for caregivers, and folks who are living with dementia and early onset dementia. She truly signposts others to caregiver resources.
So, if you are looking after someone who couldn’t manage without your help – you are most likely a carer or a caregiver; by calling yourself a caregiver you can remove what may be one of your roadblocks and learn of resources and supports available to help you along your caregiving journey.
If you’d like to contact Sarah, you can do so through her LinkedIn profile; and be sure to check out her blogs, articles and information about her poetry and reminiscence sessions for people living with dementia.
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Loretta Veney is a LEGO Serious Play Instructor and she was able to find effective ways to incorporate LEGO into caregiving for her mom who was living with dementia. You can hear all about Loretta's journey as a caregiver in the full podcast episode titled "Building the Unbreakable Caregiver" from Season 3 of the Island Treasures Podcast.
In this Treasure Chest segment you will hear how using LEGO as a communication tool can be effective. When Loretta's mom was unable to express in words how she was feeling about her dementia diagnosis, she used LEGO to clearly demonstrate how she was feeling. Loretta shares many uses of LEGO that she has experienced throughout her life.
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Have you heard a caregiver referred to as an angel?
This mini episode features a clip from the Caregiver Warrior, Susanne White describing how when she's in the company of caregivers she feels the space is sacred. Susanne paints great word pictures and this one certainly conveys the respect, and appreciation she has for caregivers.
We also hear a clip about caregiver warriors! We talk about how the attributes of a warrior also apply to caregivers. Their tenacious spirit and commitment to serve and protect those in their care... just like warriors.
Both caregiver angels and caregiver warriors have strengths and characteristics to be admired. If you are a caregiver this episode may be just what you need to hear to remind you how the work you do is vital. As it is brief, you may wish to check out the full episode called "The Messy Middle of Caregiving" as well as Susanne White's website for more tactical gear for battles you may face in caregiving.
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Susanne White is the founder of Caregiver Warrior. She was faced with the opportunity to care for her parents and embarked on a caregiving journey that would change her life. She ventured into this journey with a true cargiver warrior spirit and uses that same spirit to empower other caregivers through their caregiving opportunities.
This episode is filled with observations that Susanne made of herself and what she was going through - both in her caregiving and her recent brain surgery. Her brain surgery is teaching her a lot about the healing process and as she adjusts to her new normal, post-surgery, she is exploring ways to impart new lessons to others.
She blogs about her journey on her website, caregiverwarrior.com and shares her experience, strength and hope with others so that they too may navigate caregiving with grace and empowerment. Susanne’s latest book, Self-Care for Caregivers: A Practical Guide to Caring for You While You Care for Your Loved One, is now available at your favorite book stores. Visit caregiverwarrior.com for more information from Susanne White, or follow her on X (formerly Twitter), LinkedIn, Facebook and Instagram and don't forget to check out her Weapon of the Day!
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Another 'Island Treasures Treasure Chest' bonus episode. In this episode we revisit "A Musician's Daughter" Season 2 Episode 2, featuring Betsy Haddad.
At the time of the original episode Betsy's caregiving experience was a supportive role to her mom who was her dad's primary caregiver. Sadly, her dad passed away in 2022 from Alzheimer's Disease. Betsy provided great insights from observing her parent's situation throughout his disease and the resulting takeaways she shares in this episode.
Knowing what your wishes are for the future and being proactive with getting your care plans in place is one of the biggest messages, along with the benefits of incorporating music into caregiving and self-care. Betsy also reminds the listeners to remember to enjoy life... and laugh. So if you need encouragement as a caregiver and to start making your own advance care plan, this episode is for you.
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This mini episode highlights a few key points that Amy Friesen made in the full podcast episode "The Must Have Talk for Caregivers". What is 'the talk'? Amy describes how important it is for caregivers not to bury their head in the sand - but to address difficult issues before they reach crisis stage. While caregivers in the sandwich generation of caregiving may be faced with two 'the talks': one of the birds and the bees and the other related to eldercare situations.
With twenty years working with seniors, Amy has great insights - especially on how to have important talks regarding caregiving.
We hear more about the naming of her business "Tea and Toast" as well as the network she created for like-minded small businesses - called "Eldercare Planners Canada".
So take a brief moment and listen to this mini podcast so you too can remove the guess work from situations you may be facing as a caregiver.
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Today's guest, Amy Friesen, is a best-selling author and expert in the senior living industry and she has worked with seniors and their families throughout the world. She shares how she and her family used 'the talk' to open the door for her father-in-law to come and live with them.
Amy founded Tea & Toast in 2014 to help seniors and their families gain access to better choices and reduce the stress and feeling of being overwhelmed; and she has learned the importance for folks with aging parents to have 'The Talk'. In this episode we hear about the benefits of having the talk to remove the guess work in what your loved one's wishes are. We hear how it's also important to know which questions to have and what your options are when navigating eldercare.
Through Tea & Toast Amy and her team have a unique method of assisting those who are navigating the retirement living industry - saving families countless hours. This personalized service advocates for clients' personal needs and wants, while simultaneously ensuring that their short-term and long-term goals, as well as care needs, are planned for.
Amy has been recognized by the House of Commons for her 2018 Businesswoman of the Year Award as well as being a 2019 Forty Under 40 recipient.
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When Dennis Dulniak joined me as a guest on the Island Treasures podcast in the episode called "Life Does Not End With a Diagnosis of Alzheimer's" I knew we had valuable information to share with the listeners relating to Alzheimer's Disease.
In this 'Treasure Chest' episode we visit some of the key points that Dennis shared from his journey as the primary caregiver for his wife who sadly passed away from Early Onset Alzheimer's in 2021.
For example, when your loved one starts exhibiting signs that their cognitive abilities are changing, it is important for your loved one to receive a thorough examination. Dennis shares how a diagnosis and genetic testing relates to and possibly impacts obtaining insurance - he describes it clearly in this episode.
Dennis is a huge advocate for Support Groups - as he says, "with this disease Caregivers can't be feeling that they're alone".
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In this mini episode we feature clips from the full episode called 'Music is a Bridge for Caregivers and Their Loved Ones' with Alexis Baker. Alexis is a board-certified music therapist who works with caregivers and their loved ones living with dementia. We start with Alexis describing music therapy. We then visit the chapter Alexis wrote in the newly released resource for caregivers called “A Caregiver’s Advocate: A Complete Guide to Support and Resources” where she speaks about music therapy as it pertains to caregiving.
Music Therapy can be a useful activity even for those who do not consider themselves to be musicians, and it can help improve connections between caregivers and their loved ones by building a bridge. Alexis explains how beneficial this model of music therapy can be especially for folks living with dementia.
For more information from Alexis Baker or to register for a Live session please check out Bridgetown Music Therapy.
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Alexis Baker is a board-certified music therapist (MT-BC), certified dementia practitioner (CDP), and founder of Bridgetown Music Therapy. Her mission as a music therapist is to spark joy and improve quality of life through meaningful music engagement.
In this episode you'll hear how connections can be made through music - as Alexis uses music to make a difference in the lives of older adults living with dementia and their caregivers. Music Therapy provides a useful tool for caregivers to add to their toolkits - as music is a bridge that provides opportunities for connections for their loved ones.
This type of therapy sounds refreshing and uplifting, as we learn that music activates each part of our brain when we sing, dance, play or simply listen to music.
Alexis provides opportunities through her website bridgetownmt.com for folks to attend a LIVE session through Zoom or to watch a sample session to experience the benefits of music therapy.
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Island Treasures is introducing its Treasure Chest where treasures from a previous episode will be shared.
Today's treasures come from Season 2 Episode 6 which featured Lisa Kendall in the episode titled "Growth in Caregiving: Healing through Trauma."
We look at the meaning of care, caregiver, and care partnership, and Lisa talks about the inequity in some caregiving partnerships. We learn it's ok to say no and it's ok to set a boundary when in a difficult caregiving situation.
Lisa Kendall is a medical social worker specializing in gerontology and is an educator and mentor for the Eden Alternative(R).
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Debbie Compton returns to the podcast in this episode. Debbie is a three-time caregiver for loved ones who were living with Alzheimer’s, Parkinson’s, and vascular dementia. She’s a Certified Caregiving Consultant, Certified Caregiver Advocate, keynote speaker, and author of several books geared toward caregivers and seniors, including her newly released book “The Caregiver’s Advocate: A Complete Guide to Support and Resources”. A book where Debbie is the lead-author with 21 other contributing authors, all of whom are (or were) caregivers themselves.
Debbie has been a Community Educator for the Alzheimer’s Association since 2017 and is the founder of The Purple Vine, an organization created to spread awareness about all forms of dementia.
Her mission is to empower caregivers with the tools needed to reduce stress, find more joy, and live their best life.
Debbie is a wife, mother of 4 children and 8 amazing grandchildren. She lives in Oklahoma City.
Debbie was a guest on the Island Treasures podcast in 2022 in the highly popular episode "Voila! Caregiver". An episode filled with creative solutions to situations and challenges she experienced during her caregiving experiences.
Debbie's free give-away
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This mini episode visits some of the content of the full episode "A Caregiver's Vision" relating both to caregiving and assistive technology.
Victoria Essner brings her knowledge and experience to the podcast being legally blind and having a hearing impairment and caregiving for her husband 24/7. Victoria has overcome challenges and is passionate about sharing her tips, techniques and resources with other caregivers and those who may benefit from her first-hand knowledge of assistive technology.
Victoria describes how things have changed over the decades in the world of assistive technology and how now we hold technology in our hands if we have an iPhone.
Victoria's website
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Today's guest, Victoria Essner, is all about breaking down barriers and turning challenges into opportunities. When a childhood accident left her legally blind, she didn’t stop forging ahead and embracing what life had in store, including caregiving for her husband.
She shares her caregiving story with such gratitude and grace, having adopted the "can do" philosophy; and self-described as a pampered princess.
Vickie sees her blindness as a blessing, and despite her vision impairment she remains driven and adventurous, finding joy in her journey, sharing the message that life is precious.
In order to provide around-the-clock care for her husband, she received national certification through the Veteran’s Association. While she does all this she finds time to learn, mentor, support and empower others. Vickie is a true inspiration and a great resource for both caregivers and those with vision impairments, as she overcomes challenges by example and is an assistive technologist. Reach out to her today through the links provided below:
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Island Treasures is delighted to welcome back Debbie Compton to the podcast.
Debbie is a 3-time caregiver; a certified caregiving consultant and educator. She joins us today to introduce her upcoming book, due for release in early July 2024. This book is for caregivers and it is filled with caregiving resources. Debbie is the lead author on this collaborative resource with 21 other authors.
Caregiving comes in many shapes, sizes, durations, intensities, cultures, socioeconomies, etc. - and it is the hope that with this number of contributors there will be something for everyone.
The book is called "The Caregiver's Advocate: A Complete Guide to Support and Resources". As Debbie says, she didn't want fluff! Debbie is all about providing actionable, helpful inormation to caregivers. She walks the talk.
Debbie's full episode will air August 3rd. In it there are even more details about the book and you can hear all about what's been happening since Debbie first joined the podcast in the episode called "Voila! Caregiver".
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This Island Treasures Mini podcast features highlights from the full episode called "Her World Turned Upside Down", where Jenna Rumberger shares her caregiving story from the perspective of the one receiving care.
Jenna is a licensed social worker who supports adults, older adults and their families with a specialization in dementia.
When a medical emergency turned her world upside down at the age of 32, she sought to pivot from working for the State into private practice. Jenna had no warning signs that she was about to experience a cardiac arrest - but now she is an even stronger advocate for Advance Care Planning and provides a free resource on her website to help us prepare for a medical emergency.
Today’s caregiving story is told from the perspective of one receiving care.
When Jenna Rumberger had a cardiac arrest at the age of 32, her world turned upside down. She had been working as a social worker in the field of geriatrics since 2013 and was familiar with caregiving - but this medical emergency flipped the script for her - as she found herself on the receiving end of care.
Jenna holds a Masters of Social Work (MSW) and Masters of Public Health (MPH) from the University of Southern California and currently works as a Licensed Independent Clinical Social Worker (LICSW) in Washington State. Jenna is the founder of a Seattle based private practice called Aging with a Plan, PLLC where she provides individual psychotherapy and consultation services for older adults and family caregivers impacted by memory loss and dementia.
Jenna's message regarding advance care planning comes with a sense of urgency - as she knows how quickly a medical emergency can happen. This episode contains suggestions and resources pertaining to Advance Care Planning as well as information for caregivers.
In this mini episode we focus on the first half of the full episode called "Tapping Into Communication and Positive Activity". We hear how Lori Rogers has been a true champion for her son Craig. Craig is now an adult who has autism and is non-verbal.
For example, when equipment in the Special Needs School program was lacking, Lori and her husband researched what was needed in Craig's school. Then they fund-raised to provide the equipment and cool tools that would benefit Craig and other students with special needs.
Later on Lori read the book called "Underestimated: An Autism Miracle" which introduced her to Spelling to Communicate. Again, through research and finding a practitioner, they learned how to use this communication tool which has opened up a whole new world of communication for Craig and his family.
This episode follows the compelling caregiving story of Lori Rogers. Lori is a successful businesswoman with three adult children. Her second child was diagnosed with autism at the age of two and he was a non-speaker.
In 2011 her eldest child had a sports-related injury resulting in post-concussion symptoms which added a different aspect to Lori's already full caregiving life. But, it was through this accident that Lori was introduced to wellness resources that helped her stay positive through all of the transitions she was facing.
She has adopted 6 positive activities that she shares in the epiosde - activities that personally help her frame her day with positivity and a raised happiness level. Lori has a business called "Positive Activity".
Then in 2022 there was yet another shift in her caregiving story - when through the book "Underestimated: An Autism Miracle" she was introduced to "Spelling to Communicate". As Craig was unable to speak to communicate this proved to be a game changer for them. Lori has a message to other parents of non-speaking children with autism - "they're listening!"
You'll want to hear how exciting this revelation has been for them as it has unlocked an amazing connection that enriches their relationship - and helps Craig to no longer have to eat green beans!
'Spellers' (the documentary)
April is Parkinson's Awareness Month and the airing of the podcast featuring Dr. George Ackerman are timely as he is a huge voice in raising awareness for Parkinson's Disease.
He and I spoke on February 1st, 2024 and the very next day he was able to meet his hero, Michael J. Fox. George shared how much this meant to him; given George’s passion as an advocate helping folks who are living with Parkinson’s Disease.
George had been the caregiver for his mom who had lived with Parkinson’s disease for fifteen years and then diagnosed with late onset dementia in her last four years. What George has learned through his caregiving journey with his mom, Sharon, helps spur him on to share his knowledge, passion and advocacy with others. He works tirelessly in his effort towards finding a cure for Parkinson's Disease.
He stresses that he does not do this for financial gain – but to raise funds for the Michael J Fox Foundation, Parkinson’s Foundation and the American Parkinson’s Disease Association.
To learn more, check out George's website: Together For Sharon
Dr. George Ackerman is from Brooklyn, N.Y. Now residing in Florida, he works in the fields of law, police, and education. George lost his mother, Sharon Riff Ackerman on 1/1/2020 due to Parkinson’s Disease.
George and his family started TogetherForSharon® to honour his mother by keeping her memory alive; and to share the message of Parkinson’s Awareness and hope for a cure.
Today TogetherForSharon® reaches thousands of individuals across the country for Parkinson’s Disease Awareness. George currently interviews individuals throughout the Parkinson’s community including various foundations, caregivers, and Parkinson’s warriors to help share their stories and causes, uniting voices in the fight against Parkinson's Disease.
George was his mother’s caregiver. She lived with Parkinson’s Disease and late-onset dementia. He takes his experiences now from caretaking to advocacy. Advocacy for caregivers, folks living with Parkinson’s Disease and those striving to find a cure.
This episode is airing just in time for National Parkinson’s Awareness Month and at the time of our taping, George was getting ready to meet his hero, Michael J. Fox. George and TogetherForSharon are huge supporters of the Michael J. Fox Foundation.
Social Media and Contact Information for George:
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Following the full podcast episode featuring Teepa Snow, MS, OTR/L, FAOTA, this mini episode captures the content of the GEMS® model which describes the stages of brain change for folks living with dementia.
Each stage is represented by a gem to help us understand the progression of dementia and how these stages impact the changes in our loved one's abilities.
All we need to do is to provide the setting so that our loved one can shine!
For more information and resources, be sure to check out Teepa's website.
Teepa Snow, MS, OTR/L, FAOTA, is an Occupational Therapist with over forty years of rich and varied clinical and academic experience. Her experiences led her to the development of the GEMS® States of Brain Change and the Positive Approach® training strategies.
Her company, Positive Approach to Care® (PAC), provides online and in-person education and products to support those living with brain change. She also founded the Snow Approach Foundation, a nonprofit organization based in Hillsborough, North Carolina. Teepa presents with extraordinary expertise and humor to audiences throughout the world.
After several former podcast guests spoke so highly of Teepa Snow and her Positive Approach to Care, I invited her to be a guest on the podcast. In this episode we hear directly from Teepa including her own caregiving story.
When we get curious about the actions, behaviour and communication of a loved one living with dementia we can use the information they provide to support them where they need support. By getting curious, things can change.
Check out Teepa's website for great information; and her YouTube channel for videos addressing specific situations.
This mini episode visits a few excerpts from the full episode entitled "Caregiving Unveiled True Purpose for an Encore Career" featuring Bill Cohen of Cohen Caregiving Support Consultants LLC
Throughout his caregiving for his mother who had Alzheimer's disease, Bill found many helpful resources through the Alzheimer's Association. This included a support group which he attended. His mother has now passed, and Bill facilitates support groups and hosts Memory Cafes. He shares about reminiscing activities such as 'Memory Joggers' and 'Have You Ever....?', plus Creative Engagement a resource by Rachel Wonderlin.
Bill talks about his virtual support group which is available for caregivers - anywhere! Knowing the benefit of having support when caregiving regardless of where one lives.
Bill Cohen recently received the “Male Caregiving Voice of the Year” award and when you listen to his caregiving story in this episode and how caregiving unveiled a new purpose which is now providing him with an encore career you may understand why he was selected.
Bill was his mother’s caregiver after Hurricane Katrina struck in 2005 and took away her home. First, he stepped in as her long-distance caregiver and then when she was able to move to be closer to Bill in the Pacific Northwest he became her primary caregiver all while juggling caregiving with his work commitments.
Bill’s mother had Alzheimer’s disease, and Bill found helpful resources along the way through the Alzheimer’s Association which led to him attending a support group. As time progressed, he became the support group’s facilitator which led to hosting memory cafes and learning of more helpful resources which he now shares with other caregivers.
Bill is the owner of Cohen Caregiving Support Consultants LLC, and is a Certified Senior Advisor (CSA)®,caregiving support consultant, elder mediator, volunteer and advocate for a cure for Alzheimer's disease. He helps folks manage their caregiving journeys with their care partners who are living with dementia. He speaks to organizations and meetings, and facilitates the caregiving support groups, both in person or virtually.
This mini episode highlights two excerpts from the full episode "Expressions Of Love Through Caregiving" with my guest, Grace Block.
The excerpts are about the medication battle with Grace sharing her solution to take administration of medication from a war to a choice; and the second excerpt provides some insights for new caregivers so they don't lose sight of their own identity. Grace also shares the importance of seeing the funny side of things when possible.
Grace Block is a long-time friend of mine who is a caregiver. She has also been a care receiver. Her dad was diagnosed at the age of 50 with Parkinson’s Disease and Grace supported her mom who was his primary caregiver. Grace relocated to be closer to her parents, realizing they needed more support and after her father passed 30 years after his diagnosis, Grace was grateful to live close to her mom who continued to live in their home, independently.
Then came the time her mom could no longer safely live alone, and Grace stepped into a more hands-on caregiving role, supporting her mom through what they thought were mini strokes. One day her mom left her a phone message that she did not remember making – and her behavior in that recording gave significant information that led to a diagnosis of what really was happening, then came dementia.
Grace takes us through the transition of moving her mom into first Assisted Living and then into Long-term care and the daily involvement she continues to enjoy with her mom to this day. Grace has a wise and gentle approach to caregiving, and she is not afraid or reluctant to accept help. One such source of help comes in the form of a secret weapon! Grace also talks about the comfort that the family’s pets can provide; and she speaks directly to caregivers who may be new to caregiving – offering wisdom as they start out.
Her mom, now 94 years of age, was also Grace’s caregiver for a time when Grace was diagnosed with Optic Neuritis – which meant she had trouble with light as her vision was impaired and she was no longer able to go to work.
Grace now considers it her privilege to care for her mom, as she really loves her – and she admits she feels very fortunate…. and sometimes very tired. This episode is full of candor and wisdom, not to mention expressions of love through caregiving.
2023 was indeed a remarkable year for the Island Treasures podcast. Throughout the year, Island Treasures was fortunate to have amazing guests who generously shared their wisdom on each episode, providing invaluable insights to help other caregivers.
We progress through the year chronologically:
- "Pharmacists: The Best Kept Secret" - Delon Canterbury
- "A Flood Amidst Caregiving" - Roxane Anderson
- "Could It Be Normal Pressure Hydrocephalus?" - Tracy Crump
- "Therapeutic Journaling Through Caregiving" - Lori Lemasters
- "Rising to the Occasion of Caregiving" - Toni Gitles
- "A Caregiver, A Life Coach and a 'Mompreneur'" - Natalie Hankins
- "Equipping Family Caregivers With Strategies, Tools & Insights" - Denise Brown
- "A Caregiver's Journey Into Brain Inflammation: A Wake-up Call for us All" - Sandra Strauss
- "You Just Have to Love Me: A Mother's Caregiving Journey" - Heidi Rome
- "A Caregiver's Transferrable Skills" - Katrina Prescott
- "How Boundaries Provided Freedom in Caregiving" - Valerie Wiens
- "A Hymn For Her: A Caregiving Story" - Kathy Neuhauser
- "The Musician's Daughter" - Betsy Haddad
We extend our heartfelt gratitude to all the amazing guests - whose contributions have made a significant impact on our caregiving community.
And with that... it's a wrap of the 2023 Island Treasures podcasts!
This episode highlights clips from the full episode "How Boundaries Provided Freedom in Caregiving" with my guest, Valerie Wiens, telling why boundary-setting was so freeing for her.
Valerie was a true 'sandwich generation' caregiver, looking after her parents and her own family that included kids at home one with Aspergers and one with ADHD. She also was working full time as a case manager in the health care system; and even though she was well-versed in navigating the system and helping others, when it came time to don her "daughter hat" instead of her "career hat", she realized why she was often asked "what do we do about mom?". This question took on a new meaning and also became the title of her book - written to help caregivers by combining her personal experiences with her professional knowledge.
Valerie Wiens, a nurse with a geriatric specialty and a 'sandwich generation' caregiver joins me in this episode. Valerie is a colleague of mine and when I heard her caregiving story, I invited her to be a guest on the podcast.
When caregiving, she found herself being pulled in all directions and through the observation of her husband, she learned the importance of boundary setting. By creating boundaries she not only could manage her roles better, but they provided a sense of freedom and gave her the ability to give fully within the boundaries she set.
Within her career as a nurse, Valerie is often asked questions of how to navigate challenges facing aging parents. Out of those questions, Valerie put her personal experience, professional knowledge of the healthcare system as well as creative problem-solving into a book called ‘What Do We Do About Mom?’
In addition to writing the book, Valerie is now the owner of Keystone Eldercare Solutions. Through her business she is able to provide care locally in the Comox Valley and remotely – helping guide families in their decision making and identifying problems to solve creatively. Valerie is also proudly certified as a Teepa Snow Care Consultant which is our foundational approach for dementia care.
On her days off, Valerie aims to get out in her kayak and stare at blue ocean with her husband Les or their 3+1 grown children if they come join.
From Season 2, Episode 2, this episode revisits the conversation with Betsy Haddad, the adult child and supportive caregiver of her father, Edward with whom she shared a special bond through music.
The take-aways from the full episode "The Musician's Daughter" are many. Betsy shares about the programs her dad participated in prior to Covid 19; including Arts the Spark and the Brain Flex Wellness Program.
Betsy shares how important it is to plan for future care needs and we touch on a very brief overview of Advance Care Planning.
In this episode you will hear how all about Breeda Miller's play, "Mrs. Kelly's Journey Home" and how Breeda was able to take the play to Ireland.
Breeda had been a guest on the Island Treasures podcast in Season 3, on Episode 20; where she talked about her play and the tour that was planned for the Fall of 2023 in Ireland. This episode talks about the fruition of the tour and what it was like to perform the play in Ireland!
This episode consists of two parts, just like Breeda's play. The first 'act' was recorded in Ireland shortly after the Irish debut of her play. The second 'act' was recorded back home in North America. This entire episode is also available in video format.
You'll hear about how Breeda's play is sweeping the nation as well as the tour; and if you'd like to join Breeda on her next tour of Ireland - she shares when she hopes that will be.
If you'd like to learn more about the resources Breeda has developed for caregivers, or about her play, or engage her as a keynote speaker - you can do so through her website Breedamiller.com
In the full podcast episode featuring Katrina Prescott, Katrina spoke about the many projects she has been involved with and this mini episode introduces one more project planned to enhance the experience for caregivers. It is the introduction of a radio program designed to provide caregiving tips, information, support, and to offer a forum for caregivers' questions.
In her own caregiving experience Katrina was desperate for respite and now has a passion to help others advocate to obtain meaningful breaks within caregiving, true respite.
As the radio program becomes a reality, you'll want to check out Katrina's website to access the URLs for the program which she also plans to flip into a podcast.
This episode’s guest is Katrina Prescott. Katrina is both a caregiver and a producer.
As a caregiver she has been able to utilize her producer-skills to be a strong advocate for her mom who had dementia. Her mom passed away in 2022, but Katrina continues to be a caregiver and advocate for other caregivers, sharing her knowledge and insights through many projects.
Katrina was introduced to caregiving at a young age, and supported her mom who was the primary caregiver for her grandma, and then was herself the primary caregiver for her own mom for 7 years when she received the diagnosis of dementia.
Katrina’s lived experience motivates her to inspire change - which she does by participating in different advisory groups and research projects for caregiving and dementia. Katrina is an active voice for creating adequate and effective care for those who depend on it and for finding innovative ways to bring resources to caregivers, such as through the web series she produces called “Therapeutic Fibbing”. Katrina shares a passion for helping caregivers in so many ways including as a caregiving consultant. Visit her website for more information.
This mini episode contains excerpts from the full episode and addresses what happens when friends and family drop away and the social invitations to caregivers cease.
Heidi Rome helps us approach this situation and reminds us that there are folks who are open to learning how to support the caregiver and are willing to show up; making choices such as to love instead of fear. These folks ask Heidi's two helpful questions: "How Can I Be of Service?" and "What is Needed?"
Heidi shares an optical illusion to illustrate how what we focus on can impact our quality of life. To see this illustration the video version is available on the YouTube channel.
This mini episode features excerpts from the full podcast episode entitled “A Caregiver’s Journey Into Brain Inflammation: A Wake Up Call for Us All”, featuring Sandra Strauss, the author of “A Toxic Brain: Revelations from a Health Journey”.
As a caregiver trying for years to get to the bottom of her late husband’s mysterious illness, Sandra heard a podcast featuring Dr. Bredesen in which she learned about a toxic type of Alzheimer’s and when she heard the characteristics, she realized her husband ticked all the boxes for this type of Alzheimer’s. She finally had the clarity she had been searching for and was able to put the puzzle pieces together.
Sandra shares more about toxicity; and how factors such as mold, heavy metal, and even our genetics play a part and can impact our brain health.
You may be wondering how to deal with the toxins that may be bombarding us today? Tune in as Sandra shares how functional medicine can help.
Sandra Strauss provides a message of hope in these inflammatory times! She shares what she learned during her long and at times agonizing journey as a caregiver for her late husband both in her book and now in this episode.
Sandra Strauss is an author, speaker and wellness champion who is passionate about inspiring dynamic destinies of health and wellbeing. Over decades, she has tracked a wide range of issues promoting countless ways for optimizing health in a world out of balance. As a senior, well-seasoned with a dozen years of caregiving for neurologically impaired loved ones, provided her with important perspectives on today’s health issues as well as strategies to support and sustain vibrant living.
As a wellness champion, and author of several books, Sandra advocates smart choices that support wellness and wellbeing. In her most recent book, A Toxic Brain: Revelations from a Health Journey, Sandra unpacks the complexities encountered while unraveling the causes of her late husband's mysterious illness. She details her unrelenting pursuit for answers regarding her husband’s acute disabling illness, and the paradigm shift needed for resolving many of today’s 21st century health issues. Recognizing the power of information and lifestyle choices that can transform health destinies in today’s inflammatory times, Strauss sounds the alarm as a wake-up call for us all.
From her experiences, Sandra is compelled to share an all-too-familiar path that millions find themselves traveling now as caregivers. As an endurance run of body, mind, and heart, she also speaks about the challenges of caregiving for neurologically impaired—family dynamics, relationship changes, care issues, legal consequences, and support strategies--to assist others in navigating through the many challenges that accompany these and other chronic illnesses.
In an earlier book, Get Along with Anyone, Sandraoffers strategies for creating dynamic relationships at work, home and beyond. Strauss’ philosophy for aligning with the heart’s desires, as well as navigating life’s inevitable twists, turns, and unexpected realities, is showcased in a collective work, Dancing through Life with Guts, Grace & Gusto!—Fancy Footwork for the Woman’s Sole.
A Toxic Brain: https://lnkd.in/gv8M4CN2
Website: Sandy@sandrastrauss.com
LinkedIn: https://www.linkedin.com/in/sandrastrauss/
FB page: https://www.facebook.com/SandraCStrauss
Instagram: https://www.instagram.com/sandrastrausswellness/
TikTok: https://www.tiktok.com/@atoxicbrain
When I heard Kathy Neuhauser's story of how important it was for her, as a daughter, over 1000 kilometers away from her mother, to find a way to make a meaningful connection with her mom, I wanted to share what she decided she could do. This unique solution, not only blessed Kathy's mother, but also Kathy!
She described their relationship as not 'touchy-feely' and that added to her challenge; yet she discovered a way to make that connection, first, when she was visiting her mom in the hospital, and then when she returned back to her home - assuming the role of a long-distance caregiver. .
This is a special episode as it is the first in-person (in-studio) recording of the Island Treasures podcast.
Hearing from a friend about the resources and programming offered by Denise M. Brown I knew I had to meet her and check out her Caregiving Consultant programs for myself as I was just starting my own business at the end of my social work career.
In the episode you will hear directly from Denise about her own business and its origins, as well as her caregiving story. First, here's a more information about Denise: Denise supports individuals managing difficult life experiences with coaching, planning and training. Through her work, Denise helps clients find hope, possibilities and a path forward.
Denise began helping individuals who care for a family member in 1990 and launched a business to help them in 1995. She created one of the first online caregiving communities in 1996 which she managed until its sale in 2020. She now develops and delivers training programs for the workplace and for individuals who want to coach family caregivers. More than 400 individuals from eight different countries have enrolled in her training programs offered through her company, The Caregiving Years Training Academy.
Denise developed several concepts, including The Six Caregiving Stages, The 12 Caregiving Fatigues and The 17 Caregiving Systems, which both explain the complexity of a personal caregiving situation and inspire interventions to better support family caregivers.
For 18 years, Denise led Lunch and Learn workshops at employers located in the Midwest on behalf of Employee Assistance Programs and Work/Life Benefit companies. Her seminars consistently were rated “Excellent” or “Very Good” by attendees. Her workshops provide insights to help attendees manage their work/life balance, their stress and their caregiving responsibilities.
Denise is the author of several books that provide insights, comfort and hope to those who care, including The Caregiving Years, Your Guide to Navigating the Six Caregiving Stages and After Caregiving Ends, A Guide to Beginning Again. Her free resource, A Workbook for Your Workplace Wellness, helps individuals who care, grieve and work.
Denise began helping her parents in 2004 after her father’s bladder cancer diagnosis. Her mom, who had Parkinson’s disease, died in August 2022, one year to the date after Denise’s brother died. She continues to care for her father who is 91.
Next Avenue named Denise a 2017 Influencer in Aging, one of “50 advocates, researchers, thought leaders, innovators, writers and experts who continue to push beyond traditional boundaries and change our understanding of what it means to grow older.” Her insights have been featured in The Wall Street Journal, The New York Times, US News & World Report, USA Today, SmartMoney.com, Time magazine and Chicago Tribune.
Contact:
• Email: denise@careyearsacademy.com
• Phone: 773-343-6341
Check out these links:
• Caregiving Reflections, a weekly newsletter: https://denisebrown.substack.com/archive
• Caring Our Way: https://join.caringourway.com/
• The Wall Street Journal: https://www.wsj.com/articles/these-self-care-strategies-can-help-caregivers-cope-with-burnout-11640782803?st=37dob9tjnjt4tke&reflink=desktopwebshare_permalink
In this episode we visit a clip from the full episode entitled "A Caregiver, A Life Coach and A 'Mompreneur'" which features Natalie Hankins (a caregiver, a life coach and a 'mompreneur') where I ask Natalie what her biggest struggle was as a caregiver, an experienced caregiver with 29 years of caregiving experience for her two adult children who have special needs.
You'll hear her answer and how she works to solve a specific example - by coaching herself - during the episode.
As a follow-up to the full-length Island Treasures episode called "Voila! Caregiver" (Episode 22 of Season 3), this mini version includes a couple of excerpts highlighting Debbie Compton's insights: talking with a consultant and taking her mom and her mother-in-law together to an appointment - and how challenging it was to get them ready. Hear all about this and the funny ending to the story and how she was able to conclude it was indeed a victory!
Debbie invites caregivers to join her for a free consulting session as she is a certified caregiving consultant and certified caregiver advocate and educator. You can find out more about Debbie, her books, services and inventions on her website "The Purple Vine"
Debbie Compton is a three-time caregiver for parents with Alzheimer’s, Parkinson’s, and vascular dementia. She’s a Certified Caregiving Consultant, Certified Caregiver Advocate, keynote speaker, and author of 6 books geared toward caregivers and seniors.
Debbie has been a Community Educator for the Alzheimer’s Association since 2017 and is the founder of The Purple Vine, an organization created to spread awareness about all forms of dementia.
Her mission is to empower caregivers with the tools needed to reduce stress, find more joy, and live their best life.
Debbie is a wife, mother of 4 children and 6 amazing grandchildren. She lives in Oklahoma City.
Mrs. Kelly (played by Breeda Miller) appears for a cameo performance in an excerpt from the 2 act, one-woman play "Mrs. Kelly's Journey Home". Breeda found she was in the sandwich generation of caregivers when she started to provide care for her mother who had vascular dementia and quickly had to learn how to make it through each day on this unplanned journey. She admits there was a lot about caregiving that she didn't know but knowing that she loved her mom she quickly learned what she needed to know.
Breeda wrote the book she wished she'd had when she was trying to figure things out. Then she wrote another book and the play which she is taking to stages across North America. "Mrs. Kelly's Journey Home" is warming the hearts of caregivers and non-caregivers.
I invite you to enjoy a cup of tea with Mrs. Kelly while listening to this mini episode of the podcast.
Breeda Miller is a story teller and a caregiver who is able to share her caregiving experience through the lens of story and good humour.
People who care for others are often the worst at caring for themselves. Breeda calls herself a recovering caregiver, caring for her mother for 6 years, including hospice care in her home. She is a professional speaker and a wonderful storyteller. In fact, her stories have been broadcast on The Moth Story Hour on NPR and one of her videos went viral (in a good way) and got over a million views. She is able to combine stories with creative problem-solving ideas. She has found that good humor is the secret sauce to her success and to yours. She has written two award-winning books all about self-care.
After two successful books and years of professional speaking Breeda has recently done something that scared the living daylights out of her. She has written and performs a one-woman play, called Mrs. Kelly’s Journey Home. It’s the story of her family’s immigration from Ireland and her journey as her mother’s caregiver as she developed dementia. It’s filled with heart, humor and lessons about what really matters. She’s a native Michigander who lives with her family, including two adult sons with cognitive impairments in a drafty old farmhouse with a spectacular screened porch, her personal refuge.
For more information on Breeda, her play and resources, check out her website
From the audio version of the Island Treasures podcast for Caregivers, this mini episode addresses what Jodi Kay Benusa (Independent Geriatric Consultant and Licensed Social Worker) shared about being a compassionate scientist and how we can all adopt this approach to be inquisitive and find out what's behind our actions; by taking a pause we can uncover the reason so we can make changes with the goal of improving the outcome. It's not just me talking about the episode, but this video contains Jodi speaking about the pact she made with herself to prevent burnout as well as the compassionate scientist concept.
Click here for Jodi's website
Jodi Kay Benusa is an Independent Geriatric Consultant who is a licensed social worker. She has been providing care in various ways throughout her entire life and it came as no surprise that she would enter the field of social work.
Jodi works hard to preserve the rights of aging adults so they can live their best life through the toughest of times and she does this by asking questions so she can tailor her services to the needs of her clients. She is a problem solver who enjoys breaking through barriers to meet client goals.
Jodi shares her own experience with burnout and how she is now able to recognize the warning signs and how to take steps to avoid burnout.
Jodi introduced me to the term 'compassionate scientist' where exploring our reactions in situations helps us extend compassion to ourselves and others; simply, by stopping what we're doing, taking the pause and being compassionate instead of defensive.
Click here to visit Jodi's website
Licia Thompson (liciathompson.com) is a Reinvention Strategist and in this episode she shares her number one tip for caregivers. Licia is the founder of Licia Thompson Coaching & Consulting LLC and she combines her life skills from her caregiving experiences for both her parents with her professional skills in leadership roles to help folks move forward after caregiving, or other life transitions. Licia learned many lessons - some the hard way - to hear more about her experiences, you'll find the full episode on Island Treasures Season 3, Episode 16 on the Whole Care Network.
Licia Thompson has been a caregiver for both of her parents, separately, and at different times throughout her adult life while she simultaneously worked in corporate America and was a single mom. During this time she was in “Go Mode” and just kept on dealing with all the tasks at hand because that is what you do in “go mode” – and she learned the hard way that neglecting self-care and ignoring warning signs of her own health had its consequences.
Licia's parents have now passed and she has written her book “When Your Soul Whispers". She combines her caregiving skills, lessons and insights with her leadership and coaching skills in her work as a 'reinvention strategist' as she helps folks redefine their values and move forward after life's transitions, including caregiving.
You can find out more through Licia's website liciathompson.com
This episode of the Island Treasures podcast for Caregivers draws from the full episode “Telling the Full Story of Caregiving” featuring retired broadcast journalist, and author of "Winter Stars, an elderly mother, an aging son, and life's final journey", Dave Iverson.
We start with Rosalyn Carter’s quote about caregivers and proceed to explore the aspects of caregiving that face us all as we lift the blinds to see what lies before us in caregiving. We start at the individual level and go to the broader level.
This episode invites you to join in the conversation so together we can find ways to make resources available for all caregivers regardless of financial situation.
You may wonder why there's a cheeseburger reference - for the answer listen to the full episode of the Island Treasures Podcast Season 3 Episode 13.
This Mini podcast episode touches on some of the key points raised in the full podcast episode for caregivers called "Telling the Full Story of Caregiving" (Season 3 Episode 13) including whether caregivers are called or guided or compelled to step into caregiving. We review the broad scope of caregiving on the macro and micro levels.
I talk about Dave Iverson's book "Winter Stars: An elderly mother, an aging son, and life's final journey" as well as Dave Iverson's PBS Frontline Documentary called "My Father, My Brother and Me".
There's a shout-out of appreciation to Denise Brown of the Caregiving Years Training Academy for introducing me to Dave Iverson. And for more information on Dave or his book you can visit his website
Dave Iverson is a writer, documentary film producer/director and retired broadcast journalist. When Dave was 59, he moved in with his 95-year old mom Adelaide when she could no longer care for herself. His new memoir Winter Stars: An Elderly Mother, an Aging Son and Life’s Final Journey tells the story of the 10 year caregiving odyssey they shared until her passing at the age of 105.
Dave has produced and reported more than 20 documentary specials for PBS, including the Frontline film, “My Father, My Brother and Me” which explored his family saga with Parkinson’s disease. He’s served as a special correspondent to the PBS NewsHour and hosted local PBS and NPR programs for 35 years at Wisconsin Public Broadcasting and at KQED San Francisco. Dave is also a founding member of The Michael J. Fox Foundation’s Patient Council.
His awards include a national Emmy, four regional Emmys and numerous film festival citations. Winter Stars is Dave’s first book.
This episode was a conversation that helped shine a light on the truths of caregiving: its rewards, opportunities, lessons and challenges on a personal level and also at the broader level. Dave helps us pull up the blinds to see what is really before us in caregiving.
You can obtain a copy of Winter Stars: An Elderly Mother, an Aging Son and Life’s Final Journey from Amazon.com or your favorite local bookstore. Royalties from book sales will go to support three organizations: The Michael J. Fox Foundation for Parkinson's Research, Dance for Parkinson's and Avenidas, an eldercare support organization in the San Francisco Bay Area.
You can visit Dave's website: www.daveiversonauthor.com
The Mini podcast episode highlights some of the key points from the full podcast episode for caregivers called "Nurturing Caregiver Wellbeing During & After Caregiving" where Theresa Wilbanks of Sustainable Caregiving shares how she applied the strategies she developed to help sustain her own wellbeing during and after caregiving. Some of the topics include her book, "Navigating the Caregiver River" and the creation of a joint venture with Theresa and Alison co-hosting a limited series podcast called "Self-Caregiving Strategies".
When today’s guest first appeared on the Island Treasure podcast, she was actively caregiving for her 99-year-old father. Shortly after the podcast aired, he passed away, and she found herself needing a re-set. You’ll hear about the “reset trip” Theresa Wilbanks was able to take - spending time in nature and practising self-care strategies!
Theresa has written and published “Navigating the Caregiver River: A Journey to Sustainable Caregiving” a book she describes as a big hug for family caregivers as it provides strategies to help caregivers with their emotional wellbeing and provides practical and supportive approaches for caregiving. For more information on Theresa’s book and her 12 Sustainable Caregiving Strategies visit her website SustainableCaregiving.com
During this episode the idea of Self-Caregiving arose which is now the basis for a new limited podcast series called "Self-Caregiving Strategies" which will be co-hosted by Theresa Wilbanks and Alison van Schie and will be available (July 5th, 2022) on the Whole Care Network.
Using the methodology of LEGO Serious Play, Loretta Veney facilitates sessions for various audience; and she shares how beneficial these sessions can be for her audiences including sessions designed specifically for caregivers... such as the "Unbreakable Caregiver" session. This mini episode captures a couple of excerpts from the full episode (Episode 9, Season 3) where Loretta shares her creativity and how caregivers learn from the exercise and the revelations that they have. Here's the link to the video version of the mini episode of "Building the Unbreakable Caregiver" featuring Loretta Veney.
This “fabulous” interview with Loretta Veney builds on a caregiving relationship spanning 16 years. During those years my guest discovered a unique approach to enhance the relationship between herself and her mom who had dementia. LEGO had been a part of their lives before caregiving and turned out to be an effective and enjoyable communication tool through which Loretta continued to communicate with her mom. This interview was recorded on International Women’s Day – which turned out to be an appropriate day to learn about the significance of the day as it relates to “Wonder Woman”.
Loretta Woodward Veney is an inspirational speaker who has delivered more than 300 speeches and presentations on dementia and caregiving since 2014, offering a wealth of information, encouragement and humor to her audiences. Loretta is the author of Being My Mom’s Mom, Refreshment for the Caregiver’s Spirit, and Colors Flowing from My Mind. In 2006 after her beloved mother Doris was diagnosed with dementia, Loretta began learning everything she could about the disease becoming a fierce advocate for her Mom in the process. Loretta and her Mom have been featured in articles in the Wall Street Journal, Psychology Today, The Washington Post, The NY Times, AARP Caregiver Stories, as well as a PBS special. In 2019, Loretta was selected as Trailblazer of the Year by Johns Hopkins Medicine. In November 2021 Loretta and her Mom were featured in Episode 6 of Season Four of Robin Roberts Thriver Thursdays series, which previewed on Good Morning America during National Caregivers Month. Loretta’s Wonder Woman Mom’s 16-year journey ended on January 31, 2022.
In this mini episode we visit the full episode (Season 3, Episode 7) where Brenda Leppington read her story "Who Am I Hurting" from Chicken Soup for the Soul's "Navigating Eldercare & Dementia: 101 Stories for Family Caregivers, compiled by Amy Newmark, © 2021. The episode addresses what Brenda believed her Mom meant when she said she just wanted to be normal again. And, what about those stacks of old letters? We discover there is a purpose for them! Tune in to hear how Brenda helped her Mom feel useful, hospitable and normal again amidst the changes brought about by dementia.
From Chicken Soup for the Soul's "Navigating Eldercare & Dementia: 101 Stories for Family Caregivers, compiled by Amy Newmark, copyright 2021 - today's episode features the reading of "Who Am I Hurting?" by its author, Brenda Leppington. As her mother's caregiver Brenda learned many lessons. She shares what brought more meaning into their visits. Simple things that we often take for granted.
Hearing the story read by Brenda gives the story an increased layer of richness as it not only provides important take-aways that can help present caregivers, but it also connects the listener to their loving relationship and what made it so.
As we visit some of the key points of the full episode (Season 3 - Episode No. 5) of the Island Treasures podcast "Helping Families Soar" with Mike George, we hear Mike tell how he realized this is a role you can't do on your own. This led Mike and Jan to create a Caregiver Support Formula as they wished there had been a handbook available for their caregiving. The episode addresses the different degrees of involvement for caregivers and note that all caregivers can benefit from supports such as the ones provided through Soaring Families.
Mike George is a speaker, author, and co-Founder of Soaring Families, an organization he and his wife created to help family caregivers navigate the complex world of care through the development of a reliable support network and a trusted team of competent peoplewho share their vision of care.
As a caregiver himself for nearly 3 decades, Mike intimately understands the burdens of supporting the primary care of a loved one. But he also knows the tremendous fulfillment it can bring. This lived experience was the inspiration behind the creation of The Soaring Families Way™, a proven model that guides families in creating the best home care experience, and generates positive change for everyone involved in the caregiving journey.
Listen as Mike shares his inspirational 30 year journey as father and caregiver for Ben and be sure to check out the Soaring Families' website at Soaring Families and you'll find Ben's story on the "About Us" page.
Today's topic for caregivers is respite. We explore travelling with Elite Cruises and Vacations Travel on their caregiving cruise opportunities to make memories with your loved ones AND obtain a minimum of 2 hours a day of respite. We visit micro breaks to infuse moments of respite into your caregiving day when cruising isn't an option, yet just thinking about taking a cruise can be a helpful moment of respite.
Thank you to Kathy Shoaf, RN, BSN, ATP who appeared as the guest on this episode and provides this opportunity for caregivers and their loved ones to travel.
Are you wishing you could travel, perhaps like you used to do before caregiving? Well, this episode will introduce you to the possibility of doing just that. Listen to Kathy Shoaf as she shares her own caregiving story and as a registered nurse (geriatric neurology specialist) how she found a way to help folks enjoy life and have happy times through her business Elite Cruises & Vacations Travel www.elitecruisesandvacationstravel.com
Kathy and her company believe that travel is for everyone! Since 2005 they’ve been helping clients across the nation take their dream vacations to some of the most beautiful spots in the world; specializing in accessible travel and ensuring that every moment of their trips can be enjoyed without restrictions. Their custom cruises and travel events cater to those with diagnoses such as Dementia/Alzheimer’s, Parkinson’s, MS, Diabetes, etc., as well as their caregivers and family members. The link that follows takes you to a video, perhaps we could call it a teaser, that aired October 2021 in both audio and video form. https://youtu.be/MSV7-VJ1pGc
Kathy Shoaf, RN BSN ATP, owner of Elite Cruises and Vacations, is uniquely qualified to understand travel challenges and develop effective solutions. She has 20+ years of clinical and management experience in Geriatric, Neurology, Rehabilitation, and Senior Housing as a registered nurse and adaptive technology professional. She is a Certified Dementia Educator, A Certified Accessible Travel Specialist, a Fellow at the American College of Healthcare, an Athena Nominated Senior Care Advocate, and an American Express Travel Agency Award Winner. She personally accompanies each and every cruise group and sometimes even brings her parents along!
Following Island Treasures' Season 3's first full episode called "The Brave Caregiver" with guest Jennifer Richey, this episode speaks to the courage it takes to step into caregiving. It provides a brief re-cap of Jennifer's 10 year caregiving journey. Jennifer is a coach and a Certified Caregiver Consultant and involved in CareyearAcademy.com's Family Emergency Planning Sessions. Jennifer's website is Bravecaregiving.com
At the beginning of this episode Jennifer warns that her caregiving story is long! She has over 10 years of personal caregiving experience caring for her parents and grandfather. She has dealt with caregiving issues related to veterans, organ transplants, in-home caregiving, home modifications for aging in place, assisted living and hospice. Professionally, she is a certified life coach through The Life Coach School, as well as a Certified Caregiving Consultant, Educator and Support Group Facilitator through the Caregiving Years Training Academy. She launched her own business, Brave Caregiving, in 2019, where she helps caregivers who are struggling while taking care of their aging parents. In addition, she has over 4000 hours of coaching experience working for The Life Coach School as a contracted coach for their Self Coaching Scholars program. Prior to caregiving, Jennifer was a Director of a community-based behavior management service for adults with intellectual disabilities at the Institute for Applied Behavior Analysis (IABA). Her 20+ years at IABA gave her extensive knowledge of challenges facing families with children and adult children with disabilities, as well as how to navigate the state funding in California.
Jennifer provides support to caregivers in a variety of ways through coaching, consulting, and training. Jennifer received her Bachelor's Degree in Liberal Studies from Chapman University in Orange, CA and her Master's in Organizational Management & Leadership from Ashford University. Jennifer and her wife became emergency placement foster parents for their newborn nephew in 2019 and finalized their adoption in October 2021. She has been an advocate for LGBTQIA+ issues in both her coaching and personal life. She enjoys traveling and most recently got married in Iceland in 2018 to her partner of 20 years. They currently reside in Orange County, California with their 3 year old son and 2 dogs.
Jennifer's website Bravecaregiving.com
Looking back over 2021. A few highlights from 2021 are discussed along with a tapestry story at the conclusion where the titles of the full episodes of Island Treasures Podcasts are woven into a story.
Following Episode 19 of Season 2 of the full-episode called Preserving Memories, with guest Beth Douglas, this mini episode builds on the importance of preserving memories, especially with our loved ones while they are still with us. After accompanying my own mother-in-law over two decades earlier as her "lady-in-waiting" (caregiver) for what turned out to be her last trip, I discovered the value of the memories I had preserved through video.
A beautiful conversation with Beth Douglas about caregiving for her parents and what she is now doing to encourage folks to capture the stories of their loved ones.
Beth lost both of her parents to dementia-related illness and decided to use her skills to spread awareness and help caregivers as well. She is a writer and marketing communications professional with a passion for communications in the area of healthcare, senior care, and dementia education. She resides in FL and continues to be an advocate for quality care for the senior community.
Beth speaks about incorporating Teepa Snow's Positive Approach to Care in her own experiences of redirecting, using physical touch, eye contact and using a calm and reassuring tone of voice.
Beth is a contributing writer for the Aging Times Magazine and also facilitates Senior Circle Stories
Excerpts from Episode 17 of Season 2 of Island Treasures Podcast captured in this mini video version for caregivers. You will hear Zander explain the calming effect of Fractals in Nature along with his techniques to focus on the positives to avoid burnout as a caregiver. This mini episode touches on resources and the benefit of seeking supports specific to your caregiving needs and he highlights the resources available for Veterans. For more details on the resources, tune into the Island Treasures for Caregivers podcast episode entitled "No Time for Burnout!".
An episode filled with insights and resources. You'll want to pay close attention if you are a caregiver for a veteran, or if you are a veteran yourself.
Zander Keig is an award-winning speaker, educator, author, and Licensed Clinical Social Worker with many distinguishing accolades including: 2020 NASW National Social Worker of the Year. Zander is a first-generation American of Mexican heritage (Latino), and a post-transition transsexual man. Zander is a Coast Guard Veteran and the primary caregiver of his elderly Veteran father who is diagnosed with Dementia. Zander fills this episode with his own experiences that offer take-aways for all of us. He is applying the teachings of the DAWN method from an earlier episode and seeing first-hand the positives this strengths-based approach provides.
As a retired social worker I was excited to ask Zander about being the 2020 NASW Social worker of the year - and as he shares his experiences and resources it was not surprising he received many nominations from his peers.
You can contact Zander through his website www.zanderkeig.net or through LinkedIn www. linkedin.com/in/zanderkeig or zander@zanderkeig.net
Another fabulous find for caregivers of folks with dementia. Hear all about this opportunity to cruise with your loved one who has dementia or other illness so you can create memories whilst enjoying a dementia-friendly environment. This opportunity includes respite for caregivers. For more information on this travel opportunity check out www.elitecruisesandvacationstravel.com
Island Treasures for Caregivers Mini podcast where Alison van Schie, Certified Caregiver Consultant and the host of Island Treasures shares a few thoughts on the most recent full-length episode (#13 Skills Retained: Strengths-based Approach to Dementia Care) where guest and creator of thedawnmethod.com Judy Cornish explained the strengths-based, person-centred and kind approach to dementia care. Alison speaks about a story from Chicken Soup for the Soul's "Navigating Eldercare and Dementia" entitled 'More Than Just a Blanket' written by Brenda Leppington and how this blanket worked its magic in boosting the person-centred approach to care.
October 5, 2021 marks one year since airing the trailer for Island Treasures. This episode celebrates the development of the podcast by introducing each episode and each of the guests. There is a video version of this podcast on https://youtu.be/aEDZYSFYHuI with the added bonus of seeing each of the guests who have provided such great content for this past year. Join me in celebration and on this occasion if you like the episode, please provide a rating and a review; and be sure to share with your friends.
In this episode you will hear about the strengths-based, person-centered approach to dementia care from my guest Judy Cornish.
Judy Cornish is an author, founder of the Dementia & Alzheimer’s Wellbeing Network (DAWN®), creator of the DAWN Method® of dementia care, and a retired elder law attorney. Her two books (The Dementia Handbook and Dementia With Dignity) take person-centered dementia care from theory to practice by identifying the skills not lost to dementia. Through DAWN, Judy Cornish provides online training programs for families and professional caregivers, as well as certification courses for agencies and facilities. Her goal is to see dignified dementia care and aging in place become available for all.
This strengths-based approach offers the listener the opportunity to choose to look at dementia from a functional and experiential perspective instead of focusing on what the person with dementia can no longer do because of the skills they have lost. Judy offers meanings and suggestions to help us understand how to lessen our guilt, stress, conflict, pain and exhaustion as caregivers by recognizing the skills that are still present in our loved ones or care recipients who have dementia.
For more information on the Dementia & Alzheimer’s Wellbeing Network® (DAWN) and the DAWN Method® contact judy@thedawnmethod.com
www.thedawnmethod.com
And her social media links:
LinkedIn: https://www.linkedin.com/in/judycornish/
Twitter: https://twitter.com/theDAWNmethod
Facebook: https://www.facebook.com/theDAWNmethod
Island Treasures for Caregivers - MINI podcast, where Alison van Schie, the host of Island Treasures, shares a few thoughts on the most recent full-length podcast episode, which was "A Parting Gift" with guest Arlene Jacobs. Alison reflects on how meaningful the parting gift can be as this episode was fresh in her mind as she attended a family member's Celebration of Life. The mini format offers a brief introduction to the topic of the full episode so listeners know what to expect when they have more time to listen to the full episode.
From a caregiving perspective, Arlene Jacobs talks about the benefits of pre-planning final arrangements and how to broach those difficult topics. Arlene was a full-time caregiver for her son who passed away at 18 months of age. She was then the caregiver for her mom and talks about her mom's situation and how she was able to prepare for her passing; and now Arlene continues to be the primary caregiver for her father who is 103 years of age. Arlene shares what she learned when she went to pay for her son’s funeral with the intention to use his life insurance. This podcast contains considerations regarding how beneficial it is to keep the lines of communication open with your family and why it makes sense to give “A Parting Gift" for your family. You can reach Arlene at Arlene.Jacobs@DignityMemorial.com
Introducing Island Treasures for Caregivers - MINI podcast, where Alison van Schie, the host of Island Treasures, shares a few thoughts on the most recent full-length podcast episode, which was "Through the Lens of a Long-Haul Caregiver" with Chandra White-Cummings. Alison adds some personal reflection and suggests how there are nuggets/treasures within each episode for listeners to glean from the content to apply to their own caregiving situation. The mini format offers a brief reflection for the listeners and hopefully entices folks to listen to the full episode when their caregiving schedule permits.
Meet Chandra White-Cummings, a self-described long-haul caregiver with vast experiences from her own caregiving journey of 33 years and counting. Chandra delves deeply into lessons about the ethos of care emphasizing how important it is to care for others. She couples her experiences as a long-haul caregiver caring for her chronically ill son, caregiving coach for a second son; and caregiving partner with her mother; with her certification from the Trauma Healing Institute to facilitate trauma healing groups. If you have experienced trauma especially in caregiving, this episode is for you as you will hear how Chandra helps folks mine through the layers of pain caused by trauma, including catastrophic and repeated trauma, with the goal of healing.
Chandra is a professional writer and editor and 2020 Caring Across Generations Care Fellow. She exemplifies her belief in the importance of caring for others by sharing her wisdom and insights on Island Treasures through many nuggets -including how important it is for folks to retain their own identity and not lose themselves completely in their caregiving role and responsibilities.
You can connect with Chandra by email at Caring4ourfamilies@yahoo.com.
Erin Galyean, author of "Badass Advocate: Becoming the Champion Your Seriously Ill Loved One Deserves" shares her insights from lessons learned as her sister and dad's patient advocate. Erin's experiences and professional skills equipped her to create strategies to help other patient advocates and caregivers build on the foundation she has laid so they can start strong in their caregiving journeys. Caregiving is hard and Erin's passion is to reduce the stress for others by sharing what she has learned. She invites the listeners to cherry-pick from her strategies to tailor their approach to individual caregiving situations. This episode will help prepare the listener, whether a patient advocate, a caregiver, or future patient advocate or caregiver to start strong when the time comes.
Chris Maclellan, founder of the Whole Care Network shares his story about his heartfelt caregiving experiences for his partner, Richard, through to the next chapter of his caregiving journey where he is now advocating for all caregivers.
As a family caregiver advocate, Chris reminds caregivers that we know our loved ones best – we are their Chief Everything Officer (CEO). He also reminds family caregivers that caregiving is all emotional and when we focus intensely on our care partner/loved one we often neglect ourselves. Being a CEO or wearing a Caregiving Cape does not mean we can do it all ourselves; and what better place to obtain supports and resources than through reliable and credible information from other caregivers and their stories.
The importance of conversations and relationships are both topics we discuss in this episode. Listen to Chris speak about a unique caregiving approach he implemented and how this approach provided an opportunity for difficult conversations to take place during the vulnerable yet trusting “poop-a-rama” conversations.
Lisa Kendall, the caregiver to caregivers and social worker specializing in gerontology, brings a wealth of knowledge as she speaks about challenges during caregiving. Not every caregiver’s relationship with their care recipient is idyllic. There may be painful family functioning in your past and adverse childhood experiences that impact the adult child when called upon to provide care. If this is the case, how can you cope with caregiving when there is pain in your past? Lisa explains how to promote healing and growth, reminding us that growth comes in many forms, such as gaining the ability to set boundaries or being assertive when expectations are made. There is hope after trauma and you will hear how it is possible to grow and heal through trauma informed approaches that can help you not only survive but thrive after trauma. Relationships are key for support, especially for caregivers, and care partnerships are a great example of caregiving relationships where everyone in that relationship has the opportunity to give and to grow. If there’s pain in your past and you’re called upon to be a caregiver for someone who caused that pain, this is the podcast for you. If you need more information from Lisa, her website is www.LisaKendallConsulting.com
The Dementia Puzzle is an idea that originates in this episode as a way to understand what is going on as you travel through caregiving for your loved one with dementia. This episode highlights the bond of a mother and daughter relationship, and speaks to the reality of the changes and losses caused by the slide of dementia. You will meet Sue Johnston as she recounts her experiences through the stages of caregiving and as she offers suggestions for the listener to consider for your caregiving journey.
For Toni Gitles her 14-year long experience as her mother's caregiver provided opportunities to learn how to become a powerful advocate and how to apply her skills to make it the best caregiving journey possible. She did this while intentionally creating moments both Toni and her Mom would treasure. Toni learned the importance of many things such as listening to her intuition and being honest about her feelings. Toni provides helpful ideas for any caregiver to adopt and I suggest taking notes from this podcast to help in your own caregiving journeys. Toni's website is Heart Light Enterprises.
This episode came about because of the original song "Doesn't Know Me", by Pat Thibodeau. Pat is a singer/songwriter and a friend of mine and I had reached out to ask her to write a jingle for the podcast. What she wrote surpassed my expectations with the creation of "Doesn't Know Me" - a song about the losses of Alzheimer's disease. Pat's father had Alzheimer's and the family of 10 siblings rallied around him and their mother following his diagnosis. I invite you to hear Pat's account of the family's journey together with her original song. If you'd like to listen to more of Pat Thibodeau's music, check out her YouTube channel by searching her name.
Today’s podcast introduces you to an adult-child caregiver, Betsy Haddad. Betsy’s father, Edward, has been diagnosed with middle stage Alzheimer’s. Betsy describes her caregiving role as being supportive in nature, as her mom is Edward’s primary caregiver. Edward is a gifted musician, and you will hear him playing in the background of the introduction. We hear of Betsy’s doting love for her father, and the quality times they spend together, including when he plays the piano, and she sings. At the end of the podcast Betsy sings “Life is a Cabaret” chosen as a tribute to Edward’s philosophy on life, so make sure you listen to the very end of “The Musician’s Daughter”.
Today Anne Sands takes us along on an emotional roller coaster. Her husband Stu has been diagnosed with dementia. Throughout her caregiving journey Anne has learned a lot and wants to help others by advocating that they get their loved one into the medical system as soon as possible so they are eligible for supports, respite and day programs, and placement in residential care. Stu was on the list for placement and when one of their two selected places had a bed available, she made the difficult decision to accept it. Her preference is to have Stu transferred closer to where she lives when a room comes available. When Stu first went into care, during the pandemic of Covid-19, he had to be isolated for the first 2 weeks. Since that time, Anne hasn’t been able to see his room; and visits are limited to once a week for 45 minutes. Communication with the care home's psychiatrist. has been very informative, validating and reassuring. The time that she can now spend with her husband is drastically reduced compared to the time they spent together as husband and wife prior to Stu's placement. This has not been the only change, and Anne talks candidly about a new reality that has developed in their relationship. Her approach to the shocking news she received from the residential care home is positive, exhibiting loving care and concern for her husband’s needs and well-being. For herself, the days are long and she is looking forward to golfing season. She has many supports, yet she experiences significant deficits, stressing that caregiving is draining, aging, exhausting and emotional as can be. To top it all off, she feels hug deprived. She introduces the refreshing song and concept of “Four Hugs a Day”, by Charlotte Diamond (permission obtained to use the title/see credits below). Anne ponders, what’s next for her and shares her caregiver tips whilst reminding all of us not to lose sight of our own lives. Four Hugs a Day By Charlotte Diamond and Earl Robinson Copyright: Charlotte Diamond Music 1985 SOCAN As recorded on "10 Carrot Diamond" www.charlottediamond.com
Meet Brenda Blais Nesbitt. She has been the caregiver of her daughter, Nikki, for over 27 years. Nikki is medically fragile with her severe disability, and Brenda is her voice and loving caregiver. Through her caregiving journey, Brenda has learned how to advocate effectively when the odds sometimes are stacked against them. She understands the stresses involved in navigating the healthcare system for a child with severe disability and offers information on how to prepare for the child transitioning to the adult world of healthcare.
Brenda recognizes how important it is to look after yourself and to set boundaries especially with supports coming into your home. Brenda is a Certified Caregiver Consultant, a Board Certified Patient Advocate; and has her own company Coaching for Caregivers Canada where she is a coach for others who may be facing a similar journey. Listen in to hear how Brenda imparts her experiences and shares her wisdom.
The caregiving coin has two sides: one side represents sacrifice and the other - payoffs, gifts and benefits. Ten years ago Alice and Cori asked Alice’s father Doug if he’d like them to be his Long-Term Care Plan. He said yes and for the first five years lived with them during the winter months while maintaining his residence in Calgary the rest of the year. As his health needs increased, Alice and Cori took on caregiving full-time, with Doug relocating to the Island. Doug turned 102 this summer. This caregiving story is one of mutual respect and highlights what it takes to make such a heartwarming arrangement for caregiving and how it works for all the parties involved.
Sustainable Caregiving CEO Theresa Wilbanks shares strategies she has identified through her caregiving journey for her father who is now 99 years old. Her insights include the importance of self-care, mindfulness and setting boundaries. When she faces a new caregiving challenge, she explains how she is driven to find a solution often through trial, error and tears; and from the solution come the strategies that she willingly shares with other caregivers. Theresa talks about "when winning is losing" and "when losing is winning" and provides the word picture of taking off the battle armor. She reminds us of the importance to keep the overall objective of caregiving in mind and to view each obstacle as an opportunity. Caregiving is hard, but she has information to help navigate the journey. Listen in to hear the fresh perspectives that Theresa shares… and learn about the “Jenga Tower”!
Dennis Dulniak joins me to talk about his experiences as a caregiver of his wife of 47 years, Nancy. He shares how full and rich their life was together before the diagnosis, and how they adapted to make it as full and rich as possible after the diagnosis. Dennis speaks candidly about the need for supports as a caregiver and the value of taking care of yourself in order to be an effective caregiver. Dennis provides a wealth of resources and information that he has pulled together during his journey.
Listen to Roy's journey. A journey of love and commitment that continued through health issues for his wife that changed their circumstances but not their love and committed relationship to one another. Roy shares his experiences through the trying times of Covid-19 as a caregiver.
You find yourself on a journey you did not want to take. You are a caregiver. You want to know how to make it through your desperate days, when you’re feeling stuck, isolated, afraid or hopeless. I will speak with caregivers who are willing to share their insights to help you on your caregiving journey.