The Waiting Room Revolution: Recent Episodes
Hsien Seow and Samantha Winemaker
This podcast can help anyone dealing with serious illness. Over the years, we have cared for and interviewed thousands of patients and families who tell us they felt overwhelmed and ‘in the dark’ during their illness journey. Yet we sometimes heard stories where individuals felt prepared, in control and ‘in the know.’ What was the difference between these experiences? The answer is the 7 keys. Join your hosts Dr. Samantha Winemaker, palliative care doctor, and Dr. Hsien Seow, health care researcher, as they share real-life stories to explain the 7 keys to being hopeful and prepared when facing serious illness.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa.
A longtime palliative care navigator, Bill Harder returns not as a professional, but as a husband alongside his wife Anna, who is living with stage 4 breast cancer. Together, they share how they’ve navigated a delayed diagnosis, chose quality of life over aggressive treatment, and use dark humour, honesty, and deep love to “walk two roads”. They talk about death binders, funeral pre-planning, and the village that holds them, showing what it looks like to grieve as you go and still embrace joy. The episode closes with a powerful AI-generated love song Bill created for Anna, “Live Till She Dies,” a musical legacy of their life on the land and their commitment to living fully to the end.
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, Hsien and Sammy talk with RN and project director Kira Goodman and pediatric palliative care physician Dr. Dave Lysecki about what makes pediatric palliative care unique, why it’s not “too sad,” and how early, family-centered support can transform the journey for children with serious illness. They also explore the creation of Canada’s Pediatric Palliative Care Alliance and its efforts to build a unified, equitable approach to care across the country. Learn more about the Alliance here: https://www.pediatricpalliativecare.ca/
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, Hsien and Sammy chat with Sunny Brouse. Sunny was diagnosed with ALS over a decade ago and leads a global community of young women with ALS. We talk about her long, disorienting road to diagnosis, what clinicians miss when they focus on function over quality of life and how dark humor, planning ahead and honest talk can protect hope. Learn more about Sunny's journey here: https://sunnystrong.com/
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, Hsien and Sammy sit down with Barbara MacLean, Executive Director of Family Caregivers of British Columbia and a leading voice for caregivers in Canada. Barbara shares her powerful origin story from supporting children with disabilities in grade six to becoming a national change agent for family and friend caregivers. We also chat all things caregivers, including visibility and distress and ways to combat both. To learn more about Barbara's work visit: https://www.familycaregiversbc.ca
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, Hsien chats with Ella Tan, an Employment and Family Support Worker and Caregiver Advocate. They chat about the hidden realities of paid care providers in Canada including immigration hurdles, debt, family separation, and the blurred boundaries of working in employers’ homes. Ella shares how community networks, settlement supports, and policy change can transform not only caregivers’ lives but the quality and dignity of care for everyone. Check out Ella's podcast here: https://open.spotify.com/show/3FjXuS9QV9zxyEI4lhHYHT
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, Hsien and Sammy chat with Dr. Myles Sargeant, family physician and planetary health expert. We chat about how healthcare can reduce its environmental footprint with delivering better care, heat islands and why home based palliative care is one of the greenest things we can do. Learn more about Myles work here: https://greenhealthcare.ca/
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode Pierre and Sherrie Marchand share how a rare, terminal uveal melanoma upended their retirement and reshaped their lives. They reflect on vision loss, caregiving, family impact, and how The Waiting Room Revolution helped them find clarity, voice, and a way to balance hope with planning ahead.
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, Hsien speaks with Canadian dementia advocates Christine Aiken and Myrna Norman, who share how they moved from isolation and fear after diagnosis to lives filled with purpose, community, and hope. They debunk common myths about dementia, describe simple but powerful person-centered practices families and communities can adopt right away, and show how support groups, creativity, and inclusion help people with dementia continue to live well and thrive.
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this Hsien talks with Dr. Chetna Malhotra, a leading palliative care and health services researcher in Singapore. They explore the gap between what people say they want at the end of life and the care they actually receive, especially in hospital-heavy systems. Together, they unpack how culture, family, and religion shape decisions, and why advanced care planning should focus less on fixed choices and more on preparing families for real-time decisions. Dr. Malhotra also shares how digital tools and caregiver support innovations like the Care Buddy app are helping patients and families navigate serious illness.
To learn more about Chetnas work visit: https://www.duke-nus.edu.sg/directory/detail/chetna-malhotra
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, Hsien chats with Ontario Funeral Director Sarah Sunnucks about what really happens after someone dies and why funeral pre‑planning is one of the greatest gifts you can give your family. Sarah shares the hidden legal and administrative burdens families face, powerful stories of when planning was (and wasn’t) done, and emerging options like green burial.
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, we chat with grief therapist and thanatologist Andrea Warnick. We discuss the importance of including children in conversations about serious illness and death. Andrea shares her experiences and strategies for helping children cope with loss and shares some free and low-barrier resources you can use.
Resources to help children with grief:
https://kidsgrief.ca/
https://youthgrief.ca/
https://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home/Topics/Topics/Final+Days/Children+at+the+Bedside+of+a+Dying+Family+Member+or+Friend.aspx
Visit Andreas website for more information: https://awcgrief.com/
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Donna Thomson, longtime caregiver, advocate, and author, returns to share a very different story: her own diagnosis of high‑grade bladder cancer. In this episode, she talks about the shock of shifting from caregiver to patient, how she advocated for herself to get answers, and the anxiety of living with a high risk of recurrence. Donna describes how the 7 Keys workbook became her “cognitive lifeboat,” helping her and her husband clarify their priorities, plan for aging, and navigate conversations about fear, privacy, and support. She also shares how her yoga community, her caregiving work, and projects like the Caregiving Essentials course and The Courage to Care book continue to sustain her through treatment and beyond.
Visit Donnas website here: https://www.donnathomson.com/
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, Renee Moor, psychotherapist, death doula, and founder of Journey Home Support, shares her personal journey through grief, the lessons learned from profound loss, and her mission to bring compassionate community support to end-of-life care. We discuss how embracing death and mourning can offer meaning, connection, and empowerment for individuals and families.
To learn more about Renee's work visit: https://www.journeyhomesupport.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
This episode features our conversation with resilience expert Dr. Lucy Hone. We discuss grief, living with loss, and practical tools for navigating tough times. Lucy shares personal stories and research-backed insights offering hope and empowering advice for anyone facing adversity.
Learn more about Lucys work here: https://www.drlucyhone.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
This episode features our conversation with Dr. Ashwin Kaniah, an Australian general practitioner and palliative care consultant. Ashwin shares his journey from family medicine to palliative care, highlighting the importance of early, holistic, and individualized approaches for patients and families. We discuss the challenges and opportunities in making healthcare more inclusive, especially for LGBTQI+ communities, and discuss Ashwins award-winning research . Learn more about his work here: https://www.australianageingagenda.com.au/education-training/providing-inclusive-palliative-care/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
This episode features our conversation with Dr. Emma Clare, end-of-life doula and CEO of End of Life Doula UK. Emma shares her journey, the evolving role of doulas, and the importance of compassion, communication, and community in end-of-life care. We explore how empowering patients and families, breaking down taboos around death, and building a more supportive culture can change life’s final chapter.
Learn more about Emma's work and End of Life Doulas UK: https://eol-doula.uk
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
This episode we welcome Stephanie Muskat, a registered Social Worker, therapist, and founder of Compassion in Caregiving. Stephanie shares her moving journey caring for her mother and grandmother. We discuss the emotional and logistical challenges families face, the importance of advocacy, and how her personal experience inspired her to support other caregivers.
Find more of Stephanie's work here: https://compassionincaregiving.com/
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this heartfelt episode, Heike and Richard share their family’s journey through the end-of-life care of their two sons. Through stories of loss, advocacy, and resilience, they reveal hard-won lessons about love, hope, and what truly matters in life and healthcare.
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
This episode features Dr. Tammy Pegg, a cardiologist, and Jane Goodwin, National Program Manager for advanced care planning in New Zealand. We discuss the evolution of CPR understanding, the importance of advanced care planning, and the challenges of aligning medical care with patient values. The episode delves into New Zealand’s national efforts to promote shared goals of care, empower patients and families, and support clinicians in having compassionate, person-centered discussions.
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
This episode features our conversation with young caregivers Rosie Paulyk, Terrance Ho, and Stéphane Alexis. They share personal stories about caring for loved ones at a young age, how caregiving shaped their identities, careers, and relationships, and share their advice for supporting youth in similar roles. We also chat about the power of community, resilience, and the importance of recognizing young caregivers everywhere.
Learn more about their work here:
Terrance's website: https://terrence-ho-i3c7da.mailerpage.io/family
Rosie's website: https://chronicoasis.com/our-mission
Stéphane's website: https://www.stephanealexis.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
This episode features our conversation with Funeral Director and End-of-Life Doula Bec Lyons, from Tasmania, Australia. We chat about her unique approach to death care, emphasizing home funeral service and natural burial methods. We also chat death literacy and reimagining funerals to be more personal and community focused. Learn more about Becs work HERE.
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
In this episode, we welcome James Norris, founder of the Digital Legacy Association and pioneer in end-of-life technology, to explore the vital topic of digital legacy. James shares the personal story that inspired his mission, explains why planning for our digital lives is more important than ever, and offers practical advice for safeguarding memories, messages, and digital assets. To learn more about James' work visit: https://www.jamesnorris.me
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
In this episode, we chat with Shameem and Kerry, a dynamic Dietitian and Speech-Language Pathologist duo who have spent nearly two decades working together in a multidisciplinary ALS clinic. In this episode, they share how humor, empathy, and proactive planning shape their approach to patient care. We also explore common misconceptions about their professions and how the “hope for the best, plan for the rest” philosophy guides their work.
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
This episode features our conversation with influencer and author Hospice Nurse Penny aka Penny Smith. We chat about how she uses her platforms to advocate for normalizing death and addressing death anxiety. Learn more about her work here: https://www.hospicenursepenny.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
In the final episode of Season 10, we reflect on the journey and the success of the Waiting Room Revolution. We discuss the global resonance, the importance of self-advocacy, and the creation of our community. We also introduce the Applying the 7 Keys Workbook designed to help individuals navigate the healthcare system. We also introduce the "Workshop in a Box" for community educators to facilitate workshops and spread the message, aiming to empower patients and families worldwide.
Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/
For more details about our Workshop In a Box visit our website or sign up for our newsletter: https://www.waitingroomrevolution.com/joinus
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode we explore the final key, “Invite Yourself,” which encourages patients and families to become respectfully assertive in their healthcare journey. Rather than waiting to be asked, individuals are empowered to speak up, ask questions, and take an active role in their care. We discuss how this mindset shift can lead to better communication, improved understanding, and more meaningful experiences, especially for those who feel marginalized or overwhelmed. Through real stories and practical tips, we emphasize that inviting yourself isn’t about being demanding; it’s about recognizing your right to be heard and informed.
Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode we talk about the key "Connect the Dots" - a crucial strategy for patients and families navigating complex healthcare systems. We explore how being the "illness manager" can transform healthcare experiences, the importance of having someone who can coordinate care, track medical information, and serve as the "glue" between different healthcare providers.
Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, we dive deep into the fifth key: Anticipate Ripple Effects. We discuss how serious illness impacts not just patients, but their entire support network. We share personal stories and insights about building strong support systems, caring for caregivers, and understanding the emotional journey of those surrounding a patient. We also give some tips to providers.
Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode we discuss the fourth key: Customize Your Order. We chat about how you can transform your illness experience from a one-size-fits-all approach to a personalized journey that truly reflects your values, preferences and unique self. We also talk about communicating what matters most to you, and why being treated as an individual-not just a diagnosis- is crucial to maintaining you sense of identity and dignity.
Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode of the Waiting Room Revolution, we explore the powerful third key: "Know Your Style." We discuss how understanding your unique personality can transform your healthcare experience, how learning practical strategies for navigating illness can reduce family conflict, and how knowing your style gives insight on approaching challenges. We also chat about how important this can be for Health Care Providers and provide some strategies on how to ask these questions.
Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode we discuss the second key: Zoom Out. We discuss how information is a superpower, ways to get it, how to use it and how it can maintain hope all throughout an illness journey. We also discuss how everyone - patients, families, and healthcare providers - has a role in creating a more transparent, supportive healthcare experience.
Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, we discuss the first of seven keys to navigating serious illness: Walk Two Roads. We chat about breaking through toxic positivity, communicating openly about illness, reducing uncertainty and maintaining personal agency during challenging times. We share stories and experiences that people have shared with us about why constant positivity can be harmful, how patients can find strength in embracing both hope and preparation and much more!
Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode we are talking about When Time is Running Out. We chat about demystifying dying, challenging healthcare norms, misconceptions about hospice and medical assistance in dying (MAID), how patients and families can reclaim power in their healthcare experience & much more.
Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Welcome to Season 10 of the Waiting Room Revolultion Podcast where we will be looking back (and forward!) to the start of it all: the Seven Keys! This episode we will be recapping the journey so far. Some topics we cover in this episode are: how the podcast has spread the movement around the globe, how our book Hope for the Best, Plan for the Rest has connected to so many communities, what we've learned and so much more!
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
In this episode we chat with Ruth Richardson, a seasoned hospice palliative care nurse educator who has dedicated her career to empowering patients, families, and healthcare providers through her compassionate and holistic approach. She shares her strategies for breaking down misconceptions about palliative care, equipping patients to advocate for themselves, and creating community-based learning experiences that foster resilience and connection. We also discuss her work educating the public, supporting grieving communities, and inspiring the next generation of nurses! To learn more about Ruth's work visit: https://champlainpalliative.ca/about-us/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
This episode features our conversation with Tilly Stevens, a health and well-being coach from New Zealand. We chat about her work with Coping with Loss and her training as an end-of-life doula. She tells us about the challenges in New Zealand's palliative care system, including funding and variability in services, her experiences with resilient grieving and the importance of acknowledging and accepting loss and the importance of community educators.
To learn more about her work visit: www.itallmatters.co.nz
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
This episode features our conversation with Catherine Cummings, CEO of the International Alliance of ALS and Motor Neuron Disease Associations. We chat all about ALS- the challenges of diagnosis, the economic impact on patients and caregivers and the variability in care quality globally. Catherine shares her personal experience as a caregiver. To learn more about the International Alliance visit their website here: https://www.als-mnd.org/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
This episode features our conversation with Bill Harder, Theresa Radwell and Penney Gaul from the Palliative Care Society of the Bow Valley in Alberta. We discuss the society's mission to provide quality-of-life support through holistic care, emphasizing community partnerships and volunteer-driven initiatives. They highlight innovative programs like the dementia care team, which pairs volunteers with families to support both the person with dementia and their caregiver. The society's work has gained significant community support, evidenced by high attendance at their public talks and positive feedback from clients. To learn more about their work: https://pcsbv.ca/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
This episode features our conversation with Dr. Barbara (Bunni) Bresver, Dr. Roz Doctorow & Peter Macaulay from Dying with Dignity Canada- Toronto Chapter. We chat about the mission and work of Dying with Dignity Canada, which focuses on protecting end-of-life rights, advocacy, support, and education for Canadians. We also chat about how the generational shift in provider-patient dynamics and the emotional impact education can have. To learn more about Dying with Dignity Canada visit: https://www.dyingwithdignity.ca/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
This episode features our conversation with Laura Cleminson, a community organizer and founder of the Pre Dead Social Club. We discuss her journey from working in a medical device company to becoming a death doula, and the importance of preparing for death through community engagement and education by hosting events to foster open discussions.
To learn more about her work visit: https://www.predeadsocialclub.com/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
This episode features our conversation with Dr. Zachary White, Professor of Communication in the Department of Communication Studies at Furman University in South Carolina. We discuss his journey into caregiving research and advocacy, challenges and insights into caregiving communication and how healthcare providers can navigate uncertainty to be present with patients and families.
To learn more about his work visit: https://www.mastersincommunications.com/school-interviews/dr-zachary-white-queens-university-of-charlotte
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
This episode features our conversation with Sheli O'Connor, Director of Community Engagement and Partnership at Hospice Waterloo Region. We discuss her passion for community development, the importance of continuous community engagement in healthcare and in advance care planning to empower individuals in healthcare decisions, and innovative community engagement strategies. To learn more about her work visit: https://advancecareplanning.hospicewaterloo.ca/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
This episode features our conversation with Clare Fuller & Dani Ayre, Advance Care Planning Experts and advocates from the UK. We discuss how they organized a conference for Advance Care Planning in the UK earlier this year, public awareness and empowerment.
Learn more about Clare's work on her website: https://speakforme.co.uk/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
This episode features our conversation with Dr. Karen Wyatt, Medical Director, Author and Founder of End-Of-Life University. We chat about Karen's clinical practice and personal tragedy, her transition into hospice care and reflections on healing, writing and community building.
Learn more about the EOL University here: https://www.eoluniversity.com/
Visit our website to learn more about our work, check out the Map Project, or to see our resources. www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode we chat with Dr. Julien Abel, retired palliative care physician, Director of Compassionate Communities UK, author and podcaster. In this episode we talk about what compassionate communities are, what a public health palliative approach looks like and what community support of serious illness should look like. To learn more about Compassionate Communities UK visit: https://compassionate-communitiesuk.com/
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode we chat with Dr. Diah Martina, an internal medicine doctor in Indonesia. Diah also has per PhD focusing on culturally sensitive advance care planning in Asia. In this episode we talk about what culturally sensitive palliative care looks like in Indonesia, what her research has shown about adapting conversations about dying and planning in different cultures and religion, and the relevance of the WRR for the Indonesian and Asian communities.
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features Dipti Purbhoo, Executive Director of the Dorothy Lea Hospice, one of Ontarios oldest Hospices. We chat about the synergy between hospice services and the Waiting Room Revolution, innovative ways hospices partner with community agencies and how Dororthy Lea Hospice is working to be truly integrated upstream in an illness journey. To learn more about Dorothy Lea Hospice visit: https://dlhospice.org/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
For more information visit: www.waitingroomrevolution.com
This episode features our conversation wtih Lisa Levin, CEO of Advantage Ontario. We chat about how Advantage advocates for seniors quality of life, housing policy that promotes aging in place and what other countries are doing to innovate aging. Learn more about Advantage Ontario here: https://www.advantageontario.ca/
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Happy Caregivers Month! This episode features our conversation with Amy Coupal, the CEO of the Ontario Caregiver Organization. We chat about the services and resources OCO offers, Amy's own caregiving experience and the essential role caregivers have within the healthcare system. Learn more about the Ontario Caregiver Organization here: https://ontariocaregiver.ca
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
For more information visit: www.waitingroomrevolution.com
This episode features our conversation with Eliza Munro and Kelly Clark, who are palliative care educators and consultants on IPEPA. IPEPA stands for Indigenous Program of Experience in the Palliative Approach, which is a grass roots approach to breaking down barriers to palliative care for Aboriginal and Torres Strait Islander peoples across Australia. We chat about the important work they are doing with IPEPA, the barriers Indigenous people face accessing palliative care and what they are hopeful for in the future. To learn more visit: https://pepaeducation.com/about-ipepa/
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with Daniel Nowoselski, Advocacy Manager for Hospice Palliative Care at the Canadian Cancer Society. We discuss being a lobbyist for the palliative care community, policy issues and challenges in the health care system that the Canadian Cancer Society are trying to address, where his passion for palliative care stems from, MAID and what brings Daniel hope for the future. To learn more: https://cancer.ca/en/living-with-cancer/advanced-cancer
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
For more information visit: www.waitingroomrevolution.com
This episode features our conversation with Dr. Kerrie Noonan, clinician psychologist, social researcher, founder and innovator. We talk about death and grief literacy in Australia and around the world, what it is and why it is important and how it really is a community endeavor. Learn more about Kerries work here: https://www.deathliteracy.institute/
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
For more information visit: www.waitingroomrevolution.com
This episode features Dr. Red Hoffman, a trauma surgeon who is board certified in hospice and palliative medicine from Asheville, North Carolina. We talk about her upcoming TEDTalk, her life experiences and how she got to where she is now and experiencing emotions as a surgeon alongside caring for your patients.
Learn more about Reds work here: https://redhoffmanmd.com/
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features the Hon. Lisa Raitt, former Cabinet Minister and Member of Parliament from 2008 to 2019 and caregiver to her husband Bruce. Bruce was diagnosed with young onset Alzheimer's disease during the pandemic. We talk about their experience with diagnosis, how the seven keys can be used for caregivers and what policies can help caregivers along an illness journey.
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with Dr. Kimberly Acquaviva, a professor at the University of Virginias School of Nursing. Kimberly is the author of The Handbook of LGBTQIA-Inclusive Hospice & Palliative Care. We discuss her very personal story of losing her wife Kathy to ovarian cancer and how that shaped her advocacy and how we can provide person centred, inclusive care. Learn more about Kims work and check out her books at: https://www.kimberly-acquaviva.com/
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, we chat with Laura Watts: Founder and CEO of CanAge, author, laywer and advocate. She is also an Assistant Professor at University of Toronto where she teaches Law and Aging. In this episode, we discuss CanAge, advocacy in senior patients and families at the policy and individual level, motivation behind her book and aging well around the world. For more information about Laura's work visit: www.canage.ca/
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with Clare Fuller, a Registered Nurse with a passion for advance care planning. Clare owns Speak for Me a Lasting Power of Attorney consultant service in the UK. She is also the host of the Conversations about Advance Care podcast. We talk about what shes learned from hosting her podcast and some of the tools shes developed to help people plan for the future. Learn more about Clare's work and check out her podcast here: https://speakforme.co.uk/
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with Dr. Christian Ntzimira. Christian is a palliative care physician, Founder and Executive Director of African Centre for Research on End of Life care. He also published a book called The Safari Concept: An African Framework for End of Life Care that uses animal metaphors to characterize patterns of a family's suffering and how healthcare providers can use this to tailor their emotional, physical and spiritual care they provide. In this episode, we discuss what providing palliative care in Rwanda looks like, the role of community in life and death, animal metaphors to describe suffering and lessons in care that transcend culture and country. You can find Christian's book on Amazon and to learn more about his work visit: www.acreol.org/
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with Dr. Susan Cadell. Susan is a professor at the University of Waterloo in the Department of Social Work. She is a researcher who focuses on positive aspects of stress and coping including post traumatic growth. Today we chat about her research, memorial tattoos and grief including grief after Medical Assistance in Dying (MAID). Find out more about Susans work here: https://uwaterloo.ca/school-of-social-work/profiles/susan-cadell
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, we chat with Jia Ying Tay. Jia Ying is an end of life doula based out of Singapore and the founder of Happy ever after, a service that connects with and support individuals directly in end of life planning. She also served as a co-creative producer of an arts based community engagement project called Both Sides Now. We talk about her journey to becoming an end of life doula in Singapore, the inspiration behind creating her company and the complexities of navigating conversations about death and dying in Asian cultures. To find out more about Jia Ying's work visit: www.happyeverafter.sg/ and www.bothsidesnow.sg.
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with Dr. Jared Rubenstein. He is a pediatric palliative care doctor and medical educator from Houston, Texas who creates animated videos to provoke discussion around challenging topics in healthcare, especially palliative care. We chat about how his videos connect with the upstaream messages of the Waiting Room Revolution and the ways we need to innovate education, not just for providers for also for the public. To see Jareds work visit his website: https://www.jaredrubensteinmd.com/
For more information visit: https://waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with Kristin Flanary a.k.a. Lady Glaucomflecken on Social Media. She is a co-host on the podcast Knock Knock Hi with her husband Dr. Glaucomflecken. Kristin advocates for caregivers and co-survivors of medical trauma, and patient caregiver centered care. We chat about the origin story of the Glaucomflecken name, the motivation behind her advocacy work and her exciting projects aimed at bringing humanity back into health care. To check out Kristin's work visit: https://glaucomflecken.com/
For more information visit: https://waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with Laurel Wittman, president of the Well Spouse Association. Laurel focuses on supports for younger, well spouses. We chat about her experience as a caregiver for her husband Eduardo, who has Multiple Sclerosis, what their journey has been like and what has saved her life. To learn more about the Well Spouse Association visit: https://wellspouse.org/
For more information visit: https://waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features photographer Stephen Starkman. This episide is a combination of two different conversations had a few months apart as we speak with Stephen about his journey with small cell lung cancer. We explore what its like to live with a life- limiting illness that will progress and the importance of being in the know.
For more information about Stephens art and book: https://www.stephenstarkman.com/
For more information visit: https://waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features social worker Joanna Vautour. Joanna is Anishinaabe and a band member of Serpent River First Nation. She is passionate about trauma informed care and transforming the healthcare system to provide culturally safe care for everyone. We discuss this in this episode alongside strengthening palliative care in Indigenous communities, cultural outlooks on dying and death in the community and residential schools and its generational impact.
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features Jeremie Saunders, speaker and co-host of the popular CBC podcast: Sickboy. Jeremie lives with Cystic Fibrosis and is committed to educating and changing the conversation about what its like to live with a serious illness. We discuss his podcast, Cystic Fibrosis and the new medications available that have changed his life. We also chat about fears, psychedelics and how they impacted his mortality awareness. To learn more about Jeremie and the Sickboy podcast visit: https://www.sickboypodcast.com/
Hope for the Best, Plan for the Rest is here! Available in softcover, e-book and audiobook. You can order your copy and start getting in the know right now. For more information, or to order a copy visit: http://waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with Amie Archibald-Varley and Sara Fung, co-hosts of The Gritty Nurse podcast! Amie and Sara are nurses, speakers and advocates for the nursing profession, anti-racism and health system change. We chat all about nurses and the nursing profession, the reasons for the nursing crisis and the critical role of nurses in the waiting room revolution. To learn more about Sara and Amie or their podcast, visit: https://www.grittynurse.com/podcast
Pre orders are available now for our book Hope for the Best, Plan for the Rest: 7 Keys to Navigating a Life Changing Diagnosis. We also have a special preorder offer, visit our website for details: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with Dr. Heather Richardson, policy lead at St Christophers Hospice in South London, UK. We talk about the current and future state of hospice care and how hospices can follow a public health approach and become connectors in the community.
Pre orders are available now for our book Hope for the Best, Plan for the Rest: 7 Keys to Navigating a Life Changing Diagnosis. Visit our website for retailer links and to submit your receipt to get a chapter right away! waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with Jennifer Klassen, Shannon Reimer and Dr. Cornelius J Woelk, all providers working with Southern Health- Sante Sud in Winnipeg, Manitoba. We chat about how they have used the seven keys in their work in the community.
Pre orders are available now for our book Hope for the Best, Plan for the Rest: 7 Keys to Navigating a Life Changing Diagnosis. We also have a special preorder offer, visit our website and submit your receipt to get a chapter right away! Visit waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Dr. Leeroy Williams, a palliative care physician practicing in Melbourne, Australia. We chat about the differences between Australia and Canada, how people are cared for in Australia and how anyone can turn a consultation into a conversation.
We have some exciting news to share! The wait is (almost) over! Pre orders are available now for our book Hope for the Best, Plan for the Rest: 7 Keys to Navigating a Life Changing Diagnosis. We also have a special preorder offer, visit our website and submit your receipt to get a chapter right away! Visit waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This is our last double header innovation episode of the season! Our first guest is Erin Galyean, author of Badass Advocate. She's a pharmaceutical sales trainer by day and a caregiver advocate by night. She shares some amazing tips on how to be persistent and respectful. Our second guest is Jennifer O'Brien, author of The Hospice Doctors Widow. We chat about the idea of precious time, balancing hope and preparation, and some of the simple tools and tips that can help anyone facing a life-changing diagnosis.
To learn more about their books visit their websites: https://badassadvocate.com/ https://www.hospicedrswidow.com/
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Tracey Human and Bob Parke. Tracey is a pain and symptom management consultant who provides education and palliative care in the community. Bob is a bioethicist consultant. We chat about how the 7 keys can apply to individuals with an intellectual or developmental disability and their families and how to achieve patient centered care.
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Dr. Kathy Kortes-Miller, Associate Professor in the Department of Social Work at Lakehead University. We chat about her book, 'Talking About Death Won't Kill You' and about her latest project, a podcast called Disrupting Death, which focuses on Canadians sharing their experiences with Medical Assistance in Dying (MAID). For more information about Kathys work visit: https://www.kathyk-m.com/
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This is another double header innovation special! Our first guest is Bev Foster, co-founder of The Room 217 Foundation. We chat about the healing power of music across cultures and how each of us can bring music into our work.
Our second guests are Dr. Julie McIntyre and Sheli O'Connor, who are teaching an education course called Last Aid, designed for the public. We chat about how Last Aid can be used in every community to make a difference.
Learn more about their innovations here: https://www.hpco.ca/last-aid/ and https://www.musiccare.org/
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Dr. Sunita Puri, palliative care physician and best selling author of 'That Good Night: Life and Medicine in the 11th Hour'. Suntia chats with us about the power of language in the face of dying, how culture intersects with medicine and the art of communication as clinician and writer. For more information about Sunita, visit her website: https://sunitapuri.com/
Learn more about the Waiting Room Revolution here: https://waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with palliative care physician, author and public advocate Dr. Ira Byock. He is the author of 'The Four Things that Matter Most' and 'The Best Care Possible', available now. We chat with him about his philosophical approach to dying, whether we should rebrand palliative care, privatizing healthcare and much more.
For more information about Ira, visit his website: https://irabyock.org/
For more information visit: https://waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode is a double header innovation special where we chat with two different innovators for 15 minutes each.
Our first guest is Yvonne Heath, founder of the Love your Life to Death movement. We chat with Yvonne about what led her to found the Love your Life to Death movement and how you don't need to do more than "just show up" wherever you are to make a difference. To learn more about Yvonne visit: https://www.loveyourlifetodeath.com/
Our second guest is Dr. Alyssa Boyd, a palliative care physician and co-founder of the Living Wish Foundation. We chat with her about the impact it has had on the community and how the idea of a final wish can spread. To learn more about Living Wish Foundation visit: https://www.livingwishfoundation.org/about-us
For more information visit: www.waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with New York Times columnist and best selling author Theresa Brown. Theresa is a nurse, writer and advocate. We chat about how she became a writer and clinician, how her experience as a patient changed her clinical work and what the future holds for her.
To learn more about Theresa and to purchase her new book, visit: https://www.theresabrownrn.com/
Visit our website, join our mailing list and follow us on social media to learn more about the Waiting Room Revolution: https://waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Dr. Catherine Demers. Dr. Demers is a cardiologist, researcher and professor of medicine at McMaster University. We chat about what a roadmap for heart failure looks like and what to expect along the various stages from early, middle, late and end of life.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Dr. Elissa Campbell. Dr. Campbell is a geriatrician and palliative care physician and President of Palliative Care Western Australia. We chat about several hot topics related to improving care for those facing serious illness from her perspective practicing in Western Australia.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Dr. Harvey Chochinov. Dr. Chochinov is a distinguished professor of psychiatry at the University of Manitoba and the creator of dignity therapy. We chat about what dignity therapy is, how it's applicable, not just to dying patients, but to getting the best care possible, and we chat about his new book which is available now.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features an updated conversation with Stephanie, who we met on episode 10 of Season 1. Stephanie was caring for her mother at the time, had discovered our podcast and was using our keys to try to change her experience. Her mom died earlier this year and we are reconnecting now to see how the journey went.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Dr. Rosalyn Juergens. Dr. Juergens is a medical oncologist and head of the department of Clinical Trials at the Juravinski Cancer Centre in Hamilton, Ontario. We chat with her and previous guest Dr. Erin Gallagher about zooming out with your patients when they have lung cancer and we get some insight into how Rosalyn communicates with her patients to provide great care throughout the entire journey.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with TikTok star, influencer and hospice nurse, Penny Hawkins aka Nurse Penny. Penny shares stories and advice encouraging everyone to have open conversations about death and end of life. We chat about her experiences working in hospice, how using social media as a platform can help normalize death and her thoughts about how to spread the message about the benefits of early palliative care.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Dr. Daisy Dulay. Dr. Dulay is a cardiologist and a co-medical lead for Spread for Physician Quality Program at Doctors of British Columbia for scaling up frontline projects. We chat about how to improve care for people with heart failure and what the big picture of the illness looks like.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Bif Naked. Bif Naked aka Beth Allen, is a rock star, breast cancer survivor and proud hospice volunteer. We chat about life as a rock star, her passion for volunteering and interest in healthcare.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Dr. Amy Tan. Dr. Tan is a family and hospice palliative care physician living in British Columbia, who is an advocate for equity in medicine, a researcher, educator and a twitter star. We chat about the importance of health equity in palliative care, her life-changing experience as a patient, and the power of empathy and humility.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with April Stearns. April is a young breast cancer survivor, founder and editor of Wildfire Magazine and podcast host of The Burn. We chat about her experiences as a patient and caregiver, survivorship and the seven keys and the healing power of writing and storytelling.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Dr. Sabina Keen. Dr Keen is a geriatrician from McMaster University. We chat about frailty and dementia, with a focus on what patients and families need to know along the journey from the perspective of an expert.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Drs. Naheed Dosani and Amit Arya. Dr. Naheed Dosani is a palliative care physician who cares for homeless and vulnerably housed individuals and is a vocal advocate for health equity. Dr. Amit Arya is the palliative care lead at Kensington Health and is the cofounder of doctors for justice in LTC. We speak to these two thought-leaders about equity and palliative care in the context of the health and social system.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Our final episode of Season 4 features our conversation with brain tumor survivor, author and patient advocate, Claire Snyman. Hsien, Sammy and Claire talk about her experience living through a serious illness, how helpful peer support can be for patients and families and her best advice for patient and families with a brain injury or tumor.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with Dr. Connie Siskowski, founder and President of the American Association of Caregiving Youth. Sammy, Hsien and Connie discuss her experience as a young caregiver, how the American Association of Caregiving Youth helps young caregivers and what signs to look for to see if a young person is caregiving for someone.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with change agent Mary Anne Levasseur. She discusses being a caregiver to her son, Tyler, who lived with a mental illness, and whether the seven keys apply to mental health.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with Michelle Monkman, a community nurse and First Nations, Inuit and Metis education liaison. Hsien and Michelle discuss what palliative care looks like, the unique and common challenges she faces in the community and how to provide culturally appropriate care.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with Dr. Faith Banks, certified Hospice and Palliative Care Veterinarian. Hsien, Sammy and Faith discuss what her home visits look like with her animal clients, how she measures their quality of life and the many parallels between providing care for humans and animals.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with Amy Ma and Alies Maybee, co-founders of the Patients Advisory Network. Hsien, Sammy and Alies and Amy discuss their healthcare experiences, their reactions to the seven keys and why we need to change medicine to be delivered on the patients terms.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with Dr. Andrew Thorns and Justine Robinson from our live event with Pilgrims Hospices in the UK. Hsien, Sammy, Andrew and Justine discuss differences in hospice care in the UK and Canada, how hospices help patients and families at end of life and how Pilgrims is funded (& how you can help!).
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with patient Angus Pratt. Hsien, Sammy and Angus discuss how he is using the seven skills to make his illness experience better and Angus shares a poem about his journey.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with palliative care physician Dr. Jeff Myers. Hsien, Sammy and Jeff discuss some simple things we can do right now to prepare for future decision making and why that's so important to do.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with end of life doulas Sarah Muxlow and Jennifer Mallmes. Hsien, Sammy, Sarah and Jennifer discuss their journeys to becoming doulas, what they do and why it might be something to look into in your community.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with radiation oncologist Dr. Fumiko Chino. Hsien and Fumiko discuss her personal story with bankruptcy and healthcare, her research on financial toxicity and how you can avoid it, as well as grief, art and good communication in medicine.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with patient partner Sandra Holdsworth. Sammy, Hsien and Sandra discuss her experience navigating the system, what she's learned as an outspoken patient advisor, and how our seven skills apply to those in the transplant community.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with social worker C. Elizabeth Dougherty. Sammy, Hsien and Elizabeth discuss the role of social work in palliative care, how to create space for important conversations and the power of silence.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our conversation with palliative care physician Dr. Leah Steinberg! Sammy, Hsien and Leah discuss how she connects the dots for patients transitioning from hospital to home and her tips to improve communication for providers and families.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with health care communicator, advocate and author, Sue Robins. Hsien and Sue discuss her new book Ducks in a Row: Health Care Reimagined, how we need to reimagine healthcare and her best advice for patients and families.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Julie McFadden, aka Hospice Nurse Julie. Sammy, Hsien and Julie discuss her TikTok origin story, her most popular posts and what she thinks about the Waiting Room Revolution.
To learn more visit our website waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Dr. Doris Grinspun, CEO of the Registered Nurses Association of Ontario. Sammy, Hsien and Doris discuss her views of palliative care, why nurses in Ontario should be vaccinated and how to be fearless.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with family caregiver Rosalie Gaffe. Rosalie, Hsien and Sammy discuss Rosalies experience with serious illness and caregiving, how she and her husband used our seven keys and what they do to to share their styles with each other.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features audio from our Adolescent and Young Adult live event featuring a conversation with Max Li, an AYA patient and Dr. Joshua Fronk, a palliative care physician from Stanford University. They discuss Max's journey through serious illness, their best advice for other AYA patients and why the AYA group is so diverse in its needs and supports.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Oncologist Dr. Mark Levine! Sammy, Hsien and Mark discuss how patient care has changed in his 40 year career, how communication can be scary for doctors too and his best advice for future physicians.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Meera Agar, palliative care physician, Professor of palliative medicine at the University of Technology, Sydney and Chair of Palliative Care Australia. Sammy, Hsien and Meera discuss the use of the "P-word", Meeras research into cognition and mental awareness and what the Canadian system could learn from Australia.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Pain and Symptom Management Nurse, Mahoganie Hines aka Nursestaxx! Sammy, Hsien and Mahoganie discuss why Mahoganie chose palliative care right out of the gate, the role of nursing in end of life care and her own personal experience with end of life.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Dr. Karl Lorenz, general internal medicine and palliative care physician from Stanford University and Section Chief of the VA Palo Alto-Stanford Palliative Care Program. Karl, Hsien and Sammy discuss Karls origin story for his work in palliative care, his work with Veterans and the VA system and advice on what system change needs to happen to make the experience of serious illness better.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Todays episode features our conversation with Child Life Specialist Shaindy Alexander! Sammy, Hsien and Shaindy discuss how Child Life Specialists use play to support kids, Shaindys best tips for supporting kids through serious illness and some helpful tips for parents and families about talking to kids about difficult things.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Lisa Gretzky, MPP in the Ontario Legislature for Windsor West. Sammy, Hsien and Lisa discuss the catalyst for her running for provincial politics, her work on the More Than a Visitor Act and how personal experience with caregiving has informed her work.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Dr. Liz O'Riordan, Breast surgeon, author, podcaster and speaker. Liz, Hsien and Sammy discuss what it was like for Liz to be on the other side of the exam room, some of the power imbalances in medicine and some of the best places to get information and support.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features audio from our live event with the Myeloma Canada Hamilton Support Group featuring Dr. Hira Mian, a hematology oncologist at McMaster University. Some highlights include: The most important keys for Multiple Myeloma patients, examples of questions to ask at your next appointment and some fantastic audience member questions.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Dr. Erin Gallagher, family doctor, palliative care consultant and Assistant Professor at McMaster University. Erin, Hsien and Sammy discuss tips on how to journey with your patients and their families, the chipping away method of difficult conversations and the most rewarding thing about family medicine.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0.
This episode features our interview with Elizabeth Miller, certified caregiver consultant and host of the Happy Healthy Caregiver Podcast. Elizabeth, Hsien and Sammy discuss the all encompassing impact of caregiving has on someone, how she got started as a caregiver consultant and what changes can be made to make caregiving better for future caregivers.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Dr. Kathryn Mannix, best selling author and palliative care physician from the UK. In this episode, Kathryn, Hsien and Sammy discuss the importance of language, Kathryn's newest book 'Listen' and similarities and differences between the UK and Canadian healthcare systems.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Nishi Duporte, caregiver, author and founder of the Cancer Support Net in the UK. In this episode Nishi and Hsien discuss her caregiving journey, how she became an author (under the pen name ND London) and how to invite yourself to the healthcare system.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Dr. Dan Schep, a newly graduated physician completing his residency. In this episode Dan, Hsien and Sammy discuss residency, what Dan learned while on rotation with Sammy and what advice he has for other new physicians about helping patients with serious illness.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
This episode features our interview with Nadine Persaud, social worker and Senior Director of Client Services at Kensington Health in Toronto. In this episode Nadine, Hsien and Sammy discuss Long Term Care, Hospice, the COVID-19 pandemic and being yourself right to the end.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Welcome to Season 3 of the Waiting Room Revolution! This episode features our interview with critical care Physician and host of the Solving Healthcare podcast, Dr. Kwadwo Kyeremanteng.
For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
For our final episode of our Spring Series, we are featuring Part 2 of our Ask Dr. Sammy live event, where Sammy and Hsien answered some of your most common questions. Do you have a question that we didn't get to in our event? Submit then at our website for a future episode. For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
For our final two episodes of our Spring Series, we are featuring audo from our Ask Dr. Sammy live event, where Sammy and Hsien answered some of your most common questions. This episode is part 1. For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
For this episode of our Spring Series, we bring you our Pride Special featuring part 2 of our conversation with columnist, activist and social planner Deirdre Pike. For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
For this episode of our Spring Series, we bring you our Pride Special featuring part 1 of our conversation with columnist, activist and social planner Deirdre Pike. Sammy and Deirdre talk about Deirdre's experience with 'walking someone home' and the experiences many members of the LGBTQ+ community have when facing serious illness. For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
For our Spring Series we bring you quick 20 minute conversations with innovators who make the experience of serious illness better. This episode features part 2 of our conversation with patient and caregiver advocates Maggie Keresteci & Julie Drury. For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
For our Spring Series we bring you conversations with innovators who make the experience of serious illness better. This episode features part 1 of our conversation with patient and caregiver advocates Maggie Keresteci & Julie Drury. For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
For our Spring Series we bring you quick 20 minute conversations with innovators who make the experience of serious illness better. This episode features Dr. Kathryn Mannix, palliative care physician and author of the best selling book, With the End in Mind. For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
For our Spring Series we bring you quick 20 minute conversations with innovators who make the experience of serious illness better. This episode features Dr. Jose Pereira, Chief Scientific Officer for Pallium Canada and Professor and Director for the Division of Palliative Care at McMaster University. For more information visit: waitingroomrevolution.com.
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0.
For our Spring Series we bring you quick 20 minute conversations with innovators who make the experience of serious illness better. This episode features Christopher MacLellan, creator of the Whole Care Network and host of the 'Healing Ties' podcast. For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
For our Spring Series we bring you quick 20 minute conversations with innovators who make the experience of serious illness better. This episode features Nadine Henningsen. Nadine is the CEO of Carers Canada and the Canadian Homecare Association. For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
For our Spring Series we bring you quick 20 minute conversations with innovators who make the experience of serious illness better. This episode features Donna Thomson, a caregiver, author and activist working to make caregiving better. For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
For our Spring Series we bring you quick 20 minute conversations with innovators who make the experience of serious illness better. This episode features Dr. Naheed Dosani, a palliative care physician and health justice activist. For more information visit: waitingroomrevolution.com.
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
For our Spring Series we bring you quick 20 minute conversations with innovators who make the experience of serious illness better. This episode features Dr. Sandy Buchman, a palliative care physician and past president of the Canadian Medical Association. For more information about the Waiting Room Revolution visit: waitingroomrevolution.com.
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In our final episode of Season 1, Hsien and Sammy share some of their final take home messages and additional tips for pulling the seven keys together. They also speak with Stephanie about using the keys to help her mothers journey with cancer. For more information about the Waiting Room Revolution visit: waitingroomrevolution.com.
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, Hsien and Sammy share some of the signs that time may be running out, and what you need to know as you approach the last chapter of life. They also talk with Christa about her experience with her brother-in-law’s final chapter.
For more information about the Waiting Room Revolution visit: waitingroomrevolution.com. Our theme song is Maypole by Ketsa.
In this episode, Hsien and Sammy discuss the third key, “Know Your Style,” which is about why one’s approach to life and how they handle challenges is critical information. They also interview Sue about her journey caring for her dad, and how his personal style impacted the entire illness experience. For more information visit: waitingroomrevolution.com.
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, Hsien and Sammy discuss the second key, “Zoom Out,” which focuses on looking at the big picture of an illness. They also interview Dr. Darren Heyland about his research on communication and decision-making in the Intensive Care Unit of a large academic hospital. For more information visit: waitingroomrevolution.com.
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, Hsien and Sammy discuss the sixth key, “Tag, You’re It”, which is about the need for patients and families to connect the dots with all the players involved along the journey. They chat with author Karen Cummings about her experience planning for her mother’s transition to long term care. For more information visit: waitingroomrevolution.com.
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, Hsien and Sammy discuss the fourth key, “Customize Your Order,” which is about how and when to customize the standard of care to fit your personal preferences. They also interview Wanda, who shares how she customized the doctor’s orders for her daughter Cali. For more information visit: waitingroomrevolution.com.
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, Hsien and Sammy discuss the seventh key, “Invite Yourself,” which is about inviting yourself to the conversation on what to expect about the illness in the future. They also interview Tricia, about how inviting yourself can be challenging and rewarding. For more information visit: waitingroomrevolution.com.
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, Hsien and Sammy discuss the fifth key, “Anticipate Ripple Effects,” which focuses on how the family and caregivers also have a parallel illness experience that cannot be ignored. Hsien talks with Isabelle, who shares her experience of caring for her older sister Julie. For more information visit: waitingroomrevolution.com.
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
In this episode, Hsien and Sammy discuss the first key, “Walk 2 Roads”, which is about walking the road of preparedness and hope. They also interview Kari, who talks about her experience walking both roads while caring for her daughter Olivia. For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Welcome to the Waiting Room Revolution - a podcast about how to be hopeful and prepared when facing serious illness. In this episode, you’ll hear the origin story of The Waiting Room Revolution and how this podcast can help those facing serious illness. For more information visit: waitingroomrevolution.com
Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0