Living Chronic: Recent Episodes

Brandy Schantz

Welcome to Living Chronic, the empowering podcast that delves into the world of living with chronic illness and offers insights, advice, and stories to help you navigate the challenges while embracing life to the fullest. This podcast is a safe space for anyone seeking to understand, support, or improve their journey through chronic illness.

In season One I explore:

My own personal journey and experiences living with multiple chronic illnesses
Navigating the Diagnosis
Advocating for Yourself: Learn effective ways to advocate for your medical needs, from communicating with healthcare providers to seeking second opinions and exploring treatment options.
Emotional Well-being: Explore the impact of chronic illness on mental health and discover coping mechanisms, mindfulness techniques, and professional support resources.
Building a Support System: Understand the importance of a strong support network and discover how to communicate your needs to friends, family, and partners.
Thriving in Your Career: Navigate the challenges of maintaining a successful career while managing a chronic illness, including disclosing your condition to employers and finding work-life balance.
Nutrition and Wellness
Intimacy and Relationships
Pain Management
Travel and Adventure: Discover how to continue exploring the world and pursuing your passions through travel, while taking into account the needs of your chronic illness.
Financial Planning and Resources
Inspiring Guest Stories: Hear from guests who have successfully transformed their lives while living with chronic illnesses. Learn from their journeys and find inspiration in their accomplishments.
Cultivating Positivity: Explore the power of a positive mindset, gratitude, and finding joy in small victories, even when facing health challenges.
Empowerment through Creativity
Planning for the Future: Explore the uncertainty of the future and share tips for setting goals, making long-term plans, and embracing change.

Tune in to Living Chronic and join a community that believes in living life to the fullest, no matter the circumstances. Together, we'll navigate the twists and turns of chronic illness, share our stories, and empower each other to thrive. Remember, you're not alone on this journey.

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Join host Brandy Schantz as she delves into the fascinating world of exosomes and anti-aging with Dr. Edward Park, a Harvard-trained MD and author of "Exomes Songs of Healing." Discover how these tiny cellular messengers are revolutionizing the way we understand healing and regeneration. Dr. Park shares insights from his extensive experience, discussing the potential of exosomes in treating chronic conditions and enhancing longevity. Whether you're a healthcare professional or simply curious about cutting-edge medical advancements, this episode offers valuable perspectives on the future of medicine. Tune in to explore the science behind the songs of healing.

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In this episode of Living Chronic, Brandy Schantz speaks with Sarah Dineen, an intuitive healing coach and Crohn's disease patient. They discuss Sarah's 34-year journey with Crohn's, the challenges of navigating the healthcare system, the impact of trauma on health, and the importance of integrating both traditional and holistic healing methods. Sarah shares her experiences with biologics, surgery, and the emotional toll of chronic illness, while also emphasizing the significance of stress management and self-care techniques like tapping and Reiki.

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In this conversation, Brandy Schantz speaks with Dana Hargus, a mental health counselor and founder of Restore House in Ada, Oklahoma. They discuss the holistic approach to mental health that Restore House offers, emphasizing the importance of addressing not just mental but also physical and emotional well-being. Dana explains the concept of biofeedback, the significance of trauma and stress in mental health, and the role of sleep and nutrition. They explore various alternative therapies, including emotional freedom techniques and the connection between gut health and mental well-being. The conversation highlights practical steps individuals can take to improve their mental health and overall quality of life.

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In this episode of Living Chronic, Brandy Schantz speaks with Ben Raybould, known for his Instagram account Stoma Diaries. They discuss Ben's journey with Crohn's disease, the challenges of living with a chronic illness, and the importance of community and transparency. Ben shares his experiences with diagnosis, surgery, and the mental health impacts of living with a stoma. The conversation highlights the need for support and understanding in the workplace and the emotional toll of chronic illness.

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In this episode, Brandy Schantz speaks with Liam Robertson, an author and ulcerative colitis warrior, about his journey with chronic illness. They discuss the onset of Liam's symptoms, the emotional and social impacts of living with IBD, and the challenges faced in navigating healthcare systems. Liam shares his experience of writing a book to connect with others and raise awareness about ulcerative colitis. The conversation also touches on the differences between healthcare in the UK and the US, the role of community support, and the dangers of misinformation surrounding chronic illnesses.

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In this episode of Living Chronic, Brandy Schantz speaks with Dr. Andrew Holman, CEO of InMedix, about the groundbreaking HRV technology that measures the body's stress response. They discuss the importance of heart rate variability (HRV) in understanding chronic illnesses, particularly dysautonomia and autoimmune diseases. Dr. Holman explains the role of the autonomic nervous system and how low HRV can indicate health issues. The conversation also touches on the challenges of diagnosing dysautonomia, the impact of COVID-19, and the need for collaboration among healthcare providers to improve patient care. Dr. Holman emphasizes the significance of innovative testing methods and the connection between the gut and the brain in managing chronic conditions.

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In this episode of Living Chronic, Brandy Schantz interviews Katherine McCauley, CEO and President of Wounded Warriors Family Support. They discuss the unique initiatives of the organization, focusing on family support for wounded veterans, the importance of maintaining family unity, and the innovative programs like Mobility is Freedom and Dunham House. The conversation highlights the challenges faced by veterans and their families, the significance of quality of life, and the role of community support in enhancing veterans' lives.

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In this conversation, Brandy Schantz and Helen Perry explore the pervasive issue of mistrust in military medicine and its implications for veterans and the broader American public. They discuss the factors contributing to this mistrust, including media influence, personal experiences with healthcare, and the disconnect between policy and reality. The importance of transparency, advocacy, and community support is emphasized as essential elements in rebuilding trust and improving healthcare outcomes for veterans. The conversation highlights the need for institutional accountability and the role of lived experiences in shaping perceptions and driving change.

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I LOVE using Base Salt for my POTS!
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In this powerful episode of Living Chronic: Military, Medicine, and the Mission Left Behind, Brandy Schantz sits down with advocate and caregiver Helen Perry to tackle one of the most misunderstood and overused labels in military healthcare: PTSD.

Together, they explore:

How the VA often funnels diverse and serious health issues under a “PTSD” diagnosis—sometimes dismissing critical symptoms like seizures, vomiting, or even tumors
The harm caused by gaslighting, mislabeling, and invalidation of veterans and their families.
Why the stereotype of PTSD as the “angry combat veteran” fails to reflect the reality of trauma’s many faces
The dangerous culture of one-upmanship within the veteran community—what Brandy calls the “trauma Olympics”—and how it undermines solidarity.
The ripple effects of underfunding, including rising veteran suicides, lack of family support, and the financial strain of paying out of pocket for care
Concrete steps we can all take—contacting representatives, advocating for funding, and standing together as a military family.

Brandy and Helen remind us: trauma isn’t a competition, and every veteran’s experience is valid. To truly support our service members, we must fund the programs that keep them—and their families—alive.

🔗 Resources and advocacy letters available at brandyschantz.com

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I LOVE using Base Salt for my POTS!
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Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.

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In this episode of Living Chronic, Brandy Schantz speaks with Jen, a military spouse and chronic illness warrior, about her journey with colon cancer and the challenges faced within the military healthcare system. They discuss the misdiagnosis, the emotional and financial toll of chronic illness, the impact of toxic exposure on military families, and the urgent need for systemic change in healthcare practices. Jen shares her personal experiences and advocates for better preventative care and support for military families dealing with chronic illnesses.

takeaways

Both Brandy and Jen experienced misdiagnosis in military healthcare.
The healthcare system often dismisses patients' concerns, leading to delayed diagnoses.
Weight gain can be a symptom of serious health issues, not just a lifestyle problem.
Toxic exposure is a significant risk for military families, affecting their health.
Preventative care is crucial and often overlooked in military healthcare.
Chronic illness can take an emotional toll on patients and their families.
Navigating healthcare in the military can be exhausting and frustrating.
The financial burden of chronic illness is increasing for military families.
Systemic changes are needed in military healthcare to improve patient outcomes.
Advocacy and community support are essential for those dealing with chronic illnesses.

Get your award winning Omorpho Vest!
Don't forget to use your special discount code: Brandy15

I LOVE using Base Salt for my POTS!
I love using Base Salt for my POTS. No stevia, no problems! Use the discount code: LivingChronic

Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.

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This conversation delves into the complexities and challenges of Veterans Affairs Community Care, highlighting the increasing costs, bureaucratic hurdles, and the impact on veterans' quality of life. The discussion emphasizes the importance of advocacy, communication with elected officials, and the need for systemic reform in the VA healthcare system to better support veterans and their families.

Get your award winning Omorpho Vest!
Don't forget to use your special discount code: Brandy15

I LOVE using Base Salt for my POTS!
I love using Base Salt for my POTS. No stevia, no problems! Use the discount code: LivingChronic

Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.

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In this episode of Living Chronic, Brandy Schantz and veteran nurse Helen Perry discuss the importance of self-advocacy in healthcare, particularly for veterans. They explore the complexities of medical systems, the significance of researching symptoms, and the value of keeping detailed health records. The conversation emphasizes the need for effective communication with healthcare providers and the role of patient advocates in navigating challenges. Listeners are encouraged to take an active role in their healthcare journey, ask the right questions, and utilize available resources to ensure they receive the care they deserve.

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In this episode, Brandy Schantz and Helen Perry discuss the complexities and challenges of the military health system, particularly in light of recent budget cuts and the impact on veterans and their families. They explore the various components of the military health system, the struggles families face in accessing care, and the critical role of caregivers. The conversation highlights the need for systemic change and increased funding to ensure that military families receive the healthcare they deserve.

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In this special episode of Living Chronic, "Military, Medicine, and the Mission Left Behind, Brandy Schantz discusses the critical need for veteran-specific healthcare with June Heston and Helen Perry. They share personal stories of advocacy, the challenges faced in navigating the healthcare system, and the importance of understanding the unique health issues veterans encounter, including traumatic brain injuries and toxic exposures. The conversation emphasizes the need for better training for healthcare providers, the realities of civilian healthcare versus the VA system, and the importance of advocacy in ensuring veterans receive the care they deserve. The episode concludes with a call to action for veterans to engage in advocacy and demand better healthcare services.

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Join host Brandy Schantz as she sits down with Morgan Check, a nurse practitioner and IBD patient, to explore the intricate journey of living with Inflammatory Bowel Disease. Diagnosed with ulcerative colitis at a young age, Morgan shares her inspiring story of resilience, from playing collegiate lacrosse to becoming a dedicated advocate for IBD patients. Discover how she navigates the challenges of IBD, the importance of movement and mental health, and the power of community support. This episode offers hope and practical insights for anyone affected by IBD.

Get your award winning Omorpho Vest!
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I LOVE using Base Salt for my POTS!
I love using Base Salt for my POTS. No stevia, no problems! Use the discount code: LivingChronic

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Join host Brandy Schantz on "Living Chronic" as she sits down with Claire Carden, a young woman who shares her unexpected journey of being diagnosed with ulcerative colitis at just 17. Claire opens up about the challenges of navigating a sudden diagnosis, the impact of COVID-19 on her hospital experience, and the resilience she found in advocating for herself and others. Discover how Claire's passion for research and advocacy led her to create a supportive online community and an inspiring Instagram account, "Cooking Through Colitis." This episode is a testament to the strength and adaptability of those living with chronic illness. Tune in for an empowering conversation that highlights the importance of support systems and self-advocacy in overcoming life's hurdles.

Get your award winning Omorpho Vest!
Don't forget to use your special discount code: Brandy15

I LOVE using Base Salt for my POTS!
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Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.

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In this episode of Living Chronic, Brandy Schantz speaks with Glennae Davis, a registered nurse and health equity advocate, about the critical issues surrounding health equity, chronic pain, and burnout in the healthcare system. Glenay shares her personal journey through chronic pain and the challenges she faced navigating the medical system, emphasizing the importance of understanding workplace rights and advocating for oneself. The conversation highlights the complexities of chronic diseases, the impact of medication, and the necessity of rest and recovery. Glenay calls for a shift in the healthcare system to prioritize health equity and the well-being of healthcare providers, particularly nurses, who are essential to patient care. The episode concludes with a call to action for listeners to educate themselves about their rights and advocate for better healthcare practices.

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In this episode of Living Chronic, Brandy Schantz interviews Robert Stack, a veteran advocate for disability rights. They discuss Stack's 40-year career, the challenges faced by individuals with disabilities, and the disparities in services based on geographic location. The conversation highlights the importance of caregiver support, the impact of private equity on disability care, and the need for advocacy at the state level. Stack emphasizes the underutilization of disabled individuals in the workforce and the necessity for systemic change to improve their quality of life.

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In this episode of Living Chronic, Brandy Schantz speaks with Mindy Uhrlaub, an author and caregiver, about her experiences navigating the challenges of chronic illness, caregiving, and mental health. Mindy shares her personal journey, including her advocacy work, the importance of community support, and the therapeutic power of writing. The conversation emphasizes the need for mental health awareness, the role of activism in coping with adversity, and the lessons learned from global experiences. Mindy's insights provide hope and encouragement for those facing similar struggles.

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In this episode of Living Chronic, Brandy Schantz speaks with actress Siana Smith, who shares her journey living with multiple sclerosis (MS). They discuss the challenges of getting a diagnosis, the importance of community support, navigating work with a chronic illness, and the lifestyle changes that have helped Shana manage her health. They also touch on the role of therapy, mental health, and the power of sharing stories to uplift others in similar situations.

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In this episode of Living Chronic, Brandy Schantz speaks with Vanessa Abram, author of 'Speechless' and a chronic illness warrior. They discuss Vanessa's traumatic journey from being a speech therapist to becoming a patient who lost her ability to speak. The conversation delves into the profound impact of medical trauma, the struggles of recovery, and the misunderstandings faced in mental health treatment. They emphasize the importance of recognizing and addressing medical trauma, the challenges of living with chronic illness, and the need for greater awareness and empathy in society. In this conversation, Brandy Schantz and Vanessa Abram delve into the complexities of Post-Intensive Care Syndrome (PICS) and the profound impact it has on individuals and their families. They discuss the varied experiences of trauma survivors, the importance of community support, and the challenges of navigating chronic illness. The conversation emphasizes the need for greater awareness and understanding among medical professionals and the necessity of advocating for resources and support for those affected by PICS.

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Last Friday, Living Chronic hit the streets of Washington, DC to cover the Unite for Veterans Rally — a powerful gathering calling attention to the needs of veterans living with chronic illness, disability, and trauma.

In this special episode, Brandy shares personal reflections from the rally, interviews with advocates, and powerful moments from the march. It’s a raw, moving look at what it means to show up, speak out, and demand change.

Tune in for voices that matter, stories that heal, and a rallying cry for visibility, access, and justice.

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In this episode of Living Chronic, Brandy Schantz speaks with attorney Gary Martoccio about the intersection of employment law and disability rights. They discuss the importance of disclosing disabilities, navigating workplace accommodations, and the impact of remote work on disabled employees. The conversation also addresses the challenges of resume gaps for those with chronic illnesses and the legal protections available under the ADA and FMLA. Gary emphasizes the need for documentation and understanding one's rights, while also providing guidance on seeking legal support. The episode concludes with a call to action for advocacy in the workplace to support disabled individuals.

https://martocciofirm.com/

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In this conversation, Brandy Schantz speaks with Amy McClelland, a breast cancer survivor and tech leader, about her journey navigating the job market after her diagnosis. They discuss the challenges faced by individuals with chronic illnesses, the importance of sharing experiences, and the unique strengths that chronically ill employees bring to the workforce. Amy shares her insights on resilience, the impact of social media, and the difficulties of disclosing health issues in job applications. The conversation emphasizes the need for compassion and understanding in the workplace, particularly for those who have faced significant health challenges. In this conversation, Amy McClelland and Brandy Schantz discuss the challenges faced by individuals with disabilities in the job market, particularly in the tech industry. They explore the nuances of discrimination, the impact of disclosing a disability, and the importance of education and awareness in fostering a more inclusive workplace. The discussion highlights the need for genuine diversity and inclusion efforts in companies, as well as the empowerment that comes from sharing personal experiences.

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In this episode of Living Chronic, Brandy Schantz speaks with Mamello, a lupus patient and advocate from South Africa. They discuss the challenging journey to diagnosis, the importance of self-advocacy, and the role of support networks in managing chronic illness. Mamello shares her experiences with lupus, the misconceptions surrounding chronic illness, and her efforts to raise awareness through social media. The conversation emphasizes the need for understanding and support from friends, family, and the medical community, as well as practical advice for those newly diagnosed with chronic conditions. Be sure to follow Mamello on Instagram and Tiktok @blackgirlwithlupus

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In this episode of Living Chronic, Brandy Schantz speaks with Matt Reed about his journey with Crohn's disease, the challenges of navigating work while managing a chronic illness, and the importance of mentorship and support systems for those living with chronic conditions. They discuss the need for greater awareness and understanding of invisible illnesses, the difficulties in balancing work and health, and the role of organizations like the Crohn's Colitis Foundation in providing resources and community support.

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In this conversation, Brandy Schantz interviews Dr. Frederick Schiffer, a psychiatrist and author, about his work in dual brain psychology. They discuss the concept of dual brain psychology, which posits that each hemisphere of the brain can support a separate mind, and how trauma can affect mental health. Dr. Schiffer explains his treatment techniques, including visual stimulation and photobiomodulation, and emphasizes the mind-body connection in addressing chronic illness and pain. In this conversation, Brandy Schantz and Dr. Fred Schiffer explore the intricate relationship between mental health, trauma, and addiction. They discuss how trauma can lead to substance abuse, particularly in the context of the opioid crisis, and emphasize the importance of addressing underlying trauma rather than merely treating addiction. Dr. Schiffer introduces his concept of Dual Brain Psychology, which focuses on the duality of the mind in healing from trauma and addiction. They also touch on the promising results of ongoing research into new treatment methods and the need for FDA approval to bring these innovations to the public.

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In this episode of Living Chronic, Brandy Schantz speaks with Suzy Burnett, a mother and advocate living with Crohn's disease and drug-induced lupus. They discuss Susie's journey with her illness, the therapeutic power of writing, the importance of community and advocacy, and the challenges faced in navigating the healthcare system. The conversation highlights the need for better patient advocacy and the reality of living with chronic illness, emphasizing the strength found in shared experiences and support.

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In this conversation, Brandy Schantz and Dr. Robert C. Smith discuss the ongoing crisis in mental health care, emphasizing the role of primary care physicians in addressing mental health issues. They explore the lack of training in medical education regarding mental health, the importance of empathy and communication in healthcare, and the need for a cultural shift within the medical community to prioritize mental health awareness and support. In this conversation, Dr. Robert Smith and Brandy Schantz discuss the critical need to integrate mental health into medical training and practice. They explore the historical separation of mind and body in medicine, the importance of preventative care, and the lifestyle factors that contribute to chronic diseases. The discussion emphasizes the need for systemic change in healthcare to address these issues effectively, advocating for public awareness and action to improve health outcomes.

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In this episode of Living Chronic, Brandy Schantz and Heather Boughey discuss their challenging experiences with chronic illnesses, particularly Crohn's disease and rheumatoid arthritis. They share personal stories about navigating the complexities of medication management, the impact of these conditions on mental health, and the importance of support systems. The conversation highlights the often-overlooked aspects of living with chronic illness, including the emotional toll and the need for patience in treatment processes. In this conversation, Heather Boughey and Brandy Schantz delve into the emotional and physical challenges of living with chronic illnesses. They discuss the mental health impacts, the importance of support systems, and the struggle between pushing through pain and acknowledging limitations. The conversation highlights the unique challenges faced by those with chronic conditions, the effects of medication, and the realities of aging while managing health issues. They emphasize the need for compassion, understanding, and the importance of seeking professional help, while also sharing personal anecdotes and lessons learned from their experiences.

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In this episode of Living Chronic, Brandy Schantz interviews Jeremy Tammone, a veteran who shares his harrowing experience of being shot and the profound impact it has had on his life. Jeremy recounts the night of the incident, his miraculous survival against the odds, and the significant changes he has faced since then. The conversation delves into themes of resilience, grief, and the ongoing journey of adapting to a new reality after trauma. Jeremy's story is one of hope, strength, and the importance of finding purpose in the face of adversity. In this conversation, Jeremy Tammone and Brandy Schantz discuss the profound impact of mental health on individuals with disabilities, the journey towards justice after traumatic events, and the importance of support systems. They explore the challenges of reinventing oneself after life-altering experiences and the necessity of acceptance in moving forward. The conversation also highlights the critical need for organ donation and the role of community in healing.

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In this conversation, Brandy Schantz and Professor Brian Lowry explore the intersection of achievement and meaning, particularly in the context of chronic illness and identity. They discuss how personal experiences shape our understanding of self and the importance of community and inclusion in navigating life's challenges. The dialogue emphasizes the need for individuals to evolve and find purpose beyond material success, while also addressing the significance of diversity, equity, and inclusion in society.

https://www.brianloweryphd.com/

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In this conversation, Brandy Schantz and Natalie Hayden discuss their advocacy work with the Crohn's Colitis Foundation, sharing personal experiences and the importance of community support. They emphasize the significance of knowledge and education for patients with IBD, highlighting the ongoing research and resources available through the foundation. The discussion also touches on living with chronic illness, the empowerment that comes from understanding one's condition, and the need for support and camaraderie among patients.

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In this episode of Living Chronic, Brandy Schantz interviews N'Jadika Olatunde, an expert in reflexology and holistic healing. They discuss the significance of reflexology, the role of the nervous system in health, and the connection between gut health and overall well-being. The conversation emphasizes the importance of preventive health, the need to reconnect with one's body, and the complexities of medication and its side effects. Ultimately, they advocate for empowerment in health, encouraging listeners to take control of their wellness journey. In this conversation, Njideka Olatunde and Brandy Schantz explore the profound connection between the mind and body, emphasizing personal empowerment in managing health. They discuss the impact of genetics and diet on health choices, the necessity of a holistic healthcare team, and the role of stress in pain management. The dialogue highlights the importance of shifting mindsets from victimhood to empowerment and the critical role of family support in navigating chronic illness.

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In this episode of Living Chronic, Brandy Schantz speaks with Ashley Hurst, a registered dietitian specializing in Crohn's and ulcerative colitis. They discuss the importance of nutrition in managing IBD, the emotional challenges faced by patients, and the need for better support and understanding within the healthcare system. Ashley shares her personal journey with IBD and how it inspired her to help others navigate their dietary challenges. The conversation also touches on the complexities of food anxiety, the role of research in improving treatment options, and the healing power of helping others through shared experiences. In this conversation, Ashley and Brandy discuss the challenges faced by individuals with chronic illnesses, particularly focusing on the flaws in the medical system, the importance of nutrition, and the cultural norms surrounding alcohol consumption. They emphasize the need for better support and understanding within the healthcare system, the impact of medications like prednisone, and the normalization of alcohol use in society, especially among those with autoimmune diseases. The discussion highlights the importance of community, education, and advocacy in improving the lives of those affected by chronic conditions.

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In this conversation, Brandy Schantz and Beth Biss discuss the challenges of navigating the healthcare system, particularly in relation to conditions like POTS and dysautonomia. They explore the role of social media in raising awareness and facilitating diagnoses, the importance of support groups, and the interconnectedness of body systems. The discussion also highlights the value of physical therapy and nutrition in managing chronic illnesses, the significance of mindset in health, and innovative approaches to exercise. Beth shares insights about her newsletter and advocacy efforts, emphasizing the importance of self-care and community support.

takeaways

Many doctors are still unaware of conditions like POTS.
Social media can play a crucial role in diagnosis.
Dysautonomia symptoms can be confusing and varied.
Support groups provide essential community and understanding.
The gut-brain connection is significant in chronic illness.
Physical therapy and nutrition are vital for managing health.
Mindset can greatly influence health outcomes.
Exercise must be tailored to individual needs.
Beth's newsletter offers valuable health insights.
Advocacy and awareness are key in chronic illness communities.

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In this episode of Living Chronic, Brandy Schantz speaks with Laura Packard, founder of Health Care Voices and a cancer survivor, about the importance of healthcare advocacy. They discuss the challenges faced by patients navigating the healthcare system, the impact of the Affordable Care Act, and the need for education and resources for individuals dealing with chronic illnesses. The conversation highlights personal stories, recent controversies in healthcare, and the desperate situations many patients find themselves in when seeking care.

takeaways

Healthcare advocacy is crucial for those with chronic illnesses.
The Affordable Care Act has saved many lives, including Laura's.
Navigating health insurance can be complicated and overwhelming.
Patients often face unexpected health challenges that require quick decisions.
Education about healthcare options is essential for informed choices.
Personal experiences can shed light on the healthcare system's flaws.
Recent healthcare controversies highlight ongoing issues in patient care.
Desperation can lead to drastic actions when patients feel denied care.
Resources like navigators can help individuals understand their options.
It's important to advocate for better healthcare policies and practices.

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In this conversation, Brandy Schantz interviews John Register, a Paralympic silver medalist and motivational speaker, about his journey from a world-class athlete to overcoming the challenges of disability. They discuss the dual nature of inspiration, the importance of employment for disabled individuals, and how resilience can lead to success. John shares insights from his new book on leadership and the innovative approaches he is taking to engage the community and support disabled individuals in the workplace.

takeaways

Veterans have a unique perspective on resilience and inspiration.
Inspiration can often come from a place of empathy rather than sympathy.
Overcoming adversity is a personal journey that requires a step-by-step approach.
Employment for disabled individuals is crucial for their self-worth and societal contribution.
Companies that hire disabled individuals see a significant increase in revenue.
Leadership in crisis requires the ability to tell impactful stories.
Resilience is a common trait among those who have faced significant challenges.
The importance of community support in the journey of disabled individuals cannot be overstated.
Innovative solutions can improve accessibility and inclusivity in various sectors.
John's book provides practical insights for leaders to create their own impactful stories

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In this conversation, Brandy Schantz speaks with Dr. Keith Ellis about his research on long COVID, particularly focusing on the microclots hypothesis. They discuss the challenges faced by patients, the lack of clear diagnostic criteria, and the frustrations with the healthcare system. Dr. Ellis emphasizes the need for more focused research and the development of therapeutics to address the debilitating symptoms of long COVID. The conversation also touches on the role of natural products in drug development and the importance of accessibility and affordability in treatment options. In this conversation, Keith C. Ellis, PhD, discusses his innovative approach to developing natural supplements that mimic pharmaceutical effects, emphasizing the importance of patient empowerment and the need for open dialogue in healthcare. He critiques the bureaucratic inertia in medical research and advocates for immediate solutions to health issues, particularly in the context of long COVID. The discussion highlights the necessity of integrating natural remedies into patient care while navigating the complexities of modern medicine.

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In this conversation, Brandy Schantz and Dr. Kirk Adams discuss the importance of disability inclusion in the workforce. They explore the untapped potential of individuals with disabilities, the transformative impact of inclusive hiring practices on corporate culture, and the success stories of companies that have embraced diversity. Dr. Adams shares insights on the challenges faced by disabled individuals in the job market, the historical context of disability rights, and the opportunities for self-employment and entrepreneurship. The discussion emphasizes the need for advocacy, community support, and the importance of self-disclosure in the workplace.
https://www.innovativeimpact.consulting/

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In this conversation, Brandy Schantz and Anna Knight explore the shared experiences of individuals living with chronic illnesses, emphasizing the global nature of these challenges. They discuss the rise of dysautonomia and the importance of awareness, the grieving process associated with chronic illness, and the power of patient-led movements. The conversation highlights the need for systemic change in how society views and supports individuals with disabilities, advocating for personal agency and the importance of community support. They also touch on the economic impact of disability and the necessity of redefining fulfillment in the workplace, ultimately calling for a more inclusive and understanding society.

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In this episode of Living Chronic, Brandy Shantz speaks with Dr. Tara Palumbo, a seasoned medical professional who now navigates the complexities of healthcare as a patient. They discuss the evolution of healthcare over the past three decades, the challenges of accessing care, especially in rural areas, and the burden of medical debt. They also touch on the impact of environmental health on communities, the need for systemic change in healthcare, and the importance of trust and transparency in the medical field. The conversation highlights the strength of individuals living with chronic illnesses and the need for advocacy and support in the healthcare system.

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In this episode of Living Chronic, Brandy Schantz discusses her personal journey with chronic illness and the importance of vocational rehabilitation services. She shares her struggles with Crohn's disease and other health issues, emphasizing the need for support systems to help disabled and chronically ill individuals remain in the workforce. Brandi advocates for better awareness and access to state vocational rehabilitation services, highlighting their role in empowering individuals to find meaningful employment despite their health challenges.

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In this conversation, Brandy Schantz speaks with Emma Polette about her journey with chronic illness and her focus on healing. They discuss the importance of practicing Ahimsa, the philosophy of yoga, and the need for self-compassion. Emma shares her experience with endometriosis and the benefits of attending a pelvic pain clinic. They also touch on the significance of rest and the decision to prioritize health over work. Additionally, they discuss the issue of alcohol consumption among women and Emma's personal journey to sobriety. Emma Polette shares her personal journey with alcohol and how she decided to quit drinking. She discusses how alcohol consumed her thoughts and affected her health, particularly her endometriosis. Emma also talks about the societal pressure to drink and the need to have open conversations about the unhealthy aspects of alcohol consumption. She emphasizes the importance of finding alternative ways to cope with stress and comfort oneself. Emma highlights the physical and mental benefits she experienced after quitting alcohol, including better sleep and reduced anxiety.

takeaways

Practicing Ahimsa, the philosophy of non-harming, can be beneficial for individuals with chronic illness, as it promotes self-compassion and reduces unnecessary suffering.
Attending a pelvic pain clinic can provide valuable support and resources for individuals with conditions like endometriosis, offering a comprehensive approach to treatment and healing.
Prioritizing rest and self-care is essential for managing chronic illness and promoting overall well-being.
Choosing to prioritize health and happiness over work and financial gain can lead to unexpected opportunities and a greater sense of fulfillment.
Addressing the issue of alcohol consumption among women is important, as it can be used as a coping mechanism for stress and anxiety, and finding support and resources for sobriety can lead to a healthier and more fulfilling life. Alcohol consumption can consume your thoughts and affect your health.
Societal pressure to drink can be overwhelming, but it's important to have open conversations about the unhealthy aspects of alcohol consumption.
Finding alternative ways to cope with stress and comfort oneself is crucial.
Quitting alcohol can lead to physical and mental benefits, such as better sleep and reduced anxiety.

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Brandy Schantz shares her journey of living with chronic illness and the challenges she faced in getting a proper diagnosis. After experiencing severe reactions to medication, she was diagnosed with drug-induced lupus and an unknown neurologic condition. She struggled with migraines, chest pain, vertigo, dizziness, and various other health issues. Eventually, she was diagnosed with autonomic dysfunction, cardiac autonomic neuropathy, small fiber neuropathy, pseudo motor dysfunction, orthostatic hypotension, and sleep apnea. Brandy emphasizes the need for better communication and diversity of thought within the medical community to improve patient care.

Takeaways

Living with chronic illness can be challenging and exhausting, both physically and emotionally.
Getting a proper diagnosis can take time and persistence, and it's important to advocate for oneself.
The medical community needs better communication and diversity of thought to improve patient care.
Patients should not be intimidated by doctors and should actively participate in their own healthcare.
There is room for improvement in the medical system to provide better support and care for chronically ill individuals.

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In this episode, Brandy Schantz interviews Rachel Myers, a breast cancer survivor and coach for women going through the same journey. Rachel shares her personal story of being diagnosed with triple positive breast cancer and undergoing surgery, chemotherapy, and radiation. She emphasizes the need for support and coaching during and after treatment, as well as the importance of addressing the emotional and mental aspects of the disease. Rachel explains how coaching sessions with her focus on overcoming fear, challenging negative thoughts, and creating a new life after cancer. She offers a free coaching session to women with breast cancer to see if coaching is right for them.

Takeaways

Support and coaching are crucial for women going through breast cancer treatment.
Addressing the emotional and mental aspects of the disease is just as important as the medical treatment.
Journaling and getting negative thoughts out can be therapeutic and help in the healing process.
Creating a new life after illness may involve letting go of old stressors and prioritizing mental health.

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In this episode of Living Chronic, Brandy Schantz discusses the challenges faced by disabled individuals in the workforce and the need for better inclusion and support. She highlights the lack of awareness about resources and programs available to disabled individuals and emphasizes the importance of finding meaningful employment. Brandy also addresses the misconception that disability equates to a lack of ability, emphasizing that disabled individuals bring unique perspectives, experiences, and strengths to the workforce. She calls for businesses to embrace all abilities and utilize the superpowers of disabled individuals to create a better and more diverse workforce.

Takeaways

Disabled individuals face challenges in finding meaningful employment and often lack awareness about available resources and programs.
Disability does not equate to a lack of ability; disabled individuals bring unique perspectives, experiences, and strengths to the workforce.
Businesses should embrace all abilities and utilize the superpowers of disabled individuals to create a more diverse and successful workforce.
Marginalizing disabled individuals and viewing them as a tax break or charity is not productive; they are valuable assets that can contribute to the success of a business.

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June Heston, a burn pit advocate and the wife of the late Brigadier General Mike Heston, shares her journey and advocacy work for burn pit victims. She discusses the challenges of getting disability claims approved and the lack of support from the government. June emphasizes the need for more awareness and education about burn pits and their impact on veterans' health. She also highlights the importance of caregiver support and the emotional toll of advocacy. June encourages veterans and their loved ones to join advocacy organizations and speak up for their rights.

Takeaways

Burn pits have had a significant impact on the health of veterans, and more awareness and education are needed about their dangers.
The government needs to provide better support for veterans and their families, including disability benefits and healthcare for exposure-related illnesses.
Advocacy is crucial in bringing about change and ensuring that veterans receive the care and support they deserve.
Nonprofit organizations like TAPS and the Hunter Seven Foundation provide valuable resources and support for veterans and their families.

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Stephanie Humphrey shares her journey of living with chronic illness, surviving breast cancer, and navigating the VA healthcare system. She discusses the challenges of being diagnosed with breast cancer at a young age and the importance of early detection. Stephanie also highlights the impact of sinus issues on overall health and the benefits of ENT care for veterans. She emphasizes the importance of maintaining physical activity during treatment and the power of showing up despite the challenges. Stephanie shares her positive experience with the VA healthcare system and the simplified process of filing for disability. The conversation covers various aspects of living with chronic illness, including dealing with medical appointments and records, emotional challenges and coping mechanisms, toxic positivity and comparison of suffering, toxic optimism and denial, humorous breakdowns in public, and finding strength and setting goals.

Takeaways
* Early detection is crucial in the fight against breast cancer, even for individuals without a family history of the disease. * Sinus issues can have a significant impact on overall health, and veterans should seek ENT care to address these issues. * Maintaining physical activity during treatment can provide a sense of control and empowerment. * The VA healthcare system has made significant improvements in accessibility and simplifying the disability filing process. Keep your medical records organized and easily accessible. * It's okay to have emotional breakdowns and moments of vulnerability. * Avoid toxic positivity and comparison of suffering. * Acknowledge and address feelings of denial and toxic optimism. * Find humor in difficult situations and embrace moments of vulnerability. * Set goals and find strength in overcoming challenges.

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In this conversation, Brandy speaks with Anna, a chronic illness patient and caregiver. They discuss the challenges of being a caregiver while also dealing with their own chronic illnesses. They share their experiences of role reversal, financial struggles, and the emotional impact of being both a patient and a caregiver. They also highlight the similarities in the healthcare experiences of women with chronic illnesses in different countries. The conversation emphasizes the need for patient-centered research and the importance of self-love in activism. The conversation with Anna Knight explores the concept of bringing love into public systems and making change with love. Anna discusses the work of Love Audaciously and how they aim to incorporate love into areas like healthcare, policing, and violence reduction. The conversation also touches on topics like boundaries, self-care, and finding one's vision and mission.

Being a caregiver while dealing with a chronic illness presents unique challenges and emotional adjustments.
The healthcare system often fails to provide adequate support and understanding for both patients and caregivers.
Women with chronic illnesses face similar experiences and struggles worldwide.
There is a need for global change in healthcare to prioritize patient-centered research and address the financial and emotional burdens faced by patients and caregivers.
Promoting self-love and easy activism can empower individuals to advocate for change and improve their own well-being. Love Audaciously focuses on bringing love into public systems like healthcare and policing.
Boundaries and self-care are important aspects of making change with love.
Finding one's vision and mission can make change-making feel easier and more fulfilling.

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Dr. Benjamin Caplan discusses the benefits of cannabis in medicine and how it can be used as an alternative to traditional medications. He emphasizes the importance of education and empowerment for patients to make informed decisions about their health. Dr. Caplan also highlights the potential of cannabis in treating various health conditions, including mental health issues and women's health concerns. He addresses the challenges of the current legal status of cannabis and advocates for better treatment options for patients. Overall, the conversation aims to provide knowledge and resources for individuals interested in exploring cannabis as a therapeutic option. Go to https://cedclinic.com/ to learn more about Dr. Caplan's work and to purchase a copy of his book, "The doctor-approved Cannabis Handbook"

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Season 2 is underway and it's going to be a very exciting season. I want to address some questions I've gotten about mistrust in the medical system, medical professionals, and various institutions.

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n this conversation, Amanda Chay, author of The Girlfriend's Guide to Lupus, shares her personal experience with lupus and offers advice for individuals living with chronic illness. The conversation covers topics such as the challenges of diagnosis for athletes, the importance of dental and eye health, the prevalence of autoimmune diseases in women, setting boundaries and choosing supportive relationships, the role of caregivers, the impact of chronic illness on relationships, advice for newly diagnosed individuals, the importance of self-advocacy and documentation, and practicing self-compassion and grace.

Takeaways

Diagnosis of autoimmune diseases can be challenging, especially for athletes, as symptoms may be attributed to aging or overexertion.
Regular dental and eye check-ups are important for individuals with chronic illness, as these conditions can affect oral and visual health.
Autoimmune diseases are more prevalent in women, and the reasons for this gender disparity are still being studied.
Setting boundaries and choosing supportive relationships are crucial for individuals with chronic illness, as not everyone will understand or empathize with their experiences.
Caregivers play a vital role in supporting individuals with chronic illness, and open communication and understanding are key to maintaining healthy relationships.
Newly diagnosed individuals should arm themselves with self-compassion, educate themselves about their condition, and seek support from others who have similar experiences.
Self-advocacy is important in healthcare settings, and keeping a record of symptoms and concerns can help individuals communicate effectively with their healthcare providers.
Practicing self-compassion and giving oneself grace is essential for managing the challenges of living with chronic illness.

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Welcome back to Living Chronic, where we delve into the challenges and triumphs of living with chronic conditions. After a brief hiatus for surgery and recovery, I'm thrilled to announce the return of Season 2!

In this season, we're taking Living Chronic to new heights by exploring the intricacies of veterans' issues and advocacy. Join me as we navigate the unique challenges faced by veterans dealing with chronic illnesses and shine a spotlight on their inspiring stories of resilience.

As always, our mission remains to raise awareness about the issues affecting chronically ill patients. From sharing personal experiences to interviewing experts and advocates, we'll provide valuable insights and support for those navigating the complexities of living with chronic conditions.

Get ready for insightful conversations, informative discussions, and a renewed commitment to making a positive impact. Season 2 of Living Chronic is not just a podcast; it's a community dedicated to fostering understanding, compassion, and empowerment.

Thank you for your continued support, and let's embark on this journey together. Living Chronic Season 2 is here, and we're ready to amplify the voices of those living with chronic conditions and veterans alike.

Stay tuned for engaging episodes, empowering stories, and a deeper exploration of the issues that matter most to our community. Welcome back to Living Chronic – where every story is a step toward greater awareness and advocacy.

Subscribe now and join us on this meaningful journey!

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This week I interviewed Best Buddies Champion of the Year, Virginia and DC nominee, Suzanne Garwood. She talks about being the parent to disabled children, working with organizations like Best Buddies to better the lives of disabled children, and her personal experiences working to make this a better world for her two children.

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This week I interview Ohan the Money Doctor. https://www.ohanthemoneydoctor.com/

Financial Planning is important for everyone, especially the chronically ill. We discuss some tips and the right documents to have in place to ensure your finances are taken care of. These are difficult conversations but necessary. Ohan helps you to understand various powers of attorney, trusts, and other important items to have ready.

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Chronic illness can be devastating to your career and often, patients must make a career change in order to continue working or work with HR at their current job to help them work through illnesses and treatments. Rosalind founded the only chronic illness focused career coaching business after suffering from MS and UC and struggling in her own career.

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This week I participated in Crohn's & Colitis Foundation's Advocacy Day on the Hill. It's important that we as patients advocate for ourselves, not just in the medical setting, but in the policy setting as well. This week we advocated for 2 bills in particular, Safe Step Act and HELP Copays but there is so much more that can be done to help patients and the disabled. Let's get involved and do what we can to save ourselves!

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Jon "The Posture Monster" Clark Expert Posture Therapist, Podcast Host, Ordained Psychedelic Minister is the only psychedelic posture therapist in the worldd and we talk about how he used posture therapy, magic mushrooms, and a new outlook to go from a wheelchair to living without pain. www.chronicpainrewired.com

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Michele is a Doctor of Physical Therapy, certified in yoga, nutrition, and women's health. She's also a mom of 4 and a military wife. Michele talks about health and wellness over 40 and living a healthy lifestyle. www.micheleriechman.com

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Antra Boyd has served in the Navy, been an OR nurse, advocated for patients, and survived cancer. She has so many great tips and tricks that I can't wait to have her back on the show. ChatGPT for help asking questions at the doctor!! www.connectedcarepatientadvocates.com

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I've been reading The Divided Mind by Dr. John E. Sarno. I've learned so much through this podcast about the relationship between my PTSD, my trauma, my mind, and my body that I felt it was time to start really reading about the science. This marks the beginning of my journey to understanding the origins of my pain and working to find peace within myself.

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Jessica Bartley of New Hope Natural Healing, https://www.newhopenaturalhealing.com/, knows what it feels like to be desperate for help, any help, that can get your life back from chronic illness. In this episode, we discuss that feeling of desperation and hopelessness and how to get your life back fro chronic illness.

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Winners Never Quit and Quitters Never Win. That's what we are taught. Is it always true though? Quitting can be difficult but when you're in a toxic situation, sometimes quitting is self-care and the best thing you can do for yourself.

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This week I spoke with Tanja Degitz, coach, Body-Mind Mentor, and specialist in healing through nervous system regulation. She works on the mind and body connection to reduce pain and find healing. Tanja can be found on Instagram at Making.it_possible and helps you to make it possible to live pain free.

Over these past 2 years, I've often felt lost, even frantic. I am a problem solver and being so depressed after going through so many severe health issues, especially after just picking myself up after a very life altering Crohn's flare, meant that I was trying to make myself happy, even if I didn't understand what I was looking for or how to be happy again. I've realized that I've been lost because my entire life has been built around Crohn's disease for the past 10 years and it's now time for me to take my life back and make Crohn's just one aspect of my life, not my whole life.

I interview Maria Pendolino about being a disabled voice actor and learning to navigate healthcare bureaucracies and advocate for yourself.

⁠http://www.voicebymaria.com⁠⁠http://www.disabledvoiceactors.com⁠⁠https://www.linkedin.com/in/mariapendolino/⁠⁠https://www.instagram.com/mariapendo/⁠⁠https://www.tiktok.com/@mariapendo⁠

Holly Bertone, Coach and Podcast Host, Gratitude Builds Fortitude, talks about how mindset can shift your perspective and change your life.

Krystalore Crews founded Crews Beyond Limits (www.krystalorecrews.com) after suffering some big set backs in life including Rheumatoid Arthritis, a big military move with her husband that left her unemployed (military spouses know), and then a skin cancer diagnosis. She knows how difficult it is to pick yourself up and she's fought hard to thrive as a coach and fitness leader. Krystalore is also up for an award for a military spouse entrepreneur award and is sharing her tips for how to survive and thrive.

Emma Polette is a chronic warrior with Endometriosis and Grave's Disease. She has learned to negotiate her life with chronic illness by using yoga and the principles it teaches you. We talked about Ahimsa, accepting yourself as you are, and learning to truly love yourself.

It's been a while since my last podcast episode and I'm struggling with the guilt I feel for not being able to keep up with all the things I want to accomplish. I want to do all the things I did before I got sick and it's hard to find my worth outside of being the woman who could run fast and work hard. I'm learning to assuage myself of that guilt and accept my new reality. Most importantly, I'm learning to find my worth in my new body. #LivingChronic #Crohnsdisease #fibromyalgia #LongCovid #Guilt

Amelia Myers; Actress, Singer, and current Mrs. Maryland Petite USA talks about her life with Crohn's disease and how she's learned to build a thriving life despite her illness. Amelia is also certified in nutrition and has a new cookbook in the works as well as a support group, Kickin' Crohn's.

Dr. Rashidian, chiropractor and author of Cracking the Stress Secret, discusses his new book and how to learn to better deal with stress. When we seek advice on health and wellness, we are commonly told to reduce or eliminate stress in our lives. Dr. Rashidian and "Cracking the Stress Secret" takes a different stance. In this book, author, speaker, and chiropractor Amir Rashidian explains that striving to accomplish goals and improve ourselves inherently comes along with obstacles and stress, and so it's unrealistic--even undesirable--to cut stress from our lives. How much we achieve depends on how much stress we can safely handle. In fact, stress can become a natural source of fuel for success. He elaborates on this and other techniques to live your best life in this episode of Living Chronic.

This week I interview Melissa Schuster, Narcolepsy Type I patient, veteran, mom, and friend. She discusses her journey to get a diagnosis and to live her best life with Narcolepsy.

Marissa Spratley is the Manager, Fundraising Campaigns & Volunteer Engagement at Crohns & Colitis Foundation in the Washington, DC metro area. Marissa is a Crohn's patient and another drug induced lupus survivor. Hear her story and how she is working to help others just like her.

I will be reading for weeks but there are already some clear takeaways.

This week I interview Fred Diamond, author and podcast host of Love, Hope, Lyme. He discusses what he has learned about being a caregiver to someone with a chronic illness and what he has learned about Lyme.

Today I'm interviewing Dr. Bruce Kehr and Nutritionist, Julie Wendt about root cause psychiatry, the role of nutrition in your treatment, and your mental health and diet and how it relates to your chronic illness. Potomac Psychiatry does whatever it takes to help each patient achieve a a full recovery from their suffering. This award-winning practice has improved thousands of lives. Instead of taking trial and error approach to your health, they offer a personalized treatment roadmap to better emotional wellbeing based on your unique history, genetics, needs, and goals. Through Precision Psychiatry, they help you feel better, faster.

I'm still working to learn more about how many people get drug induced lupus, what the process and procedures are around the Adverse Reaction Database, and how I can ensure what happened to me never happens to anyone else.

Jill Buzby knows a few things about being a caretaker to the disabled, she has two children with developmental disabilities. Today she shares what she has learned along the way about advocating for her children, negotiating difficult bureaucracies, and living and loving.

Kelly Hof, RN, mother, chronic warrior discusses her battle with degenerative disc disease and how she has overcome her disease and learned to thrive.

Cynthia discusses what it's like living with multiple sclerosis, advocating for herself as a patient and a veteran, how she fought to get disability, and being a mom with MS.

Heather Boughey was diagnosed with Crohn's disease in July of 1998, just as many of our modern treatments were being approved for use by the FDA. Hear Heather's story and find out what she wishes she knew when she was first diagnosed with Crohn's disease.

Mary Esna-Ashari is a Senior Director at Crohn's & Colitis Foundation. She is not just a Crohn's & Colitis Foundation employee, she's also a caretaker for family members with Crohn's disease. She is speaking to me about what it means to be a caretaker and how to help your family member with Crohn's or Ulcerative Colitis.

Today we discuss how exercise can better help those of us living with chronic illness. Dr. Debra Stroiney will help us better understand how exercise can help us live our best lives while living chronic.

The death of Stephen "tWitch" Boss has made us all think about mental health and what to do when you are suffering from depression and suicidal thoughts. What we can do today is demand legislation.

TNF Inhibitors are a class of drugs that treat various diseases such as Crohn's disease, rheumatoid arthritis, and psoriasis. Learn more about these drugs and how to find the right medication for your condition.

Welcome to Living Chronic. My name is Brandy Schantz and this is my story about living chronic.

Be sure to subscribe to Living Chronic. We'll be discussing fatigue and more in our upcoming episodes.

Do you know the signs of drug induced lupus? If you are on a TNF inhibitor, you need to know the signs so you can alert your doctor.

If you're suffering from depression and anxiety while chronically ill, you're not alone.