Endo Battery: Recent Episodes
Shelby and Alanna
Charging our life when Endo drains us. Talking all things Endometriosis and Adenomyosis, from the things that help us recharge and identifying the things that drain us.
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We talk with pelvic health occupational therapist Karla Ehlers about why uncertainty can dysregulate the nervous system and make pelvic pain feel even harder. We share a clearer map of fight or flight, shutdown, and social safety so you can choose support that actually matches what your body needs.
• noticing early signs of dysregulation and building functional awareness
• understanding sympathetic activation, dorsovagal shutdown, and ventral vagal safety
• choosing grounding tools when anxiety spikes and safe movement when you feel stuck
• using co-regulation and group support to create nervous system safety
• recognizing neuroception and how clinics, partners, and family cues affect pain
Do you have more questions? Keep them coming. Send them in, and I'll bring you the expert answers. You can send them in by using the link in the top of the description of this podcast episode or by emailing contact at indobattery.com or visiting the Indobattery.com contact page.
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We talk with Dr. Canio Martinelli about why endometriosis and pelvic pain get dismissed and how medical education can train future OBGYNs to reason better, listen better, and act sooner. We also dig into AI, global collaboration, and the research pipeline that could finally clarify endometriosis mechanisms if funding and integrity stay front and center.
• why women’s health care lags behind when research and training start from male-based evidence
• how clinical reasoning breaks down when protocols replace curiosity and context
• using AI as a tool to scale better reasoning without losing human responsibility
• Brain Circulation and training residents through excision surgery exposure, pelvic floor PT, advocates, and patient voice
• why listening is a core clinical skill that improves diagnosis, trust, and tailored care
• Italy vs United States advocacy culture and how systems shape patient expectations
• translational research, and why endometriosis biology needs more clean funding
• where to follow the work through SHRO and peer-reviewed publications on PubMed
continue advocating for you and for others!
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We talk about what it feels like when your body becomes unpredictable and you stop feeling safe inside it. With pelvic health occupational therapist Karla Ehlers, we share how nervous system support and pre-surgery planning can create steadier recovery and more confidence.
• naming the link between unpredictability, fear, and nervous system dysregulation
• building safety in the body as an individualized skill
• preparing for excision surgery by finding baseline movements that feel good
• avoiding random new exercises post-op by using familiar go-to tools
• using vagus nerve strategies while also addressing what still feels unsafe
• leaning on predictability as a form of nervous system support
Do you have more questions? Keep them coming. Send them in, and I'll bring you the expert answers. You can send them in by using the link in the top of the description of this podcast episode or by emailing contact at indobattery.com or visiting the Indobattery.com contact page.
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“Unexplained infertility” can feel like a dead end, especially after you’ve done everything you were told to do and the embryo transfers still don’t stick. We sit down with Dr. Sadikah Behbehani, a double board certified fertility doctor and minimally invasive gynecologic surgeon, to talk through a reality many patients never hear clearly: endometriosis is frequently the hidden cause behind infertility, recurrent implantation failure, miscarriages, and years of confusion, even when pain is mild and imaging looks normal.
We get practical about the decision points patients face every day. How do you screen for endometriosis when fertility workups focus on sperm, tubes, ovulation, and “normal” ultrasounds? Why is laparoscopy with expert excision still the only definitive diagnosis, and why does surgeon skill change what gets found, treated, and prevented from recurring? Dr. Behbehani explains how inflammation and scarring can interfere with fertilization and implantation, how endometriomas can affect ovarian response, and why age and timing often matter more than any single lab result, including AMH.
We also tackle the hardest planning questions: whether to do IVF before surgery or after surgery, why IVF medications can flare endometriosis pain without clear evidence of worsening disease stage, and when GnRH agonists like Lupron make sense for embryo transfer versus egg retrieval. We discuss symptom management when surgery has to wait, plus nuanced medication decisions including cannabis use, SSRIs, and newer weight loss drugs, with an emphasis on individualized care rather than rigid rules.
If you’re trying to protect your fertility while living with endometriosis or adenomyosis, share this with someone who needs clearer options, then subscribe and leave a review so more patients can find it. What decision are you facing right now: surgery first, IVF first, or egg freezing as a backup?
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Your pelvic floor might be doing its job a little too well. When stress hits, many of us brace without noticing and that tension can land deep in the core, shaping everything from pelvic pain to how safe we feel in our own body. We sit down with Karla Ehlers, a pelvic health occupational therapist and founder of Ocupelvic Health and Wellness, to connect the dots between nervous system states and pelvic floor dysfunction in a way that feels practical, human, and doable.
We talk about the pain cycle: fear and past trauma can trigger a protective “guarding” response, which ramps up the sympathetic nervous system, which then feeds more pain and more threat. Karla explains why fight or flight is not the villain, we need it for energy and everyday function, but we also need an off-ramp back to parasympathetic regulation. You will hear concrete examples of where people hold tension most, including pelvic floor tightening, jaw clenching, upper ab gripping, and glute squeezing, plus how sensory stress like constant noise can push the body further into dysregulation.
We also dig into interoception, the skill of sensing what is happening inside your body. Chronic pelvic pain, chronic stress, and neurodivergence can make those signals either harder to read or so loud that everything feels like danger. Carla offers a steadier approach: build functional awareness first, notice early signals before they reach 10 out of 10, and practice small releases that support lasting change.
If this quick, focused conversation helps, subscribe for more expert insights, share it with someone who needs it, and leave a review so more people can find support.
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Waiting for a perfect diagnosis can cost your child months or years of support at school, and Dr. Sarah Cohen Solomon wants families to know they don’t have to wait. I sit down with Dr. Cohen Solomon, a board-certified pediatrician who specializes in hypermobile Ehlers-Danlos syndrome and related conditions like POTS, MCAS, and dysautonomia. She also speaks as someone who has lived through chronic pain, misdiagnoses, and medical gaslighting, which gives her a rare, practical lens on what “whole-person care” looks like for kids who are often dismissed.
We dig into one of the biggest real-world challenges parents face: helping hypermobile students and other kids with chronic symptoms function in school. That includes learners navigating autism, ADHD, endometriosis, fatigue, pain, and sensory overload. Dr. Cohen Solomon explains how the accommodations process can be more than paperwork. Done well, it teaches self-advocacy, helps kids learn when to speak up, and reinforces a powerful message: you’re allowed to take up space and have your needs met. We also talk honestly about the downside, like scarce resources and the frustrating reality that families sometimes have to fight for basic supports.
Then we get concrete about school accommodations and disability rights, including the difference between a 504 plan and an IEP, plus the kinds of symptoms a 504 plan can address. Think far beyond extended test time: mobility challenges between classes, classroom temperature triggers, allergies, and other chronic symptom disruptions can all matter. The most important point: you can request a 504 evaluation based on symptoms, even without a formal diagnosis, and you can start the process with a clear letter to the school.
If this helped, subscribe for more short, expert answers, share this with a parent or educator who needs it, and leave a review so more families can find these tools.
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Pelvic pain can make your body feel unpredictable, tense, and impossible to trust. But what if that tightness isn’t your body “breaking” at all, and it’s actually a protection strategy from a nervous system that’s been through too much for too long?
We sit down with Karla Ehlers, a pelvic health occupational therapist and founder of Occupelvic Health and Wellness, to connect the real dots between pelvic floor dysfunction and nervous system regulation. We get into why strengthening isn’t always the answer, how chronic stress and medical trauma can keep your system stuck, and why symptoms can flare when life feels unsafe, uncertain, or out of your control. If you’re navigating endometriosis, pelvic pain, hypermobility, or that constant bracing you can’t seem to turn off, this conversation offers language and clarity that many of us never get in a doctor’s office.
We also talk practical tools you can try right away: building functional awareness, understanding interoception, using sensory supports, and finding what actually helps your body feel safe. Karla explains co-regulation and neuroception, and why healing often speeds up when you’re in the right community, not just doing the “right” exercises. We even challenge spoon theory and explore how you can be “resting” while your nervous system is still burning energy in a spiral.
If this resonates, subscribe, share this with a friend who needs validation, and leave a review so more people living with pelvic pain and endometriosis can find these nervous system grounded tools.
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Chronic illness does not just change a body, it changes a marriage, a home, and the way your kids understand safety. I sit down with writer and advocate Kody Adamson to talk about what happens when your health shifts early in a relationship and you are suddenly trying to hold love, parenting, and survival at the same time.
Kody gets brutally honest about the emotional weight that follows: mom guilt, wife guilt, anger, sadness, and the feeling of missing out on your own life. We talk about why humor helps but cannot carry everything, and how couples can “regroup and reconnect” when one person is running on fumes. If you have ever apologized for the dishes, the laundry, or the plans you had to cancel, you will feel seen here.
We also dig into the hardest layer: kids. Kody shares what it is like when children grow old enough to realize their family looks different, including how their reactions to seizures change over time. We explore simple, practical ways to build connection on bedbound days, like inviting your child to bring their Legos or drawings to you, turning limited energy into focused closeness. We also discuss therapy for children and partners, plus a powerful communication tool they used during a tough season: a “transparency journal” with a 48 hour response rule.
If you are navigating chronic illness, disability, endometriosis related fatigue, caregiving stress, or the mental load of parenting while unwell, this quick connect offers real strategies and real hope without sugarcoating. Subscribe for more short expert conversations, share this with someone who needs it, and leave a review with the question you want us to answer next.
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Fifteen minutes can decide whether you get help or get brushed off, and that reality hits even harder when your symptoms span multiple systems. We sit down with Dr. Sarah Cohen Solomon, a board-certified pediatrician who specializes in hypermobile Ehlers-Danlos syndrome, hypermobility spectrum disorders, POTS, MCAS, and dysautonomia, and who also knows chronic pain from the inside as a patient. Together, we talk about why endometriosis and connective tissue disorders so often get missed, why patients leave appointments feeling dismissed, and how we can start changing that story earlier, especially for kids and teens.
We get practical about walking into a medical visit with a plan: how to prioritize what matters most, how to share a symptom list without setting off alarm bells, and how to protect your own boundaries when fear and time pressure make it hard to speak. We also dig into the “bendy brain” connection, including how neurodivergence like ADHD or autism can shape communication, sensory sensitivity, and even the pain experience, and what trauma-informed care can look like in a real exam room.
School support is a major theme too. We break down 504 plans, what accommodations can look like for chronic pain, hypermobility, fatigue, and dysautonomia symptoms, and why you can often start the process based on function and symptoms rather than waiting years for a formal diagnosis. We wrap with a grounded conversation about pain management: reframing pain without minimizing it, medication options that may be considered with your clinician, and why individualized movement matters even when you are starting very slowly.
Subscribe, share this with someone who feels overlooked, and leave a review if these conversations help. What question do you want us to ask Dr. Cohen Solomon next?
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The “extra flexible” kid is often celebrated, not evaluated and that can be the start of a long road of unexplained injuries, chronic pain, and being told it’s “just growing pains.” I’m joined by Dr. Sarah Cohen Solomon, a pediatric specialist in hypermobile Ehlers-Danlos syndrome (hEDS) who brings something rare to the table: deep clinical expertise plus lived experience of hypermobility, pelvic pain, and years of dismissal.
We get clear on what hypermobility is (and what it isn’t), why hEDS diagnosis is still heavily dependent on history and exam, and how treating it like a single sore joint misses the real problem. Dr. Solomon explains why management is the right framework, what safe physical therapy for hypermobility should prioritize, and how proprioception and body awareness can reduce injury cascades over time. We also talk mobility aids, why accessibility is not failure, and the one hands-on technique she strongly warns against: rapid high-velocity neck adjustment.
From there, we shift to kids and teens. We walk through early signs parents and pediatricians may overlook, including persistent pain, fatigue after activity, GI issues like constipation or nausea, dizziness with standing, frequent ankle sprains, and recurrent nursemaid’s elbow. We also cover bruising, how it can be misunderstood in pediatrics, and why careful documentation protects families. Finally, we dig into advocacy and medical trauma: how to ask better questions, how to avoid the “doctor shopping” trap, and why being believed is a medical intervention all by itself. We close with emerging research on the overlap between endometriosis and EDS, including striking pelvic pain rates, plus a preview of part two on neurodivergence and practical support tools.
If this hits home for you or your child, subscribe, share this with someone who needs it, and leave a review so more families can find the conversation.
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Life can move fast when your health changes, and the pressure to “figure it all out” can take over your days. We sit down with Kodi Adamson, a writer, advocate, wife, and mom who has spent the past decade learning how to live with chronic illness while protecting her marriage, her identity, and her joy. She shares what happened when her health shifted early in her relationship and how honesty and humor helped, but also why she needed something deeper to get through the hardest stretches.
Kodiopens up about a traumatic event around Christmas 2024 and the decision to take a step back in 2025. Instead of chasing every diagnosis and answer, she focuses on a practical, body-aware reset: a three-part list that helps her find what still feels like her. She revisits old interests, tests them in real life, and then makes a clear call on each one: keep it, adjust it, or drop it. The result is fewer distractions, less overwhelm, and more emotional clarity, especially when chronic pain, fatigue, and uncertainty make everything feel heavier.
We also talk about what happens after bad doctor news and how easy it is to slip into fight-or-flight choices that don’t actually help. Kodi shares the small set of “favorites” that reliably pulls her out of a spiral, like painting, puzzling, playing piano, and riding an e-bike, plus the permission to keep simple comforts that work. If you’re looking for chronic illness coping strategies, relationship resilience, and a realistic way to rebuild self-worth, this quick, focused conversation offers a tool you can try today. Subscribe, share with someone who needs it, and leave a review with the one activity that brings you back to yourself.
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Reading endometriosis research while you’re exhausted and in pain can feel like being handed a textbook when you asked for a lifeline. So we did what we always do on Endo Battery Fast Charged: we translated the studies into clarity, kept the nuance, and skipped the false promises. You’ll hear why research is messy by nature, why correlation does not equal causation, and how to stay curious without spiraling.
We start with a genuinely exciting tool for the future of personalized medicine: patient-derived endometriosis organoids. These tiny 3D tissues grown from real surgical samples can mimic key features of different endometriosis subtypes, reinforcing what patients have said for years: this disease is not one-size-fits-all. We also unpack what it means that tissue from patients using hormonal treatments may grow differently in the lab, plus the limits of organoids that don’t include your full immune system, nervous system, or real-world biology.
Then we zoom out to the gut and the immune system. A large case-control study finds higher rates of small intestinal bacterial overgrowth (SIBO) and intestinal methanogen overgrowth (IMO) in endometriosis patients, and we talk about what that overlap can and can’t prove. From there, we dig into endometriosis and autoimmunity research, chronic inflammation, cytokines, impaired immune surveillance, and why symptoms can feel systemic. Single-cell sequencing adds another layer, linking abnormal gene expression to progesterone resistance and uneven treatment response. We close with a major association study connecting Ehlers-Danlos syndrome (EDS) to higher endometriosis and reproductive health risks, validating that overlapping conditions may change what good care looks like.
If something clicks, use it as a conversation starter with a provider who actually listens. Subscribe, share this with someone who needs the validation, and leave a review so more people can find evidence-based endometriosis support.
Patient-derived epithelial cell organoids mimic the phenotypic complexity of endometriosis subtypes
High prevalence of small intestinal bacterial overgrowth and intestinal methanogen overgrowth in endometriosis patients: A case-control study
Endometriosis and autoimmunity
Gynecologic disorders in women with Ehlers-Danlos syndrome
Endometriosis and adenomyosis unveiled through single-cell glasses
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Pelvic pain after endometriosis surgery can feel like the cruelest plot twist: you found the specialist, went through excision, did the recovery work, and you still do not feel right. When that happens, most of us get pushed toward the same conclusion: the endometriosis must be back. I sit down with my close friend Chelsea Taylor to explore a different possibility that too many endometriosis patients never hear about, vascular compression syndromes and how they can mimic, worsen, or even drive chronic pelvic pain.
Chelsea shares her lived experience with May-Thurner syndrome, nutcracker syndrome, and the long road from years of gaslighting to the right imaging, the right referrals, and finally treatment that restored her day-to-day function. We get specific about what symptoms can overlap with endometriosis, including pelvic heaviness, leg pressure, fatigue, brain fog, pain with standing still, bladder sensitivity, and back or flank pain. We also talk through what a venogram is, why MRV and specialized evaluation matter, and what it is actually like to have venous stents and follow-up care.
We zoom out to the bigger picture of pelvic pain generators: endometriosis, pelvic floor dysfunction, nerve issues, central sensitization, connective tissue disorders like EDS, and dysautonomia or POTS-like symptoms that can muddy the waters. You will leave with practical language to bring to your doctor, a few clues that may suggest a vascular component, and a reminder that better outcomes often come from asking better questions, not rushing into another surgery.
If this helped you, subscribe, share it with someone stuck in the loop of “maybe it’s just endo again,” and leave a review so more people can find the conversation. What symptom are you rethinking after listening?
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Ever been told your labs look fine while your body is screaming for help? We sit down with Jenna Stewart—a former pro dancer turned fascia relief specialist, somatic practitioner, and chef—to explore how the body holds stress, how symptoms act as protective messages, and how regulation, not willpower, unlocks real healing for chronic pain and endometriosis.
Jenna takes us inside somatic therapy in plain language: body scans that anchor attention, audible breath that changes nervous system state, and gentle fascia release that loosens guarded tissue. We talk about why emotions must move to be metabolized, what “safety” actually feels like in your body, and how to create space for tears, shaking, and yawning as healthy release—not setbacks. You’ll hear how anticipatory fear can magnify cyclical pain, why pre-regulating before your period changes the experience, and how simple tools like a soft ball for gut work can ease cramps by helping organs relax and fascia un-grip.
We also dig into the real-life balance between medical care and somatic work. Rather than compete, they complement: a regulated system tolerates procedures better and recovers faster. Jenna offers micro-habits you can keep—60 seconds of shaking before bed, havening when anxiety spikes, hydration before coffee, and foot rolling while you watch TV—plus the surprising red flag high achievers miss: poor sleep. Finally, we map a practical life operating system across emotional, physical, and financial boundaries so your choices stop fueling fight or flight and start sending a steady message of safety.
If you’re navigating endometriosis, IBS, or lingering trauma, this conversation reframes your symptoms from failure to guidance. You’ll leave with grounded, repeatable practices to reduce flare intensity, restore trust with your body, and build resilience one small choice at a time. If this resonated, follow the show, share with a friend who needs it, and leave a review to help others find these tools.
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Ever been told you’re “just bendy”? We sat down with Laura Bloom, president and CEO of The Ehlers-Danlos Society, to unpack what Ehlers-Danlos syndromes and hypermobility spectrum disorders really mean for everyday life and long-term health. In five focused minutes, we move past myths and into practical clarity: which EDS subtypes have known genetic variants, why hypermobile EDS still lacks a single marker, and how that uncertainty affects diagnosis, referrals, and care.
Laura breaks down the 2017 criteria—13 recognized types—and explains why all but the hypermobile type are rare to ultra-rare with identifiable genetic causes. The conversation then zooms in on the hypermobile end of the spectrum, where research and clinical experience point to heritability and complex mechanisms even without a validated test. You’ll hear how a connective tissue condition can reach far beyond joints, showing up as gastrointestinal challenges, ENT issues, bladder and gynecologic symptoms, autonomic features, and possible mast cell involvement. That breadth helps explain why so many patients bounce between specialties without a unifying plan.
The most compelling shift ahead is a diagnostic criteria update expected in December 2026, with early findings suggesting hEDS and HSD belong on a single spectrum. Unifying the framework could streamline evaluation, reduce confusion, and make it easier to access coordinated, multidisciplinary care. For patients and clinicians, that means better language, clearer expectations, and a stronger foundation for research and education.
If you’ve struggled to be believed or to connect the dots across systems, this fast, expert-led guide offers a grounded way forward. Subscribe for more five-minute expert answers, share this with someone who needs clarity, and send us your top question so we can bring the right voices to the mic.
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What if chronic illness showed up two months into your relationship and never left? We sit down with Kodi—writer, advocate, wife, and mom—to unpack what love, parenting, and identity look like when your body keeps rewriting the plan. It’s a raw, often funny conversation that moves from ER dismissals and misdiagnosis to the small, practical rituals that make each day livable.
Kodi breaks down the diagnoses behind her symptoms—hypermobile EDS, dysautonomia, and dystonia—and the eight-year gap before anyone named her dystonic storms. We talk about the reality of short appointments, medical bias, sensory overload in waiting rooms, and why telehealth can be a lifeline. If you’ve ever left a clinic feeling invisible, you’ll find language, validation, and next steps here: how to prioritize your top concerns, ask for concrete follow‑ups, and build a care plan that respects your limits.
We dive into identity after illness with Kodi’s deceptively simple keep–adjust–drop method. She revisits old passions, tracks how they feel now, and either keeps them, adapts them, or lets them go. Open mics became too loud; bluegrass jams with earplugs worked. Painting, puzzling, piano, and e‑biking now steady her nervous system. Think of it as a six‑inch plate—choose what truly nourishes you, and stop pretending you can carry everything. Alongside grief, humor plays a real role. Dark jokes don’t erase pain; they loosen its grip long enough to breathe, connect, and try again tomorrow.
Marriage and parenting evolve under the weight of symptoms, so we share tools that build closeness without burning out. A “transparency journal” helps trade hard truths with time to process. Bed snuggles, Lego show‑and‑tells, and couch movies turn flare days into gentle connection. Intimacy adapts by season—sometimes it’s deep talk while tag‑teaming dishes, sometimes it’s quiet presence. We also name the tradeoffs of cash‑pay therapies and frequent scans, and how choosing small, lasting joys—like watching snowfall—can change the texture of a week.
If you’re navigating endometriosis, EDS, dysautonomia, dystonia, or any chronic condition, this conversation offers honest companionship, practical advocacy tips, and a reminder that your story has value. Listen, share with someone who needs it, and leave a review so more people can find this space.
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What if the fastest path to endometriosis relief starts before the operating room? We sit down with Dr. Iris Kerin Orbuch, a board-certified OBGYN, fellowship-trained excision surgeon, and co-author of Beating Endo, to map a smarter plan: prehabilitating the body so surgery becomes safer, recovery gets easier, and daily pain loosens its grip. In a tight, five-minute Quick Connect, we unpack the exact levers that move the needle—without fluff.
Dr. Kerin Orbuch explains how overlapping conditions like pelvic floor dysfunction, painful bladder syndrome, SIBO, POTS, MCAS, hypermobility, anxiety, and trauma can upregulate the central nervous system and amplify pain. By addressing these drivers before surgery with pelvic floor therapy, gut work, integrative nutrition, mental health support, and nervous system regulation, patients often see 20–80% improvement before the first incision. The payoff is real: clearer surgical fields, fewer post-op complications, and a dramatic reduction in narcotic use, often down to zero to two pills.
We also talk through the practical barriers—costs, access, triggering diet changes, the emotional weight of trauma care—and how to tailor a plan that fits real life. Short, frequent check-ins build understanding and momentum, turning patients into true partners in their own outcomes. Excision remains essential for removing disease, but it isn’t a panacea; it won’t lengthen tight muscles or correct gut dysbiosis. Pairing high-quality surgery with targeted prehab shifts the entire healing trajectory and restores confidence in the process.
If you’re ready to rethink endo care with clear steps and compassionate science, this conversation offers a grounded starting point. Subscribe for more Quick Connects, share this with someone who needs practical hope, and leave a review to help others find these expert insights. Got a question you want answered next? Send it our way and we’ll bring you the expert voice you need.
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Complexity can feel like chaos when your symptoms don’t fit a single box. We open the door to a clearer map, tracing the connections between Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), endometriosis, POTS, and mast cell activation—and why treating those intersections changes outcomes. With advocate and leader Lara Bloom, we dig into the history, the misconceptions that keep people dismissed as “just bendy,” and the momentum building toward smarter diagnosis and safer care.
We break down EDS and HSD in plain language: rare monogenic subtypes with known variants, a common hypermobile type still without a confirmed marker, and the growing case for a spectrum. Lara shares what the December 2026 diagnostic criteria aim to deliver—practical pathways, comorbidity awareness, and tools that make primary care a real point of diagnosis rather than a hallway to nowhere. We talk through the realities of access and privilege, from scans and specialist referrals to the time and money it takes to build a sustainable routine with sleep, hydration, strength work, and nutrition. Personalization is the point: what helps one person may flare another, and good care respects those differences.
Surgery and consent get the attention they deserve. For endometriosis, excision can be essential; for EDS, tissue and anesthesia considerations demand planning. We outline airway precautions, suturing choices, nausea prevention, and rehab strategies that make procedures safer. Most of all, we advocate for informed consent grounded in listening—because the details patients carry are often the exact details that keep them safe. Looking ahead, Laura shares why she’s more hopeful than ever: biobank growth, immune dysregulation research, potential biomarkers, and partnerships that bring policy, medicine, and lived experience to the same table.
If you or someone you love is navigating EDS, HSD, or endometriosis, this conversation offers clarity, language for advocacy, and concrete steps to use with your care team. Subscribe, share this episode with a friend who needs a better map, and leave a review telling us the one change that would make your care safer today.
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The pain you feel isn’t always where the problem starts—and that’s especially true with endometriosis. We sit down with Dr. Taylor Reyes, a board-certified functional manual therapist and pelvic floor specialist, to illuminate the messy middle: the hip and pelvic floor patterns that mimic orthopedic injuries, the sensory overload that keeps your system on high alert, and the simple daily practices that help you finally exhale. If you’ve ever wondered, is this endo or something else, this conversation offers a grounded way to sort the noise.
We start by reframing endometriosis through a neuroimmune lens. Instead of reducing it to “period pain,” we connect delayed diagnosis to changes in breathing, core support, and muscle tone that wire chronic discomfort into your routine. Dr. Reyes shares three-dimensional diaphragmatic breathing that truly expands the ribcage, engages the vagus nerve, and supports the lymphatic system. You’ll learn why 4-7-8 breathing, brief pre-appointment quiet, and decibel-reducing earplugs aren’t wellness gimmicks—they’re nervous system levers that make every other therapy work better.
From there, we dig into one of the most overlooked symptoms: hip pain. Many endo patients present like classic impingement or hamstring issues, improve briefly with standard exercises, and then flare cyclically. Tracking symptoms across your cycle changes the diagnostic map and protects you from the churn of partial fixes. We also explore uterosacral ligament disease, the limits of rushed insurance visits, and why the phrase “no surgery is better than a bad surgery” matters. Quality prehab, a skilled excision surgeon when appropriate, and a plan that fits your life are non-negotiables.
You’ll leave with practical tools: pelvic wands and dilators used safely at home, breath-led core support, lymphatic massage, affordable vibration plates, and free vagus nerve practices like humming and cold sips. We keep it real about consistency—habits heal more than gadgets—and insist on patient autonomy throughout. Press play to learn how to calm your system, decode hidden pain generators, and rebuild trust in your body one small win at a time. If this helped, subscribe, share with a friend who needs it, and leave a review to support the show.
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Endometriosis pain gets labeled, but rarely decoded. We sit down with pelvic floor physical therapist Dr. Taylor Reyes to untangle the “messy middle” where endo, scar tissue, and musculoskeletal compensations blur together. Instead of chasing one culprit, we map how delayed diagnosis rewires movement, ramps up the nervous system, and turns the pelvic floor into an overworked backup for a weak or unstable core. That orthopelvic lens helps us ask better questions: Is this pain endo, or is it fascial restriction, nerve tension, or pressure mismanagement?
Together, we break down pain science in plain language. When symptoms linger, the brain’s sensory map can amplify normal input into alarms, especially after years of flare cycles and medical gaslighting. Excision can quiet a storm but isn’t the finish line; scar tissue is part of healing, and new patterns need training. We share a simple triage method: list every symptom, color-code likely drivers (endo, scar tissue, EDS, PCS, MCAS), and choose the target that improves function and quality of life first. You’ll hear clear strategies for self-advocacy, how to vet real excision specialists and manual therapists, and why outcomes and training matter more than titles.
Expect practical tools you can use today. Learn breath-led bracing for safer movement, graded mobility in pain-free ranges, and fast nervous system resets for commutes and high-stress moments. We talk specific visceral mobilization, when it helps reduce pain enough to retrain patterns, and how to build an anti-inflammatory lifestyle that fits your budget and reality. Most of all, we focus on agency: pairing pelvic floor and orthopedic therapy with mental health support, setting honest expectations, and rebuilding trust in your body. If you’re ready to swap confusion for clarity, hit play and join us. If this conversation helps, subscribe, share with a friend, and leave a review to help others find the show.
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The end of the year doesn’t just mark a finish line—it reveals how far we’ve come and where we’re brave enough to go next. We look back at the breakthroughs that mattered in endometriosis care: smarter imaging, emerging biomarkers, and the human skills that carry patients through the hardest stretches. Alongside a heartfelt recap, we highlight our in-person conversations with Dr. Gaby Moawad—sessions that blended deep clinical insight with disarming candor about the realities of surgery, research, and the emotional burden clinicians shoulder.
We break down how AI is starting to strengthen ultrasound and MRI interpretation, why machine learning can narrow the gap between experts and generalists, and where noninvasive tests using microRNA might change the diagnostic journey. We also explore triage algorithms that combine symptoms, history, imaging, and labs to get high-need patients in front of specialists sooner. The throughline is practical: tools that shorten the diagnosis maze, questions that sharpen advocacy, and a vision for standardizing excellence so access isn’t luck.
But tech is only half the story. We talk legacy, training the next generation to question assumptions, and building systems that protect compassion from burnout. Gratitude sits at the center—listeners who found language for their symptoms, guests who raised the bar, and friendships that keep the work honest. You’ll leave with a clear view of what’s changing, why it matters, and how to ask for the care you deserve, plus a small holiday comfort tip for the days when bloat and fatigue crash the party.
Want more deep dives into imaging pathways, noninvasive testing, and day-to-day strategies for thriving with endometriosis? Follow the show, share this episode with someone who needs it, and leave a review with your top question for 2026. Your voice shapes what we explore next.
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What if your pain story starts in the nerves—and your path to relief begins with balance, not just suppression? We dive into a year-defining reflection on endometriosis care, exploring how the autonomic nervous system shapes pain, inflammation, digestion, and mood, and why the vagus nerve can be a quiet but powerful ally. Along the way, we revisit conversations with two renowned surgeons whose work reframes both daily management and long-term outcomes.
First, we unpack neuropelveology in clear, practical terms: the dance between sympathetic “fight or flight” and parasympathetic “rest and digest,” and how that tug-of-war can intensify or soften endometriosis symptoms. From breathwork and paced exhalation to simple vagus nerve activators, we highlight approachable ways to support nervous system regulation without promising quick fixes. Then we turn to nerve-sparing surgery—where precision protects bladder function, sexual health, gait, and quality of life. Sciatic endometriosis and deep disease demand rare expertise, and choosing the right surgeon can be the difference between lasting relief and lifelong complications.
We also tackle the fertility fork in the road: go straight to IVF, or consider excisional surgery first? Drawing from large, long-term datasets in advanced disease, we explain why removing endometriosis can improve natural conception rates and make postoperative IVF more effective, challenging the reflex to skip surgery altogether. It’s not either-or; it’s sequencing care based on evidence, goals, and the full person—pain, function, and future.
This reflection is ultimately about agency and hope. When clinicians share data openly and patients bring lived experience with curiosity, care gets smarter. If you’re navigating endometriosis, chronic pelvic pain, or infertility, you’ll find practical tools, nuanced insights, and a reminder that rest is productive and progress can be patient. If this resonates, subscribe, share with someone who needs it, and leave a review with the one idea you’re taking into your week.
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What if the most powerful thing you could do for your endometriosis care wasn’t another appointment, but a better question? We revisit a standout set of conversations to unpack how to spot true expertise, avoid convincing pretenders, and build a team that actually improves outcomes. Titles and confidence can look impressive; results, transparency, and collaboration tell the truth.
I walk through a practical framework for vetting providers, moving beyond the vague “find an excision specialist” advice. You’ll hear how to evaluate surgical volume, complication data, pathology correlation, and the way a clinician handles your questions. Then we step into the operating room realities of bowel-involved disease with a colorectal perspective: when restraint is safer than risk, why staged approaches can spare complications, and how documentation plus expert referral protects patients when nodules are complex.
We balance the scalpel with the nervous system. From a neurogastroenterology lens, we outline pre-op planning that changes outcomes: stabilizing mast cell activity, anticipating dysautonomia, supporting hypermobility, coordinating anesthesia choices, and creating a perioperative protocol that prevents flares. It’s the difference between hoping for a smooth recovery and planning for it. Along the way, we make the case for multidisciplinary care that looks more like a tumor board than a solo act—gynecology, colorectal surgery, radiology, anesthesia, and GI aligning to reduce blind spots and keep you at the center.
This is a candid, sometimes funny, always practical reflection designed to help you ask better questions, choose safer options, and recognize small wins as real progress. If you’ve felt pressured to “just trust” a confident voice, this conversation hands you the tools to verify instead. Subscribe, share with someone who needs a clearer path, and leave a review with the one question you wish you had asked sooner.
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Pain that shifts across decades. Symptoms that don’t fit a single mold. And experts who refuse to let dismissal be the default. We’re revisiting the year’s most galvanizing insights on endometriosis with two standout voices: Dr. Megan Wasson of Mayo Clinic and Dr. Francesco Di Chiara, a leader in cardiothoracic endometriosis. Their clarity cuts through the noise, offering practical steps for earlier recognition, safer evaluation, and care that honors the whole person.
We walk through the lifespan of endometriosis—from the first period to perimenopause—naming what changes, what doesn’t, and how to navigate care without inflaming trauma. You’ll hear why adolescents need thoughtful, minimally invasive approaches; how family narratives can normalize severe pain; and the questions that help you get beyond “everyone has cramps.” Then we widen the frame to the thoracic cavity, translating hard-to-spot symptoms like cycle-linked shoulder pain, shortness of breath, or cough into targeted next steps. Dr. Di Chiara’s vivid descriptions of lesion colors and textures illuminate how surgeons read the disease and why that matters for diagnosis and treatment planning.
Along the way, we share a practical nudge for your holiday survival kit: use pain management proactively rather than waiting for a flare to peak. Heat, pacing, guided breathwork, and clinician-approved anti-inflammatories can preserve energy and reduce inflammation when used early. Most of all, this reflection centers compassion—clear language, curiosity, and dignity—as the real engine of progress in endometriosis care. If you’ve ever been told to wait it out, this conversation hands you the language and confidence to advocate for yourself or your child.
If this resonated, follow the show, share it with someone searching for answers, and leave a review so more people can find these tools. Your story could be the lifeline someone else needs.
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You know that feeling when your symptoms refuse to fit the script—racing heart when you stand, brain fog, rashes, and reflux that laughs at PPIs? We revisit two powerful conversations that changed how we approach endometriosis care by connecting the gut, the nervous system, and the immune response. Instead of chasing single labels, we map patterns: the hallmark features of POTS beyond “it’s just stress,” the skin and ENT clues that point to MCAS, and the very real GI turbulence that follows autonomic shifts and histamine surges.
We also zoom out on endo as a long-haul inflammatory condition. Excision is the gold standard, but years of inflammatory signaling can reshape the microbiome, strain the endocrine and immune systems, and wire the body for constant “threat.” That’s why parallel care matters: gut repair, nervous system regulation, pelvic floor therapy, and thoughtful nutrition that expands tolerance instead of collapsing into permanent restriction. With clear screening, smarter questions, and gentler habits, surgery works better and recovery feels more stable.
What stood out most is the power of clinicians who listen and connect dots. Neurogastroenterology offers language for symptoms many patients struggle to describe; functional strategies offer traction when “normal” labs miss the story. We share practical takeaways: how to spot orthostatic patterns, when to suspect MCAS in stubborn reflux, and how to protect your energy during the holidays—no explanations needed for “Uncle Opinions.” If you’ve felt dismissed or siloed, this is your reminder that your body makes sense, and there’s a path forward when systems talk to each other. If this resonates, follow the show, share it with someone who needs a kinder map, and leave a review to help others find these tools.
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What if the most healing thing isn’t a fix, but finding the right words for what hurts and what helps? We revisit two listener-favorite conversations that reshaped how we think about intimacy, food, and self-trust while living with endometriosis and chronic illness. With therapist Mallory Oxendine, we move past the myth that closeness equals performance and create space for grief, tenderness, and clearer scripts. With Dr. Jennifer Gaudiani, we challenge diet culture’s noise and explore what “normal eating” looks like when pain, nausea, and fatigue are part of daily life—and how neurodiversity and sensory needs change the plan without inviting shame.
Mallory helps us ask better questions: How do I approach you when I want intimacy? What words feel safe? How can we protect connection when plans shift? She shows how partners can support rather than fix, validate both sets of feelings, and build rituals that honor fluctuating capacity. Intimacy becomes broader—touch, presence, humor, and steady care—so bodies aren’t forced to perform to be worthy of love.
Dr. G brings nuance and care to disordered eating in chronic illness. She offers a science-backed view of nourishment that reduces mental load, embraces satisfaction, and respects symptoms. We talk about ADHD, autism, and sensory profiles that make fullness or textures overwhelming and why care plans must flex to those realities. Her practical guidance centers progress over perfection and energy over rules, including a simple seasonal tip: pick one thing to care about and let the rest go.
If you’re craving validation, language, and doable tools, this reflection is for you. Listen, share with someone who needs gentleness today, and if it resonates, subscribe and leave a review so others can find this space.
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Start with a question that matters: What single idea would make your care feel lighter, clearer, and more doable this week? That’s the heart of our year-end reflection, where we revisit the formats that changed how we learn together—Quick Connect and Fast Charge—and the experts who made complex topics feel human. We swapped long lectures for focused Q&As, brought your toughest questions to clinicians and researchers, and kept the tone honest, hopeful, and grounded in real life.
We dig into surgical realities with excision: what improvement can look like, why outcomes vary, and how to plan recovery with informed hope instead of guarantees. We move to nutrition with practical, compassionate steps—eating enough, prioritizing protein, and using colorful produce in ways your gut can handle—without guilt or rigid rules. Then we zoom out to the science with a clear look at liquid biopsy: how sampling blood or uterine bleeding might bring less invasive insight, and why any new tool must prove it truly improves care for specific patients.
This conversation grew from your curiosity. Your questions shaped the episodes, your lived experience sharpened the focus, and your hunger for clarity kept us grounded in what actually helps. The big takeaway is simple but strong: meaningful progress can be small, consistent, and deeply personal. Hold one idea, let it settle, and give yourself room to learn, unlearn, rest, and repeat.
If this resonated, follow the show, share it with someone who needs a lift, and leave a review telling us the one idea you’re taking with you. Your questions power the next season—send them our way so we can keep building smart, kind, and usable conversations together.
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Pain that makes you faint is not “just periods,” and “just get pregnant” isn’t a plan—it’s a myth. We open the Endo Year Reflection series with a clear-eyed look back at the stories and science that reshape care for endometriosis and chronic pelvic pain. You’ll hear how harmful narratives spread, why they stick, and what actually helps when you’re stuck between dismissal and a diagnosis that takes too long to arrive.
Fisayo’s journey lays bare how predictably timed fainting, ER visits, and back pain were waved away for years—even with a physician in the family. Naming endometriosis became a turning point, and her documentary Walking Through Walls transforms private suffering into public advocacy. Nikki’s path mirrors what so many endure: repeated ER trips, migraines tied to cycles, sports and school sacrificed, and well-meaning but wrong answers. Excision surgery changed her trajectory, but honest talk about fertility loss and the quiet grief of parenting through pain offers the validation many have been missing.
We also reflect on getting curious about the mechanics of cramps. Why do some cycles feel manageable while others become “death cramps”? With a nod to the GYRL lab’s research and Kate Helen Downey’s blend of humor and rigor from the podcast Cramped, we explore dysmenorrhea, prostaglandins, and why basic questions about menstrual pain still lack basic answers. Then we get practical: a holiday survival kit with meds, heating pads, safe snacks, and comfort items; travel pacing; and boundaries that protect your energy without apology. Stories matter, accuracy matters, and community matters—because none of us should navigate this alone.
Take one idea from this conversation and let it sit. If it helps, share this episode with someone who needs better information or a reminder that they aren’t imagining it. Subscribe, leave a review, and tell us the biggest myth you want gone for good.
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What if the most compassionate choice you make this season is the quiet one—leaving early, resting without apology, or finally asking for the support your body has needed all along? This reflective chapter pulls together the most resonant insights from recent conversations on grief, hormones, and the everyday work of living with endometriosis and chronic illness.
We look back into how grief moves in spirals, not straight lines, and how perfectionism can turn pain into a private contest no one wins. Through a trauma lens, we unpack avoidance, intrusive thoughts, and the family stories that shape how we carry stress. Then we shift into the hormonal landscape: the messy, human reality of perimenopause, surgical menopause, hypermobility, and endo—plus how progesterone and estrogen changes can drive anxiety, sleep loss, hot flashes, joint pain, and brain fog. Clear, practical takeaways emerge around HRT basics and why local therapy matters: vaginal estrogen and DHEA can restore tissue health, reduce pain with sex, calm urinary symptoms, and support sexual function in ways systemic hormones alone can’t.
We also name a hard truth: the research gap in women’s health has left too many of us feeling confused and blamed. Reframing testosterone as a human hormone, not a male-only one, opens space for better care and better questions. Across these threads, one message holds: you’re not broken for needing help. Choose one next step—book that appointment, try local support, track symptoms for patterns, or give yourself permission to leave the party early. Subscribe for more honest, practical conversations, share this with someone who needs it today, and leave a review to help others find their way here. What’s the one idea you’ll let sit with you this week?
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A lot of us carry the same question: why does the care we need feel out of reach even when we find the right experts? This reflection pulls together the most eye-opening insights from a season of conversations—where surgical reality, overlooked diagnoses, and brain-based tools meet practical advocacy you can use right now.
We revisit Dr. Jeff Arrington’s straight talk on insurance and excision: why RVU models reimburse quick ablation and hours-long, meticulous excision the same, and how that mismatch shapes access, outcomes, and burnout. He breaks down informed consent as a true exchange—listening, differential diagnosis, and clear options—then shows how dynamic imaging and pre-op mapping help prevent incomplete treatment and reduce complications. That framework alone can change how you choose a surgeon, what questions you ask, and how you prepare for the OR.
Then we shift to Dr. Shirin Towfigh's essential lens on hernias in women. Without the classic bulge, they press on nerves and mimic pelvic, hip, and groin pain—often mislabeled as endometriosis. Add male-centric studies and devices, and misdiagnosis becomes routine. We talk hysterectomy scars, EDS, collagen, and why tailored, minimally invasive repairs matter. Awareness becomes action: consider other pain generators, get the right imaging, and seek specialists who know the female presentation.
Finally, we connect mindset and neuroscience with Dr. Niva Jerath & Rick Macci. Not toxic positivity—evidence-based tools that reduce threat signals and increase agency. Gratitude, reframing, and steady habits can lower the cognitive load of pain and help you engage more effectively with medical care. Healing isn’t one-dimensional; the best results often come from aligning precise surgery, accurate diagnosis, and a regulated nervous system.
If you’re ready to advocate with more clarity, this is your map: understand the system, expand the differential, and strengthen your daily tools. Subscribe, share with someone who needs it, and leave a review with the one insight you’re taking into your next appointment.
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We look back at a year of growth, from mental health and sexual health to surgical decisions and daily strategies that make life with endometriosis more livable. Short formats like Fast Charge and Quick Connect turned big topics into clear, useful takeaways shaped by your questions.
• mental health impacts of chronic illness and tools for burnout, grief and validation
• compassionate guidance on sexual health, pelvic floor tension and consent-centered intimacy
• deep dives on excision, imaging limits, inflammation and surgical menopause choices
• fertility as a spectrum of options aligned with personal values
• pelvic PT, pacing strategies and ADHD-friendly learning formats
• how Fast Charge and Quick Connect center community questions and reduce overwhelm
• technology’s role in endometriosis care and data that actually helps patients
• building momentum in women’s health through relationships, advocacy and shared language
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AI might finally shrink the brutal seven-to-eleven-year journey to endometriosis diagnosis—but only if we pair smarter tools with real clinical judgment. We sit down with Professor Gaby Moawad, a global leader in robotic surgery and endometriosis management, to unpack where technology genuinely helps and where hype can harm. From machine learning that flags lesions on imaging to microRNA biomarkers that stratify risk, we chart what’s promising, what’s premature, and how to avoid black-box mistakes.
We take you inside the OR to explore 3D modeling that transforms standard MRIs into color-coded maps of the pelvis in minutes, then overlays them in surgery for more complete, nerve-sparing excision. Precision is powerful, but ethics matter: surgeons must remain the final guardrail when algorithms error. Beyond the tech, we face the tough questions—why one-third of patients still have pain after surgery, how musculoskeletal drivers and pelvic floor dysfunction are missed, and why 30–50% of endometriosis surgeries may be unnecessary without comprehensive evaluation and aftercare.
We also probe hot topics: the seductive idea of “reprogramming” lesions through immune or epigenetic pathways, the complex links between COVID, vaccination, and inflammatory flares, and the huge research gaps that keep care one-size-fits-all. Subtyping, patient-reported outcomes like fatigue and bloating, and microbiome-informed strategies could reshape treatment, but only with rigorous studies and honest communication. The path forward is center-based, team-driven care anchored by informed consent that puts full information—and real choices—in your hands.
If this conversation sparks questions or clarity, help us reach more people navigating endometriosis: subscribe, share this episode with someone who needs it, and leave a quick review telling us what resonated most. Your engagement helps build better care, faster.
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We break down why expert excision is essential and why it must be paired with functional, whole-body care to unwind years of inflammation from endometriosis. Dr. Iris Kerin Orbuch explains how gut health, immune balance, and nervous system support accelerate real recovery.
• excision surgery as the gold standard
• inflammation as a body‑wide driver of symptoms
• gut dysbiosis and food restriction cycles
• endocrine and autoimmune cross‑talk
• why standard labs miss key markers
• lessons from Lyme on systemic care
• phased recovery beyond the operating room
• coordinated support with nutrition, pelvic floor, psychology, and acupuncture
You can send them in by using the link in the top of the description of this podcast episode or by emailing contact at Indobattery.com or visiting the Indobattery.com contact page
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Ever wonder how much brain space food should actually take up? We sat down with Dr. Jennifer Gaudiani—internationally recognized internal medicine physician and leading expert on eating disorders—to draw a clear line between culturally normalized restriction and patterns that quietly erode health, joy, and trust in your body. In just a few minutes, we define disordered eating in practical terms, separate medical necessity from trend-driven rules, and offer a compassionate checklist for what “normal eating” can feel like.
Dr. Gaudiani unpacks why so many people get swept into elimination, fasting windows, and fear of “inflammation” without symptoms to justify those choices. She explains how real health is less about rigid food morality and more about consistent nourishment, satisfaction, and a low cognitive load—eating enough, often enough, with foods you enjoy, so your energy and mood stabilize. We talk about listening to hunger and fullness cues, using evidence instead of anxiety as a guide, and noticing whether your food rules expand your life or shrink it.
We also make space for complexity: IBS, chronic illness, and neurodivergence may require tailored strategies that reduce discomfort while preserving variety and adequacy. Context matters. With Dr. Gaudiani’s blend of science and compassion, you’ll learn how to assess intent versus impact, replace shame with curiosity, and take small steps that quiet the mental chatter around meals. If you’ve wondered whether you “qualify” for help, consider this your sign: suffering is enough reason to seek support.
If this conversation brings you clarity, share it with someone who needs a gentler path back to food trust. Subscribe for more concise expert guidance, leave a review to help others find us, and send in your questions so we can bring the next five-minute deep dive to your feed.
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We trace how endometriosis interacts with mast cells, connective tissue, and hormones, explaining why symptoms feel systemic and why overlap with HEDS and MCAS appears so often. We also review new data on tirzepatide and inflammation, separating promise from hype while keeping care practical and multidisciplinary.
• Mast cell activation as a shared pathway across HEDS and endometriosis
• EMT signaling via CCL2 and CCR4 and its role in lesion persistence
• Estrogen’s influence on immune activity and symptom flares
• Systemic symptom map spanning gut, bladder, fatigue and brain fog
• Antihistamines and stabilizers as volume-down tools, not cures
• Evidence on tirzepatide lowering CRP and IL‑6 with caveats
• Why correlation is not causation and why it still matters
• Multidisciplinary care to align gynecology, immunology and rheumatology
Share this episode with someone who needs validation, comment your experience so others feel less alone, and keep advocating for yourself
Mast Cell–Mediated Epithelial–Mesenchymal Transition in Endometriosis
hypermobile Ehlers-Danlos Syndrome (hEDS) and mast cells
The Role of Mast Cells in Endometriosis
Anti-inflammatory effects of tirzepatide: a systematic review and meta-analysis
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What if the reason you’re still in pain after surgery isn’t failure—it’s complexity that wasn’t fully addressed? We sit down with a neurogastroenterologist and a colorectal surgeon to unpack why deep endometriosis often persists, how bowel involvement gets missed, and what a truly coordinated plan looks like when disease touches the colon, rectum, bladder, and beyond. Their candid insights replace false hope with a roadmap: document what’s found, refer when needed, and assemble the right team before anyone picks up a scalpel.
From the GI side, we spotlight the often-ignored drivers of rough recoveries: mast cell activation, POTS, and hypermobility. You’ll hear concrete perioperative steps that make a difference—stabilizing the neck for craniocervical instability, aggressive pre-op hydration for dysautonomia, avoiding mast cell-triggering anesthetics and opioids like morphine, and keeping steroids plus H1/H2 blockers ready for intra-op flares. These are practical, repeatable moves any care team can adopt to reduce anaphylaxis risk, dampen post-op nausea, and prevent the multi-day crashes that erode progress.
On the surgical front, we examine why repeat procedures happen and when restraint is the safest choice. Rather than forcing a high-risk resection, skilled gynecologists who encounter rectal nodules document and refer to colorectal partners, which protects patients from complications. That’s not a setback; it’s modern care. We walk through how multidisciplinary planning—similar to rectal cancer pathways—improves detection of deep infiltrating endometriosis, clarifies whether staged surgery is wiser, and sets honest expectations about recovery timelines.
If you’re navigating persistent symptoms after “successful” surgery, this conversation offers clarity and a plan. Learn the questions to ask, the protocols to request, and the markers of a team that’s ready for complex disease. If this helped you, follow the show, share it with someone who needs answers fast, and leave a review with your top question for our next Quick Connect.
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What if the most powerful shift in endometriosis care isn’t choosing sides, but connecting them? We sit down with Dr. Iris Kerin Orbuch—board-certified OBGYN, excision specialist, and co-author of Beating Endo—to chart a practical, compassionate path that blends surgical excellence with functional medicine, gut repair, pelvic floor therapy, and trauma-informed care. The goal: reduce inflammation, calm the nervous system, and help you trust your body again.
We unpack how endometriosis implants act like tiny inflammation engines, fueling fatigue, pain, gut issues, and autoimmune patterns. Dr. Kerin Orbuch explains why excision remains the gold standard for removing disease—and why it’s only one part of recovery. Through “prehab,” patients address SIBO, dysbiosis, sleep, pelvic floor dysfunction, and stress before surgery, often improving 20 to 80 percent and needing far fewer narcotics afterward. We cover the why and how of microbiome testing (breath tests and stool panels), building a supplement plan without overwhelm, and cycling protocols for lasting results.
The conversation moves beyond the abdomen to the brain-gut-pelvis loop. Stress and trauma can lock the body in sympathetic overdrive, tighten muscles, slow digestion, and amplify pain. You’ll hear concrete strategies: meditation habits that stick, pairing pelvic floor sessions with therapy to process memories safely, exploring low-dose naltrexone, and using sleep and nutrition as daily anti-inflammatory tools. We also address the systemic barriers—short visits, insurance limits—and how to build a team that truly collaborates.
If you’ve felt stuck between “just manage it” and “have another surgery,” this episode offers a third way: precise excision plus whole-body repair. Learn about the Iris Wings Sanctuary model and Forella, a new app co-founded by Dr. Kerin Orbuch to deliver trauma-informed, multidisciplinary guidance and real-world insights. Subscribe, share with someone who needs hope, and tell us: what’s the next piece of your healing puzzle?
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What if a drop of blood or menstrual fluid could reveal the hidden biology driving endometriosis? We sit down with Dr. Canio Martinelli, OBGYN and oncology educator, to unpack how liquid biopsy is moving from bold idea to practical tool—and what it will take to make it safe, accurate, and accessible. From circulating “fingerprints” to AI-enhanced signal detection, we chart a path toward earlier detection, better monitoring, and more precise interventions.
We break the science into clear layers: genomics, epigenetics like DNA methylation, RNA transcription, and protein function. That stack of information explains why one-size-fits-all tests fall short and why a multi-omic signature could finally reflect the reality patients live with—wildly variable symptoms, misdiagnosis, and years of unanswered questions. We also tackle the stakes of accuracy. FDA-grade standards for AI diagnostics force meaningful validation so a negative result doesn’t silence someone’s pain or delay necessary care. Noninvasive testing should expand options and trust, not replace clinical judgment or a skilled surgeon when they’re needed.
Beyond diagnosis, we explore how liquid biopsy can accelerate research and drug development, enrich clinical trials with likely responders, and even enable molecular-guided surgery to remove microscopic disease more precisely. We talk equity and access through affordable sensors, transparent reporting, and patient education that demystifies what results mean. The takeaway is both practical and hopeful: rigorous science, ethical design, and patient-centered choices can change outcomes in women’s health. If this conversation gave you new language, new questions, or a new sense of possibility, follow the show, share it with someone who needs validation today, and leave a review to help more listeners find these tools and this community.
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What if understanding how endometriosis builds its own blood supply could unlock safer, smarter treatment? We sit down with Professor Gaby Moawad—renowned robotic surgeon, educator, and leader in endometriosis care—to unpack the vascular engine that drives lesion growth, bleeding, and scarring. In five focused minutes, we translate complex molecular pathways into clear takeaways you can use to ask better questions and advocate for better care.
Dr. Moawad explains how hypoxia inside scarred tissue activates HIF alpha, which then boosts VEGF signaling to build new vessels. We explore how inflammation and locally produced estrogen amplify this process, why metalloproteinases (MMPs) cut space for vessels to form, and what immature pericytes have to do with leaky, bleeding lesions. He connects the dots from biology to the operating room: hypervascular lesions on MRI, the “powder burn” color changes created by hemosiderin, and the feedback loop that turns immune dysfunction into chronic pain and fibrosis.
We also touch on therapy frontiers. Anti-angiogenic drugs targeting VEGF show promise but raise concerns about wound healing and fertility. Dr. Moawad highlights where research is headed, including targeted delivery directly to lesions and cellular approaches that modulate endothelial progenitor cells. For anyone navigating diagnosis, imaging, fertility planning, or surgical decisions, this clear, science-backed overview offers a roadmap to discuss options with your care team and understand the trade-offs behind emerging treatments.
If this deep dive helped you see endometriosis through a sharper lens, follow the show, share it with someone who needs clarity, and leave a review so others can find it. Have a question you want answered fast? Send it our way and we’ll bring in the expert voice you need next.
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Food isn’t the villain—pain is. When eating reliably triggers symptoms, the body learns to avoid. We sat down with Dr. Jennifer Gaudiani—internal medicine physician, eating disorder expert, and author of Sick Enough—to map how chronic illness, neurodiversity, and medical bias shape the modern food struggle. Forget stereotypes: most eating disorders aren’t visible, and many people who restrict are doing so to dodge real discomfort, not to chase a number on a scale.
We walk through the biology of undernutrition at any size: slowed digestion, early fullness, gastroparesis, SIBO, and that constant chill from an energy-conserving body. Then we connect the dots with endometriosis, MCAS, POTS, EDS, and IBS, showing how flares after meals condition avoidance and fuel shame. Dr. G shares a compassion-first playbook: patient-led goals, gentle nutrition steps, pro-motility options, mast cell stabilization, and realistic pacing that reduces symptom spikes. The aim isn’t perfect variety; it’s adequate energy without punishment.
Neurodivergent listeners will feel seen. ADHD and autistic traits can blunt hunger cues, amplify sensory aversions, and make meal planning feel impossible. We talk about how restriction can temporarily quiet a loud brain—and why treating the neurobiology (including ADHD meds when appropriate) can unlock genuine recovery. ARFID gets a clear, non-judgmental breakdown: not thinking to eat, texture disgust, or fear after choking, vomiting, or pain are common threads, not personal failures.
We close with what real recovery can look like for complex illness: being believed, easing suffering with targeted tools, and defining progress on your terms. Loved ones get specific guidance too—validate without fixing, and let the care team coach so relationships stay kind and steady. Want more from Dr. G? Visit gaudianiclinic.com and keep an eye out for the new edition of Sick Enough. If this conversation helped you feel understood, subscribe, share with a friend, and leave a review to help others find their way back to gentle nourishment.
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Menopause wasn’t supposed to feel like this—so why does pelvic pain persist when periods stop? We sit down with Dr. Megan Wasson, Chair of Medical and Surgical Gynecology at Mayo Clinic, to confront the enduring myth that menopause—or even ovary removal—automatically ends endometriosis. The short answer: endo is a disease of endometrial‑like tissue, not an ovary problem, and those lesions can produce their own estrogen through aromatase.
Across a focused, fast‑paced conversation, we get clear on what actually drives symptoms after 45, 55, and beyond. Dr. Wasson explains how local estrogen production keeps lesions active, why surgical menopause often leads to new risks without solving pain, and what a modern care plan should look like when cycles fade but symptoms don’t. We explore smarter hormone therapy for hot flashes, sleep issues, and brain fog—when combined estrogen and progesterone makes sense, when estrogen‑only can be safe, and how to avoid common pitfalls with testosterone supplementation that can inadvertently fuel endo.
You’ll hear practical guidance on assessing disease burden, deciding if and when excision is warranted, and building a supportive team that addresses pelvic floor dysfunction, pain processing, and long‑term health. The goal is clarity: understand the biology, personalize hormone choices, and focus on the lesions—not just the labs. If you’ve felt dismissed or confused about treatment after menopause, this conversation brings both validation and a roadmap.
If this helped you rethink endometriosis after menopause, follow the show, share it with someone who needs it, and leave a quick review so others can find these expert insights. Got a question for our next Quick Connect? Send it in—we’re listening.
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We reframe endometriosis as a whole-body disease and map how gut microbes, blood vessels, and lymphatics drive symptoms, pain, and fatigue. Dr. Gaby Moawad shares strategies for multidisciplinary care that builds trust, reduces inflammation, and improves long-term quality of life.
• endometriosis defined as multi-systemic, not just pelvic pain
• harms of dismissal and why trust and clear plans matter
• microbiome dysbiosis, estrobolome, LPS, and estrogen recycling
• targeted gut recovery beyond unnecessary antibiotics and laxatives
• angiogenesis via VEGF, HIF, MMPs, and leaky vessels
• lymphatic spread evidence and distant organ involvement
• metabolic dysfunction, insulin resistance, mitochondria, and fatigue
• multidisciplinary care beyond the OR and throughout recovery
• recurrence as multifactorial and the need for long-term strategy
If this episode helped recharge your Endo battery, please take a moment to like and subscribe on YouTube. It really helps others in our community find these resources too. And if you're listening on a podcast app, leave a quick rating or a comment to show what resonated with you. Every bit of engagement helps us reach more people living with endometriosis and chronic illness and reminds them they're not alone.
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What if your “IBS” isn’t just a gut problem—but part of a larger endometriosis story that involves nerves, immune triggers, and the way your body processes pain? We sit down with a neurogastroenterologist, Dr. Zachary Spiritos and colorectal surgeon, Dr. Vincent Obias, to connect the dots between bowel endometriosis, mast cell activation, dysautonomia, and the stubborn symptoms that linger after surgery. No platitudes here—just clear explanations, candid timelines, and practical strategies that help you make sense of complex, overlapping conditions.
We explore how deep infiltrating endometriosis can change rectal compliance and bowel habits, why post-op bloating and urgency often follow colorectal procedures, and when those symptoms should improve. From the GI side, we challenge the “IBS” catch-all by listening for patterns—cyclical pain, flushing, migraines, brain fog, POTS—that point to mast cell activation or brain–gut dysregulation. You’ll hear how perioperative planning for MCAS (H1/H2 blockers, steroid rescue, anesthesia choices, fluids for POTS) reduces flares, and why excision by experienced teams beats ablation for long-term outcomes.
We also get real about the gray areas: normal tests with abnormal lives, “invisible” inflammation, and how hypermobility can complicate recovery. Expect concrete ideas—targeted imaging and ultrasound for bowel nodules, timelines for healing, SIBO and adhesions as culprits, pelvic floor retraining, sleep as a pain modulator, and GI-focused CBT or hypnosis to calm anticipatory anxiety. The big takeaway: better results come from better teams. When surgery, neuro-GI care, anesthesia planning, and pelvic rehab align, the gut, the nerves, and the person finally get on the same page.
If this conversation helped you see your symptoms in a new light, follow the show, share with a friend who needs answers, and leave a review with your top question for a future episode. Your story might guide our next deep dive.
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We challenge the myth that teens are “too young” for endometriosis and show how to spot red flags that go far beyond “normal cramps.” Dr. Megan Wasson shares clear signs, family dynamics that normalize pain, and steps to get answers sooner.
• redefining normal: pain as more than an inconvenience
• family patterns that normalize severe period pain
• the pediatrician pitfall: quick dismissal without probing
• functional impact: missed school, sports, and social life
• pain outside bleeding days as a key clue
• GI symptoms that flare around menses
• practical steps: symptom tracking and focused questions
• when to escalate: specialists, imaging, and tailored care
Do you have more questions? Keep them coming. Send them in, and I'll bring you the expert answers. You can send them in by using the link in the top of the description of this podcast episode or by emailing contact@endobattery.com or visiting the Endobattery.com contact page
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We explore the hard edges of parenting with endometriosis—pregnancy losses, grief, guilt, and the small wins that keep us going—and how those experiences drove us into advocacy that meets medicine where it starts: in classrooms. Along the way we talk kids’ questions, self‑grace, and building real community support.
• balancing parenting with chronic pain and fatigue
• pregnancy, miscarriage, and fear of recurrence
• children witnessing pain and asking about risk
• guilt, comparison, and redefining “good mom”
• individualized disease, individualized care
• post‑op healing, pacing, and self‑grace
• teaching kids to self‑advocate with doctors
• educating medical students to spot endo earlier
• outdated research vs evidence‑based care
• community support through Endofriend and campus outreach
• many paths to advocacy, from letters to events
Reach out if you have questions—I do get back to you
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We trace Nikki’s 28-year path from a painful first period to an excision surgery that finally connected endometriosis, PCOS, and adenomyosis, and we talk about pregnancy losses, pelvic floor pain, and the power of community. We share practical tools that shorten the time from symptoms to care and turn experience into advocacy.
• early menarche, fainting episodes, heavy bleeding dismissed
• overlap of endometriosis, PCOS, and adenomyosis symptoms
• ablation versus excision and why technique matters
• recurrent miscarriage and weak explanations from clinicians
• gestational diabetes, metabolic health, and PCOS links
• postpartum return of pain and daily function challenges
• finding a specialist, surgical findings beyond reproductive organs
• pelvic floor physical therapy and nervous system retraining
• living well after hysterectomy with ovaries retained
• building community and educating medical students
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Dr. Jeff Arrington explains why insurance is a major barrier for endometriosis specialists and patients seeking care. The healthcare payment system fundamentally fails to recognize the difference between quick, superficial treatments and proper excision surgery that actually removes the disease.
• Insurance payment systems are based on Relative Value Units (RVUs) set by Medicare
• The RVU system has three components: work involved, malpractice risk, and geographic location
• A superficial 15-minute ablation receives the same insurance payment as a 3-hour expert excision
• The system creates no financial incentive for surgeons to perform proper, thorough excision
• Complex work around sensitive structures like ureters and bowel is not recognized by insurance
• Skilled specialists often can't afford to accept insurance due to this payment inequality
Send your questions by using the link in the description, emailing contact@indobattery.com, or visiting the Indobattery.com contact page.
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Professor Horace Ramon shares groundbreaking insights on how surgery for colorectal endometriosis significantly improves fertility outcomes, even for patients who've experienced multiple failed IVF attempts. His research reveals that removing endometriotic lesions throughout the pelvis gives patients a better chance at natural conception by addressing multiple fertility barriers.
• Endometriosis acts "like smoke" that impairs fertility at every level - affecting egg quality, sperm mobility, and creating inflammatory conditions
• Cleaning the pelvis through surgery gives patients additional opportunities for natural conception
• Deep dyspareunia (painful intercourse) from rectovaginal nodules often reduces sexual frequency, especially during ovulation
• Pain reduction after surgery may indirectly improve conception rates by enabling more frequent intercourse during fertile windows
• The connection between inflammation and fertility explains why removing disease improves the body's reproductive function
Do you have more questions? Send them in by using the link in the description of this podcast episode, emailing contact@endobattery.com, or visiting the endobattery.com contact page.
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Dr. Naomi Whittaker shares critical distinctions between diffuse and focal adenomyosis and their impact on fertility. She highlights how adenomyosis is often over-diagnosed on ultrasound while explaining that diffuse adenomyosis rarely affects fertility, though focal adenomyomas require surgical intervention by fertility-friendly specialists.
• Diffuse adenomyosis is more common in women who have had children and typically doesn't impact fertility
• Adenomyosis is frequently over-diagnosed on ultrasound as technology improves
• Finding adenomyosis on imaging doesn't necessarily mean it's clinically significant
• Focal adenomyosis (adenomyomas) can cause infertility but are surgically treatable
• Surgeon choice is critical for fertility preservation
• Concerning cases exist where fallopian tubes were removed without patient consent
• Important to choose fertility-friendly surgeons who handle tissue delicately
Send your questions by using the link in the top of the description of this podcast episode, by emailing contact@endobattery.com, or by visiting the endobattery.com contact page.
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Dr. Melissa McHale, a gynecologic surgeon specializing in minimally invasive endometriosis surgery, shares expert guidance on finding qualified surgeons for endometriosis treatment. She provides practical strategies for evaluating surgeon credentials, training backgrounds, and professional connections to ensure patients receive care from true specialists capable of performing complete excision surgery.
• Research where potential surgeons received their training and who specifically taught them endometriosis surgery techniques
• Ask direct questions about when endometriosis became their focus and how they developed their surgical skills
• Consider that most fellowship-trained gynecologists in the US aren't adequately trained in complete endometriosis excision
• Evaluate the surgeon's professional network—those who regularly associate with other endometriosis specialists likely stay current with best practices
• Look at both patient reviews and professional reputation among other physicians
• If you wouldn't trust their mentor to operate on you, question whether you should trust them
Have questions about finding the right endometriosis specialist? Send them in through the link in the episode description, email contact@endobattery.com, or visit the endobattery.com contact page.
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Dr. Canio Martinelli, OBGYN specialist and head of clinical programs at Sbarro Health Research Organization, discusses groundbreaking research on AI applications in medicine and surgical decision-making to improve patient outcomes.
• Research shows AI systems like ChatGPT perform comparably to resident physicians in diagnostic accuracy
• Human doctors and AI make different types of errors, suggesting they could complement each other
• AI maintains consistent performance under time pressure while human performance declines
• The "gray area dilemma" in surgery refers to critical decisions surgeons make based on incomplete information
• PULSAR study aims to decode surgical decision-making by analyzing billions of data points
• True personalized medicine must consider what "functionality" means to each individual patient
• Future AI systems could help surgeons tailor procedures to each patient's specific anatomy and goals
• Communication remains challenging when explaining complex medical concepts and statistics to patients
Use promo code ENDOBATTERY for an exclusive 20% discount at Strong Coffee Company and help support these expert conversations at EndoBattery.
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Dr. Ramiro Cabrera explains how surgical mapping revolutionizes endometriosis treatment by allowing surgeons to visualize deep infiltrating disease before operating. This European-originated technique enables personalized surgical planning and proper specialist involvement, replacing outdated diagnostic approaches with comprehensive pre-surgical imaging.
• Endometriosis has three types: peritoneal (superficial), deep infiltrating, and ovarian endometriomas
• Only endometriomas are easily visible on standard ultrasound, while deep disease requires specialized imaging
• Surgical mapping uses special protocols including rectal gel, vaginal gel, and bowel preparation
• Expert radiologists need 5-10 years of experience to accurately detect deep endometriosis
• Modern ENZIAN classification provides detailed disease location instead of simple staging
• Mapping shows precisely which organs are affected and to what extent
• Pre-surgical knowledge allows assembly of the right surgical team (urologists, colorectal surgeons, etc.)
• Even the best surgeons cannot see through tissue without proper mapping
• No surgeon should perform diagnostic laparoscopy without first completing imaging mapping
Send your questions by using the link in the description, emailing contact@endobattery.com, or visiting the endobattery.com contact page.
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Professor Horace Ramon, a world-renowned endometriosis surgeon and researcher, reveals how excision surgery can significantly improve fertility outcomes for women with endometriosis. His groundbreaking studies show that nearly half of women with colorectal endometriosis can conceive naturally after surgery, while those with multiple failed IVF attempts saw remarkable improvement in pregnancy rates following proper excision.
• Fertility rates after colorectal endometriosis surgery can reach 80%, with most pregnancies occurring naturally
• For women with failed IVF attempts, excision surgery resulted in a 45% pregnancy rate compared to an expected 5% with additional IVF
• Surgical expertise matters significantly – endometriosis surgery should be performed by specialists with high case volumes
• When preserving fertility, sometimes draining endometriomas rather than excising them may better protect ovarian reserve
• The prevalence of endometriosis is increasing partly because modern women have 450-500 menstrual cycles in a lifetime compared to less than 150 in the 19th century
• Expert centers should offer long-term management strategies that consider a patient's fertility goals and extend to menopause
• Multidisciplinary teams are essential for optimal endometriosis care, including fertility specialists, colorectal surgeons, pain specialists, and others
Continue advocating for yourself and seek care from true endometriosis specialists with proven surgical volume and experience, not just social media presence. A proper excision surgery can transform both your quality of life and fertility outcomes.
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Dr. Francesco Di Chiara explains why detecting thoracic endometriosis with MRI presents three major challenges. Radiologists trained to spot round lesions often miss the thin, widespread deposits in the chest, while technical limitations and breathing movements further complicate imaging of the diaphragm—the most common site for thoracic endometriosis.
• MRI with specific endometriosis protocols remains the best available imaging option
• Radiologists often look for round lesions that rarely exist in thoracic endometriosis
• Thin lesions frequently fall below MRI resolution capabilities
• The diaphragm, where endometriosis commonly occurs, suffers from breathing movement artifacts during imaging
• Endometriosis can penetrate through the diaphragm and occasionally into lung tissue
• Rare cases of airway endometriosis exist but are difficult to diagnose with bronchoscopy
• Dr. Di Chiara is working on a classification system for diaphragmatic endometriosis
Do you have more questions? Keep them coming by using the link in the description, emailing contact@endobattery.com, or visiting the endobattery.com contact page.
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Endometriosis evolves from teenage years into adulthood, often progressing from manageable period pain to symptoms outside the menstrual cycle that no longer respond to hormonal treatments. Dr. Megan Wasson, Chair of Medical and Surgical Gynecology at Mayo Clinic Arizona, breaks down this journey and provides clarity on when to consider moving beyond conservative management.
• Endometriosis commonly progresses in both disease burden and symptom severity over time
• Common misdiagnoses include IBS, anxiety, "lack of sexual experience," primary dysmenorrhea, and orthopedic issues
• Decision for surgery should be individualized based on quality of life considerations
• Surgery may be appropriate when diagnostic uncertainty causes anxiety
• Surgical treatment can be beneficial when symptoms aren't controlled by hormonal treatments
• Removing endometriosis can optimize fertility for both natural conception and assisted reproductive technologies
• Complementary approaches like pelvic floor physical therapy and acupuncture can support conventional treatments
Send your questions to contact@endobattery.com or visit endobattery.com/contact, and we'll bring you expert answers in our next Quick Connect episode.
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Dr. Abhishek Mangeshikar explores how endometriosis severity varies globally, highlighting the interplay between genetics, environmental factors, and healthcare access. While genetic components exist in endometriosis development, expression is influenced by epigenetics including diet, stress, and environmental conditions that determine disease progression patterns.
• Endometriosis has a genetic component, but gene expression depends on epigenetic factors
• Environmental factors, diet, hormones, and physiological stress influence disease expression
• Healthcare access significantly impacts observed disease severity across regions
• Lower-income countries typically see more advanced disease due to delayed diagnosis
• Early intervention in higher-income countries often prevents progression of certain disease types
• More diverse, multicultural studies are needed to understand global endometriosis patterns
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Two leading endometriosis specialists discuss why performing excision surgery before fertility treatments often leads to better outcomes for patients struggling with both endometriosis and infertility.
• Dr. Sadikah Behbehani recommends excision surgery before IVF when endometriosis is suspected
• Removing endometriosis first may enable natural conception without needing IVF
• When IVF is still needed after surgery, success rates are significantly higher
• For patients with both PCOS and endometriosis, ovarian drilling can be performed during the same surgery
• Ovarian drilling creates small holes in the ovary to reduce androgen production and help with ovulation
• While not done as a standalone procedure anymore, ovarian drilling has minimal side effects when performed during endometriosis surgery
Have questions about endometriosis or fertility? Send them in using the link in the episode description, email contact@endobattery.com, or visit the endobattery.com contact page.
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Your nervous system plays a crucial role in endometriosis pain, with practical tools available to help manage symptoms through the emerging field of neuropelviology. Professor Marc Possover, a world-renowned pioneer in treating chronic pelvic pain, explains how targeting pelvic nerves can bring relief to patients who've been told to simply live with their pain.
• Three ways to activate the vagus nerve for pain relief
• Transauricular vagus nerve stimulation through the ear for 10 minutes morning and evening
• How positive morning thoughts can significantly impact your pain levels throughout the day
• Using subliminal audio messages to reduce pain through autosuggestion
• Physical activities like swimming and hiking decrease sympathetic nervous system activity
• Exercise creates a natural massage of the solar plexus, reducing pain perception
• Smoking increases sympathetic nervous system activity, potentially worsening pain
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Finding the right endometriosis surgeon can feel like searching for a needle in a haystack—especially when you’re already dealing with chronic pelvic pain and the emotional toll of the disease. The wrong choice can cost you years of suffering, but the right surgeon can change your life. In this episode, Dr. Melissa McHale, a gynecologic surgeon specializing in minimally invasive endometriosis excision surgery, shares a proven step-by-step framework to help you confidently choose the right surgeon and reclaim your quality of life.
You’ll discover:
- Why traditional ways patients pick surgeons often fail—and how to avoid being misled by those who simply tell you what you want to hear
- How to research a surgeon’s qualifications, training, mentors, and real-world excision surgery experience
- Where to check public medical board records, license status, and malpractice history for surgeons and their practice partners
- How financial structures in a gynecology practice can influence care quality and surgical flexibility
- What a thorough preoperative workup should include, from advanced imaging to detailed preparation
- How to critically read patient reviews and spot patterns across multiple platforms
- Why transparency matters—surgical documentation, photos, and post-op explanations are key to trust
- How to evaluate a surgeon’s communication style and whether they give detailed, thoughtful answers
- The importance of a multidisciplinary care team in successful endometriosis treatment
- How to combine instinct and objective evidence when making your final decision
Whether you’re just beginning your search for an excision specialist or are feeling stuck after disappointing care, this episode will give you the tools and confidence to find the right endometriosis surgeon for your needs.
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This summer brought unexpected clarity. In this heartfelt solo episode, I share why I stepped back from endometriosis advocacy a bit to focus on what matters most—my family, my health, and realigning with purpose.
I open up about the emotional toll of advocacy, the guilt of burnout, and the beauty of rediscovering what I’m truly called to. If you’ve ever questioned your path, struggled to find balance, or felt lost in your chronic illness journey—this one’s for you.
You’ll hear:
- Why I paused the podcast and social media
- How faith, family, and rest helped me reset
- What it means to find purpose through your pain
- What’s next for Endo Battery
If this resonates, please share, rate, or review—it helps more than you know.
Endometriosis #ChronicIllness #PodcastForWomen #InvisibleIllness #Burnout #Advocacy #FaithAndHealing #EndometriosisSupport #PurposeDrivenLife #EndometriosisPodcast
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Dr. Allyson Bontempo discusses the significant research gaps in understanding endometriosis diagnostic delays across different racial, ethnic, and gender groups. With the average diagnostic delay at over eight years based on predominantly white research samples, the delay for minority patients likely remains unknown and potentially much longer.
• Most endometriosis research samples consist of about 85% non-Hispanic white participants
• Existing research shows Black patients typically experience longer diagnostic delays for various conditions
• Dr. Bontempo is collaborating with Baylor College of Medicine to study diagnostic journeys of racial, ethnic, and gender minorities
• Current increased awareness may reduce delays for some patients while including previously excluded minorities in research
• Research partnership between EndoBlack and a university is currently gathering data on Black patients' experiences
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Dr. Yaniv Larish, a board-certified urologist, joins us to explore the complicated relationship between endometriosis and bladder symptoms. We uncover how urinary issues like urgency, frequency, and nocturia can be important indicators of endometriosis involvement in the urinary tract.
• Common bladder symptoms include urgency, frequency, nocturia, and feelings of incomplete emptying
• Patients often deny urinary or fecal incontinence but admit to wearing pads daily or difficulty cleaning after bowel movements
• No definitive test exists for endometriosis other than surgery, making proper questioning essential
• Many patients have been dismissed by doctors, making it harder to get accurate symptom reporting
• Surgical interventions may involve trade-offs between pain relief and preserving bladder function
• Post-surgical issues can occur if nerves governing bladder function are affected during treatment
• Cases requiring second or third opinions often involve complex reconstruction after previous surgeries
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Dr. Megan Wasson from Mayo Clinic explains how pediatric gynecological exams can be performed without causing trauma to young patients. She shares expertise on using external examinations and imaging techniques as alternatives to traditional speculum exams for diagnosing pelvic pain in adolescents.
• Speculum exams generally aren't appropriate for pediatric and adolescent patients, especially those who aren't yet sexually active
• External inspection of the vulva and introitus can identify conditions like imperforate hymen without invasive procedures
• Abdominal ultrasounds can effectively check uterine and ovary structure without internal examination
• Healthcare providers should avoid CT scans for young patients due to radiation exposure concerns
• MRIs should be used selectively as the lengthy, noisy procedure may cause trauma for children
• Physicians must balance diagnostic benefits against potential physical and emotional harm
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Dr. Zachary Spiritsos shares expert insights on the connections between digestive issues and conditions like POTS, MCAS, and EDS. He explains how these overlapping conditions present with distinct symptom patterns that can help patients better understand their complex health challenges.
• Neurogastroenterologists are "electricians, not plumbers" - focusing on nervous system connections to digestive issues
• POTS typically presents with racing heart upon standing, brain fog, blood pooling, and various GI symptoms
• MCAS features "twitchy" mast cells that react to everything from temperature changes to emotions
• Primary MCAS symptoms include skin manifestations (itching, rashes), ENT issues, and GI symptoms like unexplained heartburn
• EDS often shows up through joint hypermobility, subluxations, and can be assessed using the Beighton score
• These conditions frequently overlap, requiring thorough questioning to properly identify and treat
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Is endometriosis really just a reproductive disease? Dr. Megan Wasson, Chair of Medical and Surgical Gynecology at the Mayo Clinic, joins us to break down how endometriosis impacts people at every age — from teens with "normal" cramps to postmenopausal individuals still battling symptoms.
We unpack the red flags, the myths, and what true care should look like at each stage of life.
In this episode, you’ll learn:
• Why period pain that affects school, work, or life is never normal
• How early symptoms in teens are often mislabeled as anxiety
• What trauma-informed pelvic exams should look like for adolescents
• Why “birth control is a bandaid” and not a cure for endo
• When excision surgery can support fertility — and when it may not
• What to know about perimenopause and endo symptom flares
• Why menopause doesn’t always “cure” endometriosis
• How hormone replacement therapy (HRT) can still be safe and helpful
• Why surgery can still help after menopause
• The critical role of support people in navigating care
👉 If your period is more than an inconvenience, something is wrong. It’s time to speak up, be heard, and get the care you deserve.
🎧 Tune in now on your favorite podcast app or watch the full conversation on YouTube.
Endometriosis #ChronicPain #MayoClinic #TeenPeriodPain #PelvicPain #Menopause #HRT #ExcisionSurgery #InvisibleIllness #EndoEducation #WomensHealth
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Confused about PCOS and endometriosis? You’re not alone—and you might’ve been misdiagnosed. In this essential episode, Dr. Sadikah Behbehani, a double-fellowship trained reproductive endocrinologist and minimally invasive surgeon, sets the record straight.
She breaks down the real differences between Polycystic Ovary Syndrome (PCOS) and endometriosis, explains how they can coexist without causing each other, and outlines the actual diagnostic criteria for PCOS. This conversation is critical for teens, adults, and parents trying to make sense of irregular periods, hormonal changes, or conflicting diagnoses.
What you’ll learn:
• Why PCOS and endometriosis are often confused but are very different
• How misdiagnosis happens—and how to avoid it
• What the Rotterdam criteria are, and why they matter
• Why polycystic-appearing ovaries alone are not enough for a PCOS diagnosis
• The truth about irregular cycles in teens and when to be concerned
• When PCOS should be diagnosed—and when it shouldn’t
• How endometriosis and PCOS can impact fertility and treatment
Whether you're newly diagnosed or searching for answers after years of symptoms, this episode will give you science-backed clarity and validation.
Listen now to get empowered with accurate information and practical next steps.
Have a question for a future episode? Submit it through the link in the description, email contact@endobattery.com, or visit www.endobattery.com/contact.
PCOS #Endometriosis #HormonalHealth #PCOSAwareness #EndometriosisAwareness #Misdiagnosis #RotterdamCriteria #WomenHealthPodcast #ChronicIllness #PelvicPain #PCOSInTeens #DrBehbehani #EndoBatteryPodcast
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Struggling with emotional ups and downs while living with chronic illness like endometriosis? You’re not alone—and your anger makes sense. In this powerful episode, Dr. Natasha Trujillo, licensed psychologist and author of "And She Was Never the Same Again," explores how to recognize and process the emotional weight that often comes with invisible illnesses.
Discover how the "anger iceberg" reveals the deeper emotions that fuel frustration—such as grief, loss, sadness, fear, and even guilt—when your body feels like it’s fighting against you.
🔍 In this episode:
• Why anger is a valid and adaptive response to chronic illness
• How to use the anger iceberg to uncover what’s really going on emotionally
• The impact of suppressed emotions on your well-being
• How self-awareness and reflection can help you heal
• Tools for processing emotions in healthy, personalized ways
Whether you're navigating endometriosis, autoimmune disease, or another chronic condition, this conversation sheds light on what you're really feeling—and how to care for yourself through it.
💬 Have a question about endo or chronic illness?
Submit it via the link in the episode description, email us at contact@endobattery.com, or visit www.endobattery.com.
🔗 Be sure to subscribe, rate, and share if you found this episode helpful—it helps more people find trustworthy content about chronic illness, endometriosis, and women's health.
Endometriosis #ChronicIllness #WomensHealth #EmotionalHealth #AngerIceberg #MentalHealthAndChronicIllness #InvisibleIllness #DrNatashaTrujillo #EndoBatteryPodcast
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🎧 Endometriosis Facts vs Fiction: Expert Insights with Heather Guidone of the Center for Endometriosis Care
Are you overwhelmed by conflicting endometriosis information online? In this must-hear episode, Heather Guidone, Program Director at the Center for Endometriosis Care (CEC), joins us to break down how to navigate the flood of misinformation—and why it matters more than ever.
✅ Learn how to identify credible endometriosis resources
✅ Discover the difference between influencer noise and medically accurate education
✅ Get clarity on what endometriosis actually is—hint: it’s NOT just a menstrual disease
✅ Hear why EndoGirls Blog is a game-changer for translating research into accessible info
✅ Understand why no one has all the answers—and what that means for your care
✅ Tailor your approach whether you're a patient, caregiver, or healthcare professional
🧠 “It’s not awareness if it’s bad information.”
This quote from Heather says it all—education must be accurate to be empowering.
💛 Whether you're newly diagnosed, advocating for someone you love, or deep into your healing journey, this episode equips you to ask better questions and find real support.
🔗 Got questions for future episodes?
Send them via the episode link, email us at contact@endobattery.com, or visit www.endobattery.com.
EndometriosisAwareness #EndometriosisPodcast #HeatherGuidone #CenterForEndometriosisCare #EndoEducation #Misinformation #ReproductiveHealth #PelvicPain #EndometriosisSupport #PatientAdvocacy #EndoBatteryPodcast
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Registered dietitian Sarah Rae shares practical strategies for managing endometriosis symptoms while traveling and eating at restaurants. She provides evidence-based nutrition advice specifically addressing how to reduce bloating and discomfort when eating outside your controlled home environment.
• Avoid skipping meals when traveling - aim to eat every 4-5 hours to prevent increased bloating
• Pack portable snacks like protein bars or hard-boiled eggs to maintain regular eating patterns
• Don't hesitate to ask restaurants about food preparation or request modifications to avoid trigger ingredients
• Consider carrying digestive enzymes like FODZYME to help break down trigger foods when unavoidable
• Stay well-hydrated and consider limiting caffeine and alcohol when traveling if these trigger symptoms
• Remember that supplements like FODZYME should be discussed with healthcare providers
Send your questions about endometriosis management by using the link in the episode description, emailing contact@endobattery.com, or visiting the EndobBattery.com contact page.
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Dr. Naomi Whittaker explains the two types of adenomyosis and their differing impacts on fertility, revealing that the condition is often over-diagnosed on ultrasound. She emphasizes that surgeon selection is crucial for women with reproductive concerns, sharing concerning examples of unauthorized fallopian tube removals during surgeries.
• Diffuse adenomyosis is common in women who have had children and typically does not cause infertility
• Adenomyosis is often "over-called" on ultrasound as technology becomes more advanced
• Focal adenomyosis (adenomyomas) can cause infertility but are usually resectable with proper surgical techniques
• Choosing a fertility-friendly surgeon who respects reproductive goals is critical
• Proper surgical technique and tissue handling significantly impact fertility outcomes
• Patient autonomy and informed consent should always be respected during reproductive surgeries
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Vanessa Weiland, a certified menopause practitioner, explains when hormone replacement therapy (HRT) is warranted after hysterectomy while still having ovaries. She breaks down the progression of perimenopause symptoms and emphasizes that treatment is appropriate whenever these symptoms impact quality of life.
• Without periods as markers, focus on recognizing other menopausal symptoms
• Early perimenopause often presents with anxiety and sleep issues due to declining progesterone
• Middle perimenopause brings classic symptoms like hot flashes, night sweats, and vaginal dryness
• Less recognized symptoms include heart palpitations, itchy skin, joint pain, and brain fog
• Symptoms usually peak around what would have been the final period, then gradually improve
• HRT is reasonable to pursue whenever symptoms affect quality of life
• Treatment is generally safe and can serve as both therapy and diagnostic tool
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Thoracic endometriosis is likely more common than we think, and we're only seeing "the tip of the iceberg" according to thoracic surgeon Dr. Francesco Di Chiara, who specializes in minimally invasive chest surgery at Oxford's John Radcliffe Hospital.
• Most patients wait 7-8 years for endometriosis diagnosis, then additional years before seeing a thoracic specialist
• Current patients typically arrive in their 30s with pre-existing endometriosis diagnosis from gynecologists
• Dr. Di Chiara envisions a future where adolescents with chest symptoms would see thoracic specialists first
• Surgery for thoracic endometriosis in younger patients may actually be safer than in older adults
• The main surgical risks relate to age-related heart and lung diseases, not present in teens and young adults
• Healthcare coverage for thoracic endometriosis remains "patchy" across countries including the UK's NHS
• Work is ongoing with NHS England to create a unified network for complex endometriosis care
Send your questions by using the link in the description, emailing contact@endobattery.com, or visiting the endobattery.com contact page. Keep feeling empowered through knowledge.
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Sarah Rae, a registered dietitian specializing in endometriosis and fertility nutrition, shares evidence-based strategies to help manage endometriosis symptoms through diet. She debunks nutrition myths and offers practical approaches to meal planning that focus on nourishment rather than restriction.
• Start with small steps when transitioning to an endometriosis-friendly diet
• Most women need around 2000 calories daily, especially if active
• Include protein at every meal and snack for muscle function, blood sugar regulation, and hormone support
• Add colorful produce to your meals, using frozen or cooked options if fresh isn't accessible
• Create meal planning systems with protein rotations and consistent frameworks to reduce decision fatigue
• Consider meal delivery kits during busy life seasons for nutritionally balanced options
• Working with a dietitian can provide personalized meal planning assistance
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We dive into endometriosis research, breaking down recent studies to understand what they actually mean for patients and where science may be misleading us.
• Critical review reveals nearly half of endometriosis research isn't even studying the right tissue
• Bilateral oophorectomy before age 45 leads to significant quality of life challenges, with HRT providing insufficient relief
• Large study confirms endometriosis shares genetic links with multiple immune conditions
• Research on childhood adversity and endometriosis confuses correlation with causation
• Scientists need to study actual endometriosis lesions rather than using endometrium as a stand-in
• Understanding research limitations empowers patients to advocate for better care
Continue advocating for yourself and others, and keep pushing for more accurate research that will lead to better treatments and understanding of endometriosis.
Links
Endometriosis is not the endometrium: Reviewing the over-representation of eutopic endometrium in endometriosis research
Quality of life of patients with bilateral oophorectomy before the age of 45 for the treatment of endometriosis
The phenotypic and genetic association between endometriosis and immunological diseases
Adverse childhood experiences and the risk of endometriosis—a nationwide cohort study
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Dr. Francesco Di Chiara, a leading consultant thoracic surgeon, shares critical insights about thoracic endometriosis and its impact on lung function. The episode explores the differences between thoracic endometriosis and lung disease, the implications of lung collapse during menstruation, and the most commonly misdiagnosed symptoms.
• Lung endometriosis is one presentation of thoracic endometriosis
• Lung collapse during menstruation (pneumothorax) is a sign that shouldn't be overlooked rather than immediately dangerous
• Shoulder and neck pain are the most commonly missed symptoms, often leading to incorrect orthopedic treatments
• Adhesions in the lungs can prevent full expansion, reducing capacity and exercise tolerance
• After surgical treatment, thoracic endometriosis may recur but typically in a less invasive form
• Research on thoracic endometriosis recurrence rates is still developing
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Dr. Francesco Di Chiara, a leading consultant thoracic surgeon at John Radcliffe Hospital in Oxford, shares his expertise on thoracic endometriosis - when endometriosis affects the chest cavity, diaphragm and lungs. He illuminates the challenges patients face with this often-overlooked manifestation of endometriosis that can cause collapsed lungs, shoulder pain, and breathing difficulties.
• Thoracic endometriosis causes symptoms including pneumothorax (collapsed lung), shoulder pain, hemoptysis (coughing blood), effusions and hemothorax
• 90% of patients with thoracic endometriosis first see orthopedic surgeons for shoulder pain before correct diagnosis
• Symptoms are often "self-limiting" which leads to medical dismissal since they temporarily resolve after each cycle
• Imaging challenges include MRI movement artifacts and that lesions are often thinner than MRI resolution capabilities
• Surgical excision involves a thoracoscopic or robotic approach with most complex procedures involving the diaphragm
• Diaphragmatic surgery requires special consideration for patients planning pregnancy due to added strain on surgically repaired tissues
• Multi-disciplinary care is crucial with thoracic surgeons involved early rather than being called in only after discovery during gynecological surgery
• Dr. Di Chiara classifies thoracic endometriosis lesions in a color spectrum from pink (superficial) to white (scarred) with purple and brown in between
• Thoracic surgeons with endometriosis expertise are rare - patients should seek high-volume centers with established multidisciplinary teams
If you suspect thoracic endometriosis, seek out high-volume endometriosis centers that work directly with thoracic surgeons, and insist on meeting your entire surgical team before committing to treatment.
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Professor Mark Possover shares groundbreaking insights on neuropelviology, the revolutionary field addressing chronic pelvic pain that bridges gynecology, neurology, and minimally invasive surgery. His work offers hope to patients who've been told to simply "live with" their pain, targeting the pelvic nerves directly when the source of pain is elusive or deemed untreatable.
• The vagus nerve does not extend into the pelvic cavity, ending at the level of the colon and stomach
• Damage to nerves in the pelvis involves the pelvic splanchnic nerve system, not the vagus nerve
• Patients with autoimmune diseases often develop pathology of the pelvic vessels that can compress pelvic nerves
• Conditions like Ehlers-Danlos, Raynaud's, Marfanoid syndrome and Hashimoto's show connections to pelvic nerve issues
• Endometriosis demonstrates strong links to other autoimmune diseases and conditions like diabetes
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Professor Marc Possover, world-renowned pioneer in neuropelviology, discusses when and why to be concerned about sciatic endometriosis. He explains the critical distinction between regular endometriosis near the sciatic nerve versus endometriosis growing within the nerve itself, which requires specialized neurosurgical intervention.
• Cyclical sciatic pain during menstruation may suggest endometriosis involvement
• Sensory disorders, numbness, and weakness are serious warning signs requiring immediate attention
• Vascular entrapment is the most common cause of sciatic pain in the pelvis
• Endometriosis of the sciatic nerve requires specifically trained neuropelviological surgeons, not just gynecologists
• Improper surgery on the sciatic nerve can cause permanent disability like foot drop
• A comprehensive neuropelviological workup is essential before any surgical intervention
• True sciatic nerve endometriosis surgery is among the most difficult and dangerous pelvic procedures
Do you have more questions? Send them in by using the link in the top of the description, emailing contact@endobattery.com, or visiting the endobattery.com contact page.
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Licensed therapist Shawn Whitney explains how our bodies experience trauma and grief in similar ways, making it difficult to differentiate between them when navigating chronic illness. The most important aspect of healing is acknowledging the true significance of our experiences rather than minimizing them, as treatment approaches for both trauma and grief focus on validating impact rather than categorizing emotions.
• Our bodies experience trauma and grief similarly with little physiological differentiation
• Trauma impacts us emotionally, psychologically, spiritually, relationally and sexually
• Effective trauma treatment is also effective grief and loss treatment
• Cultural messages often minimize our experiences with phrases like "you'll get over it"
• Healing begins by acknowledging the significance and true impact of our experiences
• Language and identification have value, but impact matters more than categorization
Send your questions to contact@endobattery.com or visit endobattery.com/contact to connect with more experts.
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Dr. Jeff Arrington, renowned excision specialist and patient advocate, shares his expert perspective on the differences between minimally invasive laparoscopic surgery and robotic surgery for endometriosis treatment. He explains that surgical success depends more on the surgeon's training and comfort level with their chosen technique rather than the inherent superiority of either approach.
• Surgeon preference and training are the primary factors in choosing between laparoscopic and robotic approaches
• Dr. Arrington initially used robotics only for complex cases but found several benefits that led to wider adoption
• Robotic surgery reduces surgeon fatigue, potentially extending careers of specialists
• Robotics gives surgeons more control and less dependence on specific OR assistants
• While laparoscopy offers direct tactile feedback, experienced surgeons develop visual cues with robotics
• Both approaches are laparoscopic procedures with different instruments but similar risk profiles
Send your endometriosis questions by using the link in the description, emailing contact@endobattery.com, or visiting the endobattery.com contact page.
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Professor Marc Possover transforms our understanding of chronic pelvic pain by targeting the pelvic nerves directly when traditional treatments fail. His pioneering work in neuropelviology bridges gynecology, neurology, and minimally invasive surgery to bring relief to patients who've been told to simply live with their pain.
• Pain or disorder of pelvic organs always involves nerve issues, with endometriosis being one potential cause
• Gynecological examination, sonography, and MRI help determine if endometriosis is present
• Many doctors aren't familiar with neuropelviology - if they don't recognize the term, they likely have limited knowledge of pelvic nerves
• Nerve-sparing techniques are crucial for all patients undergoing pelvic surgery to avoid postoperative organ dysfunction
• In patients with Ehlers-Danlos Syndrome (EDS), atypical blood vessels can compress nerves causing pain
• Treatment often involves releasing the nerve by removing the problematic vein rather than treating the nerve itself
• Sickle cell disease can also cause compression of pelvic nerves through small areas of ischemia throughout the body
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Chronic illness grief differs significantly from the grief experienced after death—it's complicated, ongoing, and often invisible to others. Shawn Whitney, a licensed therapist specializing in trauma-informed care, explains how this "complicated grief" compounds daily as individuals continue to face their illness while support typically fades away after just a few weeks.
• Chronic illness grief is "complicated grief" because the person isn't gone but continues living with daily challenges
• Unlike death, chronic illness grief lacks visibility—"you look fine" becomes a painful dismissal of real suffering
• Initial support after diagnosis typically disappears within 3-4 weeks, while the illness remains
• Complicated grief compounds over time as new challenges emerge and previous losses remain unprocessed
• The ongoing nature of chronic illness means individuals must face their grief daily without the closure that comes with finality
If this episode resonated with you, check out episode 62 where Shawn shares more insights about healing through trauma and chronic illness. Send your questions by using the link in the episode description, emailing contact@endobattery.com, or visiting the endobattery.com contact page.
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Professor Marc Possover reveals how our nervous system drives endometriosis pain and offers practical tools for managing symptoms through vagus nerve regulation. This groundbreaking conversation challenges traditional views of endometriosis by exploring neuropelviology – the study of pelvic nerves – and how nerve function impacts everything from pain perception to fertility.
• The pelvic nervous system controls all pelvic functions and pain signals
• Our autonomic nervous system has two branches: sympathetic (fight-or-flight) and parasympathetic (rest-and-digest)
• Endometriosis activates the sympathetic nervous system, creating widespread effects beyond the pelvis
• Vagus nerve stimulation can increase parasympathetic activity and decrease pain
• Simple techniques like ear stimulation, breath work, positive thinking, and physical activity can regulate the nervous system
• Symptoms often dismissed as "comorbidities" are actually part of one connected nervous system dysfunction
• Many patients with persistent pain after surgery may be experiencing nervous system sensitization rather than disease recurrence
• Future treatments may include neuromodulation techniques that decrease both pain and inflammation
• Understanding neuropelviology could reduce unnecessary surgeries and improve outcomes
• Both patients and doctors need education about the nervous system's role in endometriosis
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Kimether Redmon shares powerful strategies for setting the tone of respect with healthcare providers and knowing when to walk away from medical gaslighting.
• Come prepared with a one-page symptom summary, tracking information, and imaging reports to guide the conversation
• Ask providers to explain what led to their diagnosis and what their differential diagnoses are
• Remember that proper diagnostic process requires listening to patient history, physical exam, and multiple possible diagnoses
• When faced with dismissal, calmly state you're looking for a provider who will partner with you
• Don't hesitate to ask for your co-pay back if a provider refuses to engage respectfully
Have questions about advocating for yourself in healthcare settings? Send them in using the link in the description, email contact@endobattery.com, or visit the endobattery.com contact page.
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Dr. Jeff Arrington joins us to discuss accessible endometriosis management options and surgical considerations for patients at different stages of their journey. We explore alternatives to excision surgery, the relationship between round ligament pain and endometriosis, and the real risks of deep excision procedures compared to standard gynecological surgeries.
• Various hormonal options including birth controls, progesterone-only medicines, and IUDs
• Low-risk alternatives like magnesium, omega-3s, turmeric, anti-inflammatory diets
• Physical therapy, acupuncture, and specialized pelvic pain clinics
• No clear connection between round ligament pain and endometriosis
• Deep excision risks include bleeding and organ injury but specialist complication rates are lower than for routine gynecological procedures
• Proper knowledge of pelvic nerves critical for preserving bladder and bowel function
Do you have more questions? Keep them coming! Send them in using the link in the top of the description of this podcast episode, by emailing contact@endobattery.com, or by visiting the endobattery.com contact page.
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Surgical removal of reproductive organs creates an abrupt hormonal shift that requires thoughtful planning and preventive care. Dr. Christine Vaccaro discusses the importance of pre-surgical hormone replacement therapy planning and the significant risks of delaying treatment after ovary removal.
• Prevention is key—proactive planning can help avoid the "six weeks of awful" many women experience after surgery
• Transdermal estrogen products do not cause blood clots, contrary to some medical misconceptions
• Bone health suffers dramatically with hormonal depletion—even perimenopause can cause 10% bone density loss
• Sleep disruption without hormones can lead to cascading health problems including depression and chronic illness
• Starting hormone therapy immediately after surgery prevents suffering and protects long-term health
• Some patients with already low testosterone may benefit from starting replacement before surgery
• Withholding hormone replacement makes as little sense as withholding insulin from a diabetic
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Dr. Zachary Spiritos demystifies SIBO treatment for patients with complex conditions like endometriosis and mast cell activation syndrome. He cuts through the noise with a straightforward approach to this commonly misunderstood digestive condition, explaining why it's often simpler to treat than many functional medicine practitioners suggest.
• SIBO treatment basics: antibiotics like rifaximin that shift your microbiome rather than traditional systemic antibiotics
• Preventing recurrence by identifying root causes: antibiotic use, PPI use, chronic narcotic use, or other factors slowing bowel motility
• Pro-motility agents can help the small intestine function properly to prevent bacteria from accumulating where they don't belong
• Low FODMAP diets may help but are used sparingly due to their restrictive nature
• Elemental diets are a last resort for persistent cases
• SIBO is often overdiagnosed when the real issue is constipation or pelvic floor dysfunction
• Virtually all endometriosis patients have some degree of pelvic floor dysfunction
• Pelvic floor dysfunction prevents proper evacuation of both stool and gas, causing significant bloating
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Kate Downey shares her 22-year journey through debilitating period pain and her quest for answers that ultimately led to creating her podcast "Cramped." Through extensive research and interviews with experts, Kate uncovers why period pain remains so misunderstood despite affecting hundreds of millions of people worldwide.
• 30% of menstruating people (approximately 522 million worldwide) experience debilitating period pain
• The widely accepted explanation for period cramps is being questioned by researchers at the GYRL lab
• Female bodies are systematically excluded from medical research, leading to gaps in treatment effectiveness
• Even medications like antidepressants work differently depending on where you are in your menstrual cycle
• The stigma around periods keeps us isolated in our pain, which neurologically can make the pain worse
• Women's health research is making progress, but requires more advocacy and awareness
• Creating community through "women's circles" or "clam bakes" helps share crucial information about treatments
• Resources like cureperiodpain.org offer opportunities to participate in studies that advance menstrual research
You can find Kate Helen Downey's podcast "Cramped" wherever you listen to podcasts, and follow her on Instagram @KateHelenDowney or TikTok @KateIsCramped.
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Registered dietitian Sarah Rae shares evidence-based nutrition strategies for those managing both endometriosis and PCOS simultaneously. She explains why balanced blood sugar is crucial for both conditions and how protein intake, fiber, and healthy fats support hormone regulation.
• Similar nutrition approaches work for both endometriosis and PCOS despite perceived conflicts
• Focus on balancing blood sugars which impacts sleep, hormones, and hunger levels
• Aim for 20-30 grams of protein at each meal with fiber and healthy fats
• Those with PCOS and insulin resistance may need slightly more careful carbohydrate management
• Intermittent fasting generally not recommended as it can lead to disordered eating patterns
• Regular breakfast helps prevent binge eating, control sugar cravings, and manage bloating
• Anti-inflammatory food choices benefit both conditions
Have more questions? Send them to contact@endobattery.com or visit endobattery.com/contact to get expert answers on future episodes.
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Certified sex therapist Mallory Oxendine provides practical strategies for communicating with partners about pain during intimacy while maintaining connection and avoiding shame. She addresses the fear of rejection that often prevents these crucial conversations and introduces a framework that transforms vague concerns into specific requests partners can fulfill.
• Fear of rejection often prevents difficult conversations about sexual pain and limitations
• Avoidance of these discussions only deepens disconnection and misunderstanding
• John Townsend's "People Fuel" framework offers language for requesting specific relational nutrients
• Being clear about needing acceptance, comfort, or encouragement helps partners know how to respond
• Most partners want to be supportive but need guidance on what response would be most helpful
• Clear communication preserves emotional intimacy even when physical intimacy needs adaptation
Check out episodes 120 and 121 with Mallory for more insights on intimacy, endometriosis, and chronic illness.
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Endometriosis impacts every aspect of life—physical health, relationships, mental wellbeing, career, and finances—not just the reproductive system. Research validates what patients experience: this disease is systemic, serious, and requires comprehensive care approaches beyond dismissive "solutions" like yoga or positive thinking.
• Medical gaslighting occurs when clinicians discount or dismiss patient concerns, eroding trust and worsening health outcomes
• Women and people from marginalized communities experience heightened levels of medical dismissal
• "Kissing ovaries" visible on imaging can signal deep infiltrating endometriosis requiring surgical intervention
• Chronic pain from endometriosis physically rewires neurological systems affecting emotion regulation and cognitive processing
• Research shows endometriosis significantly impacts employment with higher rates of missed work and job loss
• Adolescents with endometriosis experience lower quality of life across physical, emotional, and academic domains
• Early intervention and patient-centered care dramatically improve long-term outcomes
• Validation of symptoms as legitimate biological experiences rather than emotional overreactions is essential
LINKS
Gaslighting of Inpatients-A threat to nursing care and a violation of relational autonomy. Nurs Ethics 2025 Mar 29:9697330251331194.
Endometriosis, a Common but Enigmatic Disease with Many Faces: Current Concept of Pathophysiology & Diagnostic Strategy. Jpn J Radiol. 2024 Aug;42(8):801-819.
Understanding Psychological Symptoms of Endometriosis from a Research Domain Criteria Perspective. J Clinical Medicine. 2023; 12(12):4056.
Does endometriosis affect professional life? A matched case-control study in Switzerland, Germany & Austria. BMJ Open 2019;9:e019570.
Impact of Endometriosis on Quality of Life in Adolescents. J Adolesc Health. 2018;63(6):766-772.
van Stein K, et al.
Continue advocating for yourself and others. Your experiences are real, measurable, and deserve comprehensive care.
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Expert endometriosis surgeon Dr. Abhishek Mangeshikar debunks common myths and provides clear answers to pressing questions about endometriosis management. Drawing from his extensive experience at the Indian Center for Endometriosis, he offers evidence-based insights on treatments, surgical approaches, and unusual symptoms.
• No conclusive data supports the claim that birth control or Lupron causes regression of endometriosis lesions
• Shrinking endometriomas may actually indicate worsening disease as contents leak into the pelvis causing adhesions
• The timing of surgery relative to menstrual cycle generally doesn't matter for experienced excision specialists
• Operating during a patient's period may require additional cleaning of the surgical field but doesn't affect excision outcomes
• Cyclical nosebleeds might be connected to thoracic endometriosis, but medical data remains limited
• Hysteroscopy procedures are the main exception where avoiding menstruation is beneficial for visualization
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Dr. Abhishek Mangeshikar shares critical insights on evaluating surgeon skill and the importance of comprehensive treatment for endometriosis. His expertise reveals that clean, meticulous surgical technique with respect for tissue significantly improves outcomes and reduces post-operative adhesions.
• Red flag if surgeon plans to "just remove the cyst" in a quick procedure
• Endometriosis cysts never exist as single entities—always accompanied by other disease
• Proper imaging should identify connections to surrounding structures
• Wait at least six months for post-operative imaging due to healing processes
• Original surgeon should review follow-up imaging to distinguish between fibrosis and disease
• Clean surgical technique with minimal bleeding significantly reduces adhesion formation
• "Tissue respect" approach leads to better outcomes than aggressive dissection
• Different bodies heal differently, affecting individual adhesion formation
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Dr. Zac Spiritos, a neurogastroenterologist, shares his expertise on the complex connections between endometriosis and gastrointestinal symptoms. We explore the critical role of the nervous system in gut function and discuss practical approaches to managing painful bowel movements, bloating, and food sensitivities.
• Common GI issues with endometriosis include chronic constipation, diarrhea, bloating (endo-belly), and food sensitivities
• The nervous system plays a crucial role in gut function and pain perception
• Regular bowel movements are foundational for addressing other GI symptoms
• Slower gut motility is common in patients with Ehlers-Danlos Syndrome and endometriosis
• Antidepressants can be effective for gut pain by modulating pain signals, not treating depression
• The microbiome is promising but testing lacks standardization and actionable insights
• Painful periods are not normal and should be investigated, particularly if they disrupt quality of life
• Endometriosis is often misdiagnosed, with patients seeing an average of 12 providers before diagnosis
• GI symptoms can sometimes appear before traditional gynecological symptoms of endometriosis
• Finding providers who are open to dialogue and willing to investigate complex symptoms is crucial
If you're struggling with endometriosis and GI symptoms, start tracking your symptoms carefully, particularly around your cycle, and don't give up if your first provider doesn't have answers.
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Dr. Jeff Arrington, a renowned excision specialist and patient advocate, shares his expert perspective on when ablation might be appropriate in endometriosis treatment. He discusses the nuanced decision-making process that balances complete disease removal against fertility preservation, challenging the notion that excision is always the only acceptable approach.
• Small, superficial lesions could potentially be fully destroyed by ablation, though with more surrounding tissue damage
• When endometriosis grows around blood vessels to ovaries or the uterus, ablation may be used to preserve fertility
• Patient priorities, especially fertility concerns, should guide treatment approach decisions
• Ablation is ineffective for deeply invasive disease, especially on major organs
• Informed consent allows patients to understand risks and benefits of different approaches
Send your endometriosis questions for future Quick Connect episodes via the link in the episode description, by emailing contact@endobattery.com, or through the contact page at endobattery.com.
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Dr. Zac Spiritos shares key insights about gastroenterology red flags and specialized dietary approaches for digestive disorders. We explore the concerning situation when doctors label symptoms as "just IBS" without proper explanation and the important distinctions between histamine intolerance and mast cell activation syndrome.
• Watch for doctors who label everything as IBS without explaining what it means or why their treatments would work for your specific case
• Histamine intolerance (lacking an enzyme that breaks down histamine) is different from mast cell activation syndrome
• Low histamine diets work well for histamine intolerance but need professional guidance to avoid becoming too restrictive.
Send your questions to contact@endobattery.com or through the link in the episode description for future Quick Connect episodes.
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A deep dive into the tangled web of GI symptoms and how they connect to endometriosis, EDS, POTS, and Mast Cell Activation Syndrome. Dr. Zac Spiritos, a neuro-gastroenterologist, shares insights on differentiating between these conditions and finding effective treatment approaches.
• IBS is a "software not hardware problem" involving miscommunication between gut and brain nerves
• Endometriosis can sensitize nerves in the pelvis, leading to IBS-like symptoms even after excision
• POTS affects the autonomic nervous system, causing standing tachycardia and various GI symptoms
• Mast Cell Activation Syndrome manifests through skin issues and unusual GI symptoms like early-onset heartburn
• EDS affects connective tissue throughout the body, potentially causing problems in every part of the GI tract
• Salt intake helps POTS patients by increasing blood volume, though this approach isn't sustainable for everyone
• Finding a doctor who remains curious about complex conditions is crucial for proper diagnosis and treatment
• Patient education is essential for informed decision-making and long-term management of chronic conditions
Follow Dr. Zac Spiritos on Instagram @drzacspiritos
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Sarah Rae, registered dietitian specializing in endometriosis and fertility nutrition, offers evidence-based strategies to help individuals navigate nutrition for endometriosis.
• SIBO treatment typically begins with antibiotics like rifaximin, often followed by or combined with a low FODMAP diet
• The low FODMAP diet should be temporary, not a long-term solution
• Highly processed carbohydrates and consuming too many carbs at once can worsen SIBO symptoms
• Focus on balancing protein, carbohydrates, and fiber for better SIBO management
• Omega-3 fatty acids are extremely beneficial for reducing endometriosis pain
• Supplementation (including vegan algae-based options) can help those unable to get enough from diet
• Omega-3s also benefit heart health, joint function, and brain health
Send your questions through the link in the episode description, by emailing contact@endobattery.com, or by visiting the endobattery.com contact page.
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Neurogastroenterologist Dr. Zachary Spiritos explains the likely connection between leaky gut and rising rates of inflammatory conditions like endometriosis. He discusses how intestinal permeability may be influenced by stress and dietary factors, potentially contributing to various chronic conditions.
• Leaky gut (increased intestinal permeability) may be bidirectionally linked with endometriosis and other inflammatory conditions
• Reliable testing for leaky gut doesn't exist yet, but research suggests connections with autoimmune conditions
• Modern lifestyle factors including processed foods and stress may contribute to intestinal permeability issues
• GLP-1 agonists like semaglutide can benefit many GI conditions but may worsen gastroparesis or constipation
• Personalized risk assessment is crucial when considering weight management medications with pre-existing GI issues
Send in your questions by using the link in the description, emailing contact@endobattery.com, or visiting the endobattery.com contact page.
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In this episode of Endo Battery Fast Charged, we dive into the ongoing delays in endometriosis diagnosis, emerging imaging tools like transvaginal ultrasound for superficial endometriosis, and how advocacy is shifting the standard of care.
Learn why most patients see up to 7 doctors and face years of dismissal before a diagnosis—and how that delay worsens pain and outcomes. We explore the latest research on imaging, the importance of recognizing all types of endometriosis, and why collaborative, patient-centered care is essential.
Featuring expert insights and patient advocates like Heather Guidone and Jenneh Rishe, this episode is a must-listen for anyone navigating endo or supporting someone who is.
Links to articles:
Collaboration is key in managing endometriosis
Understanding diagnostic delay for endometriosis: A scoping review using the social-ecological framework. Health Care for Women International, 46(3), 335–351(2024).
Diagnosis of superficial endometriosis on transvaginal ultrasound by visualization of peritoneum of pouch of Douglas. Ultrasound Obstet Gynecol. 2024;63(1):105-112.
“Road to Diagnosis: Stomach Pain and Other Symptoms My Endometriosis Was Causing”
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Dr. Abhishek Mangeshikar, leading endometriosis specialist from the Indian Center for Endometriosis, shares expert insights on post-excision medical management and endometrioma concerns. His straightforward explanations debunk common myths while providing practical guidance for patients navigating surgical recovery and ongoing treatment options.
• Medical management after excision may be appropriate for patients with adenomyosis who wish to keep their uterus
• Progesterone-containing IUDs like Mirena can help suppress adenomyosis symptoms
• Temporary hormonal suppression (3-4 months) may protect healing ovaries after large cyst removal
• Endometrioma rupture during surgery does not cause disease spread or "upstaging" as with cancer
• Virtually all endometrioma excisions involve some rupture as part of the surgical process
• Successful surgery requires complete ovary mobilization and removal of all underlying disease
Send your questions by using the link in the podcast description, emailing contact@endobattery.com, or visiting the endobattery.com contact page.
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Dr. Jeff Arrington breaks down the differences between uterine ablation and hysterectomy while offering candid advice about advocating for yourself with dismissive doctors. His expert insights challenge conventional approaches to endometriosis and adenomyosis treatment, emphasizing the importance of evidence-based care and patient autonomy.
• Uterine ablation uses heat to destroy the uterine lining and primarily treats heavy bleeding, not painful periods
• Adenomyosis is one of the top reasons patients need hysterectomy after endometrial ablation
• For heavy bleeding with painful periods, a progesterone IUD may be better than ablation as it addresses both symptoms
• Post-ablation syndrome can occur when scarring traps active endometrial tissue, causing pain over time
• When doctors don't listen to your concerns, asking for supporting research studies may help
• If providers consistently dismiss you, finding a new doctor may be your only viable option
• Many physicians remain fixed in outdated residency training and fail to offer referrals to specialists
Have more questions? Send them in using the link in the episode description, email contact@endobattery.com, or visit the endobattery.com contact page.
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Dr. Jeff Arrington, renowned excision specialist and patient advocate, joins Quick Connect to debunk misinformation and empower patients with expert insights on endometriosis care. He breaks down the complexities of excision surgery, the connection between fibroids and endometriosis, and the critical need for proper referrals. Plus, he explains why endometriomas signal deeper disease and why honest surgical discussions are essential.
Send in your questions via the link in this episode's description, email contact@endobattery.com, or visit endobattery.com.
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Dr. Christine Vaccaro, a double board certified urogynecologist, provides crucial insights about the often-overlooked challenges of surgical menopause and comprehensive hormone replacement therapy. She explains why the abrupt hormonal changes after ovary removal create a "rude awakening" for the body, unlike the gradual transition of natural menopause.
• The difference between natural menopause and surgical menopause (removing ovaries)
• Why all three hormones matter: estrogen, progesterone and testosterone
• The specific roles each hormone plays in overall health and wellbeing
• How quickly bone loss occurs without hormone replacement
• Why local vaginal hormone treatment is necessary even with systemic hormone therapy
• Options for vaginal hormone treatments including creams, tablets, rings and suppositories
• The importance of addressing pelvic floor muscles after surgery
• Why some women still have pain after hysterectomy
• How mental health support, particularly sex therapy, aids in recovery
• The value of education before surgery to make informed choices
Don't underestimate the impact of surgical menopause. Find doctors who will discuss comprehensive hormone replacement before surgery and create personalized treatment plans to support your quality of life afterward.
general email: info@rachelrubinmd.com
appointments: office@rachelrubinmd.com
website: rachelrubinmd.com
instagram: @drchristinevaccaro
youtube: youtube.com/@DrRachelRubin
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Intimacy doesn't have to end when chronic pain begins - it simply requires thoughtful adaptation, clear communication, and a willingness to explore new pathways to pleasure.
• Understanding the crucial difference between pain (stop immediately) and discomfort (slow down and get curious)
• Expanding your definition of intimacy beyond penetrative sex to explore the "whole playground" of possibilities
• Approaching new relationships with honesty about endometriosis without feeling obligated to become an educator
• Recognizing that most female orgasms occur through clitoral stimulation rather than penetration
• Learning that pleasure and pain signals use the same brain pathways, which is why pain can inhibit pleasure
• Embracing acceptance without judgment as a pathway to moving forward
• Considering therapeutic approaches like EMDR to address medical trauma and negative beliefs
• Using communication as your most powerful tool for maintaining intimacy despite chronic illness
If you're struggling with intimacy issues related to endometriosis or chronic pain, visit The Brooke Center for Counseling and Wellness at thebrookecenter.com or follow @thebrookecenter and @malloryoxendine on Instagram.
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Gut Health & Endometriosis: What You Need to Know with Sarah Rae, RDN
Registered dietitian Sarah Rae breaks down the powerful link between gut health and endometriosis, explaining how inflammation, the brain-gut connection, and diet impact symptoms. Learn evidence-based strategies to support your microbiome—without relying on expensive supplements.
🔹 How endo-related inflammation disrupts gut balance
🔹 Why gut health affects pain, mood, and digestion
🔹 The truth about probiotics & specialized testing
🔹 Best foods to nourish beneficial gut bacteria
Got questions? Send them via the link in the description, email contact@endobattery.com, or visit EndoBattery.com!
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Registered dietitian Sarah Rae debunks common myths about soy and endometriosis, explaining why phytoestrogens may actually support—not harm—your health. Research suggests soy could even lower endometriosis risk!
In this episode:
✅ Soy as a source of calcium & lean protein
✅ No strong evidence that soy worsens endo
✅ Studies linking soy intake to lower endo risk
✅ How personal sensitivities & hidden ingredients impact reactions
Listen now & learn how to make informed choices for your body!
💬 Got questions? Submit them for future Quick Connect episodes via the link in the description, email contact@endobattery.com, or visit EndoBattery.com.
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Mallory Oxendine, a licensed professional counselor and certified sex therapist, shares powerful insights about maintaining intimacy while navigating the challenges of endometriosis and chronic illness. She offers compassionate guidance on reframing our expectations of sex, communicating with partners, and finding connection despite pain.
• Sex is inherently complex—even without chronic pain—so remove the pressure to make it "easy"
• Expand your definition of intimacy beyond penetrative intercourse using the "playground metaphor"
• Negative self-talk about your body's limitations creates additional barriers to intimacy
• Partners can best support by slowing down, being present, and checking in regularly
• Both partners' feelings about intimacy challenges are valid and important
• Grieving together about chronic illness can create profound emotional intimacy
• Setting the right environment (lighting, temperature, comfort) helps you stay present
• Grounding techniques like the "take five" method can prevent dissociation during intimacy
• Communication before, during, and after intimacy is essential for both partners
• "I can't truly say yes if I can't say no"—permission to decline leads to more authentic consent
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Dr. Abhishek Mangeshkar breaks down why hormonal suppression only manages symptoms, while surgery removes endometriosis. He highlights key differences between these approaches and the serious long-term risks of hormonal treatments, including bone loss, heart disease, GI issues, mood disorders, and potential permanent ovarian damage.
Got questions? Send them to contact@endobattery.com or visit endobattery.com/contact for expert answers in future episodes.
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Dr. Mona Orady breaks down the critical role of adhesion prevention in endometriosis excision surgery—key for protecting fertility and reducing pain. She shares expert techniques, from minimizing tissue trauma to innovative methods like suspending ovaries during healing. Learn how proper surgical strategies, including laser excision, complete hemostasis, and ADEPT solution, help prevent organs from becoming "plastered" together.
🎧 Listen now & send your questions: link in episode description, email contact@endobattery.com, or visit endobattery.com.
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Think endometriosis is just a bad period? Or that pregnancy cures it? Think again! In this myth-busting episode, we’re cutting through the noise and delivering facts about endometriosis and adenomyosis. Learn what these conditions really are, why they’re often misunderstood, and how misinformation impacts treatment and diagnosis. Whether you’re new to these topics or looking for reliable resources, this episode will empower you with knowledge and help recharge your advocacy battery.
🎧 Subscribe now for more expert insights and myth-busting moments!
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Dr. Nick Fogelson, an expert excision specialist with formal neuropelviology training, explains how endometriosis affects nerve pathways and creates specific pain patterns. He shares valuable insights on identifying and treating nerve compression and endometriosis lesions that directly invade nerves.
• All endometriosis pain involves nerve irritation in some way
• Endometriosis can irritate nerves without directly invading them
• Lesions near the hypogastric nerve plexus can cause back pain, bladder and bowel dysfunction
• "Skip lesions" are isolated endometriosis deposits directly on nerves with minimal disease elsewhere
• Finding nerve-involved endometriosis requires specialized neuropelviology training
• Patient history and symptoms often provide clues to nerve involvement
• Some cases involve vascular compression alongside endometriosis
Have questions about endometriosis? Send them in using the link in the episode description, email contact@endobattery.com, or visit the EndobBattery.com contact page.
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Expert excision specialist Dr. Lora Liu reveals what patients should expect during post-surgery follow-ups, emphasizing the critical importance of receiving pathology reports. We discuss the non-negotiable documentation patients deserve after endometriosis excision surgery and how these records confirm exactly what was removed.
• Pathology reports are the most important post-surgery document and should be provided without patients having to "pull teeth" to get them
• Pathology reports definitively confirm endometriosis diagnosis and provide proof that excision (not ablation) was performed
• Operative reports are helpful but less crucial than pathology reports as they're surgeon-dictated narratives
• Every excised piece of tissue should be sent to pathology for proper documentation
• Understanding the difference between excision and ablation techniques through your surgical documentation
• Medical records belong to patients and should be readily available upon request
Do you have more questions? Keep them coming! Send them in using the link in the top of the description of this podcast episode, by emailing contact@endobattery.com, or visiting the endobattery.com contact page.
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Endometriosis is more than just a medical condition—it’s a relentless battle against misdiagnosis, systemic healthcare failures, and societal stigma. In this powerful episode, we shares our deeply personal journeys with chronic pain, shedding light on the emotional toll of navigating an often dismissive medical system. We continue our conversation with filmmaker and advocate Fisayo Thompson, who brings her unique perspective as both a patient and storyteller, using her platform to push for change.
Together, we unpack the hidden challenges of endometriosis—from the psychological impact of chronic illness to the urgent need for better education and medical support. With raw honesty and resilience, we discuss how community, advocacy, and breaking cultural taboos can pave the way for better treatment and awareness.
🔹 The emotional & medical struggles of endometriosis
🔹 Fisayo’s personal experiences and her documentary’s mission
🔹 How healthcare barriers delay diagnosis & treatment
🔹 The intersection of mental health and chronic illness
🔹 Why advocacy and education are critical for change
This episode isn’t just a conversation—it’s a call to action. Whether you’re battling endometriosis, supporting a loved one, or seeking to understand this condition better, tune in for a deeply compelling discussion that will leave you informed, empowered, and ready to help shift the narrative.
EndometriosisAwareness #ChronicIllness #HealthcareAdvocacy #MentalHealth #InvisibleIllness
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Understanding the complexities of excision surgery and its role in managing endometriosis is crucial for patients. Our expert guest, Dr. Lora Liu, shares her wealth of experience in this field, offering insights about what to expect from the surgery and recovery process.
• Discussion on the effectiveness of excision surgery for pain relief
• Importance of preparation and prehab, including physical therapy
• Distinction between recurrence of endometriosis and symptoms
Stay informed and empowered! Check out the link in the description to ask your questions or to learn more about how we can support you.
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In this episode of Endo Battery, we sit down with filmmaker Fisayo Thompson as she shares her powerful journey with endometriosis and the cultural stigmas surrounding chronic illness. Through her documentary Walking Through Walls, Fisayo exposes the systemic failures in healthcare and the critical role of advocacy in raising awareness and building community.
What we cover:
• Fisayo’s path from early symptoms to diagnosis
• Cultural taboos and the silence around menstrual health
• The impact of misdiagnosis and medical gaslighting
• How Walking Through Walls is shedding light on overlooked stories
• The urgent need for better-informed healthcare providers
• Why validation matters—especially when “you don’t look sick”
• The power of storytelling in fostering change and collective healing
Tune in for an insightful conversation that challenges the status quo and empowers those navigating endometriosis and chronic illness. Don’t forget to subscribe, share, and leave a review!
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As 2024 comes to a close, we’re turning up the inspiration and giving you a glimpse of what’s ahead in 2025! In this special episode, we reflect on the powerful conversations and stories we’ve shared—from navigating surgical menopause to uncovering hidden pain triggers—and the incredible insights from experts and warriors in our community.
But that’s not all. Next year, we’re diving even deeper. Think holistic health, cutting-edge endo care, and the untold stories that will make you rethink what it means to live with chronic illness. Curious about the surprising connection between social support and pain relief? You’ll want to stick around for that too.
This is more than a podcast—it’s a movement to shift the narrative around endometriosis, chronic illness, and women’s health. Don’t miss the chance to recharge your endo battery and be part of something bigger.
Hit play, get inspired, and email us at contact@endobattery.com to share what YOU want to hear in 2025. Let’s make this the year of empowerment and connection!
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As we close out 2024 and our Endo Year Reflection series, this episode dives into one of the most important topics in endometriosis care—surgical mapping. Join me as I reflect on the insights from my conversation with Dr. Ramiro Cabrera in Episode 88, where we discuss why surgical mapping should be the gold standard in endometriosis treatment.
In this episode, we explore:
- The value of surgical mapping in endometriosis care and why it should be prioritized
- How imaging, when done correctly, can play a vital role in surgical planning and intervention
- Dr. Cabrera’s perspective on how outdated U.S. protocols are when it comes to staging and imaging for endometriosis
- My personal experience with surgeries and the impact of proper pre-surgical planning
- The importance of ensuring your doctor has a clear, well-thought-out surgical plan before going under the knife
- How understanding the need for realistic expectations and longer recovery times can improve your post-surgery journey
As we wrap up this year, I’m incredibly grateful for this community and the lessons we’ve shared together. Here’s to setting higher standards for endometriosis care in 2025!
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In this episode of Endo Battery, we reflect on some of the highlights in our Endo Year Reflections series and explore key insights from this years conversations. From tackling the complexities of diet and endometriosis to discovering natural remedies for pain management, this episode covers it all.
In this episode, we discuss:
- Key takeaways from episodes 86 & 87 with Sarah Rae on the relationship between food and endometriosis
- The dangers of diet culture in endometriosis care and the importance of individualized nutrition
- Why working with a registered dietitian can make all the difference for symptom management
- Aloe vera’s potential for managing endo pain and related conditions like interstitial cystitis, featuring Heather Florio from Desert Harvest in episode 91
- How aloe and CBD can complement physical therapy for holistic pain relief
- A reflection on the transformative conversations this year and what’s to come in the new season
Don’t forget to subscribe and follow Endo Battery on Instagram for more episodes and updates!
Try out the Desert Harvest products and get a discount. Just use code Endobattery10 at check out.
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The episode reflects on critical insights shared with Dr. Cindy Mosbrucker in episodes 84 and 85 about endometriosis care, highlighting the need for specialized knowledge and patient advocacy. We gained a deeper understanding of pain management, the implications of treatment decisions, and the importance of personalized healthcare.
• Dr. Mosbrucker’s journey and insights on endometriosis care
• The gap in medical education regarding endometriosis
• Using a baseball analogy to explain surgical skills and expertise
• Understanding the different types of pain beyond endometriosis
• Addressing the implications of current standard care practices
• Discussing the consequences of ovary removal
• The necessity of personalized hormonal treatment
• Dr. Mosbrucker's passion for patient care and advocacy
• A call to action for awareness and support within the community
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In this episode we reflect back on two inspiring episodes that remind us that there is a need for accessible and equitable healthcare. We're reflecting back on episodes 82, 89, and 90 from guests Chanda Hinton and Bryce Rafferty. Their journeys reveal the gaps in traditional medical models and advocate for an integrated approach to health that empowers individuals with disabilities.
• Chanda Hinton shares her experience navigating disability care
• Limitations of traditional medical models highlighted
• Importance of integrative therapies for enhanced quality of life
• Disparities in healthcare access for those with disabilities discussed
• Insights on the Americans with Disabilities Act (ADA)
• Practical resources for understanding disability rights provided
• Call for collective advocacy and communal support in healthcare reform
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This episode celebrates the themes of resilience and community within the journey of living with endometriosis, as we reflect on powerful conversations from the past year. With insights from Dr. Ginger Garner and Dr. Bri Wyatt, we explore the importance of addressing the body as a whole, the unique connection between voice and pelvic health, and effective strategies for post-operative recovery.
• Celebrating the power of reflection and community
• Insights from Dr. Ginger Garner on voice as a diagnostic tool
• Dr. Bri Wyatt's holistic approach to functional medicine
• Addressing the interconnectedness of bodily systems
• Empowering listeners with practical strategies for recovery
• Fostering open dialogue to strengthen our understanding of endometriosis
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As the year winds down and the holiday season approaches, take a moment to recharge with our Endo Year Reflection series. This special segment looks back on the most impactful moments and insights of the year, offering a deep dive into the resilience, grit, and unwavering determination of endometriosis advocates. In Episode 78, I sit down with Casey Berna, a patient, advocate, and licensed social worker, who shares powerful perspectives on the mental health challenges faced by those living with endo and the overlooked role of support systems in this journey.
In Episodes 79 and 80, I chat with Jen Moore, a dedicated advocate from the UK, about the barriers to care, the shocking lack of medical curiosity around endometriosis, and her inspiring project, They Said What. These conversations highlight the urgent need for better education, diagnosis, and treatment for endometriosis and other chronic illnesses.
Join us for these heartfelt discussions and gain insight from two of the most passionate voices in the endometriosis community. Subscribe now and don’t miss the next installment of our Endo Year Reflection series, where we continue to push for change and better care for those living with chronic illness.
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In this episode of Endo Battery, we continue the Endo Reflection Series by revisiting two of the most impactful episodes of the year. We highlight key insights from Dr. Naomi Whittaker (Episode 77) and Dr. Sadikah Behbehani with Dr. Lora Liu (Episode 91), who share their expertise on infertility, endometriosis, and PCOS.
Listen as we explore:
- How excising endometriosis can improve fertility and reduce pain.
- The complex connections between PCOS, endometriosis, and infertility.
- Why addressing root causes is critical before pursuing treatments like IVF.
This episode is packed with hope and actionable knowledge for anyone navigating infertility or managing chronic conditions. Let’s reflect, recharge, and find renewed empowerment for the journey ahead.
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Endo Year Reflection: Highlights from Episodes 75 & 76 with Dr. Abhishek Mangesikar
In this Endo Year Reflection, we revisit standout moments from episodes 75 and 76, featuring the brilliant Dr. Abhishek Mangesikar. From decoding why some with the endo gene are more symptomatic to clarifying recurrence vs. persistence, Dr. Mangesikar’s insights are a must-hear.
Discover how access to care shapes disease outcomes, why pain isn’t always caused by endo alone, and the risks vs. benefits of symptom-suppression medications. Whether you're exploring surgical or medical management, this episode provides valuable tools for navigating your endo journey.
Listen now to recharge and step into the new year with knowledge and empowerment. Don't forget to subscribe for more Endo Year Reflections!
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As we close out the year, we’re taking a moment to reflect on two transformative episodes that shaped the journey of Endo Battery. This Endo Year Reflection episode honors the legacy of the late Dr. David Redwine, a pioneer who revolutionized endometriosis care, and explores the growth and evolution of Dr. Jenn Jaggi, a surgeon committed to redefining standards of treatment.
In Episode 51, we revisit an unforgettable conversation with Dr. Redwine—his brilliance, humor, and groundbreaking research on the origins of endometriosis. His relentless drive to question outdated surgical standards gave countless patients the chance to reclaim their lives. As we remember his profound contributions, we also carry forward the hope he ignited in the endometriosis community.
In Episode 72, we reflect on the inspiring journey of Dr. Jenn Jaggi. Once limited by traditional training, Dr. Jaggi embraced advanced education to transform her approach to endometriosis and adenomyosis care. From hands-on imaging techniques to challenging outdated diagnostic norms, her story is a testament to the power of unlearning, relearning, and committing to better care for patients.
🎧 Episode Highlights:
- Dr. David Redwine’s pioneering research and lasting legacy.
- How Dr. Jenn Jaggi’s advanced training is reshaping endometriosis care.
- Insights into diagnostic innovations and breaking misconceptions about adenomyosis.
This reflection isn’t just about revisiting episodes; it’s about celebrating progress and carrying lessons forward into the new year. Tune in to be inspired by these stories of advocacy, innovation, and hope for better outcomes in endometriosis care.
🔗 Catch Episode 51 with Dr. Redwine and Episode 72 with Dr. Jaggi for the full conversations!
*Subscribe and stay tuned for the next episode in our Endo Year Reflection series—together, we’re recharging for what’s ahead.
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Welcome back to Endo Battery! In this Endo Year Reflection episode, we’re rewinding to highlight the most powerful moments from one of our most-requested series: The Fast Charged Series. What started as a “wild hair” idea to break down vetted endometriosis research quickly became a listener favorite, thanks to the insights of board-certified advocates Heather Guidone and Kate Boyce.
This episode dives into the studies that sparked “aha” moments, like the surprising links between periodontal disease and endometriosis, postmenopausal challenges, and how endo doesn’t stop at your pelvis—think gastrointestinal symptoms and beyond.
We also revisit an impactful conversation with researcher Allyson Bontempo, whose work bridges personal experience with scientific rigor. Allyson’s passion for inclusive research reminds us that everyone’s voice matters, and her insights—like the urgent need for providers to reclaim their curiosity—continue to resonate deeply.
Whether you’re revisiting favorite episodes or tuning in for the first time, this reflection is packed with validation, empowerment, and insights to recharge your battery. Tune in, be inspired, and join us as we continue advocating for change in the endometriosis community.
🔗 Episode Highlights:
- Powerful studies explored in the Fast Charged Series
- Allyson Bontempo’s groundbreaking research and the need for inclusivity
- The surprising ways endometriosis impacts your entire body
🎧 Listen now and catch the full conversation with Allyson in Episode 92.
Website endobattery.com
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As the year wraps up, we’re taking a moment to reflect on the powerful conversations that shaped The Endo Battery in 2024. In this special Endo Year Reflections series, I’m revisiting moments that educated, inspired, and empowered us in our fight against endometriosis and chronic illness.
In this episode, I reflect on key insights from Dana Bowling and Shannon Cohn, two incredible advocates driving change for endometriosis care. Dana’s powerful metaphor of climbing the “endo mountain” captures the strength required to push forward, even when the journey feels impossible. She also dives into the critical importance of accurate legislative language and shares actionable ways to get involved in advocacy—no legal expertise required.
Shannon reminds us that while the U.S. lags in addressing endometriosis, advocates like her are breaking through barriers and cutting through red tape to make real progress. Her relentless drive proves that advocacy is the force behind every step toward better care, awareness, and funding for endometriosis.
Whether you're living with endometriosis or supporting someone who is, this episode offers hope, empowerment, and practical ways to create change. Tune in to recharge, reflect, and refocus as we head into the new year.
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Episode Reflection: Key Insights with Dr. Nick Fogelson
What makes an episode truly unforgettable? In this special reflection, I revisit some of the most impactful moments from my conversation with Dr. Nick Fogelson, a trailblazer in neuropelviology and pelvic pain treatment. Through these curated snippets, we explore the groundbreaking insights he shared, from the complexities of sciatic endometriosis to how vascular entrapments may be a missing link in understanding chronic pelvic nerve pain.
As I reflect on these highlights, I’ll share my personal takeaways and dive into why these revelations matter for anyone navigating endometriosis or chronic illness. This episode isn’t just about looking back—it’s about uncovering the tools and perspectives that can empower you to approach your health with confidence and clarity.
If you're seeking practical insights, a fresh perspective, or inspiration for your health journey, this reflective episode is the perfect companion. Grab your favorite drink, settle in, and let’s revisit the powerful wisdom Dr. Fogelson brought to the table.
Your path to understanding and advocacy starts here—don’t miss it!
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Podcast Description:
What happens when cultural expectations collide with relentless chronic pain? When a 24-year journey to diagnosis reveals the deep cracks in our healthcare system? In this powerful reflection, we revisit the stories of Nathalie and Arligh—two voices that echo the struggles, strength, and resilience of the endometriosis community.
Nathalie shares the emotional toll of balancing familial pride with a body that refuses to cooperate, highlighting the unique challenges faced by the Latina community. Arligh’s journey reveals the heartbreaking reality of a 24-year diagnostic delay, underscoring the critical need for specialized care and systemic change.
These episodes aren't just stories; they’re a mirror for anyone navigating the complexities of chronic illness. Dive into the raw honesty, hard truths, and enduring hope that remind us we’re never alone in this fight.
Recharge with us as we reflect on these unforgettable journeys—because every story moves us closer to understanding, advocacy, and change.
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What happens after a hysterectomy, and how do women navigate the complex world of hormone replacement therapy (HRT) post-surgery? Join me as I reflect on on episode 67, when I sat down with the remarkable Kate Boyce from Endo Girls Blog, who courageously shares her personal journey through the misconceptions and challenges surrounding estrogen and testosterone replacement. Her story is not just an eye-opener but a rallying cry for self-advocacy in a healthcare system that often overlooks women's hormonal health. From maintaining bone density to nurturing brain health, Kate reveals the indispensable role these hormones play in overall well-being, providing a lifeline for those adrift in their hormonal health journey.
As we continue the discussion, we stress the critical importance of community and advocacy. This conversation isn't just for those directly affected; it's a resource for friends, family, and healthcare professionals alike. By extending this dialogue, we cultivate a supportive network grounded in education, empathy, and empowerment. We urge you to share your thoughts, reviews, and connect with us on social media. Let's champion for ourselves and our loved ones, reminding everyone that they are not alone in this journey. Thank you for joining us and for your commitment to advocacy and change.
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Explore the intricate world of endometriosis as we embark on a thought-provoking journey through our Endometriosis Reflection Series. Discover the cutting-edge techniques shared by the esteemed Dr. Mona Orady, who unlocks the secrets of preventing adhesions during surgery. Her use of lasers, micro laparoscopy, and innovative solutions like Adapt opens new horizons for managing pain and preserving fertility. Dr. Orady's approach of temporarily suspending the ovaries post-surgery showcases her commitment to advancing care and nurturing hope for those affected. This episode is a crucial checkpoint, urging us to pause and reflect on the significance of fertility preservation and pain management.
Celebrate the unwavering advocacy of Dr. Orady as she champions endometriosis care despite financial barriers. Her tireless work to secure insurance coverage underscores a powerful narrative of passion and dedication. Join me in revisiting the transformative conversations and lessons gathered throughout the year, as we draw strength from the profound insights and stories shared. This episode is more than a reflection; it's a rallying cry for advocacy, education, and community support, reminding us that together we're stronger in our battle against endometriosis.
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As the year winds down, take a moment with Endo Battery to reflect on the incredible journey we've shared. Imagine navigating the challenges of endometriosis and chronic illness while finding strength in community and connection. Our "Endo Year Reflections Series" kicks off with a look back at the moments that have defined us. Throughout the year, conversations with experts like Dr. Mona Orad have brought invaluable insights into the world of endometriosis, revealing not just the medical aspects but also the personal stories of those who dedicate their lives to this cause. Each short episode in this series is a chance to pause and celebrate the growth we've all experienced.
Grab a warm drink and settle in as we recount the highlights that have shaped Endo Battery and its vibrant community. This is a space crafted for support and empowerment, where every listener is a vital part of the heartbeat that keeps us going. As we revisit the defining moments of the past year, you'll hear personal stories of resilience and hope alongside expert advice and revelations. This isn't just about reflecting; it's about charging our lives with the understanding and energy to move forward, stronger together. Thank you for being an essential part of Endo Battery, and here's to continuing this journey with renewed spirit and shared purpose.
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Is pregnancy really a cure for endometriosis, or just another myth we've been led to believe? We're pulling back the curtain on this age-old belief with the latest research that paints a far more complex picture. Join us as we unpack the significant findings from the study "Endometriosis and Risk Factors in Pregnancy, Labor, and Delivery." Here, we reveal the heightened risks of gestational hypertension, preeclampsia, and other complications that challenge the oversimplified advice often given to those with endometriosis. Alongside passionate discussions and insights, we emphasize the crucial need for comprehensive and informed care for expecting mothers navigating this condition.
Yet, the conversation doesn’t stop there. Sexual health communication for those with endometriosis often feels like the elephant in the exam room—unacknowledged and unaddressed. Inspired by the compelling study "No Doctor Ever Asked Me, So I Thought It Wasn't a Valid Concern," we expose the barriers that stifle these vital discussions. We delve into patient experiences to illuminate systemic issues, training gaps, and the often awkward dynamics between doctors and patients. Our mission? To empower individuals with the confidence and knowledge to advocate for their sexual health and get the well-rounded care they deserve.
Links
Endometriosis and risk factors in pregnancy, labor and delivery: a case-control study. Minerva Obstet Gynecol.
"No doctor ever asked me…so I thought it wasn't a valid concern": endometriosis patients' perspectives of barriers and facilitators to sexual health communication in general practice. J Sex Med. Published online November 14, 2024.
How does surgery influence female sexuality in patients with endometriosis compared to those with other benign gynecological conditions?. BMC Med. 2024;22(1):508.
Patient Perception and Experience of Laparoscopic Excision vs. Ablation of endometriosis: a crowd-sourced comparative evaluation of symptom and Quality of Life outcomes. J Minim Invasive Gynecol. Published online October 25, 2024.
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Join us for an enlightening conversation with Heather Florio, CEO of Desert Harvest, as she shares her extraordinary journey in advocating for pelvic and sexual health. Heather discusses the foundation of Desert Harvest, a company born from an accidental discovery of aloe vera’s healing properties for interstitial cystitis, and how her personal battles with chronic health conditions drive her mission. Discover the innovative strides her company has made under her leadership, showcasing products designed to improve the lives of women dealing with issues like endometriosis and chronic uterine fibroids.
Explore the promising synergy between CBD and aloe vera in addressing neuropathic pain, backed by research from McGill University. We dive into the significant role of pelvic floor therapy in managing pain, especially for those with endometriosis, and discuss how integrating alternative therapies with traditional medical treatments can yield the best outcomes. Heather offers valuable insights into how these approaches can work together to provide relief, highlighting the need for a balanced partnership between holistic and medical care.
Finally, we tackle the broader challenges in women's health research, including the complexities of conditions such as vulvodynia. Heather discusses innovative initiatives like the Her Health AI project, which seeks to enhance our understanding of these under-researched conditions by analyzing global health data. Through her collaboration with top-tier researchers and institutions, Heather is dedicated to advancing women's health and ensuring the integrity of health products, particularly those made from aloe vera. Join us for a compelling discussion that blends personal stories, expert insights, and a steadfast commitment to improving women's health worldwide.
Website endobattery.com
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Experience the groundbreaking perspectives of disability advocacy as we sit down with Bryce Rafferty, a passionate staff attorney with the Colorado Cross Disability Coalition. Discover how his personal journey through rehabilitation in Switzerland sheds light on the stark differences in care between Swiss and American systems. As Bryce shares his firsthand experiences, you'll gain a deeper understanding of how societal values shape healthcare priorities, particularly for those with spinal cord injuries and invisible disabilities. This episode promises to empower listeners with practical advice for maintaining strong relationships with medical professionals and effectively documenting medical conditions, especially for those with invisible disabilities.
Uncover the crucial importance of accessing and safeguarding your personal medical records, a topic often overlooked but vital for anyone seeking accommodations or legal support. We highlight the role of the Equal Employment Opportunity Commission (EEOC) in ensuring diversity, equity, and inclusion in the workplace, drawing inspiration from successful legal cases. Listeners will learn about obtaining medical records without fees and the necessity of secure platforms for managing this sensitive information. Through our conversation, we equip you with the knowledge to navigate these complexities with confidence.
Finally, explore the power of collaboration among disability-focused nonprofits as we spotlight efforts in Colorado and beyond. By examining the roles of influential organizations like the Christopher and Dana Reeve Foundation, we emphasize the importance of building strong networks to tackle diverse issues such as accessibility and invisible disabilities. This episode serves as a call to action, urging you to adopt a proactive approach to advocacy and systemic change. Through active participation, we can influence disability rights and ensure that our societal values are reflected in the law, creating a more inclusive world for everyone.
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How does disability law truly protect those with invisible conditions like endometriosis? In this episode, we delve into the world of disability rights with Bryce Rafferty, a passionate attorney from the Colorado Cross Disability Coalition (CCDC). With his unique perspective as both an advocate and legal expert, Bryce reveals the challenges and triumphs of navigating the legal system for people with disabilities. From his journey as a volunteer to a lawyer, he shares how the CCDC fights for essential protections, Medicaid eligibility, and resources for those who need them most.
We explore the often-overlooked complexities of defining disabilities under the ADA and the systemic obstacles faced by individuals with chronic, invisible conditions. Learn how attending medical board meetings can drive healthcare reform and the growing impact of algorithms on Medicaid decisions. Bryce provides a powerful call to action on the importance of legal professionals, community support, and the collective fight for disability rights. Tune in for an eye-opening conversation that blends compassion with critical insights—and don’t miss our next episode as we continue this journey toward inclusivity and justice.
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Empowerment through knowledge is our mantra, and we invite you to be an active part of the endometriosis advocacy movement. Engage with thought-provoking articles, share your interests and questions, and understand the critical role of self-advocacy and community support. We aim to arm you with the information needed to advocate for yourself and loved ones effectively. Stay engaged, stay informed, and help us shape a hopeful future for endometriosis care by continuing the conversation beyond this episode.
The Lancet. Endometriosis: addressing the roots of slow progress. Lancet. 2024 Oct 5;404(10460):1279.
Ann Thomas, MD, MPH for Medscape. "Does the Road to Treating Endometriosis Start in the Gut?" Medscape, 2024,
New Therapeutics in Endometriosis: A Review of Hormonal, Non-Hormonal, and Non-Coding RNA Treatments
What's the delay? A qualitative study of women's experiences of reaching a diagnosis of endometriosis
Addressing Challenges in Endometriosis Pain Communication Between Patients and Doctors: The Role of Language
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Join us for a powerful episode with Dr. Allison Bontempo, postdoctoral research fellow at Rutgers Robert Wood Johnson Medical School, as we uncover the complexities of endometriosis and the lived experiences of those affected. With a personal connection to the disease, Dr. Bontempo transformed a class project into a groundbreaking global study involving thousands, shedding light on the significant diagnostic delays that patients endure.
In this episode, we explore the critical role of patient-provider communication in shaping both mental and physical health outcomes. Dr. Bontempo shares insights into how the dismissal of patient experiences impacts care and how her research is bridging the gap between clinical practices and patient needs. We dive deep into ethical considerations, balancing personal experiences with professional research, and the power of inclusivity in medical studies.
Discover how social media is amplifying diverse patient voices, and learn about innovative tools, like new measures to assess perceived invalidation in healthcare, that aim to drive meaningful change. Dr. Bontempo also discusses the importance of community and collaboration in advancing the care of chronic illnesses, emphasizing the need for continued education among clinicians.
This episode is a must-listen for anyone invested in improving healthcare outcomes for endometriosis and other chronic conditions. It’s more than just a conversation—it’s a call to action to contribute to research that can change lives and reshape the future of compassionate healthcare.
https://www.allysoncbontempo.com/
@acbontempo
Website endobattery.com
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What happens when two of the most prevalent gynecological conditions intersect? Join us as Dr. Sadikah Behbehani and Dr. Lora Liu shed light on the complexities and common misconceptions surrounding endometriosis and PCOS. These esteemed experts guide us through the landscape of these conditions, emphasizing that although both affect a significant number of women, their co-occurrence is more about chance than any causal relationship. Through their insights, we aim to clarify the confusions that often arise between these conditions and highlight the importance of precise diagnosis for effective treatment.
Discover the intricate process of diagnosing PCOS using the Rotterdam criteria, an approach that demands patience, particularly in young women. Dr. Behbehani and Dr. Liu walk us through the genetic and lifestyle factors that may predispose certain ethnicities to PCOS and discuss strategic interventions like weight management to alleviate symptoms. The conversation takes an enlightening turn as we unravel the frequent misdiagnoses between PCOS and endometriosis—a misunderstanding that can lead to inappropriate treatments and prolonged patient distress.
Our discussion doesn't stop at diagnosis; we venture into the realm of treatment options, from hormonal management to the evolution of surgical procedures like ovarian drilling. Dr. Liu shares her experiences with the emotional and transformative effects of excision surgery, painting a vivid picture of the impact proper treatment can have on patients' lives. We also address systemic issues in women's healthcare, such as the inadequacies in endometriosis treatment and the challenges faced by patients navigating infertility and IVF. Tune in for a thought-provoking conversation that empowers both patients and healthcare providers to pursue informed and compassionate care.
Dr. Sadikah Behbehani-The Center for Endometriosis & Fertility
Dr. Lora Liu
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Living with chronic illnesses like endometriosis and adenomyosis can feel like a constant battle against societal expectations, and Chelsea and Alanna, know this struggle all too well. We've discovered that managing our lives with these conditions often resembles trying to fit the contents of a 10-inch dinner plate onto a 6-inch one—an impossible task that only invites stress and anxiety. Join us as we share our personal journeys of setting boundaries and being realistic about what we can handle. From prioritizing staples like faith, family, and community to learning how to communicate our limitations effectively, we explore the delicate balance of maintaining our health and well-being amidst the pressure to always be productive.
Navigating the healthcare system can be daunting, especially when living with complex conditions like endometriosis. Chelsea and Alanna open up about their experiences with medical professionals who dismissed our concerns, and how finding the right doctor who truly listens can be life-changing. We discuss the importance of advocating for oneself and the systemic issues plaguing women's health care. With the power of community support, we aim to empower others, encouraging self-love and growth through shared stories of grief, anger, and perseverance. Discover how embracing these challenges can be a catalyst for personal growth and change, and how serving others can offer profound healing on our journey together.
Website endobattery.com
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Ever wondered how a routine ER visit for kidney stones could change the course of someone's life? Join us as Chelsea sits down with Alanna to uncover her harrowing yet empowering journey with endometriosis and adenomyosis. From the early, often-misunderstood symptoms like frequent UTIs and painful periods to a particularly distressing experience just before her first wedding anniversary, Alanna's story sheds light on the critical need for accurate diagnosis and compassionate medical care.
Discover the emotional and physical rollercoaster of treatments Alanna has endured, from ineffective NSAIDs to misleading drugs. We'll uncover the debilitating impact of chronic pain and severe bleeding, ultimately discussing the weighty decisions surrounding hysterectomy and ovary removal. Alanna's personal narrative serves as a guide for making informed medical choices, highlighting the importance of patient education and the long-term effects of surgical interventions.
Navigate the complexities of managing hormone health and overlapping conditions such as hypermobile Ehlers-Danlos Syndrome (EDS) with us. Through the support of Endo Village, a nonprofit advocacy organization, we emphasize the importance of self-advocacy and community support. Using the metaphor of a six-inch dinner plate versus a ten-inch dinner plate, we illustrate the importance of managing one's limited capacity thoughtfully. Join us for part one of this insightful series as we share personal journeys and encourage ongoing advocacy for oneself and loved ones.
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Ever wondered why so many surgeons lack proper training in bowel endometriosis? In this episode of Endo Battery Fast Charged, we uncover startling research that points to a significant gap in medical education, groundbreaking findings that reveal how endometriosis can alter brain activity, the outcome after deep endometriosis surgery, US healthcare system’s support for endometriosis patients, and more.
Click the links below to take a deeper dive into the research!
-Assessment of Education and Management of Endometriosis among Colorectal Surgeons and Residents
-Psychological characteristics and structural brain changes in women with endometriosis and endometriosis-independent chronic pelvic pain
-Long-Term Follow-Up Regarding Pain Relief, Fertility, and Re-Operation after Surgery for Deep Endometriosis
-Women with endometriosis in the United States: National Survey of Family Growth, 2011–2019
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Is traditional endometriosis diagnosis failing patients?
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Dr. Ramiro Cabrera, a specialist from Mexico, shares how his sister’s battle with stage 4 endometriosis inspired his mission to revolutionize care using mapping and excision surgery.
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Why pre-surgical mapping matters:
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Learn how the outdated US staging system falls short and discover the NCM protocol, a groundbreaking technique offering precise pre-surgical visualization.
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Dr. Cabrera highlights Dr. Luciana Chamie’s work and the need for OBGYNs to better understand endometriosis.
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Global challenges in care:
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Explore how financial incentives drive ablation procedures, often harming patient outcomes.
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Countries like El Salvador lead with new standards in care, showcasing the importance of proper diagnostics and timely interventions.
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Key Topics:
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Excision surgery, mapping, global care disparities, and the push for improved treatment options.
Website endobattery.com
Send us a text with a question or thought on this episode
Imagine being nine years old and feeling a constant, unexplainable pain that no one seems to take seriously. That's exactly what Arleigh Cole experienced, and in this powerful episode of Endo Battery, she shares her incredible journey from those early days of fatigue and bowel issues to becoming a fierce advocate for endometriosis and adenomyosis awareness. Join me, Alanna, as we uncover Arleigh's story of enduring two surgeries, a hysterectomy, and the harsh realities of inadequate medical care. This episode shines a light on the importance of proper diagnosis, specialized treatment, and the unwavering support of a community that truly understands.
Arleigh and I dive deep into the emotional and physical challenges of living with an invisible disease. We discuss the cycles of false hope, the frustration of societal disbelief, and the profound sense of isolation that often accompanies such conditions. By sharing her personal battles and triumphs, Arleigh emphasizes the healing power of validation and community support. We also touch on the difficult transition through menopause and the impact of being constantly unseen and unheard, while highlighting the strength and resilience that comes from shared experiences.
We also explore the systemic issues plaguing women's health, from the impact of endometriosis on pregnancy and motherhood to the disparities in healthcare access and treatment. This episode tackles the misconceptions, misdiagnoses, and emotional toll of chronic fatigue and pain, and underscores the urgency of educating young women about their bodies. Through personal anecdotes and broader societal insights, Arleigh and I stress the importance of advocacy, education, and continued research to support women facing these challenges. Tune in to be inspired by Arleigh's transformation into a powerful advocate and to learn how you can contribute to raising awareness and driving change.
Thank you to our sponsor for this episode, Well-Being Pelvic Physical Therapy
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- Could endometriosis be the hidden cause of your unexplained pain?
- We dive deep into the misunderstood conditions linked to endo, including my personal struggle with anterior cutaneous nerve entrapment syndrome (ACNES).
- Discover the intriguing connection between endometriosis and rheumatoid arthritis (RA) and what recent research reveals about their relationship.
- Highlighting the unique medical challenges transgender and non-binary individuals face with endometriosis—empathy and inclusivity are vital!
- Learn about the complexities ovarian endometriomas add to endometriosis staging and the tough surgical choices they bring.
- Hear about Allison Bentempo’s research on symptom invalidation and the crucial disconnect between patients and clinicians.
- An Australian study uncovers how adenomyosis, bowel endometriosis, and adhesions contribute to endo recurrence.
- Empower yourself with knowledge and join the conversation that could change your endometriosis journey
Anterior Cutaneous Nerve Entrapment Syndrome: An Underestimated Diagnosis
Association between endometriosis and arthritis: results from NHANES 1999-2006, genetic correlation analysis, and Mendelian randomization study.
Transgender and non-binary people's experience of endometriosis. J Health Psychol. 2024 Aug 10:13591053241266249.
Association between Ovarian Endometriomas and Stage of Endometriosis. J Clin Med. 2024 Aug 2;13(15):4530.
Conceptualizing Symptom Invalidation as Experienced by Patients With Endometriosis. Qual Health Res. 2024 Aug 8:10497323241253418.
@allysonbontempophd on IG
Predicting disease recurrence in patients with endometriosis: an observational study. BMC Med. 2024 Aug 7;22(1):320.
Website endobattery.com
Send us a Text Message.
Can intuitive eating revolutionize your relationship with food when living with endometriosis? Join us as we explore this transformative topic with registered dietitian Sarah Rae, who brings her expertise to the table. Together, we discuss how listening to your body's hunger and fullness cues can lead to healthier eating habits and improved well-being. Sarah shares her insights on overcoming societal pressures, rejecting harmful diet culture, and understanding the importance of body acceptance. Learn how intuitive eating can be a game-changer, especially for those managing the unique dietary needs that come with endometriosis.
We dive into the specifics of balancing cravings and making healthy choices post-hysterectomy, navigating the tricky waters of portion sizes, and maintaining a balanced plate. Sarah sheds light on the critical role of hormone balance in nutrition and offers practical advice such as consuming cruciferous vegetables and managing stress for better hormone health. Discover why intuitive eating might be more beneficial than following strict diets and how to establish a neutral relationship with food that prioritizes nourishment over restriction.
Finally, we explore the importance of a multidisciplinary approach to managing endometriosis through nutrition and the tools available to support this journey. From cycle tracking and food journaling to understanding the limitations and benefits of elimination diets, Sarah provides actionable steps to help you tune into your body. We emphasize the importance of working with dietitians and mental health providers, offering evidence-based care tips and resources to enhance your quality of life. Don’t miss this episode packed with valuable insights for anyone looking to improve their relationship with food while managing endometriosis.
Links
sarahraerdn.com
intuitiveeating.org
icarebetter.com
Find Food Freedom Podcast
https://a.co/d/9TlWhSe
https://a.co/d/71lMskt
Articles
Barnard ND, Holtz DN, Schmidt N, Kolipaka S, Hata E, Sutton M, Znayenko-Miller T, Hazen ND, Cobb C, Kahleova H. Nutrition in the prevention and treatment of endometriosis: A review. Front Nutr. 2023 Feb 17;10:1089891. doi: 10.3389/fnut.2023.1089891. PMID: 36875844; PMCID: PMC9983692.
Influence of diet on the risk of developing endometriosis. Joanna Jurkiewicz-Przondziono, Magdalena Lemm, Anna Kwiatkowska-Pamuła, Ewa Ziółko, Mariusz K. Wójtowicz. DOI: 10.5603/GP.a2017.0017. Ginekol Pol 2017;88(2):96-102.
Marcinkowska, A.; Górnicka, M. The Role of Dietary Fats in the Development and Treatment of Endometriosis. Life 2023, 13, 654. https://doi.org/10.3390/ life13030654
Barnard, N.D., Holtz, D.N., Schmidt, N., Kolipaka, S., Hata, E., Sutton, M., Znayenko-Miller, T., Hazen, N.D., Cobb, C., & Kahleova, H. (2023). Diet associations in endometriosis: a critical narrative assessment with special reference to gluten. Frontiers in Nutrition, 10. https://doi.org/10.3389/fnut.2023.1166929
Social Media (Intuitive Eating)
@endonutrition.pnw
@find.food.freedom
@diet.culture.rebel
@ameeistalking
Website endobattery.com
Send us a Text Message.
What if the key to managing your endometriosis symptoms lies not in restrictive diets but in a compassionate, evidence-based approach to nutrition? Join us on Endo Battery as we welcome Sarah Rae, a registered dietitian with personal experience in endometriosis and adenomyosis, who navigated a challenging healthcare journey filled with painful periods, hormonal treatments, and a path to motherhood that led to a hysterectomy. Sarah's story highlights the importance of proper excision surgery and her passion for empowering others through personalized nutrition strategies, steering clear of the restrictive fads often found on social media.
Ever wondered about the difference between a nutritionist and a registered dietitian? We break down the rigorous training and accreditation required to become a registered dietitian, emphasizing the crucial role they play in providing evidence-based, personalized advice, especially for managing conditions like endometriosis. Sarah and I discuss the potential hazards of following unverified and restrictive diets, which can do more harm than good, and the importance of consulting with endo-informed professionals to maintain a balanced and healthy relationship with food.
From debunking myths about endometriosis nutrition to offering practical tips for balanced meals, this episode covers it all. We explore the misconceptions surrounding gluten and endometriosis, the importance of intuitive eating, and the role of genetics in managing symptoms. Tune in as we equip you with the knowledge and tools to improve your well-being, embrace your genetic makeup, and foster a positive relationship with food, all while navigating the complexities of endometriosis.
Links
sarahraerdn.com
intuitiveeating.org
icarebetter.com
Find Food Freedom Podcast
https://a.co/d/9TlWhSe
https://a.co/d/71lMskt
Articles
Barnard ND, Holtz DN, Schmidt N, Kolipaka S, Hata E, Sutton M, Znayenko-Miller T, Hazen ND, Cobb C, Kahleova H. Nutrition in the prevention and treatment of endometriosis: A review. Front Nutr. 2023 Feb 17;10:1089891. doi: 10.3389/fnut.2023.1089891. PMID: 36875844; PMCID: PMC9983692.
Influence of diet on the risk of developing endometriosis. Joanna Jurkiewicz-Przondziono, Magdalena Lemm, Anna Kwiatkowska-Pamuła, Ewa Ziółko, Mariusz K. Wójtowicz. DOI: 10.5603/GP.a2017.0017. Ginekol Pol 2017;88(2):96-102.
Marcinkowska, A.; Górnicka, M. The Role of Dietary Fats in the Development and Treatment of Endometriosis. Life 2023, 13, 654. https://doi.org/10.3390/ life13030654
Barnard, N.D., Holtz, D.N., Schmidt, N., Kolipaka, S., Hata, E., Sutton, M., Znayenko-Miller, T., Hazen, N.D., Cobb, C., & Kahleova, H. (2023). Diet associations in endometriosis: a critical narrative assessment with special reference to gluten. Frontiers in Nutrition, 10. https://doi.org/10.3389/fnut.2023.1166929
Social Media (Intuitive Eating)
@endonutrition.pnw
@find.food.freedom
@diet.culture.rebel
@ameeistalking
Website endobattery.com
Send us a Text Message.
Explore all the facinating and insightful research that's helping us understand Endometriosis and all it's nuances.
This episode we cover the following studies:
1.)The causal relationship of depression, anxiety, and neuroticism with endometriosis: A bidirectional 2-sample Mendelian randomization study. Medicine (Baltimore). 2024 Jul 12;103(28):e38823.
2.)Mental illness and sleep disorders among women with gynecological problems. J Psychosom Obstet Gynaecol. 2024 Dec;45(1):2354330.
3.)The impact of surgical treatment for deep endometriosis: metabolic profile, quality of life and psychological aspects. Rev Bras Ginecol Obstet. 2024 Jun 27;46:e-rbgo42.
4.)Association between COVID-19 vaccination and menstruation: a state of the science review. BMJ Sex Reprod Health. 2024 Jul 12;50(3):212-225.
5.)Vesical Endometriosis in a male patient on treatment for papillary urothelial carcinoma. J West Afr Coll Surg. 2024 Jul-Sep;14(3):345-347.
6.)Lack of care pathway and poor symptom recognition are hindering care, report warns. BMJ. 2024 Jul 11;386:q1548.
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Can removing ovaries in young women with endometriosis do more harm than good? Join us asa we discuss the critical long-term implications of surgical decisions with Dr. Cindy Mosbrucker. We tackle the often-overlooked consequences of oophorectomy (removal of ovaries), such as accelerated aging, bone brittleness, and cognitive decline. Dr. Mosbrucker emphasizes the necessity of comprehensive patient discussions and appropriate hormone replacement therapy to mitigate these effects. We also examine the disparity in medical approaches between genders, questioning how differently men's health issues would be handled.
Discover the truth about hormone replacement therapy (HRT) that many women have been missing. Dr. Mosbrucker guides us through the flawed conclusions of the early 2000s Women's Health Initiative study, which led to a widespread cessation of HRT and subsequent health issues. We dissect how this study's design flaws misled women and explore more recent research showing the benefits of estrogen-only HRT, including a lower risk of breast cancer. Tune in to gain a deeper understanding of how medical research and study designs impact health decisions, and empower yourself with knowledge that’s crucial for navigating this complex landscape.
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Ever wondered how a childhood dream of becoming a veterinarian could evolve into a distinguished career in urogynecology? This week, we welcome Dr. Cindy Mosbrucker, a leading expert in minimally invasive excision of endometriosis. Her journey is nothing short of extraordinary—from hands-on experiences to impactful mentorships, and even a pivotal training encounter with the renowned Dr. David Redwine. Dr. Mosbrucker’s story is a testament to the power of perseverance and passion in transforming the landscape of women's health.
We also delve into the groundbreaking work of Dr. David Redwine, a pioneer in excision surgery for endometriosis. Despite facing fierce criticism, Dr. Redwine's innovative approach and dedication to patient outcomes have revolutionized our understanding of the condition. His humor and humanity shine through, making his contributions not just scientifically significant but also deeply personal and humane. This episode highlights the emotional and professional challenges specialists face and underscores the importance of better patient education and collaboration within the medical community.
Our discussion extends to the complexities of training and identifying skilled endometriosis surgeons. We explore the limitations of MIGS fellowships and the critical need for specialized education and experience in endometriosis care. Additionally, we touch on the slow but promising advancements in endometriosis research, focusing on genetics and immunotherapy. The episode is a comprehensive look at the multifaceted journey of improving patient care, from surgical expertise to addressing the psychological aspects of chronic pain. Join us for an insightful conversation that promises to inform, challenge, and inspire.
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Get ready to uncover the transformative power of functional medicine in addressing endometriosis and adenomyosis with our special guest, Dr. Bri Wyatt. Renowned for her expertise as a physical therapist and pelvic floor specialist, Dr. Wyatt shares her personal journey through chronic pain and how it steered her towards integrating functional medicine into her practice. Learn the importance of individualized care, the role of functional medicine in symptom management, and why a one-size-fits-all approach simply doesn't work for such complex conditions.
We delve deep into the essentials of patient history, covering everything from stress levels to environmental factors like mold exposure. Dr. Wyatt emphasizes the comprehensive approach needed to truly understand and treat endometriosis, illustrating how incremental lifestyle changes can lead to significant improvements. Discover the challenges and rewards of adopting functional medicine within the constraints of a PT license, and the critical need for patient cooperation in achieving better health outcomes.
Our discussion doesn't stop there. We also explore the nuanced world of diet and supplements, emphasizing that what works for one patient may not work for another. Dr. Wyatt shares invaluable insights on post-surgical and post-menopausal health, stressing the importance of nutrition, stress management, and protein intake. Hear firsthand how the synergy between functional medicine, Western medicine, and pelvic floor therapy can optimize patient outcomes, empowering people to take control of their health and navigate the challenging journey of endometriosis treatment.
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Ever wondered how endometriosis impacts not just personal lives but also the workplace and broader economy? Join us on Endobattery Fast Charged as we unpack the hidden toll this condition takes on productivity, both at home and on the job. Discover shocking studies that reveal how endometriosis-related absenteeism and presenteeism lead to lost productivity and heightened stress.
Links
The Effect of Endometriosis Symptoms on Absenteeism and Presenteeism in the Workplace and at Home. J Manag Care Spec Pharm. 2017 Jul;23(7):745-754.
Endometriosis and the workplace: Lessons from Australia's response to COVID-19. Aust N Z J Obstet Gynaecol. 2022 Feb;62(1):164-167.
Disability from endometriosis in the United States Army. J Reprod Med. 1988 Jan;33(1):49-52.
Longitudinal Assessment of the Impact of Endometriosis on Patients' Salary Growth and Risk of Leaving the Workforce. Adv Ther. 2020 May;37(5):2144-2158. Endometriosis Is Undervalued: A Call to Action. Front Glob Womens Health. 2022 May 10;3:902371
Endometriosis and Disability: Analysis of Federal Court Appeals of Social Security Disability Insurance and Supplemental Security Income Claims by Individuals Suffering From Endometriosis. Womens Health Issues. 2024 May-Jun;34(3):221-231.
Health needs of women with disabilities across the lifespan
Physicians' Perceptions Of People With Disability And Their Health Care
Website endobattery.com
What if you could transform an overwhelming challenge into a mission that changes lives? Our guest, Chanda Hinton, knows firsthand. After surviving a life-altering spinal cord injury at just nine years old, Chanda has turned her personal journey into a powerful movement for holistic healthcare solutions. Join us as we explore her inspiring path from patient to executive director of the Chanda Center for Health, where she champions comprehensive care for individuals with physical disabilities, including pivotal therapies like acupuncture, massage, and chiropractic services.
In this episode, we unravel the legislative triumphs that have paved the way for integrative therapies to become accessible and affordable. Discover the relentless advocacy behind the 2009 Colorado House Bill 1047, a groundbreaking bill that expanded Medicaid to cover essential services for spinal cord injury patients. Chanda sheds light on the ongoing struggle to achieve legislative recognition for conditions like endometriosis and the systemic changes needed to align healthcare with modern medical advancements. Learn about the cost-effective and life-enhancing benefits of these integrative therapies and the barriers that still exist in accessing them.
Finally, we tackle the pervasive healthcare barriers faced by individuals with disabilities, from inaccessible medical facilities to biased healthcare providers. Hear Chanda's insights on overcoming these obstacles through the Chanda Center's initiatives, including the establishment of an adaptive gym aimed at promoting health without financial strain. This episode is packed with powerful discussions on strategic planning, community support, and the relentless advocacy essential for driving systemic change. Don't miss the invaluable lessons Chanda has learned while building a nonprofit dedicated to transforming disability healthcare.
https://chandacenter.org/
Website endobattery.com
This episode of Endo Battery Fast Charged is a continuation into research and its correlation between the LGBTQ+ Community and endometriosis.
Here are the articles that are highlighted in this episode:
Jones CE. Queering gendered disabilities. J Lesbian Stud. 2021;25(3):195-211. https://pubmed.ncbi.nlm.nih.gov/32567533/
Dysmenorrhea and Endometriosis in Transgender Adolescents. J Pediatr Adolesc Gynecol. 2020 Oct;33(5):524-528. https://pubmed.ncbi.nlm.nih.gov/32535219/
Hematospermia in a Transgender Woman with Evidence for Endometrial Tissue in the Prostate. AACE Clin Case Rep. 2024 Jan 24;10(3):80-83. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11127599/
Endometriosis in transgender men: recognizing the missing pieces. Front Med (Lausanne). 2023 Aug 31;10:1266131. https://pubmed.ncbi.nlm.nih.gov/37720510/
Website endobattery.com
Join me and gain insight into what the research says when it comes to the the LGBTQ+ community and endometriosis.
Transgender and gender diverse people with endometriosis: A perspective on affirming gynaecological care. Womens Health (Lond). 2024 Jan-Dec;20:17455057241251974. https://pubmed.ncbi.nlm.nih.gov/38742674/
Prevalence of pelvic pain in transgender individuals on testosterone. J Sex Med. 2023 Nov 30;20(12):1459-1465. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10079239/
Breakthrough Bleeding in Transgender and Gender Diverse Adolescents and Young Adults on Long-Term Testosterone. J Pediatr Adolesc Gynecol. 2021 Oct;34(5):706-716. https://pubmed.ncbi.nlm.nih.gov/33910088/
Endometriosis in transmasculine individuals. Reprod Fertil. 2022 Apr 20;3(2):C7-C10. https://pubmed.ncbi.nlm.nih.gov/35706580/
Sexual orientation and gynecologic medical care: A cross-sectional study with Brazilian women. Int J Gynaecol Obstet. 2022 May;157(2):458-465. https://pubmed.ncbi.nlm.nih.gov/34418094/
Website endobattery.com
What if the pain you've been living with for years was dismissed as normal? Join us as we sit down with Dr. Ginger Garner, a celebrated physical therapist and lifestyle medicine expert, who courageously shares her long-overdue diagnosis of endometriosis at age 50. Dr. Garner opens up about the impact of cultural conditioning, medical gaslighting, and limited access to care on her journey, and how integrative medicine became a beacon of hope, leading to the births of her three miracle children. Her evolution from orthopedics to pelvic health emphasizes the need to normalize discussions around pain and resilience.
Ever wondered how your pelvic floor impacts your voice? This episode provides an eye-opening exploration into the connection between vocalists' pelvic health and their voice. Dr. Garner reveals how early voice training techniques like pelvic tilts can shape posture and breath control, and how pain from conditions such as endometriosis can alter a singer's tone and inflection. We hear an engrossing account of a singer contending with the physical changes of pregnancy, highlighting how these shifts influence vocal performance and why this understanding is crucial for all singers.
The narrative takes a poignant turn as we delve into the story of a young mother navigating postpartum challenges without proper guidance. Despite her background in exercise physiology, she faced significant issues with urgency, frequency, and leakage post-childbirth, shedding light on the gaps in postpartum care within the U.S. healthcare system. Dr. Garner passionately discusses the importance of an integrative and trauma-informed approach to women’s health, advocating for better community support and medical care. This episode is a rallying call for empathy, education, and systemic change in how we address chronic pain and trauma in women's health.
Website endobattery.com
When we peel back the layers of healthcare access for endometriosis and adenomyosis sufferers, a tangled web of systemic biases and inequalities is revealed. Joined by the insightful Jen Moore, our latest episode delves into the heart-breaking narratives from all corners of the globe, including the stark discrimination unmarried women in India face and the prolonged wait times that disproportionately affect black women in the UK. We confront the distressing realities that income, culture, and race play in healthcare, scrutinizing the obstacles specialists grapple with in their quest to deliver affordable, expert care within the constraints of insurance and private practice.
Imagine the frustration of navigating medical misinformation, where even the experts falter. Jen and I share our own stories of advocating for accurate treatment in a sea of inaccuracies that permeate even the most esteemed medical texts. We dissect the dangerous misconceptions, like the myth of hysterectomies as a cure-all for endometriosis, which only scratch the surface of the broader issue. It's an unfiltered conversation on the vital need for patients to arm themselves with knowledge, push for comprehensive medical records, and challenge the status quo of medical care, especially when chronic illnesses cast long shadows on one’s quality of life.
Jen's journey from personal struggle to a beacon of advocacy is nothing short of heroic. Through heartfelt stories of advocacy and the emotional toll of chronic pain, we underscore the importance of individualized treatment paths and the nuances of long-term rehabilitation. This episode is an empowering reminder of the power of community, the significance of multidisciplinary approaches to treatment, and the ongoing fight for better, more compassionate care. Pour yourself a comforting beverage and join us as we offer support, knowledge, and a shared sense of purpose to those navigating the complexities of endometriosis and adenomyosis.
Website endobattery.com
When Jen Moore first experienced the agony of endometriosis and adenomyosis at just eleven years old, little did she know that her pain would ignite a fierce advocacy for global awareness and change. Join us at the table for an enlightening conversation with Jen, who candidly details her journey from suffering in silence to becoming a beacon of hope for countless individuals dealing with these often misunderstood conditions. Her poignant narrative is a testament to resilience, as she recalls facing a healthcare system fraught with dismissal and misunderstanding, and how her quest for validation evolved into a powerful movement with her project "They Said What?".
Amidst Jen's compelling story, we tackle the broader issues that underscore the patient-provider divide, especially in the realm of chronic illnesses like endometriosis. We dissect the trauma inflicted by healthcare gaslighting and structural inefficiencies plaguing systems such as the NHS and U.S. insurance-based models that frequently prioritize cost over patient wellbeing. This episode isn't just about the challenges; it's an urgent call to action for comprehensive healthcare reform, the imperative inclusion of endometriosis education in medical curricula, and the provision of much-needed mental health support for those in the grips of this full-body disease. Tune in for an episode that promises not only to enlighten but also to empower in the face of chronic health battles.
Website endobattery.com
Postmenopausal endometriosis: a challenging condition beyond menopause. Menopause.
https://pubmed.ncbi.nlm.nih.gov/38531006/
Endometriosis in Menopausal Women-A New Age Is Coming? Literature Review. Life (Basel)
https://pubmed.ncbi.nlm.nih.gov/38672755/ Patient experiences of endometriosis diagnosis: A mixed methods approach
https://pubmed.ncbi.nlm.nih.gov/37961031/
Demographic Correlates of Endometriosis Diagnosis Among United States Women Aged 15-50. J Minim Invasive Gynecol.
https://www.jmig.org/article/S1553-4650(24)00200-0/abstract Presence of endometriosis and chronic overlapping pain conditions negatively impacts the pain experience in women with chronic pelvic-abdominal pain: A cross-sectional survey. Women's Health (Lond).
https://pubmed.ncbi.nlm.nih.gov/38682290/#:~:text=Plain%20language%20summary-,Presence%20of%20endometriosis%20and%20chronic%20overlapping%20pain%20conditions%20negatively%20impacts,COPCs)%20and%20greater%20pain%20symptomatology%2C
Website endobattery.com
TW* Pregnancy loss, infertility, suicidal ideation
When Casey Berna, a fierce clinical social worker and endo warrior, graced our podcast, the air buzzed with the spirit of advocacy and the unwavering strength of those battling endometriosis. Her story is one of transformation—from personal trials with endometriosis and infertility to a beacon of hope and guidance for thousands. Join us as we navigate the often unseen trials of chronic illness and mental health, spotlighting Casey's remarkable journey and her tireless work in patient advocacy, including her influential role in shaping the National Action Plan for Endometriosis.
The support that cocoons us in our darkest moments can be as crucial as the air we breathe. This episode sheds light on the silent warriors—the caregivers who stand by those grappling with endometriosis. We share invaluable resources and insights to aid in understanding and managing the emotional weight that caregivers shoulder. Through candid conversations, we reveal the emotional toll on those caring for loved ones, and how fostering empathy within support systems can build resilience and understanding in the face of chronic illness.
Empowerment threads through our discussion as we underscore the importance of educating young people about their bodies and conditions like endometriosis. By dismantling the barriers of secrecy and shame stitched into past generations, we pave the way for open dialogue and community support. Our exploration culminates in recognizing the solace that communal bonds provide to those feeling isolated by their condition, and how discovering purpose through advocacy can reignite a sense of control and belonging. Casey and I invite you to pour a cup of tea and join a table ringed with shared experiences, understanding, and an ironclad community spirit.
https://www.caseyberna.com/
Website endobattery.com
Joining me at the table is, Dr. Naomi Whittaker, a visionary in restorative reproductive medicine, to explore the fertile yet challenging terrain of endometriosis and its impact on fertility. Dr. Whittaker's innovative approach marries cutting-edge research with minimally invasive surgery and bioidentical hormones, charting a course for those navigating infertility that may circumvent the need for traditional IVF treatments. Our enlightening conversation sheds light on the often overlooked symptoms of endometriosis, revealing how a deeper understanding could pave the way to improved reproductive health.
As we traverse the complexities of conditions like adenomyosis and endometriosis, we unravel the critical implications these have on fertility and the profound influence a surgeon's skill can have on patient outcomes. Dr. Whittaker highlights the path to patient autonomy, emphasizing the value of thorough preparations for surgery, including the need to address uterine infections and inflammation. It's a compassionate reminder of the evolving nature of these conditions and the necessity for patient-centered care, striking a chord with anyone yearning for a more comprehensive understanding of the intricate dance between surgical intervention and nature's own fertility processes.
In our final chapters, we delve into the often-misunderstood world of hormones and their pivotal role in fertility, as well as the emotional odyssey that accompanies infertility. Dr. Whittaker's insights into the potential of bioidentical hormones to alleviate not just physical but also emotional suffering, offer a beacon of hope. We confront the silent struggles and the imperative of emotional support, encapsulating the essence of a journey marked by resilience and the search for meaning beyond biological ties. So pour yourself a comforting beverage and join us for a heartfelt episode that promises to arm you with knowledge and fill you with hope.
https://rrmacademy.org/
Dr. Whittaker's Website
https://www.instagram.com/napro_fertility_surgeon?igsh=YXdlcTh4MmhmMHlh
Website endobattery.com
This episode is full of links that correlate endo, menopause, and "medical management" and possible links to oral health.
Periodontal disease and endometriosis: analysis of the National Health and Nutrition Examination Surveyhttps://www.sciencedirect.com/science/article/pii/S0015028207043841
Towards a Common Pathogenesis Periodontal Disease and Endometriosishttps://journals.lww.com/jhrs/fulltext/2018/11030/Towards_a_Common_Etiopathogenesis__Periodontal.10.aspx
Periodontal disease and women’s healthhttps://www.tandfonline.com/doi/abs/10.1080/03007995.2017.1297928
Association between periodontitis and endometriosis: a bidirectional Mendelian randomization studyhttps://www.frontiersin.org/journals/endocrinology/articles/10.3389/fendo.2024.1271351/full
Validity of the association between periodontitis and female infertility conditions: a concise reviewhttps://rep.bioscientifica.com/view/journals/rep/160/3/REP-20-0176.xml
Tooth loss and skeletal bone density in healthy postmenopausal womenhttps://link.springer.com/article/10.1007/BF01623233
Increased risk of tooth loss is related to bone loss at the whole body, hip, and spinehttps://link.springer.com/article/10.1007/BF00369206
Spinal Bone Density and Tooth Loss in a Cohort of Postmenopausal Women.https://openurl.ebsco.com/EPDB%3Agcd%3A5%3A12768405/detailv2?sid=ebsco%3Aplink%3Ascholar&id=ebsco%3Agcd%3A37703514&crl=c
Relationship between Early Menopause and Periodontal Disease in Korean Postmenopausal Womenhttps://koreascience.kr/article/JAKO201836256830466.page
Oral Health and Menopause: A Comprehensive Review on Current Knowledge and Associated Dental Managementhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC3793432/
Oral manifestations of menopausehttps://www.um.edu.mt/library/oar/handle/123456789/105216
The physiology, medical management and oral implications of menopausehttps://www.sciencedirect.com/science/article/abs/pii/S000281771464719X
The Effect of Androgen Deprivation Therapy on Periodontal Disease in Men With Prostate Cancerhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC1934505/
Women fear drug they used to halt puberty led to health problemshttps://www.pbs.org/newshour/health/women-fear-drug-they-used-to-halt-puberty-led-to-health-problems
Website endobattery.com
Discover the harrowing yet hopeful journey through the maze of endometriosis and adenomyosis care with our guest expert Dr. Abhishek Mangeshikar. Experience the solidarity of shared struggles as we dissect the arduous path to an accurate diagnosis and the potential pitfalls of repeated surgical endeavors. Dr. Mangeshikars insights highlight the indispensability of multidisciplinary teams and the promise of alternative therapies in the chronic pain battleground. We also confront the daunting specter of disease recurrence and weigh the long-term consequences of hormonal suppression therapies, while pondering their apparent overuse in certain healthcare systems. It's a dialogue that not only empathizes with the fears and frustrations but also emboldens listeners with expert knowledge and strategies for navigating the complex healthcare landscape of these pervasive conditions.
Embark on a global odyssey of endometriosis management with us as we compare how cultural and demographic factors shape the diagnosis and treatment across the world. Dr. Mangeshikar and I investigate the significance of early detection and the role it plays in constructing effective treatment plans, including the potential enlightenment an international study might offer. Delving into the heart of healthcare disparities, this episode offers a critical look at the research hurdles faced by private practitioners and the imperative for adaptable treatment blueprints. Listen as we shed light on the French approach to centralized data collection and what it could mean for the progression of endometriosis care. It's an episode brimming with revelations that empower patients and practitioners alike to forge a path toward more comprehensive and personalized healthcare.
Website endobattery.com
Unveil the mysteries of endometriosis as it intersects with the rich tapestry of cultural diversity in my latest sit-down with Dr. Abhishek Mangeshikar from the Indian Center for Endometriosis. Dr. Mangeshikar, a giant in the world of excision surgery, shares his expertise on how environmental factors like diet impact this pervasive condition. Our conversation sheds light on the startling under diagnosis of endometriosis across the world. We explore the significance of traditional diets alongside the global variations in disease severity. This is an episode replete with insights that promise to broaden your understanding of endometriosis and its multifaceted global impact.
Imagine living with a condition that intertwines with your daily diet, causing an uproar in your digestive system. This reality is faced by many with bowel endometriosis, a topic I examined in-depth with Dr. Mangeshikar. We uncover why this variant of endometriosis eludes diagnosis and discuss the precision required in surgical treatments. The silver lining we reveal is the transformative relief patients often feel following successful excision surgery, which may alleviate the dietary sensitivities that have long plagued them. This episode is a beacon of hope, illuminating the path to mitigating the gastrointestinal havoc wreaked by this disease.
Wrapping up, our discussion takes a crucial turn towards the holistic approach needed in managing a patient's journey through multicondition care. Dr. Mangeshikar and I tackle the hard truths about the persistence of symptoms post-surgery, such as chronic fatigue and bloating, and emphasize the importance of managing expectations. We also underscore the importance of patient advocacy and the tireless journey towards accurate diagnosis and comprehensive treatment. Every individual's battle with endometriosis is unique, and this powerful conversation underscores the necessity of personalized care and the strength found in advocacy. Join us for part one of a profound exploration into the world of endometriosis care, where every story matters and every voice can spark change.
Website endobattery.com
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10957595
Chiarle G, Allais G, Sinigaglia S, Airola G, Rolando S, Bergandi F, Micalef S, Benedetto C. Acupuncture for pain and pain-related disability in deep infiltrating endometriosis. Front Pain Res (Lausanne). 2024 Mar 8;5:1279312.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10956985
Wang Y, Li W, Ha C. A large-scale causal analysis of gut microbiota and endometriosis associated infertility: A Mendelian randomization study. Medicine (Baltimore). 2024 Mar 22;103(12):e37383.
https://www.cghjournal.org/article/S1542-3565(24)00286-6/pdf
Simons M, Cline M, Gubbels A, King C, Lembo A, Lupe S. Endometriosis is Associated with Higher Healthcare Utilization and Upper Gastrointestinal Symptoms. Clin Gastroenterol Hepatol. 2024 Mar 19:S1542-3565(24)00286-6.
https://www.jogc.com/article/S1701-2163(23)00606-0/fulltext
Lee CE, Allaire C, Williams C, Bedaiwy MA, Noga H, Hanley GE, Lisonkova S, Albert A, Yong PJ. Outcomes After Surgery at an Interdisciplinary Centre of Expertise for Endometriosis and Pelvic Pain in Canada: A Prospective Cohort Study. J Obstet Gynaecol Can. 2024 Feb;46(2):102246.
https://journals.sagepub.com/doi/10.1177/03331024241235210
Selntigia A, Exacoustos C, Ortoleva C, Russo C, Monaco G, Martire FG, Rizzo G, Della-Morte D, Mercuri NB, Albanese M. Correlation between endometriosis and migraine features: Results from a prospective case-control study. Cephalalgia. 2024 Mar;44(3):3331024241235210.
Hormone medication could increase risk of brain tumours, French study finds
https://www.theguardian.com/society/2024/mar/27/hormone-medication-brain-tumours-risk-progestogens-study
Website endobattery.com
When Shannon Cohen Stepped back from her legal career to shine a light on endometriosis through film, she redefined the landscape of women’s health advocacy. As our remarkable guest, Shannon recounts her own harrowing experiences with endometriosis, offering an unfiltered glimpse into the realities of these conditions. Her transformation into a filmmaker and social impact strategist gave rise to "Below the Belt" and "Endo What?," films that serve as a rallying cry for awareness and action. Listen in as we unravel Shannon's journey, where her daughters' futures fueled a fire for advocacy, and discover how storytelling can become an extraordinary force for bridging knowledge gaps and sparking critical conversations.
This episode is a battle cry against the misinformation plaguing endometriosis awareness, emphasizing the dire need for research and inclusion in health policies. As we tackle the complexities of this disease, Shannon helps us understand why it is imperative to enhance research efforts for non-invasive diagnostics and targeted therapies. Our dialogue underscores the power patients hold when they become advocates for their own health, armed with credible, science-backed information. Join us for a compelling exploration of how lifestyle choices can significantly influence personal health, and witness how Shannon Cohn's unwavering resolve is forging a path toward meaningful change in the realm of women's health advocacy.
https://www.endowhat.com/
https://www.belowthebelt.film/
Website endobattery.com
The following links are to the articles, studies, and stories in this episode. It's time to play detective and look at all the evidence!
Attitudes and perceptions of affected women towards endocrine endometriosis therapy: an international survey based on free-word association networks
https://academic.oup.com/humrep/article/39/1/83/7330129?login=false
Robot-assisted laparoscopy does not have demonstrable advantages over conventional laparoscopy in endometriosis surgery: a systematic review and meta-analysis
https://link.springer.com/article/10.1007/s00464-023-10587-9
Endometrial Stem Cells: Orchestrating Dynamic Regeneration of Endometrium and Their Implications in Diverse Endometrial Disorders
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10797688/
Emerging bacterial factors for understanding pathogenesis of endometriosis
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10805679
The quality, suitability, and readability of web-based resources on endometriosis-associated dyspareunia: A systematic review
https://journals.sagepub.com/doi/10.1177/14604582241231151
The Impact of Endometriosis on Pregnancy
https://www.mdpi.com/2075-4426/14/1/126
Woman with ‘debilitating’ chronic pain waits decades for endometriosis diagnosis
https://globalnews.ca/news/10265850/ontario-30-year-wait-endometriosis-diagnosis
Website endobattery.com
Join us in this enlightening episode as we dive into the remarkable journey of Dr. Jenn Jaggi, from leading an OB/GYN department for a decade in an underserved Indian Health Service hospital to embarking on a transformative path as a surgeon specializing in endometriosis. Dr. Jaggi's narrative is a testament to the power of passion and the pursuit of knowledge in the medical field.
Dr. Jaggi shares the pivotal moment when she stumbled upon an Endometriosis fellowship with Dr. Cindy Mosbrucker at Pacific Endometriosis and Pelvic Surgery. Through her experiences, she sheds light on the common challenge faced by many GYN practitioners: the lack of comprehensive information and education on endometriosis, despite their genuine desire to provide the best care for their patients.
Listen in as Dr. Jaggi candidly walks us through her personal discoveries about endometriosis and reflects on how her understanding of the condition has evolved over time. She delves into the complexities of diagnosis, treatment, and the impact of education on patient care. Dr. Jaggi's insights offer a refreshing perspective, emphasizing the importance of continuous learning and growth in the medical profession.
This episode serves as a beacon of hope and empowerment for patients and practitioners alike, as we navigate the journey of understanding and managing endometriosis together. Dr. Yaggi's story is a reminder that we are all constantly evolving, and her unwavering commitment to excellence makes her a guiding light in the field of women's health.
Tune in to gain invaluable insights and be inspired by Dr. Jenn's passion, perseverance, and dedication to making a difference in the lives of those affected by endometriosis.
https://pacificendometriosis.com
Website endobattery.com
**This episode was recorded right before Dr. Redwine's Passing. We miss him and his unrelenting efforts for those with endometriosis, but we carry on with keeping his work alive.
Dr. David Redwine, widely recognized as the "Emperor of Endometriosis," boasts a remarkable career distinguished by unwavering dedication and persistent pursuit of knowledge. In this podcast episode, he generously shares invaluable insights drawn from his extraordinary journey, which commenced with a deeply personal mission to alleviate the challenges faced by his first wife in her battle against Endometriosis. Fueled by empathy and an unquenchable thirst for understanding, he embarked on a professional odyssey to unravel the mysteries surrounding this complex condition. Our engaging conversation spans a spectrum of pivotal themes, including:
-Navigating the Path to Endometriosis Diagnosis and Excision Surgery
-Challenging the Efficacy of Conventional Treatments:
-Pioneering Pelvic Mapping and the Muellarian Origin Theory
-Exploration of Diverse Origin Theories
-Deciphering the Significance of Ravioli and Germ Layers
-Revealing Mesodermal Connections
-Examining the Peril of Sampson's Theory
-How sketches are the back bone of Sampson's Theory
...and so much moreDr. Redwine's profound insights provide a rich perspective on the multifaceted landscape of endometriosis, simultaneously shedding light on its historical underpinnings and the cutting-edge research endeavors that continue to shape its future.
Website endobattery.com
When Dana Bowling bravely stepped forward to recount her arduous journey with endometriosis, she brought to light the resilience required to navigate a world where medical professionals often dismiss women's pain. Our heartfelt discussion takes you through Dana's early struggles, the grueling road to diagnosis, and the relief that comes with validation from a compassionate gynecologist. Her candid narrative delves into the challenges of treatment options, including her experiences with medication like Lupron and the complexities surrounding fertility and excision surgeries.
Turning the page to advocacy, we tackle the intricate dance of healthcare legislation and the vital role personal stories play in influencing change. With Dana's insights, we dissect the frustrating experience of amending bills rife with misinformation and how this affects everyone from prepubescent girls to post-menopausal women. The conversation invites you to the front lines, emphasizing the necessity of engagement with lawmakers and the strategies to make your voice resonate within the halls of power.
Rounding out our session, we celebrate the strength found in community and the importance of solidarity in advocacy. Dana illustrates the progress being made in New Jersey as she works to reintroduce bills that accurately address endometriosis, highlighting the successful changes and the impact of community support. Our exchange culminates in a moment of gratitude for the platform this podcast provides, enabling stories like Dana's to inspire and unite those on similar paths, underscoring the message that you are not alone in this fight.
NJ Petition
https://www.change.org/p/support-endometriosis-legislation-in-new-jersey
Website endobattery.com
Discover the truth behind endometriosis guidelines and research as I, Alanna, join forces with trailblazing patient advocates to uncover the latest insights in the complex world of endometriosis care. We're peeling back the layers on the updated clinical guidelines from esteemed health organizations and addressing the often undisclosed challenges when evidence is sparse. With a critical eye, we evaluate potential biases and conflicts of interest that could tint the recommendations, directly impacting the outcomes for those affected by this condition.
Join us as we embark on an enlightening journey through the first week of Endo Battery Fast Charged, where knowledge is power and solidarity fuels change in the world of endometriosis.
Articles and Links
Endometriosis: A review of recent evidence and guidelines
https://www1.racgp.org.au/ajgp/2024/january-february/endometriosis
Social Media, Endometriosis, and Evidence-Based Information: An Analysis of Instagram Content
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10778603
Delayed diagnosis and treatment of adolescents and young women with suspected endometriosis
https://www.sciencedirect.com/science/article/abs/pii/S2468784724000163?via%3Dihub
A Pilot Feasibility Multicenter Study of Patients After Excision of Endometriosis
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3662751/
Endometriosis in Adolescents: A Systematic Review
https://journals.sagepub.com/doi/abs/10.5301/je.5000264
Complete laparoscopic excision of endometriosis in teenagers: is postoperative hormonal suppression necessary?
https://www.fertstert.org/article/S0015-0282(11)00335-9/fulltext
Fear of progression, depression, and sleep difficulties in people experiencing endometriosis-pain: A cross-sectional study
https://www.sciencedirect.com/science/article/pii/S0022399924000072?via%3Dihub
Endometriosis and mental health: a population-based cohort study
https://www.ajog.org/article/S0002-9378(24)00064-4/pdf
Relationship of migraine and other forms of chronic pain
https://www.sciencedirect.com/science/article/abs/pii/B9780128233573000276?via%3Dihub
Resources and insights provided by: Heather Guidone BCPA, CEC & Kate Boyce BCPA, Endo Girls Blog
Website endobattery.com
As Endometriosis Awareness Month dawns, the waves of excitement and trepidation are palpable. This episode is a call to arms against the tide of misinformation, a beacon guiding you to the truths that empower and improve the quality of life for those entangled in this ongoing battle.
With the fervor of a seasoned advocates, I'm thrilled to reveal 'Endo Battery Fast Charged,' a groundbreaking series crafted in alliance with razor-sharp patient advocates Kate Boyce and Heather Guidone. Together, we're assembling a dossier of the latest research and eye-opening articles, providing you with a biweekly dose of the most pertinent and reliable endometriosis insights. It's time to armor yourself with knowledge, to stride confidently forward in your journey, and to raise the banner of awareness and advocacy for a condition that demands attention and understanding.
Website endobattery.com
Have you ever wondered what it's like to navigate the intricate landscape of endometriosis surgery? This episode features a conversation with Dr. Nick Fogelson, a renowned expert in minimally invasive gynecological endometriosis surgery, who guides us through his transformative journey from general OBGYN to one of the leading specialist in this challenging field. Dr. Fogelson shares in a candid discussion about the advanced surgical techniques he employs, akin to those used in oncologic procedures, and the critical role of radical excision in improving patient outcomes.
As we unravel the complexities of endometriosis, Dr. Fogelson sheds light on the often misunderstood connection between pelvic pain, nerve involvement, and the importance of early intervention for nerve-invading lesions. We venture into the specialized realm of neuropelveology, examining the challenges in diagnosing conditions with invisible lesions and the profound impact patient history has in understanding pelvic pain. Dr. Fogelson shares his expertise on the different types of nerve compression and the meticulous surgical care required for cases involving major nerves, broadening our perspective on the nuances of treatments for conditions like pudendal neuralgia and piriformis syndrome.
The episode concludes with a reflective conversation on the evolving field of neuropelveology, where skepticism turns into advocacy, and the nuances of patient selection for surgery come to the forefront. We focus on the diversity of pain management techniques—from neuromodulation to acupuncture—and the importance of tailoring treatments to enhance quality of life. Dr. Fogelson's insights challenge common misconceptions about hormonal manipulation for endometriosis and exemplify the need for an open-minded approach to treatment modalities. This dialogue promises to leave you inspired and equipped with a deeper understanding of the resilience required in the face of such complex conditions.
Website endobattery.com
When Nathali opened up about her battle with endometriosis, adenomyosis, and pelvic floor dysfunction, it was more than an interview—it was a revelation of her relentless spirit. Her experiences, etched with pain and misdirection, ultimately led to a pivotal encounter with a medical specialist who enlightened her journey. We're privileged to have Nathali candidly recount the emotional weight of her diagnosis, the transformative effects of pelvic floor therapy, and the life-altering decisions she faced, from confronting the fears of surgical mesh implants to embracing the hope of recovery.
As a community, we bear witness to the raw and often invisible struggles of those amongst us. Nathali's account of grappling with her identity, the influence of her condition on her wardrobe choices, and the surge of symptoms that necessitated surgery paint a visceral picture of life with a chronic illness. Her post-surgery narrative doesn't shy away from the hardships; it embraces the complexities of managing chronic pain, the unwavering support of skilled surgeons, and the revelation of "baby endo," a term reflecting the disease's deceptive subtlety.
The road to recovery is seldom straight, but Nathali's resilience shines as she shares how she transitioned from grappling with a 30-pound weight to powerlifting an impressive 135 pounds. We delve into her journey of self-discovery, the cultural barriers within the Latino community regarding health, and the impact of endometriosis on family dynamics. As her story unfolds, you'll find yourself rooting for her strength, inspired by her dedication, and moved by the powerful network of support that lifts her through each chapter of her ongoing quest for wellness. Join us as Nathali delivers a powerful message of hope, perseverance, and the undeniable strength of the human spirit.
Website endobattery.com
Imagine enduring a pain so severe that it dictates every moment of your life, yet being told it's all 'in your head.' Our guest, Nathali, shares a poignant narrative of her battle with endometriosis and adenomyosis—a tale that begins with dismissed symptoms in high school and evolves into a relentless quest for answers. She unveils the raw truth behind misdiagnoses and the frustration of facing a healthcare system that often undermines those with chronic conditions. Her journey is not just a testament to her fortitude but also a rallying cry for patient advocacy and the critical need for specialized care.
As we listen to Natalie recount her experiences with pelvic floor dysfunction and the search for relief, it's akin to watching a warrior reclaim her strength. The discovery of a supportive community and the role of pelvic floor therapy mark a transformative chapter in Natalie's life, offering a glimmer of hope to listeners who may be sharing a similar path. This episode is a gripping exploration of the intersection between personal struggle and collective empowerment, encouraging patients everywhere to become champions of their own health and well-being. Join us for an intimate and inspiring conversation that illuminates the courage required to fight back against a daunting adversary: one's own body.
Endocipota
The Chronic RBF
Website endobattery.com
Dive headfirst into the complex world of hormone replacement therapy in this part 2 episode with Kate Boyce, of Endo Girls Blog as we strip away the one-size-fits-all approach to HRT for conditions like endometriosis and adenomyosis. This discussion isn't about blanket solutions; instead, it's a deep exploration into the personalized nature of treatment, from the role of progesterone to the surprising impact of testosterone. We're challenging the status quo and simplifying the process to focus on what really matters – your unique health journey.
Navigating the minefield of hormone balance and the risks of HRT can be daunting, but we're here to guide you through it with the latest insights and research. We'll tackle the body's remarkable but complex survival mechanisms and the importance of symptom-based treatment adjustments. And let's not shy away from the controversies and risks – knowledge is power, and we're empowering you to partner with healthcare providers who truly understand your needs.
We round up the discussion by addressing the broader health implications of HRT, such as the potential link to dementia prevention, and dissect the ongoing debates within the medical community. By sharing personal anecdotes and critically analyzing the research, we're cutting through the noise to bring you evidence-based, accessible information. This episode is more than just a discussion; it's a call to action for informed consent, education, and advocacy in the evolving field of women's health. Join us for an episode that is as thought-provoking as it is informative, with the goal of bringing you to the forefront of your health decisions.
https://endogirlblog.com/
Website endobattery.com
When my guest Kate Boyce from Endo Girls Blog and I first discussed our endometriosis struggles, little did we know that our candid exchange would resonate with so many. This episode is a heart-to-heart about the excruciating path to diagnosis, the weighty decision to resort to a hysterectomy, and the rollercoaster of recovery that follows. Kate shares her raw and personal account of life post-surgery—where the removal of her cervix and ovary threw her into a whirlwind of health challenges. We stress how crucial it is for those affected by these conditions to find accurate information and advocate for themselves, a true testament to the power of sharing stories and leaning on one another.
Venture with us as we unravel the tangled relationship between hysterectomy and hormone replacement therapy, particularly when it comes to endometriosis. The choice to undergo this procedure can be daunting, and it's not a one size fits all approach. We explore the repercussions of such a surgery on ovarian function and the often-unexpected slide into premature menopause. Through our own HRT journeys, we underscore the significance of tailored care and navigating post-surgical life. Our intimate chat mirrors the diversity of experiences and the pressing need for personalization in healthcare decisions, especially for those grappling with the aftershocks of a hysterectomy.
In a heartfelt discussion, the transformative power of hormone replacement therapy—especially testosterone—is brought to light. I reveal how a deficiency led to my own skin and allergy issues, and how testosterone replacement served as an unexpected lifeline to my well-being. As we challenge the misconceptions surrounding testosterone for women, we also address the difficulties in finding well-versed HRT providers. The episode delves into the intricacies of various hormone delivery methods, highlighting the potent role of compounding pharmacies in individualized care. It’s an episode brimming with insights on hormonal health, aimed at empowering you to take charge of your well-being and advocating for better support and understanding from the medical community.
This episode was too good to only be a one and done. So join Kate and I for a Part two next week!
https://endogirlblog.com/
Website endobattery.com
Embark on an eye-opening journey with me, Alanna, as we pull back the curtain on the world of endometriosis and adenomyosis, guided by the wisdom of Dr. Mona Orady, MD, founder of the Orady Women's Clinic. Discover the transformative impact of meticulous surgical techniques, like laser excision and ovary suspension, that promise to revolutionize patient outcomes. This episode illuminates the often-overlooked art of adhesion prevention and the profound difference it can make in preserving fertility and enhancing quality of life for those battling these conditions.
As we navigate the often turbulent waters of women's health, Dr. Orady's expertise shines a light on the pivotal role of early detection and specialized care for teens grappling with endometriosis. Learn why the expertise of a dedicated specialist can be a game-changer in managing this disease from its onset. The discussion also ventures into the broader healthcare landscape, advocating for reforms that ensure comprehensive post-surgery care and underscore a future where holistic treatment is the gold standard.
Closing this powerful episode, we celebrate the stories of resilience that define the path to recovery for many facing chronic conditions. From the potential of physical therapy to the joys of successful fertility treatments, we spotlight the diverse treatment avenues that offer hope and healing. Join us in our passionate plea for endometriosis education in schools, aiming to empower a new generation with knowledge and foster a world where awareness and timely intervention are the norm.
Website endobattery.com
Join us at the Endo Battery table, as we embark on an eye-opening journey with the renowned Excision specialist, Dr. Mona Orady. Period pain is more than just a discomfort—it's a crippling condition that echoes throughout the lives of many. In this episode, Dr. Orady not only shares her professional expertise but opens up about her own battles with Endometriosis.
From grappling with excruciating pain to championing a global pursuit for advanced treatments, Dr. Orady's narrative unfolds, culminating in the establishment of the Orady Women's Clinic. But this conversation goes beyond surgery; Dr. Orady advocates for a holistic approach to women's health, intertwining mental wellness, physical therapy, and sexual health into her patients' care plans.
We're not just here to talk about the problems; we're here to foster a community rich in support and education. No one should face these battles alone.
Navigating the challenges of endometriosis and adenomyosis becomes less daunting as we dissect the diagnosis and surgical procedures with meticulous care. Dr. Orady's involvement goes beyond the surface—it's about crafting a responsive, detail-oriented environment that prioritizes her patients' journey to wellness.
Dr. Orady isn't stagnant in her approach to giving patients the care they deserve. She highlights the benefits of the Mini Laparoscopy—a less invasive surgical approach that minimizes downtime, body trauma, and offers a viable option for those with minimal disease.
But that's not all. In this episode, we dive into the seldom-discussed topic of adhesions and their implications on your body. Let's break the silence, dismantle the stigma, and empower ourselves with knowledge.
Tune in for an episode that transcends the ordinary; let's revolutionize the conversation around endometriosis together! 🌟 #EndoBattery #DrMonaOrady #WomensHealthRevolution
The Orady Woman's Clinic
Website endobattery.com
Welcome to another heart-to-heart episode of Endo Battery, the podcast that aims to be your sanctuary for reliable insights and shared experiences on the challenging road of Endometriosis. Today, your host Alanna takes center stage, revealing the raw and authentic story that sparked the creation of Endo Battery.
In this intimate episode, Alanna bares her soul, recounting the disappointments, medical trauma, and mistreatment she endured due to misinformation and mismanagement of Endometriosis. Her personal struggles ignited the flame that fuels Endo Battery's mission today - a safe haven where others can find solace, understanding, and accurate information.
Alanna passionately shares her determination to spare others from the same arduous journey. Through candid conversations with experts and patients, she strives to dispel myths, challenge misconceptions, and foster a sense of community. Endo Battery isn't just a podcast; it's a lifeline for those seeking clarity and support.
As Alanna discusses the future of Endo Battery, she emphasizes the commitment to inclusivity. Ensuring that every voice is heard and every story is acknowledged is paramount. The podcast is evolving into a beacon of hope and empowerment, echoing the sentiment that no one walks this journey alone.
Our host also peels back the layers, providing a glimpse into her personal life and the driving force behind her unwavering advocacy for Endometriosis awareness. Her resilience and passion are the pillars upon which Endo Battery stands.
In closing, Alanna leaves us with a message of hope, resilience, and unity as we step into a new year together. Join us on this journey, as Endo Battery continues to light the way, fostering a community where understanding and support flourish.
Tune in, share the love, and let's embark on this empowering journey together. Here's to a happy new year of growth, healing, and camaraderie.
Website endobattery.com
When we talk about family, we often picture the traditional set-up, but the fabric of what binds us can be as unique as each painful twinge of endometriosis or adenomyosis. This episode of Endo Battery wraps you in stories of family in all its forms - the given, the chosen, and the ones we forge through shared battles against chronic illness. It's a heartfelt reflection on the resilience within our Endo family, tied by empathy and understanding, and how these bonds become our refuge, especially during the festive season's highs and lows.
Embrace the warmth of community as we share tales that resonate with anyone navigating the complexities of chronic health conditions. No guest is needed when every listener is part of the narrative, contributing to the rich tapestry of our experiences. This is about recognizing each other's struggles, celebrating the victories, and holding space for the tough times. So refill your cup with whatever soothes your soul, and let's honor the relationships that sustain us, those familial ties that recharge our spirits and offer solace, as we continue to support one another through the journey with endometriosis and adenomyosis.
Article on Psychology Today
Website endobattery.com
We start our part two with talking about ways that we can communicate to your care provider and setting the tone for your appointment. Something we should always ask is what is the differential diagnosis? This puts you in a position to gather more information and have your doctor really be present with you in the exam room. That was just the start to the wisdom Kimether showered on us.
We've all heard and experienced the abysmal information and care when it comes to Endometriosis. Have you ever stepped back and looked at the history of endometriosis care? Imagine having the same pain as other's but being told it's only a white woman's disease. Kimether continues walking us through the history of Endometriosis and the roots of racism and scientific racism to people of color. She talks about how it all really started with a doctor with the last name of Meigs ( ring a bell?). It started out because of a sociological difference between middle to upper class white woman and people of color. Kimether gives not only the history, but incredibly insightful thoughts on why there's still racial inequality within our health system and specifically for those of color dealing with Endometriosis, or any chronic disease.
This episode was thought-provoking and full of mind blowing information. Listening to Kimether bring history to light challenges us to look at how we approach inclusive care for all. This is a must listen to for everyone!
https://www.instagram.com/endothickofit/
https://www.instagram.com/therebelliousuterus/
https://www.instagram.com/endo_black/
https://www.instagram.com/explore/tags/endoville/
Kimether Redmon joins us to share the importance of knowing the history of medical practices and its roots of racism. She walks us through the history of medical research and treatment when it comes to being a person of color and a woman. She gives detailed accounts of ways people of color were often used for research and how most research done for betterment of the human was done with upper- middle class people. This all lends itself to Kimether's story of:
- pain that was ignored or mismanaged based off of racial bias from practitioners
-then ultimately her journey through infertility which led to a diagnosis of Endo followed by poor treatment and being misinformed.
- Which only made her symptoms worse.
She then addressed current challenges that people of color and marginalized people face as it pertains to our healthcare system and receiving proper, and equal, care. Better care for all is what drives Kimether in her career as a Nurse Practitioner in a safety net clinic.
This is was only a portion of all the wisdom Kimether shared. This is part 1 of a 2 part series that you wont want to miss.
https://www.instagram.com/endothickofit/
https://www.instagram.com/therebelliousuterus/
https://www.instagram.com/endo_black/
https://www.instagram.com/explore/tags/endoville/
Amber MacDonald shares her heart breaking story of trying to find relief with extreme pain. Having multiple surgeries and being told that it's not Endometriosis, only to find out later that it was and a hysterectomy is the only way to get "rid" of the endo and the pain. Amber felt: less than, betrayed, invalidated, and still had pain. She takes us into a vulnerable space of coming to terms with losing her ability to have children at such a young age, and the lasting heartache and financial toll it's taken. Amber's journey to healing, answers, and purpose lead her to her passion in helping others by becoming an Arvigo Therapy practitioner, and spreading awareness about the misinformation surrounding endometriosis.
Amber's story will both break your heart, and allow you to feel validated. She is proof that doing this journey with others brings healing. You wont want to miss this episode.
https://www.foreverhealingmassage.com/massagecoupon
As the summer wraps up and vacations are ending, it can be overwhelming to get back into the swing of things. Maybe you're facing some tough decisions, or have to have yet another surgery, or you simply just feel like life is taking more out of you right now. Shelby walks us through ways to do some intentional breath work that can help promote healing, in your mind, and body. Just relaxing can really help with how your body promotes healing. Sometimes bad endo flairs can cause more tension in your body that taking a deep breath can help relax. Do yourself a favor and take less than 10 minutes to treat yourself kindly.
Join Alanna and Elliot as they talk about their take on what they've learned about the world of Endometriosis. This is a one on one conversation that invites listeners to the discussion on the way that Elliot and Alanna have evolved in their knowledge surrounding:
- Endometriosis and how many people are affected by it
- The gender gap and bias in the medical industry when it comes to funding and care
- Talking periods and why it's so taboo to speak about for some (or buy period products for)
- How trusting doctors can be challenging for some and for others, they place all their trust in them
- How humans can sometimes react to others pain when they don't fully understand it
- Following a motto of, " having a questioning attitude" when it comes to new information on Endo.
- Treating your providers with more of a business like mindset to receive the value you deserve
- How much money Endometriosis costs, and the value you receive
- Elliot shares ways to communicate with your partner or support person, and others around you about endo,..
... and so much more. Elliot's unique perspective on what he's learned this past year is a window to what work still needs to be done to provide better care for Endometriosis patients.
Stop what you're doing! Seriously, stop and listen to Dr. Sallie Sarrel PT. She shared her incredible knowledge and wisdom to what could be contributing to pain or residual pain. Not all pain is generated by Endometriosis its self, but by other factors that Dr. Sallie has named, "groinocology".
This topic and conversations blew our minds when Sallie talked about:
- The way different doctors have a single lens approach to pain, and often it's the Physiatrists that have a multi-lens approach to pain and finding the source.
- Groinocology is a bigger lens when it comes to pain and it's cause(s)
- Differentiating between genital nerve pain and pudendal nerve pain
- Is it yeast infections or a hormone imbalance causing vaginal dryness and itchiness or is it nerves?
- All things hernia, and yes bulging fat can be a hernia!
- The different kinds of hernias and how they can generate pain, even if it's not on a nerve, but close to it.
-Leg and hip may not be because of residual or reoccurring endometriosis but from the area of groinocology.
-SI pain may not be SI pain or SI Endometriosis, but other menacing pain generators, like hernias or hip placement...
and so so much more.
We could not take in all the new information that we learned fast enough. Our lightbulbs went off in our heads, as Sallie talked us through common and not so common causes of pain. This applies to both pre and post-op, but it's really beneficial after a proper excision when you still my have pain. This is a must listen to 3 times podcast.
https://www.instagram.com/endometriosissummit
https://theendometriosissummit.com/
https://anchor.fm/s/57bdffe0/podcast/rss
https://www.youtube.com/channel/UCebK2eqSmpgz19yvH44R8IQ
Ever wish that pelvic exams and intercourse were more comfortable or even possible? Dr. Amanda Olson not only helps give tools to achieve that goal, but created the tools! Dr. Olsen does not leave anything out when talking about ways to:
- Use the intimate rose tools including the wands
- Help your Pelvic Floor heal or relax
- Pelvic congestion and other contributing factors to pelvic pain
- Healing or rewiring the connection between your brain and trauma from intercourse or exams due to endometriosis
- Prepare for surgery or heal post surgery
- Movements that could help prepare your pelvic floor for penetrative intercourse
- Listening to your body and it's signs for knowing when you're ready to increase pelvic and vaginal activities.
- Post vaginal and pelvic floor fatigue
...and more.
Dr. Amanda is an endo warrior making life better for other endo warriors.
Follow Dr. Amanda Olson, DPT, PRPC on instagram @aolsondpt
Or Intimate Rose @ intimaterose
Click on:
https://www.intimaterose.com/ENDOBATTERY and use the code EndoBattery for a discount!
Don't forget the amazing lubricants to help with vaginal dryness for all you hysterectomy people! You won't be disappointed!
Sometimes making a decision to bring healing to your body doesn't come without its challenges, as well as its rewards. Shelby invites us into her first year after her excision and hysterectomy, shedding light on the things she's learned along the way. She is vulnerable about,
- Setting realistic expectations on the time it takes each individual body to heal
- Showing grace, mostly for your self, and your body
- Having a team to help in your healing and unraveling "the ball of yarn".
- Setting up boundaries
- Showing gratitude to your body and all the ways it becomes stronger
- Getting back the ability to engage with friends and family without debilitating pain.
- No more bleeding!!! That will not be missed! However, that doesn't mean there aren't other challenges to work through.
- Finding whole body healing through, healthy eating, gut health, appropriate and instructional workouts, and a team that can help put the pieces back together.
- Not allowing loyalty to get in the way of your healing and overall better quality of life
- Not pushing your body too fast too hard
... and so much more. It's been fun to walk this journey together. Thank you for joining in it with us.
Ever wonder what the value of having labs done is when it can't tell if you have Endometriosis? Dr. Kim walks us through how to F.I.G.H.T to figure out if our bodies need extra support through:
F- Food, Micro Nutrients
I- Inflammation, Immune, Infection
G- GI, Genetics
H- Hormones
T- Toxins
All of these play a part in how our body might respond with Endo. Dr. Bruno walks us through each of these things and ways that labs can be helpful, if done correctly, in managing our endometriosis symptoms, hormone imbalance, and quality of life.
You don't want to miss this informative conversation. You might just find more fight!
We are joined by Heather Guidone from the CEC in an empowering conversation about:
-How far education for endometriosis has come since Heather started her journey looking up text in the library.
-What pushed and continues to be the push for Heather to advocate
-What positive advocacy looks like
-How change will ultimately come on the shoulders of the patients and advocates.
-Communicating the core of what endometriosis is, is what needs to be a primary goal.
-The challenge in communicating what the core of endo is when Samson's theory is still the primary education in med school, governing bodies, and many publication
-Why informed consent is crucial for patients to receive care that is best for them and their bodies
-Endo has long lasting effects on our bodies, therefore it's important to improve future generation's outcomes, through advocacy.
-How we have learned to advocate for ourselves
-The progress and roadblocks that have been faced with legislation that's already in place, as well as legislation being brought to the forefront and/or passed
- Showing compassion, grace, and kindness to those properly advocating for other endo warriors, goes a long way.
This conversation is packed with valuable conversation. We need to continue to have these conversations so true tangible change happens. Heather imparts not only her wisdom on us, but her passion to keep grinding, what feels like an impossible grind, towards a goal of better care and treatment for those with endometriosis.
It will take all of us to incite powerful change for better care. Join us in this change!
https://www.projectendo.org/
Mike Baker (Endodad76 on instagram), is joined by his Wife, Kellie, and daughter, Sammie, in discussing what led him to create a space of advocacy for endo warriors through his AI art. Think like:
- Watching Sammie suffer with debilitating pain
- Kellie discovering her endometriosis diagnosis because of Sammie's diagnosis
- The generational connection with endometriosis and how it presents differently in each person
-How the endo community is a robust community championing for change
- How the Baker family is making the initiative in their clinics for better education to be able to diagnose earlier and find better treatment.
-How the feeling of helplessness led Mike to make AI art to encourage endo warriors to see themselves as he and many others see us.
This episode highlights not only how amazing Mike is as a dad and husband, but how compassion and fierce advocacy can help others feel seen. Thank you to the Baker family for your vulnerability and heart for others.
We continue with part 2 of our discussion with Dr. Adam Duke and Dr. Yaniv Larish. This episode was enlightening for us as patients to hear when it came to what is taught, or not taught, in medical school. Dr. Duke and Dr. Larish walk us through
- When they first heard about endometriosis
-The lack of mention in medical school and in the medical books when it comes to endometriosis
- That moving the bus forward to better care for endometriosis patients is not a linear road. There are challenges with progress.
- Why the change needs to be pushed by the patients even thought it shouldn't have to be.
- The shocking amount , or lack thereof, of hysterectomies residents have to do to get their medical license.
All this and many more intriguing insights to being an endometriosis specialist and how they find value and importance in being face-to-face with patients.
A massive acknowledgement goes out to Dr. Sallie Sarrel PT ATC DPT, and Dr. Andrea Vidali for all their hard work bringing everyone together and creating a space for healing, education, and community amongst doctors, patients, advocates, and practitioners.
This episode it Part 1 in a 2 Part serious in a 'round table" like discussion with Dr. Adam Duke of Post Fall, ID and Dr. Yaniv Larish of New York, NY and Chelsea. We talk about the importance of combining doctors, patients, Pelvic floor physical Therapist, advocates, and other practitioners at one conference. We talk about the value that both patients and doctors get from being in the many discussions, like:
- Building a stronger community
- Challenges endometriosis specialist face amongst their peers
-Thing these doctors has heard other doctors have said to patients (*Trigger Warning*)
- Rejuvenating our passion to improve endometriosis care
- Seeing both sides of the challenge in care
- Adding the human back to the patient and doctor relationship
- Working together to change the precipitin and care of endometriosis
and so many other things. This episode is filled with laughter and vulnerability.
Don't forget to click for notifications for part two. When we talk about the lack of endometriosis education for medical students and doctors. Also, ways we see the narrative changing in endometriosis care.
Katie and Allie are back for PRIDE month and are walking us through challenges that those in the LGBTQ+ community face. They share challenges of not only getting unbiased healthcare but diagnosis and treatment for complicated diseases like Endometriosis. They don't just have a patient perspective but a nurses perspective. They touch on
- The lack of information given to those in the medical community about Endometriosis
- Getting treatment when you have an untraditional relationship and the challenges those people face when it comes to insurance.
- Biased care and ways that care can be better for those that are part of the LGBTQ+ community.
- Medical burnout contributing to dismissal of not only those in pain due to Endo, but to those who don't follow social "norms".
- Ways patients can be their best advocates
- Ways to negate bias care
- A charge for nurses to be a safe place for not only endo patients but for people that are part of the LGBTQ+ Community
Just as Endometriosis does not discriminate, nor should any healthcare provider. Those with this disease should be given the proper care regardless of age, sex, religion, gay or straight, and lifestyle. It's hard enough without facing additional trauma. Learning ways to communicate like, using preferred pronouns, and still asking if child bearing is still a consideration even in a same sex relationship.
We learned so much from Katie and Allie and their openness. They give great resources for both patient and practitioner to learn and gain support of those in the LBGTQ+ and Endometriosis community.
In this episode we take a deep dive with Dr. Larish into:
-Urinary incontinence
-defecation incontinence
-fecal function
- Being diagnosed with UTI's (urinary tract infection) with negative cultures and the negative side effects of being misdiagnosed.
-Suspicions as to what role SIBO plays in those misdiagnosed with UTIs
-Overactive bladder
-Effective ways to communicate to your doctor
and steps to take in finding proper care and ways that you can help your body when you experience any of the listed symptoms.
Dr. Larish shares practical and thought provoking ideas, that equip us to seek expert care and does it all with compassion. He strives to make sure all patients are heard and given quality care, therefor increasing the quality of life. You won't want to miss this episode!
We get the honor of sitting down with Dr. Beth Dupree MD, FACS, ABOIM. Dr. Beth DuPree has been an innovative thought leader in breast cancer care nationally and internationally. Her passion to empower healing in her patients on their cancer journey has lead her to a new phase of her career. She has shifted her focus from the operating room to becoming medical advisor to innovative companies focused on various aspects of survivorship.She is currently working with three transformative companies to bring about change in mental wellness and non-narcotic pain management InnerStill Health, Gateway Sciences & Clinics and Signal Relief. She received her Certificate in Psychedelic-Assisted Therapies Research from the California Institute for Integral Studies in March of 2022. She also completed her MAPS ( Multidisciplinary Association for Psychedelic Studies) certification as well. She is currently enrolled in Synthesis Institute in Amsterdam for additional psychedelic therapy training.
Beth joined the endometriosis bus when she learned just how much of an "orphan disease" endo really is. Beth walks us through how she got into nerve science and her dislike of the amount of drugs that were being used in phycology, which lead her to study She talks about her research into breaking up pain cycles with:
- Vagus nerve stimulation, bringing the body back to homeostasis and not leaving it in fight or flight.
-Psilocybin Therapy, and the positive effects that it has on mental health as it pertains to pain.
- Jovi Patch that helps break the signal from your pain to your brain, giving pain relief.
(she also gives a discount code for a Jovi patch.)
- Continued research on the use of low dose ketamine and it benefits to alleviate chronic pain.
She continues to do research on ways that help endometriosis patients with pain management and pain relief, as well as looking at the neurohumeral connection between the nervous system and hormones. She talks about how this has become such a passion, to help those who have endometriosis have a better quality of life without the use of opioids.
This is a must listen to episode. Beth is on the Endo bus, and changing the name of the pain...management.
Website
www.drbethdupree.com
Foundation
https://www.thehealingconsciousness.com
Book
https://www.thehealingconsciousness.com/the-healing-consciousness/
Shiv Yog -Data on Vagus stim through breath work
https://ishanshivanand.com/about-ishanshivanand/
In this episode Dr. Jose Eugenio-Colon walks us through his Journey to becoming an expert excision specialist and the trauma that led to furthering his education.
Dr. Jose` touches on why he advocates for teaching and properly educating Doctors and Patients from the Latino community. We talk about the different challenges we face as an endometriosis community. He explains:
-Adenomyosis, and the different types
-Infertility as it relates to adenomyosis and early castration
- Different surgical standards and techniques in different parts of the world, with an emphasis on the Dominican Republic and Caribbean.
- The empathy and empathy burnout with doctors
- Bowel Endo/ rectal , and taking the time and proper steps to make sure it's fully excised and his continued efforts to get proper diagnosis and treatment earlier, so patients have a better a better quality of life.
https://centerforendo.com/
*Trigger Warning*
Dr. Jose' shares with us anatomy and disease slides, as well as surgical videos, which can be seen on our Endo Battery YouTube page https://youtu.be/5vPQfmpl7bw . Some images and discussion topics could be triggering to some. Please be sure to reach out to a mental health provider if you find yourself in crisis, or call 1-800-372-Talk(8255), for the crisis hotline.
All images and videos that are property of Dr. Jose` and/or the Center for Endometriosis Care have been used by permission.
In this episode we are joined by Chelsea Taylor to recap the first day of the Endometriosis Summit. We talk about what we learned that really resonated with with in the surgical panel. This like;
- Different approaches and surgical techniques between each doctor
- Bowel resection technique
- Endometriosis Vs. endometriomas and different approaches taken by different Doctors, and different cases.
- Bladder endometriosis
- Different takes on preventing adhesions and 2nd looks
- Informed consent with Dr. Jeff Arrington
- Overall how impactful having both practitioners and patients in one room together.
We talked about so much and didn't even get to cover it all. It was such a great experience that Dr. Sallie Sarrel and Dr. Andrea Vidali have made such a significant impact in the Endometriosis community with putting this Summit on.
In this episode Katie walks us through her story of;
- Years of painful periods
- Normalizing debilitating pain
- struggling to find a diagnosis
- Being misdiagnosed
-Being Gaslit
- Multiple doctors
- Being told she's crazy
- Painful Sex
- Extremely painful flairs
- Being an advocate for those in the LGBTQ+ community
All for her wife, Allie, to assure her that unrelenting painful periods are not normal. Katie and Allie take us through their journey trying to find healing. They took steps to:
- Do their research
- Find a mental health provider
- See an excision specialist
- Find a Pelvic Floor Physical Therapist and Abdominal Massage Therapist
- Now more advocating for those LGBTQ+ community suffering from Endometriosis.
All while navigating the healthcare system as nurses.
This is a very real and raw episode that is fun but also relatable.
Megan walks us through different approaches to:
- Recognizing Endometriosis with common symptoms as well as those less obvious symptoms
- Learning from cases that are challenging
- How gut health effects our bodies balance
- Introducing Low-dose naltrexone (LDN) as a way to help manage pain with Endometriosis pain
- Balancing hormones post surgical hysterectomy
- The need for progesterone and the need for estrogen
- What should our hormone levels should look like
- Options for testing your hormones
- Managing health management tools in both western and eastern medicine
- Knowing as a practitioner when to refer to a specialist
- Things that can help reduce inflammation and pain symptoms
All with a balanced approach using both functional and western medicine.
About Megan:
Megan Anderson, ANP, is a Nurse Practitioner, who received her nursing degree from the University of North Carolina at Chapel Hill in 2004. Megan worked as a staff nurse in both pediatric cardiology/surgery and gynecology/oncology for 3 years before starting graduate school at the University of Illinois at Chicago in 2006. She worked at a Federally Qualified Health Center for 3 years during graduate school before becoming a Board Certified Women’s Health Nurse Practitioner in 2009.
From 2017 until the start of COVID in 2020, Megan worked at a functional medicine clinic in town called Balanced Well-Being Healthcare. There, she grew as a clinician and honed her skills with functional medicine diagnostic and treatment options. Helping people address underlying chronic issues and get back to feeling their best is what feeds her soul, and she feels grateful every day for the opportunity to help people identify ways to feel and live their best life. She has since continued to work in a functional medicine practice, seeing patients all over the country in a virtual manner, with the California Center for Functional Medicine. Women's health concerns, autoimmune conditions, and gut health are her favorite things to address with patients.
https://www.ccfmed.com/
https://www.ccfmed.com/become-a-patient
https://ldnresearchtrust.org/
Alex of Invisable Iconic advocates for those in Australia. She gives us a glimpse of her Endometriosis journey and the lack of care and helped she has recived in results frustration, draining for her, and mental struggles. All to drive her to advocate more for Endo care in Australia. Alex talks about ways and pushing for systimatic changes in care by:
- pushing to educate more doctors to do expert excision.
- making excision more accessible for them to get training with providing more government funding.
- changing the narrative around Endometriosis and all that it encompasses.
Alex talks about being movtived because her surgeries to advocate more for Endo. Her surgeries that she has already had weren't enough, and she is still struggling with Endo even though she had the 'best' docs in Australia perform her surgery. She discussed what her next steps might be, but is just frustrated for the lack of experienced and well trained excision specialists in Australia.
We wanted to bring light to what others are dealing with in other countries and ways people are pushing the narrative and helping other's in their country fight the Endo fight too. Things need to and won't change unless people like Alex, us, and many others push for better education, care, and advocacy.
We see and hear you, Alex!
Take a listen and let us know if you have any ideas for others in other countries.
https://linktr.ee/invisibleiconic
https://www.instagram.com/invisibleiconic/
In this episode we talk about how the effects that Endometriosis plays on our mental health. Keara walks us through:
-What gaslighting is
-The need to have a support group
-Understanding the challenges healthcare providers have in treating their patients
- "secondary Endo" what is that?
- Adjusting our mindset and emotions after disappointment and hopelessness.
- Ways to support your mental health with this invasive disease.
We talk about all these things and more as a way that you can recharge your battery.
https://nancysnookendo.com/
In this episode Karissa Cutler who is a Clinical Nutritionist and specializes in Functional Medicine will walks us through the importance of having good gut health and how she stands with her clients as she works with them. Without good gut health it can have a rippling effect on our everyday living. There are so many benefits to healing our gut:
- increased energy
- improve overall digestion system
- help keep down or heal inflammation
- help process hormones in our system
- decrease bloating
- heal underlying conditions that often go unaddressed
You wont want to miss some of these tools that will potentially give you a better quality of life and she gave three tips to help improve gut health that you can do at home!
If you want to contact Karissa:
IG @karissacutlerwellness or email at karissacutlerccn@gmail.com
Inge gets vulnerable with her story and the challenging obstacles of;
- being ignored
- being confronted with feeling crazy
- being misdiagnosed
- chasing symtoms, and a diagnosis
- navigating her own pain and diagnosis while being in healthcare
- figuring out next steps of "secondary Endo"
- hormone imbalance and finding solutions
and talking about how dealing with endometriosis doesn't stop life from happening all around us.
Inge's story and vulnerability will resonate with so many people, you wont want to miss it.
We're kicking March off with a bang of an Episode that you won't want to miss! It is Endometriosis Awareness Month and Women's History Month AND we couldn't think of anyone better than Nancy Petersen to have our first episode of March for the movement she has made and is continuing to make in the Endometriosis Community.
In this episode we ask questions and discuss the progression of the Endometriosis Community, with Nancy Petersen;
-Hormones
-Advanced training and how much it's grown, but there needs to be more
-Being educated will lend to better consultations
-Nancy's legacy
-The difference of philosophies with different doctors
- Warnings of the medication Lupron
- Broken medical systems
-Marrying modalities between Eastern and Western medicine
-Equipping yourself with tools that work for you
- Steps to have Dr.'s believe you on your symptoms and not be so gaslit to get to a diagnosis and treatment
...and so much more.
You're not going to want to miss out on this fun yet informative conversation with Nancy Petersen.
In this Episode we talk about different challenges of being a parent and dealing with debilitating pain. We recognize that we are fortunate to have children, but that doesn't mean that it's easy. We talk about secondary infertility and the guilt associated with leaning on others to help you because that pain is so bad. This is a very sensitive subject that many face on a multitude of levels, but they don't have to do it alone.
What we've learned and continue to learn walking through:
-Guilt
-Fear
-Pain
-Appreciation
-Life
- Making life altering decision
-Struggles with fertility
-Struggles with pregnancy
- Living life to the fullest
This wasn't the vision of parenthood we had, but it's one that we are learning to navigate. We know we're not alone with this, so don't feel like you are. Join us and lets walk this life together.
Chelsea invites us into her story. A story filled with delayed diagnoses, misdiagnoses, chased diagnoses, and trauma of being gaslit. Chelsea was made to feel like she was mentally ill because they had no other idea why should would be complaining of pain, an all too familiar story of many endometriosis patients. She walks us through how she because a better advocate for herself and others that have complicated cases. She also gives us hope that we can get the help we need to improve the quality of our lives.
If you've been:
-Misdiagnosed
-Gaslit
-Told her have a mental disability
-Been over medicated and under seen
-Had lingering effects of delayed diagnoses
-Used medicine as a band-aid for your pain
-Had to advocate hard to be heard
- Looking for hope
Then Chelsea's Story will resonate with you.
In this episode we have the massive honor of sitting down with Nancy Petersen from Nancy's Nook, which most know her today from an ever growing Facebook educational page for Endometriosis currently supporting about 170k people! Her mission for this page is, "Supporting you to understand the disease, advocate for your health, and get the best possible treatment." We believe she is the true pioneer and attribute the progress of Endometriosis treatment to her trail blazing years of traveling around, educating on this disease, and creating this group to support the ever growing numbers in the fight for this disease!
Nancy walks us through her journey of diagnosis, failed treatment with ablation surgery and a total hysterectomy leaving her with untreated leg pain, which ultimately lead her to finding Dr. Redwine and his studies.
Nancy tells us the story of forming Nancy's Nook with an effort to share information to people seeking non-big pharma education and research to all patients in effort to better advocate for themselves. Part of this education is knowing that endometriosis takes not only a physical toll on our bodies, but a toll on our mental health. Nancy talks about how far the Endometriosis and Adenomyosis community has come, however, the abundance of gaslighting and trauma is still too much.
Once given a diagnosis, if surgery is not done by a skilled Endometriosis surgeon, disease is often missed. We learn that reproductive organs such as, uterus, ovaries, cervix are not the main location of Endometriosis, but the lower pelvis is a big culprit to this invasive disease.
Nancy is a wealth of knowledge and educates for women's health.
She shares her expertise on:
- proper diagnosis
- gaslighting
- chronic pain
- proper education
- mental health resources
- continued advocacy on Endometriosis and other chronic diseases that often can be closely associated with Endometriosis.
Grab a cup of coffee or tea and a notebook because you will be enlighten along the way! We hope you enjoy and learn just as much as we did from Nancy Petersen!
https://nancysnookendo.com/
In this episode we have an honest, vulnerable, and raw conversation surrounding being an adult and communicating our endometriosis journey to our loved ones. Alanna's mom, Sharon, shares what she's learned as well as things she wished she would have known. We talk about ways that Alanna could have been better at effectively communicated her struggles with her endometriosis and adenomyosis journey to have gotten more support from her family. But also about the mental health and fatigue that comes along with these diseases that can make thinking outside of the now a little more hard because of how demanding the chronic disease is.
We hope you listen and share with you friends and family that support you in this journey.
We had the privilege of sitting down with Montana Glenn, of Glenn Family Wellness. We discuss the need to having a balanced approach with Western Medicine and Chinese Medicine when it comes to acupuncture. Which Montana was very lucky to be able to study in China where she got to see them treat BIG issues, listen to hear what different things they were treating with acupuncture and Chinese Medicine.
Montana explains how she first found out she very likely has Endometriosis and how many of her patients that come to her for fertility or infertility support find they may have Endometriosis as well. Montana talks all things inflammatory response, fertility, and proper acupuncture support. We also talked through ways to find a good acupuncturist that could help someone navigate fertility struggles or Endo questions.
IG: @glennwellness
https://www.glennwellness.com/
We talk to Matthew Preston of Colorado Nutrition and Matthew Mosebar, of In-House fitness about ways to readjust our minds about exercise and food.
What are misconceptions surrounding exercise and diet that are more toxic and harmful than helpful? Does more working out equal being healthier? Is every diet out there beneficial? We talk about healthy ways to approach whole body healing and health.
Matthew Preston, Colorado Nutrition
https://www.coloradonutrition.com/
Matthew Mosebar, In-House Fitness
https://www.inhouse.fitness/
These 8 ways that we have suggested can recharge your battery and set yourself up for a more successful year!
We talk about the ways that deplete your battery as well as ways that could potentially increase your capacity to enjoy more in life! Which we all know as chronic illness warriors this is something we hope for.
It's important for those with Endo or any chronic pain or illness to be more intentional with ways to live their life to the fullest! Here are 8 tools for your tool belt.
What tools will you set up for 2023?
In this episode get to know Shelby and Alanna as they share some funny stories and life experiences. Getting to know each other and the things that have formed and shaped who we are as people. It always helps to know more about the people that we invite into our life. We're ending 2022 with with a toast!
In this episode we talk about finding the best care for you, and not feeling married to your doctor just because you don't want to break your loyalty. We talk about things you should look for in your providers. Tips on finding a doctor, physical therapist, councilor, and other providers that can serve you well in your endometriosis, and overall health journey. We talk about red flags and green lights that will help create a better outcome in your journey.
In this episode we talk about finding the best care for you, and not feeling married to your doctor just because you don't want to break your loyalty. We talk about things you should look for in your providers. Tips on finding a doctor, physical therapist, councilor, and other providers that can serve you well in your endometriosis, and overall health journey. We talk about red flags and green lights that will help create a better outcome in your journey.
Full Episode will be available 12/21/22
We get the honor of talking and gaining knowledge from Leigh Flowers, a Pelvic Floor Physical Therapist. We learn how Leigh got into Pelvic Floor PT and how she found her passion in helping those with Endometriosis. We talk about deciphering Endo Pain vs. healing pain. What makes Pelvic Floor PT beneficial and how to choose the right Physical Therapist for your needs. This is a highly informative episode.
We get the honor of talking and gaining knowledge from Leigh Flowers, a Pelvic Floor Physical Therapist. We learn how Leigh got into Pelvic Floor PT and how she found her passion in helping those with Endometriosis. We talk about deciphering Endo Pain vs. healing pain. What makes Pelvic Floor PT beneficial and how to choose the right Physical Therapist for your needs. This is a highly informative episode.
Full Episode available 12/14/22
In this episode our husbands, dane and Elliot, are back and talking about ways that their battery was depleted as caregivers and things they did to recharge as caregivers. It's a very in-depth, raw, and vulnerable conversation that we hope creates a space for other caregivers to recharge.
Take a quick sneak peak at episode 6, Taking Care of Caregivers. Our husbands join us again to talk about ways that they struggled and ways they grew and recharged as caregivers.
Stay tuned for the full episode released 2-7-22. You won't want to miss this conversation
In this episode Shelby and Alanna are joined by their husbands, Dane and Elliot. They walk through Shelby and Alanna's Journeys as caregivers.
In this episode you will have a preview to Episode 5. Where was talk to our husbands about their caregiving roll in our Endo Journeys. Things they did that were crucial for us to function, as well as things they learned along the way.
Stay tuned for the full episode lunching 11/30/22
In this episode, Alanna walks us through her endometriosis journey, and the trials she faced even with an earlier diagnosis. She gives us insight into ways that she's recharging in her endo life today.
Take a peek at Alanna's Journey with Endo.
Alanna's Full Story will be ready to listen to November 23, 2022
In this episode Shelby walks us through her story of diagnosis, and her journey. As well as where she is in her developing Endo story.
Take a peak at episode 3, Shelby's Story. Where Shelby walks us through her Endo journey.
Full Episode Available for Download November 16th, 2022
In this episode we walk about the misconceptions and miscommunications surrounding Endometriosis and Adenomyosis, and what they really are.
In this episode we talk about the staggering statistics of endometriosis and how this podcast came to life. Why Endo Battery? We'll tell you that too.
Here's a sneak peek of episode 1 of Endo Battery, Staggering Statistics and How Endo Battery Was Formed. Stay tuned for the the full episode coming November 2022!