Parkinson's Association's of San Diego Microcast: Recent Episodes
Parkinson's Association of San Diego
Short podcasts, generally under 10 minutes, looking at all things Parkinson's. https://parkinsonsassociation.org
If you have Parkinson's, exercise is not an option. Exercise is currently the only known therapy available to everyone that is known to slow the progression. But, an exercise program has to be a bit fluid, changing with the flow of Parkinson's. Sometimes this means your exercise targets, or goal posts, move daily, sometimes yearly, but they always move.
In this short podcast, Jeff looks at the moving goal posts of exercise and why it's important to recognize and manage these moving targets.
As the team prepares for the 7th international trek for people with Parkinson's, led by nurse practitioner Sherrie Gould, we completed a 4-day training weekend in the western Sierra Mountains consisting of back to back five to 10 mile hikes at elevation.
The group arrives in Bali June 9th for an 8-day trek though this amazing Indonesian island.
These treks are "because we can!" The power of watching people with Parkinson's, some of whom have never done anything like this before, is amazing. Each person is getting stronger, fitter, more durable, and more confident as they move past their own limits.
Watch for more podcasts from the trail.
MEDRythms, and it's company, Movive, are redefining how music therapy can be combined with technology to potentially improve your walking and mobility. In this episode, MEDRythms founder Brian Harris tells us about the company, the technology, and the results they are seeing in people with Parkinson's.
Check out MEDRythms, click here.
Click here for the Parkinson's Association of San Diego.
BALI...the seventh international trek for people with Parkinson's led by nurse practitioner Sherrie Gould. Today is our traditional first training day hike around Lake Poway. This is a short, 3-mile walk on bumpy and rocky terrain and is the first of dozens of training hikes as the team prepares for eight days of 10-mile hikes in June with lots of elevation changes, challenging terrain, and the warm, humid air of Indonesia.
As with all the treks, this is a fundraising event for PASD. Click the link below to learn more about the trekkers and donate to the Parkinson's Association of San Diego on behalf of any of the hikers.
https://parkinsonsassociation.org/bali-trek-sponsorship/
The Parkinson's Plan is a new book by Drs. Michael Okun and Ray Dorsey. On January 27, 2026 Michael and Ray came to San Diego for a stop on their international book tour to talk about the causes, treatments, and living well with Parkinson's disease.
This is part four of four of the complete two-hour presentation. In this episode we hear the second half of the Q&A session.
Check out the book at https://pdplan.org/
For more information on the PASD, click here.
The Parkinson's Plan is a new book by Drs. Michael Okun and Ray Dorsey. On January 27, 2026 Michael and Ray came to San Diego for a stop on their international book tour to talk about the causes, treatments, and living well with Parkinson's disease.
This is part three of four of the complete two-hour presentation. In this episode we hear the first half of the Q&A session.
Check out the book at https://pdplan.org/
For more information on the PASD, click here.
The Parkinson's Plan is a new book by Drs. Michael Okun and Ray Dorsey. On January 27, 2026 Michael and Ray came to San Diego for a stop on their international book tour to talk about the causes, treatments, and living well with Parkinson's disease.
This 2-hour event was produced by the Parkinson's Association of San Diego and sponsored by Sharp Healthcare. We are presenting the unedited program on our podcast channel in four 30-minute parts. This is part 2 or 4.
Check out the book at https://pdplan.org/
For more information on the PASD, click here.
The Parkinson's Plan is a new book by Drs. Michael Okun and Ray Dorsey. On January 27, 2026 Michael and Ray came to San Diego for a stop on their international book tour to talk about the causes, treatments, and living well with Parkinson's disease.
This 2-hour event was produced by the Parkinson's Association of San Diego and sponsored by Sharp Healthcare. We are presenting the unedited program on our podcast channel in four 30-minute parts.
Check out the book at https://pdplan.org/
For more information on the PASD, click here.
"The Syn-One Test is a skin biopsy test that provides accurate pathological evidence to aid in the diagnostic evaluation of patients with clinical features suggestive of a synucleinopathy like Parkinson’s disease."
In this episode, Dr. Padma Mahant, the director of medical affairs at CND Life Sciences talks about the test, what can be learned from the results, and looks ahead with some thoughts about the future as it relates to Parkinson's disease.
Click here for more information on CND Life Science and the Syn-One test.
Part of the changes afoot at the Parkinson's Association of San Diego is the joining of Community Liaison Steve Steinberg. This is a new position at PASD. Steve, a licensed clinical social worker, will be picking up the phone and responding to emails, handing all our referral and information conversations.
Steve has been leading the young onset support groups and will continue at that but, he is your point of contact when you need anything from PASD.
In this short podcast we learn a bit about Steve and his drive to help everyone impacted by Parkinson's lead a better life.
Click here to welcome Steve to the Parkinson's Association of San Diego!
Today we welcome our new Executive Director Stephanie Murphy. After eight years former executive director Chris Buscher as decided to retire and Stephanie has taken over the reins. With a long career in non-profits and the public sector and a very personal relationship with Parkinson's and the Parkinson's Association of San Diego, we are all excited about what the future holds.
Join us as Stephanie talks about her vision of our future, her family and its journey with Parkinson's, and her [slightly] crazy pets.
To contact Stephanie, click here.
What happens when a very public author and journalist decides to tell their audience that they now have Parkinson's? In this powerful episode we meet Annmarie O'Connor, long time fashion editor of the Irish Examiner. Diagnosed in her 40's, join us as Annmarie looks back at the decision to go very public about her journey with Parkinson's.
To learn more about Annmarie and her new book, Twitch, click here (https://annmarieoconnor.me/)
Back in 2020, as the Covid pandemic began, a few of us got together and started a company called Coach Me Strong, an individualized exercise coaching program for people with Parkinson's. One of the first things we said to anyone who called to learn more about Coach Me Strong was, "No matter what you previous career was, now that you are diagnosed with Parkinson's your new career is as a professional athlete."
This was not meant to be off-putting but rather to impress that, with Parkinson's, exercise is not an option...the same as with any professional athlete.
In this episode Sasha Graham, host of the podcast, Sports Will Save Us All, joins us to reflect on the hundreds of interviews she has done with professional and amateur athletes and coaches about the professional athlete's mindset.
Check out her show, Sports Will Save Us All
And check out Coach Me Strong
Dr. Michael Okun, a neurologist at University of Florida, has spent almost 25 years researching Parkinson's and treating people with Parkinson's. Now, in one of the best written and most accessible books ever written on Parkinson's, Dr. Okun and Dr. Ray Dorsey lay out the plan:
- What causes Parkinson's?
- What can be done to prevent it?
- What do you do once you have it?
Listen in as we look at the history and the rapid rise of Parkinson's to a point where it is often being considered a pandemic.
For more information on The Parkinson's Plan and to purchase the book, click here: https://pdplan.org/
How do you prepare for your visit with your movement disorders specialist – your doctor, nurse practitioner, or PA? In this episode filled with practical guidance, Sherrie Gould, NP, CMRD, continues with her series about working with your medical care team.
Bring your care partner, write everything down, have your questions ready. Sherrie looks at this and much more as you get ready for your Parkinson's appointment.
We recently crossed the threshold of 100 podcasts and it's become an amazing collection of information related to living a better life with Parkinson's. However, it's always been difficult to find specific information in a specific episode...you had to scroll through all the titles.
We solved that this week with our new PASD Microcast Directory. Search by category, search by keyword, including the name of the guest, and quickly find the episodes that interest you. And you can still go right to the latest episodes.
Check it out. And if you have questions about the podcasts, or an idea for an episode, please let us know.
Podcast Directory: https://parkinsonsassociation.org/pasd-microcasts/
Contact us here: https://parkinsonsassociation.org/contact-pasd/
In this episode we continue our series with Sherrie Gould, NP, CMRD on the relationship between you and your care team. Sherrie looks at the benefits and value of seeing an advanced practice provider – a nurse practitioner or physician's assistant and provides some insight on the training, education, and experiences APPs have in the care of Parkinson's and other movement disorders.
If you have Parkinson's, should you see a neurologist who is a movement disorders specialist? A general neurologist? An advanced practice provider – nurse practitioner or PA? Or your primary care physician.
Although this may seem like an obvious series of questions, in this episode nurse practitioner Sherrie Gould unpacks some of the differences between these medical professionals and some of your options if you are facing a long wait to get an appointment to see a clinician.
When we conceived the topic for this microcast the idea was to talk about the differences for a coach working wth older athletes and younger athletes, or older people with Parkinson's who have to exercise and younger people, with or without Parkinson's, who want to exercise.
However, as the conversation developed, the apparent differences became less and less obvious.
Join Coach Tracey Jacobs, a cyclist having won world and national championships, and Jeff Seckendorf, age 70, coach and world record holder on the bike and Director of Operations at the Parkinson's Association of San Diego, as they unpack this seemingly simple topic.
For more information on Coach Tracey, click here: https://traceyjacobscoaching.com/
For Coach Me Strong, click here: https://coachmestrong.com/
For exercise opportunities at the Parkinson's Association of San Diego, click here: https://parkinsonsassociation.org/exercise-opportunities/
We hear occasionally that our website is so full of useful and important information about Parkinson's and each person's journey with Parkinson's that sometimes it can be overwhelming. Where to start? Where to look? What do I need today to help me?
To help ease that information-overload, we just created a series of "Quick Link" pages, basically landing pages to streamline your entry into the website. The first three are online now: Newly diagnosed, young onset, and care partners.
In this short microcast, Director of Operations Jeff Seckendorf gives you a bit more information about the pages and our thought process leading to their development.
Questions? Contact us here.
In episode #93 in June of 2024 we met Dr. Vamsi Chavakula for a discussion on MR-Guided Focused Ultrasound. Now we're back with part 2.
Dr. Chavakula, affiliated with Sharp Healthcare, has recently completed his 50th MR-Guided Focused Ultrasound procedure for people with Parkinson's disease and essential tremor. In this episode we look at recent advancements in the technology, discuss some of the differences between focused ultrasound and deep brain stimulation, and talk about some of the history of these treatments.
Click here for more information on treating movement disorders at Sharp.
For more information about the Parkinson's Association of San Diego, click here.
In this episode we meet Dr. Anna Halbeisen, a Doctor of Osteopathic Medicine board-certified in emergency medicine, sports medicine as well as neuromusculoskeletal/osteopathic manual medicine. We talk with Dr. Halbeisen about exercise and how that impacts your body from a medical perspective, particularly in people diagnosed with Parkinson's.
For more information about Dr. Halbeisen and her group medical visits, check out her website, https://drhalbeisen.com/
June 11, 2025. Mark your calendars. PASD's Director of Operations, Jeff Seckendorf, will attempt to break four world cycling records to support the Parkinson's Association of San Diego. In this episode Jeff switched roles from interviewer to interviewee as Sherrie Gould, NP asked Jeff about the ride, the bike, the velodrome, and what it's like to do an massively difficult event like this, but with purpose.
This ride is a fundraiser for the Parkinson's Association of San Diego. Please donate a fixed amount or pledge an amount per kilometer. Here's the link:
https://parkinsonsassociation.org/200km-challenge/
Click the link to learn more about Jeff, the ride, the bike, and to donate or pledge.
In this slightly longer episode, I was invited to speak to the North County Parkinson's Support Group in Oceanside, CA on the topic of mindfulness. In this half hour we look at rest and recovery for the body and for the mind, the difference between meditation and meditative, and we do a short, three minute guided meditation (if you are listening to this while driving, please do not close your eyes and meditate while hurtling down the freeway).
Thoughts or comments, please contact us by clicking here. https://parkinsonsassociation.org/contact-pasd/
Jeff Seckendorf
In this "sleepy" episode we are joined by Dr. Kevin McGehrin, a neurologist at the Neuron Clinic, to discuss issues of sleep in people with Parkinson's. Dr. McGehrin looks at some of the causes of trouble sleeping, discusses REM sleep behavior disorder, and talks about some of the things we can do to help facilitate good sleep.
For more information on the Parkinson's Association of San Diego, click here.
In this short microcast PASD's Director of Operations Jeff Seckendorf takes a look at some of the upcoming programs from the Parkinson's Association of San Diego. Listen and hear Jeff talk about our Mentor Program, or new education program for mental health professionals, our newly update free mobility device program, Empowerment Day, and much more.
For more information on these programs and much more, check out the website: https://parkinsonsassociation.org/
In this episode we get a primer on mail order pharmacies. Dave Randall has been a pharmacist for 30+ years and gives us the ins and outs, benefits and drawbacks to receiving your medications from a mail order pharmacy.
Have questions for us or for Dave? Contact the Parkinson's Association of San Diego here:
https://parkinsonsassociation.org/contact-pasd/
High Intensity MR Guided Focused Ultrasound is an alternative treatment for Parkinson's disease and essential tremor. In this fascinating episode, Dr. Vamsi Chavakula of the Sharp Hospital system, looks at the pros, cons, history, and future of HIFU.
Click here for more information on treating movement disorders at Sharp.For more information about the Parkinson's Association of San Diego, click here.
It's a rest day on the Kumano Kodo which gave me some time to sit down with Victory Over Parkinson's trekker John McCallan to hear his thoughts on how the hikes have gone so far and what Parkinson's means to him.
Be sure to watch our YouTube channel for current videos posted from the hike. Click here. https://www.youtube.com/@parkinsonsassociationsandiego
To donate on behalf of a trekker to support the Parkinson's Association of San Diego and Scripps Health's efforts to become a dopamine cell transplant center, click here.https://parkinsonsassociation.org/japan-trek-sponsorship/
People with Parkinson's powering past their limits – that's what this Victory Over Parkinson's trek is all about. On this eight day hike through the spectacular mountains in southern Japan we have two people in Aspen Neuroscience's dopamine cell replacement clinical trial for Parkinson's disease. In this episode we hear from Sherrie Gould, Mike McCallan talking about his brother, John, who has Parkinson's, and Elena Bertron, one of the participants in Aspen's trial.
Be sure to watch our YouTube channel for current videos posted from the hike. Click here. https://www.youtube.com/@parkinsonsassociationsandiego
To donate on behalf of a trekker to support the Parkinson's Association of San Diego and Scripps Health's efforts to become a dopamine cell transplant center, click here.
https://parkinsonsassociation.org/japan-trek-sponsorship/
In this, our first microcast from the trail, we hear from Dawn Van Dyke, one of 16 intrepid trekkers on this amazing Victory Over Parkinson's trek. Dawn brings us her thoughts after just two hours of hiking.
Be sure to watch out YouTube channel for current videos posted from the hike. Click here.
To donate on behalf of a trekker to support the Parkinson's Association of San Diego and Scripps Health's efforts to become a dopamine cell transplant center, click here.
The Kumano Kodo – Victory Over Parkinson's trek number six. The team of 16, five with Parkinson's, arrived in Japan and spent today exploring Tokyo. While wandering some of the parks and gardens of Tokyo we caught up with Tess Lesniewski. Tess was on the Victory Over Parkinson's Machu Picchu trek in 2016 and her mom, Elena Bertron, is on the Japan trek and is one of the participants in the Aspen Neuroscience cell replacement trial for Parkinson's.
In this short episode we hear from Tess, her mom Elena, and nurse practitioner Sherrie Gould about the trial what it's like to be one of the early participants.
You can still sponsor a Japan trekker to support the Parkinson's Association of San Diego. Click here.
As we get closer to the Victory Over Parkinson's Komano Kodo trek in Japan, Parkinson's Association of San Diego's Director of Operations Jeff Seckendorf takes a look back on the prior five treks and a look forward to the upcoming Japan trek. Jeff gives us a first hand look at what it takes to complete one of these trips while living with Parkinson's...ordinary people doing extraordinary things, pushing themselves past their limits and proving that Parkinson's does not have to be limiting.
For more information on the trek and to donate on behalf of a trekker, click here.
"Power Over Parkinson's" international trek number six! Nurse Practitioner Sherrie Gould has, over the past 14 years, led people with Parkinson's on fundraising treks to Kilimanjaro, Mt. Everest Base Camp, Machu Picchu, The Camino de Santiago, the Dolomites, and now, coming up in May 2024, the Kumano Kodo in Japan. Funds raised on this trip support the Parkinson's Association of San Diego along with research for stem cell transplant therapies.
In today's episode we catch up with Sherrie in the car on her way to the first training hike for Japan, this one in Poway, California. Stay tuned for many more episodes from the training and the trek.
To support a hiker on this amazing journey, click here:
https://parkinsonsassociation.org/japan-trek-sponsorship/
In this episode Phil Goodrich, Parkinson's Association of San Diego Board member, continues his story of his journey with DBS. Today Phil looks back on his Parkinons's diagnosis and some of the physical, emotional, and family issues that surrounded it.
In this episode Parkinson's Association of San Diego board member Phil Goodrich continues his story about his journey with DBS. Still a few weeks before surgery, Phil explores more about his personal journey with the decision, and the process, of getting deep brain stimulation implanted.
https://parkinsonsassociation.org/
In this episode of our Microcast Series, PASD Board member Phil Goodrich continues his story of his journey with DBS. Today Phil looks a bit more at what led him to DBS and what his process will look like.
Watch for future episodes as Phil takes us with him through his prep, surgery, recover, and outcome.
Beginning January 1, 2024 Scripps Clinic and Scripps Coastal will stop accepting Medicare Advantage plans. This leaves all Scripps patients on Medicare Advantage are facing some kind of change, and that change must be decided on by December 7, 2023.
This 30-minute interview is with Sophie Exdell of HICAP – Health Insurance Counseling and Advocacy Program, a division of Elder Law & Advocacy, a non-profit organization. Sophie explains some of the ins and outs of Medicare Advantage and some options for people wishing to stay with their Scripps doctors or willing to move to another health plan.
Scroll down to see links for more information from Elder Law & Advocacy – webinars and resources specific to the situation with Scripps and Medicare Advantage.
For links to more infomation about Medicare and Scripps, and the video version of this podcast, please click here:
https://parkinsonsassociation.org/medicare-advantage-and-scripps/
Phil Goodrich, Parkinson's Association of San Diego board member, is about to undergo deep brain stimulation surgery. What makes Phil's DBS journey unique is that he is going to take us along with him. Phil will be recording short microcast episodes as he prepares for surgery, goes through the surgery, then goes through the programming process.
In this first episode Phil talks about how he came to the conclusion that DBS is the best option for him.
Have comments or questions for Phil? Post them here and we'll pass them along:
https://parkinsonsassociation.org/contact-pasd/
The Parkinson's Association of San Diego has just released an education program for mental health professionals – social workers, clinical psychologists, and marriage and family therapists. As we recorded the interviews for this program we asked each person why they work with the Parkinson's community – what makes it rewarding.
In this short episode Adriana Gonzales, a social worker at the UCSD Parkinson's & Other Movement Disorders Center, tells us the rewards she sees working with People with Parkinson's and their families.
Contact the Parkinson's Association of San Diego here: https://parkinsonsassociation.org/contact-pasd/
Deep brain stimulation is becoming a more and more popular treatment for some of the symptoms of Parkinson's disease. In this episode we speak with Anna Manor of Boston Scientific. Boston Scientific is one of the three companies providing most of the DBS equipment to Parkinson's patients. Anna talks about the new technologies Boston Scientific has to offer and what it's like to be in a patient's first programming session after the deep brain stimulation surgery.
For more on Boston Scientific's DBS program, click here:
https://www.dbsandme.com/en.html
The 6th World Parkinson's Congress wrapped up a few days ago in Barcelona and as we all return to our lives in San Diego we caught up with Nurse Practitioner Sherrie Gould to get her thoughts on being together with thousands of people all living with Parkinson's or trying to find a way to make living with Parkinson's easier. Or, better yet, find a cure.
What are the benefits of having the administrative team from the Parkinson's Association of San Diego in Barcelona at the 6th World Parkinson's Congress? In this episode PASD Executive Director Chris Buscher give us his perspective on those benefits.
Meet Parkinson's advocate Ben Stecher. Ben was diagnosed with Parkinson's in 2013 at age 29 and almost immediately realized that he had to learn as much about Parkinson's as humanly possible. His drive and tenacity led him to all corners of the world meeting with the most renowned experts – scientists, researchers, doctors, authors, and advocates. Two books and ten years later Ben is still at it, now as a patient advocate at Rune Labs.
Jeff sat down with Ben at the World Parkinson's Congress to hear a bit more about his story.
Ben's journey: https://tmrwedition.com/my-pd-journey/
More about Rune Labs: https://runelabs.io/
The 6th tri-annual World Parkinson's Congress opened yesterday in Barcelona, Spain. Executive Director Chris Buscher, board member Lisa Evans, and Director of Operations Jeff Seckendorf are all at the WPC for different reasons. In this short, first episode from Spain, Jeff talks with Lisa about some of the chaos associated with getting the Mentor Program booth set up.
Check out the Parkinson's Association Mentor Program by clicking here.
https://mentors.parkinsonsassociation.org/
In this episode we explore biofeeback and neurofeedback with Lisa Tataryn.
Lisa is a Clinical Neuroscientist at the SMARTPD Program focusing on computational brain modeling for non-invasive interventions for tracking and managing Parkinon’s symptoms. She is a board-certified Neurofeedback practitioner and a Certified Functional Medicine Health Coach specializing in Parkinson’s disease and the Bredesen Protocol for dementia prevention.
Join us to learn more about biofeeedback and neurofeedback for people with Parkinson's.
To check out Smart PD and contact Lisa, click here.
In this short episode Dr. Joanne Hamilton, neuropsychologist at the Scripps Clinic Medical Group, tells us a little about some of the rewards of working with people with Parkinson's.
Click here to contact the Parkinson's Association of San Diego.
Technology with DBS, or Deep Brain Stimulation, is advancing as fast as any tech these days. In this episode we speak with Shawn McMenamin of Abbott Pharmaceuticals and Nurse Practitioner Sherrie Gould of Scripps Clinic about some of this new technology, including Abbott's "Virtual Clinic," also known as remote programming. Hear about the benefits and challenges from Shawn and Sherrie.
For more on Abbott DBS, click here.
To contact the Parkinson's Association of San Diego, click here.
What is a social worker? How can a social worker benefit someone living with Parkinson's. What is the difference between a social worker and a psychologist? Do social workers do therapy or counseling?
In this episode Licensed Clinical Social Worker Adirana Gonzlez addresses these questions and much more as we discuss finding, and working with, a social worker.
The Parkinson's Association of San Diego is hosted its "Good Start Program" seminar on Wednesday, March 1st from 1 p.m. to 3 p.m. at the First United Methodist Church, 2111 Camino Del Rio South, San Diego, CA 92108.
Designed for newly diagnosed Parkinson's patients and their care givers/care partners, the seminar is a 2-hour session followed by Q&A. It will feature Dr. Brenton Wright, UCSD Movement Disorders Neurologist; PASD Board President Marty Acevedo; Jessie Agrimas, DPT, PASD Board member and 360 NeuroLab President; Irene Miller, Fallbrook Support Group Team Leader; and PASD Executive Director Chris Buscher.
In this episode with talk with Dr. Wright about the medical portion of the Good Start Program.
To listen to the complete recording of the March 1, 2023 Good Start Program:
Click here.
The Parkinson's Association of San Diego is hosting its next "Good Start Program" seminar on Wednesday, March 1st from 1 p.m. to 3 p.m. at the First United Methodist Church, 2111 Camino Del Rio South, San Diego, CA 92108.
Designed for newly diagnosed Parkinson's patients and their care givers/care partners, the seminar is a 2-hour session followed by Q&A. It will feature Dr. Brenton Wright, UCSD Movement Disorders Neurologist; PASD Board President Marty Acevedo; Jessie Agrimas, DPT, PASD Board member and 360 NeuroLab President; Irene Miller, Fallbrook Support Group Team Leader; and PASD Executive Director Chris Buscher.
In this episode with talk with NeuroLab360's Jessie Agrimis, DPT, on the exercise portion of the Good Start Program.
Use this link to register for the March 1, 2023 Good Start Program (register early, space is limited):
https://parkinsonsassociation.org/good-start-program-registration-march-2023/
Contact Jessie at NeuroLab360:
https://www.neurolab360.com/
The Parkinson's Association of San Diego is hosting its next "Good Start Program" seminar on Wednesday, March 1st from 1 p.m. to 3 p.m. at the First United Methodist Church, 2111 Camino Del Rio South, San Diego, CA 92108.
Designed for newly diagnosed Parkinson's patients and their care givers/care partners, the seminar is a 2-hour session followed by Q&A. It will feature Dr. Brenton Wright, UCSD Movement Disorders Neurologist; PASD Board President Marty Acevedo; Jessie Agrimas, DPT, PASD Board member and 360 NeuroLab President; Irene Miller, Fallbrook Support Group Team Leader; and PASD Executive Director Chris Buscher.
In this episode with talk with Marty Acevedo on some of the personal aspects of being diagnosed with Parkinson's and how you can live your best life post-diagnosis..
Use this link to register for the March 1, 2023 Good Start Program (register early, space is limited):
https://parkinsonsassociation.org/good-start-program-registration-march-2023/
The Parkinson's Association of San Diego is hosting its next "Good Start Program" seminar on Wednesday, March 1st from 1 p.m. to 3 p.m. at the First United Methodist Church, 2111 Camino Del Rio South, San Diego, CA 92108.
Designed for newly diagnosed Parkinson's patients and their care givers/care partners, the seminar is a 2-hour session followed by Q&A. It will feature Dr. Brenton Wright, UCSD Movement Disorders Neurologist; PASD Board President Marty Acevedo; Jessie Agrimas, DPT, PASD Board member and 360 NeuroLab President; Irene Miller, Fallbrook Support Group Team Leader; and PASD Executive Director Chris Buscher.
In this episode with talk with Irene Miller and her role as a care partner in Good Start.
Use this link to register (register early, space is limited):
https://parkinsonsassociation.org/good-start-program-registration-march-2023/
EN ESPAÑOL – Asociation de Parkinson Episodio #72 - Cindy Lopez de Renue Health con Lisbeth Garces.
Reneu Health, es un equipo de kinesiólogos clínicos con experiencia en ejercicios preventivos y de rehabilitación para personas mayores y personas con Parkinson.
En este episodio Lisbeth habla con Cindy Lopez de los beneficios de un programa de ejercicio estructurado en comparación con un ejercicio realizado por su cuenta.
PASD Microcast ESPAÑOL #72 - Cindy Lopez from Renue Health with Lisbeth Garces.
THIS EPISODE IS IN SPANISH. Reneu Health is a team of experienced clinical kinesiologists who specialize in preventive and rehabilitative exercise for seniors and people with Parkinson's.
In this episode Lisbeth talks to Cyndy Lopez about the benefits of a structured exercise program compared to exercising on your own.
In this episode we meet Slim Shaky, also known as Joni Lowe. Joni's son, Sequoia, made the video with Joni and her friend, Heather Kennedy. "SLIM SHAKY is a Parkinson's rap anthem that captures the struggle and the strength of two vibrant women who live with it every day."
From Sequoia:
*"I made SLIM SHAKY to give people with Parkinson's a voice, to spread awareness of life with PD, to show people with Parkinson's that they're not alone, and to raise funds for a cure. And I made SLIM SHAKY because I love my mom.
It was years ago that I first said at the family dinner table that I wanted to make a rap music video for my mom, but I meant it as a joke. My mom's never been into rap music or rapping, and that's exactly what made it so compelling. Even when I thought of the name "Slim Shaky", she just smiled and rolled her eyes, but I wasn't planning on making it happen."*
Listen to the episode to hear Joni's story and learn more about Slim Shaky.
Direct link to the Slim Shaky video:
https://youtu.be/eD2nghI2k0A
To read Sequoia Lowe's story about the video and to donate to Michael J. Fox Foundation, click here:
https://fundraise.michaeljfox.org/tf-2022/slimshaky
The Parkinson's Association of San Diego:
https://parkinsonsassociation.org/
Reneu Health is a team of experienced clinical kinesiologists who specialize in preventive and rehabilitative exercise for seniors and people with Parkinson's. In this episode Jeff talks with Reneu founder Chris Corpuz about Reneu's in-home and in-facility exercise programs and Marty Acevedo, Parkinson's Association of San Diego's Board President about her experiences at Reneu Health.
https://www.reneu-health.com/
Contact the Parkinson's Association, click here.
Medtronic's Pat McDonnell has been working with Deep Brain Stimulation technology for over 20 years. In this episode Pat offers his thoughts on DBS and gives us his perspective on being an exhibitor at the Parkinson's Association of San Diego's Empowerment Day.
For more information on DBS from Medtronic, click here.
http://www.medtronic.com/DBS
For more information about how the Parkinson's Association of San Diego can help you, click here.
In this episode we're joined by Emory D'Andrea, a Speech Language Pathologist and certified LSVT LOUD/eLOUD provider at Carmel Mountain Rehabilitation and Healthcare Center. Emory gives us some insights into how the LSVT LOUD and eLOUD programs can help anyone with Parkinson's who is finding their voice becoming a bit more quiet.
Emory can be reached at THINKeLOUD@gmail.com or 410-980-0922.
https://parkinsonsassociation.org/
YOPD, or young onset Parkinson's disease, affects those diagnosed with Parkinson's in their 20's, 30's, 40's and 50's. In this episode support group leader Trace Hill introduces us to "Park's on the Park," San Diego's YOPD support group, and some of the ways anyone who was diagnosed at a younger age can benefit from meeting with other's with YOPD.
For more information on YOPD's "Parks in the Park," click here.
Fore more resources on YOPD, click here.
The Parkinson's Association of San Diego
Meet Matt Soto, the director of the San Diego State University Adaptive Fitness Clinic.
Serving those with minor to severe disabilities, the SDSU Adaptive Fitness Clinic is a community outreach program through the School of Exercise and Nutritional Sciences at San Diego State University. Founded in 1983, the Fitness Clinic serves those from the San Diego region with a wide variety of physical disabilities and offers them the opportunity to reach their fitness and exercise goals. A place is provided which allows clients to develop management skills for their disabilities. Clients’ ages have ranged from 2 to 98 years.
The fitness clinic also serves as an educational experience for SDSU Kinesiology students, including those majoring in prephysical therapy, athletic training, and fitness specialist. Students, under the direct guidance and supervision of faculty and staff, work directly with the clients on a variety of exercises and activities.
For more information, contact Matt Soto:
https://ens.sdsu.edu/adaptive-fitness-clinic/
matt.soto@sdsu.edu
(619) 594-0840
The 2022 Power Over Parkinson's Dolomite Mountain Trek in Italy is over, but the hikes and events of that week will stay with all of us for a lifetime. I had the most incredible experience hiking for the week with Alex Trepte, one of the four people on the trek with Parkinson's.
Alex has this thing – he runs at the end of every hike. And for someone who occasionally has issues just walking with Parkinson's, this is one of the most powerful things I've ever seen.
I try to put it into words in this short episode, but please click the link below to watch the short, 20-second video of Alex and I running the last few meters of the last hike on the last day.
Jeff
https://player.vimeo.com/video/754336046
To read Alex and Becky's story and why they did this, their second Power Over Parkinson's Trek, and to donate to the Parkinson's Association of San Diego in honor of Alex, click here:
https://parkinsonsassociation.org/donations/alexander-becky-trepte/
We survived our first hike in snowy, icy, and very cold conditions. On this day, the whole team rose to the occasion – dressed properly, waling carefully, helping each other, we made a steep descent and arrived at our first coffee stop of the day. With this team, coffee (and bombardinos – a rum, eggs, and whipped cream drink) are always a welcome treat after a hard hike.
This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers. All the donations stay within the San Diego Parkinson's community...all the expenses for this trek were paid by the individual hikers.
Thanks for listening and we look forward to sharing this trek to Italy's Dolomite Mountains through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
IT'S SNOWING ON THE MOUNTAIN! We woke up to an unexpected four inches of snow covering the mountain. In this short episode we hear from the team at breakfast as each person looks forward to the excitement of the day.
This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers. All the donations stay within the San Diego Parkinson's community...all the expenses for this trek were paid by the individual hikers.
Thanks for listening and we look forward to sharing this trek to Italy's Dolomite Mountains through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
In this short episode Gina Lupino, one of our amazing Parkinson's patients on the Dolomite trek, looks at some of the challenges she faces in the mountains, including finding a private place to pee, and talks about the inspiration of the other three people hiking with Parkinson's.
This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers. All the donations stay within the San Diego Parkinson's community...all the expenses for this trek were paid by the individual hikers.
Thanks for listening and we look forward to sharing this trek to Italy's Dolomite Mountains through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
Will Kauffmann, now living in Luxembourg, joined the Power Over Parkinson's trek to support his long time family friend John Crawford, but now also has a very personal connection to Parkinson's.
This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers. All the donations stay within the San Diego Parkinson's community...all the expenses for this trek were paid by the individual hikers.
Thanks for listening and we look forward to sharing this trek to Italy's Dolomite Mountains through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
On our day three hike, Alex Trepte, another of our hikers with Parkinson's, talks about how hard it can be to accept help, even though everyone around him is willing to offer it.
This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers. All the donations stay within the San Diego Parkinson's community...all the expenses for this trek were paid by the individual hikers.
Thanks for listening and we look forward to sharing this trek to Italy's Dolomite Mountains through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
Day three: in this episode Lisa Graham tells us what brought her to her third Power Over Parkinson's trek.
This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers. All the donations stay within the San Diego Parkinson's community...all the expenses for this trek were paid by the individual hikers.
Thanks for listening and we look forward to sharing this trek to Italy's Dolomite Mountains through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
Day three: meet John Crawford, one of our trekkers with Parkinson's. In this short episode John tells us why he travelled to Italy to join the Power Over Parkinson's trek.
This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers. All the donations stay within the San Diego Parkinson's community...all the expenses for this trek were paid by the individual hikers.
Thanks for listening and we look forward to sharing this trek to Italy's Dolomite Mountains through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
And we're ready to go on day two! After a long introduction to the Dolomites yesterday, the team is gathered at the start for day two, a shorter, more gentle hike than day 1. In this episode we check in with a few of the team members just minutes before we start.
This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers. All the donations stay within the San Diego Parkinson's community...all the expenses for this trek were paid by the individual hikers.
Thanks for listening and we look forward to sharing this trek to Italy's Dolomite Mountains through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
One of our amazing guides, Anna Vecellio Del Monego of Dolomite Treks, offers her take on the team, the motivation, the determination, and the joy she gets from guiding this powerful team of people with Parkinson's and those connected to people with Parkinson's.
This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers. All the donations stay within the San Diego Parkinson's community...all the expenses for this trek were paid by the individual hikers.
Thanks for listening and we look forward to sharing this trek to Italy's Dolomite Mountains through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
Day 1 of the Power Over Parkinson's Dolomites Trek is in the books. 20 km/about 12.5 miles and 3600 feet of vertical gain, this was a tough hike for anyone regardless of Parkinson's. In this short episode, nurse practitioner Sherrie Gould looks at the power of the team as we made our up and down narrow challenging terrain.
This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers. All the donations stay within the San Diego Parkinson's community...all the expenses for this trek were paid by the individual hikers.
Thanks for listening and we look forward to sharing this trek to Italy's Dolomite Mountains through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
Half way through our day one hike, Elena Andrew gives us a little insight on why she continues to travel the world for these Power Over Parkinson's mountain treks.
This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers. All the donations stay within the San Diego Parkinson's community...all the expenses for this trek were paid by the individual hikers.
Thanks for listening and we look forward to sharing this trek to Italy's Dolomite Mountains through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
We are hiking! With about half the team assembled in Cortina we did our first acclimatization hike to a spectacular refugio overlooking the whole valley. Today we all got a look at just how powerful these mountains are. The trek officially starts with a welcome dinner tomorrow, then our 8-day adventure begins.
The magic of this trek is being with the people with Parkinson's. Digging deep and pushing through whatever Parkinson's disease can throw at them, this group epitomizes grit, determination, and a desire to accomplish something incredible.
This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers. All the donations stay within the San Diego Parkinson's community...all the expenses for this trek were paid by the individual hikers.
Thanks for listening and we look forward to sharing this trek to Italy's Dolomite Mountains through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
We are one flight away from Italy. Jeff, Sherrie, and Marilyn are meeting up with most of the Dolomites team members tomorrow. In this episode we take a final look back at the 2013 Mt. Everest Base Camp trek with three short clips: Sherrie talking about a medical condition that caused two of our team to turn around just one day shy of Base Camp; a clip from Bob Baker about a yak attack and a very personal story about the trek; and finally Bill Maddox, one of our trekkers with Parkinson's, on reaching base camp.
This trek is a fundraiser for the Parkinson's Association of San Diego so, if you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers.
Thanks for listening and we look forward to sharing the trek to the Dolomite Mountains in Italy through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
After four years of planning and three years of cancellations we are finally on our way to Italy and the Dolomite Mountains. In this short episode your podcast host Jeff Seckendorf, Nurse Practitioner Sherrie Gould, and trekker Marilyn McCrary are close to boarding an airplane for Italy. Listen in as we are now just a few hours from joining the rest of the team in Cortina for this amazing adventure.
This trek is a fundraiser for the Parkinson's Association of San Diego so, if you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers.
Thanks for listening and we look forward to sharing the trek to the Dolomite Mountains in Italy through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
The Dolomite team is on its way! This trek, in support of the Parkinson's Association of San Diego, starts in a few days as team members are making their way to Cortina, Italy. In this episode we take another look back to 2013 and the trek to Mt. Everest Base Camp, this time hearing from father and son team Alan and Adam Truitt along with a clip from our guide, Vern Tejas.
This trek is a fundraiser for the Parkinson's Association of San Diego so, if you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers.
Thanks for listening and we look forward to sharing the trek to the Dolomite Mountains in Italy through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
During this episode, as we make our last few days of preparation for the Dolomite Trek, we are joined by nurse practitioner Sherrie Gould for a look back at trek number two to Mt. Everest Base Camp in 2013. Listen in as Sherrie describes that team's reaction to seeing Mt. Everest for the first time and then looks ahead to talk about the training the team has done for the Dolomites.
This trek is a fundraiser for the Parkinson's Association of San Diego so, if you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers.
Thanks for listening and we look forward to sharing the trek to the Dolomite Mountains in Italy through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
We're going to the Dolomites! After years of delays due to the pandemic, the trek is finally happening. The team starts to arrive in Italy this Friday, September 9, 2022. We will be recording daily microcasts during the trek and, as a bit of a teaser, in this episode and the next few we will rerun some of the microcasts we recorded on the trek to Mt. Everest Base Camp in 2013.
As we look back on the Mt. Everest trek and look forward to the Dolomite trek you will hear, in the voices of those with Parkinson's and those who care for the trekkers with Parkinson's, the grit, determination, and drive to succeed at something that can seem, at times, impossible.
This trek is a fundraiser for the Parkinson's Association of San Diego so, if you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers.
Thanks for listening and we look forward to sharing the trek through these short podcasts.
https://parkinsonsassociation.org/sponsor-a-hiker/
Balance – one of the most important issues in Parkinson's. In this episode doctor of physical therapy Megan George of NeuroLab360 defines balance and addresses some of the reasons balance can be challenging in Parkinson's.
The Parkinson's Association of San Diego
https://parkinsonsassociation.org
NeuroLab360
https://www.neurolab360.com/
Continuing our short series on balance in Parkinson's, in this episode doctor of physical therapy Kristine Negrete of NeuroLab360 looks at some of the ways physical therapy can help with balance issues for anyone living with Parkinson's.
The Parkinson's Association of San Diego
https://parkinsonsassociation.org
NeuroLab360
https://www.neurolab360.com/
Dual tasking, or doing more than one thing at a time, can be a challenge for many of us, but more so with Parkinson's. In this episode doctor of physical therapy and co-founder of NeuroLab360, Kristine Negrete, looks at some of the ways they can help people with Parkinson's multi-task.
The Parkinson's Association of San Diego
https://parkinsonsassociation.org
NeuroLab360
https://www.neurolab360.com/
Physical therapy has traditionally been prescribed and paid for within the hospital and insurance company setting. But NeuroLab360 has chosen a different model for PT services. NeuroLab360 is a non-profit provider of physical therapy, founded by three doctors of physical therapy. In this episode, co-founder Meagan George looks at the advantages of a self-pay, non-profit model.
NeuroLab360
https://www.neurolab360.com/
Parkinson's Association of San Diego
https://parkinsonsassociation.org/
Everyone connected to Parkinson's knows how important exercise is in helping to manage the symptoms and slow the progression of the disease. But some of the most critical stages in any structured exercise program are rest and recovery. The time between exercise sessions is where "adaptation" occurs. Adaptation is the strengthening of the muscles in response to exercise or training.
In this episode Jeff interviews doctor of physical therapy –and co-founder of NeuroLab360 – Jessie Agrimis, on recovery, rest, and adaptation.
NeruoLab360
https://www.neurolab360.com/
Parkinson's Association of San Diego
https://parkinsonsassociation.org/
How much do you really eat? If you are managing your weight, or exercising more than before, or you're just curious, tracking your intake in a food diary is a great way to get a clear picture of your diet. In this episode registered dietitian (and Parkinson's Association of San Diego board member) Marty Acevedo looks at the ins and outs of tracking your food.
https://parkinsonsassociation.org/
"Aging up" is inevitable. Retirement may be inevitable. Many of us completely identify with our jobs and careers as our "purpose." But when that job, or career, goes away, how do you continue to find purpose in your life? In this episode Partner in Aging's Jonathan Schwartz looks at the power and joy that comes from finding purpose at any stage in life.
https://partnerinaging.com
https://parkinsonsassociation.org
Parkinson's Association board member Lisa Evans is also a PASD mentor, guiding "mentees" through their journey with Parkinson's. In this episode Lisa gives us some insight on the mentor program from the perspective of a mentor – what she gets out of being a mentor who can help others as they navigate and embrace life with Parkinson's.
For more information on the PASD Mentor Program, click here.
https://mentors.parkinsonsassociation.org/
Doing two things at once – something we all do, but also something that can be more challenging with Parkinson's Disease. NeuroLab360 co-founder Jessie Agrimis, DPT, looks at some of the ways a physical therapist can help train the brain to multi-task.
https://www.neurolab360.com/
https://parkinsonsassociation.org/
Exercise. It's still the only therapy known today that can slow the progression of Parkinson's disease. One of the exercise options that is taking the Parkinson's community by storm is Rock Steady Boxing. In this episode Mike Reeder of Rock Steady Boxing Downtown (San Diego) gives us some insights on boxing, having fun, and training like a tough fighter.
Rock Steady Boxing Downtown:
www.boxfitsd.com
619-458-9000
info@boxfitsc.com
https://parkinsonsassociation.org/
One of the crazy things about Parkinson's disease is that no two people with Parkinson's are alike. The disease manifests differently in each person. In this episode Lisa Evans, Parkinson's Association of San Diego board member and newly diagnosed with young onset Parkinson's, takes us through her exercise regime. Lisa's program is not necessarily for anyone else, but she gives a great insight into what it takes to keep Parkinson's at bay and, hopefully, slow its progression.
https://parkinsonsassociation.org/
The diagnosis of Parkinson's is, generally, life-changing. But it's not all bad. In this episode Dr. Abigail Lawler offers some guidance for the newly diagnosed and their care partners.
With a Parkinson's diagnosis, home safety becomes an issue, particularly if falling manifests as a symptom. In this episode Paige Hargis, who works for the Trauma Service at Scripps Memorial Hospital in LaJolla as the Injury Prevention and Community Outreach Coordinator, looks at some of the options and resources to make a home safer.
Resources:
Parkinson's Association of San Diego Resource Center:
https://parkinsonsassociation.org/courses/pasd-resources/
CDC "Check Your Risk" Form
https://www.cdc.gov/steadi/pdf/STEADI-Brochure-StayIndependent-508.pdf
San Diego County Aging and Independent Services
https://www.sandiegocounty.gov/content/sdc/hhsa/programs/ais.html
Jewish Family Services "FixIt" program
https://www.jfssd.org/our-services/older-adults/home-safety-modification/
North County Interfaith Services home assessment
https://www.interfaithservices.org/program/self-sufficiency-supportive-services/
Care partners of people with Parkinson's: these are people with angel wings. But one of the traps of taking care of someone with Parkinson's is not taking care of yourself. In this episode Jessie Agrimis, DPT, looks at some of the ways care partners can be good to themselves, can stay strong, so everyone can lead stronger, healthier, happier lives.
Parkinson's Association Mentor Program
https://mentors.parkinsonsassociation.org/
NeruoLab360
https://www.neurolab360.com/
Parkinson's Association of San Diego
https://parkinsonsassociation.org/
Dementia. This is a very difficult topic in Parkinson's, both for the person who is starting to experience dementia and for the person caring for their loved one. In this episode Dr. Abigail Lawler, movement disorder specialist and medical director of the Parkinson's Association of San Diego, looks at some of the day to day issues faced by both people with Parkinson's and their care partners.
https://parkinsonsassociation.org/
Downsizing. Is the idea terrifying? Or something to look forward to? Gerontologist Jonathan Schwartz looks at the challenges and upsides – along with some available resources – of moving into a smaller, easier to manage space.
Jonathan is the founder of Partner in Aging:
https://partnerinaging.com/
Check out the Resource Center on the Parkinson's Association of San Diego website:
https://parkinsonsassociation.org/courses/pasd-resources/
Entering a hospital, for any reason, is almost aways stressful, and that's compounded if you have Parkinson's. In this episode Dr. Abigail Lawler, movement disorder specialist and medical director of the Parkinson's Association of San Diego, looks at some of the concerns for a care partner and has some guidance on managing the early stages of a hospital visit.
Aware in Care Hospital Kit:
https://www.parkinson.org/Living-with-Parkinsons/Resources-and-Support/Hospital-Kit
The Parkinson's Association of San Diego
https://parkinsonsassociation.org/
We've heard from everybody – doctors, nurse practitioners, dietitians, coaches, personal trainers – why it's so important for people with Parkinson's to exercise. In this episode Jessie Agrimis, DPT and co-founder of NeuroLab360, gives us a physical therapist's perspective on why it's critical that people with Parkinson's have a consistent exercise routine.
For more information on NeuroLab360, click here:
https://www.neurolab360.com/
For more information on the Parkinson's Association of San Diego, click here:
https://parkinsonsassociation.org/
Each year the Parkinson's Association of San Diego holds a 5K walk at Liberty Station in San Diego. In this episode, 2022 walk chair Lisa Evans gives us a short look at the reasons we hold the Walk, some of her expectations, and some of the amazing stories she's seen at prior Walks.
To register for the 2022 5K Walk, click here:
https://raceroster.com/events/2022/54177/fighting-parkinsons-step-by-step-5k
For more information on the Parkinson's Association of San Diego, click here:
https://parkinsonsassociation.org/
When people think about weight management, usually it's related to weight loss. But in Parkinson's it might be more important to maintain or even add weight. Registered dietitian and nutritionist Marty Acevedo discusses managing your weight while living with Parkinson's.
https://parkinsonsassociation.org/
What happens if you have Parkinson's and you're in physical therapy and your insurance for PT runs out. This is often a difficult situation if you get to a point where you are benefiting from PT but your insurance company says your PT is no longer medically necessary. In this episode Jessie Agrimis, DPT and co-founder of NeuroLab360 addresses this issue.
https://parkinsonsassociation.org/
https://www.neurolab360.com/
NeuroLab360 – a non-profit rehabilitation and wellness center specializing in working with those with neurological challenges such as Parkinson's disease – has opened in San Diego. Founder and president Jessie Agrimis, DPT spent a few minutes with us to describe the facility, the services, and the reasons she and her partners opened NeuroLab360.
https://www.neurolab360.com/
https://parkinsonsassociation.org
Peeing. Another topic that if you are living with Parkinson's, you've probably talked about. Urinary issues are common in Parkinson's and here to give us a brief overview is Nurse Practitioner Sherrie Gould.
https://parkinsonsassociation.org/
Oral dopamine – one of the most common prescribed drugs for people with Parkinson's. But how do you best manage taking the dopamine with your meals? Registered dietitian Marty Acevedo looks at timing your food intake – particularly protein – with your Carbidopa/Levodopa.
https://parkinsonsassociation.org
Normally, when we talk about weight loss, we're talking about trying to lose weight. But that's not always the case, especially if you're living with Parkinson's disease – it may be that you need to put some weight back on. For more on managing weight with Parkinson's, here is nurse practitioner Sherrie Gould.
https://parkinsonsassociation.org
It might not be for everyone, but there is some research that fasting could have some benefit for people with Parkinson's. Registered Dietitian Marty Acevedo takes an objective look at fasting – what is it, what are the benefits, what are the risks.
https://mentors.parkinsonsassociation.org/
One of the diets that has been in the news recently is the keto diet. This is a nutritional plan that involves eating fats as a high percentage of your daily intake, putting your body into a state of ketosis. However, this is not without its downfalls and dangers. Here to give us an honest look at the keto diet is registered dietitian Marty Acevedo.
https://parkinsonsassociation.org/
Sleep. Is it your favorite thing? Or is it elusive. Sleep disorders can be part of Parkinson's, and here to tell us a bit more about dealing with sleep dysfunction is nurse practitioner Sherrie Gould.
https://parkinsonsassociation.org/
Although everyone with Parkinson's can experience different symptoms, as no two cases of Parkinson's are identical, some of the common symptoms are quiet speech, difficulty swallowing, and occasional drooling. In this episode nurse practitioner Sherrie Gould takes a look at those three symptoms and some of the things your medical providers can do to help.
https://parkinsonsassociation.org/
What you eat is so important to your health regardless of whether you have Parkinson's. In this episode Marty Acevedo, a Registered Dietician and Nutritionist and a board member of the Parkinson's Association of San Diego, looks at the Mediterranean diet and some of its advantages for anyone living with Parkinson's.
https://parkinsonsassociation.org/
The Parkinson's Association of San Diego's website is filled with information that can help every person living with Parkinson's and their families and care partners. In this episode, Executive Director Chris Buscher takes us through some of the highlights of the website.
https://parkinsonsassociation.org/
Do you ever feel dizzy, or light-headed when you stand up? This is often due to low blood pressure, a very common symptom in Parkinson's. Known as neurogenic orthostatic hypotension, nurse practitioner Sherrie Gould explains some of the causes of low blood pressure in Parkinson's and some of the things you can do to combat it.
https://parkinsonsassociation.org/
Continuing our discussion on fatigue in Parkinsons, Nurse Practitioner Sherrie Gould looks at exercise and other ways to combat this very common symptom in Parkinson's disease.
https://parkinsonsassociation.org/
Fatigue can be a frustrating yet common symptom in Parkinson's Disease. In this episode of the Parkinson's Association of San Diego Microcasts, nurse practitioner Kathy Huynh talks about fatigue, being tired, and some of the things you can do about it.
https://parkinsonsassociation.org/
One of the early symptoms of Parkinson's is something called micrographia, which is small handwriting. In this episode of the Parkinson's Association of San Diego Microcasts nurse practitioner Sherrie Gould gives us a little background on micrographia and some of your options to address it.
https://parkinsonsassociation.org/
Mood disorders – apathy, depression, anxiety, and others – can be common symptoms in Parkinson's disease. In this episode of the Parkinson's Association of San Diego Microcasts nurse practitioner Kathy Huynh talks about some of these non-motor symptoms in Parkinson's and what you – and your movement disorder specialist – can do about them.
https://parkinsonsassociation.org/
The Parkinson's Association of San Diego Resource Center is a collection of information for anyone with Parkinson's or caring for someone with Parkinson's disease. Set up in an online class format, the Resource Center includes websites, webinars, podcasts, documents, and much more. Check out the Resource Center:
https://parkinsonsassociation.org/courses/pasd-resources/
Atypical Parkinson's includes a range of movement disorders that can appear to be Parkinson's disease, but are not. In this episode of the Parkinson's Association of San Diego Microcasts nurse practitioner Sherrie Gould talks about some of the forms of atypical Parkinson's and what the movement disorder community can do to treat them.
https://parkinsonsassociation.org/
In this episode of the Parkinson's Association of San Diego Microcasts, nurse practitioner Kathy Huynh talks about cognition changes that could occur with the onset of Parkinson's disease.
https://parkinsonsassociation.org/
In this episode of the Parkinson's Association of San Diego Microcasts nurse practitioner Kathy Huynh talks about hallucinations in Parkinson's and some of the differences between hallucinations and other similar issues.
The Parkinson's Association of San Diego Good Start Program – an amazing day of information for anyone newly diagnosed with Parkinson's disease. In this episode, PASD Executive Director Chris Buscher provides a short overview of the Good Start Program.
For more information and videos, click here.
One of the most common symptoms of Parkinson's – and something almost everyone does not want to talk about – is constipation. In this episode, nurse practitioner Sherrie Gould gives us a short rundown on constipation and a few things you can do about it.
Meet the guy who answers the phone. Parkinson's Association of San Diego Executive Director Chris Buscher comes to PASD from a long career in non-profits. This short episode will give you some insight into the man who drives the organization that supports thousands of people with Parkinson's disease.
Having Parkinson's disease does not mean you will have to stop driving. This is a question almost everyone asks. In this episode of the Parkinson's Association of San Diego microcasts, Nurse Practitioner Kathy Huynh looks at some of the issues associated with driving and Parkinson's.
For more information, click here to check out the Parkinson's Association of San Diego.
Palliative care can be for anyone who needs a broad range of medical services. On this episode of the Parkinson's Association of San Diego Microcast, Nurse Practitioner Sherrie Gould gives us a brief introduction to palliative care, how it works, and some of the benefits.
For more information, see the Parkinson's Association of San Diego website at www.parkinsonsassociation.org.
THE NEW PARKINSON’S ASSOCIATION OF SAN DIEGO MENTOR PROGRAM
Are you struggling with Parkinson’s and need someone to talk to? Are you a care partner who needs someone to talk to? Someone who has “been there/done that?” Then the PASD Mentor Program is the perfect place for you.
Find a mentor, set up a call, and get guidance from someone who has walked in your shoes.
Your host, Jeff Seckendorf, talks with PASD Executive Director Chris Buscher on how the mentor program works and what are some of the benefits you'll see.
For more info, https://parkinsonsassociation.org/mentor-home/