The Tuesday Epilepsy Club: Recent Episodes
Franziska
The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Living with Epilepsy' and 'Surviving Medication', as well surprise guest podcasters from around the world.Find out everything you need to know about Epilepsy in this lively, humorous podcast on Tuesday's at 9am. Franziska has more than 30 fits a day and designed a series great for those suffering from Epilepsy, as well an honest insight for friends, family and carers wanting to learn more about living with different kinds of fits and seizures.
Ever wondered what life feels like for someone with Epilepsy the day after a big tonic clonic fit and some bad injuries? It's not not always easy to get the words out so forgive me if I wobble....physically and mentally!
Surviving an Epilepsy Alert Dog...yes, no, maybe? You though every day was chaos with the dog, now wait until you have fits and a four-legged friend
For all those of us who have have encountered Epilepsy, stigma continues to be one of the biggest hurdles. Not only do we have to cope with the condition itself, we have to deal with the way it is perceived. Unfortunately, in my experience, public perceptions of Epilepsy are moving at a sloth's pace in many realms!
Surviving an Epilepsy Alert Dog...yes, no, maybe? You though every day was chaos with the dog, now wait until you have fits and a four-legged friend
Right, you've got the Assistance Dog....now you have to train it! This podcast tells you where to start, what I did wrong, what hopefully I did right and made me realise more than ever you never stop learning as a dog owner.
Surviving an Epilepsy Alert Dog...yes, no, maybe? You though every day was chaos with the dog, now wait until you have fits and a four-legged friend
There are some things that don't work with Epilepsy....hangovers, babies and hyperactive puppies who tear your house apart, crunch ice cubes and gnaw on your new cupboards. You need to really want a dog if you have Epilepsy because there are going to be some days you can barely move and your dog still needs to be walked. Are you ready for that? We considered getting a dog for years, then decided on 'no' and promptly got the dog a few weeks later. Don't ask!
This podcast takes you through the early days, the destruction, and the beginning of on-going training. Do we regret it? You'll have to listen and see.
Surviving an Epilepsy Alert Dog...yes, no, maybe? You though every day was chaos with the dog, now wait until you have fits and a four-legged friend
Ever wondered how other people with Epilepsy cope or what you can do to help support yourself and your fits? Franziska has had fits for nearly 30 years and this podcast gives the listener some insight into the way she and her family deal with her daily seizures. Some days are great, other days are catastrophic. Every day is different!
Coping with Stress is an easy listen, amusing and unendingly helpful. It covers all the most challenging moments of living with Epilepsy or someone else and their seizures.
Sometimes the most obvious actions are the ones we never tried.
Enjoy the podcast and see you again same time next week.
Surviving an Epilepsy Alert Dog...yes, no, maybe? You though every day was chaos with the dog, now wait until you have fits and a four-legged friend
Changing Medication has to be be one of the hardest things things to do. As I sit here, the first week of half term, my vision blurred for the second full day in a row I wonder what can be done. I don't want to live like this. I don't want my children to live like this, but there are no other medications I can take. I'm stuck between a rock and a hard place. If I could I'd stop taking them- I can't.
Your perspective on life changes when you can't see. Yesterday the muscles in my legs, arms and tongue stopped working. I need Botox from my constant furrowed brow, but I have to believe it will pass. It passed last time.
Changing medications is one of the hardest things to do. It takes over your life. Good luck to all of those of you who have to do it. Rest assured you are not alone.
What if it didn't continue? What if you couldn't remember all the things you were supposed to? The following podcast is a light hearted look at what awaits someone who takes Anti Epileptic Drugs (AED's). Why light hearted? Because in these situations, your humour is often all you have. Especially if you start the day every morning with an almost 'blank page' of what your useful assets are.
You might be surprised to hear what someone with Epilepsy really thinks about taking medication and it's consequences. Yes, it saves my life...but is life ever that simple? Of course not. I know one thing, I'm not the only who feels like this.
The loss of memory is an ongoing dilemma for people with Epilepsy. Some medications are known to cause confusion and memory loss, but added to this, the condition itself causes the brain function to deteriorate over time. It's logical. What's easy for you, becomes virtually impossible for me.
Continually falling on your head, banging your head or smacking your head on the floor is bound to cause long term damage over time. My photographic memory is largely gone, it comes back in patches if I haven't had a tonic clonic fit for a few months. My last test showed my IQ dropping- my concentration isn't what it was after all.
I have moments of lucidity, but then I forget what I was talking about. I find writing easier than speaking these days. Of all the problems Epilepsy brings I think most would agree memory and the lack thereof is what scares us most. Maybe I'll get lucky and forget I what I was worried about.
Ultimately my brain feels like scrambled eggs...
The loss of memory is an ongoing dilemma for people with Epilepsy. Some medications like Lamictal are known to cause confusion and memory loss, but added to this, the condition itself causes the brain function to deteriorate over time. It's logical. What's easy for you, becomes virtually impossible for me.
Continually falling on your head, banging your head or smacking your head on the floor is bound to cause long term damage over time. My photographic memory is largely gone, it comes back in patches if I haven't had a tonic clonic fit for a few months. My last test showed my IQ dropping- my concentration isn't what it was after all.
I have moments of lucidity, but then I forget what I was talking about. I find writing easier than speaking these days. Of all the problems Epilepsy brings I think most would agree memory and the lack thereof is what scares us most. Maybe I'll get lucky and forget I what I was worried about.
It's not easy living with Epilepsy; it's definitely not easy living with mood changes. In this episode Franziska talks about her experiences over the years and how she has learnt to cope with the ups and downs of fits- from medication side effects to the seizures themselves and everything in between. Mood changes involve every one in your life and can take over every aspect, but it's important for you to realise you are not alone. Although not an easy topic to discuss, it's one which should be discussed more regularly. Franziska invites, you all to take a seat and have a listen.
This podcast carefully depicts Franziska's period of Depression- a side effect brought on by a new Anti-convulsant medication in 2019.
Preparing for an interview can be hard when you have Epilepsy especially as nerves make fits worse.
Finding work with Epilepsy is not easy. Aside from the seizures themselves there is the medication side effects and exhaustion, but you are not alone.
Self Esteem is one of the biggest battles people with Epilepsy fight. Listen to Fran's podcast for tips on how to improve your self esteem today!
How would you describe your Epilepsy to others if asked? Would you sound confident? Concerned? Listen to some tips from Fran.
Caring for someone with Epilepsy is rewarding, but make no mistake it can be hard for both sides. Fran has been living with Refractory Epilepsy for over 25 years and still has melt downs!
The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Stigma' and 'Surviving Medication', and 'Raising Kids when you have Epilepsy'. Listen to this podcast to discover the funny side of bringing up kids whilst trying to stay conscious! The hunt for chocolate as soon as she hits the floor, the reason why Tim and Fran decided to get rid of the microwave. It's all here!
Find out everything you need to know about Epilepsy in this lively, humorous podcast every Tuesday's at 9am. Franziska has more than 30 fits a day and designed a series great for those suffering from Epilepsy, as well an honest insight for friends, family and carers wanting to learn more about living with different kinds of fits and seizures. One in 87 people has Epilepsy, we all have a responsibility to know something about it, changing attitudes towards Epilepsy might change a life. Get listening.
The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Stigma' and 'Surviving Medication', as well surprise guest podcasters. People with Epilepsy endure the stigma of their condition every day. For some it's more obvious, for others it's subtle but devastating. Where do you fit in? Listen to the podcast.
Find out everything you need to know about Epilepsy in this lively, humorous podcast every Tuesday's at 9am. Franziska has more than 30 fits a day and designed a series great for those suffering from Epilepsy, as well an honest insight for friends, family and carers wanting to learn more about living with different kinds of fits and seizures. One in 87 people has Epilepsy, we all have a responsibility to know something about it, changing attitudes towards Epilepsy might change a life. Get listening.
The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Living with Epilepsy' and 'Surviving Medication', as well surprise guest podcasters. Steph is the singer song-writer of the fabulous soundtrack to 'Fits&Starts' Audiobook. The Audiobook ready to buy on Audible, Kobo and Apple shot to number one in it's category on Amazon and the track is available to purchase on Spotify or itunes.
Find out everything you need to know about Epilepsy in this lively, humorous podcast every Tuesday's at 9am. Franziska has more than 30 fits a day and designed a series great for those suffering from Epilepsy, as well an honest insight for friends, family and carers wanting to learn more about living with different kinds of fits and seizures. One in 87 people has Epilepsy, we all have a responsibility to know something about it, changing attitudes towards Epilepsy might change a life. Get listening.
The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Living with Epilepsy' and 'Surviving Medication', as well surprise guest podcasters from around the world.
Find out everything you need to know about Epilepsy in this lively, humorous podcast on Tuesday's at 9am. Franziska has more than 30 fits a day and designed a series great for those suffering from Epilepsy, as well an honest insight for friends, family and carers wanting to learn more about living with different kinds of fits and seizures. One in 87 people has Epilepsy, we all have a responsibility to know something about it, changing attitudes towards Epilepsy might change a life. Get listening.
The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Living with Epilepsy' and 'Surviving Medication', as well surprise guest podcasters from around the world.
Find out everything you need to know about Epilepsy in this lively, humorous podcast on Tuesday's at 9am. Franziska has more than 30 fits a day and designed a series great for those suffering from Epilepsy, as well an honest insight for friends, family and carers wanting to learn more about living with different kinds of fits and seizures. One in 87 people has Epilepsy, we all have a responsibility to know something about it, changing attitudes towards Epilepsy might change a life. Get listening.