Bi-weekly podcast covering various diagnosis, life experiences, caregiver perspective, insurance, Medicare, hospital billing, pharmacy, primary care, specialists, steps to pre and post diagnosis, pre and post transplant, and other various topics.
Going through transplant evaluation, making the transplant list and where I was located on the UNOS listing across the nation.
In the hospital and was having ups and downs with the meds, trying new med therapies, and deciding where to go with treatment next. The doctors were having a difficult time trying to figure out where to go next.
Trying a new treatment while hospitalized, and realizing i'm not getting better but worse.
In this episode I talk about steadily declining and just wanting to spend time with Family for Thanksgiving.
Three Months into diagnosis, I had met my specialist, she had changed my meds, but I was progressively getting worse. This episode talks about getting worse, visits with family and how I was feeling.
Finally getting to a specialist that could help me understand what was going on and just how bad I was and was getting quickly.
This episode is about life after diagnosis and trying to find a way to get back into focus with my life again.
Receiving the Diagnosis of Pulmonary Hypertension (A terminal Lung Disease) that is high blood pressure in the lungs.
In this episode I talk about having to have a right heart catheterization, and going forward after diagnosis.
Doctors were trying to figure out what I had, all the testing, all the questions, and still no answers.
This Episode is about why I decided to start a podcast, and why I wanted to get my story out.