The Sibling Leadership Network: Recent Episodes
The Sibling Leadership Network
Welcome to the Sibling Leadership Network Podcast! We are a national nonprofit whose mission is to provide siblings of individuals with disabilities the information, support and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families. Check out our recent news and interviews with advocates and policy makers or check out more, including archived episodes on siblingleadership.org.
This episode we discuss more about self-care and have a guided practice, just for sibs! SLN's Communications Consultant, Patricia Repolda, tells us all about SLN's new sibling self-care toolkit & workbook. Then Kaley Day of Rocky Mountain Sibs guides us through a guided meditation specifically for sibs.
Access the transcript of this episode here.Acceda a la transcripción en español.
"It empowers you to make choices that align with your values" —**Patricia Repolda
Resources in this episode:**
- SLN's Sibling Self-Care Toolkit & Workbook
- SLN's Self-care Resources page
- Sibnet Facebook Group
- SLN Facebook Group
- Rocky Mountain Sibs
- Advocacy Denver (Denver County Arc)
- SLN's Adult Sibs Resources page
- Prentis Hemphill
Music Credits:
Hope by Scandinavianz | https://soundcloud.com/scandinavianz
Music promoted by https://www.free-stock-music.com
Free Relaxing Chill Music | ARNOR by Alex-Productions | https://onsound.eu/
Music promoted by https://www.free-stock-music.com
Creative Commons / Attribution 3.0 Unported License (CC BY 3.0)
https://creativecommons.org/licenses/by/3.0/deed.en_US
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Certified Sexuality Educator, Terri Couwenhoven, discusses barriers for our siblings with disabilities getting sex education and gives us some great resources and advice to help us support our siblings who are seeking romance.
Access the transcript of this episode here.Acceda a la transcripción en español.
"Listening and helping your sib feel heard are really important" —**Terri Couwenhoven
Resources in this episode:**
- Terri Couwenhoven MS, CSE
- Elevatus trainings
- Diversities in sexuality handouts
- Boyfriends & Girlfriends: A Guide to Dating for People with Disabilities
- Circles: Intimacy and Relationships
- Circles app
- National Council on Independent Living Video Series
- Amaze.org
- real-talk.org
- Adult Down Syndrome Center resource page
- Making Authentic Friends App
- Special Bridge App
- Sex Talk for Self-Advocates Webinar Series
- SLN Self-Advocates Resources page
- Dave Hingsburger
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This month, we speak with the Director of Advocacy for the Autistic Self Advocacy Network, Zoe Gross, all about plain language; what it is, why it's important and where and how to ask for it.
Access the transcript of this episode here.Acceda a la transcripción en español.
"Get things out of the subtext of what you’re saying and into the plain text." —**Zoe Gross
"Become awake to the wonderful world that is plain language and spot all the places that it can be brought into your life." —Zoe Gross
Resources in this episode:**
- Autistic Self Advocacy Network
- ASAN resource library
- Plain Language COVID-19 Resources
- One Idea Per Line: A Guide to Making Easy Read Resources
- SARTAC
- 2023 Series of Easy Read/Plain Language Webinars for Government and Non-Profit Agencies
- Plain Truth Project
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This month, Founder of the Natalie Project, Julie Neward, shares her story, discusses statistics and causes of sexual assault in the disability community and tells us about how we can advocate for change with our siblings.
PLEASE NOTE: This podcast episode is about sexual assault and may contain content that is unsuitable for listeners under the age of 18 and may contain triggers for some listeners. Listener discretion is advised.
Access the transcript of this episode here.Acceda a la transcripción en español.
"I really do want to lean on our sib community to take action on this issue, because at the end of the day...we [siblings] will most likely have to face the issue of sexual abuse given the staggering numbers." —**Julie Neward
Resources in this episode:**
- the Natalie Project
- Contact Julie Neward at julie@thenatalieproject.org
- The Disability Without Abuse Project
- NPR Series: Abused and Betrayed
- Combating Violence and Abuse of People with Disabilities: A Call to Action by Nancy Fitzsimons M.S.W. Ph.D.
- The Rape, Abuse, & Incest National Network: Sexual Abuse of People with Disabilities
- The Rape, Abuse, & Incest National Network: Recovering from Sexual Violence
- Right Care Now Project
- Options for All Productions
- Pediatric Epilepsy Surgery Alliance
- Diana Pastora Carson, M.Ed.
- Elevatus
- Mad Hatter Wellness
- Sexuality for All Abilities 1st Edition by Katie Thune and Molly Gage
- Nicky’s Law
- Disability Rights California
- California Self-Determination Program Network
- Tarana J. Burke and the Me Too movement
- Kelly's Hollywood Film
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This month, we talk with Harriet Redman, founder of one of SLN's first chapters, Wisconsibs, and founder of SLN's newest chapter, Oregon Sibs, Nikki Donnelly. We discuss why sib meeting spaces are so important and how you can get involved or start your own chapter.
Access the transcript of this episode here.Acceda a la transcripción en español.
"The power in having people in your community that can help you navigate through this sib life." —**Nikki Donnelly
"Don’t give up…there’s all kinds of reasons to stop, but don’t. Just keep going…and when you’re feeling discouraged give an SLN chapter person a call or an email." —Harriet Redman
Resources in this episode:**
- SLN Chapters page
- Wisconsibs
- Oregon Sibs MeetUp
- The Sibling Survival Guide book
- Sibshops book
- Sibshops on Siblings Support Project
- Oregon FMLA information
- What About Me? by Wisconsibs
- Sibsack by Wisconsibs
- Journey Forward by Wisconsibs
- Siblings Choice Award by Wisconsibs
- Wisconsibs Read book club
- Wisconsibs event calendar
- Intro to Sibs by Oregon Sibs
- Oregon Sibs Announcement
- Contact Harriet Redman: info@wisconsibs.org
- Contact Nikki Donnelly: nikki.donnelly@oregonsibs.org
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This month, we speak with the SLN's Co-Chairs of Policy and Advocacy, Tiffany Banks and Nina Bihani. We discuss why advocacy is so important for sibs, the many ways sibs can get involved in policy & advocacy, the challenges siblings face in policymaking and current issues being worked on by sibs.
Access the transcript of this episode here.Acceda a la transcripción en español
"If you're not showing up, you're not going to be a part of that important decision-making process"—Nina Bihani
Resources in this episode:
- SLN Policy & Advocacy Page
- SLN June Policy & Advocacy Newsletter
- Health Passport
- Letter of Intent
- FMLA Reform: The Caring For All Families Act
- SSI Penalties: Arc Info
- Technology Access
- Housing Access: From the Arc
- The Americans with Disabilities Act
- SLN Future Planning Resources Page
- Past SLN Podcasts
- Disability Policy Seminar
- Sign up for SLN Newsletters
- The Arc Future Planning Resources
- Health Advocates While in Hospital
- The Arc Policy & Advocacy Resources
- Partners in Policymaking Training
- Right to Access Health Records
- Death and End of Life Resources
- Tiffany Banks: tiffany.banks@siblingleadership.org
- Nina Bihani: nina.bihani@siblingleadership.org
- SLN Policy & Advocacy Email: policy.inquiries@siblingleadership.org
"What you are able to bring to the table is worthwhile, no matter how small." —**Tiffany Banks
"Your lived experience is expertise. " —Tiffany Banks**
Music Credit: Hope by Scandinavianz | https://soundcloud.com/scandinavianz
Music promoted by https://www.free-stock-music.com
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This month we speak with the SLN's new Executive Director, Kaitlin McNamara, about her sibling experience, resources she has found helpful and her vision for the future of the sibling movement at SLN.
Access the transcript of this episode here.Acceda a la transcripción en español
"We have to be having some very serious conversations about what we want the next 40 years to look like and not resting on the laurels of the really important disability movement work of the last 40 years."—Kaitlin McNamara
Resources in this episode:
- Future Planning Resources
- Financial Planning Resources
- Mental Health and Self-care Resources
- SLN Youtube Channel
- SLN State Chapters
- SLN Facebook Page
- SLN Facebook Group
- Sibnet Facebook Group
- Sibling Support Project Facebook Group
- Sibteen Facebook Group
"…siblings have a real opportunity at this moment to partner with their sibling with a disability…" —Kaitlin McNamara
Music Credit: Hope by Scandinavianz | https://soundcloud.com/scandinavianz
Music promoted by https://www.free-stock-music.com
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This month, we speak with sib-in-laws Sumithra Murthy and Cory Hartman about their experiences as sib-in-laws and hear their advice for sibs and potential future sib-in-laws.
Access the transcript of this episode here.Acceda a la transcripción en español
"We are the people who are insiders, outsiders." —Sumithra Murthy
"This is new to us"—Cory Hartman
Resources in this episode:
- Department of Disability and Human Development at the University of Illinois at Chicago
- Family Caregiver Alliance
- National Alliance for Caregiving
- The Arc
- The Sibling Leadership Network
- Sib-in-Laws Facebook Group
- National Institute for the Empowerment of Persons with Intellectual Disabilities NIEPID
- Ashadeep
- Nayi Desha
- Parivar
- Impact Magazine Sibs Feature Issue
"Our opinions and perspectives also need to be considered in decision making processes." —Sumithra Murthy
Music Credit: Hope by Scandinavianz | https://soundcloud.com/scandinavianz
Music promoted by https://www.free-stock-music.com
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In this special National Siblings Day 2023 episode we hear the stories of 2 siblings with different backgrounds and ask them about their visions for the sibling community.
We are joined by social work doctoral student Aaron Quick who is the Public Policy Fellow on the Georgia Council on Developmental Disabilities, and by Social Impact Consultant, Sukanya Mukherjee.
Access the transcript of this episode here.Acceda a la transcripción en español
Resources in this episode:
- 2020 protests
- Georgia Council on Developmental Disabilities
- The Sibling Leadership Network
- Sibnet on Facebook
- List of Disability Councils, State-by-state below the podcast description on the SLN blog
- Aaron's Brother's books: supercreativeadventures.com
- Resources for Self-Advocates (including a webinar series on love and sex)
- Dating, Love & Sexuality from a Sibling’s Perspective with Sheena Brevig
- Sibshops
Music Credit: Hope by Scandinavianz | https://soundcloud.com/scandinavianz
Music promoted by https://www.free-stock-music.com
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This month we talk about Sibshops; what they are and why you should be involved. Our guests today are past Sibshop participant and leader of the SLN Tennessee chapter, TABS, Emma Shouse, Emily Holl of the Sibling Support Project, past participant Rachel Patterson and past Sibshop facilitator, Tina Prochaska.
Access the transcript of this episode here.Acceda a la transcripción en español
"Sibshops really take a wellness based approach and a strength based approach and building on those strengths and celebrating the resilience, grit, resourcefulness and creativity of siblings." -Emily Holl
Resources in this episode:
- Sibshops
- Sibling Support Project
- Contact Emily at Sibling Support Project
- Tennessee Adult Brothers and Sisters (TABS)
- Emma’s Story in the news
- NPR Story: Siblings of people with disabilities find connections through Sibshops
- List of Disability Councils, State-by-state below the podcast description on the SLN blog
- Likert Scale
- International Charge Syndrome Foundation
Music Credit: Hope by Scandinavianz | https://soundcloud.com/scandinavianz
Music promoted by https://www.free-stock-music.com
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This month we discuss mental health issues and resources for sibs with sib and psychologist, Emily Graesser.
Access the transcript here.
Acceda a la transcripción en español
Join the SLN for our FREE Mindfulness program!
"You are as deserving of compassion, and support and help and health and well being, as your sib. And in fact, you're going to do a better job with your sib if you're tending to those things."
Resources in this episode:
- Learn to be Mindful: A Virtual Program for Autistic Adults and Their Siblings
- Antioch College
- PCA = Patient Care Assistant
- Psychology Today
- Better Help
- Dialectical Behavioral Therapy (DBT) - Mindfulness
- Mindfulness-Based Cognitive Therapy (MBCT)
- Acceptance and Commitment Therapy (ACT)
- Call 211 (a government-established hotline that connects people to community or government agencies)
- 988lifeline.org
- Walk-In Counseling Center Provides Free Mental Health Services (Minnesota)
- EMDR for trauma
- MyStrength
- PTSD Coach
- Other VA Apps
- SLN Policy & Advocacy Site
- The Arc
- thenadd.org
- SLN 2019 National Conference
- Sibnet
- SLN’s Mindfulness Program
Music Credit: Hope by Scandinavianz | https://soundcloud.com/scandinavianz
Music promoted by https://www.free-stock-music.com
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We kick off 2023 by speaking about sibs and access to technology with one of our past Chairs and Associate Research Professor at the University of Kansas, Shea Tanis.
Resources:
- SLN Endorses The Declaration of The Rights of People with Cognitive Disabilities to Technology and Information Access
- Technology First
- Self-Determination
- Assistive Technology Acts
- Digital Equity Act
- State Assistive Technology Program Information
- Affordable Connectivity Program
- Broadband Equity, Access, and Deployment (BEAD) Program
- National Network of University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD)
- UCEDDs by State
- “digital equity forums” Google search
- State of the States
- Appendix K Waivers
- ARPA Funds
- American Rescue Plan
- SibNet on Facebook
- Sibling Support Project
- Consumer Electronics Showcase
- Haptic technology
- Tactile Internet
Music Credit: Hope by Scandinavianz | https://soundcloud.com/scandinavianz
Music promoted by https://www.free-stock-music.com
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This month we speak with Social Policy Researcher, Ariella Meltzer, about the similarities and differences in sibling support all over the world.
Access the transcript of this episode here.Acceda a la transcripción en español
Resources and terms mentioned in this episode:
- Contact Ariella Meltzer at:
Email: a.meltzer@unsw.edu.au
Twitter
LinkedIn - Publications from Ariella’s research are available at:
What is ‘sibling support’? Defining the social support sector serving siblings of people with disabilities
The operation of the social support sector serving siblings of people with disabilities: a cross-country analysis
(These publications are behind a paywall for many. If you need help accessing a free copy, please email Ariella directly.) - Centre for Social Impact at The University Of New South Wales
- Community of practice definition
- If you know of a group that’s primary focus is to support siblings of people with disabilities and you think they would be interested in learning more about this Community of Practice, feel free to contact info@siblingleadership.org
"Sibling support really needs consistent recognition everywhere."
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This month we discuss challenges and blessings unique to sibs in the Baby Boomer and Gen X generations and hear some amazing advice and words of wisdom. Our guests are Lynne Calloway and Barbara Corley of SilverSibs.
Access the transcript of this episode here.
Resources and terms mentioned in this episode:
- Sibling Leadership Network
- Silver Sibs
- Ohio SIBS
- Hamilton county DD services
- Charting the Lifecourse
- Pickway County Board of Developmental Disabilities
- Ohio SIBS Sib Talks
- Siblings with a Mission
- Sibling Support Project
- Sibteen
- Sibnet
- Sib20
- SLN COVID-19 Resource Center
- Where The Journey Leads; A Conversation with Silver Sibs (VIDEO)
- TERMS:
- DSP (Direct Support Professional)
- Dagwood sandwich
- FMLA
- Loco Parentis
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Our Executive Director, Katie Arnold joins us to talk about why voting is so important to our community and gives some ideas and resources to help you and your siblings to get out there and vote.
Access the transcript of this episode here.
Resources and terms mentioned in this episode:
- The SLN's Voting Center
- SABE: Self Advocates Becoming Empowered
- The Arc Voting Resources
- The American Association of People with Disabilities(AAPD)
- RevUp!
- The National Disability Rights Network
- the Brennan Center for Justice
- the Bazelon Center
- State Laws Affecting the Voting Rights of People with Mental Disabilities
- the Autistic Self-Advocacy Network
- A Self-Advocate’s Guide to Voting in the U.S.
- Americans with Disabilities Act
"Over 38 million people with a disability are eligible to vote, which is close to 1 out of every 6 voters."
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In lieu of the SLN’s 15th Anniversary Celebration in October 2022, this month, we are joined by our Executive Director, Katie Arnold to talk about the history of the sibling movement, our current struggles and SLN’s vision for siblings in the future.
Transcript of this episode
Resources discussed in this episode:
- SLN Mission Statement
- Sign Up for SLN News and Get Involved
- SLN State Chapters
- SLN Past Conferences
- BIPOC Sibling Roundtables
- The SLN Podcast
- Future Planning Resources
- Self-Advocacy Resources
- SLN Research Page
- SLN Policy & Advocacy Page
- DEI Committee
- Equity & Inclusion Scholarship Fund
“The future of the sibling movement is really in all of our hands." -Katie Arnold
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This month we discuss financial planning for siblings with Colorado State Treasurer and brother, Dave Young and Founder and President of Oak Wealth Advisors and brother, Mike Walther.
Access the transcript of this episode here.
Resources mentioned in this episode:
- Vestlife
Highlights:
- “I entered elected office because my sister was struggling to get essential services." -Dave Young
- “Find the network in your community." -Mike Walther
- “You have to take the first step and listening to those trusted voices is a good way to start." -Dave Young
- “Take a break...celebrate the milestones:" -Mike Walther
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Disability Rights Activist, Emily Ladau joins us to talk about self-advocacy, sibling support and her book, Demystifying Disability: What to Know, What to Say, and How to be an Ally.Transcript of this episode
Resources discussed in this episode:
- Demystifying Disability: What to Know, What to Say, and How to be an Ally
- Emily's Ladau: Website | Facebook | Twitter | LinkedIn | Instagram
- SLN Self-Advocate Resources page
- SLN COVID-19 Resource Center
- Social media accounts recommended by Emily:
- https://www.instagram.com/disabilityreframed/
- https://www.instagram.com/upgradeaccessibility/
- https://www.instagram.com/diversability/
- https://www.instagram.com/sitting_pretty/
- https://www.instagram.com/nina_tame/
- https://www.instagram.com/jtknoxroxs/
- https://www.instagram.com/kamredlawsk/
- https://www.instagram.com/techowlpa/
- https://www.instagram.com/andraealavant/
- https://www.instagram.com/fidgets.and.fries/
Give us your feedback! Tell us what you think of the SLN Podcast so far.
Quotes from this episode:
- “We need more allies that are willing to do the work of centering the disability community."
- "The most important thing is to know that you have a right to speak up for yourself."
- "Siblings can be accountability partners for each other in the world of advocacy."
- "Disability doesn't exist in a vacuum and no person is just disabled."
- "It's this strange tug-of-war that we experience as a disabled community where our lives are being devalued, and yet we're being told, "This is for your own good.""
In this episode:
- 00:22 - Introduction
- 03:39 - What is the difference between an advocate, a self-advocate and an ally? And In your opinion, which do we need more of?
- 06:55 - Why is self-advocacy so important?
- 08:17 - What are some ways that siblings can help support each other in advocacy?
- 09:51 - How can different intersections of identity influence a self-advocates advocacy journey?
- 11:54 - How has the COVID-19 pandemic changed the self-advocacy landscape and how are advocates overcoming related challenges?
- 16:18 - What are some other current major challenges that self-advocates face and how can we support change in these areas?
- 18:19 - Are there any resources that you can recommend for any new and/or seasoned self-advocates out there?
- 19:09 - A
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This month we speak with three sibling employment experts to discuss sib employment and how we can best support and advocate with our siblings with disabilities. Our guests are:
- Ryan Rotundo, Sibling, Manager of Employment Programs at the National Down Syndrome Society (NDSS) (rrotundo@ndss.org)
- Byran Dai , Sibling, CEO and Co-founder of Daivergent (bdai@daivergent.com)
- Mike Carmody, Sibling, Executive Leader, Opportunity Knocks, (mike@opportunityknocksnow.org)
Access the transcript of this episode here.
Resources mentioned in this episode:
- CEO Commission for Disability Employment
- SLN COVID-19 Resource Center
- Microsoft Career Connector
- Inclusively
- List of State Agencies
- List of State Vocational Rehabs
- Rangam
- Special Olympics
- Buddy Walks
- Tim's Place
- North Carolina Council in Developmental Disabilities
- WIPA (Work Incentives Planning and Assistance)
- CWIX (Community Work Incentive Coordinators)
- Section 14C
Highlights:
- “Disability, non-disability; finding employment is hard." -Byran Dai
- “There are abilities beyond what they may see for that family member with a disability and sometimes siblings get a front row seat to that” -Ryan Rotundo
- “We have that unique position of being a built-in ally.” -Byran Dai
- “When I try to create a better life for him, I'm creating a better life for myself too.” -Mike Carmody
- “Strong talent is going to come from this community.” -Byran Dai
In this episode:
- 00:51 - Introductions
- 04:18 - Currently, just under 18% of individuals with disabilities in the US are employed. Why do you think that number is so low?
- 08:31 - What challenges or roadblocks do our siblings with disabilities face when trying to be gainfully employed?
- 12:30 - Are racial discrimination and gender inequity concerns for our siblings as well?
- 14:03 - What role can siblings play in supporting their brother or sister with disabilities in employment?
- 21:58 - How can we, as siblings, best advocate with our siblings with disabilities for inclusive and equitable employment opportunities?
- 26:05 - How has the COVID-19 pandemic changed employment for individuals with disabilities and their families?
- 31:09 - How has being a sibling of an individual with disabilities
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In this episode we discuss spirituality for sibs and supports for our siblings with disabilities to participate in faith-based communities. Our guests are Dr. Sarah Hall from the Institute on Community Integration, University of Minnesota and Texas A&M doctoral student Sehrish Shikarpurya.
Access the transcript of this episode here.
Highlights:
- “Her dedication is inspiring for me and kind of uplifting in my own faith journey.” -Sehrish Shikarpurya
- “As siblings we can say, he's going to make noise and that's OK.” -Dr. Sarah Hall
- “To have another layer of exclusivity is really hard to think about and manage.” -Sehrish Shikarpurya
- “How do you support someone with a faith different than your own?” -Dr. Sarah Hall
- “It's OK to have a journey with your sibling or just a journey on your own.” -Dr. Sarah Hall
In this episode:
- Introductions: 00:00:48
- Being a Sib & Spirituality: 00:02:38
- Challenges in Faith-Based Communities 00:5:43
- Benefits of Spirituality: 00:11:51
- Supporting Our Siblings: 00:15:09
- Resources: 00:18:17
- Identity & Spirituality: 00:21:46
- Lacking Resources: 00:24:56
- How to Influence Change: 00:30:35
- Impact of the Pandemic: 00:36:25
- Words of Encouragement: 00:39:06
siblingleadership.org
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In this special National Siblings Day 2022 episode we hear the diverse stories of 3 siblings with very different backgrounds and explore how peer support has played a vital role in their sibling journeys.
We are joined by SLN's Board of Directors Chair, Shawnnita Buckner, SLN's Board of Directors Secretary, Stephanie Lanham and Co-Founder of Saarthi sibling support group, Piyush Mishra.
Access the transcript of this episode here.
In this episode:
- Introductions: 00:00:52
- Siblings' stories: 00:04:33
- The impact of being a sibling of color: 00:17:57
- Meeting another sib for the first time: 00:26:46
- The role of peer support: 00:31:48
- Impact of the pandemic on peer support: 00:37:21
- Hopes of the future: 00:43:42
- Celebrating National Siblings Day: 00:45:11
- National Siblings Day events information: 00:47:26
Some resources discussed in this episode are:
- Calendar of events for National Siblings Day 2022
- SLN's April Sibposium on April 27th
- SLN's COVID-19 Resource Center
- Saarthi
- BIPOC Sibling Roundtables
- Become a member of the SLN to access videos of the 2021 Conference
Highlights:
- “Being a person of color and kind of navigating through this journey of being a sibling was difficult. I didn't have those sibling relationships that I now know that are so very important in life.” -Shawnnita Buckner
- “The beautiful people that I've met have introduced me to organizations that I serve on today, and they provide refuge in an overwhelming world.” -Stephanie Lanham
- “The pandemic really helped us in building the community and getting out the name of siblings in the disability circles in India…but when the second wave of COVID hit in India, it was extremely devastating.” -Piyush Mishra
- “Whether I'm venting, crying or sharing a success story, having that support is just so important and impactful in my life.” -Shawnnita Buckner
Support the show (https://siblingleadership.org/get-involved/donate/)
In this episode we discuss some ways that siblings of individuals with disabilities can experience grief & loss throughout their lives. We also discuss various resources and methods for dealing with different forms of grief & loss. The sibs also share some of their favorite memories with their siblings that they have lost.
"When my brother passed away I felt immediately lost. Not just the loss of him, but lost." -Tara Conley
Our guests in this episode are:
- Tara Conley - Former President and Vice President, co founder, current Independent Consultant for SUPPORTING ILLINOIS BROTHERS AND SISTERS – S.I.B.S.
- Zach Rossetti - Associate Professor of Special Education Boston University & SLN Co-Chair of Research
- Nora Handler - SLN Illinois State Chapter Representative and Board Member of SUPPORTING ILLINOIS BROTHERS AND SISTERS – S.I.B.S.
- Shruti Tekwani - Mental Health Counselor, Life Coach & Sibling
In this episode:
- Introductions: 00:00:42
- Personal Experiences with Grief: 00:13:41
- Disenfranchised Grief and Survivor’s Guilt: 00:25:05
- Grief and Loss from Death and Support: 00:38:01
- Grief During the Holidays: 00:56:04
- BIPOC Grief Experience: 00:59:52
- Grief During COVID-19: 01:05:01
- Sharing Memories: 01:07:01
Access the transcript of this episode here.
Some resources discussed in this episode are:
- SLN's Grief & Loss Resources Page
- S.I.B.S (Supporting Illinois Brothers and Sisters)
- The Todd Rossetti Memorial Fund
- The Loss of a Special Needs Sibling Facebook Group
- Sib Grief Webinar by Shruti Tekwani
- The SLN Newsletter
- Become a Member of the SLN
- SLN's COVID-19 Resources Page
- Know Your Rights: People with Disabilities Can Have a Supporter in the Hospital during COVID-19
- SibNet Facebook Group
- Uddina (Shruti Tekwani)
- Grief Speaks: Cultures and Grief
Support the show (https://siblingleadership.org/get-involved/donate/)
This month we discuss what caregiving looks like for siblings from long distances with sibling advocates. We are joined by former SLN Board President, Pat Carver, Diversity, Equity & Inclusion Committee Co-Chair, Atikah Bagawan, and Peter Edmonson. We discuss challenges unique to caregiving for our siblings with disabilities from a distance and the siblings share advice for any other sibs struggling to find a way to make their long distance caregiving work.
Access the transcript of this episode here.
Some resources discussed in this episode are:
- The Arc of the United States
- The Arc of Northern Virginia
- Self-Advocacy Resources
- Self-Determination
- Supported Decision Making
- The SLN Newsletter
- Become a Member of the SLN
- Rolling Stone Sibs Lurking Overtime (Peter Edmonson's Facebook group for for long distance sibs that meets on Zoom monthly)
Support the show (https://siblingleadership.org/get-involved/donate/)
In this episode we discuss some challenges and resources for siblings taking on multiple caregiving roles with Director of the Sibling Support Project, Emily Holl and Dr. Meghan Burke from the University of Illinois Urbana-Champaign.
Transcript for this episode
SLN's January 2022 SIBPOSIUM 1/24/22
Sibling Support Project
Sibnet
Sib20
Sibteen
BIPOC Sibling Roundtable Series
SLN COVID-19 Resource Center
SLN Caregiving Resources page
Support the show (https://siblingleadership.org/get-involved/donate/)
We sit down with self-care professionals Shruti Tekwani, Kaley Day & Aubrey Thorton to discuss what self-care is for siblings, how the holidays can impact us and helpful tips to get your own self-care routine started.
This episode's transcript
Resources discussed in this podcast:
- The Arc of the United States (Colorado)
- Rocky Mountain Sibs
- Massachusetts Siblings Support Network
- SLN COVID-19 Resources Page
- What is a Stress Cycle?
- Uddina (Shruti Tekwani)
- Self-care Assessment
- Developing Your Self-Care Plan
- Get access to Kaley Day's 2021 SLN Conference session on self-care by becoming an SLN member here.
- Maslow's Hierarchy of Needs
- Glasser's Five Needs
Support the show (https://siblingleadership.org/get-involved/donate/)
Angela West-Brown, Dianne Bilyak & Jessica Gonzalez come together as a follow up to their 2021 SLN Conference session to speak about their journeys as sibling authors and why sharing our stories as siblings is so important.
Transcript for this episode
Resources mentioned in this episode:
- Dianne Bilyak - Nothing Special: the Mostly True, Sometimes Funny Tales of Two Sisters
- Angela West-Brown - Lost and Found: Educating Parents of Intellectually Disabled High School Students How to Navigate Through College and Beyond
- Jessica Gonzalez - Luna, Yes!/ Luna, ¡Sí!
- SLN's COVID-19 Resource Center
- SLN Facebook Page
- SLN Facebook Group
- SibNet
- Become a Member of the SLN
Support the show (https://siblingleadership.org/get-involved/donate/)
We sit down and talk about setting boundaries and self-care as a sibling with SLN's very own Lisa Matthews.
Transcript of this episode
Resources mentioned in this episode:
- Unbreakable Spirit (The Sisterhood folios Book 7)
- Breaking The Code of Silence, Now!
- SLN's COVID-19 Resource Center
- Eventbrite
- Meetup
Support the show (https://siblingleadership.org/get-involved/donate/)
This month we discuss dating, love & sexuality from a siblings perspective with sibling Filmmaker, Relationship & Communication Coach and Creative Entrepreneur, Sheena Brevig.
Transcript of this episode
Links mentioned in this episode:
- Dating With Cerebral Palsy Youtube Video
- Sheena's Website
- SLN's Self-Advocacy Resources page (links to Sex Talk for Self-Advocates)
- Sean's T-shirts
- SLN's COVID-19 Resource Center
Support the show (https://siblingleadership.org/get-involved/donate/)
This episode we sit down with Liz Mahar, the Director of Family & Sibling Initiatives for the The Arc of the United States and talk about Future Planning from a siblings perspective.
Some resources we discuss are:
- Future planning resources on siblingleadership.org
- The Arc Center for Future Planning
- The Arc’s Sib Scene Newsletter
- BIPOC Roundtables
- SibStrong
You can stream this episode on any of these outlets:
- Spotify
- Apple Music
- Amazon Music
- Pandora
- Podcast Addict
- Podchaser
- Deezer
- Player FM
- Podcast Index
- Overcast
- Castro
- Castbox
- Podfriend
Access a transcript of this episode HERE.
Check out our past episodes HERE.
Find more on Future Planning on our Adult Resources page.
Support the show (https://siblingleadership.org/get-involved/donate/)
Check out our exclusive interview with brothers John & Dan Carmichael of GT Independence!
In celebration of our upcoming conference, we sat down with John and Dan of GT Independence (one of this year’s conference sponsors) and they shared with us their challenges and joys of growing up as siblings of an individual with a disability and how that inspired the creation of their family-owned business, GT Independence.
It’s not too late to join us for the conference! REGISTER HERE: https://siblingleadership.org/2021-sibling-leadership-network-national-conference/
Download HERE or stream on any of the below platforms. And don’t forget to subscribe!
Transcript of this episode
- Spotify
- Apple Music
- Amazon Music
- Pandora
- Podcast Addict
- Podchaser
- Deezer
- Player FM
- Podcast Index
- Overcast
- Castro
- Castbox
- Podfriend
Learn more about GT Independence on their site here: https://gtindependence.com/
Support the show (https://siblingleadership.org/get-involved/donate/)
In celebration of our upcoming conference on June 18th & 19th, we are so excited to begin sharing with you via podcasts! Our all virtual conference will also feature post-conference sessions on June 22nd, 23rd and 24th. Check out all the details HERE.
We are so happy and grateful to have a fitting guest for our inaugural episode! Some call this pioneer advocate the father of Sibling Support. Don Meyer talks with us about his life’s work, his favorite foods, the current state of siblings and our upcoming conference!
Download HERE or stream on any of the below platforms. And don’t forget to subscribe! We have more podcasts coming in the future!
Transcript of this episode
- Spotify
- Apple Music
- Amazon Music
- Pandora
- Podcast Addict
- Podchaser
- Deezer
- Player FM
- Podcast Index
- Overcast
- Castro
- Castbox
- Podfriend
Support the show (https://siblingleadership.org/get-involved/donate/)
Find out more about the Sibling Leadership Network on siblingleadership.org
Transcript of this Episode
Support the show (https://siblingleadership.org/get-involved/donate/)