I host a weekly online show on the Urban Health Outreach Media YouTube channel as well as my own YouTube channel. I interview chronic disease warriors and give them a chance to tell their story, on a live broadcast, about their search for a living donor. Support this podcast: https://anchor.fm/jared-a-brown-with-the-warriors-quest-show/support
How Does Nail-patella syndrome Cause Kidney Failure?
In this video, the Warriors Quest Show will be spotlighting Tiffany Cloe. Tiffany has had a strenuous battle with a chronic illness, Nail-patella syndrome. Nail-patella syndrome is characterized by abnormalities of the nails, knees, elbows, and pelvis. The features of nail-patella syndrome vary in severity between affected individuals, even among members of the same family. Other areas of the body may also be affected in nail-patella syndrome, particularly the eyes and kidneys.
https://stvincent.donorscreen.org/register/now
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Does Lupus Really Hit Men Harder?
In this video, the Warriors Quest Show will be spotlighting Lou Obadal. In 2014, a Lupus Revolution began. Louis Obadal started having unexplainable seizures. Through 17 doctors, countless seizures, kidney failures, Lupus Myelitis, and more; it was still hard for him to get diagnosed. The worst part of it all was the reason why it was so hard to get diagnosed, he's a man. Men Have Lupus was born in the middle of a vicious kidney failure, and Lou had something to preoccupy him while he was hospitalized.
http://www.menhavelupus.org/
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Not Just Another Kidney Warrior Story
In this video, the Warriors Quest Show will be spotlighting Jennifer Cervantes.
"On Nov. 25 2018 , 3 yrs ago I received the gift of life via kidney transplant from a generous person that signed their donor card, that allowed me to have the last 3 wonderful years without the need of dialysis for which I'm extremely thankful for and even though this beautiful gift is now failing my heart is full knowing a little piece of someone else lived on thru me ❤I truly hope I made my donor proud."
Jennifer has experienced kidney transplant rejection, however, she has kept fighting kidney disease. Recently, she has started to get back on the kidney transplant list. She has met an obstacle in PLTD. PTLD is group of conditions that may happen after a transplant. It involves the immune system and causes white blood cells called lymphocytes to multiply out of control.
Credit in this video about PTLD goes to the following website and YouTube channel https://www.osmosis.org/ https://youtu.be/5GSSggCKW4w
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Is Kidney Disease Genetic 2021
In this video, the Warrior Quest Show will be spotlighting Rachael Trombley, a kidney disease patient, kidney warrior, health & wellness advocate, and flat out kidney failure survivor. She lives in Lives in Saint Petersburg, Florida. We'll hear from her about her kidney story. If you wish to start the process of being a living kidney donor. Click here to begin filling out our online questionnaire.
For more information about this program, call (813) 844-5669 or 1-800-505-7769. Press 5 for the kidney transplant program, then 3 for the living kidney donor program. https://tampagenerallivingdonation.org/
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Help me please get off dialysis. What Is The Most Common Dialysis Fistula? In this video, I’ll be spotlighting Matthew Novelli from Texas. Matthew has chronic kidney disease and must regularly have dialysis treatment to remove toxins from his body.
Matthew has recently had a surgery to create an access point for dialysis technicians or nurses to cannulate him for dialysis.
The three most common AVFs are the radiocephalic fistula, the brachiocephalic fistula, and the brachial artery-to-transposed basilic vein fistula.
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How Common Is PKD? In this video, I'll be spotlighting Victoria West. Victoria has a condition called Polycystic kidney disease or PKD. Due to the PKD, she has experienced kidney failure. She is now searching for a living kidney donor.
What is polycystic kidney disease? Polycystic kidney disease (also called PKD) causes numerous cysts to grow in the kidneys. These cysts are filled with fluid. If too many cysts grow or if they get too big, the kidneys can become damaged. PKD cysts can slowly replace much of the kidneys, reducing kidney function and leading to kidney failure.
How common is PKD? In the United States about 600,000 people have PKD. It is the fourth leading cause of kidney failure. It is found in all races and occurs equally in men and women. It causes about 5% of all kidney failure.
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Are You Ready To Upgrade Your Life?I n this video, I’ll be spotlighting Marcelo Peno, a kidney warrior who is fighting for his own life. He'll share with us how is choosing to upgrade his own life through Manifestation, Prayer, Breathing Exercises, CKD/ESRD Dialysis more! Find out how he has found a way to battle kidney disease. As a kidney disease patient, he literally battles his own demons every single day. Find out how he does find peace and hope during the darkest periods of his life. https://www.dvcstem.com https://www.healthpromoting.com/water-only-fasting https://linktr.ee/celoaffect
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What Are 3 Powerful Reasons for Having a Kidney Transplant?
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In this video, I’ll be spotlighting Taneisha Ellis. This a powerful kidney transplant story.
"I live in Altoona, PA. I’m from Philadelphia, PA. I have chronic kidney disease. I was diagnosed at the age of nine."
Transplant hospital is upmc Presbyterian hospital Pittsburgh PA phone # 412-647-5800 Website www.Upmc.com/services/transplant/kidney-pancreas/living-donor
Being on dialysis is very stressful and can be stressful on the heart.
Many patients have powerful reasons and can choose to do peritoneal dialysis, home hemodialysis, or hemodialysis in center.
How do you find powerful reasons for a kidney transplant is noteworthy discussion for every kidney warrior.
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Apply to be a living kidney donor for Latoya Dixon. In this video, I’ll be spotlighting Latoya Dixon. "I live in Jackson Mississippi born and raised. I have Chronic Kidney Disease. I was diagnosed 2 years ago after my mother died from the same disease."
The hospital is UMMC ( University of Mississippi Medical Center), the coordinator name is Latasha Moses and the website is ummc.donorscreen.org Phone number is 601-984-1000
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Mythbusting Kidney Donor Search Become a donor for Timeka - Contact Yvonne at Atrium Health Transplant Center or Lynette at Wake Forest Baptist Health - 1-800-562-5752, (704) 355-3602. Please subscribe, don't forget to turn on your notifications! In this video, I’ll be spotlighting Timeka Griffin, who needs a living kidney donor. "My name is Timeka, also known as the “The Green Warrior Princess”. I am 52 years old, a wife, a mother of two, I have lupus and I'm in need of a kidney transplant. Maybe you are battling something yourself and in need of some daily inspiration. If so, you've come to the right place. We'll keep each other encouraged and take this journey together."
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You will be inspired by this positive, special man! Lou is from Queens, NY but he currently lives in Wellington, FL. Lou is married to Bridget Marzan Ortiz. They have two sons or as Lou says it, "Stallions".
Lou Ortiz is in need of a kidney! He has been on his kidney journey since December 2019. His transplant hospital contact information is Tampa General Hospital, call (813) 844-8410 or visit the website and fill out the east questionnaire https://tampagenerallivingdonation.org/
A portion of the proceeds will go towards his kidney fund. Recently enrolled in Tampa General! Play the video below. Click on the link to make your purchase. BeesBestCreations is located on Etsy. https://www.etsy.com/shop/BeesBestCreations She (Wifey) is currently working on new scents weekly! Fall fragrances currently in the making: Barrel-Aged Maple Bourbon, Apples & Maple Bourbon, Black Currant & Absinthe, Apple Chutney Cranberries. For more information about the fragrances and to pre-order, send a private message. Bridget Marzan Ortiz Hurry and place your order before they are gone! Selling out quick! Notifications are on for those Fall fragrances!!! https://www.etsy.com/shop/BeesBestCreations
"Yesterday was yesterday and it passed. Today is here looking brighter! And tomorrow is loaded with positive potential ! So yeah! I got that going for me!! Life is good! Sometimes a drag no doubt ! But it’s very good! Oh Yeah!!"
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Joshua Allen from New Mexico is my next guest. Josh is a teacher and husband. Josh has chosen peritoneal dialysis for his modality with kidney disease.
The hospital that Josh is going through is Virginia Mason in Seattle WA, (206) 341-0925. If anyone is interested in seeing if the are eligible they may send an email to joshskidney@gmail.com
Peritoneal dialysis (per-ih-toe-NEE-ul die-AL-uh-sis) is a way to remove waste products from your blood when your kidneys can't adequately do the job any longer. This procedure filters the blood in a different way than does the more common blood-filtering procedure called hemodialysis.
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From Saving Kids to Kidney Failure. Tamera Powell is currently doing home dialysis seven days a week and experiencing kidney and mild heart failure. Her strong faith in God has encouraged her to seek a donor and dream of starting a family after transplant. She would like to get back to work and continue advocating for children in foster care, something she’s been doing for past 20 years.
Tamera is registered on the Kidney Transplant Waiting List at Methodist Healthcare in San Antonio, TX. Kidney Donor Program Inquiry Direct Line: 210-575-GIVE (4483).
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How Do You Overcome Diabetes & Kidney Failure? Please share this & don't be stingy 🙂 Our very special guest is Zonya Amezcua, a mother of two children , who has struggled with diabetes and the fight against diabetes has led to her current kidney failure. She's now looking for a living kidney Donor. Diabetes is the leading cause of kidney failure, accounting for 44% percent of new cases. Current research suggests that control of high blood pressure is a key factor in slowing this disease. Strict control of blood sugar levels and reduction of dietary protein intake are also important. On May 13, 2010, Zonya posted "i just found out that my baby has CDH and i dont know what to do or were to get started" Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when a baby’s diaphragm (a thin sheet of muscle that separates the abdomen from the chest) fails to fully form, allowing abdominal organs to enter the chest cavity and prevent lung growth. CDH occurs in approximately 1 in 2500 births, with over 1600 babies diagnosed each year in the United States alone. There is currently no known cause, but studies have suggested that it is likely due to a number of genetic and environmental factors.
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My name is Lilian Thomas born and race in the Philippines. I met my husband from my birth country Philippines in 1982, got married in 1984. With this union born four sons now ages 37, 36, 31, 30. We left Philippines in 1986, but due to my husband serving the United State AirForce we traveled places including to United Kingdom and Spain. We ended up to Hill Airforce base where our tour has ended in 1994 when my husband took early retirement. We immediately found that this move will be our last as raising four sons raised concerns as to where is the best and safest place to raise them. We quickly realized that Utah is actually quite safe so we Settled here, we bought a small house and here we live our happy life with our little family and we make a home with it. Life is great then, nothing to worry about and we we're happy until.... In 1996 I was diagnosed with Polycystic kidney disease. Life continues as days in days out and we're raising our family, didn't realize that one day our little happy family can be shaken as my disease progressed and in 2016 my kidney reached it's end stage. It was not a surprise to me that I will be on dialysis until I get a donor because I knew all along that one day,,, this is the possibility. What shocked me is, that day is now has come and it's here and we are living it. My children are worried that one day I will leave them and seems sooner than expected. I now also have two beautiful granddaughters and I also wish to see them atleast graduate high school and it will only be possible if I get a donor. In May of 2020 I have nephrectomy done where both of my kidneys were removed. Living without a most important organ is quite scary. I am living with pure God's mercy and in need of a living donor. I am type B.. Will you be my Hero or know someone who could? Please call the number below, email me or go to the Intermountain Healthcare link for donation. Fill up short questionnaire and mention my name thank you. Phone: 801-510-6026 Email: lilianthomas7@gmail.com #chronicillness #ckd #dialysis #kidney #organdonation #donatelife #transplant #kidneytransplant #giftoflife #kidneydiseasesucks #chronickidneydisease #kidneydiseaseawareness #kidneydisease
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How Do You Kick The Trash Out Of Kidney Disease As A Kidney Disease Patient?
Watch this Warriors Quest Show and hear from Keesha Davis. Keesha is a kidney disease patient, who lives in Atlanta, GA. Keesha is currently on dialysis and is looking for a living kidney donor to create a better quality of life for herself. What is chronic kidney disease? Chronic kidney disease (CKD) is a serious and growing public health problem in the United States. CKD is a condition in which the kidneys become damaged, decreasing their ability to filter the blood and remove water and waste products. Wastes then build up in the blood, harming the body. When kidney function decreases to less than 15 percent, a patient has kidney failure.
Kidney failure that requires dialysis or kidney transplant is often referred to as end-stage renal disease (ESRD). More than 20 million Americans aged 20 and older may have CKD. Although CKD is common, many Americans with the key risk factors –diabetes and high blood pressure-do not know they are at risk.
In addition, the rising rates of diabetes and obesity will continue to fuel its growth, as both conditions increase the risk of developing CKD and speed its progression. Therapies exist that can significantly slow the progression of CKD to kidney failure; particularly blood pressure control and use of medications that protect kidney function-called angiotensin-converting enzyme (ACE) inhibitors or angiotensin receptor blockers (ARBs). However, many people who would benefit from treatment are not receiving it.
I'm currently on the wait list at Piedmont Atlanta Transplant Institute 404-605-4609 and University of Virginia 4349822355
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Allow me to reintroduce Jules: My name is Julia Aronson. I am reaching out to you all with the hope that you can help me share my story. I am 30 years old and live in Castle Rock, Colorado. I just learned that I need a kidney transplant and that a living donor is my best shot at survival. I have had systemic lupus since 2004. In 2017 I was also diagnosed with lupus nephritis which compelled me to drop out of nursing school and is now destroying my kidneys. I am currently undergoing dialysis three times a week leaving me feeling crummy, weak, and exhausted without motivation to do much. I am young and hope to have a long life ahead of me!! I look forward to a time when I’m not tired or unwell and can live my life to the fullest, able to return the support of family and friends and give back to the world! I realize I am making a monumental request, but a kidney from a living donor can save my life. Typically, a blood relative, spouse, or close family friend donates one of their kidneys to the patient in need. However, anyone can make an anonymous donation without knowing the recipient personally. A donor can live a normal, robust life with only one kidney. Donation costs are covered by my insurance. Someone who is blood type B has the greatest chance of being a good match, but anyone can donate regardless of blood type through a program called paired donation. 🆘🆘 Please save, like, and follow @haute_hemodialysis to help find my donor, follow my battle with kidney failure, and read my tips offered to encourage others in similar circumstances: #organdonation #savealife #kidneydisease #lupusnephritis #julesneedsakidney #dialysislife If you have questions or a message for me, please contact my Living Donor Champions: my mom, Joan Aronson, joan_aronson@comcast.net OR my friend, Kirsten Lunding, Kvlund91@gmail.com. IF YOU WOULD CONSIDER BEING MY LIVING DONOR, 🆘🆘Please visit http://www.pslmc.com/signmeup to fill out a survey to start the process. Link opens One Medical Passport. Click green “Register” button. Choose Presbyterian/St. Luke’s as medical facility. As Named Recipient, enter JULIA ARONSON.
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If you have ever felt like an outcast or ever felt like an outcast with kidney disease, you will want to definitely tune in to the Warriors Quest Show. Calling all outcasts!!
Our special guest is Patrick Hubert. 🐠 Will you please share? 🐠
Patrick Hubert is in need of a living kidney donor 🦸♂️ Blood Type O (paired exchange accepts all) Listed at Henry Ford Transplant Institute Detroit, Michigan please click on the link to register today http://www.henryfordkidneydonor.com/ or call 📞 +1-313-651-1056 Thank You for stepping up today!
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This is a an amazing story about a strong, resilient woman who had a successful lung transplant surgery four years ago and now she is searching for a living kidney donor.
Our special guest is Courtney Smith Hertel. She is an inspiration! This is a must watch live in interview.
If you would like to save Courtney's life & donate her transplant hospital is Duke and the transplant number is 919.613.7777.
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JIMMIE BATES NEEDS A KIDNEY TRANSPLANT...
Jimmie has been officially listed at Mayo Clinic in Rochester, Minnesota. We are looking for a living donor. He is Blood Type O.
There is a paired exchange program so you do not have to have the same blood type for Jimmie to get a kidney.
There is no cost to the donor as our insurance will cover everything.
Though the chances are very low if something were to happen that the donor needed a kidney transplant in the future they are placed at the top of the list to receive their transplant.
PLEASE SHARE YOUR SPARE
mayoclinic.org/livingdonor 866-227-1569
Jimmie has 5 grown children and 13 grandchildren. He is a wonderful loving husband. He loves spending time with his family and is very involved in the kidney community helping to support other kidney patients. His dream is to be able to travel with his wife Dawn, spend more time with his grandkids and meet the many friends he has made over the last few years virtually. Please consider being tested to donate if not for Jimmie someone else in need of a transplant. Please share this post so we can spread the word.
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Please tune in to the Warriors Quest show w /Jared A Brown with special co-host, Sam MrKidney. Our special guest is Crystal McKnight. Crystal is a mother, daughter, and kidney warrior from Philadelphia, Pennsylvania.
Interesting story #kidneyby50 💚... please consider being her living donor... She's listed at Temple hospital in Philadelphia... you don't need to be local.... Her insurance incurs all charges... call 215 707-8889 ask for the living donor coordinator... give her full name:Crystal McKnight dob 7-17-71 O+blood type but even if you're not a blood or tissue match they have a paired exchange program that can still benefit her .. please help save her life.
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Please tune in to the Warriors Quest show 📺. I would like to share a story with you about Rick. He is a 9 year liver transplant recipient. He lost his liver to 35 years of Hep-C, which he got treated 2 years after his transplant. Tragically, he had acute kidney failure prior to his liver transplant caused by diuretics and parenthesis drains that left him with irreversible kidney damage after my liver transplant. 9 years later, he‘s doing home peritoneal dialysis and looking for a living kidney donor. He is listed at Tampa General since September.
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Please come join us for an inspiring interview with Malaika Hamlin. She completed a surgical technology program at the top of the class and within 6. Months of her completion of the class. She loved her job and she was an excellent technologist. You have someone who loves her job, is excellent at it, and because autoimmune diseases, she can’t work.
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Please join us for a a very special interview with Margret Routt Howell. Margret has had a successful kidney transplant surgery and now, years later, she finds herself back on the search for a living kidney donor candidate again.
She is also a lupus warrior, who has fought for a better quality of life, so that she may be able to get a gift of life. A kidney donor candidate would afford her a chance to be with her family, husband and friends.
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In honor of #lupusawarenessmonth, I'm interviewing Eileah Phinnesse. Eileah lives in Las Vegas, NV.
I found her on Instagram, where she chronicles her lupus journey with her posts. Lupus makes the body mistakenly attack its own tissue and organs.
I'll have a co-host, Sam Jennings. You may find him on his YouTube channel.
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Join us for a a very special interview with Kendra Bee. Kendra is a great lupus warrior, who has had her trials and challenges with her fight against lupus. What is lupus? Lupus is a chronic (long-term) disease that can cause inflammation and pain in any part of your body. It’s an autoimmune disease, which means that your immune system — the body system that usually fights infections — attacks healthy tissue instead.
Lupus most commonly affects your:
Skin Joints Internal organs, like your kidneys and heart Because lupus affects many parts of the body, it can cause a lot of different symptoms.
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Please tune in to the Warriors Quest show w Jared A Brown and give a very warm welcome to Nena Jensen. Nena is a Lupus Warrior from Springville, Utah. She is a family person who loves the outdoors, ATV's, and camping.
In Nena's own words -
"May is Lupus Awareness Month, but I have Lupus 365 days a year! One of the hardest things I've had to do...even getting out of bed everyday is hard sometimes!!! Family and Friends...Please join me to find a CURE for Lupus and help support the Lupus Warriors like me!"
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Amber Pulver is a Alports Warrior, who is looking for a kidney donor candidate. Amber is a mother, wife, daughter, and has great determination to find a living donor candidate. She is currently on the Kidney Transplant Waiting List, however, the average waiting period is roughly 5-7 years.
Watching my wife slowly die
Chris Pulver's words about his wife-
"Horrible title - but kidney disease is a horrible disease. People can't see it and it is hard to describe how it affects the person that has kidney disease.
My wife Amber still needs a transplant and every day is a struggle for her. Her latest blood tests show a steady decline into Stage 5 kidney failure.
As her eternal companion, I have an enormous and sometimes overwhelming responsibility to support and ensure her well-being. Also I must somehow understand (without experiencing kidney failure) how she feels and know what to do to help. It is a task I admit I struggle with and for sure fall short at times. I have been yelled at on many occasions that, "You have no idea what it feels like to have your kidneys failing!" A truer statement has never been uttered - at least to me anyway. There is no way I could ever understand the utter frustration and exhaustion that she is experiencing on a day to day basis!
Amber is a strong independent woman, but at times I have to remind her to limit her activity as her kidney failure has progressed. Definitely a touchy subject, but I know the repercussions of her going too far - it means missing work and being down for at least a day.
I love Amber beyond measure and I pray each day that a transplant hero will get through all the tests and agree to be Amber's lifesaver!"
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Leslie White has a genetic disease that has destroyed her kidneys and needs a transplant as soon as possible to avoid the need for dialysis. Leslie is a mother of a teenage son and works with senior citizens as a caregiver. Please consider becoming a living kidney donor for Leslie.
Leslie is registered on the Kidney Transplant Waiting List at Emory Transplant Center in Atlanta, GA. Kidney Donor Program Direct Line: 885-366-7989
https://emory.donorscreen.org/register/now
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Please watch this very special interview with Mandy Rose Dufrane. She is from Brooklyn, NY and now leaves in Bozeman, MT. She is a super friendly and kind person. Mandy is fighting with all her might to move forward for her family, friends, and dog. Mandy loves her dog dearly!
She is now looking for a living kidney donor.
If you would like to be a living kidney donor, It's university of Washington and the number is 206-598-3627. The website is www.uwmedicine.org/donor. Then click on living kidney donor program. Then click on potential living kidney donor screening.
Jared A Brown on Social Media Twitter-- https://twitter.com/warriorsqustshw?s=09
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Abigail Battles Kidney Disease on the Warriors Quest show 📺. Is from Oxford, Oxford shire.
Join us for a a very special interview with Abigail. Abigail has been battling kidney disease for her family. She's a mother.
She has been on dialysis for 5 years now. 🥊
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Please join us for a a very special interview with Stephan Brown. Stephan is a kidney disease patient, who is looking for a kidney donor candidate. I found a post from the Facebook group "I Hate Dialysis".
He's from Flossmoor, Illinois.
Kidney failure that requires dialysis or kidney transplant is often referred to as end-stage renal disease (ESRD). More than 20 million Americans aged 20 and older may have CKD. Although CKD is common, many Americans with the key risk factors –diabetes and high blood pressure-do not know they are at risk.
In addition, the rising rates of diabetes and obesity will continue to fuel its growth, as both conditions increase the risk of developing CKD and speed its progression. Therapies exist that can significantly slow the progression of CKD to kidney failure; particularly blood pressure control and use of medications that protect kidney function-called angiotensin-converting enzyme (ACE) inhibitors or angiotensin receptor blockers (ARBs). However, many people who would benefit from treatment are not receiving it.
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Join us for an inspiring show about Chele Allen and her battle with kidney failure. She is currently searching for a living kidney donor to allow her to extend her life and have a much better quality of life with her family and friends.
Chele Allen is a very special person from New York, New York. She brings smiles to the faces of each and every person whom she contacts.
Her transplant hospital contact information is the following: 600 N. Wolfe Street, Osler 625 Baltimore Maryland 21287. telephone # 410-502-6152/ Toll Free:1-888-304-5069 Opt 2. Fax:410-614-6906. Email address www.hopkinsmedicine.org/transplant
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Please watch this special interview with Shane Blanchard, kidney dialysis warrior from Oskaloosa, Iowa.
Blanchard was diagnosed with Eagle-Barrett Syndrome, commonly known as prune belly syndrome, a rare congenital disorder. The syndrome is characterized by either a partial or complete lack of abdominal muscles.
At birth Blanchard's prognosis was grim. Doctors said he would most likely not live beyond a year. Since then, Blanchard has survived more than 50 operations and kidney failure at age 22.
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Join us for an inspiring show 📺! These two guys have teamed up to advocate for other lupus warriors from east coast to west coast. Dion Langley and Emmitt Henderson III will tell what has inspired them to collaborate against lupus, kidney failure, and all things that bring us down 👇.
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Watch this special interview with Candace Long, kidney warrior, from Columbus, Ohio. She will give her story 📙 about overcoming adversity, and battling kidney disease on a daily basis. Candace currently has renal failure or ESRD, so she must do dialysis regularly to do what kidneys no do on their own.
Kidney failure that requires dialysis or kidney transplant is often referred to as end-stage renal disease (ESRD). More than 20 million Americans aged 20 and older may have CKD. Although CKD is common, many Americans with the key risk factors –diabetes and high blood pressure-do not know they are at risk.
In addition, the rising rates of diabetes and obesity will continue to fuel its growth, as both conditions increase the risk of developing CKD and speed its progression. Therapies exist that can significantly slow the progression of CKD to kidney failure; particularly blood pressure control and use of medications that protect kidney function-called angiotensin-converting enzyme (ACE) inhibitors or angiotensin receptor blockers (ARBs). However, many people who would benefit from treatment are not receiving it.
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Bernadette Forystek is in dire need of a kidney transplant. Without a living donor, the wait time for a kidney is around 5-7 years. “I don’t want to leave my family without a mother, wife, sister and grandmother.”
Special co-hosts will be Jonathan Traylor & Kyle Hockridge
Bernadette is registered on the Kidney Transplant Waiting List at
the University of Utah in Salt Lake City, Utah
Kidney Donor Program Inquiry Direct Line: +1 (801) 587-8544
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Many people who would benefit from using their own personal car window to find a living donor, can simply do this now!
Chronic disease warriors can benefit greatly from finding creative ways to make their living donor search easier.
The glass pen I used in the video 📹 can be found here.
https://www.amazon.com/dp/B006MUO6FW/ref=cm_sw_r_cp_apa_fabc_UdKcGbP7QM4P4?_encoding=UTF8&psc=1
Jared A Brown on Social Media Twitter-- https://twitter.com/warriorsqustshw?s=09
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Terri Shoffner is our special guest on the Warriors Quest Show. Terri is a mother of twins. Her twins, girl and boy, are quite literally her world. Her twin children were born roughly five years ago.
Terri has been been hit by kidney failure and finds herself in the position of relying on the kidney dialysis machine to support her life. The life of a dialysis warrior is a turbulent ride that can easily be described as an emotional and physical roller coaster. She has dialysis help her with filtering out the toxins. Kidney failure can come with anemia, insomnia memory loss, and most of all - congestive heart failure.
Please become a living kidney donor for Terri and help her with a better quality of life with her twins.
Jared A Brown on Social Media Twitter-- https://twitter.com/warriorsqustshw?s=09
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A Warriors Quest Show that you won't want to miss! We have the extreme pleasure of having Joan Joanie Frink as our special guest kidney warrior.
CALL FOR APPOINTMENT: 410-328-5408 to be a living kidney donor for Joan. https://www.umms.org/ummc/health-services/transplant/kidney/living-donor?si=ummc
Joan is currently searching for a kidney donor candidate to allow her to have a much better quality of life. She has dialysis 3 times a week, in center.
She grew up in Baltimore, MD. She has a 25 year old young man & 23 year old young lady and a host of Foster Kids I've had over the last past 20+ years. She found out she had Kidney disease in 2008. She took it seriously in 2010. She lost 160 pounds in 2012 to put LESS stresses on her body as a result from obesity & went to dialysis April 2013. She went on the Transplant list in 2013. They're not sure what caused her kidney disease because she didn't have high blood pressure or diabetes
The paired exchange program accepts every blood type from a healthy living donor. The University of Maryland Medical Center can be contacted, apply now 410-328-5408. https://www.umms.org/ummc/health-services/transplant/kidney/living-donor
Diabetes and high blood pressure can damage the kidneys and lead to kidney disease. In addition, diabetes and high blood pressure are the leading causes of kidney disease.
You have two kidneys located near the middle of your back, just under your ribcage. There main job is to filter wastes and extra water from the blood to make urine. Wastes can build up in the body when the kidneys are damaged. In addition, diabetes and high blood pressure are not the only risk factors for kidney disease. You also should be checked if you have: cardiovascular (heart) disease, or a mother, father, sister, or brother with kidney failure.
Jared A Brown on Social Media Twitter-- https://twitter.com/warriorsqustshw?s=09
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Chronic disease warriors have had to become very creative in regards to trying promote their search for a living donor.
These are my top five choices, however, there are some other methods that can be successful as well.
Live Video 📹 on Social Media
Poster on Social Media
T-Shirt
Text on Car
News Channel
Live Video 📹
A live video 📹 or broadcast on social media is by far and away my favorite way to try to find a living donor. Something magical happens when you appear on screen. Your viewers will see that you are human, see your facial expressions, hear your voice, sense your emotions and feelings. It's a reality TV show with you as the director. Try practicing offline in front of a mirror, use earbuds, and have plenty of lighting. I use StreamYard to broadcast my live video (https://streamyard.com?pal=5663143541866496), however, you can go live with Facebook, Twitter, Instagram, and YouTube without any third party platform.
Poster on Social Media 🖥
Making a photo with text, special effects, collage, or a slide show can be very effective as well. Again, the idea is to connect emotionally with a potential living donor. Photos on a social media poster that can drive emotional connections, these are what can lead to engagement, shares, new followers and potential living donors.
As a beginner, I'd suggest keeping it simple. Don't use more than 4-5 words on the photo of the poster. Also, make sure you don't place any text on the people or focal points of the photo.
Start out with easy to use mobile apps such as Canva or Photolab. After you've gotten more experience, you can try using PicsArt, then maybe go to desktop software.
T-Shirt 👕
A carefully crafted t-shirt can make you feel as though you're a walking billboard.
Much like the poster, keep it simple. You'll want the t-shirt to have text or words that are very easy to read. Remember to use as few words as you can. Try something like "Kidney Donor Needed ASAP (phone number of the transplant hospital)". Don't use fancy fonts or get too creative with photos or logos.
Text on Car 🚙
Think of this as a mobile billboard. People will see your text on the car as you're either driving around or when your car is parked in a public parking lot.
I'd like to introduce myself to you. My name is Jared A Brown. I host a weekly online show on the Urban Health Outreach Media YouTube channel. It's called the Warriors Quest show 📺. I interview chronic disease warriors and give them a chance, on a live broadcast, to tell their story 📙 about searching for a living donor candidate. The Warriors Quest show 📺 is scheduled for every Wednesday night at 8:30 pm ET.
Jared A Brown on Social Media Twitter-- https://twitter.com/warriorsqustshw?s=09
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DeAngelo Crawford has just gotten a new kidney!! I'm happy to report that DeAngelo has had a successful kidney transplant surgery. #Kidneystone #kidneystones #kidneystonessucks #kidneywarrior #Kidneydonation #kidneyhealth #kidneylife #kidneypatient #kidneydonor #kidneyfailure #kidneyrejection #hemodialysis #homedialysis #lupus #lupusstrong #homehemo #renaldialysis #kidneyorgandonation #Dadvicetv #NationalKidneyFoundation
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Chad Mikesell just received a new kidney! He was just recently interviewed on the Warriors Quest show a couple of weeks ago. #Kidneystone #kidneystones #kidneystonessucks #kidneywarrior #Kidneydonation #kidneyhealth #kidneylife #kidneypatient #kidneydonor #kidneyfailure #kidneyrejection #hemodialysis #homedialysis #lupus #lupusstrong #homehemo #renaldialysis #kidneyorgandonation #Dadvicetv #NationalKidneyFoundation
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Watch this special broadcast as Haddie joins us as the special guest for the Warriors Quest Show. Dawn Kirkowski, 20 year kidney transplant recipient, will also join us as the cohost.
Haddie was diagnosed with Focal segmental glomerulosclerosis, FSGS, roughly 14 years ago. FSGS is a rare disease that attacks the kidney’s filtering units (glomeruli) causing serious scarring which leads to permanent kidney damage and even failure. FSGS is one of the causes of a serious condition known as Nephrotic Syndrome. FSGS is usually “idiopathic,” which means it arises without a known cause. There are some known genetic causes of FSGS, with new gene variants continually being discovered.
A little more than 7 years ago, Haddie experienced enough scarring of her kidneys that she had to start kidney dialysis. 2 high risk pregnancies and multiple surgeries later, she's still alive and surviving kidney failure.
She is looking for a kidney donor candidate to allow her to have a much better quality of life.
Here’s the transplant clinic info:
UAB Kidney Transplant Clinic 1915 6th Avenue South Birmingham, AL 35233 (205)975-9200
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Listen to the Warriors Quest show 📺 and hear the inspirational interview. Chad Mikesell is the special guest for the Warriors Quest show. He's from Clinton, Utah. He was diagnosed with Focal segmental glomerulosclerosis or FSGS. FSGS is a rare disease that attacks the kidney’s filtering units (glomeruli) causing serious scarring which leads to permanent kidney damage and even failure. FSGS is one of the causes of a serious condition known as Nephrotic Syndrome.
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Check out LaQuayia Goldring and her virtual testimony as she continues to search for a kidney donor. Lives can still be saved during this pandemic.
LaQuayia is not only a kidney disease patient, but she is 28 year cancer survivor, ESRD/Organ donor advocate, Donate Life Ambassador, and a Global Liver Institute - Pediatrics intern.
December 2, 2020 at 8:30pm-9:30pm ET, She will share her testimony on The Warriors Quest Show- Interview live with Jared A. Brown on YouTube as she continues to seek out a donor. For a reminder, her donor can be A,B, or O blood type, in good health, between the ages of 18-65 (without kidney disease, heart disease, or diabetes).You can visit the website to be tested or to learn more about organ donation at www.NKR.ORG/JAV946 GOD BLESS. Happy Holidays
In addition, the rising rates of diabetes and obesity will continue to fuel its growth, as both conditions increase the risk of developing CKD and speed its progression. Therapies exist that can significantly slow the progression of CKD to kidney failure; particularly blood pressure control and use of medications that protect kidney function-called angiotensin-converting enzyme (ACE) inhibitors or angiotensin receptor blockers (ARBs). However, many people who would benefit from treatment are not receiving it.
LaQuayia is not only a kidney disease patient, but she is 28 year cancer survivor, ESRD/Organ donor advocate, Donate Life Ambassador, and a Global Liver Institute - Pediatrics intern.
What is chronic kidney disease? Chronic kidney disease (CKD) is a serious and growing public health problem in the United States. CKD is a condition in which the kidneys become damaged, decreasing their ability to filter the blood and remove water and waste products. Wastes then build up in the blood, harming the body. When kidney function decreases to less than 15 percent, a patient has kidney failure.
Kidney failure that requires dialysis or kidney transplant is often referred to as end-stage renal disease (ESRD). More than 20 million Americans aged 20 and older may have CKD. Although CKD is common, many Americans with the key risk factors –diabetes and high blood pressure-do not know they are at risk.
In addition, the rising rates of diabetes and obesity will continue to fuel its growth, as both conditions increase the risk of developing CKD and speed its progression. Therapies exist that can significantly slow the progression of CKD to kidney failure; particularly blood pressure control and use of medications that protect kidney function-called angiotensin-converting enzyme (ACE) inhibitors or angiotensin receptor blockers (ARBs). However, many people who would benefit from treatment are not receiving it.
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This is an online interview with Marshall Parson, kidney and lupus warrior. As a co-host, we Emmitt Henderson III, lupus warrior. #Kidneystone #kidneystones #kidneystonessucks #kidneywarrior #Kidneydonation #kidneyhealth #kidneylife #kidneypatient #kidneydonor #kidneyfailure #kidneyrejection #hemodialysis #homedialysis #lupus #lupusstrong #homehemo #renaldialysis #kidneyorgandonation #Dadvicetv #NationalKidneyFoundation
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