T1D Uncensored Podcast: Recent Episodes
T1D Uncensored
A podcast that covers all things Type 1 Diabetes – nothing is off-limits. Introducing T1D Uncensored! If you want an accessible way to learn all about the latest and greatest in T1D & have some laughs 😂 along the way - this pod is for YOU. Join 4 friends & (sometimes unprofessional) health professionals keep it real with evidence-based info. Our vision is to support and empower as many individuals living with T1D as possible (& their loved ones) in a down to earth way. With 3 x credentialled diabetes educators & 1 x dietitian, we will also have guests of all kinds, & share our own experiences & knowledge.
There are many different autoimmune diseases, type 1 diabetes being one of them. A common autoimmune disease associated with type 1 diabetes is coeliac disease. Being coeliac awareness week this week we thought it would be great timing to discuss the ins and outs of coeliac disease, how it impacts people with type 1 and a few tips on how to manage it. Join Nic and Lara as they delve into what coeliac disease is, how it's diagnosed and how to manage it.
Open-source, DIY Automated Insulin Devices (AIDs) are becoming more popular around the world. In this episode, Dr. Martin de Bock (paediatric endocrinologist & researcher) joins us again to talk about his latest research using open-source systems. These are off-label systems people with T1D are building and using to gain tighter glucose management. Martin's research highlights the importance of healthcare professionals being open to talking about these systems with people with T1D using them. We would love to have some people with lived experience of DIY systems. Please contact us if you would be willing to share your experience. See Episode 3 for Martin's previous episode on Medtronic 780G).
Links to researchDOI: 10.1056/NEJMoa2203913
Open-source Automated Insulin Delivery in Type 1 Diabetes
DOI:10.111/dme.14708
'We're all on the same team.' Perspectives on the future of artificial pancreas systems by adults in Australia with type 1 diabetes using open-source technologies: A qualitative study
Socials & contact
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T1D Uncensored Podcast (@t1duncensoredpodcast)
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T1D Uncensored Podcast
Email
t1duncensoredpodcast@gmail.com
Credentialled Diabetes Educators
Fran Leclercq
Website: Type 1 Diabetes Education Service - Perth (t1des.com.au)
Fran Leclercq - Credentialled Diabetes Educator (@diabetes.educator.fran)
Jaimee Paniora
Website: Real-I-Deal Health - Find your happy, healthy balance
Jaimee Paniora | Facebook
Real-I-Deal Health (Jaimee P) (@t1drealidealhealth)
Email: admin@real-i-dealhealth.com
Ginger talks about her experience with inhaled insulin (Afrezza) - what it is, how it works, when & how it can be used. We talk personal experience with fasted exercise & powerlifting, antibody testing for children of parents with T1D, & last but not least, about the books Ginger has written including '"When I go Low" & "Ain't Gonna Hide My T1D" written for children. Ginger Vieira has been living with Type 1 herself since 1999, as well as coeliac disease, hypothyroidism, and fibromyalgia. She lives in Vermont in the US & is passionate about helping people with diabetes and other chronic illnesses live full lives! These conditions have never stopped her from living a full, active, energetic, and busy life.
Ginger is the Associate Director of Communications at T1D Exchange. T1D Exchange works to improve care and quality of life for people with type 1 diabetes through research that identifies critical problems or challenges.
Time & Topics within this episode:
3min 40s - Exercise
29min - Antibody testing
35min - Inhaled Insulin - Afrezza
44min 20s - Ginger's Books
Some of the links for topics discussed in this episode are below:
FDA Approves First Drug That Can Delay Onset of Type 1 Diabetes | FDA\
Early Diabetes Screening & Detection - JDRF Resources
Home | TRIALNET Type 1 Diabetes TrialNet
Take Control with Afrezza® Rapid-acting Inhaled Insulin | Afrezza
Inhaled Insulin (beyondtype1.org)
MannKind's Afrezza Manufacturing Facility, California - Pharmaceutical Technology (pharmaceutical-technology.com)
Books – Ginger Vieira
Always seek advice from your own healthcare team before making any changes to your diabetes management. This is not individualised advice.
Ever thought of going onto an insulin pump? Fran & Jaimee are 'Talkin' Tech. This one is aimed at those who may be considering switching from injections to insulin pump therapy. The CGM subsidy in Australia has opened lots of doors. This may lead you to explore your options with Hybrid Closed Loop systems (insulin pump and CGM talking to each other via Bluetooth). We are seeing some fantastic results since these systems have become more widely available. With release so close to Christmas, we thought this can also lead to the desire for some more flexibility with diabetes management and the foods we eat (with ideally less ups and downs). So, if you've been wondering what an insulin pump is, the options, what the process is to move to one, costs, or any of the other considerations, listen in and we hope this helps you decide if it may work for you. Please feel free to contact us with any questions too via T1D Uncensored Podcast on Instagram or Facebook. You can also contact Fran or Jaimee directly as per details below. The JDRF link can also be found below.
Insulin Pump Program for Type 1 Diabetes | JDRF Australia
Fran Leclercq
Website: Type 1 Diabetes Education Service - Perth (t1des.com.au)
Fran Leclercq - Credentialled Diabetes Educator (@diabetes.educator.fran)
Jaimee Paniora
Website: Real-I-Deal Health - Find your happy, healthy balance
Jaimee Paniora | Facebook
Real-I-Deal Health (Jaimee P) (@t1drealidealhealth)
Email: admin@real-i-dealhealth.com
Type 1 Diabetes is relentless. It takes up constant emotional, physical and psychological energy! Diabetes burnout & distress is not uncommon. Up to 25% people with T1D will experience this. It can lead to disengagement of self-care & result in even more problems. We have a special guest (Dr. Adriana Ventura) to talk about the signs of diabetes distress & burnout, & when you might need to seek some help. We hope this reaches lots of people to help create awareness & to provide some strategies to help. See Dr. Adriana's details below if you would like to get in touch.
Dr. Adriana is a nationally registered psychologist under the Australian Health Practitioner Regulation Agency (AHPRA) and a member of the Australian Psychological Society (APS). She holds a Bachelor of Arts with a major in Psychology from Monash University, a Graduate Diploma in Psychology and a Doctorate of Psychology (Health) from Deakin University.
Website: Dr Adriana Ventura - Psychologist
Instagram: Dr Adriana Ventura (@themeditatingpsychologist)
Fran Leclercq
Type 1 Diabetes Education Service - Perth (t1des.com.au)
Fran Leclercq - Credentialled Diabetes Educator (@diabetes.educator.fran)
Other resources:
Diabetes distress fact sheet – NDSS
This one is all about the challenges we can face when prescribed Corticosteroids. We have kept it to the legal & prescribed Roids! The 'Roid Rage' can be very real...but it is not the anabolic steroid rage you might have heard about...it's the insulin resistance rage that can result in the desire to 'rage bolus'... The stubborn highs & amount of extra insulin required can be frustrating & very tricky to manage!
Corticosteroids come in a variety of forms. Listen in as we chat about some considerations if you are prescribed a course of steroids. It can be during pregnancy, it can be for things like asthma, it can be due to injury or pain, or any other forms of inflammation. This is a shorter episode you can listen to in case you ever find yourself needing some more information, which isn't easy to come by on this topic. As always, it's very individual & something your team will need to help with if the time comes.
See link below from NDSS for further info:
Steroid medications and diabetes fact sheet – NDSS
Breastfeeding & T1D, Milk Supply, Neonatal Hypoglycaemia, Special Care Nursery, Mum & Hypo's. Join Nic & Jaimee in this episode as we chat to a very special guest, Kristiana, who is an International Board-Certified Lactation Consultant (IBCLC), and a Clinical Nurse Specialist in the Neonatal Intensive Care Unit at one of the major hospitals in Melbourne, Australia.
There's some 'Uncensored' chat about our personal breastfeeding experiences (including the shape of nipples haha), as well as plenty of the latest evidence around how T1D can impact on Mum, Bub & Breastfeeding.
See the links below for further information & for Kristiana's details if you have any direct questions. As always, comments & feedback is very welcome via FB or Insta. Please rate & review us to help us help others too!
Australian Breastfeeding Association Information
Breastfeeding and Diabetes - Type 1, Type 2 and Gestational diabetes | Australian Breastfeeding Association
Expressing Colostrum / Antenatal Expressing Video https://med.stanford.edu/newborns/professional-education/breastfeeding/hand-expressing-milk.html
Kristiana's website
https://www.nourishedchildlactation.com.au/
Pregnancy with Type 1 Diabetes requires lots of additional planning to help ensure both Mum & baby are as healthy as possible. Join Jaimee & our special guest, Nerine Conway, who is a Registered Midwife, Registered Nurse & Credentialled Diabetes Educator (CDE). She has over 25 years experience as a nurse, over 20 years as a midwife, & over 10 years specialising in diabetes & pregnancy as a CDE. She has seen it all. The best part is, she is the most caring, understanding, non-judgemental & passionate lady who is a mother of three herself, & a beautiful wife.
We talk pregnancy planning with Type 1. From glucose targets & HbA1c, to supplements to consider, diabetes tech including pumps & CGM, as well as finger-pricks & injections. Most importantly, we talk about how to maximise the chances of a healthy pregnancy!! Minimising the guilt of everything Type 1 is a key part of pregnancy. We are so excited to bring this episode to you. Tune in & please feel free to let us know what you think. Enjoy!
Its official the CGM subsidy has been rolled out in Australia for adults with type 1 diabetes from the 1st of July!!
With all this talk about CGM it got us thinking about all the information people will see as they view their glucose levels in real time and between boluses.
You may have noticed that your glucose levels rise after certain meals or foods and its tricky to get them back in range. Maybe you avoid some foods altogether?
Tune in to Nic and Lara as they chat about meal rises, how to identify which foods are the culprits, why its important to manage them and a few tips on how to manage them
It's happened - a promise has been made to subsidise CGM here in Australia for ALL with Type 1 Diabetes!! Fingers crossed this promise will come into fruition within the next few months. AMAZING!!
But...what devices are available here in Australia? What suits YOU the best? What are the pros and cons of CGM? and...how does CGM actually work?!
Join Lara and Fran as we speak about all of the topics above! Hope it helps with your decision making.
Drop us a line if you have any comments or questions - you can find us on Facebook and Instagram on @t1duncensoredpodcast
or email us on t1duncensoredpodcast@gmail.com
See you next time!
General health guidelines suggest that you stick to standard drink recommendations when it comes to drinking alcohol, especially when you have Type 1 Diabetes.
Though this is best practice, we realise that there may be times when you, as an adult, may choose to overindulge - whether it be your 21st of 40th, your best friend's wedding or a winery day out with friends.
In this episode, Fran and Lara talk through the "do's" when it comes to booze and go through some safety mechanisms to try and have in place while drinking alcohol.
Like the podcast? Follow us and let us know what you think on instagram and facebook @t1duncensoredpodcast
Join Lara and Jaimee as they chat to singer songwriter Abby Lee-Harder. Abby is mum to Presley, who was diagnosed with Type 1 Diabetes at 17 months old. Abby talks through their traumatic diagnosis story and how diabetes technology has made a huge positive impact to their day to day lives. Abby and her family live in New Zealand, where there are NO CGM subsidies for people living with diabetes.
With her husband (and pop/R&B sensation) Vince Harder, the pair wrote the beautifully heartfelt song "Overwhelmed", dedicated to their children. Their song and it's video has since been used as a strong advocacy piece through Diabetes NZ as a way to push for subsidised access to CGM - a cause that the family (and us here at the podcast) are deeply passionate about. PLEASE check it out on YouTube and have the tissues handy.
We hope you enjoy listening to our interview with this amazing supermum!
Are you struggling to work out how to work out with T1D? Or perhaps getting totally mind boggled with all the physical snacktivity chatter surrounding the exercise space? No need to look any further my friends. This ep is tailor made for you and your BAE’s; complete with egg-cellent puns and up-to-date evidence-based practice recommendations. Listen in with Jaimee and Nic as they delve into what the latest research suggests about exercise in the context of T1D including insulin adjustments and whether or not to get your snack on.
Keep a look out on our socials for some helpful resources!
References:
Adolfsson P, Riddell MC, Taplin CE, Davis EA, Fournier PA, Annan F, Scaramuzza AE, Hassani D, Hofer SE. ISPAD Clinical Practice Consensus Guidelines 2018: Exercise in children and adolescents with diabetes. Pedi. 2018;19(27): 205-226.
Reddy R, Wittenberg A, Castle JR, El Youssef J, Winters-Stone K, Gillingham M, Jacobs PG. Effect of aerobic and resistance exercise on glycemic control in adults with type 1 diabetes Can J Diabetes. 2019;43(6): 401-414.
Scott S, Kempf P, Bally L, Steller C. Carbohydrate Intake in the Context of Exercise in People with Type 1 Diabetes. Nutrients. 2019;(11): 3017.
Part of our vision for our podcast was to interview some inspiring people with Type 1 Diabetes, and we were incredibly lucky to have the time to chat with our first guest - diabetes advocate, blogger and absolute legend Renza Scibilia!
Renza was diagnosed with Type 1 in 1990. She is the manager of "Type 1 Diabetes and Communities" at Diabetes Australia, is a strong diabetes advocate and writes a funny, entertaining and insightful blog called Diabetogenic.
Listen in as we talk about several topics such as why language in diabetes matters, the importance of peer support, #accessforall and her own technology journey to looping.
*The views and opinions expressed in interview episodes are those of the guests. They should not be taken as medical advice. Please see your health care provider if you would like to discuss changes to your management.
Sick of explaining yourself? Well this ones for you! Send it to your family, friends and support network so that they have a better understanding of Type 1.
There have never been so many diabetes management choices as there are today – and guess what? There’s more coming! The Medtronic 780G hybrid closed-loop system has been released commercially in Europe and New Zealand. Australia is sure to be next!
In this episode we hear from one of the most passionate paediatric diabetes endocrinologists around. With over 40 published research articles since 2017, Dr. Martin de Bock helps debunk the algorithms and functions of the Medtronic closed-loop systems. Hear about some of the challenges and benefits, how the algorithm differs from previous Medtronic systems, and how the Medtronic 780G could improve the lives of people living with T1D (and parents lives too). We will chat about exercise, quality of life, and the impact the 780G could have on diabetes control.
References:
Collyns OJ, Meier RA, Betts ZL, Chan DSH, Frampton C, Frewen CM, Hewapathirana NM, Jones SD, Roy A, Grosman B, Kurtz N, Shin J, Vigersky RA, Wheeler BJ, de Bock MI. Improved Glycemic Outcomes With Medtronic MiniMed Advanced Hybrid Closed-Loop Delivery: Results From a Randomized Crossover Trial Comparing Automated Insulin Delivery With Predictive Low Glucose Suspend in People With Type 1 Diabetes. Diabetes Care. 2021 Apr;44(4):969-975. doi: 10.2337/dc20-2250. Epub 2021 Feb 12. PMID: 33579715.
Wheeler BJ, Collyns OJ, Meier RA, Betts ZL, Frampton C, Frewen CM, Galland B, Hewapathirana NM, Jones SD, Chan DSH, Roy A, Grosman B, Kurtz N, Shin J, Vigersky RA, de Bock MI. Improved technology satisfaction and sleep quality with Medtronic MiniMed® Advanced Hybrid Closed-Loop delivery compared to predictive low glucose suspend in people with Type 1 Diabetes in a randomized crossover trial. Acta Diabetol. 2021 Aug 27. doi: 10.1007/s00592-021-01789-5. Epub ahead of print. PMID: 34453208.
So what's the deal with fat and protein? Why is it so hard?
We want to tell you a bit about the fat and protein story and hopefully drop some knowledge bombs along the way. Join Lara and Nic, as they chat about what is considered to be a high fat and high protein meal, why these meals can cause elevated blood glucose levels, and what the latest research says on ways that may help navigate these situations.
References:
Keating B, Smart CE, Harray AJ, Paramalingam N, Smith G, Jones TW, King BR, Davis EA. Additional insulin is required in both the early and late postprandial periods for meals high in protein and fat: a randomised trial. JCEM. 2021;106(9):e3611.
Smith TA, Marlow AA, King BR, Smart CE. Insulin strategies for dietary fat and protein in type 1 diabetes: a systematic review. Diabet Med. 2021;38:e14641.
Smith TA, Smart CE, Fuery MEJ, et al. In children and young people with type 1 diabetes using Pump therapy, an additional 40% of the insulin dose for a high-fat, high-protein breakfast improves postprandial glycaemic excursions: a cross-over trial. Diabet Med. 2021;38(7):e14511.
Smith TA, Smart CE, Howley PP, Lopez PE, King BR. For a high fat-high protein breakfast, preprandial administration of 125% of the insulin dose improves postprandial glycaemic excursions in people with Type 1 diabetes using multiple daily injections: a cross-over trial. Diabet Med. 2021;38(7):e14512.
Get to know your hosts, and understand why it is that they have decided to add to their already busy schedules to create this podcast for people living with Type 1 Diabetes and their support systems.
If you're after more diabetes specific content, keep posted for more episodes to come!