Pregnancy and Alcohol: The Surprising Reality

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Kurt is joined by Katelyn Mullally, a PhD Candidate in Clinical Child and Adolescent Psychology at the University of Guelph in Canada, who is researching youth justice, legal decision-making and FASD. They discuss her research on guilty pleas and plea understanding in youth and young adults with FASD. She found that individuals with FASD had difficulty understanding the terms and consequences of guilty pleas compared to those without FASD. She also emphasises the importance of legal professionals being aware of FASD and adapting their practices to support defendants with FASD.

For more information about FASD, please go to: https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewees: Katelyn Mullally

Narrator: Frances Price

The copyright is owned by NOFASD Australia.

All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia. The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined by Dr David Junior Gilbert from the University of Salford in the UK. He is a University Fellow researching the intersection of FASD and the criminal justice system. His research focuses on factors that make individuals with FASD more vulnerable to involvement in the criminal justice system, such as confabulation, suggestibility, compliance, and acquiescence. Dr. Gilbert is leading a larger international study examining these issues in multiple countries, aiming to provide scientific evidence to support decision-making in the justice system.

For more information about FASD, please go to: https://www.nofasd.org.au/

If you are interested in the international study on Fetal Alcohol Spectrum Disorder (FASD) and the justice system, at the time of the release of this podcast Dr Gilbert is still recruiting research participants. To express your interest in being involved please see: https://app.onlinesurveys.jisc.ac.uk/s/salford/international-fasd-and-justice-system-study

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewees: Dr David Junior Gilbert

Narrator: Frances Price

The copyright is owned by NOFASD Australia.

All rights reserved – No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia. The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined by Julia Riches, Research Officer for the Learning with FASD initiative. They discuss the Learning with FASD project which aims to provide primary school teaching and support staff with evidence-based resources to understand and support children with FASD in Australian primary schools.

You can access the Learning with FASD resources on this page of the NOFASDwebsite: https://www.nofasd.org.au/service-providers/education/

This webpage also provides a wide range of other resources designed to assist educators to become more FASD-informed and confident in using strategies that can assist students who have FASD.

This is a link to the Learning with FASD website: https://learningwithfasd.org.au/

For more information about FASD, please go to: https://www.nofasd.org.au/

For information about the National Fetal Alcohol Spectrum Disorder Strategic Action Plan which is mentioned in this podcast please see: https://www.nofasd.org.au/strategic-action-plan/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewees: Julia Riches

Narrator: Frances Price

The copyright is owned by NOFASD Australia.

All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia. The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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This episode marks the five-year anniversary since the very first episode of NOFASD’s podcast series: “Pregnancy, Alcohol and FASD: The Surprising Reality”. For this special anniversary episode Kurt is joined again by Louise Gray, Chief Executive Officer of NOFASD Australia, to chat about key issues related to FetalAlcohol Spectrum Disorder. They discuss the ongoing work of NOFASD Australia, which this year is celebrating its 25th Anniversary as the National Organisation for FASD and highlight new services developed and expanded by the organisation over the past five years. In addition they reflect on some of the persistent myths about FASD which can negatively impact on prevention of this disability as well as the understanding of the multitude of ways in which this spectrum-based disorder presents in different individuals and what is being done to counteract these myths.

For more information please go to https://www.nofasd.org.au/

Producers: Kurt Lewis, Julie Flanagan and Louise Gray

Narrator: Frances Price

Interviewer: Kurt Lewis

Interviewee: Louise Gray

The copyright is owned by NOFASD Australia.

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Kurt is joined by Christine Brooks; an experienced teacher, NOFASD board member and carer of a child with FASD, and also Sophie; a biological mother of a child with FASD. Together they chat about FASD in the early childhood sector, the things to know about FASD in an early childhood setting, and the special resources that have been developed to help these educators develop an awareness and understanding of FASD.

For more information on the resources developed by Early Childhood Australia (ECA) in partnership with NOFASD Australia or to download your free copy of the resources, see: https://www.nofasd.org.au/service-providers/education/through-different-eyes/

For more information about FASD, please go to: https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewees: Christine Brooks and Sophie

Narrator: Frances Price

The copyright is owned by NOFASD Australia.

All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia. The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined by Prue Walker and Dr Kerryn Bagley in a panel interview about social workers and FASD. Together they discuss how they first learned about FASD, the role social workers play in assisting people with FASD and their families. They also examine outcomes, risk surrounding FASD and how social workers can become better informed in relation to this ‘invisible’ disability.

Learn more about International FASD Awareness Day:www.nofasd.org.au

References:

Latrobe University’s “Living with Disability” YouTube site: https://www.youtube.com/channel/UCAf1u7TdOktOCLdGBtMxWTg

Dr Robyn Williams: https://www.linkedin.com/in/robyn-williams-0ab76596/?originalSubdomain=au

Prue Walker: https://pruewalkerfasd.com/ – workshops, training and FASD consultation services..

Dr Vanessa Spiller: FASD trainingand resources https://www.jumpstartpsychology.com/Explained-by-Brain-Group.html and other videos (search vanessaspiller fasd)

Dr Sara McLean: FASD resources for Emerging Minds https://emergingminds.com.au/resources/what-is-fetal-alcohol-spectrum-disorder-fasd/ and has many webinars online (search saramclean fasd)

Key readings for social workers who want to learn more about FASD click the following link: https://www.nofasd.org.au/33-risk-does-not-equal-destiny-social-worker-panel-interview-with-prue-walker-and-dr-kerryn-bagley/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Narrator: Frances Price

Interviewer: Kurt Lewis

Interviewees: Prue Walker and Dr Kerryn Bagley

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined by Angelene Bruce; a biological mother of a child with FASD, a FASD advocate, speaker and parent mentor.

Together they chat about Ange’s FASD journey, her appearance on the Channel Ten TV show, The Project and caring for a child with FASD.

For more information about FASD, please go to: https://www.nofasd.org.au/

The Project – “Hidden Epidemic Of Fetal Alcohol Syndrome”: https://www.youtube.com/watch?v=rd1yOhImDKA

Angelene’s Twitter Page:

https://twitter.com/AngeleneBruce

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Narrator: Frances Price

Interviewer: Kurt Lewis

Interviewee: Angelene Bruce

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined by David, Nick and Mav each of whom is a male who cares for a child with FASD. While each of them has come into their child’s life in a different way, they find similarities in their experiences. Together they discuss what it is like to care for a child with FASD, including the challenges they face and how they help their children develop their own individual strengths. They also share the tools and resources that have helped them through difficult situations they face with their child who has this hidden disability.

For more information about FASD, please go to: https://www.nofasd.org.au/

To check out Mav’s book ‘Making parenting enjoyable: Through healing, purpose and meaning’ ; please go to: https://www.amazon.com.au/Making-parenting-enjoyable-Through-healing/dp/B0BVT722M9/ref=tmm_pap_swatch_0?_encoding=UTF8&qid=1685325469&sr=8-1

To express your interest in joining one of the online support groups offered in NOFASD Australia’s Families Linking with Families program please register your details at: https://www.nofasd.org.au/contact-us/ (Please note that these support groups are only open to residents of Australia.)

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Narrator: Frances Price

Interviewer: Kurt Lewis

Interviewees: David, Nick and Mav

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined by Nicole Hewlett, a proud Palawa woman and researcher with the University of Queensland.Nicole is currently undertaking a PhD focusing on the development and implementationof Australia’s first FASD Indigenous Framework. They talk about this framework;improving medical care for people with FASD; the importance of a strengths-basedapproach in terms of FASD and creating equal partnerships between medical professionalsand people with FASD.

For more information about FASD, please go to: https://www.nofasd.org.au/

To read more about Nicole's research then go to this link: https://pubmed.ncbi.nlm.nih.gov/36982125/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Narrator: Frances Price

Interviewer: Kurt Lewis

Interviewee: Nicole Hewlett

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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We are back with a new series and a new name for our little Podcast. The first episode of Series 05 of Pregnancy. Alcohol and FASD: The Surprising Reality will be released this coming Friday the 2nd of June 2023.

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Kurt is joined by Professor Anita Gibbs; a Professor at the University of Otago, a registered social worker and a regular facilitator of a parent/caregiver support groups for families with children with FASD. They talk about Anita’s experience with FASD which is two-fold and covers both her teaching and research as an academic, and also her lived experience as a parent caring for two boys with FASD. They also chat about FASD in the criminal justice system and ways we may be able to stop people with this invisible disability from becoming entangled in this system.

For more information about FASD, please go to: https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Narrator: Frances Price

Interviewer: Kurt Lewis

Interviewee: Anita Gibbs

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined by Dr Natalie Phillips, who has a Doctor of Clinical Psychology and PhD (Neuropsychology) from the University of Sydney. They discuss her research and presentation that won the People’s Choice Award in the “Three-minute Thesis” session at NOFASD’s conference, “The FASD Forum ’22”. Natalie’s submission for the “Three-minute Thesis” was titled: Caring for children with FASD: importance of understanding the whole family’s needs. They discuss ways that we can best help families which have children with FASD.

For more information about FASD, please go to:

https://www.nofasd.org.au/

Caring for children with FASD: importance of understanding the whole family’s needs:

https://adc.bmj.com/content/107/8/755

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Narrator: Frances Price

Interviewer: Kurt Lewis

Interviewee: Dr Natalie Phillips

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined by Nirosha Boaden, a mental health social worker, and intellectual disability academic, and a PhD candidate at the University of New South Wales. They talk about the lack of services in the remote areas of Australia, her experiences with FASD in rural areas and how Australia needs to improve education about FASD and the risks involved in alcohol consumption during pregnancy.

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Narrator: Frances Price

Interviewer: Kurt Lewis

Interviewee: Nirosha Boaden

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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In this very special September International Awareness Day episode, Kurt is joined by Dr Kenneth Lyons Jones and Dr Christina Chambers. Dr Jones chats about his identification of Fetal Alcohol Spectrum Disorder, or FAS as it was first termed back in 1970. Dr Chambers chats about recent medical discoveries that are likely to make the process of FASD diagnosis significantly easier. They both talk about attitudes towards FASD and knowledge about this disability in the community as a whole – and also the need to improve the standard of medical knowledge when it comes to both FASD prevention and supporting people with this invisible disability.

For more information about FASD, please go to:

https://www.nofasd.org.au/

Prenatal alcohol exposure can be determined from baby teeth: Proof of concept

https://onlinelibrary.wiley.com/doi/abs/10.1002/bdr2.2054

Early Predictors of FASD in Ukraine

Early Predictors of FASD in Ukraine - Christina Chambers (grantome.com)

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Narrator: Frances Price

Interviewer: Kurt Lewis

Interviewee: Dr Kenneth Lyons Jones and Dr Christina Chambers

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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In the first episode of NOFASD’s podcast series for 2022, Kurt is joined by Jennifer Catlin; a woman who has only recently been diagnosed with FASD. They talk about her life being a jigsaw puzzle, how this invisible disability has affected her life and how her life has been improved through her diagnosis.

If you would like to hear more from Jennifer, she will be a speaker at “The FASD Forum ‘22”. Jennifer will be a part of a panel of people living with FASD who will share their lived experience journeys through diagnosis and beyond.

For more information about “The FASD Forum ‘22”, please click the link below:

https://pheedloop.com/FASDFORUM22/site/home/

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewee: Jennifer Catlin

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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In this last episode of the year, Kurt is joined by FASD Podcasters from around the globe. Natalie Vecchione from FASD Hope, Jeff Noble from the FASD Success Show, Clare Devanney-Glynn and Jessica Rutherford from Spotlight on FASD and Robbie Seale from FASD Family Life.

They chat about their podcasting journey, the positive developments in FASD research and programs going on in each of their countries. They also share knowledge and research aimed to help people with FASD and their parents/carers.

For more information about FASD, please go to:

https://www.nofasd.org.au/

To learn more about Natalie Vecchione and FASD Hope:

https://www.fasdhope.com/

To learn more about Jeff Noble and the FASD Success Show: https://www.fasdsuccess.com/

To learn more about Robbie Seale and FASD Family Life:

https://www.buzzsprout.com/1736766

To learn more about Clare Devanney-Glynn, Jessica Rutherford and Spotlight on FASD: https://anchor.fm/clare-devanney-glynn

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewees: Natalie Vecchione, Jeff Noble, Robbie Seale, Clare Devanney-Glynn and Jessica Rutherford.

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined Dr Melissa Cheung, Research Fellow at the University of Sydney and Manager of the Fetal Alcohol Spectrum Disorder Australian Registry (FASDAR).

They chat about FASDAR, the benefits to children with FASD who are registered with this service and the need for more research into the prevalence of FASD in Australia.

For more information about FASDAR please check out this website:

https://fasdregistry.org.au/

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewee: Dr Melissa Cheung

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined by Gilberto Spencer, FASD Advocate, Brain Coach, Mentor and Podcaster. They chat about his FASD symptoms, the events leading up to his diagnosis and the release of his podcast series; “The FASD Brain”. Gilberto is the first person with FASD to host and produce his own podcast series.

To listen to Gilberto’s podcast series please click on the link below:

https://www.thefasdbrain.com/podcast

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewee: Gilberto Spencer

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined by Robyn Smith the National Helpline Manager for NOFASD Australia. They chat about her work with the NOFASD Helpline service which is dedicated to reducing the harm caused by alcohol-exposed pregnancies and improving lives for those living with FASD. They discuss who can use this service and what kinds of information and help that our helpline operators can provide.

NOFASD Australia Helpline: 1800 860 613

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewee: Robyn Smith

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined by Briana Lees, a researcher, PHD candidate for the University of Sydney and NHMRC Scholar studying the effects of alcohol use on neurodevelopment, emotion and behavior.

They talk about her research into prenatal alcohol exposure, alcohols effects on unborn children, the need for more research into comorbidity between FASD and other disabilities like ADHD.

For more information about Briana Lees research please check out her interview with Dr Norman Swan: https://www.abc.net.au/radionational/programs/healthreport/alcohol-use-in-pregnancy-and-harm/13432380

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewees: Briana Lees

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined by Robert; a biological father of a child with FASD.

They talk about the triumphs, the challenges and his feelings about his son being diagnosed with this invisible disability.

Podcast episodes featuring Sophie;

05 Finale with Karen

https://anchor.fm/pasurprisingreality/episodes/05-Finale-with-Karen-e6b1lg/a-aqiidg

11 Karen with Sophie

https://anchor.fm/pasurprisingreality/episodes/11-Karen-with-Sophie-el4t8a/a-a3iam47

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewees: Robert

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined by Kelly Skorka; an Occupational Therapist, Researcher and PhD candidate at the University of Queensland with a focus in researching strengths and support for children with Fetal Alcohol Spectrum Disorder.

They chat about using a strengths-based approach to help children with FASD and the critical review she authored last year that focused on the experiences of children with FASD and their families. They also discuss the value of health professionals taking a holistic approach when supporting children with this invisible disability and their families.

To learn more about Kelly Skorka’s research then watch the video from the link below.

https://www.youtube.com/watch?v=0Qyr39FdosU

For more information about ‘Experiences of children with fetal alcohol spectrum disorder and their families: a critical review’ mentioned in this podcast interview click the link below.

https://espace.library.uq.edu.au/view/UQ:d106484

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewees: Kelly Skorka

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined by Neil Reynolds, a Carer of two children with FASD.

They chat about raising children with FASD, including the challenges and the importance of staying positive. He reminds us that small steps lead to a larger journey and to cherish every little bit of success.

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewees: Neil Reynolds

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined by Dr Kate Highfield; the General Manager of Professional Learning and Research Translation for ECA (Early Childhood Australia), an experienced teacher, author and researcher. He is also joined by Christine Brooks; another experienced teacher, NOFASD board member and carer of a child with FASD. Together they chat about FASD in the Early Childhood sector, the role of early childhood educators and a new resource that is being developed to help these educators understand FASD.

For more information on the guide being developed by ECA in partnership with NOFASD Australia, please check out the website below.

https://www.earlychildhoodaustralia.org.au/through-different-eyes/

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewees: Christine Brooks and Dr Kate Highfield

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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In this fourth and final part of this multi-part FASD First Voices Special, Kurt's quest is at a end.

Kurt is joined by CJ Lutke, a person with FASD, a member of the FASD Changemakers, advocate, writer and blogger. They chat about her life, her writing and how she deals with her FASD symptoms.

To read CJ Lutke’s many insightful blogs about her FASD then please click on this link:

https://www.nofasd.org.au/community/cj-lutke-blog/

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewee: CJ Lutke

This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt’s quest continues as he interviews another person with FASD in the third part of this multi-part FASD First Voices Special. In this episode, Kurt is joined by Maggie May who is a person with FASD, advocate, speaker, YouTuber and moderator for the Facebook support group for adults with FASD called “Flying with Broken Wings”.

They chat about her life and how she lives with this invisible disability. She also has advice for other people who have FASD.

To check out Maggie’s YouTube page click this link: https://www.youtube.com/channel/UCcJmMT33IPmwUIroo5UT_rw/videos

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewee: Maggie May

This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt continues his quest to find out more about the people who live with FASD. In second part of this multi-part special, Kurt is joined by Jessica; an advocate, writer, speaker and person with FASD, who was previously interviewed back in Series 2.

They chat about her life, her FASD symptoms as well as the tips and advice she has for other people with FASD who are living with this invisible disability.

Please check out Jessica’s twitter page through this link:

https://twitter.com/JB_TalksFASD

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewee: Jessica

This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is on a quest to discover more about people who live with FASD. In each week of this multi-part special, Kurt will talk with an adult who lives with this invisible disability to learn more about how they live with FASD. In part one, Kurt is joined by RJ Formanek, founder of the Red Shoes Rock movement and a very successful Facebook support group for adults with FASD called “Flying with Broken Wings”.

They chat about Red Shoes Rock, how FASD impacted his life and the strategies he uses that help him manage this disorder.

To check out RJ Formanek’s Facebook support group for adults with FASD, please use this link: https://www.facebook.com/groups/FASDaFlyingwithbrokenWings/

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewee: RJ Formanek

This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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Kurt is joined by Dr Jeff McMullen, renowned Australian journalist, author, filmmaker and NOFASD Ambassador.

In this supersized FASD Awareness Day episode, they chat about his work as a journalist, as an advocate for people with FASD and the power of grass roots activism. They also talk about the importance of being an advocate for people with FASD and raising awareness about this invisible disability.

For more information about Dr Jeff McMullen, please visit this website:

https://www.nofasd.org.au/about-us/australian-ambassadors/jeff-mcmullen/

If you would like to check out Dr Jeff McMullen’s homepage then please visit this website:

https://www.jeffmcmullen.com.au/

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producers: Kurt Lewis, Louise Gray and Julie Flanagan

Interviewer: Kurt Lewis

Interviewee: Dr Jeff McMullen

The copyright is owned by NOFASD Australia.

The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.

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"It has been 10 months and 11 days since the last episode of Pregnancy and Alcohol: The Surprising Reality. Until now...."

The first episode is a interview with NOFASD ambassdor and Journalist Dr Jeff McMullen will be released on the 9th of September 2021 (International FASD Day)!

We are back with heaps of amazing interviews with FASD experts, parents/carers of children with FASD and even people who have been diagnosed with this invisible disability.

Thank you for taking the time out to listen to our trailer!

Please show your support by liking and subscribing to our podcast!!

If you want more information about FASD then please go to https://www.nofasd.org.au/

Presenter: Kurt Lewis

The copyright is owned by NOFASD Australia.

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Kurt is joined by Sophie......

They chat about the mysterious Karen from #05 Finale. All will be revealed in this episode.

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producer: Kurt Lewis

Interviewer: Kurt Lewis

Interviewee: Sophie

This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.

The copyright is owned by NOFASD Australia.

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Kurt is joined by Sue Miers, the founder and past Chair of the Board of NOFASD Australia.

They chat about her experience in creating the national organisation for Fetal Alcohol Spectrum Disorder.

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producer: Kurt Lewis

Interviewer: Kurt Lewis

Interviewee: Sue Miers

This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.

The copyright is owned by NOFASD Australia.

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Kurt is joined by Sue, the Mother of Jessica (the FASD Advocate who was interviewed in last week's episode.)⠀

They chat about her journey to get a diagnosis for her daughter.

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producer: Kurt Lewis

Interviewer: Kurt Lewis

Interviewee: Sue

This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.

The copyright is owned by NOFASD Australia.

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Kurt is joined by Jessica, a FASD Advocate.

They chat about her recent FASD diagnosis, living with the symptoms of this disorder and her plans for the future.

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producer: Kurt Lewis

Interviewer: Kurt Lewis

Interviewee: Jessica

This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.

The copyright is owned by NOFASD Australia.

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Kurt is joined by Dr. Elizabeth Elliott, a member of the Order of Australia (AM), for services to paediatrics and child health.

Dr. Elliott is regarded as a "pioneer in fetal alcohol spectrum disorder, advocacy and patient care".

They chat about diagnosis, advocacy, alcohol labeling and FASD awareness.

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producer: Kurt Lewis

Interviewer: Kurt Lewis

Interviewee: Dr. Elizabeth Elliott

This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.

The copyright is owned by NOFASD Australia.

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In Part 02 of the Parents and Carers Special, Kurt chats with more people who care for children wih FASD. They talk about FASD, children and the tough times.

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producer: Kurt Lewis

Interviewer: Kurt Lewis

Interviewee 01: Nikki Mortier

Interviewee 02: April Wilson

Show Notes

Perseveration Presentation: https://www.academia.edu/15457261/Perseveration_The_Lens_by_Which_Those_Afflicted_with_FASD_Interpret_their_Relationship_and_Environment
Who has to change? Trying their hardest, doing their best! What it is like to live with Fetal Alcohol Spectrum Disorder

https://static.fasdoutreach.ca/www/downloads/whochange.pdf

Eileen Divine "Managing the Toll of Caregiver Trauma"

https://www.eileendevine.com/single-post/2019/01/05/Managing-the-Toll-of-Caregiver-Trauma

Living on Edge

https://images.app.goo.gl/me46f4FuWR9yqgkV7

This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.

The copyright is owned by NOFASD Australia.

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Welcome to Series 02!!

Kurt is joined this week by three people who care for children with FASD. They discuss FASD, children and providing support for those people who need it the most.

Please tune in next week for Part 02 of the Parents and Carers Special

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producer: Kurt Lewis

Interviewer: Kurt Lewis

Interviewee 01: Christine Brooks

Interviewee 02: Sam Pinnell

Interviewee 03: Kath Thomas

This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.

The copyright is owned by NOFASD Australia.

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We Are Back!!

A sneak peek at the second series of Pregnancy and Alcohol: The Surprising Reality....

The first episode will be released on the 9th of September 2020 (International FASD Day)!

Thank you for taking the time out to listen to our trailer!

Please show your support by liking and subscribing to our little podcast!!

If you want more information about FASD then please go to https://www.nofasd.org.au/

Presenter: Kurt Lewis

The copyright is owned by NOFASD Australia.

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Kurt is joined by Karen. A Mother who knows that her son has FASD but is waiting for the official diagnosis. Due to Karen not wanting to be identified, this is a word for word recreation of the orignal interview with a actress and myself.

For more information about FASD, please go to:

https://www.nofasd.org.au/

The NOFASD Helpline: 1800 860 613

Producer: Kurt Lewis

Interviewer: Kurt Lewis

Interviewee: Karen

Actress: Tanya

The copyright is owned by NOFASD Australia.

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Kurt is joined by Dr Jon Harper (GP Liaison Officer for the Sunshine Coast Area) to get a GP's perspective on alcohol, pregnancy and FASD.

For more information about FASD, please go to:

https://www.nofasd.org.au/

HealthPathways

https://www.ourphn.org.au/healthpathways/

Queensland Health Support Services

https://www.health.qld.gov.au/public-health/topics/atod/services

FASD Hub

https://www.fasdhub.org.au/

Producer: Kurt Lewis

Interviewer: Kurt Lewis

Interviewees: Dr Jon Harper

The copyright is owned by NOFASD Australia.

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Kurt is joined by Judy Shea to discuss her grandson and there incredible FASD journey. Dr Heidi Webster sits in on our chat to help us understand the medical information.

For more information about FASD, please go to:

https://www.nofasd.org.au/

Producer: Kurt Lewis

Interviewer: Kurt Lewis

Interviewees: Judy Shea and Dr Heidi Webster.

The copyright is owned by NOFASD Australia.

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Kurt is joined by Dr Heidi Webster (Paediatrician), Denise Kane (Senior Psychologist), Nicole Lord (Speech Therapist and Clinic Manager), Nicole Wood (Social Worker), Cate Hilly (Occupational Therapist) and Jessica Doak (Psychologist) for a unique panel interview. These health professionals work for the Sunshine Coast Child Development Service (CDS). The CDS is a service that provides a coordinated model of care for children with complex developmental conditions such as FASD. We discuss the diagnosis process for FASD and it's benefits.

The FASD Clinic would like to acknowledge Griffith University Psychology department, Principal Researcher Professor Sharon Dawe and the Australian Federal Government Department of Health - Alcohol Branch research grant for there funding and support.

For more information about FASD, please go to

https://www.nofasd.org.au/

FASD Clinic

https://www.fasdhub.org.au/services/clinics/sunshine-coast-cds/

Producer: Kurt Lewis

Interviewer: Kurt Lewis

Interviewees: Dr Heidi Webster, Denise Kane, Nicole Lord, Nicole Wood, Cate Hilly and Jessica Doak.

The copyright is owned by NOFASD Australia.

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First episode of Pregnancy and Alcohol: The Surprising Reality!!!

Kurt is joined by Louise Gray (The Chief Executive Officer for NOFASD Australia) to chat about Fetal Alcohol Sprectrum Disorder, NOFASD Australia and the myths of FASD.

For more information please go to https://www.nofasd.org.au/

Language guide - https://www.nofasd.org.au/wp-content/uploads/2019/04/FASD-HUB-Australia-Language-Guide.pdf

Producer: Kurt Lewis

Interviewer: Kurt Lewis

Interviewee: Louise Gray

The copyright is owned by NOFASD Australia.

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A sneak peek at the upcoming podcast series....

The first episode will be released on the 9th of September 2019 (International FASD Day)!

Thank you for taking the time out to listen to our trailer!

Please show your support by liking and subscribing our little podcast!!

If you want more information about FASD then please go to https://www.nofasd.org.au/

Podcast Creator: Kurt Lewis

Producer: Kurt Lewis

Presenter: Kurt Lewis

Clip 01 Voice: Louise Gray

Clip 02 Voice: Denise Kane

The copyright is owned by NOFASD Australia.

Pregnancy and Alcohol: The Surprising Reality: Recent Episodes

NOFASD Australia

05 Finale with Karen

11 Karen with Sophie