SHE Research Podcast: Recent Episodes

Sydney Health Ethics

A podcast featuring recent research coming out of Sydney Health Ethics, at the University of Sydney, coming to you from Gadigal Land.

Sydney Health Ethics is a centre for academic research, for teaching and learning in bioethics and the medical humanities, and for ethical consultation and discussion. We aim to stimulate creative thought, dialogue and action. Our work engages different disciplinary perspectives and fosters a community based on collegiality and critical inquiry.

For working links, go to: https://anchor.fm/shepod

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Host: Dr Diego Silva   

Guest:   Professor Rachel Ankeny

Transcript: Provided by Otter.ai  

Project:     Lecture

Editor: Regina Botros  

Music: 'Years' by Death By Ginger   

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Host: Dr Diego Silva   

Guest:   Dr Siun Gallagher

Transcript: Provided by Otter.ai  

Project:     Article

Editor: Regina Botros  

Music: 'Years' by Death By Ginger   

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Host: Dr Diego Silva   

Guest:   Dr Phoebe Williams

Transcript: Provided by Otter.ai  

Project:     Article

Editor: Regina Botros  

Music: 'Years' by Death By Ginger   

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Host:   Diego Silva

Guest:    Sarah Heynemann

Transcript: Provided by Otter.ai  

Project:    Article

Editor: Regina Botros

Music: 'Years' by Death By Ginger   

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Host:  Diego Silva

Guest:   Maree Toombs

Editor: Regina Botros

Transcript: Provided by Otter

Details of event: ⁠Lecture⁠ Video link to the lecture: Link

Music: 'Years' by Death By Ginger  

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Host:  Diego Silva

Guest:   Gabriel Watts

Producer: Regina Botros

Transcript: Provided by Otter

Article link: https://jme.bmj.com/content/medethics/early/2023/05/18/jme-2022-108864.full.pdf
Music: 'Years' by Death By Ginger  

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Host:  Diego Silva

Guest:   Jane Williams

Producer: Regina Botros

Transcript: Provided by Otter

Article link: Why ethical frameworks fail to deliver in a pandemic: Are proposed alternatives an improvement?
Music: 'Years' by Death By Ginger  

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Host:  Diego Silva 

Guest:   Supriya Subramani 

Producer: Regina Botros 

Transcript: Provided by Otter  

Article link:  Revisiting Respects for Persons: Conceptual Analysis and Implications for Clinical Practice  
Music: 'Years' by Death By Ginger   

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Host:  Diego Silva

Guests:    Lisa Dive, Ainsley J. Newson & Isabella Holmes

Producer: Regina Botros 

Transcript: Provided by Otter  

Article link:  https://www.tandfonline.com/eprint/BYSCUTPF627STPQEEREA/full?target=10.1080/15265161.2023.2207510 
Music: 'Years' by Death By Ginger   

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Host:  Diego Silva 

Guest:   Dr Julie Mooney-Somers 

Producer: Regina Botros 

Transcript: Provided by Otter  

Article link:  https://www.tandfonline.com/doi/abs/10.1080/09589236.2022.2162864 

Music: 'Years' by Death By Ginger   

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Host:  Diego Silva 

Guest:  Dr. Sophie Chao 

Transcript: Provided by Otter.ai  

Article: https://journals.sagepub.com/doi/full/10.1177/25148486221084194 

Editor: Regina Botros  

Music: 'Years' by Death By Ginger   

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Host:  Diego Silva 

Guest:   Dr Kathryn MacKay 

Producer: Regina Botros 

Transcript: Provided by Otter  

Article link:    https://academic.oup.com/phe/article-abstract/15/1/1/6446146 

Music: 'Years' by Death By Ginger   

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Host:  Diego Silva
Guest:   Oliver Razum
Producer: Regina Botros
Transcript: Provided by Otter
Article link:   https://ajph.aphapublications.org/doi/10.2105/AJPH.2022.307168
Music: 'Years' by Death By Ginger

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Host:  Diego Silva

Guest:  Dr Hojjat Soofi, Twitter @ hojjatsoofi

Producer: Regina Botros

Transcript: Provided by Otter.ai 

Article link:   https://jme.bmj.com/content/early/2022/12/30/jme-2022-108639.abstract

Music: 'Years' by Death By Ginger

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Prof. Kelly Lee, Simon Fraser University

Lecture: Controlling Borders During the Covid-19 Pandemic, Sydney Health Ethics

Transcript: Provided by Otter.ai

Music: 'Years' by Death By Ginger

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Ainsley Newson, Professor of Bioethics at Sydney Health Ethics

Lecture: Waranara Network Event, Academic and Clinical Bioethics - A Way Forward Together

Transcript: Provided by Otter.ai

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Professor Jackie Leach Scully, Director of the Disability Research Institute, UNSW

Transcript: Provided by Otter.ai

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Dr David Isaacs, Paediatrics & Infectious Diseases Specialist, Children's Hospital, Westmead

Transcript: Provided by Otter.ai

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Paper: Isaacs, D. (2022). Monkeypox. Journal of Paediatrics and Child Health, 58(8), 1290–1292. https://doi.org/10.1111/jpc.16121

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Chris Mayes, Host of Undisciplinary, christopher.mayes@deakin.edu.au

Transcript: Provided by Otter.ai

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Paper:   Christopher Mayes, 'Co-producing Bioethics: How Biomedical Scientists and Applied Philosophers Established Bioethics in Australia', Social History of Medicine, 2022; https://doi.org/10.1093/shm/hkab133

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Claire Hooker

Transcript: Provided by Otter.ai

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Paper:   Hooker, Kerridge, I., Mackay, K., & Lipworth, W. (2022). A Discursive Exploration of Values and Ethics in Medicine: The Scholarship of Miles Little. Journal of Bioethical Inquiry, 19(1), 15–20. https://doi.org/10.1007/s11673-021-10166-4

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Anson Fehross

Transcript: Provided by Otter.ai

Music: 'Years' by Death By Ginger 

Paper:  Fehross, A. (2021). Valuing for Others: Centring Values in Proxy Decision Making [Thesis]. https://ses.library.usyd.edu.au/handle/2123/27975

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Diego Silva and Kari Pahlman

Transcript: Provided by Otter.ai

Music: 'Years' by Death By Ginger 

Paper:  Pahlman, Fehross, A., Fox, G. J., & Silva, D. S. (2022). Ethical health security in the age of antimicrobial resistance. BMJ Global Health, 7(1). https://doi.org/10.1136/bmjgh-2021-007407

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Jessica Pace, recent PhD Graduate from the University of Sydney

Transcript: Provided by Otter.ai

Music: 'Years' by Death By Ginger 

Links:

Pace J, Ghinea N, Kerridge I, Lipworth W. ‘An ethical framework for the creation, governance, and evaluation of accelerated access programmes.’ Health Policy 2018; 122(9): 984-990.

Pace J, Ghinea N, Pearson S, Kerridge I, Lipworth W. ‘Consumer Perspectives of Accelerated Access to Medicines: A Qualitative Study.’ Journal of Health Organisation and Management 2021. doi: 10.1108/JHOM-08-2020-0344. Published online 15th June 2021.

Pace J, Kerridge I, Pearson S, Lipworth W. ‘Physician perspectives of accelerated access to medicines.’ Health Economics, Policy and Law 2021; 16(2): 154-169. doi: 10.1017/S41744133119000288.

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Morgan Carpenter, Executive Director of Intersex Human Rights Australia

Transcript: Provided by Otter.ai

Music: 'Years' by Death By Ginger

Links:

Carpenter M., Jordens C.F.C. (2022) When Bioethics Fails: Intersex, Epistemic Injustice and Advocacy. In: Walker M. (eds) Interdisciplinary and Global Perspectives on Intersex. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-030-91475-2_7

Australian Human Rights Commission. 2021. Ensuring Health and Bodily Integrity: Towards a Human Rights Approach for People Born with Variations in Sex Characteristics. Sydney, Australia: Australian Human Rights Commission. https://humanrights.gov.au/intersex-report-2021.

Hutson, John, Sonia Grover, Clare Delany, and Morgan Carpenter. 2020. ‘Intersexion: The Birth of Ambiguity’. Presented at the Melbourne Medical Student Conference 2020, University of Melbourne, June 23. https://ihra.org.au/36471/intersexion-mdscx-2020/.

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Ainsley Newson and Gabriel Watts from the University of Sydney 

Transcript: Provided by Otter.ai

Project:  Watts, & Newson, A. J. (2021). To offer or request? Disclosing variants of uncertain significance in prenatal testing. Bioethics. https://doi.org/10.1111/bioe.12932

Music: 'Years' by Death By Ginger

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Camilla Scanlan from the University of Sydney

Transcript: Provided by Otter.ai

Project: Scanlan C.L., Stewart C., Kerridge I. (2021) Consent for Neurosurgery in Cases of Traumatic Brain Injury. In: Honeybul S., Kolias A.G. (eds) Traumatic Brain Injury. Springer, Cham. https://doi.org/10.1007/978-3-030-78075-3_27

Music: 'Years' by Death By Ginger

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Diego Silva from Sydney Health Ethics and Maxwell Smith from Western University

Transcript: Provided by Otter.ai

Music: 'Years' by Death By Ginger

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Host: Kate MacKay

Producer: Madeline Goldberger

Guests: Lisa Dive and Ainsley Newson

Transcript: Provided by Otter.ai

Project:  Dive, L., & Newson, A. J. (2021). Reproductive Carrier Screening: Responding to the Eugenics Critique. Journal of Medical Ethics. https://doi.org/10.1136/medethics-2021-107343

Music: 'Years' by Death By Ginger

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Anne Preisz and Linda Sheahan

Transcript: Provided by Otter.ai

Music: 'Years' by Death By Ginger

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Jane Williams

Transcript: Provided by Otter.ai

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Host: Kate MacKay

Producer: Madeline Goldberger

Guests: Angus Dawson and Diego Silva

Transcript: Provided by Otter.ai

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Work mentioned: The Shutting up Infected Houses, Public Health Ethics, Volume 3, Issue 1, April 2010, Pages 4–12, https://doi.org/10.1093/phe/phq002

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Diego Silva

Transcript: Provided by Otter.ai

Project: 'Even if Olympians are jumping the COVID vaccine queue, that’s not necessarily wrong: A bioethicist explains' by Diego Silva for The Conversation, 29 April, 2021.

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Angus Dawson

Transcript: Provided by Otter.ai

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Paper mentioned: Räsänen, J., & Louhiala, P. (2021). 'Should Acknowledgments in Published Academic Articles Include Gratitude for Reviewers Who Reviewed for Journals that Rejected Those Articles?', Theoria (Lund, Sweden). https://doi.org/10.1111/theo.12310

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Guest Host: Lisa Dive

Producer: Madeline Goldberger

Guest: Kathryn MacKay

Transcript: Provided by Otter.ai

Project: MacKay, K. (2021). Mothers: The Invisible Instruments of Health Promotion. Hypatia, 36(1), 60-79. doi:10.1017/hyp.2020.47 

Music: 'Years' by Death By Ginger

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Claire Hooker

Transcript: Provided by Otter.ai

Project: Hooker C, Leask J., ‘Risk Communication Should be Explicit About Values. A Perspective on Early Communication During COVID-19.’ J Bioeth Inq. 2020 Dec;17(4):581-589. doi: 10.1007/s11673-020-10057-0.

Music: 'Years' by Death By Ginger

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Ainsley Newson

Transcript: Provided by Otter.ai

Project: 'The promise of public health ethics for precision medicine: the case of newborn preventive genomic sequencing', Journal of Human Genetics.

Music: 'Years' by Death By Ginger

Show notes: Link to Bjorn Hofmann paper mentioned by Ainsley

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Host: Kate MacKay

Producer: Madeline Goldberger

Guest: Diego Silva and Ruth Lavergne

Transcript: Provided by Otter.ai

Project: Silva, D., Cook, V., Johnston J., Gardy, J., (2020), ’Ethical challenges in the treatment of non-refugee migrants with tuberculosis in Canada’, Journal of Public Health', pp. 1–5, https://doi.org/10.1093/pubmed/fdaa222.

Music: 'Years' by Death By Ginger

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Host: Lisa Dive

Guest: Kathryn MacKay

Transcript: Provided by Descript

Paper: MacKay, K. (2020), 'Authenticity and Normative Authority: Addressing the Agency Dilemma with Values of One’s Own.' J. Soc. Philos., 51: 349-370. doi:10.1111/josp.12309 

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Host: Kate MacKay

Guest: Camilla Scanlan

Transcript: Provided by Descript

Chapter: Scanlan, C. (2020). Preparing for the unanticipated: Challenges in conducting semi-structured, in-depth interviews. SAGE Research Methods Cases. 

Music: 'Years' by Death By Ginger

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Host: Kate MacKay

Guest: Suzanne Plater

Transcript: Provided by Descript

Paper: Plater S, Mooney-Somers J, Barclay L, Boulton J. (2020) 'Hitting the white ceiling: Structural racism and Aboriginal and Torres Strait Islander university graduates.' Journal of Sociology, 56(3): 487-504. 

Music: 'Years' by Death By Ginger

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Host: Kate MacKay

Guests: Lisa Dive and Ainsley Newson

Transcript: Provided by Descript

Papers: Dive, L. & A. Newson (2020), 'Ethical issues in reproductive genetic carrier screening,' Medical Journal of Australia, online first; and Kirk, E.P., Ong, R., Boggs, K., et al. (2020) “Gene selection for the Australian Reproductive Genetic Carrier Screening Project (“Mackenzie’s Mission”)” European Journal of Human Genetics, online first.

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Host: Kate MacKay

Guests: Claire Hooker and James Dalton 

Transcript: Provided by Descript

Project: Grace Under Pressure, 'Verbatim Theater: Prompting Reflection and Discussion about Healthcare Culture as a Means of Promoting Culture Change'

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Host: Kate MacKay

Guest: Wendy Lipworth

Transcript: Provided by Descript

Paper: Are my religious beliefs anyone’s business? A framework for declarations in health and biomedicine

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Host: Kate MacKay

Guest: Angus Dawson

Transcript: Provided by Descript

Project: 'Building an ethics framework for COVID-19 resource allocation: the how and the why' and 'An Ethics Framework for Making Resource Allocation Decisions within Clinical Care: Responding to COVID-19'

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Host: Kate MacKay

Guest: Julie Mooney-Somers

Transcript: Provided by Descript

Project:  SWASH and the LBQ Women's Health Study - 2018 ACON Report

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Host: Kate MacKay

Guest: Diego Silva

Transcript available here, by Descript

Paper: Silva, D.S., Smith, M.J. Social distancing, social justice, and risk during the COVID-19 pandemic. Can J Public Health (2020). https://doi.org/10.17269/s41997-020-00354-x

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Host: Kate MacKay

Guest: Jane Williams

Transcript: Available here, by Descript

Paper: J Williams & A Dawson (2020), 'Prioritising access to pandemic influenza vaccine: a review of the ethics literature,' BMC Medical Ethics 21:40 https://doi.org/10.1186/s12910-020-00477-3 

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Host: Kate MacKay

Guest: Narcyz Ghinea

Transcript available here, provided by Sonix.

Paper: N. Ghinea, M. Munsie, C Rudge & Cameron Stewart (2020), ‘Australian regulation of autologous human cell and tissue products: implications for commercial stem cell clinics,’ Regenerative Medicine 15:2, Perspective. https://doi.org/10.2217/rme-2019-0124

Music: 'Years' by Death By Ginger 

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Host: Kathryn MacKay

Guest: Jessica Pace

Audio with transcript available here, provided by Rev

Arcticle: Jessica Pace, Tracey-Lea Laba, Marie-Paul Nisingizwe & Wendy Lipworth, (2020).  'Formulating an Ethics of Pharmaceutical Disinvestment' Journal of Bioethical Inquiry, Online First. DOI: https://doi.org/10.1007/s11673-020-09964-z 

Music: 'Years' by Death By Ginger https://deathbyginger.bandcamp.com

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Host: Kathryn MacKay

Guest: Siun Gallagher

Audio transcript available here, by Sonix

Article: Gallagher S, Little JM, Hooker C. Testimonial injustice: discounting women’s voices in health care priority setting. Journal of Medical Ethics.Published Online First: 24 April 2020. http://dx.doi.org/10.1136/medethics-2019-105984

Music: 'Years' by Death By Ginger https://deathbyginger.bandcamp.com  

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Host: Kathryn MacKay

Guest: Miriam Wiersma

Audio with transcript available here, provided by Rev

Article: Wiersma M, Kerridge I, Lipworth W. Status, Respect, and Stigma: A Qualitative Study of Non-financial Interests in Medicine. Journal of Bioethical Inquiry. 2020 Mar. DOI: 10.1007/s11673-020-09970-1  

Music: ‘Years’ by Death By Ginger https://deathbyginger.bandcamp.com 

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Host: Kathryn MacKay

Guest: Lisa Dive

Audio with transcript here, by Descript

Article: Do we have a right not to know our genomic information? Forthcoming in Journal of Medicine & Philosophy.

Music: ‘Years’ by Death By Ginger https://deathbyginger.bandcamp.com 

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Host: Lisa Dive

Guest: Kathryn MacKay

Audio transcript here, by Rev

Article: MacKay, K.  The ‘tyranny of reproduction’: Could ectogenesis further women’s liberation?. Bioethics.  2020; 34: 346– 353. https://doi.org/10.1111/bioe.12706

Music: ‘Years’ by Death By Ginger https://deathbyginger.bandcamp.com 

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Host: Kathryn MacKay

Guest: Claire Hooker

Audio transcript here, by Rev.

Article: Brooks, M,  Hooker, C,  Barclay, L.  Artspace: Enabling young women’s recovery through visual arts: A qualitative study. Health Promot J Austral.  2020; 00: 1– 11. https://doi.org/10.1002/hpja.328

Music: ‘Years’ by Death By Ginger https://deathbyginger.bandcamp.com 

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Host: Kathryn MacKay

Guest: Paul Macneill

Audio transcript here, by Rev.

Article: Paul Macneill, Roy Joseph, Tamra Lysaght, Dujeepa D. Samarasekera & Shing Chuan Hooi (2020), A professionalism program in medical education and training – From broad values to specific applications: YLL School of Medicine, Singapore, Medical Teacher OnlineFirst 28 January. DOI: 10.1080/0142159X.2020.1714021

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