Slice of PI: Recent Episodes
ImmUnity Canada
A podcast by and for patients living with primary immunodeficiency (PI). “A Slice of PI” explores the diverse experiences of people living with PI through reflexive investigation of the social and emotional well-being of people living with these diseases. This podcast speaks to the complexities that come with living with PI and intends to highlight strategies for cultivating a meaningful life. Each episode, join host Bryan as he sits with patients and experts alike to explore topics surrounding the lived experience of PI.
In the season finale for season 2, Andrea shares her final thoughts as well as reflects on the past episodes.
In the penultimute episode, Andrea looks at the importance of self-care, parenting and fun. Experts this week are mental health worker, Bryan Curley and father to an ADA SCID daughter, Jeff.
Take a listen to Friday's episode where Andrea will discuss the importance of self-care, parenting and fun. Experts this week are mental health worker, Bryan Curley and father to an ADA SCID daughter, Jeff.
This week, Andrea looks at the impact of foundations, the role organizations play when it comes to support for patients and families with PI. Guests this week: Heather Smith from SCID Angels for Life and patient and parent, Martine Allard.
Take a listen to next week's episode where Andrea discusses the important role that foundations play for families and patients with PI.
This week Andrea explores how we can transform our journey through creativity and other ways to give back. Special guests this week: Expert: Luz Adriana Manozca and paren, Funda Eyupoglu.
Take a quick glimpse at Friday's episode where Andrea explores ways to give back throughout your journey and how you can transform your journey through creativity.
This week, Andrea looks at the complexities and challenges surrounding the important topic that is "transition". Every child will eventually transition out of pediatric care into adult care. However, parents will also have to transition. What does that look like for both the youth and the parent? Guests this week Dr. Catherine Biggs from BC Children's Hospital and parent Margaret Jurocko.
Take a listen at what is coming up next week when Andrea looks at the challenge and complexities of transition from pediatric to adult care.
This week Andrea talks to experts about the interesting and often unknown option of enzyme replacement therapy for ADA SCID. Guests this week are Dr. Eyal Grunebaum of SickKids Hospital in Toronto and mother Monica Nava.
This week Andrea looks at the important topic of gene therapy, the amazing advances made over the past two decades, the legacy of PI patients and what is on the horizon. Special expert guests this week include Dr. Donald Kohn and Alyssa Vaccaro.
This week Andrea discusses the importance of stem cell donation with special guests, expert Mai Duong from Swab the World and parent advocate Dawn Shirley.
Take a sneaky listen to what is coming up in next week's episode where Andrea looks at stem cell donation.
You won't want to miss this episode where Andrea talks to Canadian Blood Services and parent Megan Waghorn around the importance of that "liquid gold" in our blood that is used turned into treatment for immune deficiencies.
Take a listen at what is coming up the next episode where Andrea looks at plasma - the raw ingredient that makes up immunoglobulin (IG).
This week Andrea discusses medical trauma with guests, parent Linda Skeries and child life specialist at Stollery Hospital in Edmonton, Alberta, Stephanie Wanner.
Take a sneaky listen to what's coming up in the next episode of "Slice of PI" where Andrea looks at medical trauma.
In this episode, host and mom, Andrea, looks at the receiving the diagnois what this means and what the process of the diagnosis entails. She talks with another mother of a child with Severe Combined Immune Deficiency (SCID), Barbara Drayton, whose son was the first baby to be diagnosed through Canada's first SCID newborn screening program in Ontario.
Listen to a preview from Friday's episode where host Andrea talks about the diagnosis and all that entails.
S02:E02
In this season's 2nd episode, we look at SCID Newborn Screening, a potentially life-saving test for babies that identifies the primary immunodeficiency, Severe Combined Immune Deficiency (SCID). This week's guests are: Dr. Nicola Wright from Alberta Children's Hospital and Ian Cowie, a father of a child living with SCID.
Take a listen for what's in store next week on "Slice of PI" when Andrea talks to guests Dr. Nicola Wright and parent Ian Cowie about newborn screening for SCID.
Welcome to Season 2 of "Slice of PI"! In this introductory episode, you meet your host for the season, Andrea. Andrea is a mom of a small child who was diagnosed at birth with a primary immunodeficiency, Severe Combined Immune Deficiency (SCID). Listen as she gives an overview of what is in store for this season and tells you a little about her story.
We're back for season 2! Meet your new host Andrea in this trailer for the next season of Slice of PI which starts on December 3rd.
In the finale to Slice of PI, Bryan reflects on his journey over the course of the series, his encounters with others living with primary immunodeficiency and how this has impacted his view. He shares his thoughts for the future as well!
In this trailer of next week's series finale, Bryan, reflects on the journey that was "Slice of PI" and what takeaways he has been given through the voices of his many guests and the feedback he has received.
In the penultimate episode to series 1, Bryan is joined again by guest Tara (ep.4, Travel) to discuss the impact of the COVID-19 on the primary immunodeficiency community. Listen as two primary immunodeficiency patients explore the past year of this pandemic.
In our penultimate episode, Bryan is again joined by Tara (Travel Episode) and the two discuss how the COVID pandemic has affected them as PI patients. Take a listen to next week's episode!
This week Bryan is joined by Safira and two delve deep discussing the world of post-secondary education while living with primary immunodeficiency.
Take a listen at what is coming up in next week's episode when Bryan is joined by Safira to talk about education.
This week Bryan is joined by guest, Jan, an older patient living with PI. Jan and Bryan discuss navigating retirement and how PI affects the decisions and planning for older age. A must listen episode!
Have a sneaky listen to next week's episode, where Bryan talks to Jan. They discuss retirement and older age. Is it possible to enjoy retirement while living with PI? Will you be able to do all the things you had planned?
This week Bryan talks with Tonya, an fellow patient about navigating the world of employment while living with immunodeficiency. This is a tricky subject for many of us, and one you will not want to miss out on.
Take a quick listen to what is coming up in Episode 6! Bryan looks into the topic of employment and is joined by Tonya, a fellow PI patient. They discuss navigating employment and living with PI.
This week, Nicole is back chatting to Bryan about dating. Tune in and listen as they discuss the world of relationships while living with immunodeficiency. This is definitely an episode not to be missed!
Take a peek at next week's episode! Nicole is back talking to Bryan about navigating dating while living with immunodeficiency.
In this episode Bryan is joined by Tara, a CVID patient who loves to travel! Join Tara and Bryan as they discuss what having a primary immunodeficiency means in regards to travelling, and what we can do to protect ourselves and be better prepared on the road.
Take a quick listen to what's coming up in next week's episode when Bryan is joined by Tara, a CVID patient, who loves to... travel!
In episode 3, Bryan talks to Kristina, a primary immunodeficiency patient. The two discuss their experiences with first infusions as well as other aspects of living with PI.
In this peek at Ep. 3 Bryan talks to Kristina about first infusions. Don't miss the full episode on Friday, January 8!
This week, Bryan is joined by guest Nicole B as they discuss the importance of self-care in the context of immunodeficiency.
Episode 2: Self Care
Listen to a sneak peek at next week's episode on self-care, with guest Nicole B.
In this first episode, we introduce to the series host, Bryan and we will outline the objective of the show and flesh out the shape of the season. Through this, we hope to situate the audience to our own social-emotional-mental locations, and invite them into our journey of learning through the season.
Enjoy a sneak peek of our first episode landing on Friday!
This introductory episode will introduce you to your season's host, Bryan, and what's to come in the first season of "Slice of PI".