Bladder Cancer Matters: Recent Episodes
Bladder Cancer Advocacy Network
Bladder Cancer Matters is the podcast for, by and about the bladder cancer community. Host Rick Bangs interviews interesting guests from the bladder cancer community, including patients, survivors, advocates, medical professionals, researchers, caregivers and more. It is brought to you by the Bladder Cancer Advocacy Network.
In this fascinating episode of Bladder Cancer Matters, host Rick Bangs sits down with renowned bladder cancer expert Dr. Robert Svatek to discuss how the field has been transformed over the past 15 years—and where it's headed next. Dr. Svatek reflects on his journey from academic surgeon and researcher to Vice President of Clinical Development at CG Oncology, sharing behind-the-scenes insights into clinical trials, emerging immunotherapies and the collaborative effort required to bring promising new treatments from the laboratory to patients.
Whether you're a patient, caregiver, advocate or healthcare professional, this conversation offers an inspiring look at the remarkable progress being made in bladder cancer research while acknowledging the challenges that remain. You'll also hear how patient participation in clinical trials is driving innovation and why experts are more optimistic than ever about the future of bladder cancer care.
Whether you're facing bladder removal surgery or supporting someone who is, choosing the right urinary diversion can feel overwhelming. In this episode, urologic oncologist Dr. Christine Ibilibor separates fact from fiction, explains the pros and cons of the different diversion options and addresses the unique concerns women often face, from body image and intimacy to recovery and quality of life. Packed with practical advice and reassuring insights, this conversation will help patients feel more informed and more confident when making one of the most important decisions in bladder cancer care.
If you're facing bladder removal surgery, choosing a urinary diversion may be one of the most important decisions you'll ever make—and one of the hardest to understand.
In this episode, reconstructive urologist Dr. Divya Ajay shares how real patient experiences inspired a first-of-its-kind decision tool that helps people compare diversion options, set realistic expectations and better prepare for life after surgery.
From intimacy and travel to recovery, aging and day-to-day living, this conversation offers practical guidance that can help patients feel more informed, more confident and more in control of their treatment journey.
View and download a urinary diversion decision guide.
For patients facing recurrent high-grade non-muscle invasive bladder cancer, one of the hardest decisions is whether to remove the bladder or pursue bladder-sparing treatment. In this eye-opening episode, leading bladder cancer expert Angela Smith shares the surprising results of the landmark CISTO study—the first major patient-centered research effort to compare these two approaches from the patient's perspective.
Discover why some outcomes favored bladder preservation, why others unexpectedly favored radical cystectomy and how these findings are reshaping conversations between patients and their doctors. If you or a loved one are weighing treatment options, this episode offers powerful insights that could help you make one of the most important decisions of your cancer journey.
Feeling overwhelmed after a bladder cancer diagnosis? Wondering where to turn for trusted information, emotional support, or practical guidance? In this episode of Bladder Cancer Matters, host Rick Bangs sits down with BCAN's Director of Education and Advocacy, Patricia Rios, for an inside look at the many free resources designed to help patients, caregivers and families navigate bladder cancer with more confidence and less fear.
From one-on-one peer support and patient summits to clinical trial tools, webinars, caregiver resources, support groups, survivorship planning, and even BCAN's mobile app, Patricia shares how BCAN helps people feel informed, empowered, and—most importantly—not alone. Whether you're newly diagnosed, supporting a loved one, or looking for new ways to connect and advocate, this episode offers practical tools, hope, and a roadmap to the bladder cancer community.
In this episode of Bladder Cancer Matters, host and survivor Rick Bangs sits down with ImmunityBio's Chief Medical Officer, Dr. Bobby Reddy, for a fascinating, hopeful look at the future of bladder cancer treatment.
They unpack how next-generation immunotherapies like ANKTIVA—paired with innovative approaches to BCG—are reshaping care for patients, especially those with limited options, while also tackling real-world challenges like ongoing BCG shortages.
Dr. Reddy breaks down the science in a way that's accessible, highlighting how activating the body's own immune system could lead to longer-lasting responses and even help patients avoid more invasive treatments. Tune in to this conversation about progress and possibility.
In this episode of Bladder Cancer Matters, host Rick Bangs sits down with urologic oncologist Dr. Minhaj Siddiqui to break down a critical but often overlooked gap in bladder cancer care—and what it means for patients.
They explore how non-muscle-invasive bladder cancer is treated, why a simple step after surgery can dramatically reduce recurrence risk, and the surprising reality that many patients aren't receiving this guideline-recommended therapy.
Dr. Siddiqui shares insights from a groundbreaking national quality improvement initiative aiming to change that, while also offering practical advice patients can use to advocate for their own care. It's an eye-opening conversation that blends cutting-edge research with real-world impact—and could change how you think about bladder cancer treatment.
In this powerful episode of Bladder Cancer Matters, a podcast by the Bladder Cancer Advocacy Network, host and survivor Rick Bangs sits down with Vanderbilt nurse Bree Duncan to explore a groundbreaking new role dedicated solely to supporting women with bladder cancer.
Created through the vision and generosity of a grateful patient, this female bladder cancer care coordinator position is transforming how women—especially those facing radical cystectomy - experience care, offering direct access, emotional support, faster answers, and a steady, compassionate presence during one of the most overwhelming times of their lives.
Bree shares how this innovative model is reducing ER visits, easing fear, improving recovery, and even inspiring cancer centers beyond the U.S. If you care about health equity, patient-centered care, or simply want to hear what's possible when compassion meets action, this episode will leave you hopeful—and maybe a little inspired to help spark change where you are.
In this episode of Bladder Cancer Matters, host Rick Bangs speaks with Dr. Josefa Briceno of AstraZeneca about why bladder cancer care may be at a true turning point. From exploring immunotherapy earlier in the disease journey — even around the time of surgery — to strengthening collaboration between urologists and medical oncologists, the conversation highlights how timing, teamwork, and informed shared decision-making are reshaping care.
Dr. Briceno explains what this shift means for patients, why education and self-advocacy are essential, and how partnerships between industry and advocacy organizations like BCAN help ensure innovation reflects real patient needs.
It's a hopeful, forward-looking discussion about where bladder cancer treatment is headed — and why patients should feel empowered to be active participants in their care.
In this powerful episode of Bladder Cancer Matters, Rick Bangs sits down with Mike Vasallo, a high school assistant principal diagnosed with early-onset bladder cancer at 46 who turned fear and uncertainty into purpose.
Mike shares his raw, honest journey through diagnosis, treatment and recovery—and how finding community, asking for help and leaning into advocacy changed everything. He also explains how he uses humor, data and even TikTok trends to educate and reach people who might never otherwise learn about bladder cancer.
The conversation dives into the emotional toll of cancer, the realities of treatment and why speaking up can make a life-changing difference for patients and caregivers alike. It's an inspiring, practical and deeply human story about resilience, connection and using your voice to help others feel less alone.
In this uplifting episode of Bladder Cancer Matters, survivors Sandy Weicher and Danny Gereg share how the Walk to End Bladder Cancer became the turning point they didn't know they needed—a place where strangers become family, hope replaces fear and every mile walked fuels research and critical patient programs.
Sandy describes the moment she arrived at the New York City Walk, surrounded by the skyline and a sea of survivors, caregivers and clinicians, and instantly felt connected to something bigger than her diagnosis. Danny talks about showing up lost and anxious at the Columbus Walk, only to find a community that carried him through his darkest moments and inspired him to fight for his health. Together with host Rick Bangs, they show how the Walk isn't just an event—it's a lifeline, a celebration of resilience, and a reminder that no one faces bladder cancer alone. Their stories will make you smile, tear up, and—most of all—want to join in.
Sign up for a 2026 Walk to End Bladder Cancer.
Three cancers. One relentless survivor. In this unforgettable episode of Bladder Cancer Matters, host Rick Bangs sits down with Lisa Savage, who reveals the shocking twists of her cancer journeys—melanoma caught just in time, a delayed and devastating bladder cancer diagnosis that led to bladder removal and a urostomy bag at age 50, and a third hidden cancer discovered along the way.
With raw honesty and powerful humor, Lisa shares how she survived aggressive chemo, faced a terminal prognosis, fought through fear, and transformed her devastating diagnosis into a mission to mentor others, advocate publicly and live boldly—bag and all. Her story will make you gasp, laugh, tear up and leave inspired to face whatever life throws your way.
In this special 20th-anniversary episode of Bladder Cancer Matters, host and survivor Rick Bangs sits down with leading urologic oncologist Dr. Sia Daneshmand to explore a new bladder cancer therapy: Johnson & Johnson's newly FDA-approved INLEXZO™. Dr. Daneshmand—who helped lead its clinical trials—breaks down how this "pretzel-shaped" intravesical delivery system works, why it's showing some of the highest response rates yet for BCG-unresponsive disease and what patients can realistically expect in terms of side effects, treatment schedule, and quality of life. Together, they discuss the future of drug-delivery technology in bladder cancer and why this moment can offer hope to bladder cancer patients.
In this powerful and deeply personal episode of Bladder Cancer Matters, host Rick Bangs talks with survivor and advocate Danny Gereg, who shares how a shocking 2023 bladder cancer diagnosis became the catalyst for a total life transformation.
Once diabetic, alcoholic, and obese, Danny rebuilt his body and spirit—losing over 100 pounds, reclaiming his health, and finding purpose as a voice for others navigating the challenges of cancer, sexuality, and recovery. With candor and humor, he discusses the physical and emotional realities of treatment, the life-changing support of his wife, and how BCAN's community helped him rediscover hope. This unflinching, inspiring conversation is a testament to resilience, love, and the belief that even after cancer, life can be rebuilt—stronger than ever.
In this episode of Bladder Cancer Matters, host and survivor Rick Bangs sits down with Dr. Mark Schoenberg—renowned urologist and Chief Medical Officer at UroGen® Pharma—for a wide-ranging conversation about the evolution of bladder cancer research, treatment, and patient advocacy. Dr. Schoenberg shares the story behind BCAN’s founding, the early challenges of raising awareness, and the innovations that are reshaping care today, including the development of non-surgical therapies like ZUSDURI™ (mitomycin) for intravesical solution, a prescription medicine used to treat adults with a type of cancer of the lining of the bladder called low-grade intermediate-risk non-muscle invasive bladder cancer (LG-IR-NMIBC) after you have previously received bladder surgery to remove the tumor and it did not work or is no longer working. From his decades of patient-centered work to his role in pioneering new approaches with UroGen, Dr. Schoenberg offers insights into where the field has been and the promising future ahead. Tune in to hear a fascinating mix of history, science, and hope for patients and families impacted by bladder cancer.
Please see the link to the full Prescribing Information on the podcast web page or available at www.zusduri.com.
ZUSDURI Prescribing Information
- ZUSDURI Patient Information
- Holzbeierlein J, Bixler BR, Buckley DI, et al. Diagnosis and treatment of non-muscle invasive bladder cancer: AUA/SUO guideline: 2024 amendment. J Urol. 2024;10.1097/JU.0000000000003846.
ZUSDURI (mitomycin) for intravesical solution is a prescription medicine used to treat adults with a type of cancer of the lining of the bladder called low-grade intermediate-risk non-muscle invasive bladder cancer (LG-IR-NMIBC) after you have previously received bladder surgery to remove tumor and it did not work or is no longer working.
ZUSDURI™ Important Safety Information
You should not receive ZUSDURI™ if you have a hole or tear (perforation) of your bladder or if you have had an allergic reaction to mitomycin or to any of the ingredients in ZUSDURI™.
Before receiving ZUSDURI™, tell your healthcare provider about all of your medical conditions, including if you:
- have kidney problems
- are pregnant or plan to become pregnant. ZUSDURI™ can harm your unborn baby. You should not become pregnant during treatment with ZUSDURI™. Tell your healthcare provider right away if you become pregnant or think you may be pregnant during treatment with ZUSDURI™.
Females who are able to become pregnant: You should use effective birth control (contraception) during treatment with ZUSDURI™ and for 6 months after the last dose.
Males being treated with ZUSDURI™: You should use effective birth control (contraception) during treatment with ZUSDURI™ and for 3 months after the last dose.
- are breastfeeding or plan to breastfeed. It is not known if ZUSDURI™ passes into your breast milk. Do not breastfeed during treatment with ZUSDURI™ and for 1 week after the last dose.
How will I receive ZUSDURI™?
- You will receive your ZUSDURI™ dose from your healthcare provider 1 time a week for 6 weeks into your bladder through a tube called a urinary catheter. It is important that you receive all 6 doses of ZUSDURI™ according to your healthcare provider's instructions.
- If you miss any appointments, call your healthcare provider as soon as possible to reschedule your appointment.
- During treatment with ZUSDURI™, your healthcare provider may tell you to take additional medicines or change how you take your current medicines.
After receiving ZUSDURI™:
- ZUSDURI™ may cause your urine color to change to a violet to blue color. Avoid contact between your skin and urine for at least 24 hours.
- To urinate, males and females should sit on a toilet and flush the toilet several times after you use it. After going to the bathroom, wash your hands, your inner thighs, and genital area well with soap and water.
- Clothing that comes in contact with urine should be washed right away and washed separately from other clothing.
The most common side effects of ZUSDURI™ include: increased blood creatinine levels, increased blood potassium levels, trouble with urination, decreased red blood cell counts, increase in certain blood liver tests, increased or decreased white blood cell counts, urinary tract infection, blood in your urine.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088. You may also report side effects to UroGen Pharma at 1-855-987-6436.
Please see ZUSDURI Full Prescribing Information, including the Patient Information, for additional information.
JELMYTO® Important Safety Information
You should not receive JELMYTO® if you have a hole or tear (perforation) of your bladder or upper urinary tract.
Before receiving JELMYTO®, tell your healthcare provider about all your medical conditions, including if you
- are pregnant or plan to become pregnant. JELMYTO® can harm your unborn baby. You should not become pregnant during treatment with JELMYTO®. Tell your healthcare provider right away if you become pregnant or think you may be pregnant during treatment with JELMYTO®. Females who are able to become pregnant: You should use effective birth control (contraception) during treatment with JELMYTO® and for 6 months after the last dose. Males being treated with JELMYTO®: If you have a female partner who is able to become pregnant, you should use effective birth control (contraception) during treatment with JELMYTO® and for 3 months after the last dose.
- are breastfeeding or plan to breastfeed. It is not known if JELMYTO® passes into your breast milk. Do not breastfeed during treatment with JELMYTO® and for 1 week after the last dose.
- Tell your healthcare provider if you take water pills (diuretic).
How will I receive JELMYTO®?
- Your healthcare provider will tell you to take a medicine called sodium bicarbonate before each JELMYTO® treatment.
- You will receive your JELMYTO® dose from your healthcare provider 1 time a week for 6 weeks. It is important that you receive all 6 doses of JELMYTO® according to your healthcare provider’s instructions. If you miss any appointments, call your healthcare provider as soon as possible to reschedule your appointment. Your healthcare provider may recommend up to an additional 11 monthly doses.
- JELMYTO® is given to your kidney through a tube called a catheter.
- During treatment with JELMYTO®, your healthcare provider may tell you to take additional medicines or change how you take your current medicines.
After receiving JELMYTO®:
- JELMYTO® may cause your urine color to change to a violet to blue color. Avoid contact between your skin and urine for at least 6 hours.
- To urinate, males and females should sit on a toilet and flush the toilet several times after you use it. After going to the bathroom, wash your hands, your inner thighs, and genital area well with soap and water.
- Clothing that comes in contact with urine should be washed right away and washed separately from other clothing.
JELMYTO® may cause serious side effects, including:
- Swelling and narrowing of the tube that carries urine from the kidney to the bladder (ureteric obstruction). If you develop swelling and narrowing, and to protect your kidney from damage, your healthcare provider may recommend the placement of a small plastic tube (stent) in the ureter to help the kidney drain. Tell your healthcare provider right away if you develop side pain or fever during treatment with JELMYTO®.
- Bone marrow problems. JELMYTO® can affect your bone marrow and can cause a decrease in your white blood cell, red blood cell, and platelet counts. Your healthcare provider will do blood tests prior to each treatment to check your blood cell counts during treatment with JELMYTO®. Your healthcare provider may need to temporarily or permanently stop JELMYTO® if you develop bone marrow problems during treatment with JELMYTO®.
The most common side effects of JELMYTO® include: urinary tract infection, blood in your urine, side pain, nausea, trouble with urination, kidney problems, vomiting, tiredness, stomach (abdomen) pain.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit http://www.fda.gov/medwatch or call 1-800-FDA-1088. You may also report side effects to UroGen Pharma at 1-855-987-6436.
Please click here for JELMYTO® Full Prescribing Information, including the Patient Information, for additional information.
In this powerful episode of Bladder Cancer Matters, host Rick Bangs welcomes Dr. Rick Zera, a retired surgical oncologist who spent decades treating breast cancer before unexpectedly becoming a bladder cancer patient himself. Dr. Zera shares his remarkable story of moving from the operating room to the patient’s chair, beginning with a shocking diagnosis of an extremely rare and aggressive bladder cancer. He speaks candidly about the delays and frustrations he faced in getting timely care, the difficult choices between treatment options, and the emotional toll of navigating his own cancer journey after a career spent guiding others through theirs.
What follows is an honest, deeply human conversation about risk, resilience, and perspective. Dr. Zera reflects on what he learned about himself, his colleagues, and the vital role of support systems—from family and friends to social workers and fellow patients.
Bladder Cancer Matters just hit a huge milestone—our 100th episode! In this special 20th anniversary edition of our Partners in Progress series, host Rick Bangs talks with Drew and Erica, whose mom Fran is living with bladder cancer, about what it means to be a caregiver. From music-filled car rides to difficult treatment decisions, they share honest, heartfelt stories of resilience, laughter, hope and the power of family. 💙 Tune in and be inspired by their journey—and celebrate this milestone with us!
In this powerful episode of Bladder Cancer Matters, host Rick Bangs sits down with Dr. Ruchika Talwar, a leading urologic oncologist and health policy expert, to tackle the growing issue of financial toxicity in bladder cancer care. With candid insights and clear explanations, Dr. Talwar breaks down the hidden and rising costs patients face—from co-pays and lost wages to caregiver burdens and high drug prices—and explains why bladder cancer is the most expensive cancer per patient in the U.S. Listeners will gain practical tips to navigate the system, avoid financial pitfalls, and advocate for support—all while learning why open conversations with healthcare providers matter more than ever. Whether you're a patient, caregiver, or healthcare professional, this episode sheds light on a critical but often overlooked side effect of cancer: the financial toll. Don’t miss this eye-opening discussion.
In this powerful episode of Bladder Cancer Matters, host and survivor Rick Bangs sits down with Dr. Brian Zheng of Brigham and Women’s Hospital and Harvard Medical School to explore a deeply personal yet often overlooked topic: life after a radical cystectomy. Dr. Zheng shares candid insights on the different types of incontinence, how they uniquely affect men and women, and—most importantly—practical tips and treatment options that can dramatically improve quality of life. From behavioral changes and physical therapy to products, medications, and surgical solutions, this episode arms listeners with actionable advice and much-needed hope. If you or a loved one are living with a neobladder, this is an essential listen.
In this compelling episode of Bladder Cancer Matters, host Rick Bangs sits down with Dr. Vijay Kasturi, Chief Medical Officer at CG Oncology, for a must-hear conversation that blends science, heart, and hope. From the personal loss that fuels his passion to the groundbreaking clinical trials underway for Cretostimogene—an innovative investigational therapy targeting non-muscle invasive bladder cancer—Dr. Kasturi offers a behind-the-scenes look at how CG Oncology is working to change the game for patients. Whether you're a patient, caregiver, clinician, or advocate, this episode delivers crucial insights into new horizons for bladder cancer treatment.
In this powerful episode of Bladder Cancer Matters, host Rick Bangs talks with Deb Wells, a survivor of high-grade upper tract urothelial cancer (UTUC), who shares her emotional and eye-opening journey to diagnosis and treatment. After months of misdiagnoses and repeated ER visits, Deb finally learned the truth behind her symptoms—an experience that will resonate with many bladder cancer patients, especially women. She opens up about the importance of being an informed patient, finding the right medical team, and leaning on a support system when facing uncertainty.
Deb’s story is both inspiring and practical, filled with advice for navigating complex medical decisions, coping with treatment side effects, and embracing life during and after cancer. If you or someone you love has been impacted by bladder or upper tract urothelial cancer, this episode offers hope, clarity, and a powerful reminder that no one has to face this journey alone. Don’t miss this honest and uplifting conversation.
Can you really just take out part of the bladder? It’s one of the most common questions bladder cancer surgeons hear—and in this episode of Bladder Cancer Matters, host Rick Bangs sits down with renowned urologic oncologist Dr. John Gore to break it all down. From TURBTs to partial cystectomies, they explore when bladder-sparing approaches are appropriate, what the real risks and benefits are, and how treatment choices affect long-term outcomes. Whether you’re a patient, caregiver, or advocate, this episode is packed with the kind of honest, expert insight that can help you make more informed decisions.
Can personalized exercise improve recovery after bladder cancer surgery? In our latest Bladder Cancer Matters podcast, host Rick Bangs talks with Dr. Sarah Psutka about her groundbreaking BCAN-funded clinical trial, Get Moving. This innovative study explores how tailored, app-based exercise programs can help patients undergoing major surgery for bladder or upper tract urothelial cancer recover faster and feel better. From reducing frailty to rebuilding strength at home using just a smartphone and a Fitbit, this episode dives deep into the science—and heart—behind helping patients thrive.
🎙 Meet Meri-Margaret Deoudes, BCAN’s new CEO! In this interesting episode of Bladder Cancer Matters, Meri-Margaret shares what drew her to BCAN, her surprising personal connection to bladder cancer, and the incredible warmth and strength she’s already found in the community. With over 25 years of nonprofit leadership, she's stepping into this role with passion, purpose, and a deep commitment to patients as her guiding light.
💙 Tune in as she and host Rick Bangs talk about BCAN’s exciting 20th anniversary, plans for future growth, and how the organization is expanding support for caregivers, women, veterans, and young-onset patients. Whether you're a survivor, caregiver, advocate, or simply part of the BCAN family, you won’t want to miss this inspiring conversation. Listen now!
Bladder cancer survivor Fran Curtis shares her powerful journey on Bladder Cancer Matters, discussing her experience with ADSTILADRIN® (nadofaragene firadenovec-vncg), the impact of early detection, and her advocacy work with BCAN. Diagnosed with non-muscle invasive bladder cancer after subtle urinary changes, Fran highlights the importance of listening to your body, seeking the best care, and finding hope through community support. Released during International Women's History Month, this episode underscores the need for gender equity in healthcare. Tune in to hear Fran’s inspiring story and insights!
IMPORTANT SAFETY INFORMATION
Who should not receive ADSTILADRIN? Do not receive ADSTILADRIN if you have a sensitivity to interferon alfa or any of its components.
What is the most important information I should know about ADSTILADRIN? Individuals who are immunosuppressed or immune-deficient should not prepare, administer, receive, or come into contact with ADSTILADRIN.
What should I tell my healthcare provider? Tell your doctor about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.
What are the possible side effects of ADSTILADRIN? The most common side effects of ADSTILADRIN include: Urinary discharge, fatigue, bladder spasm, urgency to urinate, and blood in your urine.
These are not all the possible side effects of ADSTILADRIN. Call your doctor for medical advice about side effects. You are encouraged to report negative side effects of prescription drugs to FDA. Visit www.FDA.gov/medwatch or call 1-800-332-1088. You may also contact Ferring Pharmaceuticals at 1-888-FERRING.
What other information should I know about using ADSTILADRIN? For 2 days following treatment, voided urine should be disinfected for 15 minutes with an equal volume of bleach before flushing.
For more important information, call 1-888-337-7464.
Please see full Prescribing Information.
Mental health is a critical yet often overlooked aspect of the cancer journey. In this compelling episode of Bladder Cancer Matters, host Rick Bangs sits down with nurse practitioner and long-time BCAN advocate Mary Dunn to tackle the emotional challenges faced by bladder cancer patients and their caregivers. From fear of recurrence and depression to the stigma surrounding urologic cancers, Mary shares eye-opening statistics, real-world experiences, and practical strategies for addressing these issues. She also discusses how BCAN’s Survivorship Task Force is working to close the gaps in psychological support. Whether you're a patient, caregiver, or healthcare professional, this episode sheds light on the urgent need to normalize mental health discussions and create accessible resources for those navigating the complexities of bladder cancer. Don't miss this powerful conversation—listen now!
In this special Bladder Cancer Matters podcast, host Rick Bangs features BCAN's February 2025 Partner in Progress, Photocure. Anders Neijber, Photocure’s Chief Medical Officer, dives into the company’s pioneering work in bladder cancer diagnosis and surveillance, including the groundbreaking use of Blue Light Cystoscopy. From how it enhances detection to its role in shaping future treatments, Anders shares expert insights on Photocure’s patient-focused innovations and its impactful partnership with BCAN. Don’t miss this inspiring conversation about how collaboration is driving progress and hope for the bladder cancer community. Listen now!
In this episode of Bladder Cancer Matters, host Rick Bangs is joined by the esteemed Dr. Ashish Kamat of MD Anderson Cancer Center to dive into the often-overlooked world of histologic subtypes, or variants, of bladder cancer. These rare subtypes can significantly alter how bladder cancer behaves and responds to treatment.
Dr. Kamat breaks down the science behind these variants in a way that’s both accessible and empowering for patients, offering crucial insights into why understanding your specific diagnosis matters. From the differences between common urothelial cancer and variants to the critical questions patients should ask their doctors, this conversation is packed with valuable information for anyone navigating a bladder cancer journey.
Join Bladder Cancer Matters host Rick Bangs as he sits down with BCAN CEO Andrea Maddox-Smith, who reflects on her remarkable tenure leading the Bladder Cancer Advocacy Network. From dramatically increasing research funding to building a powerhouse team and expanding programs, Andrea has transformed BCAN into a vital lifeline for bladder cancer patients and families. Hear her personal journey, her proudest moments, and the legacy she's leaving behind as she prepares for retirement in 2025.
Andrea's passion for patient advocacy, her deep connections with the bladder cancer community, and her dedication to driving change shine through in every word. Whether you're a patient, caregiver, or advocate, this episode will leave you inspired by what's possible when a vision is fueled by heart and determination. Listen now on Bladder Cancer Matters!
Discover how groundbreaking advancements in bladder cancer care are transforming lives in our latest Bladder Cancer Matters podcast episode!
Host Rick Bangs kicks off BCAN’s 20th anniversary "Partners in Progress" series with Karishma Parikh of Ferring Pharmaceuticals.
Learn about Adstiladrin, an innovative gene therapy offering hope and bladder preservation for some patients with high-risk, BCG-unresponsive bladder cancer. With a 96% success rate in preventing progression to muscle-invasive cancer and life-changing patient stories, this episode is packed with insights into how Ferring is driving innovation, supporting patient needs, and reshaping the future of bladder cancer care. Tune in now and be inspired!
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About Adstiladrin: INDICATION
ADSTILADRIN is a treatment for adults who have all the following:
- High-risk non–muscle-invasive bladder cancer (NMIBC)
- Cancer that is not responding to Bacillus Calmette-Guérin (BCG) therapy
- Carcinoma in situ (CIS) with or without other high-grade tumors
IMPORTANT SAFETY INFORMATION
Who should not receive ADSTILADRIN? Do not receive ADSTILADRIN if you have a sensitivity to interferon alfa or any of its components.
What is the most important information I should know about ADSTILADRIN? Individuals who are immunosuppressed or immune-deficient should not prepare, administer, receive or come into contact with ADSTILADRIN.
What should I tell my healthcare provider? Tell your doctor about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.
What are the possible side effects of ADSTILADRIN? The most common side effects of ADSTILADRIN include: Urinary discharge, fatigue, bladder spasm, urgency to urinate, and blood in your urine.
These are not all the possible side effects of ADSTILADRIN. Call your doctor for medical advice about side effects. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.FDA.gov/medwatch or call 1-800-332-1088. You may also contact Ferring Pharmaceuticals at 1-888-FERRING.
What other information should I know about using ADSTILADRIN? For two days following treatment, voided urine should be disinfected for 15 minutes with an equal volume of bleach before flushing.
For more important information, call 1-888-337-7464.
Please see full Prescribing Information.
What if bladder cancer treatment could spare your bladder and transform your life? In this must-listen episode of Bladder Cancer Matters, host Rick Bangs dives deep with Dr. Roger Li, a leading urologic oncologist, to explore revolutionary advancements in bladder-sparing therapies, the emotional journey of patients, and life-changing options that weren’t available just a few years ago. Hear how personalized care is reshaping hope for bladder cancer patients everywhere.
Join host Rick Bangs and expert Dr. Kent Mouw, a radiation oncologist from Dana-Farber Cancer Institute and Harvard Medical School, as they dive deep into the transformative role of radiation therapy in treating bladder cancer. From debunking myths about radiation to exploring cutting-edge advancements like adaptive radiation and personalized treatment plans, this episode offers a comprehensive look at how modern techniques are improving outcomes and patient experiences. Whether you're a patient, caregiver, or medical professional, you won't want to miss this insightful conversation about the future of bladder cancer treatment.
In this insightful episode of Bladder Cancer Matters, host Rick Bangs engages with Dr. Marc Bjurlin, a leading urologic oncologist and smoking cessation advocate, to explore the profound link between smoking and bladder cancer. Timed with the Great American Smokeout 2024, the episode delves into how smoking increases cancer risks, the rise of e-cigarettes, and the challenges of quitting. Dr. Bjurlin also shares inspiring success stories from cessation programs, practical quitting strategies, and the importance of early detection for smokers. Whether you're a patient, caregiver, or health professional, this episode is packed with vital information to help you or your loved ones take charge of their health.
In this compelling episode of Bladder Cancer Matters, host Rick Bangs speaks with Cindy McCreery, a screenwriter and professor, and Ryan Cooper, an actor and producer, about their powerful new film, I’ll Be There. The movie tells the story of Cindy's brother’s battle with muscle-invasive bladder cancer, inspired by her experience as his caregiver and his journey to survivorship with a neobladder. Cindy and Ryan share personal insights into bringing this deeply moving story to life, offering a unique portrayal of the resilience and challenges faced by those impacted by bladder cancer.
Cindy reveals the personal significance of the film, from witnessing her brother’s treatment to understanding the emotional weight of being a caregiver. Ryan shares his journey preparing for the role, highlighting the physical and emotional aspects he learned about bladder cancer. Their reflections provide a rare look into the strength and spirit of the bladder cancer community, with insights that will resonate with both patients and caregivers alike.
Tune in to hear Cindy and Ryan discuss the film’s journey to the screen, the significance of accurately depicting bladder cancer experiences, and their hopes for how I’ll Be There will inspire awareness and empathy for those facing bladder cancer. This is an episode that celebrates courage, community, and the transformative power of storytelling.
In this episode of Bladder Cancer Matters, host Rick Bangs speaks with Dr. Armine Smith, Director of Urologic Oncology at Sibley Memorial Hospital and a leading expert in bladder cancer. They dive deep into the significant disparities in bladder cancer diagnosis and outcomes between men and women, exploring the biological, socioeconomic, and healthcare-related factors behind these differences. Dr. Smith highlights the urgent need for better awareness, timely diagnosis, and gender-sensitive treatment options, including exciting new research into the role of the microbiome and sex hormones in bladder cancer progression. With her passion and expertise, Dr. Smith offers actionable insights for both patients and healthcare providers. Tune in to learn about these critical issues and how we can collectively work to improve bladder cancer care for women.
In this informative episode of Bladder Cancer Matters, host Rick Bangs welcomes back Dr. Ashish Kamat, an expert in urology and bladder cancer research from MD Anderson Cancer Center. They dive into the latest updates on BCG (Bacillus Calmette-Guérin) and its crucial role in treating non-muscle invasive bladder cancer. Dr. Kamat provides an insightful overview of BCG’s effectiveness, the current shortage, and emerging alternatives. He explains the factors behind the supply issues and how treatments such as reduced dosages and novel combinations like gemcitabine and docetaxel are helping to bridge the gap.
Listeners will also hear about promising new therapies on the horizon, including gene therapy with Adstiladrin, Pembrolizumab, and ANKTIVA’s combination with BCG. Dr. Kamat sheds light on how these advancements could change the landscape of bladder cancer treatment while emphasizing the importance of tailored care and shared decision-making for each patient. This episode is a must-listen for those affected by bladder cancer and anyone interested in the latest medical developments in this field.
In this compelling Bladder Cancer Matters episode, host Rick Bangs sits down with David McKenzie, a bladder cancer survivor, who shares his deeply personal and inspiring journey. From the initial shock of diagnosis to navigating multiple treatments, including the new, FDA-approved ANKTIVA, David opens up about the emotional and physical challenges he faced along the way. He offers invaluable advice, like the importance of seeking second opinions, not overlooking early warning signs like blood in the urine, and finding humor amidst the struggle. Tune in to hear David’s powerful message on resilience, support, and why hope and laughter can be just as vital as treatment.
In this episode of Bladder Cancer Matters, host Rick Bangs sits down with Sarah Paul, Senior Director of Social Work at CancerCare, to discuss the vital support services offered through CancerCare's partnership with BCAN. Sarah explains how CancerCare provides free, professional assistance for bladder cancer patients, caregivers, and families, covering emotional, practical, and financial challenges. They dive into topics like navigating treatment, coping with a diagnosis, and the importance of emotional support. Tune in to learn more about the resources available to the bladder cancer community and how you can access these invaluable services.
To access the support line, please call 833-ASK-4-BCA or 833-275-4222.
In this compelling episode of "Bladder Cancer Matters," host Rick Bangs revisits a vital conversation with Dr. Bernard Bochner from Memorial Sloan Kettering Cancer Center. They dive into the findings of a groundbreaking quality of life survey involving over 400 bladder cancer patients who underwent radical cystectomy. Dr. Bochner shares insights on how urinary diversions impact physical, sexual, and emotional health over time, revealing encouraging data that shows most patients return to their baseline quality of life within two years. This is a must-listen for anyone facing bladder removal surgery or supporting someone who is.
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Meet Tim Stanley, a retired educator and two-time cancer survivor who faced a shocking bladder cancer diagnosis after battling thyroid and neuroendocrine tumors. In this heartfelt episode of "Bladder Cancer Matters," Tim shares his journey from an unexpected diagnosis to the life-altering decision of a radical cystectomy. He talks about the emotional rollercoaster, finding the right doctor, and the incredible support from his family, community, and BCAN. Tim's story is a testament to resilience and the power of support—don't miss this inspiring conversation! Listen now and be moved by Tim's heartfelt story.
In a rerelease of a highly popular 2021 "Bladder Cancer Matters" podcast, Rick Bangs sits down with Dr. Ashish Kamat to dive deep into the critical aspects of managing bladder cancer risks. From understanding the stages and grades of tumors to discussing the potential for progression and the role of surgeries like TURBT and radical cystectomy, this conversation is a must-listen for anyone impacted by bladder cancer. Dr. Kamat also shares insights on emerging treatments and stresses the importance of a strong partnership between patients and their medical teams. Tune in now and get informed.
In this powerful episode of "Bladder Cancer Matters," Frank Boyer takes us on an unfiltered journey through his diagnosis of stage IV bladder cancer, revealing the raw reality of facing such a life-altering challenge. He shares how he navigated the overwhelming decisions about treatment and the critical importance of building an exceptional medical team that became his lifeline. Frank’s candid discussion about his choice of an ileal conduit for urinary diversion and how he has refused to let cancer define his active lifestyle—biking, hiking, and more—will inspire anyone battling a similar fight. His story isn’t just about survival; it’s about resilience, determination, and the strength found in a supportive community, including the invaluable resources provided by the Bladder Cancer Advocacy Network (BCAN). Whether you're facing a cancer diagnosis, supporting a loved one, or simply looking for a story of hope, Frank’s experience is a compelling reminder of the human spirit’s ability to overcome even the darkest of days.
In Part 3 of our three-part podcast about radical cystectomies, Dr. Sia Daneshmand, a leading bladder cancer specialist, shares vital insights on the radical cystectomy process. He covers pre-surgery preparations, including clinic visits, chemotherapy, meeting with a stoma nurse, nutrition, quitting smoking, and pelvic floor physical therapy. Dr. Daneshmand emphasizes the importance of pre-habilitation, catheter practice, and ERAS pathways to improve recovery. This episode is a must-listen for anyone navigating bladder cancer surgery, offering practical advice and expert guidance.
Be sure to listen to Parts 1 and 2 of this fascinating podcast wherever you get your podcasts.
Tune into Parts 2 of 3 part episode about what to expect with a radical cystectomy, where Rick Bangs interviews Dr. Sia Daneshmand on the intricate aspects of the surgery.
Discover insights on surgery duration, hospital stays, pain management, and post-surgery activities. Dr. Daneshmand shares the significance of early mobilization and the various types of urinary diversions, highlighting that surgeon preference determines the choice without impacting cancer control outcomes. The episode wraps up with vital information on post-surgery care, including catheter use, irrigation techniques, and the timing of pathology reports, offering a comprehensive guide for patients and caregivers.
Be sure to listen to Parts 1 and 3 of this fascinating podcast wherever you get your podcasts.
Join Dr. Sia Daneshmand, a renowned bladder cancer specialist, as he delves into the comprehensive process and expectations surrounding radical cystectomy in part 1 of this fascinating 3-part podcast episode. Dr. Daneshmand covers the critical steps from pre-surgery clinic visits, chemotherapy, and clinical trials, to essential preparations like meeting with a stoma nurse, nutrition and weight management, quitting smoking, and pelvic floor physical therapy.
Learn about the significance of pre-habilitation, including physical and occupational therapy and sexual function, to enhance recovery. Discover the crucial roles of nutritionists, the benefits of enhanced recovery after surgery (ERAS) pathways, and post-surgery muscle activation. Tune in for an enlightening discussion that promises to provide invaluable insights and practical advice for patients and caregivers alike.
Be sure to listen to Part 2 and 3 of this fascinating podcast wherever you get your podcasts.
Dive into the deeply personal and inspiring story of Liliana Martin, a bladder cancer survivor, on this episode of the Bladder Cancer Matters podcast. Join us as Liliana candidly shares her journey from the initial shock of her diagnosis to the tough decisions she faced, including surgery and chemotherapy. Discover how she navigated the emotional and physical challenges with resilience, using unique coping mechanisms like running, listening to empowering music, and her signature special socks. Liliana's story is a testament to the power of focusing on small victories and self-care during a cancer journey. Tune in to hear her valuable insights and connect with her personally for support and solidarity. This episode is a must-listen for anyone affected by bladder cancer, offering hope, strength, and practical advice.
In this episode of "Bladder Cancer Matters," host Rick Bangs interviews Dr. Khurshid Guru, Chair of the Department of Urology at Roswell Park Comprehensive Cancer Center and a pioneer in robotic-assisted bladder cancer surgery. Dr. Guru discusses his popular book, "A Patient’s Guide to Bladder Cancer," which provides comprehensive information for patients and their families about the disease and its treatment. The book simplifies complex scientific concepts, follows the history of the disease, and includes contributions from experts across multiple disciplines, ensuring a holistic approach to bladder cancer care.
Dr. Guru shares insights into the writing process, including the role of patients, the challenges faced, and the importance of including underrepresented groups like women in the bladder cancer narrative. The book is richly illustrated, making it accessible and informative for readers. Dr. Guru also touches on potential future updates, including topics like bladder preservation, upper tract issues, clinical trials, and new treatment approaches.
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Tune in to the Bladder Cancer Matters podcast for an inspiring and heartfelt conversation with Frank Sadowski, a survivor of muscle-invasive bladder cancer and neobladder recipient. Frank shares his gripping journey from diagnosis to recovery, revealing the raw challenges he faced, including enormous fatigue, digestive issues, and even hallucinations after his radical cystectomy.
Discover the emotional and cathartic moments that shaped his path and hear about the unexpected blessings cancer brought into his life. Frank's story is a beacon of hope for fellow patients, underscoring the crucial role of support from caregivers and healthcare providers. Don't miss this powerful episode where resilience meets reality, and courage takes center stage.
In this captivating episode of the Bladder Cancer Matters podcast, host Rick Bangs delves into the intricacies of upper tract urothelial carcinoma with renowned experts Dr. Jeannie Hoffman-Censits and Dr. Phil Pierorazio. Together, they explore the complexities of diagnosing and treating this challenging disease, offering valuable insights into patient prognosis. The discussion highlights cutting-edge approaches, including the use of topical and systemic therapies, and sheds light on promising clinical trials. Dr. Hoffman-Censits and Dr. Pierorazio underscore the significance of personalized treatment plans and the urgent need for continued research. Don’t miss this enlightening conversation that promises to deepen your understanding of upper tract urothelial carcinoma and its evolving landscape in medical care.
Tune in to Episode 70 of Bladder Cancer Matters podcast in which Howard L., a bladder cancer survivor and recovering alcoholic, candidly shares his inspiring journey. Howard discusses his battle with alcoholism, the pivotal role Alcoholics Anonymous (AA) played in his recovery, and his challenging path to a bladder cancer diagnosis, including the critical steps of misdiagnosis and the pursuit of a second opinion. He underscores the vital support provided by resources like the Bladder Cancer Advocacy Network (BCAN) and draws compelling parallels between AA and BCAN’s supportive communities. Howard’s story is a powerful reminder of the importance of reaching out for support and the difference it can make in overcoming life’s toughest challenges. Join us to find encouragement and understanding through his profound insights and experiences.
Join us on the Bladder Cancer Matters podcast as host Rick Bangs interviews Dr. Bishoy Faltas, director of Bladder Cancer Research at the Englander Institute of Precision Medicine at Weill Cornell. Dive into the transformative role of artificial intelligence (AI) in diagnosing and treating bladder cancer. From automated technologies in everyday life to advanced applications in diagnostics and patient care, Dr. Faltas explores how AI is reshaping the landscape of cancer care. Discover AI's potential in prevention, early detection, and even in enhancing doctor-patient communication. Don't miss this deep dive into the exciting advancements and future possibilities of AI in improving bladder cancer outcomes.
Join us for an enlightening episode of Bladder Cancer Matters with Dr. Donald Lamm, a trailblazer in bladder cancer treatment and the driving force behind the groundbreaking Lamm Protocol. Discover the journey of BCG immunotherapy from its inception in the 1970s to becoming a the gold standard in non-muscle invasive bladder cancer care. Delve into Dr. Lamm's insights on the nuances of BCG therapy, including dosing, strain differences, and the critical challenges of supply shortages. With a career dedicated to advancing urologic oncology, Dr. Lamm shares his optimistic vision for the future of BCG treatments, promising enhanced outcomes through innovative approaches. Tune in to explore how Dr. Lamm's work has revolutionized the fight against bladder cancer, offering hope and improved survival for thousands.
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Join Dr. Aditya Bagrodia, a urologic oncologist, on Episode 67 of the Bladder Cancer Matters podcast as he unveils the power of shared decision making in bladder cancer care. Learn why involving patients and caregivers in treatment choices, rooted in their values and informed by expert insight, is crucial across all stages of bladder cancer. Discover the goals of care from non-muscle invasive bladder cancer to advanced stages, and empower yourself to advocate for your health. Dive deep into a world where patient education and collaboration pave the way to personalized care.
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Dive into Dean Karrel's powerful journey as a bladder cancer survivor, from his initial diagnosis to life after a radical cystectomy, in Episode 66 of Bladder Cancer Matters. Dean shares the symptoms that led to his life-changing diagnosis, the resilience he maintained through treatments that failed him like BCG and Gemcitabine, and his decision for life-saving surgery. His story is a unfiltered look at the challenges post-surgery, the crucial role of support from nurses and care teams, and his gratitude towards them.
Dean highlights the importance of organizations like BCAN in supporting bladder cancer patients and calls on patients to advocate for themselves, ask questions, and live fully post-diagnosis. His journey isn't just about survival; it's an inspiring call to action, emphasizing strength, advocacy, and hope. Join us to be moved and motivated by Dean's indomitable spirit.
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In this episode of Bladder Cancer Matters, host Rick Bangs chats with Dr. Elizabeth Guancial, a medical oncologist at Florida Cancer Specialists in Sarasota, Florida.
They discuss the differences between receiving bladder cancer care in academic medical centers and community hospitals. Dr. Guancial is an expert because she has practiced in both types of institutions.
Dr. Guancial shares that in academic medical centers, the focus is on teaching, research, and patient care, while community settings prioritize patient care. Community settings can often provide quicker care and more personalized attention, but academic medical centers may offer specialized procedures and access to clinical trials. Patients should consider factors such as the urgency of their condition, the need for specialized procedures, and the availability of clinical trials when deciding whether to seek care in a community or academic setting. It is also important for patients to feel comfortable with their healthcare providers and to seek second opinions if desired.
In this riveting episode of the Bladder Cancer Matters podcast, Mark Story sits down with Rick Bangs, the podcast's host and a muscle-invasive bladder cancer survivor. Dive deep into Rick's personal battle with bladder cancer and uncover the critical role of patient advocacy in shaping research. You'll also discover the behind-the-scenes magic of podcast production and get a glimpse into the future of bladder cancer diagnosis and treatments. Rick passionately advocates for the advancement of precision medicine, the development of less invasive diagnostic and treatment methods, expanded access to cutting-edge treatments and clinical trials, and the power of unity among cancer advocacy organizations.
In Part 3 of this Bladder Cancer Matters podcast, host Rick Bangs continues his conversation with Bill Robertson, a bladder cancer survivor, and Dr. Vikram Narayan, an assistant professor in the Department of Urology at Emory University School of Medicine. They discuss the challenges and adjustments that come with having an ileal conduit, a common diversion procedure for bladder cancer patients.
Dr. Narayan emphasizes the importance of understanding the recovery process and finding the right stoma appliance. Bill shares his personal experience with daily life after the surgery, including the need for physical activity and the support he received from his wife and others.
Both Dr. Narayan and Bill stress the importance of seeking support from organizations like the Bladder Cancer Advocacy Network (BCAN) and connecting with other patients who have gone through similar experiences.
They also highlight the psychological impact of a bladder cancer diagnosis and the need for mental health support. The episode concludes with final thoughts from Bill and Dr. Narayan, who encourage patients to focus on their return to normalcy and to seek help and support throughout their journeys.
In Part 2 of 3 in this Bladder Cancer Matters podcast, host Rick Bangs continues his conversation with Bill Robertson, a bladder cancer survivor, and Dr. Vikram Narayan, an assistant professor in the Department of Urology at Emory University School of Medicine.
They discuss the difficult decision of undergoing a radical cystectomy, the potential benefits of bladder removal, and the importance of understanding a patient's values and preferences when discussing treatment options.
They also touch on the different types of urinary diversions and the challenges that come with them, such as learning how to change the bag and adjusting to a new lifestyle. The episode concludes with a discussion on the time it takes to change a bag and the frequency of bag changes.
In Part 1 of a three part "Bladder Cancer Matters" podcast, join host Rick Bangs as he engages in an enlightening conversation with bladder cancer survivor, Bill Robertson, and Dr. Vikram Narayan of Emory University School of Medicine. Dr. Narayan is Bill’s urologist and helped him navigate the challenges of a bladder cancer diagnosis and resulting bladder removal.
Dr. Narayan sheds light on the critical role of a comprehensive, multidisciplinary team in delivering exceptional care to bladder cancer patients. Bill Robertson shares his heartfelt appreciation for the outstanding support and expertise provided by the team at Emory. The discussion also explores the pivotal decision-making process behind opting for a radical cystectomy. The episode wraps up with an enticing preview of the upcoming parts two and three of this engaging conversation.
Don't miss this compelling exploration of resilience, advanced care, and the innovative approaches to bladder cancer treatment.
In this episode of Bladder Cancer Matters, host Rick Bangs talks with Dr. Philippe Spiess, a Genitourinary Oncologist and Assistant Chief of Surgical Services at the Moffitt Cancer Center as they discuss rare cancers.
Dr. Spiess explains that rare cancers are defined as those with an incidence of 40,000 cases or less per year in the United States. However, he notes that the definition of rare cancers should also take into account factors such as expertise, patient advocacy, resources, support services, and clinical trials.
Dr. Spiess emphasizes the importance of personalized medicine and precision oncology in the treatment of rare cancers. He also discusses the challenges and opportunities in studying and treating rare cancers, including the need for global collaboration, access to clinical trials, and the representation of patient voices.
Dr. Spiess highlights the work of the Global Society of Rare Genitourinary Tumors (GSRGT) in advancing research, education, and patient advocacy in the field of rare cancers. He encourages individuals to visit the GSRGT website and reach out for more information or to provide feedback.
In Episode 61 of Bladder Cancer Matters, Dr. Brendan Guercio, a medical oncologist and assistant professor at the University of Rochester Medical Center, discusses the use of immunotherapy in the treatment of bladder cancer.
He explains that immunotherapy works by training the immune system to identify and fight cancer cells, unlike chemotherapy which directly kills cancer cells. Dr. Guercio focuses on immune checkpoint inhibitors, a type of immunotherapy that blocks proteins used by cancer cells to turn off the immune system. He discusses the effectiveness of checkpoint inhibitors, with about 25-30% of patients experiencing significant tumor shrinkage.
Dr. Guercio also explores the potential impact of diet on immunotherapy response, specifically looking at probiotics, prebiotics, fiber, and antibiotics. While there is promising evidence that certain probiotics and higher fiber intake may be beneficial, larger studies are needed to confirm these findings. He emphasizes the importance of discussing these topics with a healthcare provider and highlights the role of organizations like the Bladder Cancer Advocacy Network (BCAN) in supporting research in this area.
In this episode of the Bladder Cancer Matters podcast, host Rick Bangs interviews Dr. Arlene Siefker-Radtke, a medical oncologist and professor at the University of Texas MD Anderson Cancer Center. They discuss metastatic bladder cancer and the importance of defining choosing the right targets and combinations for treatment.
Dr. Siefker-Radtke explains that metastatic cancer is the highest stage of cancer and typically refers to cancer that has spread to other areas of the body. She discusses the differences between metastatic and advanced cancer and the varying risks and treatment options for different metastatic diagnoses.
Dr. Siefker-Radtke also highlights the exciting advancements in treatment options for metastatic bladder cancer, including the combination of enfortumab vedotin and pembrolizumab, which has shown significant improvement in overall survival.
She also emphasizes the importance of seeking second opinions and considering clinical trials for metastatic bladder cancer treatment.
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In Episode 59 of Bladder Cancer Matters, host Rick Bangs talks with Alan Lifton, a survivor of muscle invasive bladder cancer.
Alan shares his journey and experiences and discusses his diagnosis, treatment, and choice of urinary diversion (ileal conduit). He also highlights the importance of support from organizations like the Bladder Cancer Advocacy Network (BCAN) and its Survivor to Survivor program, which connects newly diagnosed bladder cancer survivors with survivors with similar diagnoses.
Alan also emphasizes the need for doctors to provide more information about the emotional and practical aspects of living with bladder cancer. He expresses gratitude for the medical professionals who treated him and the support he received from BCAN.
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In this episode of Bladder Cancer Matters, host Rick Bangs interviews Mary Dunn, MSN, NP-C, OCN, RN of the University of North Carolina. Mary is a nurse practitioner and co-chair of the BCAN Survivorship Task Force.
They discuss the definition of a cancer survivor, the concept of survivorship, and the unique aspects of bladder cancer survivorship. They also talk about the work of the BCAN Survivorship Task Force, including the development of survivorship care plans, the creation of a survivorship section on the BCAN website, and the importance of outreach to clinicians and patients.
The goal of the task force is to improve survivorship care for bladder cancer patients and provide resources and support for both patients and healthcare providers.
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In Episode 57 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Leslie Ballas of Cedars-Sinai Medical Center about a topic on the minds of many patients with muscle-invasive bladder cancer: keeping their bladders. Even when the cancer has penetrated the bladder wall, can bladders still be saved? Then answer (for some) is “yes,” and Rick and Dr. Ballas discuss:
- What bladder preservation is
- Different types of preservation like tri-modality therapy
- The role that radiation plays
- Options that patients with metastatic bladder cancer may have What oligometastatic bladder cancer is
- The increase in attend paid to bladder preservation as an alternative to a radical cystectomy
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In Episode 56 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Matthew Galsky, a medical oncologist who specializes in treating bladder cancer patients, about advancing new treatments for bladder cancer through clinical development and investigating the gap between the efficacy and real-world effectiveness of existing chemotherapies. Among other topics, they discuss:
- The VESPER trial and its purpose related to bladder cancer
- Background on two chemotherapies, MVAC and GemCis, for muscle invasive bladder cancer
- The side effects of both chemotherapy regimens
- Identifying who requires treatment and who benefits from it
- Other promising developments occurring in the field of chemotherapy for the initial treatment of bladder cancer patients
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In Episode 55 of Bladder Cancer Matters, host Rick Bangs talks with Cathy Murphy about how she overcame multiple cancer diagnoses and faced them head-on. Their conversation will draw you in with its emotional depth and compelling insights. Among other topics, they discuss:
- Her journey with two forms of breast cancer prior to her bladder cancer diagnosis
- Coping mechanisms she implemented during treatment
- Receiving the news of diagnosis during the height of COVID
- The difficulties in determining an effective treatment option
- Prioritizing her physical and mental health
- Her advice for those newly diagnosed with bladder cancer
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In Episode 54 of Bladder Cancer Matters, host Rick Bangs talks with Shannon Murphy about her bladder cancer diagnosis at age 35. Their discussion is real, raw, and riveting. Among other topics, they discuss:
- Her experiences with a cystoscopy, TURBT, and BCG
- The difficulties in determining when and whom to inform about her diagnosis
- Her advice for managers and colleagues on how to navigate a direct report's cancer diagnosis
- Overcoming a bladder cancer diagnosis as a young woman
- Intimacy with a partner while undergoing bladder cancer treatment
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In Episode 53 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Tom Powles about an interesting clinical trial he and others conducted studying the effectiveness of a drug to treat metastatic bladder cancer. Among other topics, they discuss:
- The JAVELIN 100 trial that successfully studied the effectiveness of avelumab after chemotherapy in bladder cancer patients who have locally advanced metastatic disease
- What avelumab is and how it is used
- The questions that Dr. Powles hoped would be answered by the JAVELIN 100 trial
- How those conducting the trial assessed the quality of life of the patients receiving avelumab
- The role that wearable technology like a smartwatch can play in measuring patients’ quality of life and health
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Historically, many patients who have a radical cystectomy (bladder removal) also have an extended lymph node dissection, which means taking out several lymph nodes during the surgery. A new study led by Dr. Seth Lerner of Baylor College of Medicine (and also a BCAN Board Member) suggests that taking out a large number of lymph nodes does not improve both disease-free survival and overall survival.
Rick and Dr. Lerner discuss:
- What lymph nodes and why are they important in bladder cancer
- Does a more extensive node dissection (END) improve both disease-free survival and overall survival?
- The side effects of removing several lymph nodes
- How, in Dr. Lerner's study, they found a higher risk of grade of moderate to life-threatening side effects at both 30 days and 90 days after a radical cystectomy and END
- How they also studied how radical cystectomy patients fared with and without chemotherapy after surgery
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This episode contains explicit language and candid conversations about bladder cancer and sexuality. We believe it's essential to have open, honest conversations about these matters, to provide support and guidance to those who may be facing similar experiences. Bladder cancer can bring about significant changes and challenges in the realm of intimacy and sexuality, and we want to address these topics head on.
Our guest, Dr. Daniela Wittmann shares her advice and insights in an unfiltered and uncensored manner. We understand that the explicit language used in this podcast may not be suitable for all audiences, and listener discretion is advised.
In Episode 51 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Wittman about a topic that is on the minds of many bladder cancer patients, particularly those who have their bladders removed: sexuality after their treatment. They discuss:
- How doctors often remove not only the bladder but surrounding organs to that are important to sexual function
- How intravesical treatments like BCG can impact sexual function
- How sometimes these important changes are not addressed prior to surgery
- Available treatments for both men and women to regain some sexual function
- That women should understand that their sexual functioning may really change, like low desire, vaginal dryness and other issues
- When to have the critical conversations about sexuality with your medical team
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In an important and timely podcast, host Rick Bangs talks with Dr. Goya Iyer, a medical oncologist at Memorial Sloan Kettering Cancer Center, where he is section head for urothelial cancer. They discuss the disturbing shortage of platinum-based chemotherapy drugs for bladder cancer patients, most commonly cisplatin and carboplatin.
They cover:
- Why these drugs are in short supply
- Short and long-term solutions for the shortages
- When the shortages began
- How they impact patients who have muscle invasive bladder cancer
- What options bladder cancer patients have
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In Episode 49, host Rick Bangs's special guest is Dr. Sarah Psutka. Dr. Psutka is a urologic oncologist specializing in bladder and other genital urinary cancers at the Seattle Cancer Care Alliance. She's also associate professor of urology at the University of Washington School of Medicine.
Among other topics, Rick and Dr. Psutka talk about:
- Bladder cancer can affect individuals of various ages, not just older adults.
- The concept of physiologic age is important in assessing individual risk factors and resilience.
- Aging is associated with an increased risk of bladder cancer and other health issues such as heart disease and lung disease.
- The aging US population poses challenges in terms of healthcare expertise and resources for older individuals.
- Shared decision making and prioritizing quality of life are crucial in managing aging-related diseases like bladder cancer.
- Personalized medicine should consider the holistic needs of patients, including biologic, sociologic, and financial factors.
- Baseline physical fitness and comorbidity burden play a significant role in determining suitable treatments for older bladder cancer patients.
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In Episode 48 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Jason Efstathiou about a topic that's frequently on the minds of patients with muscle invasive bladder cancer: Can they keep their bladders? They discuss:
- What bladder preservation is
- The different types of approaches to bladder preservation
- How many surgeons in the U.S. have taken a conservative approach compared to other countries like the U.K.
- How it involves many different medical professionals
- A recent study showing the effectiveness of bladder cancer preservation vs radical cystectomy
- What is currently happening with bladder preservation trials in the US
- What patients should know
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In Episode 47 Part 2 of Bladder Cancer Matters, host Rick Bangs continues his conversation with Damon Thomas, a triathlete and a bladder cancer survivor. You can also read Damon's story in BCAN's patient stories section.
In Part 2, Rick and Damon talk about:
- How he made the decision to tell others about his bladder cancer
- How Damon put together his medical team
- The degree to which his treatments impacted his triathlon training
- How Damon navigated the mental challenges of the disease
- What advice he would give to fellow bladder cancer patients
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In Episode 47 Part 1 of Bladder Cancer Matters, host Rick Bangs talks with Damon Thomas, a triathlete and a bladder cancer survivor. You can also read Damon's story in BCAN's patient stories section.
Rick and Damon talk about:
- Damon's delayed diagnosis
- His experience with his first cystoscopy, which Damon described as "barbaric"
- As a non-smoker, African-American and triathlete, how Damon did not fit the profile of a traditional bladder cancer patient
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In Episode 45 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Michael O'Donnell, Director of Urologic Oncology at the University of Iowa. He is the author of over 150 peer-reviewed manuscripts and serves on the editorial board of the Journal of Urology and CURE. Dr. O'Donnell leads several national clinical trials using immune therapy to treat bladder cancer.
Rick and and Dr. O'Donnell talk about:
- Why BCG is the gold standard when treating non-muscle invasive bladder cancer
- How Dr. O'Donnell has dealt with the BCG shortage while studying the effectiveness of other intravesical treatments
- When BCG treatments fail a patient, what options they may have
- New drugs and treatments like Adstiladrin, a genetically engineered virus that produces interferon
- What patients need to know about the toxicity of non-muscle invasive treatments for bladder cancer
- What "salvage treatments" are
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In Episode 45 of Bladder Cancer Matters, host Rick Bangs talks with a very special guest, Kristen. She was diagnosed with bladder cancer at 22 years of age (the average age at diagnosis is 73). She had to fight for a correct diagnosis, including when one of her doctors told her that she was just “getting fat.”
Kristen S. Rick and and Kristen chat about her journey and how she struggled to get her doctors to take her seriously. They talk about:
- Her symptoms and how she bounced around between doctors before she finally got her diagnosis
- How a urologist told her in passing that she had bladder cancer (and then left the room)
- How she decided to talk with others about her bladder cancer – who to tell and when
- The role that her mom (a nurse) played in Kristen’s journey
- The crippling financial impact of bladder cancer on AYAs – adolescent and young adults
- The advice that she would give to someone else who is young and receives a bladder cancer diagnosis
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In Episode 44 of Bladder Cancer Matters, host Rick Bangs talks with Thomas Flaig, MD, a genitourinary cancer medical oncologist and vice chancellor for research for the University of Colorado Denver and Anschutz Medical Campuses. In addition to his clinical and administrative work, Dr. Flaig has significant clinical and translational research experience, having led both local and national multi-center clinical trials. Known nationally for his work on bladder cancer, Dr. Flaig has been a member of the National Cancer Institute’s Investigational Drug Steering Committee and the bladder cancer task force.
Rick and Dr. Flaig talk about bladder cancer treatment guidelines and why they should matter to patients and the survivors. They discuss:
- What defines guidelines
- How many bladder cancer guidelines there are
- What those who are developing the guidelines do when new evidence comes out that could impact treatments
- The process of generating a patient-friendly version of guidelines
- How doctors apply guidelines to patients and if it is art, science, or both
- The most significant changes that Dr. Flaig has seen in his 10 years of working on bladder cancer guidelines
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In Episode 43 of Bladder Cancer Matters, host Rick Bangs talks with bladder cancer survivor, Sue. Sue's story is both meaningful and inspirational - bladder cancer was her third different cancer diagnosis. Rick and Sue talk about:
- The signs and symptoms that Sue experienced with her prior diagnoses for thyroid and breast cancer
- What drove her to see her doctor when she began experiencing blood in her urine
- How her bladder cancer treatment experience was different than her prior two bouts with cancer
- How Sue grappled with whom to tell about her cancer diagnoses and when
- Her experience with BCG treatments
- How adding Interferon to her BCG treatments helped her
- Tips that she has for others who have to undergo cystoscopies
- How Sue discovered BCAN and how the organization has helped her
Sue also volunteers in BCAN's Survivor to Survivor program that matches newly diagnosed bladder cancer patients with survivors who have undergone similar experiences.
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In Episode 42 of Bladder Cancer Matters, host Rick Bangs talks Rebecca Yannopoulos, BCAN's Senior Development Manager and the person who has made Walks to End Bladder Cancer happen since 2017. Rick and Rebecca chat about:
- Her work supporting BCAN's dedicated Walk volunteers and fundraisers
- How the Walks to End Bladder Cancer got started
- When people should start planning to do a Walk
- How people can participate in a 2023 Walk
- What you can do if there is not an in-person Walk near you
- New, cool incentive prizes in 2023
To find a Walk near you, please visit bcanwalk.org.
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In Episode 41 of Bladder Cancer Matters, host Rick Bangs talks with Michelle Colero and Cassandra Schooley, both of Bladder Cancer Canada (BCC). Michelle is the organization's Executive Director and Cassandra is its Communications Specialist.
Rick, Michelle and Cassandra talk about:
- The history of collaboration between BCAN and Bladder Cancer Canada
- How Canada has greatly improved their supply of BCG
- The inquiries that BCC has fielded from Americans traveling to, seeking medical care in or working in Canada
- Differences between the Canadian and U.S. healthcare systems
- Why so many Canadian doctors and nurses are leaving their country to work in the United States
- Inequalities that exist in the Canadian healthcare system
- How the World Bladder Cancer Patient Coalition works with BCAN and BCC
Bladder Cancer Canada is the first and only Canadian patient advocacy organization dedicated to bladder cancer issues. You can learn more about them here.
You can also reach them by phone at 1-866-674-8889 or via email at info@bladdercancercanada.org.
In Episode 40 of Bladder Cancer Matters, host Rick Bangs talks with Rebecca Johnson, the Director of Research at the Bladder Cancer Advocacy Network. Rebecca is responsible for the day-to-day operational oversight and management of all research grant activities. She also manages BCAN grants from pre-award through award close-out while working closely with BCAN’s senior management team and Board of Directors to successfully achieve desired research outcomes.
Rick and Rebecca talk about:
- Why a Director of Research role was created at BCAN
- BCAN research focus areas
- How BCAN funds bladder cancer research
- How the patient voice is always incorporated into BCAN-funded research
- How BCAN decides what research to fund
- Key research that BCAN has funded in the past
- What’s new and upcoming in bladder cancer research in 2023
You can learn more about BCAN’s research programs and funding mechanisms here.
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In Episode 39 of "Bladder Cancer Matters," host Rick Bangs talks with Dr. Matthew Mossanen about what pathology is and why it matters to bladder cancer patients. Dr. Mossanen is a urologist at Brigham and Women's Hospital, holds a Master's Degree in Public Health and is an Assistant Professor of Surgery at Harvard Medical School.
Dr. Matthew Mossanen Rick and Dr. Mossanen talk about:
- What pathology means to both doctors and patients for staging and grading bladder cancer tumors
- How pathology and tumor profiling are related
- How staging and grading is open to interpretation by your medical team
- The importance of a second opinion for pathology reports
- How doctors should work to make pathology reports understandable for patients
- Dr. Mossanen's work on a patient-centered, understandable pathology report for people with bladder cancer
- The importance of patients not consulting "Dr. Google" to interpret their pathology reports
You can learn more about bladder cancer staging and grading on BCAN's web site.
Disclaimer: The views and opinions expressed in this podcast are those of the speakers and guests and do not necessarily reflect the views or positions of the Bladder Cancer Advocacy Network.
Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.
In Episode 38 of "Bladder Cancer Matters," host Rick Bangs talks with Dr. Dipen Parekh about robotic cystectomies. Dr. Parekh is the Chief Operating Officer at the University of Miami Health System, Chairman of Urology, and the Dr. Victor Politano Endowed Chair in Clinical Urology at the Miller School of Medicine at the University of Miami. He also serves as the Director of Robotic Surgery at the University of Miami Health System.
Rick and Dr. Parekh talk about what a robotic cystectomy is and who might be a candidate for it. They also discuss:
- How a robotic cystectomy compares to the open and laparoscopic surgeries
- When robotic cystectomies were first used
- How the robotic technology is used now
- How the technology has changed over time
- If robotic surgery is appropriate for all types of urinary diversions
- How to find a surgeon who specializes in robotic cystectomies
Dr. Parekh also talks about why most robotic cystectomies are performed in large, high-volume hospitals vs. community cancer centers.
Disclaimer: The views and opinions expressed in this podcast are those of the speakers and guests and do not necessarily reflect the views or positions of the Bladder Cancer Advocacy Network.
Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.
In Episode 37 of "Bladder Cancer Matters," host Rick Bangs talks with two-time return guest Dr. Ashish Kamat. Dr. Kamat is a professor of urology and director of bladder cancer research at MD Anderson Cancer Center in Houston, Texas. He's also a member of the Bladder Cancer Advocacy Network's Scientific Advisory Board.
Rick and Dr. Kamat talk about what is on the mind of many bladder cancer patients: what to expect before, during and after BCG treatments for non muscle-invasive bladder cancer. They chat about:
- How BCG treatments work
- What patients can expect before treatment – is there any sort of prep required?
- What the treatment itself is like
- What patients and expect following a treatment, including side effects
- The “right” number of treatments, given that some patients are receiving fewer treatments because of COVID or the shortage
Dr. Kamat's prior two Bladder Cancer Matters podcast episodes include:
- Episode 1, What’s Up with Bladder Cancer and BCG, with Dr. Ashish Kamat
- Episode 4, The Slippery Slope of Bladder Cancer, Staging and Radical Cystectomies with Dr. Ashish Kamat
Disclaimer: The views and opinions expressed in this podcast are those of the speakers and guests and do not necessarily reflect the views or positions of the Bladder Cancer Advocacy Network.
Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.
In Episode 36 of "Bladder Cancer Matters," host Rick Bangs talks with BCAN patient advocate and bladder cancer survivor, James "Jim" Scott. Jim was diagnosed with bladder cancer in 2015 and is an active BCAN patient advocate, on the Patient Advisory Panel of the World Bladder Cancer Patient Coalition (WBCPC), and a consumer reviewer for the Congressionally Directed Medical Research Programs, among other roles.
Rick and Jim talk about:
- Jim's exposure to Agent Orange while serving in the Army in Vietnam
- How he got his diagnosis and what led him to go back to his doctor after being treated with antibiotics for some time
- How Jim discovered BCAN
- His relationship with fellow bladder cancer patient Roger as Roger faced the end of his life
- Why people of color face different health outcomes than others and what can be done about it
- Jim's work with the Black Men’s Cancer Action Council in Detroit, Michigan
Jim is so passionate about helping fellow bladder cancer patients that he gave out his personal cell phone number near the end of the episode. You can also read more about Jim's journey with bladder cancer in "Guess What Jim: You Have Some Urine in Your Blood."
Disclaimer: The views and opinions expressed in this podcast are those of the speakers and guests and do not necessarily reflect the views or positions of the Bladder Cancer Advocacy Network.
Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.
In Episode 35 of "Bladder Cancer Matters," host Rick Bangs talks with Dr. Lee Hugar of Lexington Urology at Lexington Medical Center in Columbia, South Carolina. Dr. Hugar is recognized nationally as an advocate for incorporating palliative care into urologic care, maximizing both cancer control and quality of life for patients with any stage of urologic cancer.
Read this episode’s transcript
Rick and Dr. Hugar discuss:
- What palliative care is and when a bladder cancer patient might need it
- That palliative care is appropriate for patients of any age, with any condition
- How it is different than hospice care
- Who can request palliative care
- The role of family members and loved ones
- How long a bladder cancer patient can receive palliative care
- Why more patients should consider palliative care
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In Episode 34 of "Bladder Cancer Matters," host Rick Bangs talks with Cindy Myers, RN BSN CWON. Cindy is a Certified Wound and Ostomy Nurse Specialist who has worked extensively with bladder cancer patients who undergone radical cystectomies.
Rick and Cindy discuss:
- What an ostomy is and the types of ostomies that are used by patients, especially bladder cancer patients
- The role that ostomy nurses play as patients choose their urinary diversion and prepare for surgery
- The most common questions that she gets from patients both before and after having their bladders removed
- What seems to surprise patients who receive an ileal conduit
- Sex and intimacy when having an ostomy
Rick and Cindy talk about these topics and much more in the podcast. If you would like more information about choosing a urinary diversion, you'll want to listen to Part 1 and Part 2 of the "How to Choose a Urinary Diversion" podcast with Dr. Robert Svatek.
Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.
Disclaimer: The views and opinions expressed in this podcast are those of the speakers and guests and do not necessarily reflect the views or positions of the Bladder Cancer Advocacy Network.
In Episode 34 of "Bladder Cancer Matters," host Rick Bangs talks with Cindy Myers, RN BSN CWON. Cindy is a Certified Wound and Ostomy Nurse Specialist who has worked extensively with bladder cancer patients who undergone radical cystectomies.
Rick and Cindy discuss:
- What an ostomy is and the types of ostomies that are used by patients, especially bladder cancer patients
- The role that ostomy nurses play as patients choose their urinary diversion and prepare for surgery
- The most common questions that she gets from patients both before and after having their bladders removed
- What seems to surprise patients who receive an ileal conduit
- Sex and intimacy when having an ostomy
Rick and Cindy talk about these topics and much more in the podcast. If you would like more information about choosing a urinary diversion, you'll want to listen to Part 1 and Part 2 of the "How to Choose a Urinary Diversion" podcast with Dr. Robert Svatek.
Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.
Disclaimer: The views and opinions expressed in this podcast are those of the speakers and guests and do not necessarily reflect the views or positions of the Bladder Cancer Advocacy Network.
This this podcast, "Bladder Cancer Matters" host Rick Bangs talks with Ms. Jackie Imboden. Jackie is a special advisor for military exposures for the Veterans Benefits Administration or VBA, which provides disability compensation benefits to millions of veterans and their survivors. In her current role, she serves as a key advisor on military environmental exposures for disability compensation claims.
Jackie and Rick discuss:
- How to apply for VA benefits
- What disability compensation is and who may qualify for it
- What a presumptive service connection is
- Where veterans can go for help when navigating the VA system
Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform like:
- Apple Podcasts
- Google Podcasts
- Spotify
Disclaimer: The views and opinions expressed in this podcast are those of the speakers and guests and do not necessarily reflect the views or positions of the Bladder Cancer Advocacy Network.
This this podcast, "Bladder Cancer Matters" host Rick Bangs talks with Ms. Jackie Imboden. Jackie is a special advisor for military exposures for the Veterans Benefits Administration or VBA, which provides disability compensation benefits to millions of veterans and their survivors. In her current role, she serves as a key advisor on military environmental exposures for disability compensation claims.
Jackie and Rick discuss:
- How to apply for VA benefits
- What disability compensation is and who may qualify for it
- What a presumptive service connection is
- Where veterans can go for help when navigating the VA system
Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform like:
- Apple Podcasts
- Google Podcasts
- Spotify
Disclaimer: The views and opinions expressed in this podcast are those of the speakers and guests and do not necessarily reflect the views or positions of the Bladder Cancer Advocacy Network.
In Episode 32, Part 2 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Robert Svatek. Dr. Svatek is one of the top five highest-volume bladder cancer surgeons in the United States, performing over 60 bladder removal procedures (cystectomies) yearly. Choosing a urinary diversion is among the most difficult decisions patients must make and Dr. Svatek provides valuable information about how to make an informed decision.
Rick and Dr. Svatek talk about:
- Common questions from patients who have to choose a urinary diversion
- A study showing how Hispanic patients don't always get the same diversions compared to their white counterparts
- The differences between open vs. robotic radical cystectomies
- Follow up medical care after receiving a urinary diversion
- What's new and exciting in patient care post radical cystectomy
You can also listen to Part 1 of this podcast with Rick and Dr. Svatek.
Disclaimer: The views and opinions expressed in this podcast are those of the speakers and guests and do not necessarily reflect the views or positions of the Bladder Cancer Advocacy Network.
Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.
In Episode 32, Part 2 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Robert Svatek. Dr. Svatek is one of the top five highest-volume bladder cancer surgeons in the United States, performing over 60 bladder removal procedures (cystectomies) yearly. Choosing a urinary diversion is among the most difficult decisions patients must make and Dr. Svatek provides valuable information about how to make an informed decision.
Rick and Dr. Svatek talk about:
- Common questions from patients who have to choose a urinary diversion
- A study showing how Hispanic patients don't always get the same diversions compared to their white counterparts
- The differences between open vs. robotic radical cystectomies
- Follow up medical care after receiving a urinary diversion
- What's new and exciting in patient care post radical cystectomy
You can also listen to Part 1 of this podcast with Rick and Dr. Svatek.
Disclaimer: The views and opinions expressed in this podcast are those of the speakers and guests and do not necessarily reflect the views or positions of the Bladder Cancer Advocacy Network.
Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.
In Episode 32, Part 1 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Robert Svatek. Dr. Svatek is one of the top five highest-volume bladder cancer surgeons in the United States, performing over 60 bladder removal procedures (cystectomies) yearly. Choosing a urinary diversion is among the most difficult decisions patients must make and Dr. Svatek provides valuable information about how to make an informed decision.
Rick and Dr. Svatek talk about:
- What a urinary diversion is
- What patients should consider when choosing a diversion
- Diversions that a patient could choose from and how are they constructed
- Rick's experience as a patient who had a neobladder constructed in 2006
- What to look for in a surgeon and how and how to find that person
- Advantages and disadvantages or robotic vs. open surgery to remove the bladder
Stay tuned for Part II of the conversation between Rick and Dr. Svatek.
Disclaimer: The views and opinions expressed in this podcast are those of the speakers and guests and do not necessarily reflect the views or positions of the Bladder Cancer Advocacy Network.
In Episode 32, Part 1 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Robert Svatek. Dr. Svatek is one of the top five highest-volume bladder cancer surgeons in the United States, performing over 60 bladder removal procedures (cystectomies) yearly. Choosing a urinary diversion is among the most difficult decisions patients must make and Dr. Svatek provides valuable information about how to make an informed decision.
Rick and Dr. Svatek talk about:
- What a urinary diversion is
- What patients should consider when choosing a diversion
- Diversions that a patient could choose from and how are they constructed
- Rick's experience as a patient who had a neobladder constructed in 2006
- What to look for in a surgeon and how and how to find that person
- Advantages and disadvantages or robotic vs. open surgery to remove the bladder
Stay tuned for Part II of the conversation between Rick and Dr. Svatek.
Disclaimer: The views and opinions expressed in this podcast are those of the speakers and guests and do not necessarily reflect the views or positions of the Bladder Cancer Advocacy Network.
In Episode 31 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Sima Porten, a urologic cancer surgeon at the University of California San Francisco, about how COVID changed the way that bladder cancer doctors and patients interact.
Rick and Dr. Porten talk about:
- Some of the experiences of patients during the COVID-19 pandemic
- How medical distancing impacted Dr. Porten personally as well as her colleagues
- How she used telemedicine during the pandemic
- The use of in-home tests for bladder cancer that used to be done in a doctor’s office
- Disparities in bladder cancer medical care
- How COVID impacted bladder cancer clinical trial operations
Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.
In Episode 31 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Sima Porten, a urologic cancer surgeon at the University of California San Francisco, about how COVID changed the way that bladder cancer doctors and patients interact.
Rick and Dr. Porten talk about:
- Some of the experiences of patients during the COVID-19 pandemic
- How medical distancing impacted Dr. Porten personally as well as her colleagues
- How she used telemedicine during the pandemic
- The use of in-home tests for bladder cancer that used to be done in a doctor’s office
- Disparities in bladder cancer medical care
- How COVID impacted bladder cancer clinical trial operations
Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.
In Episode 30 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Joshua Meeks. Dr. Meeks is the Section Chief of Robotic Surgery at the Jesse Brown VA Medical Center and an Associate Professor of Urology, Biochemistry and Molecular Genetics at the Northwestern University Feinberg School of Medicine.
Rick and Dr, Meeks talk about:
- Options available to veterans who are bladder cancer patients at the Jesse Brown VA Medical Center
- A link between bladder cancer and environments some veterans have been exposed to during their service
- Bladder cancer research being conducted at the VA
- A program in which the VA and the National Cancer Institute have partnered to make clinical trials more accessible (NAVIGATE)
Never miss and episode by subscribing to Bladder Cancer Matters in your favorite podcasting platform.
In Episode 29 of Bladder Cancer Matters, host Rick Bangs offers Part III of the three-part podcast with long time patient advocate and 2022 Beacon of Hope Award winner, Karen Godfrey. Karen is the organizer of the Southwest Florida Bladder Cancer Support Group and has been active with BCAN since nearly the very beginning.
Rick and Karen talk about her experience managing what was an in-person support group during COVID, the value of support networks and connecting the right people who have similar diagnoses, what some of her best meetings were and offers advice for others who are thinking about starting their own bladder cancer group.
You can listen to Part 1 of Rick's conversation with Karen here and Part II here. Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.
In Episode 29 of Bladder Cancer Matters, host Rick Bangs offers Part II of the three-part podcast with long time patient advocate and 2022 Beacon of Hope Award winner, Karen Godfrey. Karen is the organizer of the Southwest Florida Bladder Cancer Support Group and has been active with BCAN since the very beginning.
Rick and Karen talk about how she started the BCAN Inspire community and how the group has grown to more than 53,000 people today, how she deals with loss when a member of her group passes away, and the advice that she would give to someone who is considering starting a bladder cancer support group in their own community.
Karen and Rick also talk about effective ways to be your own advocate with doctors and other medical professionals.
You can listen to Part 1 of Rick's conversation with Karen here and stay tuned for Part III of this special three-part podcast.
Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.
Disclaimer: The views and opinions expressed in this podcast are those of the speakers and guests and do not necessarily reflect the views or positions of the Bladder Cancer Advocacy Network.
In Episode 29 of Bladder Cancer Matters, host Rick Bangs begins a three-part podcast with long time patient advocate and 2022 Beacon of Hope Award winner, Karen Godfrey. Karen is the organizer of the Southwest Florida Bladder Cancer Support Group.
Rick and Karen talk about her initial bladder cancer diagnosis in 2003 and how there was little to no information available about having her bladder removed. Karen was faced with some difficult decisions like choosing a urinary diversion, and unfortunately, her diagnosis came a full two years before BCAN was founded.
Karen ended up choosing an Indiana Pouch, a decision that she is happy with 19 years later and she explains what life has been like living with that urinary diversion.
Stay tuned for Part II of this special three-part podcast and never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.
In Episode 28 of Bladder Cancer Matters, host Rick Bangs talks with bladder cancer patient Cindy Lawson DeVore, who gives her unique perspective on her journey with the disease. Cindy has been a patient, her father is a retired urologist, and Cindy's mom was diagnosed with bladder cancer a short two months after she was. She has seen bladder cancer from multiple angles.
Cindy also speaks openly about the financial strain that bladder cancer takes, especially for those who require routine surveillance, including some expensive procedures.
Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.
Tom had a history of cancer in his family, but never expected what happened to him. After not feeling well for a while, Tom was diagnosed with both pancreatic cancer and bladder cancer. In this episode, he talks with BCAN associate Joslyn Brown about his two cancer journeys and offers an optimistic and uplifting perspective, particularly about his bouts with bladder cancer.
Tom is also active with BCAN's Survivor to Survivor program matching newly diagnosed bladder cancer patients with trained volunteers who lend a sympathetic ear as well as what BCAN has meant to him.
In Part 2 of two part Episode 24 of Bladder Cancer Matters, host Rick Bangs interviews Dr. Bernard Bochner about the findings from a quality of life survey of bladder cancer patients after they have their bladders removed (radical cystectomy).
Rick and Dr. Bochner discuss life after a radical cystectomy and they also talk about:
- How recovery from bladder removal surgery can be impacted by how healthy patients were leading up to the surgery
- How the first six weeks after the surgery can be very difficult for patients
- That some patients experience a drop off in sexual function, both men and women
- What other factors of quality of life Dr. Bochner's patient survey addressed
- How bladder removal surgery can impact patients' physical and mental health
Click here to listen to Part 1 of Rick's conversation with Dr. Bochner.
In this very special episode of Bladder Cancer Matters, host Rick Bangs talks with Karen Sachse. Karen has a one-in-a-million perspective on bladder cancer because she is an oncology nurse, a nurse navigator, a bladder cancer survivor and was a caregiver to her husband, Roger, who passed away from the disease. She is also a very active patient advocate with the Bladder Cancer Advocacy Network.
Rick and Karen talk about:
- Her bladder cancer diagnosis and treatment
- Caring for her husband when he got bladder cancer
- How her late husband benefited from BCAN’s programs and services
- Why she participates in the Walks to End Bladder Cancer and thinks that others should too
- How to get involved with BCAN
Never miss an episode of Bladder Cancer Matters by searching for it on your favorite podcasting platform and clicking the "subscribe" button.
One of Season 1's most popular episodes was What You Need to Know About COVID Vaccines and Bladder Cancer with Dr. Seth Lerner and Dr. Laila Woc-Colburn. Given the changing nature of COVID transmission and the availability of vaccinations, Drs. Lerner and Woc-Colburn have updates about vaccinations for patients in the bladder cancer community.
Dr. Seth Lerner of Baylor College of Medicine, a bladder cancer doctor, and Dr. Laila Woc-Colburn, an infectious disease doctor at Emory Healthcare, tackle these questions and more with "Bladder Cancer Matters" host Rick Bangs.
They also discuss:
- What is happening with COVID now in the U.S.
- The safety data available for mRNA vaccines
- The low risk of vaccination for bladder cancer patients
- Risks of getting COVID in a medical facility
- Why delaying bladder cancer treatment because of COVID concerns is not advisable
- Timing of COVID vaccination with bladder cancer treatment
In Part 1 of two part Episode 24 of Bladder Cancer Matters, host Rick Bangs interviews Dr. Bernard Bochner.
Rick and Dr. Bochner discuss the findings of a quality of life survey conducted with more than 400 patients who underwent a radical cystectomy. Dr. Bochner and his team studied the importance of selecting the best urinary diversion for each patient and measures of his or her urinary and bowel function, sexual function and mental and emotional health.
Part 2 of their conversation will be published soon.
In Episode 23 of Bladder Cancer Matters, host Rick Bangs talks with Stella Koutros and Molly Jacobs about how environmental exposure to chemicals is linked to bladder cancer. Stella Koutros, Ph.D., M.P.H. is an Investigator in the Occupational and Environmental Epidemiology Branch of the National Cancer Institute and Molly Jacobs, M.P.H. is a Senior Research Associate and Project Manager at the Lowell Center for Sustainable Production and UMass Lowell.
Rick, Stella and Molly discuss how evidence supports a correlation between rates of bladder cancer and exposure to environmental chemicals. They also cover:
- Occupational exposures are a leading risk factor for bladder cancer, second only to smoking
- How certain jobs pose a greater risk of developing bladder cancer based upon the materials you touch or inhale
- What people can do if they find themselves at risk for environmental exposure to carcinogens
In Episode 22 of Bladder Cancer Matters, host Rick Bangs talks with Drs. Phil Abbosh and Max Kates about bladder cancer biomarkers. Dr. Abbosh is a urologic oncologist at the Fox Chase Cancer Center in Philadelphia. Dr. Kates is an assistant professor of urology and oncology with the Brady Urological Institute at Johns Hopkins in Baltimore.
Rick and Drs. Abbosh and Kates talk about what biomarkers are and how they are relevant to bladder cancer. A biomarker is a biological molecule found in blood, other body fluids, or tissues that is a sign of a normal or abnormal process, or of a condition or disease. A biomarker may be used to see how well the body responds to a treatment for a disease or condition like bladder cancer.
Click here to read the transcript.
In Episode 21 of Bladder Cancer Matters, host Rick Bangs talks with Kimberly Papay Rogers, PhD, the Director of Research at the Cancer Support Community. Rick and Dr. Rogers discuss her work on the Cancer Experience Registry, an online research survey that helps enhance cancer care, improve health care policies, and ensure support services better reflect the needs of people affected by cancer.
They also discuss:
- What a cancer registry is
- Why bladder cancer was added to the registry
- Who can and should participate in the bladder cancer patient survey
- The findings' expected impact on bladder cancer treatment and experiences
In this special 2022 World Cancer Day episode of Bladder Cancer Matters, BCAN's Director of Communications and Marketing talks with Alex Filicevas, the executive director of the World Bladder Cancer Patient Coalition (WBCPC).
Mark and Alex talk about how bladder cancer is a global health issue and the role that the WBCPC takes in helping to build infrastructure to help countries support patients and caregivers.
In this episode of Bladder Cancer Matters, host Rick Bangs talks with Dr. Robert Svatek about how bladder cancer patients can navigate the ongoing BCG shortage. Rick and Dr. Svatek discuss:
- What BCG is and how it is used
- What the different strains are
- Why there is a BCG shortage
- What to do if your urologist doesn't have BCG
- Alternatives to BCG
- The trial Dr. Svatek is doing about the Japanese strain
- The future of BCG treatments
Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcast platform, including Apple Podcasts, Google Podcasts and Spotify.
In this special episode of Bladder Cancer Matters, BCAN associate Joslyn Brown has a frank and uplifting conversation with Vicki S., who declares herself to be the “luckiest ileal conduit person in the world.” Joslyn and Vicki talk about:
- The symptoms that Vicki had well before her bladder removal surgery
- How relieved she was to have her bladder taken out
- What her recovery was like
- How happy she is to be alive and doing well after her surgery
We also encourage you to visit our web site for additional information about bladder removal surgery (radical cystectomy) as well as life with a urinary diversion.
- What is a radical cystectomy?
- Understanding Muscle-Invasive Bladder Cancerhttps://bcan.org/understanding-bladder-cancer-muscle-invasive-bladder-cancer-mibc/ (webinar)
- The Psychosocial Aspect of Bladder Removal Surgery (webinar)
In this special episode released on November 19, 2021 - the day of the Great American Smokeout - host Rick Bangs and Dr. Richard Matulewicz, a urologic oncologist and an assistant professor at Memorial Sloan Kettering Cancer Center, talk about smoking and bladder cancer. They discuss:
- Who is smoking in 2021
- The fact that more than half of all bladder cancer cases can be directly tied to the effects of smoking - second only to lung cancer
- The types of bladder cancer that smokers tend to get
- How smoking impacts bladder cancer treatments
- That quitting smoking requires a team of people to help - it is not just up to the smoker
- Success factors in quitting smoking
- What Dr. Matulewicz would tell a patient who is trying to improve their smoking cessation results
These and other episodes by, for and about the bladder cancer community are available on the BCAN web site as well as on your favorite podcasting platform.
Episode 16, Part 2 of the Bladder Cancer Matters podcast is about the unsung heroes of a bladder cancer patient’s journey: his or her caregivers. Rick’s special guest in this episode is Beáta Baker, who cared for her husband, Steven, as he battled his unexpected diagnosis and subsequent bladder removal surgery (radical cystectomy).
In the second of a two-part podcast and an engaging and personal conversation, Beáta describes her journey and experiences as a caregiver. Rick and she discuss:
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What was the recovery period like for your husband after receiving a neobladder?
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What roles did you play as caregiver?
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What roles have you played over the last ten years?
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What advice might you give to another bladder cancer patient caregiver?
Episode 16, Part 1 of the Bladder Cancer Matters podcast is about the unsung heroes of a bladder cancer patient’s journey: his or her caregivers. Rick’s special guest in this episode is Beáta Baker, who cared for her husband, Steven, as he battled his unexpected diagnosis and subsequent bladder removal surgery (radical cystectomy).
In an engaging and personal conversation, Beáta describes her journey and growth as a caregiver. Rick and she discuss:
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What was it like to be Steven’s caregiver at different points in his journey, like diagnosis, treatment, recovery and planning?
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How did you and Steven decide upon right doctor, the right hospital, and the right treatment?
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What roles did you play during treatment planning?
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What were some of the challenging and rewarding parts of being a caregiver?
Beáta Jachulski Baker Episode 16, Part 2 pf Rick’s conversation with Beáta will be available soon.
Episode 15 of the Bladder Cancer Matters podcast is about a challenge facing many bladder cancer survivors: knowing that chemotherapy is the recommended treatment but finding out that it is not an option available to them. Its special guest is Dr. Guru Sonpavde, the Bladder Cancer Director at the Dana-Farber Cancer Institute in Boston.
In this podcast, Rick and Dr. Sonpavde discuss:
- What are the different types of chemotherapy for bladder cancer?
- Why are some more effective than others?
- therapy is the standard treatment for many muscle-invasive and metastatic bladder cancer patients, but for some patients, this is not even an option. In bladder cancer, who gets platinum chemo?
- Suppose I can’t have chemo. Can I have surgery? Would some of the things that make me ineligible for chemo make me ineligible for surgery?
- f I am ineligible, what are my alternatives today? What are their rates of success?
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You can also hear past episodes here.
Episode 14 is a reprise of a very popular webinar BCAN did in 2019 about how bladder cancer patients can prepare themselves for chemotherapy and surgery. Its guest is Dr. Sarah Psutka of the University of Washington. Dr. Psutka is a urologic oncologist specializing in bladder, renal, testicular and prostate cancer at the Seattle Cancer Care Alliance and also Assistant Professor of Urology at the University of Washington School of Medicine.
In this podcast, you’ll hear Dr. Psutka discuss what the diagnosis of bladder cancer feels like and then she will offer a step-by-step guide about how patients can take control of some of their bladder cancer treatments.
In this special Episode 13 of Bladder Cancer Matters, patient Margo W. describes her unusual journey with bladder cancer. She was diagnosed with an aggressive form of the disease at the time when COVID began to severely impact patients throughout the U.S. Her type of bladder cancer was discovered only after seeking a second opinion, and the second set of doctors learned that her cancer was fast growing and dangerous.
In a personal and moving story, Margo recants her battle with bladder cancer and because of COVID, how she had to face much of the treatments and surgery alone.
In Episode 12 of Bladder Cancer Matters, Rick Bangs's special guest is Samuel L. Washington III, MD, MAS, of the University of California San Francisco Department of Urology. Dr. Washington is Assistant Professor of Urology, Goldberg-Benioff Endowed Professorship in Cancer Biology, and a recipient of BCAN's Young Investigator Award.
Rick and Dr. Washington discuss:
- Why should patients get a second opinion?
- Are there ever good reasons to NOT get a second opinion?
- Will my doctor support me getting a second opinion?
- What do you/should you tell the patient as a clinician when you hear them say they want to do this?
- What if the first and second opinions disagree?
In Episode 11 of Bladder Cancer Matters, Rick Bangs's special guest is Yair Lotan, M.D., a Professor of Urology and the Chief of Urologic Oncology, at UT Southwestern Medical Center. He is also the Medical Director of the Urology Clinic at UT Southwestern and Parkland Health and Hospital System. Dr. Lotan also serves on BCAN's Scientific Advisory Board.
Rick and Dr. Lotan discuss:
- When do urologists use a cystoscopy and why?
- What are the different types of light used in a cystoscopy, like white light, blue light and narrow band imaging?
- Is there anything that urologists can do to ease the discomfort of a cystoscopy?
- What is an enhanced cystoscopy?
- Should I shop around for different types of imaging?
In Episode 10 of Bladder Cancer Matters, Rick Bangs's special guest is Dr. Alexander Kutikov, MD, FACS of Fox Chase Cancer Center in Philadelphia. Dr. Kutikov is the Chief of the Division of Urology and Urologic Oncology.
Rick and Dr. Kutikov discuss:
- What can a cystoscopy tell you about the bladder cancer stage?
- Is a blue light cystoscopy better than a white light?
- What about x-rays and CT scans? Can they give you different information than a cystoscopy?
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In this Part 3 of 3 of Episode 9 of Bladder Cancer Matters, host Rick Bangs chats with Jill Hamilton-Reeves, PhD, RD, CSO. Dr. Reeves's research is focused on nutrition and cancer prevention, management, and survivorship, with specific attention on genitourinary cancers.
Rick and Dr. Reeves discuss:
- The importance of nutritional guidance right after bladder cancer surgery
- Why accredited cancer centers are required to have a nutritionist on staff
- What patients who have had a radical cystectomy need to do regarding diet and nutrition right after surgery
In this Part 2 of 3 of Episode 9 of Bladder Cancer Matters, host Rick Bangs chats with Jill Hamilton-Reeves, PhD, RD, CSO. Dr. Reeves's research is focused on nutrition and cancer prevention, management, and survivorship, with specific attention on genitourinary cancers.
Rick and Dr. Reeves discuss:
- How good nutrition may help patients receiving immunotherapy, either by increasing the effectiveness of their immunotherapy or making the side effects more tolerable
- How fitness and nutrition before a radical cystectomy play into the results from the surgery including any complications
- How you can lose muscle - not fat - in the days after bladder cancer surgery
In this Part 1 of 3 of Episode 9 of Bladder Cancer Matters, host Rick Bangs chats with Jill Hamilton-Reeves, PhD, RD, CSO. Dr. Reeves is a registered and licensed dietitian with doctoral training in translational and clinical nutrition science. Dr. Reeves's research is focused on nutrition and cancer prevention, management, and survivorship, with specific attention on genitourinary cancers.
Rick and Dr. Reeves discuss:
- The relationship between nutrition and bladder cancer, and how that evolves at various points in the bladder cancer journey
- How being severely overweight can harm patients before, during and after treatment
- How to deal with lack of an appetite when receiving chemotherapy.
In Episode 8 of "Bladder Cancer Matters," host Rick Bangs interviews Dr. Matthew Milowsky about genetics, genomics and personalized medicine for bladder cancer treatment.
Dr. Milowsky is the Section Chief, Genitourinary Oncology; Co-Director, Urologic Oncology Program University of North Carolina School of Medicine. Dr. Milowsky is also the chair of BCAN's Bladder Cancer Genomics Consortium.
In this episode, Rick and Dr. Milowsky discuss:
- What the Bladder Cancer Genomics Consortium is and what it does
- What an "exceptional responder" is is bladder cancer
- The importance of clinical studies to the future of bladder cancer
- How philanthropy propels bladder cancer medical research
In this episode, Bladder Cancer Matters host Rick Bangs and guest and BCAN c-founder Diane Zipursky Quale discuss the fact that, despite significant advancements in the past 10 years in the understanding of the biology of bladder cancer and the development and approval of many new therapies, bladder cancer in 2021 remains a deadly disease with low public awareness, inequitable and inadequate funding, and a limited number of effective treatment options.
Rick and Diane also discuss the issue that bladder cancer research advances should be focused on improving the quality of life for patients from the time of initial diagnosis through the end of life, with an emphasis on improving the ability to stratify patients into the appropriate risk categories for recurrence and invasion and developing effective treatments to eliminate the need for bladder removal.
In this episode of "Bladder Cancer Matters," host (and bladder cancer survivor) Rick Bangs interviews Carlos Glender, a non-muscle invasive bladder cancer survivor. Carlos had a Stage 1 high-grade bladder cancer.
Rick and Carlos talk about the symptoms that Carlos experienced that led him to go to his doctor, what it was like to receive a bladder cancer diagnosis, being treated with BCG in a time when the drug is in short supply, what it was like to attend a BCAN Bladder Cancer Summit for Patients and Families, as well as the importance of maintaining a positive attitude.
This podcast was made possible by FerGene and Merck. We are grateful for their support.
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Host Rick Bangs interviews Dr. Elizabeth Plimack of Fox Chase Cancer Center, where she is the Chief, Division of Genitourinary Medical Oncology. Dr. Plimack is also the Chair of the Bladder Cancer Advocacy Network's (BCAN's) Scientific Advisory Board.
Rick and Dr. Plimack talk about:
- The importance of supporting bladder cancer research
- The role of BCAN's Scientific Advisory Board
- What the Bladder Cancer Think Tank is
- Resources that BCAN has for bladder cancer patients, caregivers, researchers and doctors.
Today's episode is sponored by Merck and we are grateful for their support.
In the latest "Bladder Cancer Matters" podcast, host Rick Bangs interviews Dr. Ashish Kamat about the the "slippery slope" of treating high grade bladder cancer tumors that sometimes leads to bladder removal surgery otherwise known as a radical cystectomy. Dr. Kamat is a Professor (Tenure) of Urology and Director of Urologic Oncology Fellowship at MD Anderson Cancer Center, and a graduate of the AUA Leadership Program. Dr. Kamat also serves on BCAN's Scientific Advisory Board.
- What does grade mean for bladder cancer tumors?
- Can low grade tumors become high grade?
- What is tumor staging?
- How can patients be confident that they are getting all of the information they need before a radical cystectomy?
- At what point would you encourage a patient to have his or her bladder removed?
Dr. Kamat can be found on Twitter at @UroDocAsh. Please also feel free to reach out to BCAN if you would like to get in touch with Dr. Kamat.
This episode is sponsored by FerGene and Merck. We are grateful for their support.
The COVID-19 pandemic has made a difficult disease even more complicated for bladder cancer patients. Should those undergoing treatment for the disease get vaccinated before having a procedure or surgery? What about getting a vaccine either before, during or after chemotherapy?
Dr. Seth Lerner of Baylor University, a bladder cancer doctor, and Dr. Laila Woc-Colburn, an infectious disease doctor at Emory Healthcare, tackle these questions and more.
The two doctors also discuss:
- Does the vaccination reduce or completely eliminate one's risk of contracting the virus?
- Is one type of vaccine better?
- How can patients minimize the risk of a COVID vaccination interfering with their bladder cancer treatment?
- How should patients time their vaccination with their treatment schedules?
- Are there COVID vaccine side effects that are similar to bladder cancer treatment side effects?
- Can BCG reduce the risk of getting COVID?
This podcast episode was brought to you by FerGene and Merck, proud sponsors of Bladder Cancer Matters.
In Episode 2 of the "Bladder Cancer Matters" podcast, host Rick Bangs interviews Dr. Heather Honoré Goltz in Part 2 of a two-part episode. Rick and Dr. Goltz discuss what oncology social work is and how it might be helpful to bladder cancer patients. Topics covered in the podcast include:
- How to find an oncology social worker to work with
- Benefits for bladder cancer patients of working with an oncology social worker
- When in your cancer journey to start working with this person
This episode is sponsored by FerGene, a new gene therapy company dedicated to creating and delivering innovative solutions for bladder cancer.
The Twitter account of the University of Houston Downtown is @UHDowntown.
In Episode 2 of the "Bladder Cancer Matters" podcast, host Rick Bangs interviews Dr. Heather Honoré Goltz in Part 1 of a two-part episode. Rick and Dr. Goltz discuss what oncology social work is and how it might be helpful to bladder cancer patients. Topics covered in the podcast also include:
- What oncology social work is and how it is different than other types of social work
- How an oncology social worker helpful in bladder cancer
This episode is sponsored by FerGene, a new gene therapy company dedicated to creating and delivering innovative solutions for bladder cancer.
Read the podcast transcript here.
In the inaugural "Bladder Cancer Matters" podcast, host Rick Bangs interviews Dr. Ashish Kamat about the state of BCG in bladder cancer treatment. Dr. Kamat is a Professor (Tenure) of Urology and Director of Urologic Oncology Fellowship at MD Anderson Cancer Center, and a graduate of the AUA Leadership Program. Dr. Kamat also serves on BCAN's Scientific Advisory Board.
In this episode, Rick and Dr. Kamat discuss what BCG is, how it is used, why there is a BCG shortage and what some therapeutic alternatives are.
Dr. Kamat can be found on Twitter at @UroDocAsh.
This episode is sponsored by FerGene, a new gene therapy company dedicated to creating and delivering innovative solutions for bladder cancer.