The Parkinson's Podcast: Recent Episodes

Davis Phinney Foundation

This podcast is for people with Parkinson's, Parkinson's care partners and Parkinson's providers. You'll hear from movement disorder specialists, neurologists, psychiatrists, physical and occupational therapists, complementary therapists, people with Parkinson's and Parkinson's care partners on how to live well with Parkinson's today.

Learn more about Parkinson's and find support: https://dpf.org

For many people with Parkinson's, speech and swallowing issues are among the more difficult symptoms of Parkinson's. Having speech and swallowing challenges can be isolating and lead to complications like aspiration.

In this episode of The Parkinson's Podcast, listen in as Kevin Lockette, Neal Tomita, and Cheryl Lippman describe their experience with the Harmonica Parkinson's Project and how playing the harmonica can help people with Parkinson's improve their speech and swallowing while also connecting with their community.

For more about the Harmonica Parkinson's Project visit https://www.harmonicaparkinsonsproject.com/

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Learn more about Parkinson's and find support: https://dpf.org

In this episode of the Parkinson's Podcast, Chris Krueger talks with Linda English, David Dietz, and Rachel Ritter about cycling on gravel roads while living with Parkinson's.

This podcast was produced in Partnership with Dirty Free Hub, a non-profit organization that provides information about gravel cycling routes in 10 states, British Columbia, and Tasmania. Learn more about Dirty Free Hub at https://dirtyfreehub.org/.

The following is a list of equipment our guests recommended:

Dropper post for ease of stopping and starting
Rearview bike radar for safety when sharing roads with cars
A rearview bicycle mirror can be placed on the handlebars or helmet
Flat handlebars can help riders stay more upright

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Learn more about Parkinson's and find support: https://dpf.org

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Soccer and Parkinson's may not seem like an obvious connection—but for a growing number of people around the world, the beautiful game offers far more than exercise.

In this episode of the Parkinson's Podcast, Chris Krueger talks with Keith Sides about his experience participating in a Walking Soccer for Parkinson's program. Together, they discuss balance, coordination, confidence, community, and the value of trying something new after a Parkinson's diagnosis.

Whether you're a lifelong soccer fan or have never kicked a ball before, this conversation explores how finding enjoyable ways to move can support living well with Parkinson's.

Read the blog post about the Walking Soccer for Parkinson's program and find links to other resources about walking soccer: https://dpf.org/soccer-and-parkinsons

Learn more about Parkinson's and find support: https://dpf.org

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Davis Phinney Foundation, Copyright 2026

Learn more about Parkinson's and find support: https://dpf.org In part three of this three-part series on Parkinson's and the senses, the panel covers vision changes like difficulty driving at night, light sensitivity, depth perception, and how DBS adjustments can affect focus. They also discuss vertigo, dizziness, and the urinary urgency that many people with Parkinson's experience but rarely talk about, including practical strategies like pre-boarding flights and planning bathroom access.

Sign up for updates on webinars, events, and resources for the Parkinson's community:

https://dpf.org/newsletter-signup

Season 7 Episode 8

Davis Phinney Foundation, Copyright 2026

Learn more about Parkinson's and find support: https://dpf.org In part two of this three-part series on Parkinson's and the senses, the panel discusses how Parkinson's affects hearing, touch, and the ability to handle busy environments. They cover brain processing sound slower, overstimulation in noisy and crowded places, proprioception and not knowing where your body is in space, the challenge of touchscreens and keypads, and how loss of dexterity has directly impacted their careers.

Sign up for updates on webinars, events, and resources for the Parkinson's community:

https://dpf.org/newsletter-signup

Season 7 Episode 7

Davis Phinney Foundation, Copyright 2026

Learn more about Parkinson's and find support: https://dpf.org In part one of this three part series on Parkinson's and the senses, Amber, Chris, Sree, Kat, Stan, Larry, and Kristi talk about how Parkinson's affects the senses we don't always think about. The panel digs into smell and taste, from olfactory hallucinations and not knowing if you smell to craving stronger flavors, safety concerns around spoiled food and gas leaks, and digestive changes that come along for the ride.

Sign up for updates on webinars, events, and resources for the Parkinson's community:

https://dpf.org/newsletter-signup

Season 7 Episode 6

Davis Phinney Foundation, Copyright 2026

Learn more about Parkinson's and find support: https://dpf.org

In the series finale of the Parkinson's Podcast Unfiltered, hosts Heather Kennedy, Kat Hill, and Chris Krueger answer audience questions, including how to handle well-meaning strangers who grab you when you're frozen or struggling to walk. The conversation turns to what they're each grateful for after years of living with Parkinson's, from the people they've met to the deeper lessons in patience, self-compassion, and acceptance. They also open up about why the podcast has become harder to sustain as their own symptoms progress. It's an honest, heartfelt farewell that captures everything this show has been about.

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Season 7 Episode 5

Davis Phinney Foundation, Copyright 2026

Learn more about Parkinson's and find support: https://dpf.org

In this episode, Kat's husband Ken joins the panel to talk through the realities of planning ahead, from living trusts and hard family conversations to knowing when your plan needs to change. The conversation also takes on the language of "fighting" Parkinson's, and why both Kat and Ken have moved toward something more like partnership with the disease than battle. Along the way, the panel gets into the tension between independence and asking for help, and what honest communication actually looks like in a relationship shaped by chronic illness.

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Learn more about the Davis Phinney Foundation for Parkinsons's: https://dpf.org

Season 7 Episode 4

Learn more about Parkinson's and find support: https://dpf.org

In part two, Dr. Bas Bloem and Polly Dawkins tackle some of the most pressing topics in the Parkinson's community. They address sexual health, levodopa phobia head-on, share breakthrough research on intermittent hypoxia, and discuss the overlooked connection between gut health and medication effectiveness. This episode offers both cutting-edge science and practical guidance for living well with Parkinson's.

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Podcast Produced by Sia Urroz, Davis Phinney Foundation

Learn more about Parkinson's and find support: https://dpf.org

In this first part of our two-part conversation, Dr. Bas Bloem and Polly Dawkins discuss why a holistic approach to Parkinson's care matters. They explore the latest evidence on exercise as a disease-modifying treatment, the critical role of supplements and nutrition, and how optimizing every aspect of your life—from sleep to stress management—can transform your quality of life. Whether you're newly diagnosed or living with Parkinson's for years, this conversation offers practical, evidence-based strategies for taking control of your care.

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Podcast Produced by Sia Urroz, Davis Phinney Foundation

In this episode of the Parkinson's Podcast Unfiltered, the group is joined by a special guest to respond to a listener's question about how their relationship with Parkinson's has changed over time. Together, they talk through the different ways they have named and understood Parkinson's since diagnosis, including ideas of fighting, endurance, acceptance, and daily negotiation.

The conversation moves between personal stories, practical coping strategies, and reflections on how identity, energy, and priorities shift as symptoms progress. Rather than settling on one way of framing Parkinson's, the episode explores how those frames evolve. Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Learn more about the Davis Phinney Foundation for Parkinsons's: https://dpf.org

In this episode of the Parkinson's Podcast, Chris Krueger talks with a clinical research team from University of Toronto about how the clinical trial process works, how participants can have the best experience in a trial, and why a team approach to trials is necessary and good.

In this episode, you'll hear from Dr. Alfonso Fasano, Dr. Arturo Abundes Corona, Sara Naghdlou, a clinical research coordinator with a background in biomedical engineering; and Yu-Yan Poon, a registered nurse who supports trials at the University of Toronto. This episode is sponsored by BlueRock Therapeutics.

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Learn more about the Davis Phinney Foundation for Parkinsons's: https://dpf.org

Occupational therapist and aging-in-place expert Carol Chiang joins us to discuss her new book, Age in Place or Find a New Space. Carol explains why meaningful interactions—not just safety—belong at the center of planning for life with Parkinson's, and how "the choices you make today become the consequences you live with tomorrow."

In this podcast episode, Carol discusses the importance of early-stage steps like decluttering and fall-prevention basics, practical visual cueing for freezing, how to break home updates into manageable pieces, and honest caregiver conversations. Carol also shares how to think about modifying a home versus considering a move, and why planning early protects both independence and connection. A grounded, hopeful conversation about creating a home that supports who you are and how you want to live.

Learn more about Carol and her work, and find her book at: https://www.EvolvingHomes.com

Explore the OT-curated home-modification resource she mentioned: Ask Samie: https://www.asksamie.com/

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Learn more about the Davis Phinney Foundation for Parkinsons's: https://dpf.org

GUEST BIO

Carol Chiang is an Occupational Therapist and founder of Evolving Homes®, specializing in aging-in-place, age tech, and smart home solutions. With 25 years of experience, she helps individuals and families decide whether to "Age in Place" or "Find a New Space®," and supports them through the home changes required at each stage of Parkinson's.

A Certified Parkinson's Wellness Recovery therapist and former Olympic-caliber athlete, Carol teaches the importance of planning ahead, using exercise as medicine, and building habits that protect long-term independence. She consults with organizations, startups, and universities worldwide, and has contributed to AARP, the Davis Phinney Foundation, the National Kitchen & Bath Association, and international aging conferences.

In this episode of the Parkinson's Podcast Unfiltered, hosts Heather Kennedy and Kat Hill, along with Chris Krueger, honor their late friend Wayne Gilbert and explore the challenging distinction between fatigue and apathy. They offer practical advice for managing energy levels, including the counterintuitive insight that more movement can actually reduce tiredness, and share tips for grandparents navigating visits with multiple grandchildren. The conversation also tackles personal grooming struggles, with candid solutions like wash-and-go haircuts, dry shampoo, and simplified self-care routines that make daily life more manageable.

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

In this episode of the Parkinson's Podcast, learn about gene therapy for Parkinson's, including common misunderstandings and ongoing research about it.

This episode contains some technical terms and abbreviations. For your convenience, here is a short list of definitions that might be helpful.

AADC – Aromatic L-Amino Acid Decarboxylase: An enzyme that helps make dopamine (not a rock and roll band)

AAV – Adeno-Associated Virus: A harmless virus used to deliver gene therapy

CDNF – Cerebral Dopamine Neurotrophic Factor: A protein that helps keep dopamine-producing cells healthy

DBS – Deep Brain Stimulation: A surgical treatment that uses electrical signals to help control symptoms

GAD – Glutamic Acid Decarboxylase: An enzyme that helps rebalance brain circuits.

GBA – A gene linked to Parkinson's risk

GCH1 – GTP Cyclohydrolase 1: An enzyme that supports dopamine production.

GDNF – Glial Cell Line-Derived Neurotrophic Factor: A protein that helps protect brain cells

LRRK2 – A gene linked to Parkinson's risk

PARK2 – A gene linked to Parkinson's risk

PET – Positron Emission Tomography: A brain scan that shows chemical activity

PINK1 – A gene linked to Parkinson's risk

SNCA – A gene linked to Parkinson's risk

More information about Gene Therapy for Parkinson's is available here:

https://davisphinneyfoundation.org/blog/gene-therapy-parkinsons/

https://youtu.be/n2KNtRK3SIk

https://youtu.be/v9mJiO4EEag

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

In this episode of The Parkinson's Podcast, Foundation Program Manager Beau Boughamer talks with neurologist Vanessa Hinson and Helen Power, a person living with Parkinson's, about the sport that's sweeping the country—and transforming life with Parkinson's.

Dr. Hinson, a movement disorder specialist at the Medical University of South Carolina, shares how pickleball supports balance, coordination, confidence, and connection through her eight-week program for people with Parkinson's. Helen describes how the game brought her movement, joy, and community, proving that staying active can also mean having fun. Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/newsletter-signup

In this episode, we talk with Dr. Aaron Haug about what the terms ON and OFF mean in the context of Parkinson's, what ON-OFF fluctuations are, and how to work with your doctor to help manage them. Dr. Haug is a movement disorder specialist based in Englewood, Colorado.

Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/newsletter-signup

Watch Aaron Haug's video about Tremors and Dyskinesias here: https://youtube.com/shorts/jcjNOnaA0as?feature=share

This episode is sponsored by BlueRock Therapeutics. Learn more here: https://www.bluerocktx.com

Aaron Haug, MD, is a neurologist and movement disorder specialist in Colorado. He earned his bachelor's degree at Creighton University and his medical degree at the University of Kansas. He completed a neurology residency and a fellowship in movement disorders at the University of Colorado, including a year as chief resident.

Sign up for updates on webinars, events, and resources for the Parkinson’s community—delivered to your inbox. https://dpf.org/newsletter-signup

In the final episode of this three-part series, Connie Carpenter Phinney and Dr. Mark Mapstone explore the emotional and cognitive changes that can occur as Parkinson’s progresses. They talk openly about issues like apathy, anxiety, executive function decline, and how these changes can affect relationships, communication, safety, and daily life—including decisions around driving and independence. While the conversation acknowledges grief, frustration, and loss, it also offers insight, practical advice, and strategies for living well through change. This episode is for anyone facing or seeking to understand the emotional and cognitive realities of Parkinson’s—people diagnosed, care partners, and clinicians alike.

Connie Carpenter Phinney is a co-founder of the Davis Phinney Foundation and has been her husband’s care partner for over 25 years. Her background in science combined with her lived experience and curiosity helped shape this conversation with neuropsychologist Dr. Mark Mapstone. Connie is the host of the Foundation’s Care Partner Meetup, a monthly virtual meetup for Parkinson’s care partners held the first Tuesday of each month. To attend the meetup, sign up here: https://davisphinneyfoundation.org/events/parkinsons-care-partner-meetup/

Dr. Mark Mapstone is Professor of Neurology at the University of California, Irvine School of Medicine. He is a member of the UCI Institute for Memory Impairments and Neurological Disorders and a Fellow of the UCI Center for Neurobiology of Learning and Memory. His research focuses on pre-clinical detection of neurological disease using cognitive tests and biomarkers obtained from blood. He has a special interest in developing strategies to maintain successful cognitive aging. In the clinic, he specializes in cognitive assessment of older adults with suspected brain disease. Dr. Mapstone earned a PhD in Clinical Psychology at Northwestern University and completed fellowship training in Neuropsychology and Experimental Therapeutics at the University of Rochester. He received a Career Development Award from the National Institute on Aging and his research has been funded by the National Institutes of Health, the Michael J. Fox Foundation, and the Department of Defense.

This content is possible thanks to the generosity of our listeners. Every day more people are diagnosed with Parkinson’s, and this means our work is more important than ever. Please support our work by visiting https://dpf.org/donate.

Interested in our Living with Parkinson's Meetup, Care Partner Meetup, or Live Well Today Webinars? Learn how to join. https://dpf.org/webinars

Sign up for updates on webinars, events, and resources for the Parkinson’s community—delivered to your inbox. https://dpf.org/newsletter-signup

In this episode, Connie and Dr. Mapstone dive into the role of neuropsychology in Parkinson’s care. They explain what a neuropsychological evaluation is, what to expect during an office or virtual visit, and how results can help guide treatment, daily planning, and care strategies. This episode also discusses why someone might be referred, how testing works, and what insights it can offer for both individuals and families. This content is possible thanks to the generosity of our listeners. Every day more people are diagnosed with Parkinson’s, and this means our work is more important than ever. Please support our work by visiting https://dpf.org/donate. Connie Carpenter Phinney

Connie Carpenter Phinney is a co-founder of the Davis Phinney Foundation and has been her husband’s care partner for over 25 years. Her background in science combined with her lived experience and curiosity helped shape this conversation with neuropsychologist Dr. Mark Mapstone. Connie is the host of the Foundation’s Care Partner Meetup, a monthly virtual meetup for Parkinson’s care partners held the first Tuesday of each month. To attend the meetup, sign up here: https://davisphinneyfoundation.org/events/parkinsons-care-partner-meetup/

Dr. Mark Mapstone

Mark Mapstone is Professor of Neurology at the University of California, Irvine School of Medicine. He is a member of the UCI Institute for Memory Impairments and Neurological Disorders and a Fellow of the UCI Center for Neurobiology of Learning and Memory. His research focuses on pre-clinical detection of neurological disease using cognitive tests and biomarkers obtained from blood. He has a special interest in developing strategies to maintain successful cognitive aging. In the clinic, he specializes in cognitive assessment of older adults with suspected brain disease. Dr. Mapstone earned a PhD in Clinical Psychology at Northwestern University and completed fellowship training in Neuropsychology and Experimental Therapeutics at the University of Rochester. He received a Career Development Award from the National Institute on Aging and his research has been funded by the National Institutes of Health, the Michael J. Fox Foundation, and the Department of Defense.

Interested in our Living with Parkinson's Meetup, Care Partner Meetup, or Live Well Today Webinars? Learn how to join. https://dpf.org/webinars

Sign up for updates on webinars, events, and resources for the Parkinson’s community—delivered to your inbox. https://dpf.org/newsletter-signup

In the first episode of our three-part series about neuropsychology and Parkinson’s, Connie Carpenter Phinney and Dr. Mark Mapstone explore how brain chemistry, especially dopamine, relates to thinking, movement, and mood in Parkinson’s. They break down key terms like cognition and executive function and offer insights into how Parkinson’s affects brain systems beyond motor symptoms.

This episode lays the groundwork for understanding how the brain works—and what happens when it changes.

This content is possible thanks to the generosity of our listeners. Every day more people are diagnosed with Parkinson’s, and this means our work is more important than ever. Please support our work by visiting https://dpf.org/donate.

Interested in our Living with Parkinson's Meetup, Care Partner Meetup, or Live Well Today Webinars? Learn how to join. https://dpf.org/webinars

Visit https://dpf.org to learn more about the Davis Phinney Foundation for Parkinson's.

Speaker Bios: Connie Carpenter Phinney Connie Carpenter Phinney is a co-founder of the Davis Phinney Foundation and has been her husband’s care partner for over 25 years. Her background in science combined with her lived experience and curiosity helped shape this conversation with neuropsychologist Dr. Mark Mapstone. Connie is the host of the Foundation’s Care Partner Meetup, a monthly virtual meetup for Parkinson’s care partners held the first Tuesday of each month. To attend the meetup, sign up here: https://davisphinneyfoundation.org/events/parkinsons-care-partner-meetup/

Dr. Mark Mapstone

Mark Mapstone is Professor of Neurology at the University of California, Irvine School of Medicine. He is a member of the UCI Institute for Memory Impairments and Neurological Disorders and a Fellow of the UCI Center for Neurobiology of Learning and Memory. His research focuses on pre-clinical detection of neurological disease using cognitive tests and biomarkers obtained from blood. He has a special interest in developing strategies to maintain successful cognitive aging. In the clinic, he specializes in cognitive assessment of older adults with suspected brain disease. Dr. Mapstone earned a PhD in Clinical Psychology at Northwestern University and completed fellowship training in Neuropsychology and Experimental Therapeutics at the University of Rochester. He received a Career Development Award from the National Institute on Aging and his research has been funded by the National Institutes of Health, the Michael J. Fox Foundation, and the Department of Defense.

Sign up for updates on webinars, events, and resources for the Parkinson’s community—delivered to your inbox. https://dpf.org/newsletter

In this episode of the Parkinson's Podcast Unfiltered, hosts Heather, Kat, and Chris tackle one of the toughest questions of this season of Unfiltered: how to manage apathy and depression in advanced Parkinson's while also navigating a healthcare desert.

This episode also includes discussion of strategies for sleep, including how to turn over and get comfortable when you feel "velcroed to the bed," as well as some ideas about exercise options for people with limited mobility, from chair yoga to simple seated movements that anyone can do.

Finally, your Unfiltered hosts explore creative outlets like the Haiku for Parkinson's program and other artistic practices that can provide new opportunities for emotional expression and therapeutic benefits for people living with Parkinson's.

Have a question or comment for the hosts of the Parkinson’s Podcast: Unfiltered? Send it here. https://dpf.org/unfiltered

Interested in our Living with Parkinson's, Care Partner, or Live Well Today webinars? Learn how to join. https://dpf.org/webinars

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

More people with Parkinson's are impacted by the LRRK2 (often pronounced "Lark two") gene than you might expect.

The NEULARK study is a phase II clinical trial designed to investigate whether a new treatment being researched, NEU-411, can slow disease progression and improve quality of life for people with Parkinson’s disease. NEU-411 is an oral medication designed to inhibit overactivity of the LRRK2 gene.

In this episode of The Parkinson’s Podcast, we talk with Dr. Fatta Nahab about the NEULARK study. This episode is sponsored by Neuron23, who is also sponsoring the NEULARK study. Our guest, Dr. Nahab, is Vice President of Clinical and Digital Development for Neuron23.

For more information about the NEULARK trial please visit: https://parkinsonsresearchlrrk2.com/ or https://clinicaltrials.gov/study/NCT06680830

Season: 6 Episode: 19

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

Heather, Kat, and Chris share their experiences with accessibility and travel challenges while living with Parkinson’s. They dive into attention and focus, including what it’s like to live with both Parkinson’s and ADD. The conversation also covers the realities of freezing of gait—from how it starts to how they manage it day to day. Real, personal, and full of lived insight. Visit https://dpf.org to learn more about the Davis Phinney Foundation for Parkinson's.

Season: 6 Episode: 18

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In this episode of The Parkinson’s Podcast, we feature excerpts from our July 2025 Care Partner Meetup. In this meetup, Kristin Gustashaw, a registered dietician at Rush University Medical Center, shares real-world advice about food, meds, digestion, and supplements to help care partners and people with Parkinson’s make more informed choices.

Much of this conversation focuses on the interaction between protein and levodopa. People with Parkinson's and their care partners are often advised not to eat protein near the time when they take their levodopa. Listen in as Kristin shares her perspective on this--as well as other dietary advice--informed by her 25 years as dietician in a movement disorder clinic.

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

This episode of the Parkinson's Podcast features the full, unedited audio from a Live Well Today Webinar.

In this episode, Dr. Greg Pontone discusses the effects that Parkinson's can have on mental health, including why mental health related symptoms occur, how they impact daily life, and what you can do to manage them.

You can view our library of past webinars and register to attend our next webinar at our website: https://davisphinneyfoundation.org/event/live-well-today-webinars/

--- Speaker Bio:

Greg Pontone, MD, MHS is Division Chief and Professor Of Aging, Behavioral, and Cognitive Neurology at the University of Florida and Co-Director of Neuropsychiatry Program at The Norman Fixel institute for Neurological Diseases. Dr. Pontone earned his medical degree from the University of South Florida in Tampa. After medical school he completed a medical internship at Johns Hopkins Bayview followed by a residency in psychiatry and a fellowship in geriatric psychiatry and movement disorders research at The Johns Hopkins Hospital in Baltimore, Maryland.

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

This episode of the Parkinon's Podcast features the full, unedited audio from a Live Well Today Webinar.

During this live webinar, Dr. Corcos, Professor of Physical Therapy and Human Movement Sciences, shared insights from decades of research focused on the benefits of exercise for people with Parkinson’s. Listen in as Dr. Corcos discusses the latest findings in Parkinson’s exercise science and offers practical takeaways for incorporating effective movement strategies into everyday life.

Some links discussed in this webinar:

SPARX Phase 2 Trial--https://jamanetwork.com/journals/jamaneurology/fullarticle/2664948

Dr. Corcos' Exercise Advice Article--https://journals.sagepub.com/doi/10.3233/JPD-230277

Cardio Pulmonary Exercise Test Article-https://journals.sagepub.com/doi/10.1177/1877718X251330814

Industrial Chemicals and Parkinson's Blog-- https://davisphinneyfoundation.org/industrial-chemicals-pesticides-and-parkinsons/

Climbing and Parkinson's Blog-- https://davisphinneyfoundation.org/stay-moving-with-parkinsons-tai-chi-ping-pong-and-rock-climbing/

---- Speaker Bio Daniel Corcos, PhD Professor of Physical Therapy & Human Movement Sciences

Daniel Corcos obtained his PhD in Motor Control from the University of Oregon after obtaining his Master's Degree in Psychology. The primary research interests of Dr. Corcos are aimed at helping people with Parkinson’s disease improve their quality of life, improve their mobility and cognition, and slow down the rate at which their disease progresses. Integrating neuroscience and expertise in conducting clinical trials, the research of Dr. Corcos focuses on interventions (such as resistance exercise, endurance exercise, stretching and balance training) that aim to reduce the symptoms of the disease and delay the rate at which the disease progresses. Within this context, Dr. Corcos uses exercise interventions whose dose (frequency, intensity, time and type) can be precisely controlled to achieve these goals and thereby develops and integrates laboratory-based interventions that people with Parkinson’s disease can employ in their local community. His current research, published in JAMA Neurology suggests that high intensity endurance slows down the rate at which Parkinson’s disease progresses. These findings have been covered in the New York Times and the general press world-wide. Dr. Corcos lectures nationally and internationally to physicians, neuroscientists, and people with the disease on the benefits of exercise for those with Parkinson’s disease.

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In this episode, we share an excerpt from the Q&A portion of one of our Living with Parkinson’s Meetups, where guest speakers answer community questions about intense exercise, freezing episodes, and sleepiness in Parkinson’s.

Visit https://DPF.ORG for more information and resources for people living with Parkinson’s.

Season 6 Episode 14

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

Join Heather, Kat, and Chris for another episode of The Parkinson's Podcast Unfiltered. Questions addressed in this episode include navigating apathy--which is one of the most difficult non-motor symptoms of Parkinson's for many people--and how to evaluate your own disability, changes in ability, and quality of life. Ask Heather, Kat and Chris a question here: https://dpf.org/unfiltered

To learn more about the Davis Phinney Foundation for Parkinson's visit: https://dpf.org

Season 6 Episode 13

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In this Q&A episode of The Parkinson’s Podcast, recorded during the May 2025 Living with Parkinson’s Meetup, they answer questions from the community about what to do when Parkinson’s affects your ability to work and how to navigate Power of Attorney. They also discuss orthostatic blood pressure hypertension and adaptive deep brain stimulation (DBS).

To learn more about our Living With Parkinson's Webinar series visit: https://davisphinneyfoundation.org/event/webinar-series-living-with-parkinsons-meetup/

To learn more about the Davis Phinney Foundation for Parkinson's visit: https://dpf.org

Season 6 Episode 12

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In their first episode back after a break for Parkinson's Awareness Month and some time to tend to personal needs, Heather and Kat dive into a candid conversation about loneliness. Prompted by a listener’s question, they explore how Parkinson’s can impact friendships and what it means to navigate shifting social dynamics. Stay tuned: more episodes of Unfiltered are on the way!

Ask Heather and Kat a question here: https://dpf.org/unfiltered

To learn more about the Davis Phinney Foundation for Parkinson's visit: https://dpf.org

Season 6 Episode 11

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In this episode of the Parkinson’s Podcast, Executive Director Polly Dawkins speaks with Dr. Ray Dorsey and Dr. Michael Okun about their forthcoming book, "The Parkinson’s Plan: A New Path to Prevention and Treatment," set for release on August 19, 2025. Framed around the acronym PLAN—Prevent, Learn, Amplify, Navigate—the book shares compelling stories from the Parkinson’s community and outlines a bold roadmap toward prevention and proactive care. Listen in as the authors discuss what inspired them to write the book and the actions we can take now to help create a world without Parkinson’s.

Learn more about "The Parkinson’s Plan: A New Path to Prevention and Treatment" here: https://pdplan.org

To learn more about the Davis Phinney Foundation for Parkinson's visit: https://dpf.org

Season 6 Episode 10

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In this episode, we’re sharing an excerpt from our May 2025 Live Well Today webinar about Emerging Therapies for Parkinson's, which features Dr. Soania Mathur and Dr. Michael Okun. In this excerpt, Dr. Mathur and Dr. Okun discuss three emerging treatments for Parkinson’s that are designed for continuous under-the-skin infusion. These treatments have all been found to increase the amount of time Parkinson's symptoms are well managed throughout the day.

You can learn more about these and other emerging therapies by watching the entire May 2025 Live Well Today webinar recording. Watch the full webinar here: https://youtu.be/zqdXgoyVHT8

Medications discussed in this episode:

Vyalev, the first 24-hour infusion of foslevodopa and foscarbidopa: https://davisphinneyfoundation.org/continuous-infusion-levodopa-approved-usa/

ONAPGO, an apomorphine infusion that offers rapid relief from OFF episodes: https://davisphinneyfoundation.org/continuous-infusion-apomorphine-approved/

And NeuroDerm ND0612, an investigational levodopa/carbidopa infusion, now in late-stage trials: https://neuroderm.com/our-solution/about/what-is-nd0612/

Season 6 Episode 9

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In this episode, we share excerpts from the Q and A portion of our April 2025 Living with Parkinson’s Meetup, featuring audience questions about dancing and keeping rhythm even when it gets harder, managing REM sleep disorder, and deep brain stimulation (DBS).

For more information about the Davis Phinney Foundation visit: https://dpf.org.

Season 6 Episode 8

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

This episode contains excerpts from the Q and A during our March 2025 Living with Parkinson’s Meetup. In this Q and A, the panelists answer questions from the audience about accepting their diagnosis, surprising aspects of living with Parkinson’s, posture, exercise, dental care, and young-onset Parkinson's (YOPD).

For more information about the Davis Phinney Foundation visit: https://dpf.org.

Season 6 Episode 7

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In this episode, Heather, Kat, and Chris address three audience questions: navigating the challenges of being denied disability benefits, a husband’s struggle to discuss Parkinson’s with his newly diagnosed wife, and the tough decision to leave work because of Parkinson’s. They offer practical advice, personal insights, and support for those facing these difficult challenges.

For more information about the Davis Phinney Foundation visit: https://dpf.org.

Season 6 Episode 6 (Unfiltered Season 2 Episode 3)

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In this episode, Dr. K explains how constipation affects Levodopa absorption, discusses protein's impact on medication effectiveness, and shares optimal strategies for taking Levodopa. This is an excerpt from one of our online educational events for the Parkinson's community.

For more information about the Davis Phinney Foundation visit: https://dpf.org.

Season 6 Episode 5

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In this episode of The Parkinson’s Podcast Unfiltered, the hosts explore a listener's question about overcoming creative barriers while living with Parkinson's. They discuss how to push past obstacles to creating art, as well as the powerful benefits art can offer to those with Parkinson’s. From improving mental and physical well-being to fostering self-expression, this episode provides practical tips and inspiration for tapping into your creative potential.

For more information about the Davis Phinney Foundation visit: https://dpf.org

Season 6 Episode 4 (Unfiltered Season 2 Episode 2)

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In this episode of the Parkinson's Podcast, hear from John Dean, a speech language pathologist who exclusively works with people with Parkinson's, about the impacts that Deep Brain Stimulation can have on speech and swallowing.

For more information about the Davis Phinney Foundation visit: https://dpf.org

Season 6 Episode 3

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Dive into Leo Sarmiento's inspiring Parkinson's journey, where he transforms personal challenge into a powerful story of resilience, health, and purpose. From property maintenance to mental health advocacy, Leo shares how conscious choices and faith have shaped his path. Join us for an intimate conversation about overcoming obstacles and finding meaning in life's unexpected turns.

For more information about the Davis Phinney Foundation visit: https://dpf.org

Season 6 Episode 2

Click here to subscribe for our podcast and video content on YouTube. We hope you enjoy episode one of the second season of The Parkinson's Podcast Unfiltered. This season, Unfiltered hosts, Heather and Kat, will answer questions from the podcast's audience. If you have a question for them, please send it in by visiting dpf.org/unfiltered.

In this episode, Heather and Kay discuss a question they received from a listener whose care partner was going out of town for two weeks, and Heather responds to a question about what helps her when she experiences OFF periods.

For more information about the Davis Phinney Foundation visit: https://dpf.org

Season 6 Episode 1 (Unfiltered Season 2 Episode 1)

To donate, please visit https://dpf.org/2024donate. Together, we can continue to empower the Parkinson’s community to live well today—and every day.

In this episode of The Parkinson's Podcast, we describe some of the ways the Davis Phinney Foundation helps people living with Parkinson’s live well today. By providing critical resources, fostering community, and offering expert insights, the Foundation is committed to improving the quality of life for individuals with Parkinson’s and their care partners.

By equipping the Parkinson’s community with the tools and support they need, the Foundation helps those impacted by Parkinson’s live full lives as they navigate their Parkinson’s journey—today and in the future.

Your support helps make all of this possible. Every donation, no matter the size, helps expand our reach and ensure that life-changing resources are available to more people who need them.

Click here to subscribe for our podcast and video content on YouTube.

In this episode, Dr. Arash Fazl discusses the role of the protein alpha-synuclein in Parkinson’s and how this protein is involved in new diagnostic tests for Parkinson’s. Dr. Fazl also shares how these new tests may contribute to additional exciting developments in the future.

This is part two of a two-part series about Parkinson’s diagnosis. In the first episode, Dr. Fazl describes the challenges involved in diagnosing Parkinson’s. This episode picks up in the middle of our conversation with Dr. Fazl, right where we ended the first episode.

This two-part series is sponsored by CND Life sciences, home of the Syn-One Test - the first commercially available skin-based test to help clinicians diagnose Parkinson’s disease and related disorders.

Listen to Part 1 of this podcast series here: https://youtu.be/98AUXc2pgHo

This two-part series is sponsored by CND Life sciences, home of the Syn-One Test - the first commercially available skin-based test to help clinicians diagnose Parkinson’s disease and related disorders.

For more information about the Davis Phinney Foundation visit: https://dpf.org

Season 5 episode 36

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This episode is part one of a two-part series about developments in Parkinson’s diagnosis. In part 2, Dr. Fazl describes the development of new diagnostic tests, how they help, and what new information they can provide.

This two-part series is sponsored by CND Life sciences, home of the Syn-One Test—the first commercially available skin-based test to help clinicians diagnose Parkinson’s disease and related disorders.

For more information about the Davis Phinney Foundation visit: https://dpf.org

Season 5 episode 35

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In this episode, hosts Heather and Kat share what has been working well for them in their Parkinson's journeys, including meditation, avoiding over-scheduling, and finding purpose. They discuss the importance of nurturing meaningful connections while also maintaining boundaries to be true to themselves.

For more information about the Davis Phinney Foundation visit: https://dpf.org

Season 5 Episode 34 (Unfiltered 13)

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In this episode, leading Parkinson's expert Dr. Bas Bloem shares his perspective about the relationship of exercise to improved mood and cognition for people living with Parkinson's. This talk was recorded during one of our online educational events.

For more information about the Davis Phinney Foundation visit: https://dpf.org

This content is made possible through the generous support of listeners like you. Click here to make a donation.

Season 5 Episode 33

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In this episode, join Heather and Kat as they tackle one of the most challenging aspects of life with Parkinson's – the uncertainty that comes with living with a progressive condition. With humor and honesty, they share personal strategies for finding peace amidst unpredictable symptoms and the uncertainties of life with Parkinson’s. Whether you're living with Parkinson's or supporting someone who is, this episode reminds us that while uncertainty is universal, we don't have to face it alone.

For more information about the Davis Phinney Foundation visit: https://dpf.org

This content is made possible through the generous support of listeners like you. Click here to make a donation.

Season 5 Episode 32 (Unfiltered Episode 12)

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In this episode, we present a Q&A session from one of our Davis Phinney Foundation live events. A Parkinson's care team - including a movement disorder specialist, physical therapist, and neuropsychologist - answers challenging questions about the disease. Our experts discuss cannabis use, forced exercise, hallucinations, and changes in sense of smell, while also addressing anxiety, intimacy, drooling, and more. This panel offers valuable insights into managing Parkinson's symptoms and improving quality of life. Speakers: Benzi Kluger, MD - Joanne Hamilton, Phd, ABPP - Erin Vestal, DPT, NCS

For more information about the Davis Phinney Foundation visit: https://dpf.org

This content is made possible through the generous support of listeners like you. Click here to make a donation.

Season 5 Episode 30

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Parkinson’s comes with a bit of grit—both in the sense of sand in the gears making things go less smoothly and in the sense of sand on ice to help with traction.

In this episode of the Parkinson’s Podcast Unfiltered, Heather and Kat discuss how the moving through the rough spots with grace—both for others and for oneself—can help you live well with Parkinson’s.

For more information about the Davis Phinney Foundation visit: https://dpf.org

This content is made possible through the generous support of listeners like you. Click here to make a donation.

Season 5 Episode 30 (Unfiltered Episode 11)

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In this episode, Karen Frank, Michael Fitts, and Carol Clupny, share what a day in their life looks like with Parkinson's. This talk was recorded during one of our online educational events.

You can learn more about our Davis Phinney Foundation Ambassadors by visiting: https://dpf.org/connect/ambassadors/

For more information about the Davis Phinney Foundation visit: https://dpf.org

This content is made possible through the generous support of listeners like you. Click here to make a donation.

Season 5 Episode 29

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This episode is an interview with Roger Barker, Professor of Clinical Neuroscience and Honorary Consultant in Neurology, at the University of Cambridge and Addenbrooke's Hospital. Dr. Barker is known for his groundbreaking work combining basic research on novel therapies for chronic neurodegenerative disorders, like Parkinson's, with clinical studies aimed at better defining these conditions.

For more information about the Davis Phinney Foundation visit: https://dpf.org

This content is made possible through the generous support of listeners like you. Click here to make a donation.

Season 5 Episode 28

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In this episode of the Parkinson’s Podcast Unfiltered, Heather and Kat answer five of the most common questions they get asked about Parkinson’s.

For more information about the Davis Phinney Foundation visit: https://dpf.org

This content is made possible through the generous support of listeners like you. Click here to make a donation.

Season 5 Episode 27 (Unfiltered Episode 10)

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In this episode, we feature Amy Carlson, who won the prestigious Moth Grand Slam storytelling contest in Los Angeles and shares how the power of storytelling transformed her journey with Parkinson's.

For more information about the Davis Phinney Foundation visit: https://dpf.org

This content is made possible through the generous support of listeners like you. Click here to make a donation.

Season 5 Episode 26

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In this episode of the Parkinson’s Podcast Unfiltered, Heather and Kat discuss what it’s like to communicate in a fast-paced digital world while living with Parkinson’s and all the ways it slows you down.

For more information about the Davis Phinney Foundation visit: https://dpf.org

This content is made possible through the generous support of listeners like you. Click here to make a donation.

Season 5 Episode 25 (Unfiltered Episode 9)

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In this episode, Dr. Jay L. Alberts explores the impact of forced exercise on Parkinson's symptoms. Recorded at one of our educational events, Dr. Alberts' research continues to shape exercise studies in Parkinson's.

For more information about the Davis Phinney Foundation visit: https://dpf.org

This content is made possible through the generous support of listeners like you. Click here to make a donation.

Season 5 Episode 24

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Join Heather, Kat, and special guest Jennifer Sullivan as they talk about the twists and turns of flirting, love, and intimacy when living with a body that may not always do what you want it to do.

For more with Jennifer, visit her at https://www.thewigglesproject.com/.

For more information about the Davis Phinney Foundation visit: https://dpf.org

This content is made possible through the generous support of listeners like you. Click here to make a donation.

Season 5 Episode 23 (Unfiltered Episode 8)

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In this epsiode of The Parkinson's Podcast, Dr. Gary Leo discusses sleep challenges unique to people living with Parkinson's. Dr. Leo sheds light on the causes of these disruptions and offers some practical solutions for sleeping better.

For more information about the Davis Phinney Foundation visit: https://dpf.org

This content is made possible through the generous support of listeners like you. Click here to make a donation.

Season 5 Episode 22

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In this episode of the Parkinson's Podcast Unfiltered, Kat and Heather discuss multiple ways pain and Parkinson's intersect. Listen in as Kat and Heather discuss dystonia, off times, the difficulty of determining whether pain is caused by Parkinson's or not, and more. Your hosts also have some tips and observations about how to manage pain--including some thoughts about complementary therapies, the importance of breathwork, and finding ways to remain level-headed no matter what challenge you may be facing.

This content is made possible through the generous support of listeners like you. Click here to make a donation.

Click here to subscribe for our podcast and video content on YouTube.

In this episode, Roxann Diez-Gross, Ph.D., shares practical techniques for improving breathing and swallowing, vital functions that can be affected by Parkinson's disease. This talk was recorded during one of our online educational events.

This content is made possible through the generous support of listeners like you. Click here to make a donation.

For more information about the Davis Phinney Foundation visit: https://dpf.org

Click here to subscribe for our podcast and video content on YouTube.

In this episode of The Parkinson’s Podcast: Unfiltered, as Heather continues the process of moving across the country, she and co-host Kat chat about the curating personal relationships amidst the challenges of living the Parkinson’s. Heather and Kat discuss ways to navigate all types of relationships—from friendships and marriages to connections with strangers. At every step, they highlight the importance of staying connected.

This content is made possible through the generous support of listeners like you. Click here to make a donation.

This content is made possible through the generous support of listeners like you. Click here to make a donation.

In this episode, Dr. Fleisher emphasizes the realness of pain in Parkinson's by explaining the causes of pain, how to talk to your doctor about your pain, and additional medical and non-medical management strategies.

Click here to subscribe for our podcast and video content on YouTube.

Click here to learn more about the Davis Phinney Foundation for Parkinson’s.

Season 5 Episode 18

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As Heather plans to move to a new house, in this episode, Heather and Kat, talk about the importance and challenges of curating your physical space while living with Parkinson’s.

Click here to subscribe for our podcast and video content on YouTube.

Click here to learn more about the Davis Phinney Foundation for Parkinson’s.

In this episode, Dr. Joanne Hamilton of Advanced Neurobehavioral Health, delves into the non-motor and cognitive symptoms of Parkinson's and provides practical strategies for symptom management.

This content is made possible through the generous support of listeners like you. Click here to make a donation.

Click here to subscribe for our podcast and video content on YouTube.

Click here to learn more about the Davis Phinney Foundation for Parkinson’s.

Season 5 Episode 16

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Do you "have" Parkinson’s or do you "live with" Parkinson’s? Do you "fight" your diagnosis? If so, can you do something “wrong” and “lose the battle”? In this episode of the Parkinson’s Podcast Unfiltered, Heather and Kat discuss the significance of the words we use when talking about our lives.

Click here to subscribe for our podcast and video content on YouTube.

Click here to learn more about the Davis Phinney Foundation for Parkinson’s.

This content is made possible by the generous support of viewers and listeners like you. Click here to make a donation.

Do you "have" Parkinson’s or do you "live with" Parkinson’s? Do you "fight" your diagnosis? If so, can you do something “wrong” and “lose the battle”? In this episode of the Parkinson’s Podcast Unfiltered, Heather and Kat discuss the significance of the words we use when talking about our lives.

Click here to subscribe for our podcast and video content on YouTube.

Click here to learn more about the Davis Phinney Foundation for Parkinson’s.

This content is made possible by the generous support of viewers and listeners like you. Click here to make a donation.

Explore David Putterman's journey from professional drummer to person living with Parkinson's and back to the stage, revealing how reconnecting with music--supported by a music therapist--improved his quality of life and helped alleviate his Parkinson's symptoms.

You can watch David Putterman's Mini-Documentary "Fighting Parkinson's With Drums" here: https://www.youtube.com/watch?v=e_8xT3p7ld4&t=126s

You can contact David Putterman by email at parkinsonsdrummer@gmail.com

Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson’s. Season 5 Episode 14

This content is made possible through the generous support of listeners like you. Click here to make a donation.

In this episode of the Parkinson’s Podcast Unfiltered, Heather and Kat discuss how they approach the sadness, loss, and grief while still finding joy and productive ways to live well today.

Click here to subscribe for our podcast and video content on YouTube.

Click here to learn more about the Davis Phinney Foundation for Parkinson’s.

Season 5 Episode 13 (Unfiltered Episode 3)

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In this episode, join us for an inspiring conversation with Michelle David Lane and Susan Sapir-Fields, the founders of Louisiana Walks (LA Walks) for Parkinson’s. Discover the heartwarming story behind this annual fundraiser benefiting the Davis Phinney Foundation.

To learn more about the Louisiana Walks fundraiser, please visit: https://parkinsonswalk.org

Click here to subscribe for our podcast and video content on YouTube.

Click here to learn more about the Davis Phinney Foundation for Parkinson’s.

Season 5 Episode 12

The Parkinson's Podcast Unfiltered: Sex

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In this episode of The Parkinson’s Podcast Unfiltered, Heather Kennedy and Kat Hill dive deep into the importance and challenges of sexual health for people with Parkinson’s. Strap in for the ride: as always, with Heather and Kat and The Parkinson’s Podcast Unfiltered, nothing is off the table.

Click here to subscribe for our podcast and video content on YouTube.

Click here to learn more about the Davis Phinney Foundation for Parkinson’s.

Season 5 Episode 11 (Unfiltered Episode 2)

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Mobility Matters: NexStride and the Parkinson's Community

In this episode, we chat with Sidney Collin, the inventor of NexStride: a device transforming mobility for people with Parkinson's. Join us as Sidney shares the journey from idea to creation, offering insights about her innovative solution and overarching mission to empower people with confidence and independence.

To learn more about NexStride and DeOro Devices, please visit: https://www.getnexstride.com/ or email: info@deorodevices.com

To learn more about the Parkinson’s wellness fund, please visit: https://parkinsonswellnessfund.org/

Click here to subscribe for our podcast and video content on YouTube.

Click here to learn more about the Davis Phinney Foundation for Parkinson’s.

Season 5 Episode 10

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In the debut episode of The Parkinson's Podcast: Unfiltered, hosts Heather Kennedy and Kat Hill explore the often overlooked stigma surrounding Parkinson's. Through personal stories and insights, they challenge misconceptions and explore how shifting narratives can empower minds and reshape perceptions. Tune in for a fresh perspective on living with Parkinson's.

Click here to subscribe for our podcast and video content on YouTube.

Click here to learn more about the Davis Phinney Foundation for Parkinson’s.

Season 5 Episode 9 (Unfiltered Episode 1)

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In this episode, panelists discuss ways that Parkinson’s has affected their abilities and how they navigate these changes. As always, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truths and share their journeys with all of us.

Click here to subscribe for our podcast and video content on YouTube.

Click here to learn more about the Davis Phinney Foundation for Parkinson’s.

This content is made possible through generous donations made by our listeners.

In this episode, Dr. Karunapuzha discusses advanced Parkinson’s with Davis Phinney Foundation Executive Director Polly Dawkins. Dr. Karunapuzha covers multiple interpretations of what “advanced Parkinson’s” means, what symptoms are associated with advanced Parkinson’s, and possible ways to manage those symptoms.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible through generous donations made by our listeners.

In this episode, discover the story behind Izzy Mokotoff and Alexis Chan's innovative pen for people living with Parkinson's: SteadyScrib. Learn about their journey and motivations--inspired by Izzy's grandfather--and the impending launch of SteadyScrib, set to publicly debut later this year.

Want to learn more about SteadyScrib? Find out more about their mission on their website.

Want to watch the video version of this podcast? You can watch it on our YouTube!

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible through donations made by our listeners.

In this episode, Mark Stacy, MD, and Peter Schmidt, PhD, discuss participation in clinical trials for Parkinson’s. Dr. Stacy is currently a Professor of Neurology at the Medical University of South Carolina, and has been involved in Parkinson’s care and research for over 30 years. Dr. Schmidt, a Davis Phinney Foundation board member, is the Chief Scientific Officer for Rho: a company that supports clinical trial strategy, design, and operations.

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of viewers and listeners like you.

This is a special edition of the Parkinson’s Podcast, presented by the No Barriers Podcast. Join us for a candid conversation with Davis Phinney, co-founder of the Davis Phinney Foundation, and Kevin Kwok, a Foundation board member, as they share their compelling journeys with Parkinson’s.

To learn more about the No Barriers Podcast, please visit: https://nobarriersusa.org/podcast/

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website.

In this episode, music therapist Hadley Rentz from Music Worx, Inc., explains the benefits of music therapy for people living with Parkinson’s.

To learn more about Music Worx, Inc. and their AudAbility virtual music therapy class for people living with Parkinson's, visit MusicWorx.com. You can subscribe to learn more about Music Worx, Inc. here.

To learn more about the Davis Phinney Foundation programs in Spanish, please visit our Spanish site.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website.

In this episode, Dr. Yasar Torres-Yaghi answers questions about OFF time in Parkinson's, including symptoms, medications, deep brain stimulation, and more.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website.

Wayne Gilbert--a retired teacher and professor of English and educational psychology--was diagnosed with Parkinson's in 2005. Since his diagnosis, he has taken refuge in poetry, having written hundreds of "Parkie" poems, which he refers to as "metaphor medicine." In this episode, Wayne explains the importance of using metaphors in poetry to navigate the complexities of living with Parkinson's and performs a few of his favorite poems.

Loving the Parkinson's Podcast? Listen to more episodes on our website!

The information in this podcast is for general information purposes only. It includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:https://dpf.org/podcastdonation

In this interview, Dr. Apurva Zawar, PT, DPT, discusses one of the most common non-motor symptoms of Parkinson’s, pain, the different types of pain, and where you can find tools and resources to manage it.

Want to watch the video version of this podcast? You can watch it on our YouTube!

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

The information in this podcast is for general information purposes only. It includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

Relevant Links

Pain in PD
Self-Assessment Tool
Dr. Zawar’s Clinic Beyond Rehab
Dr. Zawar’s program for pain in Parkinson’s
Contact Dr. Zawar

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this session from the Victory Summit Virtual Event: Sleep and Parkinson's, Dr. Aleksander Videnovic explains sleep attacks, RBD (REM Sleep Disorder), Restless Legs Syndrome (RLS), Insomnia, Daytime Sleepiness, Drowsiness, Fatigue, as well as how to manage these, the importance of understanding and attending to your circadian biology and using things like light and timing of exercise and medications to improve sleep.

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

Deep Brain Stimulation (DBS) is a highly effective and reasonably safe treatment for Parkinson’s; however, it’s also frequently misunderstood by people who have been recently diagnosed. The success stories about how people are sometimes living symptom and medication-free as a result of getting DBS understandably lead many who’ve been newly diagnosed to want to get the treatment as soon as possible.

In an earlier webinar, we invited an esteemed panel of experts to talk about Deep Brain Stimulation (DBS).

In this episode of the Parkinson's Podcast, we spoke with six people with Parkinson’s who’ve had DBS. We discussed:

How to begin the process
How to talk to your family and friends about DBS and your hopes and concerns about it
What to expect during the approval process
What the surgery is really like (and do you have to shave your head)
What recovery is like and what kind of support you might need
The challenges of programming your device and the joy that comes when you get it right
The myths, challenges, and victories of DBS

And more! We hope you enjoy it!

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

Want to learn more about Deep Brain Stimulation? Check out our DBS Hub here!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Bastiaan Bloem talks with Davis Phinney Foundation Executive Director, Polly Dawkins, about a recent article he co-authored, "The Elephant in the Room: Critical Reflections on Mortality Rates Among Individuals with Parkinson’s Disease."

In the article, Dr. Bloem et al. write, "Although the survival of people with Parkinson's has improved over time, people with Parkinson's still live fewer years than their age- and sex-matched population comparators, albeit at older ages this difference can be small." Dr. Bloem and his co-authors also acknowledge that doctors and researchers "often emphasize the tremendous impact of [Parkinson's] on an individual’s life. However, in public awareness campaigns, we largely avoid discussions on the survival of people with Parkinson’s..."

It's understandable: the topic of mortality and Parkinson's is often painful. However, in this episode of The Parkinson's Podcast, Dr. Bloem argues out that openly acknowledging that Parkinson's shortens lifespans is a good thing for people with Parkinson's for a multiple reasons.

Listen to the episode to hear Dr. Bloem's perspective about multiple topics related to mortality and Parkinson's, including:

The commonly held view that people die with Parkinson's, not from Parkinson's
Pesticides, chemical exposure, and other environmental risks
Reasons for hope, including specific advice about exercise and diet
The policy and funding implications of candid discussion of mortality in Parkinson's

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

A previous version of this podcast had sound issues. We apologize and hope you enjoy!

During this episode of The Parkinson's Podcast, panelists from our Living with Parkinson's meetup discussed fear and Parkinson’s. They talked about the difference between shame, guilt, and embarrassment, and they shared the various ways shame shows up for them. Again, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truth and share their journeys with all of us.

In this episode, topics discussed include:

Feeling a loss of relevance
Shame when I was diagnosed
Shame around impulse control
Side-effects of medications and shame
Importance of community to overcome shame

and more! We hope you enjoy!

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

Want to come to the next Living with Parkinson's Meetup? Join us on the third Thursday of every month at 1 pm MDT by registering here.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this episode of The Parkinson's Podcast, panelists from our Living with Parkinson's meetup discussed fear and Parkinson’s. We addressed kids, relationships, progression, falling, loss of identity, cognition, and more.

In this episode, topics discussed include:

How to address fear and shame in yourself and with others
How to handle the fear of being marginalized
What is the biggest fear you have of the unknown?
Dealing with the fear and grief of missing out
Handling the fear of being alone and dating with Parkinson's
How fear has evolved in our panelists from their diagnosis to the present

and more! We hope you enjoy!

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

Want to come to the next Living with Parkinson's Meetup? Join us on the third Thursday of every month at 1 pm MDT by registering here.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

On September 17, 2021, we held The Victory Summit® Virtual Event: Mental Health and Wellness, shining the spotlight on how to manage the symptoms you can’t see in Parkinson’s. During this event, Dr. Gregory Pontone spoke to us about managing depression and anxiety in Parkinson's.

Topics discussed include:

What are the statistics on how many people are currently dealing with depression?
Wellness vs. Wellbeing
What is mental illness?
What is the impact of mental illness on Parkinson's?
What are the differences between depression and anxiety?
Different types of anxiety medicine and how they impact Parkinson's symptoms
The effect of anxiety on dystonia
Dealing with compulsive thoughts
What are some strategies for families dealing with anxietyand depression at home?
What is apathy?

and more! We hope you enjoy!

Want to see other videos from our Victory Summit on Mental Health? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Brian Grant had a long and successful 12-year career in basketball. In 2008, at age 36, Brian was diagnosed with Parkinson's. Davis Phinney was an Olympic Bronze medalist and Tour de France stage winner who claimed the most victories of any cyclist in American history. In 2000, at age 40, Davis was diagnosed with Parkinson’s. Since being diagnosed, both of these athletes have made it their mission to do everything they can to thrive not just survive with Parkinson's, and inspire others to do the same.

In this genuine, inspiring, and relatable conversation, Brian and Davis talk about their experiences as athletes receiving a Parkinson's diagnosis, their difficulties in accepting the physical and mental challenges that have occurred with the progression of their Parkinson's, and how and why they are passionate about living well with Parkinson's each and every day. We hope you enjoy it!

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this episode of the Parkinson's Podcast, Dr. Gregory Pontone and Dr. Indu Subramanian discuss how cultural context can impact what living well with Parkinson's looks like, including nutrition, exercise, community, and more.

Topics discussed include:

What does "cultural context" mean?
Holistic health in cultural context
The importance of community in a cultural context
How to help address the divide between clinical care and cultural context as a care partner/care giver
Acceptance of Parkinson's symptoms by family and cultural community
Feeling culturally "separated" by your diagnosis
Finding new community
How to create safer spaces as advocates and allies

and more! We hope you enjoy!

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Anna Lembke, an internationally recognized expert in addiction and dopamine, discusses addiction, dopamine's role in pain and pleasure, dopamine agonists, and more.

**Please note, taking regular carbidopa/levodopa alone very rarely leads to someone experiencing impulse control disorders, so please do not delay taking these Parkinson’s medications because of a fear of developing an impulse control disorder. If your symptoms are getting in the way of your daily activities and quality of life, work with your doctor to find the right dose for you. Dopamine agonists, on the other hand, which are more commonly prescribed in the early stages of Parkinson’s, are the types of medication that put people at greater risk. Still, it’s not a given. Each person responds to medication differently, and whatever side effects you do experience are almost always duration and dose-dependent. To learn more about Parkinson’s medication, read Medication and Parkinson’s. For more on impulse control disorders and dopamine agonists, read Impulse Control Disorders and How to Manage Them.

Topics discussed include:

Can you define pleasure and pain and the role dopamine plays in them?
How has our drive for pleasure changed over time?
Does being low on dopamine contribute to the pain many with Parkinson’s experience?
How is the pain/pleasure cycle disrupted in the absence of naturally produced dopamine?
What is a dopamine precursor, and what does it have to do with impulse control disorders (ICDs) in people with Parkinson’s?
Are there any early warning signs that someone may be experiencing negative side effects such as impulse control disorders from taking their medication?
What is addiction, and how does it work in someone with Parkinson’s?
What is the value of truth-telling for someone who is struggling with an impulse control disorder or any other addiction?
Is it possible that Parkinson’s meds can expose a preexisting addiction or propensity for addiction?
Is there a link between head trauma and addiction?

and more! We hope you enjoy!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this episode, we talked to five people, Michael S. Fitts, Allyson Kinney, Michael Fahning, Gerrie Blavat, and Brian Reedy, who are living alone with Parkinson’s, some by choice and others not. They shared their stories and offered ideas and advice on how to live alone and well with Parkinson’s.

Topics discussed include:

Why are you living alone with Parkinson's?
How does a service dog help in living alone with Parkinson's?
What is the hardest part of living alone with Parkinson's?
Finding more important things to worry about
Accepting your limits while living alone with Parkinson's
What different tools make living alone with Parkinson's easier?
How to get around when you physically can't drive

and more. We hope you enjoy!

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

Addtional Resources:

Advances Directives and Parkinson’s

How Service Dogs Can Support People With Parkinson’s

Parkinson’s Nutrition and Living Well

Life With Dempsey, My Parkinson’s Service Dog

Keep ON Moving – A New Online Parkinson’s Exercise Program

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this session, panelists from the Living with Parkinson's meetup answered questions from the chat on everything Parkinson’s.

Topics discussed include:

Why is it important to work with experts in Parkinson’s?
What is a biomarker?
Why does it take so long to develop a drug for Parkinson’s?
What are the challenges with diagnosing Parkinson’s?
What are the potential impacts of surgery on Parkinson’s symptoms?
How do you make sure all medical providers have critical information?
What is brain fog?
How do you balance having Parkinson’s and caring for others?
What is speech therapy for Parkinson’s?
How do you get out of being frozen?

and more. We hope you enjoy!

Want to join us at the next Living with Parkinson's Meetup? Join us the third Thursday of every month!

Want to read the article associated with this podcast? Check it out on our website!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Arun Mathur, a urologist with specialized knowledge of Parkinson's, explains the symptoms, causes, and treatments of urinary dysfunction in people with Parkinson's.

Topics we discuss include:

What are the differences between urinary dysfunction in different neurological diseases?
What is urinary dysfunction?
Urinary dysfunction can be a precursor to a Parkinson's diagnosis
How does urinary dysfunction affect a person with Parkinson's quality of life?
When should you seek treatment?
Urinary dysfunction is more prevalent in Later Onset Parkinson’s
Non-pharmacological and surgical treatments
DBS and Urinary Dysfunction
Carbidopa/Levodopa’s effect on urinary dysfunction
Pharmacological treatments
Catheterization
Prostate symptoms versus Parkinson’s symptoms
When will non-pharmacological treatments show results?

and more! We hope you enjoy!

Want to watch the video recording of this audio? Watch here!

To view the show notes and related resources for this webinar, visit our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, panelists discussed what they wish they knew when they were diagnosed with Parkinson's and what advice they would give now to those who are newly diagnosed.

Topics we discuss include:

What do you wish you had known when you were first diagnosed with Parkinson’s?
Being kind, listening to elders, and seeking help
Take things seriously, but not too seriously
Don't ignore your symptoms
Medications
The moment when you are first diagnosed
Having a movement disorder specialist
Support groups
Importance of exercise
Socializing, being with people, and getting out of your head

and more! We hope you enjoy!

Want to watch the video recording of this audio? Watch here!

Want to join the Living With Parkinson's Meetup? Register here!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode of The Parkinson's Podcast, Greg Pontone, MD, Indu Subramanian, MD, and Bradley McDaniels, PhD, discuss how symptoms of depression begin and how to combat them.

In this episode, we talk about:

How Dr. Subramanian, Dr. McDaniels, and Dr. Pontone are working on
What clinicians can do to make your symptoms better
How Dr. Subramanian combines Eastern and Western medicine
The impact of demoralization on people with Parkinson's
The importance of normalizing diagnosing depression
The difference between demoralization in people with early-onset versus late-onset Parkinson's
Changes in patient care since this panel started researching demoralization
Dr. McDaniels' mother's journey with demoralization and Parkinson's
The signs of depression and how to know when to see a doctor

and more. We hope you enjoy!

Want to read the article associated with this podcast? You can read it here.

Want to watch a video of this podcast? You can watch it on our channel!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this episode, our Living with Parkinson's Meetup panelists discussed physical, social, and emotional vulnerability in Parkinson’s. They offered their thoughts about how to adapt to changes that arise as Parkinson’s progresses. As always, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truth and share their journeys with all of us.

In today's episode, we talk about:

Start of discussion on vulnerability
Vulnerability vs. danger
Social vulnerability
Adapting to difficult situations
Going to the worst-case scenario
Community as a source of strength
Impact of stories, beliefs and finding community

and more! We hope you enjoy it!

Want to come to our next Living with Parkinson's Meetup? Join us every third Thursday of the month!

Want to watch a video of this podcast? You can watch it on our YouTube channel!

In this episode, Dr. Soania Mathur interviews Dr. Michael Okun to discuss the latest therapies for Parkinson’s, including RT-QUIC (Parkinson’s biomarker), subcutaneous dopamine pumps, vibrating gloves, rescue medications, DBS, and more.

Dr. Mathur and Dr. Okun discuss:

New discoveries in diagnosing Parkinson’s
What do certain biological markers mean for diagnosis?
What’s new on the horizon for Parkinson’s treatments?
The subcutaneous delivery of dopamine replacement
Transdermal treatment
Microbiome in Parkinson’s
Vibration therapy
The importance of individualized care plans
How to sort through all the information about Parkinson’s

and more. We hope you enjoy!

In this episode, the Living with Parkinson's Meetup panelists discuss LOVE, relationships, and care partners, whether they be spouses, kids, friends, neighbors, etc. As always, our panelists speak with honesty and emotion, making everyone affected by Parkinson's feel less alone.

In this episode, we discuss:

Care Partners Who Think Your Parkinson’s is Going to Get Better
Care Partners Who Don’t Understand Your Symptoms
Pushing Your Care Partners Away
The Difficulty of Communication
Finding a Partner if You’re Single with Parkinson’s
Partners Who Leave You Because of Your Parkinson’s
Family Relationships and How Much You Should Expect from Them
Not Expecting Other People to “Understand”
Crossing the Boundary from a “Partner” to a “Care Partner”
Accepting Help When You Need It

and more. We hope you enjoy!

You can find links for more information about topics discussed in this webinar here.

In this episode, the Living with Parkinson's Meetup panelists discuss how their relationships have changed, grown, and faded since being diagnosed with Parkinson's. As always, our panelists speak with honesty and emotion and make everyone affected by Parkinson's feel less alone.

In this episode, we discuss:

Relationships and Parkinson’s
How relationships can strengthen after a Parkinson's diagnosis
How to find people that are going through a similar experience
Feeling like a burden and wanting to hide
Finding situations where you feel like you can be yourself and humor
Getting out of a funk
Learning to ask for help

and more! We hope you enjoy!

You can find links for more information about topics discussed in this webinar here.

In this episode, occupational therapist Carol Chiang discusses the importance of adding an occupational therapist (OT) to your Parkinson’s care team, common home adaptations that can be made to help you live well with Parkinson’s, and more.

What is Occupational Therapy?
Why Can People with Parkinson’s Benefit from OT?
Carol’s Business, “Evolving Homes” - How Does it Work?
Practical Tips for Lighting
The Importance of Contrast in Your House
Common Bathroom Setup Problems
Suggested Technology to Help People with Parkinson’s
Considering Handles and Switches
Furniture Recommendations
Surface Considerations
Recommendations Around Rug

and more! We hope you enjoy!

You can find links for more information about topics discussed in this webinar, including links for the sheets Carol mentions, here: https://davisphinneyfoundation.org/webinar-recording-aging-in-place/

In this week's episode of the Parkinson's Podcast, panelists from our Living with Parkinson's Meetup share how they find hope and inspiration despite the everyday and ever-changing challenges of Parkinson’s disease.

In this episode, panelists share:

Quotes on Hope and Optimism from the Parkinson’s Community
How They Practice Being Hopeful, Optimistic, and Grateful
How Sree Pushes Through Feelings of Defeat
The Importance of Connecting with People
How to Find Silver Linings
Face Freezing and the “Resting B” Face
The Importance of Humor
How to Share Non-Motor Symptoms
The Difficulties of Convincing People You Have Parkinson’s
How to Communicate Symptoms to People

and more! We hope you enjoy!

In this episode, Dr. Annelien Oosterbaan talks about the impact of Young Onset Parkinson’s Disease (YOPD) on women, how women have been left out of the research for so long that their care is impacted, menstrual cycles, pregnancy, breastfeeding, medication, menopause, and much more. She also talks about what it’s like to be a gynecologist, a mother of 4, and have YOPD.

Dr. Oosterbaan answers questions like:

What happened when you were first diagnosed?
What was it like with your family when you were first diagnosed?
What was it like living with Parkinson’s and being pregnant?
What have you learned about Parkinson’s and pregnancy?
What do you think healthcare providers get wrong about pregnant women living with Parkinson’s?
How does menopause affect women with Parkinson's?
How does DBS affect pregnancy?
What is Preg Spark?

In this episode, Dr. Rodolfo Savica discusses the biological and social differences of YOPD (young onset Parkinson’s), treatments for YOPD, the challenges of diagnosing YOPD, and more.

Topics discussed include:

“Early” Versus “Young” Onset Parkinson’s
Typical Age for Young/Early Onset Parkinson’s
Treatment Differences for YOPD
Diagnosing Young/Early Onset Parkinson’s
Young Onset Parkinson’s and DBS (Deep Brain Stimulation)
Difference in Progression Between Early Onset and Late Onset Parkinson’s
Difference in Women with Early Onset Versus Later Onset Parkinson’s
Exercising with YOPD
Dementia and Cognitive Decline

and more! We hope you enjoy!

In this episode, Dr. Benzi Kluger, movement disorder specialist, and Kelly Weinschreider, a person living with Parkinson’s, discuss the value of palliative care (aka supportive care or whole person care) from the very beginning of a Parkinson’s journey. We discuss what palliative care is and isn’t, the palliative care approach, how to advocate for care, where to look for care, and more.

The practices of mindfulness, meditation, and relaxation, beneficial to everyone, can be particularly beneficial for people living with Parkinson’s. In this conversation with Dr. Sarah Mulukutla and Dr. Evelyn Ooi, we talk about the value of learning these psychological, emotional, and spiritual tools to manage the challenges that come with living with Parkinson’s.

In this episode, Greg Ritscher discusses:

How he transferred the skills that made him successful in his career to live well with Parkinson’s
His experience retiring and moving
The process of writing a book
Preparing for DBS
The various ways Greg’s found to give back and spread Parkinson’s education and resources to those in the panhandle of Florida

For the mentioned links, resources, video recording, and more visit: http://davisphinneyfoundation.org/podcast-work-giving-back-deep-brain-stimulation-and-parkinsons-with-greg-ritscher

In this episode, Karen Frank, a person living with Parkinson’s talks about:

How using cannabis to ease her anxiety took her down an unexpected path
How she got out of an unhealthy situation
Her experiences with depression and rehab
Her relationships, community, and living with Parkinson’s

For related links and resources, the video recording, and more visit: http://davisphinneyfoundation.org/podcast-addiction-cannabis-anxiety-medications-and-living-well-with-parkinsons-with-karen-frank

In this episode, Dr. Roseanne Dobkin discusses:

Depression and anxiety in people with Parkinson’s
How to connect with a mental health professional
The current landscape of telehealth for mental health
What a first session with a mental health professional might look like
The definition of cognitive behavioral therapy and when it might be a fit
Managing anxiety specifically about Parkinson’s progression
Parkinson’s symptoms that can be helped with CBT
How to find a professional who is trained in CBT
The amount of time for CBT to be effective
Description of a typical CBT session
The role of care partners in managing mental health symptoms

For mentioned links, resources, the video recording, and more visit: http://davisphinneyfoundation.org/podcast-cognitive-behavioral-therapy-cbt-and-parkinsons-with-dr-roseanne-dobkin

In this episode, Kat Hill and Nancy Peate talk about:

How they met at exactly the right place and time
Their lives with and without Parkinson's
Their path through co-authorship of “On Being Well with Chronic Illness: A Guide to Resilience and Joy with Your Diagnosis”
What they do to live well with Parkinson’s

For mentioned links, resrouces, the video recording, and more visit: http://davisphinneyfoundation.org/podcast-on-being-well-with-chronic-illness-with-kat-hill-and-nancy-peate

In this episode, registered dietician and nutritionist Jess Schroeder discusses:

Weight loss and weight gain
Constipation
Increased sugar cravings
Gastric emptying
The “right” diet for Parkinson’s
Troubles with chewing and swallowing
Timing of food intake
Types of food for exercise
Food and its relationship to sleep
Eating well in assisted living and/or skilled nursing facilities
Creating an eating schedule and routine

For mentioned links, related resources, the video recording, and more visit: http://davisphinneyfoundation.org/podcast-nutrition-and-parkinsons-with-jessica-schroeder

In this episode, professional dancer, Founder of PD Movement Lab, and person with Parkinson’s Pamela Quinn talks about:

Her story of diagnosis
How she followed her own gut in her management of the diagnosis
Her balance of using medications and lifestyle choices to manage her Parkinson’s
Her organization, PD Movement lab, and its class/course offerings
The importance of taking charge of your diagnosis

For mentioned links, resources, the video recording, and more visit: http://davisphinneyfoundation.org/podcast-dancing-movement-medications-and-living-well-with-parkinsons-with-pamela-quinn

In this episode, Dr. Salima Brillman discusses:

The what and why of nOH (neurogenic orthostatic hypotension)
Treatments for nOH
In the moment tricks for managing nOH episodes
How to talk to your doctor about your symptoms
The effect of food and lifestyle choices on nOH

Click here for the accompanying blog post to this episode where you will find any mentioned links and resources, the video recording, and more.

In this episode, Dr. Aaron Haug discusses:

How Parkinson’s is diagnosed
The non-motor symptoms of Parkinson’s
What’s happening in the brain to cause Parkinson’s symptoms
Common initial treatment options
The team approach to treating Parkinson’s
Lifestyle changes to manage Parkinson’s
Which online resources to trust
Why to consider participating in research
Most important advice for someone newly diagnosed

Click here for the accompanying blog post where you can find the mentioned links, additional resources, the video recording, and more.

Episode Description:

In this episode, panelists from our monthly Living with Parkinson’s Meetup discuss:

The what and why of falling and freezing of gait in Parkinson’s
The panelists’ experience with falling
Strategies to prevent falling
How music can be used to prevent falls
Living alone and falling
An overview of balance issues and what to do about them

Click here for the accompanying blog post for this episode to find the transcript, mentioned links, video recording, and more.

In this episode, Terri Pease, a care partner to her husband Peter until his passing talks about:

Letting go of the feeling of “mutuality”
Learning to embrace reality
Why Parkinson’s is a couple’s disease
How to adapt when the plan you had for your life changes
The difference between self-care and after care
Handling anger

For mentioned links, additional resources, and the video recording visit: http://davisphinneyfoundation.org/podcast-terri-pease

In this episode, Dr. Joanne Hamilton discusses:

The difference between a bad mood and a clinical mood disorder
Not pathologizing normal emotions
Depression versus a typical grieving period after receiving a diagnosis
Depression versus anxiety and the symptoms of each
Suicidal ideation and signs to look for that indicate seriousness
Who to seek treatment from and where
Exercise and socialization as the number one treatment
The what and why of anxiety in Parkinson’s
Treatment options for depression, anxiety, and mood changes
The what and why of apathy
If talk therapy may be right for you

Visit the blog post for this episode here to find mentioned links, related resources, the video recording, and more.

In this episode, Jan and her husband Bill Grimes share:

How their life has changed since Jan got diagnosed with Parkinson’s
How Jan redefined her identity as a pianist and full-time LSU faculty when symptom severity started to increase, and she chose to retire
How Jan sees Parkinson’s as a blessing
Her newly defined hobbies and passions, including sewing and poetry
How Jan and Bill work together as a partnership to navigate Parkinson’s

Visit the blog post for this episode here to find mentioned links, related resources, the video recording, and more.

In this episode, Dr. Dylan Wint, Director of the Cleveland Clinic Center for Brain Health and a board-certified physician in Neurology, Psychiatry, Behavioral Neurology, and Behavioral Psychiatry, discusses:

The common misunderstanding that psychosis is always connected to mental health conditions like schizophrenia and bipolar disorder
The connection between sleep and psychosis
Talking to your neurologist about psychotic symptoms
Pharmacological and non-pharmacological treatments
The relationship between psychosis and dementia
Reducing the fear of psychosis
How to calm your spouse/partner during a delusion
Tracking mitigating factors that may contribute to psychotic episodes
Common Q & A

Visit the blog post for this episode here to find related resources, the video recording, and more.

In this episode, Dr. Dylan Wint, Director of the Cleveland Clinic Center for Brain Health and a board-certified physician in Neurology, Psychiatry, Behavioral Neurology, and Behavioral Psychiatry, discusses:

The definition of Parkinson’s disease psychosis and what causes it
The difference between complex, simple, insightful, and non-insightful hallucinations
Common types of delusions and hallucinations in Parkinson’s
Risk factors for Parkinson’s disease psychosis
The relationship between medications and Parkinson’s disease psychosis
The prevalence of Parkinson’s disease psychosis
What to do when someone is experiencing psychosis
Things to help reduce psychotic episodes
When to seek help for psychotic symptoms

Visit the blog post for this episode here to find related resources, the video recording, and more.

In this episode, the Living with Parkinson’s Meetup panelists discuss:

The importance of self-compassion
Asking for help
Symptoms worsening during menstruation
Finding things that reinvigorate you
Suicidal ideation
Negative self-talk, mindfulness, and breathing

Visit the blog post for this episode here to find related resources, the video recording, and more.

In this episode, the Living with Parkinson’s Meetup panelists discuss:

The fact that Parkinson’s does progress, and treatments and techniques begin to lose their efficacy
The need to slow down and do less due to Parkinson’s symptoms
The importance and art of pivoting, a necessary skill when you have a progressive disease
The urge to talk less and begin to isolate when symptoms worsen
The importance of not comparing yourself to those around you, as difficult as it is
Learning self-care

Visit the blog post for this episode here to find related resources and more.

In this episode, Heather Kennedy, a person with Parkinson’s who has been living with the diagnosis for 12 years discusses:

Three articles she’s recently written called “Gifted”, “Poison for Breakfast”, and “Sweating it Out”
Her journey with Deep Brain Stimulation (DBS)
The difficulty of unpredictable ON and OFF times in Parkinson’s and how those times impact relationships
How her views have changed since the initial days of her diagnosis
The difficulty of discerning between symptoms that are due to Parkinson’s, medications, or something else entirely
The burden of explaining Parkinson’s to those who don’t understand
The importance of having compassion for people with Parkinson’s and nurturing that compassion in all areas of life

Visit the blog post for this episode here to find related resources, the video recording, and more.

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In this episode, Living with Parkinson's Meetup panelists, Sree Sripathy, Kevin Kwok, Tom Palizzi, Kat Hill, Robynn Moraites, and Heather Kennedy as well as guest Bradley McDaniels discuss:

The research connecting loneliness and quality of life
Common reasons you might become lonely
How to find meaning and community
The feeling of wanting to “give up” with Parkinson’s
Ways to get involved
How to get connected in rural communities
What to do when you try to connect and it doesn’t work
The importance of the quality of your relationships

For the video recording, associated resources, and more visit: http://davisphinneyfoundation.org/podcast-recording-the-value-of-meaning-purpose-and-community-in-parkinsons

In this episode, panelists Yasar Torres-Yaghi (movement disorder specialist), Amanda Craig (occupational therapist), and Joe Van Koeverden (person with Parkinson's), discuss how to manage motor symptoms during OFF times in Parkinson's. In particular they discuss:

What is an OFF time?
Distinguishing OFF times from other “feelings”
The impact of stress on OFF times
How to adapt your home for OFF times
Optimizing your medications
Non-motor symptoms associated with OFF times
Rescue meds/rescue therapy
Rational polypharmacy
On demand and as needed medications
Planning your schedule around OFF times
Having a realistic expectations of tasks
Taking brain breaks
Can exercise reduce ON times?
Do endorphins have anything to do with OFF times?

For related resources, the video recording of this interview, and more visit: http://davisphinneyfoundation.org/podcast-recording-managing-motor-symptoms-during-off-times

In this episode, Dr. Jay Alberts discusses:

The connection between cognition and freezing of gait
What you can do to improve your cognitive and physical skills
Music’s impact on walking and freezing of gait
Deep brain stimulation
The importance of managing postural instability and freezing of gait
Assistive devices
LSVT Big programming
Dizziness and postural instability
Festination of gait
Laser canes & the importance of physical therapy
Suggestions for a hunched back
Strength training
Retraining your brain to address freezing
The "right" amount of exercise
Causes of increased fall risk
Boxing
Stairs and freezing of gait
Anxiety and freezing of gait

For additional resources visit the accompanying blog post for this episode: http://davisphinneyfoundation.org/podcast-recording-freezing-of-gait-postural-instability-and-exercise-in-parkinsons

In this episode, Living with Parkinson’s Meetup (formerly the YOPD Council) panelists discuss:

Common hurtful phrases they hear from people without Parkinson’s including, “I know how you feel” and “everybody’s got something”
The importance of “listening for the love”
The fact that many hurtful comments come from the people we love and can often stem from misunderstanding
How to use hurtful comments as a teaching moment
Communicating to others that Parkinson’s doesn’t always have to be the topic of conversation
Dealing with people who try to ascribe meaning to their Parkinson’s, who don’t understand the non-motor symptoms they struggle with, and who misinterpret going on disability
Being asked to “stop shaking” during medical appointments
When and how to share your Parkinson’s diagnosis with others
How to explain the “inconsistencies” with Parkinson’s
Their favorite things that people without Parkinson’s have said

Visit the accompanying blog post for this episode here: http://davisphinneyfoundation.org/podcast-recording-what-not-to-say-to-a-person-with-parkinsons

In this episode, movement disorder specialist, Dr. Suketu Khandhar discusses:

The neurological cause of motor symptoms
Slowness of gut
The subtypes of Parkinson’s
Toe curling dystonia
How to best prepare for your neurologist/movement disorder specialist visit
The link between the severity of motor symptoms and non-motor symptoms
The progression of motor symptoms
Exercise to improve motor symptoms
Supplements & nutrition
How to decrease fatigue
How to treat double vision and visual spatial issues

For the video recording, mentioned resources, and more, visit: http://davisphinneyfoundation.org/podcast-recording-the-what-and-why-of-parkinsons-motor-symptoms-and-how-to-manage-them

In this episode, author, filmmaker and producer, and retired broadcast journalist, Dave Iverson shares:

Why he chose to write the book Winter Stars about his journey as a caregiver rather than his own Parkinson’s diagnosis
The roller coaster ride of navigating the emotional states that come along with caregiving
The irrelevance of the truth and being right when dealing with caregiving
Caregiving for a person with dementia
What’s at the heart of being a caregiver
The value of caregivers in our society
Contending with grief throughout the process of caregiving
Taking care of yourself as a caregiver
The caregiving experience and its impact on your own concern for your future
“Playing the scene you’re in”

For the video recording, mentioned resources, and more, visit: http://davisphinneyfoundation.org/podcast-recording-a-conversation-with-dave-iverson-on-being-a-full-time-caregiver-for-ten-years

In this episode, panelists Juwairiya Syed, Bud Rockhill, Barb Ankenman, Mary Gail Anderson, John Paul Lederach, and Angela Robb discuss:

Maintaining identity amidst caregiving
The power of gratitude
Communication with your person with Parkinson’s
Being the care partner for a parent with Parkinson's
Involving others in the care partner experience
Not feeling selfish about setting boundaries
Caring for someone with dementia
Getting paperwork in order
The balance between overstepping and understepping when it comes to decision making as a care partner
Balancing caregiving with having children
Full-time care facilities

For the video recording, mentioned resources, and more visit: http://davisphinneyfoundation.org/podcast-recording-managing-the-role-of-parkinsons-care-partner

In this episode, panelists Juwairiya Syed, Bud Rockhill, Barb Ankenman, Mary Gail Anderson, John Paul Lederach, and Angela Robb discuss:

Maintaining identity amidst caregiving
The power of gratitude
Communication with your person with Parkinson’s
Being the care partner for a parent with Parkinson's
Involving others in the care partner experience
Not feeling selfish about setting boundaries
Caring for someone with dementia
Getting paperwork in order
The balance between overstepping and understepping when it comes to decision making as a care partner
Balancing caregiving with having children
Full-time care facilities

For the video recording, mentioned resources, and more visit: http://davisphinneyfoundation.org/podcast-recording-managing-the-role-of-parkinsons-care-partner

In this episode, panelists Soania Mathur, Wayne Gilbert, Robynn Moraites, and Sarah Zenner discuss:

The fact that there’s no such thing as getting “away” from Parkinson’s
Finding the balance between focusing on your Parkinson’s to live well but not letting it define you
Parkinson’s as a “simmering pot”
Being intentional about how you choose to speak about your Parkinson’s
Emotionally accepting your diagnosis
The importance of creating relationships with other people with Parkinson’s
The impact of connection on your health
Living your best life now
Getting engaged in your hobbies
Using a mindful approach to managing your Parkinson’s symptoms
Coping strategies when Parkinson’s is overwhelming
Focusing on the most meaningful things in your life

Find the video recording, mentioned resources, and more at: http://davisphinneyfoundation.org/podcast-recording-getting-away-from-parkinsons

In this episode, Dr. Arun Mathur, a urologist with specialized knowledge of Parkinson's, discusses:

The differences in urinary dysfunction between different neurologic diseases
An explanation of urinary dysfunction
Urinary dysfunction as a potential precursor to Parkinson's
Urinary dysfunction's impact on quality of life
When you should seek treatment
When urinary dysfunction occurs
Non-pharmacological and surgical treatments
DBS and urinary dysfunction
Carbidopa/levodopa’s effect on urinary dysfunction
Pharmacological treatments
Catheterization
Prostate symptoms versus Parkinson’s symptoms

For a video recording, related resources and more visit: http://davisphinneyfoundation.org/podcast-recording-urinary-dysfunction-and-parkinsons

In this episode, Living with Parkinson's panelists discuss:

Packing lists
Airport tips, tricks, and suggestions
The importance of taking your time
Considering if travel is still right for you
Traveling in different ways
Traveling with kids
Considerations, tips, and tricks for the airport and airplane
Bladder control when traveling
Constipation when traveling
Medications while traveling
Planning for the worst case scenario
Considerations when traveling to other countries
The importance of continuing to exercise while traveling
Connecting with others with Parkinson’s when traveling

For the all mentioned resources, a video recording, and additional resources on this topic, visit: http://davisphinneyfoundation.org/podcast-recording-traveling-with-parkinsons

In this episode, Allan Cole, a professor and published author in social work and counseling, and a person living with young onset Parkinson's discusses:

The importance in sharing your story
We is stronger than I
The beginning of Allan’s Story
The choice of when to disclose your diagnosis
Distinguishing between illness and disease
The importance of focusing on the present moment
Remembering that you do have agency
Misperceptions about Parkinson’s
The importance of consultations with the experts
Life can still be good with Parkinson’s
Getting involved in the Parkinson’s community
Mindset and “Meaning Making”
Who am I and who do I want to be?
How do I maintain hope and how can I use Parkinson’s for good?
Focus on your present self and abilities
Embrace your spiritual life, whatever that looks like for you
“Exercising Hope”

For more information on this episode including mentioned links, the video recording, and more, go to: http://davisphinneyfoundation.org/podcast-recording-how-can-i-use-parkinsons-for-good-the-importance-of-community-and-mindset-in-living-well-with-yopd-with-allan-cole

In this episode, social worker Jessica Shurer, discusses:

What self-care for care partners actually means
The complexities of mental health for Parkinson's care partners including anticipatory grief and high levels of unpredictability
The shift in identity when becoming a care partner
The influence of negative self talk
Understanding the signs of depression, anxiety, and caregiver burden
The importance of self awareness to understand when you're experiencing mental health difficulties and what you need to improve them
Finding ways to manage your stress
The importance of connecting with others
Seeking professional help
Empathy versus sympathy
The importance of self advocacy in improving your mental health

Learn more at http://davisphinneyfoundation.org/podcast-recording-for-care-partners-managing-your-own-mental-health-and-well-being

In this episode, Dr. Gregory Pontone discusses:

What mental health, wellness, and well-being really mean
Understanding the definition of mental illness and not over-pathologizing
The circular effect of caring for your mind and body
The most common mental health issues related to Parkinson's: depression and anxiety
Identifying symptoms of depression and/or anxiety in yourself or a loved one
Why people with Parkinson's experience depression
The importance of utilizing multiple pharmacological and non-pharmacological treatments simultaneously
Anxiety and depression during OFF times
Strategies to manage anxiety in the moment
Utilizing telemedicine services
Medications for anxiety and those to be cautious of
Anxiety's impact on motor symptoms
Involving family and friends in your treatment
CBD as a treatment for anxiety and depression
The importance of exercise in improving mental health
Apathy and how to manage it

Visit http://davisphinneyfoundation.org/podcast-recording-managing-depression-and-anxiety-with-greg-pontone

In this episode, David Leventhal, a program director and founding teacher of Dance for PD, a dance program for people with Parkinson's, talks to us about how the elements of dance translate to living well with Parkinson's.

Contact us anytime at blog@dpf.org

Find all the links, resources, and additional materials mentioned during today's episode on our Parkinson's Podcast Blog: http://davisphinneyfoundation.org/podcast-recording-think-like-a-dancer

In this episode, Dr. Jori Fleisher discusses a very prevalent but rarely talked about symptom of Parkinson's, pain. Dr. Fleisher discusses how pain is detected in the body, the types of pain experienced by the body, and how you can manage pain in Parkinson's.

Contact us anytime at blog@dpf.org

Find all the links, resources, and additional materials mentioned during today's episode on our Parkinson's Podcast Blog: http://davisphinneyfoundation.org/podcast-recording-pain-in-parkinsons

In this episode, Dr. Lucy Norcliffe-Kaufmann, an expert in autonomic dysfunction in Parkinson's speaks to the numerous aspects of Parkinson's symptoms of the autonomic system, including an inability to sweat, dry eyes, constipation, sexual dysfunction, issues in blood pressure, drooling, and more. She explains why these symptoms occur and what you can do to manage them to live better with Parkinson's.

Contact us anytime at blog@dpf.org

Find all the links, resources, and additional materials mentioned during today's episode on our Parkinson's Podcast Blog: http://davisphinneyfoundation.org/podcast-recording-autonomic-dysfunction

In this episode, we talk to Dr. Benzi Kluger about many of the myths you may have read regarding Parkinson’s, the proliferation of medical bullsh*t (BS) that’s growing by the minute, and important clues to look out for when it’s time to evaluate the merits of a Parkinson’s article, product, treatment, or cure. For related resources for this episode visit: http://davisphinneyfoundation/podcast-recording-myths-and-parkinsons

In this episode, Allan Cole, Danny Bega, Michael S. Fitts, Arun Mather, and Kent Toland discuss:

Common concerns and challenges
“Plumbing” issues
Erectile dysfunction
Medication strategies
ON times vs. OFF times
Reconciling self-image
Professional transitions, accommodations, and career modifications

For related resources visit: http://davisphinneyfoundation.org/podcast-recording-men-and-parkinsons

In this episode, Kat Hill, Karen Jaffe, Soania Mathur, and Nabila Dahodwala discuss:

Hormonal life stages and Parkinson’s (including premenstrual, pregnancy, and pre-or post-menopausal)
Hormone therapies (particularly estrogen and progesterone) and Parkinson’s
Motor and non-motor symptoms in women with Parkinson’s
Psychosocial and mental health issues in women with Parkinson’s
Relationships and social roles for women with Parkinson’s
Care team considerations and communication

For related resources go to: http://davisphinneyfoundation.org/podcast-recording-women-and-parkinsons

In this episode, we sat down with Mike Studer to talk about neuroplasticity, exercise, sleep, and how important they are to living well with Parkinson’s.

Find related resources here: http://davisphinneyfoundation.org/podcast-recording-neuroplasticity-exercise-and-parkinsons

In the following episode, Kat Hill and Kevin Kwok discuss how the symptoms of Parkinson's can be embarrassing, especially the ones that others can't see, and how they have handled feelings of shame or embarrassment surrounding these symptoms.

For related resources mentioned in this episode and for more information on living well, visit: http://davisphinneyfoundation/podcast-recording-the-embarrassing-side-of-parkinsons

In the following interview, we have a conversation with Dr. Bloem about the book, Ending Parkinson's, about living well with Parkinson’s today, about the hopes for Parkinson’s in the future and much more.

For more information and related resources go to: http://davisphinneyfoundation.org/podcast-recording-ending-parkinsons-living-well-today

Visit www.dpf.org to discover more of what the Davis Phinney Foundation is doing today to help you LIVE WELL with Parkinson's.

In this episode, Dr. Michael Okun shares the latest in 2022 for new and emerging therapies for Parkinson’s.

For more information and related resources go to: http://davisphinneyfoundation.org/podcast-recording-new-treatments-and-therapies-parkinson's

Visit www.dpf.org to discover more of what the Davis Phinney Foundation is doing today to help you LIVE WELL with Parkinson's.

In this episode, panelists Pete Huley, Christa Ingle, Pat Donahoo, and Cidney Donahoo talk about how important effective communication has been in their journey with Parkinson's and the wisdom they've learned.

For more information and related resources go to: http://davisphinneyfoundation.org/podcast-recording-building-stronger-relationships-through-communication

Visit dpf.org to discover more of what the Davis Phinney Foundation is doing today to help you LIVE WELL with Parkinson's.

Listen to chapter 16, “Living Well Today,” and the Appendix, "Detecting Medical Bullshit" of the newest edition of our Every Victory Counts® manual. Living well with Parkinson’s is a choice and a constant effort, but as many people in our community would say, the effort is worth the result. And an important part of living well with Parkinson's is being able to decipher fact from fiction in the Parkinson's world. While there are many emerging therapies and treatments for Parkinson’s, there are also, unfortunately, many unsupported claims and “false” treatments out there as well. In these last two sections of the Every Victory Counts Manual, you’ll get advice on steps you can take right away to begin living well with Parkinson’s, and you'll learn how to vet the Parkinson’s research and stories you hear.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-sixteen-and-appendix-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Listen to chapter 15, “Long-Term Care and Financial Planning,” of the newest edition of our Every Victory Counts® manual. This chapter will break down the what, how, and when of long-term care and financial planning and provide you with resources so you feel confident planning for the future.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-fifteen-every-victory-counts-manualfor related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Listen to chapter 14, “General Health and Wellness,” of the newest edition of our Every Victory Counts® manual. In this chapter you will learn general health and wellness information to remember as you navigate your Parkinson’s, such as the importance of regular dental, vision, and skin screenings. It also explains how Parkinson’s may impact your vision, oral health, and skin, and how to ensure you stay on top of your preventative care routines.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-fourteen-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Listen to chapter 13, “Social Connections, Relationships, and Community,” of the newest edition of our Every Victory Counts® manual. In this chapter you will discover how social connections, relationships, and community can be just as important as the medications you take, as well as how to nurture those relationships while managing the complexities of Parkinson’s.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-thirteen-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Listen to chapter 12, “Emotional Health,” of the newest edition of our Every Victory Counts® manual. This chapter discusses the mind-body connection, how to improve your emotional health through volunteerism, mindfulness, and connection, and other strategies to manage your emotional health and overall well-being.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-twelve-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Listen to chapter 11, “Nutrition,” of the newest edition of our Every Victory Counts® manual. This chapter will teach you what you need to know about nutrition and Parkinson’s, as well as provide you tools to decide which nutritional choices are best for you.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-eleven-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Listen to chapter 10, “Complementary Therapies,” of the newest edition of our Every Victory Counts® manual. Living well with Parkinson’s requires a multi-dimensional approach, and while conventional medicine for the symptoms of Parkinson’s has come a long way, there are now more options than ever to live well with Parkinson’s. In this chapter, learn about many of the complementary therapies available and how they can help you live well with Parkinson’s.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-ten-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Listen to chapter nine, “Exercise,” of the newest edition of our Every Victory Counts® manual. This chapter will review the importance of exercise in Parkinson’s, the type and intensity of exercise that might work for you, and how to create and stick to an exercise routine.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-nine-every-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Listen to chapter eight, “Surgical Therapies,” of the newest edition of our Every Victory Counts® manual. As Parkinson’s symptoms progress, surgical therapies may be considered to help manage symptoms and improve quality of life. This chapter gives an overview of the current surgical therapies available, when an appropriate time may be to receive such therapies, and other important information to consider. Go to https://davisphinneyfoundation.org/podcast-recording-chapter-eight-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Listen to chapter seven, “Medication,” of the newest edition of our Every Victory Counts® manual. Medications for managing your Parkinson’s should always be discussed with your neurologist or movement disorder specialist, but this chapter will give you an in-depth look at the many medication options available to you for various symptoms, as well medication side effects and interactions to be aware of.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-seven-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Listen to chapter six, “Autonomic Non-Motor Symptoms,” of the newest edition of our Every Victory Counts® manual. This chapter looks at the symptoms of Parkinson’s that relate to autonomic systems of the body, as well as strategies to manage them. These symptoms include things like drooling, constipation, pain, sweating, and fatigue, along with others. Remember that symptoms show up differently for every person with Parkinson’s, and the symptoms that will be discussed may or may not be present for you.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-six-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Listen to chapter five, “Cognitive Non-Motor Symptoms,” of the newest edition of our Every Victory Counts® manual. This chapter explores the cognitive symptoms that might be associated with Parkinson’s, such as difficulties in speech, comprehension, and memory. It also includes in-depth information about Parkinson’s disease psychosis (hallucinations and delusions) and impulse control disorders. Go to https://davisphinneyfoundation.org/podcast-recording-chapter-five-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Listen to chapter four, “Non-Motor Symptoms (Emotional),” of the newest edition of our Every Victory Counts® manual. This chapter dives into the emotional symptoms you might experience with Parkinson’s, such as depression, anxiety, or apathy, as well as strategies and treatments to manage them. Go to https://davisphinneyfoundation.org/podcast-recording-chapter-four-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Listen to the third chapter, "Motor Symptoms," of the newest edition of our Every Victory Counts® manual. This chapter explains the common motor symptoms of Parkinson’s as well as strategies to manage them. Go to https://davisphinneyfoundation.org/podcast-recording-chapter-three-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today. Email blog@dpf.org with any questions, comments, or concerns and to participate in the competition related to this series.

Listen to the second chapter, "Parkinson's 101" of the newest edition of our Every Victory Counts® Manual, 6th Edition. This chapter gives a brief overview of the most common questions of Parkinson's such as... What is Parkinson's? Who gets Parkinson's? What are the treatment options for Parkinson's? And many many more. Email blog@dpf.org to participate in the competition related to this series. Go to https://davisphinneyfoundation.org/podcast-recording-chapter-2-parkinsons-101-from-the-every-victory-counts-manual-6th-edition for related resources and to order your Every Victory Counts manual today.

This is chapter one of the Every Victory Counts® Manual, 6th edition entitled "You Have Parkinson's, Now What?" Receiving a Parkinson's diagnosis can be overwhelming and an emotional roller coaster. This chapter begins to address the top things you need to know about your Parkinson's diagnosis to begin to move from shock, awe, and fear, to having the confidence in knowing you can live well with this diagnosis. Email blog@dpf.org to participate in the competition related to this series.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-one-the-every-victory-counts-manual-6th-edition for related resources and to order your Every Victory Counts manual today.

Listen to the introduction of the Every Victory Counts manual 6th edition, featuring a foreword by Bas Bloem, an explanation of how to use this manual and inspiration to live well today with Parkinson's.

Go to https://davisphinneyfoundation.org/podcast-recording-introduction-the-every-victory-counts-manual-6th-edition for the show notes and additional resources for today's episode.

Listen to hear what's coming next for the Podcast in 2022!

Linda Olson, a triple amputee, person with Parkinson's, author, and motivational speaker shares her story of the challenges she's overcome and how she continues to live well each and every day through optimism, hope, and perseverance.

For additional information and resources go to:

https://davisphinneyfoundation.org/podcast-recording-story-inspiration-hope

The non-motor symptoms of Parkinson's are vast and vary greatly from person to person, which means that treatment options are expansive as well.

In this episode, Dr. Aaron Hang gives a short overview of the most common non-motor symptoms and the primary medical and non-pharmacological options to treat them.

In this episode, The YOPD Council discusses depression, anxiety, and how to cope with "dark" days as a follow up to a conversation they had last month on Non-Motor Symptoms.

When a drug is added or removed from a formulary list, your insurance's coverage of the medication may change. In this interview with Derek Arnold, he explains what formularies are, how they work, and what you can do when your medication is no longer covered.

For more information about formularies and resources related to this episode, go to: https://davisphinneyfoundation.org/podcast-recording-what-you-need-to-know-about-formularies

In this episode, The YOPD Council discusses their experience with the unseen non-motor symptoms of Parkinson's.

For show notes, resources, and to sign up for the YOPD Council live, go to: https://davisphinneyfoundation.org/podcast-recording-yopd-council-non-motor-symptoms

Deep brain stimulation (DBS) is a highly effective and reasonably safe treatment for Parkinson’s; however, it’s also frequently misunderstood. The success stories about how people are sometimes living symptom and medication-free as a result of getting DBS understandably lead many to want to get the treatment as soon as possible. Others think it sounds scary and shy away from it. During this webinar, Dr. Joohi Jimenez-Shahed broke down the what, why, and how of DBS and its latest advancements.

There is ample evidence that shows that including exercise, good nutrition, socialization, and more can help people with Parkinson’s manage their symptoms, improve mood, and live well for many years. Yet exercise, eating, and social habits look vastly different for different people, and without addressing this cultural context, accessibility barriers can keep people from integrating these practices to improve their quality of life.

In this episode Dr. Indu Subramanian and Dr. Greg Pontone dig into what it means to apply a cultural context and how the Parkinson’s sector can implement changes to support more people in their pursuit of living well.

Movement disorder specialist Cherian Karunapuzha, MD, (better known as "Dr. K") discusses definitions relating to constipation, causes of constipation, treatments for constipation, how constipation can impact your medication absorption, constipation's connection to other symptoms, and more.

During this session, our YOPD Council leaders discuss regaining confidence after losing it in personal, professional, and social settings with the onset of symptoms in young onset Parkinson's.

Neurologist and Georgetown University Educator Yasar Torres-Yaghi explains OFF times in Parkinson's and how to manage them in easy to understand, relatable, and actionable terms.

To learn more about this podcast, go to https://davisphinneyfoundation.org/podcast-recording-off/ ‎

Parkinson's disease dementia (PDD) is a term used for dementia that develops after several or many years of living with Parkinson's. In nearly all cases of Parkinson’s, people experience motor symptoms in the early stages; some may also have mild changes in cognition at diagnosis. Over time, though, non-motor symptoms of Parkinson’s may get so problematic that they are much more debilitating than motor symptoms ever are. Not all people with Parkinson’s will develop dementia, but for those who do, it can be a very difficult symptom to live with.

In this episode, Dr. Rodolfo Savica from the Mayo Clinic shares his expertise from over two decades of experience working with people with dementia.

Approximately 50-60% of people living with Parkinson’s experience varying levels of depression and anxiety. It’s important to know the difference between these common mood disorders so you can accurately explain how you’re feeling to your doctor and get the care you need. During this webinar, Roseanne Dobkin, PhD, discusses depression, anxiety, and apathy; the causes and treatments of them; and much more.

During this session, our YOPD Council leaders answered YOUR questions. This month's YOPD Council discussed:

Finding meaning and purpose in your life post-diagnosis
How to deal with the highs and lows of living well with Parkinson’s
Tips on medications and deep brain stimulation
Finding community and building support systems

Living well with Parkinson’s takes support – from our families, communities, healthcare professionals, workplaces, government, and more. When those systems are compromised due to systemic oppression, bias, or lack of inclusion, health outcomes are compromised. In this webinar, Wissam Deeb, MD, and Nicole Rosendale, MD, help us understand how issues faced by the LGBTQ+ community show up in Parkinson’s care and how we can increase awareness and create more inclusive spaces to address inequities.

One of the most common questions we’re asked is this: “What should I eat now that I’ve been diagnosed with Parkinson’s?” The answer is that there is no one answer. Just as each person with Parkinson’s experiences different symptoms, each person reacts differently to different types of diets. During this session, our panel members, along with registered dietician and Davis Phinney Foundation Ambassador, Marty Acevedo, will talk about food as medicine.

If you’ve been living with Parkinson’s for a while, chances are good that you’ve either heard about how beneficial boxing is for people with Parkinson’s, or you’ve attended many boxing classes yourself. But how familiar are you with the latest and greatest research about boxing and Parkinson’s? In this webinar, our panel members, John Dean, Josefa Domingos, and Sara Rigarre shared specifics about the research they’ve conducted and described the effects of Parkinson’s severity and duration of boxing training on changes in balance, mobility, and quality of life for people living with mild or moderate to severe Parkinson’s.

In this genuine, inspiring, and relatable conversation, past professional athletes, Brian Grant and Davis Phinney talk about their experiences as athletes receiving a Parkinson's diagnosis, their difficulties in accepting the physical and mental challenges that have occurred with the progression of their Parkinson's, and how and why they are passionate about living well with Parkinson's each and every day.

Receiving a Parkinson’s diagnosis when you’re young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges.

In this panel discussion, the YOPD Women's Council discusses sex, intimacy, love, dating, and all topics related to relationships.

In Angela Duckworth’s book Grit, she examines why some people succeed and others fail, and why talent is hardly a guarantor of success. During this webinar we will discuss whether human behavior is constant or circumstantial, how behavior change really happens, the mindsets that help people succeed regardless of challenges, and what Angela learned from having a father who lived with Parkinson’s.

Since 2020, the COVID-19 pandemic has exposed the myriad ways that structural racism and oppression affect healthcare and health outcomes, including wellbeing and quality of life. These same systemic issues plague the Parkinson’s community and result in care inequities and disparities that disproportionately affect people of color, women, people with limited English proficiency, and more.

In this conversation, Nicte I. Mejia, MD, MPH, FAAN, and Aswita Tan-McGrory, MSPH, discussed how these systems of racism and oppression affect our community, and how we can take these learnings and create the change needed to ensure all people can live well with Parkinson’s.

The human body was built to work in partnership with the sun. Its light can transform our moods, focus, sleep, energy levels, immune systems, bone density, and mental health. As a result, spending time in the sun can be particularly beneficial to people living with Parkinson’s who experience symptoms like depression, apathy, poor sleep, pain, and fatigue. During this session, our YOPD council members discuss all the ways sun and light help them live well with Parkinson’s.

Living alone while living with Parkinson’s can be a blessing or a curse. Some people love their independence and love being able to direct their days all on their own. For some, not having a live-in care partner, family member, or roommate is lonely and a hardship.

During this webinar, we talked to five people, Michael Fitts, Allyson Kinney, Michael Fahning, Gerrie Blavat, and Brian Reedy, who are living alone with Parkinson’s, some by choice and others not. They shared their stories and offered ideas and advice on how to live alone and well with Parkinson’s.

Receiving a Parkinson’s diagnosis when you’re young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges. In this panel discussion, our YOPD Women's Council talked about the added challenges women living with Parkinson’s face as it relates to contraception and pregnancy.

Did you know that dementia in people diagnosed with young onset Parkinson's disease (YOPD) looks different than dementia in those diagnosed with later-onset Parkinson’s? In this webinar, Dr. Rodolfo Savica, MD, PhD, and YOPD Council Leader Tom Palizzi discussed dementia: what it is, how it develops, and its relationship to Parkinson's, as well as some distinct differences between YOPD and later-onset Parkinson's.

Receiving a Parkinson’s diagnosis when you’re young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges. In this panel discussion, our YOPD Women's Council and special guest Dr. Karen Jaffe, MD, talked about the added challenges women living with Parkinson’s face as it relates to menstruation, menopause, and hormones.

Racial differences in Parkinson’s treatment and mortality exist. When it comes to addressing these disparities, the concept of trust comes up in nearly every conversation. But what do we really mean when we talk about trust? In this conversation, Dr. Altaf Saadi and Dr. Consuelo H. Wilkins will examine the concept of trust, what we mean when we talk about trust, and how trust is necessary to address health disparities.

In the book How to Live Well with Chronic Pain and Illness: A Mindful Guide, author Toni Bernhard addresses a broad range of topics and how the practices of mindfulness, equanimity, and self-compassion can make life as good and joyful as possible in the face of a diagnosis like Parkinson’s.

During this webinar, Toni discussed what she’s learned about living with chronic pain and illness and how to live well no matter what obstacles you are facing.

Imagine if you had access to your doctor or movement disorder specialist via a computer was just a few clicks away. Or you could have an appointment via the phone in the comfort of your own living room.

Telemedicine makes that possible.

Our YOPD Council leaders discussed:

Parkinson's and its effect on their perspectives of death
Strategies for managing feelings of loss
How to effectively prepare for end-of-life and live well in the moment NOW
How to have conversations with your loved ones about death
How to re-channel your energies on things that bring you hope

Our YOPD Women’s Council and special guest Kathleen Reardon discussed:

The road to their Parkinson’s diagnosis
The differences between men and women when it comes to symptoms and medications
The importance of advocating for yourself and finding the right doctor
Finding joy through new creative pursuits

In this panel discussion, our YOPD Women's Council and special guests Dr. Jill Farmer and Vicki Dillon discuss everyone's unique journey with medications; the many types, classes, and possible side effects of Parkinson's medications; and the importance of trying a variety of medication combinations until you find the best fit for you.

In this webinar, a panel of Parkinson’s organization leaders serving people across the US discussed common issues that exist within urban communities and rural communities alike, common assumptions and misunderstandings about rural and urban communities, what policy makers and other decision makers miss most often when it comes to addressing the unique needs of our communities, and what leaders and Parkinson’s advocates can do TODAY to help address health disparities like these that may exist in their own communities

Speech and voice impairments are common among people living with Parkinson’s. As many as 90% of people with Parkinson’s experience difficulties such as “hypophonia” (soft speech) or a more monotone, raspy, or breathy voice. Speech can become less intelligible and can make communication difficult, especially if paired with facial masking (a decrease in facial expression). It will come as no surprise then that speech and voice impairments can impact quality of life.

Speech and Language Pathologist John Dean recently sat down with us to discuss the various speech challenges related to Parkinson’s and actions you can take every day to train your voice, improve your speech, and communicate more fluidly and clearly.

In this final chapter, we share ways to plan for the financial impact of Parkinson's, as well as advice about long-term care planning for people with Parkinson's.

Learn how to navigate changing relationships within the family after a Parkinson's diagnosis and as it progresses.

Care partners are essential members of the wellness team for a person with Parkinson's. Learn how to balance the many aspects of being a Parkinson's care partner, how to manage stress and avoid caregiver burnout, how to find and ask for support, and more.

Hear in-depth information about the Duopa pump, deep brain stimulation, and more.

Here, we share how helping others helps yourself and how creative arts, spirituality, and hope can bring joy to your life.

Learn how to live your best life by managing common Parkinson's symptoms like depression and anxiety through mindfulness, counseling, and other wellness activities.

What to know before checking in, what to ask before discharge, tips from individuals with Duopa or Deep Brain Stimulation, and information about medical alert bracelets.

Learn how changes to your diet can help manage certain symptoms, how protein can interfere with medications, and more.

Learn tips to live well with Parkinson's in any stage and with any symptoms. Here, we share advice on self-care; preventative screenings; dental, bone, heart, and vision health; fatigue; sleep issues; cognitive concerns; constipation; and more.

Listen to an overview of Parkinson's medications followed by detailed information about treatments for motor and non-motor symptoms.

Learn why exercise is medicine and the many ways it can help you live your best life with Parkinson's.

Learn how physical, occupational, speech-language, and creative therapies (and more) can help you live well with Parkinson's.

Hear tips for navigating a Young Onset Parkinson's diagnosis and the accompanying concerns about employment, family life, finances, and more.

People with Parkinson's often say that their non-motor symptoms are more life-altering than symptoms like tremor and rigidity. Learn more about symptoms such as depression, anxiety, sleep disturbances, hallucinations, nOH, and more.

Listen here for more details about common motor symptoms, balance issues, and fall prevention.

Take a deep dive into workplace issues, disability options for people with Parkinson's, legal processes, and balancing work with family and relationships.

Here, we share advice about assembling your wellness team, the importance of self-efficacy, managing emotions, participating in clinical trials, and initial treatment.

Learn more about Parkinson's and how it's diagnosed, as well as what symptoms might occur and how Parkinson's changes over time.

Stepping into the role of Parkinson's care partner is a big change and often a significant stressor. And as time goes by, it’s easy to become so focused on your person with Parkinson’s that you put your own needs on the back burner. This can lead to caregiver burnout or in its extreme, compassion fatigue, where you become overwhelmed physically, emotionally, spiritually, and socially to the point where you’re unable to care for yourself or others.

If you’ve been living with Parkinson’s for any length of time, you’ve probably heard the terms holistic care, supportive care, or palliative care. But you may not know what they mean when it comes to your care, now and in the future. Dr. Christopher Tarolli recently joined us to talk about palliative care and how it is ideal for people living with Parkinson’s.

In this episode, you'll learn what new results in psychological science teach us about how to be happier, how to feel less stressed, how to flourish more no matter your situation, and ideas for “rewirement” activities to help you create new happiness habits, boost your mood, and improve your overall well-being.

In 2006, physical therapists Lee Dibble, Terry Ellis, and Gammon Earhart received funding from the Davis Phinney Foundation for the CHOP PD study, in which they hoped to lay a foundation for subsequent exercise trials that would show how exercise and physical activity can improve quality of life (in addition to many other benefits) for people with Parkinson’s. They recently joined us to talk about their research and how physical therapy can play a significant role in helping people live well with Parkinson’s.

Dyskinesia is an uncontrolled, involuntary muscle movement that is irregular in motion. Although it can be a stand-alone condition, in people with Parkinson's, it is most often associated with long-term use of levodopa or other Parkinson's medications that increase levels of dopamine in the brain. Learn how to live well with it.

Parkinson’s can affect sleep in many ways, ranging from trouble falling or staying asleep at night to excessive sleepiness during the day. Good sleep boosts everything from your mood to your ability to think and process to your physical movement. Understanding sleep problems and Parkinson’s is often the first step you can take to enhance your sleep.

In this podcast, Dr. Postuma discusses:

What causes sleep problems in Parkinson’s
The difference between sleep changes related to aging and those related to Parkinson’s
The difference between sleepiness and fatigue
The connection between sleep and medication
Different types of sleep disorders (somnolence, insomnia, REM sleep behavior disorder) and how to treat them
And much more!

For this series, Kelsey Phinney shares what she's learned through self-exploration and conversations with her dad Davis Phinney to create a guided meditation series especially for people with Parkinson's.

For this series, Kelsey Phinney shares what she's learned through self-exploration and conversations with her dad Davis Phinney to create a guided meditation series especially for people with Parkinson's.

For this series, Kelsey Phinney shares what she's learned through self-exploration and conversations with her dad Davis Phinney to create a guided meditation series especially for people with Parkinson's.

For this series, Kelsey Phinney shares what she's learned through self-exploration and conversations with her dad Davis Phinney to create a guided meditation series especially for people with Parkinson's.

For this series, Kelsey Phinney shares what she's learned through self-exploration and conversations with her dad Davis Phinney to create a guided meditation series especially for people with Parkinson's.

For this series, Kelsey Phinney shares what she's learned through self-exploration and conversations with her dad Davis Phinney to create a guided meditation series especially for people with Parkinson's.

For many living with Parkinson's, DBS has the power to reduce or eliminate OFF times, reduce the frequency and dose of medications, and dramatically improve quality of life.

In this podcast, learn the what, when, why, how, and more of DBS from movement disorder specialists who recommend it, surgeons who perform it, companies that make the devices, and someone who has been living with it for over five years.

Kelsey Phinney sits down with her mom Connie Carpenter Phinney to talk about compassion and resilience and how to stay resilient as a Parkinson's care partner.

Davis Phinney has been living with Parkinson's for over 20 years. In this episode, his daughter, Kelsey, walks through some vocal exercises to help improve his tone and projection.

Dr. Maya Katz describes the full spectrum of palliative care for people living with Parkinson's and the importance of being more precise in our language so that the people who would benefit from it are not scared away by it.

The symptoms of depression are very common in people with Parkinson's. In fact, depression is probably one of the most common non-motor symptoms of Parkinson's and some studies suggest that over half of people living with Parkinson's experience symptoms of depression. In this episode, Dr. Mark Mapstone talks about the symptoms of depression and how it's diagnosed, how depression is treated and the other rarely talked about psychological symptoms people with Parkinson's often face.

Since 2003, Dr. Jay Alberts has been researching the role that cycling has on reducing the symptoms of Parkinson's. It all began when he rode a tandem bike across Iowa (RAGBRAI) with a person with Parkinson's. In this episode, he talks about his experiences working with people with Parkinson's through outdoor cycling and how he's bringing it into the lab to further his research and help even more people live well with Parkinson's.

The crux of the problem in Parkinson's is the cell death of neurons in the brain that produce dopamine. In this episode, Dr. Trevor Hawkins talks about the three main types of medications used to treat the motor symptoms of Parkinson's and how to make up for the cells that have already died off.

Parkinson’s impacts the whole family, especially those most involved in the day-to-day care of the person living with Parkinson's. In this episode, Conne Carpenter Phinney shares her journey as a care partner to her husband, Davis Phinney, and the very practical strategies she uses on a daily basis to stay healthy, connected and present.

If you've been newly diagnosed with Parkinson's, you'll love the advice, encouragement and positivity that Jill offers. She's living proof that even though there are likely to be some very difficult times, there are fabulous days ahead as well.

If you or someone you know has been diagnosed with Parkinson's, you may be feeling overwhelmed, devastated, angry, confused or all of the above.

If you suspect you have Parkinson's, but you haven't received an official diagnosis, you may be frustrated by the process and wondering what really goes into a diagnosis.

In either case, this podcast episode is for you.

Parkinson's is complicated. Everyone who lives with it seems to present with their own unique set of symptoms, and they treat it with their own unique blend of medications, interventions and behaviors.

However, even if it shows up differently for everyone, what's going on in their brain is similar. In this podcast, Kelsey Phinney breaks down the neuroscience of Parkinson's, what causes it and what it's like to be a care partner for someone living with it.

What is it really like to grow up with a parent who has Parkinson’s? Well, just like with everything else about Parkinson’s, it depends.

That’s why we wanted to hear from those who’ve done it. In this podcast, Kelsey Phinney talks to Jacie and Matthew about their experiences as kids of parents who have Parkinson's.

Facial masking is an important symptom of Parkinson’s to pay attention to because it can limit the person's ability to communicate emotion. In this episode, learn one of the easiest and most essential ways of overcoming facial masking.

Facial masking causes a loss of facial expressivity. The muscles of the face lose muscle tone, leading to a seemingly blank expression. In this episode, learn the implications of facial masking and the importance of facial expressions in social interactions, so that we can all better understand how to respond.

This podcast is for people with Parkinson's, Parkinson's care partners and Parkinson's providers. In this podcast, you'll hear from Dr. Benzi Kluger, Connie Carpenter Phinney and Kelsey Phinney talk about how REM Sleep Behavior Disorder impacts people.