AfPA's Patient Access Podcast: Recent Episodes
Alliance for Patient Access
Can patients get what the doctor orders? In AfPA’s Patient Access Podcast, you’ll hear physicians, researchers, patients and advocates hash out the issues that impact access to approved medicines and appropriate health care.
In this episode, Suzanne Staebler, DNP unpacks new data showing that vulnerable infants are denied access to preventive treatment for RSV.
Renowned expert Larry Edwards, MD, explains why history has given gout a bad rap -- and why patients need reliable resources to get the real story.
In this episode, Kathleen Shea explains how her experience with tardive dyskinesia motivated her to create an organization to support other patients with TD.
Modern medicine has changed the way people living with headache and migraine disease can manage their condition. But Carol Barch, MN FNP-BC, explains how insurers’ policies are holding patients back.
Tom Brenna, PhD, has a recommendation for expectant and breastfeeding moms: Don't leave the benefits of seafood on the table.
In this episode, Dharmesh Patel, MD, explains how patient-centered care and prevention can help reverse the rising incidence of heart disease.
Gunnar Esiason, a cystic fibrosis advocate, explains why the Institute for Clinical and Economic Review’s model for determining drugs' value doesn't sit well with patients.
Calli Cook, DNP, explains how combining preventive medications can vastly improve migraine patients' quality of life -- but only if insurers provide adequate coverage.
Jeffrey VanDeusen, MD, PhD, explains how certain policies make it difficult to deliver patient-centered cancer care.
Certain patients with chronic diseases such as diabetes who have high deductible health plans may see some out-of-pocket relief soon. In this episode, John Anderson, MD, talks about the patient experience now and potential implications of a new policy.
In this conversation, Kim Newlin, president of the Preventive Cardiovascular Nurses Association, describes how the nursing profession has changed and the big impact utilization management has on CV patients and their caretakers.
In this episode, former San Diego Chargers placekicker and NFL Man of the Year Rolf Benirschke explains why patients should share their story of gratitude on September 7.
Alliance for Patient Access Chairman David Charles, MD, explains why health care providers must be equipped and ready to advocate for their patients.
Parents whose newborns are ready for hospital discharge sometimes receive discouraging news: Feeding complications require a longer stay. In this episode, advocate Kelli Kelley and neonatal therapist Sue Ludwig discuss why feeding challenges occur—and how they affect babies and their families.
While participating in a clinical trial is free, some patients can't join or complete a trial because of associated costs. David Charles, MD, of the Coalition of Clinical Trials Awareness discusses costs to patients and the big-picture implications to society.
In this episode, AfPA's Amanda Conschafter and Brian Kennedy share stories and findings from the group's first-of-its-kind national study on non-medical switching and quality of life.
When it comes to rising insulin prices, pharmacy benefit managers are “driving the bus,” explains George Huntley. In this episode, George describes the dynamics that continue to push insulin out of patients’ reach.
Similar symptoms, different diseases. Patrick McCartney of the International Essential Tremor Foundation explains how raising the profile of essential tremor can help patients get an accurate diagnosis, gain confidence and find community.
Patients who experience gout attacks – who suffer in agonizing pain – often resist going to the doctor. But they shouldn’t. In this conversation, Christopher Parker, DO, of the Alliance for Gout Awareness dispels myths and reassures patients they can take control of their disease.
It's Respiratory Syncytial Virus season. Do you know the signs? Shanisty Ireland didn't when her six-week-old son Adam contracted the disease. In this episode, Shanisty recalls her family's RSV experience, while Mitchell Goldstein, MD, of the National Coalition for Infant Health shares key risk factors and signs parents should look for.
For years, migraine disease stole time, personal goals, career plans and even Jaime Sanders’ ideal of motherhood. But her condition no longer manages her, she manages it—and she advocates so migraine disease patients can access the innovative medications they need.
Despite taking the same medication for 23 years, Emily Schaller shares the prior authorization battle she and other cystic fibrosis patients fight each January. The Detroit native also explains how the lifestyle she’s adopted has improved her health, and how her insurer's cost-cutting tactics needlessly delay medications, derailing her efforts.
Eileen Attar’s son Brady lives with epidermolysis bullosa, battling constant sores all over his body. When Eileen’s not caring for Brady and treating his wounds, she’s busy fighting her health insurance company to cover the bandages necessary to keep him alive.
In this episode, Frank Lavernia, MD, explains how insulin pricing has evolved, why it’s becoming unaffordable and what that means for diabetes patients. He also describes a new trend in pharmacies’ distribution of insulin pens.
Challenges for cystic fibrosis patients don’t stop with managing their disease. Cystic Fibrosis Research Incorporated’s executive director Siri Vaeth describes providing input to the Institute for Clinical and Economic Review about the value of new cystic fibrosis treatments.
Health plans are questioning doctors' prescriptions, delaying access to medicine and distracting staff from patient care. Adam Friedman, MD, of the Derma Care Access Network explains why enough is enough.
Gout is more painful, prevalent and expensive than you thought. Researcher Kenneth Thorpe, PhD, of the Partnership to Fight Chronic Disease uses Gout Awareness Day to set the record straight.