Summer Foundation podcasts: Recent Episodes
Summer Foundation Ltd
The Summer Foundation podcast series aims to simplify the NDIS for participants, their families and anyone supporting NDIS participants to work their way through the system.
What does the new political landscape mean for people with disability and the future of the NDIS?In this special live episode of Reasonable & Necessary, Dr George Taleporos is joined by an incredible panel of disability leaders – El Gibbs, Trinity Ford, and Anna Burke – to unpack what the election result means for the disability community.
Why are tens of thousands of Australians with disability still being placed in group homes under the NDIS and what can be done about it?In this episode, Dr George Taleporos is joined by Jess Walker and Anna Burke from the Summer Foundation to unpack their new report, Moving Out, Moving On, which calls for urgent reform of housing and living supports under the NDIS.We explore the hidden cost of group homes, the benefits of Individualised Living Arrangements (ILAs), and hear from Bar and Matt, two people who are living proof that a better way is possible.
In this episode of Reasonable & Necessary, Dr George sits down with Louise Glanville, Commissioner of the NDIS Quality and Safeguards Commission, and Natalie Wade, the Associate Commissioner. Together, they discuss the future of the NDIS Commission, the upcoming changes to NDIS regulation and more.
In this episode of Reasonable & Necessary, Dr George Taleporos interviews Minister for the NDIS and Social Services, Amanda Rishworth.They examine Support Needs Assessments, including the rollout timeline. The Minister addresses concerns about funding reductions and outlines the government's commitment to fairness and transparency.The discussion also covers foundational supports, the in and out lists and the importance of individualised living arrangements.With a federal election approaching, the Minister outlines the government's priorities for the NDIS if re-elected.This episode provides valuable insights for NDIS participants, families, providers, and advocates seeking to stay informed about the future of disability support in Australia.
In this in-depth conversation, we learn how a lifelong relationship with a childhood friend sparked One2One CEO Rod Davies’ passion to deliver truly human-centered housing and support solutions for people with disability.Rod takes us through the process his organisation uses for determining the best arrangement for each person and why it’s critical to learn what is most meaningful and valuable for that person.Tune into the latest episode to learn more about why individualised living arrangements are the ‘great opportunity’ of the NDIS.
On this episode of Reasonable & Necessary, Dr George is joined by Rebecca Falkingham, CEO of the National Disability Insurance Agency. In this exclusive interview, they talk through the changes to the NDIS Act that come into effect today and explain what these changes mean for participants. Check it out!
On the NEW episode of Reasonable & Necessary, Dr George meets Dr Sam Bennett from the Grattan Institute to discuss his new report on reforming NDIS housing and support: https://grattan.edu.au/report/better-safer-more-sustainable-how-to-reform-ndis-housing-and-support/ He is also joined by Nicole Cox from MyPlace, an organisation that has been supporting people with disabilities to establish and maintain individualised home and living solutions for almost 30 years. How can we help more people with disabilities escape from group homes and live more inclusive lives in the community? Let’s find out!
On this episode of Reasonable & Necessary, Dr George meets Sam Paior from The Growing Space and Chris Coombes from DSC. They discuss the Government's attempt to redefine what the NDIS will pay for. They examine the draft lists of NDIS supports and consider what should and should not be included. They also discuss some of the unintended consequences of narrowing the definition of an NDIS support.
On this episode of Reasonable & Necessary, Dr George meets with Disability Discrimination Commissioner Rosemary Kayess. They chat about her fight for disability rights on the world stage and what she thinks about changes to the NDIS back home. They also cover the disability Royal Commission and the Disability Discrimination Act. Rosemary calls for minimum accessibility standards for all new housing, an end to segregation, and a human rights-based approach across all government policy.
On this episode of Reasonable & Necessary, Dr George meets with disability rights advocate El Gibbs and disability law expert Mitchell Skipsey to discuss the NDIS Bill, the recent amendments and what is needed to ensure that the NDIS Bill meets the needs of NDIS participants.The guests highlight the importance of constraints on the NDIA's information gathering powers and the need for strengthening avenues for appeals. They also highlight the importance of considering the whole person in determining support packages. They explain what happens next and express hope that the Senate committee will recommend further amendments to address the concerns of the disability community.
On this episode of Reasonable & Necessary, Dr George meets with Greens Senator Jordon Steele-John to understand his position on the changes to the NDIS legislation that are currently before Parliament. The Senator expresses concerns and why he believes these changes will negatively impact participants. He explains his thinking behind this position and why the changes may result in less choice and control for NDIS participants.
On this episode of Reasonable & Necessary, Dr George meets with disability law experts Mitchell Skipsey, and Dr Darren O'Donovan to understand the changes to the NDIS Act. They explore the reasons for the changes, and how these changes may impact on NDIS participants. The conversation highlights the importance of involving people with disabilities in the decision-making process and ensuring that the changes lead to positive outcomes for participants. The experts emphasise the need for stronger protections to ensure participant choice and control are upheld. They suggest some amendments to the Act and encourage listeners to engage in the Senate inquiry and make submissions to express their views and concerns.
On this episode of Reasonable & Necessary, Dr George meets with the NDIS Provider and Worker Registration Taskforce to understand the role of the taskforce and learn if changes to registration requirements will impact on our rights to choice and control in the NDIS. To learn more check out the website below: https://www.dss.gov.au/disability-and-carers-standards-and-quality-assurance/ndis-provider-and-worker-registration-taskforce
In Part 2 of our deep dive into the NDIS Review we explore assessments, navigators and psychosocial supports and talk about what happens next. What happens when you bring together Australia's leading disability advocates and academics to dive deep into the recommendations by the NDIS Review? To find out check out this episode of Reasonable & Necessary for an in-depth, no holds barred examination of the most controversial NDIS Review recommendations.
What happens when you bring together Australia's leading disability advocates and academics to dive deep into the recommendations by the NDIS Review?To find out check out this episode of Reasonable & Necessary for an in depth, no holds barred examination of the most controversial NDIS Review recommendations.In this 1st part, the panel examines mandatory provider registration and the recommendation that participants who need 24/7 support should be funded to share with 2 other NDIS participants.What does this all mean for participant choice and control? Let’s find out…
On this episode of Reasonable & Necessary, Dr George brings together Australia's leading disability advocates to unpack the NDIS Review. Dr George, along with El Gibbs, Nick Avery, Jarrod Sandell-Hay and Sam Paior will guide you through all the big changes that are proposed, and what they might mean for you.
On this episode of Reasonable & Necessary, Dr George speaks with disability rights lawyer Natalie Wade, about NDIS appeals, the NDIS Review and her nationally televised speech on the ABC.
On this episode of Reasonable and Necessary, Professor Bruce Bonyhady and Lisa Paul give their final interview and reveal major changes that will be recommended in the NDIS Review final report. This is a must see episode for anyone interested in the NDIS.
On this episode of Reasonable and Necessary, Dr George speaks to Alastair McEwin, Former Commissioner, Disability Royal Commission about what the findings and recommendations of the Royal Commission into Violence, Abuse, Neglect and Exploitation of people with disability will mean for the disability community.
On this episode of Reasonable and Necessary, Dr George speaks with international expert on self-directed disability supports and citizenship, Dr Simon Duffy and NDIS participant and researcher Dr Mark Brown about their new report “Redesigning the NDIS”. The report highlights the need for a sustainable NDIS, built through codesign with reliable personal budgets and peer support at the centre. It was written to stimulate discussion and debate in the disability community about NDIS 2.0, 3.0 and beyond.
On this episode of Reasonable & Necessary, Dr George speaks with Mitchell Skipsey from the Public Interest Advocacy Centre (PIAC) and NDIS participant and activist, Felice Vaiani, about NDIS appeals and what to do when your NDIS plan doesn't meet your needs. This episode is full of lots of great advice, and important things to consider when appealing NDIS decisions.
You can also check out a new resource series created by the Housing Hub and PIAC teams on Challenging NDIS Decisions. These resources cover a range of interesting topics including how to request a review of an NDIS decision that you don’t agree with, how to apply to the AAT for an external review, how to find out the reasons behind an NDIS decision, how to request access to documents from the NDIS and how to ask for more time to apply to the AAT.
You can access the resources here: https://www.housinghub.org.au/resources/article/challenging-ndis-decisions
This episode was recorded on 25 July 2023 and is part of the Reasonable and Necessary podcast series. For more episodes visit: https://www.summerfoundation.org.au/resources/reasonable-and-necessary-podcast-series/
On this episode of Reasonable and Necessary, Dr George speaks with Donna Purcell and Jeannie Hodges from the NDIA & CEO of Hazzah & NDIS participant Ben Paior-Smith to find out how you can use your NDIS funding to find and maintain employment. We also look at what employers can do to get more disabled people into work.
On this episode of Reasonable and Necessary, Dr George speaks with Professor Bruce Bonyhady AM and Ms Lisa Paul AO PSM about early findings from the NDIS Review and what the NDIS might look like in the future.
On this episode of Reasonable and Necessary, Dr George speaks with Minister Bill Shorten about the 2023 NDIS budget to understand what the budget will mean for people with disabilities and our families. Is there a cap on the NDIS, will our funding packages be cut and will it be harder to get onto the NDIS? You will get the answers to these questions and more.
On this episode of Reasonable and Necessary, Dr George speaks with NDIA General Manager Sam Bennett and NDIS guru Sam Paior about how to manage your NDIS funds efficiently, creatively and innovatively so you can get the best outcomes out of your plan. While we focus on self management, you don't need to self manage to benefit from this episode. It will be relevant to you if you are plan managed and even if you are agency managed and want to have more control over your supports.To learn more about self management you can visit: https://www.ndis.gov.au/self-management https://www.selfmanagerhub.org.au
Did you know that NDIS participants over all spend about 60% of our funding on unregistered providers. And this number is growing. On this episode of Reasonable and Necessary, Dr George speaks with Prof Helen Dickinson from UNSW and NDIS participants and disability advocates Nick Avery and Jarrod Sandell-Hay about why more and more participants are turning to unregistered providers for NDIS support and how to stay safe.
On this episode of Reasonable and Necessary, Australia's leading podcast series on the NDIS, Dr George Taleporos is joined by Assistant Director of the Fraud Fusion Taskforce at the NDIA Bruce Graydon, the Director of Compliance and Worker Screening at the NDIS Commission Matt Barr and disability ally Peter Gregory.You will get some great tips on how to protect yourself from NDIS fraud and dodgy providers.Anyone with information about suspected fraud involving the NDIS should contact the NDIS fraud reporting and scams helpline on 1800 650 717, or email fraudreporting@ndis.gov.auTo make a complaint about an NDIS provider or if you are unhappy with your NDIS provider and want to talk to someone about what you can do, contact the NDIS Commission on 1800 035 544 or email contactcentre@ndiscommission.gov.au
On this episode of Reasonable and Necessary, Australia's leading podcast series on the NDIS, Dr George Taleporos is joined by the new CEO of the National Disability Insurance Agency Rebecca Falkingham about her key priorities , how she plans to rebuild trust and much more.
In this episode of Reasonable and Necessary, Australia's leading podcast on the NDIS, Dr. George speaks with newly appointed NDIS Chair Kurt Fearnley. In this in-depth interview Fearnley reveals all about how he came to the role, his vision for the future of the NDIS and, with a bit of persuasion, he takes on some of your tricky questions
In this episode of Reasonable and Necessary, Dr. George speaks with NDIS Commissioner Tracy Mackey about what you can do if you are unhappy with your NDIS services, including how to deal with unregistered providers, and how you can make a complaint to the commissioner.
In this episode of Reasonable and Necessary, Dr George speaks with Megan Topping (La Trobe University PhD research student) and Carl Thompson (NDIS participant and director of support coordination provider 'Sort Your Support') about what NDIS participants really want from support workers.
In this episode of Reasonable and Necessary Dr George follows up with the newly elected Minister about what he’s learned about the NDIS since taking over, and what he’s going to do to rebuild it now that he’s in charge. Fixing the issue of people stuck in hospital, bringing forward the 10-year review and restructuring the appeals process are just a few of the topics they cover
In research by the Summer Foundation and La Trobe University, participants revealed that their relationship with the NDIA needs repairing – most had lost confidence and trust in the NDIA. Many recognised that they can’t opt out of this relationship, so with the appointment of a new government, many participants are optimistic that the time may be right for an honest dialogue between all parties about the future of the NDIS.
Dr George Taleporos speaks to a panel of disability advocates, where they examine the topics discussed in the previous episodes of the election series. They cover all things NDIS - funding cuts, operational issues, workforce, cost versus value and the damage of a ‘cost-first’ mentality.
Dr George Taleporos speaks to Shadow Minister for the NDIS, Bill Shorten in today’s episode of Reasonable & Necessary. Mr Shorten talks about his plans for the NDIS if he’s elected and how he plans to bring more people with disability into administering the NDIS, how they plan to make the NDIS more sustainable and how a Labor government plans to stop blanket cuts to participants’ plans.
Election 2022 and the NDIS: Interview with Senator Jordon Steele-John by Summer Foundation Ltd
In the first episode of our election special, Dr George Taleporos talks to the Hon Linda Reynolds, Minister for the NDIS. In this important conversation, Minister Reynolds talks through her priorities for the NDIS if re-elected, which include participant-centred reforms, extra funding and reducing wait times around housing and support decisions.
In this episode of Reasonable & Necessary, we meet NDIS participant Leila Bowheen who has been stuck in hospital for almost a year, waiting for housing and support. We also talk to Adam Horsburgh, CEO at the Austin Hospital for his take on the problem and how it can be solved
This interview was recorded in April 2022.
Part of the Reasonable and Necessary podcast series.
In this episode of Reasonable & Necessary, George is speaking with Therese Clark from Barwon Health to find out how people with disability (PWD) can access free rapid antigen tests (RAT) through the Victorian Government Disability Liaison Officer service.
In this episode of Reasonable & Necessary, George is speaking with NDIA CEO Martin Hoffman about what’s new in the NDIS for 2022. We talk about codesign, NDIS appeals, COVID-19 and much more.
This interview was recorded on 14 February 2022.
In this final episode of the Reasonable and Necessary COVID-19 series, Dr George Taleporos speaks to Linda Hughes, UpSkill Lead and parent to a man who has complex needs. They go into detail about why it’s so important to make a plan for ‘COVID-normal’, and the most useful tools that will help you plan for the ‘what ifs’.
This interview was recorded on 19 November 2021.
The following websites were referenced in this episode:
Hospital Passport https://www.health.qld.gov.au/__data/assets/pdf_file/0032/858362/3.-Julians-Key-Health-Passport-100gsm-LHC-staple.pdf
A2D Admission to discharge http://a2d.healthcare
Top 5 things for hospital staff to know http://a2d.healthcare/wp-content/uploads/2017/01/TOP-5_-Information.pdf
Developmental Disability WA – My Hospital Passport https://ddwa.org.au/forms-to-help-you-prepare-for-an-emergency-hospital-visit/hospital-passport-march-2020/
Part of the Reasonable and Necessary podcast – Living with COVID series.
For more episodes visit: https://www.summerfoundation.org.au/resources/reasonable-and-necessary-podcast-series/
Dr George Taleporos speaks to Australia's Disability Discrimination Commissioner, Dr. Ben Gauntlett about the human rights impact of the pandemic. This interview was recorded on 27 October 2021.
In this episode of Reasonable and Necessary, Dr George Taleporos gets vaccinated without leaving the house and then speaks to the Disability Liaison Officer, who can help people to get vaccinated. This interview was recorded on 19 November 2021.
Dr George Taleporos speaks to anti-violence and disability advocate Anj Barker about her experience of catching COVID and being forced into hospital. This interview was recorded on 8 November 2021.
Dr George Taleporos speaks to The Chair of Disability and Health, University of Melbourne, Professor Anne Kavanagh, about vaccination for people with with complex needs and tips to stay safe from COVID-19. This interview was recorded on 28 October 2021.
Dr George Taleporos speaks to Deputy Chief Medical Officer, Professor Michael Kidd about rapid antigen testing in the disability sector, vaccination, when there is a substitute decision maker, and much more.
Special Series - Living with COVID Dr George Taleporos speaks to the acting NDIS Commissioner, Samantha Taylor about mandatory vaccination and the role of disability service providers in supporting us to stay safe through the pandemic. This interview was recorded on 3 November 2021.
Dr George Taleporos speaks to the Deputy CEO of the NDIA, Lisa Studdert about the role of the NDIS in supporting people through the pandemic. This interview was recorded on 3 November 2021.
Part of the Reasonable and Necessary podcast – Living with COVID series.
For more episodes visit: https://www.summerfoundation.org.au/resources/reasonable-and-necessary-podcast-series/
Dr George Taleporos speaks to NDIS Shadow Minister Bill Shorten on what it took to create the NDIS and where it may be heading.
Reasonable & Necessary with Dr George - Interview with Senator Jordan Steele-John by Summer Foundation Ltd
Dr George Taleporos speaks to Minister Linda Reynolds on the future of the NDIS and the end of independent assessments.
Key features of using a person-centred approach
This podcast series features conversations with support coordinators who share their experiences of supporting people with disability and working alongside other sectors such as health, aged care and housing.
UpSkill is for NDIS support coordinators and allied health professionals.
UpSkill is an initiative of the Summer Foundation.
Supporting a person in aged care to live a better life
This podcast series features conversations with support coordinators who share their experiences of supporting people with disability and working alongside other sectors such as health, aged care and housing.
UpSkill is for NDIS support coordinators and allied health professionals.
UpSkill is an initiative of the Summer Foundation.
Supporting a person in aged care to live a better life
This podcast series features conversations with support coordinators who share their experiences of supporting people with disability and working alongside other sectors such as health, aged care and housing.
UpSkill is for NDIS support coordinators and allied health professionals.
UpSkill is an initiative of the Summer Foundation.
Supporting a person who needs to leave hospital This podcast series features conversations with support coordinators who share their experiences of supporting people with disability and working alongside other sectors such as health, aged care and housing.
UpSkill is for NDIS support coordinators and allied health professionals.
UpSkill is an initiative of the Summer Foundation.
Supporting a person who needs to leave hospital
This podcast series features conversations with support coordinators who share their experiences of supporting people with disability and working alongside other sectors such as health, aged care and housing.
UpSkill is for NDIS support coordinators and allied health professionals.
UpSkill is an initiative of the Summer Foundation.
Supporting a person whose housing isn’t working for them.
This 4-part podcast series features conversations with support coordinators who share their experiences of supporting people with disability and working alongside other sectors such as health, aged care and housing.
UpSkill is for NDIS support coordinators and allied health professionals.
UpSkill is an initiative of the Summer Foundation.
Supporting a person whose housing isn’t working for them.
This 4-part podcast series features conversations with support coordinators who share their experiences of supporting people with disability and working alongside other sectors such as health, aged care and housing.
UpSkill is for NDIS support coordinators and allied health professionals.
UpSkill is an initiative of the Summer Foundation.
Dr George Taleporos speaks to Martin Hoffman, NDIA CEO about Independent Assessments and Personalised Budgets
A conversation with the NDIS Quality and Safeguards Commission: Issues and challenges facing the SDA sector – with Graeme Head and Samantha Taylor
Tenants speak: What it’s like living in SDA & what it takes to move into independent living – Belinda Aitken, Lived Experience Facilitator and SDA Reference Group Lead, Summer Foundation and Kim, an SDA tenant.
Providers speak: What it takes to deliver quality outcomes in the SDA market - with Queenie Tran, Chief Operating Officer, Summer Housing and Tom Worsnop, Tenant Outcomes Manager, Guardian Living
Understanding Individual Living Options - with UpSkill lead Linda Hughes and My Supports CEO Terry Mader
Support coordinators getting great outcomes for people who have complex needs - with Linda Hughes, Brigette Kirkpatrick and Marnie Baulch
Talking support coordination, what it takes to be a support coordinator and how to run a support coordination business – with Jess Stubbins from Ablelink
Talking ethnicity, culture and the NDIS – with Sophie Dutertre from the Centre for Culture, Ethnicity and Health, and NDIS participant Julie Duong
Holding support providers to account - with NDIS Quality and Safeguards Commissioner Graeme Head
From the world epicentre of the virus - with New York resident, disability rights lawyer and Director of Policy at Concepts of Independence T.K. Small
NDIS funding flexibility, plan reviews and more - with Campaign Director at Every Australian Counts Kirsten Deane
Making sure you and your support workers know how to stay safe - with support coordinator and NDIS participant Kelly Cox
Avoiding Coronavirus and what the government needs to do – with Professor Anne Kavanagh, Professor of Disability and Health at the University of Melbourne
Staying safe during COVID-19: Juggling support workers, finding supplies and social distancing – with Jarrod Sandell-Hay, NDIS Participant and Freelance Photographer
Q & A with the NDIA – with Maryanne Diamond AO, General Manager, Community Linkages and Engagement at the National Disability Insurance Agency
Insights into Specialist Disability Accommodation – with Luke Bo'sher and Alecia Rathbone of the Summer Foundation
On today’s episode we are talking about How we can make the NDIS work better for everyone.
To help us work through these issues I am pleased to welcome Kirsten Dean, Campaign director of every Australian counts.
MUSIC THERAPY IN NEUROREHABILITATION – AN OVERVIEW OF CURRENT CLINICAL PRACTICE AND RESEARCH
TOPIC: Changing service models in the NDIS: Key considerations to achieve participation outcomes following ABI - This lecture will outline key findings from an NDIS Innovative Workforce Fund project delivered with people with ABI living in Specialist Disability Accommodation (SDA) and their support workforce
PRESENTED BY: Sue Sloan, occupational therapist and clinical neuropsychologist with a main interest in the long-term rehabilitation and support of people with ABI Libby Callaway, occupational therapist, researcher and senior lecturer at Monash University Jan Mackey, principal speech pathologist at Applied Communication Skills and co-author of communication resources used widely in Australia and the UK
Transcription available
This is the final episode in the second series of Reasonable & Necessary with Dr George: Making Sense of the NDIS. In this episode, Dr George speaks with the Summer Foundation's Clinical Practice Leader, Cath Bucolo, about the critical interface between the health system and the NDIS.
This is the fourth episode in the second series of Reasonable & Necessary with Dr George: Making Sense of the NDIS. In this episode, Dr George speaks with Sam Paior, Support Coordinator from the Growing Space, Taking control of your funding through self-management.
This is episode 3 in the second series of Reasonable & Necessary with Dr George: Making Sense of the NDIS. In this episode, Dr George speaks with Sam Paior, Support Coordinator from the Growing Space, about how support coordination can help me to implement my plan.
This is the second episode in this second series of Reasonable & Necessary with Dr George: Making Sense of the NDIS. In this episode, Dr George speaks with Graeame Head, NDIS Quality and Safeguards Commissioner, about staying safe and building quality into NDIS services.
This is the first episode in a brand new series of Reasonable & Necessary with Dr George: Making Sense of the NDIS. In this episode, Dr George speaks with the "Mother of the NDIS", the Honourable Jenny Macklin, about the NDIS 5 years on.
Emerging technologies and rehabilitation of the upper limb: are we ready?
About the lecture: Rehabilitation of the neurologically impaired upper limb is challenging for both consumers and health professionals. Published studies suggest that more than 50% of stroke survivors will leave rehabilitation with a nonfunctional upper limb. We know that cortical changes are experience-dependant and rely on intensity, repetition and engagement. Emerging technologies, such as gaming and robotic assisted devices, provide an engaging platform for rehabilitation that enable the high numbers of repetition critical for neuroplasticity and functional improvement. However, clinicians are often reluctant to incorporate such technology in practice. This presentation will discuss research collected as part of the implementation of a publicly funded, technology driven, upper-limb rehabilitation clinic – the Hand Hub. The barriers and facilitators for the uptake of new technology in healthcare settings will be examined in the context of evidence-based practice. This presentation will also encourage debate with the audience about the place of technology in rehabilitation settings.
About the Presenter: Marlena Klaic is the research leader for occupational therapy at Melbourne Health and a senior clinician for acute neurosciences. She has more than 15 years experience working in neurosciences across all stages of the continuum. Marlena was a core member of the multidisciplinary team that established the Hand Hub and recently authored a paper on the clinical outcomes from the Hand Hub. Marlena is interested in outcome measures and recently submitted her PhD, Enhancing evidence based practice with allied health clinicians. She is currently leading two multi-site studies related to technology and robotics.
TOPIC: Art as a catalyst for change in acquired brain injury A presentation of preliminary research findings into an art therapy program at the Royal Talbot Rehabilitation Centre, outlining the benefits of art therapy within a more traditional therapeutic framework PRESENTERS: Erica Mainprize, private art therapist, Royal Talbot Rehabilitation Centre Dr Bronwyn Moorhouse, speech pathologist, Royal Talbot Rehabilitation Centre
The NDIS and housing, with Dr George and Penny Paul. A podcast series by the Summer Foundation.
How to go about your making your NDIS Plan, with Dr George and Penny Paul. A podcast series by the Summer Foundation.
Everything you ever wanted to know about the National Disability Insurance Scheme (NDIS), with Dr George and friends. A podcast series by the Summer Foundation.
Lecture Title: ABI and Challenging Behaviour: Perspectives of a Grandma Presented by Occupational Therapist and Clinical Neuropsychologist, Sue Sloan. Lecture Bio: Challenging behaviour following acquired brain injury (ABI) typically leads to severely depleted life role participation – the outcomes of which include boredom, loneliness and a sense of hopelessness. Sue will reflect on stories of people living in shared supported accommodation to draw connections between the themes of behaviour, participation and relationships between residents and staff. The focus will be on keys to success in building pro-social behaviour and role participation.
Transcript: https://www.summerfoundation.org.au/wp-content/uploads/2017/11/allen-martin-memorial-lecture-transcript.pdf
HE WENT BACK INTO HIS SHELL LIKE A TORTOISE”: EXPLORING THE CHALLENGING JOURNEY OF STROKE SURVIVAL
Stroke has been described as a double crisis because survivors and families are faced with both the need to adapt to the physical, cognitive and emotional consequences of the stroke and the need to negotiate a foreign culture – the health care system.
The aim of this project was to gain some understanding of how stroke survivors and their family carers have experienced the stroke care continuum. In her lecture, Jacinta will discuss how the care experience emerged as a process comprising a series of phases that could both overlap and re-occur.
Transcript: https://www.summerfoundation.org.au/wp-content/uploads/2017/01/breakfastclub4transcript_oct2017.pdf
TREATING FATIGUE AND SLEEP DISTURBANCE FOLLOWING BRAIN INJURY WITH COGNITIVE BEHAVIOUR THERAPY
Fatigue and sleep disturbance represent two of the most common symptoms after acquired brain injury, and cause significant difficulties with activity participation and quality of life. Despite this, there has been limited investigation of treatments and currently there are no treatment guidelines for managing fatigue and sleep problems following traumatic brain injury (TBI) or stroke. This presentation will focus on the use of cognitive behaviour therapy to treat fatigue and sleep problems after brain injury and will include discussion of the findings of a randomised controlled trial conducted at the Monash-Epworth Rehabilitation Research Centre, on which Adam and Dana are co-investigators.
Transcript: https://www.summerfoundation.org.au/wp-content/uploads/2017/01/BreakfastClubTranscript0908_Final.pdf
Behaviours of Concern (BoC) such as aggression are a debilitating and distressing consequence of traumatic brain injury (TBI). Through their research, Kate Gould and Amelia Hicks explored the lived experience of BoC and treatment history in individuals with TBI, and their family members and/or clinicians.
In brief, it was found that participants with TBI and their informants described frequent and persistent BoC, particularly physical and verbal aggression and socially inappropriate behaviour, even many years post-injury. Kate and Amelia highlighted the impact of BoC on relationships and employment which can lead to social isolation, a loss of sense of self, anger, depression, and in turn, aggressive behaviours.
Transcript: https://www.summerfoundation.org.au/wp-content/uploads/2017/03/2017-BREAKFAST-LECTURE-1-SUMMER-SERIES-2017.pdf
Professor Jacinta Douglas, Summer Foundation’s Chair of Living Well with Acquired Brain Injury at La Trobe University, presents a lecture on “Maximising community connection after brain injury: a multi-component program“.
This presentation will discuss associated reactions (ARs) of the arm and the impact these involuntary arm movements have on people with acquired brain injury. The many negative effects of ARs will be explored looking at both the physical and psychological sequelae.
The challenges that currently exist in the field of ARs will be highlighted, with a primary focus on the need for clinicians to be able to accurately identify ARs and assess changes in response to treatment. Relevant literature will be outlined, emphasising the need for a new gold-standard, clinically feasible and functional outcome measure of ARs.
This lecture explores the complex nature of family resilience following acquired brain injury (ABI). While ABI literature has largely been dominated by a focus on family burden and stress, a focus on resilience presents a constructive approach to dealing with the trauma and loss associated with ABI. In her lecture, Franca Butera-Prinzi will present a systemic and dynamic view of resilience that is critical to helping families cope with the grief and stress surrounding ABI.
The NDIS is a long awaited reform, and one that has enormous potential to improve the lives of people with disability, especially those living in, or at risk of entering a nursing home.
But what impact has it had to date and what are the implications of a system rolling out while still finding its feet? What is working, and what still needs tweaking?
This year’s annual public forum explored some of the issues and opportunities surrounding the NDIS.
TOPIC: Return to Driving after Traumatic Brain Injury - Processes, Outcomes and Driver Rehabilitation PRESENTED BY: Pam Ross, Grade 4 Senior Occupational Therapist, Driving and Vocational Rehabilitation Coordinator, Epworth Rehabilitation.
TOPIC: Offenders with ABI in the Magistrates’ Court: Support services & sentencing considerations. PRESENTED BY: Deputy Chief Magistrate Ms Jelena Popovic
TOPIC: Evaluating models of housing and support for people with acquired brain injury. PRESENTED BY: Libby Callaway, Summer Foundation Research Manager and Lecturer, Monash University
TOPIC: Developing and maintaining a sense of self and social connection several years after severe brain injury. PRESENTED BY: Jacinta Douglas, PhD Professor of Acquired Brain Injury (Summer Foundation Chair, Living Well with Brain Injury), College of Science, Health and Engineering, La Trobe University
TOPIC: Physical activity levels following traumatic brain injury PRESENTED BY: Megan Hamilton, physiotherapist of the Epworth Rehabilitation TBI Community Integration team.